of Patient Day

Mr. Eamonn T. Rogers EAU Patient Information Chairman Galway (IE)

emacruairi@me.com

So many new things are happening for EAU Patient Information (EAU PI) despite the global COVID-19 pandemic and its far-reaching impact on worldwide communities. a clinical psychologist and a member of the Genital Urinary Program at the Tom Baker Cancer Centre in Calgary, Alberta (CA). The programme will be introduced together with the second-edition, European version of the book.

If you are not already familiar with the ADT Educational Programme, here is a brief insight into what it is and how it works. This programme helps prostate cancer patients manage the side effects of ADT through an interactive 1.5-hour class built around the ADT Book. The goal is to help prostate cancer patients improve their quality of life as well as maintain strong, intimate relationships while on ADT and to take appropriate actions to reduce, or avoid, the negative impact of ADT.

The ADT classes are planned to start in the near future with a small, selected number of hospitals in the UK and in Ireland. To prepare for these sessions, EAU PI is conducting a free virtual Train-the-Trainer course to a limited number of prostate cancer specialist nurses in the summer of 2021.

We conclude our premier Patient Day with the following activities:

Patient poster session – Friday, 9 July 16.30 – 17.40 (virtual room 9) Our Patient poster session puts the spotlight on selected abstracts focussing on the theme Disconnect Between Patient and Physician. This disconnect can have far-reaching consequences in terms of sideeffects, treatments, outcomes, and the level of quality of life, which impacts not only patients but also their circle of support. This session is aimed at starting a dialogue together with medical experts and patient advocates. It gives patient advocates a platform to present various aspects of patient-focussed research. By creating this forum, we hope to bring into focus any existing presumptions and to encourage patient perspectives.

Directly following the Patient poster session, the top-five best patient poster awards will be announced for the poster presentations. The awards will be presented by Mr. Eamonn Rogers (IE), EAU PI chairman, and Dr. Lydia Makaroff (BE) on behalf of WBCPC. The patient poster presentations will be available for viewing in the EAU21 Resource Centre.

Because of the unexpected number of patient topic abstract submissions for this year’s congress, we have created an exclusive platform for presentations that we believe are of interest to viewers. A special, and specific, selection of patient topic poster presentations which aren’t part of the congress programme will be published on the EAU PI website and in the EAU21 Resource Centre.

Due to technology advancing at an unprecedent rate since 2020, the European Association of Urology (EAU) has been able to successfully continue its longstanding congress tradition with the 36th Annual EAU Congress (EAU21 Virtual Congress). This virtual event premiers an EAU PI long-held vision of creating a larger and impactful presence at the annual EAU Congress. We are proud to present a virtual Patient Track solely devoted to patients, which will take centre stage for a day on Friday, 9 July 2021. This Patient Day will focus on engaging with patients, patient advocate organisations, and medical experts on a range of topics through different sessions and platforms.

“The Patient Day will focus on engaging with patients, patient advocate organisations, and medical experts on a range of topics.”

Special thanks to our EAU Patient Advocacy Group (EPAG) members, in alphabetical order, Dr. Sara Badreh – European Cancer Patient Coalition (ECPC), Mrs. Serena Bartezzati - ERN eUROGEN, Ms. Antonella Cardone – European Cancer Patient Coalition (ECPC), Mr. Ernst Guenther Carl – Europa Uomo (EUomo), Mr. Phil Cornford – EAU Guidelines Office, Mr. John Dowling – Europa Uomo (EUomo), Dr. Rachel Giles - International Kidney Cancer Coalition (IKCC), Ms. Paulina Gono – European Cancer Patient Coalition (ECPC), Dr. Sara MacLennan – EAU Guidelines Office, Dr. Lydia Makaroff - World Bladder Cancer Patient Coalition (WBCPC), and Mrs. Mary Lynne Van Poelgeest-Pomfret - World Federation for Incontinence and Pelvic Problems (WFIPP), for their contributions and support in the development of the Patient Day programme.

Patient Information sessions – Friday, 9 July 11.30 – 16.30 (virtual rooms 9 and 10) The Patient Day will start off with five different one-hour Patient Information sessions involving the patient advocate organisations EUomo, IKCC, WBCPC, and WFIPP together with medical experts and specialists. The topics for these sessions are prostate cancer, bladder cancer, kidney cancer, life after cancer treatment, and functional urology. The programme details for each session can be found at: EAU2021.org.

