living
Special Needs
October 2021
Indianapolis & Surrounding Areas
TO GET THE DIGITAL COPY OF SNL THROUGH TEXT MESSAGE TEXT THE LETTERS SNL TO THE NUMBER 55433 INSIDE: • Meet the Peck Family • Non-Profit Spotlight: Anna’s Celebration of Life Foundation • Meet the Lawless Family • Living with a Stutter • Young Achievers - Meet Adriana Smith • Sponsor Spotlight: Fortune Academy • The ABS’s of IEP’s - RTI (Response to Intervention) • Pioneer Parents: Colleen Renie • Housing Options for Adults with Disabilities: Then and Now • Pastor’s Corner - Spiritual Wellness • How to have a Ghoulish Gluten-Free Halloween • Meet Colin Etchison & his Family • Local Events and More
UPCOMING EVENT: FALL SOCIAL AT GIGI’S PLAYHOUSE SATURDAY, OCTOBER 23RD
ON THE COVER: The Peck Family –
Mitchell, Megan, Nolan, Rowan, Aidan Photos by: Heather Gregg – 21 Vines Photography
CONNECTING - INSPIRING - EDUCATING - FAMILIES WITH SPECIAL NEEDS
Meet our Therapists
2 Special Needs Living • October 2021
More than a Trampoline Park Adrenaline is the perfect place for an adventure! Have a blast jumping on trampolines (of course), channeling your inner ninja warrior, making it to the top of the climbing wall, or challenging your friends in jousting. We are the largest indoor adventure park in Indiana, with 50,000 square feet of attractions, including our ALL NEW ropes course, warped wall, stunt fall, all sports course, harnessed climbing wall
and MORE!! Sensory Friendly Play every Monday from 11:00 a.m. - 4:00 p.m. Call or email to reserve your spot!
10080 E 121st St Suite 182 Fishers, Indiana 46037 317-572-2999 adrenalinefishers1.com events@adrenalinefishers.com October 2021 • Special Needs Living
3
You deserve an agent that is supportive, understanding, and compassionate. Nicole Lyon is here to guide your family with your real estate needs, every step of the way.
I am proud to serve the special needs community. My career is Real Estate my PASSION is helping others with their goals and dreams. I am humbled and honored to work in the real estate industry.
Are challenges in moving holding you back from finding your next home? • Availability to work with your schedule • Daily research of the market including new construction • Setting up showing apts based on your schedule • Give you the time you need during each showing • When you find the right home I am here every step of the way and even after your close
Call today so we can talk more about ways I can help your special needs family find your next home!
NICOLE LYON
NICOLE.LYON@TALKTOTUCKER.COM WWW.TALKTOTUCKER.COM/NICOLE.LYON 10 NORTH FIRST ST., ZIONSVILLE, IN 46077
Call me today at 317.501.0639 4 Special Needs Living • October 2021
I M P O RTA N T
N UMBE R S 317-977-2375
Arc of Indiana www.arcind.org
317-257-8683
ASK: About Special Kids, Inc. www.aboutspecialkids.org
317-676-4222
Autism Community Connection www.autismcc-in.org
800-609-8448
Autism Society of Indiana www.autismsocietyofindiana.org
877-241-8144
Blind and Visually Impaired Services (BVIS)
800-545-7763
Bureau of Developmental Disabilities Services (BDDS)
800-545-7763
Bureau of Rehabilitation Services (BRS) Deaf and Hard of Hearing Services (DHHS) DHHSHelp@fssa/in.gov
www.n2pub.com Turning Neighborhoods Into Communities © 2021 Neighborhood Networks Publishing, Inc.
AREA DIRECTOR PUBLISHER
Jamie McCabe jamie.mccabe@n2pub.com
317-233-4454
Indiana Family and Social Services Administration (FSSA) - www.in.gov/fssa/index.htm
317-232-7770
Indiana Governor’s Council for People with Disabilities (GPCPD)
812-855-6508
Indiana Resource Center for Autism https://www.iidc.indiana.edu/irca
317-233-1325
Indiana State Department of Health
844-446-7452
Indiana Statewide Independent Living Council (INSILC)
855-641-8382
Indiana Works
800-332-4433
INSOURCE http://insource.org/
800-622-4968
Disability Determination Bureau
888-673-0002
Division of Aging (IDA)
800-457-4584
Medicaid Disability
800-403-0864
Division of Family Resources (DFR)
317-232-7770
Medicaid Waivers
317-232-7800
Division of Mental Health and Addiction
800-772-1213
Social Security Administration (SSA)
317-925-7617
Down Syndrome Indiana
877-511-1144
Early Childhood and Out of School Learning (OECOSL)
317-466-1000
Easterseals Crossroads https://eastersealscrossroads.org
911
Family Voices Indiana www.fvindiana.org
800-545-7763
First Steps
317-232-0570
Social Security Disability Insurance (SSDI)
877-851-4106
Special Education Questions
317-871-4032
United Cerebral Palsy Association of Greater Indiana
800-545-7763
Vocational Rehabilitation Services (VR)
Emergency
844-323-4636
574-234-7101
1-800-772-1213
INSOURCE www.insource.org Indiana Department of Education: Office of Special Education www.doe.in.gov/specialed
SCAN TO VIEW THE PAST ISSUES OF SPECIAL NEEDS LIVING
SCAN TO GET THE DIGITAL COPY OF SNL THROUGH TEXT MESSAGE
DISCLAIMER: Any articles included in this publication and/or opinions expressed therein do not necessarily reflect the views of The N2 Company d/b/a N2 Publishing but remain solely those of the author(s). The paid advertisements contained within the Special Needs Living magazine are not endorsed or recommended by The N2 Company or the publisher. Therefore, neither The N2 Company nor the publisher may be held liable or responsible for business practices of these companies. NOTE: When community events take place, photographers may be present to take photos for that event and they may be used in this publication.
October 2021 • Special Needs Living
5
Sponsor I N D E X Neighborhood
Thank you to all the below businesses who have chosen to support Special Needs Living magazine each month!! They would be delighted to help you with your next project or need. If you know of a business that helps those with special needs and would be a good resource for families please let us know. Jamie.McCabe@n2pub.com. If you run a business and would like to be involved or support this magazine you can set up a time to talk here https://calendly.com/jamie-mccabe/special-needs-living ABA & COMPREHENSIVE SERVICES K1ds Count Therapy (317) 520-4748 ABA SERVICES Adapt for Life ABA (317) 383-0188 Applied Behavior Center for Autism (317) 849-5437 Autism Center for Enrichment (317) 436-7080
ATTORNEY-WILLS/TRUSTS/ ESTATE PLANNING Law Office of Elizabeth A. Homes LLC (317) 660-5004 CASE MANAGEMENT Connections Case Management (317) 440-0637 IPMG - Indiana Professional Management Group (866) 672-4764
GYMNASTICS Body by GymRoots Studio (317) 579-9300 HEALTH & WELLNESS LifeVantage - Team Richards Kristin Richards (317) 698-5264 INDOOR TRAMPOLINE PARK Adrenaline Family Adventure Park (317) 572-2999 adrenalinefishers1.com
Mindful and Modern ABA Therapies (317) 827-7777
CAT CARE & SITTING Bastet Cat Care & Sitting (317) 919-1948
The Indiana Institute for Behavior Analysis, LLC (317) 388-8131
CBD SUPPLIER Indy CBD Plus (317) 961-0191
ABA/COMPREHENSIVE SERVICES The Hope Source (317) 578-0410
COFFEE ROASTER Tinker Coffee Co. (317) 438-5728
INVESTMENT MANAGEMENT Dan Claxton Investment Advisory & Broker Dan Claxton (317) 250-8080
ACCESSIBILITY PRODUCTS AMRamp (260) 519-1935
DAY / BEHAVIORAL SERVICES Developmental Disabilities Systems INC. - DDSI (317) 477-8240
LANDSCAPING/LAWN CARE/ LANDSCAPE LIGHTING Franco Landscaping, Inc (317) 858-3858
DENTAL CARE Children’s Dental Center (317) 842-8453
MOBILITY / ACCESSIBILITY CYA Mobility (317) 530-2541
ADULT DAY CENTER Adult Day Centers Jay Lugosch (317) 296-8815
FINANCIAL Munder Financial James Munder (317) 238-6621
MORTGAGE CrossCountry Mortgage (317) 666-4679
ADVOCACY/EVALUATIONS PEAS for Kids (920) 980-1172
WestPoint Financial Group Gordon Homes (317) 567-2005
ASSISTANCE DOG Indiana Canine Assistant Network, INC. (ICAN) (317) 250-6450
FUNCTIONAL MEDICINE Wholestic Nutrition (317) 429-0111
ACCOUNTING/PAYROLL/TAXES Borshoff Consulting LLC. Sherry Borshoff (317) 902-6539
6 Special Needs Living • October 2021
INSURANCE State Farm John Cole (317) 430-1958
MUSIC THERAPY Resounding Joy (858) 888-0899 NEUROFEEDBACK THERAPY Indy Neurofeedback (317) 888-8500
ORTHODONTICS Hallmark Orthodontics (317) 773-5515 Rigsbee Hall Orthodontics (317) 574-0612 PEDIATRIC THERAPY Wee Speak (765) 446-8300 REAL ESTATE Encore Sotheby’s Patti & Jeff Carroll (317) 809-5839 REALTOR F.C. Tucker Nicole Lyon (317) 501-0639
REGENERATIVE MEDICINE/STEM CELL THERAPY Destination ReGen (317) 522-1980 REMODELING/CONSTRUCTION Ray’s Construction LLC Ray Valverde (317) 515-5308 SCHOOL Dynamic Minds Academy (317) 578-0410 SCHOOL - SPECIAL NEEDS The Fortune Academy (317) 377-0544
SCULPTURE, POTTERY & ART Ripple Mobile Arts (317) 514-8469 SPECIAL EDUCATION CONSULTING IEP Services, LLC. Sheila Wolfe (317) 573-9610 SUPPORT SERVICES Easterseals Crossroads (317) 466-1000 The ALTRUIST Group, LLC (317) 547-3041 x1005 THERAPY & TESTING SERVICES The Brain Center (317) 748-0034
Adapt for Life provides a positive learning environment
to help your child learn & grow! Currently No Waitlist for ABA Therapy Services Individual Treatment Plans
shaped by your child’s needs and designed to help your child thrive.
