Supporting people living with HIV & Hepatitis C in Scotland July 2010
Welcome to the July 2010 edition of Positive Interest.
In this issue…
We can’t believe that we’re already over half way through our 21st birthday year. We are so grateful to everyone who has wished us well at events. Amongst those extending their congratulations was Edinburgh’s Lord Provost, the Right Honourable George Grubb. See the photos on page 3. It’s going to be another busy August for Waverley Care’s Fundraising Team during the Edinburgh Festival Fringe as they raise money to support our work with people living with HIV and Hepatitis C in Scotland. With bucketshaking and events galore – check out what is happening in the fundraising diary on page 9. If you’re interested in learning more about World Hepatitis Day and Hepatitis C treatment then turn to pages 4 and 5 where we update you about this relatively new aspect of our work. Thank you for your support and happy reading!
Patron Profile p2 Former Director of the Pleasance Theatre Christopher Richardson. Civic Reception Edinburgh’s Lord Provost hosts a 21st birthday celebration.
p3
Volunteering p4 Find out about our green-fingered volunteers. World Hepatitis Day
p5
Focus on: Arts Projects
p6
Introducing Mildred p7 Meet Mildred Zimunya, our African Support Worker in Glasgow. Fundraising Round-up
p8
Fundraising Diary
p9
Christmas Cards p11 Christmas Cards for the early birds among our readers! Waverley Care, 3 Mansfield Place, Edinburgh EH3 6NB www.waverleycare.org
Telephone: 0131 556 9710
Find us on Facebook
Email: fund@waverleycare.org
Follow us on Twitter
Scottish Charity No. SC036500 Company Limited by Guarantee No. 253043
ComedyGala2010_130x95
7/6/10
18:19
Page 1
OFF THE KERB PRODUCTIONS IN ASSOCIATION WITH UNIVERSAL PICTURES (UK) LTD PRESENTS
www.offthekerb.co.uk
THE BIGGEST AND FUNNIEST SHOW AT THE FRINGE!
COMEDY
GALA 2010
A C H A R I T Y G A L A I N S U P P O R T O F WAV E R L E Y C A R E
HOSTED BY
Kevin Bridges
Edinburgh’s biggest comedy event featuring an all-star cast. With special guests:
David O’Doherty, Andi Osho, Jack Whitehall Sean Lock, Holly Walsh, Shappi Khorsandi Andrew Lawrence, Jon Richardson, John Bishop Simon Evans, Jason Byrne, Adam Hills Justin Moorhouse, Mark Watson Tom Wrigglesworth, Mick Ferry, Seann Walsh Carey Marx, Phil Nichol, Stephen K Amos Tom Stade, Jimeoin and others t.b.c. T ONLY
ONE NIGH
RLY! BOOK EA
7.30PM
TUESDAY 24 AUGUST 2010
13-29 NICOLSON ST, EDINBURGH
TICKETS: 0131 529 6000 www.festivaltheatre.org.uk
Profile of a Patron Former Director of the Pleasance Theatre Trust Christopher Richardson has been a Waverley Care Patron since 1997. Christopher kindly sat down for a few minutes to answer some of our questions.
Why did you become a patron of Waverley Care? You asked to do a collection at The Pleasance. We came to see the Solas support centre in action and adopted Waverley Care as our main charity and we looked for ways to be more supportive. Out of this came the annual Tartan Ribbon Comedy Benefit at the Pleasance Theatre Festival as part of the Edinburgh Festival Fringe. What is your most memorable moment about working with Waverley Care? Each year the sight of Waverley Care buckets at every theatre exit and coins and notes tumbling into them. The enthusiasm of the collectors and the smiling willingness of the contributors. What is your favourite food and drink? Guinness and red wine – well Max Wall called Guinness a food. Name three things you want to do before you die. Not be a nuisance to anyone, see all my friends again and again and win a Fringe First! Well, one must dream!! What is your favourite place in the world? Edinburgh in August and particularly as the evening sun hits the Pleasance Courtyard. Who inspires you? Dave Bennington and his father before him who used to deliver milk each and every day in Rutland, whatever the weather and whatever the circumstances ....and all those of their ilk!
