With great momentum, Southwest Center for HIV/AIDS expands programs and services in 2012 and creates a strong, vibrant future.
Dear Southwest Center community of clients, donors, service providers, volunteers, community-based partners: Southwest Center concludes a successful 2012 filled with program expansion and a greatly anticipated move to an integrated health center on light rail in downtown Phoenix. We are pleased to share this annual Community Benefit Report 2012 and have chosen to spotlight our Top 5 Major Accomplishments. As we reflect on the past year and prepare for 2013, we celebrate our advancement of the National AIDS Strategy through focusing our programs and services. We are more excited than ever about Southwest Center’s future. We will keep you apprised of our move to our new location in Downtown Phoenix at 1101 North Central Avenue, as well as our Grand Opening to occur later in 2013. Southwest Center always will be deeply grateful for Jack Black, our community center committee chairman, for Bill Hardin and Shelley Detwiller DiGiacomo for probono legal counsel, for Phoenix City Councilman Tom Simplot for more than eight years of community stewardship, and for the City of Phoenix for implementation support. Named in honor of The Bob & Renee Parsons Foundation, our new community health center will provide a world-class model of integrated HIV/AIDS primary healthcare, wellness services, prevention/education programs, and research. Fully vested in our community at large, Southwest Center has taken important steps this year to participate in Downtown Phoenix community development initiatives. This includes engagement in Downtown Phoenix revitalization organizations, urban planning initiatives, and serving on the newly created Margaret Hance Park Conservancy Board of Directors. Our new location is directly adjacent to this major city park, and we expect to play an important role in helping to activate the park. We are delighted to create a vivacious community-based center to serve YOU – our community. The best is yet ahead! Serving together and so deeply thankful for your support,
Carol A. Poore, Ph.D. President and CEO Southwest Center for HIV/AIDS
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Southwest Center for HIV/AIDS is a nonprofit AIDS service organization reaching out to serve 70 percent of Arizona’s at-risk youth, women and men. Southwest Center for HIV/ AIDS provides a distinct combination of prevention/education, research/development, and health/wellness support services. For 24 years, Southwest Center for HIV/AIDS has been on the front lines of the fight against HIV and AIDS, preventing infection and improving the quality of life for people living with HIV/AIDS. Through its clinical trial research, Southwest Center has helped to bring 32 of the 34 available HIV/AIDS medications to market, contributing to worldwide research as well as supporting Arizona’s biosciences industry.
Special Note:
Programs funded in whole or in part by the federal Department of Health and Human Services, Health Resources and Services Administration, the Ryan White HIV/AIDS Treatment Extension Act of 2009, Maricopa Integrated Health System and Maricopa County.
Programs also funded in part by:
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TOP FIVE
Accomplishments in 2012
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Southwest Center advanced the National AIDS Strategy in Arizona through its client programs and services.
While the world awaits an HIV/AIDS vaccine, scientific evidence shows that treatment as prevention is the best way to reduce the spread of this complex, confounding disease. We know that early diagnosis, access to medical treatment, scaling up of antiretroviral therapy, and lifelong healthcare are the most effective, evidence-based solutions to prevent new AIDS infections. In 2010, the U.S. National HIV/AIDS Strategy charted three ambitious-but-achievable goals for our nation: To reduce infection, to increase access to healthcare, and to reduce HIV-related health disparities. According to health records published by Arizona Department of Health Services, there are 14,705 Arizonans who are diagnosed as HIV-positive and another 2,000 who are HIVpositive but don’t yet know their status. But in a day and age where AIDS medications are more available and effective than ever before, only one in four Arizonans have suppressed viral loads sufficiently low enough to stop the spread of AIDS. This follows national trends as illustrated to the right.
