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Issue 5 - 2017
www.HealthisYourWealth.co.uk
MENTAL HEALTH
MANAGE YOUR CONDITION
IMPROVE COGNITION
IMPROVING AWARENESS
THERAPY
RELATIONSHIPS
Contents
1
Editors message and Reader Letters
2
IMPROVING AWARENESS Time taken to diagnose a head injury 44
MANAGE YOUR CONDITION Holiday with Head Injury
Trouble Finding Things
46
HEADWAY Derby
47
Dispelling Compensation Myths
50
6
Identifying Obsessive Compulsive D. 9 Importance of a Routine Importance of Nutrition
RELATIONSHIPS
14
53
Family Dynamics
55
16
IMPROVE COGNITION Brain Training and Apps
Guardian Angle
REVIEWS & SUBSCRIPTIONS
21
MENTAL HEALTH
Book Review
57
Movie Review
58
Grief
29
Subscriptions
59
How to Keep Motivated
34
Key Contacts
60
THERAPY The Importance of Breathing
40
1
Editors Message
Readers Letters ‌ Send letters to: letters@healthisyourwealth.co.uk
Please note some of these articles are written by patients who are still in recovery. These articles are deliberately unchanged and may contain spelling,
There are few things that
punctuation and grammar mistakes.
are absolutely certain in life. Death and Paying
A copy of our medical disclaimer plus
Taxes are two guarantees. The other is definite is
terms and conditions is on our website.
change. It happens all the
We respond to each letter!
time in every facet in life. However when it happens
Errors and omissions are exempt from
in your health condition it
this
appears
conditions please see:
more
personal
publication.
For
terms
and
and impactful. As time
www.HealthisYourWealth.co.uk
goes by you can expect change, both positive and negative and usually when
PLEASE NOTE THAT
you least expect it. Learn
THE ADVERTISING AND
to embrace change. David, Editor
ARTICLE SUBMISSION FOR THE DECEMBER ISSUE IS NOVEMBER 20th 2
The Leading Personal Injury and Clinical Negligence Solicitors in the East Midlands area. At Barratts we are proud to be different. We ensure that every client has an experienced lawyer acting for them throughout the claim. We visit clients at home and we take the time to listen, understand and explain. We have a reputation for handling claims with sensitivity and offering support during the rehabilitation process. That is why we are locally based but recognised for our expert, independent advice by:
Headway, The Spinal Injury Association, AvMA, APIL, Law Society and independent legal guides including Legal 500 and Chambers Our clients are nearly all personally recommended to us by former clients and professionals. Our caring approach is second to none. If you have been injured and want advice from a lawyer with experience, who has the time to fight for you, then please contact us:For Nottingham contact
Ed Myers
For Derby contact
Debra Morris
And for Clinical Negligence contact
Julie Hardy
We can discuss how best we can help you and your family in a relaxed setting.
Both Ed and
Debra are specialist head injury lawyers, accredited by Headway and both act as volunteers for local Headway groups at Nottingham and Derby. Visit www.barratts.legal for further information on our solicitors, case studies and news items, or follow us on Twitter. Ed Myers 0115 931 5171 3 Wheatcroft Business Park Landmere Lane Nottingham NG12 4DG
Email ed.myers@barratts.legal
Debra Morris 01332 565395 The Old Courthouse 18-22 St Peter’s Churchyard Derby DE1 1NN
debra.morris@barratts.legal
TYPSCOPE / LETTERBOX Prevent the reader taking in unnecessary visual stimulus and help them keep their place in the paragraph by limiting the amount of text readers can see at any one time. This simple ‘cut out’ tool is sized to work on 10” tablets and also the printed version of the magazine. It will
4
Manage YOUR Condition
YOU Are In CONTROL
Because the last trip we did was a seven
Holiday with Head
and a half hour flight I thought a two and a half hour flight would be easier.
Injury
What happened was I experienced sensory overload on the aeroplane. I
We haven't been holding abroad since
have heard other head injury people
2013 as we had such an awful time with
complain about this feeling but have
travelling on a long haul flight that we
rarely experienced it myself. The last
didn't even try it again. This year we
time was eight months ago at Christmas
decided to give it a whirl but had a short
and I put it down to a combination on
two and a half hour flight organised
inputs resulting in me fatiguing rapidly
instead and were very specific about the
and having to go to bed.
location; near to the beach, restaurants, a swimming pool with stairs to get in
Here I was seated without a television
and out (rather than ladders). Plus on
in front of me so the visual inputs are
the ground floor (so if the lift breaks
minimal.
down it doesn't matter) and we were located near to shops, the beach,
“However what I didn't anticipate
restaurants etc.
were the effects that noise would have.� The entire journey was unimaginably difficult to handle. So much so that I borrowed my daughter's ear phones, closed my eyes and just tried to block 6
everything out. As soon as I got off the
plane I felt a sense of relief. However
A twenty five minute power nap in
the two and a half hours of misery was
the afternoon, whether your tired
worth it and I would do it again but this
or not will really help.
time take noise cancelling headphones with me.
Fatigue is difficult to manage at the best of time however vacation adds a whole
Once we arrived I soon found that
other dimension as your sleep pattern is
maintaining your exercise, diet and
disturbed and the amount of sensory
sleep routine is nearly impossible to achieve. Therefore you have to quickly
used to. Therefore although it is the
establish a new routine (not easy to with
most difficult thing to manage it is also
a greater change in time-zone).
the
most
impactful
and
therefore
Basically on holiday your routine will go
essential that you get it right sooner
out the window; with this in mind the
rather than later!
following
three
things
will
help
Planning Day Trips
tremendously.
Organising
Keep to your prescribed medicine
day
trips
was
a
real
challenge. Firstly you have to be at the
routine (as prescribed by your
bus for a certain time; going there no
general practitioner)
problem it’s getting back that was the
Keep stretching (as directed by your
worry! Then establishing how far a
physiotherapist)
pickup location was from the water park / zoo was not straight forward. Plus
Aim to sleep when you need to before you fatigue kicks in
how far you would need to walk around 7
Managing Your Condition
input is a lot different to what you are
the park, deciphering the terrain. There
lift onto the aeroplane, once you have
were many questions and some of the
done it once and are used to it then you
trips were evidently not at suitable (boat
are comfortable and feel better. I guess
trips, whale watching, water sports, tree
it’s like anything you do for the first
top jungle walk etc.)
time, you’re a bit apprehensive and through repetition a new habit is formed
So a decision had to be made; either we
and then it just becomes something you
do nothing or I become a spectator. In
do!
one way it was easy, the kids have fun
MOTIVATION
end of story. However for me it was very difficult, I have always been hands on.
is What Gets You Started
Very much a participator, even if I knew
HABIT
I wasn't very good at something or never done it before I would give it a try. So to sit back and not partake was completely
Is What Keeps You Going
alien to me and I didn't like the feeling at all but knew I had no other choice.