Evidence-Based Practices based on the latest research.
State-of-the-Art Therapy Tools & Techniques with progress reports and graphs you can access via our parent portal.
Team Collaboration
with your child’s physician, other therapists, and teachers to ensure your child is able to reach their full potential.
317-383-0188 · adaptforlifeaba.com · 6640 Parkdale Place, Ste R, Indianapolis, IN 46254 October 2021 • Special Needs Living 7
MEET THE Special Needs Living
TEAM
JAMIE MCCABE Publisher & Area Director
BRITTANY LOWE Event Executive
CHRISTINA MCGAIRK Editor and Writer
CHRISTIA WOODFORD Publishing Assistant
MARIA SMIETANA Editor & Writer
HEATHER GREGG Photographer 21 Vines Photography
LEAH PARKS Knightingale + Willow Photography
ANGIE ARLINGTON Community Engagement Coordinator
WRITER & CONTRIBUTORS
ANGELICA N. GRAY, MA, BCBA, LBA
PAUL HATHCOAT
CARLA MILLER
LISA MONGE
AARON OLSON
SHANNAN PENAFLOR
LAURA SPIEGEL
SHEILA WOLFE
DEANDRA YATES
MAUREEN MARSH
REBECCA WOOD
ZACH ELLIOTT
MATT KNIGHT
PEAS for Kids PEAS for Kids specializes in educational consultation, advocacy, and customized assessment plans for children (grades PK-12+). Assessment plans address emotional concerns and learning disabilities such as Dyslexia, as well as characteristics of Autism Spectrum Disorder and Attention Deficit Hyperactivity Disorder (ADHD). PEAS for Kids strives to utilize the results of our evaluations to provide recommendations for, and work with parents in advocating for their child's educational needs within the school setting.
Psycho-educational Evaluations and Advocacy Solutions (PEAS) for Kids
Allison M Charette, Ed.S. Nationally Certified School Psychologist Founder, PEAS for Kids (920) 980-1172 • www.peas4kids.com allison@peas4kids.com
8 Special Needs Living • October 2021
upcoming event!!
Special Needs Living Fall Socia
l
at GiGi’s Playhouse UPCOMING EVENT!!
Special Needs Living Fall Social at GiGi’s Playhouse SATURDAY, OCTOBER 23RD 1-4PM
Come out and connect with other local special needs families. There will be entertainment, activities, fun, prize giveaways, and get a chance to meet some of the Special Needs Living families and supporters. Link to register or scan QR code to register https://www.eventbrite.com/e/special-needs-living-fallsocial-at-gigis-playhouse-tickets-164038303983
SCAN ME
Connections will always
carve out some time for you! Give us a call.
Ask about our Pottery Wheel Rental.
Cus tom Clas s e s & Art Proje c ts Connect with our case managers today!
317-710-7184 conne c t io n s in . c om
317-514-8469 ripplemobilearts.com
In-Home or In-Studio Classes October 2021 • Special Needs Living
9
INDEPENDENCE IS YOUR RIGHT
HOME ACCESSIBILITY AND MOBILITY EXPERTS FOR SALES, SERVICE AND INSTALLATION OF ACCESSIBILITY & MOBILITY EQUIPMENT, GIVE US A CALL TODAY!
WE NOW ACCEPT MEDICAID
We service most major brands! CYA Mobility | 570 E Tracy Rd. STE 660 | Whiteland, Indiana 46184 317-530-2541 | anthony@cyamobility.com | www.cyamobility.com Local, Woman-Owned Business 10 Special Needs Living • October 2021
promotions
This Magazine is
– F O R YOU – BY YOU –
To Support & Connect You HER E IS H O W YOU C AN BE INV OLVED Have a story to share
Would you like to share a story in an upcoming issue of Special Needs Living? We want to hear from you – To share a story or to nominate someone else to be in an upcoming issue of Special Needs Living? Email us your story ideas or nominations to SpecialNeedsLivingIndy@n2pub.com. To view several story options with quick links to answer questions and upload photos go to Linktr.ee/Community.Stories.
Accomplishments/Achievements/Milestones Looking to Celebrate all Special Needs Individuals
Let’s Get Social
To keep up to date with all things happening with Special Needs Living – Upcoming Events/Socials/Gatherings – Stories & Highlights – Ways to be Involved – Follow us on Facebook@specialneedslivingmagazine.
FOR ADVERTISING:
Some accomplishments and milestones take years ... We want to recognize you/them! Are you or your child celebrating a birthday, milestone, achievement or accomplishment? We want to recognize you – email us at SpecialNeedsLivingIndy@n2pub.com.
Do you run a business that supports the special needs community and are looking to advertise and support the Special Needs Living magazine? Email: Jamie.McCabe@n2pub.com.
Highlighting all Special Needs Businesses Calling all 501c3 organizations that support the Special Needs Community
Each month we will highlight a nonprofit for free to let the community know more about how they support and impact families and individuals with special needs. Do you run a non-profit or know of one that supports the special needs community? Email us at SpecialNeedsLivingIndy@n2pub.com.
WOULD YOU LIKE TO SHARE A STORY? SCAN HERE TO SUBMIT A STORY TO BE IN A FUTURE ISSUE OF SPECIAL NEEDS LIVING!
Do you have special needs and run a business? We will highlight all those with special needs who run a business for Free – email us or go to Linktr.ee/Community.Stories and click on (Special Needs Living – Business Profile Q&A).
SCAN HERE TO VIEW THE PAST ISSUES OF SPECIAL NEEDS LIVING!!
SCAN TO GET SPECIAL NEEDS LIVING DIGITALLY THOUGH TEXT MESSAGE & TO KEEP UP TO DATE ON ALL THE LATEST IN THE COMMUNITY!!
October 2021 • Special Needs Living
11
By Sheila Wolfe IEP Services
THE ABCs OF IEPs
Identifying students that require special education can be a challenging task. How do you determine if a student that is struggling simply needs a little bit of extra help or a completely different approach to their education? Often the answer lies with a process referred to as RTI (Response to Intervention). Schools should always be engaged in “best practices” when educating students. “Best practices” are defined as strategies, activities, or approaches that have been shown through research and evaluation to be effective and/or efficient for most students. In other words, best practices deliver instruction through techniques, methods, and processes that allow for fewer problems and maximum student benefit with minimal effort.
Do you need help getting your child with special needs the services they NEED and DESERVE at school? Professional Parent Advocate with 20 Years Experience Specializing in Developing IEPs that WORK Experienced in All Disability Categories Autism Expert Helping families receive a meaningful education for their children in public schools
IEP IEP Services, Services, LLC LLC Integrated Educational Programming
Sheila A. Wolfe Special Education Consultant
sheilawolfe@sbcglobal.net Please email for more information.
12 Special Needs Living • October 2021
By using best practices, schools expect students to be able to learn and progress at a “typical” rate. To assess whether students are progressing at an appropriate rate, schools use screening tools/evaluations to chart student progress. These are often referred to as “baseline” and “benchmark” assessments. Typically, these tests are given three times per year: when students return to school in the fall; at the end of the first semester; and in the spring. Students who do not perform as expected can be referred to the RTI program for additional instruction to “catch up” with their peers. RTI originated as a medical model and has been adapted for educational practice: 1. Prevention (best practices) 2. Annual checkups (universal screening/baseline assessments) 3. Irregularities noted (“at-risk” students identified) 4. Diagnosis (source of the problem is identified) 5. Prescription (intervention is administered) 6. Response to treatment evaluated (progress monitoring data is analyzed) 7. New prescription if needed (change intensity, method, duration of intervention) 8. Cure or referral to specialist (catch up with peers or special education referral) Typical RTI plans have three tiers or levels of intensity. Tier one usually involves more intense instruction in the general education setting but in small groups. Tier two includes additional instruction (on top of the regular classroom instruction), usually outside the general education classroom in small groups. Tier three is the most intense form of intervention and is typically one-on-one instruction outside the general education setting. For RTI to be meaningful and effective, a set of strict rules and schedules must be followed. Students must receive scientific, research-based instruction (What Works Clearinghouse: https:// ies.ed.gov/ncee/wwc/) that is administered with fidelity from carefully trained and monitored teachers. Data must be collected every 1-2 weeks on student progress. Criteria must be established for expected student growth/progress. If the criteria are not met by the deadline set forth in the RTI program (typically about 8 weeks), students must be moved to the next tier of intervention without delay.
