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Paul Sephton
Former Clinical Nurse Specialist in PH
Research Physiotherapist, Golden Jubilee National Hospital
“My wife was diagnosed with pulmonary hypertension nearly a year ago and while she seems to be coping well, I’m still struggling to get my head around it all. Does it get easier?” A diagnosis like this is often a big shock to the whole family, and it can take a long time to adjust. It’s important not to be hard on yourself, and to allow yourself space and time to come to terms with what’s changed. Communication is also key; talk to each other about how you are feeling, and how you may be able to support each other. Equipping yourself with as much knowledge as possible about the condition can also help, but make sure this information comes from trusted sources (be careful with Google!) The specialist centre treating your wife will be very happy to
SPRING 2022 emphasis 28
Shaun Clayton
Joanna Ford
Director of Membership Support at the PHA UK
answer your questions, as they recognise how important it is to involve family members in care too. You might find it helpful to talk to other spouses / partners of people with PH. At the PHA UK we have a private Facebook group exclusively for family members and loved ones. Type this into your web browser to join in the chat: www.facebook.com/ groups/402808577486104
We also operate a Listening Line service for anyone affected by PH, including family members. Turn to page 26 for more details and do get in touch if you’d like to talk anything through. You’re definitely not on your own.
Paul