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HIV-Infected
HIV-Diagnosed
Linked to Care
Retained in Care
Need ART
On ART
Adherent/Undetectable
,000
,000
1,106,400 1,178,350
1,400
,000
1,200
1,000
00
00 600,0
400,0
800,0
00
00
Major Challenges in U.S. Implementation Cascade
200,0
For the first time ever in the history of the AIDS epidemic, scientists are discussing the likelihood of a vaccine to be developed within the next decade. Tremendous vaccine discoveries surrounding broadly neutralizing antibodies have energized the AIDS field. Genomic research is exploring how a person’s genes may provide pathways to creating a more resistant immune system.
100%
874,056
79%
941,950
80% 59%
655,542 725,302
62%
437,028
40%
480,395
41%
349,622 262,217 32% 426,590
24%
209,773 19% 328,475
28%
Gardner EM, et al. CID 2011 . [21] Cohen MS, et al. MMWR 2011.
[20]
Southwest Center for HIV/AIDS expert staff and providers know that simply getting connected to medical care is only the beginning. Staying in healthcare is yet another issue. And staying adherent to expensive HIV/AIDS medication for a lifetime is, perhaps, the most difficult challenge of all.
Im ple me nta tion Casca de for the Continuum of Care Testing
Diagnosis
Linkage
HIV Care
Treatment
HIV
Virologic Suppression
Engagement/Retention
At Southwest Center in 2012, the management team aligned every program and service to support the U.S. National AIDS Strategy. Our priority is to help people know their HIV status and become directly connected to healthcare and life-saving medications. And, to help them stay connected to care. We expanded our agency’s focus on HIV testing and connection to care and increased our testing hours to accommodate a 24 percent growth in HIV testing appointments. As one of the largest HIV testing sites in Arizona, we have expanded our testing staff and evening hours to meet this rising demand. In 2012, we will have provided 700 more HIV tests than in 2011. All of our HIV testers are phlebotomists who can draw blood samples when needed.
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Southwest Center is reducing healthcare disparities by creating a world-class, one-stop, vibrant health center to prevent chronic disease and wellness support for those who need healthcare.
Southwest Center for HIV/AIDS is helping to reduce healthcare disparities and strengthen Arizona’s capacity to deliver HIV healthcare and chronic disease support. We know that the most effective HIV prevention programs are targeted to those impacted with HIV, helping people get tested and connected to healthcare. Arizona Department of Health Services has identified downtown Phoenix and those living within a ten-mile radius as the highest risk area in Arizona, where the majority of the state’s HIV/AIDS infected and at-risk populations reside. Based on this demographic data, Southwest Center is proud to create a community health center at the heart of Arizona’s most at-risk geographic service area. Located on light rail and within walking distance from bus stops, the space will be renovated to an aesthetically pleasing, warm and welcoming place that demonstrates due respect to those impacted by the disease and in addition, serves as a beacon of hope and offers community-based engagement for all those who enter or pass by. We are thankful for voter-approved funding in part from the 2006 City of Phoenix bond election, as well as major private investments from donors noted in this report.
A game-changing naming investment of epic proportion Southwest Center received the largest donation in our history – $3.5 million with an additional $1.5 million community challenge grant – to name and support our new community health center.
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In May 2012, Bob and Renee Parsons generously gifted $3.5 million through their foundation to support the renovation of the new Center. The Parsons also personally offered a $1.5 million matching gift to ensure that other philanthropic leaders will see the critical importance of the project. In recognition of their magnanimous support, the new facility will be named in their honor:
The Bob & Renee Parsons Foundation Center for Health, Education and Wellness The Bob & Renee Parsons Foundation matching gift will name the lobby personally after Bob and Renee Parsons. The Parsons will be featured prominently in the lobby, including a video area where people can learn about their passion to fight HIV/AIDS. While Southwest Center will occupy approximately 14,000 square feet of space for providing client health services, long-time community health partner, McDowell Healthcare Center, a division of Maricopa Integrated Health System, will occupy 10,000 square feet of the building to provide primary care, dentistry and other related services.
