for your 4 Preparing Neurology Appointment
5 Gait in Parkinson’s Disease 8 Mucuna Pruriens Preventing falls, maximizing mobility
A medical analysis
PA R K I N SO N
Pathfinder SUMMER 2013
Washington Chapter American Parkinson Disease Association
summer 2 013
Table of Contents 1 Letter from the Executive Director 2 Letter from the Coordinator 3 Who We Are and What We Do 4 Preparing for your neurology
appointment: Helping your neurologist to help YOU!
APDA Information and Referral Center GRECC-S-182 1660 S Columbian Way Seattle, WA 98108 Phone: 206.277.5516 Fax: 206.764.2476 Hours: Monday–Friday 9:00AM–5:00PM coordinator@waparkinsons.org www.waparkinsons.org
Diane L. Church, PhD
5
Gait in Parkinson’s Disease Sindhu Srivatsal, MD
7 8
Medical Director
James Leverenz, MD Co Medical Directors
Music Therapy
Ali Samii, MD Phil Swanson, MD, PhD
Bill Dluhosh, MT-BC
Center Coordinator
Zeljka Jurcevic
Mucuna Pruriens Paul J. Nicolai, ND and Laurie Mischley, ND
9 Support Groups 11 Donations 13 Upcoming Events
How to get the most out of your upcoming appointment page 4
Washington Chapter APDA Board
Kristi Murphy Executive Director Peggy O’Neil Shortt President Wendell Matas Immediate Past President Kirsten Richards Accounting & Administration Loryn Heath Secretary Board Members
Stephen Bergenholtz Daniel Burdick, MD Suzanne Cameron Bryan Coluccio Kelly Condefer, MD Suzanna Eller, MA. LMHC Nancy Griese Loryn Heath Valerie Kelly, PT, PhD Jeanne Kieffer Rene Spatz William Struyk Kimia Talajour Debbie Thenutai Ann Zylstra, PT Board Address
P.O. Box 75169, Seattle, WA 98175-0169 Please Send Donations to the Board Address
from our
E x ecuti ve D irector
Welcome to our new and improved newsletter! The Parkinson Pathfinder has undergone a transformation, one I am finding reflective of our organization as a whole. We are breathing new life into our board with the recruitment of new members; we have brought on Zeljka Jurcevic as our new Information & Referral Center Coordinator, and I have transitioned into the role of Executive Director. In January, we welcomed Leslie Chambers, our National organization’s recently elected President and CEO, to Washington State. The Yoga for Parkinson’s class at Northwest Hospital welcomed Leslie and I as group participants, and we both enjoyed waking up on a Monday morning to instructor Peter Lynch’s gentle and effective yoga. Leslie’s visit is indicative of the revitalization that is happening with our National APDA organization. With fresh faces and ideas, we are excited to be on board and help guide this transformation, as we strive to better fulfill our mission to “ease the burden and find the cure.” As a part of our newly redesigned newsletter, we thought it would be a great opportunity to take a moment and remind our many supporters and community members of who we are, and what we do. You may have connected with us at an education program, or through our Taxi Voucher or Caregiver’s programs, but may not have a complete picture of our reach and breadth. Or perhaps you have just picked up this newsletter, and are hearing about us for the first time. To find out more, see our article “Washington Chapter, American Parkinson Disease Association: Who We Are and What We Do” on page 3. In upcoming events, we are excited to announce our First Annual American Parkinson’s Optimism Walk. It will be held on Saturday, September 28th at Lincoln Park in West Seattle, and promises to be a day full of hope, community, and fun! Help us raise awareness and funds for Parkinson’s care, support, and critical research. Learn more at www.waparkinsons.org/walk or by contacting us. I look forward to meeting and reconnecting with many of you in the coming months. Always feel free to reach out with your ideas, suggestions, or to just say hello. You can reach me at kristi@waparkinsons.org or 206.419.7872.
Kristi Murphy Executive Director
ParkinsonPathfinder | SUMMER 2013
1
Meet your Information and Referral Center Coordinator! As I settle into my new role
as the Information & Referral Center
Coordinator, I’d like to take the time to introduce myself to you all. I was born in Rijeka, Croatia, and although I was only 6 years old when I left, it has greatly shaped who I am. As an only child of non-English speaking parents, they relied on me for daily life. My mother’s chronic health conditions required constant trips to the doctor and I quickly realized the difficulties involved in getting adequate care and support. At eight years old I was a daughter, an interpreter, and an advocate. As time went on, I became increasingly fascinated by health and it came to be one of my greatest interests. A blessing in disguise, my parent’s struggles in adapting to a new country allowed me to discover what I wanted to do for the rest of my life. My multicultural perspective and interest in health led me to a degree in globalization, health, and development from the University of Washington. During my studies I worked as a caregiver, and although professionally I am still fairly new to the field, I have a great passion for health, science, and research stemming from my childhood. I am very excited about this new role because it brings together everything that I love about this profession; hearing individual stories, constantly learning, and making an impact in the community. Most of all, I want to hear from all of you, I am a firm believer that we all have something to learn from each other. So whether you have a general question, need a referral, or just want to talk, I’m here to listen.
Zeljka Jurcevic
Connect with the APDA: Visit our website at
www.waparkinsons.org...