Here’s an example: Tim has been identified as an “at-risk” student through a baseline assessment done at the beginning of the school year. He begins to receive Tier One small group instruction during the language arts reading period. Tim’s progress is monitored every 2 weeks using a DIBELS assessment. At the end of 8 weeks, the RTI team reviews Tim’s scores. As a beginning second-grade student, Tim was expected to score a 52 on his Oral Reading Fluency (ORF) test. He scored a 40. After 8 weeks of intervention, Tim scored a 45 on the ORF. By mid-year, Tim should score a 72 on the ORF. Clearly, Tim is not making progress at a rate that will allow him to score a 72 by the end of the semester. He is referred to Tier Two intervention. Problems occur frequently with RTI programs that do not appropriately evaluate student progress and make timely decisions to increase the intensity of intervention. Some schools may claim that Tim was making progress since he increased his score from 40 to 45 in eight weeks, and the same intervention
should continue. But the goal of RTI must be to close any gap that exists between a student’s current level of functioning and the level expected of a “typical student” at that grade level. If this gap cannot be closed within the school year, the RTI team must decide whether the student should be referred for special education evaluation. It is important for parents to know if their child is receiving “extra” help through a school’s RTI program. Monitoring the student’s progress is critical to assure there is no delay in either advancing the student to the next tier of RTI when appropriate or referring the student for a full educational evaluation to see if they qualify for special education. Next month we will examine how to appropriately evaluate student progress. Parents can learn more about RTI at: https://www.interventioncentral.org/ http://www.rtinetwork.org/ learn/what/whatisrti https://youtu.be/S-y2v1a5XRU.
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Framing • Flooring • Roofing • Yard Cleaning • Decks • Interior and Exterior Painting • Privacy Fence •October Build Ramps Expanding Walls 2021 •• Special Needs Living
13
HEART SOS Services for Individuals & Families
Hope, Love, & ASD: Building Skills for Life Want more confidence? Mental Health Counseling can help you get unstuck.
What to go on a dinner date? Occupational Therapy can help you dress to impress.
Want to advocate for yourself? Speech Therapy can help you communicate your needs.
Want to try new things? Behavior Consultation can help you become more flexible.
Heart of the Spectrum Outpatient Services
A New Service Model by The Hope Source
We hear your SOS!
Reach out today at asdheartsos.com 7739 E 88th Street Indianapolis 46256 1318 Ohio Street Terre Haute 47807 14 Special Needs Living • October 2021
Therapeutic Education for ASD Our mascot, the dragonfly, represents the mission of our model perfectly. The dragonfly symbolizes change, adaptability, self-realization, emotional depth, and lightness. Not only can it quickly adapt to it's environment and change it's course, it does so with confidence. We aspire to be like the dragonfly in our journeys of personal growth, even when it seems impossible. The dragonfly has so much strength; it can fly through a storm. Our mission is to help our clients and students with ASD gain knowledge that will build competence in social, academic, and vocational areas of their lives. With dynamic skills they can navigate any challenges they encounter with confidence, just like the dragonfly. -Julie Gordon
BE A DRAGONFLY. ENROLL TODAY. 8350 Craig Street Indianapolis, IN 46250 317.578.0410 asdhopesource.com dynamicmindsacademy.org
ABA, the Natural Way
A developmental, coping, & executive function skills-focused approach to behavioral therapy like no other ABA provider in Indiana. Schedule a tour at
asdhopesource.com • Behavioral Therapy (ABA) • Mental Health Counseling • Speech Therapy • Occupational Therapy • Diagnostic Testing • Special Education Support • Family Guidance Counseling & Workshops • Group Therapy & Specials • Music Therapy • Art Therapy • Recreational Therapy with Fitness Focus • Vocational Development at Hope Source Cafe • Monthly STEM Projects & Expos
Grow Your Own Way. Imagine no longer having to fight for your child's needs at school!
Established in 2013 as the first ever hybrid model of therapy & education for ASD in one location!
8350 Craig Street Indianapolis, IN 46250
317.578.0410
Dynamic Minds Academy was founded to ensure that every support for ASD is built-in. Low Ratios • Low Stimulation Year Round Calendar • Built-in Accommodations Support Services • Highly Qualified Teachers Individualized Paths • Balanced & Flexible Curriculum An Innovative, K-12, Free Public Charter School Specializing in Educating Students with Autism Spectrum Disorder
Enroll today at dynamicmindsacademy.org October 2021 • Special Needs Living
15
dyslexia awareness month By Deandra Dycas
Hiking in Brown County
Lawless Family Lawless Family
MEET THE
Max and Derek Cooking
JULIE, DEREK, ZOE, AND MAX
It is never easy learning that your child has been diagnosed with a learning difference. In fact, hearing those words can send you on a journey of uncertainty. Although we want to retain a positive perspective, if we’re honest, in those difficult moments, that positive light gives way to a flickering flame. However, we can’t remain that way, and Max’s family exemplifies what it means to show courage in hard times, and to be your child’s biggest advocate. Derek, Julie, Max, and Zoe Lawless are from the beautiful hills of Nashville, TN, and now reside in Fishers, IN, a northeastern suburb of Indianapolis. The family moved to Indiana in 2014 when Julie accepted a new career opportunity. The family believes it was the best move they could have made. They feel beyond fortunate to have found Fortune Academy, a small school focused solely on supporting children with all types of learning differences, as well as those with ADHD. In early childhood, Max struggled with reading, writing, and managing his ADHD, especially in the classroom. Those struggles with dyslexia and ADHD caused him to fall behind his peers, which led to a decrease in his self-confidence. When the family moved Max from public school to Fortune Academy, they had no idea what a positive impact that would have on Max’s future. His father Derek states, “He now reads and writes with ease.” Julie and Derek were ecstatic to see how quickly the teaching styles of the Fortune Academy staff cultivated Max’s reading ability. They said it is safe to say that he has gone from dreading
16 Special Needs Living • October 2021
reading to having the excitement that they always believed he would have, with the right support in place. Julie shared that there are two milestones in her son’s journey that she will never forget, and both make her look forward to what is to come. The first was the moment when Max read words on the TV screen after only a short time at Fortune. Shocked, he yelled “I can read that on my own now!” Julie’s heart was warmed with hope, and a little surprise as well. Not the kind of surprise that comes from Walks in the Neighborhood doubting this moment would ever come, but the kind that makes you exhale with gratitude. The second milestone came when Max was asked to write a letter about someone whom he admired and include why that person was so special. He chose his grandfather, who is affectionately known as “Papa Charlie.” Max had so much excitement for this letter that once it was written he wanted to hand-deliver it and Chess with Dad
read it aloud to his grandfather. Julie shared that Papa Charlie and Max share similar reading challenges. Papa Charlie could not have been prouder in that moment. The reading of those words was like music to his ears. Max was proud, too. Julie credits the hard work and dedication of the teachers of Fortune Academy not only for the significant changes in her son’s reading abilities but also for his increased confidence. When Julie and Derek were asked what advice they would give to parents in a similar situation, it would be to never stop asking questions. “Reach out to everyone in your community that could possibly be a resource for much-needed tools,” Julie stated. “There is support, but we have to go out and look for it at times. There is an abundance of resources to assist with financial aid, scholarships, and tutors. Don’t be afraid to ask around and tour schools. It could lead to the right answer for your child’s future.” This family is very active and takes every opportunity to develop themselves as individuals and as a family. Max is involved in fencing, rock climbing, and takes violin lessons. As a family unit, the four of them enjoy nature hikes, watching Zoe play basketball and eating dinner together. It is a tradition that they settle down and eat dinner together every evening. Derek says this is an important time to connect and discuss their day. Collectively they share their highs and lows. They also walk the dog every evening as a family. There is lots of bonding and shows of support, from one to another. The family has two pets – Johnny, a mixed breed rescue dog, and Tucker, a rescue cat. Derek says both pets are very special to Max and that their family understands the power of healing through pet therapy. Julie serves as the Executive Chair of Pet Partners, the leading pet therapy organization in the U.S. One of the family’s favorite restaurants is CR Heroes in Fishers. A family-oriented business, they host weekly family nights and give space for children to play in the arcade and just enjoy themselves while they are waiting on their food. Derek shared how important this is when Xoleth and Max Dinner you have a child with ADHD.
Fortune Academy Award Ceremony 2021
Fortune Academy Awards 2021
Max and Johnny
Ugly Sweater 2021
“Finding restaurants that encourage their movement and freedom are gold!” Derek said. Derek, Julie, Zoe, and Max’s energy, love, and support for one another are contagious. They are an ambitious family destined to enjoy life and overcome the obstacles that have been set before them. Their story is inspiring and motivating but, more importantly, it is a testimony to how love motivates parents to be their child’s biggest advocate. Do you have a famliy that you would like to nominate to be in an upcoming issue of Special Needs Living? Email us at SpecialNeedsLivingIndy@n2pub.com.
