Percentage changes in cause of death from 2000-2013
80%
71%
55% 30% 5% -20% -2%
-11%
-14%
-23%
-52%
Dementia Care: Setting the Standard June 20, 2017 1
“There may be no other disease with the power of Alzheimer’s to cause so much despair in those who have it, so much fear in those who believe they are at risk, and such emotional and financial impact on the families who experience it.” – Trish Vradenburg, Co-Founder, UsAgainstAlzheimer’s
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The Crisis
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Cures
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Alzheimer’s Phase II and III Pipelines: Mechanisms of Action
Tau 2% Inflammation 4% Neuronal Growth 2% Vascular 5% Metabolic Dysfunction 57 7% Unknown / Multiple Mechanisms 44% Drugs Neurotransmission 14% in
Phase II Amyloid 23%
RESEARCHERSAGAINSTALZHEIMERS
Neurotransmission 35% 23 Amyloid 39% Drugs
in Phase III Tau 9%
Unknown / Multiple Mechanisms 13% Insulin/Glucose 4%
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Care
RESEARCHERSAGAINSTALZHEIMERS
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Outcomes We Seek in an Excellent Care System .Improved quality of life for every care recipient •
Personalization and culturally tailored relationships – what matters most to care recipient, family and caregiver? • Focus on brain health, not just disease management • Reduction in healthcare system utilization – fewer ER/hospital admissions/readmissions, safe environments, and better symptom management – falls, UTI, agitation, pain, depression • Informed and supported family and carer network
.Timely and accurate detection and diagnosis of impairment .Improved family and caregiving experience .Broad choice of and access to quality care – all care settings .Clear outcome measures, standardized, compared, reported .Collaborative learning system with feedback loops for progressive improvement
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Transforming Dementia Care
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Industry Role .Setting the standard for measuring outcomes .Thought leaders for the mission
• Value, importance and execution of quality care • Support for treatment, including clinical trial participation • Advocacy for research and care
.With numbers, reach and mission-driven culture, members have power to drive innovation and national goals and system of measured outcomes and progressive improvement .Extending the mission into all care settings and environments • Dementia Friendly Communities engagement • Identifying programs of community outreach • Extending lower-cost delivery of care to community residents
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Shifting the Care Paradigm
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Some Specific Innovation Goals
Set outcome measures for quality care and develop system for reporting Dementia Friendly Communities: set a standard for participation Stigma: set a goal to reduce stigma for those living with dementia Technology: share technology innovations to track cognition, maintain independence, maximize family and friends connections and advance mission Health Care Integration: advance broad integration between health care and long term care providers – closing that gap and coordinating care across settings Research: work with payers to assess real world impact of innovative medicines and measure referral rates of senior living families into clinical trials Community Initiatives: partner with local institutions focused on art, animals, intergenerational and other activities to improve resident quality of life Diverse Communities: purposefully extend culturally sensitive care into communities of color as well as all faith traditions and family structures Promote and Extend Standards: integrate standards and goals into the wider care community, adult day and home care settings 12
“We are confronted with the reality of Alzheimer’s and dementia. What are we going to do about it? Fight for a cure and join together to care.” – Trish Vradenburg, from the Foreword of Seasons of Caring: Meditations for Alzheimer’s and Dementia Caregivers
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