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Civic Reception We were delighted that The City of Edinburgh Council offered to host a civic reception at Edinburgh City Chambers on 4th June to mark Waverley Care’s 21st Birthday. Staff, volunteers, supporters and service users were among those that joined the Lord Provost and City of Edinburgh Councillors at the event honouring our work. [top] Richard Holloway, former Bishop of Edinburgh, Graham Bowie, former Board Chair, and Lord Provost, the Right Honourable George Grubb; [middle] Milestone Senior Manager, Jonathan Creel and former Board Chair, Gill Stewart. [bottom] Volunteers Olive Mullen, Shannon Malkiewicz and Rik Ingram. Photos by Stanley Reilly
THEY
ARE
BACK!
NEW TOWN BAR SUNDAY FUNDRAISERS 8 T H , 15 T H , 22 N D
10th – 21st August (except 16th)
29 T H A U G U S T 4PM
AND
FROM
COME DOWN AND ENJOY SOME AMAZING ACTS
Host - Scott Agnew Performers include Jo Caulfield, Tom Allen, Edinburgh Gay Men’s Chorus and Six Storeys High. All raising money for Waverley Care
New Town Bar 26b Dublin Street Edinburgh 0131 538 7775
www.newtownbar.co.uk
Saturday 14th August - Benefit performance for Waverley Care Venue 336. Columcille Centre, 2 Newbattle Terrace, Edinburgh
Time: 7.30pm (1 hr) Tickets: £10/£8 concessions/£5 child Available from Fringe Box Office Tel: 0131 226 0000 www.edfringe.com
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Volunteering Green Fingers It might not be the Beechgrove Garden but Waverley Care staff, service users and volunteers are very fond of our wee allotment. Volunteers Amy Sulton and Katherine Kemp are regularly down at the plot pulling out weeds and tending to the vegetables that are grown there. They are both available each week to help service users reap the benefits of the outdoor space and were recently acknowledged for their efforts with an Inspiring Volunteering award from the Volunteer Centre Edinburgh.
[above] Lloyds Banking Group volunteers and furry friend.
As well as getting fresh air and physical exercise, working on the allotment gives service users a sense of purpose and achievement when they see the fruits of their labour. It can be a real boost to damaged self-esteem.
[left] A ‘veggie box’ of delights - some of the allotment produce.
During the summer months the allotment is visited by the children and young people’s groups who often enjoy a barbeque in the outdoor space. As well as individual volunteers, teams also use their green fingers to get involved at Waverley Care. A team of volunteers from Lloyds Banking Group recently spent a day helping out at both the allotment and in the gardens of our respite unit,
Milestone. Although not great weather, the team made a real difference and we’re very grateful for their efforts.
Hepatitis C Treatments As part of the Scottish Government’s three-year Hepatitis C Action Plan more people are being encouraged to come forward for testing and, if positive, start treatment. 25% of people infected with Hepatitis C clear the virus naturally without any treatment but the recent developments in medication give hope of a life clear of Hep C to the remaining 75%. Medication has a 50-80% effectiveness, depending on the strain of the Hep C virus being treated. The treatment lasts for between 24 and 48 weeks and takes the form of a weekly injection and daily tablets. Everyone reacts differently to the drugs. Some people have been known to get lots of side 4 Positive Interest
effects and others hardly any. Common side effects include depression, tiredness, insomnia, breathlessness, nausea, flu-like symptoms, anaemia and hair loss. Accessing support can really help with the mental and physical effects of treatment. Waverley Care’s services include a specialist Hepatitis C Buddy Service and Positive Self Management Programme (a project educating people on practical, everyday skills to manage physical and emotional health). The services are on hand to support individuals through their treatment and out the other side, hopefully free from the Hep C virus.
World Hepatitis Day Wednesday 19th May was World Hepatitis Day. The World Hepatitis Alliance, together with The Hepatitis C Trust and five NHS boards, organised a week of events around Scotland to highlight the day and Waverley Care was involved in planning the events in Edinburgh. The aim of the events was to raise awareness of Hepatitis C and carry the World Hepatitis Alliance messages to local communities. Messages were focused on preventing new infections and delivering health improvements to people living with Hepatitis. Their campaign ‘Am I number 12?’ is designed to communicate that 1 in 12 people worldwide are living with Hepatitis B or C and to encourage testing. Nursing staff and people living with Hepatitis C were available on the day, alongside Waverley Care’s Hep C Buddy Co-ordinator, Annette Wilson, to share their knowledge and experiences. “The day was deemed to be a great success with a real feeling of achievement” commented Annette. “This was particularly felt by those living with the virus who were empowered to share their experiences and felt supported enough to take part in the day.”
