INDEPENDENCE FOR ALL

How to enjoy a sensory-friendly July 4th

By Nicole Blume

BOOM!The crack of fireworks ricochets across the sky, accompanied by the fizz of fiery sparklers and the constant hum of a jampacked crowd. Thick black smoke wafts among the stench of gunpowder and grilled meat. A scorching sun beats down while another round of sunscreen is slathered.

If you feel even slightly overwhelmed, imagine what life is like for a child with autism or sensory processing disorder.

“Children with autism and/or sensory processing differences may experience day-to-day experiences differently,” says Jennifer Johnson, occupational therapist and founder of Blossom Therapeutics along with her colleague Sarah Linden, clinical director and occupational therapist.

“Bright flashes may be overwhelming for someone with a hard time tolerating visual stimulation. Loud noises may be overwhelming for someone with a hard time tolerating unexpected loud noises. Crowds of people may be overwhelming. A disruption to a normal routine, late bedtime, unfamiliar foods can also be distressing,” explain the therapists.

Preparation is Key!

Many children with sensory processing challenges appreciate the consistency of following routines. A special holiday where they are likely to encounter new sensations and activities can be anxiety-inducing.

“Role play this in advance,” suggest Jennifer Johnson and Sarah Linden. “Social stories about what to expect can be really helpful in identifying all the possible outcomes of the 4th.”

Whether attending a parade, fireworks party or BBQ, talk to your child about your plans. Be as specific as possible; for example, “We’ll attend the BBQ at Aunt Jane’s house for two hours, where we will eat hot dogs and light sparklers. The sparklers will look like fire, but they won’t hurt you.”

If your child responds well to visual cues, you can also show them photographs or watch videos together of parades and fireworks displays. Begin with the sound turned off and gradually increase the volume to tolerable levels. Go with the flow and follow your child’s cues.

Social stories about what to expect can be really helpful in identifying all the possible outcomes of the 4th."

–Jennifer Johnson & Sarah Linden of Blossom Therapeutics

Pack Wisely

Sunglasses to keep out the harsh summer glare, sunscreen and wide-brimmed hats, umbrellas for shade and miniature fans with built-in squirt bottle attachments can keep kids cool. So can tasty homemade watermelon popsicles.

If your child has a favorite toy, bring it along. Familiarity with comfortable objects can help children self-regulate if they are feeling overwhelmed or over-stimulated. They can carry their treasured items in a small backpack –bonus points if it's a hydration pack that will encourage them to drink plenty of water.

What else might your child need? Consider investing in a good pair of earplugs or noise-canceling headphones to dampen the noise. A blanket to cover their head, a small pop-up tent or other enclosed safe space can provide additional comfort during periods of acute stress.

Choose a Safe Location

Many children (and adults too!) find large crowds of people overwhelming. Scout ahead to see if there is a more secluded spot from which to enjoy the fireworks, like one of Bend’s many volcanic vistas. Awbrey Butte and Ponderosa Park are popular hot spots, but really, anywhere where you have a clear, unobstructed view of Pilot Butte will do.

Sticking close to the parking lot can also provide a quicker exit route if things get tough. Establish a safe word or special visual signal where your child can communicate with you if they need to relocate.

“July 4th is very sensory friendly to some individuals who like loud noises, big visual stimuli and social gatherings,” say Jennifer Johnson and Sarah Linden. “For those who find these experiences unnerving, then consider whether this event could be enjoyed from inside a car to dampen the noise and overwhelming feeling of being in a large crowd in the dark.”

Stay Connected

Ultimately, there is no replacement for presence. Be mindful of how your child is responding and be prepared to take a break, remove them from the situation or leave the event early.

Even if you don’t make it out of the house, a quiet night at home with the family watching a patriotic movie and eating red, white and blue cupcakes can be just as rewarding and enjoyable. Plan for the best, prepare for the worst and most importantly, have fun with your family!