A vitamin shop, a major blood lab, and an HIV/AIDS specialty pharmacy will occupy spaces within the first floor of the Center to provide important lab work and medication all under one roof, which will provide much-needed earned revenue to sustain Southwest Center going forward. Also on the first floor will be a conference room suite and a large multipurpose black box studio open to the local community for meetings, workshops, and community gatherings.
support core 890 sf
new stair - north main level - 2nd stair
common break 365 sf
new stair - south main level - 2nd stair
open to below
Child Watch 480 sf
shell 1,170 sf
administration
new elevators basement - 2nd floor 1
wellness alcove 115 sf
2 open to below
SWC 12,877 sf
lobby mcdowell clinic 10,622 sf
clinical trials
lobby
alcove behavioral
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flexible / vocational 370 sf
Family Services 1250 sf
existing elevator main level - 2nd floor
north addition | 14,064 sf original building | 15,304 sf
vertical/horizontal circulation common area
original building ‘52
existing square footage
north addition ‘76
new stair main level - 2nd stair
infrastructure
schematic design | second level Southwest Center for HIV/AIDS Renovation
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25 October 2012 Holly Street Studio Architects + hardison / downey construction
Construction began in October for The Bob & Renee Parsons Foundation Center for Health, Education and Wellness. Under a public RFP process led by City of Phoenix, Southwest Center selected Hardison Downey and Holly Street Studios, the contractor and architect that comprise the design-build team. During the past months, the team worked with Southwest Center and McDowell Healthcare Center management to plan a warm, welcoming space for HIV prevention, primary care services, wellness support, and research. All partnering organizations will be ready to move into the new space in the spring of 2013.
Thunderbirds Charities Youth and Family Resource Center In 2012, Southwest Center for HIV/ AIDS received a $115,000 health center naming investment from Thunderbirds Charities to create a youth and family resource center to be located at The Bob & Renee Foundation Center for Health, Education and Wellness. “The Thunderbirds Charities Youth and Family Resource Center will provide a library, computer and gathering space designated for Southwest Center’s youth and family health education programs,” said Alex Clark, President, Thunderbirds Charities. “The learning and resource space will provide support for youth and parents where one or both are affected by HIV/AIDS.” Thunderbirds Charities funds will support capital improvements and the purchase of furnishings and library materials supporting hundreds of families impacted by HIV/AIDS.
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Southwest Center’s family programs supported by Thunderbirds Charities Youth and Family Resource Center include: • Positive Peer Prevention (P3) courses for teens and young adults. • ChildWatch which provides babies through preschool-aged children a safe and healthy place to be cared for while their parents attend physician appointments and stay connected to healthcare. • Southwest Center’s “Youth Transitions” program for teens and young adults diagnosed with HIV. The program is partnered with the Bill Holt Pediatric HIV Clinic located at Phoenix Children’s Hospital. Thunderbirds Charities is a nonprofit organization formed in 1986 to distribute monies raised through the Waste Management Phoenix Open golf tournament. The mission of Thunderbirds Charities is to assist children and families, help people in need and improve the quality of life in our communities.
The Richard P. Stahl Research Wing In 2012, Richard Stahl made a special capital donation of $100,000. This signifgicant investment will name Southwest Center’s space dedicated to clinical trial research. During his lifetime, Richard lost many friends to AIDS and today his passion is to support initiatives that prevent and lead to the cure of AIDS. Richard’s donations have totaled nearly $1 million in support provided during critical times when Southwest Center needed him most. The Richard P. Stahl Research Wing will name the entire research wing which includes exam rooms and laboratory spaces. While smaller naming opportunities will be available within the research area, the entire wing will permanently honor Richard’s steadfast support for Southwest Center’s mission and in particular, our research to support wellness for those impacted by HIV/AIDS, as well as to support the cure of HIV/AIDS.
Other spaces reserved for naming, to date, based on major gifts prior to 2012, include: • A classroom or learning space named after the Natalie Richards Estate in honor of her son, Larry. • A women’s and multipurpose program area named in honor of Go Daddy through a time-based sponsorship. • An office named in honor of US Airways.
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Southwest Center expanded its core programs and services through grants and private support.
