Special Needs Living Michigan - Detroit/Metro - July 2023 Digital Issue

MEET THE SANDISON FAMILY

NOT CURED BUT REFINED: MY LIFE WITH AUTISM

This section is here to give our readers easier access when searching for a trusted neighborhood partner to use. Get to know the businesses that make this magazine possible. Please support them in return and thank them if you get the chance!

ABA SERVICES

ABA Pathways (805) 551-7613

www.ABAways.com

Budding Behavior Therapy (248) 622-5191

www.buddingbehavior.hi5aba.com

ABA/ BEHAVIORAL & AUTISM SERVICES

Healing Haven (248) 965-3916

www.thehealinghaven.net/

ADVOCACY

Student Advocacy Michigan (248) 372-9770

www.studentadvocacymi.com

ATHLETIC TRAINING

Autastic Athletics LLC. (248) 224-4151

www.autastic-athletics.com

AUTISM DIAGNOSIS/SUPPORT

Arbor Autism Center (734) 544-5561

www.arborautismcenters.com

AUTISM EVALUATIONS & ABA THERAPY

Inspire Autism

(844) 427-7700

www.inspireautism.com/

FINANCIAL MIABLE

(844) 656-7225

mi.savewithable.com

PRODUCTS

HedgeHog Health

(248) 495-7244

www.hedgehoghealth.com

MEET THE SPECIAL NEEDS LIVING DETROIT TEAM

WRITERS & CONTRIBUTORS

Jamie McCabe Area Director & Publisher

Christia Woodford Publishing Assistant

Paula Eifler Account Executive

Maria Giancotti Writer and Contributor

Ron Sandison Writer and Contributor

Joslyn Clark Writer and Contributor

Dorene Philpot Writer and Contributor

Angie Arlington Writer

n2co.com

Delivering Neighborhood Connections

© 2023 The N2 Company, Inc.

BY CHRISTIA WOODFORD

517-487-5426

877-463-2266

517-882-2800

517-241-3740

Arc Michigan arcmi.org

Autism Alliance of Michigan

https/autismallianceofmichigan.org/

Autism Support of Michigan https/autism-mi.org/

Behavioral Health and Developmental Disabilities

Administrationwww.michigan.gov/mdhhs/ keep-mi-healthy/mentalhealth/procurement/ welcome-to-behavioral-health-and-developmentaldisabilities-administration

Michigan Foundation for the Blind and Visually Impaired Michigan Developmental Disabilities Council www.michigan.gov/mdhhs/keep-mi-healthy/ mentalhealth/developmentaldisability

800-605-6722 517-333-6655

616-732-7358

269-337-3600 517-241-3740

Michigan Rehabilitation Services (MRS)

Capital Area Down Syndrome Association www.cadsa.org

Deaf and Hard of Hearing Services (DHHS) www.deafhhs.org/

Disability Determination Bureau

Division of Aging

www.michigan.gov/mdhhs/adult-child-serv/adultsand-seniors/behavioral-and-physical-health-andaging-services/aging-services

517-241-3740

Division of Family Resources (DFR) www.michigan.gov/mdhhs

Easterseals MORC www.easterseals.com/MORC/

DISCLAIMER: Any articles included in this publication and/or opinions expressed therein do not necessarily reflect the views of The N2 Company d/b/a N2 Publishing but remain solely those of the author(s). The paid advertisements contained within the Special Needs Living magazine are not endorsed or recommended by The N2 Company or the publisher. Therefore, neither The N2 Company nor the publisher may be held liable or responsible for business practices of these companies. NOTE: When community events take place, photographers may be present to take photos for that event and they may be used in this publication.

IMPORTANT PHONE NUMBERS

Emergency

Ealy On Michigan

https/www.michigan.gov/mde/services/earlylearners-and-care/special-ed-05/early-on-michigan

Michigan Department of Education:

Office of Special Education

https/www.michigan.gov/mde/services/ special-education-

Michigan Family Forum

Michigan Family to Family

www.f2fmichigan.org/

Michigan Foundation for the Blind and Visually Impaired Michigan Department of Health and Human Services

www.michigan.gov/mdhhs

Michigan Family and Social Services Administration (FSSA)

www.michigan.gov/mdhhs

Michigan State Department of Health

www.michigan.gov/mdhhs

Michigan Statewide Independent Living Council (MSILC)

www.misilc.org/

Medicaid Disability

MI Choice Waiver Program

National Alliance on Mental Illness

517-241-7004

Preschool & Out-of-School Time Learning

www.michigan.gov/mde/about-us/mde-divisions-andoffices/preschool-and-out-of-school-time-learning

517-284-7290

800-772-1213

1-800-772-1213

833-633-5788

517-203-1200

517-241-5324

Self-Advocates of Michigan (SAM)

Social Security Administration (SSA)

Social Security Disability Insurance (SSDI)

Special Education Questions

United Cerebral Palsy Association of Michigan ucp@ucpmichigan.org

Vocational Rehabilitation Services (VR)

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ISSUE PREVIEW

Pages 10-12 Featured Family: Meet the Sandison Family

Page 26 Advocate Like A Mother- Why I Advocate

Pages 8-9 Athlete of the Month- Meet Eugene Myers III

Pages 14-15 Sponsor Spotlight: Hedgehog Health

Pages 16-17 Nonprofit Spotlight: Team Guts, Inc.

Pages 20-21 Community Resources

Pages 18-19 Local Events

Page 22 Advocate Like A Mother!

