Little eden ar2015 lowres by Sheila McCallum

LITTLE EDEN SOCIETY ANNUAL REPORT 2015

Contact person for queries relating to this report: Public Relations and Communications Officer â&#x20AC;&#x201C; Mrs Nichollette Muthige Tel: +27 (0)11 609 7246 Email: marketing@littleeden.org.za Website: www.littleeden.org.za

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ANNUAL REPORT 2015

BUT THE HANDICAPPED AT HOME! WE MUST THINK ABOUT THIS, LET US STIR OURSELVES AND GIVE OF OUR BEST FOR THESE LESS FORTUNATE. LET US MAKE THESE ANGELS SMILE AND PROVIDE THEM A PLACE WHERE THEY WILL BE COMFORTABLE. WE MUST HAVE THE BEST PLACE TO BUILD A MONUMENT TO GOD, A MONUMENT OF LOVE FOR THESE FLOWERS, DELICATE FLOWERS THAT WITH OUR LOVE AND CARE WILL MAKE THEM HAPPY. -- DOMITILLA ROTA HYAMS, 15 APRIL 1967

OUR MISSION

To care for, develop and enhance the quality of life, with love and understanding from a dedicated staff, persons with intellectual disability of all races and creeds entrusted to us, by providing with trust in Divine Providence and in co-operation with the parents, the community and the State the necessary spiritual, nursing, therapy and stimulation services in as an efficient and economic manner as possible.

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001-827 NPO PBO 930/0000/03

79 Wagenaar Rd (Cnr Harris Ave) Edenglen, Edenvale, South Africa PO Box 121 Edenvale 1610 South Africa

BANK DETAILS Bank: First National Bank Account no: 5468 0928 009 Account name: Little Eden Society Account type: Cheque Branch: Karaglen Branch code: 252-442 Internet code: 250-655

CORE VALUES

The Prayer of Saint Francis is recited each day at LITTLE EDEN, and how fitting are these words in relation to the values and life we lead in caring for our residents: “Lord, make me an instrument of Your peace. Where there is hatred, let me sow love; where there is injury, pardon; where there is doubt, faith; where there is despair, hope; where there is darkness, light; where there is sadness, joy”. The solid principles and beliefs by which LITTLE EDEN has operated since 1967 have ensured that each child and adult with intellectual disability who has passed through its doors has been treated with the love, care, dignity and respect to which they are entitled. The symbols of LITTLE EDEN Values of Respect, Sanctity of Life and Love & Care remind us of Danny and Domitilla’s (founders) legacy: to treat our residents, staff, donors, visitors and environment with proper and due regard in ensuring a safe and nurtured environment. Each child and adult with intellectual disability is made in the image of God and we at LITTLE EDEN value each individual resident. We firmly believe in the right to the best possible quality of life for our special angels and it is a team of many that makes it possible for them to be helped to reach their full potential.

FOR SERVICES PROVIDED FREE OF CHARGE, SPECIAL THANKS GOES TO: Michael Rea and all at Integrated Reporting and Assurance Services (IRAS) for all their help and guidance and for providing the Assurance process. Mandy Smith and her team at Studio 5 for the design and layout of the report. Mortimer Offset Pty (Ltd) for printing the report. Antalis South Africa (Pty) Ltd for sponsoring the paper. I P S Finishers for binding the Report.

With your help this report has been possible.

R10 SMS

Donate R10 per month by cell phone Want to get involved but don’t have the time? Apart from making a once-off donation via EFT on our secure website, why not commit to a small monthly gift of R10?

Sms EDEN to 31239 @ 50c to opt-in for your MONTHLY contribution of R10 Should you wish to opt-out sms Stop EDEN to 31239 @ 50c.

The monthly donation will be conveniently added to your cell phone bill each month.

A seemingly small act of kindness can go a long way in improving the lives of our children.

HOW YOU CAN HELP

LITTLE EDEN MY SCHOOL/ MY VILLAGE/ MY PLANET CARD Giving is not just about donating funds straight from your own pocket or giving goods in kind to an organisation in need.

You can also help support the children of LITTLE EDEN without spending a cent extra – simply by applying for a MyVillage Card naming us as the beneficiary, and swiping it every time you shop at Woolworths, Engen, Wimpy, Spur, ToysRUs and other participating retailers.

The MyVillage Card is not a debit or credit card; it simply tracks transactions made at the till and allocates a proportion of the sale to the nominated charity. More than R1.5 million is disbursed to various schools and charitable organisations through the system every month.

Visit www.littleeden.org.za and click on the tab WHAT CAN YOU DO TO HELP? Download and complete the form and start swiping your card as soon as you receive it. You can also apply online at https://www.myschool.co.za/supporter/apply/

You will find a full list of participating stores on the website.

Not only can you enjoy your shopping experience but you can also be proud to know you’re making a difference while doing so – happy shopping!

MAKRO CARD Everyone loves shopping at Makro and now there is another reason for you to enjoy your trip to this particular establishment: Makro is committed to providing rebates to LITTLE EDEN on a regular basis.

Please consider registering LITTLE EDEN as your preferred beneficiary of choice when you get your Makro card or, if you have an existing card, by asking them to register LITTLE EDEN on your card now if you haven’t done so already.

Together let us keep the light shining for our Angels. Please continue your financial and spiritual support as we approach our Golden Jubilee. Keep a look out for special campaigns commemorating this historic milestone during 2017.

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 03

Authority for LITTLE EDEN Society to deduct funds directly from my account. Telephone: 011 Box 121, 121, Edenvale Telephone: 011609 6097246 7246 - PPO O Box Edenvale 1610 1610

AUTHORITY FOR LITTLE EDEN SOCIETY TO DEDUCT FUNDS DIRECTLY FROM MY ACCOUNT.

Donor Details

Office use only: donor code:

Full Name (Mr/Mrs/Ms) ………………………………………………………………………………………….……………….. Postal Address ………………………………………………………………………………………………………………………….. Physical Address …………………………………………………………………………………………………….………………… Tel (H) (

) …………………………………………… (W) (

) ………………………………………………….

Cell …………………………………………………. E-mail Address ……………………………………………………………… Authority is hereby granted to LITTLE EDEN Society to make a withdrawal from my account as detailed below

I/We acknowledge that the party hereby authorised to effect the drawing(s) against my/our account may not cede or assign any of its rights to any third party without my/our prior written consent and that I/we may not delegate any of my/our obligations in terms of this contract/authority to any third party without prior written consent of the authorised party. Thank you for your co-operation.

An amount of R ___________ once off, or for the next __________ months, or on the first day of_____________ 20..... and each month thereafter, until cancelled by me.

Credit Card

By deduction from my credit card account

Master card

Visa card

Name of Account Holder: ____________________________________ Card No. Expiry Date Date ………………………………… NB

ccv number Signature

(last 3 digits on back of card)

……………………………………………………….

PLEASE FAX TO LITTLE EDEN SOCIETY (011) 452 4560 WHEN COMPLETED

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 05

Angel Nana at the Christm as Concert

CONTENTS 06 Relationship of LITTLE EDEN Entities

38 Care and Stimulation Programme

09 Material Issues

42 Compliments

08 Foreword

10 Chairman’s Report

14 Chief Executive Officer’s Report 16 Treasurer’s Report

18 Organisational Profile

20 Services and Beneficiaries 22 Fund Development 25 Achievements

26 Stakeholder Engagement 28 Events

33 Monitoring and Evaluation

34 Management and Corporate Governance 34 LITTLE EDEN Society Organogram

39 Case Studies 44 Environment

46 Human Resources 49 Volunteers

54 Risk Management Log 56 GRI Index Table

59 Assurance Statement 60 Sponsors’ Adverts

62 LITTLE EDEN Campaign Adverts IBC IBC IBC

Contact Details Bank Details

Acknowledgements

ritage rated He han celeb o J en t n re e u a id Res ber, M staff mem Day with

OUR COMMON OBJECTIVE

WHO WE ARE

LITTLE EDEN Foundation – a legal entity by nature of a signed Constitution by its members. Established in RSA.

WITH DIFFERING RESPONSIBILITIES, TO ENSURE THE APPROPRIATE CARE OF THE RESIDENTS OF LITTLE EDEN SOCIETY.

LITTLE EDEN Society for the Care of Persons with Mental Handicap – a legal entity by nature of a signed Constitution by its members. Established in RSA.

Associazione Domitilla Rota Hyams Onlus – a legal entity by nature of a signed Constitution by its members. Established in EU (Italy).

OUR STRUCTURES

Board of Management*

Board of Governors*

Foundation Board*

Non-remunerated position(s)

CEO Management Team

Executive Committee

Remunerated position(s)

* Boards are independent of each other

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 07

Joy as S.I.C. nuns move into Dom us Our Lady Mother of all Children

WHAT WE DO

Administrative services are offered through LITTLE EDEN Society

Supercare Outsourced Services of certain personnel

To safeguard, manage and maintain the immovable and investment assets previously of LITTLE EDEN Society

To carry out 24-hour residential care and stimulation for the 300 residents

LITTLE EDEN employees

REGISTERED STATUS

NPO

Yes (100-006NPO)

PBO

Yes (930 034 635)

Section 18A status

Yes

Part funded by Government

NPO

Yes (001-827 NPO)

PBO

Yes (930/0000/03)

Section 18A status

Yes

Part funded by Government

Yes

NPO To promote the interests of LITTLE EDEN Society by raising public awareness, promoting volunteer programmes and fundraising

PBO

P.IVA â&#x20AC;&#x201C; C.F. 03805930165

Section 18A status Part funded by Government

FOREWORD

LITTLE EDEN SOCIETY FOR THE CARE OF PERSONS WITH MENTAL HANDICAP IS A REGISTERED NON-PROFIT ORGANISATION (001-827 NPO), IS LICENSED TO OPERATE UNDER THE DEPARTMENT OF HEALTH GAUTENG PROVINCIAL GOVERNMENT AND IS AN APPROVED PUBLIC BENEFIT ORGANISATION IN TERMS OF SECTION 30 OF THE INCOME TAX ACT (PBO 930/0000/03), ESTABLISHED IN 1967 BY THE LATE DOMITILLA AND DANNY HYAMS. OUR SECTION 18A STATUS ALLOWS FOR DONATIONS MADE TO THE SOCIETY TO BE DEDUCTIBLE IN TERMS OF SECTION 18A OF THE INCOME TAX ACT, DEPENDENT UPON THE AMOUNT OF THE TAXPAYER’S TAX LIABILITY. This report covers the most material issues related to LITTLE EDEN Society outlined below. There were no limitations or changes in terms of scope or boundary and the report covers all the operations of Domitilla and Danny Hyams Home (DDHH), Edenvale and Elvira Rota Village (ERV), Bapsfontein, as well as the Second-hand Shop Operation. This report does not report on the operations of LITTLE EDEN Foundation or Associazione Domitilla Rota Hyams Onlus as they are independent entities (see page 6). This is the fourth year that LITTLE EDEN is using the Global Reporting Initiative guidelines (GRI G4 NGO sector supplement) with the aim of continuously improving on previous reports and with the express purpose of being an instrument through which LITTLE EDEN is able to demonstrate to all stakeholders its commitment to public accountability, transparency, recording efficiency and sustainable fundraising. The last Annual Report was released in November 2014. The GRI compliance table may be referenced at the back of the Report to clarify queries or to locate specific information. This report was compiled in accordance with the recommendations of the Global Reporting Initiative guidelines (GRI G4 NGO sector supplement: core level).

Khaya en joys intera ction with dono r Jodi De erling

LITTLE EDEN HAS PLENTY TO OFFER TO PEOPLE WHO HAVE PLENTY TO OFFER. -- MICHAEL REA

On 24 March 2015, management and other members of staff participated in a materiality workshop facilitated by Michael Rea of Integrated Reporting & Assurance Services (IRAS). The objective was to identify the material issues and stakeholders that are most pertinent to LITTLE EDEN, with particular focus on the 2014 – 2015 financial period. The most material issues have been identified below (certain material issues have been consolidated into one due to their overlapping nature and impact).

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 09

MATERIAL ISSUES Financial stability remains at the top as the most significant and ongoing material issue due to the budget shortfall during this financial year, as well as challenges in timeously obtaining payment from the Department of Health and the process for renewal of pensions from South African Social Security Agency (SASSA).

Living and believing the values remains in its current position. Respect, Sanctity of Life and Love & Care are the Values which should encompass all spheres within the organisation – the manner in which we provide care for our residents; the manner in which we interact with each other as staff members; in the expectations we hold of volunteers; in our actions and activities that we perform in representing LITTLE EDEN, and believing and living these values outside the boundaries of LITTLE EDEN in the community.

Fundraising Challenges and Opportunities link closely with Communication of the Brand. During this reporting period a number of challenges were experienced: the protracted postal workers strike throughout 2014 severely impeded returns from the direct mail campaign; there has been no call for Charity Applications with The National Lottery Distribution Trust Fund since 2012; uncertainty regarding the proposed scorecard changes by the Department of Trade and Industry to Broad Based Black Economic Empowerment which focuses on elements such as Skills Development and Procurement and a reduced emphasis on Social Development which directly affects donations to LITTLE EDEN (and other NPOs). With these challenges there is a need to secure a regular income stream (ideally monthly) through various campaigns such as the Adopt an Angel (AAA) campaign, Debit Order campaign and Give As You Earn (GAYE).

TRUST IN DIVINE PROVIDENCE PROPER CARE OF RESIDENTS 4 LITTLE EDEN relies on Government agencies to operate efficiently and within their mandate, however challenges remain with regard to various elements: blood tests, receiving the required medication, being allocated a Doctor to attend to our residents, the challenge that the Department of Health requires that no more than 50% of the monthly maintenance subsidy be allocated to manpower costs (in comparison to the LITTLE EDEN spend of over 70% which is required to ensure an excellent care service). During this reporting period the subsidy payment from the Gauteng Department of Health changed from being paid in advance to being paid in arrears; this impacted on the cash flow. As at the end of March 2015 there are no subsidies outstanding.

Disaster recovery (operational continuity) planning is in hand. Formal procedures and policies and plans are in the process of being prepared to address technical crises and the required response (e.g., loss of IT systems, fire destroying one or more key buildings, etc.).

Evolution of Board and Management is a focus area which forms part of succession planning. Various strategies are being implemented to ensure the continuation of LITTLE EDEN and its Ethos as/when the current generation of LITTLE EDEN leaders moves on (structural changes implemented).

Public perception of LITTLE EDEN remains a critical element which needs continual attention. The Society also needs to remain in the public eye. This, along with, succession planning, communication of the brand and the need to prepare a strategy to ensure that any/all future changes to Board/Management will not negatively affect the donor population’s willingness to continue to support LITTLE EDEN. The strength of various channels of communication to build relationships, such as social media, is also a focus area.

During this reporting period the IT system and software have been upgraded to address IT dependency and ensure continuation of the “office component” of the Society. Adequate contingency plans (location, access to internet and emails) are in place. Continuation of utilities (water and electricity) remains an area of concern with the supply of electricity and water becoming more unreliable. Service delivery interruptions contingencies are in place to avoid a significant impact on the delivery of care to residents (generators at both Homes; borehole at both Homes etc.).