For more information on Hepatitis C visit www.waverleycare.org.
Milestone Funding Cuts In our February edition of Positive Interest we told you about The City of Edinburgh Council’s proposals to potentially reduce funding to our respite unit, Milestone.
Service users are being kept informed on a regular basis of the proposed changes which, it is anticipated, will begin from 1st September 2010.
Things have now moved forward and, in April, the Council informed us that funding towards Milestone would be cut in the current financial year (2010/11) by £108,000. This is a major reduction in funding (20%) and will therefore unfortunately affect our ability to run services in the way we have traditionally been able to. Senior Waverley Care staff are working with colleagues in the respite unit to develop new models of care that can be delivered within the new funding constraints. We are confident that we will be able to continue offering care and support the most vulnerable of those living with HIV.
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Focus on: Arts Project Work with creative arts happens in most of our support groups and services. It provides service users with a means of expressing emotions they find difficult to otherwise talk about and helps develop self-confidence. For many years, art work has been instrumental in helping those using Waverley Care’s services. It has assisted people in coming to terms with a diagnosis or coping with the loss of a family member, whilst for others it has been the means of meeting and talking with others over a shared arts task. Amongst the services that use the arts regularly is our Children and Families project. ‘The Wizard of Oz’ was the focus of a recent drama workshop for the Easter playscheme. The children made their own costumes and rehearsed and performed a few scenes for Waverley Care staff. The aim of this session was to grow the children’s self-confidence, whilst other workshops focus on more specific issues such as anger management. Anger can be a problem for many of the children who come from backgrounds where family breakdown and parental drug use compound the issue of HIV. The women’s group, ISIS, also features the arts heavily as part of its work. The women have produced a number of textile banners that provide a common task over which to offer one another peer support and explore the many issues that affect them, including stigma and discrimination and social isolation.
The Jenkins family’s story The Jenkins children lost their father a number of years ago to AIDS and their mother recently died as a result of an HIV related illness. Her death was sudden and unexpected and meant that the children had a difficult time coming to terms with their grief and their new family situation of being cared for by their aunt. Waverley Care, having worked with the family for a number of years, arranged for them to come together for one day a week to work with a textile worker. Each child created a textile square to be put together with those of their siblings to create a quilt. They chose to include colours and items that reminded them of their mum and also, as the project moved on, of their dad. With the quilt as the focus of the workshop, it meant that there was no pressure on the children to talk. They felt more relaxed and comfortable enough to discuss their mum and their feelings about life without her. The sessions helped them to grieve together and, as there was a facilitator present, this meant they were without the conflict that the family often experienced. The Arts Project made a real difference by helping the family feel closer to one other and enabling them to create something to help keep their mum’s memory alive.
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Introducing... Mildred Mildred Zimunya is Waverley Care’s African Health Project Worker in Glasgow.
Mildred’s work includes providing support to individuals and families living with HIV and raising awareness of the virus and encouraging testing amongst the African community in Glasgow.
Why did you choose to work for Waverley Care? I had worked in the healthcare sector before and Waverley Care just presented the perfect opportunity that I was looking for. It offered me the challenge to put my public health background experience into developing a project that would fill a gap in African Health Services in Scotland. What message would you give a young person about HIV? I would say to them: “You are tomorrow’s generation and tomorrow’s hope. But today you live surrounded by an epidemic – HIV/ AIDS. Young people have the highest rates of sexually transmitted infection
worldwide so it is important to get information about HIV, read about it, and get involved in activities around you...Why? Because you can make an impact and you can be the lasting change for an HIV-free adult generation to come, by fighting the stigma and prejudices that surround the HIV/AIDS pandemic.” Is there anything that frustrates you about your job? Not being able to offer continued/linked support for HIV positive people who are being deported or returning to Africa, where treatment options are limited or next to none. When not working, what do you spend your time doing? I catch up with family and friends abroad over the phone and net and at weekends I’m out and about with my family. I’m also involved with two churches in my local community area in Paisley. What is your favourite food and drink? Sadza [cooked cornmeal] and roast chicken with green vegetables made the Zimbabwean way. Appletiser is the drink for me. What was the last arts event you attended? Cinema – ‘The Tooth Fairy’ movie – very funny.