PUBLISHER/ADVERTISING INQUIRIES

Jamie McCabe

248-882-8448

Jamie.McCabe@n2co.com

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Featured Family- The Sandisons

Non-Profit Spotlight

Sponsor Spotlight: Hedgehog Health

PUBLISHER’S NOTE

Special Needs Living Magazine for Michigan - Detroit/ Metro is finally here!

About three years ago, when my non-verbal and epileptic son Jordan was 5, he had just been diagnosed with autism. I was feeling isolated and alone. I remember feeling that what we thought life would be like raising a child was turning out to be a much different experience. That hope for hearing our child say ‘I love you’ and being able to tell us how his day was, or what his likes or dislikes were, did not exist anymore. It was almost like we had to grieve the loss and accept what a blessing it was to look at him in a whole new light. We do not have any local family and I did not know of any other parents who had kids with special needs. I remember thinking, I can’t be the only one in the state or nation that feels this way. I knew I had to turn my pain into purpose and find a way to create a community, one where everyone can be accepted and loved and be able to share their story, get advice, and find resources. I envisioned a community where we could inspire each other to find our own path, and to connect with those who have had similar experiences while raising their special needs children.

I had already been publishing two local neighborhood magazines in central Indiana for 8 years that the community loved. My company, N2 Publishing, has neighborhood publications in thousands of communities throughout the nation, from private neighborhood magazines that go out to high-end subdivisions and Del Webb retirement communities, to publications for residents moving to new homes and top real estate agents.

I went to them convinced that we could use the same platform to develop a magazine to bring the special needs community together. My vision was met with approval by N2. We launched Special Needs Living Indy in November of 2020. In 2022, Special Needs Living Akron/Canton Ohio was launched by Rick Miller. My next goal was to launch in the state and area I grew up in. I am from Waterford, Michigan, but have lived in Indianapolis since 2007. My sister, Jennifer Eifler, is also an N2 publisher. She has produced Hidden Lakes Magazine for several years now. And while we were growing up, my mom Paula was always an incredible advocate for my brother Alex, who has a number of special needs. I absolutely learned so much from watching her support him and help others in the community. I am so happy to have my mom on board as an account executive with Special Needs Living Detroit/Metro. Together as a family, and thanks to supporters who help cover the costs of publication, we are happy to bring Special Needs Living Detroit/Metro magazine to Michigan.

During the time I have been publishing Special Needs Living Indy, I became connected to so many wonderful programs and resources that have helped my son, from

adaptive soccer to stem cell therapy. I am excited to bring many more resources to special-needs families through this magazine. We also hope you will find comfort and connection in the stories submitted by special-needs families themselves. And stay tuned for special events we will host throughout the year that will connect families with each other, and so much more.

Lastly, I want to share that while preparing to launch this new magazine, I sadly and unexpectedly became a single mom. I never thought that I would be navigating this challenge. But as many of you may already know, parents of special needs children are at much higher risk of divorce than other couples. In the majority of cases, the special needs child/children will continue to reside primarily with the mother. We plan to address this important issue in greater depth in upcoming issues.

Special Needs Living is designed for families who have a child with any type of special need, whether psychological, behavioral, emotional, or physical. Stories will largely be submitted or inspired by our readers—this magazine is for you, by you, and meant to connect you. We want the stories shared here to give hope, inspiration and encouragement, and perhaps even shift your perspective. If you have a story you would like to share you are welcome to email us at SpecialNeedsLivingDetroit@n2pub.com or check out our https://linktr.ee/snlmichigan to view some of the story template options.

Huge thank you to all the supporters helping to make Special Needs Living possible monthly. If you would like to be involved in any way or for more information on how you can support or sponsor please email me, Jamie.McCabe@ n2co.com.To help get the word out you can share this link https://linktr.ee/snlmichigan with anyone that could benefit

Jamie & Jordan

from the stories and resources shared in Special Needs Living. You can also sign up to get Special Needs Living at the link above.

If you have not already done so, follow us on our Facebook page: https://www.facebook. com/SpecialNeedsLivingDetroit to view our monthly digital versions and to keep up with events, stories and things we are looking to add to the magazine. We hope you enjoy the first issue of Special Needs Living Detroit/Metro. We welcome feedback and are excited to bring this new magazine and resource to you!

Your Publisher, Jamie McCabe 248-882-8448

Jamie.McCabe@n2pub.com

MULTI-DISCIPLINARY AUTISM CARE

Our speech, occupational, and behavioral therapists rely on scientifically proven autism treatment to develop individualized interventions that support social communication, language, cognition, and motor development to maximize participation in learning and natural environments.

Running in the Adaptive 5k Race with Jordan Jamie with her kids, Jordan, Jaylin & Jade and her mom Paula Eifler (Account Executive with Special Needs Living)

Eugene Myers III

Eugene Myers III

Age: 17

Grade: 11th

Avondale High School

What would you like the special needs community to know about you? What have been some challenges you have experienced and how have you overcome these challenges? Finding activities that I can do with my friends that we would all enjoy. But at high school I joined the varsity bowling team and compete in several Special Olympic sports this allows me to do lots of activities with my peers

Advice you have for others in the special needs community: Find an activity that you enjoy and do it a lot. For me that’s sports

Something you would like your parents to know: Thank you for being good parents and taking care of me.

What sports or extracurricular activities do you participate in?

Bowling, tennis, swimming, unified basketball, track and field and golf

Highlights of Eugene’s Special Olympics and bowling competitions:

I got started in Special Olympics as a bowler. Now I am on varsity bowling team and bowled a high score of a 290 for my sophomore year and competing several times at the state games for Special Olympics swim in both freestyle and backstroke. He won 3 gold medals in 25 free, 25 backstroke and the 4x25 relay.

Dawn, is there anything you would like to say about Eugune?

