NOVEMBER 2023
MEET ANDREW BLIXT PHOTO PAUL DEMYANOVICH
Your Michigan Law Firm For Special Needs Planning and Advocacy MielderLaw.com • 248-799-2711
Take the first step today and advocate for your child's well-being, WE'RE HERE FOR YOU. Autism Spectrum Disorder Therapy Services We provide ABA, Speech, Occupational Therapy (OT), and Diagnostic Evaluations
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ISSUE PREVIEW • pg 10-11 Featured Individual: Meet Andrew Blixt • pg 17 Advocate Like A Mother: Behavior Issues at School • pg 6 Athlete of the Month: Meet Ava Favazza • pg 14-16 Children With Disabilities Deserve Love and a Family Too: Adoption Awareness Month • pg 13 What’s Cooking at STEP • pg 8-9 Making A Difference: Intensity Elite Dream Team- Linsey’s Cheer and Dance Center • pg 21 Sponsor Spotlight: Budding Behavior Therapy • pg 18-19 Nonprofit Spotlight: Kids On The Go • pg 24-26 Local Events
Athlete of the Month: Meet Ava Favazza
What’s Cooking at STEP
Meet Andrew Blixt
Making A Difference: Intensity Elite Dream Team- Linsey’s Advocate Like A Mother! Cheer and Dance Center
A Picture Is Worth A Thousand Words: Adoption Awareness Month
Sponsor Spotlight
Nonprofit Spotlight
PUBLISHER/ADVERTISING INQUIRIES
Jamie McCabe 248-882-8448 Jamie.McCabe@n2co.com
A Clear Path Toward A Brighter Future
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Arc Michigan arcmi.org Autism Alliance of Michigan https/autismallianceofmichigan.org/ Autism Support of Michigan https/autism-mi.org/ Behavioral Health and Developmental Disabilities Administrationwww.michigan.gov/mdhhs/ keep-mi-healthy/mentalhealth/procurement/ welcome-to-behavioral-health-and-developmentaldisabilities-administration Michigan Foundation for the Blind and Visually Impaired Michigan Developmental Disabilities Council www.michigan.gov/mdhhs/keep-mi-healthy/ mentalhealth/developmentaldisability Michigan Rehabilitation Services (MRS) Capital Area Down Syndrome Association www.cadsa.org Deaf and Hard of Hearing Services (DHHS) www.deafhhs.org/ Disability Determination Bureau Division of Aging www.michigan.gov/mdhhs/adult-child-serv/adultsand-seniors/behavioral-and-physical-health-andaging-services/aging-services Division of Family Resources (DFR) www.michigan.gov/mdhhs Easterseals MORC www.easterseals.com/MORC/
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Emergency Ealy On Michigan https/www.michigan.gov/mde/services/earlylearners-and-care/special-ed-05/early-on-michigan Michigan Department of Education: Office of Special Education https/www.michigan.gov/mde/services/ special-educationMichigan Family Forum Michigan Family to Family www.f2fmichigan.org/ Michigan Foundation for the Blind and Visually Impaired Michigan Department of Health and Human Services www.michigan.gov/mdhhs Michigan Family and Social Services Administration (FSSA) www.michigan.gov/mdhhs Michigan State Department of Health www.michigan.gov/mdhhs Michigan Statewide Independent Living Council (MSILC) www.misilc.org/ Medicaid Disability MI Choice Waiver Program National Alliance on Mental Illness Preschool & Out-of-School Time Learning www.michigan.gov/mde/about-us/mde-divisions-andoffices/preschool-and-out-of-school-time-learning Self-Advocates of Michigan (SAM) Social Security Administration (SSA) Social Security Disability Insurance (SSDI) Special Education Questions United Cerebral Palsy Association of Michigan ucp@ucpmichigan.org Vocational Rehabilitation Services (VR)
DISCLAIMER: Any articles included in this publication and/or opinions expressed therein do not necessarily reflect the views of The N2 Company d/b/a N2 Publishing but remain solely those of the author(s). The paid advertisements contained within the Special Needs Living magazine are not endorsed or recommended by The N2 Company or the publisher. Therefore, neither The N2 Company nor the publisher may be held liable or responsible for business practices of these companies. NOTE: When community events take place, photographers may be present to take photos for that event and they may be used in this publication.
This section is here to give our readers easier access when searching for a trusted neighborhood partner to use. Get to know the businesses that make this magazine possible. Please support them in return and thank them if you get the chance! ABA SERVICES ABA Pathways (805) 551-7613 www.ABAways.com
ATHLETIC TRAINING Autastic Athletics LLC. (248) 224-4151 www.autastic-athletics.com
EMPLOYMENT AND TRAINING SERVICES Services To Enhance Potential (STEP) (734) 722-1000 stepcentral.org/
Budding Behavior Therapy (248) 622-5191 www.buddingbehavior.hi5aba.com
ATTORNEY-WILLS/TRUSTS/ESTATE PLANNING Chalgian & Tripp Law Offices PLLC (248) 799-2711 www.Mielderlaw.com
FINANCIAL MIABLE (844) 656-7225 mi.savewithable.com
AUTISM DIAGNOSIS/SUPPORT Arbor Autism Center (734) 544-5561 www.arborautismcenters.com
PRODUCTS HedgeHog Health (248) 495-7244 www.hedgehoghealth.com
AUTISM EVALUATIONS & ABA THERAPY Inspire Autism (844) 427-7700 www.inspireautism.com/
RECREATIONAL/ MUSIC/ ART THERAPY Advanced Therapeutic Solutions (734) 352-3543 www.advancedtherapeauticsolutionsmi.com
ABA/ BEHAVIORAL & AUTISM SERVICES Healing Haven (248) 965-3916 www.thehealinghaven.net/ ADULT INDEPENDENCE Our Neighborhood Academy (248) 556-5332 www.ourneighborhoodacademy.com/ ADVOCACY Student Advocacy Michigan (248) 372-9770 www.studentadvocacymi.com
MEET THE SPECIAL NEEDS LIVING DETROIT TEAM
Jamie McCabe Area Director & Publisher
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WRITERS & CONTRIBUTORS
Ron Sandison Writer and Contributor
Dorene Philpot Writer and Contributor
Maria Giancotti Writer and Contributor
Angie Arlington Writer
Kendra Rogers, MS Editor-in-chief
Alice FellWriter and Contributor
Special Needs Living Detroit Metro
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ATHLETE OF THE MONTH
MEET AVA FAVAZZA, She is in the 3rd Grade! What would you like the special needs community to know about you? What have been some challenges you have experienced and how have you overcome these challenges? Ava has faced many challenges in her short
life. She was born at 26 weeks and weighed only 1lb, 4oz. She has fought hard and beat the odds at every step. That’s not to say any of it has been easy. But Ava is a fighter. She is an overcomer. Advice you have for others in the special needs community Don’t put limitations or expectations on
your kids. Allow them to show you who they are and their own unique gifts. What sports or extracurricular activities do you participate in? Tennis, dance, art Tell us more about your experience with those activities (how did you get started? What do you enjoy most? Any highlights of your experience so far?)
