Special Needs Living Michigan - Detroit/Metro - Oct 2023 Digital Issue

KaniaPalazzolo

PHOTO BY JENNIFER ROEMER PHOTOGRAPHY

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ISSUE PREVIEW

• 24-27 Featured Family: Meet The Kania/Palazzolo Family

• 13 Advocate Like A Mother: IEP Evaluations

• 21 Breaking Down Barriers, One Step at a Time

• 22-23 Athlete of the Month: Meet Nolan Sprifke

• 18-20 Making A Difference: Clinton

Valley Little League Challenger Division: Celebrating 30 Amazing Years!

• 16-17 Sponsor Spotlight: Advanced Therapeutic Solutions, LLC

• 14-15 Nonprofit Spotlight: Michigan

Dyslexia Institute (MDI)

• 8-11 Local Events

PUBLISHER/ADVERTISING INQUIRIES

Jamie McCabe 248-882-8448

Jamie.McCabe@n2co.com

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INSTAGRAM (specialneedslivingdetroitmetro) www.instagram.com/specialneedslivingdetroitmetro/

Where Children BLOOM

Meet The Kania/Palazzolo Family; Photo by Jennifer Roemer Photography

Making A Difference: Clinton Valley Little League Challenger Division: Celebrating 30 Amazing Years!

Nonprofit Spotlight: Michigan Dyslexia Institute (MDI)

Sponsor Spotlight: Advanced Therapeutic Solutions, LLC

Athlete of the Month: Meet Nolan Sprifke

n2co.com

BY CHRISTIA WOODFORD

Arc Michigan arcmi.org

Autism Alliance of Michigan https/autismallianceofmichigan.org/

Autism Support of Michigan https/autism-mi.org/

Behavioral Health and Developmental Disabilities

Administrationwww.michigan.gov/mdhhs/ keep-mi-healthy/mentalhealth/procurement/ welcome-to-behavioral-health-and-developmentaldisabilities-administration

Michigan Foundation for the Blind and Visually Impaired Michigan Developmental Disabilities Council

www.michigan.gov/mdhhs/keep-mi-healthy/ mentalhealth/developmentaldisability

Michigan Rehabilitation Services (MRS)

Capital Area Down Syndrome Association

www.cadsa.org

Deaf and Hard of Hearing Services (DHHS) www.deafhhs.org/

Disability Determination Bureau

Division of Aging

www.michigan.gov/mdhhs/adult-child-serv/adultsand-seniors/behavioral-and-physical-health-andaging-services/aging-services

Division of Family Resources (DFR) www.michigan.gov/mdhhs

Easterseals MORC www.easterseals.com/MORC/

IMPORTANT PHONE NUMBERS

Emergency Ealy On Michigan

https/www.michigan.gov/mde/services/earlylearners-and-care/special-ed-05/early-on-michigan Michigan Department of Education: Office of Special Education https/www.michigan.gov/mde/services/

Michigan Family to Family www.f2fmichigan.org/

Michigan Foundation for the Blind and Visually Impaired Michigan Department of Health and Human Services www.michigan.gov/mdhhs

Michigan Family and Social Services Administration (FSSA)

www.michigan.gov/mdhhs

Michigan State Department of Health

www.michigan.gov/mdhhs

Michigan Statewide Independent Living Council (MSILC)

www.misilc.org/

Medicaid Disability

MI Choice Waiver Program

National Alliance on Mental Illness

Preschool & Out-of-School Time Learning

www.michigan.gov/mde/about-us/mde-divisions-andoffices/preschool-and-out-of-school-time-learning

Self-Advocates of Michigan (SAM)

Social Security Administration (SSA)

Social Security Disability Insurance (SSDI)

Special Education Questions

United Cerebral Palsy Association of Michigan ucp@ucpmichigan.org

Vocational Rehabilitation Services (VR)

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DISCLAIMER: Any articles included in this publication and/or opinions expressed therein do not necessarily reflect the views of The N2 Company d/b/a N2 Publishing but remain solely those of the author(s). The paid advertisements contained within the Special Needs Living magazine are not endorsed or recommended by The N2 Company or the publisher. Therefore, neither The N2 Company nor the publisher may be held liable or responsible for business practices of these companies. NOTE: When community events take place, photographers may be present to take photos for that event and they may be used in this publication.

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Delivering Neighborhood Connections © 2023 The N2 Company, Inc.

This section is here to give our readers easier access when searching for a trusted neighborhood partner to use. Get to know the businesses that make this magazine possible. Please support them in return and thank them if you get the chance!

ABA SERVICES

ABA Pathways (805) 551-7613

www.ABAways.com

Budding Behavior Therapy (248) 622-5191

www.buddingbehavior.hi5aba.com

ABA/ BEHAVIORAL & AUTISM SERVICES

Healing Haven (248) 965-3916

www.thehealinghaven.net/

ADVOCACY

Student Advocacy Michigan (248) 372-9770

www.studentadvocacymi.com

ATHLETIC TRAINING

Autastic Athletics LLC. (248) 224-4151

www.autastic-athletics.com

ATTORNEY-WILLS/TRUSTS/ESTATE PLANNING

Chalgian & Tripp Law Offices PLLC (248) 799-2711

www.Mielderlaw.com

AUTISM DIAGNOSIS/SUPPORT

Arbor Autism Center (734) 544-5561

www.arborautismcenters.com

AUTISM EVALUATIONS & ABA THERAPY

Inspire Autism (844) 427-7700

www.inspireautism.com/

EMPLOYMENT AND TRAINING SERVICES

Services To Enhance Potential (STEP) (734) 722-1000

stepcentral.org/

FINANCIAL

MIABLE (844) 656-7225

mi.savewithable.com

PRODUCTS

HedgeHog Health (248) 495-7244

www.hedgehoghealth.com

RECREATIONAL/ MUSIC/ ART THERAPY

Advanced Therapeutic Solutions (734) 352-3543

www.advancedtherapeauticsolutionsmi.com

MEET THE SPECIAL NEEDS LIVING DETROIT TEAM

WRITERS & CONTRIBUTORS

Jamie McCabe Area Director & Publisher

Christia Woodford Publishing Assistant

Paula Eifler Account Executive

Maria Giancotti Writer and Contributor Ron Sandison Writer and Contributor Dorene Philpot Writer and Contributor

Angie Arlington Writer Kendra Rogers, MS Editor-in-chief Alice FellWriter and Contributor

Local Events

BY CHRISTIA WOODFORD

VISIT A MUSEUM THROUGH MUSEUMS

FOR ALL

Due to COVID-19, many museums participating in Museums for All have adjusted their hours and ticket purchasing policies. Before visiting a museum, please call or check their website to see if they are open or require advance registrations. Many museums are offering virtual resources—check your local museum’s website for more information.

