Autism Alliance of Michigan https/autismallianceofmichigan.org/
Autism Support of Michigan https/autism-mi.org/
Behavioral Health and Developmental Disabilities Administrationwww.michigan.gov/mdhhs/ keep-mi-healthy/mentalhealth/procurement/ welcome-to-behavioral-health-and-developmentaldisabilities-administration
Michigan Foundation for the Blind and Visually Impaired Michigan Developmental Disabilities Council www.michigan.gov/mdhhs/keep-mi-healthy/ mentalhealth/developmentaldisability
Michigan Rehabilitation Services (MRS)
Capital Area Down Syndrome Association www.cadsa.org
IMPORTANT PHONE NUMBERS
911
833-633-5788
833-633-5788
517-241-3740
800-75-SEALS
Deaf and Hard of Hearing Services (DHHS) www.deafhhs.org/ Disability Determination Bureau Division of Aging www.michigan.gov/mdhhs/adult-child-serv/adultsand-seniors/behavioral-and-physical-health-andaging-services/aging-services Division of Family Resources (DFR) www.michigan.gov/mdhhs Easterseals MORC www.easterseals.com/MORC/
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Jamie Olson: Uniquely You! Magazine Area Director jamie.olson@n2co.com 248-882-8448
517-374-1171
269-345-1913
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517-241-3740
517-241-3740
833-808-7452
800-457-4584
313-446-4444 988
517-241-7004
517-284-7290
800-772-1213
1-800-772-1213
833-633-5788 517-203-1200
517-241-5324
Emergency Ealy On Michigan https/www.michigan.gov/mde/services/earlylearners-and-care/special-ed-05/early-on-michigan
Michigan Department of Education: Office of Special Education https/www.michigan.gov/mde/services/ special-educationMichigan Family Forum Michigan Family to Family www.f2fmichigan.org/
Michigan Foundation for the Blind and Visually Impaired Michigan Department of Health and Human Services www.michigan.gov/mdhhs
Michigan Family and Social Services Administration (FSSA) www.michigan.gov/mdhhs
Michigan State Department of Health www.michigan.gov/mdhhs
Michigan Statewide Independent Living Council (MSILC) www.misilc.org/
Medicaid Disability
MI Choice Waiver Program
National Alliance on Mental Illness
Preschool & Out-of-School Time Learning www.michigan.gov/mde/about-us/mde-divisions-andoffices/preschool-and-out-of-school-time-learning Self-Advocates of Michigan (SAM)
Social Security Administration (SSA)
Social Security Disability Insurance (SSDI)
Special Education Questions
United Cerebral Palsy Association of Michigan ucp@ucpmichigan.org
Vocational Rehabilitation Services (VR)
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PANDAS (Pediatric Acute-onset Neuropsychiatric Disorders Associated with Streptococcus) is a condition that affects children who have experienced many strep throat infections. The bacterium in their bodies results in neurological symptoms. PANDAS generally results in autism-like symptoms and diagnoses of autism. PANDAS is a subset of PANS: Pediatric Acute-onset Neuropsychiatric Syndrome. It can mean relapsing-remitting OCD, rapid emotional changes, rages, changes
in handwriting and overall school performance, among other symptoms. The RussellWoodard family learned about their oldest son’s PANDAS/ PANS when he was 4 years old, and a physician noticed the elevated bacteria levels in his body after learning about his aggressive symptoms.
Jennifer, Aubrey’s mother, shares that Aubrey was just 2 at the onset of his initial sensory processing issues. Kai is Aubrey’s younger brother who is also diagnosed with PANS/PANDAS. Like other neurodevelopmental conditions, Aubrey and Kai express the same diagnosis differently. They both experience autismlike symptoms but Aubrey also exhibits flares of OCD while Kai’s are PDA. Now 9 (Kai) and 13 (Aubrey), the boys and their parents have significantly improved. That is not to imply they are not without plenty of struggles. Jennifer recounted her frustration at a therapist telling her to “fill her cup” after a significant outburst after a therapy session. Parents of special needs children know all too well that
we neither have cups nor the ability to fill them.
School has been another significant challenge for the Russell-Woodard family. Each time they think they have a “right” fit, something happens that pushes them back to the beginning. Again, though the family recently began a new schooling journey that “felt right”, they have had to change gears upon learning just a week in that it didn’t fit their needs. After years of attempting public, private, and charter schools with IEPs without finding a good fit, this endeavor finally felt like it might be the answer that allowed Aubrey and Kai to have the learning environment that was right for them. Unfortunately, it seems the past replays and the school was not able to meet the boys’ needs as Jennifer anticipated. Jennifer, working to run a new company, and her husband are busy professionals working to engage their boys with opportunities to grow academically and socially so
homeschooling is no longer sustainable, like for so many families.
In addition to school, talk therapy, and other medical support, Aubrey enjoys playing guitar when he chooses to (remember, PDA) and learning about whatever his current “deep dive” interest is. Right now, D&D is his passion. Jennifer has expertly crafted ways for him to enhance his life skills through his passion, too. Aubrey is learning to write scripts, create board games, and edit videos for his YouTube channel. Kai works hard on the ice playing hockey with the Police Detroit Athletic League where Jennifer has found the elusive beast—fellow parent support and coach support. Not only is Kai advancing his abilities, but Jennifer is surrounded by people who not only abstain from judging but jump in when needed. Recently, Kai had a meltdown on the ice and the coach helped him
regulate while a parent encouraged Jennifer. Kai also plays 4 different instruments. His hyperfixation helps him be a strong musician.
