Travel Without Limits #5 by travelwithoutlimits

without limits

Beat the winter blues 10 accessible experiences

WHAT A DIFFERENCE A GUIDE DOG MAKES ADAPTIVE WINTER SPORT EXPERTS SHARE ALL SENSORYFRIENDLY ACTIVITIES AROUND AUSTRALIA

VOL 5 | MARCH 2021 RRP AU$9.95

Costa Brava | Shoalhaven | Far North Queensland | Geelong | Florida

READERS PHOTOS

01 - Chase & sister Yveliz having fun at Universal's Islands of Adventure, Orlando, FL 02 - Nina enjoying the Heritage Landing on the Gordon River 03 - Kiah loves surfing with the Mornington Penninsula Disabled Surfers Association. 04 - Sheree with daughter Ilana at a winery in the Clare Valley South Australia

Hello!

Although the world is still reeling from the ongoing effects of Covid, it feels like the year has started off on a more positive note. Australia continues to be in the fortunate position of having a zero, or low, community transmission rate, and the travel industry is looking forward to bouncing back. Regional areas have seen an increase in tourism and our family has taken advantage of the wide-open countryside on numerous occasions. Over time we are becoming more confident about travelling and look forward to seeing more of our beautiful country. At Travel Without Limits we strive to bring our readers a diverse range of stories from people living with disabilities around the world. We can learn so much from reading about how others have adapted, navigated, and triumphed. We are grateful so many contributors are willing to share their knowledge to help others. Dreaming and researching costs nothing, so we have filled the magazine’s pages with information and inspiration to keep on hand for when international borders open. In the meantime, we’ve got plenty of tempting local destinations to keep you busy. Quoting Skye-Blue, Amazing Race contestant, “the whole world is in Australia” so there are limitless travel opportunities right here. To our overseas readers, we also look forward to welcoming you back. As always, we’re keen to keep in touch in-between issues. You can email me at julie@travelwithoutlimits.com.au if you have a story to share or think there is a topic you would like us to cover in a future issue. Don’t miss out on any news by signing up to our mailing list at travelwithoutlimits.com.au and follow us on Facebook – facebook.com/travelwithoutlimits Happy travels! Julie

Founders Julie Jones & Janeece Keller Executive Editor Julie Jones Sub-editor Bev Malzard

Art director Jon Wolfgang Miller Contributors Krista Callinan Avalon Chambers Dane Cross Sophie Cullen

Carly Findlay Martin Heng Daniel Ho Stephanie Jay Julie Jones Janeece Keller Debbie King

Chrissy Pantlin Emily Prior Kate Swain Ben Tucknott

Published by Travel Without Limits Pty Ltd - ABN 90 633 273 560 | 431 Warringah Rd, Frenchs Forest NSW 2086 Copyright © Travel Without Limits Pty Ltd 2021 ISSN 2652-0656. Reproduction in whole or in part without written permission is strictly prohibited. Every endeavour has been made to ensure that the information contained in this magazine is correct at time of going to print. All reasonable efforts have been made to contact copyright holders. Travel Without Limits Pty Ltd cannot accept unsolicited manuscripts or photographs. If such items are sent to the magazine, they will be returned.

This publication is supported by the Judith Neilson Institute for Journalism and Ideas Jninstitute.org

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72 CONTENTS Access All Areas

10 Accessible city hotels Where you rest your head plays a big part in your overall impression of a destination 12 Perth Zoo Perfect for school holidays 16 Accessible all-weather activities Our suggestions for indoor activities to suit all ages and abilities 18 Sensory-friendly activities around Australia

Cover Story 21 Beat the winter blues These 10 accessible ice and snow experiences will turn shivers of fear into flutters of excitement and help you beat the winter blues

Travel

36 Globe Trotter Supremo Sylvia got the super travel bug once she’d taken her first solo trip in a wheelchair 44 Costa Brava Not just accessible but inclusive too

80 Queensland’s northern star Inclusive tourism in Far North Queensland 84 What a difference a dog makes Man’s best friend a dog may be, but a Guide Dog is much more

49 Breaking out of the comfort zone How Cory Lee is opening up adventure to anyone with the urge

Tips & tricks

54 Skye’s the limit Amazing Race Australia contestant SkyeBlue talks adventure and travel

96 Para Ice Hockey for all

60 Don’t leave your phone at home! Two social media stars pave the way for other young people with albinism

94 Kids picks

98 Telling tales Audrey O’Connor advocates for the rights and representation of people with disabilities 102 Fun in Florida, the sunshine state

68 First encounters of the marvellous kind in Shoalhaven

104 Let the list do the talking Carly Findlay’s tips for travel

72 Adaptive winter sport experts share all

109 Directory

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NEWS: IN THE KNOW

NEW AUTISM SENSORY ROOM OPENS AT BIG4 ADVENTURE WHITSUNDAY RESORT BIG4 Adventure Whitsunday Resort has launched its new sensory room, 'The Reilly Room', catering for children on the autism spectrum and their families. The Reilly Room includes a large freestanding hammock which can be used to rock a toddler or for a full-sized adult to rock themselves. There is also a large crash mat and weighted blankets/cushions for those children who are soothed by pressure. A lamp projects lovely blue ocean waves on the ceiling and a music player provides calming music to soothe the rawest of nerves. There is a collection of cushions providing a variety of tactile experiences, such as vibrating, fluffy and sequinned cushions. There is a ‘Bilbo’ to rock or spin a child in, a peanut-shaped gym ball to

bounce on and a large timer clock to help them ‘finish’. The room also has a sensory toy box full of motivating toys to fascinate and calm children. Other activities include kinetic sand, play dough, colouring and drawing. The Reilly Room is accessible with a key and guests may keep the key for the duration of their stay so they can use the room when needed. The facility is set up for use by one family at a time. An ‘occupied’ sign highlights when the room is being used so whoever is ‘settling’ will not be interrupted. Guests who are planning to use the room are also provided with a Social Script for their child, allowing the family to explain what their child can expect on their holiday.

The Reilly Room has been built by BIG4 Adventure Whitsunday Resort in conjunction with Gail Watts, founder of the Reilly Room Project and volunteers. Gail, who is a qualified Special Needs (autism) teacher, is also the proud mother of Reilly, who had Asperger’s Syndrome and to whom the room is lovingly dedicated to after sadly passing away in August 2018. BIG4 Adventure Whitsunday Resort is the only BIG4 Holiday Park in Queensland with a sensory room and the fourth to launch in Australia. The others are BIG4 Renmark Riverfront Holiday Park, BIG4 Ballarat Goldfields Holiday Park and BIG4 West Beach Parks Adelaide. big4.com. au/caravan-parks/qld/whitsunday/ adventure-whitsunday-resort

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GROWING UP DISABLED IN AUSTRALIA The newly published Growing Up Disabled in Australia is the fifth book in the highly acclaimed, bestselling Growing Up series. It includes interviews with prominent Australians such as Senator Jordon Steele-John and Paralympian Isis Holt. Compiled by writer and appearance activist Carly Findlay OAM, more than 40 writers with a disability or chronic illness share their stories, in their own words. Contributors include Dion Beasley, Astrid Edwards, Jessica Walton, Carly-Jay Metcalfe, Gayle Kennedy and El Gibbs. and many more.

HOTEL INDIGO ADELAIDE MARKETS Hotel Indigo Adelaide Markets is the new boutique hotel on the city scene in Adelaide. Located in the heart of town, in a neighbourhood boasting a vibrant culinary scene, it’s the ideal spot for foodies and those looking for stylish, accessible accommodation. The hotel offers seven accessible hotel rooms, which include features such as a large easy-access bathroom, dual peepholes and a wardrobe with a hanging rack which can be lowered. The boutique rooms pay homage to the legendary festivals of the city with modern colourful wall art inspired by local festival posters. A visit to the accessible Merrymaker rooftop bar is a must for the lively atmosphere, curated cocktails and an extensive wine list sourced from the Barossa Valley. Read more on the hotel’s website: ihg.com/hotelindigo

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SENSORY FRIENDLY MORNINGS AT THE AUSTRALIAN MUSEUM The Australian Museum is addressing the challenge of enjoying a visit to a cultural venue when you’re on the autism spectrum by offering a series of ‘sensory friendly mornings’. Coinciding with World Autism Awareness Month and the April School Holidays, the free Early Birds program runs from 8-10am, so visitors can explore the museum, prior to opening to the public for the day. The Early Birds program provides a supportive, sensory friendly and relaxed environment that’s restricted to around 100 visitors. Early Birds are welcome to stay and explore the Museum after 10am; however, lighting and sound in exhibition spaces and other features will return to their regular levels.

Images: Anna Kučera courtesy of the Australian Museum

Visitors to Early Birds can enjoy: • Reduced crowds and associated noise; • A designated quiet area for those needing to take a break; • A Visual Story with more details on what to expect (PDF); • Staff trained in autism awareness and disability; • A kiosk for an early morning beverage or snack; • Access to various exhibitions, including: ° 2020 Australian Geographic Nature Photographer of the Year; ° First Nations Gallery: Bayala Nura (Yarning Country); ° First Nations Gallery: Garrigarrang (Sea Country); ° Wild Planet; ° Westpac Long Gallery: 200 Treasures of the Australian Museum; ° Prehistoric Playground; ° Surviving Australia; ° Pacific Spirit; ° Birds of Australia. Early Birds will run on Saturday, 10 April, Saturday 10 July and Saturday 2 October 2021 For more information and to register, visit: australian.museum/event/EarlyBirds-Access-Mornings

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NEW WHEELCHAIR ACCESSIBLE TAXI SERVICE FOR SYDNEY From Monday 1 March 2021 Wheelchair Book & Ride will be the Government endorsed booking service for wheelchair accessible taxis in the Sydney metropolitan area. Wheelchair Book & Ride is a centralised booking platform, operated by Spinal Cord Injuries Australia (SCIA), that provides access to a pool of wheelchair accessible taxis. Spinal Cord Injuries Australia, supports people living with spinal cord injuries and other disabilities. Many of SCIA’s staff live with disabilities which means when you use Wheelchair Book & Ride you will be assisted by someone who understands your needs. Their customer service team can locate and book an accessible taxi for you, when and where you need it, saving you the trouble of contacting multiple taxi companies to find a suitable vehicle. Call 139 000 or book online at transportnsw.info/bookandride

SUPERTEE - DRESSED FOR SUCCESS Many inventions are born from the need to find a solution to a problem and that’s exactly how Supertee got started. When Jason Sotiris’ daughter was diagnosed with Langerhans Cell Hystiocytosis, a rare type of cancer, their family became regulars at the children’s hospital. Jason felt he needed to be his daughter’s hero, to assist her with the massive battle with the disease. Looking for any way to alleviate his daughter’s struggles, Jason came up with an idea. He and his friend Yusuf created a superhero shirt which children could wear in hospital. Not only is the t-shirt designed to, “empower little heroes everywhere, fighting their own battles with illness” but it’s also

practical. Jason noticed how difficult it was to change his daughter while she was attached to an IV drip and various monitors and designed a t-shirt to make it easier. Supertees have underarm openings for taking temperatures, side opening for tubes and access to lines, shoulder and side studs to make changing easier and a cape that transforms into a handy bib. Supertee is a not-for-profit charity that provides the t-shirts for free to children’s hospitals to distribute to kids in need. If you’d like to purchase a Supertee or donate a t-shirt to a child, you can find out more at supertee.com.au

SOURCE KIDS EXPOS The Source Kids Disability Expos are back, with events being held in Sydney, Melbourne and Brisbane throughout 2021. The two-day events will bring together the latest disability products, services and technology under one roof. The events focus on children, youth and young adults up to the age of 25 and are always familyfriendly with entertainment and fun for all. Find out more and register for free at sourcekids.com.au/disability-expo

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5 ACCESSIBLE CITY HOTELS Australia’s cities are full of incredible experiences but where you rest your head plays a big part in your overall impression of the destination. Rest easy knowing that these five city gems have been inspected by Have Wheelchair Will Travel. 1. RILEY, A CRYSTALBROOK COLLECTION RESORT, CAIRNS Located opposite the level Cairns Esplanade, and next to the inclusive Muddy’s Playground, Riley, a Crystalbrook Collection Resort is well placed for anyone looking for accessible Cairns accommodation. Riley has 16 accessible rooms, some with spectacular water views. Just off the bedroom and accessed by a sliding door is a spacious accessible bathroom with modern amenities. The lagoon style pool at Riley has a sandy beach edge to the pool, a shallow water area for sitting and then many wings to the pool for swimming. The only thing missing is a pool seat/hoist. 2. NOVOTEL MELBOURNE SOUTH WHARF, MELBOURNE The Novotel Melbourne South Wharf is conveniently located with direct access to the Melbourne Convention and Exhibition Centre and is a short, flat walk to both Southbank and Docklands. Contemporary room designs combine with well thought-out accessible features. The accessible room is spacious with great circulation space for a wheelchair user and ample space on both sides of the bed to transfer from a wheelchair to the bed. Larger families or groups can opt for an interconnecting room. The hotel caters to a range of needs including guests with a hearing impairment with some of the rooms including a visual fire alarm.

Riley a Crystalbrook Collection Resort Cairns

3. ASTRAL TOWERS & RESIDENCES, SYDNEY The Astral Tower & Residences is a wonderful place to stay if you are seeing a show at Sydney’s Lyric Theatre, attending a function at The Star or if you want to be close to Darling Harbour and the heart of Sydney. The hotel is wheelchair accessible with valet parking, automatic entry doors, lift to all levels and wheelchair access to the casino and Lyric Theatre. The accessible rooms are spacious, light and airy and there is plenty of room for luggage and storing a wheelchair when it is not in use. There is also room for a roll-away bed or the option of an interconnecting room if you are travelling with family or friends. 4. FOUR SEASONS, SYDNEY Choose the Four Seasons Sydney if you want a luxury hotel that is conveniently located for wheelchair users or people with mobility restrictions. Circular Quay railway station, accessible ferries, the light rail and an accessible bus service are all within a level, five minute walk, which improves access to many of Sydney’s popular attractions. If you’re overnighting before or after a cruise, the Overseas Passenger Terminal is a flat five minute walk away. The hotel has easy access throughout with ramps, lifts and accessible restrooms on all levels. The accessible rooms are tastefully decorated and have room for manoeuvring with a wheelchair. Room access is via a lowered key card activation pad which opens the door and the air conditioning controls, light switches and wardrobe facilities are all at a height for wheelchair users.

The Westin, Brisbane

5. THE WESTIN, BRISBANE Located in the heart of Brisbane, the Westin is a quick walk to Queen Street Mall and close enough to access the South Bank precinct. This luxury 5-star hotel ticks all the accessible accommodation boxes. The accessible room offers flexibility with the option of an interconnecting room if additional space is needed when travelling with family, friends or a support worker. An enormous open plan bathroom provides great circulation space and accessible features including a wall-mounted shower bench, grab rails throughout, lever taps and a backrest on the toilet. Our favourite thing about this hotel? It’s got a swim-up pool bar with hoist access.

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FREE ENTRY

FACE TO FACE EXPOS RETURN IN 2021 Well, what a year 2020 was! Last year saw us all having to innovate in the way in which we communicate and obtain information. In the face of the COVID-19 pandemic, the usual practice of attending large scale events such as Expos was temporarily put on hold, and instead, the first ever virtual disability expo was held in September, hosted by Social Impact Institute. This year our face-to-face expos will return! The unique expo format, which has over one hundred exhibitors providing a one-stop shop for those who are on the hunt for information, products and services for people with disability and their carers, will be back in a COVIDsafe way. The practices we have all become familiar with – physical distancing, hand washing, extra cleaning, crowd management, health questionnaires and contact tracing will all form part of the COVIDsafe practices you can expect to see at this years Social Impact Institute disability expos. “People come to expos to find out how to utilise their funding to enhance their lives in meaningful and practical ways,” says Social Impact Institute Senior Advisor Kathryn Carey. “At the Expos it’s all here in the one place and you can ask real questions from real people in real time.”

21ST & 22ND MAY

“I found it very inspirational to go to the stands. Absolutely fantastic and informative. I needed to see and talk to the people, I needed to talk face to face. Everyone I saw has gone beyond my expectations... and I am so appreciative of them for going that extra mile,” - Expo attendee

ENTRY IS FREE FOR ALL ATTENDEES! Register Online Now.

18TH & 19TH JUN

6TH & 7TH AUG

Newcastle Entertainment Centre

The Gold Coast Event Centre

Sydney Showgrounds - Hall 4

hunterdisabilityexpo.com.au

goldcoastdisabilityexpo.com.au

sydneydisabilityexpo.com.au

17TH & 18TH SEP

15TH & 16TH OCT

19TH & 20TH NOV

Penrith Valley Regional Sports Centre

Royal International Convention Centre

Melbourne Exhibition Centre

disabilityexpo.org.au

brisbanedisabilityexpo.com.au

melbournedisabilityexpo.com.au

events@socialimpact.institute

call us 02 9025 9380

an initiative of

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PERTH ZOO: THE PERFECT SCHOOL HOLIDAY ACTIVITY WORDS: EMILY PRIOR

Perth Zoo located in South Perth, was first opened in 1898 and plays a huge part in the conservation of our natural world for the preservation of all the different animals and their habitats. There is a lot more going on ‘behind-the-scenes’ than you would imagine, in fact only one-third of Perth Zoo’s staff work directly with the animals! So, what is it like to be a Zookeeper and what do you do? Considering the fact that I LOVE animals and can’t imagine a better career than being a Zookeeper, I recently took part in the Keeper Careers program run at Perth Zoo. It was the PERFECT school holiday activity. This program is suitable for students in Years 9 to Year 12, (however there are lots of other age-appropriate school holiday programs). After meeting Zookeepers Emma and Marty and the rest of the future Zookeepers at 7.45am, we set off behind-the-scenes of the zoo and then straight to the Giraffe enclosure. While there, not only did we muck out their inside enclosure (picking up their poop!) we filled up their hay baskets, looked at the food they ate and then we then got to feed the Giraffes. This was my most favourite part! We spent the day learning all about the world's best job, caring for the animals at Perth Zoo and what happens behind the scenes. We got to visit the feeding areas (kitchen & freezer) and see where they make the enrichment foods for all of the animals and then take some of this food to the enclosures. We saw animals up close and even watched a snake being fed! I found it really accessible for my needs. I used my wheelchair and could access both the Zoo and the behind-the-Scenes areas. I was able to have a support worker with me and the Zookeepers ensured that I could see, hear and access everything. So, I definitely want to be a Zookeeper!

