Online support whenever you need it

With over 2000 members, our private Facebook group is a safe and supportive space to talk to others affected by PH. No-one understands pulmonary hypertension like those who live with it. If you have a question, or something you want to share, you’ll find people offering advice and support at all times of the day or night on our Facebook group. To join, simply type the address below into your web browser and answer the screening questions displayed. (Don’t worry, they are only there to ensure that your privacy is protected) . bit.ly/OfficialPHAUKFacebookGroup

Are you a carer, or have you experienced loss?

We also have a private Facebook group for family members, loved ones, and anyone who provides care or support for someone with PH. Join at bit.ly/PHAUKCarersGroup

If you have lost someone to PH, you can connect to others in this private Facebook group set up by PHA UK members: bit.ly/PHightingOn_LifeAfterLossToPH

When Wayne Culyer’s CTEPH symptoms worsened, he made the difficult decision to leave the job he’d been in for 38 years. Just a few weeks after he took medical retirement, we spoke to Wayne and his wife Kathy about the process, the past, and how they are adapting to a new future together…