Visit our
website by scanning this QR code, and sign up for our emails 2
ParkinsonPathfinder | SUMMER 2013
...and like us on
Washington Chapter, American Parkinson Disease Association: Who We Are and What We Do
Founded in 1961, the American Parkinson Disease
reason, we are committed to putting dollars directly
Association has fought the battle against Parkinson’s
toward Parkinson’s research in Washington State. We
disease for more than 50 years. Our mission to “ease
fund the Washington State Parkinson’s Disease Regis-
the burden, and find the cure,” has been made possible
try in addition to other local research studies.
by the passion and dedication of our volunteers, board
We are all in this together. Advocating the impor-
of directors, sponsors, and most importantly – you. The
tance of social support, we endeavor to strengthen and
APDA is a not-for-profit organization that is funded,
maintain support group networks by providing educa-
almost exclusively, by the generous donations of indi-
tional materials, professional facilitators, individual
viduals like you. Our local Washington Chapter has
counseling, and trainings for facilitators. We strive to
been working to ease the burden for more than 15,000
bring patients together around common interests by
Parkinson’s patients in Washington State since 1984.
funding yoga, dance, and singing classes statewide
Our approach to serving the community is compre-
that are designed specifically for people with Parkin-
hensive, focusing on research, patient education and
son’s. Recognizing that every story is unique, we aim
support. We believe in the power of knowledge, the strength in a sense of community, and the importance of independence and mobility. Our efforts aim to improve the quality of life of
We believe that life does not need to be put on hold because you have Parkinson’s.
vidual and provide a variety of programs that fit every lifestyle. We believe that life does not need to be put on hold because you have Parkinson’s. The Washington APDA funds
those living with Parkinson’s while actively supporting the search for better treat-
programs that help maintain independence and mo-
ments and a cure.
bility. Through our popular Taxi Voucher program,
The Information & Referral Center provides educaPhoto courtesy Flickr user dHerrera_96
to tailor our service to the indi-
we provide $300 per year to provide transportation
tion and access to resources through our newsletter,
assistance to those who can no longer drive due
website and comprehensive library of literature. We
to Parkinson’s. Similarly, our Caregiver’s Day Off
keep the community informed of the latest research
program allows caregivers time away to renew and
and treatments by implementing education programs
revitalize themselves, without concern for their loved
for patients, their families, and healthcare providers.
one’s care. P
Our annual HOPE Conference brings together people from all over the country for the common purpose of
I encourage you all to take advantage of our pro-
a healthier life. While working to raise awareness and
grams and services. If you would like more informa-
improve quality of life, we are simultaneously de-
tion about how we can be of service to you, please
voted to understanding the causes of Parkinson’s and
reach out to our Information & Referral Center at
developing treatments to stop its progression. For this
206.277.5516 or coordinator@waparkinsons.org.
ParkinsonPathfinder | SUMMER 2013
3
TIPS
Preparing for your neurology appointment:
Helping your neurologist to help YOU!
Changes in mental status (depression, anxiety, cognition, ability to make plans, hallucinations, compulsive or excessive behaviors such as shopping, gambling, or sex) List three items that you most
want to discuss with the neurologist (There may not be time to address everything during your appointment, so it is important to prioritize your needs.)
On your mark! An appointment with your neu-
were discontinued? Have you experienced any side effects? List of Parkinson’s symptoms
Arrive early to allow time for park-
rologist will be most productive if
you are experiencing
ing, using the restroom, getting
you are prepared to share your in-
Which are new? Which are
to the appropriate reception desk,
formation and concerns. Here is a
most troublesome?
checking in, and filling out paper-
checklist to help you get organized.
Get ready!
work. Movement symptoms (walking, getting out of chair, moving in bed etc)
ask the neurologist’s office what
Bring along water, a snack, and any medications you might need in case your appointment is delayed.
If this is your first appointment, Fluctuations in your symptoms
types of information you should
(typically correlated with
bring. These may include office
medication cycle, eating,
Ask a family member or friend to accompany you, to take notes and
notes from other doctors, MRI or
sleeping, and exercise)
remind you anything that seems
CT images of your brain, and lab reports. Medication list
important has not been discussed. Dyskinesias (involuntary movements caused
At your neurology appointment:
by Parkinson’s medications)
You did your homework, so you
Document all prescription medications (including non-Parkin-
4
Go!
are prepared when your neurolo Non-movement symptoms
gist asks about your symptoms and
son’s drugs), over-the-counter
(swallowing, speech, nausea,
medications, vitamins, and
constipation, urinary frequency
supplements; dosages; when
and/or urgency, drooling,
Special requests Ask early in the
medications are taken; and
excessive sweating, dizziness
appointment about prescription
when you first start taking each.
upon standing, swollen ankles,
refills, disability forms, handi-
Are there any medications that
sleep disorders, restless legs,
capped parking permits, etc; often
you were on in the past that
and more)
ParkinsonPathfinder | SUMMER 2013
medications!
continued on page 6
For t h e Caretaker
Gait
in Parkinson’s Disease Sindhu Srivatsal, MD Movement Disorders Neurologist
P
arkinson’s disease has four important features, namely rigidity or stiffness,
slowness of movements, tremor and instability of posture which affects gait. Gait disturbance is often noted during the progression of Parkinson’s disease. It can result from a combination of any of the above factors as well as from abnormal muscle postures such as dystonia and abnormal movements such as dyskinesias. Some of the earliest noted changes in gait might be reduction in the arm swing, a mildly stooped posture, dragging of the affected foot and shuffling while walking. It is important to be aware of gait impairment in PD, as this is a significant risk factor for falls. Falls have been noted in up to 60% of patients with PD, with the risk increasing over time. Impaired gait in Parkinson’s disease can manifest as reduced step height, stride length and speed of movement. There may also be a tendency for subsequent steps to become increasingly shorter and quicker resulting in a running pace. Freezing of gait is another important manifestation
It is important to be aware of gait impairment in PD, as this is a significant risk factor for falls. Falls have been noted in up to 60% of patients with PD, with the risk increasing over time.
of impaired gait where the patient has the sense that the feet are “glued” to the ground and cannot be lifted. It can occur at the start of walking, in straight walking, in narrow or crowded spaces, and during turns. This manifestation can often result in falls. Both pharmacologic and non-pharmacologic means can help manage gait impairment, depending on the cause. Early on, the shuffling and freezing in Parkinson’s often responds to standard medications such as
ParkinsonPathfinder | SUMMER 2013
5
Another study on the effects of tai chi on patients with
continued from previous page dopamine agonists and levodopa. Freezing in “off ”
mild to moderate PD showed improvement in multiple
state is the term used when freezing occurs as the
parameters of gait, such as stride length and functional
medication is wearing off. This freezing responds well
reach, as well as a reduced risk of falls, which was main-
to adjustments of dopaminergic therapy. MAOB inhibi-
tained for months after the training ended.