To find out what amazing school holiday programs you can be involved in at Perth Zoo, check it out here perthzoo.wa.gov.au/programs

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I was able to have a support worker with me and the Zookeepers ensured that I could see, hear and access everything

Emily feeding the giraffes at Perth Zoo

ADVERTISING FEATURE

How adaptive fashion can change your life As we move towards a more inclusive future, one of the most fundamental parts of our days often comes with its challenges… getting dressed. If you have ever wished getting dressed was easier, adaptive fashion is for you!

WHAT IS ADAPTIVE FASHION? It is specialised clothing that blends fashion and function to make getting dressed easier, pain-free, and convenient for people with disabilities. Irrespective of our age or body type, we all have our sense of style and here at EveryHuman, we are dedicated to finding the best fashion from around the world so you can

express your individuality and feel confident every day!

FOOTWEAR THAT FITS YOU An amazing product line we offer is adaptive footwear with a range of styles featuring easy-on easy-off functional designs, AFO friendly, and orthotic friendly with standard and wide fit options. We understand the difficulty of tying shoes so we stock brands like Billy Footwear who offer zip-around technology so you can slip your foot in with ease! This is perfect for people experiencing loss of dexterity, limb difference, or anyone wanting an easy-on shoe. They’re stylish, comfortable, and just made your next travel adventure

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5 ACCESSIBLE ALL-WEATHER ACTIVITIES No matter the season, it’s always good to have a list of all-weather activities tucked up your sleeve for those intensely hot or rainy days. Here’s our suggestions for indoor activities to suit all ages and abilities. 1. AQUA GOLF There’s no need to cover large distances chasing a golf ball around a course at aqua golf. Stay put and tee off from the same position every time. Adults and kids will enjoy the challenge of hitting the various targets on the water course with some cash prizes up for grabs - that’s if you are lucky enough to sink a hole in one. Space in the teeoff area allows for wheelchair users and for someone to assist if necessary. For safety, ensure wheelchair brakes are locked in place. 2. ICE SKATING Ice skating is a fun, social activity for all ages with some rinks allowing wheelchairs on the ice. The permanent indoor rinks are usually quite large so tend to be easier for skating with a wheelchair user but keep an eye out for the seasonal pop-up rinks which appear around cities in winter. The one at Bondi Beach even comes with an ocean view. Not all rinks allow wheelchairs on the ice so phone ahead to avoid disappointment and don’t forget to rug up. 3. DRIVE-IN MOVIE THEATRE Drive-in movies are making a comeback and for many this is the easiest way to enjoy watching a movie. You can stay in your car

and take whatever you need to be comfy and cosy. If the weather permits and you’re keen, pack some fold up chairs and watch the movie under a starlit night sky. Save money by packing your own snacks or enjoy the treats on offer at the candy bar. Drive-ins are fantastic for the budget with admission charged per car rather than per person proving ideal for big families or anyone wanting to take along friends. 4. TEN PIN BOWLING Ten pin bowling is one of the most accessible activities you can try and it’s fun for the whole family. For young children and anyone who finds a bowling ball too heavy to lift, ramps are available. The ball sits on the ramp, only needing a small push to send it on its way down the bowling lane. If you’re new to playing, ask for the bumpers to be left up to increase your success, avoiding those gutter balls that go nowhere. 5. IFLY INDOOR SKYDIVING iFly Indoor Skydiving offers an adrenaline pumping activity minus the danger. It’s an exhilarating and safe activity for ages three and up, with no age limitation, making it perfect for a multi-generational outing. People of any ability can fly, and staff will provide extra support if required. Keep an eye out for the all abilities days offered throughout the year for a social day. When booking make sure you let staff know it is your first time and your support needs to ensure a great experience.

Aqua Golf, Penrith

Ice Skating fun

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Behind the Scenes with the Permobil X850 I admit that as a manual wheelchair user with a C6 level spinal cord injury, I haven’t explored the nooks and crannies of our great backyard not nearly as much as I should, especially when it comes to the roads-less-trodden. Being an urban citydweller with wheelchair skills even my therapist would be disappointed in, it wasn’t that I didn’t want to explore the outdoors. I simply lacked the confidence and made do with the mobility equipment that I was so used to. So, I saw the task of being both the project lead and “test pilot” of the just-launched X850 as a personal opportunity. It was as though the gods themselves were telling me to step outside my comfort one and get my wheels dirty. “Alright, fine,” I said. It’s an understatement to say I was ill-prepared

for the rush of speed and freedom along bumpy terrain! A bit of background to this formidable piece of assistive technology. Built as an off-road, cross-country power wheelchair, Permobil’s X850 has made a long-awaited return to the Australian market following a hiatus. It’s now back with updated rehab seating, bringing it in line with the latest offerings from Permobil that feature Corpus 3G seating systems and power seat functions. Not wanting to waste a moment of fame and glory, my partner and I put our hands up to be the talents behind the launch video and photo materials. What better way to start a new career? Errhem, jests aside I quickly discovered just what I’ve been missing out on. No, not the early starts at

film shoots, but powered mobility turned up to 11. Seriously. The X850 simply hauls across paddocks, gravel and dirt paths. The last time I meaningfully used a power chair was during my rehab days many years ago and being so used to a manual chair (with the occasional boost from a power assist device), this experience was just liberating. Once the day was done, I was just about ready to take it home! Given that the range on this thing is 35-45 km (!), I might’ve made it home without the car too. Off-road AT has long been on my mind for my next NDIS plan review, and it’s a no-brainer that this is making the short list! To check out this launch video of the X850, visit hub.permobil.com.au/x850 Sergei Lazarev is a Marketing Specialist with Permobil Australia.

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5 SENSORY-FRIENDLY ACTIVITIES AROUND AUSTRALIA With cultural attractions yawning, stretching and re-awakening after COVID-19 closures, there is plenty to do on a weekend outing. For families in search of autism- and sensory-friendly activities, start your planning with this list of Aussie cultural attractions. Each of them provides a Social Story that you can download, print and adapt in preparation for your visit. These Social Stories have great photos, instructions and information to help you visualise what you can expect when you attend in person. 1. MELBOURNE MUSEUM, MELBOURNE This culture and history hub has written a few different Social Stories in consultation with AMAZE (the peak body for autistic people and their supporters in Victoria). These include a Social Story about the new museum rules around COVID-19 safety measures, one about family visits with older children specifically, and one focusing on the Children’s Gallery. The Children’s Gallery Social Story, for instance, covers entering past the pygmy blue whale skeleton and train tunnel. It explains indoor and outdoor play areas and runs through, accessing the bathroom. Melbourne Museum also provides a Sensory Map indicating low and high sensory areas of the venue.

5. SCIENCEWORKS, MELBOURNE Fancy yourself a mad scientist? Another venue under the Museums Victoria umbrella, Scienceworks is all about keeping curious and having interactive fun. Explore huge machines, experience the electric atmosphere of the Lightning Room and stargaze in the Melbourne Planetarium. Scienceworks has several wonderful Social Stories addressing general access with children of different ages, as well as enjoying specific gallery spaces like the Lightning Room and the Planetarium.

2. SOUTH AUSTRALIAN MUSEUM, ADELAIDE At this Adelaide venue, a Community Programs team is on hand at all times to help with extra access needs. There are also dedicated accessible programs, including autismfriendly family programs held on Saturday mornings before the museum opens to the public. Grab a pair of noisecancelling headphones (available in children’s sizes) from the front desk if you need them. All staff have completed Autism Awareness Training, and the museum also happens to be fully accessible by wheelchair. 3. MUSEUM OF CONTEMPORARY ART, SYDNEY Experience colour, sculpture and some weird and wacky ideas at the MCA. Located at Circular Quay, the gallery has a stunning view of the harbour and Opera House. The MCA recently rejigged its Access Plan for visitors with varied extra needs and provides a range of Social Stories. These include a general one about accessing the MCA and more specific ones about attending ARTBAR (adults-only evenings with music and guest speakers after hours) or GENEXT events.

4. TARONGA ZOO SYDNEY Soaked up enough indoor art and ready to get wild outside? Check online for the date of the next Special Access Taronga Days. On these days, the zoo opens early at 8am for guests with sensory needs. Arrive before the crowds to enjoy exclusive cable car and animal encounter access in peace and quiet. The zoo also has designated Tranquil Zones. If you like, you can wear a special orange VIP badge to signal that you might want extra assistance.

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NAPA announces new Melbourne clinic! NAPA Centre is a world renown clinic that helps children with neurological and developmental needs reach their maximum potential. Established in Los Angeles in 2008, NAPA now has four clinics across the world including our Sydney clinic which has been open since 2016. NAPA has been established by families for families, coming together and supporting each other on a journey through the disability world. NAPA strives to be a place of therapy innovation and excellence, to be a place of hope for families, and to make a real difference for children and teens with disabilities, every single day. NAPA is now excited to announce we are expanding again with the opening of their long-awaited new clinic in Melbourne, Victoria this September!

UGUL therapy, Developmental Feeding therapy, Neuromuscular Electrical Stimulation, Sensory Integration, specialised AAC programs, swallowing and VitalStim® therapy. All services are offered under one roof, meaning that your child will truly experience the benefits of a multidisciplinary approach to their weekly and intensive therapy programs. The NAPA trained therapists have extensive experience in the treatment of children with a wide range of disabilities and collaborate with each other and their established network of over 80 therapists worldwide to ensure your child is receiving the best treatment in the most-timely manner possible. And, all of NAPA’s therapy services are covered by the NDIS.

EXPERIENCE THE NAPA DIFFERENCE

NAPA MELBOURNE IS COMING!

Each child is unique with very specific needs and NAPA embraces these differences with an understanding and individualised program. NAPA specialises in the intensive model of therapy combining tailored and specialised multi-discliplinary therapy programs over three full weeks. NAPA’s therapy team will help families determine the best combination of therapies and the number of hours that will be suitable for their child’s goals. Each intensive is customised to a child’s specific needs and interests and is delivered in a focused, fun and engaging way. As well as Physiotherapy, Occupational Therapy and Speech Therapy services, NAPA also offers a range of highly unique services and equipment, many of which are not available at other centres including: Cuevas Medek Exercise (CME)/ Medek, Dynamic Movement Intervention (DMI), Neurosuit therapy,

NAPA is delighted to announce that in September 2021, they will open a permanent new clinic in Melbourne! This will be NAPA's second Australian clinic, bringing the NAPA experience and magic to so many more children. Like Sydney, the new centre will offer both intensive therapy sessions throughout the year and weekly sessions. NAPA are very excited that with the second clinic they will be able to help so many more children each year.

REGISTER TODAY We have limited opportunities to register for intensive and weekly sessions in both our Sydney clinic and new Melbourne clinic. For all information about registering for NAPA including the patient intake process, pricing and more about our specialised interventions, visit www.napacentre.com.au or check us out on Facebook or Instagram.

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Sustainable leak-proof underwear for every bodi Australian brand Modibodi is known for celebrating – and catering for – diverse body types. Created by Kristy Chong, a real mum with a ‘real, leaky body’ after the birth of her second child, Modibodi is continually expanding its game-changing range of reusable leak-proof underwear to tackle everything from sweat and discharge to periods and incontinence. Specifically designed to help those with disabilities manage periods, discharge and incontinence more easily, Modibodi’s adaptive Detachable Bikini features a simple hook-and-eye closing mechanism on each side to make it possible to change discreetly, with minimum fuss, and without needing to get fully undressed – or to lift your feet off the ground. Crafted from soft, luxe fabric in a style which sits on the hip, the Detachable

Bikini comes in sizes 8 to 20 and features Modibodi’s scientifically proven patented Modifier Technology lining, which repels odour, fights bacteria and absorbs up to 15ml of fluid (the equivalent of 2 to 3 tampons’ worth), to keep you comfortable, confident, fresh and dry whether travelling in the car, on long-haul flights, or just during everyday activities. Paralympian Monique Murphy is an avid fan who wears the Detachable Bikini to make getting changed easier. "The detachable hook and eye clasp is similar to that of a bra clasp," Monique explains, "and it makes me smile knowing there are brands out there widening their target audience to include as many people as possible. Innovations like Modibodi help make all days that bit easier and help normalise disability." Inclusivity has always been at the centre

SUPER PRACTICAL These are great if you have a heavy flow and need to change quickly. Sides detach like a bra, you can just slip them off. Super absorbent while still looking really cute on as well -Kassandra B

of Modibodi’s brand philosophy, which promotes the fact all bodies should be embraced and celebrated, no matter their shape, ethnicity, size or ability. Reusable and washable, Modibodi underwear provides a sustainable, planetfriendly alternative to disposable pads, liners and tampons. With a single pad taking more than 500 years to break down in landfill, and the average person throwing away 11,000 menstrual products in a lifetime, finding new sustainable solutions to manage periods and incontinence has never been more important. Founder Kristy Chong explains: “We’re breaking taboos, opening minds and offering a reusable, sustainable option for the benefit of all bodies on this planet – because we believe that making a positive impact should be as easy as changing your undies”. Find out more at modibodi.com

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ACCESSIBLE AND ICEY EXPERIENCES Does the thought of slipping and sliding on ice and snow send shivers down your spine? Here are 10 accessible ice and snow experiences that will turn those shivers of fear into flutters of excitement. WORDS: JANEECE KELLER

Image: Justine McPherson

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SEE S C A N D I N AV I A ON A SMALL G RO U P TO U R

2. G O S N OW M O B I L I N G I N H A K U B A , J A PA N Planning for a trip to the snow with a wheelchair can be a challenge. Even more so when it’s in a foreign country. What can non-skiers or riders do? What will keep you entertained if there’s no adaptive snow sport program or your support team aren’t comfortable supporting you on the slopes? In Hakuba Japan the answer is go snowmobiling. Hakuba 47 is the only snowmobile driving school in Japan, so you’re in safe hands when you join one of their rides. Your driver will take you on a thrilling ride across the foot of the mountain between Hakuba 47 and Goryu where you immerse yourself in the beautiful scenery of the area. Let the team at Hakuba 47 know about your access needs before you arrive and they will go out of their way to make you feel like royalty. For first time visitors to the Japan ski fields, a snowmobile safari is a great way to explore the area. And for those who feel the need for speed, your needs will be well catered for. Wheelie tip: Take a manual chair (and some muscle) to the snow so you can easily jump on and off the gondolas. It allows for better access overall. hakuba47.co.jp/winter/en/ Experienced and recommended by Marlena Katene

See spectacular Scandinavia in a small group tour with Quo Vadis Holidays. Choose either a 14 or 24 day inclusive and immersive journey to experience the natural beauty and spectacles of the Nordic countries. Designed to include longer stays (no travelling to a new country each day), later starts (9am), a smaller tour group (approx. 20 people) and lots of seated, low/no energy activities, this tour is perfect for those who need lower energy travel options. On the two week itinerary guests traverse from Sweden to Finland, up into the Arctic Circle and across into northern Norway. You will experience a traditional Viking dinner, visit the Nordic home of Santa, stay in glass roofed igloos, log cabins and an ice hotel. Activities include skidoo tours, dog sledding, reindeer sleigh ride, ice fishing and much more. Experienced and recommended by Krista Callinan quovadisholidays.com

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H E A D TO COLORADO WHERE THERE ARE WINTER S P O RT S F O R E V E RYO N E

Image: Scott Ostrom

Winter in Colorado offers 28 diverse resorts providing fun and adventure for people of all abilities and skill levels such as these: Aspen Snowmass offers adaptive ski and snowboard lessons and a program for those with autism while facilitating social skills and independence, or try a range of adaptive pursuits at the National Sports Center for the Disabled, Winter Park & Denver, such as ski biking, snowshoeing and alpine and cross-country skiing. Vail, Beaver Creek, Telluride and Steamboat have a wide array of snow-based activities to choose from, while Breckenridge Outdoor Education Center partners with three of Colorado’s most popular ski destinations for customised lessons. Program offerings range from adaptive ski equipment, guides for people with visual impairments, experiences for people on the autism spectrum and more. More information: colorado.com/articles/ awesome-adaptive-winter-sports-colorado

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4. T RY D O G S L E D D I N G , MT BULLER Australian Sled Dog Tours run tours at Mt Buller, an alpine resort about three hours drive from Melbourne. Guests can drive right up to where the dogs are, making the experience more accessible for wheelchair users when there is heavy snow on the ground - but be aware that you will still need to navigate a wheelchair through the snow. The Australian Sled Dog Tours team make minor adjustments to their sled experience for wheelchair users and they make sure guests are comfortable; bringing extra cushions and creating a

makeshift seat belt on the sled. The dogs get so excited to run as they get attached to the gangline. It is impossible not to be super excited about the tour watching them! When the tour starts, you take off so fast and speed down the mountain. Watching the dogs work as a team and hearing about their backgrounds, training and positions from the sled driver really adds to the experience. sleddogtours.com.au Experienced and recommended by lovemoxieblog.com

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5. TA K E U P A DA P T I V E W I N T E R S P O RT S I N B R I T I S H C O L U M B I A , C A N A DA Ski resorts in the Canadian province of British Columbia are passionate about providing adaptive ski/snowboard programs to serve the needs of people with physical and cognitive disabilities, including hearing and vision impairment, enabling them to experience the freedom, joy and satisfaction of a full winter wonderland immersion. The Whistler Adaptive Ski & Snowboard Program offers individualised ski or snowboard lessons taught by instructors trained to used specialised equipment, techniques and adaptations specific to the participant’s

disability, including children and adults with autism spectrum disorder, ADD/ADHD, down syndrome, cerebral palsy, multiple sclerosis, muscular dystrophy (and various other disabilities). Alternatively, a ‘lesson buddy’ can be provided. This is a trained instructor who assists with the integration of the guest into their mainstream ski school lesson. Other adaptive programs in British Columbia ski resorts include Adaptive Sports at Sun Peaks, Live It, Love It! program at Revelstoke Mountain Resort and Silver Star Adaptive Snow Sports.