“The real challenge was to handle me being left out” I just smiled and waved at them having fun. I must have done a reasonable job and the next time they did something that I couldn't be involved in it was a little easier. I guess its like taking the
8
reaching the age group of 6 to 11 years of age, and may be of environmental
Identifying Obsessive
origin (through daily living with a
Compulsive Disorder
relative who manifests the disorder) or due to inherent personality traits of the
Identifying
Obsessive
child (extremely perfectionist, anxious,
Compulsive
or craving the constant approval of
Disorder at School and learn How to
others).
Transform Negative OCD`s Features in
In the school environment, OCD has a strong
impact
declining
on
academic
learning
(with
performance,
attention and concentration difficulties and, in more extreme cases can cause school dropout). In the daily conviviality of the child with colleagues, it is common for the child to disguise the
Photo credit: Photopin, Claudio Accheri
symptoms of the disorder for fear of
Obsessive-Compulsive Disorder (OCD) is
being ridiculed or deprecated by the
characterized by the constant presence
group.
of preoccupations, repetitive behaviours (rituals) and recurrent and persistent
Parents and teachers may also be aware
thoughts that lead to great suffering and
of dermatological problems in the child's
malaise in the child's life.
hands (due to excessive hand washing), as well as the appearance of skin lesions
OCD in childhood appears gradually, 9
or abrasions (by constantly scratching,
Managing Your Condition
Positive Aspects for Self development.
rubbing, scratching or bruising the
area).
Frequent hand asepsis (which may result in pain, swelling, rash or bleeding in the hands)
There is also a range of behaviours (rituals) manifested by the youth or the
Presence of tears, marks or holes in
child during the school routine that can
the notebook due to the extreme use
be a warning sign for educators and
of the rubber on the paper
professionals who also work in school:
Constant reading of the same word or sentence in order to get the impression that the person has fixed well into the memory
Too much slowness in the same activity as a result of a perfectionist attitude
Photo credit: Photopin, benchilada
Abundant (at the end of the lesson)
• Excessive organization of personal
checks of personal belongings on the
belongings such as: notebooks, cabinets,
table or under the desk, in an
binders, pencils, rubber and pens on the
attempt to make sure that the
table, backpack position (always the
student has not forgotten anything
same way)
Refusal to touch the belongings of
Exaggerated personal hygiene and
classmates
self-care: constant trips to the
pencils, erasers, pens, or even feel
bathroom,
10
such
as
notebooks,
bad when someone manipulates
peculiars talents of OCD minds:
some of their belongings
Present
repetitive
behaviours,
pattern
person with OCD is very dutiful in
such
as:
walking
the development of activities that
stepping
on
stripes,
he / she performs, wishing that
coloured tiles, counting tiles or cars
everything needs to be very well
passing
organized and correct, in the most
without
by
on
the
street,
intermittent repetition of numbers
perfect order. Extra-class activities involving drawing,
Opening doors, cabinets, windows,
plastic arts (such as sculpture and
drawers, and other compartments of
painting), sports, cutting and sewing,
the classroom without using the
cooking,
fingers (only with one side of the
composition, learning new idioms or
hands or in some cases using one
musical
side of the body);
examples of practices to relieve anxiety and
Stop eating, sleep, or socialize for
photography,
instruments
stress.
These
writing
can
are
be
just
good
some
suggestions of activities that the person
weeks in order to memorize all the
with OCD can perform instead of fixing
school matter for a future event (a
your thinking over and over again in
test, for example) that has not yet
actions in that would increase even more
happened (not being sure this will
the obsessions and ruminants thoughts.
happen). The other side of coin: positive and 11
Managing Your Condition
or syllables that come to the head
Creativity is in the details: the

Empathy, solidarity and willingness to help: Being in pain due to a mental
disorder
or
emotional
conflict develops in the person a greater sensitivity and attention to the needs of others. Thus, the person is able to put himself in the place of the other person, seeking to Photo credit: Photopin, WellspringCS

understand the other person in order to help her. A good hint of
Critical and analytical thinking: the
activity to divert the focus from
detailed observation of the person
one's own disorder is to help
with OCD makes him / her develops
someone in distress or need. Such as
a high ability to think in a critical
volunteering, participating in self-
and thorough manner about a
help groups, donating clothing or
particular action or object. This
food
ability is highly valued in tasks
whether
environments
or
in
in
campaigns
or
social
projects.
involving leadership and strategic planning
for
work
academic
projects, for example. Photo credit: Photopin, verkeorg
12
Photo credit: Photopin, MTSOfan
contributor to several educational w e b si t e s, w r i t i ng a b o ut t e a c h i ng practices in the classroom; emotions and learning; evaluation and school planning; learning disorders; homeschooling, brain child development, pa r e nt i ng , Mo nt e sso r i e duc a t i o n, andragogy and people training.
Authored by Daniela Silva
training manuals for teachers and
AUTHOR BIO
students, and contributes as a mentor in
Daniela Silva is a Brazilian educator
an online platform, answering questions
and independent writer. She holds a BA
about career plans, college decision,
in Pedagogy from Santa Cecilia
personal development and professional
University, Brazil, with concentrations
skills.
in School Management and Business Educ a t io n; a n MBA i n P er so nne l
Working in collaboration with The New
Management from Monte Serrat
Heights Educational Group, Inc., she
Uni v e r si t y Ce n t e r , Br a zi l ; a n d a
has just published Unraveling Reading,
postgraduate certificate in
a book on literacy educ ation and
Neuroeducation from Estรกcio de Sรก
learning disabilities in reading and
University, Brazil.
writing.