Through Museums for All, those receiving food assistance (SNAP benefits) can gain free or reduced admission to more than 1,000 museums throughout the United States simply by presenting their EBT card and a photo ID. Check here for participating museums. https/museums4all.org/

MUSEUMS

Abrams Planetarium

Sensory Friendly Show

Third Sunday of every month at 11:30 a.m. and 1:00 pm

755 Science Road, East Lansing, MI, United States

These shows will run with the lights up, the sound down, and the theater doors open so people can move about as needed. We also provide a place to “chill out” in our lobby. All shows include a live star talk about what is up in the sky that night. We will include a short break between the main show and star talk. Information about what to expect during the show will be provided when you purchase tickets.

Cost: Adults, $5.50, Students and senior citizens, $5.00, Children (age 12 and under), $4.50

Friends of Abrams Planetarium Members, Free

Free with Museums For All (with valid EBT, Medicaid, or WIC card and photo ID)

Ella Sharp Museum

Fall Harvest Festival

Oct. 8, 12:00 pm- 4:00 pm Free Admission to Farm Lane

Mark your calendars! Fall Harvest Festival is BACK! Apples & Cider, Food Trucks, Make & Takes, Petting Zoo, Pumpkins

https/ellasharpmuseum.org/classesand-events/fall-harvest-festival/

Sensory Time

Every Saturday at 9:00 am 3225 4th Street, Jackson, Michigan 49203

During Sensory Friendly Hours, the Ella Sharp Museum will open its galleries at 9am, an hour before the museum opens to the public. Families with members who are neurodiverse, autistic, have other sensory processing disorders or cognitive disabilities are welcome to visit the museum for a quieter experience in a more controlled environment. Designated quiet zones will allow visitors to decompress and experience the museum at their own pace.

Prior to each program, families are invited to browse our “pre-visit” materials to help them prepare for their visit including social narratives and maps of our facility. These pre-visit materials are also available to help families plan for visits that take place outside of program hours and a sensory backpack is available at the front desk for use.

To provide the most sensory-friendly environment possible, we will limit the capacity for these special times to 50

Woodford — Publishing Assistant and Local Events

people. https/ellasharpmuseum.org/ classes-and-events/sensory-time/

Detroit Children’s Museum

Not-So-Scary Haunted House

Oct. 18- Oct. 31, 9:00 am- 4:00 pm

Wayne State University, 6134 2nd Ave, Detroit, MI

Looking for an appropriate way to celebrate Halloween with the kids in your life? Bring your little ghouls to the Detroit Children’s Museum’s Not-SoScary Haunted House! Opening Tuesday, October 18, and running through the holiday, this age-appropriate experience is sure to delight one and all. For additional Halloween fun, join us on Friday, October 21, for Owls, Bats and Spiders and again on Saturday, October 29, for our annual Halloween celebration.

www.sciencedetroit.org/DCM

SPORTS

Detroit Tigers

Oct. 1

Comerica Park 2100 Woodward Ave, Detroit, MI 48201

https/www.mlb.com/tigers

Detroit City FC

Oct. 14

Keyworth Stadium 3201 Roosevelt St, Hamtramck, MI 48212

https/www.detcityfc.com/

Detroit Red Wings

Oct. 14, 18, 22, 24, 26

Little Caesars Arena, 2645 Woodward Ave, Detroit, MI 48201

https/www.nhl.com/redwings

Detroit Lions

Oct.8 Panthers, Oct. 30 Raiders

Christia

Ford Field, 2000 BRUSH ST, DETROIT, MI 48226

FAMILY FUN

Detroit Zoo National Wolf Awareness Day

Oct. 15, 11:00 am- 3:00 pm

Meet the wolves who call the Detroit Zoo home! Say “hello” to Kaska and Renner, learn about their lives at the Zoo and discover how wolves survive in the wild.

Sensory Friendly Evenings

In Oct. | 3 to 7 p.m.

Check website for the day!

As part of our work to create accessible and welcoming spaces for all, the Detroit Zoo will turn down the music and adjust the lights during special evenings this summer.

Starting in June, the Detroit Zoo is hosting three Sensory Friendly Evenings for guests with different sensory needs. Sensory Friendly Evenings will take place from 3 to 7 p.m. on Aug. 30. During these times, the Zoo and its attractions will be open to all visitors, but special accommodations will be in place to ensure the Zoo can be enjoyed by families and individuals of all abilities.

What accommodations can I expect during Sensory Friendly Evenings?

• Reduced music volume at gate entry

• Reduced volume and adjusted lighting inside the Polk Penguin Conservation Center’s Shackleton experience

• Limited effects and adjusted lighting in the 4D Theater

• Reduced sound on the BRICKLIVE trail

• Altered music on the Carousel

• KultureCity sensory bags equipped with noise-canceling headphones, fidget tools and verbal cue cards will be available to guests who may feel overwhelmed by the environment. Guests can check out the bags at Customer Care and the Park Safety Office.

• Weighted lap pads and strobe glasses are available upon request.

• A dedicated sensory room is available for those who may need a quieter and more secure space.

Included with Zoo admission | Free for members | No event registration required

https/detroitzoo.org/events/zoo-events/ sensory-friendly-evenings/

Legoland Discovery Center Michigan

Sensory Friendly Mornings Check the website for upcoming Mornings

4240 Baldwin Rd, Auburn Hills, MI 48326

During Sensory Friendly Mornings, we’ll reduce the lighting, turn off music & disable distracting stimuli for an hour before we open to the general public. This event is perfect for our friends on the autism spectrum.

Sensory sensitive adults are welcome to visit during Sensory Friendly Mornings without a child (age 16 or under) in the party until the attraction opens to the general public at 10am. Adults who are not accompanied by a child must exit the attraction upon opening. Groups that are accompanied by a child are welcome to stay past 10am.

Tickets are limited and must be purchased online in advance for this special event.

https/www.legolanddiscoverycenter. com/michigan/tickets-passes/

Sealife Michigan

Sensory Friendly Mornings Check the website for upcoming mornings

4316 Baldwin Road, Auburn Hills, MI 48326

During Sensory Friendly Mornings, we’ll reduce the lighting, turn off music & disable distracting stimuli for an hour before we open to the general public. This event is perfect for our friends on the autism spectrum.

The aquarium will open to the general public with normal lighting, sound, etc. at 10am, but you’re welcome to stay as long as you like and do not have to leave when the event ends at 10am.