Thank you to... The Appletree Trust, BBC Children in Need, Edinburgh Children’s Holiday Fund, Greggs Trust, The Henry Smith Charity, The Hope Trust, Mary Heap Charitable Trust, Moffat Charitable Trust and The Nancie Massey Charitable Trust for their donations. The Bohemians Lyric Opera Company for helping us raise over £1000 from bucketshakes after their performances of ‘Singin’ in the Rain’ at Edinburgh Kings Theatre. Beeslack Community High School, Boroughmuir High School, Carnegie College, Firrhill High School, Greendykes YPC, Linlithgow Academy, Lornshill Academy, Napier Students’ Association, North Edinburgh Drug Advice Centre, St Augustine’s High School, St Christopher’s Church, St John The Evangelist Church and St Peter’s Episcopal Church for their World AIDS Day Donations.
EU Footlights for raising £598 through a benefit performance of ‘Anything Goes’ and bucketshaking. Scotmid for their donation of £500 of vouchers to help us establish a cooking group for service users. The Luvvies for raising £248 through bucketshaking their performances of ‘Love and Human Remains’. The ladies from MAC make-up for providing makeovers for members of our Isis women’s group. Martin Ritchie, Neil Metcalfe, Stuart Hope, Leith Forum Chorus, Edinburgh Music Theatre soloists and Vocal Vibes for leading the singing at ‘La! La! La! Leith!’, our musical theatre event at Pilrig St Paul’s church, held as part of the Leith Festival. Leith Walk was definitely alive to the sound of music!
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Fundraising Round-up It has been a busy time for sponsored events recently with adventurous and active supporters raising funds for Waverley Care. Thank you and a huge well done to Dougal Hawkshaw who raised over £450 in the Chris Hoy Half Marathon, Chrisie Borg who raised almost £200 in the Edinburgh Half Marathon and Gerard Hall for raising £140 as part of Walk for Scotland. Our two relay teams in the Edinburgh Marathon braved the scorching heat to complete the 26.2 mile course and raise much needed funds. Relay regulars the Motley Crew took part in the relay for the third year and raised just over £2000, whilst Adrian Jenkins and his Team raised over £800. Thanks to both teams for their fantastic achievements. Nine daring supporters took part in the Forth Rail Abseil in June and raised over £1600 between them. Congratulations to courageous participants Carolyn Hood, Jayne Mackay, Annemarie Marko, Dave McGregor, Allison Murphy, Rona Nussey, Joey Olsson, Susan Peck and Chair of Waverley Care Trustees, Tom Wood.
[top] Adrian Jenkins and his team after completing the Edinburgh Marathon; [bottom] The Forth Rail Abseil: our nine daring abseilers.
Mozart Requiem
Topping & Butch
Michael Bawtree, Musical Director of Glasgow Chamber Choir and Edinburgh Royal Choral Union, conducted a choir of almost 200 in a performance of Mozart’s Requiem at St Mary’s Cathedral in Glasgow in March.
Award winning comedy duo Topping & Butch took to the stage for Waverley Care in February for a special Valentine’s Night performance.
Thank you to all those who took part as singers, to our soloists, accompanist and volunteers. Over £2000 was raised from the event.
Edinburgh Fringe It’s going to be another busy year for Waverley Care during August at this year’s Edinburgh Festival Fringe. Don’t forget that our regular collections will be going on at the Pleasance Courtyard again this year. If you’d like to put on one of our vibrant green T-shirts and collect at the Pleasance, please phone 0131 556 9710. Check out our Fundraising Diary on page 9 for the details of this year’s festival events. 8 Positive Interest
Accompanied by special guests Maria Tecce and Katrina, ex-Katrina and the Waves, everyone was on their feet at the end of the night singing at the top of their voices to Katrina’s ‘Walking on Sunshine’. Thanks to the performers including backing support, Loud & Proud, and to sponsors Fitlads and Valvona & Crolla.
