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Walk:also including Fair LawnSunrise, Englewood, Wyckoff-Midland Park, Wayne, and Paramus.

Rotary district governor Ray Cywinski and other leaders attended.

Highlights included a “Walk Rhythmic Energizer” featuring a Music Mends Minds drum circle with Mary Knysh — a specialized music rhythmic exercise during the Walkʼs opening ceremony

Park Ridge Rotaryʼs Terry Ciulla —chair of marketing and outreach and, with fellow Rotarian Vicky Meo, a chair of the Walk — told Pascack Press, “It was amazing how the sounds of joyful music was an inspiration for all ages. You can see and feel how this reaches Alzheimerʼs, and all dementia patients, or patients of any trauma of the brain. Music strikes a chord of revival of the soul.”

Ciulla said the need for awareness and funding is essential, and pointed to a grim reality: Alzheimerʼs is the cause of 60% to 70% of cases of dementia.

The most common early symptom is difficulty in remembering recent events. As the disease advances, symptoms can include problems with language, disorientation (including easily getting lost), mood swings, loss of motivation, self-neglect, and behavioral issues.

As a personʼs condition declines, they often withdraw from family and society. Gradually, bodily functions are lost, ultimately leading to death.

She said Alzheimerʼs, properly understood in the community, would be perceived as it is:an indiscriminate killer every bit as worthy of research, awareness, and resources as breast cancer.

From the heart

Ciulla said of the Walk, “It was such a great, inspiring event. Iʼve supported it for years, for the loss of my mom and others. My mother was... Iʼve got to be the voice of the voiceless, and thatʼs what I do.”

She said, “Ilobby, too, the political figures, like Congressman Josh Gottheimer to pass the bills that the Alzheimerʼs AIM association is trying to get through, because weʼre lacking so much to take care of our seniors.

The nonpartisan Alzheimerʼs Impact Movement (AIM) says it “advances and develops policies to overcome Alzheimerʼs and all other dementia through increased investment in research, enhanced care and improved support.”

It says “We amplify the voices of our nationwide network of volunteer advocates to advance progress in the fight against Alzheimerʼs and all other dementia.”

Ciulla said infrastructure needs to catch up with real need in caretaking. “Thereʼs millions and millions of mostly women who leave their jobs early to take care of a loved one, as I did. Itʼs a loss of income in the millions and millions of dollars [nationwide]. And so what part of this does is provide them with a grant — the opportunity to obtain a grant to cover costs.”

“Itʼs also infrastructure for building [public] centers. We donʼt have centers for people with all phases of dementia. It should not matter, your income level,” she said.

She gave a shout-out to Gottheimer (D-5), who attended, “for his bipartisan efforts in sponsoring BOLD [Building Our Largest Dementia Infrastructure for Alzheimerʼs Act], which has passed through Congress, providing much relief on a federal and state level.”

The package, she said, includes “added assistance to push FDAapproved drugs at an affordable cost. More to come in 2022-2023.”

As for the Rotary Club, she said, “As Rotarians we have the opportunity to make a difference in our communities and around the world. Alzheimer's and dementia affects the person, their families, and the community. We need to raise awareness and funds to be able to continue medical research to learn more about the disease.”

Asked what the Bergen-Passaic walk means to supporters generally, Ciulla said, “What it means is beyond what you can think — because it brings people together who are separate, and have one cause all together: to bring hope, and never stop walking until the day we see the first survivor.”

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