Survey aims to uncover experiences of the pandemic

Living through the pandemic with PH

Share your side of the story and make your voice part of history

We’ve all navigated the COVID-19 storm in different boats, and as a society we need to understand the impact of the last 18 months so that lessons can be learned.

It’s essential that we capture the experiences of the pulmonary hypertension community during this unprecedented time, and we really need your help to do this.

Last year, three months into the pandemic, we conducted important research to help us understand your experiences of shielding. We had 824 responses - the most we have ever received for a survey - and these responses gave us vital insight into the effects of the early stages of COVID-19.

A year later, and 18 months since the virus reached our shores, we need to understand the wider picture.

What’s it been like for you? We want to understand the effect on your physical and mental health, how your habits and behaviours might have changed, and your personal experiences of the restrictions to everyday life.

Was shielding the right thing to do? How do you feel about the future, and what support do you need as the world opens up again?

This time, we want to hear from everyone in the PH community - not only patients. If you are a carer, parent, guardian or loved one, it’s important that your voice is heard too.

That’s why you’ll find two different surveys with this magazine. One is for patients, with space for parents and guardians on the reverse, and the other is for someone else in the household - perhaps a partner, or family member - to complete. You can return the surveys together, in the same envelope (postage is covered by us, so there’s no need for a stamp). You can remain anonymous if you wish.

research

The surveys are also available to complete online at www.phauk.org Filling them in online saves us the cost of postage and, if it’s your preference, it means you can complete your questions more privately.

PLEASE ENSURE YOUR RESPONSES REACH US BY FRIDAY 31st JULY 2021

Shielded voices

You can find our report from last year’s research at www.phauk.org A copy can also be requested by emailing office@phauk.org or calling 01709 761450