Tennis was really hard to learn. I just keep trying hard. Name someone you admire. What makes them special and how have they motivated you? My mom. She
snuggles with me and makes sure I’m safe. When I grow up, I want to be... OR After high school, my plans are... A mom My favorite Food is Chocolate My favorite Color is Yellow My favorite Music is EDM My favorite Movie or TV Show is Super Mario Brothers My favorite Subject in School is Art My favorite Vacation was in Florida
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Special Needs Living Detroit Metro
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MAKING A DIFFERENCE
Intensity Elite Dream Team- Linsey’s Cheer and Dance Center
I
n the heart of Shelby Township, Michigan, there stands a vibrant and welcoming place called Linsey’s Cheer and Dance Center. It is a place where dreams take flight, and the spirit of inclusion thrives. The center, nestled on Central Industrial Drive, is a vision brought to life by a remarkable woman named Linsey, who dreamt of creating a specialneeds program within her studio. Linsey’s Cheer and Dance Center houses the largest cheer gym in the state, including our renowned program, Intensity, Elite Cheer. They offer a diverse array of classes and private lessons in cheer, tumbling, and dance, catering to both recreational and competitive aspirations. What truly sets Linsey’s Center apart is its unwavering commitment to supporting the Special Needs Community. Six years ago, Linsey decided to take the leap and introduce Special Needs Cheer and Special Needs Dance, ensuring that athletes of all abilities could feel included. The center’s specialneeds teams even participate in competitions and various performances, proving that nothing is impossible when determination and empathy joined forces. Linsey’s Cheer and Dance Center is not just a place where dreams
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November 2023
BY JAMIE MCCABE
come true, but it is a safe haven, where every child with any type of disability feels valued and cherished. To make this happen, Linsey’s program is led and facilitated by a special education teacher with over 23 years of expertise in the field, Lorri Zieleniewski. Lorri is not only the recreational Dance Teacher but also the coach for CheerAbilities and Dance Abilities, working hand in hand with Coach Danielle, who brings her experience as an
early childhood developmentally delayed teacher and a seasoned dance and cheer instructor. The story behind Linsey’s special-needs program is woven together through the passions and experiences of those involved. Lorri, who grew up in Warren, brought her unique perspective as both a special education teacher and a parent to a child diagnosed with autism. This blend of personal and professional knowledge allows
the program to flourish, attracting volunteers called “buddies” from the cheer and dance program to foster friendships and assist in classes. Linsey’s Cheer and Dance Center has become a beacon of hope for the Special Needs Community. Lorri’s unwavering advice to never give up resonates throughout the community, as she believes that every child, regardless of the severity of their disability, deserves the opportunity to belong and feel special. Beyond its exceptional programs, Linsey’s Center also gives back to the community in numerous ways. Lorri, when not running the business, continues to teach various dance classes and share her knowledge and
experiences by co-authoring a book and presenting at educational associations. And so, in the heart of Shelby Township, Linsey’s Cheer and Dance Center stands tall, an emblem of inclusivity and compassion. It remains a testament to the power of dreams, driven by a passionate team and led by Lorri, whose love for specialneeds athletes and dancers is truly a blessing to all. For more information about programs and enrollments, visit https/ linseyscheeranddance.com/
Special Needs Living Detroit Metro
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FEATURED INDIVIDUAL
MEET ANDREW BLIXT BY ALICE FELL
40 years ago Andrew Blixt was delivered at 26 weeks old by emergency C-section, to save his mother Jill’s life. 40 years ago very few 26-week-old preemies survived. Andrew did. His first weeks of life were spent on an open bed since he was much too fragile for an the confines of an incubator. He was on a ventilator since his tiny underdeveloped lungs were unable to breathe. He was fed via an intranasal tube. Andrew could not be held or physically comforted. His eyes were covered since he was under lights. Jill spent 3.5 weeks in the hospital recovering from near death and was only able to see her baby son, but not touch or comfort him. Al, his dad, had to follow the same restrictions. After months in the NICU at Holden which is part of Mott’s Children’s Hospital of the University of Michigan in Ann Arbor, Andrew went home. Since therapists had worked with him on learning to suck he was able to successfully receive
Andrew and Mom May 2017
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November 2023
Against The Odds
nourishment using formula and a bottle. His homecoming came with a mix of joy and fear since breathing continued to be a concern. He safely slept in a cradle under his parent’s watchful eyes so they could make sure he remained able to breathe on his own. His doctors at the time were not concerned there would be any difficulties developmentally, even though milestones were delayed. Finally, at 2.5 years old, the pediatrician informed Jill and Al, that Andrew had Cerebral Palsy. By 1983 several changes had been implemented in this country in the way children with disabilities were being treated. Back in 1975 federal law PL 94-142 was passed assuring every child in the US an equal and appropriate public education. Before that law, many children with disabilities were housed in institutions with little access to educational opportunities. At the time I was working at Rackham School for children with disabilities, located on the campus of Eastern Michigan University. It was a lab school for the University Program training special education teachers and therapists. We were one of a few isolated schools in Michigan providing academic and therapeutic services to children with severe physical and cognitive impairments. Since the Law mentioned above mandated a timeline for getting schools like Rackham integrated into the public school system, within a few years of its inception, our program soon became part of the Washtenaw Intermediate School District and was housed in Ypsilanti Public Schools. In 1985, when Andrew was 2.5 years old, his parents just happened to hear of our program, and so began this young child’s journey through the public school special education system. Michigan was a state that chose to provide public school opportunities
Andrew and his dad at the Mt. Rainer Train
from birth through 26 years of age despite the federal law’s limits of 3 to 21. This provided Andrew the opportunity to begin services at Estabrook Elementary School, in the Early Intervention portion of the program then known as New Horizons. l was Andrew’s first speech/ language therapist, and at 2.5 Andrew was not yet speaking. I diagnosed him with childhood apraxia of speech. He also did have cerebral palsy and exhibited other symptoms that fell on the autism spectrum. Jill told me she believed Andrew would read before he spoke and we did use written language along with a host of other strategies to encourage verbal communication. Andrew was also encouraged to utilize various methods of augmentative communication. With lots of work on everybody’s part, Andrew was walking and talking by the time he was 6, and also reading. He learned at a slower rate than other kids his age but he did indeed learn. It became obvious