Eugene is our hero. He works hard and loves to compete in sports with other athletes, both typical and special education.

What does Eugune enjoy the most about working with Autastic Athletics?

Eugene was happy to find Autastic Athletics. As he enters his senior year, he is hoping to join the Avondale High School tennis team. Working with Andrew will help him learn the basics to allow him to compete and socialize with his typical peers, and he is excited to do so.

Why is training important to you?

Eugene has learned that you need to practice to succeed at sports, and as his parents we appreciate the physical fitness that he gets from doing what makes him happy.

Dawn, what would you like to say to encourage others who are thinking about trying a new sport?

Eugene has tried a variety of sports over the years. He enjoys gym class and the community you gain playing sports. It is also a great place for parents to expand their community as well. So if you are looking to make friends, looking to work your muscles, or just want to try something different, sports are a great place to start.

Name someone you admire. What makes them special and how have they motivated you?

My favorite coaches are Coach Conklin and Coach Alyse because they encourage me

After high school, my plans are...

After high school I am going to the skills program to teach me life and job skills

Favorite Food: Mac n cheese

Favorite Color: Blue

Favorite Music: Bob Seger

Favorite TV Show: Friends

Favorite Sports Teams: Lax Bowling Team and Detroit Tigers

Favorite Subject in School: Gym

MEET THE SANDISON FAMILY-

MEET THE SANDISON FAMILY-

RON, KRISTEN AND MAKAYLA

MY AMAZING

It’s not what we accomplish in life that matters most but the challenges we overcome that strengthen our faith.

My development began normally, but at eighteen months of age, I began to rapidly regress. I lost my ability to communicate with words and stopped making eye contact. About 20% of children with autism experience a period of regression of previously acquired skills. Many others have delayed development of communication and fine motor skills.

As I entered kindergarten, the specialists in the Rochester, Michigan school system labeled me as emotionally impaired. My mom refused this label and informed the professionals, “My son’s disability is not emotional but neurological.” She diligently searched out the top professionals for learning disabilities in the area and paid to have me tested. A neuropsychologist from Henry Ford Hospital confirmed that my disability was indeed neurological—it was autism. When I was diagnosed in 1982 only one in every 10,000 children in the US were diagnosed with autism

JOURNEY WITH AUTISM & FAITH

BY RON SANDISON

spectrum disorder; currently it’s one in every 44 children.

The educational specialists informed my parents that I would probably never read beyond a seventh-grade level, attend college, have meaningful relationships, or excel in sports. But my mom was determined that I would succeed in life and did everything she could to help me gain self-confidence. My mom believed that by having me interact with typical children my own age I would learn essential social skills, and by developing my talents—whether in painting, drawing, reading, or writing, I could gain independence and accomplish my dreams.

I not only finished high school but have bachelor’s degrees in theology and psychology and a Master of Divinity with a minor in biblical Greek from Oral Roberts University, with a perfect GPA. I received an athletic scholarship for track and cross-country in my freshmen year of college. I am happily married going on ten years and we have a seven-yearold daughter, Makayla. Along the way, I’ve published three books through a Christian publisher.

None of this would have been possible without my parents’ unconditional love and support and God’s grace. My mom was inspired by Proverbs 22:29, “Do you see a man skilled in his work? He will serve before kings. He won’t serve before obscure men.”

Before inclusion in the classroom became the norm, many children with autism and other disabilities were poorly educated, leaving them qualified only for low-level jobs like janitor, grocery bagger, stocker, or dishwasher—serving before obscure men. My mom was determined that would not be me. Daniel 6:3 states, “Now Daniel so distinguished himself among the administrators and the satraps by his exceptional qualities that the king planned to set him over his whole kingdom.”

She decided to help me refine my disability into beautiful gifts and talents. Autism is not something you can cure like a disease—I can’t cough on you so you can get a day off work with the autism flu. However, autism can be refined.

Autism unrefined feels like walking barefoot on hot pavement and then stepping on a sharp, jagged piece of glass.

Makaya

My books

Ron in Tampa

It is a life of failed social interactions because the inability to read non-verbal cues results in attempts at conversation that are unfiltered at best and inappropriate at worst. It is rigid patterns to be followed, out-of-control stimming, relentless head banging, and meltdowns from overwhelming sensory stimulation. In short, it is painful.

Autism refined, on the other hand, is like walking alongside bright blue waves on a warm, sandy beach and discovering a smooth piece of glass refined by the power of the ocean. It is talents in art, science, math, or writing, and special abilities like attention to detail, extraordinary memory capacity, or creativity necessary to develop technology.

In 2 Timothy 2:20 it is stated that, “In a large house there are articles not only of gold and silver, but also of wood and clay; some are for special purposes and some for common use.” My dad has a piece of refined glass from the ocean, a foot high and six inches in width. He displays it in our house as a proud reminder of what our family has accomplished. With God, we can all find a way to refine our jagged edges.

When I was seven my mom gave me a toy prairie dog for Christmas. It quickly became my unusually special interest. In the 80s most boys played with their GI Joe, He-Man, Star Wars toys, and Atari video games. I carried around a stuffed prairie dog named Prairie Pup. I quickly became an expert on my new unique interest and could tell you every detail about a prairie dog’s life. My special education teacher, Ms. Milne, told my

parents, “Ron always carries an animal book in his right hand and Prairie Pup in his left.”

Special interests for children with autism usually are very unique. They might fixate on a vacuum cleaner, for example, or certain types of trains, or parts of a toy rather than the whole toy. My mom harnessed my special interest in prairie dogs and animals to teach me reading and writing skills. As a professional artist she taught me with art—drawing pictures of prairie dogs. In fifth grade, I won the Detroit Edison Poster Drawing contest for Oakland County by creating a poster with Prairie Pup and his furry friends. For the prize, Prairie Pup and I met the captain of the Detroit Pistons, and now Basketball Hall of Famer, Isaiah Thomas.

