Ambassador Program Presentation What Carers and Partners Need to Know
1
PCFA Ambassador Program What Carers and Partners Need To Know
What we’ll cover today • • • • • • •
The Prostate Prostate Cancer Statistics Prostate Cancer Carers Information What might happen if earlier test are abnormal How can PCFA help? Prostate related health promotion activities
© PCFA 2013
2
PROSTATE CANCER MYTHS 3
PCFA Ambassador Program What Carers and Partners Need To Know
PCFA – an overview Prostate Cancer Foundation of Australia (PCFA) is the peak national body for prostate cancer in Australia. PCFA are dedicated to reducing the impact of prostate cancer on Australian men, their partners, families and the wider community. By: • Promoting and funding research • Implementing awareness campaigns and education programs • Supporting men and their families through information and resources, support groups and Prostate Cancer Specialist Nurses
© PCFA 2013
4
PCFA Ambassador Program What Carers and Partners Need To Know
The Prostate • Small gland – size of a walnut • Sits beneath the bladder • Doughnut shaped surrounds the urethra • Produces fluid which provides a healthy environment for sperm
Bladder
Prostate Gland
© PCFA 2013
5
PCFA Ambassador Program What Carers and Partners Need To Know
Prostate Cancer Statistics • men will be diagnosed by age 75
• men will be diagnosed by age 85
• Second most common cause of cancer deaths – around 9 men die each day from the disease • For patients with localised disease around 93% will live beyond five years of diagnosis
© PCFA 2013
6
PCFA Ambassador Program What Carers and Partners Need To Know
Carer – a definition • Male or Female • Relative, partner (spouse, defacto, same-sex) or a friend • Support patient who is ill, frail, disabled, mental health or substance abuse • Can be anyone and any age
© PCFA 2013
7
PCFA Ambassador Program What Carers and Partners Need To Know
Recognised Challenges • Time deprivation • Depression • Reduced wellbeing • Chronic pain
© PCFA 2013
8
PCFA Ambassador Program What Carers and Partners Need To Know
Caregiving: A Balancing Act Resources
Š PCFA 2013
Stressors
9
PCFA Ambassador Program What Carers and Partners Need To Know
Ways you can support • Learn all you can about prostate cancer care • Know the routine • Record results, actions, dates such as PSA levels, implants dates • Exercise helps everyone • Be aware - depression and anxiety are common • Accept support
© PCFA 2013
10
PCFA Ambassador Program What Carers and Partners Need To Know
Looking after yourself • Lead a Healthy Lifestyle: Healthy balanced diet Quality sleep time Exercise Methods for relaxing and reducing stress levels Seek support
© PCFA 2013
Carer Line for information, referrals, support groups, counselling 1800 242 636 Monday – Friday, 9am – 5pm
11
PCFA Ambassador Program What Carers and Partners Need To Know
Possible side effects of treatment • Surgery (prostatectomy) • Radiation therapy • Hormonal therapy • Chemotherapy
© PCFA 2013
12
PCFA Ambassador Program What Carers and Partners Need To Know
Intimacy •
Depending on the patient’s treatment sexual concerns may become an issue for both of you • Erectile dysfunction • Loss of sex drive/low libido
© PCFA 2013
13
PCFA Ambassador Program What Carers and Partners Need To Know
How can PCFA help? PCFA offers • Information • Support materials • Affiliated support groups across Australia www.prostate.org.au Freecall 1800 220 099
© PCFA 2013
14
PCFA Ambassador Program What Carers and Partners Need To Know
Support Groups
How To Find Them
www.prostate.org.au
Š PCFA 2013
15
PCFA Ambassador Program What Carers and Partners Need To Know
Your Health Matters! • Eat a balanced diet • Look after your mental & emotional wellbeing • Do some physical activity • Limit alcohol consumption
© PCFA 2013
16
PCFA Ambassador Program What Carers and Partners Need To Know
CARING FOR YOURSELF SUPPORT GROUPS RESPITE CARE COUNSELLING SELF CARE STRESS MANAGEMENT
© PCFA 2013
17
PCFA Ambassador Program What Carers and Partners Need To Know
THANK YOU!
Š PCFA 2013
18
PCFA Ambassador Program What Carers and Partners Need To Know
References • • •
•
• •
Australian Institute of Health and Welfare (AIHW). ACIM (Australian Cancer Incidence and Mortality) Books. AIHW: Canberra. Australian Institute of Health and Welfare 2012. Cancer incidence projections: Australia, 2011 to 2020. Cancer Series no. 66. Cat. No. CAN 62. Canberra: AIHW. Australian Institute of Health and Welfare & Australasian Association of Cancer Registries 2010. Cancer in Australia: an overview, 2010. Cancer series no. 60. Cat. no. CAN 56. Canberra: AIHW. Australian Government. Medicare Australia statistics: Medicare Benefits Schedule Item 66655. Available from https://www.medicareaustralia.gov.au/statistics/mbs_item.shtml, accessed April 2012 Information for Carers, www.actcancer.org/patients-family-friends/information-forcarers.aspx Carers Australia, www.carersaustralia.com.au
© PCFA 2013
19
PCFA Ambassador Program What Carers and Partners Need To Know
Resources for both Carer & Patient beyondblue: the national depression initiative beyondblue.org.au 1300 22 4636 Healthshare Australia’s interactive health network healthshare.com.au Continence Foundation of Australia continence.org.au 1800 33 00 66 MindHealthConnect mindhealthconnect.org.au This Way Up, online treatment, education and research in anxiety and depression thiswayup.org.au The Australian Guide to Healthy Eating health.gov.au Andrology Australia andrologyaustralia.org Urological Society of Australia & New Zealand usanz.org.au
Š PCFA 2013
20
PCFA Ambassador Program What Carers and Partners Need To Know
Resources for Carers Role Carers Australia Carers Support and Services 1800 242 636 www.carersaustralia.com.au Cancer Council 13 11 20 www.cancer.org.au Carer Life Course carerlifecourse.com.au Working Carers Gateway www.workingcarers.org.au info@workingcarers.org.au
Carer Allowance and Carer Payments are available through Centrelink. Visit your nearest Centrelink office to get applications and information (application are not available online).
Cancer Council’s Caring for Someone with Cancer Booklet, available online in PDF format: http://www.cancervic.org.au/aboutcancer/information_for_carers Palliative Care Australia: http://www.palliativecare.org.au
Š PCFA 2013
21