over the years that Andrew also had cognitive deficits when viewing cognition in the traditional sense. But Andrew was not a traditional child. Andrew was unique, and he helped us all to learn the most effective ways to teach him. He was funny, and sweet, loved routines, trains, pasta, his family, his friends and his educators, and computers. Andrew traversed his life to the beat of a different drummer and grew up to be a wonderful young man. We would now refer to Andrew as being neurodiverse. When Andrew was ready to enter HS, the IDEA laws changed again, and all centralized programs like New Horizons were mandated to be absorbed into the age-appropriate home district public school. To say the least, the schools were not ready to absorb all these wonderful and unique students and so the transition was anything but smooth. Luckily Andrew’s parents were constant advocates for him, and despite the shortcomings of the school districts to meet the needs of all these students, Andrew persevered and survived. He graduated at 26, which is in Michigan the oldest age that the schools are bound to provide services. Ready or not...... Andrew entered the world as a fullfledged adult, with a different skill set than a typical adult, but with a skill set nonetheless. Because of continued differences in cognitive abilities, social relationships, and problem-solving skills, as well as a
naiveté and kindness that allowed him to see only the good in people, Andrew was a target for predators. It became clear to his parents that living independently and navigating life on his own was not going to be possible. I was in and out of Andrew’s life during these early adult years and so I was privy to some of the Andrew, big brother David a mom at Niagara Falls struggles faced by this devoted family in trying to create the best possible life for Andrew. Roadblocks created Andrew on his barriers that sometimes seemed 30th birthday trip insurmountable, but the Blixts worked with other families to create an Intentional Community for their son and others like him. Success and challenges in this endeavor, are content for another story. Up until now, Andrew enjoyed time in his apartment when full-time aides could be found to support him. The high costs of rent and finding and paying care staff will now make this impossible for him, and Andrew will be moving home for the time being. Like any young adult, he would prefer his own apartment. law, a grandson, a Andrew continues friend and uncle and a to enjoy time and community member. travel with his folks, Like many families attending race car with grown children exhibitions with Dad, who will never be able Andrew at the Big House visiting with family, to reach full adult and many activities available to independence, the Blixts worry individuals with disabilities that about what will happen when they are available in Ann Arbor. Andrew are no longer here to care for and is a son, a brother, a brother-inadvocate for Andrew. It is a concern that needs to be addressed and funded. One of the reasons for this story is to bring that need to the fore so as a group of people, parents, teachers, therapists, individuals with disabilities, and members of our society who have money and conscience, we can put our heads together and work towards solutions. Andrew survived against the odds for a reason.....to have a full enjoyable productive life lived with dignity and purpose. It’s his right. And against the odds we must make it happen.
Andrew at one month old Special Needs Living Detroit Metro
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A Place To Grow
At Our Neighborhood Academy, we provide real world learning opportunities for young adults with special needs in a safe, caring and nurturing environment that is tailored to fit their needs.
3096 12 Mile Rd. Berkley, MI 48072 | 248-556-5332 | ourneighborhoodacademy.com @OurNeighborhoodAcademy
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November 2023
WHAT’S COOKING AT STEP
Creating Future Culinary Arts Employees BY GRETCHEN STILL
S
ervices To Enhance Potential (STEP) is a nonprofit organization which provides support and services to nearly 1,400 persons with disabilities and other mental health needs in Macomb and Wayne Counties. A major goal of Services To Enhance Potential is to increase the number of persons who are employed, self-employed, and volunteer in their communities. STEP provides and supports a variety of employment and self-employment options. We were founded in 1972 to bring an employment focus to individuals with a disability and have developed a strong reputation in the community for doing so. This month we are showcasing our What’s Cooking at STEP culinary arts program. STEP’s culinary arts program, What’s Cooking at STEP, helps prepare members for careers in the food service industry by learning food safety, customer service, and preparing delicious dishes. These classes allow members with intellectual and developmental disabilities and/or mental health needs to explore the art of cooking in a community-based setting. To provide an authentic learning environment, meals are prepared with the assistance of our skilled instructors. Our talented members prepare delicious and gourmet appetizers, soups, salads, main dishes, and desserts. Our kitchen includes adaptive cooking utensils where all abilities are welcomed. Members participate in the program to learn culinary skills and healthy eating habits. These skills often lead to employment in the culinary field or help empower members to achieve an independent lifestyle. Our culinary arts classes allow STEP members to pursue their passions of food preparation, advance in their abilities, and achieve their chosen goal. In addition to learning culinary skills, members learn about expiration dates, food waste, prioritizing pantry items, composting and how to grow your own food.
Members participate in the program to learn culinary skills and healthy eating habits.
For more information about the programs that STEP offers, please visit www.stepcentral.org.
Special Needs Living Detroit Metro
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CHILDREN WITH DISABILITIES DESERVE LOVE AND A FAMILY TOO
In Honor of National Adoption Month ADOPTION RESOURCE CONSULTANT STAFF AT ORCHARDS CHILDREN’S SERVICE
Adoption is a way to grow families and take children out of the foster care system by providing them with a permanent loving home. National Adoption Month was created to bring awareness to the impact of adoption. The plan began as National Adoption Week in 1984, as proclaimed by President Ronald Reagan. President Bill Clinton then proclaimed the first National Adoption Month in 1995. In foster care, we have a number of youth available for adoption. The most vulnerable and disadvantaged youth in the foster care and adoption system are those children with disabilities. Disabilities include physical, emotional, cognitive, and learning impairments ranging in severity. Here are a few Michigan youths to bring awareness to the youth with disabilities looking for their adoptive families. If interested in learning more about these youth or others in foster care, please contact Orchards Children Services at funderwood@orchards.org. MEET:
Heather is 15 years old. Heather is
Destiny is 15 years old. She loves
being on the go, animals and exploring for bugs anywhere they can be found. She has an amazing imagination and is quite the storyteller. Destiny has an affectionate smile and a deep laugh. Destiny is very talkative and engaging when she is familiar with you. 14
November 2023
a sassy, loving girl who loves to joke around, chit-chat, and “Chillax”. Her favorite color is green. Heather’s favorite food is McDonald’s and her favorite holiday is Christmas and her Birthday because it is all about me and I get special gifts. Heather shares that her favorite movie is The Grinch because he is so funny and makes her laugh.