Battling vestibular dysregulation, immediate gratification demands, inability to self-regulate, school challenges, and intense rages, Jennifer knows she is the calm in every storm. That doesn’t quell the existence of storms beating her down from every angle, yet she surges on working to create spaces for Aubrey and Kai where they can be safe. Not only safe but fulfilled. Like other families of special needs children, Jennifer wants her boys to be successful in life in ways that continue to bring them joy and allow them to be who they are. She fights daily battles, not only with her sons but with society to make this happen. Every special need looks different, but everyone comes with
SHE WISHES FOR COMPASSION AND KINDNESS IN A WORLD THAT LACKS EMPATHY TOWARD THOSE WHO ARE DIFFERENT.
a human being attached to it who deserves love and acceptance.
Being the constant caregiver leaves little to no time for parents to reconnect and regroup. Jennifer and her husband have a rare date-night babysitter who gives them a reprieve, but no one to help during the long days of constant management. The isolation parents of those with special needs feel every day weighs heavily. There are times when hope wanes and complacency tries to steal joy. Remaining steadfast when her boys are melting down over screen resets and expectations takes a toll on Jennifer. In these times, she, like others, wonders whether she will be able to prepare her sons for a world where they are not understood and seem unwanted. She wishes for compassion and kindness in a world that lacks empathy toward those who are different.
A Picture is Worth a Thousand Words and Milestones and Favorite Memories
CELEBRATING LIFE’S MILESTONES AND MEMORIES in Uniquely You! Magazine is a beautiful opportunity to preserve the essence of special moments through photos. Whether it’s a first step, graduation, vacation, or any cherished occasion. Each photo tells a unique story of joy and achievement. It’s a chance to share these meaningful experiences with others who can appreciate and celebrate each journey.
We are also celebrating October, November, and December Awareness Months, inviting you to share a photo that captures a special moment related to an Awareness Month. Customize your caption to highlight the moment’s meaning to your family.
Where Children BLOOM
Uniquely You! A Picture is Worth a Thousand Words for October, November and December Awareness Months!
Uniquely You! - Milestones and Favorite Memories
Join Services To Enhance Potential for our 8th Annual STEPS To Success
As October approaches, the air is buzzing with excitement because it’s National Disability Employment Awareness Month! And what better way to celebrate than with Services To Enhance Potential (STEP) at our 8th Annual STEPS To Success event on Thursday, October 24, 2024, at the iconic Jam Handy in Detroit!
This isn’t just any event—it’s a gathering of advocates and visionaries, coming together to make a difference. By supporting this event, you’re not just attending; you’re making a way for others’ lives to be transformed.
Our goal is clear: to empower individuals with barriers to employment, by providing them with the tools, skills, and opportunities they need to thrive. Through skill-building programs, supported employment initiatives, volunteer opportunities, vocational rehabilitation, and more, we’re breaking down barriers and paving the way for success.
The event promises an unforgettable experience, complete with delicious cuisine, artwork from the Progressive Art Studio Collective (PASC), accolades honoring our members, partners, and community advocates, plus exciting raffle prizes! The highlight of the evening is our STEP Thrift Store Fashion Show, showcasing outfits crafted for our models from unique thrift store treasures.
We invite you to join us for this inspiring event! For more details, visit https://stepcentral.org/8thannual-steps-to-success-2/
STEPS to Success Models
STEPS to Success Attendees
Springhill Pooled Accounts Trust
BY ANGIE ARLINGTON
“Springhill Pooled Accounts Trust is a trusted advocate in the special needs community. As professional trust administrators, we manage your assets, distribute funds for discretionary expenses, and help maintain your public benefits eligibility,” Kathleen Cecil explains.
“We take the time to understand beneficiaries’ specific needs to determine if our trust is the best option for their long-term goals. Our beneficiaries have a dedicated point of contact and the reassurance their assets are managed and invested responsibly.”
mechanisms designed to manage financial resources while assisting beneficiaries with preserving eligibility for essential government benefits. They provide education and partner with special needs families, professionals, and organizations who advocate for individuals with disabilities.
“Caring for a loved one with a disability can be very overwhelming. Our goal is to provide training surrounding the benefits of special needs pooled trusts and partnering with local organizations that are dedicated
TESTIMONIALS SHARED:
Nick was thankful for an inheritance left to him after his grandfather passed away. He now had funds to use to finish his degree without incurring sizable student loans. However, Nick receives benefits and the assets would cause a disruption in his much needed medical coverage. He was advised by his attorney that directing his inheritance into the Springhill Pooled Accounts Trust would allow him to not only keep his benefits, but also provide a funding source for his tuition.
Natalie has Social Security Disability Income and Medicare. Based on her benefits we are able to use her Trust to help with housing related expenses such as rent, utilities and home improvement modifications that make her home more accessible.
Note: The above individuals are not actual beneficiaries of Springhill Pooled Accounts Trust, nor are these photos of actual beneficiaries. The above stories provide examples of how a beneficiary may be able to use their Trust. Springhill Pooled Accounts Trust staff cannot offer legal advice. A personal attorney is recommended.