Please Join Us In Person Or Virtually!
Wine & Wags Thursday, October 7, 2021 5:30 to 8 pm The Biltwell Event Center Indianapolis ICAN’s largest fundraising event, Wine & Wags, is an after-work program filled with testimonies about the powerful impact our service dogs make on people’s lives! There is no cost to attend, but you must pre-register. To register in person or virtually, please visit www.icandog.org.
Interested in being a virtual host or hosting a table of eight? Contact dino@icandog.org October 2021 • Special Needs Living
17
meet the peck family By Maura Higgs Photos by Heather Gregg – 21 Vines Photography
Down Syndrome – Our Journey The Creation of Mini Minds
We Love Kids!
Megan, Mitchell, Nolan, 9, Rowan, 7, and Aidan, 5.
Megan Peck is a mental health therapist who opened a multi-disciplinary clinic, Mini Minds, after she found herself driving all over central Indiana to get her son the best therapists. While Megan is originally from Libertyville, IL, she went out East for both her undergraduate and graduate degrees. She was brought back to the Midwest in 2011 when she married her husband, who was born and raised in Noblesville.
most dental insurances and Medicaid accepted
5-Star Rated Pediatric Dentistry
• providing tools to use in future appointments • establishing at-home dental hygiene routines • preparing you and your child to work through fear and anxiety Call 317-842-8453 to book an appointment. 9885 E. 116th Street, Suite 100 | Fishers, IN 46037 babytoothcenter.com
18 Special Needs Living • October 2021
Megan and her husband, Mitchell, have three children, Nolan, 9, Rowan, 7, and Aidan, 5. Megan was homeschooling all three of them, but Nolan recently received approval for his Access therapist to attend elementary school with him full time. Nolan has Down syndrome, and when he was first born, his parents didn’t feel like there was a brick-and-mortar location to gather with other families like theirs. Megan and Mitchell ended up starting a location of GiGi’s Playhouse, which opened in January of 2015. It was after Nolan graduated from First Steps in the summer of 2015 that Megan opened her multi-disciplinary Mini Minds clinic. Mini Minds offers mental health, speech, occupational, and feeding therapy for children, as well as classes for the entire community, so all three of her children can learn and grow together here. Megan said that Nolan hits all of his developmental milestones
Megan, Mitchell, Nolan, 9, Rowan, 7, and Aidan, 5.
just a little behind his peers, which makes the celebration that much sweeter. (He just recently taught himself how to swim!) Megan’s advice for others experiencing similar situations and challenges is to make time for self-care. Megan loves the oxygen mask analogy—you have to take care of yourself first to be able to take care of your child!
Megan, Mitchell, Nolan, 9, Rowan, 7, and Aidan, 5.
Nolan, 9, Rowan, 7, and Aidan, 5.
If you would like to share your personal or family story or to nominate someone else to be in an upcoming issue of Special Needs Living, email us at SpecialNeedsLivingIndy@n2pub.com.
October 2021 • Special Needs Living
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sponsor of the month By: Maria Smietana
Jake Wolf
Jake Wolf in class
It may seem obvious, but just as neurotypical children don’t learn all learn the same way, children with special needs don’t either. As research in early childhood education, educational psychology, and neurobiology rapidly advance our understanding of how the human brain learns, teaching methods and educational settings evolve along with the research. That has led to an increased number of specialized schools with smaller student populations and teachers trained to give personalized instruction. One such school is Fortune Academy in Indianapolis. Located at the historic Fort Benjamin Harrison, the independent school serves students in grades 1–12 who have language learning differences, according to Marketing and Communications Specialist Lydia Chastain. The mission of Fortune Academy is to be a comprehensive school dedicated to educating and equipping students with language-based learning differences to become competent and confident lifelong learners.
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“Our school is designed for students with average to above-average potential to learn but have yet to unlock their potential past their learning challenges,” Chastain said. “Our students process information differently than what is expected in a conventional classroom. They need a different approach to learning. Simply remediating them in the same failed methods does not work.” The term “language learning differences” encompasses a dizzying array of diagnoses, including dyslexia, dyscalculia, dysgraphia, expressive language disorder, receptive language disorder, written expression disorder, and central auditory processing disorder (CAPD). Fortune Academy also serves students with ADD/ADHD and executive function disorder, which often occur with learning disorders. Data from the National Institute of Child Health and Human Development shows that nearly 1 in 5 students are affected by dyslexia, 1 in 30 have been
diagnosed with ADD/ADHD, and over 40% of students with language-based learning differences are improperly placed in special needs programs that aren’t addressing their needs. “We are home to these students,” Chastain emphasized. “They deserve an education that makes sense to them; we are here to provide it.” How does Fortune Academy do this? “We focus on meeting the students where they are, building on their individual strengths and offering remediation in their areas of weakness,” Chastain said. “We use multi-sensory instruction to support academic learning, and help them improve self-awareness, executive function skills, perseverance skills, and attainable goal setting. We teach and practice effective coping strategies and self-advocacy skills.” It’s a significant promise, and Fortune Academy has been delivering on it for nearly 20 years. Founded in 2002 by Janet George with a handful of students and dedicated parents, the school moved from its
educators who can give personal, diagnostic, and prescriptive instruction in an environment where students can fully be themselves. Admissions Information: www.thefortuneacademy.org 5626 Lawton Loop E Drive | Indianapolis, IN 46216 (317) 377- 0544 – Phone | (317) 845-4285 – Fax Media inquiries: Lydia Chastain (317) 474 – 7588 Lchastain@thefortuneacademy.org
Fortune Academy is a 501C3 non-profit organization. If you are interested in donating to Fortune Academy to help support students with learning differences, please click here. first location on 38th Street to its current building on the Fort Benjamin Harrison grounds in 2012. George stepped down as head of school in 2019 and is now Fortune Academy’s accredited training fellow with the Orton Gillingham Academy. Vanessa Coles became head of school in 2019. In addition to providing innovative opportunities for the students, teacher training, and an expanding, comprehensive community resource center, Fortune Academy sets itself apart as a leader in research-based education. Currently, it is the only school in Indiana that is accredited by the Academy of Orton-Gillingham. https://www.ortonacademy.org. The school is also accredited by the Independent Schools Association of the Central States (ISACS) and the International Dyslexia Association (IDA). The Masters in Special Education Guide placed Fortune Academy 18th in its ranking of the nation’s 50 best special needs schools. https://www.thefortuneacademy.org/who-we-are. Fortune Academy does not qualify for federal or state funding and must rely on tuition, fees, donations, and grant funding for its operating costs as a not-for-profit private school. “Families come to us from all over the country all wanting the same thing: to simply give their child an education they deserve and the opportunity to succeed,” Chastain said. “Our students thrive in our intentionally small classrooms, with outstanding, trained October 2021 • Special Needs Living
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22 Special Needs Living • October 2021
impact supporters
Thank you to the below Impact Supporters for helping to support Special Needs Living Magazine
Heather Gregg – 21 Vines Photography – 317-345-7687 Portrait Photographer – I love to photograph families and children. I’m available for seniors, engagement, maternity, newborn lifestyle, cake smash, headshots, extended family sessions, and more!
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The Brain Center Comprehensive outpatient neuropsychological and psychological assessment services for children, adolescent, adult, and geriatric patients in whom impairments of cognitive or neuropsychiatric functioning are evident or suspected.