ADT Educational Programme – Friday, 9 July - PCa Session 11.30 – 12.30 (Virtual Room 10) EAU PI will also introduce the Androgen Deprivation Therapy (ADT) Educational Programme. This is a collaboration with the authors of the ADT book Androgen Deprivation Therapy: An essential guide for men with prostate cancer and their loved ones and the founders of the Educational Programme in Canada: Dr. Richard Wassersug, Honorary Professor in the Department of Cellular and Physiological Sciences at the University of British Columbia (CA), Dr. Lauren Walker, a clinical psychologist and a Research Assistant Professor in the Department of Oncology at the University of Calgary (CA), and Dr. John Robinson, “The disconnect between patient and physician can have far-reaching consequences in terms of sideeffects, treatments, outcomes, and the level of quality of life.”

Roundtable: The Road to Successful Intervention – Friday, 9 July 18.00 – 19.00 (Virtual Room 2) This session will be moderated live from a studio in the Netherlands. Medical experts, patients, and their loved ones come together to address the role of prostate cancer patients and HCPs. The session looks at four subjects on the topic: awareness, early detection, active surveillance, and treatment as it relates to shared responsibilities of both the healthcare provider and patient during a patient’s care pathway. Do healthcare providers ask the right questions during intake? Do patients provide all the information the healthcare provider needs, such as a detailed medical history and anything that could be relevant to the decision-making process as to what care pathway to take?

At the end of each segment, there will be a live Question-and-Answer (Q&A) segment.

“This is a fantastic opportunity to bring a well evaluated and high-quality programme to Europe which will benefit men with prostate cancer on ADT and their loved ones.”

Louisa Fleure PCa Specialist Nurse, Urology Centre Guy’s Hospital, London, UK, ADT Programme Coordinator Europe “I am honoured to be co-chairing the patient poster presentations at this year’s conference. The EAU has been a world leader in ensuring that patient organisations are included within their congress. I am looking forward to seeing impactful presentations from around the world, demonstrating the value of patients and physicians working together to co-create better care pathways.”

Dr. Lydia Makaroff Vice-president World Bladder Cancer Patient Coalition (WBCPC)

“Medical experts, patients, and their loved ones will come together to address the role of prostate cancer patients and HCPs.”

Follow us on Twitter and Facebook and subscribe to our EAU PI Newsletters. You can contact us by e-mail via: info.patientinformation@uroweb.org.

The EAU is making it easy for patients and patient advocates to join EAU PI during the congress by offering a free full registration. A full registration includes:

• Online access to all sessions, which are live streamed, with the exception of the EAU General

Assembly, ESU hands-on training sessions, and

ESU-organised courses • Access to the EAU Patient Day sessions • Access to the Resource Centre for one year, which includes all scientific content (webcasts, abstracts, poster PDFs, and videos) presented at EAU21 • The EAU21 Mobile App Even if you are not able to join in the full day’s activities of EAU PI, we hope you will take a moment out of your day on 9 July to see some of what is happening during the EAU Patient Day premier. For all the details regarding EAU PI activities during the EAU21 Virtual Congress, visit the EAU PI Congress webpage on the EAU PI website: patients.uroweb. org/eau21/, or the EAU Congress website: eau2021.org

Whether it be to re-connect or to make a new connection, we look forward to making a virtual connection with you during the EAU21 Virtual Congress!

Friday 9 July, 11.30 – 19.00 CEST EAU Patient Day Please view the scientific programme at eau2021.org to find all the up-to-date information on the EAU Patient Day sessions.

Patient Day

Friday, 9 July

11:30 - 12:30 Prostate Cancer 12:30 - 13:30 Bladder Cancer 13:30 - 14:30 Kidney Cancer 14:30 - 15:30 Life after Cancer Treatment 15:30 - 16:30 Functional Urology 16:30 - 17:30 Patient Poster session 17:30 - 17:40 The Top-5 Best Patient Poster Awards 18:00 - 19:00 Roundtable discussion, ‘The Road to Successful Intervention’

Visit eau2021.org for more information.

The Top-5 Best Patient Poster Award Winners

Alex Filicevas Brussels, Belgium

Rachel Giles

Duivendrecht, The Netherlands

Vincent Griesser

Geneva, Switzerland

Rebecca Leszczynski

London, United Kingdom

Lionne Venderbos

Rotterdam, The Netherlands

The Patient Poster session and the Top-5 Best Patient Poster Awards are brought to you by the European Association of Urology (EAU) with programme development support from Pfizer.