Beginning in sixth grade, Prairie Pup was officially expelled from the Rochester public school system because the special education department felt I was too old to be carrying a love worn stuffed animal in desperate need of Rogaine. Thank God my special interest was not a honey badger. Imagine trying to expel an angry agitated wild beast!

As a young child, I had difficulty managing my emotions. When I became frustrated or angry, I would scream and bang my head full force repeatedly against my bedroom wall. I also struggled with regulating my sense of fear and anxiety. At age five, I went with my family for the first time to the movie theater. During one of the movie previews, a hand began to expand. After the hand covered the whole screen, it suddenly exploded. The unexpected

sound of the explosion caused me to have a meltdown. I screamed and ran from the theater. My mom had to take me home immediately. Even forty-two years later, I can still picture that exploding terrorist glove.

Sensory issues caused me to be viewed as different by parents and children. My most embarrassing honey badger meltdown occurred when I was in third grade at a Cub Scout Halloween event. Over 200 people were in attendance. My mom decided to have me sit front and center with the other Cub Scouts for the main event: a clown complete with red nose, white makeup, red fluffy side-hair, and a lamb sock puppet.

The poor clown knew nothing about autism and thought it would be comical to take my baseball cap, place it on another kid’s head, and then place it back on my head. When the clown attempted to place the cap back on my head, I grabbed the lamb sock puppet and proceeded to repeatedly beat the clown with it. Needless to say, I never earned my Bobcat Badge. Instead, the next day, the Cub Scout leaders informed my parents, “Your son is banned from any future events. If he did that to a clown, imagine what he could do to one of our children.”

From elementary school to middle school I had difficulty developing friendships with peers due to my social awkwardness. I experienced severe bullying. Like many children with autism I lacked the ability to decode body language and interpret social cues.

Everything changed in eighth grade when I attended Heart Middle School

Kristen and Ron in the Holy Land

and discovered my new special interest—track. Bullying ceased as I became a star athlete setting three school records. Autism empowered me to be an exceptional track and cross country runner because it involved repetitive behavior—at exactly 4 pm every day, I had to run five miles, and at 4:45, I worked out with weights. I could never take a break from my routine.

In the spring of 1994, my parents and I reached a roadblock beyond our control. It was my junior year of high school and my life was on the right track. I made the honor roll two straight semesters and was a star track and field athlete. Our 3,200 meter relay team finished 12th in the State of Michigan. As we drove back from the state final, the anchor on our relay team commented “Next year we could be the fastest 3,200 meter relay but Ron will be past the age requirement!”

I heard God speak to my heart, “I will make a way for you.” I said, “God will provide a way for me to compete.”

I was past the Michigan High School Athletic Association (MHSAA) age requirement because I had repeated kindergarten. My mom contacted the MHSAA and was told I would not be allowed to compete in my senior year. My parents contacted attorneys and learned that a lawsuit would cost over $40,000.

As the cross-country season drew near the circumstances seemed hopeless. My parents told me, “There’s nothing we can do now but pray and trust God.” Psalm 25:3 says, “No one who hopes in you will ever be put to shame.”

In June 1994, I returned from a five-mile run and grabbed the Detroit Free Press. I saw on the front page an article about Craig Stanley, a fellow athlete past the age requirement. Our situations were remarkably similar. We both were born in May 1975, each of us had repeated a grade, and we were both cross-country and track runners. My mom immediately contacted his family and we joined forces in advocacy and prayer.

After I rededicated my life to following Christ, I felt a desire to be baptized to demonstrate my commitment. On Sunday June 10, 1994, I was baptized by Pastor Rob. As Pastor Rob lifted me from the water, he said, “I feel this verse is for you. Joel 2:25, ‘I will repay you for the years the locusts have eaten - the great locust and young locust, the other locusts and the locust swarm—my great army that I sent among you.’ Your blessings will begin today.”

When I got home and checked the red-flashing answering machine, I had an unexpected message from an attorney, Rick Landau, who said, “I believe your case will set precedent for the Americans with Disabilities Act (ADA) and I want to represent you pro bono.” Rick Landau won our federal case six days before my first cross-country meet and Craig and I were able to compete in our senior year of high school. Our 3,200-meter relay team set the school record twice and ran the second fastest time in the state of Michigan. I received an athletic scholarship to Michigan Christian College (now Rochester University).

Autism has given some amazing gifts, like a great memory. I can quote over 15,000 scriptures including 22 complete books of the New Testament. In college, I interned under Dr. Jack Van Impe. I have amazing attention for detail and have translated over 2/3 of the New Testament from Greek to English. I have an incredible ability to focus on my special interests, which enabled me to write a 220-page book, “A Parent’s Guide to Autism: Practical Advice. Biblical Wisdom” in less than a year while working full-time in the medical field and part-time as a professor of theology. After I founded Spectrum Inclusion, which creates autism awareness in churches and schools, I have spoken at over 70 events a year, everywhere from Israel to Madagascar. I am living my dream.

Temple Grandin, the renowned animal behaviorist and activist who was born with autism, speaks for all of us when she says, “I am different, but not less.”

RON’S BIO

Ron Sandison works full time in the medical field and is a professor of theology at Destiny School of Ministry. He is an advisory board member of the Art of Autism and the Els Center of Excellence.