tors such as selegiline and rasagiline have also been shown to improve gait in Parkinson’s in the long run. As Parkinson’s disease progresses, gait impairment
While multitasking is currently a way of life, patients with a compromised neurological function, such as Parkinsonian patients, are at a high risk of
and freezing can occur independent of medication
falls when they attempt to multitask while walking.
use, and are often associated with significant postural
The cognitive load produced by multitasking has been
instability. While optimizing medication use might
shown to increase the risk of falling as the complex-
still be a reasonable option, one often needs to turn
ity of the load increases. This is partly due to lack of
to non-pharmacologic methods to help manage the
attention to the task of walking and the maintenance
same. The use of visual and auditory cues can often
of gait. This is more apparent in patients with freez-
help improve freezing of gait, as well as gait velocity
ing of gait, and therefore such patients need to pay
and stride length. Visual cues could include focusing
especially close attention to visual and verbal cues, as
on carpet patterns, stepping over objects, and even
well as to avoid multitasking while walking.
laser light cues built into canes and walkers. Auditory
Gait impairment in Parkinson’s disease has been
cues, such as using a metronome or set rhythms, can
shown to be multifactorial, bringing with it challenges
help patients improve gait dynamics, whether they
such as an increased risk of falls. However, tools exist
have freezing or not.
to help manage these symptoms and mitigate the risk.
Freezing during the “on” state of a medication is
Finding the optimal dose of medication as well as ear-
an uncommon phenomenon that can be seen shortly
ly assessments for behavioral and non-pharmacologic
after taking dopaminergic medications. This often
methods of management can help improve the quality
responds to lowering the dopaminergic medication
of life for patients with Parkinson’s disease. P
dose. It is important to differentiate this from the freezing which occurs during the “off ” state, and responds to increasing the dose of the medications. Exercise of mild to moderate intensity several times
Dr. Sindhu Srivatsal is a Movement Disorders Neurologist at the Virginia Mason Neuroscience Institute in
per week can help maintain stability and slow down
Seattle, WA and the Booth Gardner Parkinson’s Care
functional decline in PD. A recent study investigated
Center in Kirkland, WA. She completed her Movement
the effects of community dance in managing PD, and
Disorders Fellowship at the University of Washington
found that patients showed improvement in motor and
and VA Puget Sound. Dr. Srivatsal also has a master’s de-
non-motor aspects of PD, as well as in postural stability.
gree in Public Health from the University of Maryland.
tions, and adaptations to make
Ask the best way to get in touch
a nurse or secretary is available
dressing, grooming, cooking, and
with the neurologist in between ap-
to work on these during your
eating easier.
pointments: Contact with nurse or
continued from page 4
secretary, by phone or email?
wappointment.
Address those three major concerns on your list of priorities.
Ask for a referral to a speech language pathologist for help with speech and communication problems (including vocal volume, clar-
Ask for a referral to a physical therapist for help with balance, gait,
Ask where you can get more information about Parkinson’s disease. P
ity of speech, and increasing facial expressivity) and swallowing.
strength, pain, and flexibility issues.
Ask for recommendations regard-
6
Prepared by Diane L. Church, PhD
Ask for a referral to an occupational therapist for help with handwrit-
ing exercise and nutrition.
ing, home modifications, driver
Ask about participation in clinical
Center at Dartmouth-Hitchcock
evaluations, computer modifica-
research trials.
Medical Center, Lebanon, NH
ParkinsonPathfinder | SUMMER 2013
Courtesy of the APDA Parkinson’s
Music TherapY Music, the Brain, and Technology
Bill Dluhosh, MT-BC Certified Neurologic Music Therapist
Have you ever been driving down the road with
therapy, as well as to help treat depression and anxiety
your mind drifting between hunger, fatigue, traffic,
while promoting relaxation. As in the example above,
to-do lists, etc. when that song comes on the radio?
our brains respond to music in very unique and versa-
The song you haven’t heard in years, but instantly
tile ways. One way people with Parkinson’s disease are
sparks something within you? Almost automatically,
using music to help with freezing is by using technol-
you find your hand reaching for the volume, and you
ogy such as iPhones and MP3 players to listen to their
begin smiling and singing along as if you had only
favorite music as they walk. Research has shown that
heard the song yesterday. Your mood changes, you sit
people who listen to music as they walk have signifi-
up taller, and everything you were thinking of before
cantly less episodes of freezing. What a wonderful
disappears. This is one of the many unique ways that
reason to listen to your favorite music!
music affects our lives. Music therapy is defined by
Other areas where research is being done is with
the American Music Therapy Association (AMTA)
Alzheimer’s disease and Dementia. Some people with
as “the clinical and evidence-based use of music
Alzheimer’s disease may not remember what they
interventions to accomplish individualized goals
had for breakfast or the names of family members,
within a therapeutic relationship by a credentialed
but they do remember music from their lives, and will
professional who has completed an approved music
sing and play instruments (such as tambourines and
therapy program.”
shakers) along with this music. With the internet,
Music therapists don’t teach people how to play
many different types of music and songs can be at
instruments, but rather use music to work on non-
your fingertips, and this may open up a window that
musical goals in a variety of settings and situations.
other forms of stimulus alone, like pictures, cannot.
The people who seek music therapy include children
A soon to be released documentary entitled “Alive
and adults with various neurological disorders such
Inside” discusses how music is being used with elders
as autism, Alzheimer’s disease, Dementia, and Par-
in a variety of ways. P
kinson’s disease, as well as physical injuries including traumatic brain injuries and strokes. Music has also been shown to be very effective in pain management, promoting relaxation and improving the quality of life. People with Parkinson’s disease are using music to provide motor support and motivation for physical
Bill Dluhosh, MT-BC, is a Board Certified Music Therapist certified in neurologic music therapy in Richland, WA.