Psychotherapy for children, adolescents and adults. Neuropsychological Testing Forensic/Legal Evaluations Psychotherapy & Caregiver Consults CogMed Training Animal-Assisted Therapy
317-748-0034 braincenteratgeist.com October 2021 • Special Needs Living
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Events provided by : Brittany Lowe Event Executive
LOCALEVENTS
Note: Don’t forget to apply for the Access Pass! The Access Pass program allows for families that meet the specific requirements listed below to visit the Children’s Museum and all participating locations for $2 per family member per visit, for up to two adults and all dependent youths living in the household. Qualifications include the following: MUSEUMS Children’s Museum Various Events Every Friday, Saturday, and Sunday 3000 North Meridian Street Indianapolis, IN 46208 317-334-4000 https://www.childrensmuseum.org/ visit/calendar?date=10/01/2021 The Indianapolis Museum of Art at Newfields Various Events Every Friday, Saturday, and Sunday 4000 Michigan Rd. Indianapolis, IN 46208 https://discovernewfields.org/ calendar?date=2021-10-1&program= SPORTS Polo at Sunset Oct. 1 6:00pm (gates open at 5pm) Hickory Hall Polo Club 7551 East 100 North Whitestown, IN 46075 317-223-4281 https://gigisplayhouse.org/ indianapolis/polo-at-sunset/ Indy Eleven Oct. 2, 16, 23 IU Michael A. Carroll Track & Soccer Stadium 1001 W. New York St. Indianapolis, IN 46202 https://www.indyeleven.com/ 2021-schedule
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The Links at Victory Field Victory Field 501 West Maryland Street Indianapolis, IN 46225 317-269-3545 https://www.milb.com/ indianapolis/ballpark/ events/public/the-links Indianapolis Motor Speedway Oct. 15 Practice for 8 Hour Race on October 17 4790 W. 16th St. Indianapolis, IN 46222 317-492-8500 https://www.indianapolis motorspeedway.com/ events/endurance/ event-info/schedule ?day=friday-october-15 THE ARTS Shen Yun Oct. 2 @ 7:00pm Clowes Memorial Hall of Butler University 4602 Sunset Ave. Indianapolis, IN 46208 317-940-6444 https://butlerartscenter. org/performance/shenyun/?spMailingID=72048 43&spUserID=MjYyMjU5N zk5ODk4S0&spJobID=132 0740148&spReportId= MTMyMDc0MDE0OAS2
- Hoosier Healthwise Insurance (Indiana’s health care program for low-income families, pregnant women, and children) - SNAP (Supplemental Nutrition Assistance Program) - TANF (Temporary Assistance for Needy Families) Apply Here: https://www.childrensmuseum.org/visit/hours/access-pass Peanut Butter & Jam: Phantom Music with Mrs. Kate Oct. 7 – Nov. 21 Oct. 2 @ 10:30am Beef and Boards The Palladium (west entrance) 9301 Michigan Rd. 1 Carter Green Indianapolis, IN 46268 Carmel, IN 46032 317-872-9664 317-843-3800 https://www.beefandboards.com/ https://thecenterpresents.org/ Online/default.asp tickets-events/events/2122/ center-education/pbj-mrs-kate/ The Color Purple Oct. 8 - 23 Brickworld Indy LEGO Exposition The Tarkington Oct. 2-3 @ 10:00am 1 Carter Green Indiana State Fairgrounds and Carmel, IN 46032 Event Center 317-843-3800 1201 E. 38th St. https://thecenterpresents.org/ Indianapolis, IN 46205 tickets-events/events/2122/ 317-927-7500 resident-companies-2122/ https://www.indianastatefair.com/ civic-the-color-purple/ events/2021/brickworld-indy22 Tuttle Orchard Fall Activities Newsies Sep. 3 – Oct. 31 Aug. 19 – Oct. 3 Corn Maze, Tractor Town Kids Area Beef and Boards Sep. 24 – Oct. 31 9301 Michigan Rd. Pumpkin Patch Indianapolis, IN 46268 Tuttle Orchard 317-872-9664 5717 N. 300 W. https://www.beefandboards.com/ Greenfield, IN 46140 Online/default.asp https://www.indianapolisorchard. com/fall-overview/ Randy Rainbow: The Pink Glasses Tour AWARENESS/ACCEPTANCE Oct. 7 @ 7:30pm The Palladium (west entrance) Down Syndrome Buddy Walk 1 Carter Green Oct. 2 Carmel, IN 46032 White River State Park 317-843-3800 801 W. Washington St. https://thecenterpresents.org/ticketsIndianapolis, IN 46204 events/events/2122/center-presents/ 317-925-7617 randy-rainbow-the-pink-glasses-tour/ https://dsindiana.org/buddywalk/
1st Annual Southside Disability Resource Fair Oct. 2 10am – 1pm Independence Park 2100 S. Morgantown Rd. Greenwood, IN 46143 Free-Over 25 agencies Sponsored by Putnam County Comprehensive Services, Inspire Case Management, and Connections Case Management https://www.facebook.com/events/2100-s-morgantownrd-greenwood-in-46143-8548-united-states/southside-disabilityresource-fair/549118953114180/ Solution Saturday Virtual Conference International Dyslexia Association Indiana Oct. 2, 9:00am – 12:15pm Virtual https://in.dyslexiaida.org/events/save-the-date-solutionsaturday-2021/ ASK Founders Kitchen Table Breakfast Oct. 14th 7:30am – 9:00am Children’s Museum 3000 North Meridian Street Indianapolis, IN 46208 800-964-4746 https://www.aboutspecialkids.org/events/ask-founderskitchen-table-breakfast/ International OCD Foundation Oct. 14 – 16 Various Virtual OCD Week Events https://iocdf.org/programs/ocdweek/#ocdweek-events
Down Syndrome Indiana DADS Annual Hayride Oct. 23 3pm – 7pm Spencer’s U-Pick Farm 7177 E. 161st Noblesville, IN 46062 317-925-7617 https://dsindiana.org/dsi-dads-annual-hayride/ Autism Community Connection Trunk or Treat Oct. 23 2pm – 4pm New Hope Church 5307 Fairview Rd. Greenwood, IN 46142 https://autismcc-in.org/trunk-or-treat-resource-vendor/ Fall Festival Oct. 23 1pm – 4pm Gigi’s Playhouse 5909 E. 86th St. Indianapolis, IN 46250 https://www.eventbrite.com/e/special-needs-living-fall-social-atgigis-playhouse-tickets-164038303983
Is there a local event for the Special Needs community you would like us to promote in an upcoming issue? Email us at SpecialNeedsIndy@n2pub.com.
Invisible Disabilities Week Oct. 17 – 23 Invisible Disabilities Association Find them on Facebook, Instagram, and Twitter. Share and comment on their posts. https://invisibledisabilities.org/seminarsandevents/invisibledisabilities-week/ Morning Dove Therapeutic Riding Sep. 13 – Dec. 17 (Break week: Oct.11 – Oct.15) 7444 W. 96th St. Zionsville, IN 46077 https://morningdovetrc.org/programs/therapeutic-riding/ Morning Dove Fall Music Therapy Sep. 27 – Oct. 25 4pm – 5pm Sep.30th – Oct. 28 4pm – 5pm Fall Music Therapy 7444 W. 96th St. Zionsville, IN 46077 https://morningdovetrc.org/programs/special-programs/
October 2021 • Special Needs Living
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By: Christina McGairk
Living with a
Stutter My First-Hand Account
I was painfully shy until the age of 12. It was due largely to my speech impediment. I had an open overbite as a child that made it difficult to sound out words that required tip to tongue movement, mainly “T” words. For example, words like “then” and “that” were hard for me. I pronounced “there” as “dare.” Then there was my stutter. Some thought it was caused by me talking too fast. I would often hear “slow down” or “Maybe you wouldn’t stutter if you weren’t talking so fast.” But that wasn’t the issue. I knew what I wanted to say, but I just couldn’t get it out in a coherent way. It was as if there was a glitch in my system between my brain and my mouth. My parents thought I would grow out of it eventually, but by 5th grade, it only got worse. That’s when my teacher suggested that I take advantage of the speech therapy services they had at school. I’m so glad she did because it helped me a lot. Stuttering is a communication disorder characterized by repetitive sounds, words, and prolongation of sounds, which interrupt the flow and fluency of speech. There are two types of stuttering – developmental and neurogenic. Although there’s not a single cause for stuttering, researchers have found there are a variety of factors that contribute to it:
26 Special Needs Living • October 2021
genetics, neurological language development components, and motoric ability. Stuttering or speech disorders were rarely talked about back when I was in school. I didn’t know anyone in my class or inner circle who stuttered. The only other person I knew who stuttered was my uncle (by marriage). I felt isolated at that time in my life, like there was something wrong with me or I was just odd. But, come to find out, I was not alone. According to the Stuttering Foundation, it’s estimated that 5% of children stutter. Also, more than 70 million people worldwide and 30 million people in the United States stutter. In fact, many famous people have battled with stuttering, including Marilyn Monroe, James Earl Jones, and even our current president, Joe Biden. Although there is no cure for stuttering, speech therapy is recommended to help those who stutter. Dana Stewart, owner of Stuttering and Speech Therapy Services LLC in Indianapolis, started her practice in 2017. She serves preschool and school-aged kids, as
well as adults who stutter. Stewart, whose Mom is also a speech therapist, mentioned a couple of stuttering misconceptions she’s encountered in her line of work. The first one is that nervousness causes a person to stutter. “Generally, people who aren’t familiar with stuttering think that people who stutter are nervous when they are speaking and may try finishing their sentences,” she said. Another misconception is that the stutterer is not intelligent. I dealt with this a lot when I was a child. I had kids who would talk to me very slowly, as if I couldn’t understand them if they spoke normally. Some would even imitate the Looney Toon character Porky Pig as I would stutter. Yet there is no connection between stuttering and intelligence. In fact, a study conducted by the British Stammering Association found that people who stuttered had the same or even higher IQs than their peers. Thankfully, I had parents and a teacher who cared about my development and I got the help I needed. So what should you do if you notice your child stuttering? Stewart gives a few suggestions. “The first thing they need to do is be calm about it and let their child say what they are trying to say and show them that the message was important and not how the child spoke.” Stewart also suggested that looking at the child at eye level could help, but if the child continues to struggle, it’s best to reach out to a speech therapist.