Tickets are limited and must be purchased online in advance for this

special event. Please check https/www. visitsealife.com/michigan/what-s-inside/ events/sensory-friendly-mornings/

Detroit River International Wildlife Refuge

Sept. 30- Sept. 31 Various Activities scheduled throughout the month 5437 W Jefferson Ave Trenton, MI 48183

https/www.fws.gov/refuge/detroitriver/events?event_date_and_

time=%7B%22from%22:%222023-0615T16:00:00.000Z%22,%22to%22:null %7D&$skip=10

MJR Digital Cinema

Sensory-Friendly Film

Check the website for movie times 100 East Maple Road, Troy, MI, 48083, United States https/www.mjrtheatres.com/sensoryfriendly-films?fbclid=IwAR1JnETT4LqVME0tv0TkWPiYH5lckEcSi4ou3EcdA4eyfbqJYLgmReJ00

EVENTS

Sweatpants and Mimosa’s An Autism Mom’s Event

Oct. 1, 2:00 pm- 5:00 pm Aries Colony Hall 21780 Evergreen Road Southfield, MI 48075

At this event, you’ll have the opportunity to meet and connect with other autism moms who understand the unique challenges and triumphs of raising a child with autism. Share your stories, exchange advice, and build lasting friendships in a judgment-free zone.

Indulge in a delicious mimosa (alcohol and non-alcohol will be available) while enjoying a light lunch and refreshments. We’ll also have engaging activities and discussions tailored to the interests and needs of autism moms. Take a break from your daily routine and treat yourself to a few hours of relaxation and support.

Don’t miss this chance to connect with fellow autism moms, unwind, and celebrate the incredible strength and resilience of our community. Mark your calendars for

Special Gift Prize Giveaways:

• Largest RSVP Seat Donation

• First In Door Prize

• 2 Game Prizes

• Special Gift Basket Raffle Prize

https/www.eventbrite.com/e/ sweatpants-and-mimosas-anautism-moms-event-registration688796307297?aff=ebdssbdestsearch

The DD Hero Walk

Oct. 7, Start time 3:00 pm- 5:00 pm Cutis Park, 440 W. Michigan Ave, Saline, MI 48176

Join the Work and Play Special Needs Resource Center Inc as we unite for a common cause and raise funds for programs and services for those with developmental disabilities of all ages at The DD Hero Walk. Whether you have a developmental disability, know someone who does, or just want to show your support, take the first step and donate or register today! Help us spread the word; all are welcome for our day of celebration!

To get started, just select the “REGISTER” button to start a team, join a team, or register as an individual. Additional family members can be added by selecting the green “Add Another Registrant “ button during Step 3. After you register, you can start your team or personal fundraising page by selecting the “Fundraising Page Set Up” button at the top of the online receipt.

https/www.ds-stride.org/ddherowalk

Champion for a Cause Promotions

Presents: The Hart of the Matter

Oct 13, 7:30 pm- 10:00 pm

HYPE Recreation Center of Western Wayne 4635 Howe Road Wayne, MI 48184

Get ready for an electrifying evening of professional wrestling and community impact! Join us for “The Hart of the Matter,” a live event like no other, taking place on October 13 at HYPE Athletics Wayne.

FEATURING: Bret “The Hitman” Hart

We’re thrilled to announce that wrestling icon Bret “The Hitman” Hart

will be appearing at the event! Also appearing: The “Man Beast” Rhino, The Motor City Machine Guns, The “OneLegged Wonder” Zach Gowen, “The Dearborn Destroyer” Karam Alame, and MUCH MORE

Supporting a Worthy Cause: Fredi the PizzaMan Foundation

Beyond the adrenaline-pumping action, this event is all about making a difference. Proceeds from ticket sales and sponsorships will be donated to the Fredi the PizzaMan Foundation. This incredible organization is dedicated to building sensory rooms in public schools, creating safe spaces for students with autism to learn, grow, and thrive.

Family-Friendly Fun for Everyone

“The Hart of the Matter” is designed to be an inclusive and family-friendly experience. We welcome wrestling enthusiasts, families, and individuals of all ages to join us for a night of laughter, cheers, and heartwarming moments.

What to Expect:

• Thrilling Wrestling Matches: Prepare to be on the edge of your seat as wrestling’s finest athletes deliver jaw-dropping moves and intense showdowns.

• Exclusive Promotions: Our event sponsors are offering exclusive product and service promotions that you won’t find anywhere else. Shop, dine, and explore while supporting a great cause!

• Meet & Greet: Upgrade your experience with our special meet & greet packages. Get a chance to meet Bret “The Hitman” Hart and other wrestling stars up close!

Make an Impact:

By attending “The Hart of the Matter,” you’re not just witnessing an extraordinary wrestling event, but you’re also contributing to a meaningful cause. Your support will help the Fredi the PizzaMan Foundation bring sensory rooms to more schools and positively impact the lives of students with autism.

Be a Part of the Action:

Don’t miss this golden opportunity to be part of a thrilling night while making a real impact in our community. Grab

your tickets now and secure your spot at “Champion for a Cause Promotions

Presents: The Hart of the Matter.”

https/www.eventbrite.com/e/ champion-for-a-cause-promotionspresents-the-hart-of-the-mattertickets-682307820057?af f=ebdssbdestsearch

NAMIWalks Michigan

Oct. 14, 8:00 am- 12:30 pm Wayne State University, 630 Merrick St, Detroit, MI 48202

The power of our mission is being felt as never before. The achievement of “Mental Health for All” has never felt this critical yet closer to being realized. It’s not how far we walk at NAMIWalks Michigan on September 16 at Wayne State University, but how far we’ve come to make our milestones count. With your support and high spirits, we intend to make an unprecedented impact on mental health in our community.

NAMIWalks 2023 represents a powerful chance to leave a significant mark on the local mental health landscape. Whether you’re a previous participant or a new voice waiting to be heard, we’re pretty sure you’ll find the festivities inspired and inspiring.

This year, changing the world begins at Wayne State University. See you there!

Dogs are welcome at certain NAMIWalks events. Please confirm the local policy before bringing your furry friends out to the event.

Register at https/www.namiwalks. org/index.cfmfuseaction=donorDrive. event&eventID=1427

Autism in the Park-Parent & Play Meet up!

Oct. 20, 4:00 pm & Sept. 16, 6:00 pm Rotary Park Hiking Trails, 32300 Six Mile Rd, Livonia, MI

Please join us (Parents of The Vend Bros) and mingle with other parents with kiddos on the spectrum (all spectrums of all kinds)!

Let’s vent together, take a break, let the kids play, and just relate! I’m always open to any questions so if you have some, bring them!

https/www.thevendbros.com/eventdetails/autism-in-the-park-parent-playmeet-up-2

Knights of Columbus Sweetest Day Dinner, Dance, & Raffle

Oct. 21, 4:30 pm- 11:00 pm

West Leonard Banquet Hall, 1140 Muskegon Ave, NW Grand Rapids, MI 49504

The evening will feature dinner, dancing, games for kids, and a raffle with prizes including Hall of Famer and sports celebrity memorabilia, jewelry, gift cards, and much more! This year’s event will benefit the Down Syndrome Association of West Michigan.

Tickets $15 for ages 6-12 and $30 for ages 12+. Children 5 & under are free!

