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PH and sleep
63%
said their sleep has worsened since having PH (27% said it is ‘much worse’)
28%
have noticed no change
“Even with oxygen, I am still disturbed at night”
have seen an improvement. 9%
The following problems were reported:
I have difficulty getting off to sleep I frequently wake in the night When I wake in the night I struggle to get back to sleep I don’t feel refreshed when I wake up I often feel sleepy during the day My sleep has not been worse
30% 50% 37% 38% 32% 25%
“Usually from issues from acid reflux from drug side effects”
“I think as you get older you [are] probably not so active so sleep doesn’t come”
“If I wake and go back to sleep I suffer vivid dreams” “I think this [sleep issue] may be to do with other factors, namely anxiety. Some of my anxiety is caused by PH but also by external factors.” “Extreme fatigue makes it difficult to concentrate”
“Feel irritable and sometimes tearful at times and feel I can’t do as much physically”
“Drowsiness and needing to sleep in the afternoon to get through to night time can be frustrating”
“I feel drained a lot of the time, even in the morning. I find it difficult to stay awake in the evening, but still wake up in the night. I can sleep anywhere except in bed.” “Overwhelming tiredness if I have had a really bad night”
“Difficult to wake up and get ready for work / day to day activities”
“Lack of stamina and low energy”
“Run out of energy very quickly, hard to be motivated to do anything”
“Concentration and multi-tasking is extremely difficult”
“I don’t have the energy to do my normal activities. I am more irritable with my daughter. t can be a huge strain in general being a single Mum, so lack of sleep has a huge impact.”
“Always very tired. But still struggle on as much as I can.”
“If I don’t manage to sleep well I’m exhausted through the day and also sometimes more breathless”
“I lose focus so I’m hearing people speak but not processing/ comprehending”
“Less productive, not able to concentrate”
Respondents were asked how sleep problems affect what they can do during the day.