IT IS BECAUSE OF THIS DEEP-SEATED AND STRUCTURAL PHILOSOPHY OF CARE THAT DOMITILLA BELIEVED IN, AND IS STILL BEING CARRIED FORWARD TODAY, THAT LITTLE EDEN HAS BECOME THE INSPIRATION AND SHINING EXAMPLE OF EXCELLENCE FOR THE INTELLECTUALLY DISABLED. -- MAURIZIO GALIMBERTI

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LITTLE EDEN SOCIETY ANNUAL REPORT 2015 11

CHAIRMAN'S REPORT MAURIZIO GALIMBERTI It gives me great pleasure and delight, to present the 47th Annual Report of the LITTLE EDEN Society for the year ending 31 March 2015. Before going any further, I would like to remind ourselves of these special words that our beloved and dedicated founder, Domitilla, once wrote: “These children, with a far-away look, have souls more beautiful than the sun. They are angels. They are like lightning conductors on whom we should gaze with veneration. God could have created them normal, but they are as they are. There must be a reason for it which we cannot fathom. So we accept their creation as God’s design and accept them as a sign of His predilection”. It is because of this deep-seated and structural philosophy of care that Domitilla believed in, and is still being carried forward today, that LITTLE EDEN has become the inspiration and shining example of excellence for the intellectually disabled. This attribute is the resultant of the care, that each resident receives which is based on the personalisation of the individual where the emphasis of care is based not on what the intellectually disabled person cannot do, but rather distinguishes and identifies the individual strengths and augments the individual internal states such as contentment, serenity and happiness. This attitude of care is embraced in the Society’s core values of Respect, Sanctity of Life and Love & Care and it is these values that are practised daily at all structure levels of the Society which has been consequential in it achieving such high recognition of distinction. Some years ago, certain long-term goals were put in place to ensure complete financial sustainability. Certain objectives which were put in place, such as the LITTLE EDEN Foundation and the Associazione Domitilla Rota Hyams Onlus, have been well established and proving to be strong, viable and growing entities. Unfortunately current economic woes have filtered into the Society with ever increasing operational expenses and lower income. This fiscal pressure, as will be seen and discussed by the Society’s Treasurer in detail, is eating into the Society’s reserves. The deficit shown this year is mainly due to the fact that there has been no significant increase in donations apart from private donors with a reduction from corporate donors.

This has certainly been a difficult year for the Society’s accounts department in trying to balance its monthly budgets and expenses, with an extremely tight cash-flow situation. It is for this reason that a strategic financial meeting was called in February to address the issues and plan a road forward. It was unanimously agreed that costs could not be cut which would have significant detrimental effect on the care standards and that rather a very strong emphasis needs to be put into establishing a fully-fledged fundraising department with the LITTLE EDEN Foundation sponsoring the costs for the initial two years. It is believed that with the necessary controls and targets in place, this addition to the current fundraising department will prove to be successful and a good source for income generation for LITTLE EDEN. My sincere thanks go out to the Accounts management team and its co-workers as well as to the fundraiser for the exceptionally good work done during this year under extreme arduous and tough times – your spirited efforts resulted in a more positive year-end than what was envisaged. I would also like to send our very heartfelt thanks to all the wonderful generous donors, both private and corporate as well as all other benefactors both local and overseas, who have donated either financially or in kind and especially to those donors who always respond when special appeals are put out for assistance – a very big thank you to you all – without you LITTLE EDEN would not be that shining beacon. There are other factors which are constantly under discussion and are due reason for concern, as this has a direct effect on the Society being able to fulfil our Mission and daily operational functions which in turn puts tremendous pressure on future sustainability. Primary are the challenges with the Department of Health Gauteng Provincial Government which shows up regularly with the lack of the provision of regular medical and psychiatric evaluations; the constant recurring lack of supply and dispensing of vital medications which impact on a large majority of the residents. These matters are regularly addressed and it is hoped that with a better understanding from the Department of the workings and ethos of LITTLE EDEN, these issues should show signs of improvement. In April, the CEO – Lucy Slaviero; Manager: Administration – Xelda Rohrbeck; LITTLE EDEN Resident – Matthew Turner together with Luigi Slaviero who travelled in his own personal capacity representing the LITTLE EDEN Board of Governors, travelled to Italy to attend the University of Bergamo presentation of the thesis and dissertations by the student group which had previously spent a month at LITTLE EDEN. This visit was also tied up with a formal invitation from the Domitilla Rota Hyams Onlus to His Eminence Wilfred Cardinal Napier and the Rt Rev Bishop

Graham Rose to present a public talk at the University of Bergamo on the 20th anniversary of democratisation in South Africa.

must go out to the organisers, helpers, volunteers and sponsors, who all help in making this annual event the success it is.

The Onlus also arranged a series of business meetings and functions with the LITTLE EDEN representatives together with the Cardinal and the Bishop to meet with influential business and community leaders so as to give credibility to the fundraising activities of the Onlus in favour of LITTLE EDEN.

I am delighted to state that both the farming activities at Elvira Rota Village and the Second-hand Shop have proven to be successful this year and have assisted greatly in generating much needed income for the Society. Here again the various managers and staff workers need to be complemented on a job well done. Very special thanks must also go to all the donors from various communities who always willingly donate various goods and jumble for sale in the shop.

There is no doubt that all who were involved in this trip played a significant ambassadorial role for LITTLE EDEN and the benefits from this will yield and bear the rewards for many years to come. The Board of Governors wish to extend their sincere gratitude to all involved for all their sacrifices, excellent efforts and hard work that was put in for the betterment and furtherance of LITTLE EDEN. The two facilities have constantly been undergoing further changes, improvements and refurbishments. A number of minor additions and building changes were undertaken at Elvira Rota Village during the year with the extension of two day rooms to Butterfly and Bumblebee wings of Louis’ Lodge which were financed in the previous year by the Embassy of Japan in the Republic of South Africa. These were officially handed over by the ambassador of the Embassy of Japan. Domus Our Lady Mother of all Children (in Edenvale) which was acquired through the LITTLE EDEN Foundation was officially opened in March and now houses three S.I.C. Sisters who have been additionally allocated to LITTLE EDEN and are based at Domitilla and Danny Hyams Home whilst the other three Sisters are based at Elvira Rota Village. There have been many other wonderful highlights during the year, whilst for the residents, the ever favourite annual Christmas concerts are always the pivotal and most momentous event. Again this year’s concerts proved to be a great success with tremendous joy, happiness and excitement for all the residents. As always, it is a truly inspirational event to witness with each resident giving of their best in their own way. A very special word of appreciation must go to all the individuals involved in always making this the success it always is – your dedication, enthusiasm together with perseverance is truly esteemed and respected. Apart from the normal day to day activities the residents from both Homes also took part in a number of many other organised events such as sports days; spring day events; Christmas parties; Easter egg hunting; special outings and the occasional special Birthday parties etc. These events are always so well treasured by the residents and it is so rewarding to see the happiness of the residents. As usual the annual fête proved to be a huge success with a fairly good turnout from the community and general public. This function is not only a fundraising instrument but also used to broadcast and further the LITTLE EDEN message to the general public. A special word of thanks

On behalf of my fellow Board Members and myself, we would like to convey our extraordinary pride and satisfaction to be able to serve the Society, and would like to commend every member of the management team, and in particular the CEO – Lucy Slaviero for her outstanding dedication and leadership, as well as all behind-the-scene staff members who assist the management team, for the exceptional devoted enthusiastic good work, always bearing in mind total transparency in all governance and always safeguarding these governance attributes of living up to the Society’s Mission, its values and key objectives. Maintaining this philosophy ensures that we continue with Domitilla’s crusade. A particular word of gratitude must also go to all the Sisters; care-givers; house-mothers; nurses; therapists; all the Supercare Staff; Society Ambassadors; ever increasing number of volunteers particularly from Fidesco and all the unsung individuals who have shown such incredible patience and fortitude, enthusiasm and loyalty; commitment and support to all the residents of LITTLE EDEN. I firmly believe, as we approach our Golden Jubilee, notwithstanding the tremendous challenges ahead, that with the continued backing and steadfast commitment from all, LITTLE EDEN will continue to go from strength to strength and flourish for many years to come. I pray that God will continue to guide and bless us and enable us to continue this legacy of caring for all these Little Angels in our custody. Finally I wish to thank my colleagues on the Board of Governors for their most invaluable input and I look forward to their continued support and involvement for many months and years ahead.

MAURIZIO GALIMBERTI Chairman

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 13

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BY THE CHAIRMAN, I WISH TO ADD MY THANKS AND DEEP GRATITUDE TO OUR DONOR COMMUNITY FOR THE FINANCIAL AND OTHER SUPPORT RECEIVED. THE VOLUNTEERS: LOCAL, LONG-TERM FROM FIDESCO AND INTERNATIONAL; AND TO EACH AND EVERY ONE WHO CONTRIBUTES IN TIME, MONEY OR KIND, THANK YOU SO MUCH. WITHOUT YOUR INPUT, WE CANNOT CONTINUE OUR MISSION. -- LUCY SLAVIERO

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DESPITE THE CHALLENGES WE CONTINUE TO FACE, WE ARE FORTUNATE TO HAVE THE UNWAVERING SUPPORT OF MANY LOYAL DONORS AND I WISH TO EXPRESS MY SINCERE GRATITUDE TO ALL OF YOU. -- LUCY SLAVIERO

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 15

CHIEF EXECUTIVE OFFICER’S REPORT and we believe that NPOs must be proactive with such initiatives. LITTLE EDEN strives to remain a benchmark for other like NPOs in South Africa and is registered with the Independent Code for Governance for Non-Profit Organisations in South Africa.

LUCY SLAVIERO Since the early years when LITTLE EDEN was first established, Domitilla (and those who worked closely with her) have always believed in and acknowledged Divine Providence. It is this faith that still gives us hope and propels us forward – especially during difficult times. Through the years, LITTLE EDEN has been blessed with benefactors and friends who believed in the cause and many of them seem to have been ‘sent’ at just the right moment in times of need. The past financial year has been a challenging period. The financial crises that LITTLE EDEN and other NGOs encountered during the second part of 2014 were brought on by various factors which occurred simultaneously including late payment from the Department of Health Gauteng Provincial Government, Post Office strike and the impact it had on our direct mail campaigns, no application call from National Lottery Distribution Trust Fund (NLDTF) and the fact that corporate donors are shifting their funding focus. These financial setbacks have all contributed to a rather serious financial dilemma. Due to these setbacks various measures had to be taken to ensure that the level of care provided to our residents would not be compromised and that the Society’s doors continue to remain open. Despite the challenges of the past financial year, we choose to remain optimistic and positive. Therefore, LITTLE EDEN has chosen “Light” as the theme for its 2015 Annual report. Light can be seen as a symbol of hope, education and a brighter future for everyone. Also, LITTLE EDEN serves as a beacon for other NGOs and start-up organisations. The opening of Domus Our Lady Mother of all Children (DOL) was indeed a special milestone in the journey of LITTLE EDEN, since it had always been a dream of the late Domitilla. Three of the six nuns took up residence at the house. The impact of the nuns working in our Homes is visible in the mutual respect and love between the nuns and the residents. LITTLE EDEN supports and endorses international and local initiatives aimed at increasing transparency, responsible corporate governance and meaningful report-back to stakeholders and society in general

We ensure that LITTLE EDEN continues to uphold its excellent standard of operation as set out in the Service Level Agreement with the Department of Health Gauteng Provincial Government that grants the licence to operate but does not guarantee the payment of subsidies. Forty-eight (48) years into the journey that started with three little girls in day care, we continue to strive to follow in the footsteps of our Founders, thus living the values of Respect, Sanctity of Life and Love & Care. Without it, LITTLE EDEN would just be another institution providing basic care to those who need it. Instead, we have created a loving Home environment for our precious residents, who are able to blossom and develop to their full potential as a result of the loving, nurturing care they receive here. Notwithstanding the risks and challenges on our path, there is no doubt that we will press on and move forward since our 300 boys and girls, men and women depend on us. With the loyal assistance of our stakeholders including: Board, management, staff, donors, volunteers and parents LITTLE EDEN will continue to be an oasis of love for persons with profound intellectual disabilities. Special thanks to our chairman, Maurizio Galimberti, and the Board of Governors for your support and guidance, the management team and all the staff in the two Care Centres, the Second-hand Shop and in the offices for your dedication and hard work. May God bless you all. The following quote struck a chord with me: “What we have done for ourselves alone dies with us; what we have done for others and the world remains and is immortal” (Albert Pike). This quote is so relevant to the Mission of LITTLE EDEN and all who work for, support and contribute in some way to our worthy cause. What you do for our special people does have a lasting impact.

LUCY SLAVIERO Chief Executive Officer

LITTLE EDEN FILLED WITH DEW COVERED BUDS THAT BLOSSOM WITH THE WARMTH OF OUR LOVE. OUR HEARTS PROVIDE THE SUN THAT RESTORES LIFE AND VIGOUR TO THESE LITTLE BUDS AND IN OUR HEARTS THEY FIND LOVE! LOVE! LOVE! GOD HELP BLESS THIS GARDEN! -- DOMITILLA ROTA HYAMS, MARCH 1967

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LITTLE EDEN SOCIETY ANNUAL REPORT 2015 17

TREASURERâ&#x20AC;&#x2122;S REPORT The gross revenue for LITTLE EDEN Society for the year ended 31 March 2015 was R31 018 748 (2014: R29 952 222). This is an increase of 4% from the previous year.

BA ROSETTA NTAMBOSE XA

Total operating and fundraising costs for the same period were R32 380 905 (2014: R30 496 335). This is an increase of 6% from the previous year. This can mainly be attributed to the increase in personnel costs to 31 March 2015. The proportionately larger increase in costs compared to that of gross revenue resulted in a total comprehensive deficit for 2015 of R1 320 089 (2014: R1 303 617). The Society is reliant on subsidies from the Department of Health Gauteng Provincial Government, donations from major donors, its own fundraising efforts and on the generosity of the general public. The financial position at 31 March 2015 reflects total current assets of R2 201 879 (2014: R3 790 876), a decline of 42% from 2014 caused principally from the decline in cash and cash equivalents. Although there was a deficit for the past two years, LITTLE EDEN Society managed to keep the deficit under control. LITTLE EDEN Foundation has agreed to fund the establishment of a fundraising department within the LITTLE EDEN Society operation. This development should lead to the LITTLE EDEN Society being in a favourable financial position in the coming years.

ROSETTA NTAMBOSE XABA Treasurer

ORGANISATIONAL PROFILE INTRODUCTION For centuries, intellectual disability has been viewed as a curse, a burden, a shameful condition that needed to be hidden away from society. Even today, there is still some stigma attached to intellectual disability. Many people are still in the dark when it comes to this condition, and we try every day to shed light on the topic through the work we carry out at LITTLE EDEN. Unfortunately many people have not been exposed to persons with intellectual disability before and are uncomfortable when ‘confronted’ with persons with special needs like the youngsters living here in our care. LITTLE EDEN, through its labour of love works to enlighten society at large about the facts regarding intellectual disability, whilst at the same time encouraging persons to recognise the value that these precious angels have, as human beings with a mind, a body, a spirit and soul. LITTLE EDEN has been described time and again as a place of warmth, joy, light and love. This may seem a strange notion to some, especially those who are not familiar or comfortable with persons with intellectual disabilities. Many people have the perception of Homes such as LITTLE EDEN being gloomy, dark and depressing institutions where children with profound disabilities go. The good news, however, is that at LITTLE EDEN, one will experience the opposite. For close on 50 years, the Society has welcomed residents (many of whom had been removed from less than ideal circumstances such as dire poverty, abuse, neglect, etc.). 238 of our 300 residents were previously abandoned or come from indigent families with no support from family – financial or emotional. The life stories of some of our residents are heart-breaking. Regrettably, we cannot change what has happened in their past. We do, however, have the ability to help each resident going forward. We can help restore their dignity, health and the knowledge that they matter and that there is a place for them in this world.