Working with social projects in the area
Email: danieducator@gmail.com
of e-learning and people development since 2009, Ms. Silva is a regular 13
Managing Your Condition
Additionally, she develops courses and
experienced. I was more tired, my
“Importance of A Routine”
sleeping pattern was not so good and my balance was significantly worse. But compared to last time this was definitely
Is a routine everything?
different. It’s a good question. Every time I have taken a short break the outcome has
Could taking short breaks from
been disastrous. To the point that pretty
you routine be good for you?
much everything physically, mentally,
I have never thought of this before and
sleep pattern, financially, diet and
there is no study or medical evidence to
exercise has gone wrong.
support this theory. However that
Perhaps this is a coincidence?
doesn't mean that there is no benefit either!
Maybe if I didn't take a break from the
Returning to my routine
routine these ‘bad’ thing would have happened anyway? After all if I didn't
After returning to my routine and
have bad luck I’d have no luck at all!
settled back into a rhythm my sleep
Recently I was forced to take a break
pattern and balance returned to my
from my routine so I naturally mentally
version of ‘normal’ as my diet and
prepared myself for the worst case as so
exercise plan had restored I began to get
many previous attempts had resulted in
back into the swing of thing but cant
failure.
help thinking that a break from the normal routine is good for you! Tell what
However this time the effects were not as
tragic
as
I
had
you think at:
previously 14
pma@HealthisYourWealth.co.uk
EXERCISE & NUTRITION
“Importance of Nutrition”
Fruits
Vegetables
Carbohydrates: How CARBS fit
Milk
into a healthy diet
Nuts
Grains
Seeds
carbohydrates have a rightful place in
Legumes
your diet. In fact, your body needs
There
carbohydrates to function efficiently.
carbohydrates:
Aren't
all
numerous
bad.
Because
health
of
their
benefits,
However some carbohydrates might be better for you than others.
are
three
main
types
of
Sugar. Sugar is the simplest form of
carbohy drat e
and
occurs
naturally in some foods, including
Understanding carbohydrates
fruits, vegetables, milk and milk
Carbohydrates are found in many foods
products. Types of sugar include
and beverages. Most carbohydrates
fruit sugar (fructose), table sugar
occur naturally in plant-based foods,
(sucrose) and milk sugar (lactose).
such as grains. Food manufacturers also
add carbohydrates to processed foods in
Starch. Starch is a complex carbohydrate, meaning it is made of
the form of starch or added sugar.
many sugar units bonded together. Common sources of naturally occurring
Starch
carbohydrates include:
vegetables, grains, and cooked dry
occurs
beans and peas. 16
naturally
in
Carbohydrates and your health
Fibre. Fibre is also a complex carbohydrate. It occurs naturally in
Carbohydrates are vital to your health
fruits, vegetables, whole grains, and
for a number of reasons.
cooked dry beans and peas.
Providing energy
How many carbohydrates do you need?
Carbohydrates are your body's main fuel source. During digestion, sugars and
The Dietary Guidelines recommends that carbohydrates make up 45 to 65
sugars. They're then absorbed into your
percent of your total daily calories.
bloodstream as glucose. Glucose enters your body's cells with the help of insulin.
So, if you get 2,000 calories a day, between 900 and 1,300 calories should
Glucose is used by your body for energy,
be from carbohydrates. That translates
and fuels all of your activities —
to between 225 and 325 grams of
whether it's going for a jog or simply
carbohydrates a day.
breathing. Extra glucose is stored in
You can find the carbohydrate content of
your liver, muscles and other cells for
packaged foods on the Nutrition Facts
later use, or is converted to fat.
label.
The
carbohydrates
label —
shows which
total
Protecting against disease
includes
starches, fibre, sugar alcohols, and
Some evidence suggests that whole
naturally occurring and added sugars.
grains and dietary fibre from whole
The label might also list separately total
foods
fibre, soluble fibre and sugar.
cardiovascular diseases. Fibre may also 17
help
reduce
your
risk
of
Managing Your Condition
starches are broken down into simple
protect against obesity and type 2
are fruit juices and dried fruits,
diabetes. Fibre is also essential for
which are concentrated sources of
optimal digestive health.
natural sugar and therefore have more calories. Whole fruits and
Evidence shows that eating plenty of
vegetables also add fibre, water and
fruit, vegetables and whole grains can
bulk, which help you feel fuller on
help you control your weight. Their bulk
fewer calories.
and fibre content aids weight control by helping you feel full on fewer calories.
Choose whole grains. Whole grains
Contrary to what low-carb diets claim.
are better sources than refined
Few studies show that a diet rich in
grains of fibre and other important
healthy carbohydrates leads to weight
nutrients, such as B vitamins.
gain or obesity.
Refined grains go through a process that strips out parts of the grain —
Choose your carbohydrates
along with some of the nutrients
wisely
and fibre.
Carbohydrates are an essential part of a healthy
diet,
and
provide
many
Ensure
products are good sources of calcium
fibre-rich
fruits
and protein,
and
the low-fat versions, to help limit
Aim for whole fresh, frozen and fruits
and
plus many other
vitamins and minerals. Consider
vegetables are included in your diet.
canned
Milk,
cheese, yogurt and other dairy
important nutrients.
Stick to dairy products.
calories and saturated fat, but
vegetables
without added sugar. Other options 18
In Summary
beware of dairy products that have added sugar.
Choose your carbohydrates wisely. Limit
Eat more legumes. Legumes —
foods with added sugars and refined
which include beans, peas and
grains, such as sugary drinks, desserts
lentils — are among the most
and sweets, which are packed with
versatile
calories but low in nutrition. Instead, go
and
nutritious
foods
available. They are typically low in
for fruits, vegetables and whole grains.
fat and high in folate, potassium, time of day and ensure your do not
contain beneficial fats and fibre.
consume too large a quantity.
Legumes are a good source of protein and can be a healthy substitute for meat.
Limit added sugars. Added sugar probably isn't harmful in small amounts. But there's no health advantage
to
consuming
any
amount of added sugar. The Dietary Guidelines recommends that less than 10 percent of calories you consume every day come from added sugar.
19
Managing Your Condition
Eat the right carbohydrates at the right
iron and magnesium, and they
IMPROVE COGNITION
“Exercises to Strengthen your Brain!” The rules of brain training: 1. 2. 3. 4. 5.