Marcellous is a 15-year-old boy who loves to be active. Marcellous enjoys doing all sorts of outdoor activities, especially camping and swimming. He enjoys listening to music, dancing, and singing. Marcellous would love a family that enjoys being active and outdoors and that will encourage him to continue to grow and learn. Marcellous never stops smiling.
Dominic is 9 years old. He is such
a sweet boy who enjoys being able to be outside, gets along well with his peers, and has a wonderful, infectious giggle over funny sounds.
Christopher, who goes by Chris, is a fun-loving, energetic kiddo. Chris is 15 years old. Chris loves to sing and just recently learned “ Take Me Out To The Ball Game.” Chris can always be found with his bubbly personality and a smile on his face. He has recently taken an interest in cooking shows. Chris also enjoys exploring how things are put together and taken apart. Any chance he has he can be found outside making chalk murals, playing with rocks and singing in the sandbox. Christopher has been up for adoption for more than ten years. He needs a safe, stable and loving family who has some patience and the ability to advocate for Chris.
Isa is 11 years old. Isa is a very happy child. He enjoys watching videos on YouTube and has a particular interest in a YouTuber, Ryans World. Isa loves to play games like Uno, Monopoly, Chutes and Ladders, etc. Recently, Isa was able to play a game designed by “Ryans World”. He was very excited to learn how to play and remained engaged for 3 full games. Isa loves to interact with the people around him. The best thing about Isa is he is very easy to connect with. He is always happy to be engaged in gameplay or conversations. Isa has a very bubbly personality and would be a great addition to a loving household.
Jeremiah is 17 years old. Jeremiah
is kind and gentle. He would make an excellent companion for anyone. Jeremiah loves cats and he always assumes the “big brother” role with younger children. Jeremiah loves basketball, WWE wrestling, games shows, and the card game “Uno”.
Matthew is 17 years old. Matthew enjoys gathering small toys and collecting them in his pockets. His favorite animal is a toy frog that he carries around in his pocket. Matthew enjoys watching TV and just hanging out. Matthew enjoys scaring his staff members and thinks it’s funny when they are startled by loud noises.
Thomas AKA Tommy is 11 years old. He is an avid outdoorsman! He enjoys fishing, swimming, and playing outside. He is very curious and has a bright personality. Tommy enjoys school and meeting new friends. He is very eager to find his forever family. Special Needs Living Detroit Metro
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D’Amarr is 13 years old. D’Amarr is
sweet, loving and funny. D’Amarr lives in the moment and is always ready for a good time. D’Amarr has a fantastic imagination, and he is always orchestrating battles for his favorite superhero, The Hulk.
Kakashi is 12 years old. He is very sweet, affectionate, smart, and silly. He is mostly non-speaking and uses a communication device. He loves to be outside whether it’s jumping on the trampoline, playing with his flags, or swimming. He is very helpful and loves to do things for others. His perfect day would consist of listening to music and spending time on YouTube, spending some time outside, having McDonald’s for dinner, and ending his night with a family movie night.
Joshua is 12 years old. Joshua is a very kind and loving individual with an eagerness to get to know those around him. He loves to build with Legos and explore his surroundings. He loves being outdoors and searching for bugs. He is very energetic and loves nothing more than a good home-cooked meal.
Isaieh is 14 years old and is a go-
with-the-flow kiddo. He enjoys spending time with others, going to the library and is always willing to share his toys with others and include others in activities. Isaieh loves to play with Legos and is skilled in building different creations. He loves anything baby Yoda related and in his downtime he enjoys coloring, playing on his switch, playing with Legos and spending time with friends who he refers to as his buddies. 16
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Amanda This is Amanda! She is
17 years old. Something about Amanda is that she is very creative! Amanda loves coloring, drawing and writing in her journal. Amanda’s favorite show is Disney’s “Descendants”, and she looks up to the character Mal from the show!
Brandon is 10 years old. Brandon
is a kiddo who is always ready for the next adventure. He loves doing anything outside, especially swimming. Brandon has a lot of energy and would love a family that’s ready to match his level.