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MEET THE PENGUINS,

D U B A I , U N I T E D A R A B E M I R AT E S In the middle of the desert, skiing and experiencing snow isn’t the first thing that crosses one’s mind. But in Dubai nearly anything is possible. Dubai Ski is built within the Mall of the Emirates and gives tourists the opportunity to ski, snowboard and even have a close encounter with penguins. Not all the activities are accessible – it really depends on your needs. Penguin encounters are available twice an hour

throughout the day. They begin with a trainer talk where you learn about the 39 penguins that call the Dubai Snow Park home and penguin conservation efforts. Then comes the part everyone waits for, the penguin encounter and having photos taken with the animals. Wheelie tip: Contact the venue a day or two before your arrival to give them the heads-up that you’d like to visit and advise them of your needs. A manual

chair is a must for this ski park – it would be hard to get around without one. skidxb.com/snow-penguins Experienced and recommended by Marlena Katene

# Image: Tirol Werberg/Listener Lisa

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7. G O ADAP TIV E N ORDIC S K I IN G, AUSTRIA Three Tirolean Regions have been leaders in Adaptive Nordic Skiing in the heart of the Austrian Alps. Enjoy gliding across snow laden woods on Nordic sit skis and take in the stunning scenery. With gently rolling terrain and few steep hills, Lake Achensee Region is one of the best places in Tirol to enjoy adaptive cross country skiing. The resorts of Pertisau, Maurach and Achenkirch offer 46.1km of specially designated cross country ski tracks for people with disabilities. Seefeld Olympic Region offers a 44.5km trail network of terrain suitable for every level of adaptive skier.

The Kaunertal Valley Nordic Skiing Center provides access to four cross country ski tracks, featuring 8.1km of groomed trails, which offer uninterrupted panoramic views of the surrounding mountain ranges. All tracks and trails in these regions are regularly inspected by 9-time Paralympics Champion Oliver Anthofer. There are also a myriad of recreational activities available at these resorts to compliment your cross country ski experience. More information: tyrol.com/things-todo/barrier-free/adaptive-nordic-skiing

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Achensee, Pertisau

TA K E A H E L I C O P T E R TO F R A N Z J O S E F G L AC I E R , NEW ZEALAND Get out and about on the Franz Josef Glacier with MakingTrax and The Helicopter Line on New Zealand’s south island. The collaboration between these organisations make it possible for a wheelchair user to get out onto the ice, and breathe in the fresh, glacial air. When weather conditions allow, helicopters zip back and forwards in a scenic flight from Franz Josef township before landing on the famous Franz Josef Glacier. What makes the helicopter flight accessible is the MakingTrax ski-chair. Thanks to this innovation, guests who use a wheelchair can join able-bodied guests as they get out and move around on the glacier.

The helicopter has been modified with a basket attached to the side, which allows the skis to travel to the glacier. Before the MakingTrax ski-chair was available, passengers travelling with a disability or mobility restriction stayed in the helicopter the whole time. Having the whole family experience the magic of moving around on the glacier was the highlight of our trip to New Zealand. It reaffirmed to us that the drive and willingness of others to embrace change, can make a difference to many. Helicopter.co.nz & makingtrax.co.nz Experienced and recommended by Julie Jones

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9 P L AY PA R A I C E HOCKEY A RO U N D AUS T R A L I A

Para Ice Hockey is an inclusive sport that able-bodied and those with a disability can play together. If you’re aged six and over you can give it a go. Previously known as Sledge Hockey or Sled Hockey, Para Ice Hockey is one of the most popular sports in the Winter Paralympic Games. Australians can play at ice rinks in Brisbane, Sydney, Melbourne, Perth and Adelaide.

This equal inclusion sport is a fun way for young and old, able-bodied and those with a disability to participate in a team activity together. Once you’re out on the ice everyone is on a level playing field, so you have a chance to exercise not only your muscles but also your teamwork, grit and competitive skills. More information: paralympic.org.au/ sport/para-ice-hockey

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CRUISE TO ANTARCTICA Ask most cruise companies and they’ll tell you that a trip to Antarctica isn’t very accessible. But board Holland America Line’s MS Zaandam in Buenos Aires Argentina and you’ll get to spend four days exploring the icy continent as part of a longer 22 day cruise. According to Cory Lee there are more pros than cons for guests needing wheelchair access on the MS Zaandam. And one of his favourite parts of cruising was having three Antarctica experts onboard throughout the entire journey. Guests unable to go ashore in tenders

still get a great view from the ship’s deck. Cory Lee said he saw sights that were “more spectacular than anything I’ve ever laid eyes upon. I saw more whales, penguins, and seals than I can even count. And I truly had the experience of a lifetime. I honestly don’t feel like I missed out on anything by not going ashore.” hollandamerica.com/en_US/ cruise-destinations/south-americaantarctica Experienced and recommended by curbfreewithcorylee.com

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Emirates love our horses Meg Wade knows more about horses than most people on the planet. She is a four times national Australian endurance horse racing champion. She has also bred endurance horses for over 30 years, selling them to buyers all over the world. But since a devastating accident that left her in a coma, she's had to apply her determination to a whole different set of problems. One of those has been the problem of how to stay mobile, and she thinks she's found an answer. Over the last 10 years, portable mobility scooters have been a product on the rise. Small and highly portable, they can be folded for transportation in a car boot or even an aeroplane. Meg got her hands on a Luggie scooter back in 2016, and instantly it re-opened a whole slew of options she thought she'd lost forever. Unobtrusive enough to take in to a cafe, sturdy enough for expeditions to France, Slovakia, England, and more, the Luggie was a surprisingly effective solution for Meg, so much so she bought a second one! Meg speaks particularly fondly of her travels to the UAE with her scooter, a country she's been able to visit twice since the accident, all on her own steam. 'The people over there have an understanding for people with mobility issues', she said. It's one of the main countries she exports her horses to. She's also tried her hand at more typical tourist activities with the aid of her scooter friend. Bus tours around Slovakia, museums and shopping in Austria. One day she wants to see the northern lights. Doing things on her own steam has been a theme of Meg's life. Never particularly drawn to team sports, she has tried her hand at cross-country skiing and endurance kayaking, before picking up endurance horse racing at age 28. The races can involve anywhere up to 160km of travel in a day, and sometimes last multiple days. 'I liked being out there alone with the horse,' she explains. 'First you train that horse, build a bond and a trust. And then in the race, you're the brains, metering out its energy. Because the horse doesn't know how long the race is, only you do'. There's happiness in Meg’s voice when she talks about her past champion success. And a wistfulness. But there's also a fierce pride in what has come after - her survival and determination, and her continued business success in breeding top horses. As of 2020, her farm to the north of Holbruck in NSW, has about 100 horses at any one time, and employs up to 5 people. In her life Meg has solved a lot of problems. This time, Luggie technology took up a tiny bit of the slack. More information on the Luggie at www.luggieaustralia.com.au

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Integrity Modifying Vehicles Always aiming to help their customers live a better life Integrity Car Sales and Rentals is once again setting themselves apart in the wheelchair accessible vehicle industry. Integrity is now offering clients additional modifications on their vehicles done locally at their site in Sydney. One of the first customers who had the opportunity to benefit from this service were Tyson and David Martin. Tyson is an outgoing 22 year old who loves music, motorbikes, travel and is currently studying IT so he can teach people with disabilities how to use technology. Integrity first heard of Tyson when he inquired to hire a vehicle from Bateman’s Bay to Sydney to go on his first holiday - a 3 day boat cruise. Since that day Tyson hired a Toyota Hiace for a few months and then appealed to the NDIA to fund the same type of vehicle with additional modifications.

Dave and Tyson were successful in their application and Integrity were able to help them modify a Toyota Hiace to suit their needs. With only the two of them travelling in the car (or Tyson and a carer) it made sense for Tyson to be able to park his wheelchair right up to the front and centre of the Hiace. Integrity removed all equipment above the cabin floor (seats, mounting hardware and bar supports), sidestep and rubber matting. The lowered side of the cabin floor was then lifted leveling the whole floor so the wheelchair restraint system could be fitted. Throughout this conversion the heater box and cooler controls were all able to be retained without any changes meaning Tyson has his own independent controls for the heat and cooling of the back of the vehicle as he requires. Tyson is now also able to control the music in the car from his

wheelchair spot, which was a big plus for him. After the work was completed Ben Dubois staff member at Integrity who worked on the modifications delivered the car to David and Tyson in Batemans Bay which allowed him to meet both in person and show them all the work he had done to the car. “This conversion was quite rewarding for me because I got to hear Dave and Tysons story and how what we were doing was helping them in their daily lives. This just gave that particular job the extra bit of meaning, which is part of the reason I love working in this industry so much.” Ben Dubois, Integrity Team. To discuss how Integrity can support you with their wide range of wheelchair accessible vehicles to buy, rent and modify call them now on 1300 935 222.

36 Globe Trotter Supremo Sylvia got the super travel bug once she’d taken her first solo trip in a wheelchair 44 Costa Brava Not just accessible but inclusive too 49 Breaking out of the comfort zone How Cory Lee is opening up adventure to anyone with the urge 54 Skye’s the limit Amazing Race Australia contestant Skye-Blue talks adventure and travel 60 Don’t leave your phone at home! Two social media stars pave the way for other young people with albinism 68 First encounters of the marvellous kind in Shoalhaven 72 Adaptive winter sport experts share all 80 Queensland’s northern star Inclusive tourism in Far North Queensland 84 What a difference a dog makes Man’s best friend a dog may be, but a Guide Dog is much more

The words from a 1918 American song could apply to Sylvia Longmire: “how ya gonna keep ‘em down on the farm after they’ve seen Paree . . . Sylvia didn’t come from the farm but she sure got the super travel bug once she’d taken her first solo trip in a wheelchair. And she’s not doing things by half.

Saint Marks Square in Venice

GLOBE TROTTER SUPREMO WORDS: SOPHIE CULLEN

S Above: Sylvia & her sons on the Carnival Paradise cruising to Cozumel Right: Sylvia cruising on the MSC Seaside to the Caribbean

ylvia Longmire doesn’t do things by halves. When we speak over Zoom, I am struck first by the beautiful photos on her wall (more on that later), and a close second by her lust for life. Sylvia’s first ever solo trip in a wheelchair involved a sixteen-hour flight, destination Dubai. Mere months later, she went on her first cruise as a non-ambulatory passenger. In the same year, she visited Iceland and then Australia. At one point in our conversation, Sylvia teaches me the expression ‘to throw spaghetti at a wall and see if it’sticks’. “Just go for it and if it works out, it works out!” she says, by way of explanation. Sylvia has thrown her fair share of spaghetti. Travels aside, her occupations have included speaker, writer, voice actor, podcaster, travel agent, veteran, former Ms Wheelchair USA, military consultant on border security and part-time single mother of two boys. She was diagnosed with Multiple Sclerosis 15 years ago, while on active duty with the Air Force. She reignited her love of exploration by diving straight back in with that Dubai trip in 2016. This time, however, it was in a power wheelchair. “That was five years ago and there still wasn’t that much out there about accessible travel,” says Sylvia.

“I was reading [what I could find] and thinking ‘there is a space here.’ I’m a professional writer, going on all these trips. Maybe I should be writing about this! Physically, I can’t do much. But if I can give someone information that inspires them and helps them to do something good or exciting, then I want to be part of that.” Thus, Spin the Globe was born in November 2016. The blog has won three awards, and prompted the publication of several photography, travel-related and disability-related books. Her book on accessible cruising is the only one of its kind, snagging Sylvia two more awards. Sylvia is a big proponent of cruising due to its accessibility and the convenience of cutting out air travel and only unpacking once. “Being able to country hop and city hop, that’s the biggest benefit,” she says. In fact, when I ask Sylvia about her top travel highlights, she reminisces about a cruise in the Mediterranean. “It was a 12-night round trip from Rome, and we sailed to Greece and Israel. We spent the night in Jerusalem in a hotel; we went to Judaea and saw Masada and the Old City. As an analyst and a fan of history, I found it fascinating seeing all of these sights and hearing the stories.” 

AS AN ANALYST AND A FAN OF HISTORY, I FOUND IT FASCINATING SEEING ALL OF THESE SIGHTS AND HEARING THE STORIES

IT WAS ONE OF THOSE MOMENTS THAT YOU COULDN’T RECREATE IF YOU TRIED…I GET REALLY EMOTIONAL WHEN I THINK ABOUT IT

It may have left an impression, but Jerusalem is not Sylvia’s favourite city. Two “polar opposites” tie in that top spot – Vienna and Singapore. “Vienna has everything that I love – hobbies and art and music,” says Sylvia, gushing about eating sacher torte, witnessing the Lipizzaner stallions and seeing the Klimts and Monets in the Albertina, Schoenberg Palace and Belvedere Palace. “Look at me – I have chills just thinking about it!” “And Singapore…I love modern cities too. I love skyscrapers and shiny, clean lines. The accessibility in Singapore was phenomenal.” Sylvia’s sons, aged 10 and 12, join her travels when they live with her in the summer. “Seeing them get excited about travel – well, they get just as excited about travel and new experiences as me!” she says. The first major trip Sylvia took with her boys was a Disney cruise. They were accompanied by her mother, who enjoys the time with her grandsons. The extra back-up comes in handy, although Sylvia says her sons have proven themselves as great travel buddies. “They’re funny, they’re flexible, they’re willing to try new things. We compromise – we take turns doing things that we want to do. They’re helpful if I need them to be.” For someone who was typically travelling four or five months out of every year, locking down due to a global pandemic was not easy for Sylvia. An online acting course and eighteen voice acting parts later, she has her sights set on developing a television documentary series about accessible travel. In comparison, when I ask Sylvia about her travel goals, she laughs that they ‘may sound rather provincial’. “Oddly enough, I’ve never been to Mount Rushmore in South Dakota!” she says. “It’s not just Mount Rushmore. You also have the Badlands National Park, you have the Devil’s Tower and the Crazy Horse Memorial.” The bottom line is that Sylvia can find something to love anywhere. This is her key to successful travel: keeping an open mind. That, and always packing a roll of duct tape. Given she has visited no fewer than 57 countries, I’d take her word for it! “Be prepared for anything!” says Sylvia. “You have to be flexible and instead of looking at the reasons it won’t work, look at how you can make it work.” That said, Sylvia advises the novice traveller to take baby steps instead of jumping on a long-haul flight to Dubai like she did. “First, stay local,” she says. “Try using public

transportation that has accessibility. Then, spend the night in a hotel, even in your own city. Then take a road trip three or four hours away and stay in another city, where you can’t go home and you have to deal with whatever is in front of you. Finally, when you’re feeling courageous, take that first plane trip!” As I reluctantly wrap up our interview, I ask Sylvia about the canvases I can see hanging on the wall behind her. They are all photos she has taken herself – bicycles in Copenhagen, St Mary’s Cathedral in Krakow, the Wailing Wall in Jerusalem. But her favourite photo was taken in Morocco, and sits framed in her living room. “My best friend and I were in Gibraltar and we took the ferry to Tangier for the day,” says Sylvia. They booked a guided tour which went through the medina, where Sylvia encountered five boys of a similar age to her sons. They talked about soccer players, and Sylvia asked her guide to ask them for permission for a photo. “They leaned up against the wall and I caught the photo with their expressions,” she says. “It was one of those moments that you couldn’t recreate if you tried…I get really emotional when I think about it. I can’t walk and I’m here in northern Africa and I’m taking a picture! “It is surreal. It is an addiction – those experiences and those interactions with people. I travel abroad and it renews my faith in humanity.”

Left: Pueblo de Maiz in Cozumel Above: Sylvia and her sons

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GetAboutAble Empowers Accessible and Inclusive Tourism GetAboutAble Pty Ltd is an Australian social enterprise that empowers people with mobility, hearing, vision, and other assistance needs to experience mainstream travel & leisure activities. GetAboutAble’s goal is to empower people with accessibility needs to get out and about by making it easy to find information about accessible infrastructure and activities, and to help the travel & leisure sector be more inclusive for people with a disability.

CANBERRA: MORE THAN INCLUSIVE, MORE THAN ACCESSIBLE TOURISM CAMPAIGN With financial support from the Australian Capital Territory, GetAboutAble is leading a consortium of tourist attractions, accommodation providers and other travel & leisure businesses to create a marketing campaign to promote Canberra as an accessible and inclusive tourist destination. The “Canberra: More than inclusive, more than accessible” campaign will showcase the breadth of Canberra’s tourism offerings as experienced by people with mobility, vision, hearing and other assistance needs. The “Canberra: More than inclusive, more than accessible” campaign will combine GetAboutAble’s profound understanding of the accessible tourism market with the offerings of Canberra’s tourism providers to attract this lucrative market to the ACT. We are proud that the ACT Government has recognised the significant part that accessible tourism can provide to Canberra’s tourism recovery and the long-lasting economic and social benefits that this will have.