ParkinsonPathfinder | SUMMER 2013
7
H O M EO PAT H IC N E W S
Mucuna Pruriens Paul J. Nicolai, ND (Portland, OR) and Laurie Mischley, ND (Seattle, WA)
Caribbean. The seeds of this plant have historically been
movement and implicated in PD). • Another rodent study demonstrated an effect resem-
used in Ayurvedic medicine as an aphrodisiac, to in-
bling that of carbidopa in a water-soluble extract of
crease sexual function, to treat snakebites and, perhaps
M. pruriens as well as an antiparkinsonian effect
most notably, in the treatment of Parkinson’s disease
similar to an equivalent amount of levodopa, but
(PD). Levodopa, a chemical used in drugs for the clinical
with much less dyskinesia.
treatment of PD, was first isolated from the seeds of this
• M. pruriens extracts with negligible amounts of
plant in 1937. Since then, it has been determined that M.
levodopa still show significant neuroprotective ac-
pruriens contains the highest concentration of levodopa
tivity, suggesting that some of its other components
of any known botanical source, lending credence to
may also have therapeutic potential.
stories of its successful historical use in patients with
• Nicotine adenine dinucleotide (NADH) and coen-
PD. While there have been relatively few clinical trials
zyme Q-10, which may have therapeutic benefits
conducted using M. pruriens, preliminary research sup-
in treating parkinsonism, are present in the seed
ports the potential usefulness of some preparations in
powder of M. pruriens.
the symptomatic management of PD. A 2004 study compared M. pruriens with carbidopa/
However, it is important to keep in mind the possible disadvantages to consider before using M.pruriens,
levodopa (C/L) in efficacy, duration of action, and side
which include the following:
effects in eight Parkinson’s patients. In these patients,
• M. pruriens is not typically a covered benefit of most
M. pruriens demonstrated a considerably faster onset
insurance policies, and will probably cost more than
of effect (35 minutes versus 69 minutes) and longer “on” time (37 minutes) compared to C/L, with no significant
an equivalent dose of C/L. • There have been no long-term studies to determine
differences in dyskinesias or tolerability. The authors
the safety or efficacy of M. pruriens, and searches of
concluded that these benefits “might possess advan-
scientific databases such as clinicaltrials.gov do not
tages over conventional L-dopa preparations in the long-term management of PD,” yet also stating that “[a]
show that there are any currently being conducted. • Most of the studies on M. pruriens have been per-
ssessment of long-term efficacy and tolerability in a
formed using animal models of PD, not on humans.
randomized, controlled study is warranted.”
It can be difficult to find a medical practitioner who
Herbalists have long held that the various components
is willing and able to help guide a patient in making
of whole plants work synergistically with one another.
this choice safely and effectively. If you decide to use
This appears to be true in the case of M. pruriens, as the
M. pruriens, please make sure your physician knows
use of whole plant extracts have demonstrated several
that you are experimenting with alternative sources
advantages not associated with C/L. Possible advantages
of levodopa.
to be gained by using M. pruriens include the following:
Numerous M. pruriens preparations are available from
• M. pruriens cotyledon powder (MPCP) has been
a variety of sources. Because several serious toxici-
shown to have antiparkinsonian and neuroprotec-
ties have been attributed to Ayurvedic and Chinese
tive effects in animal models of Parkinson’s disease
medicines in recent years, it is imperative that patients
that are superior to those of synthetic levodopa.
considering a trial of M. pruriens purchase only from
• Another recent study suggested that the ability of
8
stantia nigra (the part of the brain associated with
reputable companies who can demonstrate that their
MPCP to protect against PD-associated DNA dam-
products have been independently certified to be au-
age may be due to its ability to chelate copper.
thentic and free of contaminants such as heavy metals.
• In a mouse model of PD, M. pruriens significantly
Unlike pharmaceutical preparations of C/L, which are
increased the brain mitochondrial complex-I activ-
chemically standardized and thus can be reliably dosed,
ity. Unlike synthetic levodopa treatment, it signifi-
the composition of M. pruriens extracts may vary
cantly restored the endogenous L-dopa, dopamine,
tremendously based on how and where the plant was
norepinephrine, and serotonin content in the sub-
grown, harvested, and packaged. P
ParkinsonPathfinder | SUMMER 2013
Photo courtesy Carl-Evert Kangas on Flickr
Mucuna pruriens , also known as “velvet bean” or “cowitch,” is a legume found in Africa, India, and the
Support Groups