ADVOCATE LIKE A MOTHER
Behavior Issues at School BY MARIA GIANCOTTI, M.ED - STUDENT ADVOCACY MICHIGAN
B
ehavioral problems are common among children with disabilities. Parents often ask what to do when they are told to pick up their child early from school due to behavior or when their child receives repeated detentions or suspensions. The struggle is REAL! This is not an appropriate or legal way for a school to handle the behavioral problems of a child with disabilities. All students have a right to due process before suspension or expulsion. Michigan law also requires a school to consider a student’s disability before issuing a suspension or expulsion. Discipline for students with disabilities is more complicated so parents need to understand some key protections Section 504 and IDEA provide their children in these situations. Here are a few key terms parents need to know. BIP (Behavior Intervention Plan): Any child struggling with behavior at school that impedes their learning, or the learning of others can get a BIP. A BIP consists of PBIS (positive behavior interventions and supports) which helps a child learn to use more desired behaviors while minimizing undesired behaviors. To understand the function of the undesired behaviors before developing a BIP, an FBA is usually administered. FBA (Functional Behavior Assessment): This is a method of collecting data to determine why a student has an undesired behavior, what reinforcement the child gets from the behavior and what positive reinforcements or interventions could help minimize the undesired behavior and help the student use more desired behaviors instead. It is
best if an FBA is performed by a BCBA (Board Certified Behavior Analyst) as they are most qualified. The school can administer a BIP, but parents should request a BCBA be involved. MDR (Manifestation Determination Review): This process determines the relationship between the child’s disability and the behavior resulting in suspension. An MDR meeting is required when a student with a disability is removed from school for at least 10 days. This can be a 10-day suspension, or when multiple suspensions within one school year reach the 10-day mark. In a meeting, all relevant information from school staff and parents is reviewed to determine if the behavior was directly related to the disability and if the school did not properly execute the IEP which resulted in the behavior. If the behavior is determined to be due to the disability or improper implementation of the IEP, the student cannot be suspended or expelled. It is also important to note that if a child with a disability is expelled, the school still has a legal responsibility to educate the child. They can place the child in another school or an online school, but they must still provide education and special education services and support in the IEP. Parents in this situation should be prepared to negotiate what that alternative education plan should look like and what support will be provided in the IEP for that new setting. COMMON QUESTIONS: Here are the most common questions I get regarding discipline:
• Can the school make me pick up my child early for behavioral issues? For suspensions, yes. If the school is not suspending your child, they cannot informally just ask you to pick your child up and bring them home. Remember that the MDR provisions become active at 10 days so these removals from school should be counted towards the 10 days. This will ensure protections are triggered when your child has been removed from school for 10 days. These informal removals can be considered a denial of FAPE (Free and Appropriate Public Education) which violates the law. • My child doesn’t have an IEP or 504 but keeps getting suspended. What can I do? If you suspect your child may have a disability and a pattern of behavioral struggles, you can request an IEP evaluation in writing along with an FBA. When an evaluation is performed, the school is legally required to evaluate a child in ALL areas of suspected disabilities. If a child is determined to have a disability through the evaluation, an IEP, 504 or BIP can be put in place and the discipline protections under special education are triggered. There is so much more to behavioral challenges and discipline for children with disabilities. There are several laws that provide additional protections that go beyond this article, but by knowing these key terms, you can better advocate. If your child is struggling with behavioral problems and discipline issues at school, contact us! We can help you navigate the process and get the right support in place. Special Needs Living Detroit Metro
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NONPROFIT SP OTLIGHT
Kids On The Go Founded in 1999, Kids On The Go is celebrating 25 years of providing free therapy for children with special needs. Kids On The Go started as a summer program to bridge the learning gap between the school year and summer. Today, Kids On The Go provides more than 50 programs in southeastern Michigan throughout the year and 4 programs in Traverse City during the summer. Kids On The Go is a pediatric non-profit program designed to provide children with special needs (3-17 years old) with physical, occupational, speech and recreational therapies both over the summer months and during the school year. The mission of Kids On The Go is to recognize and facilitate the goals of children with special needs and to further develop their current skills through therapeutic and wellness programs for the children and their families. “Our vision is to provide a safe environment that will foster opportunities for growth, inclusion and provides valuable resources for our community,” Kristy Schena explains. “We provide free therapy programs for children with special needs (ages 3-17). Our programs include direct therapy courses which include a multidisciplinary camp, summer sounds, literacy, handwriting, picky eater; STEAM classes include Robotics, Art therapy, music therapy, gardening, theater; health and wellness classes which include: flag football, cheerleading, golf, tennis, boxing, baseball, fitness; parent/caregiver and sibling workshops; and a Teens
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November 2023
BY ANGELA ARLINGTON
to Work program which provides early job skill lessons for teens with special needs. Traverse City offers a multidisciplinary camp, hiking, yoga, and a picky eater course as well.” Kids On The Go offers families a financial break from the costs of private therapy. “Often insurance companies do not provide the benefits a child needs to continue his/her therapies. Private therapy can range from $75-115 for only 15 minutes of therapy. Kids On The Go keeps these children “going” so they maintain their skills instead of falling behind. In addition, Kids On The Go offers a child with special needs an opportunity to participate in programs often that their typically developing peers only have access to. Kids On The Go offers a safe place for a child to learn and make new friendships. Kids On The Go is a place where parents can be relieved of the financial burdens that often accompany a diagnosis and gain resources from our Kids On The Go Family.” Kristy adds, “Kids On The Go is always looking for volunteers for programs and for special events (annual gardening day, gardening club, Annual Golf Outing, Fall fundraisers. We also look for businesses that are able to offer our teens an opportunity to tour or learn more about job opportunities.”
Kids on the Go such a wonderful place for kids with special needs. I have been going to the camps for about seven years and have learned so much from all the great teachers and leaders. I have learned to: • Hold a pencil properly. • Create artistic pictures. • Understand stories and what they mean. • Ride a bike. • Tie my shoes. • Act in a play. • Play tennis. • Cook some yummy things. • Garden. • Make a movie video. • Have better conversations and good social skills.. • Cheer • Dance • About broadcasting news. • Feel the rhythm of bucket drumming.
TESTIMONIALS: From a camper who is now 13 and started at KOTG when she was only 4
From a parent:
“I have been meaning to write this note for a long time. I want to thank you for everything you do to make
My experience has been great and I want you to know how much I appreciated being able to participate in all those camps. I hope you will share this with all the people who help to make these camps possible.”
“It with the utmost appreciation and gratitude that I draft this letter thanking you for your contribution to the 2022 Kids on the Go (KOTG) Summer Camp program. My son has
attended this program since 2017, and it is something that we look forward to participating in annually. The staff at this organization consistently and genuinely model empathy to all, so rest assured your funds have truly been allocated to an amazing organization! As the parent of a child with autism, this program is a lifesaver in more ways than one. Aside from the superb service AND great course offerings, the entire program is FREE! With the inflation of groceries, the never-ending therapy copays, supplement purchases, and special dietary requirements my funds are exhausted. The mere fact that no additional costs are required for my son to attend KOTG is pure relief,as I am not forced to make another tough decision between my son’s needs and other fiscal responsibilities. For this reason alone, I am eternally
Please take pride in knowing your contribution had a tremendous impact on my son, which in turn benefits my family, my neighbors, friends and OUR COMMUNITY. I strongly encourage you to continue funding/ donating to this amazing organization, as they have developed a phenomenal program. Please do not hesitate to contact me for further questioning.”
grateful for your donation which covered his cost to attend the camp. I am happy to share KOTG has positively impacted my son’s quality of life. He has demonstrated improvements in the following areas that will help him function in society: • Increased verbal commands • Increased ability to follow two step instructions • Improvement with handwritings (sizing and shape) • Increased desire to tolerate other children In closing, I would like to say THANK YOU again. Words cannot express how truly grateful and blessed my family is for this opportunity. Please never forget, the best way to determine the effectiveness of community programming is to measure its impact in that community. I’m here to proclaim, KOTG is making a POSITIVE difference for the young people who are often overlooked and ignored.
IEP/504 Support & Advocacy
Is your child struggling at school? Did you ask for help but it didn't happen? Did you get support but it's not working? Are you ready to get the help you need?