Sandison has a Master of Divinity from Oral Roberts University and is the author of A Parent’s Guide to Autism: Practical Advice. Biblical Wisdom published by Charisma House and Views from the Spectrum. He has memorized over 15,000 Scriptures including

22 complete books of the New Testament. Sandison speaks at over 70 events a year including 20 plus education conferences. Ron and his wife, Kristen, reside in Rochester Hills, MI, with daughter, Makayla. His website is http/www.spectruminclusion.com. You can contact him at sandison456@hotmail.com

Link to Ron’s website: https/www.spectruminclusion.com

Link to Ron’s Facebook fan Page: https/www.facebook.com/ SpectrumRonSandison

Mom and Ron

Temple Grandin

Me and Prairie Pup

A Clear Path Toward A Brighter Future

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CALLING ALL 501C3 ORGANIZATIONS THAT SUPPORT THE SPECIAL NEEDS COMMUNITY Each month we will highlight a nonprofit for free to let the

community know more about how they support and impact families and individuals with special needs. Do you run a non-profit or know of one that supports the special needs community? Fill out your submission or scan the QR code here: www.jotform.com/ build/202466367490157

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Our multidisciplinary team at ABA Pathways is committed to helping your family find the optimal holistic treatment program for your child with autism.

Here is how you can be involved

This Magazine is

Hedgehog Health

BY JAMIE MCCABE

Parker Lynch had a vision that would revolutionize education technology and wellness care for families with children diagnosed with ASD and ADHD. This vision gave birth to Hedgehog Health, a business dedicated to providing innovative solutions and support for children on the autism spectrum.

Parker, the founder of Hedgehog Health, originally hails from Birmingham, Michigan, where he grew up and spent his formative years. However, his journey took him far and wide. After completing his undergraduate studies at Indiana University, Parker decided to embark on a career change. He found himself teaching kindergarten at an International school in Thailand, immersing himself in a new culture and gaining valuable experiences.

Driven by a deep passion for education and a desire to make a lasting impact in the lives of children with special needs, Parker pursued further education at New York University. There, he completed a Dual MA in Special Education and Childhood Education, honing his expertise in the field. With a decade of experience teaching in the special education space, Parker possessed a wealth of knowledge and insights into the unique challenges faced by children with ASD and ADHD.

What sets Hedgehog Health apart from other businesses is his groundbreaking invention, the Hoglet. The Hoglet is the world’s first fidget computer mouse, combining the benefits of a fidget gadget with the functionality of a computer mouse. This innovative device caters to sensory seekers, aiding them in focusing while working on a computer. With its wireless capabilities and seamless integration of fun and functionality, the Hoglet has garnered acclaim as a game-changer in the field of education technology.

Parker firmly believes that his products should be accessible in every school, ensuring that unique learners have the necessary tools to thrive. Hedgehog Health has developed an on-the-go version of the Hoglet, in keychain form, and is planning on creating additional devices to assist unique learners.

If you’re interested in learning more about Hedgehog Health, they can also be contacted via email at hello@hedgehoghealth.com, phone at 248-495-7244 or

Parker Lynch

through their website at www.hedgehoghealth.com. They can be followed on social media-Instagram: @hedgehoghealth and Facebook: https/www.facebook.com/hedgehogmouse.

Team Guts, Inc.

BY ANGELA ARLINGTON

Team GUTS is a 501(c)(3) non profit organization dedicated to improving the lives of the special needs population. Team GUTS provides year-round fitness classes, one-onone training, athletic and sports programs to children, teenagers and adults with special needs and disabilities. “No family is turned away. Rather, we provide scholarships to those families that are in need of financial assistance,” Paul Turner, founder of Team Guts, shares.

“While there is no shortage of programs centered on physical, speech and occupational therapy, fitness options for the special needs community are virtually nonexistent. Team GUTS was created to fill this void,” Paul explains.

The number of individuals in the United States that are overweight or obese is nothing short of alarming. According to the Centers for Disease Control and Prevention (CDC), one in 5 children and adolescents and more than 1 in 3 adults struggle with obesity. The consequences of this dreadful reality include an increase in the likelihood of certain diseases (e.g., heart disease, Type 2 diabetes, some types of cancer) and myriad other health complications.

However, some demographic groups in this country are more affected than others and there is no better illustration of this disparity than within the special needs population. Children and adults with mobility limitations and intellectual or learning disabilities are at greatest risk for obesity. With respect to children and adolescents, the CDC states that obesity rates for this group are approximately 38% higher than for children without disabilities. Additionally, 20% of children 10 through 17 years of age who have special health care needs are obese compared with 15% of children of the same ages without special health care needs (www.cdc.gov/obesity).

Evidence shows that regular physical activity provides important, and even critical, health benefits for this overlooked demographic; improved cardiovascular and muscle fitness, improved mental health, and a better ability to do tasks of daily life. Physical activity is especially important for the special needs community given the unique challenges they face in remaining fit. For example, research indicates low fitness levels and obesity in the Down syndrome community despite data that indicates physiological gains from physical activity and exercise interventions. Low fitness levels and obesity in individuals with Down syndrome are thought to be related to sedentary lifestyles, the lack of social and recreational opportunities, or low motivation to be physically active (Volume 12, Issue 1, July 2007, Down Syndrome Research and Practice).

“Team GUTS is committed to continuing its mission of providing year-round fitness options to children, teenagers and adults with special needs. We understand the importance of the services we offer. The families we serve show us every day how to triumph in the face of adversity, and they deserve an organization and community that is willing to do the same.”

SUPPORTING:

“We always looking for fitness instructors that have experience working with individuals with special needs. Additionally, we are always appreciative of volunteers to help in our fitness classes and during our summer camps. Finally, a person can support us financially by visiting our website https/www.teamgutsmichigan.com .”