High-impact prevention supported by major grant from the Centers For Disease Control and Prevention Thanks to a five-year, $1 million HIV prevention program grant awarded in 2012 by the Arizona Department of Health Services and funded by the Centers For Disease Control and Prevention (CDC), Southwest Center will be expanding its prevention program for high-risk men. The CDC is pursuing a “high-impact prevention” approach to reducing new HIV infections by using combinations of scientifically proven, cost-effective and scalable interventions targeted to high-risk populations in geographic areas of the United States most affected by HIV/AIDS. Southwest Center’s prevention grant will provide a high-impact combination of individual, group and large-scale community interventions to stop the spread of HIV by working specifically with those who are diagnosed with the HIV/AIDS virus. With our new HIV prevention grant, we are thrilled to have the chance to bring three distinct-butinterrelated programs and services to our clients and the Phoenix community. The first two programs will be implementations of CDC Effective Behavioral Interventions which have been proven to be effective at reducing HIV transmission risk and increasing adherence to HIV treatment. Positive Action is a one-on-one counseling program for HIV-positive individuals. This program focuses on conceptualizing the “ideal self,” considering life goals and how to attain them, and addressing barriers that stand in way of that attainment. Positive Connections is an ongoing series of small group-level interventions for HIV positive individuals that confront HIV discrimination and stigma, issues of disclosure of one’s HIV status, and forming and maintaining healthy relationships with family, friends, and romantic and sexual partners.
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These two interventions will be offered for HIV-positive individuals of all demographic groups, but will specifically target gay men and Veterans. Southwest Center is excited to have forged an alliance with the Phoenix Veterans Health Care System for this purpose. We will work closely with the VA to train Southwest Center staff to better meet the unique needs of Veterans, and to enroll HIV-positive Veterans in our new programs. The third program is an expansion of Southwest Center’s current gay community outreach program, POKE, which stands for Prevention, Outreach, Knowledge and Empowerment. POKE outreach will target gay bars in the Phoenix area, as well as gay community events, such as Rainbows Festival, Phoenix Pride, and the Arizona Gay Rodeo to distribute safer sex kits, promote Southwest Center’s HIV testing and prevention programs, and keep the community engaged in a conversation around HIV awareness and prevention. These three programs provide unique, cost-effective and evidence-based HIV prevention programs for our community. As HIV treatment and prevention enter a new era, guided by the National HIV/AIDS Strategy, Southwest Center is proud to be on the cutting edge, offering innovative and effective services that will help achieve the goals of the National Strategy and put an end to the HIV epidemic.
Women’s HIV prevention through domestic violence prevention outreach At Southwest Center, women served by our programs are either HIV-positive or are at high risk of becoming infected with HIV/AIDS. A woman is at extremely high risk if she has unprotected sex with multiple partners, or is in a sexually active relationship with a male partner who is involved in extramarital or multiple relationships which may or may not be known to the woman. A woman who uses intravenous drugs and shares needles also is at risk for HIV/AIDS.
Trends Charitable Fund With a $50,000 grant from the Trends Charitable Fund, Southwest Center hired a Women’s Youth and Family program manager. We also provided educational workshops about how to identify, screen, and refer women for domestic violence services for staff and providers where continuing education credit was provided to all licensed providers. We conducted HIV prevention workshops at domestic violence shelters, and reached more than 3,000 women who are at high-risk for HIV/AIDS.
The Board of Visitors With a generous $40,000 grant from The Board of Visitors in 2012, Southwest Center developed exclusive training materials and conducted training that educated therapists to effectively treat women affected by HIV and domestic violence. We also were able to create a women’s needs assessment tool for behavioral health support groups, including incoming HIV-positive individuals who sought services at Southwest Center as well as support of individual behavioral health sessions.
Salt River Pima Indian Community Salt River Pima Indian Community provided a $50,000 grant for 2013 women’s programs. This significant funding allows us to continue expanding women’s education and outreach at domestic violence shelters as well as provide weekly women’s individual behavioral health counseling, HIV testing, and connection to our women’s support group.