ACCESSIBLE & INCLUSIVE TOURISM CONFERENCE IN THE ASIA-PACIFIC (AITCAP) The Accessible & Inclusive Tourism Conference in the Asia-Pacific (AITCAP) will take place in May 2021. It will connect the huge underserved accessible & inclusive tourism market with the travel & leisure sector to improve understanding that accessible tourism is a huge

and growing market in our region. GetAboutAble hopes that AITCAP will help the Asia-Pacific region catch up with the US and Europe on accessible & inclusive tourism. You can help make this happen by registering to attend at https:// www.getaboutable.com/aitcap/. AITCAP is directed to the general public and the tourism industry (destination marketing organisations, tour operators, activity providers and venue operators, including both mainstream and specialist accessible and inclusive tourism industries). Every Thursday in May 2021, we will run a series of presentations, panel discussions and workshops on: • Best practice accessible and inclusive tourism • Attracting the valuable accessible tourism market • Improving end-to-end accessibility • Catering to diverse accessibility needs • The future of accessible and inclusive tourism We will also offer the opportunity for some sponsored content, like short sessions and product demonstrations, to promote: • Accessible and inclusive destinations • Tour operators and experience providers catering to people with mobility, vision, hearing and other accessibility needs • Equipment and service providers that facilitate accessible & inclusive tourism If you don’t want to miss this incredible event, you can register to attend at www. getaboutable.com/aitcap/

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2020, the year like no other is in the past Throughout the year, we learned a few very important things from our clients and their contacts. We learned families want to adventure and explore the outdoors together – even if the experience is close to home. Families showed us they can be very resourceful and innovative and that a strong spirit of do - it - yourself is alive and well. We’ve also come to learn the importance many community members place in avoiding creating waste – using resources and materials that are on hand. This has been demonstrated to us time and time again by clients like Amanda Cutbush, whose lovely daughter Laura is photographed above in the beach wheelchair they made themselves by fitting a Wheeleez Beach Wheelchair Conversion Kit to a would be discarded wheelchair. We built the chair & made a few adjustments to the poles. Added an old pool chair mesh seat as a basket underneath for all our beach

things. Took it to Avoca Beach (NSW Central coast) for something different. Was so great & easy to push we walked a long way. We use to use an old bike trailer that wouldn't make it in the softer sand. So happy. Thanks again, Amanda The results speak for themselves. The chair looks great and the family now are able to enjoy time in places previously not accessible, with safety and ease. Though there are many positives associated with the do it yourself approach, we acknowledge, it’s not for everyone. Hence, we have an array of ready to go all terrain products that will suit all ages, sizes and abilities. The newest additions to our range are the Wheeleez All Terrain / Beach Rollator which is a rollator designed to navigate challenging terrain and is very easily transported for travel. The wide WheelEEZ® polyurethane wheels provide a stable base to this rollator which helps develop confidence

when walking in the great outdoors. My age and ankle problems have prevented me from doing such things as walking, or any activity on unstable ground. Recently I saw an elderly lady walking along the beach with a Wheeleez rollator. A few days after seeing how active and how easy the elderly lady moved around on the soft sand, I went and purchased one myself. From that day my whole quality of life has changed. I can now walk on soft sand, grass and uneven surfaces again by myself unassisted, something I have been unable to do for a long time!! Thank you Wheeleez, Gary Drew, Gold Coast. Qld. Australia. To learn more about our great array of all terrain chairs, buggies and rollators, please visit our website www.saustralia.com or contact us by email info@saustralia.com or phone Drew on 0417 613566

! a l O Main: Powered paragliding with Vol Factory near Estartit Right: Sailing with Club Nàutic L’Escala, Girona, in a Hansa dinghy

COSTA BRAVA, NOT JUST ACCESSIBLE BUT INCLUSIVE TOO With an adventurous spirit, writer Martin Heng headed to this amazing part of Spain with his family and experienced activities with thrills and no spills. Ola!

hen Isabel Godoy from the Costa Brava Girona Tourism Board invited me to visit, I jumped at the chance. But it was with some trepidation that I broached the subject of bringing my family along. I needn’t have worried. Isabel was very keen to show me – and the world – that Costa Brava Tourism’s focus was not just on access, but also inclusion. After all, who goes on holiday alone? I asked her to put together an activity-based program with a bit of beach time for my daughters. That’s not to say we weren’t interested in the region’s architecture, culture, history and gastronomy – our previous visits have made us big fans of everything Spain has to offer. But I hoped to take on activities that most people wouldn’t associate with travelling with a disability. I was not disappointed. The program was adventurous by anybody’s standards, and our thrills took place on land, sea and in the air! First up was sailing, organised with Club Nàutic L’Escala, which runs a program to teach people with access needs to sail. The Club has Hansa boats that are easy to manage and impossible to capsize, and a hoist for people with reduced mobility. There’s a deep serenity in being propelled by the wind with waves lapping at the bow of a boat. The same can’t be said of our next activity. Powered paragliding is an experience that can only be described as a buzz! We met the friendly Vol Factory team at an isolated airfield a few kilometres outside Estartit. They made no fuss about getting me safely strapped into a powered tricycle, with the driver 

directly behind me, a massive fan behind him, and a parachute trailing behind the whole contraption. It was truly exhilarating to soar over mountains, fields and the coastline. As is so often the case, it was a family connection with disability that led Vol de Coloms to adapt one of their hot-air balloon baskets to make it accessible to people with reduced mobility. It was an early start for the three-hour flight over La Garrotxa Volcanic Zone Natural Park, an incredibly picturesque region of volcanic craters and mediaeval villages. Up to three comfy hydraulic seats with optional harnesses can be fitted inside the basket and raised for a perfect view. As if this wasn’t enough excitement for one day, Isabel had organised a hike around El Croscat Volcano for the afternoon. I rode in a one-wheeled all-terrain sedan wheelchair, the Joëlette, with a sherpa in front and behind. This simple piece of adaptive equipment – similar to the TrailRider used in Canada and Australia – can go on almost any hiking trail, even over fallen trees. It’s liberating to be able to access remote areas where no wheelchair will take you, especially with family and friends. Perhaps Isabel thought it was time we came back to earth, because the following day she organised a visit to award-winning winery, La Vinyeta. It was no ordinary winery. We sat enthralled as Josep

recounted how he and his wife Marta had rehabilitated the vineyard and centuries-old olive grove through sustainable and chemical-free farming. Having noticed that chickens like eating the grape waste, he now keeps free-range hens for eggs. Instead of using a diesel tractor to cut the grass, he keeps sheep, and uses their milk to make cheese. Understanding the dire state of European bees, he also began beekeeping and now also sells his own honey. After a wine-tasting and picnic that featured La Vinyeta produce and sausages made by Josep’s butcher father, we left in awe of this passionate but modest young man. Let’s not forget that my daughters were keen to swim in the Mediterranean! We visited several beaches in the region and I was considerably impressed with their accessibility. Australia is known for its beach culture, but we are only just beginning to roll out the beach matting, and beach wheelchairs are few and far between. In Costa Brava, most beaches have some accessibility features and several have a beach matting, accessible change rooms and amphibious wheelchairs. San Felíu de Guixols even has a portable hoist and permanent handrail into the sea itself! Lifeguards at some beaches, including Sa Conca, are available to accompany disabled visitors into the sea.

Clockwise from top left: Hike around El Croscat Volcano in a Joëlette, a onewheeled all-terrain sedan wheelchair, Lifeguards at Sa Conca assist with a floating beach wheelchair, Castellfollit de la Roca, as seen from hot-air balloon ride over La Garrotxa Volcanic Zone Natural Park, Hot-air balloon ride with Vol de Coloms over La Garrotxa Volcanic Zone Natural Park, with my daughters, Yasmine (left) and Saskia (right), Barcelona Cathedral (Cathedral of the Holy Cross and Saint Eulalia (Catalan: Catedral de la Santa Creu i Santa Eulàlia) with my daughters, Saskia (left) and Yasmine (right)

Interspersed with these adventures were more conventional tourist activities. We visited the Greek/ Roman Empúries archaeological site, a bird-watching lake (Parc dels Estanys) with a wheelchair-accessible hide, did a walking tour of the beautiful, compact and remarkably accessible medieval city of Girona (used as a set for the Game of Thrones) and went shopping in Platja d’Aro! We also enjoyed a relaxing mindfulness session led by Edgar Tarrés as night fell behind the closed gates of the Ciutadella in Roses. The history of this atmospheric location stretches back to Greek settlement in the 4th century BC. The important thing was that everything we did, we did as a family. Facilities and activities were largely accessible. Staff everywhere we went were able to see me as just another client, albeit one who might need additional help. And this is where the difference between accessibility and inclusion lies: it’s about attitude and empathy, not just infrastructure and compliance. This is an important distinction: the late Scott Rains – the godfather of inclusive tourism was fond of saying, ‘The question should not be “How much will it cost to make this accessible?” but rather, “Is there any reasonable justification for not making this fully inclusive?”’ If tourism operators around the world were to take this on board, so many more people with access needs would be able to use their services. Isabel certainly proved to us that the Costa Brava has embraced not only accessibility, but also inclusion. Martin’s trip to Costa Brava and Barcelona was funded jointly by the Costa Brava Girona Tourism Board, Barcelona Turisme and the Catalan Tourist Board.

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The Coffs Coast is Calling A long-time favourite holiday destination for families, a getaway on the Coffs Coast will tick everyone’s boxes. There’s plenty of nature experiences as well as accessible lookouts and board walks that’ll bring you up close to all the action.

PICK YOUR HOME BASE Reflections Holiday Parks has 3 parks just south of Coffs Harbour with accessible cabins. Each equipped to make your stay as stress-free and comfortable as possible. If you prefer to camp you can try that too. From Urunga you can explore the kilometre long Urunga Board walk, where you can spot birds, lizards, sting rays and crabs. At Scotts Head you’ll be greeted by the sound of waves and spectacular views of the Pacific Ocean. Mylestom is a flat park just a stone’s throw from dog friendly North Beach, just 20 minutes’ drive to the centre of Coffs Harbour.

EXPLORE THE REGION Head to the Coffs Harbour Butterfly House

for a unique back to nature experience. The concrete paths, accessible bathrooms and wide doorways mean that everyone can enjoy watching and learning about Australian Butterflies. If you’re lucky one might even mistake you for a flower! Top Tip – Visit between 10am and 2pm to see the Butterflies at their most active. An award-winning tourist destination, the Forest Sky Pier sits 21 metres beyond the original Sealy Lookout and offers a stunning vista of Solitary Island Marine Park and Coffs Harbour. On a clear day you could see up to 100km away! The lookout includes accessible parking and toilets. No trip to Coffs Harbour is complete without a stop off at the Big Banana Fun Park. There’s more to the park than the Banana though! The toboggan ride is sure to be a hit and if someone needs assistance it’s usually possible to double on the ride. Be prepared to sweat though, the ramp to the top of the ride is steep. The Big Banana’s ice rink allows wheelchairs on the ice, it’s step free access too. Plus, there’s accessible

Urunga

Scotts Head

parking and a ramp to access the rink as well as an accessible bathroom. When it’s time to eat, the wheelchair friendly café offers lots of yummy food and banana themed treats! After a day packed with activity you can return to your cabin at Reflections Holiday Parks Urunga, Mylestom or Scotts Head. For more information head to reflectionsholidayparks.com.au

Panama City Beach, Florida

Cory in Alaska

a website where I wanted to create el learn how to trav people can go to

BREAKING OUT OF THE COMFORT ZONE

Seven continents, 37 countries, a renowned travel blog and now an acclaimed children’s book. There are few lengths to which Cory Lee won’t go to when it comes to opening up adventure to anyone with the urge. WORDS: SOPHIE CULLEN

For the founder and wordsmith behind Curb Free with Cory Lee, making travel visible and accessible for people with disabilities is his raison d’etre. With time zones and a pandemic between us, Cory and I caught up via Zoom to talk about the latest notches in his proverbial travel belt: a bucket-list trip to Antarctica and the July release of his children’s book, Let’s Explore with Cor Cor.

Taj Mahal India

Costa Rica

“That was the first time I go t to see a different cu lture and coun try"

Cory and Mom Sandy in Sydney, Australia

WHERE IT ALL BEGAN

But first, back to the beginning and a trip to the Bahamas. Diagnosed at the age of two with spinal muscular atrophy type 2, Cory got his first wheelchair when he was 4 years old. He travelled extensively on road trips around the US with his family. When he was 15, Cory embarked on his first international holiday to the Bahamas and the Caribbean. “That was the first time I got to see a different culture and country,” he says, “so it really sparked my interest and made me want to explore further. That was where the travel bug was born within me.” Years later, this very travel bug saw Cory researching a trip to Australia. Although he managed to find the odd website, he was stumped by the dearth of accessible travel bloggers and information about accessibility online. Thus, Curb Free with Cory Lee was born, about six years ago. “I wanted to create a website where people can go to learn how to travel, where to travel and why they should travel as someone with a disability.”

Cory riding a camel in Morocco

om Cory and M elhi, India Sandy in D

CORY’S TOP TRAVEL PICKS

The blog documents Cory’s extensive travels, including his recent trip to his seventh continent, Antarctica. “It was a lifelong dream for me to go to all seven continents and visit Antarctica,” Cory says. His cruise started in Buenos Aires, Argentina, and took a week to reach Antarctica where the ship spent four days. “It just blew my mind,” says Cory. “It is so much more beautiful and grand and spectacular than I thought it would be. I saw whales, penguins and seals every single day, and huge icebergs that towered above the cruise ship. I really never thought I’d be able to go as a wheelchair user. Once I finally got there, it was such a surreal experience unlike anywhere else I’d been.” While Antarctica was firmly and undoubtedly at the top of Cory’s list of travel experiences, Morocco came in at a close second. He visited the north African country in 2018 on the inaugural Curb Free group trip, on which he was able to cross another experience off his bucket list. “I always wanted to ride a camel in the Sahara Desert, but wasn’t sure how I would be able to stay on it because I’m not stable or able to sit independently. The fact that they built an adaptive seat is incredible.” Cory, who was joined by some followers of his blog, travelled with Morocco Accessible Travel Consultants. They had built what Cory describes as a ‘half wheelchair’ with a full back rest and strapping, sitting on top of the camel. The moral of the story is that there is a way around almost anything when you’re on the road. “Accessibility can be where you least expect it. You just have to be willing to do a little bit of research.”

Cory cruisin

“It was a lifelon g dream for m e to go to all seven continen ts and visit An tarctica"

Sagrada Familia in Barcelona, Spain

Cory in India

“I ask a ton ne o regarding a f questions ccessibility "

CORY’S TOP TIP

Research is, in fact, Cory’s number one piece of advice for the first-time traveller in a wheelchair. He starts planning as early as 12 months in advance of departure. This allows for plenty of time to secure accessibility on flights, accommodation and transportation. “Now when I travel, I ask a tonne of questions regarding accessibility,” says Cory. “Find out if the hotel has a roll-in shower; how wide are the doorways; is there an elevator or is the room on the first floor – all those details I overlooked when I started. I’ve become a much more prepared traveller over the last 15 years or so.” That’s not to say that it isn’t possible to be spontaneous when you use a wheelchair, Cory emphasises. Nor is it a guarantee that you’ll have a seamless trip. Planning might make things easier, but sometimes things go wrong. “Travelling as a wheelchair user is going to be tough,” Cory advises. “The first time that I ever went to Europe, I went to Munich, Germany. I use a powered wheelchair so we have to charge it every night. I showed up to the hotel with an adaptor and a convertor, and as soon as we plugged it into the outlet, it blew up and my wheelchair charger blew up. Sparks were flying and the power went out.” The following day, Cory found a wheelchair repair shop and a brand-new replacement wheelchair charger. “Always remember that it is going to work out in the end,” he says. “The ultimate result is that you’re going to be able to travel and have a really cool experience that you wouldn’t have at home. Keep a really positive attitude.”

Watching waterfalls in Iceland

Cory with Mom Sandy in Alaska Off-roadi

occo ng in Mor

elling is ps me trav “What kee hy I’m travelling" ing w remember

Beach wheelchair in Muskegon, Michigan

LET’S EXPLORE WITH COR COR

This message is the inspiration behind Let’s Explore with Cor Cor, Cory’s recently released children’s book. The book was co-authored with his mum, who frequently accompanies Cory on his travels. “We wanted to create a book about a kid in a wheelchair who travelled the world because when I was growing up, we never saw another character in books or on TV who used a wheelchair like I did. We hope that today’s generation of kids with disabilities can finally see themselves represented.” The book’s title character visits Iceland, Australia and beyond – all destinations to which Cory himself has travelled. Cory’s hope is that it makes his young readers realise that all those destinations are accessible to them too. This, ultimately, is why Cory keeps doing what he’s doing. “What keeps me travelling is remembering why I’m travelling,” he says. “The ‘why’ is that I want to show people that the world is accessible. I hope that my readers and followers feel inspired to break out of their comfort zone and get out on the open road.”

SKYE’S THE LIMIT

Participating in a rigorous reality TV show has only spurred Skye-Blue on to pushing herself further on to more adventure and travel. WORDS: JULIE JONES If you dare to tell Skye-Blue Henderson she can’t do something, you should be warned that you are simply fuelling her desire to prove you wrong. Recently this determination came in particularly handy when Skye-Blue and her brother Jake competed on The Amazing Race Australia. Born without a left hand, Skye-Blue is used to people underestimating her abilities, but a can-do attitude has meant it has never held her back. Skye-Blue attributes this positive attitude to an upbringing where she was told she could do anything she set her mind to. That’s not to

say she hasn’t had others doubting her ability. She says, “I don’t consider myself as having a disability or physical difference. Everyone has something different about them, whether it’s their hair colour or something else. Everyone is uniquely themselves.” Skye-Blue says she lives by the motto of “Be you and be okay with it”. Skye-Blue and her brother Jake teamed up for the latest season of The Amazing Race, which was run solely in Australia due to Covid-19 and the subsequent international border restrictions. Prior to the

Above: Skye-Blue completing a challenge in Tasmania Right: Skye-Blue & brother Jake

race, Skye-Blue hadn’t travelled much here at home, which she now thinks is a shame because she’s discovered, “the whole world is in Australia.” When quizzed on the destination highlights of her time on The Amazing Race, Skye-Blue doesn’t hesitate in picking Tasmania. She admits to not being a city person, preferring the opportunity to explore nature and the cultural aspects of a destination. Tasmania was somewhere she had always wanted to travel, and she says she found the raw and authentic nature of the region to be exceptional. The Blue 

Skye-Blue & Jake on The Amazing Race

Mountains in New South Wales also rated as a favourite stop on The Amazing Race for Skye-Blue who describes it as, “something you’d expect to see on a postcard”. When it comes to future travel wish-list destinations, Skye-Blue has Uluru on the top of the list for the cultural experiences and the opportunity to learn about Australian history. Skye-Blue believes travel brings people closer together and says she is grateful she got to experience The Amazing Race with her brother Jake, who is also one of her best friends. As you’d imagine, after racing around Australia with no mobile phone or camera and only a backpack, Skye-Blue has learnt a thing or two about packing light and being in the moment.

SKYE-BLUE’S TRAVEL TIPS

Travel with less. Think about what you actually need, rather than what you prefer to have. When you remove lots of materialistic things, you realise what a distraction they are. Put your phone down for five minutes and take the sights in with your eyes, rather than a lens. Learn to read a map. If your phone is flat or you lose service, it’s good to have backup map reading skills. A bum-bag full of snacks will keep the “hangriness” at bay.

SKYE-BLUE’S TIPS FOR PARENTING A CHILD WITH A PHYSICAL DIFFERENCE

Let your child have the opportunity to give sport or another activity a go. Trial and error will help them grow as a person and learn to be comfortable within themselves. Believe in them and support them. People will be in their ear telling them they can’t do things but as long as they believe in themselves, they will achieve what they put their mind to with your support. Let them be 100% uniquely them. Don’t try and cotton wool them. They will need to experience harshness to feel whole within themselves. You have to hear a lot of ‘nos’ to build the strength to move forward.