Program Schedule

• 4:30pm: Social Hour with Games for the Kids

• 6:00pm: Dinner

• 8:30pm: Drawing for Raffle Prizes

• 9:00-11:00pm: Dancing and Socializing

PURCHASE TICKETS: https/www.dsawm.org/event/knightsof-columbus-benefit/

FREE Autism Fall Festival

Oct. 28, 11:00 am- 2:00 pm Success On The Spectrum - Trenton 3701 West Road Trenton, MI 48183

HAY THERE! You autumn know...come to have fun with us at our Fall Festival Don’t sweat the fall stuff - WE HAVE PLENTY FOR YOU TO ENJOY AND IT IS ALL FREE TO YOU!

• FOOD: Pizza/ Chicken nuggets/ French Fries/ Salad/ Drinks/Coffee

• GAMES: Pin the apple on the tree/ Witch hat ring toss/bounce house

• ARTS & CRAFTS: A balloon artist. And, we’ll have fun things for the kids to do

You will also have the chance to meet our amazing staff.

All ages and all abilities are welcome to this judgement-free environment! We cannot wait to have a gourd time with all of you!

https/www.eventbrite.com/e/ free-autism-fall-festival-tickets689616169527?aff=ebdssbdestsearch

IEP EVALUATIONS

Understanding the process

BY MARIA GIANCOTTI, M.ED - STUDENT ADVOCACY MICHIGAN

Evaluations are an important part of the IEP process and can be very powerful. Good evaluations provide valuable information about a student and his or her needs at school. There are many laws, legal timelines, and requirements that must be followed in the evaluation process. Understanding the laws and parental rights can be helpful in navigating IEPs and evaluations. Let’s review both initial evaluations and reevaluations to better understand the process.

SCHOOL INITIATED EVALUATIONS

A school has a responsibility to help identify and evaluate children suspected of having a disability under the federal law called Child Find. The law, initiated by IDEA, requires schools to identify, locate, and evaluate all children with disabilities, from birth through 21 years of age, who are or may need special education and related services. These services are appropriate for students who may have academic, social, or behavioral concerns. In Michigan, the law applies to children up to the age of 25. The school district has a legal obligation to initiate the evaluation process when they suspect a child may have a disability and could need special education, and they must do this without unnecessary delay.

PARENT INITIATED EVALUATIONS

Parents can also initiate an initial evaluation for special education at

any time. It is best to make these requests to the school district in writing. Once the request is made, the district has 10 days to respond. In most cases the district will conduct a REED (Review of Existing Evaluation Data) meeting to discuss the data currently available, what types of evaluations may be needed or to determine whether an evaluation is needed.

After the REED meeting, the team must provide a PWN (Prior Written Notice) to the parent outlining the evaluations to be performed, or an explanation of why they are refusing to administer an evaluation. If an evaluation is granted, parents must provide written consent to evaluate. The school district will then have 30 school days to complete the evaluation and provide a report. If no REED meeting is held, the school still has 10 days to respond and seek parental consent to evaluate.

REQUIREMENTS

It is important to note that the evaluation must be comprehensive and include assessments for all areas of suspected disabilities. Legally, a variety of assessment tools should be used to evaluate the functional, developmental, and academic abilities of the child. A single measure or assessment cannot be used as the only criterion determining if the child has a disability or to decide what educational program is appropriate. Information provided by the parents must be included in this process, so it is important for parents to provide detailed documentation in writing to the school about all areas of concern. Academic, social, and behavioral

concerns are considered in the evaluation processes.

REEVALUATIONS

The law requires students with an IEP to be reevaluated at minimum every three years, unless the parents and school district agree it is not necessary. Evaluations cannot be done less than one year from the last evaluation unless the parents and school district agree more data is needed. It is important to keep track of evaluation dates and ensure your child is reevaluated at minimum every three years. When circumstance and concerns arise before the threeyear mark, parents have the right to request another evaluation and should take that initiative. Each IEP contains a set of goals the child works toward with the appropriate accommodations. Parents and school personnel can monitor student progress to further determine when and whether reevaluation is needed within the three-year period. The goals can and should change as the student progresses.

Evaluations can be powerful for parents if they understand their rights and how the process works. By getting good data and understanding how to use it, parents can really help better shape an IEP for their child. Always remember that parents are a part of the IEP team! Parental input and concerns should be heard. If you feel your child would benefit from an evaluation, act now. If you need guidance or assistance in this process, we are happy to help!

MICHIGAN DYSLEXIA INSTITUTE (MDI)

BY ANGELA ARLINGTON

Michigan Dyslexia Institute (MDI) is a nonprofit organization that serves as a resource for instruction, training, and information relating to dyslexia. MDI envisions a world where individuals with dyslexia feel empowered and look forward to the future with hope and confidence. They offer testing, one-on-one tutoring for people of any age, teach educators how to teach reading/writing to students with dyslexia, and provide information and resources. MDI uses the Orton-Gillingham (OG) approach which is a proven language-based, multi-sensory technique that helps students learn written language.

“Developmental dyslexia is the most common form of learning disability (we like to say difficulty instead of disability!). It has many facets, but affects one’s information and language processing. If ignored, dyslexia can disrupt educational and social development, causing a wide range of difficulties. Our organization addresses these issues through one-on-one instruction, training teachers and advocating to local and state government for educational policies that support those with dyslexia,” Lauren Chance, MDI staff member, explains.

“We specifically focus on dyslexia and the language

processing difficulties that come with it. Having success with instruction can also support the emotional and psychological effects that we often see with those with dyslexia who have been told they are “dumb” or “will never learn to read or write.” We strive to teach them that they are smart, capable, have a purpose, and matter in the world. I think all five of our centers are safe spaces for those with dyslexia that often times have not felt safe in their school classroom or social situations.”

Most of MDI’s funding comes from donors. MDI is in desperate need of more instructors willing to be trained and provide tutoring to those seeking help, both in-person or virtually. They welcome and praise volunteers at any of their 5 centers throughout Michigan.

Lauren shares, “We care deeply for all of our students and the families that walk through our doors. We often get phone calls from frustrated parents with no one left to turn to. The hardest thing about our nonprofit is having to put people on a waiting list because we are understaffed. As a dyslexic myself who learned to read and write through MDI when I was young and now hold a Master’s degree, I know how they change everyone’s life who walks through their doors.”

Founders of the Michigan Dyslexia Institute, Kay and the late John Howell. They are the reason we are able to make a a positive impact on the lives on so many people. The number of people they have helped is unquantifiable. If there are angels here on earth, they are two of them.

Students with dyslexia start reading books for pleasure as they progress through their instruction, strengthening and practicing the techniques they learn through the OG Approach.

Teacher training session. MDI offers multiple training classes. Our goal is to infiltrate schools so that teachers have the tools they need to teach all of their students (approximately 1 out of 5 students are dyslexic).

Russ uses the multisensory sand tray. When learning a new sound/ symbol, the student writes the letter in the sand, while saying the sound and letter name. (Do+Say+Hear)=Multisensory

TESTIMONIALS:

This course is amazing! It is very intense, but the learning is so powerful. This was easily the most useful professional development I have ever attended, and what I have learned will have a direct impact on my students' success. Every elementary school teacher should have this training!

This is the BEST training I have ever had in my 11-year career. I wish I had had this training in my first year of teaching. I have a master’s degree in K-12 Reading and Literacy and, although some concepts were review, it was extremely beneficial. I feel like I FINALLY understand what and how I need to teach my students. I kept thinking of my students during this training and how this is exactly what they need to be successful. I truly feel that every educator should have this training! Thank you!

This is a testimonial from a woman on Facebook who started to receive tutoring at one of our centers when we diagnosed her with dyslexia and ADD at 30 years old. She had never known until then. Like she said, “it’s never too late”. It goes to show how intelligent and strategic people with dyslexia can be to get through obstacles even when not able to read or write above an elementary school level or sometimes barely at all. We love the ending where she talks about how learning disabilities (or learning difficulties) are hard but also a gift. Those are words we repeatedly tell our students and stand by.

On my long run Tuesday in MI, I happened to pass this WONDERFUL house. Michigan Dyslexia Institute. MDI was where I was first diagnosed (at 30 years of age) with Auditory Dyslexia and ADD. Where I found out I was not “stupid” or “lazy”... just processed things differently than most people. What a gift these women gave me in understanding why I had issues learning. The confidence it gave me to succeed in life. I was tested in grade school, and told I was just lazy and “ not college material”. My mom thought differently. She gave me a tape recorder and my sister gave me a Franklin Speller and sent me to college. MDI was amazed I got through college and praised my family for giving me the tools I desperately needed to succeed. Parents, I say to you, give your kids the gift of understanding if they have trouble learning. Get them tested, and help them in any way you can. It is never too late. If people can’t count change or take a bit longer to process something, there is a reason. Have patience. Learning disabilities are hard, but are also such a gift because of the empathy you have for others who have issues too. Thank you, MDI for helping me to understand my brain and how it works. Such an incredible gift.

My granddaughter had her life changed after tutoring when she was in grade school. Now she is an A student, outgoing and very full of self-confidence. She will be going to high school next year!

NATALIE 4TH GRADE TEACHER, INGHAM COUNTY

EMMALEIGH INTERVENTIONIST- INGHAM COUNTY

– KRISTEN- HARBOR SPRINGS, MI

– KATHLEEN, FORMER MDI PARENT

Campers from our Camp Starlight program through YMCA camp

Russ’s sister, Morgan, getting tutored in the Orton-Gillingham Approach

An example of our remote options for dyslexic instruction.

A child practicing writing using the OG approach

Learning disabilities (or learning difficulties) are hard but also a gift. Those are words we repeatedly tell our students and stand by.

Advanced Therapeutic Solutions, LLC

BY KENDRA ROGERS- EDITOR AND CHIEF

For people with special needs, especially children, finding a compassionate recreational therapy provider can be challenging. The search for appropriate care can be tough for those who don’t live in a major city. Advanced Therapeutic Solutions is working to make the search easier for Michigan-areas families.

Compassionate therapy is the mission Farmington Hills native, Sophie LeFevre, had when she founded ATS. Having surveyed the therapeutic offerings across Michigan, LeFevre decided it was up to her to bring the latest therapies to those who needed them most.

Today, thanks to her efforts and those of her tireless team, ATS is changing the lives of children and adults across Michigan–and they’re only getting started!

MAKING RECREATIONAL THERAPY ACCESSIBLE TO MICHIGANDERS

ATS provides in-home and community-based services to those with different abilities throughout Michigan. ATS offers activity-based therapies such as music, art, and recreational therapy. This unique focus distinguishes ATS and allows its clients to access various therapeutic options unavailable to the community until the company began offering them.

ATS is changing how special needs individuals get the skills and care they need to live fulfilling lives. However, in many ways, the company is just getting started. ATS is rolling out two new programs: community re-integration funded through no-fault insurance and recreationally based ABA therapy. Through both approaches, ATS hopes to support its clients more naturally.

THE INSPIRATION BEHIND ADVANCED THERAPEUTICS SOLUTIONS

ATS founder Sophie LeFevre has been passionate about special needs providers for much of her life. She grew up exposed to her mother’s deep passion for the special needs community, which she served through her job with Oakland County. That sparked a lifelong passion for serving differently abled individuals and helping them bring their unique spark to the world.

While at Western Michigan for her bachelor’s in interdisciplinary health services, Sophie fell in love with program planning and one-on-one personalized

treatment. Ultimately, Sophie followed her passion to her second bachelor’s at Eastern Michigan and master’s degree at Indiana University in Therapeutic Recreation.

After Eastern Michigan, Sophie started working with children and adolescents who faced physical, cognitive, developmental, social, and behavioral disabilities. After working in this field for over a year, she realized how many individuals needed to receive qualified specialized care. With that insight, she created ATS to serve those in need.

ADVANCED THERAPEUTICS SOLUTION’S COMMITMENT TO APPLIED BEHAVIOR ANALYSIS (ABA)

ATS advocates for and provides Applied Behavior Analysis (ABA) therapies. This approach has come under fire recently in the therapy community due to some practitioner approaches. ATS, however, approaches ABA in a more holistic way as it works to help those served. Rather than focus on training a single skill, ABA attempts to apply a broad range of skills in realistic settings. At ATS, they place a particular focus on the importance of play.

Advocates of ABA believe this approach can help patients better apply the skills they learn in realistic settings. Sophie even went back to school to try to change the world of ABA. She believes her experience can help to reframe discussions around the practice and give it more comprehensive exposure to those who may benefit from it.

ATS GIVES BACK TO THE COMMUNITY

In addition to changing views on ABA therapies, ATS is committed to helping its local community. ATS believes in treating its clients and their families with unique individualized support. ATS knows it isn’t just treating patients and their friends and neighbors.

The team plans on fundraising once their new programs are up and running. They plan to partner with organizations to give back and start a non-profit addition with continuing education after individuals age out of school.

For help and resources, reach out to Sophie at: www.advancedtherapeuticsolutionsmi.com or advancedtherapeuticsolutionsmi@gmail.com

MEET MARILYN WITTSTOCK

BY MARILYN WITTSTOCK

Clinton Valley Little League Challenger Division: An Overview The Clinton Valley Little League Challenger Division of Little League Baseball is a program for adults and children with physical and mental disabilities to enjoy the full benefits of Little League participation in an athletic environment structured to their abilities. Sportsmanship and fair play are hallmarks of the Little League program. The importance of physical activity for individuals with disabilities may include a sense of freedom, independence, inclusiveness, self-reliance, and a better ability to socialize. All of these experiences better integrate these participants into community life, thus adding value to the community.

In 2008, we built the first adaptive Little League Baseball field in Macomb County. It is located in Neil Reid Park and is called Norn Hott Field. Each year we register over 175 players, ages 5 and up. Clinton Valley Little League Challenger Baseball is open to all children and adults with special needs in the metro-Detroit area. Our regular season play is from June to August followed by Fall Ball in September and October. We have two divisions of play: The Junior League and Senior League. Games are two innings that last approximately one hour total. Every player bats and plays the field. There are no strikes or outs, and no score is kept. Players can hit off a tee or be pitched to by a coach. Buddies help the players with batting and fielding when needed. Every player receives a baseball jersey and hat for play. Games are played Monday through Friday in the evening and on Saturday mornings. Every player also receives a trophy at the end of the season. The playing fee is $40.00. The experience is all about having fun and learning baseball game fundamentals. We are very excited because plans and fundraising are in the works to build a second larger adaptive field for our Senior League players which will also be located in Neil Reid Park.

We are very proud that our CVLL Challenger Baseball program has thrived over the past 30 years. Our program also offers our players opportunities to attend Challenger Jamborees, Toledo Mudhens Special Needs Baseball camp, and the Detroit Tigers special needs game outings.

My personal story…..How CVLL Challenger Baseball began, the building of the first adaptive field in Macomb County and now the new Senior League adaptive field! I became involved in Little League Baseball when my son started playing in 1985.

In the 1990s, I served on the board of directors of Clinton Valley Little League. That is when I discovered that Little League Baseball Inc. offered the Challenger Division for children and adults with mental and physical disabilities to enjoy the full benefits of Little League participation in an athletic environment structured to their abilities. I had many friends who were special education teachers and thought how wonderful it would be for our league to offer this program. I then began contacting the scho ols and community interest developed. In 1994, our first playing season, we registered 14 players. In 2023 we expect to register over 190 players!

For 15 seasons, we played on public school fields which were not conducive to our players’ various needs. In 2006, I began a fundraising campaign to build our own ADA field. In 2008, our Challenger program of 100 plus now had its own field of dreams. A beautiful green playing field with extra-large dugouts and a rubberized base path, so wheelchairs can easily maneuver. The field was designed to accommodate a younger age group of participants. In 2014, Little League Baseball lifted the age requirement thereby eliminating the previous age limit for older players. We currently register over 100 players from the adult special needs community. Therefore, we now need to build a larger adaptive field for their safety. The new field will also allow a natural transition for the younger players to the senior league field. Norm Hott Field, our current field, is in Neil Reid Park located in Clinton Township. I am happy to announce that Clinton Township will be building, at their expense, a new ADA changing room attached to the existing restrooms at the park.

Clinton Township has given me the approval to build the new adaptive field in the same location. We have hired AEW (Anderson, Eckstein & Westrick Inc.) engineering firm to do the surveys and drawings and oversee the project. Premier Group Associates will be building the new adaptive field. The cost of the new field is approximately $270,000.00. We have raised $195,000.00. We are shovel-ready!

We are very proud to celebrate 30 years of offering Challenger Baseball in our community. We are fortunate to have many communities and individual supporters who have generously donated funds throughout the years. Their contributions have allowed us to maintain our current field in pristine condition and keep the registration fee at a nominal amount.

Clinton Valley Little League Challenger Division: Celebrating 30 amazing years!

CVLL Challenger Baseball is not just about baseball…. it’s a community beyond the backstop fence! It is a community of parents, players, family, friends, and volunteers supporting our children and adults with special needs.

CVLL Challenger Baseball brings families together with events such as Opening Day, Toledo Mud Hens Special Needs Camp, Detroit Tigers’ games, Fall Ball, Trick or Treat Day, and Challenger Baseball Tournaments in Michigan and Ohio.

CVLL Challenger Baseball helps players and families engage which is important to their physical and social well-being. CVLL Challenger Baseball is cheers, hugs, and smiles! I will continue to work hard so that every child and adult with a disability can come and play and get rewarded for how awesome they truly are, on and off the field!

Accomplishments:

• In 2014 we were invited by Little League Baseball Inc. to participate in the Little League World Series in Williamsport, PA, and be part of the first International Challenger Exhibition game. We played a team from Vancouver, BC.

• We were selected from more than 40 US applicants.

• In 2006 we began a campaign to build the first adaptive Little League field in Macomb County. We raised over $150,000 to build the new field. In 2008 we began to play and have maintained a pristine field over the past 15 years.

• In 2014 Little League Baseball expanded the Challenger Senior League Division to players 16 years old and up (no age limit). Since that time, the division grew from 55 players to now over 100 Senior division players, therefore, we need to build an additional and larger field for their safety.

• We are very proud that we offer our players and their families the opportunity to participate in Challenger Jamborees located in Michigan, Ohio, and Virginia Beach. We have participated for many years in the Toledo Mud Hens Special Needs Camp. Our players were selected to participate in the Detroit Tigers Fantasy Camps and Play Detroit Day at Comerica Park.

• We are very proud and humbled that I have received the following awards: Little League Baseball 2009 National Volunteer of the Year. Detroit News 2008 Michiganian of the Year. Detroit Tigers Champion of the Year. Play Place for Autism 2017 World Changer Award. Macomb Intermediate School District 2017 Service to Schools Award. Families Exploring Down Syndrome 2019 Appreciation Award.

TIMELINE FOR THE NEW SENIOR LEAGUE ADAPTIVE FIELD:

2018/2019 Fundraising campaign began.

2020 hired Giffel-Webster Engineers to do concept drawing on new field.

2022 contacted Premier Associates Inc. to build the new field and get estimate.

2022 contacted and hired Anderson, Eckstein & Westrick Inc. engineers to do final engineering drawings of the new field.

As of March 17, 2023, we have raised $205,000.00 but $270,000.00 is needed to complete the new field.

A Clear Path Toward A Brighter Future

Breaking Down Barriers, One Step at a Time

BY BRENT MIKULSKI, PRESIDENT/CEO OF SERVICES TO ENHANCE POTENTIAL (STEP)

Over the past few years, we have learned much about leading with empathy and caring for the people around us. Throughout the pandemic, we also learned about being isolated, emerging from our homes seeking inclusion in the things around us for people of all abilities. But for people with a disability, inclusion is a barrier. About 15 percent of the world’s population lives with a disability and faces daily obstacles.

It is a time for us to understand and appreciate what it is like to live with a disability and how people living with a disability can participate in our community, what barriers stand in their way, and what prevents people with influence from removing those barriers.