Try and do a minimum and maximum of thirty minutes each day. Try and commit to doing for ten weeks. This duration requires that you set time to one side to complete this. It has to be challenging to work. If it’s to easy there are no benefits. To keep motivated set yourself rewards. If you complete an exercise give yourself a reward, something to look forward to! As well as doing exercises on your own work with others to increase your social skills.
Improve Cognition
Word Search GUARDIAN ANGLE FEMALE LOOKING OVER YOU PROTECTIVE LUCKY TIME COINCIDENCE
21
This maze is much more complex than usual. You start on the left hand side and have to escape to exit on the right hand side. However there are multiple dead ends and only one solution!
Perhaps time yourself to see how long it takes you, take a note of the time and try it again a few weeks later. Have fun!
START
22
Cris-Cross Across
Down
1. Keep safe from harm or injury 3. Indefinite continued progress of existence and events 4. Looking Over You 6. Similar TO A Parent 7. Moving through the air 8. Woman
2. A remarkable concurrence of events 4. Made from feathers 5. Fortunate 9. Messenger Of God
Improve Cognition
23
APPLICATION REVIEWS
Grid Player is suitable for people with a
Gridplayer
wide range of disabilities, including cerebral palsy, motor-neurone disease (ALS), autism, apraxia, traumatic brain injury, stroke and deafness. It can also be used in education for people with learning difficulties or special needs, and with young children. What phone/system is it compatible
Grid Player is an Alternative and
App that helps people who cannot speak
Requires iOS 7.0 or later. Compatible
or
with iPhone, iPad and iPod touch.
who
have
unclear
speech
to
communicate. Sentences that you create
Cost?
are spoken out loud. Grid Player is
Free
suitable for a wide range of people with communication difficulties, including
This is one of those applications we wish
those who use symbols.
we knew about when we were in hospital and had a tracheotomy.
How friendly is it?
This application would have very useful Used all over the world, thousands of
in communicating with family plus
people are communicating with this tool
medical staff.
as it easy to use. We give this a ★★★★ rating What will it do? 25
Improve Cognition
with?
Augmentative Communication (AAC)
Play as 1 or 2, 3, 4, or 5 players, place
Matches 2
your device in the middle of your group and take turns to see who can find the most matching pairs.
What phone/system is it compatible with? Requires iOS 8.0 or later. Compatible Test your memory! Flip the cards to
with iPhone, iPad and iPod touch.
reveal a matching pair. Race against the
Cost?
clock, play for the highest accuracy, challenge your friends in the multi
Free
player mode, or complete in local
We give this a ★★★★ rating
tournaments. Record high scores for both accuracy and time on every game type, size and theme. How friendly is it? Easy to use. It has various levels and themes with multiple board sizes. Loads of fun here and helps with both memory and concentration too! Four board sizes from 4x4 to 7x7 (and seven sizes for iPad up to 10x10). 26
Easy play, forget about awkward tilt
Sitfit
controls or unresponsive accelerometer. Better than using a marker! What will it do? Not everybody can do sit ups, bench presses, weight lifting, etc. Thankfully, with the help of Team Pink, there is now a way to work out via a simple, easy to
SitFit lets you exercise from the comfort of your own chair. If you are unable to stand
for
very
long,
these
These routines are designed to allow
short
people who can't stand up for long or
exercises are for you. SitFit gives you a
may have difficulty with full body
free preview of the Team Pink armchair
workouts such as the elderly. You can
exercise DVD.
work at your own pace, and in your
Even if you can do full body workouts,
armchair (or kitchen chair, we don't
there may be times where you're stuck
mind).
at an office desk, or on a long plane
What phone/system is it compatible
journey, these videos allow you to get
with?
your triceps and biceps warmed up. You
Requires iOS 6.0 or later. Compatible
can comfortably work out and keep your
with iPhone, iPad and iPod touch.
body healthy and fit no matter where you are.
Cost? Free
How friendly is it?
We give this a ★★★★ rating 27
Improve Cognition
perform, 3 step exercise programme.
MENTAL HEALTH
Grieving Process
Mental Health Grief is a more complex process of
“GRIEF”
adapting to loss than stage and phase models
Grief is a response to loss, particularly
no
longer
present.
For example crying is a normal and
Although
natural part of grieving. It has also been
conventionally focused on the emotional
found, however, that crying and talking
response to loss, it also has physical, cognitive,
behavioural,
social
previously suggested.
However various reactions are common.
to the loss of someone or something that is
have
about the loss is not the only healthy
and
philosophical dimensions.
the experience of a loss can be harmful.
Grief is a natural response to
The following paragraph describes in
loss. It is the emotional
five distinct stages how people deal with
suffering one feels when
grief and tragedy. Such events might
something or someone is taken
include being diagnosed with a terminal illness or enduring a catastrophic loss.
away. Grief associated with death is familiar to most people, but individuals grieve in
Denial
Anger
Bargaining
Depression
Acceptance
connection with a variety of losses throughout
their
lives,
such
as
unemployment, ill health or a physical loss such as a limb, a sense (hearing or touch) or balance affecting running etc.
29
Mental Health
response. Pressing people to cry or retell
The theory holds that the stages are a
making,
(making
sense
part of the framework that helps people
happened and the cause of the loss), or
learn to live without what they lost.
through benefit finding (consideration of
These tools help frame and identify
the global significance of the loss of one's
what a person who's suffered a loss may
goals, and helping the family develop a
be feeling. The theory holds that the
greater
stages are not stops on a linear time line
meaning-making can come naturally for
of grief. The theory also states that not
some, but many need direct intervention
everyone goes through all of the stages,
to "move on".
appreciation
nor in a prescribed order.
of
of
life).
what
This
Survivors Guilt
Professional Support On a basic level survivor guilt is exactly Many people grieve without professional
what it sounds like: a sense of deep guilt
help.
that
Some,
additional
however,
support
may
from
seek
licensed
comes
something.
when
one
survives
If you have heard of
psychologists or psychiatrists which
survivor guilt before what likely comes
may
to mind is survivors of wars, natural
include
grief
counselling,
or
professional support-groups.
disasters or other traumas.
Professionals can use multiple ways to
What makes survivor guilt especially
help someone cope and move through
complex is that the experience varies
their grief.
dramatically
Many individuals trying to
for
each
individual.
Whether a person experiences survivor
make
guilt, its duration and its intensity all
meaning out of the loss through sense
vary from person to person. 30
But the
underlying feelings are similar:
survivor guilt is not rational that is when people will tend to minimize the
Feeling guilt that you survived
guilt, just telling you not to feel guilty,
when someone else died and
or that you shouldn’t feel guilty.
that you do not deserve to live One important thing to remember is,
when another person did not.
rational or irrational, survivor guilt is normal. In and of itself it isn’t a sign of
could have done more to save another
unhealthy grief, despite the fact that
person, in other cases it is feeling guilt
some people will make you feel like it
that another person died saving you.
isn’t okay to feel guilt.
So, the question is: what can you
Some of the familiar circumstances one
do?
experience survivor guilt are:
After surviving war
Surviving an accident
Surviving natural disaster
Accept what you are feeling. Guilt is a stigmatized emotion, as people can make us feel that it is wrong to feel guilty. Keep in mind that guilt is not, on its own, a problem. It is a
Surviving an act of violence
natural feeling that needs to be a c kno wle dge d,
As with so many types of guilt that arise
processed.
in grief, some survivor guilt is rational and some is not. Regardless of the reason, when our
31
ac ce pte d
a nd
Mental Health
In some cases this includes feeling you
Know you’re not alone. Survivor
can’t stop asking ‘why’, when events
guilt is much more common than
like this happen we often fixate the
people realize.
Finding a support
‘why’. If there is a ‘why’, we can’t
group or other space to connect with
know what it is no matter how long
others experiencing similar feelings
we obsess about the question.
can be very helpful in sharing
feelings and feeling less isolated.
In spite of your
feelings of guilt it is important to
Do something with your guilt.
enjoy the life you have been given.
Whether rational or irrational, you
In the depths of guilt this can be
can use your guilt to help others.
hard,
What you do may come out of things
extremely helpful part of digging
you have learned. Whether it is
out of that hole by feeling you are
educating others so they can avoid
valuing the gift you were afforded.
the mistakes you feel guilty about,
raising awareness about causes of
can
be
time
to
professional help.
simply encouraging others to talk
counsellor
with their family about end of life
also
be
an
in
your
get
so me
Look for a area.
A
psychologist with experience in
wishes, you can use many guilt
trauma may be an especially good
experiences to help others.
fit, as they likely have experience with this type of guilt.
Don’t get stuck on the ‘why’s and
if’s’.
it
Talk to a counsellor. If you are still
may
to substance abuse to suicide), or
what
but
struggling with survivor guilt it
death (anything from heart disease
Embrace life.
Like a small child 32
MOTIVATION
“How to KEEP
became hard to hold down, as, although
Motivated?”
made silly mistakes, didn't pick things
I looked like I was more than capable, I
up quickly enough, lacked energy and
A New Perspective
stamina to actually do a good job anymore.
Before my brain injury, almost 4 years I stopped enjoying social situations and,
ago, I was at a point in my life where I
as a result, lost several friends. I
felt I had it sorted; a good job, good
stopped being able to do my long, head
social life, earning enough to go on a
clearing walks as the fatigue, plus
couple of nice holidays a year and I felt
additional back problems, just made it
like I was doing a good job of parenting
impossible. With the lack of mobility
my son. Life was good. I had plenty of
came weight gain, which in turn caused
friends, loved walking my dog for miles
me to feel even more low than I already
across the fields around the village
did, and even less inclined to attempt to
where I lived, I was fit, healthy and the
socialise much.
future seemed bright.
I spent a good few years mourning the
“Recognise this story ???”
loss of "the old me" and feeling angry My accident left me with a few lasting
at what might have been had I not gone
issues, notably sleep problems, fatigue,
out that night, not drunk as much, not
h e a d a c he s
anxiety.
slipped in my stupid too-high heels and
Invitations started to dry up as I
banged my head, feeling like I was
declined one too many times, jobs
failing my son for not being able to run
a nd
social
34
round with him anymore, not being able
and at least now I don't feel obliged to go
to tolerate noise like I used to, and
and be a social butterfly!
generally being grumpy and short
Some things are harder to come
tempered.
to terms with ... I am gradually starting to realise, I find it very hard not working, and my
here to see my son growing up. The
lack of mobility is driving me crazy, but
friends I've lost? Well, they obviously
I'm slowly finding new ways to deal with
weren't proper friends if they're so fickle
things. It's trial and error, but I'm
that they can't deal with the new me.
sleeping a bit better which in turn is making me less grouchy. All the time at
The good job? I can tell myself that until
home means I've got time to meal plan
I'm blue in the face, but in reality, I
and cook, and we no longer waste money
hated it and actually felt a wave of relief
on takeaways and junk, as I've become
when they let me go. I'm making new
very good at shopping on a budget. I
friends, finding new interests which fit
struggle
around my fatigue and slowly learning
to
keep
on
top
of
the
housework, but I’m learning to set
to forge a new, slower paced future. I'm
myself small targets and do tasks in 15
actually quite happy that I'm no longer
minute bursts, which I find helps me get
expected to be the life and soul of every
things done eventually.
party, because you know what? I actually would've preferred to be tucked
I no longer measure success by how
up at home in my pj's watching a film
many
sales
I’ve
made/how
much
commission I’ve earned, or by what nice 35
Mental Health
however, that I'm grateful that I'm still
new things I’ve bought, but by how happy my son is when I’m here when he gets home from school, and that we’ve got a decent meal on the table each night and clean clothes to wear. I thank my lucky stars that we have a safe place to live and that my son is thriving and turning into a lovely young man. My priorities have changed, but, looking back, I genuinely don’t miss parts of my old life and I’m growing more confident that the future is still bright.
Jill Hughes, TBI Survivor, UK
36
information
Mental Health help and support services
services.
With
support
and
understanding, Mind enables people to make informed
choices.
The
Info
line
gives
information on types of mental distress, where to get help, drug treatments, alternative
health
therapies and advocacy. Mind also has a
problems or need urgent support, there are lots
network of nearly 200 local Mind associations
of places you can go to for help.
providing local services.
Samaritans
Saneline
Telephone: 116 123 (24 hours a day, free to
Telephone: 0845 767 8000 (6pm-11pm)
call)
Website:
If
you
are
experiencing
mental
www.sane.org.uk/what_we_do/
support/helpline Email: jo@samaritans.org Saneline is a national mental health helpline Website: www.samaritans.org Provides
confidential,
providing information and support to people with mental health problems and those who
non-judgmental
support them.
emotional support for people experiencing feelings of distress or despair, including those
ChildLine
that could lead to suicide. You can phone, Telephone: 0800 1111
email, write a letter or in most cases talk to someone face to face.
Email:
Pages/Email.aspx
Mind Info line Telephone:
0300
http://www.childline.org.uk/Talk/
123
3393
Website: www.childline.org.uk
(9am-5pm
Monday to Friday)
ChildLine is a private and confidential service for children and young people up to the age of
Email: info@mind.org.uk
nineteen. You can contact a ChildLine Web site: www.mind.org.uk/help/advice_lines
counsellor for free about anything - no problem is too big or small.
Mind provides confidential mental health 37
We started this self help
We have published:
magazine at the end of
Advertising
2014 following a severe
Social network posts
head injury in 2011. We did not anticipate the effect that the
BLOG activity
injury would have on our family and
Print and Distribution
underestimated the long term overall
Digital distribution
outcomes.
www.HealthisYourWealth.co.uk
The feedback that we have received has enabled us to continue to improve the
EVERYONE LOVES SOMETHING
publication and the submission of
FOR NOTHING. HOWEVER LONG
articles by subject matter experts has
TERM IS NOT SUSTAINABLE
enabled us to deliver good quality
THEREFORE IF YOU FIND THIS
content.
MAGAZINE VALUABLE VISIT OUR
We have been thanked by readers for
WEBSITE TO KEEP US GOING - OR
creating a meaningful and easy to read content. This magazine is read not only by survivors / families and carers but also by support workers / therapists and medical professionals.
However we have become victims of our own success ! We are at the stage where we have more articles resulting in a larger magazine. More pages requires a different binding (spine) and costs more to print plus deliver (due to an increased weight). 38
THERAPY
BE AS GOOD AS YOU CAN BE
Exercise, “Maintenance for your body !”
habit has formed over time. The term
The importance of breathing
Chest Breathing
“inefficient breathing” is described by the following :
correctly whilst doing exercise !
Rather than breathing deeply through
You’ve been doing it about 20,000 times
the belly using the diaphragm, it’s
a day since the moment you were born.
common to see breathing through the
In fact, you’re doing it right now. More
top of the chest. When you breathe
importantly,
through the chest, you’re using neck
you
maybe
doing
it
muscles, that can reinforce neck and
incorrectly..
shoulder tension common among office Breathing, which is such a automatic
workers. Following the age-old principle
process that we only think of it when
“Use it or lose it,”
we’re huffing and puffing at the end of a rigorous exercise session.
Relies on different muscles which result in a
What exactly does it mean to say:
weakened diaphragm muscle. A
weak diaphragm will fatigue easily
“You’re all breathing wrong?”
during exercise, meaning your muscles won’t receive the optimum amount of
Improving breathing could help to lower
blood flow during your next exercise
blood pressure, decrease stress and
class or gym session.
improve athletic performance. There maybe a single or combination of breathing inefficiencies where a bad
40
Shallow Breathing
smoothly and rhythmically can play a essential
Therefore you can be working too hard
role
in
maximising
performance.
to inhale the oxygen that you need. Rather than taking deep, full breaths,
Breathing has a huge impact on our
you’re taking shallow, quick ones,
health and fitness, but we’re probably
forcing the body to work overtime to get
not taking advantage of it just yet. The
the same amount of oxygen.
good news is that anyone can improve their breathing. Focusing on just your
This could partly be due to poor posture,
breathing one to two times a day,
most prevalent among those who slump
starting with just one minute at a time.
over a screen all day. With the shoulders hunched forward, we lose part of our ability to expand our diaphragm and
Take advantage of the stress-relief
take the big, full breaths that can boost
properties of proper breathing. Deep
workout
breathing
performance,
increase
has been
shown
to
be
responsible for a calmer, more tranquil
efficiency, and help manage stress.
demeanour.
Lack of Rhythm
Try working on your breathing lying
If you’ve ever focused on your breathing
on the ground with your feet up
while running to help pass the time,
against a wall.
you’ve likely noticed a specific rhythm to
your breath. Perhaps it matched the
Next, put one hand on your chest
pace of your footsteps or your arm
and the other on your abdominal
swing. Whatever the pattern, breathing
area. For one to two minutes, take 41
Therapy
Can have great results.
deep, focused breaths, making sure
For heavy loads and max efforts,
you spend as much time on the
use the following technique that
exhalation as the inhalation.
involves taking a deep breath immediately prior to lifting and
The key with this exercise is to
holding that breath while you lift.
make sure that your abdominals
The “Bracing” technique
rise before your chest.
involves
activating all of your core musculature
Focusing on your breath prior to
from all angles to create a “super
exercising reinforces proper breathing
stiffness” of the midsection. This bracing
mechanics beforehand.
creates stability throughout the entire
When you’re working out
core and reduces injury risk. For example imagine you were about to be
Ask yourself the following questions: 1.
punched in the stomach. This involves
Was it inhale on the way down or on
more than just pulling in your abs.
the way up?
Instead, imagine tightening as many of your muscles as possible. Now, hold that
2.
Was holding my breath good or bad?
throughout the exercise!
Trying to remember when and how to
Breathing is easy to overlook. But, when
breathe while working out can be tough.
you take into account how many times you breathe each day? Taking those
Here are tips to help you get it right in
20,000 reps into consideration, even the
the gym:
smallest improvements can have a huge impact! 42
IMPROVING AWARENESS
I remember the pain. Back to sleep. Sent
Time taken to diagnose a head injury
home on a train for sick leave. Don’t remember that. Or that Christmas. Managed to complete the trade training
In October 1981 a VW Beetle pulled out
the following year. But that was after
of a T-junction Just at that moment a
temporarily being unable to read or
red Yamaha RD250LC motor cycle
write. And after a month or two in a
smacked into the drivers door.
neuropsychiatric ward in a military hospital near Swindon.
A classic T-bone.
They had tried different anti-psychotics,
A piece of bright orange debris was
painkillers and other drugs. The only
skilfully avoided by a truck driver. The
thing that did work at that time was
rider and the debris was me. My helmet
acupuncture but that was only while a
had come off. I don’t remember any of
practitioner was available.
that. I heard someone screaming or howling when I woke up. There were
Up until 1996, when I left the RAF, I
tubes in my arms which I tried to pull
had been seen by psychiatrists, the guys
out.
who had deprogrammed Terry Waite and John McCarthy and civilian pain
Then back to sleep. The noises were me.
clinics etc. By this time I had a
I remember the ambulance transfer
reputation of being a mad professor in
from Weston General Intensive Care to
the service. Learning new things was
RAF Locking Medical Centre.
getting more difficult and so civilian 44
employment was tricky but I got some
good ones. The headaches weren’t
company doctor was right. My doctor
improving either.
was excellent because he tried many different approaches.
We
will
nip
ahead
to
2009
or
thereabouts. I had just landed a dream
He finally put me in touch with Dr
job and was doing well in my eccentric,
Angela Kent who then got me on the list
offbeat way when I started getting flu-
for the Head Injury Department at the
like symptoms.
London Road Community Hospital in Derby.
I would be off for weeks at a time. The Things are looking up now. I think that
2013.
would have been in 2014. So it has taken a good few years to figure out what is
I had seen the company doctor and he
wrong. Head injuries, until recently,
said that it would be unlikely that I
haven’t been understood very well.
would work again. My own doctor wouldn’t say that as he was trying to
Although the knowledge has increased,
find out why this was happening.
the
resources have
because
Did I mention the headaches?
of
been
increased
strained
uptake
and
restriction of funding. During this time Laura, my wife, had been researching
I was diagnosed with depression. After a
head injuries and selflessly supporting
while my job went because I just could
me. It is difficult for a carer who can’t
no longer function. Memory, following
get away for a break.
simple instructions and concentration were the bulk of the problems. The
Phil Smith, TBI Survivor, UK 45
Improving Awareness
last time I was off ill was September
Trouble Finding Things? I can drive and my reactions are good along with observation. So why do I need a passenger?
I can walk a good distance so why do I need someone with me. So why can’t I go out on my own?
Oh come on. How can I get lost at home? Of course I know where I live.
46
adolescents are not very well catered for
Ongoing Success for Headway Derby Learners
in the area, and that transition between child and adult services is a difficult time for any young person, but even more so when you have a brain injury.
Heads up for Callum Campaign
In response to this,
Headway Derby
supports Headway Derby's 'Young
have launched the 'Young Group', a
Group'
social support group providing activities and events aimed towards people within
The Head’s Up For Callum Campaign
the age range of 18-35.
was set up in 2015 to raise funds to
Improving Awareness
support those who have experienced a brain injury following illness or accident. The Bradley family from Belper wanted to give something back to help others following the traumatic events which changed
their
lives
following
a
motorbike accident in 2014. Initially they raised money for the Critical Care Unit at Queens Medical Centre in Nottingham
and
Kings
Lodge
Neurological Unit in Derby. Following a fund raising Summer Ball at Blackbrook House, their latest donation has been
The
made to Headway Derby.
group
was
launched
with
a
consultation event in August, raising a
Headway Derby are using this donation
lot of interest on social media. On the
to specifically reach out to younger
evening, the group discussed their
people following a brain injury. They
hobbies and interests and created a list
recognised that young adults
and 47
of events for future evenings. Attendee
Michael Hadley said “ It was an
If the group continues to be popular,
amazing night at Headway Derby for
Headway Derby will aim to make it a
the 18-35 group. Can't wait for the next
permanent feature. Debra Morris, the
one!”
Chair of the charity, said “It has been fantastic to be allowed to use this money
Headway Derby also offer support to
to benefit young people and this is a
carers during this time, providing a
great start – however in order to
volunteer to meet with family members
continue on a longer term basis, further
nearby and discuss any concerns, or just
funds will be needed. This project to
relax with a drink and a chat!
support young people with ABI will be
The group have agreed to meet on the
the subject of ongoing fundraising
first Thursday of every month. In
efforts and grant applications”
September a cinema evening was held at
The Young Group runs on the first
the Coach House, Headway Derby's
Thursday of every month from 5-7pm. If
premises on George Street in Derby and
you would like to attend, or discuss the
the next meeting will involve a mocktail
group in more detail you can contact
making workshop at a local bar.
Headway Derby on 01332 986350 or
Lucy Graystone, a Support Worker for
the group, said “These events have been
Events will always be advertised on the
paul.clarke@headwayderby.org
Headway Derby Facebook and Twitter pages @headwayderby
If you are not local you can find your nearest Headway group or branch, visit www.headway.org.uk or contact the really enjoyable, and such a great way to
free phone helpline on 0808 800 2244
introduce new people to Headway. We're already looking forward to the next one!”
E-mail: helpline@headway.org.uk 48
Improving Awareness
49
working before the accident, claiming for
DISPELLING THE
lost earnings may be difficult.
MYTHS ABOUT
If you
recover quickly and need very little care or therapy, past expenses will be low.
COMPENSATION
The very large awards are cases where a The newspapers are full of multimillion pound compensation awards.
person needs 24 hour care because they
Some
cannot look after themselves at all. This
media reports give the impression that a
usually exceeds £100,000 per annum. A
Claimant (the injured person) has won
Claimant
the lottery, but how true is this? Why
need
therapy
and
equipment just to help them get out of
are some awards £20,000 and others
the house. Most Claimants who need a
over £5,000,000?
wheelchair will have to move home
PAIN AND SUFFERING
which is expensive; adapting a property is costly.
The English courts award small sums for the injury itself.
may
FUTURE COSTS
For example, a
person with very severe brain damage or
This is usually the largest part of an
tetraplegia might only recover between
award. It is important to understand
£250,000 and £300,000. Few would
that a Claimant awarded millions of
choose money over a lifetime of pain and
pounds has not won; it means they are
disability.
severely injured for the rest of their life.
FINANCIAL LOSSES
Most Claimants recover very little for
You can only claim for costs directly
future costs because they make a good if
caused by the injury. If you were not
not full recovery. Most return to work so 50
only those with life changing injuries
Fatal cases might result in little or no
are paid for a lost career.
compensation at all.
