RITA MALDONADO BRANCO
SHOULD INFORMATION DESIGN HAVE A MORE SIGNIFICANT ROLE IN HEALTH COMMUNICATION?
SHOULD INFORMATION DESIGN HAVE A MORE SIGNIFICANT ROLE IN HEALTH COMMUNICATION?
ALZHEIMER’S AND OTHER FORMS OF DEMENTIA STUDY CASE.
dementia impact of Alzheimer’s dementia
personal reasons
areas of action
audiences outcomes
future
dementia impact of Alzheimer’s dementia
personal reasons
areas of action
audiences outcomes
future
dementia impact of Alzheimer’s dementia
personal reasons
areas of action
audiences outcomes
future
dementia impact of Alzheimer’s dementia
personal reasons
areas of action
audiences outcomes
future
dementia impact of Alzheimer’s dementia
personal reasons
areas of action
audiences outcomes
future
dementia impact of Alzheimer’s dementia
personal reasons
areas of action
audiences outcomes
future
WHAT IS DEMENTIA?
A GROUP OF SYMPTOMS confusion memory loss decreased judgment communication problems behaviour change
trembling movement disorders parkinson symptoms epileptic seizures hallucinations delusions disturbed sleep
confusion
disorientation time and place concentration problems repetition
change eating habits inhibition inappropriate behaviour loss of empathy
behaviour change
memory loss difficulty with familiar tasks difficulty in solving problems/planning
disconnected speech loss of speech
depression withdrawn
incontinence
stroke symptoms physical weakness paralysis
violent
decreased suspicious demanding communication problems judgment source: Alzheimer’s Society, Alzheimer’s Association, NHS, Mayo Clinic
trembling movement disorders parkinson symptoms Alzheimer’s Disease
epileptic seizures hallucinations delusions disturbed sleep
confusion
disorientation time and place concentration problems repetition
change eating habits inhibition inappropriate behaviour loss of empathy
behaviour change
memory loss difficulty with familiar tasks difficulty in solving problems/planning
disconnected speech loss of speech
depression withdrawn
incontinence
stroke symptoms physical weakness paralysis
violent
decreased suspicious demanding communication judgment problems source: Alzheimer’s Society, Alzheimer’s Association, NHS, Mayo Clinic
trembling movement disorders parkinson symptoms epileptic seizures hallucinations
Vascular Dementia
delusions disturbed sleep
confusion
disorientation time and place concentration problems repetition
change eating habits inhibition inappropriate behaviour loss of empathy
behaviour change
memory loss difficulty with familiar tasks difficulty in solving problems/planning
disconnected speech loss of speech
depression withdrawn
incontinence
stroke symptoms physical weakness paralysis
violent
decreased suspicious demanding communication judgment problems source: Alzheimer’s Society, Alzheimer’s Association, NHS, Mayo Clinic
trembling movement disorders parkinson symptoms epileptic seizures hallucinations
Fronto-temporal Dementia
delusions disturbed sleep
confusion
disorientation time and place concentration problems repetition
change eating habits inhibition inappropriate behaviour loss of empathy
behaviour change
memory loss disconnected speech
difficulty with familiar tasks
loss of speech
difficulty in solving problems/planning
depression withdrawn
incontinence
stroke symptoms physical weakness paralysis
violent
decreased suspicious demanding communication judgment problems source: Alzheimer’s Society, Alzheimer’s Association, NHS, Mayo Clinic
trembling movement disorders parkinson symptoms epileptic seizures hallucinations Dementia with Lewy bodies
delusions disturbed sleep
confusion
disorientation time and place concentration problems repetition
change eating habits
inappropriate behaviour loss of empathy
behaviour change
memory loss difficulty with familiar tasks difficulty in solving problems/planning
disconnected speech loss of speech
depression withdrawn
incontinence
stroke symptoms physical weakness paralysis
violent
decreased suspicious demanding communication judgment problems source: Alzheimer’s Society, Alzheimer’s Association, NHS, Mayo Clinic
trembling movement disorders parkinson symptoms Alzheimer’s Disease Vascular Dementia Fronto-temporal Dementia Dementia with Lewy bodies
epileptic seizures hallucinations delusions disturbed sleep
confusion
disorientation time and place concentration problems repetition
change eating habits inhibition inappropriate behaviour loss of empathy
behaviour change
memory loss difficulty with familiar tasks difficulty in solving problems/planning
disconnected speech loss of speech
depression withdrawn
incontinence
stroke symptoms physical weakness paralysis
violent
decreased suspicious demanding communication judgment problems source: Alzheimer’s Society, Alzheimer’s Association, NHS, Mayo Clinic
WHAT IS ALZHEIMER’S?