I don’t consider myself as having a disability or physical difference. Everyone has something different about them, whether it’s their hair colour or something else. Everyone is uniquely themselves.

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COMFORTABLE LIFTING POSITION The 4-point sling bar is standard and guarantees the patient hoist gives a comfortable lifting position for the user with ample space around the head area, thereby eliminating any risk of the head bumping into the sling bar or the user swinging. Molift also offers a range of quality slings to assist with various transfer situations, including toileting and showering. With the combination of sling and sling bar, the user will slide into a natural, correct seating position, from lying to sitting and vice versa. The Molift Smart 150 has a lifting weight capacity of 150 kg, making it suitable for many users. It also features a unique design with an excellent centre of balance. Travel with a soft case for protection against scratches. Use the hard case for complete protection, making it ideal for aircraft stowage. For peace of mind, built-in software calculates when the lifter requires servicing. An emergency stop button is easily accessible, and a manual lowering function can be used in the event of an electrical error. Molift transfer solutions are designed to be the best in class when it comes to product quality, reliability and durability. The Molift Smart 150 has been awarded for Design Excellence by the Norwegian Design Council. Contact Patient Handling to find a distributor near you: 1300 137 875 | support@patienthandling.com.au

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Family Fun Made Easy Cathy Camilleri and her family have been to Sargood many times since it first opened in 2017; in fact, its become one of their favourite places. The lockdown during the pandemic meant they weren’t able to visit for the majority of this year, but they made sure they were one of the first guests when Sargood opened again in October. Belle Camilleri was just three and a half when she was hit by a truck and suffered a spinal cord injury, leaving her paralysed below the waist. “Before Sargood opened, we had only been on one holiday since the accident,” says Cathy, mother of Belle, now 11. “We stayed in a normal hotel and we realised just how hard it was. We had to take Belle’s air mattress and other equipment with us, there was no ramp to the pool so we had to carry her, and there was no way of getting her down to the beach. There were so many things she missed out on – we never did it again.” Their first visit to Sargood was the start of a whole new way of holidaying. It has been a godsend, not just for Belle but also for Cathy, her husband Troy, Belle’s brother 9-year-old Nate and their extended family. “Belle loves it and so does Nate,” says

Cathy. “They love all the activities – cycling, swimming, snorkelling, tennis and going on the beach buggy. The rock pool down at the beach is probably Belle’s favourite. The wonderful thing is they get to do activities together. Belle knows that Sargood is designed for her and that it’s the one place where she isn’t going to miss out on anything due to her injury.” The family no longer needs to take Belle’s mattress with them as Sargood provides everything. “There’s a celling hoist if we want that and there’s a special shower-bath that she uses too. There’s also plenty of space in the rooms and common areas for her wheelchair,” says Cathy. “There really aren’t any challenges in travelling when we go to Sargood. I also know, especially if I go by myself with the kids, that I can get the help of staff to lift her in and out of things – or to do anything really. You can’t assume you will have help elsewhere.” Sargood has given Belle the confidence to see what she is able to achieve. “She can try the bikes and see if that’s something she wants to get into. She can test out the various technologies and equipment and see what’s out there that she may be able to use in the

future.” The Camilleri’s also enjoy meeting other families who have a child with an SCI. During their visit in October, they met another family who had an 11 year old with an SCI, and he also had siblings around the same age. “All the kids did a lot of stuff together so that was really lovely,” says Cathy. “Troy and I also learn a lot from speaking to other parents. For example, this family told us about the wheelchair sports their boy was into, and we thought that could be something Belle might like too. We will most likely meet up with them again through those kinds of activities. “It’s also really nice to chat about some of the issues that crop up when you have a child with an SCI, and hear about other people’s experiences. We have met a number of other families through Sargood over the years that we keep in touch with.” “It really is a wonderful place. We can take the extended family and enjoy time all together. My eldest son is married with a baby, so they sometimes join us, as do my parents. Our whole family loves Sargood and I don’t think we would holiday anywhere else.”

Image: Victoria McKay | Hair and Makeup: Debra Kelly

DON’T LEAVE YOUR PHONE AT HOME! These two social media stars are paving the way as role models for other young people with albinism to be confident and believe in themselves.

ucy Carpenter and Sammy McCombe have long been fans of fashion and photography. Friends since they met on a Guide Dogs camp in primary school, you might recognise the Victoria-based pair from their well-known Instagram account. We chatted with Lucy and Sammy about their favourite travel memories, living with albinism, and how @lucy_and_sammy came about. instagram.com/lucy_and_sammy/ “We decided that we would create an Instagram account together,” says Lucy, who has just graduated from high school and older than Sammy by two years. “[We wanted] to blend our love for fashion and social media with trying to raise awareness that ‘different is beautiful.’” “From what I remember,” says Sammy, “it was during the summer, which is the hardest time for us with our fair skin. All our friends are in bikinis at the beach and it is really hard, especially with social media because you see all of that. So Lucy came over one day to give me a bit of company and we just decided to start up a page. It was all for fun… None of our friends even knew until we were on the news!” Albinism is a genetic condition that is passed on through a recessive gene. There are multiple types of the condition, which affect people differently. Both Lucy and Sammy have a type of albinism affecting the pigmentation in their eyes, hair and skin. For Lucy, this causes very low vision - she is in the legally blind range - and means her hair and skin don’t produce any melanin or colour. “Between the two of us, our vision varies,” she says. “No one with albinism has the same level of vision impairment. For me personally, the main thing is low vision and sun sensitivity.” “The way I describe my vision in particular,” says Sammy, who also stresses it is different for everyone, “is to say that you could read a stop sign from 60 

No one with albinism has the same level of vision impairment. For me personally, the main thing is low vision and sun sensitivity

Above: Marysville, Victoria, Australia

Top left: Bukit Lawang, Sumatra, Indonesia Bottom left: Mindil Beach, Darwin, Australia

metres and I would have to get six metres away to read it. But it is hard to compare my vision because I’ve never had it any different!” Their friendship - on and off social media - has had an important impact on Lucy’s and Sammy’s lives since their first meeting at the Guide Dogs camp. “We just kind of clicked,” says Sammy. “I remember we switched outfits and pretended to be each other. We were pretty inseparable at that camp. It was really good for me to have someone like that, an older role model. Lucy definitely got me through some hard stages with going to school and feeling different.” Lucy speaks equally as fondly of Sammy and the confidence they have boosted in each other. “A lot of the representation of albinism that we see is from older people that we know with albinism. It is really nice to have someone [living] so close to you, who’s around your age also going through similar things. Not a lot of people have that when they have a rare condition. It has brought both of us out of our shells.” No stranger to overseas or interstate travel, Lucy urges anyone with albinism or a similar condition not to let it dictate their plans. “Don’t let it define where you go or how you travel. There’s always a way to overcome things.” She names a language tour she took with her 

TOP TIP FOR TRAVEL

Lucy and Sammy both spoke about how invaluable their phones are when travelling. Excluding her cane, Lucy considers the apps on her phone her most important tools for travel. “There are a bunch of apps I use,” she says, “even apps that will take in my location and tell me what restaurants or movie theatres are nearby. I can’t see what’s in front of me, like what shops there are, so I rely on my phone for pretty much everything.” “Download the PTV App (Public Transport Victoria),” Sammy recommends. “That’s helped me a lot; it gives you a really good idea of what trains are where. There are a lot of apps like that. BlindSquare is like Google Maps but it describes things really well; it’s all audio.”

Image: Victoria McKay | Hair and Makeup: Debra Kelly

It was really good for me to have someone like that, an older role model. Lucy definitely got me through some hard stages with going to school and feeling different.

Above: Sammy & Lucy modelling

school to Indonesia aged 15 as an incredible travel experience, despite the challenge of travelling without her parents. “One of my highlights was when we were staying in a hotel in the jungle in North Sumatra,” says Lucy. “One day we went on a six-hour jungle trek which was very challenging. It had rained the night before so it was muddy and slippery and there were animals that we had to be aware of. Obviously my teachers and peers were really helpful but it was hard for me. I completed four hours of that trek and that was a really big achievement for me. I’m quite proud that I was able to overcome it and complete as much as I could.” It is Papua New Guinea, where her grandfather lived and worked and her father was born, that has left the strongest impression on Sammy. She was amazed by the overwhelming warmth of the people

she met travelling on outer islands. Closer to home, Sammy picks childhood visits to Queensland with her family as a favourite travel memory. “I’ve always been a bit of a daredevil,” she says, “so when we went up to the theme parks, I would just go full-out on the rollercoasters. Little eight-year-old me on the Tower of Terror!” Both Lucy and Sammy hope to do a lot more travelling in the future. A self-confessed ‘city person’, Lucy is drawn to the immense scale and busyness of Japan, while Sammy places France at the top of her bucket list. “Travel wherever you want,” urges Lucy. “You just have to be confident in yourself as a person and advocate for yourself.” Sammy echoes the sentiment. “Don’t give up. All it takes is practice, just don’t give up!”

Image: Visit Victoria/Mark Chew

LUCY AND SAMMY’S TOP PICKS FOR DESTINATIONS IN GEELONG 1. ADVENTURE PARK “It’s got a lot of rides and is a really good day out, for families especially,” says Sammy. 2. GREAT OCEAN ROAD CHOCOLATIER Sammy also recommends the pontoon at Eastern Beach and the Great Ocean Road Chocolatier. 3. GEELONG BOLLARDS “A group of bollards is scattered along the foreshore in a trail around Geelong,” says Sammy. “A lot of people come to take photos in front of them.” 4. BEACHES ON THE BELLARINE “Down my way,” says Lucy, who lives near the coast on the Bellarine Peninsula, “we have some really nice beaches and caravan parks. A lot of people come here over the summer holidays from Melbourne.”

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Built & Tested to Australian Standards AS 3581 AS 2569 AS/ANZ ISO 10525:2011 Meets the Disability Discrimination Act (DDA) under the Building Code of Australia Therapeutic Goods Administration (ARTG) Registered NDIS Registered since 2014 37 years’ experience > Market leader in Aquatic Disability products in Australia

NDIS Item code: Assistive Technology | Hoists for Transfer Into/Out of Pools/ Adverse Environment Thousands of people around Australia rely on this equipment both at home and at their local School, Hospital and Aquatic Centre such as the new Gunyama Aquatic in Zetland, Sydney Olympic Park Aquatic Centre, Sea World on the Gold Coast, QLD, along with hotels such as The Crown, Barangaroo Sydney, The Ritz Carlton, Perth & The Westin, Brisbane CBD just to name a few. Para Mobility has been leading the way

in Australian Made and manufactured specialised disability equipment for the home, workplace, transport, exercise, leisure, or rehabilitation needs for the last 37 years. Para Mobility was founded in 1983 to make everyday living easier for those who need accessibility solutions in their own homes, workplaces and communities and regularly support abled bodied people in their rehabilitation, who are temporarily injured, all the way through to Para Athletes and people in wheelchairs looking for more independence, along with NDIS Participants. Para Mobility General Manager, Sally Farrow, says the company is proud to be one of the few Australian Made and owned manufacturers in the disability sector. “We pride ourselves in listening to what our customers need and subsequently design and manufacture patient lifting, mobility and access solutions that enable people with a disability more freedom and independence”

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Fun for Everyone Shine Shed North West is the second Shine Shed to open in Sydney. Based in Vineyard it’s a fully accessible, all abilities play centre that services the Hawkesbury and Hills regions and beyond, with visitors from all parts of Sydney, Blue Mountains and the Central Coast joining the Shine Shed North West family. Designed with the assistance of Lisa from The Shine Shed Campbelltown, visitors will find everything they need for a great day out. There is something for everyone to play on, with active equipment including a zip line (with 3 different seats), wheelchair and therapy swings, trampolines, an air bag and a climbing wall, or for those who want to relax a little there’s a sensory cubby with a giant bean bag, bubble column and sensory wall. A fully accessible bathroom includes an electric-lift change table, and the portable hoist can be used to transfer from wheelchair to equipment anywhere in the centre. Owners Sam and Iain are passionate about having a space where everyone can play, and get a real buzz from seeing families

get out and play together. “We have 3 children, two with a rare genetic condition called CDG-PIGN, which manifests itself in global developmental delay. We know the frustration of our children not being able to play together, whether in a park, playground or other play centre, and have experienced the uncomfortable stares from both children and other parents in these locations. Until we visited Shine Shed Campbelltown, so Shine Shed North West became a passion project to make truly inclusive play in a safe, nonjudgemental environment a reality” said Iain. The on-site Zach’s Café has a selection of light meals and snacks, and a full range of hot and cold drinks, and with the play area visible from the seating in the café space, parents and carers can relax while the children have fun. Shine Shed North West also has a dedicated party room, and offers a variety of packages from small self-catered parties to fully catered private hires, making it a great place to have a memorable celebration or function.

The centre also has also hosted disability and school groups, with the various elements of the play space suitable for inclusion in a modified curriculum, community access visits, or just for fun! Why not come and check out Shine Shed North West for yourself! It’s truly a place where everyone can play. shineshednorthwest.com.au address, Unit 1 16 Rob Place, Vineyard 4577 9107

Clockwise from left: Enjoying the accessible viewing on Port Venture, Spotting the Stingrays at Bendalong, Stingray at Bendalong, Meeting the wombats at Bendeela Recreation Area, Hoist access to the boom net on Port Venture, Jervis Bay

FIRST ENCOUNTERS OF THE MARVELLOUS KIND IN SHOALHAVEN WORDS: JULIE JONES

South of Sydney, animal lovers will delight in the variety of close encounters available in the Shoalhaven region and many don’t charge an admission fee..

1. KANGAROO VALLEY

Kangaroo Valley (about a two-hour drive from Sydney) is a popular destination for city slickers looking for a slow-paced weekend away. The relaxed lifestyle of the town also suits one of Australia’s most elusive furry friends, the wombat. At dusk the large

population of wombats that call the local campground home, emerge from their burrows to graze on the grass. Although wild, they are accustomed to visitors and happily go about their business while ignoring the paparazzi-like attention they attract. You can see the wombats wandering around without even leaving your car or you can take a walk/ wheel along the road. It’s not sealed and is quite rustic but should be manageable for most wheelchair users for a short distance. Your best chance of seeing the wombats

at the Bendeela Recreation Area is at dusk. Keep an eye out for the kangaroos who also pop in to the campground for a twilight snack around the same time.

2. JERVIS BAY

More than 100 Bottlenose Dolphins call the pristine waters of Jervis Bay home and Jervis Bay Wild offer a wheelchair accessible vessel, Port Venture, to make spotting them available to everyone. Once onboard the boat, you’ll head for the best

viewing deck at the front of the vessel as it’s equipped with a wider than usual gangway and a ramp. If you fancy cooling off in the boom net, there’s even a hoist available for transferring from a wheelchair into the net. A ramp leads down to the lower deck where the boom net is located, and an accessible bathroom is available for changing out of wet swimmers if needed. Contact Jervis Bay Wild in advance to book the hoist and to ensure your accessibility needs can be met. Some larger wheelchairs, particularly power chairs, may be too wide to fit through the doorway to the upper deck. jervisbaywild.com.au

3. BENDALONG

Seeing Stingrays in the wild is a special experience, especially when snorkelling or diving is not required. The small town of Bendalong is a 45 minute drive

from Huskisson and it’s where you can wade into the shallow water to see the stingrays. Fishermen’s scraps keep the stingrays returning to Boat Harbour Beach and it’s now a popular spot with tourists. Before heading down to the beach, stop off at the Bendalong Tourist Park to pick up a small packet of bait to help attract the stingrays. This activity is best suited to travellers with their own beach wheelchair or with a wheelchair with off-road tyres to make it easier to get to the water. Access is relatively easy using the boat ramp to get onto the beach and the sand is fairly compact down to the water’s edge. The stingrays swim in the shallows so they are easy to spot even from the shoreline, but for the most interactive experience you need to be in the water. Parking and accessible bathrooms are located close to the boat ramp.

4. PEBBLY BEACH

Many Australians are blasé about seeing kangaroos in the countryside but there’s something special about seeing them on a beach. Pebbly Beach in the Murramarang National Park is a lovely spot for a picnic and if you’re lucky you could see the kangaroos grazing on the grass or hopping along the beach. Many of our native birds also call the national park home and they’re not shy. It leaves you wondering who is watching whom. Seeing animals in their natural environment is a privilege so please respect their space. Remember there are no guarantees with sightings, which is why it makes it even more exciting and special when you do spot them.

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High and dry? Not I! Getting wet is high on the bucket list of activities for most Australians on vacation. Whether it is the surf, a water park, dolphin encounter, sophisticated resort pool or a relaxing spa, everyone loves an aquatic environment. Solutions for making these activities accessible for persons with differing abilities are now widely available. They range from simple waterproof limb covers through to heavy-duty pool hoist installations, with many options in between.

DRYPRO WATERPROOF COVERS Sometimes the barrier to getting wet is something that needs to stay dry! This could be a plaster cast, a wound dressing, a prosthetic limb, an ostomy or an intravenous PICC line. The DryPro range of protectors offers various configurations in sizes for very small children through to larger adults. Orders are despatched Australia-wide every working day of the year to save as many holidays as possible!

BEACH ACCESS Accessing the water’s edge is now open to persons of all abilities, with the proliferation of large-wheeled mobility aids. For someone reliant on a walking frame for day-to-day use, the WheelEEZ® Beach Rollator is the ideal alternative to being stuck on the promenade… If you require additional support, select from the various beach wheelchairs available locally – the Sandcruiser®, the BWA, or if you actually want to get right in – the amazing Tiralo 2. These models have recently become available for trials at your favourite venue in the greater Sydney area and further afield in NSW.

POOL ACCESS Pool hoists are becoming increasingly common across a variety of venues including public swimming pools, hotel pools, resorts and cruise ships. It is important to check ahead that the hoist at your destination suits your specific needs. Some will only have a basic plastic seat and no option to convert to a sling attachment. Venues reluctant to install a hoist may be interested to hear about the SR Smith range, which includes two portable models – the PAL Hi/Lo and the PAL 2. These wheel up and away from the pool edge without the need for tools or fixing hardware.