At the same time, we should look inward and see what friends, neighbors, business owners, and community leaders can do to be more inclusive. For example, you can get involved with several organizations in your neighborhood. This is an important way for you to make meaningful connections with people of all abilities and see things from a different perspective.

If you are an employer, hire someone with a disability. Workforce programs are available to support companies hiring people with disabilities. Businesses have long been drivers of social change. In hiring someone with a disability, you will find a very productive employee and someone who can inspire an entire workforce to make an impact. Doing something so simple, like volunteering or hiring someone with a disability, can go a long way in disintegrating stigmas, breaking barriers, making others feel a vital part of the community, and leading a fulfilled life.

Organizations like Services to Enhance Potential can help. Individuals with disabilities are encouraged to participate in daily opportunities that introduce and encourage them to join community activities. This includes cooking classes, art programs, volunteer opportunities, and job opportunities. These programs are designed with the individual in mind. From these programs, many people graduate to new opportunities and independent living.

October is National Disability Employment Awareness Month (NDEAM), which celebrates the contributions of America’s workers with disabilities past and present and showcases supportive, inclusive employment policies and practices that benefit employers

and employees. Locally, Home Depot, The Henry Hotel, MJR, BASF, Fleece & Thank You, Meals on Wheels, Bundled, Stonecrest Center, Westland Library, Detroit Wayne Integrated Health Network (DWIHN), Henry Ford Village, are breaking down barriers and leading the way in disability inclusion.

Let’s take this moment to get rid of labels and see the potential in everyone. If there is anything we have learned over the past few weeks, we need to cherish the people around us, no matter their abilities, and embrace them. This month let’s pay attention to the people around us and continue celebrating the people and organizations creating more inclusive environments.

Together, we can ensure everyone has the same opportunities to live life to its fullest. Together we can make a difference in the lives of individuals despite their abilities.

MEET NOLAN SPRIFKE

What is your Age, Grade and School? I am 15 years old. I am in 10th grade. I go to Northville High School.

What would you like the special needs community to know about you? What have been some challenges you have experienced and how have you overcome these challenges? I have highfunctioning autism but have attended general education classes throughout my schooling. I’ve always been interested in watching and playing sports. Baseball and basketball are my favorite

sports. I’m also very interested in the science of meteorology. I collect weather radios and record tornado sirens. I have a YouTube channel related to the weather as well.

Schoolwork has sometimes been a big challenge for me. I struggle to pay attention for long periods and taking notes is pretty tough. Thankfully I’ve had a paraprofessional (para-pro) since first grade to help overcome these issues. I’ve also had help with homework with my ABA therapists. I feel like I’m getting through school

a lot better in the last couple of years.

What advice do you have for others in the special needs community? Just know that there are people out there to help you. You just need to find good people you can trust. Keep following your dreams!

What sports or extracurricular activities do you participate in? I play soccer and basketball for my high school in the Unified sports program. I’ve also been bowling for about a year now with the Autastic

Athletes group over in Commerce. My bowling has majorly improved over the course of this activity.

Tell us more about your experience with those activities (how did you get started? What do you enjoy most? Any highlights of your experience so far?) I got started with Unified Sports during my freshman year of high school. A few teachers at the high school told me about the Unified program. I wasn’t sure about it at first but after deciding to do it and playing my first game I had a blast from

then on. I heard about the Autastic Athletes through our community schools bulletin. My bowling experience was very limited before starting with them. I’ve made a great new friend at my bowling group which makes me happy. I was very social during Unified sports and made lots of friends. I felt like I belonged and didn’t feel left out as I did sometimes before these programs.

A couple of highlights so far included scoring the game-winning goal in the Unified soccer championship and I scored around 10 points including two baskets at the very end to beat our rival high school. In bowling, I’ve progressed to not using the gutter rails. I’ve also gone from

using two hands to using one hand with the finger holes. I look forward to continuing with both of these groups!

Name someone you admire. What makes them special and how have they motivated you? Someone I admire is the Unified sports head coach at my high school. She is the first one that really introduced me to competing in sports. Her approach helps to keep me calm and focused because sometimes I have a hard time controlling my emotions during sports.

When I grow up, I want to be... OR After high school, my plans are... When I grow up, I want to go into a career in tornado siren maintenance.

Favorite Food Takis

Favorite Color Blue

Favorite Music Top 40, Pop

Favorite Movie or TV Show

Buzz Light Year, sports on TV especially baseball

Favorite Sports Teams

Atlanta Braves, Detroit Tigers

Favorite Subject in School

Social Studies

Favorite Vacation

Disney World

Blended Family Our

MEET THE KANIA/PALAZZOLO FAMILY

BY ANNE MARIE PALAZZOLO AND REBECCA KANIA

Our family is big, busy, silly, and most of all, ambitious. Whether its Wes signing up for a 50-mile trail race, “just to see if he could do it” or Anne Marie deciding to fulfill all of her dreams at once and open a school, a childcare center, and expand her enrichment class offerings simultaneously, we love a challenge.

The Kania/Palazzolo Family consists of Wes, Anne Marie, Rebecca, Tommy (13), Juniper (11), Noble (7), Lavender (4), and Shelby (2). We’re a blended family with lots of things that make us unique. Down syndrome, Sensory Processing Disorder, Primary Immune Deficiency, and PTSD are all challenges we deal with every day, but we’re also artists, teachers, future engineers, business owners, athletes, volunteers, friends, and so much more.

Starting with our youngest members, Lavender (4) and Shelby (2) are stepsisters as well as best friends. Despite losing her spot as “the baby” when our families combined, Lavender is very proud of her role as a big sister now, even wearing a bracelet that says “big sis" on it. They share a bunk bed and a room furnished with a dollhouse taller than either of them, plenty of baby Yodas, and a play kitchen Julia Child would envy. You can usually find them together, often making mud pies or building and smashing magna-tile towers.

Noble (7) is our future engineer. He loves to take things apart, figure out how they work, and make his own inventions. He is our family’s “fashion consultant”, always ready with an opinion on your outfit. He enjoys competing in Spartan obstacle course races (https/race.spartan. com/en/race/spartan-race-obstacles) like his bonus dad, Wes. Fenton boasts the opportunity for those with special needs to become Ninjas, too (https/tricountyninja.com/)

You can usually find Noble outside, reading Dog Man books, or building his latest Lego set.

Juniper (11) is our artist. She is an incredible painter and sketch artist and has a love for all animals, even bugs, reptiles, and her pet rats, Luna and Dawn. Juniper has Sensory Processing Disorder (SPD) and while it caused incredible challenges for her early in life, she has made great strides in learning to regulate herself. Art helps her to decompress after a day full of too much stimulation. Obstacle course races and headstands help her get the “input” she needs on days when she’s feeling dysregulated. The hard work of obstacle courses like the Spartan course provide the kinds of input she needs to help her body feel good again. Juniper aspires to become the Art Director at AMPed Education someday and is already excellent at playing with and supporting her siblings.