ALASKA Parkinson’s Support Group 3rd Saturday of the month at 3:30 pm 923 W 11th Ave, Anchorage, AK 99501 Peter Dunlap-Shohl, (907)350-9691 dunlapshohl@gmail.com ANACORTES Anacortes PD Support Group 3rd Thursday of the month at 1:00 pm Island Hospital 1211 24th St., Anacortes, WA 98221 Jerry Ramsey and Nola Beeler (360)293-2185 / njbeeler@yahoo.com BELLEVUE Bellevue Young Onset Support Group 1st Wednesday of the month at 7:00 pm North Bellevue Community Center 4063 148th Ave NE, Bellevue, WA 98007 Suzanna Eller, (206)938-8298 suzanna.eller@providence.org BLAINE Parkinson’s Support Group Blaine UCC 2nd Friday of the month at 5:00 pm 885 4th Street, Blaine, WA 98230 Inge Reuter, (360)332-4564 blaine-pdsg@hotmail.com BOTHELL Parkinson’s Support Group 3rd Tuesday of the month at 10:00 am North Shore Senior Center 10201 E Riverside Dr., Bothell, WA 98011 Susan Quinn, (425)488-4821 susanq@seniorservices.org BREMERTON Parkinson’s Support Group 1st Tuesday of the month at 1:30 pm Canterbury Manor 703 Callahan Dr., Bremerton, WA 98310 David Hull, (360)895-6220
Photo courtesy DHerrera_96 on Flickr
CHEHALIS Parkinson’s Support Group 2nd Thursday of the month at 1:00 pm Bethel Church 132 Kirkland Rd., Napavine, WA Jan Erickson, (360)273-9987 COVINGTON PD Support Group 3rd Tuesday of the month at 10:30 am St. John the Baptist Catholic Church 25810 156th Avenue SE Covington, WA 98042 Stephanie De Leon Lawson steph.pdgroup@gmail.com
in the Pacific Northwest
COEUR D’ALENE Coeur d’Alene Parkinson’s Support Group 1st Friday of the month at 1:00 pm Lake City Senior Center 1916 N Lakewood Dr., Coeur d’Alene, ID 83814 Beth Hatcher, (208)635-5243 cdapsg@hotmail.com
ISSAQUAH Issaquah Support Group 2nd Monday of the month at 2:00 pm Our Savior Lutheran Church 745 Front St. S, Issaquah, WA 98027 Suzanna Eller, (206)938-8298 suzanna.eller@providence.org
DES MOINES Parkinson’s Support Group 3rd Wednesday of the month at 10:00 am Wesley Homes, 815 S. 216th St. Des Moines, WA 98198 *contact group leader before attending* Rita Lambert, (206)870-1302 rlambert@wesleyhomes.org
KIRKLAND Parkinson’s Caregiver Support Group 2nd & 4th Tuesday of the month at 1:00 pm EvergreenHealth room TAN-121 12040 NE 128th St., Kirkland, WA 98034 Amy Cole, (425)899-3122 alcole@evergreenhealth.org
EDMONDS Deep Brain Stimulation (DBS) Support Group *group meets quarterly; date, time and location to be determined* Michelle Bauer, (206)320-2883 michelle.bauer@swedish.org Parkinson’s Support Group 2nd Wednesday of the month at 1:00 pm Edmonds Senior Center 220 Railroad Ave, Edmonds, WA 98020 Carol Agueyo, (425)743-6029 agua549@frontier.com EVERETT Lewy Body Dementia Caregiver Support Group *contact facilitator for date/time info* Carl Gipson Senior Center 3025 Lombard Ave, Everett, WA 98201 Joy Walker, (425)457-4793 joyincaregiving@yahoo.com FEDERAL WAY PD Support Group 3rd Tuesday of the month at 1:30 pm Life Care Center of Federal Way 1045 S. 308th, Federal Way WA 98003 Sandra Machado, (206)334-8440 Sandra_machado@lcca.com GIG HARBOR Gig Harbor Parkinson’s Support Group 2nd Wednesday of the month 4:00 pm St. Anthony’s Hospital 11567 Canterwood Blvd. NW, Gig Harbor, WA 98332 Doug Manuel, (253)858-8741 manuel@harbornet.com HOQUIAM PD Support Group Last Tuesday of the month at 6:00 pm Hoquiam Library, 420 7th St., Hoquiam, WA 98550 Betsy Seidel, (360)533-5968 betsycamel@yahoo.com
LONGVIEW Parkinson’s Support Group 3rd Wednesday of the month at 1:45 pm Canterbury Inn in the Chateau Dining Room 1324 3rd Ave, Longview, WA 98632 Barbara Sudar, bnbsudar@msn.com LOPEZ ISLAND PD Support Group 3rd Monday of the month at 4:30 pm The Gathering Place Lopez Village Lopez Island Jackie Ashe, (360)468-2435 jackieashe@centurytel.net MOUNT VERNON / BURLINGTON Logan Creek Support Group 1st Monday of the month at 10:00 am Logan Creek Retirement Community 2311 East Division St. Mount Vernon, WA 98274 Ginger Dollarhide and Tori Kelly (360)629-8426 / (360)939-0640 weewiseginger@gmail.com OLYMPIA PD Support Group Every Wednesday at 11:00 am *membership required* 1 year=$30/individual $55/couple Olympia Senior Center 222 Columbia Street NW, Olympia, WA 98501 Joyce Beckwith, (360)586-6181 admintemp@southsoundseniors.org PD Support Group/Exercise Class Support Group meets: 3rd Tuesday of the month at 11 am *exercise Class meets every Tuesday at 11 am* Olympia Senior Center 222 Columbia Street NW, Olympia, WA 98501 Rozanne Rants, (360)705-8520 ORCAS ISLAND Orcas Senior Center Tuesdays at 1:00 pm Ted Grossman, (360)376-4979 tfgrossman@yahoo.com
ParkinsonPathfinder | SUMMER 2013
9
SU P P O RT G ROUP S
PORT ANGELES Dance with Parkinson’s 3rd Saturday of the month Sons of Norway 131 West 5th St., Port Angeles, WA 98362 Darlene Jones, (360)457-7004 djones@olypen.com
Caregivers of Veterans Every Monday at 1:00 pm Seattle VA Medical Center 1600 S. Columbian Way, Seattle, WA 98108 Room 1D-146gg (near the West Clinic) Kris Fredrickson, (206)764-2188 kris.fredrickson@va.gov
PA Senior Center 4th Wednesday of the month at 10:30 am 328 E. 7th Street (On the SW corner of 7th & Peabody), Port Angeles, WA 98362 Darlene Jones, (360)457-7004 djones@olypen.com
Caregiving Northwest Support Group Studio Evolve Pilates and Bodywork 333 Wallingford Ave N, Seattle, WA 98103 Joy Walker, (206)457-4793 joyincaregiving@yahoo.com