I have to admit, I still catch myself stuttering at times, usually when I’m trying to say a word that is hard for me to pronounce. My thoughts get all jumbled together. But even then, I didn’t let it stop me from reaching my goals. After graduating from high school I went on to study journalism in college, worked a few years in the field, and went back for my master of science in journalism, with a concentration in magazine publishing. I’m telling you all this to say if you stutter, don’t let it deter you from your dreams. You are as capable and smart as anyone else. If you need a support system to help you along the way, there are local and national groups and organizations you can reach out to. Friends: The National Association of Young People Who Stutter: https://www.friendswhostutter.org National Stuttering Association: Indiana Chapters: https://westutter.org/find-nsa-meeting-near/indiana
Do you have a story you would like to share in an upcoming issue of Special Needs Living? Email us at SpecialNeedsLivingIndy@n2pub.com.
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pastor’s corner By Paul Hathcoat
No matter what age you are, or what stage you are, living a wellrounded and balanced life has been proven to not only increase your life span but also to greatly increase the quality of the years within it. Why am I writing about this in a Special Needs Living magazine article? Well, because a crucial aspect of whole life health is spiritual wellness. In this article, I would like to make a case for you to begin, evolve or pass on to the next generation the wisdom and benefits of making spiritual health a priority in their lives and the lives of the people living with disabilities around them. What is spiritual wellness? There is a general understanding of this idea which points at seeking one’s core values and purpose. There is also a more Protestant definition that embodies a life lived in devotion to the teachings of Jesus Christ. Whatever our core beliefs are, and whatever purpose we are chasing, are we reserving time and space in our lives, and the lives of those in our care, to work toward a balanced and whole spiritual life? I have some thoughts and a list of benefits that may encourage all of us to take the time to reinvest in this life priority. Meaning. What is life without meaning? I say, a spiritually healthy person most often has a definitive purpose and established meaning in life and can reflect on that context in light of the events and situations they find themselves in. They also often have a distinctly defined idea of right and wrong and are able to act accordingly when presented with difficult decisions in life. Moving through life with meaning can produce peace. In a world that doesn’t always show favor to those who exercise these qualities, it is that much more important to pursue them. I pray that your life has meaning. Peace. What can a peaceful existence do for us? The Bible says that “the Lord gives strength to His people; the Lord blesses His people with peace” (Psalm 29:11). I myself have been a recipient of this peace. It has helped carry me through
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times that I would not wish on my enemies. It has guided my decisions and actions. It has helped me to feel unexpected unity with the world around me and has helped my acceptance of the things that I cannot control as well. Peace can be a huge benefit of the pursuit of spiritual wellness and for the parent or caregiver of someone living with a disability, it can be a lifeline to balance and renewal. I pray for peace for you today. Renewal. Why is renewal important? We all get worn down. Many of us tend to focus on the negative, even unintentionally. Studies show that people who report having low spiritual health and wellness also report feeling anxious, frustrated, empty, and wrestle with thoughts of self-judgment, loss of meaning, and hopelessness. Those who report good spiritual health typically display hope, a positive outlook, forgiveness, commitment, joy, and a clear sense of self-worth and purpose. Renewal opportunities often come in the form of connectedness and quiet. Having close friends and confidants leads to renewal. Carving out quiet places and spaces to meditate, pray, relax and be still, lead to the renewal of both the inner and the outer. Spiritual health allows renewal to happen regularly. I pray that you have renewal in your days ahead. If you are engaged in the spiritual wellness process, keep at it. If not, then why not start today? Why not pursue meaning? Why not seek peace? And for the love of all that is good and worthy, why don’t we all create space in our lives for renewal? I am not the president of the “Spiritual Wellness” club, mind you, but I did preach at a Holiday Inn Express last night. All jokes aside, I want to inspire you and challenge you readers out there to seek this pillar of priority in your life. Seek your spiritual nature and find places and spaces where your loved ones living with disabilities can be supported while doing the same. I think what you will find is… strength and rest. God Bless! Do you have a thought, idea or information that you would like to see in this section in an upcoming issue? Email Paul Hathcoat – phathcoat@wrcc.org.
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30 Special Needs Living • October 2021
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October 2021 • Special Needs Living
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pioneer parents in indiana By Angela Arlington
About: Colleen Renie
Merici Build the Village
Motherhood came to Colleen Renie in 1980 when she adopted Jason at 22 months. He was a patient of hers at Crossroads Rehabilitation Center and had been in foster care since he was 14 months old. She knew he would have challenges growing up, as he had been coming Renie Family in for therapy as a failure-to-thrive infant. He benefited from many therapy interventions including occupational therapy, physical therapy and speech and language therapy. He was enrolled in special education programming in the Washington Township schools. He didn’t start reading until he was in high school and has always had challenges with money and math skills. “Jason was always supported to be his own person and as parents we wanted him to be as independent as possible, but he will always need support with money management and financial matters, as he’s vulnerable to being taken advantage of,” Colleen said. Jason enjoys the same things as his brothers and sister and desires to have friends and family to share experiences with. Looking into group homes for her son in 2005, Colleen was not impressed. After her son had graduated from high school, all of his friends had scattered. He was independent and first moved into an apartment, but had no friends. He did not know any of the other tenants and he had no connections to his neighbors. As Renie put it, “Loneliness is the worst disability of all.” Jason then rented a house from his aunt and uncle near Butler University. They lived next door. Later, he moved to Lawrence. Colleen and a group of 4 other families decided to create a place where adults could live in a “community within a community.” They called the concept the Village of Merici, after St. Angela Merici, a 15th-century Italian woman who became known for her extraordinary service to the poor, the displaced, and other marginalized people. In 2007, they incorporated as a non-profit public charity that would serve all individuals with intellectual and developmental disabilities (IDD).
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Village of Merici
Merici Village Apartments
For the next four years, the founders conducted research by visiting many residential facilities in Indiana, Ohio, and Kentucky. Colleen took note of the pros and cons at each facility. By 2012, the Merici Village Apartments were built on the grounds of the former Fort Benjamin Harrison, using rental housing tax credits from Indiana Housing and Community Development Authority (IHCDA) in collaboration with Merchants Affordable Housing. “At that time in 2012, we were able to designate all the units to be set aside for individuals with IDD,” Colleen said. “The units were filled almost immediately.” The mission statement says it all. The Village of Merici provides residential and community opportunities for adults with intellectual and developmental disabilities that promote a strong sense of community. The desire to have individuals and families come together as a community to support one another in leading a selfdirected meaningful life is our focus.
The goal was, and still is, to help the residents feel connected and engaged with one another to develop natural supports as their parents pass away. The success of the apartments has led to a waiting list of over 200, and with only a few people moving out in the past few years, this has led the Village of Merici to continue partnering with affordable housing agencies to offer more units in Indianapolis and Carmel. The current Rental Housing Tax Credit program requires that 25% of new units in the Community Integration model be set aside for adults with IDD. The other 75% are available to those without disabilities for an “integrated community.”
Lawton Loop Merici
Lawton Loop 3 Buildings
The Village of Merici is a busy community. The building has a library, a commercial kitchen, and activities throughout the week that residents can choose to attend. There are 5 book clubs in the area. Transportation to and from work used to be an issue for residents, as it was hard to trust random drivers. So in 2020, Merici City Rides was launched. It is a transportation program that matches volunteer drivers with the supported residents to improve access within the Indianapolis area.
Jason is now 43, and with supports from the Village of Lawton Loop Parade Grounds Merici, he has lived in his own apartment in Lawrence since 2002. He has received direct services from the Village of Merici since 2012. Prior to that, he had services from other providers. He enjoys building complex Lego cars and houses, hanging out with friends, and working part-time for The Garrison. He has two brothers, Charlie, age 40, and Matthew, age 28, and a sister, Sarah, age 30. “We know his brothers and sister will continue to support him emotionally but we know they have or will have families and we want to make sure Jason is set up with the necessary support as he and we age,” Colleen said. “We have established financial guardianship and a special needs trust through The ARC to care for his future needs.” You can learn more about Jason in his “I am Home” video. https://youtu.be/6TjQYHfm8eE or view those of other individuals that Village of Merici supports at https://villageofmerici.org/i-am-home. Colleen’s vision has helped to change the lives of many adults with IDD. “I am most proud of the fact that we have accomplished a sense of community and support among the people we serve. We assist them in self-advocacy and making choices that they want in order to live their best lives. The friendships and engagement that have developed with the people we support, and the level of independence they achieve is phenomenal.” To learn more about the Villages of Merici: www.villageofmerici.org | 317-292-9408 5707 Lawton Loop East Drive OFC 22 Indianapolis, IN 46216 If you would like to be a part of this Pioneer Parent section or to nominate someone else to be in an upcoming issue of Special Needs Living, email us at SpecialNeedsLivingIndy@n2pub.com.