Each month Greg’s parents make sure all his needs are met. However, there are months where his personal assets bump up against the $2,000 asset limit. Greg’s parents didn’t want to feel that they needed to spend his money on unnecessary items in order to stay within the asset limit to preserve his benefits. They learned about the Springhill Pooled Accounts trust and realized it was a great place to deposit any overages he accrued throughout the year with the knowledge that the funds would be available for Greg’s use when he needed them.
Every autism journey is unique. That’s great – and terrifying
All typical children are alike. Each atypical child is atypical in their own way.
BY STEVE FRIESS
IN BORROWING TOLSTOY , I hope I’m not showing myself as a pretentious egghead. It’s just that while I never understood the opening line of “Anna Karenina” as it pertained to families, I totally get it as it pertains to kids who are neurodivergent and the parents who love them.
My son, Nevada, turns 5 soon. He’s very bright, usually very happy, has a lovely sense of humor and can be very affectionate. He also probably can’t tell you what he had for lunch today – not because of his speech delay, which is improving all the time, but because, well, he just can’t. Or he won’t. It’s hard to tell which.
This is probably not a kid who would have been classified as autistic before the widespread adoption of the spectrum. Rather, he probably would have been labeled as disobedient and occasionally violent – and we would have been regarded as (and felt like) terrible parents. I can see where his outbursts, his refusal to listen, his intense aversions to things like sitting still or leaving a favored activity or entering the bathroom would have been seen as disciplinary problems.
We would have been receiving unsolicited advice from family, friends and probably strangers at Kroger and the neighborhood pool
about how we need to crack down and stop being so lenient.
Clearly, then, the spectrum is a wonderful, important construct. It provides context for a kid like ours whose capabilities go well beyond what autism meant even 25 years ago. It gives families like us hope and access to strategies, therapies and interventions. It relieves the guilty conscience of parents who feel like failures for not being able to teach a kid to button his pants or suck on a straw.
All that said, because autism is such a broad spectrum, it maroons each of us on our own unique island. The first thing you want to know when you
receive any medical diagnosis is how other people have fared, what other people have done. When you learn you have cancer, you find others who have had it at your stage, you read up on treatments and outcomes, you lean on others who have been through it for moral support and encouragement.
That’s so much harder with an autism diagnosis. What is the best “treatment”? Nobody really knows and/or it depends on the circumstance. What are the odds of “beating” it? You don’t “beat” it so much as learn how to cope, how to create the space that enables the person with autism to fulfill their potential.
These days, you probably go to social media. You join a group. And you mentally compare whatever you can glean about each kid to yours. This one
won’t eat anything? My kid has a great palette and appetite. That one loses his mind if the day’s routine is disrupted? My kid loves variety. This child got his diagnosis at 9? Mine has been receiving interventions since he was 30 months.
And on and on it goes. You break your kid’s autism down into component parts and see who has biting issues, potty issues, speech issues, attention issues. The permutations are endless – and that doesn’t even address the fact that you also want insight from parents with kids the same age (and sometimes gender) as yours.
The question a parent with a child on the spectrum wants to know the answer to is how their kid will be as adults. There are loads of examples for that, too, which means
you’re basically choosing your own adventure based on your access to services, your innate optimism or pessimism, and what you know about your kid.
The spectrum makes a lot of things possible. It draws in a larger population which, in turn, creates political pressure to make the world more autism-friendly and social pressure to be kinder, more patient, more understanding.
I feel lucky to be contending with our son’s challenges in this era. I wouldn’t want to be doing it when I had to fight for legal rights and services or before so many scientists have done so much helpful research.
But often enough, even with the benefit of all that knowledge and progress, we still feel alone.
Clearly, then, the spectrum is a wonderful, important construct. It provides context for a kid like ours whose capabilities go well beyond what autism meant even 25 years ago.
XAVIER’S STORY OF AUTISM CARE
Diagnosed with Autism at only two years old, Xavier has always struggled to communicate and connect with the world around him. His parents knew little about the autism spectrum or what hurdles would lie ahead of them as a family.
As Xavier got older, his difficulties with expressing himself continued to increase and often led to him acting aggressively toward others. Carla, Xavier’s mom, knew they needed help from professionals.
Over the last 12 years, the caring staff who work in Judson Center’s Autism Connections program have helped Xavier find his voice. Now 15 years old and taller than his mom, Xavier communicates with the assistance of a tablet and has learned to manage his emotions. He has spent several years participating in Applied Behavioral Analysis (ABA) and has learned new skills with Jess, his Board-Certified Behavior Analyst (BCBA).
Carla says, “Judson Center has been a miracle for us. They’re like family. They’ve changed his world and our world. It’s clear they want Xavier to lead a fulfilling life. And I think that’s what they want for all of their clients.”
https://youtu.be/ag9yHcbv-Mg
Xavier Solo
ADVOCATE LIKE A MOTHER
LET’S TALK DYSLEXIA
BY MARIA GIANCOTTI, M.ED - STUDENT ADVOCACY MICHIGAN
UNDERSTANDING DYSLEXIA IS CRUCIAL
for parents navigating their child’s educational journey. Dyslexia is a common and often misunderstood learning disability that primarily affects reading and language processing. These challenges can significantly impact a child’s academic performance. Recognizing the signs of dyslexia and understanding its broader effects on learning is essential for getting the appropriate support. Let’s dive in and explore basic dyslexia facts, how it impacts learning, and what a proper evaluation consists of.