POULSBO Parkinson’s Exercise Class 3rd Monday of the month at 1:30 pm Poulsbo Athletic Club 19611 7th Avenue NE, Poulsbo, WA 98370 Lana Gills, (360)779-7178 lanagale@earthlink.net Young at Heart Support Group 1st Monday of the month at 1:00 pm North Point Church 1779 NE Hostmark St. Poulsbo, WA 98370 Lana Gills, (360)779-7178 lanagale@earthlink.net REDMOND PD Support Group 3rd Wednesday of the month at 1:00 pm Emerald Heights 10901 176th Cir NE, Redmond, WA 98052 John Waltner, (425)556-8140 johnw@emeraldheights.com PUYALLUP Caregiver Support Group 1st Tuesday of the month at 1:30 pm Life Care Center of Puyallup 511 10th Ave SE, Puyallup, WA 98372 Karen Williams, (253)845-7566 karen_williams@lcca.com Parkinson’s Support Group 3rd Thursday of the month at 11:45 am Life Care Center of Puyallup 511 10th Ave SE, Puyallup, WA 98372 Karen Williams, (253)845-7566 karen_williams@lcca.com RICHLAND Parkinson’s Supper Club 3rd Thursday of the month at 4:30 pm Kadlec Neurological Resource Center 560 Gage Blvd, Ste 106, Richland, WA 99352 Heidi Hill, (509)943-8455 Heidi.hill@kadlecmed.org PD Support Group 3nd Monday of the month at 1:30 pm Kadlec Neurological Resource Center 560 Gage Blvd, Ste 106, Richland, WA 99352 Heidi Hill, (509)943-8455 Heidi.hill@kadlecmed.org SEATTLE Atypical PD Support Group (PSP, MSA, CBD) 4th Monday of the month at 4:00 pm Virginia Mason Lindeman Pavilion 1201 Terry Ave, Seattle, WA 98101 James Jones, (206)281-8446 jonesblake@aol.com
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ParkinsonPathfinder | SUMMER 2013
The Hearthstone 2nd Tuesday of the month at 2:00 pm 6720 East Green Lake Way N Seattle, WA 98103 Erica Campbell, (206)774-5173 MSA Support Group 4th Monday of the month at 11:00 am Lindeman Pavilion at Virginia Mason 1201Terry Ave, Seattle, WA 98101 Carin Mack, (206)230-0166 socialwkr@earthlink.net Parkinson’s Partners Support Group 2nd Tuesday of the month at 1:00 pm Greenwood Senior Center 525 North 85th Street, Seattle, WA 98103 Carin Mack, (206)230-0166 socialwkr@earthlink.net Parkinson’s Support Group 4th Monday of the month at 1:30 pm Horizon House 900 University Street, Seattle, WA 98101 Carin Mack, (206)230-0166 socialwkr@earthlink.net Parkinson’s Young Onset Support Group 2nd Tuesday of the month at 7:00 pm *please contact facilitator for current location* Suzanna Eller, (206)938-8298 suzzana.eller@providence.org PD Support Group 2nd Thursday of the month at 2:30 pm University House Wallingford Northwest Conference Room, 1st Floor 4400 Stone Way N, Seattle 98103 Susanne M. Rossi, (206)470-8041 Susanne.rossi@eraliving.com SPOKANE Parkinson’s Support Group 2nd Wednesday of the month at 1:30 pm Deaconess Health & Education Center 800 West 5th Ave, Spokane, WA 99204 Cyndi Cook, (509)473-2490 center@spokaneparkinsons.org Young Onset Support Group *contact group leader for time and location information* Cyndi Cook, (509)473-2490 center@spokaneparkinsons.org STANWOOD Stanwood Support Group 2nd Monday of the month at 10:00 am Stanwood Senior Center; center social room 7340 276th Street NW, Stanwood, WA Victoria Kelly and Ginger Dollarhide (425)422-1067 / kellytori7@gmail.com
TACOMA Parkinson’s Support Group 3rd Tuesday of the month at 2:00 pm Franke Tobey Jones, Continuing Care Retirement Community 5340 N Bristol St., Tacoma, WA 98407 Kathlyn Neal, (253)752-6621 ext. 313 kneal@franketobeyjones.com Tacoma Lutheran Home Voice Group 3rd and 4th Friday of the month at 11:30 am 1301 N Highlands Parkway, Tacoma, WA 98406 Sharon Jung, (253)752-7112 psnhogan@aol.com VANCOUVER Parkinson’s Family Caregiver Support Group 2nd and 4th Tuesday of the month at 1:30 The Quarry Senior Living Private Dining Room (1st floor) 415 SE 177th Ave, Vancouver, WA 98683 Maria Jokela (360)944-6000 office/(503)290-4443 cell mjokela@thequarryliving.net Parkinson’s Support Group 2nd Tuesday of the month at 12:15 pm *bring brown bag lunch, snacks and drinks provided* The Quarry Senior Living Marble Room (2nd Floor) 415 SE 177th Ave, Vancouver, WA 98683 Maria Jokela (360)944-6000 office/(503)290-4443 cell mjokela@thequarryliving.net VASHON Vashon Lutheran Church Support Group 1st Friday of every month Vashon Lutheran Church Fellowship Hall 18623 Vashon Hwy SW, Vashon, WA 98070 Steve Steffen, (206)463-2655 steve_steffen@yahoo.com WENATCHEE PD Support Group 3rd Tuesday of the month at 2:00 pm LaVerna Armintrout, (509)884-6833 condovikings@gmail.com WEST SEATTLE The Kenney Parkinson’s Support Group 4th Monday of the month at 2:00 pm 7125 Fauntleroy Way SW, Seattle, WA 98136 Michael Byus, (206)937-2800 ext. 5232 MByus@TheKenney.org Parkinson’s Support Group 1st Tuesday of the month at 1:30 pm Providence Mt. St. Vincent 4831 35th Ave SW, Seattle, WA 98126 Suzanna Eller, (206)938-8298 suzzana.eller@providence.org
Thank you
for your generous donations
Donations received January 2012–March 2013
In Honor Of (and Donor)
Brooks Carwin (Jack & Mary Higgins)
James Krogh (Barbara Krogh)
Evelyn Prewitt (Ivan & Betty Hess)
Derry Bowles (Marilyn Bowles)
Melvin Cummins (Mary Jayne Cummins)
Steve Lamken (Donna & Richard Clarke)
Mike Shanahan (Ferdinand Schmitz)
Paul Crowder (Bronwen Lindskog)
Neil Dickinsen (Karen & Ken Giselson)
Bill Mason (John & Joy Dunne)
Robert Vernon Unglaub (Anonymous)
Ed Ewell (Jacquie Ewell)
Steve Dorsett (Sallie Fingarson)
Jeanne Costello Masters (Margaret Teramoto)
Donald Wade (Guyla M Wade)
