Educating Mia Leaving home to go to University was a bigger challenge than for most for second-year St John’s undergraduate Mia Myers, who has Spinal Muscular Atrophy (SMA). She tells Karen Clare about what makes her tick, smashing stereotypes and educating others.
All photos credit: Nordin Ćatić.
“I
remember saying to someone once, if you gave me a pill right now, and said, if you take this, you can be completely SMA-free, I don’t know if I’d take it. Because it is a massive part of me and I’m proud of it in a lot of ways.
Some of the best people I’ve ever met is because of my SMA,” said Mia. “And then there are days when I’m in pain or exhausted or going to the hospital, or when I feel myself deteriorate 12
and I think, I could do this yesterday, and I can’t use this muscle in this way today. Then it is tiring.” Mia was diagnosed with SMA type three, a rare degenerative neuromuscular