TESTIMONIALS:

“Hey there Paul, Jamari and I really enjoyed the Team Guts camp this week. I am sad that it ended this afternoon. I really enjoyed the staff and interacted with the parents. Yes, you and Todd can always call or text me anytime. Blessings to you and your family.”

-JERRY MADDOX

“Seth attended three partial weeks of Camp. I feel like he really enjoyed it and seemed very tired out afterwards. I would assume that most activities were a bit of a challenge to Seth and I feel like your counselors were all so great. I would love to hear about possible upcoming classes, so I will be checking your site for a fall schedule. I am so happy Seth was able to attend. Thank you all so much.”

-CORTNEY SERDONER

“I thank you for having this program. I also appreciate the financial support that allows her be able to attend camp.”

-ACQUANETTA MOORE

“We are always grateful to the lead staff and counselors of Team Guts. It is an excellent program for special needs students who have very little opportunity to participate in sports or fitness activities in their regular public schools and related programs. WE love that our son always gets multiple opportunities to participate while using his physical skills and developing greater cooperative and social skills. It is always a big boost to his self-confidence to talk with peers and be around patient, supportive counselors. Thank you for enriching his life with such outstanding fun and compassionate teachers.”

-MARI MORTSFIELD

LOCAL EVENTS

BY CHRISTIA WOODFORD

Visit a Museum through Museums for All

Due to COVID-19, many museums participating in Museums for All have adjusted their hours and ticket purchasing policies. Before visiting a museum, please call or check their website to see if they are open or require advance registrations. Many museums are offering virtual resources—check your local museum’s website for more information.

Through Museums for All, those receiving food assistance (SNAP benefits) can gain free or reduced admission to more than 1,000 museums throughout the United States simply by presenting their EBT card and a photo ID. Check here for participating museums. https/museums4all.org/

MUSEUMS

Abrams Planetarium Out There

Fridays & Saturdays 8:00 pm.

Sundays 4:00 pm.

The Quest for Extrasolar Worlds shows how our perception of our place in the Universe has changed and how the discoveries of exoplanets we made in the last decades even surpassed the dreams of science fiction authors.

Our Place In Space

Sundays 2:30 pm.

While solving a crossword puzzle about the sky, Scarlet Macaw and her friends explore the cause of day and night, the importance of our star the Sun, the beauty of the constellations, and the variety of objects that make up the Universe.

https/www.abramsplanetarium.org/ Programs/Public.html

Sensory Friendly Show

Third Sunday of every month at 11:30 a.m. and 1:00 pm

755 Science Road, East Lansing, MI, United States

These shows will run with the lights up, the sound down, and the theater doors open so people can move about as needed. We also provide a place to “chill out” in our lobby. All shows include a live star talk about what is up in the sky that night. We will include a short break between the main show and star talk. Information about what to expect during the show will be provided when you purchase tickets.

Cost: Adults, $5.50, Students and senior citizens, $5.00, Children (age 12 and under), $4.50

Friends of Abrams Planetarium

Members, Free Free with Museums For All (with valid EBT, medicaid, or WIC card and photo ID)

Ella Sharp Museum Sensory Time

Every Saturday at 9:00 am 3225 4th Street, Jackson, Michigan 49203

During Sensory Friendly Hours, the Ella Sharp Museum will open its galleries at 9am, an hour before the museum opens to the public. Families with members who are neurodiverse, autistic, have other sensory processing disorders or cognitive disabilities are welcome to visit the museum for a quieter experience in a more controlled environment.

Designated quiet zones will allow visitors to decompress and experience the museum at their own pace. Prior to each program, families are invited to browse our “pre-visit” materials to

help them prepare for their visit including social narratives and maps of our facility. These pre-visit materials are also available to help families plan for visits that take place outside of program hours and a sensory backpack is available at the front desk for use.

To provide the most sensory-friendly environment possible, we will limit the capacity for these special times to 50 people. https/ellasharpmuseum.org/ classes-and-events/sensory-time/

SPORTS

Detroit Tigers

July 4, 5, 6, 7, 8, 9 Comerica Park 2100 Woodward Ave, Detroit, MI 48201

https/www.mlb.com/tigers

Detroit City FC

July 12, 22, Keyworth Stadium 3201 Roosevelt St, Hamtramck, MI 48212 https/www.detcityfc.com/

FAMILY FUN

Detroit Zoo

Sensory Friendly Evenings

June 28, July 24 and Aug. 30 | 3 to 7 p.m. 8450 W 10 Mile Rd, Royal Oak, MI 48067

As part of our work to create accessible and welcoming spaces for all, the Detroit Zoo will turn down the music and adjust the lights during special evenings this summer.

Starting in June, the Detroit Zoo is hosting three Sensory Friendly Evenings for guests with different sensory needs. Sensory Friendly Evenings will take place from 3 to 7 p.m. June 28, July 24 and Aug. 30. During these times, the Zoo and

Christia Woodford — Publishing Assistant and Local Events

its attractions will be open to all visitors, but special accommodations will be in place to ensure the Zoo can be enjoyed by families and individuals of all abilities.

What accommodations can I expect during Sensory Friendly Evenings ?

• Reduced music volume at gate entry

• Reduced volume and adjusted lighting inside the Polk Penguin Conservation Center’s Shackleton experience

• Limited effects and adjusted lighting in the 4D Theater

• Reduced sound on the BRICKLIVE trail

• Altered music on the Carousel

• KultureCity sensory bags equipped with noise-canceling headphones, fidget tools and verbal cue cards will be available to guests who may feel overwhelmed by the environment. Guests can check out the bags at Customer Care and the Park Safety Office.