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317-698-5264 | teamrichards25@yahoo.com October 2021 • Special Needs Living
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non-profit spotlight By: Angela Arlington
F O U N D A T I O N Anna’s Celebration of Life Foundation (ACOLF) is an Indianapolis-based non-profit organization that makes a difference in the lives of Indiana children living with special needs by providing the life-enhancing tools, equipment, and technologies that will help them thrive. The formation of ACOLF in 2005 was inspired by Anna Molloy, an Indianapolis child who was born on September 28, 1995, with geolophysic dysplasia. Geolophysic dysplasia is a condition, which causes abnormalities in the bones, joints, heart, and skin. Anna underwent many operations as a young girl, but in spite of her condition, her spirit remained palpable and she put her heart and soul into making other children like her celebrate their “specialness.” Since Anna’s untimely passing in 2008, her legacy continues and her spirit still remains in every gift delivered to a child in need. Supporting Special Needs ACOLF supports children living with special needs by providing them with life-enhancing gifts that insurance won’t cover and is typically beyond the financial reach of the family. Throughout ACOLF’s 15 year history, gifts have varied from weighted blankets and therapy swings to more complex gifts such as bone-anchored hearing aids, eye gaze machines, and even iPads and software for non-verbal children on the autism spectrum. In rare cases,
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Anna
they also help families purchase wheelchair-accessible vans or help prevent elopement with fencing and/or GPS devices. However, the most requested gift statewide continues to be adaptive trikes for children living with a wide range of physical disabilities who are unable to ride traditional bikes. “We believe that every child with special needs in Indiana deserves to have a sense of normalcy and enjoy being a child,” said ACOLF Director Brad Haberman. “In our early years, we were able to help a dozen or so kids per year. Because of our growth and the incredible generosity of our donors, we are now able to support nearly 100 kids annually with life-enhancing gifts all across Indiana.
Anna with Lucious Newsom (mentioned in the article)
Here are some of the gifts given over the years: Ariel (age 7) from South Bend lives with ataxic cerebral palsy. She was gifted an adaptive trike.
Anna at Riley Hospital for Children
Hawke (9 months) from Elkhart lives with a rare genetic mutation that causes MANY seizures. His family was gifted a SAMi Seizure Alert device. Colin (age 6) from Yorktown lives with a communication gap from an in-utero stroke. He was gifted an iPad with LAMP Words for Life. Ty (age 17) lives with cerebral palsy and brain damage. His family received assistance to get a newer accessible van. Johnny IV (age 5) from Brownsburg lives with autism and has elopement issues. His family was gifted a privacy fence for safe outdoor play. Archer (8 months) from Granger lives with tetralogy of Fallot and esophageal atresia. His family was gifted a Baby Jogger Lux stroller. The Lord’s Pantry at Anna’s House Young Anna Molloy also inspired the creation of what is now known as The Lord’s Pantry at Anna’s House, a totally separate nonprofit food pantry located just west of downtown Indianapolis serving the Stringtown community. The ministry was founded by the late Lucious Newsom, a Baptist minister from Tennessee who was called by God to help feed the poor. After meeting Anna, who volunteered often with her family to help build a “home” for the then-sidewalk ministry, Lucious was moved to honor Anna by naming the new home of his food ministry after her. Lucious and Anna died 18 days apart in 2008. Contact Information: Website: www.acolf.org Email: contact@acolf.org Phone number 317-524-1300
Anna and Vice President Pence
Te s t i m o n i a l : “Thank you so much for all of your help (and the whole organization). I know we have referred many patients to Anna’s Celebration of Life Foundation to obtain equipment and DME that otherwise would not have been available. The equipment you have provided has changed and enhanced many lives, including [that of] my own son, Henderson. Henderson uses his swing almost daily, and it has been such a huge help with self-regulation and calming. I can’t tell you how much our families, therapists, and myself appreciate what you do to help everyone.” Jeremy Vories, MSOTR Occupational Therapist, Pediatrics Reid Health - Right beside you. Richmond, IN
Do you run a non-profit? Would you like to be a part of the non-profit spotlight or nominate someone else to be in an upcoming issue of Special Needs Living? Email us at SpecialNeedsLivingIndy@n2pub.com.
October 2021 • Special Needs Living
35
By Gordon Homes, CFP | By Mary A. Houser, Ed.D.
Housing Options
for Adults with Disabilities:
Then & Now
Today in the United States there are approximately 61 million individuals living with some kind of disability*. These disabilities vary greatly from mild to severe and impact each individual differently. Examples of disabilities include physical disabilities, intellectual disabilities, and autism spectrum disorder to name a few. Some adults with disabilities live their lives independently, while others need varying levels of support to be successful. One consideration that has become a central focus in recent years is: Where do individuals with disabilities live during their adult years? This article examines several housing options currently available to adults with disabilities. Housing for adults with severe disabilities extends back to the mid-1800s to the institutional care model (i.e. psychiatric institutions or facilities). Adults with disabilities were housed in these establishments because they were viewed as incapable of living in their own communities. It was common practice for medical doctors to advise family members to put their disabled loved ones in such institutions. They were not desirable places to live, however. Conditions were harsh, overcrowded, and filthy. They often failed to meet even the most basic needs of their residents. Although these institutions remained in existence for quite some time, a shift to the current community living model came about primarily as a result of families wanting a better life for their loved ones. The community living model suggests that all individuals with disabilities live in the community of their choosing, as a person without a disability would, and not in an institution or facility. Over several years, activists from the Independent Living Movement organized an end to the segregation that these individuals had been experiencing with an institutional reform known as de-institutionalization. From the 1960s to the 1980s activists fought to create viable housing options for disabled individuals once their parents are no longer living. (Housing Options for Adults with Disabilities: Then and Now, by Mary A. Houser, Ed.D.). Now, an adult with a disability may own a home and it will not be counted against their eligibility for benefits, known as “home exclusion,” as long as the home is their primary residence. In this arrangement, the disabled adult will typically have a support person living with them to help with their daily needs. Adult Foster Home (Adult Family Care) In an adult foster home, the individual with a disability lives with a family other than their own, that has been trained to provide the appropriate supports needed for their daily living. Examples of supports include bathing, eating, transferring and mobility, and housekeeping. Adult foster homes are usually managed by an agency or a private provider. Independent Living The person with a disability lives independently in a home or an apartment, and might even have a roommate. In
36 Special Needs Living • October 2021
this arrangement, direct supervision of the individual(s) is not required. Sometimes, individuals living in this housing arrangement receive ongoing training to help enhance their independent living skills. Supported Living Supported living is for individuals who want to live in their own apartment or home (rented or owned) but are unable to do so without the help of a support person. In this model, support services are highly customized and can be personalized for individuals with minimal to more complex needs. Supervised Apartment This semi-independent living arrangement occurs when an individual with a disability lives in their own home or apartment but needs more direct and intensive supports than the supported living model. A supervised apartment typically offers support services 24 hours a day, 7 days a week, if needed. Functional skills to support independent living such as cooking, banking, and community involvement are often taught. Group Home A group home is where three to six individuals with a disability are living together under one roof. Support personnel assist the residents 24 hours a day, 7 days a week, to meet their individual needs. This housing option is typically operated by an agency or private provider. Group Living/Ownership (Co-op) Similar to a group home, a co-op is a home privately owned or rented by a group of individuals who have come together and formed a cooperative agreement. Often, families of adult children with disabilities will enter into an agreement where they cooperatively select both the dwelling and the support services that will be provided. How are living arrangements for individuals with disabilities funded? There are a few different ways that individuals with disabilities can fund their housing. These options are largely based on eligibility and can vary from state to state. Some individuals will use private funds, such as their ABLE account or special needs trusts to help finance their housing needs. Individuals who
receive Supplemental Security Income (SSI) can put these funds toward their housing needs. There are also Section 8 rental vouchers which are made available through housing assistance programs at local housing authorities to help pay rent. Medicaid Home and Community-Based Service (HCBS) Waivers provide money to Medicaid beneficiaries to receive services in their own homes and community rather than in an institution. The waivers cannot be used to pay rent, however. Housing for adults with disabilities has come a long way with respect to these individuals’ civil rights and desire to be part of their community. Hopefully, with the growing demand for effective housing models, new and better options will continue to be created. © 2021 Massachusetts Mutual Life Insurance Company (MassMutual®), Springfield, MA 01111-0001 Dr. Mary A. Houser is an associate professor in the Department of Special Education at West Chester University of Pennsylvania. She teaches both undergraduate and graduate courses in foundations of special education, behavior management, autism spectrum disorder (ASD), language development, and family systems. She also serves as an educational consultant to The American College of Financial Services. Dr. Houser is currently developing an inclusive apartment community in Chester County, PA, where adults with disabilities will live alongside typical adults.
October 2021 • Special Needs Living
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You’re Invited Halloween Dance Friday, October 29th 7-9pm Adaggio’s Banquet Hall $3 Snow Cones will be Available
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5999 W Memory Lane Greenfield, IN 46140
38 Special Needs Living • October 2021
By Christina McGairk
How to Have A Ghoulish Gluten Free Halloween
YAY! Autumn, which is my favorite time of the year, is in full swing! The leaves reach their most colorful peak, an eeriness is in the atmosphere, and the cooler temperatures beat the raging inferno we experienced during the summer. Plus, let’s not forget Halloween, the one time of year when kids and adults alike dress up in their scariest or cutest costumes going door to door for special treats. When I was a kid, I absolutely LOVED Halloween. It’s the one time of the year where I could play dress-up, paint my face a bunch of different colors, and not get yelled at for it. Now, I find more joy watching my daughter TiTi having a good time during Halloween. But let’s face it, I’m still a big kid at heart, so I dress up and go trick-or-treating with her. It’s so much fun!