FACTS ABOUT DYSLEXIA:
Dyslexia is a specific learning disability that primarily affects reading and language processing which can greatly impact learning. It results from differences in the way the brain processes written and spoken language. Here are some common facts about dyslexia:
• It affects 5-10% of the population.
• The ratio of diagnosis for boys to girls is approximately 2:1, meaning boys are diagnosed about twice as often as girls.
• Dyslexia tends to run in families and if a parent has dyslexia, their child has a higher likelihood of having it, (40% to 60% heritability).
• Children with dyslexia often perform below grade level in reading leading to lower academic achievement compared to peers.
• Dyslexia can co-occur with other learning difficulties, such as dyscalculia (math-related difficulties) and ADHD. Estimates suggest about 20-60% of children with dyslexia may also have dyscalculia.
• Dyslexia is often identified in early elementary grades (K-3).
• Research shows that early, targeted interventions can significantly improve reading outcomes and help mitigate the impact of dyslexia.
IMPACT OF DYSLEXIA ON LEARNING
Dyslexia primarily affects reading, but its impact can extend beyond literacy to influence various cognitive, educational, and emotional areas. Here’s a broader view of how dyslexia can affect different aspects of life:
• Reading Decoding (breaking down words into their component sounds and blending them into words)
• Reading Fluency (reading speed)
• Word Recognition (difficulty recognizing common words automatically).
• Spelling (inconsistency and struggling with spelling rules)
• Writing (organization, grammar, punctuation)
• Reading comprehension (understanding/remembering what has been read, following multi-step instructions or making inferences)
• Phonemic Awareness (identifying/manipulating individual sounds in words)
• Memory and Learning (holding and manipulating information, remembering spelling patterns, vocabulary, information presented through reading)
• Meeting Grade Level Expectations (difficulty keeping up with gradelevel reading, writing tasks)
Many of these challenges can have a negative impact on self esteem and motivation as well. Struggles with reading can lead to frustration, low selfesteem, and a negative attitude towards school and learning. Lack of confidence in reading abilities can reduce motivation and engagement in academic activities.
PROPER EVALUATIONS FOR DYSLEXIA
A comprehensive evaluation is required to determine if dyslexia is present. The assessment should include multiple aspects of cognitive and academic functioning. While a school cannot make a diagnosis, they can identify key areas of deficits relevant to dyslexia that can lead to an IEP and proper support at school.
The following areas should be evaluated when dyslexia is a concern:
1. Reading Skills (decoding, fluency, comprehension, word recognition)
7. Behavioral and Emotional Factors (school observations/feedback)
8. Medical and Developmental History (relevant health issues, developmental history)
9. Educational History (input from teachers/parents)
10. Family History (genetic factors/family history of reading difficulties/dyslexia)
Dyslexia can present unique challenges in learning not limited to reading. Understanding the signs of dyslexia and getting a proper evaluation are key in supporting your child. The earlier deficits are identified, and interventions are implemented, the better the outcomes. Don’t delay getting help. Now is the time to advocate for your child! If you need advocacy support, reach out to Student Advocacy Michigan today at 248-372-9770. Also check out our blog post “Revolutionize Your Child’s Dyslexia Accommodations” for great accommodation ideas on our website at www.studentadvocacymi.com.
Navigating Our Emotions on the Spectrum
By understanding our emotions, we are able to express and share them and this prevents us from being overwhelmed and controlled by them.
BY RON SANDISON
M any people with autism have difficulty expressing and sharing their emotions. Instead of managing our emotional level, we allow emotions to control us. For years my emotional arousal was like a light switch that is either on or off. I was easily overwhelmed by my feelings and environment. Any change in my routine caused an emotional overload leading to a honey badger meltdown.
I often share in my presentations, “Most people’s emotions are like bottled water; when shaken up they feel a little anxiety—not much else is happening. I am carbonated neurologically like Mountain Dew, I get stirred up, KA-BOOM!!! Anyone want to do the Dew?”
Imagine, carrying a two liter of Mountain Dew and each time you get anxious or upset, you shake up the Dew. On your drive to work an
elderly woman with her eyes barley above the sterling wheel is driving a Ford Escort ten miles under the speed limit; making you late—shake the Dew. You arrive 15-minutess late and your supervisor yells at you- another shake of the Dew. You open your backpack and realize you forgot your lunch, time to shake the Dew. By evening you have shaken that two litter twenty-five times, you open it--- KA-BOOM!!!
Now imagine you don’t open the Dew quickly but with a steady hand you gently and gradually open the two litter, now instead of a KA-BOOM, you release some fizz, and the rest of your night is not ruined by dysregulation. During the past decade, I’ve learned five methods to navigate my emotions and express and share them in a positive way. Managing my emotions enables me to stay regulated and work full-time in a high stress environment, a psychiatric hospital. You also can navigate your emotions and experience fewer dysregulations throughout the workday.
First, understand your emotional triggers—what makes you anxious, sad, or upset? Two emotional triggers for me are a change in routine and anxious thoughts from reading social media articles on politics. When I have a change in my work routine, I calmly remind myself, “This too shall pass.” After saying this, I plan a fun activity that will help me decompress from a tough day of work. I handle anxiety from social media articles by not reading them and instead, reading books on topics related to my special interests.
When we feel overwhelmed by powerful emotions, we need to examine them. By asking ourselves, “Do I feel anxious, sad, or jealous? Why? And what is triggering these feelings?” Next, we ask ourselves “What physical signs do I exhibit when I am overwhelmed or dysregulated—does my heart pound, is my breathing quicker, does my mind feel like a roller-coaster or exhausted, etc.? By exploring our feelings, we can better understand them and be aware of our emotional triggers.
Second, rate your emotional level—this defuses a catastrophe mindset and puts life in perspective. Emotions motivate us to take action and engage in life but when emotions take over, our executive functioning ability slows down which affects our judgement. When emotions run high it is necessary to learn how to calm ourselves down. Managing our emotions requires us to understand our emotional/stress arousal level.
Remember each of us is wired differently. I experience zero anxiety speaking to audiences of 5,000 people but extreme anxiety when I have a doctor’s appointment or waiting for a car repair or taking examines. What makes you upset may not bother your friends. Rating my emotional/stress level helps me to stay calm and put things in perspective.
RATING YOUR EMOTIONAL/STRESS LEVEL
1. I feel fine—nothing is bothering me.
2. I feel a little agitated—I can still handle myself & my feelings.
3. I feel nervous—on edge— my mind is beginning to race with thoughts and worries.
5. I feel completely overwhelmed—I am experiencing a meltdown and cannot control my emotions, thoughts, or body.
A number one on the emotional rating is a relaxing day off work or going to the zoo with friends. Level two is a friend at the last moment canceled plans to the zoo or a waiter at a restaurant brought you the wrong meal. Level three—one of your parents is in the hospital for tests or surgery. Level four—a girlfriend or boyfriend broke up with you. Level five—you were fired from your job where you were employed for over a year, or you were in a car accident and your vehicle was totaled. The emotion/stress rating helps us evaluate our emotions and put them in perspective.
Third, share your emotions with a trusted friend— in the light negative feelings lose their toxic power and prevent us from actions we later regret. A year after COVID-19 began, one of the largest autism organizations asked me to write an article for their monthly newsletter. I wrote the article and requested to speak at their annual conference. I did not hear back, a week later they announced the keynote speaker on whom I had written an article a few months earlier.
I emailed them the article and their next newsletter had my article. A week later, I got an email with the flyer for the conference and the flyer had a picture of me speaking. By now my emotions were rising. I felt like they had taken advantage of me. My emotions reached a boiling point when I received an email that only people who were fully vaccinated could attend. I sent an email
with paperwork showing I had COVID only a few months ago and my antibodies were strong according to the CDC. I also stated in my email that I would use a COVID rapid test and wear a mask to keep people safe. I got an email back, “NO EXCEPTIONS.”
I was furious and wrote an emotionally toxic email rather than send it, I messaged a close friend who would not attend because of their policy and shared my feelings of betrayal. I felt a release of my anger and a year later I was speaking to 200 professionals and parents at their conference. I avoided burning a bridge and receiving being labeled “hot tempered” by not sending the email. One study found that people who write their emotions in a journal are 70% more likely to talk about their feelings with friends and family. The final two ways to manage our emotions involve self-care.
Fourth, the foods we eat affect our emotions— we are what we eat. Remember as a child when you consumed candy and cake at a birthday party and had a sugar high or for lunch you ate a greasily Whopper and fries and felt sluggish. Often, we on the spectrum have food sensitivity and are vulnerable to physical conditions like diabetes, hyperglycemia, Crohn’s disease, and digestive issues.
Studies demonstrate a connection between depression and consuming large qualities of ultraprocessed foods (UPD) like chips, candy, and soda (junk food). One study found people who eat nine serving a day of UPDs are 50% more likely to develop depression and anxiety. The study found that eating
whole foods rich in nutrients like fiber, vitamins, and minerals is linked to good mental health.
The Western diet rich in omega 6 and refined carbohydrates (fast foods) causes our blood sugar to fluctuate and can trigger panic attacks, insomnia, and symptoms linked to anxiety. On the other hand, a Mediterranean diet rich in Omega 3 (seafood) improves our emotions by lowering blood pressure/cholesterol and strengthening our mind and body. Monitoring the foods we eat can enhance our mental health and moody.
Finally , sleeping 8-9 hours a night helps our emotions remain stable--sleep is the foundation of mental health. In the DSM 5, many mental health disorders have one thing in common, sleep deprivation. This means sleep is the foundation of mental health. The effects of sleep on our mood are seen in young children. If my eight-year-old daughter, Makayla, stays up past her bedtime, she becomes easily agitated and has crying spells.
Sleeplessness is often a symptom of mood disorders, such as depression and anxiety.
Sleep deprivation studies show that healthy people can experience increased anxiety and distress levels following poor sleep. Those with mental health disorders are even more likely to experience chronic sleep problems and, in turn, these sleep problems are likely to exacerbate psychiatric symptoms and even increase the risk for suicide.