Eric & Andrea Johnson (SueEllen Blacknall, Jana Ferguson, Nancy & Rocky Griese, Thelma Nies)
Gerald Ecklund (L&J Kinunen Trust, Theodore & Marie Spearman)
Stell McEnear (Shirley Custer)
Dr. Flory Wagenaar (Mr. & Mrs. Joseph Budne)
Gordon & Coral Lee Johnson (Betsy Lardent)
Stanley A Enebo (Joanne Mackay)
Malcolm McLendon (Gail Hovard, Virginia Tubbs, Raymond & Edith Wicks)
Donald Waldron (Suzanna Eller, Providence Mount St. Vincent)
Randy Mosher (Darlean Mosher)
Carol Ruth Erb (Raymond D & Audrey Gay Geist)
Wilbert McWain Sr (Marilyn Corbin)
Bernard A Whitney (Glen Johnson)
Marv Merkel (Mary Keys & Joseph Hettman)
Phyllis Hinkins Wilbur (James R Walesby)
Curt Mikkelsen (Summit Family foundation c/o Mary Hirschfield)
Business
Fred Nelson Jr (Kathy Nelson) Eric Paulsen (Frances B Paulsen) Bernard Robertson (Sharon Robertson) Cal Severns (Jo Ann Fjellman) Fred Van Ieperen (Peggy A Van Ieperen) Son of Alton & Jacquelyn Williams (Alton & Jacquelyn Williams) In Memory Of (and Donor) Jack Abravanel (Lore & Marvin Coe) Gerry Achziger (Sheila & Robert Pollock) Marley Anderson (Ralph & Sharyn McDonald) Harvey Armintrout (Richard & Patricia McLaren, Wenatchee Area PD Support Group) Denis Berthon (Lois Mansperger) Dick Brown (Carin Mack) Mike Carlson (Bill & Joan Carlson) Paul Carter (Virginia Davies) R. Paul Carter (Donald & Elaine Anderson)
Jerry Grafa (Nancy Courtright) Jack Hanning (Barbara & Earle Addis, Richard & Dolores Barnecut, William Beck, Aggie & David Byers, Robert & Geraldine Craig, Robert & Audrey Crowley, Mary Lynn Dalzell, George & Trudy Halverson, Bettie Hanning, Buell & Gloria Hembree, Charles & Micheala Hoppe, David & Elizabeth Knightly, Henry & Mavis Norton, Francis Ratcliff & Family, Harry & Patricia Rollins, James & Carol Shorett, Gwin & Florene Smith, Lois Turner, Jami Vaux, Vicki Vaux, Cal & Joyce Wiseman)
Albert Mindell (Maxine Mindell)
AllState The Giving Campaign BECU Gift Matching Program Bill and Melinda Gates Foundation
Beverly Murphy (Lois & Alan Sands)
Bridge Partners LLC
Kathleen Myhre (Glenn Myhre)
Cameron Catering
Ronald G Nelson (Jerry & Linda Loney)
Curves of Seattle-Ballard
Costco Wholesale Dell
Don Nettleton (Vesta & Everil Loyd) Perry T Newman (Keith & Sophie Wallinder) Uncle Dick Nies (Patti Nies)
Employees Community Fund of the Boeing Company Evergreen Healthcare Gibraltar, LLC Google
Ellen Hauge (William & Cora Auerswald)
John Nixon (Kenneth L Martin, MD)
Hawthorn Retirement Group LLC
John L. Hinkle (Frances Hinkle)
Norma Oberg (Kathleen Strickland)
Hewlett Packard
Joan Holcomb (Janet Zema)
John O’Heron (Willis & Carolyn Calhoun)
Medtronic
Kenneth Hunter (John & Jackie Hoggatt)
Rudolph L Peden (Eric Robertson, Brent Swearingen)
Joe Jay (Nancy Courtright) Herb Jenkins (Larry & Mary Robertson) Henry H Judson, Jr (Phillip Gladfelter) Vic & Vicki Keeran (Linda & Gregg Ridder)
Tony Petrich (Victor Grabar, Susan Jacobsen, Betty Petrick) Stella Petrucci (ML Renie & Teresa Barnes, Paul & Judith Gilliland)
Libertee World Microsoft Matching Gifts Program Moneytree Muckleshoot Casino Providence Mount St. Vincent (gift shop tip jar) Puget Sound Energy Foundation Rock This Sway / Amie Schumer Seattle Foundation
ParkinsonPathfinder | SUMMER 2013
11
D O NO RS
12
Swedish
Henry & Doris Demko
Diane Hutchins
Susan Richardson
Teva Pharmaceuticals
Shwu-jen Hwang
Lawrence Rogovoy
Trident Seafoods
Tamera Van Ness & Dean Desilet
Anthony Jacob
Estate of Helen Ruark
Virginia Mason
Leanne & Randall Devitt
Peter Janni
Donald Russell
Kyle Dunn
Richard D Johnson
Jim & Lari Ryan
Individual Donors
Marvin & Jean Durning
James & Dianne Johnston
Vasanti Sangani
Noor & Bibi Aaf
Frank & Dorothy Duvall
Thomas Juvik
Margaret Schmidt
Sarah Bee & James Aga
Toni Eaton
Owen & Irene Kennedy
Larry & Cheryl Scott
Paul & Virginia Almeida
William Eddy
EJ Kim
Gloria Seitel
Chris Altwegg
Stanley & Ruth Felgar
Robert Koch
Patrick Shanahan
Marie Anchordoguy
Virginia Fergueson
Julie Koehler
R & Julie Sharif
Audrey Anderson
James Ferguson
Nelda Krohn
Paul Sherland
Anonymous
Clive & Jeannie Fleming
Robert & Pamela Krotz
Peggy O’Neil Shortt
Les Apigian
Michele Flotlin
Earline LaFreniere
Miya Cohen-Sieg & Ross Sieg
HP & LJ Armintrout
Patrick & Cora Forgette
Teri Lazzara
Rex & Donna Sines
Kelly Askew
Cindi Forslund
Elizabeth & Charles Lee
John Sirianni
Joelle Averbuch
Hisao & Keiko Fukui
Charles Lenhart
Chester & Marilyn Smith
Thale Balding
Edward Gaborski
Bruce Leone
Kathy Snyder
Robert Ballinger
Susan Geisler
George Lowen
Harold & Barbara Solberg
Ian & Amanda Barr
Dale & Cindy George
Robert & Maureen Lucas
Stephen A Sprenger
Robert Bartell
David & Ruth Ann Getchell
Deborah Magallanes
Madeline & Manny Stermlicht
Susan & James Bates
K. Roger & Martha Gilbert
Ken & Alisa Malloch
Tyler Story
Thomas & Nola Beeler
Helene Gilroy
Rafael & Erlinda Manzanares
Jim & Diane Stump
Stephen & Katy Bergenholtz
Todd & Toni Goins
Dan McGuire
Joanne & Stephen Syre
Robert Beveridge
Betty Greiwe
Rachel J McGuire
Patricia Taylor
Ellen Blackstone
Stephen & Celia Grether
Roy & Linda McIntosh
Kerry Thurman
Perry Bourlier
Nancy & Rocky Griese
Mark McKay
Sandra Timmer
Paul & Debbi Brainerd
James & Judy Grimes
Michael McKinlay
Mr. & Mrs. Thomas Turner
Barbara & John Brassfield