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 19

Some residents have been with us more than 45 years and will remain in our loving care until they pass away. This respect continues after death, when the ashes of our residents are interned in the LITTLE EDEN Chapel Wall of Remembrance. There are countless cases of residents who arrived at our Homes with seemingly very few abilities or responsive actions. Slowly but surely with consistent love, attention and a combination of therapies, we were able to coax them from the dark place they were in, to a new territory of light and hopefulness.

INSIDE OUR HOMES

Our aim is to develop children and adults with profound intellectual disabilities to reach their full potential; to recognise that each such person, however disabled, is a whole, complete person created by God with a body, a mind, a spirit and a soul and therefore entitled to dignity; to educate the community that each such person is worthy of respect; to ensure that our work of serving the residents will continue to be sustainable and always based on our solid core Values of Respect, Sanctity of Life and Love & Care. When they are tucked in at night feeling warm, comfortable, fed and content, we know that we have done our job to the best of our ability.

Life at Elvira Rota Village, Bapsfontein, is quite different. Some of the 120 residents are mobile and more physically capable and are therefore able to take part in daily living activities with a limited level of independence. Their comprehensive Care and Stimulation Programme is formed around their abilities so that they are able to volunteer assistance with laundry, kitchen or farm duties, contract work (such as the filling of soap containers) and processing farm produce. They derive great pleasure from, and are extremely proud of, their contributions!

LITTLE EDEN provides 24-hour care to 300 children and adults with profound intellectual disabilities. Some are HIV-positive and live with Aids. Part of our work is caring for those who are terminally ill. The majority of our residents enjoyed good health during the period under review. As is inevitable, though, eight children passed away during the year and were mourned by the children and staff. Their absence is deeply felt, but the work has to continue and the beds were soon filled with new residents who also benefit from the loving care they receive from the LITTLE EDEN family. We are licensed with the Department of Health Gauteng Provincial Government to care for children older than three years. However, under special circumstances they may grant permission to admit younger children. Our oldest resident, Bobby, is 65 and our youngest is five, but the average mental age is that of a one-year-old, or younger. The residents are grouped according to their abilities and age and each Wing has its own play area so the group functions as a unit. Of our 300 residents, 203 also have physical disabilities and 96 have dual diagnosis â&#x20AC;&#x201C; that is they have mental illness with their intellectual disabilities and LITTLE EDEN provides for their specialist needs. The care that we provide is a daily labour of love â&#x20AC;&#x201C; the kitchen and laundry operate 365 days a year; all residents are encouraged through the medical, care and stimulation programme to develop to their full potential; love and care ensure that each resident feels safe, secure and content. The most important thing to note about LITTLE EDEN is that it is a place where each resident is treated as an individual with unique and special needs and a place where they are accepted for who they are and what they can do.

We have two beautiful, fully operational and wellmaintained Homes. At Domitilla and Danny Hyams Home, Edenvale, most of the 180 residents require a level of frail care and benefit from the comprehensive Care and Stimulation programme. The medical staff, therapists, group leaders, assistants, house mothers and care givers work together to ensure that each special angel is given the opportunity to develop to his or her full potential. There is great joy and celebration when a child smiles for the first time or makes a sound in response to words! Spiritual care is an integral part of the development of residents, staff and visitors. Daily recitation of prayer and the Rosary as well as monthly Adoration and Holy Mass takes place at Our Lady of the Angels Chapel, situated at the entrance to the Home. We welcome staff and the community that wish to participate in these times of worship.

The Holy Family Chapel is used daily by staff and residents. The long-term volunteer Sisters of the Imitation of Christ (S.I.C.) from India have played a significant part in this spiritual development together with His Grace, The Most Reverend Archbishop Emeritus George Daniel, Reverend Father Franz GrĂźber, Reverend Father Patrick Mphepo and Reverend Father Ernest Banda. Here, in the fresh air and beautiful open spaces, the residents are fortunate to experience rehabilitated wetlands, sensory garden, labyrinth, bird watching, waterfall and large size chimes, which all add to the therapies and leisure activities that enhance the quality of life of our special people.

Joyful Siza mak es her mark

SERVICES AND BENEFICIARIES Our main beneficiaries are the residents, all of whom have profound intellectual disabilities. Many also have physical disabilities and as mentioned earlier in the report, some with dual diagnosis. The average physical age of our residents is 25 years, but the average mental age is that of a one-year-old and younger. We look after the poorest of the poor. Often, parents of a child with intellectual disability cannot find or retain employment as they have to stay at home to look after and care for their disabled child. When the child is placed with LITTLE EDEN, the parents are free to find employment or go back to their jobs knowing that their child is receiving the best possible care and intervention. Furthermore, the residentâ&#x20AC;&#x2122;s siblings have a better chance of an education, employment and a brighter future altogether.

The social impact of an organisation such as LITTLE EDEN goes much deeper than simply the care of the residents. The majority of our children are clothed from donations received. Whatever we cannot make use of for the children and in the Homes is sold through the Second-hand Shop, which contributes towards the fundraising target. We remain committed to assisting other non-profit organisations that are starting out and are seeking guidance and advice from a benchmark organisation in South Africa. We continue to donate excess supplies, clothes, wheelchairs and blankets to other organisations in need. In this way, LITTLE EDEN is able to shine its light in the community by reaching out to others in need.

HOMES STATISTICS Domitilla and Danny Hyams Home

Elvira Rota Village

180

120

Admissions

Number of residents who have left the care of LE

Deaths

Number of residents on medication

140

Number of residents in wheelchairs

147

Number of residents

Residentsâ&#x20AC;&#x2122; hospital days

46 (6 residents)

Number of abandoned/indigent children

136

102

Number of residents with dual diagnosis

Number of dental consultations

1 707

180

Number of doctor consultations

266

321

Number of consultations by psychiatrists

Number of visits by other specialists

NUMBER OF BENEFICIARIES BY GENDER

NUMBER OF BENEFICIARIES BY RACE DDHH Indian 2

DDHH Female 74

ERV Female 54

27 (4 residents)

DDHH Female 74

ERV Female 54

ERV Male 66

DDHH Male 106

ERV Male 66

DDHH White 45

DDHH DDHH Coloured Indian 2 4

DDHH White 45

DDHH Coloured 4 ERV ERV Black 49 Black 49 ERV Indian 0

ERV Indian 0

ERV White 64

DDHH Male 106 DDHH Black 129

DDHH Black 129

ERV Coloured 7

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 21

MEDICAL CARE ¢ ¢

Nursing sisters are on duty 24 hours a day Check-ups by volunteer doctors and psychiatrists, and DoH dentists Daily medications for 98 residents @ ERV & 140 residents @ DDHH Daily chest therapy which is critical to many of the residents Emergency interventions as required

INDIVIDUAL PERSONAL CARE ¢

¢ ¢

Specialised seating arrangements and wheelchairs (47@ERV & 147@DDHH), including customised wheelchairs Feeding (1 500 meals and tea-times per day) Clothing and nappy changes (2 500 nappies washed daily, and 3 tons of linen and clothing) Personal hygiene support (bathing, hair care and teeth brushing)

Clinton at play

DAILY THERAPIES ¢

Physio-, occupational-, hydro-, music, speech, pet therapy, art, metamorphosis and reflexology Participation in concerts and creative activities throughout the year

SET DAILY ROUTINES ¢

Daily routine makes the residents feel secure with a sense of belonging

SPIRITUAL DEVELOPMENT AND SUPPORT ¢

¢ ¢

FAMILY AND LOVE ¢ ¢

To the 300 residents, LITTLE EDEN is their family and source of love, critical to them reaching their full potential They also learn how to socialise and interact with staff and one another

The spiritual development of our residents is vitally important to their sense of completeness and it indeed highlights the fact that our residents are complete human beings with a mind, a body, a spirit and soul God has given us these special Angels and we are truly blessed to be able to help them reach their full potential Daily prayers are said with the residents Residents, staff and visitors participate in First Friday Masses and other Masses and services at Our Lady of the Angels Chapel at Domitilla and Danny Hyams Home Holy Mass is celebrated weekly at the Holy Family Chapel at Elvira Rota Village for residents, staff and visitors We rely on the daily prayers of supporters, including those of the Harvesters of Jesus, as without their prayers LITTLE EDEN would not survive

FUND DEVELOPMENT

The year under review was a very challenging one. The changing Corporate Social Investment (CSI) landscape had disastrous outcomes for NPOs like LITTLE EDEN, whose work does not fit within the revised priorities of income generation, enterprise development, skills development, education and training. In this difficult economic climate when profits and livelihoods are threatened, that social giving and philanthropic support is the first to be cut. Balancing our needs with resources has indeed been extremely difficult.

COMPARATIVE BREAKDOWN OF INCOME PER CATEGORY 2015

% Government Funding Corporates Individuals Trust and Foundation Second-hand Shop Operation Educational Institutions Other Total

44.95 18.88 15.29 8.52

2014

Amount (R) 13 5 4 2

943 856 741 641

987 775 522 815

45.04 16.09 14.66 11.64

8.77 0.29 3.30

2 720 813 89 829 1 024 007

100.00

31 018 748

Amount (R) 13 4 4 3

550 840 408 500

2013 %

Amount (R)

010 570 678 278

47.69 17.73 13.44 10.94

15 5 4 3

880 901 474 642

010 480 973 847

7.65 0.24 4.68

2 301 587 72 848 1 408 876

5.59 0.36 4.25

1 860 644 119 149 1 415 950

100.00

30 082 847

100.00

33 295 053

NOTE: The figures above exclude the value of the VAT refunds received from SARS. The 2013 and 2014 comparatives have been adjusted from last year’ annual report to reflect the appropriate comparison. The above table includes both Income and Other Income per the audited financial statements. Figures vary to Treasurer’s Report because this table shows all money received for the financial period including receipts for the previous financial year

While there was a decline in most categories we saw an increase in the Corporate and Individual funding by 21% and 8% respectively. The Trust and Foundation and Other (which includes farming) have decreased by 25% and 27% respectively. The number of active financial donors, 2545, has decreased by 13%. This is of added concern as the number of new donors this year was 822 compared to 955 in the previous year. Currently, donor acquisition is not keeping pace with the attrition rates we are seeing. In reviewing this trend we are looking at increasing the capacity of the Fundraising department. The funding from Government reflects the receipt of the funds from both the Department of Health Gauteng Provincial Government (subsidy) and the Department of Social Development (Disability pension through SASSA). Both Department subsidy and Disability pension have increased slightly. The payment structure of the Department of Health Gauteng Provincial Government subsidy has changed; which affects the short term cash flow considerably. When the Income categories are reviewed in more detail, there was an overall increase in Income by 4%. There was a reasonable increase from the Second-hand Shop and Bequest programme and a considerable decrease in the funds from the Trusts and Collection from Public. The decrease in the Collection from Public can, in part, be attributed to the postal strikes. Some donors commented on receiving mail six months after it was sent. The overall expenses increased by 6%. Personnel costs remain the most significant cost component; and this increased by 7% over the previous year. The other significant increases were in Cleaning and Laundry – 20%, Food and Groceries – 9%, Repairs and Maintenance – 33% and Utilities – 17%. The high increase in Repairs and Maintenance was attributed to the replacement of all gutters at DDHH. This R&M project was fully sponsored.

Utilities showed an increase because of increased usage of electricity at Bapsfontein and adjusted property rates for Edenvale.

SECOND-HAND SHOP OPERATION

Robertus Dicky Kurniawan, a volunteer from Indonesia, will return home in April 2015, after assisting for a two year period with the Shop Operation. The Shop did well in this financial period; special thanks to all our donors who donate second-hand goods. The sales in the Shop generate a stable income stream for LITTLE EDEN. Your continued support is vital to the continuation of this operation. During this reporting year the staff complement in the Shop operation was again replaced due to questionable behaviour. This has been an ongoing challenge which is monitored, evaluation and scrutinised regularly; however the element of temptation will always be present. In an attempt to reduce and contain this behaviour, a Shop Manager was employed to assist daily with supervision in conjunction with regular CCTV monitoring. Second-hand and other goods that LITTLE EDEN receives, but which are not suitable for use in our Homes, are sold in our Shop. The Shop revenue increased by 22% and the expenses increased by 6%. This showed a Net profit of R1 975 119, which was an increase of 29% from last year. The increased productivity of the Shop helps towards the shortfall of funds of running costs. Minor renovations took place to ensure our Shop remains appealing to customers. Valuable and antique items are also now available on auction through the bid-or-buy website as well as advertised on various platforms including Facebook.

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 23

ADDRESSING THE FINANCIAL RISK

With a 4% deficit (R1 320 089) we undertook to mitigate this and future risk by embarking on an emergency electronic appeal, conducting a financial workshop and reviewing our strategy.

EMERGENCY APPEAL

The emergency electronic appeal saw a very good response from Individuals, Trusts and Foundations with a total contribution to the value of R486 879. Not included is one anonymous foreign donor who contributed an amount of R994 700. We remain deeply grateful for the loyal support of our friends and donors. However, we are mindful that this is not a sustainable manner of managing our income requirements.

FINANCIAL WORKSHOP

This workshop took place on 24 February 2015. The following was agreed upon:

Based on findings of a Fundraising Business Plan, the LITTLE EDEN Foundation committed itself to investing in increasing the capacity of the Fundraising department for a two year period.

A critical review of the Second-hand Shop is to be undertaken aimed at reducing cost and increasing revenue.

3 A review of expenses to decrease costs.

4 Being a cost effective source of staffing the outsourced labour contract will continue. The contractor will be approached to minimise any increases in the following year.

FUNDRAISING PLAN

Through incisive analysis we believe that the time has come to increase fundraising capacity. By investing in a fully functional fund development department now, we can expect to start seeing returns within the first year. The current funding picture is:

11%

33%

35%

Deficit

Other (Sales, events, campaigns)

Donation in Kind

Shop

Disability Pension and Fees

Department of Health Funding

Corporates, Trusts and Individuals

PROJECTED FUNDING IN 24 MONTHS

11%

Sales (Farm Produce)

Events, campaigns (Bequest, GAYE, Project specific)

Shop

Disability Pension and Fees

Direct Mail

Individuals

22%

30%

Corporates, Trusts and Foundations

Department of Health Funding

The motivation here is to reduce the deficit, to grow most of the key incomes but more importantly to introduce the INDIVIDUALS as a component in its own right (at this point it is blended under the banner Public Funding) and then finally to start reducing our cashflow reliance on the Department of Health Gauteng Provincial Government. The Associazione Domitilla Rota Hyams Onlus has brought much needed exposure, in Europe, and we expect favourable results in the future.