AQUA SLINGS Pool hoists at holiday destinations, which do offer sling attachment, may expect patrons to bring their own sling. A sling with loop attachments will normally be required. There are many options including the Silva® Flotation Sling for users needing maximum support. Avant Innovations is proud to share these unique assistive technologies from across the globe – www.avantinnovations.com.au

ADVERTISING FEATURE

Turny Low Vehicle & Carolift 40 Community access is at the heart of everything we do here at Mobility Engineering, and we endeavour to ensure that all members of the public have a practical and sustainable method of transport. A method of transport that will allow families, couples, and individuals to access the vehicle with their own transport aids safely without causing a physical toll on themselves or their passenger. Now that people can start to travel around Australia again, we want to ensure that they are adequately equipped to be able to reach their destination of choice with ease. Pairing certain mobility solutions together can make a world of difference when it comes to travel, so we wanted to highlight these solutions in our Kia Cerato: the Turny Low Vehicle swivel seat and the Carolift 40 boot hoist! The Turny Low Vehicle will bring the

seat out of the vehicle to allow for an easy transfer into either the front passenger or driver position and does not require any permanent modification to the vehicle. It can provide various transport scenarios when you are on the road, either transferring onto a personal mobility device to help you get around and see the sights at your destination or you can remain seated but bring yourself to face the outside of the vehicle on a quick rest stop. Maybe even park by a lake and throw the rod into the water from your seating position for a quick lunch surprise! This seat paired with the Carolift 40 boot hoist, makes travelling with a mobility device much simpler. The Carolift 40 will remove the lifting effort required as it does this for your, leaving you to simply guide your chair or scooter into the vehicle, keeping your energy and strength to visit

the outdoors and make the most of your road trip. Travelling should be fun and not a chore, even for those of us who need an extra hand getting seated or stowing their devices and we find that solutions like these can make this process less stressful so you can keep the focus on the fun. Breaking down the limitations that people face through carefully selected solutions and encouraging community access is what we enjoy doing here at Mobility Engineering, and we hope to get you and your family safely on the road!

Company Name: Mobility Engineering Number: 02 9482 4572 Address: 4/45 Salisbury Road, Asquith, 2077, NSW Website: www.mobilityengineering.com.au

ADAPTIVE WINTER SPORT EXPERTS SHARE ALL

There’s no business like snow business for these winter sports fans. 72

Snowfields around the world buzz with enthusiastic adaptive winter sports fans and Australia is no different. There’s a thriving community of people who love nothing more than sharing their experiences. Here are tips, insights and photos from seven seasoned adaptive wintersport specialists.

ADAPTIVE SKI GUIDE: BEN TUCKNOTT I have high functioning autism spectrum disorder - ASD. I started out as a participant with Disabled Wintersport Australia (DWA) when I was 13 on a school trip. Over the years while I was with DWA I became more interested in helping people like me out on snow - either supporting their first time on snow or as they return multiple times. Eventually I gained the skills and knowledge to attend the guide training weekend and passed! I’ve been guiding for DWA for 10 years now. As one of their senior guides I can guide all ranges of disabilities, but I specialise in helping people on the autism spectrum. I’m also very experienced in ID’s and sit skiing. I love guiding; whether it be a joy ride cruising around the mountain having some fun, or spending a day teaching a client to hone their independence so that they eventually don’t need us for support. Sometimes you get asked to just go and ski with someone who’s looking for a ski

buddy. It’s not always easy starting a new sport. My top tip is don’t give up. Skiing isn’t an easy sport to learn but it’s worth persevering for. One of the fun things about my skiing experience began when I’d just started learning from DWA when I was younger. Over the years I was with them I had the same guides most of the times I went up the mountain. These days I’m very good friends with those same guides and have gone from chasing them around the mountain, to them chasing and trying to keep up with me. I’ve travelled the world with my group of guiding friends. We skied in Japan, where we have had some spectacular splats in the powder, and New Zealand where we went bombing down the crazy tight chutes in the club fields. In Canada we met some amazing people involved in adaptive programs there, and we made some good connections for future trips.

Most recently we went to Europe where we skied our way around Austria and toured the spectacular resorts. As an adaptive ski guide, I’m always learning. For example, once when I took a client out for a weekend joy ride in Australia, I was supervising a guide learning to sit ski too. We all took the wrong turn down a run in Hotham and discovered that the entire run was moguled out. We made it down and we found out that it is possible to ski moguls in a sit ski! But I don’t think i'll be attempting it again any time soon. I still guide for DWA, which runs out of all major ski resorts in Australia. Mount Hotham has an accessible bus network connecting the village to the lodges. And the lodges are becoming more accessible with many installing lifts. Falls creek has fully equipped lodging for people with disabilities and is 12km away from the resort.

ADAPTIVE SKI INSTRUCTOR: DANIEL HO My wife and I started guiding back in 2003 after buying a raffle ticket from Mark Soyer at a Warren Miller showing. As a senior DWA guide, I typically assist clients with more demanding needs. I am one of the few guides at DWA who can solo guide participants if required. There have been numerous rewarding moments over the years, but the most challenging one was one weekend at Mt Hotham where I was assigned a participant who was mostly blind (pinhole vision in one eye), completely deaf, and had not been on snow for over 40 yrs (he was in his late 50's). Fortunately, the participant had an interpreter who was also deaf but could lip read and ski. It took all the tools in my toolkit and then some to figure out a way to teach this participant how to ski. By mid afternoon on the first day, he was skiing independently down the Summit run at Mt Hotham. Helping Ben Tucknott is another very rewarding experience and the longest interaction I have had with any participant I assisted. Each year, we finance and run one to two ski trips for the Autistic school Ben attended, which is when I first met him (he was 12 yrs old at the time). We taught him how to ski, and he got better each year. We were also able to

see how skiing helped him in his personal development (this is universal with all the students, which is why we finance their camp every year). Ben continued his skiing after he finished school, and we continued to ski with him. He now assists us with the international ski trips and we are helping him get into backcountry skiing. A lot of my volunteering is with sit skiers. Typically it takes three to five days for a fit individual from their first day on snow to sit skiing independently. The fastest progression I had was a track and field lady who had never been on snow before. She became wheelchair dependent after a spinal cord injury. Within three days she was solo sit skiing down black runs. In Australia the three resorts with the most comprehensive DWA operations are Falls Creek and Mount Hotham in Victoria and Thredbo in NSW. Falls Creek is a fantastic place to start, as the runs are well suited for beginners and intermediates. The challenge with Falls Creek is that it has limited but expensive on-snow wheelchair accessible accommodation. And getting around the resort in a wheelchair or for anybody with mobility issues is next to impossible. Instead, opt to stay at Howmans Gap

a few minutes down the road, which is wheelchair accessible and where DWA bases itself. Mt Hotham is better suited to intermediates and above skiers. However, with the right guide, Mt Hotham is suitable for all abilities. There is limited wheelchair accessible accommodation, however the village buses and oversnow transport cater for wheelchairs. There are also several facilities that have adaptive access, including some nice restaurants. Thredbo has arguably the best terrain options for skiers of all abilities. The terrain for beginners is fantastic. The location of the resort is convenient and there’s a dedicated DWA facility at the bottom of the chairlift. More generally, Thredbo has better wheelchair accessible amenities than Hotham or Falls Creek and if you choose to stay out of the village, DWA has access to accommodation in Jindabyne. Three tips for first time adaptive skiers: 1. Join the DWA Volunteer Facebook page; 2. Access the snow via DWA's resort services program; 3. Find yourself a trained and certified adaptive instructor.

WHEELCHAIR USER: KATE SWAIN I had my first taste of adaptive skiing on a year 11 excursion to Canberra and to Perisher. My teachers had asked my Mum if she’d like me to give adaptive skiing go, she said yes. I was petrified, feeling sick and didn’t want to do it. I am so glad I did it as I was hooked! My first instructor, Paul, and the help provided by Disabled Wintersport Australia had a massive impact on how much I enjoyed my first adaptive skiing experience. It was great fun skiing with Paul and adapting hired equipment. As scary as it was, nothing was impossible. We even skied in the half pipe, which he’d never done before! After that first ski I’d been hankering to return but was busy with school and university. My Starlight Wish was granted a few years later and through that I returned to the slopes. I have since been back to the snow many times to ski. And I plan to continue. In Australia, I prefer to ski at Falls Creek. The slopes are progressive and I know many of the crew. It also has a nice community for my parents who support me but don’t ski. My favourite place to ski in Japan is Suginohara. It’s got soft powdery snow and long, wide runs! I’ve skied here many times and hope to return. I’ve had many incredible experiences on the slopes. For example when I went back on snow after many years thanks to my Starlight Wish, we went to Thredbo. One day we had a snowboarding photographer, Alister Buckingham, come with us for the morning. My instructor, Kenton Williams, wanted to create some amazing experiences and decided to go over jumps. He captured how scared I was but also how much fun we were having! A print of the photo was gifted to me and is hung in my living space. My tip for someone new to adaptive snow sports is, give it a go! We’ve all got to start somewhere. Speak openly about how you can be best supported. Figure out what works for you by trying different equipment, working with different instructors and guides, and visiting different resorts. I don't ever say no to a run unless I have a valid reason such as I am too cold with blue lips or exhausted!

ADAPTIVE SNOWSPORT GUIDE: STEPHANIE JAY I got into adaptive snowsport guiding through a friend I met in the university ski club. She’s a guide and she organised a girls weekend with two other friends, one of whom is a DWA participant and another who's also a guide. We did this weekend annually for a few years, and I ‘guided’ unofficially. They all spoke so highly of DWA and the fun that they had guiding. So I decided to do my training and guide properly. Since joining DWA I've guided people of all ages and abilities. I mostly guide on DWA Victoria's ‘camps’, which are weekends at Falls Creek organised jointly by DWA and other disability services organisations. I've guided people from the spinal injury unit at the Austin Hospital in Melbourne, most of whom were in their 20s or 30s. I’ve also guided people from the Shelley Earl organisation, which focuses on recreation activities for 15- to 18-year-olds with a range of disabilities: cerebral palsy, intellectual disability, acquired brain injury. Groups participating in DWA camps come up to Falls Creek on a Friday and leave Sunday, skiing Saturday and Sunday. My top tip for anyone trying adaptive skiing for the first time is don't be afraid to have a go. All of us, adaptive or otherwise, fall over, look goofy, and make mistakes when we're learning. That's how we get better. Organised camps are a great way to take the stress of coordinating everything as a first timer: accommodation, lift passes, equipment hire; and lets you focus on making friends and having fun. The first participant I ever guided was a man in his early 30s with cerebral palsy who was non verbal and used a chair. He came to a camp with a CP advocacy group. His carer came too, but his carer didn’t ski. Typically in these scenarios the carers hang out in the cafe where we all have lunch, to help with chair transfers and toileting

and other care over lunch. It means they can keep warm and enjoy a coffee while watching everyone ski by. Carers who can ski are welcome to join us on snow too. We have a minimum of two guides per participant, one is always very experienced. With this first participant I guided, I was a bit worried because I was new and I'm a big talker. But I learnt pretty quickly what his cues were and whether we (the other guide and I) were talking about things that interested him. We'd ask him questions and get nods or smiles back in response. It turned out that he loves 80's rock music and one of the lift stations had Triple M blaring, so we'd have a singalong while waiting for the lift. We would always check that his limbs were warm, and that the speeds we went were comfortable for him. Essentially, ensuring constant communication. The feedback from his carer was that he had a ball. My advice is that even if it seems overwhelming and causes you some

anxiety thinking about whether or not to give it a go, I've heard of only good experiences overall. Even when people have had bumps or tumbles during the weekend. There's no pressure on participants to be independent skiers (in a sit ski, using aids or whatever works for them) if they don't want to or can't, but equally everyone is very encouraging if it is something that a person wants to work towards. There's also no pressure to be out on the snow for the whole day, if someone needs a rest or has low energy needs then that's fine too. I guide mostly at Falls Creek. A few years ago, custom built accessible accommodation including, accessible bedrooms, bathroom, kitchen and lounge was built. There are two dedicated DWA staff on the mountain full time in winter, coordinating guides and participants. Meals are provided, and if you're participating in a camp, so is transport to and from Melbourne.

SKIER WITH LIMITED VISION: DEBBIE KING I became involved in adaptive skiing in 2011, about three years after my first vision loss. I thought I would have to give up skiing as it was becoming too dangerous. But my daughter, who was working for Mt Buller Ski Lifts at the time, told me about Disabled Wintersport Australia (DWA) and I became a member soon after. I wear a vest declaring my vision impairment when I ski, in the hope that people will understand my limitations and give me space. It works! I have had a vest translated into Japanese (thanks to our local sushi shop), which I have worn when skiing overseas. I always reach out to different adaptive groups when I travel to ski. This came in handy when we went to Whistler (in Canada) and my luggage went missing. I was so grateful to be able to borrow a vest

from Whistler Adaptive Sports Program while mine was lost in transit somewhere over the Pacific. My scariest moment while out skiing was when our bluetooth headsets ran out of power. My husband guides me through voice commands so when our communication suddenly died while we were skiing in a new resort in Japan we knew we had a big problem. My husband said it was like driving a bus (that’s me) with broken steering! Needless to say we always check that we have our equipment fully charged from now on. Lesson learned! It’s always funny when people think that my husband, who guides by skiing behind me, is the one who is blind. Ha ha, I like that! We’ve returned to Canada three more times to live in Sun Peaks Resort for the winter season. It was here that my husband

and I became involved with Adaptive Sports at Sun Peaks. We both became qualified Adaptive Instructors. As someone living with a vision impairment I have personally learned so many skills from the adaptive winter sport community that have helped build my confidence as my vision has deteriorated. They are a fantastic group. Sun Peaks in Canada might be my favourite place to ski but I will always have a place in my heart for Mt Buller, Victoria where I have skied all my life. My advice to anyone who is new to adaptive skiing is to get out there and give it a go. There are so many knowledgeable groups around with the skills to help you get on the snow. You just need to reach out because nothing beats that ‘wind in your face experience‘ or the feeling you get when you are carving up the slopes.

SIT SKIER WITH A DISABLING MEDICAL CONDITION: KRISTA CALLINAN My disabling medical condition (Myalgic Encephalomyelitis (ME) and comorbid Postural Orthostatic Tachycardia (POTS)) started with rapid onset in April of 2013. I spent the first few years fighting against the illness, refusing to accept it. By 2016 I realised I was using all of my limited energy fighting to have my old life back again, but inadvertently making myself miserable by not accepting that this is my life now (for at least the foreseeable future) and I needed to find new ways, within my new capacity and capability, to enjoy life. I needed to find ways to adapt the things I used to enjoy so I could enjoy them (or a version of them) again, as well as finding other new things to find joy in. I’ve skied most of my 40 years. Cross country, downhill, backcountry, snow camping. I spent almost two decades as a Ski Patroller in the Lake Mountain Ski Patrol (Victoria). I had been a member of Alpine Search and Rescue (VIC) for about five years. In my final year of university I did a term of teaching rounds at Falls Creek Primary School. Snow and skiing were, and still are, my greatest passion in life. So, I decided that I needed to find a new way to bring the joy of

being on snow back into my life. I booked a week’s stay up at Falls Creek and started searching online for how I could get myself out and onto the snow again. I needed activities that wouldn’t require very much energy and that I could do from a sitting position. I found a skidoo tour, dog sled rides and eventually came across Disabled Wintersport Australia (DWA). My first adaptive ski experience was a sit skiing lesson and equipment hire through DWA in Falls Creek. My instructor was the very lovely Charlie. Even now, reflecting back on how the experience made me feel, I still get very emotional. I hadn’t realised how much I’d missed the rhythmic swoosh, swoosh, swoosh feeling of the skis across the snow beneath me. It was exhilarating and the most freedom I’d felt since getting sick. No broken body or slow electric wheelchair to hold me back. I remember feeling apprehensive the first time I experienced the sit ski-to-chairlift transition and the first time I was told to take control of the sit ski turns. That said, I did feel a distinct advantage in having come to sit skiing after learning to ski prior to having a disability. A certain amount of that previous

knowledge and muscle memory; how the skis feel on snow and the smoothness and control of the turns and the edging of the skis, were surprisingly transferable from upright skiing to sit skiing. This is probably another reason I felt that I was able to immediately recapture the feelings associated with skiing that I had so dearly missed. The best tip I can give is to just book a lesson and give it a go. If you enjoy being outdoors, have an adventurous spirit or just want to try something a bit different, it’s such a fun way to spend a day and can be made as little or as much of a challenge as you want it to be. In my world, you rest for days or sometimes weeks to have enough energy to take part in an event and or for even daily living. And then you spend days to weeks afterwards recovering and rebuilding energy stores. You choose very carefully what you put your energy into. Sit skiing has been such a special experience for me and I can live off the memory of it for weeks, months and even years (thanks COVID-19!). It’s hard to put into words how much it has meant to me to find sit skiing.

SKIER WITH A SPINAL CORD INJURY: CHRISSY PANTLIN I first got involved a year after suffering a spinal cord injury. I was aware of Disabled Wintersport Australia (DWA) from my time working at a ski resort and was thrilled to know there was an organisation out there to help people get into snow sports. My first adaptive ski experience was really positive. I was able to get out on the snow with a volunteer, using some outriggers to do ‘four track’ skiing. We decided that this was the best option for me and I am keen to keep skiing standing up while I am able to. To be honest, it was the thought of skiing again that pulled me out of a pretty dark place after my injury. The absolute joy I felt as I went down the slope for the first time post injury, with the cold wind in my face, sun on my skin made me feel so alive again! I knew then that life wasn't over, my spinal cord injury might make things more challenging, but I could still have a full and active life. Knowing there were people out there, volunteering their time to help me and others like me, really gave me motivation to keep pushing my limits, even when the doctors were telling me to just "get in a wheelchair and accept you're disabled". It has continued to be a huge source of motivation to stay active all year round and to never give up. My favourite ski resort in Australia (so far) is Falls Creek. I haven't yet had the chance to go overseas as an adaptive skier but am booked for Canada next year! I think one of the funniest and scariest adaptive ski experiences was when my DWA volunteer completely ignored my protests and tricked me into going down a black run! Ha ha! I know that sounds bad, but honestly, it was the push I needed to regain some confidence which I had really lost, transitioning from an able-bodied to adaptive skier. I wanted to throttle him as I realised where we were going BUT I felt such a huge sense of achievement when I got to the bottom and it really helped me believe in myself, and to keep pushing boundaries.

My top tip for someone new to adaptive snow sports is to call DWA and go out with a volunteer or on one of their weekends away. Don't be afraid to give it a go. Talk to lots of different adaptive skiers and get the support you need to give it a go. And if you have a bad day, that feels cold, wet and miserable and like you can't do this, take a break then get yourself back out there. It's such an amazing feeling! Although I have a spinal cord injury, it's not a complete spinal cord injury, meaning that I can still walk. So from the outside I look like any other able bodied skier. To begin with I felt like I didn't really belong in the ‘adaptive snow sports’ category, yet I couldn't keep up with able-bodied skiers because I didn't have the strength in my legs any more. I was really worried about being an outsider in both groups but I have found

the adaptive snow sports community really welcoming and non-judgemental. They really made me feel at home with them and winter is now something I look forward to every year!

The Miss Snow It All Adaptive Wintersports Chatter Facebook group page is an amazing source of information with participants happy to answer your questions about gear, skiing, snowboarding and adaptive snow events globally. There’s no better place to research or plan a trip than with the assistance of people who have personal experience.

Promoting inclusive tourism in Far North Queensland.

QUEENSLAND’S NORTHERN STAR

Main: Dane enjoying the accessible boardwalk at Red Peak, a stop on the Skyrail Rainforest Cableway Top right: Access to the gondola at Skyrail Rainforest Cableway Bottom right: Skyrail Rainforest Cableway, Cairns

When it comes to improving inclusive tourism across Australia, sharing personal experiences and knowledge directly with operators is essential. Spinal Life Australia Advocacy Officer Dane Cross took a trip to Cairns to conduct an extensive review of tourism opportunities in the region, sharing his recommendations with businesses, Tourism Tropical North Queensland and other key decision-makers. Dane shares just a few highlights from his trip, to help you plan your next journey.

ON TOP OF THE WORLD WITH SKYRAIL

The Skyrail is a 7.5km scenic cableway running above the Barron Gorge National Park, travelling up to tropical village Kuranda where you can access shops and other attractions. To get on the Skyrail gondola, the lift system is stopped, and a ramp is placed across the carriage. Station staff know which gondolas are transporting people with a disability so they can assist as needed. Along the way, you can stop off to view the Barron Falls from the wheelchair accessible boardwalk and visit the information centre, located at the interchange for the gondolas. The gondolas were designed and built 20 years ago so have some limitations for wheelchair users, which must be less than 630mm wide and no longer than 950mm. The weight must be "manageable" to allow for loading and for the tilting required to negotiate the ramp. For passengers with chairs exceeding those dimensions, loan chairs are available, which you can pre-arrange ahead of time. You can choose to do a return trip on the Skyrail or travel one way with the Kuranda Scenic Railway, although you will require a short taxi trip between stations to collect your vehicle at the end. Cairns tourism operator Tropic Wings also has wheelchair accessible coaches and offers tours that include transport to and from the Skyrail. For first-hand reviews of places to visit in Cairns, check out accessibleaustralia.com.au. Find the reviews helpful? Make sure you leave a review and help others ‘know before you go!’

OTHER ACCESSIBLE ACTIVITIES IN AND NEARBY TO CAIRNS:

Cape Tribulation

ATHERTON TABLELANDS: waterfalls and Mamu Rainforest Canopy Walkway. CAPE TRIBULATION: where ancient rainforest meets the sea. FISHING: from the jetty or land at Palm Cove. SNORKELLING: Quicksilver reef tours operate daily, weather permitting, from Crystalbrook Superyacht Marina in Port Douglas.

SAILING: Cairns Yacht Club’s Sailability program. HARTLEYS CROCODILE ADVENTURE: take an accessible boat tour and watch crocodile feeding. BUNGEE JUMPING: Skypark by AJ Hackett, 20 minutes north of Cairns allows people to jump in their wheelchair. DIVING: Dive Career Centre, are Cairns' only certified diving instructors for people with disability.

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Tips to keep exploring in 2021 Cocky Guides lead blind & low vision travellers to destinations all around Australia. During 2020 they have been leading COVID safe group tours to destinations as diverse as Lightning Ridge in Outback NSW & Cradle Mountain in Tasmania’s Central Highlands. Cocky Guides suggests these three simple tips when planning your next trip. Sharon at home during COVID with Guide Dog Tulip

Sharon with Cocky Guides Leader Buck at Cradle Mountain, Tasmania

1. BE FLEXIBLE Changes to border rules & restrictions have dented confidence in travel. When planning for your trip, it’s essential to consider your flexibility around dates & places you’d like to visit. Being flexible allows you to have options when things change. Make sure when you book a tour, accommodation or activity, the provider is also flexible. Cocky Guides has close relationships with accommodation & activity providers, enabling no deposit tour reservations.

2. TAKE CONTROL Planning a trip & have fixed travel dates? It would be best if you considered holidaying within your home state. Regional areas are a great option as there is more certainty over your trip not being disrupted by border changes. Going regional not only gives you a chance to check out some unique places in your own backyard, but it also plays a big part in boosting the economy in regional areas.

3. TAILORED TOURS Have you considered creating your own unique adventure? Tailored tours are a safe & popular way of travelling with friends & family. Cocky Guides can tailor trips for groups - where you choose the destination & departure date. This is a great option for all levels of fitness, age & ability.

TALES FROM A TRAVELLER Sharon, a deafblind traveller from Sydney’s Seven Hills, recently returned from a trip to Tasmania with Cocky Guides – here is what she had to say about the experience. ‘It’s easy & inclusive! I found we visited less crowded places & this helped me feel confident that I was doing the right thing regarding social distancing. Tasmania was accessible with wideopen space & clean air. I loved Cataract Gorge & Cradle Mountain. We had VIP treatment everywhere, & I particularly enjoyed riding with the Captain onboard World Heritage Cruises on the Gordon River & Platypus House, where we got to hang out with the echidnas!’

KNOW A BLIND OR LOW VISION TRAVELLER?

Visit & share www.cockyguides.com.au, where you can search upcoming tours & subscribe to a regular newsletter, alternatively call 1300 657 640.

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Inclusive communities For people with and without disability, being part of a community where we feel valued, supported and appreciated is an important aspect of life. David Wetzler lives at Crowle Estate, and says it is also these links to community that are one of the most essential parts in his life. “I like living at Crowle because I’m part of my community,” he says. “I love talking to my friends and keeping busy.” Since moving to Crowle Estate in 2017, David has established close bonds with the on site staff, other residents in the apartment complex and the local community through various programs and activities. “Since David moved to Crowle he has become more confident and takes pride in his new home and his appearance,” says Achieve Australia’s Community Living Manager, Ruchika Mangla. “He has made lots of new friends and has become more social and outgoing too.” Disability support services from Achieve

Australia such as Support Coordination, Supported Independent Living (SIL), employment supports and lifestyle day programs help David to build his daily living skills, maintain a steady job and create stronger social bonds. Achieve Australia’s Support Coordinator, Tamara Junghans, explains that while it hasn’t always been easy for David, with the right supports David now has more opportunities and choice than he had before. “Previously, David was living on his own in community housing and didn’t have adequate disability supports in place,” says Tamara. “We’ve been able to work closely with David to build on his independence, help develop daily routines and improve his travel and social skills so that he can go out more.” As part of David’s goal to create stronger links with community, he also attends lifestyle day programs at Achieve’s Araluen hub. Among various creative pursuits, he takes part in weekly art, writing and

photography programs. During the Positive Partners literacy program, David created illustrations for the Bluey the Polar Bear short story as well as artworks for his own short story: Daniello and Her New Friends. Inspired by friendship, courage and community, David wrote his short story with the help of a corporate volunteer and mentor from PricewaterhouseCoopers. At the end of the program, all short stories were compiled into the book Seven Inspired Tales: A Collection of Short Stories. When he’s not busy attending programs, David enjoys walking, fitness and being outdoors. “My favourite place to visit is Terrigal,” he says. “I like going for long drives to explore and visit the coast because I like the beautiful scenery.” In future, David wants to go on holiday to Dubbo and focus on developing new skills. “I have a goal to learn bowling one day too,” he smiles.

WHAT A DIFFERENCE A DOG MAKES Man’s best friend a dog may be, but a Guide Dog is much more. The dogs guide, are intuitive companions, teachers... and some go as far as being celebrity canines. WORDS: JULIE JONES

Most people have one thing they never leave home without when travelling, and for James Bennett, that’s his Guide Dog Kingsley. Over the last 15 years James has had three different Guide Dogs assist him to travel to every commercial airport in Australia. Although he’s confident and efficient in navigating the world as a man who is blind now, it was a steep learning curve in the beginning. A mechanical engineer by trade, James lost the sight in his left eye in 1986 while working in his home workshop. A piece of metal shattered his safety glasses, with the glass cutting his eye. Despite it being a devastating injury, James says it could have been much worse. Without the safety glasses he would have died. Losing his vision in one eye was difficult for James, particularly learning

depth perception, but another blow was yet to come. In an incredible twist of fate, James suffered a cardiovascular event in 2004 which cut off the blood supply to the optic nerve in his right eye and at the age of 57 he became blind overnight in what he describes as Murphy’s Law. Three years of rehabilitation helped James learn how to do basic tasks like standing up straight, putting toothpaste on a toothbrush and finding a way to pick out an outfit that matches. It took time for him to adjust and orientate himself with these tasks he’d previously completed without thinking twice. Once comfortable with life at home, James became a long cane user, and his first challenge was getting from his house to the local swim centre, which was about a kilometre away. It took a while to accomplish 

James and Guide Dog Kingsley catching the ferry

Book in advance if you’d like a particular hotel or room

TRAVEL TIPS FROM JAMES Being so well-travelled I asked James to share his top tips for fellow travellers who are blind or living with a disability. 1. Don’t be afraid to ask for help. 2. Book in advance if you’d like a particular hotel or room. 3. Use technology to assist you. Some of the apps which are helpful to someone with low vision or who is blind include - JAWS (Job Active With Speech) is a synthetic speech screen reader, OCR program called Envision which uses the iPhone camera to pick convert printed restaurant menus to synthetic speech and Money Reader which uses the iPhone camera to photograph bank notes and reads out the denomination.

but once he was feeling as confident as he could be, he decided to return to the workforce and started his own business working in quality management systems. This job didn’t require sight but would require him to travel around Australia. A course at Vision Australia taught James Braille and computer literacy, both assisting with his independence. Counting the steps for each section of his journey, from drop off at the railways station to his destination, was just part of his routine, but James admits it’s mentally exhausting. After a ‘nasty incident’ at a pedestrian crossing where a bus ran a red light, resulting in James being pinned between a signpost and a car, everything changed. When the manager of Guide Dogs heard about the accident, he told him, “that’s it, you’re getting a Guide Dog!”. James says the whole world opened up for him from the moment he was matched with Putu, his first Guide Dog. When I ask him how using a Guide Dog differed from using a cane, he laughs and says: “It was like hopping out of a Mac truck into an E Class Mercedes.” The need to count each step to his destination was obsolete with Putu only needing a simple command to get him where he needed to go. Putu and James clocked up 288 flights together before Putu retired and Brogan took over as James’ Guide Dog. Brogan became somewhat of a social media sensation and an unofficial Qantas ambassador in his time flying with James. He’s the only dog who has been granted Qantas Frequent Flyer status with 478 flights under his collar before his retirement. His frequent flyer number was appropriately, K9 and he racked up an enviable 500,000 frequent flyer 

Left: James & Brogan travelling in the Northern Territory Top right: James & Guide Dog Brogan travelling Bottom right: Brogan getting comfy on a flight

points. James says he’s always experienced great service with all the airlines but can’t speak highly enough of Qantas. Booking a flight is made easier with the airline creating a profile for his dog so all the information they need is on the system. Like many passengers with a disability, James and his Guide Dog are first to board the plane and last to disembark. A row of seats is blocked off for James and his Guide Dog at no additional charge and usually other passengers don’t even know there’s a dog on the flight. Travelling as frequently as James does for business, he has stayed in hundreds of hotels and reports that hotel staff are generally aware service dogs can accompany him. If not, he politely lets them know and has only had positive experiences as a result. Where possible, he tries to stay in the same hotel and room to eliminate the need to find his way around a new property. When staying in a different hotel he asks staff to accompany him to the room to orientate him with the location of the bathroom, power points and ‘any low flying coffee tables or furniture’. Seeing the visual delights of a destination is often what drives many of us to travel, so I was curious to know what James now enjoys. “I’m a foodie and enjoy human company”, was his reply. Travelling as much as he does, he’s found that most hotels have a bar, and he says it doesn’t take long to make friends when you have a dog with you. James has found it fascinating meeting people from all walks of life. In his role visiting disability services, undertaking quality management reports, there’s little time for being a tourist but on one trip to Central Australia

Left: James & Kingsley travelling

Image: Tourism NT/Matt Glastonbury

he found himself with the weekend free. James booked a bus tour to Uluru for himself and Brogan. On this trip James said he was engaged by the awe he could hear in the reactions of his fellow travellers to Uluru and Kata Tjuta. Brogan needed to dress for the occasion with boots on his paws to save the pads of his feet from the hot ground with temperatures soaring to 41 degrees. James was awarded the Order of Australia Medal in 2017 for services to the blind and low vision community. Throughout our interview I was impressed by not only his good humour and positive attitude but his willingness to assist others by sharing his life experiences adapting to being blind. Did you know that it costs $50,000 to raise a Guide Dog puppy? Find out more at guidedogs.com.au

JAMES’ FAVOURITE RESTAURANTS

AROUND AUSTRALIA

NSW

NORTHERN TERRITORY

SYDNEY • The Glebe Hotel • Nick's Seafood Restaurant • Passello (Italian) Restaurant

DARWIN • The Mecure Airport Resort Hotel • The Novotel Hotel Dining Room

WOLLONGONG • The Novotel Hotel Dining Room • Mylan (Vietnamese) Restaurant COOMA • Rose’s Lebanese Restaurant • The Alpine Hotel Restaurant

WESTERN AUSTRALIA PERTH • Sullivans Family Hotel Dining Room • Lambretta Cucina Italiana Restaurant • Royal India Restaurant

ALICE SPRINGS • The Mecure Resort Hotel Dining Room • The DoubleTree by Hilton Hotel Dining Room • The Gillen Club Bistro

TASMANIA HOBART • The Drunken Admiral (Seafood) Restaurant • The Grand Chancellor Hotel Dining Room • Wrest Point Hotel Revolving Restaurant

Image: Tourism Tasmania/ Chris Crerar

NEWCASTLE • The Royal Motor Yacht Club Bistro • Warners Bay Hotel Bistro

The Grand Chancellor Hotel Dining Room

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Stephanie explores Brisbane’s accessible cultural precinct with her support worker Travel and border restrictions have meant that staycations have become a bit of a staple in recent times. So when Stephanie Dower decided she’d like to spend a night in Brisbane to explore what her home city has to offer, the first person she called was Jane, her support worker. The two met through Mable, an online community that enables people with disability to connect with independent support workers they choose. Stephanie, who is Creative Director at her own production company, requires a wheelchair for mobility and says she relies on Jane “to be my arms and legs”. They have been on a few travel adventures together since connecting on Mable.com.au in 2018. “I’m not in a position to travel without a support worker so I really appreciate being on such friendly terms with Jane,” Stephanie

explains. “She helps me with things like personal care, food prep like cutting up my meal and moving chairs out of the way, but importantly we also get along really well. We have lots of laughs together!” As always when planning her itinerary, Stephanie researched accessibility around the places she wanted to visit. “I search online a lot to find out about public transport, public restrooms, elevator access, accessible rooms and so on. I’ve travelled domestically and internationally, and to me, Brisbane is probably the most accessible city.” Stephanie says that while there are always things that can be improved, Brisbane’s city centre is well appointed for people with disability. She wanted to spend some time in Southbank’s cultural

precinct and get there by CityCat ferry. All venue options were easily researched and provided excellent accessibility for Stephanie and her wheelchair. The ladies’ day began by wandering through Fortitude Valley, noticing colourful graffiti art along the way, before enjoying brunch at a New Farm café. Next was the trip to Southbank on the CityCat. The entire fleet provides space for six wheelchairs and accepts Companion Card. Stephanie and Jane travelled under the Story Bridge, around the river bend and disembarked at Southbank. They enjoyed views from 60 metres up on the Wheel of Brisbane (which features two accessible gondolas), even though it was raining at the time! Back on the ground, umbrellas in hand, there was an unmissable photo

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STEPHANIE’S TOP 5 TIPS FOR PEOPLE WITH DISABILITY TO TRAVEL WITHOUT LIMITS: 1. Doing research beforehand gives you a sense of control. 2. Call ahead to outline your specific requirements and get everything in writing. 3. When away, be flexible where possible. Sometimes a change in plan can lead to exciting alternatives. 4. When things don’t go to plan, a sense of humour is your best asset. 5. Engage a support worker so you don’t have to miss out on things you love!

opportunity for Stephanie in front of the iconic ‘BRISBANE’ sign. The cultural precinct – one of Stephanie’s favourite places in Brisbane – is home to the Queensland Museum which incorporates SparkLab, (formerly the Sciencentre). Stephanie and Jane had a ball reliving fun childhood memories and checking out the enormous dinosaur skeletons. Companion Card is accepted, all entrances and areas in the venue are wheelchair accessible and there are lifts located on all levels. Accessible restrooms are on Levels 0 and 2 and in Café Muse and SparkLab. A side jaunt to West End’s eclectic shopping district with Stephanie in her wheelchair and Jane on a rented scooter resulted in a couple of cool purchases and

a smoothie pitstop to keep energy levels up. The ladies made their way back to QPAC which offers wheelchair seating and accessible toilets, to catch a show Stephanie had booked. QPAC also accepts Companion Card. Back at the hotel, Stephanie and Jane checked in and toured their room at FV by Peppers, which Stephanie declared to be “the most accessible hotel room I’ve ever stayed in!” Among the room’s features were a roll-in shower, low height door handles and light switches and a wheelchairaccessible stove and sink. In the evening, the ladies enjoyed a meal of pizza, arancini and red wine in the hotel’s trendy La Costa Italian restaurant, toasting to a happily exhausting day of sightseeing and exploration.

Stephanie suggests that people with disability call venues in advance to convey their specific needs and find out if they can be accommodated. “Hotels will say they have accessible rooms,” she says, “but they won’t suit everyone’s needs so you have to be specific. Also, if you book over the phone, confirm via email so you have written proof that you booked an accessible room.” Through Mable, people with disability can connect with independent support workers who can assist in their travel goals. You can either travel to your destination with your support worker or connect with one at your destination who knows all the local highlights! Get started at Mable.com.au today.