You may be
surprised to know that if a person dies
If the Claimant has many years to live,
aged 18 or under, parents recover only
the compensation is high so they have
ÂŁ12,980 for the loss of their child.
enough each year for care, equipment
CONCLUSION
and extra costs associated with a disability. Additional housing costs and
For seriously injured Claimants no
lost earnings/pension will also be paid.
amount of money can give them back their life. Living with permanent severe
in 2 parts: a capital sum to cover
disability impacts Claimants and their
immediate costs and large expenses plus
families for a lifetime. They would
an annual sum whilst the Claimant is
return all the compensation to have
alive, which is tax free.
their old life back. The idea of a lottery
When the
Claimant dies this annual sum usually
win is far from the truth.
stops.
OTHER FACTORS Claimants can receive less than they need because they may have been partly to blame for the accident. If there has been medical negligence, the case might settle at less than 100% because of the risk of going to trial and losing the case entirely. 51
Improving Awareness
High compensation sums are often paid
RELATIONSHIPS
head injury out patients clinic and have been going there for five years. Again all
Guardian Angle
the therapists except two are women. One
In 2011 I had a near death experience.
day
I
had
a
moment
of
enlightenment and suddenly realised
After crashing my motorbike into a
that my family and I have been through
lamppost coincidentally the person
a lot of turmoil over the last six years
driving behind me was a trainer our
that we would not have endured if I
CPR at the local hospital. She stopped
didn't have an accident.
her car and rang the emergency team. Yet all the people who have helped my
paramedics arrived. When they arrived
family and I have deliberately chosen a
they decided to transfer me to accident
career that inserts themselves into a
and emergency room by road instead of
scenario, each of which has its own
air ambulance. When I arrived at the
unique circumstances however none of
hospital
which are fruitful as nobody/family
the
doctors,
nurses
and
generally benefits from a head injury.
neurosurgeon were women. I was in the high dependency unit and
The vast majority of these people
critical intensive care and then the
are female.
stroke ward in hospital for six months. Additionally I just happen to be married
All department were predominantly
to quite an exceptional lady and have
started by women.
two very supportive children. My wife co After my stay in hospital I attended the
-incidentally 53
volunteered
with
the
Relationships
Meanwhile she gave me CPR until the
charity FAB when she was younger and therefore has a different level of understanding plus acceptance than most people. So many people (medical professionals and friends/acquaints) have made the comment
'somebody was looking down on you that day' and 'you should be dead, you are very lucky' I was thinking about this and decided that if i was to have a guardian angle it The saying goes ‘Everything happens
would be female. I am not religious person but am not a great believer in
for a reason’ and I am sure something
coincidences however do believe in fate.
will materialize at some point resulting
I don't know how it works but I am sure
in one of those ‘Ah ha’ moment but for
everything happens for a reason.
right now time is a good healer so for now I am like everyone else in this boat
Therefore I decided to get a tattoo of a
just trying to be patient and continuing
guardian angle in recognition of all the
to do my maintenance exercise with the
people who helped me over the last five
hope that a new normal will arrive and
years.
be acceptable. 54
your independence. There maybe physical challenges that
Family Dynamics
you and your family may have to come to terms with. It is important that everyone recognises these and tailors
I guess for an unknown quantity of time
your “new
“Your brain is under construction”
consideration ensuring that these may
life”
taking these into
change over time as you recover and get How log that will be will depend on
older.
numerous factors regarding you injury age,
response
Some of the more difficult to understand
to
limitations are the cognitive elements
rehabilitation and many other metrics which
ultimately
determine
which are not so obvious at first and
your
really only become apparent through
capability to recover.
engaging in new experiences. Certainly One thing which is commonly heard
over time you and your family will
from brain injured people is:
understand what these limitations are and have an idea how you can better
“It’s like someone has press the
cope with these to combat them.
RESET button” The greatest challenge of all for many Therefore you have to relearn and gain
people is the emotional rollercoaster
skills you once had plus find strategies
that you are forced to ride and no matter
for elements you find difficult post
how prepared you think you maybe
injury so that will ensure you regain
there are small surprises which catch 55
Relationships
complexity,
you out on a regular basis. Certainly
You can not purchase this skill you have
over time their frequency reduces and
to learn it the hard way through
you will develop coping strategies that
hardship. No matter what life throws at
help you better manage.
you a sense of reality will automatically be invoked and your level of thinking
Realistically you and your family may
will have changed,
have lost a lot. However there is one
“I will live through this one”
thing that you have both gained. Something which can not be learnt
Your brain is in repair but eventually
through schooling and that is
you and your family will move on but
“Perspective”
with the benefit of a new perspective.
56
Book Review The Curious Incident of the Dog in the Night-time Haddon makes an intelligent stab at how it feels to, for example, not know how to read the faces of the people around you, to be perpetually spooked by certain colours and certain levels of noise, to hate being touched to the point of violent reaction. Life is different for people with autism and especially for Christopher in ways that he only partly understands; this Christopher is an intelligent youth who
avoids most of the obvious pitfalls of
lives in the functional hinterland of
novels about
autism. Each day is an investigation for
demands that we respect, perhaps
him because of all the aspects of human
admire--him rather than pity him.
life
Definitely worth a read !
that
he
does
not
quite
yet
disability because
understand. When the dog next door is killed with a garden fork, Christopher becomes quietly persistent in his desire
We give this book a ★★★★ rating
to find out what has happened and tugs
Author, David, UK, TBI Survivor
away at the world around him until a lot of secrets unravel messily. 57
it
Book Review The brain injury rehabilitation Work Book executive
functions,
mood,
and
communication. Particular attention is given to facilitating the challenging process of identity change following a life-altering injury. In a large-size format for easy photocopying, the volume features 94 reproducible client handouts. Purchasers get access to a Web page where they can download and print the reproducible materials. Packed
with
practical
tools
and
examples, this state-of-the-art workbook
Valuable to any professional interested
provides
for
in methods to maximize recovery and
supporting clients with acquired brain
adjustment following acquired brain
injury. Clinicians are guided to set and
injury. The workbook is comprehensive
meet collaborative treatment goals
in addressing the diversity of cognitive
based on a shared understanding of the
and psychological issues that commonly
strengths and needs of clients and their
occur with brain injury. Included are
family members. Effective strategies are
specific treatment activities (including
described
handouts) that practitioners can easily
a
holistic
for
framework
building
skills
and
implement.
teaching compensatory strategies in such areas as
attention,
memory, 58
We give this book a ★★★★ rating
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