Tommy (13) is kind, friendly, and generally enjoys the commotion of a house with 4 more kids in it now. He’s always up for a stuffed animal battle and will work relentlessly to get them all out of his room before his siblings throw them back in. Tommy loves a good game of frisbee with his cousins, riding his Rifton bike, cooking with Gramma, cheering on everyone around him, sharing a bowl of popcorn with Mom while watching Yo Gabba Gabba, SpongeBob, Mr. Tumble, or Handyman Hal, singing and dancing to his favorite songs from the shows, and playing games. One of Tommy’s favorite places is Elizabeth

Park in Trenton (Mom’s hometown). He loves to walk along the riverwalk and feed apples to the fish, play on the playground, watch the ponies and just hang out outside by the water. Tommy has Down syndrome as well as a primary immune deficiency and several food allergies, among other things, that create challenges. Rebecca and Anne Marie work together to ensure consistency between the households to help Tommy with transitions and challenges.

Rebecca stayed at home with Tommy for the first nine years of his life. Managing his many doctors, illnesses, therapies, activities, etc. was a full-time job. They lived in several states before settling in Michigan in late 2019 when Wes found a promising professional opportunity that returned them home. Rebecca has a huge family and life-long friends in SE Michigan who provide an amazing support system, and fun-filled weekends, holidays, and family vacations. She wants new parents to know that they don’t have to do this alone. Connecting with local organizations that provide resources for special needs families and not hesitating to get in touch with any service needed can help eliminate lonely feelings. Rebecca says, “You don’t have to do this alone, trust your gut, speak up, ask for what you need. If you don’t know what you need, that is perfectly normal, but tell someone. Think of your child’s education team as your partners, part of your support system. Work with them to get what your kiddo needs.”

1 / Tommy and Mom 2 / Wes and Anne Marie 3/ Wes and Juniper 4 / Tommy and Max 5 / Tommy hitting the road! 6 / Tommy loves swimming 6 / Tommy and Mom 8 / Tommy, Juniper, Lavender, Noble and Anne Marie

Rebecca has been a fully remote, certified marketing strategy consultant for a firm out of DC for almost three years and recently joined the Executive Board of the Down Syndrome Guild of Southeast Michigan. In her downtime, Rebecca enjoys challenging workouts, taking their Golden Retriever, Max, on hikes, trying new foods, cooking, spending time with friends and family, kayaking, axe throwing, horseshoes, Bocce, snowmobiling, and more. “Divorce is always challenging for all parties, but especially for the children. My only concern is that my child is happy and as healthy as can be. I’m grateful that Tommy now has Anne Marie as a bonus mom. We have similar parenting styles and good communication” Rebecca shares.

I, Anne Marie, have wanted to be a teacher since I was five years old. As the sibling and daughter of people with disabilities, I saw so many deficits in the way their care and education were managed that I knew that a focus on special education, particularly emotional impairment, was my path. I have worked as a tutor for at-risk youth, a direct care worker in a group home, a private in-home special educator, a support coordinator for adults with developmental disabilities, an educational advocate and consultant, and most recently, the owner and special education director of our private microschool in Metro Detroit, AMPed Hybrid Academy. Volunteering has also been a big part of my life. I am a baby-wearing educator, focusing on children with special needs and also served as a volunteer breastfeeding counselor.

Wes, Dad and bonus-dad (or “Bad” as we call him!) enjoy football, Spartan obstacle course races, trail running, and most recently, competitive powerlifting. He’s also never met a doughnut he doesn’t like. In addition to working in the automotive industry, Wes is the co-owner and “Secretary of Boring but Important Things” at AMPed Education, the private education business founded by me, Anne Marie, his wife. Thanks to his education and experience in the business world, and his fluency in

“corporate jargon”, he’s able to take on the “Boring but Important Things” required to run a quickly growing business while I focus on developing programs, and teaching. His dedication to being an active and supportive father to all five kids continues to impress me and those around him. Despite being an only child, he is somehow unfazed by the chaos five young children bring to our house.

AMPed Education grew out of Anne Marie’s dissatisfaction with how children with disabilities of all kinds were being educated. While some challenges were considered “severe enough” to warrant special education services and accommodations, so many students fell through the cracks, deciding that they were “just not that smart.” Starting with private tutoring for students on the brink of failing, she began seeing students in small groups in their homes or virtually during the pandemic. This concept seemed to work so well for many, that their parents never sent them back to school. Instead, Anne Marie stayed on as their private teacher, helping support their parents in homeschooling them. The AMPed Hybrid Academy brings this concept to more students than she could serve alone. Small, mixed-age cohorts learn together 3 days a week with a projectbased learning model. The other 2 days, they continue their education at home with an individually chosen set of curricula for each student. At a fraction of the cost of hiring a private teacher, our goal is that the academy can serve more students in need of a non-traditional learning environment. As someone living with PTSD, Anne Marie says she is even more aware of the value a small, supportive learning environment can have on students, especially those with “invisible disabilities”.

With the number of blended families continuing to grow, so too are the number of blended families involving children and adults with special needs. Anne Marie says, “In our family, planning meals, activities, trips, and even bedtime schedules, are influenced by the needs of all of our family members. Making sure

9 / Juniper, Noble, Lavender and Shelby

10 / Lavender and Tommy

there are ample places to sit down and take a break from noise and other stimuli when planning an activity helps support our members with SPD, Down syndrome, as well as PTSD.” These and other similarities in needs, despite being for different reasons, have helped everyone understand and connect as they combined their families.

Another thing that helped our family in the early days, was having our kids watch videos made by kids with Down syndrome to help them understand what it was. We also had open conversations about what their stepbrother’s abilities and disabilities were since they are not always obvious, especially to children. Our youngest members seemed to adjust the fastest with Lavender and Shelby both barely recalling a time without “everyone”. Finding activities that they could all enjoy has been pivotal in their bonding as well. Tommy and Noble share a love of SpongeBob and can often be found snuggled on the couch watching it, just don’t point it out or they will stop! All five kids share a love of bubbles and frequently hold “bubble dance parties” with our bubble machine on high and their favorite silly songs playing. We’ve found some local playgrounds that offer the challenge our young obstacle course runners want, and the accessibility our others need.

While Wes, Anne Marie, and Rebecca don’t pretend to have it all figured out, they know all of their children are happy and have their needs met, whatever those may look like. In Anne Marie’s & Wes’s house, being a team, assuring all five children that we are both parents with equal authority in the family, has helped the transition to be relatively smooth. The terms “bonusmom” and “bonus-dad” are definitely applicable in their house.

As Anne Marie once overheard Juniper explaining to Lavender, “It’s called a bonus-dad because it’s an awesome bonus that you get an extra person to love you!”

Juniper & Noble at the Spartan obstacle course races

Shelby and Lavender