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Your next weekend getaway awaits at Lake Mac Holiday Parks Lake Mac Holiday Parks offer a range of experiences from beachside getaways to luxury lakeside escapes, nestled on the beautiful shores of Lake Macquarie. Choose from a range of self-contained accessible villas which are in close proximity to an impressive range of our park facilities and nearby activities.

flexible bedroom configurations to cater for the whole family. The villa is centrally located to the parks facilities including ramp access to the recreation room, BBQ area and pool precinct, making Belmont the perfect choice for your next getaway.

BELMONT LAKESIDE

Located only a short distance to one of Lake Macquarie’s most popular beaches, Blacksmiths Beachside Holiday Park is an idyllic spot to slow down, chill out and relax. Stay in style at Blacksmiths in our selfcontained two-bedroom villa equipped with an access ramp, self-opening entrance door, large circulation spaces throughout, motorised adjustable kitchen benchtops and cupboards, remote controlled blinds and accessible bathroom facilities all at the touch of your fingertips. With a playground, large swimming pool and nearby activities, Blacksmiths is the perfect beachside holiday destination for creating memories that will last a lifetime.

Experience the breathtaking views and relaxing island-like atmosphere at this unique holiday park that is almost completely encircled by the Lake, you will feel the serenity wash over you at Belmont Lakeside Holiday Park. Our accessible duplex features two selfcontained apartments that can be booked as a one-bedroom villa or combined to form a very large two-bedroom villa, the choice is yours. The villa features state of the art facilities including fully automatic doors and blinds, motorised adjustable kitchen benchtops and cupboards, accessible bathrooms and

BLACKSMITHS BEACHSIDE

SWANSEA LAKESIDE With the lake on its doorstep you won’t have to venture far at Swansea to find something to do, paddle in the shallow waters of the lake or simply drop a line for a spot of fishing. Relax in style in our two-bedroom villa featuring lake views or our three-bedroom villa overlooking the resort style swimming pool. Both villas feature a large outdoor living area with a built in BBQ and breakfast bar, accessible parking with access ramp, self-opening entrance door, large circulation spaces throughout, motorised adjustable kitchen benchtops and cupboards, remote controlled blinds and accessible bathroom facilities. Whether you are visiting for a weekend or an extended holiday, be sure to immerse yourself in the activities on offer to you. There is so much to love about Lake Macquarie, come and discover it for yourself.

94 Kids picks 96 Para Ice Hockey for all 98 Telling tales Audrey O’Connor advocates for the rights and representation of people with disabilities 102 Fun in Florida, the sunshine state 104 Let the list do the talking Carly Findlay’s tips for travel 109 Directory

KIDS PICKS So young, and so much passion for everything she creatively encounters, Avalon is sure to make her mark as she travels through life. Avalon can you tell us a bit about yourself. I like to DJ and I have two Labrador puppies who are very cute. My favourite colour is pink and my favourite DC character is Harley Quinn. I like art, English and reading. I love to write fictional stories and make movies with my dad. I recently got to act in a Barbie Doll commercial with Wheelchair Barbie.

In Los Angeles, we met a man called Gabriel Cordell on the airport bus and he is also in a wheelchair. He has a documentary on Netflix called, Roll With Me, which I love to watch. Was there anything you didn’t like about your trip? I didn’t like how many stairs there were, and it was hard to get an airport bus with wheelchair access to stop in Los Angeles.

We hear you are a frequent traveller. What’s been your favourite holiday? My favourite holiday so far was a trip to New York. We went to Rochester in upstate New York to do physiotherapy at a clinic, to help me learn how to walk. After that we travelled back down to New York City and stayed for a week and then flew home with a stop off in Los Angeles. Why did you like New York so much? When we were in Rochester, we visited Niagara Falls on the Canadian side and it was really cold. It snowed which made me really happy because I had never seen snow before. During our week in New York City we went to the American Girl store and I got my beautiful doll, Sarah. We tried a lot of food. Some of my favourite foods were the pork sliders, pretzels covered in cheese sauce and Joe’s Pizza. We visited Times Square and Central Park and went up the Empire State Building. My dad got to see his favourite baseball team, The Mets, play a game and on the way home we got lost in Queens, which was scary.

Do you have any problems when you travel? It is hard travelling on a plane with my motorised wheelchair and it is really hard to find wheelchair accessible cars to hire. In New York we had to use the buses because a lot of the subway train stations didn’t have lifts.

Avalon – 9½ years old

Right clockwise: Avalon with the New York PD on the Highline, Avalon enjoying Central Park, Avalon in Rochester, Upstate New York on the bank on Lake Ontario, Avalon and Dad Laclan at CitiField, home of the New York Mets baseball team

What’s your top travel tip for other kids? • Bring your iPad so you don’t get bored on long car trips. • Try as much of the local food as possible because you never know what might be yummy. • I also buy a momento so I can have a memory from my holiday. • Make the most of your adventures because you only have one life and you should enjoy it while you can. If you could travel anywhere in the world, where would you like to go and why? I would like to go to Amsterdam because my favourite DJ, Martin Garrix, has an All Ages concert every year in October, and I REALLY want to see him play.

PARA ICE HOCKEY FOR ALL Skating on thin ice? No way, when players join in the Para Ice Hockey inclusive sport. WORDS: KELVIN MICKELSON INTERVIEWED BY JULIE JONES Please tell us how Para Ice Hockey started in Queensland? In 2015, Kelvin Mickelson was gifted a Para Ice Hockey sled from British Columbia Hockey Club during a trip to Canada. Playing with the sled on a frozen lake at Vanderhoof, in northern British Columbia, Kelvin decided this sport had to be brought to Australia. Once strapped into the sled, Kelvin understood how this sport was the epitome of ‘inclusiveness’. People with and without a physical disability can participate together.

Para Ice Hockey, previously known as Sledge Hockey or Sled Hockey, is a sport that was designed to allow participants who have a physical disability to play the game of ice hockey. Para Ice Hockey was invented in the early 1960s in Stockholm, Sweden, at a rehabilitation centre. It debuted at the 1994 Winter Games in Lillehammer and is currently one of the most popular sports in the Winter Paralympic Games. How does the game differ from hockey? The game is similar to hockey in that each

team has a goalie, two defenders and three forwards. Players manoeuvre themselves around the ice by using two sticks. The adult sticks are about a metre long and have spikes on one end and a blade at the other end. Players use the spikes to dig in and propel themselves along the ice, and the blade end is used for hitting the puck. Who can join Para Ice Hockey? This is an inclusive sport for both ablebodied participants and those with a disability. Para Ice Hockey is suited to

Clockwise from top left: Michael Milton at Ice Hockey Classic, Kelvin Mickelson, Para Ice Hockey Queensland (Founder and President), Jarred Liddicoat and Canadian goalie – Paul Rosen

people aged six and up of any gender. Most participants are able-bodied or have lower limb disabilities such as spina-bifida, amputation or paraplegic. Many ablebodied players are middle aged individuals who are looking to play a sport that doesn’t require running. Para Ice Hockey allows them to still play a sport and enjoy the social and health benefits associated with a team activity. The social benefits of this form of equal inclusion cannot be under-estimated. Para Ice Hockey provides more than the most popular Winter Paralympic sport, it is a team sport that develops skills like teamwork, goal-setting, and pursuit of excellence necessary for success in the workplace. There is a sense of camaraderie, a sense of belonging and accomplishment that comes from being part of a team. When does the season run? In Queensland the season runs from the

end of February through to the beginning of December during business hours. This timing is due to limited ice rink facilities – not only in Queensland but throughout Australia. We often host ‘come and try’ events in areas including Townsville, Brisbane, Gold Coast, and Sydney. Are there other Para Ice Hockey teams in Australia for recreation? As present, there are clubs in Brisbane, Melbourne, and Perth, along with groups in Sydney and Adelaide. What’s the future of Para Ice Hockey in Australia? 2021 marks a fresh beginning for Para Ice Hockey in Australia as the sport will officially come under the governing body of Ice Hockey Australia. This will align para ice hockey with most national para sports and most international Para Ice Hockey organisations.

Para Ice Hockey Qld will be leading a push for Australia to send another men’s team to the World Para Ice Hockey C-Pool competition in 2022 and a women’s team is being considered to compete at the same time. Para Ice Hockey Qld has been working with a number of organisations including the Beerwah Men’s Shed, on a wheeled version of the sled. This will enable us to showcase and promote inclusion of the sport to schools and communities without the need for ice. You can find out more about Para Ice Hockey Queensland on Facebook @PIHQ Para Ice Hockey Queensland produced a podcast with Carers Queensland (NDIS Partner) Listen to it on: Spotify: open.spotify.com/ show/549osRqkEThmJiL8l2fTBL Youtube: www.youtube.com/ watch?v=jWvK64ABZKo

Audrey in Hawaii

TELLING TALES

Audrey O’Connor’s creative passion for film-making and writing matches up with her thrill of travelling which has inspired her advocacy for the rights and representation of people with disabilities.

Luau fun in Hawaii

Athabasca glacier in the Canadian Rockies

udrey O’Connor is an actor, screenwriter and film-maker. Her passion for drama began when she was six years old and only strengthened during her teens. When we caught up to talk all things film-making and travel, Audrey was featuring in the Melbourne International Film Festival, working on a play and had just finished shooting another film. “It is called See Me,” says Audrey, of her latest project with inclusive production company, Bus Stop films. “I was actually the inspiration for it. The director, Genevieve Clay-Smith [founder of

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Bus Stop Films] wanted to tell my story; she was quite interested in seeing it come to film. It was based on my experience of being at school and being bullied – about being isolated and being invisible.” Now a dedicated advocate for the rights and representation of people with disabilities, Audrey is anything but invisible. “I’m tired of people mistreating people with disabilities. We should have the same rights as everybody else. We want to be seen and heard.” You might recognise Audrey from her role in Not a Wallflower, which featured at the 2020 Melbourne International Film

I LIKE TO TRAVEL BECAUSE I LIKE TO MEET NEW PEOPLE AND GO TO DIFFERENT PLACES. THERE ARE ALWAYS NEW DISCOVERIES Audrey at the Emperors Summer Palace , Beijing

Festival. In fact, her first film, Yolk (2007) was nominated for the Berlin Film Festival. Audrey was just 15 at the time, and loved the chance to travel abroad. “I didn’t win, but it was still good!” she says. “My mum came with me to Berlin. We had a ball, it was so much fun.” With family living interstate and overseas, Audrey is no stranger to longhaul travel. When it comes to travel highlights, she speaks fondly of spotting bears beside her bus in Canada and seeing the Sound of Music stage show in New York City. “I like to travel because I like to meet new people and go to different places,” she says.

“There are always new discoveries.” Audrey has crossed off her bucket list the likes of Disney World, Alaska, Fiji, South Korea and Cambodia. “In Cambodia it was stinking hot – I had a lot of showers!” Audrey laughs. “We stopped in Phnom Penh first – that part was like a relaxing holiday. When we went to Kampot, we did some workshops with another drama group over there, like a cultural exchange. It was amazing.” Family and friends are a powerful drawcard for Audrey, who often visits her brother in South Korea and sister in Melbourne, and has a soft spot for the Gold Coast.

“I’ve had a lot of good times there, being with the family,” she says, of the Gold Coast and its theme parks. “I mostly [travel] with my family, but I’ve been starting to do independent travels.” Closer to home, here in Sydney, Audrey recommends checking out the Opera House and spending time wandering the city. “The city is a nice place to walk around and do some shopping.” See Me is set for a 2021 release. Keep an eye out also for The Ordinary Girl, the upcoming play also based on Audrey’s life experiences.

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Image: ©Disney

1. ORLANDO THEME PARKS

The drawcard to this major Florida city is obvious. It is all about the theme parks. “The accessibility in these theme parks is amazing,” says Sylvia. “Disney sets the bar; they also have great accessible transportation between the resorts.”

2. INTERNATIONAL DRIVE

But that’s not all the city has to offer. “There’s a big road called International Drive with different smaller attractions – museums and parks. All the restaurants are accessible.”

FUN IN FLORIDA, THE SUNSHINE STATE

With 57 countries under her belt, we’re willing to bet Sylvia Longmire knows a thing or two about travel. The Florida-born writer, speaker, veteran, accessible tourism advocate and mother-of-two has plenty a tale to tell about capturing the perfect photo in Tangiers or getting goosebumps in front of a Klimt painting in Vienna. That said, Sylvia speaks with a special fondness for her home state in the USA. While she warns that Florida’s cities are sprawling and you’ll probably need your own van, she urges visitors to check out these awesome five Florida picks.

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3. TAMPA BEACHES

This coastal city and its surrounds snag first prize when it comes to sea, sand and sport. “Clearwater Beach rates Number 1 or Number 2 in the country every year. It has white sand so it never gets hot. And not too far from Clearwater is Sarasota.” More and more beach mats are getting rolled out in the region each year, explains Sylvia, who picks Siesta Key as her favourite beach.

4. MIAMI AND SURROUNDS

For those seeking energy and crowds, head to Miami. “The traffic is a nightmare,” warns Sylvia, “but there is lots of stuff to do. It is a good place for sports and for concerts.” And a word to the wise from the expert herself? Don’t miss Fort Lauderdale. “It is like Miami’s little brother. It is 30 minutes away and it’s got a really great beach.”

5. FLORIDA KEYS

“I love Key West,” says Sylvia. “It is easy to get around and it’s very small. You also have a trolley [a tram] that’s accessible.” Traffic is a bit tricky approaching Key West, but you can easily fly or even take a cruise.

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Carly with her Mum Jeanette Findlay, Ubud writers festival

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LET THE LIST DO THE TALKING WORDS: CARLY FINDLAY

For the past three and a half years - before COVID -19, I was lucky that my speaking job involved a lot of travel. I feel very privileged that I get to see Australia and meet so many wonderful people for my work. When I travel as a speaker, I have a number of access needs; just like reasonable adjustments in an office or a classroom, these help me do my job better. Every disabled person has different access needs. Mine are unique to managing my rare, severe skin condition, Ichthyosis. There are many types of Ichthyosis, meaning other people with Ichthyosis don’t have the same access needs as me. When I fly domestically, I request an aisle seat. I also joined the Virgin Lounge so I can relax prior to flights, and have a shower if I am delayed at the end of a long day. I don’t carry a medical letter to explain what Ichthyosis is nor a list of the medication I travel with. Travelling internationally requires specific preparation. I use paraffin ointment for my skin, so sometimes I have to pack up to ten kilos depending on how long my trip is. I also take Panadol, antihistamines, bath and shower products and strong painkillers. I ask my doctor to write a letter which explains what Ichthyosis is (including that it’s not contagious, and that my fingerprints aren’t very visible), a list of medications that I’m carrying, and requests for the plane trip. These include extra luggage allowance to carry my many kilos of ointment, a bulkhead seat so I can stretch my legs out, extra water so I don’t dehydrate, and also a lounge pass so I can shower as close to the flight as I can. Sometimes it’s hard to negotiate these access needs because the airline staff aren’t as familiar with Ichthyosis as they are with other impairments and access needs. I was invited to the Ubud Writers Festival in Bali and Semarang October and November 2019. I hadn’t 

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considered going to Bali prior to this invite, but I couldn’t miss the opportunity of this working holiday. Bali is hot and humid at that time of the year, and I don’t cope with the heat well. The festival staff were excellent in meeting my access needs as best as they could, providing air-conditioned hotels, cars and venues, water, and a lounge pass on the trip home. If it wasn't for their assurance and organisation, I couldn't have gone. Many access provisions granted in Ubud not only benefited me but the other speakers and audience as well. I was quite sore when I left Indonesia and I needed a wheelchair at the airports. A new writer friend I worked with in Semarang was travelling with her father, who is Indonesian. He wrote down some key terms in Indonesian for me - “I have a skin condition”, “I am fit to fly” and “I have a doctor’s letter.” I presented these terms when seeing the airport doctor (who spoke English anyway) and when I met with airline staff at check-in and customs. I noticed how differently I was treated compared to when I travel without a wheelchair. Everything was done for me and no one talked to me, just about me. While I am well aware of the barriers that people with impaired mobility face when travelling, it was a new experience for me.

WHILE I AM WELL AWARE OF THE BARRIERS THAT PEOPLE WITH IMPAIRED MOBILITY FACE WHEN TRAVELLING, IT WAS A NEW EXPERIENCE FOR ME 106

Left: Carly at All About Women at Sydney Opera House Right: Carly at the Byron Bay Writer's Festival, Carly with her memoir Say Hello

MY ARTIST LIST OF ACCESS NEEDS

Having become more confident in talking about my access needs, I developed a list which I send to my speaking agent and to any festival I am involved in: • Food and water backstage • Air-conditioner/heating (weather dependent) • Chair (I can stand for 20 minutes but prefer to do long events with a chair) • Water on stage • Prefer not to shake hands • Freezer pack in the heat (I often bring my own) • Blanket in the cold (I often bring my own) • Overnight stays are good • Hotel room with bath • Flight with Virgin as I have a lounge membership

recorded if possible, accessible performance space and backstage area. A few people have likened this list to celebrity riders - the lavish demands celebrities make when they’re backstage - like expensive alcohol or only blue M&Ms. Sometimes I joke about this, but I urge you to remember that access requests are not outrageous, diva-like behaviour. This perception causes people guilt and fear when asking for access needs to be met, and creates the misconception that access needs are difficult or laughable. I believe it’s important that disabled people become comfortable with asking for our access needs to be met and that our access needs are not regarded as burdensome or frivolous.

I would prefer my events to be accessible to my audience and other speakers - wheelchair accessible (entrance and toilet), Auslan interpreted/captioned,

Carly Findlay OAM is a writer, speaker and appearance activist from Melbourne. She has written a memoir, Say Hello, and is editing Growing Up Disabled in Australia - which was published and on sale in February 2021.

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Ollie is a happy and cheeky four-year-old boy. He loves playing with his cousins and his cars and trucks. He has regular cardiac reviews and all the other hospital admissions related to his cerebral palsy and HDAC2 gene mutation. The Supertee has had a huge impact on Ollie and his admissions, making him feel special while allowing easy access for all those lines.