Alzheimer’s Disease
hallucinations delusions disturbed sleep
confusion
disorientation time and place concentration problems repetition
behaviour change
MEMORY LOSS difficulty with familiar tasks difficulty in solving problems/planning
depression withdrawn violent
decreased suspicious demanding communication judgment problems
source: Alzheimer’s Society, Alzheimer’s Association, NHS, Mayo Clinic
incontinence
Alzheimer’s Disease
hallucinations delusions disturbed sleep
confusion
disorientation time and place concentration problems repetition
COMPLETE LOSS OF MEMORY
MEMORY LOSS difficulty with familiar tasks difficulty in solving problems/planning
behaviour change depression withdrawn violent
decreased suspicious demanding communication judgment problems
source: Alzheimer’s Society, Alzheimer’s Association, NHS, Mayo Clinic
incontinence
ALZHEIMER’S IS THE MOST COMMON TYPE OF DEMENTIA 50-75% ALZHEIMER’S
source: World Alzheimer Report 2009. Wikipedia
ALZHEIMER’S IS THE MOST COMMON TYPE OF DEMENTIA
20-30% VASCULAR DEMENTIA
source: World Alzheimer Report 2009. Wikipedia
ALZHEIMER’S IS THE MOST COMMON TYPE OF DEMENTIA 5-10%
FRONTOTEMPORAL
source: World Alzheimer Report 2009. Wikipedia
ALZHEIMER’S IS THE MOST COMMON TYPE OF DEMENTIA
<5% LEWY BODIES
source: World Alzheimer Report 2009. Wikipedia
ALZHEIMER’S IS THE MOST COMMON TYPE OF DEMENTIA 20-30% VASCULAR DEMENTIA
5-10%
FRONTOTEMPORAL
<5% LEWY BODIES
50-75% ALZHEIMER’S
source: World Alzheimer Report 2009. Wikipedia
WHY IS IT IMPORTANT?
35,560,000 ESTIMATED NUMBER OF PEOPLE WITH DEMENTIA IN THE WORLD
source: World Alzheimer Report 2009, Wikipedia
35,560,000 ESTIMATED NUMBER OF PEOPLE WITH DEMENTIA IN THE WORLD
source: World Alzheimer Report 2009, Wikipedia
35,560,000 ESTIMATED NUMBER OF PEOPLE WITH DEMENTIA IN THE WORLD
MORE THAN 4x POPULATION LONDON: 7,753,600
source: World Alzheimer Report 2009, Wikipedia
2050:
115,380,000 ESTIMATED NUMBER OF PEOPLE WITH DEMENTIA IN THE WORLD
source: World Alzheimer Report 2009, Wikipedia
2050:
115,380,000 ESTIMATED NUMBER OF PEOPLE WITH DEMENTIA IN THE WORLD
source: World Alzheimer Report 2009, Wikipedia
2050:
115,380,000 ESTIMATED NUMBER OF PEOPLE WITH DEMENTIA IN THE WORLD
ALMOST 2x POPULATION UK: 62,041,708
source: World Alzheimer Report 2009, Wikipedia
THE COST OF DEMENTIA WORLDWIDE dementia $604 bn
source: World Alzheimer Report 2010, bp.com, google.co.uk, apple.com
THE COST OF DEMENTIA WORLDWIDE dementia $604 bn
BP $239 bn
source: World Alzheimer Report 2010, bp.com, google.co.uk, apple.com
THE COST OF DEMENTIA WORLDWIDE dementia $604 bn
Tesco $62 bn
BP $239 bn
source: World Alzheimer Report 2010, bp.com, google.co.uk, apple.com
THE COST OF DEMENTIA WORLDWIDE dementia $604 bn
Tesco $62 bn
BP $239 bn
source: World Alzheimer Report 2010, bp.com, google.co.uk, apple.com
Apple $20 bn
THE COST OF DEMENTIA IN THE UK
£27,647/year
source: Alzheimer’s Research Trust, 2010
average cost of care for patient
THE COST OF DEMENTIA IN THE UK
£27,647/year £24,700/year
source: Alzheimer’s Research Trust, 2010
average cost of care for patient
UK median salary
WHY IS IT IMPORTANT PERSONALY?
Grandpa Vasco
Grandma Elisa
Grandpa JĂşlio
Grandma Rita
Grandpa Vasco 91 years old
Grandma Elisa 89 years old
Grandpa JĂşlio 88 years old
Grandma Rita 89 years old
Grandpa Vasco Alzheimer’s Severe 10 years ago
Grandma Elisa
Grandpa Júlio Grandma Rita Fronto-temporal Alzheimer’s dementia Moderate Mild 6 years ago 2 years ago
WHAT MUST BE DONE?
RAISING AWARENESS common misunderstandings about dementia having a healthy life can prevent dementia
RIGHT SUPPORT understanding symptoms and progression plan and adapt to new realities
MORE VISUAL?
MORE VISUAL?
MORE VISUAL?
TO WHOM?
1.
GENERAL PUBLIC
2. CARERS 3.PATIENTS
1. GENERAL PUBLIC How to prevent dementia. How to recognize it.
Web-based information? Booklets?
2. CARERS Understand dementia. How does it progresses. How to help. Web-based information? Booklets?
3. PATIENTS Data loss Desorientation Communication Problems
CAN WE HELP THIS?
3. PATIENTS Help to soften progression. Stimulus.
Interactive and participatory artefact
FUTURE?
? graphic design
?
? social design
THANK YOU