BULLY PULPIT

life beyond wheels

NEW MOBILITY IS THE MONTHLY MAGAZINE OF

UNITED SPINAL ASSOCIATION

By Ian Ruder

PRESIDENT & CEO: VINCENZO PISCOPO VP OF PUBLICATIONS: JEAN DOBBS

EDITORIAL

PUBLISHER: JEAN DOBBS EXECUTIVE EDITOR: JOSIE BYZEK EDITOR: IAN RUDER ASSOCIATE EDITOR: SETH MCBRIDE EDITOR EMERITUS: TIM GILMER SENIOR CORRESPONDENT: BOB VOGEL CORRESPONDENT: AARON BROVERMAN

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POSTMASTER: Send address changes to New Mobility, 120-34 Queens Blvd, #320, Kew Gardens NY 11415. Subscription rates: $27.95/year; $35.95/ year in Canada; $67.95/year international via airmail. New Mobility (ISSN 1086-4741), Volume 32, Issue 329, is published monthly by United Spinal Association, 120-34 Queens Blvd, #320, Kew Gardens NY 11415. Copyright 2021, all rights reserved. Reproduction without permission of any material contained herein is strictly prohibited. We welcome comments; we reserve the right to edit submissions. Periodicals postage paid at Flushing, NY and additional mailing offices.

DO LIFE

Lying alone on an operating room gurney while waiting for emergency surgery is probably not the best time for introspection. Yet when I recently found myself in this situation thanks to some militant hemorrhoids, my mind immediately pulled up a list of Ian’s Deepest Thoughts and I started soul-searching.

On top of obvious questions — How the hell did I end up here? How am I going to get through this? — others that kept popping up centered on New Mobility and my job. Specifically, what in the world is the editor of a magazine for “active wheelchair users” doing incapacitated in a hospital? And, am I even fit for this role?

These questions aren’t new to my cluttered brain. From the time I stepped into Tim Gilmer’s oversized shoes almost three years ago, the same thoughts lingered in my head’s deep recesses, coming to the fore most frequently when my health is flagging, or life and the world seem overwhelming.

I’ve even had friends and family members who’ve seen me struggle through tough times read the magazine and ask me if its depiction of life with SCI/D meshes with my experience. When things aren’t going my way, it’s easy to lose focus on all the things I love about my life and I wonder if they’re onto something.

There’s no question that living with a disability can be difficult, overwhelming and even depressing. We’re so conditioned to that portrayal of disabled life by mainstream society that it’s easy to lose track of the reality that life without a disability can be just as difficult, overwhelming and depressing.

In hard times, it’s easy to forget that nondisabled people don’t have a corner on happiness and fun. In fact, I think you could make a pretty good argument that they don’t have as deep an appreciation of life as we do.

All of these thoughts were bouncing through my head when the nurses finally rolled me into surgery. As I’ve written in this space, the operating room was literally the one place I’d been trying to avoid since the arrival of COVID-19. Now I was there, wondering if life was trying to tell me something.

A nurse struck up a conversation about the mask I was wearing, and we quickly discovered that she used to work as a caregiver for one of my closest quad friends. One of the last things I remember before succumbing to the anesthesia is her smiling and saying the slogan for his nonprofit, “Do life.”

I didn’t really think much about the

words of that slogan when I woke up or in the week of recovery following the surgery, but in hindsight it all makes sense. Whether you have a disability or you don’t, you have a choice about how you want to live your life. Speaking from almost 23 years of experience, being disabled can genuinely complicate that pursuit in ways nondisabled me could never have understood, but it still always comes back to a choice.

New Mobility strives to be the publication for anyone who wants to embrace the possibilities within that choice and live an “active” life to the fullest. Whether “active” means jumping from planes, raising a family or simply trying to get control of nagging medical problems, we get it and we are committed to helping you “do life” the way you want. I’m honored and excited to be a part of it.

“Whether you have a disability or you don’t, you have a choice about how you want to live your life.”