The Ultra Rare Disease Disorders,& Disabilities Foundation

Hi all we are a children's charity we work to help children with Rare Diseases we also work to help the family unit as a whole the need of rare disease families is great,When a child is diagnosed with a rare disease the child is usually reached five year old and its usually genetic the parents have a lot of guilt issues to deal with and the need for the family to get counseling as soon as possible and also counseling the siblings is vital the family will then need long term help to deal with the child rare diseases are not so rare it only takes the trigger. The URDDAD-Foundation Charity No00089