Let's work together and give your child the best opportunity to succeed at school! • GUIDANCE & COACHING FOR PARENTS THAT WISH TO ADVOCATE ON THEIR OWN
• REPRESENTATION BY LETTER, PHONE, VIDEO CONFERENCE OR IN PERSON WITH SCHOOL
• ASSISTANCE WITH FINDING LOCAL SERVICE PROVIDERS SPECIFIC TO YOUR CHILD'S SITUATION
• PUBLIC SPEAKING AND EDUCATIONAL PRESENTATIONS ON SPECIAL EDUCATION RELATED TOPICS
(248) 372-9770
studentadvocacymi.com @StudentAdvocacyMI Special Needs Living Detroit Metro
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THIS MAGAZINE IS – FOR YOU – BY YOU –
TO SUPPORT AND CONNECT YOU – HERE IS HOW YOU CAN BE INVOLVED –
LET’S GET SOCIAL
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HAVE A STORY TO SHARE
Would you like to share a story in an upcoming issue of Special Needs Living? We want to hear from you. To share a story or to nominate someone else to be in an upcoming issue of Special Needs Living, e-mail your story ideas or nominations to Jamie.McCabe@n2co.com To view ways to share your story in a future issue & to view the digital version of Special Needs Living Detroit/Metro: Click the link or scan the QR code: https/linktr.ee/snlmichigan Scan to view past issues of Special Needs Living
ACCOMPLISHMENTS/ ACHIEVEMENTS/MILESTONES Looking to Celebrate all Special Needs Individuals
Some accomplishments and milestones take years... We want to recognize you/them! Are you or your child celebrating a birthday, milestone, achievement, or accomplishment? We want to recognize you – email us at SpecialNeedsLivingDetroit@ n2pub.com CALLING ALL 501C3 ORGANIZATIONS THAT SUPPORT THE SPECIAL NEEDS COMMUNITY
Scan here to view the past issues of Special Needs Living!
To view ways to share your story in a future issue & to view the digital version of Special Needs Living Detroit/Metro: https://linktr.ee/ snlmichigan
Each month we will highlight a nonprofit for free to let the community know more about how they support and impact families and individuals with special needs. Do you run a non-profit or know of one that supports the special needs community? Fill out your submission or scan the QR code here: www.jotform.com/ build/202466367490157
Calling all 501c3 organizations that
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November 2023
TO GET THE FREE COPY OF SPECIAL NEEDS LIVING DETROIT METRO CLICK OR SCAN:
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To get the free copy of Special Needs Living Detroit Metro click or scan: https://form.jotform. com/222635365026049
FOR ADVERTISING:
Do you run a business that supports the special needs community and is looking to connect, impact or advertise in Special Needs Living magazine? Scan the QR code to set up a time to connect or Email Jamie.McCabe@n2pub.com.
SP ONSOR SP OTLIGHT
BUDDING BEHAVIOR THERAPY BY KENDRA ROGERS- EDITOR-IN-CHIEF
At Budding Behavior Therapy, we provide clinic-based ABA services for children with autism. We are working to add OT and speech therapy services as well in our effort to serve families in and around Pontiac, MI where low socioeconomic families struggle to find appropriate services. Mariah and her husband decided they wanted to open the facility in 2020 after their first two children had been diagnosed with autism. Mariah had a lot of experience as she worked in ABA therapy during her undergraduate years at Oakland University. She decided to change majors to study Psychology and earn her master’s degree to become a Board Certified Behavior Analyst (BCBA). During this program, Mariah and her husband welcomed those first two children who were diagnosed with autism shortly after she earned her BCBA. Sadly, Mariah’s husband was killed by a drunk driver in 2021 before they could realize their dreams of serving the community
around them. However, after working through some of her grief, Mariah realized their dream and opened the clinic after welcoming their third child who was also diagnosed with autism. Raising now three children with autism after losing her husband, Mariah still opened Budding Behavior Therapy center at the edge of Pontiac with the aim to serve the underserved community and families around her. Currently, the center serves 13 children and grows daily. As a facility owned by a mother raising children with autism, the focus is on ensuring careful care for the families who need it most. Budding Behavior Therapy currently only has ABA services, but Mariah’s dream to offer additional needed services including speech therapy and OT along with other services the community around her identifies is quickly being realized. Mariah recognizes that even if families aren’t receiving care from her facility, they still need an experienced and
kind ear for advice. She says, “Any family can speak to me whether they are getting services or not. They can ask for advice about getting diagnoses, navigating insurance, and how to deal with schools and IEPs.” Mariah also says, “Budding Behavior Therapy is young, and we are focused on building the clinic.” When she isn’t working hard with families who need services, she gets to spend time with her own kids. They love to take walks, ride bikes, and watch TikTok like any normal kid! Reach out to Mariah at mharrison@ buddingbehavior.com or 248-622-5191 for services, support, and advice.