Sleeping 8-9 hours a night repairs adaptive processing, increases functional brain activity, and improves the integrity of the medial prefrontal cortex-amygdala connections enabling us to regulate our emotions and experience better mental health. Some ways I experience better ZZZs is before heading to bed, I place my hands under freezing water for 30 to 60 seconds and spread the cold water on my face. This causes my core temperature to decrease by 2 degrees, making me tired. I follow a regular sleep pattern and refrain from using blue light electronics 2 hours before bedtime so my body will produce melatonin--the sleep hormone.
Managing our emotions can be a challenge for us. By navigating our emotions, we can experience equilibrium and adapt to change in our environments with less anxiety and confidence. We can manage our emotions by understanding our triggers, rating our emotional arousal level, sharing our feelings with a trusted friend, eating healthy, and getting a good night’s sleep. Applying these principles can provide relief from emotional overload and improve our quality of life.
of Ron Sandison Sharing on Navigating Our Emotions https://www.youtube.com/watch?v=y7p6FFgtySA
Video
Maykalya with dad
PERSONALIZED ABA THERAPY FROM THE BEST THERAPISTS
Recreational-based applied behavior analysis (ABA) is an innovative approach that combines the principles of behavior analysis with recreational activities to promote positive behavior change in individuals. This approach focuses on using fun and engaging activities to teach new skills and behaviors while also reducing challenging behaviors. We believe in naturalistic therapy that is child-centered, individualized, play-based and with the best therapists.
Local Events
BY CHRISTIA WOODFORD — PUBLISHING ASSISTANT AND LOCAL EVENTS
Visit a Museum through Museums for All
Due to COVID-19, many museums participating in Museums for adjusted their hours and ticket policies. Before visiting a museum, call or check their website to are open or require advance Many museums are offering resources—check your local website for more information. Through Museums for receiving food assistance (SNAP benefits) can gain free or reduced admission to more than 1,000 throughout the United States by presenting their EBT card photo ID. Check here for participating museums. https://museums4all.org/
MUSEUMS
Impression 5
Sept. 18, 5:30 pm- 7:30 pm, 9:30 am- 11:30 am
Impression 5 Science Center, Museum Dr., Lansing, MI 48933
Explore your Science Center exhibits altered to reduce sounds, and lighting stimuli. Guests a limited building capacity, pop-up activity, and map designating experiences in each exhibit. MiABLE for supporting Sensory Admission: Regular admission apply. Free for members. https://autismallianceofmichigan. org/event/sensory-friendlyhours/2024-03-20/
Abrams Planetarium
Sensory Friendly Shows
Check website for upcoming and dates. the Fall schedule in late August.
755 Science Road, East Lansing, United States
These shows will run with the lights up, the sound down, and the theater doors open so people can move about as needed. We also provide a place to “chill out” in our lobby. All shows include a live star talk about what is up in the sky that night. We will include a short break between the main show and the star talk. Information about what to expect during the show will be provided when you purchase tickets.
Cost: Adults, $5.50, Students and senior citizens, $5.00, Children (age 12 and under), $4.50
Friends of Abrams Planetarium Members, Free Free with Museums For All (with valid EBT, Medicaid, or WIC card and photo ID)
Every Saturday at 9:00 am 3225 4th Street, Jackson, Michigan 49203
During Sensory Friendly Hours, the Ella Sharp Museum will open its galleries at 9 a.m., an hour before the museum opens to the public. Families with members who are neurodiverse, autistic, or have other sensory processing disorders or cognitive disabilities are welcome to visit the museum for a quieter experience in a more controlled environment. Designated quiet zones will allow visitors to decompress and experience the museum at their own pace.
Before each program, families are invited to browse our “pre-visit” materials to help them prepare for their visit including social narratives and maps of our facility. These previsit materials are also available to help families plan for visits that take place outside of program hours and a sensory backpack is available at the front desk for use.
To provide the most sensoryfriendly environment possible, we will limit the capacity for these
special times to 50 people. https:// ellasharpmuseum.org/classes-andevents/sensory-time/
Grand Rapids Children’s Museum
Sensory Friendly Play
Upcoming play date November 4, 4:00pm- 6:00 pm
Together with Autism Support of Kent County, GRCM welcomes families to play in a calmer, quieter environment outside of regular Museum hours.
Registration required.
Various Events Scheduled
Sept.1- Sept. 3o
Grand Rapids Children’s Museum, 11 Sheldon Ave NE, Grand Rapids, MI 49503 Check calendar for Sensory Friendly evenings https://www.grpm.org/visit/ https://www.autismsupportofkentcounty. org/new-products/p/2024-night-at-thegr-childrens-museum
SPORTS
TheraplayYoga: Therapeutic Playful Yoga for Diverse Abilities
Adaptive Yoga Studio, 2015 E. Michigan Ave. Lansing, MI 48912
Inclusive & Accessible Yoga for Diverse Bodies, Brains, and Abilities. Check website for schedule. Gloria@TheraPLAYoga.com https:// theraplayoga.com/
Detroit Lions
Sept. 8 Los Angeles Rams, Sept. 15 Tampa Bay Buccaneers
Ford Field, 2000 Brush St, Detroit, MI 48226
https://www.detroitlions.com/
Detroit City FC
Sept. 14, 22
Keyworth Stadium, 3201 Roosevelt St, Hamtramck, MI 48212
Comerica Park, 2100 Woodward Ave, Detroit, MI 48201
https://www.mlb.com/tigers
FAMILY FUN DINO ADVENTURES AT JOHN BALL ZOO
Sept. 1 through Nov. 10, 9:00 am- 4:00 pm
John Ball Zoo, 1300 W. Fulton St., Grand Rapids, MI
Join as we journey through the ages, uncovering how the traits of prehistoric dinosaurs have influenced the animals we see today. Through this interactive exhibit we’ll come together to celebrate our living world and significance of conservation. During Dino Adventures, John Ball Zoo will aim to foster a deeper appreciation for the natural world, its history, and the urgent need for conservation efforts to protect both living species and those yet to come. The Zoo will be transformed with life sized dinosaur replica robots that make noise and move. Guests can embark on a dinosaur safari through the Zoo’s Forest Realm and learn about the dinosaurs that once roamed the Earth. For tickets: https://jbzoo.org/events/ dino-adventures/
DNR Outdoor Adventure Center
Oct. 6, Nov. 3, Dec. 1, 10:00 am- 12:00 pm Outdoor Adventure Center, Globe Trading Company Building, 1801 Atwater St, Detroit, MI
Enjoy the opportunity to explore and experience the OAC with building sounds and ambient noises at a lower volume. During your visit, there will be a quiet room with sensory materials available to use. Various Activities scheduled Set.1-Sept.30 https://www. michigan.gov/oac
Fascination Factory
Sensory Friendly Play
Check website for times and dates 2295 E Lincoln St; Suite 150, Birmingham, MI
What to expect in our new sensory sensitive hours: Back door locked for safety No music Noise Cancelling Headphones Oral chews offered
Please join us for our monthly “virtual” music therapy event!! Please RSVP by February 25 to Cathy Blatnik at blatsie63@yahoo. com with your name, age, contact phone number and e-mail address
REC-IT Class: Inclusive Art
Sept. 12, Sept. 26, 1:00 pm-2:00 pm Disability Network Eastern MichiganTroy 1709 John R Road, Troy, MI
Join us for in-person art classes. Participants will learn new artistic skills using a variety of mediums, such as: acrylic painting, oil pastels, watercolor, and mixed media. Class includes group and individual instruction and meets on the 2nd and 4th Thursday of each month. In order to promote inclusion for all, we request a maximum of 4 individuals from any one agency. All levels of experience and ability are welcome. https:// autismallianceofmichigan.org/event/recit-class-inclusive-art-2/2024-04-11/
Let’s Roll Together
Sept. 17, 6:00 pm- 7:30 pm Roll Arena, 2909 Bay City Road, Midland, MI 48642
Join us for a “rolling” good time! Our goal is to create a fun and accessible environment for individuals with disabilities and their caregivers to enjoy skating and socializing. This session will include wheelchairaccessible lanes. These lanes can also be used by individuals who may need assistance with a non-skating support person. Caregivers & Direct Support Staff are FREE (free admission valid for one caregiver/support staff per participant). $10 admission https:// autismallianceofmichigan.org/event/ lets-roll-together-2/2024-06-18/
ARC Livingston Dance 2024
Sept. 21, 6:00 pm- 8:00 pm Howell Elks Lodge 2830 E Grand River Ave, Howell, MI
The Arc Livingston Dances Schedule for 2024 is Here!! Mark your Calendars!! Arc Dances are held monthly at different locations throughout the community. There is a charge of $3 https://autismallianceofmichigan. org/event/arc-livingstondance-2024/2024-04-27/
Inclusive Game Night
Sept. 27, 6:00 pm- 7:30 pm Therapeutic Concepts, LLC 38257 Mound Road, Building D, Sterling Heights, MI
For the whole family focusing on inclusion, safety, and enjoyment! $10 per family, register online https:// therapeuticconceptsllc.com
Detroit Zoo
Sensory Friendly Evenings
August 30, 3:00 pm- 7:00 pm Detroit Zoo, 8450 W 10 Mile Rd, Royal Oak, MI 48067
As part of our work to create accessible and welcoming spaces for all, the Detroit Zoo will turn down the music and adjust the lights during special evenings this summer.
Starting in June, the Detroit Zoo is hosting three Sensory Friendly Evenings for guests with different sensory needs. Sensory Friendly Evenings will take place from 3 to 7 p.m. on Aug. 30. During these times, the Zoo and its attractions will be open to all visitors, but special accommodations will be in place to ensure the Zoo can be enjoyed by families and individuals of all abilities. Sensory bags and a dedicated sensory room is available for those who may need a quieter and more secure space. Included with Zoo admission | Free for members | No event registration required https://detroitzoo.org/events/zoo-events/ sensory-friendly-evenings/ Various fun events through the month.
Legoland Discovery Center Michigan
Sensory Friendly Mornings Check the website for upcoming Mornings 4240 Baldwin Rd, Auburn Hills, MI 48326
During Sensory Friendly Mornings, we’ll reduce the lighting, turn off music & disable distracting stimuli for an hour before we open to the general public.
This event is perfect for our friends on the autism spectrum.