Still, I have to be a super vigilant Mommy when it comes to Halloween. TiTi actually doesn’t like candy, except for those cute little Dum-Dum suckers, which, as luck would have it, are gluten-free. But every once in a while her inquisitive taste buds get the best of her and she tries something that isn’t gluten-free. For instance, she does like a good chocolate chip cookie every now and then but not all of them are gluten-free. Sometimes people pass out pre-packaged cookies instead of candy. That means I have to inspect the wrapper like a good detective to make sure there are no ingredients present that might hurt her tummy. There are now safer options for those who have gluten sensitivity. The Teal Pumpkin Project is one. According to the FARE (Food Allergy Research & Education) website, the Teal Pumpkin Project was a local awareness initiative started by the Food Allergy Community of East Tennessee in 2012. Their goal was to promote safety and provide a fun alternative for those who have allergies. Although the project wasn’t well known in the beginning,
its recognition has grown. I’ve even seen houses that have one orange pumpkin and one teal pumpkin to signify which treats were allergy-free. Here are some other ways to celebrate an allergen-free Halloween: TRICK-OR-TREAT AT “SAFE HOUSES”
Being an only child and a girl, my parents didn’t let me go knocking on just anybody’s door. Instead, they drove me to houses that they trusted. So it was usually a drive-by at the home of a church member, a relative, or someone that my parents worked with. The same can be done for kids that have allergies. You can have your child stop by houses that are aware of your child’s allergies so they can trick or treat safely. THROW AN ALLERGEN-FREE HALLOWEEN PARTY
Halloween parties can be fun, even without a bucketload of candy. Get creative by decorating each room with a different theme. For instance, for a witchy room hang little brooms or witches hats from the ceiling and have the kids fish for squishy glow-in-the-dark scary-faced stress balls. HAVE A SPOOKY GLOW IN THE DARK PARTY IN THE BACKYARD
Now, this can be a little tricky living in Indiana. I remember a couple of times when it actually SNOWED on Halloween night. But if the weather isn’t too cold, a glow-in-the-dark party can be really fun. Make a glow-inthe-dark hopscotch area or have a funky glow-in-the-dark hula hoop contest to make things a little competitive. PASS OUT YOUR OWN ALLERGEN-FREE CANDY
One way to bring awareness and educate people about food allergies is by passing out allergy-free candy yourself. There are well-known candy brands such as Smarties, Lemon Heads, and Jaw Breakers that are gluten-free. Also, the gluten-free company Enjoy Life has a chocolate mini-bar variety pack that includes dark chocolate, rice milk chocolate, and rice milk crunch bars. ***Disclaimer: I’m not a nutritionist or a doctor. I’m just a loving Mama supporting her daughter and others through their gluten-free journey. If you have questions about the gluten-free diet or celiac disease, please contact your medical professional. Thank you.*** If you would like to share gluten-free tips, tricks, info, etc. in an upcoming issue of Special Needs Living, email us at SpecialNeedsLivingIndy@n2pub.com.
October 2021 • Special Needs Living
39
MEET
ADRIANA
SMITH Melissa Jolly Graves Chapter 2, Adriana, Noah Chapter 4, and lead author Amy Gillespie Dougherty Chapter 1
Adriana Smith
Adriana Smith
40 Special Needs Living • October 2021
Adriana modeling a purse for Poshmark
young achievers By Adriana Smith
hello special needs community! i am an adult with nonverbal autism who needs support to assist my body to type this article! adriana is my name, autism is my game! lol--quite capable to tell you my story! quit thinking mom, it’s my turn to talk and give you MY gift for mothers day!
typically will be able to communicate immediately with mom or another experienced facilitator. i say experienced rather than trained as this is a process not everyone will be able to do. my brother noah just finished a chapter in a book explaining this process a bit but with the lol woo wooey intuition and energy healing. it was difficult enough for mom to explain facilitated communication but noah met people who felt his energy and now we are on a new journey!
please know that we are not just people with autism. we help everyone through the sharonsweb autism foundation. ask us anything. meet us anywhere. inclusion is our goal and we are including you!
oldest brother quinn did not want to be in the magazine! he is 25 with aspergers syndrome. quinn was our first respite staff when he turned 18. he had always helped with noah and me so he was more experienced than anyone! he now drives for papa johns as he retired from caregiving! lol
Josh Hale co-owner and trainer at Force Barbell and Adriana
my dad joe is an engineer. he doesn’t communicate with me like mom does. but that’s ok as he can be the example for most people trying to understand the processes we use.
mom sharon can facilitate communication! this means she can reach our thoughts by feeling for productive body movement beyond what the autism allows. this took time. lots of practice. people with autism
Adriana Smith, 21 Please see www.sharonsweb.com for more info!
If you would like to share your personal or family story or to nominate someone else to be in an upcoming issue of Special Needs Living, email us at SpecialNeedsLivingIndy@n2pub.com.
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Schedule a consultation today! 8801 N. Meridian, Suite 306, Indianapolis, IN 46260 (317) 888-8500 • www.indyneurofeedback.com October 2021 • Special Needs Living
41
Empowering Lives
ABA � SPEECH � OCCUPATIONAL THERAPY
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October 2021 • Special Needs Living
43
Colin Fishing Colin Frisbee
Meet Colin Pacers
Colin Etchison & his Family
Colin Award
By Aaron Olson
Colin Etchison lives with his parents Don and Susan in Fishers, IN, and is a remarkable individual. Colin was born with Sotos syndrome, a rare genetic disorder, and despite many challenges, has had a number of accomplishments and achieved a sense of independence. 44 Special Needs Living • October 2021
Sotos syndrome is a rare genetic disorder characterized by excessive growth during the first years of life and is often accompanied by cognitive disorders such as autism, attention deficit hyperactivity disorder (ADHD), and obsessive-compulsive disorder (OCD). Early on, people with Sotos syndrome experience advanced bone growth and bone aging, and as a result, typically are much larger children and develop a larger than normal skull. The tallest teenager in the world has Sotos syndrome at 7’ 8,” though this type of growth is not typical. Sotos syndrome is also unique in its paradoxical existence as an autosomal dominant inherited trait, but 95% of cases are due to a “spontaneous” genetic mutation.
For Colin, Sotos syndrome had the usual physical hallmarks. His mother, Susan, remembers getting odd looks carrying him before he learned to walk because he was so big for his age. As Colin got older, it became apparent that he also had some form of autism spectrum disorder (ASD) as he had trouble processing information. Susan describes his mental state as being very “black and white” or “literal.” For example, Don once asked Colin to “check the door” meaning to check if the door was locked, but Colin interpreted it as him needing to check the door to see if it was closed. This poses a number of difficulties when so much of the English language is driven by inference and innuendo. Susan and Don were always supportive of Colin and acted as his advocate when he needed help. That said, Susan credits his current independence to letting him try things on his own when he was younger. As Colin got older, he was enrolled in occupational therapy, and, in 2010, he participated in Project Search at St. Vincent Hospital. While there, he was able to obtain part-time employment as a cart attendant at Target and Kroger. Recently, after seeing his siblings and friends move on to full-time jobs, Colin took up full-time employment as an assembly line worker.
Colin
Colin’s favorite activity is basketball and has been his passion since he was 8. His favorite professional teams are the Pacers and Nuggets. He is an avid player and takes the sport seriously. When Colin was 13, he broke his femur and was bound to a wheelchair. Despite the challenges posed by this situation, he continued to practice, and he eventually went on to participate in the Special Olympics and was named Hamilton County’s athlete of the year in 2005.
If you would like to share your personal or family story, or to nominate someone else to be in an upcoming issue of Special Needs Living, email us at SpecialNeedsLivingIndy@n2pub.com Colin Birthday
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Special Needs Planning & Elder Law Attorney
Here to help you put plans in place to give you peace of mind. Elizabeth A. Homes is a special needs planning and elder law attorney. She has been licensed and practicing law since May of 2014. Her practice at the Law Office of Elizabeth A. Homes LLC is focused on Special Needs Planning, Guardianships, Elder Law, Estate Planning, and Probate Work. This includes Wills, Powers of Attorney, Advanced Directives, Trusts, Trust Administration, Medicaid Planning, Special Needs Planning, Guardianship, and Probate. She is admitted to practice law in the State of Indiana. We ask "What If?" so you don't have to ask "What Now?"
(317) 565-1450 www.destinationregen.com
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October 2021 • Special Needs Living
45
Lucky Mama
PROJECT ORDER YOUR 2022 CALENDAR HERE! FEATURING INDIANA KIDS WITH DOWN SYNDROME
October is Down Syndrome Awareness Month! It’s also the time we release The 2022 Lucky Mama Project Calendar! This is a fundraising calendar for The Lucky Mama Project, a program of Down Syndrome Indiana that supports new moms that have a baby with Down syndrome. The calendar is filled with beautiful photos of 60+ Indiana kids that rock that extra 21st chromosome. Go to The Lucky Mama Project’s website to order your copy today! https://dsindiana.org/lucky-mama-project/
Wonder if music therapy might be the right fit for your child?
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RESOUNDINGJOYINC.ORG 46 Special Needs Living • October 2021
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317.547.3041 | altruistgroup.net October 2021 • Special Needs Living
47
living
Special Needs
Indianapolis & Surrounding Areas