GROSS INCOME FOR THE YEAR ENDED 31 MARCH 2015

n n n n n n n n n n

Department n Department of Health of Health 34.72% 34.72% Collection n Collection from from Public Public 26.51% 26.51% Direct n Direct Mail Income Mail Income 9.30% 9.30% Disability n Disability Pension Pension 8.98% 8.98% Second-hand n Second-hand ShopShop 8.76% 8.76% Donations n Donations in Kind in Kind 4.01% 4.01% Fees n Fees from from parents parents 2.64% 2.64% Bequests n Bequests 1.95% 1.95% Others n Others 1.73% 1.73% Farm n Farm Produce Produce 1.40% 1.40%

GROSS EXPENDITURE FOR THE YEAR ENDED 31 MARCH 2015

n n n n n n n n n n n

Care Services 54.64% n Care Services 54.64% Personnel – Admin and Marketing 13.27% n Personnel – Admin and Marketing 13.27% Food 5.17% n Food 5.17% Other Home Expenses 4.81% n Other Home Expenses 4.81% Maintenance 4.39% n Maintenance 4.39% Municipal Services 3.72% n Municipal Services 3.72% Professional and Security Services 3.50% n Professional and Security Services 3.50% Direct Fundraisng 4.32% n Direct Fundraisng 4.32% Second-hand ShopShop and Others 3.30% n Second-hand and Others 3.30% Other Admin 1.66% n Other Admin 1.66% Insurance and Bank Charges 1.20% n Insurance and Bank Charges 1.20%

DONORS OVER R100 000 FOR THE YEAR ENDED 31 MARCH 2015 Type of entity

Name of entity/person

Amount Rand

Foundation

Anonymous

994 700

Foundation

Anglo American Chairman's Fund

440 000

Religious

Southern African Catholic Bishops' Conference Aids Office – Christian Aid

324 173

Individual

Legacy Anonymous

299 119

Corporate

Anonymous

281 776

Corporate

Haas CNC Services South Africa cc

264 580

Corporate

SABMiller Africa & Asia (Pty) Ltd (SAB)

250 172

Trust

The R.B. Hagart Trust

250 000

Individual

Legacy Anonymous

219 766

Foundation

Dis-Chem Foundation

208 778

Foundation

Nedbank Private Wealth Charitable Foundation

200 000

Corporate

Anonymous

133 425

Association

Associazione Domitilla Rota Hyams Onlus

131 198

Individual

Anonymous

110 000

Corporate

Kargo Long Distance (Pty) Ltd

108 000

Corporate

Anonymous

103 900

Corporate

Multotec (Pty) Ltd

101 150

Foundation

The Linda Nagel Foundation

100 063

Foundation

The Hope Convalescent Children’s Home Foundation

100 000

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 25

ACHIEVEMENTS

Daniela

Giuliano

Alexandra

The Danny and Domitilla Hyams Award has been instituted by LITTLE EDEN Society as its highest public recognition of benefactors. The award is bestowed in extraordinary cases and only for “exceptional meritorious service” allied with promoting the Ethos, Values and Mission of LITTLE EDEN Society. In the inaugural year, the following individuals were recognised for their exceptional service and support: Doug Boake, Giuliano Rota Martir, Daniela Taiocchi and Alexandra van den Bosch. The Certificate of Appreciation has also been instituted by LITTLE EDEN Society. It is awarded to those persons who through service, leadership or personal performance have enhanced the sustainability, reputation and good name of LITTLE EDEN Society as well as promoting the Society’s Ethos, Values and Mission. In the inaugural year, the following individuals were recognised: Heather Dietrich, Nicole Gatti, Mabel Giraldo, Francesco Magni and Silvia Zanotti. Celebrating 48 years of service to persons with intellectual disability In just 2 years’ time (2017), LITTLE EDEN will be celebrating 50 years of devoted service to persons with intellectual disability. With 48 years behind us, we continue to strive to improve the lives of persons with intellectual disability despite the challenges we continue to face along the way. Fidesco volunteer partnership LITTLE EDEN’s ties with the volunteer initiative, Fidesco, remain strong and the Society continues to benefit greatly from their support as valuable skills are offered through this programme. Oral Hygiene for 300 residents A team of dentists from Italy was organised through the Associazione Domitilla Rota Hyams Onlus to have all 300 residents’ teeth checked and cleaned. Opening of Domus Our Lady Mother of all Children On 2 March 2015, special guests and LITTLE EDEN staff joined The Most Rev. Archbishop Buti Tlhagale O.M.I. of the Catholic Archdiocese of Johannesburg as he blessed the new residence known as Domus Our Lady Mother of all Children. The building was acquired by the LITTLE EDEN Foundation specifically intended for the Sisters of the Imitation of Christ from India who serve at LITTLE EDEN.

Doug

The late founders of LITTLE EDEN, Danny and Domitilla Hyams, lived there from 1956 with their family. It was at the same house that Domitilla said that she had the apparition of Our Blessed Mother Mary in 1967 which set in motion a series of events that led to LITTLE EDEN becoming what it is today. This is also the house where both founders died. Many years ago, Domitilla had envisioned that one day LITTLE EDEN would welcome a religious order of nuns at LITTLE EDEN to help continue the important work being carried out here daily. Indeed, in January 2010 three Sisters of the Imitation of Christ of the Bethany Generalate, an order of Catholic nuns from India, arrived to commence their service at LITTLE EDEN. These women have joined our wonderful, dedicated staff in being the hands of Jesus in caring for our residents always with the values of Respect, Sanctity of Life and Love & Care being the way we carry out our service. It was only fitting, once the LITTLE EDEN Foundation acquired this house for long-term volunteers that it was allocated to the Sisters. Mother General, Sr Benjamin S.I.C. and one of her Councillors, Sr Thejus S.I.C. made the trip from India to attend the event. Special donors from Holland, Alexandra and Otto van den Bosch were present on the day. Alexandra and her daughter, Adeline Avelein, through their financial contribution (Gevers Deutz Foundation) to the LITTLE EDEN Foundation, made the purchase of the house possible. ¢

Perm for a Purpose Two of our staff members (Xelda and Carl) started a crowd funding initiative, dubbed Perm for a Purpose in order to raise R30 000 towards medical expenses for the residents. The target was reached and Xelda and Carl held up their end of the bargain!

STAKEHOLDER ENGAGEMENT Key to the success of LITTLE EDEN is the relationships we share with diverse groups of stakeholders who contribute to the work that we do. LITTLE EDEN identifies its stakeholders as those persons or institutions that can affect, or are affected by LITTLE EDEN operations. Regular interaction with stakeholders helps to promote the trust between LITTLE EDEN and those impacted by our operations. It also helps to ensure our responsiveness to the risks that define our responsibilities and influence our reputation.

Contact with the various stakeholders is ensured through: direct mailing, newsletters, e-communication, social media, press releases and radio interviews, progress and/or monitoring and evaluation reports to our donors, the Annual Report and other various methods. Of the 300 residents at LITTLE EDEN, 238 were previously abandoned or destitute resulting in the Society not having contact with the majority of the next-of-kin: thus LITTLE EDEN receives no financial support from this group.

Through regular stakeholder engagement LITTLE EDEN is able to communicate the most pertinent material issues to the relevant stakeholders such as: ¢ the financial crisis: – to staff which has resulted in staff being aware and informed accordingly of the impact this would have on them with no bonuses or increases; – donors, and the general public which has resulted in a positive response to the emergency electronic appeal; ¢ communicating challenges experienced; requirements, and expectations with the Department of Health Gauteng Provincial Government in an attempt to build this relationship and resolve these challenges; ¢ regular meetings with management and the Board of Governors informing them of current situations and to discuss various options, strategies, suggestions, which, amongst other, has resulted in the Financial Workshop taking place; ¢ a number of donors have enquired regarding the succession planning in place, which is an ongoing material issue and communicated accordingly; ¢ through actively engaging with stakeholders, stakeholders are comfortable and confident to raise their concerns/complaints and compliments with us and allows open communication channels to provide timeous feedback.

STAKEHOLDER

MEANS AND REGULARITY OF ENGAGEMENT

MECHANISMS FOR RESOLVING ISSUES

OUTCOMES

RELEVANT MATERIAL ISSUES (PAGE 09)

Beneficiaries

Daily verbal communication and personal interaction

Feedback and communication with nursing staff and supervisors

Beneficiaries develop interacting/socialising skills. Contentment. Any issues noticed by staff are taken to management who then investigate the cause thereof

All

Board of Governors

Progress reports are submitted every two months by management. Meetings every two months, ad hoc newsletters and emails

Meetings every two months, or ad hoc when required. Regular visits to the offices by the Chairman

There is an open channel 1, 2, 5, 6, 7 of communication between the Chairman and CEO. Any serious issues are dealt with swiftly

Corporate donors

On-going interactions, funding proposals, tours, meetings, etc. progress report and acknowledgement of donations

Emails, written correspondence, personal contact

Funding application opportunities

Customers of the Second-hand Shop Operation

On-going marketing material, personal contact, local newspapers, social media

Meetings by request with management, email, telephone, correspondence

Increased traffic to the 1, 3, 7 shop. Any complaints are dealt with swiftly to reach a satisfactory result

Government

Ad hoc workshops, business plans and meetings, emails as required, monthly reports, annual and ad hoc site visits

Audits, visits, meetings

The Society is on good terms with the relevant Departments, this allows open communication

1, 3, 6, 7

1, 3, 4, 6

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 27

STAKEHOLDER

MEANS AND REGULARITY OF ENGAGEMENT

MECHANISMS FOR RESOLVING ISSUES

Individual donors

Regular direct mail, e-communication, on-going media coverage, personal visits to the Homes, acknowledgment of donations, various annual events, social media

Meetings, social media, Donor loyalty. Increasing website, compliments and data base complaints records are monitored at management level

1, 3, 7

Local Community

Regular features in the local media, daily tours, presentations, various annual events, social media

Personal meetings, visits, emails, compliments and complaints records. Advice and referrals to prospective parents and the community

The LITTLE EDEN brand is constantly in the public eye making the community more aware of the Societyâ&#x20AC;&#x2122;s needs

1, 3, 7

Media

Press releases, telephone, email, social media, radio interviews, etc. at least monthly

Allowed the opportunity to respond in writing to the Editor for any issues that may arise from the public from time to time

Credibility. Society brand 3, 7 becomes well recognised and the Society can reach large numbers of people within a short period using minimum cost

Multi-disciplinary professionals

Daily personal contact, weekly feedback on progress of treatment of beneficiaries

Reports, assessments, verbal feedback

By assessing various treatments, optimal programmes can be designed for each individual

1, 5

Next of kin of beneficiaries

Newsletters every two months, ad hoc personal contact via telephone and social media and in person when required

Personal and/or telephonic contact. Referrals to other NPOs if necessary

Family involvement which benefits beneficiaries and the next of kin

1, 3, 5

Staff

Monthly internal newsletters and regular meetings. General notices as required

Employment Equity Committee, Ethos committees, workshops, weekly meetings, ad hoc meetings as necessary, open door policy maintained by management

Increase in staff morale and dedication. Feeling of worth

1, 2, 3, 5, 6, 7

Suppliers

Emails, telephonic correspondence as necessary

Written communication and meetings

Building good relationships, acquiring discounts

Trade associations

Consultation meetings as necessary

Written communication and meetings

Building good relationships

Volunteers

On-going, newsletters, notices, personal contact, etc.

Personal contact, feedback from Manager, Group leaders, therapists and care workers

Quality of care to beneficiaries increase. Volunteers feel valued

2, 3, 5

Independent legal entities of LITTLE EDEN

Bi-annual meetings, or as and when required, email, newsletters

Ad hoc meetings, personal telephone calls, emails

Building towards a sustainable future

1, 2, 3, 5, 7

Brothers Pule and Tshepo

OUTCOMES

ERV Heritage Day celebrated at

RELEVANT MATERIAL ISSUES (PAGE 09)

EVENTS OFFICIAL HANDOVER OF EXTENDED DAY ROOMS: ELVIRA ROTA VILLAGE In November 2014, the Embassy of Japan in the Republic of South Africa handed over the newly extended day rooms which they sponsored during the previous period. LITTLE EDEN approached the Embassy of Japan for funding to extend the two day rooms for the residents with profound intellectual disability when the discomfort of the residents in the original day rooms became obvious. The residents moved into their renovated rooms and the positive impact of the renovations on the residents was evident with more space available for wheelchair mobility.

FAMILY FUN DAY This fundraising event was hosted for a second consecutive year at Elvira Rota Village. Families took advantage of the beautiful weather to join us. Visitors were welcomed by a dance and musical item performed by the residents, before going on an adventurous 5km walk around the Farm. Beautiful music by young pianist Tyron Aaron and his little sister kept visitors entertained while they browsed through the various stalls of food and other interesting items for sale. While this event, like any other we host, aimed to raise funds, it was also intended as an opportunity for our donors and friends to visit the Farm and meet some of our residents.

FETE 2015 Our annual fundraiser was held on 28 February 2015 with the theme ‘Hollywood’. The turnout for the day was very good and the atmosphere light and fun – thanks to the excellent team effort from all involved. The day was well organised and successful. The community did not disappoint in terms of their participation and enthusiasm which ensured another successful fundraising event.

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 29

EVENTS CHRISTMAS CONCERTS For over 45 years, the concerts have been an annual highlight. Friends and benefactors of the Society come from all over to be part of these special performances to which the residents and staff look forward for many months! The concert practice forms part of the care and stimulation therapy programme during the year. The traditional nativity scenes were creatively weaved into the themes: “Under the sea” at DDHH and “Animals: our friends and teachers” at ERV. This year Emperors Palace and aQuellé sponsored the refreshments.

TEAM BUILDING LITTLE EDEN management initiated team building activities which were run over four days. Feedback received from staff in general indicated that they enjoyed the opportunity to interact with their colleagues and management in a different environment. It also boosted the group morale and served as a means of re-energising the individual as the work of LITTLE EDEN is not easy. The staff also received a sponsored meal from Mastrantonio during this time, which was thoroughly enjoyed and appreciated.

CHRISTMAS PARTIES As is the case every year, the residents were overjoyed to see ‘Father Christmas’ and each receive a present! The residents’ annual Christmas party at Elvira Rota Village was sponsored by Exxaro. The Domitilla and Danny Hyams Home party was sponsored by Emperors Palace. Our grateful thanks go to these generous sponsors. Your contributions mean the world to our youngsters!

EVENTS MANDELA DAY The day started early for us, with visitors streaming in with gifts of clothing, toys, financial assistance and treats for the residents. Other donated items included towelling nappies and more than 300 pillows! The visitors spent their 67 minutes interacting with residents, assisting with feeding the residents under supervision. Each visitor was given the opportunity to place their handprint on a canvas at the entrance. The handprint canvas is displayed on a wall at DDHH as a memento of this special day and acknowledgement of the contribution of the community to the work of LITTLE EDEN.

THE SEASIDE TRIP A special treat for residents – trip to the seaside – a long-term LITTLE EDEN donor from Holland, Alexandra van den Bosch, sponsored an excursion for ten residents and six staff to the Capuchin Poor Clare Sisters convent in KwaZulu-Natal near Port Shepstone. The residents and some staff members had an opportunity to see and experience the seaside for the first time in their lives! May God bless those who recognise the value of people with intellectual disability!