• Weighted lap pads and strobe glasses are available upon request.

• A dedicated sensory room is available for those who may need a quieter and more secure space.

Included with Zoo admission | Free for members | No event registration required https/detroitzoo.org/events/zoo-events/ sensory-friendly-evenings/

Legoland Discovery Center Michigan

Sensory Friendly Mornings Check the website for upcoming Mornings 4240 Baldwin Rd, Auburn Hills, MI 48326

During Sensory Friendly Mornings , we’ll reduce the lighting, turn off music & disable distracting stimuli for an hour before we open to the general public. This event is perfect for our friends on the autism spectrum.

Sensory sensitive adults are welcome to visit during Sensory

Friendly Mornings without a child (age 16 or under) in the party until the attraction opens to the general public at 10am. Adults who are not accompanied by a child must exit the attraction upon opening. Groups that are accompanied by a child are welcome to stay past 10am.

Tickets are limited and must be purchased online in advance for this special event.

https/www.legolanddiscoverycenter. com/michigan/tickets-passes/

Sealife Michigan

Sensory Friendly Mornings Check the website for upcoming mornings

4316 Baldwin Road, Auburn Hills, MI 48326

During Sensory Friendly Mornings , we’ll reduce the lighting, turn off music & disable distracting stimuli for an hour before we open to the general public. This event is perfect for our friends on the autism spectrum.

The aquarium will open to the general public with normal lighting, sound, etc. at 10am, but you’re welcome to stay as long as you like and do not have to leave when the event ends at 10am.

Tickets are limited and must be purchased online in advance for this special event. Please check https/www.visitsealife.com/michigan/ what-s-inside/events/sensoryfriendly-mornings/

Detroit River International Wildlife Refuge

Buggin’ Out

Jul 23, 2023 12:00 pmJul 23, 2023 3:00 pm 5437 W Jefferson AveTrenton,48183MI

Join us for a jam packed event filled with all things BUG! We’ll have crafts, opportunities to interact with live bugs and chances to learn about what you can do at home to help bugs and other pollinators. Then join us for a guided walk around Humbug Marsh as we search for dragonflies, butterflies and other native insects.

https/www.fws.gov/event/buggin-out

Movie Night Out

July 19, Aug. 16, 2023

Emagine Theatre 200 Barclay Circle, Rochester Hills, MI 48307

Teens ages 14 and up can enjoy a movie at Emagine Rochester one Wednesday a month. Movies and show times will be emailed the week of the program. Assistance will be provided. Spots are extremely limited so preregistration is required.

Event cost: $6/evening resident, $8/ evening non-resident; plus movie ticket and concessions

http/rararecreation.org/Special-NeedsRecreation/Adaptive-Programs

RARA’s Diner’s Club

July 10 and August 7, 5:00 pm- 6:30 pm

Locations TBD; check website

One Monday a month enjoy a meal with friends at various local restaurants. This opportunity is designed to support persons with special needs. Participants pay for their own meal, beverage, and tip. PRE-REGISTER

EARLY as spots are very limited and so that we have enough assistance and space reserved in the restaurants. 14+ Years. All times are 5:00-6:30

http/rararecreation.org/Special-NeedsRecreation/Adaptive-Programs

IMPORTANT COMMUNITY CONNECTIONS

Need to know who to connect with to ask a question? This is where you find out who you need to know!

BY CHRISTIA WOODFORD

ARC OF MICHIGAN

800-292-7851

www.arcmi.org

We provide for the special needs community leadership, support and enhance local Arc efforts, support governmental advocacy at the local, state and national levels, coordinate state advocacy efforts, influence governmental agencies and policymakers in Michigan and at the national level, promote autonomy and self-determination, promote the value and potential of all people, advocate for the inclusion of and participation by individuals with disabilities in their communities, promote high-quality services, provide training for parents and professionals

AUTISM SUPPORT OF MICHIGAN

517-882-2800

www.autism-mi.org

ASM is committed to empowering individuals with autism and their families by offering educational resources, materials, and other services. ASM advocates “Making Human Connections” in a supportive, integrated community is a right of all persons.

LEARNING DISABILITIES ASSOCIATION OF MICHIGAN

616-284-1650

www.ldaofmichigan.org

LDA of Michigan is an affiliate of LDA of America and provides support to people with learning disabilities, their parents, teachers and other professionals with cutting edge information on learning disabilities, practical solutions, and a comprehensive network of resources.

MICHIGAN ALLIANCE FOR FAMILIES

800-552-4821

www.michiganallianceforfamilies.org

Michigan Alliance for Families provides information, support, and education for families who have children and young adults (birth to 26 years of age) who receive (or may be eligible to receive) special education services. This website can help you with finding information on special education issues as well as disability-specific information.

GLOBAL DOWN SYNDROME FOUNDATION

www.globaldownsyndrome.org/about-down-syndrome/ resources/local-organizations/michigan-downsyndrome-organizations/

Gives access and contact information for all 12 Down Syndrome organizations in Michigan

EASTERSEALS MICHIGAN

248-475-6400

www.easterseals.com/michigan

Easterseals has been helping individuals with disabilities and special needs, and their families, live better lives for nearly 100 years. From child development centers to physical rehabilitation and job training for people with disabilities, Easterseals offers a variety of services to help people with disabilities address life’s challenges and achieve personal goals.

AUTISM ALLIANCE OF MICHIGAN

877- 463-2266

www.autismallianceofmichigan.org

Every family should have access to services to assist with education goals, to create a safety plan to keep their child from wandering, to enjoy resources and entertainment venues in their community, and to access housing, transportation and employment for independent living. In short, we believe no family member should be limited because they have autism.