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Local Events
Christia Woodford — Publishing Assistant and Local Events
BY CHRISTIA WOODFORD
Visit a Museum through Museums for All Due to COVID-19, many museums participating in Museums for All have adjusted their hours and ticket purchasing policies. Before visiting a museum, please call or check their website to see if they are open or require advance registrations. Many museums are offering virtual resources—check your local museum’s website for more information. Through Museums for All, those receiving food assistance (SNAP benefits) can gain free or reduced admission to more than 1,000 museums throughout the United States simply by presenting their EBT card and a photo ID. Check here for participating museums. https/museums4all.org/ MUSEUMS Abrams Planetarium One World, One Sky Big Bird’s Adventures Nov. 3-26, Sundays 2:30 pm You don’t need a spaceship to learn about the sun, moon, and stars-just a little imagination! When Big Bird, Elmo, and their friend from China, Hu Hu Zhu, take an imaginary trip to the moon, they learn amazing things along the way. https/www.abramsplanetarium. org/Programs/Public.html Big Astronomy- People, Places and Discoveries Nov. 3-26 Fridays and Saturdays at 8:00 pm and Sundays at 4:00 pm It takes many people with diverse backgrounds, talents, and skills to run a world-class observatory. Meet a few of these people as they share the wonder of the sky--and the excitement of discovery. Explore the world-class observatories nestled in northern Chile’s mountains and learn why Chile, is an ideal environment for studying the cosmos. https/www.abramsplanetarium. org/Programs/Public.html Sensory Friendly Show Third Sunday of every month at 11:30 a.m. and 1:00 pm 24
November 2023
755 Science Road, East Lansing, MI, United States These shows will run with the lights up, the sound down, and the theater doors open so people can move about as needed. We also provide a place to “chill out” in our lobby. All shows include a live star talk about what is up in the sky that night. We will include a short break between the main show and star talk. Information about what to expect during the show will be provided when you purchase tickets. Cost: Adults, $5.50, Students and senior citizens, $5.00, Children (age 12 and under), $4.50 Friends of Abrams Planetarium Members, Free Free with Museums For All (with valid EBT, Medicaid, or WIC card and photo ID) https/www.abramsplanetarium. org/Programs/Sensory.html Ella Sharp Museum Sensory Time Every Saturday at 9:00 am 3225 4th Street, Jackson, Michigan 49203 During Sensory Friendly Hours, the Ella Sharp Museum will open its galleries at 9 a.m., an hour before the museum opens to the public. Families with members who are neurodiverse, autistic, or have other sensory processing disorders or cognitive disabilities are welcome to visit the museum for a quieter experience in a more controlled environment. Designated quiet zones will allow visitors to decompress and experience the museum at their own pace. Before each program, families are invited to browse our “pre-visit” materials to help them prepare for their visit including social narratives and maps of our facility. These pre-visit materials are also available to help families plan for visits that take place outside of program hours and a sensory backpack is available at the front desk for use. To provide the most sensory-friendly environment possible, we will limit the capacity for these special times to 50
people. https/ellasharpmuseum.org/ classes-and-events/sensory-time/ SPORTS Detroit Red Wings Nov. 2, 4, 9, 11, 17, 22, 26, 30 Little Caesars Arena, 2645 Woodward Ave, Detroit, MI 48201 https/www.nhl.com/redwings Detroit Lions Nov. 19, Bears, Nov. 23, Packers Ford Field, 2000 Brush ST, Detroit, MI 48226 https/www.detroitlions.com/ Detroit Pistons Nov. 1, 5, 6, 10, 14, 20, 27,29 Little Caesars Arena, 2645 Woodward Ave, Detroit, MI 48201 https/www.nba.com/team/1610612765 FAMILY FUN Detroit Zoo National Bison Awareness Day Nov. 4, 11:00 am- 3:00 pm Join us to learn more about North America’s largest land mammal! You’ll meet the resident bison, Teetonka and Takoda, and explore how bison live — both at the Zoo and in the wild. Wild Lights Nov. 24- Jan. 7, 2024 5:00 pm- 10:30 pm The Detroit Zoo will be aglow for 40 magical nights with more than five million LED lights illuminating trees, buildings and over 280 sculptures throughout the front half of the Zoo. Experience the magic of the Detroit Zoo in winter as you take in the lights, sights and sounds of the season for guests of all ages. Walking https/wildlights.detroitzoo.org/ Sensory Friendly Evenings November 3 to 7 p.m. Check the website for the day! As part of our work to create accessible and welcoming spaces for all, the Detroit Zoo will turn down the music and adjust the lights during special evenings this summer.
Starting in June, the Detroit Zoo is hosting three Sensory Friendly Evenings for guests with different sensory needs. Sensory Friendly Evenings will take place from 3 to 7 p.m. on Aug. 30. During these times, the Zoo and its attractions will be open to all visitors, but special accommodations will be in place to ensure the Zoo can be enjoyed by families and individuals of all abilities. What accommodations can I expect during Sensory Friendly Evenings? Reduced music volume at gate entry Reduced volume and adjusted lighting inside the Polk Penguin Conservation Center’s Shackleton experience Limited effects and adjusted lighting in the 4D Theater Reduced sound on the BRICKLIVE trail Altered music on the Carousel KultureCity sensory bags equipped with noise-canceling headphones, fidget tools and verbal cue cards will be available to guests who may feel overwhelmed by the environment. Guests can check out the bags at Customer Care and the Park Safety Office. Weighted lap pads and strobe glasses are available upon request. A dedicated sensory room is available for those who may need a quieter and more secure space. Included with Zoo admission | Free for members | No event registration required https/detroitzoo.org/events/zooevents/sensory-friendly-evenings/ RaRa’s Diner’s Club Nov. 6 and Dec. 4, 5:00 pm- 6:30 pm Locations change each month On one Monday a month, persons with special needs will be able to enjoy a meal with friends at various local restaurants. Nov. 6 is Ram’s Horn and Dec. 4 is Olive Garden. Participants will pay for their own meals, beverages and tips at the restaurant. Spots are very limited, so make sure to preregister early. For ages 14 and up. http/rararecreation.org/Special-NeedsRecreation/Adaptive-Programs RINGLING BROS. AND BARNUM & BAILEY CIRCUS Nov. 17- 19 All Day Tickets $30.00-$80.00 Little Caesars Arena, 66 Sibley St, Detroit, MI.
Get ready for The Greatest Show On Earth! Come fun, come all! Bringing to life an arena spectacle at unbelievable scale, The Greatest Show On Earth will debut stunning feats of real human achievement, musical performances blended with aerial artistry, modern comedy, and never-before-seen acts on highwire, trapeze, bicycles, and more. The reimagined American icon will captivate families through a multiplatform, 360-degree experience that brings fans into the action, creating real connections between audiences and performers from all over the world https/www.ticketmaster.com/ringlingbros-and-barnum-baileypresents-tickets/artist/ 2962779?venueId= 66238&brand=ringlingbros OPEN BARN AND PICTURES WITH SANTA Nov. 18, 10:00 am- 1:00 pm Pan Equus Animal Sanctuary-Peas, 940 Hummer Lake Rd, Oxford, MI Experience the joy of connecting with your favorite animals every month this summer and make unforgettable memories at our Fall Festival in October and Pictures with Santa on the farm in November. Best of all, it’s completely free for everyone! So, mark your calendars and get ready for a delightful day on the farm this summer! As you wander through our sanctuary, you’ll have the chance to visit our beloved animals, from our majestic horses to our mischievous goats and friendly donkeys. The bond between humans and animals is a truly magical thing, and we can’t wait to share that magic with you! Cost: Donations https/peasbarn.org/ SANTA’S REINDEER FARM Nov. 18- Dec. 17, 12:00 pm- 4:00 pm Grandpa Tiny’s Farm, 7775 Weiss Street, Frankenmuth, MI Experience Santa’s Farm during the hustle and bustle of getting ready for the Christmas season! **Lots of Photography Opportunities!** The farm is on full-on holiday mode for this stroll-through event where you will get to see how Santa has transformed the farm into his headquarters preparing for the big day.