Sensory-sensitive adults are welcome to visit during Sensory Friendly Mornings without a child (age 16 or under) in the party until the attraction opens to the general public at 10 am. Adults who are not accompanied by a child must exit the attraction upon opening. Groups that are accompanied by a child are welcome to stay past 10 am.
Tickets are limited and must be purchased online in advance for this special event.
Sensory Friendly Mornings Check the website for upcoming mornings 4316 Baldwin Road, Auburn Hills, MI 48326
During Sensory Friendly Mornings, we’ll reduce the lighting, turn off music & disable distracting stimuli for an hour before we open to the general public. This event is perfect for our friends on the autism spectrum.
The aquarium will open to the general public with normal lighting, sound, etc. at 10 am, but you’re welcome to stay as long as you like and do not have to leave when the event ends at 10 am.
Tickets are limited and must be purchased online in advance for this special event. Please check https://www. visitsealife.com/michigan/what-s-inside/ events/sensory-friendly-mornings/
MJR Digital Cinema Sensory-Friendly Film
Check the website for movie times 100 East Maple Road, Troy, MI, 48083, United States
First All Inclusive Troop! 4920 Groveland Rd, Ortonville, MI 48462
The ONLY troop of its kind in MI, troop 1197 is being formed right now at O.A.T.S. (Offering Alternative Therapy with Smiles) in Ortonville for those with special needs ages 11 and up. The troop, designed with experienced scout leaders, will include
typical scouting activities including camping and outdoor skills. For more information, email walkonoats@gmail.com
2024 Autism Hero Walk: Detroit
Sept. 21, 7:00 am- 12:00 pm Detroit Zoo, 8450 W 10 Mile Rd, Royal Oak, MI 48067
Grab your capes and get ready to fly with us as we celebrate the 2024 Autism Hero Walk: Detroit on Saturday, September 21st at the Detroit Zoo!
The Autism Hero Walk: Detroit is Michigan’s largest gathering of 6,000+ families affected by autism to celebrate our everyday superheroes!
This fundraiser benefits Autism Alliance of Michigan and includes full-day admission to the Detroit Zoo, an autism resource fair with 50+ vendors, an on-stage program, a united community walk, arts & crafts, and entertainment for all ages. Register Here: https://secure3.convio. net/aaomi/site/TR?fr_id=1080&pg=entry for questions Event Coordinator Lauren Parrott at lauren.parrott@aaomi.org.
Disability Dirt Days
Sept. 21 and Oct. 20, 11:00 am- 3:00 pm
Holly Oaks ORV Park14551 Shields Road, Holly, MI 48442
Experience off-roading at Holly Oaks ORV Park with rides provided by volunteers.
• Ride provided for rider and one guest (No guarantee on type of vehicle for ride).
• Riders must be at least 10 years old. Participant waivers are required.
For more information or questions, call or text 248-221-8040.
A confirmation email will be sent the week prior to your registered date.
This program is held in partnership with Disability Network Eastern Michigan, Wheelchairs in Motion and Rehab & Mobility Systems.
To register: https://www.oakgov.com/home/ showpublisheddocumen t/22436/638471255867500160
2024 Detroit Walk for Apraxia Every Child Deserves A Voice
Sept. 22, 10:30 am- 12:00 pm
Young Patriots Park, 14133 Civic Park Dr, Riverview, MI 48193
At the Walk for Apraxia, we gather to celebrate the achievements of our Apraxia Stars, and to raise funds to support the programs that help our Stars shine. The Walk for Apraxia sustains educational opportunities, awareness, financial aid, support for research, and much more. By joining the Walk, you are making our apraxia community tighter, stronger, and ready for the road ahead.
Don’t forget - registration is FREE! We encourage you to register today and invite your network to do the same. https://secure.apraxia-kids.org/site/ TR?fr_id=3738&pg=entry
IEP: A Closer Look
Sept. 23, 9:30 am- 11:00 am Register at https://tinyurl.com/4we5vftj
This free, online workshop takes a closer look at the Individualized Education Program (IEP) process. This workshop will help you:
• take a more in depth look at the core areas of the IEP
• prioritize your greatest concerns
• learn how to address those concerns through the IEP process
• improve your ability to have productive conversations There will also be time set aside to ask questions. Who should attend? Families with a child or young adult with an IEP or IFSP. Questions? info@michiganallianceforfamilies.org
Is there a local event for the special needs community you would like us to promote in an upcoming issue? Email us at SpecialNeedsIndy@n2pub.com.
F r e e m o n t h l y p u b l i c a t i o n t o c e l e b r a t e , c o n n e c t ,
s u p p o r t & i m p a c t t h e s p e c i a l n e e d s c o m m u n i t y !
- S t o r i e s f r o m f a m i l i e s a n d i n d i v i d u a l s w i t h
s p e c i a l n e e d s , g i v i n g h o p e t o o t h e r s
- H i g h l i g h t s o f s u p p o r t i v e o r g a n i z a t i o n s .
- E v e n t s w h e r e f a m i l i e s c a n c o n n e c t , b u i l d
r e l a t i o n s h i p s & c o m m u n i t y
- T i p s , u p c o m i n g e v e n t s , v a l u a b l e i n f o r m a t i o n & s o m u c h m o r e !