RESIDENTS INTERNAL ACTIVITIES

Baking day

Valentine’s Day

Birthdays

Sports day

April – Palm Sunday – ERV

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 31

COMMUNICATION OF THE BRAND

Over the years, the LITTLE EDEN brand has become synonymous with Love & Care, devotion to its beneficiaries and determination in living Our Mission. We believe it is our Core Values of Respect, Sanctity of Life and Love & Care that set us apart from other organisations and institutions. LITTLE EDEN continues with its efforts to educate the public on intellectual disability and through the promotions of our core Values we strive to help all individuals recognise the value of our special people. This is mostly accomplished through guided visits, off-site presentations, special events, the media, our website, social media networks, etc. Special mention must be made of the local Bedfordview and Edenvale News, which continues its loyal support of the Society by publishing regular articles, highlighting the work that we do and the difference we make by bringing light and hope into the lives of our residents. National media exposure occurs less frequently, with the exception of matters of national interest, example, the effect that the funding crisis had on NGOs. No negative media exposure was received during the period under review. In general, articles centred around the following themes: ¢

¢ ¢

The funding crisis we experienced in 2014 raising awareness for the work carried out by LITTLE EDEN Raising awareness of fundraising events Raising awareness of the Adopt an Angel initiative as could be seen in SpectraVision magazine and Radio Pulpit publications Word for Today/Woord vir Vandag Public recognition of donations received Community communication: LITTLE EDEN is a well-known and respected organisation that forms part of the Edenvale and Bedfordview community

Social Media:

THESE PLATFORMS HAVE CHANGED THE WAY WE COMMUNICATE WITH OUR DONORS, THE COMMUNITY, VOLUNTEERS AND THE PUBLIC IN GENERAL, DUE TO THE NATURE OF SOCIAL MEDIA SITES. THEY ARE IMMEDIATE, FRAGILE, OPEN AND ENCOURAGE DIRECT COMMUNICATION BETWEEN THE DONOR AND THE ORGANISATION. It has many benefits and enables both the organisation and the donor to communicate and interact quickly and efficiently. There is, however, a risk involved with this type of medium, because anyone can post anything they wish on the site and thus needs to be managed carefully in order to remain a respectable and professional platform. Over the past year, LITTLE EDEN’s Facebook page has gained numerous followers and the following observations were made in analysing the page: ¢

Posts with residents’ photos received the most attention. Request or appeals on the page are often shared by ‘friends’ on their walls, encouraging others to assist. This means that news and information about LITTLE EDEN travels much further than it may have done via the usual channels. Parents and family members use this platform to check up on the well-being of their children or to pass on birthday and general well wishes. A single negative comment was received through this channel. LITTLE EDEN immediately followed up. An ongoing effort is made to drive traffic from Facebook and Twitter to the LITTLE EDEN website to encourage individuals to contribute via the site.

Newsclip Media Monitoring has been part of the LITTLE EDEN family for over a decade and we remain grateful for their continued loyal pro bono support. The Newsclip team continues to help us gain exposure through their electronic newsletter: Media Update. Their service is invaluable to LITTLE EDEN as it assists us in monitoring media coverage and evaluating our awareness drives and campaigns. Thank you Newsclip! LITTLE EDEN is always careful when receiving advertising space and sponsored printing, to ensure that it is clear to the public that the advertisement was sponsored and that LITTLE EDEN incurred no cost. Failure to do so may result in the unsubstantiated negative public perception that LITTLE EDEN is a wealthy organisation that does not require substantial financial assistance.

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 33

MONITORING AND EVALUATION

Core functions are monitored and evaluated on an on-going basis, in order for LITTLE EDEN to achieve its aims, and live up to our Mission. ¢

To ensure that the residents’ needs are fully met, team meetings are held on a regular basis The Board of Governors oversees the strategic direction of the Society according to its constitutional guidelines. The Board meets once every two months to evaluate the preceding period of operation and to recommend and advise on future direction. The management team meets regularly to ensure that operational matters are addressed timeously and adequately. To maintain a good working relationship with the Department of Health Gauteng Provincial Government and in keeping with our standards of excellence we ensure full compliance to all statutory requirements. To ensure the application of prudent financial policies, all finances are carefully monitored by measuring performance to budget and this information is submitted every two months to the Finance Committee and the Board of Governors. In keeping with the fundraising strategy we fundraise aggressively to source funds for operational requirements in order to meet the monthly shortfall in Department of Health Gauteng Provincial Government subsidies and to broaden the scope of service provision. To maintain and build adequate infrastructure and facilities which are required to ensure a holistic approach in the care of the residents. To source and retain qualified and competent staff members within the organisation. To provide on-going staff training and ensure placement according to expertise. To uphold the Values and Ethos in caring for the residents and staff. To sustain effective and efficient communication with stakeholders.

LITTLE EDEN gives organisational management issues, systems and processes, due consideration and ensures that all activities comply with all legislated requirements. For example, the safety and health of residents and staff is a key performance measurement indicator during the annual performance review of managers. Regular meetings are held with the PR Department. Monitoring and evaluation of projects that are in progress and in the planning stages takes place. These meetings allow for potential opportunities and shortfalls to be identified early on in the project, which in turn leads to greater efficiency.

PROGRESS REPORTS TO FUNDERS AND SPONSORS ARE SUBMITTED AS PER THEIR REQUIREMENTS ON THEIR SPECIFIC PROJECTS. Monthly Safety, Health and Environment inspections are carried out and results submitted by the appointed SHE Representatives to the SHE Officer. All issues are looked at: minor issues are dealt with by the Officer, while serious issues are passed onto the manager concerned. The SHE Officer follows up with the manager until the issue is resolved. An external SHE Audit is carried out quarterly by Scott-Safe pro bono in which LITTLE EDEN regularly scores over 98%. SHE Committee Meetings are held every three months to discuss any issues and incidents. Management are ‘Designated Committee Members’ and so most issues are dealt with immediately: if not it is resolved via their regular meetings.

LITTLE EDEN programmes and activities are monitored through the use of statistical data, as well as progress reports submitted monthly to the management team and every two months to the Board of Governors. The reports evaluate progress against project objectives. Regular site visits are conducted by managers and supervisors who focus specifically on their target area of speciality, for example health and safety, medical aspects, etc. The relevance and efficiency of programmes are monitored in terms of their relation to the needs of the beneficiaries. Regular discussions with specific stakeholders and an open door policy results in reviews of programmes as and when required. Annual performance appraisals are carried out for LITTLE EDEN staff. This allows managers to receive feedback from their employees as well as the employee to raise any issues that might have arisen. Goals are set, and in subsequent appraisals progress is monitored and new goals are set or adjusted. This gives direction and growth to both the employee and the manager. This also gives management better insight of the employee towards succession planning.

tion Rowan at spring day celebra

MANAGEMENT AND CORPORATE GOVERNANCE LITTLE EDEN SOCIETY ORGANOGRAM

BOARD OF GOVERNORS CEO

FINANCIAL MANAGER

PUBLIC RELATIONS MANAGER

Accounts Technicians

Accountant

Public Relations / Communications Officer

Accounts Part-timers

Shop Co-ordinator Office Administrator

ADMINISTRATION MANAGER

CARE CENTRES MANAGER

Project Administrator

Facilities Supervisor

Fundraiser

Co-ordinator: Medical & Home

Senior Administrator

ERV Caretaker

Archivist

ERV Programme Co-ordinators

ERV Canteen Cook

Professional Nursing Staff

Facilities Contractors

Receptionist

Professional Therapy Staff

Farm Contractors

Driver (Supercare)

Group Leaders and Assistants

Administration Clerks

Ad Hoc Consultants

Care Staff (Supercare)

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 35

As noted in the CEO’s Report, LITTLE EDEN Society has formally signed and adopted the Independent Code of Governance for Non-profit Organisations in South Africa. This Code of Governance outlines eight ‘values’ which are of special relevance and concern to the NPO sector, as well as six key leadership principles, and five statutory legal and fiscal principles. Although the Code doesn’t yet have any official or legal status, it is widely supported by the donor community and the sector itself. It brings together views and inputs from previous documents, including the SANGOCO Code of Conduct and Ethics. By adopting this Code, LITTLE EDEN Society publicly commits itself to certain core values and principles, including fidelity to purpose, democracy, transparency and accountability. The Code also guides the Board of Governors on issues such as conflicts of interest and self-dealing as well as the responsibilities to ensure that resources are spent appropriately and in the public interest. Visit www.governance.org.za for more information and a copy of the Code. LITTLE EDEN firmly believes that responsible business conduct is based on fairness and integrity embodied in the Values of Respect, Sanctity of Life and Love & Care. In our marketing and fundraising communications, it is an absolute fundamental that we respect our donors’ right to privacy. We do not make unsubstantiated claims in our marketing materials. In the year under review, there were no recorded complaints about possible breaches of codes and laws related to marketing, advertising, promotion and sponsorship.

LITTLE EDEN’s ‘product’ comprises the holistic care of its residents. To perform our work of serving we must have dedicated staff that spares no effort in ensuring the provision of the best available care and stimulation services for the monetary value expended. It is the stated objective of the Board of Governors and management that such care must of necessity, be of world-class standard and best-in-class in the local South African environment. We comply with all applicable legislative requirements and willingly share on request information on resident care programmes and initiatives with other similar NGOs, institutions and other interested parties. LITTLE EDEN, as any other organisation operating in the Republic of South Africa, is bound by various legislative Acts of Parliament. We endeavour to comply with the applicable legislation and make use of external professional inputs to keep on track. LITTLE EDEN is in progress with the trademark application for the logo symbol, Values symbols, and the LITTLE EDEN name. At this stage the Trademark symbol ™ can be used on communication. The registration process is in hand and once the registration certificate has been received the Registered Trademark symbol ® can be used on communication. The LITTLE EDEN Beneficiary Analysis certificate renewal was completed with a resulting score of: DDHH 75% and ERV 45%. This supports the Social Development element of the BBBEE score card, where companies can qualify for top points under this section.

LITTLE EDEN COMMITTEES

In keeping with best practice initiatives, LITTLE EDEN staff are represented on the Employment Equity Committee, which meets every four months; the Ethos Teams, Tirisano and Bambanani, which meet monthly to encourage the living of the LITTLE EDEN Values and to create practical ways that will highlight the Values throughout the year and; the SHE (Safety, Health and Environment) Committee which meets quarterly to discuss any safety concerns that may have arisen in the previous quarter. The Society is aware of the importance of maintaining the racial diversity of its management team and Board of Governors. The risk of non-compliance with BEE could result in a loss of donors. The Board of Governors Members’ Manual clearly lays out the role of the Board and committees, code of conduct of the members, the course of action to be taken should a conflict of interest exist and also profiles each position on the Board. All committees adhere to the guidelines laid out in this manual. Further details are available from the Secretary of the Society. Organisational structural changes with regards to management, department groupings, and job titles took place with input from HR consultants, Connold & Associates. The current Departmental Heads’ Structure comprises of: ¢ ¢ ¢ ¢

Lucy Slaviero: Chief Executive Officer Peter Mannix: Financial Manager (includes admin; Shop) Veronica Mannix: Public Relations Manager (includes HR) Xelda Rohrbeck: Administration Manager (includes Homes; Facilities)

These changes took place in 2014 to secure the continuation of LITTLE EDEN in conjunction with the succession planning.

Management: Male

Female

Black

White

Disabled

ERV

DDHH

NOTE: 5 LITTLE EDEN Managers; 6 Supercare Managers

Shop & Depot

Total

Board of Governors:

FINANCE COMMITTEE

Male

Female

Black

White

Total

LITTLE EDEN strives to ensure that nominations to the Board of Governors represents a mix of expertise, knowledge, experience, representivity and that those nominated are able to commit time and effort to carry out their duties and responsibilities effectively; further, they are expected to subscribe to the Ethos and Values as embodied in Our Mission. At the Annual General Meeting of the Society, members of the Board of Governors are nominated and elected for a period of two years (but are eligible for re-election). All members should possess the highest level of integrity, independent mind-set and expert knowledge that meet the needs of the Society and complement the competencies of the existing members on the Board. LITTLE EDEN is fortunate to have members who show these qualities as well as being closely linked with the Society on a personal level: two members have siblings residing with us; and one is a son-in-law of the late founders. Doug Boake served LITTLE EDEN Society as the Treasurer from 1974 to 2014. During this time he was fully committed to the work and values of the Society. Having established his own firm of Chartered Accountants (Boake Inc.), he offered the full range of services of the firm for use by the Society as and when needed. Notwithstanding his additional contribution within a service club, Doug gave of his time when needed and at the regular meetings. Although now a consultant at Boake Inc. the offer of continued service from the firm remains, and a strong relationship has developed between the personnel at the firm and the Society. The Danny and Domitilla Hyams Award was presented to Doug in 2014 for exceptional meritorious service to LITTLE EDEN Society through his service of 40 years as Treasurer to the Board of Governors in harmony with its Ethos, Values and Mission.

The Finance Committee comprising of at least three persons from the Board of Governors: the Treasurer, the Chairman, and at least one other Board Member, as well as the Financial Manager and the CEO. The Committee meets six times per annum. This Committee fulfils the Board’s oversight responsibility relating to the Organisation’s financial statements, financial reporting practices, systems of internal accounting and financial and disclosure controls, internal audit function, the retention and oversight of independent auditors and oversight of the Society’s ethical business conduct. Finance Committee members: Mrs NR Xaba (Chairman) Rev A Bishop Rev D Boake Mr M Galimberti Mr LG Slaviero

REMUNERATION COMMITTEE

A Remuneration Committee comprising of at least three independent Board members together with the CEO, Financial Manager and Public Relations Manager (includes Human Resources) meet at least once annually. This Committee provides guidance and recommendations for the remuneration strategy of the Society and fulfils the oversight mechanism to ensure that remuneration levels are consistent, fair and in accordance with similar NGO related market levels. HR consultants, Connold and Associates, supplied valuable input making use of the PE Corporates Services survey. The Remuneration Committee recommends an overall annual quantum (either percentage or value or both) and also sets the remuneration of the CEO. Remuneration Committee members: Mrs NR Xaba (Chairman) Rev A Bishop Rev D Boake Mr M Galimberti

Doug continues to serve on the Board of Governors as a member. We appreciate, and are thankful for his dedication. The Board of Governors consists of: Mr Maurizio Galimberti BSc (Chairman) Mr Alexander Angus NTD, PMD (Vice-Chairman) Mrs Ntambose Rosetta Xaba CA (SA) (Treasurer) Rev Antony Bishop FCIS Rev Douglas Boake CA (SA) Mr Luigi Slaviero PrEng, MBL, BSc (Eng) Mrs Yvonne Thipe BA Curr Mr Tladi Ditshego tendered his resignation as a member of the Board of Governors due to time constraints. LITTLE EDEN has invited local council members and Government representatives to sit on the Board, but without much success. Two sub-committees established by the Board of Governors to assist it in its duties are a Finance Committee and a Remuneration Committee.

Adrian shows off his favourite picture

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 37

LITTLE EDEN FOUNDATION

The purpose of the LITTLE EDEN Foundation (LEF) is to safeguard, grow and ensure the provision of funds, assets, services and other resources to LITTLE EDEN Society. The Foundation may call upon and makes use of professional external advice (remunerated and/or pro bono) when necessary and to objectively evaluate performance. The LEF is a separate Public Benefit Organisation (PBO 930 034 635) operated not for profit and registered under Section 30 of the Income Tax Act No 58 of 1962 and has been granted Section 18A status. The Foundation has its own non-executive Chairman and independent Board members comprising of five nominated members and one co-opted member. Membership is only by invitation for a duration of three years renewable for two further periods of three years. No members of this Foundation serve in any other LITTLE EDEN related capacity. The LEF meets three times per annum. The Chairman, office bearers and members of the LEF are not remunerated for their services.