Meet Santa himself along with the reindeer in training. Bring a letter for Santa if you haven’t already mailed it! Watch and chat with the jolly workers helping to keep Santa’s Farm running smoothly. Included is making an ornament with the Woodworker to take home with you! Tickets for this event will be available online only and not at the gate. Everyone in attendance needs a ticket for this event other than children aged 5 years old and under because they are free with a ticket holding adult. Get tickets here https/www.grandpatinys. com/santas-reindeer-farm Cost: $17 for ages 5 and up. Under 5 are FREE SENSORY STORY TIME Nov.21, 10:00 am- 11:00 am Huron Valley Humane Society, 3100 Cherry Hills Road, Ann Arbor, MI Do you have a young child who loves animals? Then, bring your little ones to HSHV to have a paws-itively fun time! Sensory Story Time at HSHV is just like our traditional story time but is specifically intended as a welcoming space for neurodiverse children. Join us one Tuesday every month for interactive stories, sensory play, a tour of the shelter and lots of fun! Sensory Story Time is generally designed for children ages 2-5, but all children are welcome. Pre-registration is required in order to maintain small group sizes. Registration: There is a $5 fee per child for the program. Up to two adults per child may attend free of charge. We will also not charge for siblings under the age of one attending with a registered child. Pre-registration is required and space is limited to 8 children and two caregivers per child. Register here https/www. tickettailor.com/events/hshv/561606?# Cost: $5 STORYTIME FOR FAMILIES WITH SPECIAL NEEDS Nov.25, 10:30 am- 11:30 am Plymouth District Library, 223 S Main St., Plymouth, MI Join us for a very special storytime designed especially for families with special needs! Ms. Jessica has planned a storytime including a core language board, stories, and songs with different Special Needs Living Detroit Metro
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sensory needs in mind. Registration is required to ensure the group size won’t be overwhelming for the attendants. Storytime for Families with Special Needs is for children with all types of developmental disabilities who are at the preschool level of development, regardless of their chronological age. The program will be followed by a period of open play with toys provided by the library. Register here https/plymouth. librarycalendar.com/event/storytimefamilies-special-needs-3 Cost: FREE Legoland Discovery Center Michigan Sensory Friendly Mornings Check the website for upcoming Mornings 4240 Baldwin Rd, Auburn Hills, MI 48326 During Sensory Friendly Mornings, we’ll reduce the lighting, turn off music & disable distracting stimuli for an hour before we open to the general public. This event is perfect for our friends on the autism spectrum. Sensory sensitive adults are welcome to visit during Sensory Friendly Mornings without a child (age 16 or under) in the party until the attraction opens to the general public at 10am. Adults who are not accompanied by a child must exit the attraction upon opening. Groups that are accompanied by a child are welcome to stay past 10am.
Tickets are limited and must be purchased online in advance for this special event. https/www.legolanddiscoverycenter. com/michigan/tickets-passes/ Sealife Michigan Sensory Friendly Mornings Check the website for upcoming mornings 4316 Baldwin Road, Auburn Hills, MI 48326 During Sensory Friendly Mornings, we’ll reduce the lighting, turn off music & disable distracting stimuli for an hour before we open to the general public. This event is perfect for our friends on the autism spectrum. The aquarium will open to the general public with normal lighting, sound, etc. at 10am, but you’re welcome to stay as long as you like and do not have to leave when the event ends at 10am. Tickets are limited and must be purchased online in advance for this special event. Please check https/www. visitsealife.com/michigan/what-s-inside/ events/sensory-friendly-mornings/ Detroit River International Wildlife Refuge Nov.1- 30 Various Activities scheduled throughout the month 5437 W Jefferson AveTrenton, MI 48183 https/www.fws.gov/refuge/ detroit-river/events?event_date_and_
Where Children
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time=%7B%22from%22:%22202306-15T16:00:00.000Z%22,%2 2to%22:null%7D&$skip=10 MJR Digital Cinema Sensory-Friendly Film Check the website for movie times 100 East Maple Road, Troy, MI, 48083, United States https/www.mjrtheatres.com/sensoryfriendly-films?fbclid=IwAR1JnETT4LqVME0tv0TkWPiYH5lckEcSi4ou3EcdA4eyfbqJYLgmReJ00 EVENTS Living With Autism Virtual Workshop 2023 Nov. 6-8, 9:00 am- 3:15 pm Enjoy a three-day virtual autism conference by Metro Parent and Henry Ford Health featuring Kerry Magro, Henry Ford Health experts, Carrie Cariello and more. Event cost: $25 https/www.eventbrite.com/e/living-withautism-virtual-workshop-2023-tickets699194297967?aff=MPwebcalendars
Is there a local event for the special needs community you would like us to promote in an upcoming issue? Email us at SpecialNeedsIndy@n2pub.com.
Recreational Therapy • Music Therapy • Art Therapy • Recreationally Based ABA Therapy
We provide every individual with the opportunity to receive qualified, personalized treatment with the opportunity to learn & reinforce life skills.
CHECK US OUT ON SOCIAL MEDIA FOR INFORMATION, EVENTS, AND LOTS OF FUN
@AdvancedTherapeuticSolutionsMI @advancedtherapeuticsolutions @ats_mi
734.352.3543
advancedtherapeuticsolutionsmi.com
Twist and Learn: RESOURCE FAIR AND DANCE • DECEMBER 9 While you're learning about resources in the area let your children have fun on the dance floor We will be shaking it from 1-3 pm at The Hawk in Farmington Hills.
Come on over and have a good time! Drinks will be provided
Special Needs Living Detroit Metro
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9151 Currency St. Irving, TX 75063
A Social Publication for the Residents of Detroit Metro
MULTI-DISCIPLINARY AUTISM CARE
734-544-5561 arborautismcenters.com 850 S. Hewitt Rd. | Ypsilanti, MI 48197
CONNECT WITH US
Our speech, occupational, and behavioral therapists rely on scientifically proven autism treatment to develop individualized interventions that support social communication, language, cognition, and motor development to maximize participation in learning and natural environments.
Autism Evaluations with Developmental Behavioral Pediatrics ARBOR Early Intervention Program with Caregiver Training Social Skills Groups | Aquatic Therapy | Feeding Therapy