Other HIV Prevention Accomplishments Southwest Center conducted a number of other successful prevention initiatives in 2012. ✔ We reached more than 3,000 students with our Positive Peer Prevention (P3) education that helps youth and young adults protect themselves from HIV/AIDS and other diseases. ✔ We completed our thirteenth year of Camp Incredible, a camping experience, family retreat, and learning opportunity for families who are impacted by HIV/AIDS. Camp Incredible offers a time of bonding and laughter for families, providing a respite in the cool pines of Prescott during the hot summer. ✔ We provided a robust schedule of educational programs for our weekly Men’s Day lunch-and-learn series. ✔ In 2012, Southwest Center organized a program to spotlight National HIV/AIDS and Aging Awareness Day, with assistance from the Ryan White Planning Council and 1Voice Community Center, attended by more than 50 HIV health and service providers.
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Southwest Center proudly hosted the most successful fundraising events since the economic downturn, increasing public awareness about the critical need for HIV prevention, research and healthcare. Collectively, our fundraising events exceeded our goals for 2012. Dining Out for Life, presented by Aetna, held April 26, raised more than $51,000. Nearly 40 restaurants from the Phoenix area and Prescott participated, creating awareness about HIV/AIDS prevention, research and wellness as well as raising money while patrons dined at their favorite restaurants.
Ken Gabel Dining Out for LIfe co-chair
Jeremy Gorenstein Dining Out for LIfe co-chair
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With the theme of ICONIC,
Ryan O’Meara, left, and Jack Luciano, co-chairs of 2012 Night for Life Gala
Night for Life was held May 12 at Montelucia Resort, raising net proceeds of more than $277,000 – exceeding budget expectations by more than $42,000. Co-Chairs Jack Luciano and Ryan O’Meara brought style and celebrity entertainment to this year’s gala with Simon Doonan as emcee, and Franc D’Ambrosio singing selections from Phantom of the Opera. Bob Platt organized the most successful silent auction in the history of Southwest Center. The Rob & Renee Parsons Foundation iconic donation of $5 million was announced on stage.
Tour for Life, held October 27-28, raised more than $50,000 – doubling the event’s revenue goal for 2012. The Tour for Life committee was expanded to include influential individuals in the design, architectural and real estate communities. The committee was co-chaired by Kelly Persellin from Luxe Interiors + Design and Scott Burdick from Wiseman and Gale Interiors. Numerous design professionals and local faculty members and their students were involved. Kelly Persellin, left, and Scott Burdick, co-chairs of 2012 Tour for Life
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Southwest Center continued to grow its communitybased health and wellness partnerships and clinical trial research program.
In 2012, Southwest Center increased the amount of clinical research, adding studies that explore HIV and related diseases (co-morbidity studies). We expanded our HIV clinical trial research program by initiating six new trials this year – creating a portfolio of nine research projects – helping to test new medications that save lives and provide underserved individuals with wellness support. We were selected for a United States Food and Drug Administration audit, along with other participating sites across the nation, because we had been a top enrolling site for the first HIV kit for home use. The audit was successful and proved Southwest Center’s rigorous research protocols. This device has now been approved for nationwide over the counter use. By the end of 2012, we will have selected and launched a clinical trial management system (CTMS). The CTMS builds a patient data base for recruitment and scheduling, hosts financial management tools, tracks receivables, forecasts revenue and allows for data analysis and marketing. In October 2012, we launched a web-based marketing profile with CenterWatch. This site is heavily used by pharmaceutical companies, contract research organizations and other sponsors to identify sites for new trials.