ASSOCIAZIONE DOMITILLA ROTA HYAMS ONLUS

Associazione Domitilla Rota Hyams Onlus is a nongovernmental legal entity registered in Italy, the purpose of which is to act as a central European contact office for European donations, with tax benefits, towards the sustainability of LITTLE EDEN Society. Further benefits include the facilitation of volunteers, the exchange of knowledge related to the care of persons with intellectual disabilities, the involvement of tertiary organisations and the transfer of ethos value systems. The Onlus has its own independent non-executive Founding Board Members and Executive Committee who are not remunerated for their services; nor are there any charges levied for the permanent registered office with the necessary equipment and services. The office is manned on a part-time basis by the Executive Committee members.

DURING THE YEAR THE GEVERS DEUTZ FOUNDATION (NOW WOUND UP) DONATED R2.8 MILLION TO THE FOUNDATION. A PORTION OF THIS DONATION WAS USED TO PURCHASE AND RENOVATE THE RESIDENCE DOMUS OUR LADY MOTHER OF ALL CHILDREN. LITTLE EDEN Foundation members: The Rt Rev Bishop T Graham Rose, DD (Chairman) Mr Tommaso Altini, BSc MAQS (Vice-Chairman) Mr Michael Rohrbeck, CA (SA) (Treasurer) Mr Terence Bowman Mr Alfredo Crabbia Mr Rajeev Thomas, B.Eng Proj.Mgt, Cert CPMM

Last year’s post graduate research project at LITTLE EDEN, by four representatives of the University of Bergamo, Italy was deemed a success and resulted in the publication of a book titled Dalle ferrite all’ abbraccio. Further research is expected to take place at LITTLE EDEN in the next year.

In April 2014 the Onlus invited LITTLE EDEN representatives as well as his Eminence Wilfred Cardinal Napier OFM and the Right Reverend Bishop Graham Rose to the presentation of the research work by the University of Bergamo students. The visit was also to give creditability and legitimacy to the Onlus. Representatives from the Onlus as well as influential Italian business men are expected to attend the book launch of Vuoti a rendere in Johannesburg in May 2015. This will be a good opportunity to see and experience LITTLE EDEN.

CUSTOMER PRIVACY

This is important to the Society as custodians of stakeholders’ personal details; we have a moral obligation to safeguard their information. The database is encrypted. Any access to this database is logged and can be tracked if necessary.

Above: The Patron of LITTLE EDEN FOUNDATION is Mr Jay (Jayaseelen) Naidoo, well-known philanthropist, social activist and champion for justice.

No incidences regarding breaches of customer, resident and staff privacy – to which we respect their right – were recorded in the past year, nor (with reference to this grouping) were there any known losses of data held by the Society. Further we have in place service and satisfaction feedback mechanisms to ensure rapid response to concerns and complaints.

CARE AND STIMULATION PROGRAMME OBJECTIVE to provide excellent sustainable care to our 300 residents, through trained and committed manpower and appropriate care facilities. People, who do not generally get in contact with children and adults with profound intellectual disability, cannot understand the extent and limitations of our residents’ abilities – not being able to learn how to read or write or attend a ‘normal’ school. However, each individual here is unique and has within him or her different abilities. It is our privilege as the family of these special youngsters, to help each of our residents to reach their full potential, to light up their lives, regardless of how seemingly limited that may be.

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 39

The Care and Stimulation Programme is a combination of medical and nursing care and therapies such as physio, occupational, hydro, music, speech and pet therapy, art, metamorphosis and reflexology designed to help the residents feel as much at home as possible and give them confidence to develop to their full potential. Residents with the potential for progressive development are identified and provided with therapy for their specific needs. The craft work in which they are encouraged to take part includes knitting, making greeting cards, beading rosaries, colouring and painting.

CASE STUDY: MUSIC THERAPY by Karen de Kock, Music Therapist Elvira Rota Village

Music Therapy provides a space, set up with the intention of healing. In a Group session, everyone is included and their contribution and participation is validated and respected. Within the Music Therapy space, non-verbal (rhythm, melody, harmony) as well as verbal communication is used for the processing of emotions. Songs are vehicles to transport us to bearable emotions and away from difficult emotions. I recently arrived at the Village one morning to the news that one of our long-time residents had passed away the previous night. I was shocked and saddened by this news, as he had fallen ill suddenly and I did not realise that his illness was that serious. The section of which he was a member, was already sitting in the hall for their weekly Music Therapy session. They did not yet know of his passing. I started by asking the group “Who is not here today?” to which they answered “Clyde!” I then asked “Where is he?” to which one answered “in hospital”. I then explained that Clyde was in heaven now; he would not be coming back to the Farm. I asked the group, which is intellectually lower functioning, what Clyde’s favourite song was, to which they replied “Kumbaya, my Lord”. This was Clyde’s all-time favourite song. He wanted to sing it all the time, whenever he was asked to suggest a song. I asked everyone to sing as loud as they could, as we were singing for Clyde.

The next group to come for Music Therapy, on that day, was the Butterfly group – a group that is at a higher level of functioning. Again, we spoke about Clyde who was now in heaven. “Ah!” said one resident “Clyde got ill, went to hospital and now he is in heaven!” “Yes!” said another “He is now with the angels, singing Kumbaya, my Lord.” Another resident got up and spread her wings like an angel. Someone else said his wings would get dirty because he was always busy, helping. Again, I asked the group to close their eyes and to sing Kumbaya, for Clyde. Although the residents and staff felt sad, there was an atmosphere of celebration and respect, as we sang Clyde home. Kumbaya, my Clyde, Kumbaya! May your soul be blessed.

CASE STUDY: MUSIC THERAPY by Marie-Victoire Cumming, Music Therapist Domitilla and Danny Hyams Home

Heather is 36 years old and has been at LITTLE EDEN since she was three years old. She is a gentle and soft-natured person whose face often lights up when you walk past her, accompanied by a smile. Heather cannot speak, but is able to communicate with subtle gestures including eye contact and soft vocal sounds. Heather is positioned in a long chariot bed for most of the day, where she is comfortable. She is observant and aware of those around her in the Wing. During the course of 2014, Heather developed severe hip pain as well as a bad cough, resulting in a wing transfer – from Boitumelo to Red Wing – in order to provide more intensive medical care. Thus far we have seen some improvement in Heather’s health, along with a sparked interest and participation in the wing during group music therapy. Unable to grasp instruments in her hands, Heather tries very hard to stretch out her arms to play the chimes and appears to find great pleasure in doing so! Her involvement in the music group not only validates her abilities, but further enhances her self-esteem and affords her a sense of group involvement and recognition amongst her friends. Heather now forms part of the instrumental group where her involvement is greatly valued and cherished.

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 41

CASE STUDY: PHYSIOTHERAPY by Nabeela Laher – Physiotherapist Domitilla and Danny Hyams Home

BUSI LOVES TO ‘SHOW OFF’ HER NEW SKILLS TO EVERYONE AROUND, AND THIS MOTIVATION HAS NOW EXTENDED TO HER ALLOWING US TO HELP HER TO STAND BY HERSELF IN THE PARALLEL BARS, AND WALK TWO LAPS ACROSS WITH SUPPORT. -- NABEELA LAHER

Busi is a four year old little girl with Hydrocephalus (build-up of too much cerebrospinal fluid in the brain), who has captured the hearts of all around her. When she came to LITTLE EDEN last year Busi was unable to stand or walk, as she was afraid of putting her weight on her legs. Busi has a number of sensory issues due to excess fluid in her brain and she has a poor sense of feeling in her legs, resulting in her struggling to stand. She used to collapse, cry and remain distressed at the notion of standing. Busi has benefited from being at LITTLE EDEN, as the environment has allowed her the time she needs to build trust with those around her, to let down her guard and try new things. This was accomplished by using a gradual approach during physiotherapy, aided by some special supportive shoes that were donated to LITTLE EDEN and just happened to be a perfect fit! She started by using her legs to propel herself on a scooter, then standing in a standing frame for a few minutes at a time, all while being exposed to a variety of new positions and challenges. She was also taught to self-propel on a wheelchair to give her a sense of independence and enjoyment of the movement! Busi loves to ‘show off’ her new skills to everyone around, and this motivation has now extended to her allowing us to help her to stand by herself in the parallel bars, and walk two laps across with support. This is incredibly hard work for her weak muscles and we are very proud of her! Our therapeutic goal for her is to learn to walk short distances with a walking aid one day in order to get around efficiently in her environment. We look forward to seeing Busi grow from strength to strength so that she may tackle the world with the zest we have come to love.

COMPLIMENTS

ou mmend y s like to co rk toward o w t a …I would your gre g is r in o fo d ly e re s a immen What you umanity. e world. helping h change th to d e d e e e ed and th what is n abandon e eem to th s r u fo Caring sy, but yo a e t o n d is of ease. challenge at sense re g h it w e it ou love undertak ecause y b is t ard a th ue to rew Perhaps, will contin d o G e . m ts na residen in Jesus’ d labour your goo Amen… (Nigeria) s Joseph li e id F o Ud

Dear Lucy and my wonderful, caring friends at LITTLE EDEN. I am sitting here looking at the photographic card of Mandy’s birthday, which I received this morning. What a surprise. What a beautiful way to let me share her party with her. I just keep staring at it, happy, and with a huge lump in my throat. I can’t believe my ‘little girl’ is 43; and I can’t believe she has been with LITTLE EDEN for so many of her years. Your continuing lifetime gift to Mandy is priceless; and this birthday gift to me, I shall always treasure. It has given me an incredible lift at a time when I really needed it. ‘Thank you’ seems so inadequate. But it comes from the bottom of my heart. Bless you Lucy, and all those who were involved. Again, when you are down her way, please give Mandy big hugs from me. I really do miss her so very much. Dave Beattie (PE)

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 43

MY DEAR LUCY

...YOUR WONDERFUL PARENTS WERE SUCH EXTRAORDINARY ROLE MODELS FOR ME, AND IT IS MOST CONSOLING TO KNOW THAT THIS INITIATIVE IS BEING CONTINUED ON BY THEIR DEDICATED FAMILY. MAY THE LORD AND HIS BLESSED HAND CONTINUE TO BLESS YOU AND LITTLE EDEN. -- HELEN (UK)

tte Hi Nicholle to learn were able ts n e EN d tu …The s ITTLE ED u about L o y m e o m fr a lot nderful ti had a wo heck and they l free to c e lease fe P site ll. b e ra w e v a o th Afric u o S U Q to out our ica.com) SouthAfr s from n o ti c (www.QU e fl tudents’ re see the s . our visit Regards

llay c, USA) Peter Ga uinnipia Q f o y it (Univers

Adopt an Ange l donor comm ent: I have followed the developm ent of LITTLE since its ince EDEN ption and as a donor to the regularly rece home I ive newslette rs. In 2012 I re letter inviting ceived a me to sponso r one of the “a the home. I ac ngels” in cepted the in vite and was Elzette Botha allocated a young lady who besides intellectually being challenged is also blind. Unf living in Durba ortunately n I have not ha d the pleasure meeting Elze of tte, but knowin g that my mon donation is he thly lping someone specific means than if it was more just added to the general ru the home. I lo nning of ok forward to the photos of birthday party her and to hearin g how she is Although I ha doing. ve not met El zette, she is ve my thoughts ry much in and I hope th at in some sm have helped all way I to make her lif e better. The LITTLE EDEN people at do amazing w ork in looking “angels” and after their I am so please d to be able to them in their assist hard task. I w ould encourag adopt an “ang e others to el” as it is a w onderful way someone less of helping fortunate than yourself. Shirley Aydon (KZN)

ENVIRONMENT The direct effect that water and electricity has on the cash flow of LITTLE EDEN remains material due to the high consumption rate. Disruption of either of these utilities drastically effects how effectively LITTLE EDEN carries out its day to day operations, and long-term disruption would likely see LITTLE EDEN face severe hardships. To try and lessen the effect of the utilities on the cash flow, LITTLE EDEN continues to reduce usage and wastage in these areas. Light bulbs are replaced with energy savers, exterior lights are set with timers, heaters in all the Wings are also on timers and adjusted as per feedback from staff, shower heads have been fitted with flow restrictors, water leaks are fixed as soon as they appear, staff are encouraged to use natural air instead of air conditioners, and opening of windows and doors is routine. There are regular inspections with regards to staff following the routine and if found not to satisfaction, site manager follows up with the problem area. LITTLE EDEN continues to increase its e-waste and metal recycling which offers some financial reward. LITTLE EDEN has approached companies offering to team up with them in the recycling service, however with no success. In-house, glass, paper and plastic is collected and taken to the local solid waste dump, which processes recycling. We try to use recycled paper for the printing of marketing material, unfortunately a donor has not been sourced. However the paper sourced for this Report is Forest Stewardship Council (FSC) certified. This means that the paper is sourced from well managed sources.

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 45

ELECTRICITY USAGE (KWh) KWH 2015

2014

2013

2012

Domitilla and Danny Hyams Home

525 360

520 200

597 990

624 720

Elvira Rota Village

125 220

91 480

93 400

104 040

Shop Operation

11 763

9 415

9 574

9 360

Saint Joseph House

11 369

13 070

–

677 166

634 165

700 964

738 120

2 438

2 283

2 523

2 657

Domus Our Lady Mother of all Children Total GJ

3 454*

Electricity usage for DDHH has remained stable (an increase of less than 1%.) This is in line with what was forecast from last year as no large energy savings were scheduled and no additional energy consuming equipment was purchased. Electricity for ERV has increased by 37%. This was not what was forecast last year. This large increase can partly be attributed to the decreased use in the generator (power supply from Eskom was more stable). The generator ran for 117 of hours (83 hours less than the previous year), using 1 400 litres of diesel less than the previous year.

* Part of year 1KWh=0.0036Gj

NON-RENEWABLE ENERGY (FUEL) USAGE 2015

2014

2013

2012

Litres

Petrol

5 051.28

172.75

4 353.08

148.88

2 503.90

85.63

3 046.70

104.20

Diesel

13 199.92

458.04 12 703.84

490.37

LPG

509.52 15 130.76

3 482.35

Total

88.10

4 235.29

770.37

584.05 11 866.36 107.15 840.08

1 882.35

47.62 591.29

4 705.88

119.06 713.63

34.2MJ/l of petrol; 38.6MJ/l of diesel; 25.3MJ/l of LPG

Diesel used by LITTLE EDEN has decreased significantly (12%). This is due mainly to the decreased use of the generator, as diesel usage by vehicles has remained relatively consistent. The increase of petrol usage is again attributed to increased trips between the two Care Centres, as lawnmower usage has remained relatively consistent. The decrease in LPG use is most likely linked to the ordering pattern being out of sync with the year in question.

