Special Needs Living Indy Nov 2023 Digital Issue

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NONPROFIT SP OTLIGHT

Epilepsy Foundation of Indiana BY ANGIE ARLINGTON

T

he mission of the Epilepsy Foundation of Indiana is to lead the fight to overcome the challenges of living with epilepsy and to accelerate therapies to stop seizures, find cures, and save lives. Specifically, the Foundation seeks to: 1. Connect people to treatment, support and resources 2. Fund innovative research and the training of specialists

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3. Educate the public about epilepsy and seizure first aid “The Indiana chapter supports and mobilizes the epilepsy community through educational activities, direct services, advocacy, and research,” JoJo Gentry, Indiana’s Advisory Board Chair, explains. “It also seeks to educate the general public to better understand epilepsy and seizure disorders, including knowing proper seizure first

aid. From groundbreaking research into SUDEP (sudden unexpected death in epilepsy) support, local educational programs, and a 24/7 Helpline, the Epilepsy Foundation of Indiana is here to help.” More than 68,000 People in Indiana are Living with Epilepsy. THE SUDEP PROGRAM:

SUDEP is said to occur when a person with epilepsy dies unexpectedly and was previously in their usual state


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