New Clinical trials contracted in 2012 (Pharmaceutical companies are not listed to protect confidentiality.) • HIV testing methodologies
Trials completed in 2012
• Hepatitis C
• Two neuropathy studies
• HIV Treatment Naïve
• A Rapid HIV Test
• Failing Current HIV Treatment • Failing Current HIV Treatment or Switching because of side effects. • HIV and Diabetic Retinopathy
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Wellness support provided at Southwest Center in 2012 Southwest Center features an exceptional team of licensed behavioral health counselors providing one-to-one and group support to more than 800 men and women and their families. Registered dieticians provided 1,200 sessions to provide dietary advice. Southwest Center launched behavioral health internship programs and welcomed interns from key state universities in alignment with our goal to educate the next generation of health professionals in HIV through ASU’s School of Social Work, University of Phoenix’s College of Social Sciences, and the University of Arizona College of Medicine – Phoenix.
U of A College of Medicine student affiliation program, to launch in Spring 2013 In 2012, Southwest Center for HIV/AIDS and the University of Arizona College of Medicine – Phoenix announced a clinical education affiliation providing HIV/AIDS health sciences education through internships and student fellowships. U of A medical students will begin internship rotations at Southwest Center beginning in 2013. This is the first medical student internship affiliation program developed with an Arizona-based HIV/AIDS agency and the Arizona Board of Regents in the history of the AIDS epidemic. Southwest Center provides training for those in the medical field who want to understand the complexities of serving patients with HIV, which includes providing primary care treatment combined with emotional, nutritional, and healthy lifestyle support. “This is an important addition to our curriculum as we continue to ensure our students address the diversity of the patient population and expand their knowledge of disease,” said Stuart D. Flynn, MD, dean of the U of A College of Medicine – Phoenix. “In 30 short, yet very trying years, we have learned an immense amount about HIV and it is imperative that our students, the next generation of physicians, not only reflect on this history, but continue the advances in preventing, treating, and hopefully ultimately eliminating this disease. Our graduates will be the health care leaders of the 21st century, many of whom will stay in Arizona and will advance the health for all Arizonans, including the immense challenges of chronic diseases like AIDS.”
Other internship programs added in 2012 In addition to the UofA College of Medicine – Phoenix affiliation, Southwest Center developed new contractual relationships with Maricopa County Community College District, American Medical College of Homeopathy, and the University of Phoenix.
Arizona State University student internships Southwest Center was very proud to develop a behavioral health field placement program with ASU’s School of Social Work, College of Public Programs by hosting two interns and one student research team in Southwest Center’s licensed behavioral health clinic.
Efficiency and effectiveness advanced at Southwest Center Southwest Center improved its operational efficiency by upgrading its information technology. Thanks to the help of a federal Health Resources and Services Administration technology grant, Southwest Center purchased a new server and computers. Many additional operational processes were strengthened at Southwest Center, helping the agency provide more efficient services for our clients and community at large.
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Board Members Serving in 2012 Scott Sowell, Chairman of the Board Tom Betz, Immediate Past Chair Michael Sparaco, Treasurer Ken Gabel, Secretary Darin Anderson Tom Awai Bobby Barnes Robert Brown Scott Burdick Darren G. Deering, D.O. Gary Egan Jessica Fotinos Jeremy Gorenstein Kim Grouse Bill Lykins Ryan O’Meara Derek Orellana Bob Platt
On behalf of our Board of Directors, staff and the clients we serve, Southwest Center would like to thank everyone for supporting Dining Out for Life, Night for Life and Tour for Life.
SAVE THE DATE! Dining Out for Life - April 25, 2013 Night for Life - May 11, 2013 Tour for Life - Fall 2013 Southwest Center for HIV/AIDS is Arizona’s only AIDS service organization providing a unique combination of Prevention, Education and Outreach; Chronic Disease Wellness; and Clinical Trial Research. One of Arizona’s oldest and largest AIDS Service Organizations, we lead the fight against HIV/ AIDS through high impact, evidence-based prevention techniques; offer behavioral health and complementary alternative wellness services to the state’s HIVpositive population; and are on the cutting edge of research, helping to bring life-saving medications and medical devices to market.
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1144 E. McDowell Road, Suite 200 Phoenix, AZ 85006 602.307.5330 swhiv.org
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