WATER CONSUMPTION WATER (M3) 2015

2014

2013

2012

13 367

14 004

14 605

14 029

Shop

SJH

507

466

–

DOL

192*

–

14 103

14 507

14 642

14 066

DDHH

Total

Water usage at the Second-hand Shop is not metered and as such an average figure of 6.192 Kl per person is used to estimate annual usage. Water usage at DDHH has decreased slightly (<5%). This still seems to be in the year-on-year range. ERV still uses 100% ground water that is recycled through the wetland system into potable water. Metering at the Bapsfontein site is being reviewed.

* Part of year

Therapy fo untain at ERV ERV scenes

HUMAN RESOURCES OBJECTIVE To ensure commitment from and dedication of our staff through: acknowledging the individual; providing the staff with development opportunities; recognising their contribution; motivating the staff; adhering to occupational health and safety regulations; and creating an atmosphere where they have a sense of belonging to the LITTLE EDEN family. This is material as LITTLE EDEN is committed to providing its residents with the highest level of care by employing the most suitable and diverse workforce possible. We value individuals with exceptional professional and administrative skills who believe in our Values, act with a social and moral conscience and exhibit empathy with our residents. Employeesâ&#x20AC;&#x2122; right of freedom of association is recognised and respected by LITTLE EDEN. We provide equal employment opportunity to all employees and applicants without regard to race, colour, religion, national origin, gender, age, disability, sexual orientation or any other protected status in recruitment, hiring, compensation, promotion, training, assignment of work, performance evaluation and all other aspects of employment. We hold regular team meetings and discussions with individuals to ensure that the staff work well in a collaborative environment; to assist in spreading information on the progress of residents so as to allow the staff to better their interaction with the residents; hence the residents too, benefit from this work ethic. With a workforce of 259 which comprises 41 LITTLE EDEN staff, 209 Supercare subcontracted labour and 9 Contractors/part timers, LITTLE EDEN is fortunate to have a personnel to resident ratio of 0.86:1 ensuring the best possible care for the residents at all times. We would like to acknowledge and thank each and every staff member, key stakeholders within LITTLE EDEN, for being a beacon of light to our residents through your commitment and dedication in the various roles you play in caring for them. There have been a number of challenges faced this year (financial challenges, passing away of dear people we care for, personal challenges etc), yet we were able to overcome these challenges by being a strong team and supporting one another in the roles we perform. The dedication and commitment of staff is evident as LITTLE EDEN staff had to forego salary increases and bonuses due to financial challenges.

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 47

GENDER, RACE AND LOCATION BREAKDOWN FOR ALL PERMANENT STAFF 250

200

150

100

Gender

Race

n Female 217 n Male 33

Location n DDHH 137 n ERV 107 n Depot and shop 6

n Black 211 n White 36 n Indian 3

Jabulani with speech ther apist Dana

Excludes all contractors

LITTLE EDEN EMPLOYEES 1/4/2014 – 31/3/2015 Male

Female

Black

White

ERV

DDHH

Shop Operation

Total

NOTE: Black total includes 3 Indian NOTE: 39 x permanent staff; 2 temp staff (students)

EMPLOYEE TURNOVER 1/4/2014 – 31/3/2015 Male

Female

Under 35 yrs

35 – 55 yrs

Over 55 yrs

ERV

DDHH

Shop Operation

Total

NOTE: Reason for turnover: 3x resigned, 2x retired, 1x dismissed

Staff turnover of 13.3% is in line with previous years. LITTLE EDEN ensures that staff have exit interviews and use that information to improve on operating procedures.

d function DDHH staff at the year-en

LONG SERVICE AWARDS

We congratulate those members of LITTLE EDEN staff who were presented with Long Service Awards and thank them for shining their light on our residents through their love and care: For 35 years: Lucy Slaviero, For 5 years: Hazel Maswanganyi, Ntombi Qamngwana

SISTERS OF THE IMITATION OF CHRIST 1/4/2014 – 31/3/2015 Male

Female

Black

White

ERV

DDHH

Shop Operation

Total

NOTE: Black total includes 6 Indians NOTE: Religious congregation: Sisters of the Imitation of Christ

Two additional nuns from the Sisters of Imitation of Christ, Sr Seena and Sr Roopa, arrived on 12 June 2014 from Kerala in India to join the community at LITTLE EDEN. The well-established congregation at Elvira Rota Village continues with three nuns and a second congregation has been established in Edenvale. These three SIC nuns have moved into Domus Our Lady Mother of all Children (DOL) to commence their work at Domitilla and Danny Hyams Home. The official welcome of the Edenvale community of Sisters to DOL took place on 11 December 2014 which was a joyous occasion. The Blessing of the Convent Domus Our Lady Mother of all Children took place on 2 March 2015. These Sisters form an integral part in the care and stimulation for our residents working in the therapy programme at both Homes. The Sisters also form an integral part of the continuation of LITTLE EDEN by shining their light of spiritual support; background and experience in caring for people with Intellectual Disability; and living and believing in the Values of LITTLE EDEN Respect, Sanctity of Life and Love & Care.

SUPERCARE EMPLOYEES 1/4/2014 – 31/3/2015 Male

Female

Black

White

ERV

DDHH

Shop Operation

Total

184

200

104

209

NOTE: Employment Contract: Permanent

EMPLOYEE TURNOVER 1/4/2014 – 31/3/2015 Male

Female

Under 35 yrs

35 – 55 yrs

Over 55 yrs

ERV

DDHH

Shop Operation

Total

NOTE: Reason for turnover: Deceased = 2, Dismissed = 13, Resigned = 10, Absconded =10, Removed from contract = 0, Contract Terminated = 2, Moved from DDHH to ERV = 1

A staff turnover of 18.3% is very similar to last year. The relatively high number is once again attributed to unethical behaviour from the Shop staff. This trend identified in staff behaviour has caused management and the Board to again restructure the staff complement at the Shop. The results of these changes will be monitored closely during the upcoming year.

LONG SERVICE

We congratulate those members of Supercare staff who were presented with Long Service Awards and thank them for shining their light on our residents through their love and care: For 25 years: Mirriam Tendani and Dorris Lesese For 15 years: Doris Mgijima, Gladness Nkosi, Grace Ndlangamandla, Jane Molekwa, Lettie Skosana, Margaret Buloshe, Maria Lichaba, Maria Abreu and Phyllis Hlangwane. For 5 years: Annelie Motaung, Goodness Sithole, Ireen Mashako, Johan Swart, Johanna Photo, Judith Mbolekwa, Lillian Nkosi, Maggie Seleise, Michael Makhanya, Michael Mayekiso, Ndwandwe Sithandiwe, Shandukani Mafuna

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 49

VOLUNTEERS 1/4/2014 â&#x20AC;&#x201C; 31/3/2015 Male

Female

Black

White

Disabled

ERV

DDHH

Shop Operation

Total

NOTE: Above include volunteer Doctors and hours (1 Doctor, time amounting to 10 hours for the financial year). NOTE: This excludes community service and the 200 hours worked per week from the five full time Fidesco volunteers. NOTE: Some volunteers did work at both Homes.

Volunteers contributed a total of 4 599 hours for the year. This averages to approximately 94 hours volunteered per week. This increase of about 20 hours per week is attributed to the higher number of overseas volunteers that assisted this year (18 compared to 7).

VOLUNTEERS

How true and fitting the statement made by Michael Rea This organisation was built on the spirit of volunteerism. Domitilla Rota Hyams, founder, was the first, longest and most influential volunteer at LITTLE EDEN who continued to offer her support until she was in her late eighties. All local and professional volunteers assist on a part-time basis, apart from volunteers coming from abroad who assist on a full-time basis for the duration of their stay. The added value our volunteers offer pro bono including professional and medical support cannot be measured. The care, time and dedication directly impacts on the wellbeing of our residents in their time of need, when they are ill or need a change in medication etc. Hand-in-hand with this is the support offered by our local volunteers to our staff and residents, whether it is assisting during feeding time or taking time out to interact and play with our residents. During this reporting period a number of overseas volunteers from various countries (Australia, Indonesia, Italy, France, England, and Ireland) offered their time between our two Homes (Bapsfontein and Edenvale) and the Shop Operation. The volunteers stayed between a few weeks up to two months. We also welcomed two local seminarians.

Within the upcoming year (May 2015), we expect a further group of students from the University of Bergamo in Italy to continue with their research studies at LITTLE EDEN, investigating specific aspects about the means of intervention and educational activities carried out at LITTLE EDEN regarding residents who have autism spectrum disorders. This analysis will draw further on theoretical studies of the main interpretations of existing literature on autism spectrum disorder and how this compares internationally. It is also anticipated that a student from the UniversitĂ Cattolica of Milan, will be working towards her 2nd degree in Psychology at LITTLE EDEN. Her traineeship is due to start mid-2015. She will work closely with UNISA.

A SINCERE THANK YOU TO EACH AND EVERY ONE OF OUR VOLUNTEERS WHO HAVE DIRECTLY AFFECTED THE LIVES OF OUR SPECIAL ANGELS AT LITTLE EDEN.

These volunteers offer their time, love and care; and support regular operational procedures. Through their presence, time and input they give residents one-on-one interactions, which can grow into great friendships. Italian volunteer dentists and technicians, arranged through the Associazione Domitilla Rota Hyams Onlus in Italy, assisted with oral hygiene for our all residents. They did incredible work and were fully committed to the well-being of our residents. With the growth and interest from overseas volunteers to serve at LITTLE EDEN, there was a need to look into a property to accommodate them. Through the LITTLE EDEN Foundation, Saint Joseph House was acquired which now accommodates overseas volunteers. Fikile with staff member Shandu kani

FIDESCO VOLUNTEERS

LITTLE EDEN is fortunate to have had three full time volunteers from Fidesco who work at the Homes and Shop Operation for a two year period each. Fidesco was created in 1981 by the Emmanuel Community. Fidesco is a federation of associations which sends volunteers to assist throughout the world. Robertus Dicky Kurniawan, Indonesian volunteer, celebrated his 1st year anniversary in South Africa on 21 May 2014 as a Fidesco Volunteer. Dicky will return to Indonesia on 29 April 2015 after having volunteered at LITTLE EDEN in the Second-hand Shop for two years. His contribution, values, and interaction and relationship with customers and staff during this time have been a great support to the Shop Operation. Clémence Marlé and Hélène Petremant, two volunteers from France, celebrated their 1st year anniversary in South Africa on 8 September 2014 as Fidesco Volunteers. They continue to offer assistance in the Therapy programme at Elvira Rota Village. A married couple, Vincent Desprez and Bérengère de Villele Desprez, from France volunteered at LITTLE EDEN, Edenvale from September to December. They then left for Polokwane where they will continue the remainder of their two year mission. LITTLE EDEN would like to acknowledge and thank each one of these long term volunteers for dedicating two years of their life in service to others. Their commitment, contribution and living of the LITTLE EDEN Values of Respect, Sanctity of Life and Love & Care have been a great asset to LITTLE EDEN.

Lucy thanking Di cky for his two ye ars of service

LITTLE EDEN LOOKS FORWARD TO CONTINUING AND BUILDING THE RELATIONSHIP WITH FIDESCO, WITH THE HOPE OF RECEIVING FURTHER SUPPORT FROM VOLUNTEERS IN THE FUTURE. rengère and Hélène Clémence, Vincent, Bé

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 51

for tein sfon s. p a B y N in alwa EDE e them t, E L r TT apar su at LI will trea orld nd w y l a n a tI so like ance I s i m I wa eeks, bu r fo re rm w whe f per N fa two EDE world o A place tance, E L p LITT from the s worth. d acce ad hair The b an ne ed a e t o v a e r e o l k sepa to prov ditional things li ant e n ng e tfit m u havi ed unco e, wher o er iv m geth rece r being n ut to p ssio o y f l oor mpa e just p o c a , th . or ss ve day ely zero ot of ndne is ki rld but n may ha is c e e r r e p o m h r y w y a e dm in f enc in th onte curr rt an Truly t Bapsf my hea ld have e The . e r a ca will b I cou cted ime and My t ut it affe ply than with me . d l r b t ke wo dee shor ore ories I ta been God m m e m in faith ed. The s. y in a g w a l im alia) ed a r u s ustr A , trea 2014 , love May ( h t With i

cca

e Reb

In the beginning I really did not know what to expect at all, except that we would essentially be carers for the residents. I was quite nervous, expecting there be a considerable amount of pain and upset amongst the worse off residents. However, my concerns were cast off swiftly in the first few days. On entering the centres you were immediately overcome with a strong sense of love, care and happiness amongst the residents, no doubt a testament to the care of the family, sisters and local workers. There was a sense of genuine care and love for the residents. I will always remember my stay here for this reason, as well as for several of the characters found down in the centre. I thoroughly enjoyed my stay in the Elvira Rota Village and would like to thank the whole LITTLE EDEN family for the welcome and assistance shown to me for my whole stay. I hope to return in the future.

Philip Williams (July – August 2014, Ireland)

COMMENTS FROM VOLUNTEERS

We w ould b oth lik gratitu e to c de to onvey th e staff involv our m ed for , resid ost he ents a makin We ar artfelt g our nd ev e hea erybo ti m d ing ho e here memo dy me wit ries th unforg h hea at we ettable v y w . ill truly hearts Havin , gv cheris h fore and with in ery little prio v er. tellectu r expe rience a appre hensiv l disabilities workin e. T . We a g with quickly rriv people evapo he anxiety we init ed excited rated, of the yet ially h thanks sisters arbou , long to the Cléme re -term nc volunte general frie d compa e, the staff ndline ers Hé and a ssion ss lè bove shown all the ne and betwe We ca love a en the nnot th nd reside ink of way in nts. a mor which e r to spe eward spend nd ing an it d enjo would with the res our summe yable id r holid like to e n ts ay tha of LIT reitera made n to TLE E te our this po DE thanks ssible . to eve N, and Thom rybod as an y who dC (July – Aug olm Shalv ey ust 20

14, En

gland

)

the I would like to thank you for made me you t tha e wonderful welcom ne who is ryo eve with kind and you are that I coming here. The short time ble. etta org passed here will be unf

ts and their The kindness of the residen All the t. sen simplicity is a neat pre were e her sed pas I moments that w you sho ts iden res The . benediction of the ity plic how to be happy in the sim the all for you everyday life. Thank idents. things that you do for the res I’ll pray for all of you!

