Christina is new ambassador

ENNISCORTHY WOMAN, CHRISTINA COFFEY RYAN, IS A NEW GLOBAL AMBASSADOR FOR INDIVIDUALS AND FAMILIES AFFECTED BY TELOMERE BIOLOGY DISORDERS (a group of rare diseases caused by mutations that impair telomere maintenance).

Christina is a full-time mother of three and lives in Enniscorthy with her husband Derek. She enjoys family outings, watching sunsets, and spending time at the beach.

Christina began her rare journey in 2021 shortly after her mother and brother passed away. When she noticed her health was declining, she sought out testing. She was diagnosed with Pulmonary Fibrosis as a result of short telomeres and the TERT gene. Having witnessed firsthand the devastation this cruel illness has caused her family, she sought out support from Team Telomere and began researching and educating herself.

In Ireland, there is a very limited understanding of Telomere Biology Disorders. By serving as an ambassador for Team Telomere in Ireland, Christina hopes to raise awareness, fundraise for research, and connect with other families affected by Telomere Biology Disorders.

https://www.facebook.com/christina.coffey.370 n