Fundraising Diary Sunday 8th, 15th, 22nd, 29th August 2010, from 4pm
New Town Bar Sunday Fundraisers Dublin Street, Edinburgh Free entry Tel: 0131 538 7775 Saturday 14th August 2010, 7.30pm
Great Roots Zimbabwe
by Grassroots Zimbabwe Theatre Company Waverley Care Benefit Performance Venue 336 Columcille Centre, Edinburgh Tickets £10/£8/£5 Tel: 0131 226 0000 Tuesday 17th August 2010, 8pm
Ernie Chalmers – In Memoriam We would like to pay tribute to our colleague Ernie Chalmers who sadly passed away unexpectedly in May. Ernie worked at our respite unit, Milestone, since it first opened as a hospice in 1991. Originally a night porter, Ernie became a much loved support worker in 1994. He met his wife Hazel whilst at Milestone and together they became a core part of life in the unit. Our thoughts are with Hazel at this very sad time.
Tartan Ribbon Comedy Benefit Pleasance Grand, Edinburgh Tickets £12 (£10.50 conc) Tel: 0131 556 6550 Saturday 21st August 2010, 6pm
‘Come & Sing’ Choral Classics Conducted by Greg Batsleer Mayfield Salisbury Church, 1A Mayfield Rd, Edinburgh (Rehearsal 10.30am) Audience Tickets £10 (£8 conc) Tel: 0131 556 9710 Tuesday 24th August 2010, 7.30pm
Off the Kerb Comedy Gala 2010 Hosted by Kevin Bridges Festival Theatre, Edinburgh Tickets £25
Tel: 0131 529 6000/0131 226 0000 Saturday 28th August 2010, 8.30pm
The Dunedin Consort and Players Bach’s Mass in B Minor CD recording – Just released! This thrilling recording of Bach’s masterpiece has already gained rave reviews.
‘Surely no other recording of Bach's B Minor Mass bounces along with such joy as this.’ The Times ‘A definitive recording.’ The Observer
Friday 10th September, 7.30pm St Mary’s Metropolitan Cathedral, Edinburgh.
Visit our website (see below) for full details of concerts and how to order any of our award-winning recordings.
Sunday 19th September, 7.30pm St Mary's Parish Church, Haddington
SUPPORTED BY THE
Concert performances Come and hear the Consort perform Bach’s Mass in B Minor live!
www.dunedin-consort.org.uk
Loud & Proud on the Fringe Greyfriars Kirk, Edinburgh Tickets £12 (£9 conc.) Tel: 0131 556 9710 Sunday 5th September 2010
Glasgow Great Scottish Run Choose from the 10km or Half Marathon Sign up and raise funds for Waverley Care Contact Jane, Tel: 0131 556 9710 Sunday 3rd October 2010
Forth Rail Bridge Sponsored Abseil South Queensferry, Edinburgh. Places available now. Tel: 0131 556 9710 to register
Sunday 5th September 2010 Half Marathon and 10k races
Raise funds for Waverley Care and make a positive difference for people living with HIV and Hepatitis C. Contact Jane on 0131 556 9710 for more information.
For more details go to www.waverleycare.org or call 0131 556 9710 or email fund@waverleycare.org
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Supporting Our Work Please consider making a donation towards our work. Title
Forename(s)
Surname
Look out for the following shows on the Fringe from Waverley Care supporters:
Address
Postcode
Email*
Phone
Edinburgh Tonight
With Joe Simmons – cutting edge comedy ‘Guest and Game Show’
I would like to:
thespace@Symposium Hall, Royal College of Surgeons
give a single gift of £25
£50
£100
other £
(please make cheques payable to ‘Waverley Care’ or complete the credit card details below - a £1 fee to cover costs will be added to credit card payments)
Credit Card No.
Expiry Date
give a regular donation
To the manager of
‘Heels over Head in Love’ Musical satire from Michael Topping theSpaces@Surgeons Hall
Topping & Butch – ‘Filth’
/
Surgeons Hall Sundays 15th & 22nd August 22.15 (23.15) (bank)
/
/
Address
Only two performances at this year’s Fringe – don’t miss them!
Postcode
Maria Tecce – ‘Strapless’
Bank Sort Code
Please pay Waverley Care, Royal Bank of Scotland, 61 Forrest Road, Edinburgh EH1 1QP (Sort Code 83-19-09, Account No. 00286995) the sum of
£
With Gift Aid for every £1 you give Waverley Care can get an extra 28p from HM Revenue & Customs at no cost to you ‡
I wish to treat all donations I make to Waverley Care as Gift Aid donations until I notify you otherwise.