Marie Petremant (August 2014, France)

From day one I cou ld tell that very spec LITTLE E ial place d DEN was u e to the w treated th a ay not on e residen ly the staff ts but also each othe h o w r. they treat I can hon estly say that the ti LITTLE E me I have DEN has spent at been filled of my life. some of th Although e best da I a m excited will be wit ys to see my h a heavy family it heart I sa LITTLE E y g o DEN and odbye to everyone place fille here. It tru d with som ly is a spe e extreme cial ly special I am hono people. ured to ha ve had th here and e pleasure I have me of working t some am way. The azing peo memories ple along I have ma will hold c the de here a lose to m re ones th y heart fo I got the o at I rever and pportunity I am so g to work h remarkab lad ere and m le people eet all the here. I will miss every sing le membe and I hop r of staff a e one day nd reside I am lucky Words ca nt enough to nnot desc come bac ribe how k. g ra te fu l I am. Deaglan McK

(February

need, I fell LE EDEN’s T IT L fit lly ’t rea ared to be ation doesn which appe y, u g ce As my form n tena ing a main period. back as be for such a n tio si o p d o o g three weeks a quite ent almost sp I n oses: o si is m o main purp ning of my This had tw . g ach e in In the begin w w o n e kn egin to ildren of gre children, b had se o with the ch e h th w to re è d g get use ist Béren ss a sI ld u g n co first, I could I nd, very lo a . and seco weeks were e like re g th in of them etc r, rk o ve started w lish. Howe g ve n a h E ld ith u w co pain I think I . that useful. what to do didn’t feel didn’t know I t u the b r, ie rl a e k b- painting one wee first true jo y m e f m gave e help o r Rohrbeck me, with th At last Pete pel. It took a ite more ch u e q th lt d behin eks but I fe e w le o balustrade h very day w o I worked e ore than tw tion is that si o black Michael, m p e is n o th at least big luck in e to know m to find useful. My d e re w e h llo a w el, which him to see w llo for fo with Micha to m also autono y eeply, and re and more o n m re d guy a bit d e ild ir u ch cq e the erefore I a to go and se t f my e o rg this tool; th y p fo p ’t a n h med very wever I did e o H se . y b e jo th f this. y o m day – doing all wing every why I was r e b m e from green m e re it helped m and I visits, and EN’s DDHH LITTLE ED m the in o e fr d tim n y a yed m residents e th m ity, and o I really enjo fr oth is opportun uite a lot, b ng given th vi a h received q r fo l . ng time very gratefu r a long, lo staff. I am N to last fo E D E E L T I wish LIT

) esprez 14, France Vincent D cember 20 e D – r e b (Septem

illop – March 2014, Eng land)

I WAS VERY HAPPY TO WORK IN LITTLE EDEN DURING FOUR MONTHS, I LEARNT A LOT OF THINGS ABOUT THIS DISABILITIES AND WHAT WE CAN DO WITH THEM. IT WAS VERY PLEASANT TO WORK WITH THE STAFF, ESPECIALLY FROM THE GREEN WING, AND WITH THESE 23 OR 24 CHILDREN. -- BERENGERE DESPREZ (SEPTEMBER -- DECEMBER 2014, FRANCE)

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 53

EMPLOYMENT EQUITY COMMITTEE

The committee has been in place since 2009. Some new committee members, including a new Employment Equity Committee Manager, have been nominated to join some existing members to represent their constituent groups. Employment Equity Committee training took place for both new and existing members. The committee continues to meet 3 times per annum and the required Employment Equity Plan and Workplace Skills Plan & Annual Training Report were submitted.

SAFETY, HEALTH & ENVIRONMENT REPRESENTATIVES

Not only is health and safety a legal requirement, but the wellbeing of the residents and staff is of utmost importance to LITTLE EDEN. The 5% of the workforce represented on the SHE committee, excludes the nominated management members and meets every three months to discuss any matters that have arisen. Scott-Safe audits LITTLE EDEN every three months pro bono, in which a score of 98% and higher is achieved. No major incidents were reported for the period under review.

TRAINING

A number of training initiatives took place during this reporting year to which all staff (LITTLE EDEN and Supercare) were invited. These training initiatives took the form of: Seating Workshop, First Aid, fundraising/ social media workshops etc. as well as various in-house seating/feeding/lifting training sessions. A number of further trainings took place on an individual staff basis directly related to the position filled by the employee, such as sponsored GIBS training courses: Programme for Management Development and the Social Entrepreneurship Certificate Programme from which staff have graduated. Frontline Reception training was undertaken by the Receptionist. Planning for training for the new financial year is under way, however due to financial challenges, some of these training initiatives are on hold until the Society is in a sound financial position. An application for a Levy Exempt Grant through Health and Welfare SETA has been submitted, however no funding has yet been received to support the training planned for the new year.

CARING FOR THE CARERS: Lilly and Lucy with resident Mandy

The caring for the carers programme continues on a weekly basis at both DDHH and ERV where all staff are invited to participate in half an hour of â&#x20AC;&#x153;time-outâ&#x20AC;? to recharge. Some of the in-house training initiatives mentioned above form part of the caring for the carers programme.

RISK MANAGEMENT LOG

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 55

RISK IDENTIFIED

REMEDIAL ACTION

Financial sustainability

1. Further development of the Onlus and LEF relationship and function 2. Increase both numbers of donors and donation value. 3. Develop a cost effective mind-set. 4. Effective communication; 5. Retain a reserve equal to six months’ DoH subsidy. 6. Change in fundraising strategy (away from Corporate CSI with relation to BBBEE)

Postal Strike/communication

Alternative means of communication – social media, electronic, sms, press releases

Non-payment of Dept. of Health monthly subsidy

1. Establish good working relations with Dept personnel by inviting the MEC for Health to visit LES. 2. Invite Jay Naidoo to visit LES (via Rajeev Thomas). 3. Retain the relationship with the Senior Council who offered to assist with a class action. 4. Form a pressure group of like minded NGOs.

Cash flow

1. To establish targets and review quarterly with fundraiser; and similarly DMI. 2. Promote monthly donations

Termination or disruption of medicine supply by DoH; laboratory services

Contact the DoH at a higher level and then if not resolved source out of own funds; Categorise classes of needs; investigate the practicality of introducing a system on Residents data base to order medicine from Nigel Prepack; Operate a buffer stock.

Senior level succession plan

Develop a long-term recruitment plan and identify suitable internal candidates with a career path

Internal controls

Arrange for an external review of internal processes, LES BoG to set up an internal audit committee.

Electricity supply – ERV and DDHH

Maintain cellphone communication for both shutdown and start-up at ERV. Usage of power monitored when generator is running.

Disruption to public transport for staff

No current solution, intervene as necessary

Transmission of contagious diseases between residents and staff and vice versa

Universal precautions regime in place; Training in place; Appropriate signage in place.

Public Relations i.e. loss of public sympathy

Continuing development of public communications to include all channels; needs to be dealt with promptly by relevant person

Caretaker Eddie treats residents to a braai

CUSTOM CONTENT INDEX – ‘IN ACCORDANCE’ CORE

This table provides an overview of the Standard Disclosures. GRI’s Standard Disclosures are comprised of one or more disclosure requirements. In order to report ‘in accordance’, an organisation must answer each of the disclosure requirements for all the required Standard Disclosures.

GENERAL STANDARD DISCLOSURES General Standard Disclosures

Page Number

STRATEGY AND ANALYSIS G4-1

ORGANIZATIONAL PROFILE G4-3

Front Cover

G4-4

G4-5

Inside Back Cover

G4-6

G4-7

G4-8

6, 8

G4-9

22 – 24, 46 – 48

G4-10

46 – 48

G4-11

Nil

G4-12

We deal with various contractors and suppliers as and when required.

G4-13

G4-14

G4-15

G4-16

LITTLE EDEN is a part of the South African Federation for Mental Health.

IDENTIFIED MATERIAL ASPECTS AND BOUNDARIES G4-17

6–8

G4-18

G4-19

G4-20

G4-21

G4-22

Not Applicable

G4-23

STAKEHOLDER ENGAGEMENT G4-24

26 – 27

G4-25

26 – 27

G4-26

26 – 27

G4-27

26 – 27

REPORT PROFILE G4-28

G4-29

G4-30

Front Cover

G4-31

Back Cover

G4-32

G4-33

GOVERNANCE G4-34

34 – 37

ETHICS AND INTEGRITY G4-56

Inside Front Cover, 35, 46

External Assurance

LITTLE EDEN SOCIETY ANNUAL REPORT 2015 57

SPECIFIC STANDARD DISCLOSURES Page Number (or Link) Information related to Standard Disclosures required by the ‘in accordance’ options may already be included in other reports prepared by the organization. In these circumstances, the organization may elect to add a specific reference to where the relevant information can be found.

DMA and Indicators

Identified Omission(s)

Reason(s) for Omission(s)

Explanation for Omission(s)

In exceptional cases, if it is not possible to disclose certain required information, identify the information that has been omitted.

In exceptional cases, if it is not possible to disclose certain required information, provide the reason for omission.

In exceptional cases, if it is not possible to disclose certain required information, explain the reasons why the information has been omitted.

CATEGORY: ECONOMIC MATERIAL ASPECT: ECONOMIC PERFORMANCE G4-DMA

G4-EC1

22 – 24

G4-EC4

22 – 24

CATEGORY: ENVIRONMENTAL MATERIAL ASPECT: ENERGY G4-DMA

G4-EN3

45, No renewable fuel is used. Conversion factors were found at: http://astro. berkeley.edu/~wright/fuel_ energy.html

MATERIAL ASPECT: WATER G4-DMA

G4-EN8

G4-EN10

CATEGORY: SOCIAL SUB-CATEGORY: LABOUR PRACTICES AND DECENT WORK MATERIAL ASPECT: EMPLOYMENT G4-DMA

G4-LA1

47 – 48

ASPECT: OCCUPATIONAL HEALTH AND SAFETY G4-DMA

G4-LA5

ASPECT: TRAINING AND EDUCATION G4-DMA

G4-LA10

ASPECT: DIVERSITY AND EQUAL OPPORTUNITY G4-DMA

G4-LA12

34 – 37, 47 – 48

SUB-CATEGORY: PRODUCT RESPONSIBILITY ASPECT: CUSTOMER PRIVACY G4-DMA

G4-PR8

External Assurance Indicate if the Standard Disclosure has been externally assured. If yes, include the page reference for the External Assurance Statement in the report.

Sr Therese helps Tsh epo with his candle

Residents relaxing in the shade

LITTLE EDEN RESIDENTS

Xolane at his First Holy Communion

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LITTLE EDEN SOCIETY ANNUAL REPORT 2015 59

TO THE BOARD AND STAKEHOLDERS OF LITTLE EDEN: Integrated Reporting and Assurance Services (IRAS) was commissioned on a pro bono basis by LITTLE EDEN to provide Independent Third Party Assurance (ITPA) over the sustainability content within their 2015 Annual Report (hereafter, “the Report”), covering the period 1 April 2014 to 31 March 2015. The assurance team consisted of Michael H Rea, our Lead Certified Sustainability Assurance Practitioner, with 16 years’ experience in sustainability reporting and assurance.

ACCOUNTABILITY AA1000AS (REVISED, 2008)

Reviews of sustainability measurement and reporting procedures at LITTLE EDEN’s offices to determine the context and content of sustainability management by the organisation; Reviews of LITTLE EDEN’s information collation and reporting procedures to define the content of the Report by looking at the materiality of issues included in the Report, stakeholder engagement responses to issues identified, determination of sustainability context and coverage of material issues, ultimately leading to adherence to the AA1000AS principles of Inclusivity, Materiality and Responsiveness; Reviews of drafts of the Report for any significant errors, anomalies and/or insupportable assertions; and, Reviews of drafts of the Report to confirm that the requisite number of indicators are covered in the Report in order to meet the GRI’s G4 Core Application Level requirements.

To the best of our ability and significant experience in sustainability report assurance, this engagement has been managed in accordance with AccountAbility’s AA1000AS (2008) assurance standard, where the format of the engagement was structured to meet the AA1000AS Type I (Moderate) requirements.

INDEPENDENCE

The process was limited to the content and assertions made within the Report for the period under review, and did not extend to a comprehensive analysis of the accuracy, reliability, completeness and/or consistency of the data presented by LITTLE EDEN. Rather, sustainability data presented within the Report was subjected to reasonability tests during proof editing.

IRAS has not been responsible for the preparation of any part of the Report, nor has IRAS undertaken any commissions for LITTLE EDEN that would conflict with our independence. Responsibility for producing this report was the responsibility of LITTLE EDEN. Thus IRAS is, and remains, an independent assurer over the content and processes pertaining to this Report. However, it should be noted that IRAS has performed similar assurance engagements for LITTLE EDEN for the past three reports: Years ending 31 March 2012 through 2014. It should also be noted that as part of this assurance engagement, IRAS facilitated a materiality workshop to ensure completeness over the full scope of operational challenges and managed issues addressed by LITTLE EDEN within the Report.

ASSURANCE OBJECTIVES

The objectives of the assurance process were to provide LITTLE EDEN’s stakeholders an independent moderate level assurance opinion on whether: ¢

The environmental, social and governance (ESG, or ‘sustainability’) content within the Report meets reasonable expectations for transparency and accountability, in the context of LITTLE EDEN’s NGO status; The Report adheres to the AA1000AS (2008) principles of Inclusivity, Materiality and Responsiveness, with significant focus on whether stakeholder engagement outcomes have been duly considered when identifying material issues, and thus when producing the report; and, The sustainability content within the Report meets the Global Reporting Initiative (GRI) G4 Guidelines reporting requirements: Core Level.

ASSURANCE APPROACH AND LIMITATIONS

The process used in arriving at this assurance statement is based on AccountAbility’s AA1000AS (2008) guidance, the GRI’s G4 Application Level requirements, as well as other best practices in sustainability reporting and assurance. Our approach to assurance included the following: ¢

Facilitation of a materiality workshop to ensure that the material issues defined in prior processes have been duly informed by stakeholder engagement, and updated to reflect current operational conditions (for the reporting period);

FINDINGS

Based on our reviews of the Report, as well as the processes employed to collect and collate information reported herein, it is our assertion that: ¢

In the context of their status as a non-profit organisation, LITTLE EDEN reasonably adheres to the Accountability AA1000AS principles of Inclusivity, Materiality and Responsiveness; and, The Report adequately meets the GRI G4’s requirements for the ‘Core’ Application Level.

CONCLUSIONS AND RECOMMENDATIONS

Based on the information reviewed via desk research and management interviews, IRAS is confident that this report provides a balanced account of LITTLE EDEN’s operational challenges and performance for the period under review. The information presented is based on systematic processes and we are satisfied that the reported sustainability information reasonably represents LITTLE EDEN’s ability to report on its performance, while meeting the AA1000AS (2008) principles of Inclusivity, Materiality and Responsiveness. Moreover, this Report appears to meet the GRI G4’s requirements for the Core Application Level. For more information about the assurance process employed to assess LITTLE EDEN’s 2015 Annual Report, email michael@iras.co.za.

MICHAEL H REA Partner Integrated Reporting & Assurance Services 1 July 2015 Johannesburg

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Securing your Legacy Shining your light into the future Most of us get great satisfaction from doing good ... helping to make the world a better place and changing the lives of others less fortunate than ourselves. Leaving a bequest to charity is a way of continuing this influence beyond your own lifetime. A Legacy is also a wonderful memorial – keeping your spirit of compassion and generosity alive for years to come. It’s also a way of saving money, as gifts to charity are exempt from estate duty and may reduce the size of your estate to the point where it will not attract any tax. Especially if your own family is grown up and independent, you might like to make provision in your Will for children who will never be grown up and independent in the sense we know it ... those who suffer from intellectual disabilities. The children at LITTLE EDEN are here for life – and we have made a commitment to care for them as long as they live. By naming the ‘LITTLE EDEN Foundation’ in your Will, you’ll be an integral part of the LITTLE EDEN story for ever. For more information on Wills and Bequests, please contact the LITTLE EDEN Society CEO, Mrs Lucy Slaviero. See more at: http://www.littleeden.org.za/lef/

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79 Wagenaar Rd (Cnr Harris Ave) Edenglen, Edenvale, South Africa PO Box 121 Edenvale 1610 South Africa

BANK DETAILS Bank: First National Bank Account no: 5468 0928 009 Account name: Little Eden Society Account type: Cheque Branch: Karaglen Branch code: 252-442 Internet code: 250-655