Showcasing UsA2 Networks & Its Focus on Addressing Brain Health Disparities
Our Strategy
Research & Policy Analysis Strategic Communications
Culturally Tailored Alzheimer’s Disease Health Promotion & Education Clinical Trial Awareness & Education Strategic Convening & CoalitionBuilding
Engaging Policymakers & Federal Agency Leadership Empowering Caregivers & Individuals Living with Dementia
The LatinosAgainstAlzheimer’s Coalition: the first-ever coalition of Latino-serving organizations coordinating Alzheimer’s awareness and brain health promotion efforts in the Latino community. Our members represent leading national and local health, advocacy, and direct services organizations. UsAgainstAlzheimer’s provides member organizations capacity, expertise, and opportunities to leverage their unique assets in the fight against Alzheimer’s in the Latino community.
Alzheimer’s & Dementia Disparities Engagement Network (ADDEN): A national network of diverse researchers, patients, caregivers and stakeholder groups convened by UsAgainstAlzheimer’s for collaboration and knowledge sharing around barriers, facilitators and priorities in Alzheimer’s research with a focus on communities of color. The project is partially funded through a Patient- Centered Outcomes Research Institute (PCORI) Eugene Washington PCORI Engagement Award (4192-USAA).
THE LATINO OLDER ADULT LANDSCAPE
The Booming 50+ Latino Population Will Change the Face of Aging in the U.S.
Latinos are at the Forefront of Multigenerational Living
Latinos and Long-term Care Planning What actions have you taken to plan for your own needs as you age?
Cost is a Key Concern with Long-Term Care for Latinos Level of Concern with Paying for Long-term Care
Latinos & Alzheimer’s
Our Challenges are Great
Higher risk of Alzheimer’s due to advanced age & higher rates of co-morbidities
Highly stigmatized
Symptoms begin 7 years earlier than non-Latino whites
Less likely than nonLatino whites to be diagnosed with the condition
Longer delays between family’s initial awareness of signs & symptoms & receipt of a diagnosis
Lack of routine assessment to detect cognitive impairment in primary care settings
CAREGIVER IMPACT
Caregiving • 42 year old Latina, caring for a loved one 65 years or older, often female. • She is the primary, unpaid care provider for her loved one and provides care without the assistance of paid help. • Her household income is $38,600, which is below the national median and the median for the average caregiver across all backgrounds. • 48% of millennial dementia caregivers (18-34) are Latino or African American
Daisy’s Story
THANK YOU