March 2024 Special Needs Living Magazine

Navigating the Transition

Tips for a smooth move from school to adult life

BY TIM TORCH, COMMUNICATIONS AND HR MANAGER AT THE PORTAGE COUNTY BOARD OF DD

Transitioning from high school to adulthood can be an exciting yet challenging time for all young people. For those with developmental disabilities, this transition may come with even more significant hurdles as they leave the structure and support of school life. However, proper planning and support can help them manage this life change smoothly. In this article, we’ll explore some essential tips to help young adults with developmental disabilities and their families prepare for the transition out of school.

Start planning early

It’s never too early to start thinking about life after high school. Ideally, planning should start at age 16 or younger, when transition planning becomes a formal part of a student’s Individualized Education Program (IEP). The student’s IEP team, including parents, teachers and other professionals, will work together to outline transition goals and services needed to support the student’s desired post-school goals. Starting the conversation early gives the student and family more time to identify appropriate services, programs and support systems to put in place after graduation.

Explore options for postsecondary education and training

Postsecondary education provides meaningful opportunities for learning essential life and employment skills. There are several options tailored for those with developmental disabilities, including:

• Inclusive college programs that offer vocational training and independent living skills alongside college peers without disabilities. These are offered at many community and four-year colleges.

• College-based transition programs that serve students with intellectual disabilities and offer career development and internships.

• Vocational rehabilitation agencies that provide job training and other support services to help students gain employment skills.

• The student’s IEP team can help identify programs that match the student’s skills and interests. Touring programs and starting applications early are essential to success.

Build independent living skills

Gaining skills for independent living is crucial during the transition. Areas to work on include:

• Self-care - hygiene, grooming and healthy habits

• Household skills – cleaning, cooking, laundry, etc.

• Community living skills - using public transportation, shopping and money management

• Social skills - communicating with roommates, coworkers, etc.

• Work on these skills at home, in community settings or through specialized living skills classes.

Connect with adult disability services

Get familiar with agencies that provide services and support for adults with disabilities, such as:

• Vocational Rehabilitation - offers employment services and training

• Social Security Administration provides information on SSDI and other benefits

• State or county developmental disabilities office - can provide case management, in-home support, respite care and more

• Local non-profits and disability advocacy organizations

• A great opportunity offered in Ohio is Adult Day Support. This program facilitates individuals in meeting new people, discovering local community activities, gaining independence in navigation and exploring local job opportunities.

• Contact these groups directly to learn eligibility and apply for adult services. Partnering with an agency counselor can make a big difference in accessing needed support after school ends.

Find meaningful work and volunteer opportunities

Employment provides a sense of purpose and crucial social connection after high school. Students can connect with school-sponsored work experiences to explore potential jobs or careers of interest and develop skills. Local vocational rehab agencies also offer job coaching and training programs. For students who may not be ready for paid work, volunteer positions can be an excellent way to gain confidence and experience. Volunteering also allows students to sample different career paths to find the best fit. This is an excellent gateway to discovering their true passion in life and gaining the skills to pursue their dream job.

Develop a network of friends and mentors

A solid support network is vital for this transition. Help the student connect with positive peer groups, mentors and community members who share their interests. These social relationships provide friendship, guidance and support during significant life adjustments. A mentoring program, community club or faith community can nurture these relationships. Online groups dedicated to specific disabilities or transition challenges can also provide an essential sense of community.

Discuss healthcare needs and options

Managing healthcare transitions to an adult provider and gaining health insurance coverage are vital steps. Understand options for Medicare, Medicaid or staying on a parent’s insurance plan. Be proactive in finding primary care doctors and specialists appropriate for the student’s needs and age. Staying on top of your mental health is also essential to consider, and experts are available to help them go through this period of their lives. Plan for a smooth transfer of medical records and any assistive devices or medications.

Consider legal and financial planning Guardianship, power of attorney, special needs trusts and other legal and financial planning forms may be needed to protect assets and meet the young adult’s needs. It’s wise to consult a lawyer specializing in disability planning for personalized advice on available options. Planning ahead on these matters can prevent crisis situations down the road.

Take time for self-care

This significant life change impacts the whole family. Not only do the individuals need to take time to rest and keep up with their mental health, parents, siblings and caregivers should also have support during this time of transition. Therefore, it’s essential to take time for self-care, relationships and activities that recharge oneself.

Conclusion

Transitioning from high school to adulthood is a significant milestone for all young people, especially those with developmental disabilities. With thoughtful planning, strong support systems and proactive steps taken to secure education, employment, healthcare and living arrangements, this life change can be managed successfully. The key is starting the planning process early.

The individuals and their parents/guardians should tap into available resources and have the student’s interests and goals drive the transition plan. It is vital that the student and family build a network of support from peer groups, adult agencies and community members. While transitions can be challenging, students with developmental disabilities have great potential to thrive in adulthood when given proper preparation and encouragement. With the right collaborative team and student-centered approach, the future after school can be bright.