Jewell Hanna
Mary Means
Robert Utter
Scott & Laura Breckenridge
Gary & Jana Hannon
Molly Meyer
Samuel & Lisa Verhovek
Mary Jane Hansen
Curtis & Mary Mikkelsen
Judith Watson
Aaron & Ginadoria Brown
Jeffery & Angela Harbaugh
Robert & Mildred Roach
Thomas Wells
William Brown
Brendan & Patricia Hardy
Barbara Miller
Donella Westfall
Camie Bruns
Nicole Harris
James Miller
Mark Whipple
Estelle & Joseph Budne
Robert & Dawn Hatch
Harold & Evelyn Minea
Glenn & Jean White
Stephen Butler
LL & GL Haugsven
Opal Mitchell
Marylou Whiteford
Eric Camplin
Loryn Heath
Pam Mitchell
Herbert & Dolores Wiegand
Beth Carlyle
Maurice & Gwena Hedlund
Terri Morrison
Daniel & Kay Wilkerson
Arthur Carrier
Richard & Nancy Heembrock
Glenn & Kathleen Myhre
Andrew & Barbara Wold
Beverly & Brent Carter
Margaret Hellyer
Harold & Marlene Nelson
Parvin Zabetian
Paul & Virginia Carter
Leslie Helm
Deborah O’Brien
Sue Zimmermann
Lorrie Church
Judith Herrigel
Gabrielle Omalley
Lisa Clausen
Richard Hile
David & Barbara O’Sullivan
John Clay Jr.
Linda Hilliard & Louis Hilliard
Mummaneni Padmalatha
Jim & Linda Clevering
Patrick Hogan, MD
Snehal Pandya
Kathleen Conner
Dale Hoisington
Frances Paulsen
Glenn & Sarah Corey
Jerald Hollenback
Lisa & Kevin Peake
Patricia Cosner
Wendy Holman
Jay & Francoise Pearlman
Suzanne Cowan
John Hopkins
Arthur Piehler
Michael J Creeden
Leon Hopper
Gerry Pigotti
Ayele & Yeshearg Dagne
Paula Houston
Dewey Potter
T. Dean
James R Hoyt
Harlan & Darlene Prater
Claudia Delgrosso
Dawn Bourdo & William Hughes
Kathryn Rhodes
ParkinsonPathfinder | SUMMER 2013
MARK your CALENDARS! American Parkinson Optimism Walk september
28 2013
Supporting research and information and Referral Centers Lincoln Park in West Seattle To register or find out more information call the
Scan this QR code on your smartphone to be linked directly to our calendar of events on our website
Information and Referral Center at 206.277.5516.
november
16 2013
HOPE Conference New Location at the Meydenbauer
Ne loca w tion
!
Convention Center in Bellevue, Washington
Patient and Caregiver Education Programs 2013 For the most up-to-date information about upcoming programs check our website at www.waparkinsons.org AUGUST
SEPTEMBER
OCTOBER
Bellingham, WA
Wenatchee, WA Ellensburg, WA Tri-Cities, WA Yakima, WA
Moses Lake, WA Lewiston, ID
YADA:
Learning About Disabilities through Fun! YADA (Youth Awareness Disability Assemblies) is a unique program seeking help in Seattle-area elementary schools. Our program was started by the vision of Sue Dahlin, a former physical education teacher sidelined by multiple sclerosis. It has now met the needs of schools for over a decade. YADA guides students through fun and informative activities about the brain, service animals, the senses and more. A follow-up Q&A session then allows participants to meet adults with various disabling conditions and learn how they adapt to everyday life. So far, we’ve been invited to take our interactive program to forty elementary schools in King County and we are booked for another year. YADA is a completely volunteer-run endeavor, relying on a core group of station leaders and other on-call volunteers. We have been overjoyed to receive glowing evaluations from principals, teachers, PTA members and, most importantly, the students. We love what we do and are committed to continue, but as a group that primarily consists of individuals challenged by disabling conditions, we need more people to join us in our inspiring work. Recent media coverage has resulted in greater interest locally and beyond. We hope to meet the new demand for programs with an emphasis on anti-bullying and respect for diversity.
You can help us in the following ways: Assist in the development of a “how-to” resource guide for interested parties Join us as a part of the Board Get involved in local organizations to spread awareness Connect with additional volunteers for YADA school events
To learn more about YADA, contact us at YADA4Kids@msn.com. ParkinsonPathfinder | SUMMER 2013
13
Yes!
I want to help “ease the burden, and find the cure” for Parkinson’s Disease.
Enclosed is my tax-deductible gift of: (check boxes) $25
$50
$100
$250
$500
$1000
Other amount
My employer will match my gift Please send me information on wills and how a bequest can support WA APDA. I’m interested in learning more about Parkinson’s Disease. Please send me information.
Please clip and return with your check, made payable to: Washington APDA Send checks to us at PO Box 75169 Seattle, WA 98175 To donate by credit/ debit card, please visit our website www.waparkinsons.org or call 425.243.2732
This gift is given in honor of/in memory of
Please notify the individual(s) listed above Address
City
State Zip
Donor’s name Address
City
State Zip
Email address
The Washington State Chapter of the American Parkinson Disease Association is a nonprofit 501(c)3 organization. Our tax ID number is 13-1962771.
Thank you for your generosity!
APDA Information and Referral Center GRECC-S-182 1660 S Columbian Way Seattle, WA 98108
S U B S CR IB E TO OUR N E W S L E T T E R! Sign up for our newsletter by visiting our website
www.waparkinsons.org or emailing coordinator@waparkinsons.org