Signature
monthly starting on
Account No.
/
/ 20
Date
until further notice.
A smouldering evening of song with international diva, Maria Tecce Assembly@George Street
Full details and tickets for all these shows from the Fringe at: www.edfringe.com Box Office: 0131 226 0000
/
/ 20
Your gift can provide: £25
can provide a Spiritual and Pastoral Care Session to offer spiritual support for an individual, of any faith or no faith, affected by HIV or Hep C.
£50
can Train a Buddy Volunteer. Buddies provide one-to-one support and friendship to people living with HIV or Hep C. Support is much needed as being HIV/Hep C positive commonly brings with it feelings of isolation and depression.
£100 can offer One-to-One Emotional Support for a Child affected by HIV over a four week period. Liaising with parents, social workers and school to ensure the best all-round support for the child.
Please return this form to:
Waverley Care, FREEPOST RSBX-RZUK-EBRZ, 3 Mansfield Place, Edinburgh EH3 6NB * By providing your email address you agree to Waverley Care contacting you by email. Waverley Care will process your personal information for administration purposes, to further our charitable aims and to keep you updated with our work. We will not share your information with any other agencies or organisations. ‡ Waverley Care will claim Gift Aid tax relief of 25p on every £1 you give. For Gift Aid donations made from 6 April 2008 until 5 April 2011, HM Revenue & Customs will also be operating transitional provisions, paying a government supplement of 3p per £1. This means, in total, Waverley Care will receive an additional 28p on every £1 you give. You must pay an amount of UK Income Tax, and/or Capital Gains Tax, at least equal to the tax that we will reclaim on your donations.
Book your 2010 Christmas party or meal with Apex Hotels in Edinburgh or Dundee – and help support Waverley Care! Quote ‘Charity Waverley Care’ when booking and we will receive a £1 donation for each person in your party.
Call: 0845 365 0001 to book now www.apexhotels.co.uk
Christmas Card: Mail Order Form Please return completed form to: Waverley Care, FREEPOST RSBX-RZUK-EBRZ, 3 Mansfield Place, Edinburgh EH3 6NB Your name and address:
Card Title
Delivery Address [if different]:
Sale Price
1 Angel’s Chorus
£3.75/pack 10
2 The Virgin and Child
£3.75/pack 10
3 Decorating the Tree
£3.50/pack 10
4 Midnight Mass
£3.50/pack 10
140mm x 140mm 178mm x 83mm
126mm x 126mm 126mm x 172mm
B B A
B
5 Woolly Hat Team
£3.50/pack 10
6 Festive Forest
£3.25/pack 10
122mm x 170mm 127mm x 127mm
A A
7 Hiding in the snow
£3.25/pack 10
8 Robin and berries
£3.25/pack 10
128mm x 128mm
126mm x 126mm
9 Snowdrops 152mm x 100mm
A
Cost
A A
10 Star over Bethlehem 120mm x 120mm
Qty
B
£3.25/pack 10 £3.25/pack 10
Cards Total
* Order Value under £10: £2.25 Order Value £10 or over: £3.35
Post/Packaging*
A Season’s Greetings B With Best Wishes for Christmas and the New Year
Donation [optional] Total
(please make cheques payable to ‘Waverley Care’ or complete the credit card details below - a £1 fee to cover costs will be added to credit card payments)
Credit Card No.
Expiry Date /
Signature
Scottish Charity No. SC036500
Thank you for your order!
Please tick this box and return this form to Freepost address indicated, if you wish your name REMOVED from the Waverley Care mailing list. We will acknowledge your request for removal in writing (07/10)
Christmas Cards for the early birds
3 Decorating the Tree 126mm x 126mm
A
1 Angel’s Chorus 140mm x 140mm
B
2 The Virgin and Child 178mm x 83mm
B
4 Midnight Mass
5 Woolly Hat Team
6 Festive Forest
126mm x 172mm
122mm x 170mm
127mm x 127mm
B
A
7 Hiding in the snow
8 Robin and berries
128mm x 128mm
126mm x 126mm
A
A
A
9 Snowdrops 152mm x 100mm
Greetings: A - Season’s Greetings
10 Star over Bethlehem 120mm x 120mm
B
B - With Best Wishes for Christmas and the New Year
A