MICHIGAN DISABILITY SERVICES

www.disabilityresources.org/michigan.html

Directory of services for the disability community

EARLY ON MICHIGAN

833-633-5788

www.michigan.gov/mde/services/early-learnersand-care/special-ed-05/early-on-michigan

Early On is Michigan’s early intervention system for helping infants and toddlers, birth to three years of age who have a disability, developmental delay(s) or are at risk for delay(s) due to certain health conditions, and their families. It’s designed to help families find the social, health, and educational services that will promote the development of their infants and toddlers with special needs.

DISABILITY RIGHTS MICHIGAN

517- 487-1755 or 800)-288-5923

www.michiganlegalhelp.org/find-lawyer/disabilityrights-michigan-drm

Disability Rights Michigan (DRM) is the independent, private, nonprofit, nonpartisan protection and advocacy organization authorized by Federal and State law to advocate and protect the legal rights of people with disabilities in Michigan.

DRM services include information and referral, short-term assistance, selected individual and legal representation, systemic advocacy, monitoring, and training

MICHIGAN DEPARTMENT OF HEALTH AND HUMAN SERVICES (MDHHS)

(517)-241-3740

www.michigan.gov/mdhhs

Serves families, children, senior citizens, people with disabilities and mental illness

MICHIGAN FAMILY TO FAMILY

www.f2fmichigan.org

Information, education, training, outreach and peer support for families

HOPE NETWORK

616- 301-8000

www.hopenetwork.org

Empowers people to overcome challenges to achieve their highest level of independence. Provides advocacy and programs for the disabled community.

MICHIGAN VOCATIONAL REHABILITATION (LEO)

517-241-5324 or 800-605-6722

www.michigan.gov/leo/bureaus-agencies/mrs

Vocational counseling and training, job placement assistance, physical and mental restoration services, rehabilitation technology (e.g., adaptive devices, vehicle modifications)

NATIONAL SUICIDE PREVENTION HOTLINE

988 or 800-273-TALK (8255)

Resources and support for any kind of mental health issues

NATIONAL ALLIANCE FOR MENTAL ILLNESS (NAMI) — MICHIGAN 517-485-4049

www.namimi.org/

Support groups, classes, resources, conferences, information

211

Database of organizations to help with any type of needs by location in Indiana

FREE APPROPRIATE PUBLIC EDUCATION (FAPE) 888-320-8384

https/www.michigan.gov/mde/Services/special-education/ parent-resources/family-matters

A united union of students, parents, educators, community professionals and consumers supporting and providing Free Appropriate Public Education (FAPE). The site provides training, webinars, information, resources and referrals to students, parents, educators and community agencies on educational rights and laws.

Have a suggestion for an important connection that could be added to this page? Email your suggestion to Jamie.McCabe@n2co.com.

WHY I ADVOCATE

BY MARIA GIANCOTTI, M.ED.STUDENT ADVOCACY MICHIGAN

Iremember leaving an IEP meeting in tears and feeling completely defeated.

I felt unheard, ignored, confused and most of all frustrated. My child was struggling and suffering at school, and it seemed like I was the only one that cared. It felt completely hopeless and helpless.

Watching your child suffer as a parent is unbearable. I felt even worse when my son asked me, “Mom, why won’t they help me at school with what I need help with?” I answered, “I don’t know, but I am not going to stop fighting until they do.” That is where my advocacy started.

I never planned on becoming a Special Education Advocate; in fact, I never knew they existed until six years ago. After hiring a very expensive lawyer I could not afford, I wondered how what was supposed to be a “FREE” education could cost so much or require a law degree just because my child learned differently.

Since becoming an advocate, I have connected with hundreds of parents that have also suffered injustices at the hands of schools. Each story is more heartbreaking than the previous one. I always think I have heard it all until I get the

next phone call or email from a distraught hopeless parent. Remembering what that feels like is what keeps me going even on the worst days.

It’s my mission to give parents hope, knowledge, support, and most of all to empower them to advocate independently. Let’s face it, no one wants to hire me until their child graduates or reaches age 26. I work closely with parents through every step of the process to ensure they learn and understand what their rights are and what options are available to them through a 504 or IEP. We collaborate and prepare carefully for each meeting to ensure the parents are heard and the topics they want to address are discussed strategically in school meetings.

Advocating is a hard job and it’s emotional for me. As a parent that completely understands IEP stress with their own child, I can relate closely to the sleepless nights, stress and tears I see from each parent I talk to. It’s my goal to make the process easier and remove as much stress as possible for parents. I become their voice, but I involve them in the process, so they are seen as respected members of the IEP team. I teach them and provide many resources about the laws, their child’s condition and provide comprehensive lists of accommodations and goals for consideration. I provide the guidance and tools they need to become their child’s best advocate.

My biggest satisfaction from my job is celebrating successes with parents. It’s a great day when we get an Independent Educational Evaluation approved, IEP eligibility when it was previously denied, paraprofessional support, and make an IEP team cave because they were caught breaking the law. My most satisfying moments come when I talk to a parent after a meeting and they say, “thank you”! I feel joy when I see a parent send an email to the IEP team and they quote the law when they make a point and push back. I am thrilled when parents start asking tough questions in an IEP meeting on their own. My heart is full when I know the parents become smarter, confident and most of all empowered to advocate effectively.

None of us planned on being a parent to a child that learns differently or has special needs. There is no manual on how to do this. None of it is easy but we don’t give up because we love our children. Let me empower you and prepare you to advocate with confidence and help your child get what he or she needs at school. We can do this together! Stay tuned monthly to learn my best advocating tips!

Where Children