3 minute read

BULLY PULPIT

Next Article
SHARE

SHARE

life beyond wheels

NEW MOBILITY IS THE MONTHLY MAGAZINE OF

Advertisement

UNITED SPINAL ASSOCIATION

By Ian Ruder

PRESIDENT & CEO: VINCENZO PISCOPO VP OF PUBLICATIONS: JEAN DOBBS

EDITORIAL

PUBLISHER: JEAN DOBBS EXECUTIVE EDITOR: JOSIE BYZEK EDITOR: IAN RUDER ASSOCIATE EDITOR: SETH MCBRIDE EDITOR EMERITUS: TIM GILMER SENIOR CORRESPONDENT: BOB VOGEL CORRESPONDENT: AARON BROVERMAN

CUSTOMER SERVICE

Toll-free 800/404-2898, ext. 7203

ADVERTISING SALES

718/803-3782

MANAGER, CORPORATE RELATIONS:

MEGAN LEE, EXT. 7253 AD MATERIALS: DEANNA FIKE, EXT. 7250

PRODUCTION

PRODUCTION MANAGER: DEANNA FIKE

CIRCULATION

CIRCULATION MANAGER:

BEVERLY SMITH

POSTMASTER: Send address changes to New Mobility, 120-34 Queens Blvd, #320, Kew Gardens NY 11415. Subscription rates: $27.95/year; $35.95/ year in Canada; $67.95/year international via airmail. New Mobility (ISSN 1086-4741), Volume 32, Issue 328, is published monthly by United Spinal Association, 120-34 Queens Blvd, #320, Kew Gardens NY 11415. Copyright 2021, all rights reserved. Reproduction without permission of any material contained herein is strictly prohibited. We welcome comments; we reserve the right to edit submissions. Periodicals postage paid at Flushing, NY and additional mailing offices.

VACCINE QUEST

In the crazy times we live in, I mistakenly thought figuring out when I’d be able to get a COVID-19 vaccine would be easy. Federal and state leaders and experts have been talking about the vaccine rollout for months. After almost a year of masks and isolation, getting vaccinated is the number one thing on pretty much everyone’s mind. Determining when I would be eligible and how and where I’d need to go didn’t seem like too big of an ask. I should have known better.

Let me preface this by saying I had no expectation of receiving a vaccine quickly. While I am a quad and a wheelchair user, I’m healthy and in good shape. I’m not over 65. I’m not immunocompromised, and I’m not an essential worker. There are a lot of people who need vaccines before I get one, and I’m fine waiting. Additionally, vaccinating tens of millions of people is an unprecedented and overwhelming task, and based on the way our government has struggled to respond to the virus to date, I wasn’t getting my hopes up for a miraculously speedy rollout.

All I wanted was some certainty — a sense that there was a clear plan and an understanding of how I fit in it. Certainty has been hard to come by in the pandemic era and its absence has taken a toll on our mental health. Many of us have made all the recommended sacrifices and endured the accompanying hardships with the knowledge that there are no guarantees when it comes to getting COVID-19. You can do everything “right” and get sick, and you can do everything “wrong” and stay healthy. Even more frustrating, there’s no way to predict how your body will respond should you get sick, with many people experiencing few to no symptoms while others see their lives destroyed.

So yeah, being able to lock in a date and a plan for getting the vaccine and finally knowing when this stage will be over would be a nice change. Unfortunately, a month into the rollout, this still feels like a distant fantasy.

I started my quest for certainty on the website Oregon built to answer all COVIDrelated issues. I naively assumed there would be an infographic or chart that clarified the state’s classification system and where I fit in it. Instead, I ended up trudging through a multi-page FAQ full of footnotes and obfuscations that left me even more confused than when I started.

You can imagine my relief when I noticed a small pop-up icon that identified itself as the “Vaccine Information Tool” and promised

to help me determine when I could get a vaccine. Unfortunately, as soon as I answered the two questions it asked, it immediately blurted out that I am not currently eligible. That I got the same result no matter what answers I gave to the questions made me think it might not be the best guide.

Everything on the website reenforced a sad truism that we as disabled people know all too well: Our own government doesn’t understand us, and its ignorance often ends up directly harming us. Each state has its own plan, and I’ve seen some states handling the vaccine more efficiently, but more often I’ve heard of friends and other wheelchair users facing the same confusion and frustration I have.

While I did get a small laugh out of the Vaccine Information Tool’s ineptitude, the vaccine rollout is no laughing matter. Over 400,000 Americans have already died from COVID-19, and if we don’t start to get our act together, a lot more will follow for no good reason.

“You can imagine my relief when I noticed a small pop-up ‘Vaccine Information Tool.’”

This article is from: