PosAbility – April / May 2019

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MAGAZINE

Nothing is Impossible... Apr/May 2019

SPECIAL OLYMPICS WORLD GAMES 2019

LEGS4AFRICA RECYCLING PROSTHETICS

PAWSITIVE SQUAD A HELPING HAND FROM MAN'S BEST FRIEND

SEVILLE DISCOVER YOUR NEXT DESTINATION

DEAF DANCERS DANCING TO THE BEAT OF THEIR OWN DRUM



SECTION HEADER

WELCOME April/May 2019

Last month saw our Special Olympics GB team bring home a medal haul of 169 medals – 63 of those being gold. An incredible achievement for the dedicated Editor team of 128 athletes who took part in the Special Olympic World Games in Abu Dhabi this year. We have a rundown of the action on page 48.

Ros

We spoke to Sally Darby, founder of online support network Mums Like Us, to discuss the lack of provision for disabled mums. It is hard to believe that in 2019 there are so few products marketed towards disabled mums and such little support readily available for them. Let’s hope that companies start sitting up and taking notice of the needs of disabled mothers.

Editor: Rosalind Tulloch Staff Writers: Colette Carr, Katie Campbell Designer: Fionnlagh Ballantine, Abbie Bunton Marketing: Amie Reilly Sales: Val Speers

CONTRIBUTORS Legs4Africa is a unique charity that is recycling unwanted prosthetic legs by sending them to Africa to offer amputees there a chance to regain their independence. We spoke to Tom Williams, founder of the charity to find out how it all began. Turn to page 60 to read more about their current campaign to get kids to donate their outgrown prosthetics. Our kids section this issue has some great ideas to keep the kids amused over the school holidays, we celebrate the 50th anniversary of the Disabled Photographer’s Society and we have discovered a great beauty product to help disabled people who struggle to put on mascara – a product that is just the start of a range of accessible beauty products. Enjoy the latest issue and as always please don’t hesitate to get in touch with your ideas and stories for the magazine, simply email ros@2apublishing.co.uk.

Jane Hatton, Janet Myers, Sam Renke, Mik Scarlet, Dan White, Rio Woolf

DISCLAIMER

PosAbility Magazine is published by 2A Publishing Limited. The views expressed in PosAbility Magazine are not necessarily the views of the editor or the publisher. Reproduction in part or in whole is strictly prohibited without the explicit written consent of the publisher. Copyright 2019 ©2A Publishing Limited. All Rights Reserved. ISSN 2049-2251

Contact Details: Caledonia House, Evanton Drive, Thornliebank Ind. Est., Glasgow, G46 8JT Tel: 0141 465 2960 Fax: 0141 258 7783 enquiries@2apublishing.co.uk www.posabilitymagazine.co.uk

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Nothing is Impossible... Apr/May 2019

SPECIAL OLYMPICS WORLD GAMES 2019

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Cover image: © Special Olympics International

SEVILLE DISCOVER YOUR NEXT DESTINATION

DEAF DANCERS DANCING TO THE BEAT OF THEIR OWN DRUM

29/03/2019 11:21


APRIL/MAY 2019| ISSUE 48

CONTENTS 17

FEATURES

07 FYI

News, stories and updates from around the world

13 DON’T LOOK BACK IN ANGER Mik Scarlet provides an alternative outlook

15 I’M A BARBIE GIRL

Sam Renke delights at the new toys like her

17 MUM’S THE WORD Meet the Mums Like Us

21 THE PAWSITIVE SQUAD

Meet family dog Pepsi who has inspired a new initiative

24 ON THE LASH

21

We’ve found your new beauty saviour mascara lovers

26 YOU CAN’T STOP THE BEAT Marvel at a troupe of incredible dancers, who just so happen to be Deaf

28 GOLD RUSH

All the news from a record-breaking World Championships for GB Para-cycling

32 SPARGOLAND

Explore the amazing Spargoland, the sensory barbers in Essex

34 HOT STUFF

Must-have products from the disability market-place

38 THE ESSENCE OF SEVILLE

Janet Myers explores the stunning Spanish city of Seville

43 UNDER LOCK AND KEY

Protecting the National Key Scheme that allows disabled people access to disabled toilet facilities throughout the UK

46 POINT AND CLICK

We help celebrate the Disabled Photographers Society’s 50th anniversary

48 THE GOLDEN GAMES: THE SPECIAL OLYMPIC WORLD GAMES

Looking back on a successful World Games for Special Olympics GB

52 ROSEMARY’S LEGACY

We explore the history of the woman who inspired the Special Olympics

55 A FRIEND INDEED

Meet the new app helping you keep track of your MS

56 TALKING IN PICTURES

Have you seen the new disability emoji? #inclusivity

59 KIDS CORNER

This issue, we catch up with columnists Rio and Dan and meet the man who is taking people’s old prosthetic legs and helping people in The Gambia gain independence

75 ON YOUR MARKS, GET SET, RALLY

WIN!

A weekend family break with Calvert Trust Exmoor!

p31

Spinal Track launches UK’s first dedicated Rally Experience for disabled drivers

77 GET THAT DREAM JOB

Jane Hatton talks breaking down barriers

79 PUZZLES

Keeping your mind active


26 26 32

46

38

48

52 35 34

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FYI

FYI

News and stories from around the world

FOR YOUR INFORMATION

NEW SPORTS CLUBS FOR DEAF COMMUNITY

BSL CLASS WELCOMES MORE THAN DOUBLE THE ANTICIPATED CROWD

A Hounslow charity has received funding to open new sports clubs and tournaments for Deaf people across West London. City Bridge Trust, the City of London Corporation’s charitable funder, awarded £63,500 to Brentford FC Community Sports Trust to support more Deaf people into sports. The funding will pay for a coach, who himself is Deaf, to set up new sports activities for Deaf people. New projects will include football coaching at schools, cycling for adults, multisports events in Hounslow and Ealing, and coaching Deaf players through the Football Association’s programmes for children across London. And the charity’s new West London Hub for Sports, which provides information on local Deaf-friendly activities, and runs Deaf awareness courses to increase the number of coaches with basic sign language, will also benefit from the funding. Sports coach Ben Lampert, said: “I am so thankful having the opportunity to work in a sport’s environment.”

Staff arranged a British Sign Language class in Paisley’s Arts Centre and were expecting around 50 people to express interest, but were wowed when they were met with 128 people queuing to sign up. Speaking to the Sunday Post, organiser Emma Armstrong of Renfrewshire Leisure said: “It was the first meeting of the club and we got a real shock when we saw people queuing out the door and along the side of the building. “We had to move everyone into the main theatre auditorium, as there were so many who came along. We were delighted to see all these people were interested in learning sign language.” After receiving funding from Renfrewshire Council to ensure the club can run for another year, attendees pay only £10 for a block of six sessions. The group meets every Monday and lessons are held by Graham Dow who is profoundly Deaf and local theatre company representative David O’Rorke.

“FOR ME, WORKING HERE AND WATCHING THE PROJECT FLOURISH, IS UNDOUBTEDLY MY PROUDEST ACHIEVEMENT.”

 www.posabilitymagazine.co.uk

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NEW INITIATIVE MAKES IKEA FURNITURE MORE ACCESSIBLE IKEA’s easy to assemble flatpack furniture has made the Swedish outlet a worldwide hit, but while the high value, low cost catalogue makes it an easy go-to for those looking to furnish their living space, it can be slightly more awkward for customers with disabilities. IKEA Israel linked up with nonprofit organisations Milbat and Access Israel to combat this for Israeli patrons, developing a series of modifications people can apply to modify and make staple household pieces accessible to all. The scheme, known as ThisAbles, offers objects online as free-of-charge schematics, and can be 3D-printed and installed on IKEA’s most popular items including the Billy bookcase or Karlstad couch. 13 designs have been uploaded and include the EasyHandle which is a big, Rubbermaid-looking grip and the Glass Bumper, a plastic pad that protects the bottom of a glass-doored Billy bookcase from the bump of a wheelchair. The site explains: “We do not guarantee that we will be able to find a solution for every need, but we promise to try.” ThisAbles.com

NEW PARASPORT HUB LAUNCHED Parasport powered by Toyota is a new look website that aims to connect disabled people with more opportunities to get active than ever before. It is being backed by GB’s golden boy of disability sport, Jonnie Peacock. Launched with a new TV advert called It’s Anyone’s Game, which focuses the dramatic spotlight of sports ads onto an everyday cast of people with different impairments, it is hoped that it will empower disabled people to getting involved in a range of physical activities. For those with visual impairments, an audio described version of the advert is also available, narrated by The Last Leg’s Alex Brooker in his own unique style (this is our preferred version). The campaign will also target the family and friends who can play a vital role in supporting disabled people to

take part in more physical activity. Jonnie Peacock commented: “I wanted to be part of this campaign as sport and physical activity has transformed my life in so many ways, providing countless great memories, friendships and filling me with the confidence to try new things – even dancing! “There is a sport or activity out there for everyone, no matter their age, gender or impairment – it doesn’t matter whether you are competitive or not. My message to everyone is if you just turn up and have a go, you are already a winner.” parasport.org.uk

APPLICATIONS FOR CALVERT TRUST RETREAT 2019 ARE OPEN

Images: ThisAbles

Applications are now open for

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amputees to apply for a place at Calvert Trust Lake District’s retreat on Friday 6 to Monday 9 September 2019. There are 24 fully funded places available through the Amputation Foundation and priority will be given to those who have not attended before. This includes accommodation, all activities and all meals. A £100 fully refundable deposit will be required and this will be returned on attendance at Calvert. You only have to arrange to get to and from Calvert.

APPLY

To apply for a space, email AF.events@ amputationfoundation. org, the closing date is 31 May.


MARATHON FIRST AS MAN COMPLETES WITH THREE GUIDE DOGS

FYI FYI

A man made history as he became the first person to complete the New York Half Marathon with the help of three guide dogs. Thomas Panek who founded the Running Guides programme which trains dogs to support runners in 2015, ran the half marathon with three furry friends, Westley, Waffle and his own guide dog Gus who each supported him through a third of the race. Finishing in two hours and 21 minutes, he told CNN “The bond is really important. You can’t just pick up the harness and go for a run with these dogs. “You’re training with a team no matter what kind of athlete you are, and you want to spend time together in that training camp,” he added. All three dogs competed wearing special harnesses and boots to protect their paws, with Westley beginning the race before Waffle took over for the middle third, with Gus crossing the line with his owner Thomas, retiring from his guide duties following the race. Thomas told CNN, “It’s a little emotional for me because he’s been there with me the whole time.”

“IT’S A LITTLE EMOTIONAL FOR ME BECAUSE HE’S BEEN THERE WITH ME THE WHOLE TIME.”

DATING AGENCY GIVEN BOOST TO REACH GREATER MANCHESTER An agency has been awarded thousands of pounds in funding to support their dating and friendship agency for people with learning disabilities in the Greater Manchester area. Meet N Match celebrated a £182,681 National Lottery grant to help their quest to give people with learning disabilities and autism a means to meeting new people. Meet N Match provide support for the first three dates, assisting people to make the arrangements, with the initial meeting chaperoned. Up and running in Lancashire since 2016, it has helped 750 people who have attended Meet N Match events.

WWW.POSABILITYMAGAZINE.CO.UK

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FYI

Photo: Instagram/Selmablair

SELMA BLAIR SHINES AT THE OSCARS “I HAVE #MULTIPLESCLEROSIS. I AM IN AN EXACERBATION. BY THE GRACE OF THE LORD, AND WILL POWER AND THE UNDERSTANDING PRODUCERS AT NETFLIX, I HAVE A JOB. A WONDERFUL JOB. I AM DISABLED.”

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Actor Selma Blair made her first red carpet appearance after her MS diagnosis and marked the occasion by rocking a cane for the world and paparazzi to see, in a move that’s been widely hailed for destigmatising the need for a cane. Posting on Instagram after the star-studded bash, she explained her cane was custom made with a stitched monogram and a pink diamond, writing: “I wanted a special cane for #vanityfair dinner. So... @ lyon_hearted went out and found patent leather and @bic_owen and he stitched it on. Hours of love put

in. And then #tombachick made it especially magical. I burst into tears. These gifts to get me through”. The 46-year-old announced her diagnosis on Instagram last October, with the Cruel Intentions actor stating, “I have #multiplesclerosis. I am in an exacerbation. By the grace of the Lord, and will power and the understanding producers at Netflix, I have a job. A wonderful job. I am disabled. I fall sometimes. I drop things. My memory is foggy. And my left side is asking for directions from a broken GPS,” she wrote. “But we are doing it.”


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COLUMNIST Mik Scarlet

Follow Mik on Twitter

@MikScarlet

DON’T LOOK BACK IN ANGER

A

s I get older I am finding I can look back at the past and see how far we’ve come as disabled people. It can be too easy to fall into the trap of seeing all the bad news stories and streams of social media that focuses on awful experiences and despairing. Luckily my everincreasing age is giving me a longer yard stick to measure daily life today and it’s giving me some perspective. I was born disabled, but was a member of the walking wounded, as my dad called it. Being able to walk, even with a profound limp, didn’t mean I didn’t experience exclusion though. My mum and dad had to fight to get me into a mainstream school, because back then all disabled children were sent to a ‘special school’. We moved across my home town just so I could be given a chance at a ‘normal’ education. Luckily the new house was a bungalow, because at the age of 15 I became a full-time wheelchair user following a spinal collapse, a side effect of my original illness as a baby. After nine months of surgery and hospital stays my parents were told I should now go into care. This was standard procedure for disabled people apparently. My mum fought to have me home, and paid for adaptations to our home so I could return. I soon discovered that becoming a wheelchair user shrunk my world to almost nothing. Before, I would make regular trips to London, shopping, going to gigs and attempting to talk to girls, as any teenager does. Once I was a wheelchair user all of this was impossible. In my home town I could only go out if my dad took me in the car. In London no public

transport was accessible, not even black cabs. I was trapped in a world which was as big as I could wheel. As a newbie, this was not very far at all. In town most things were not accessible. No cinema, no youth club, nothing. Luckily my school had put in a lift, so I sat my exams, and I then went on to sixth form. I couldn’t go to university though. No university would accept me due to the care needs I had at this time. So I tried to find work. After two failed attempts, I was put on benefits and told I was unemployable. On top of all this, my whole family and I felt I would never find love and would probably live at home with my

“I have seen the city

change from one that excluded me, slowly into one that is becoming more and more open to me. ”

mum and dad forever. By the age of 19, I was on the scrap heap, in a world almost totally closed to me. Fast forward 34 years, and today I live in a very different world with a very different life from what was expected for me. One where I am working, and have had an amazing career lasting over 30 years, I am very happily married to the wonderful Diane and live in the heart of thriving Camden in London. Yes I now live in the city I found it impossible to visit as a new wheelchair user. I have seen the city change from one that excluded me, slowly into one that is becoming more and more open to me. Once disabled

people weren’t really welcome, but now so much is opening up. A perfect example of this is the city’s public transport network. When I first moved here in the early 90s, it was still as bad as it had been in the early 80s. Nothing had changed, not even the black cabs. You either drove or stayed within your local area. I had a car so the city was open to me, but still so many places I wanted to visit were not. Recently I attended Access All Areas, an event at the Excel Centre run by Transport For London, highlighting the steps forward in accessibility through London’s transport system. From a network that was totally inaccessible in my 30s, I travelled there totally using public transport in my 50s. Another major element of the exhibition was to engage with disabled people. That’s probably the biggest move forward I have noticed. For so long disabled people had things done for them. We saw well-intentioned mistake after well-intentioned mistake made “for our own good”, while we were left out of the loop. That’s finally changing. Our society is finally waking up to the fact that the best experts in what disabled people need are disabled people. They realise that we know what we need and as well as giving us that it will save them from making any more expensive mistakes. They’re even willing to pay us for that knowledge too! I know, shock horror eh? We’ve got a way to go. A long way. It looks to me that finally our voices are being heard and valued. So get involved. Start being vocal about what’s going on in your area. Because you may find that everything you experienced before is changing. It may finally be time that people listen.

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COLUMNIST Sam Renke

Our favourite teacher-turnedactress, Sam Renke, brings you her take on life and the colourful experiences it throws her way.

“With 777,000 children living in the UK with disabilities and an estimated 150 million worldwide, why has it taken until now for brands to open their eyes and produce inclusive toys?”

You can follow Sam on @samrenke

IʼM A BARBIE GIRL!

I

have to admit I became very excited when I heard the news that Mattel as part of their Barbie for the next generation initiative had launched a new range of dolls including a wheelchair user and a Barbie with a prosthetic leg, along with Barbies with different skin tones, body shapes and braided hairstyles. The new additions aim to help normalise disability and they are a direct response to what customers have said that they want. Even at the age of 33 I can’t wait to get my hands on one of these Barbies and I am already formulating a convincing lie to tell people as to why I have just purchased a Barbie at my age. ”Its for my nieces, obviously,” I’ll say. Growing up being a full-time wheelchair user and an absolute girlie girl, I would have loved to have had a doll that looked like me. The best I could find was a Playmobil set that replicated a hospital and it had a wheelchair for the ‘patient’ doll who had a broken leg. Nothing glamorous or inspiring about that! Amidst my excitement I did however think, well about bloody time! With 777,000 children living in the UK with disabilities and an estimated 150 million worldwide, why has it taken until now for brands to open their eyes and produce inclusive toys? We are all aware in the disabled community of the power of authentic

and positive representation, particularly on young minds, and we are also very aware of the strength of the Purple Pound. However, are these the reasons behind big brands such as Mattel becoming more inclusive, do they really care about the consumer, or are they just jumping on the band wagon of today’s zeitgeist of inclusion and diversity? Does it even matter if they are? Should we, the disabled community, simply not question their motives and just say don’t look a gift horse in the mouth? One thing I will certainly give Mattel credit for is doing their homework as they actually worked with wheelchair experts and the UCLA Mattel Children’s Hospital. The company also worked with 12-year-old Jordan Reeves and her doctor to create a doll with a removable prosthetic limb. Rather refreshing as the disabled community is so often subjected to many ‘accessible and inclusive’ initiatives that have clearly been designed by a non-disabled person or have not had any input whatsoever from anyone remotely disabled. If you, like me, are still a little dubious of big companies trying to make big bucks out of our right to be treated as equals and want to support a non-profit organisation that wholeheartedly understand the importance of inclusive toys for all children disabled or not, then I suggest you check out ToyLikeMe.org who are certainly showing companies exactly how inclusion should be done.

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MUM’S THE WORD Words by Rosalind Tulloch

Falling pregnant is an experience like no other, a moment filled with utter joy and excitement and equally peppered with fear and anxiety. Who knew that such a rollercoaster of emotion could begin by peeing on a stick and crying at the appearance of those coveted two lines?

Sally Darby and her kids Alice, 6 and Lucy, 2

E

very mother embarks on this journey into the beginnings of parenthood with an ethereal glow (or it might be morning sickness, which is not actually confined to mornings), an anticipation of the wonderful things to come and an unrivalled excitement around choosing prams, cots, bouncers, playmats, bottles and everything else that is required for a newborn baby. Most mothers revel in the thought of going to shop for prams, it can be an overwhelming experience as the choice is vast, however, if you are disabled your choice of prams and buggies is not only diminished, it is practically non-existent. Options for disabled mums are few and far between. A cursory search of the internet will bring up articles and top ten lists from 2012 of products for disabled parents – most of which describe ways to repurpose products that are marketed towards non-disabled parents. More often nowadays you will discover amazing concept designs that are still in a prototype stage, they pop up on your social media feed constantly, offering hope that someone might actually be making a practical and life-changing product that will transform your life as a disabled mother – but just as quickly the hype around that product disappears and nothing ever transpires. Delve a little deeper and you discover that not only are there next to no products created or marketed towards disabled parents, but there are also almost zero support groups out there. Something that all mothers need when traversing the rocky road of motherhood, no matter what their abilities.

www.posabilitymagazine.co.uk

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MUMS LIKE US My search did uncover one small beam of light as I stumbled across Mums Like Us, a support network started by a disabled mum and created to offer a safe space for disabled mums to share experiences, talk openly about their challenges and generally be a support to other disabled mums. Sally Darby is mum to six-year-old Alice and two-year-old Lucy. She became severely visually impaired in 2008 and was diagnosed with MS in 2010. She created Mums Like Us because she was fed up of complaining that there were no support groups out there for disabled mums. Here Sally shares her own experience of her journey into motherhood. “Six months after I had her [Alice] I had quite a bad relapse and suddenly became more visibly disabled, it affected my balance, my walking, I started using a walking stick and things like that. “I became very aware of what I thought other people thought of the fact that I was a disabled mum and I became very conscious of myself as a disabled mum. I was really self-conscious, I was really nervy about it, I was not coping

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with it very well at all and I just felt like the only person in the world in this situation – at the time I felt like there weren’t any disabled mums in the world, let alone my town! “It wasn’t until after I had my second in 2016 – I use a walking stick all the time and sometimes a scooter now - so things had moved on quite a lot and I was still looking for some sort of community and support network, because although I have lots of really good friends and family, they didn’t really get it, they didn’t get my experience as a disabled mum. “So that’s when I set up Mums Like Us. I went to the Women of the World festival in London and I went to a session on disability and activism and at the end of the session I asked a question of whether or not anyone knew of anything that was out there to help disabled parents and it seemed to be no. I think there are a few little groups and things like that, but there had been things and they had funding cuts and weren’t in existence anymore and I felt at that point that I could either go on home and carry on moaning about it or I could try and set something up – so that’s when I started Mums Like Us.”


MUMS LIKE US

SUPPORT NETWORK The Mums Like Us site states unashamedly: “We are a supportive and friendly network for disabled mothers and those who care. Our aim is to open the conversation about disability and motherhood. Get involved if you are a disabled mum, know a disabled mum, like disabled mums, like mums or like people. This is a space we can say, “this is sh*t,” but also, “this is amazing,” without fear of judgement. There is also a Facebook group, which is only open to disabled mothers.” Here you will also find a list of products that may be helpful to mothers with a variety of different impairments, interviews with mums, a blog touching on issues raised from the Mums Like Us community and the Facebook Group offers a private space where you can discuss anything from practical issues to sleep problems, or to simply vent your mummy rage when your kids won’t eat off blue plates and demand a specific fork to eat dinner with, instructions that - if you choose not to follow – will result in you spending the rest of the evening wiping their dinner off the cupboard doors, floor and ceiling. Sometimes it is just nice to know others are going through the same thing as you. When asked about the most common issues raised in the MLU community Sally explained: “Practicalities I think are still a massive deal, but I think even more than that people talk about social stigma and feeling isolated and feeling judged and the comments that people get when they are out with their kids, I think that would be the primary thing, that is what I hear more than anything. “Even from people going to their doctors to tell them they are pregnant and the doctor looking really shocked, like ‘how can you be pregnant?’. Constantly feeling like they have to justify themselves and explain themselves, but also the practicalities and the fact that just nothing is marketed to disabled parents, it’s just this whole world that no one seems to even accept exists.”

Sally also spoke about the difficulty that disabled mothers have in finding baby and toddler groups to join, the problems accessing local softplays and even problems with inaccessible schools. “Well so many of these things [groups] you have to sit on the floor for and that in itself, if you can’t sit on the floor, you are already made to feel different and that can be really intimidating. I have been to baby groups with two flights of stairs to get there, which is ridiculous. So a lot of those places aren’t accessible and even schools – my eldest is in school now and even the school is not great and they have sports day where you are expected to take a blanket and sit on the floor. It’s not in the ethos of many organisations I don’t think. Once you point it out to someone they are more likely to try to make an effort but you feel like a novelty rather than included in the makeup of whatever that organisation might be.” It is clear that society need to do more to alleviate the challenges that face disabled mothers. There is a huge gap in the market for major product manufacturers to start consulting with disabled mothers to ensure they are catering for all mums. Whether it be an adaptation to allow a wheelchair user to push a pram or carry a car seat safely, or simply marketing great products already in production towards disabled mums because they could transform their experiences as a mother. Disabled mums appear to be missing from the landscape of motherhood, more inclusive thinking and marketing could vastly improve the lives of so many. Until that happens, we hope that groups like Mums Like Us can provide support and that when your newborn baby is waking every hour on the hour through the night, that you will take comfort in the knowledge that there are others doing the very same thing with eyes as bleary and tired as yours. Motherhood is a wonderful and challenging journey, let’s hope the future will bring innovative products and inclusive thinking. Visit mumslikeus.org or join their Facebook group by searching ‘Mums Like Us’.

“Get involved if you are a disabled mum, know a disabled mum, like disabled mums, like mums or like people. This is a space we can say, “this is sh*t,” but also, “this is amazing,” without fear of judgement.”

“It is clear that society need to do more to alleviate the challenges that face disabled mothers”

www.posabilitymagazine.co.uk

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MOTABILITY Fuel economy and CO2 results for the Mitsubishi Range (excluding Outlander PHEV) Mpg (l/100km) (combined): 32.5 – 55.4 (8.7 – 5.1) CO2 emissions: 171 - 107 g/km*

Fuel economy and CO2 results for the Outlander PHEV Mpg (l/100km) (weighted combined): 139.7 (2.0) Electric energy consumption (weighted combined): 3.86 miles/kWh CO2 emissions (weighted): 40 g/km* Equivalent all-electric range: 28 miles

The Motability Contract Hire Scheme is administered by Motability Operations PLC (Registered Company No. 1373876), City Gate House, 22 Southwark Bridge Road, London, SE1 9HB. To qualify you must be in receipt of the Higher Rate Mobility Component of the Disability Living Allowance, the Enhanced Rate of the Mobility Component of the Personal Independence Payment, War Pensioners’ Mobility Supplement or the Armed Forces Independence Payment which will be taken in lieu of the four weekly rental. Models shown are the Outlander Petrol Juro CVT, Mirage 3 petrol manual, Eclipse Cross 2 petrol manual and Outlander PHEV Juro. Terms and Conditions apply. Please ask the dealer for full details. Rentals valid for applications placed between 1st April and 30th June 2019. 1. Please note that Mitsubishi cannot guarantee compatibility with all mobile phones and Bluetooth devices with the handsfree system fitted to this vehicle. Please check with the mobile phone manufacturer for further information on compatibility. Fuel consumption, CO2 and electric range figures shown are for comparability purposes. Outlander PHEV fuel consumption and CO2 figures shown were obtained using a combination of battery power and fuel. The Outlander PHEV is a plug-in hybrid vehicle requiring mains electricity for charging. Only compare fuel consumption, CO2 and electric range figures with other cars tested to the same technical procedures. These figures may not reflect real life driving results, which will depend upon a number of factors including, accessories fitted (post-registration), variations in weather, driving styles and vehicle load. *There is a new test used for fuel consumption and CO2 figures. The CO2 figures shown however, are based on the outgoing test cycle and will be used to calculate vehicle tax on first registration.


ASSISTANCE PETS

THE

PAWSITIVE SQUAD Words by Colette Carr

Dogs are known universally to be man’s best friend – but they are so much more than that, as proven by a brilliant black beauty Pepsi, who helps take care of her smallest friend Izzy.

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epsi supports Izzy and her mum Heather Pyne in a number of day-to-day tasks. Two-year-old Izzy Pyne, from Nottingham, was born 16 weeks premature and cannot crawl, walk or talk, but with the help of Heather and Pepsi, is becoming more independent and supported in daily life after Heather trained Pepsi to help with daily tasks. And thanks to the success of the training in her own household, Heather set up Pawsitive Squad - a community interest company in Nottingham which supports disabled young people with assistance dogs. The community interest company is not-for-profit, and its website declares, “We offer a variety of services for young people with disabilities or who are recovering from trauma, individual dog owners and companies. Any profits from services are invested into our services for young people with disabilities or who are recovering from trauma.” Using a band of therapy dog teams, therapy dog supervisors, research students and volunteers, the initiative has grown from strength to strength after its inception in July 2018.

“I was working as an obedience and home disability supportive dog trainer, in task training for people with disabilities and no public access work part time as a sole trader. Pepsi was my assistance dog at the time,” Heather began. “They were great together as soon as Izzy came home from hospital at around six months old. It was reassuring that they were safe together and that she would be careful and until we started alert training her role was essentially the same as always. She was a great emotional support to me during the early months with Izzy but little else - it’s the tasks that made us feel reassured and more like a normal family who could go out without constant panic,” the mother explained. Pepsi is as much part of the fabric of their family setting as any human would be, and even pulls more weight than some of her two-legged counterparts in other households may. Supporting Izzy, who was born at less than 500g, and her parents, the clever girl is so much more than a furry friend.

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“She helps with physio exercises, medical alert, deep pressure if upset, removing clothes and blankets, recalling to a touch button for Izzy to use independently, passing toys back to her when she drops them, although that one we are still perfecting!” she confessed. Pepsi is a Labrador cross who had been part of Heather’s family for a year before Izzy came along, and when asked if she thought it would grow to this stage as a complete project, she admitted she had confidence in its potential from the off. “Honestly I did. Pepsi has a lot of potential and drive to learn and Izzy interacts so nicely with her,” she said of the relationship between the pair. “Izzy is drawn to dogs in general but what amazed me actually was Izzy’s ability to work with her. It’s taken a lot of time and patience for Izzy to ask Pepsi to do things, using hand movements and vocalisation, but although there is a long way to go, she’s getting the hang of it which I didn’t think would be possible. I feel we are just at the start of what they can do and I’m always excited to see how far things can grow. It’s just about being creative and finding new ways they can work together,” she enthused of the future. pawsitivesquad.co.uk

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10% Revitalising holidays off* for disabled people and carers Accessible excursions Live entertainment Wide range of activities 24h on-call nurse-led care Fully accessible facilities Full-board included Financial support available†

Enjoy the comfort of our three accessible holiday centres: Jubilee Lodge, Chigwell, Essex Netley Waterside, Southampton Sandpipers, Southport

Quote POS94* to get 10% off your Revitalise holiday

Call 0303 303 0145 Email bookings@revitalise.org.uk Visit revitalise.org.uk

*Please contact our friendly holiday advisors for full terms and conditions. †Subject to eligibility. Registered charity number: 295072.

PLEASE SEND ME MY FREE REVITALISE HOLIDAY BROCHURE Please complete the form below with your details and return in an envelope to: Freepost REVITALISE HOLIDAYS (No stamp or any other address details are required) NAME: LE191

ADDRESS:

We would like to continue sending you our latest brochures, let you know about offers you’re eligible for, and ask for your feedback:

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TEL NO: EMAIL: POS94


ON THE

THE THREE MAGIC WANDS

Words by Colette Carr

New beauty brand Grace Beauty is creating products for disabled people

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luttery eyelashes aren’t just a fun and flirty part of makeup. They open up your eyes, can make you feel brighter and more confident and they say the eyes give away everything. Some people with disabilities can have difficulties safely or cleanly applying their mascara, and new brand Grace Beauty are aiming to tackle that head on. “Anyone, regardless of ability, should be able to use any beauty product they want to,” reads their brand-new website. “To help this cause, we’re making accessories for people with disabilities. Starting with mascara, we created add-ons for better grip, control and safety.” Their mission is to curate a community that can share beauty ideas among people with disabilities like arthritis and cerebral palsy and offer a movement that provides practical solutions and advice. And soon, they will be launching their first three makeup power tools to help disabled people apply mascara. The three options provide a means to apply mascara for people with varying levels of dexterity or tremors and are compatible with any mascara wand – simply slip it over the handle of the wand and stroke the mascara on. They can be cleaned easily and reused for years so at just £8, it is an absolute snip considering the price of some mascaras on the market. On the community side, users can sign up to join a private Facebook group or their online community which encourages members to offer feedback on products, tips and tricks and support for each other. Grace Beauty is hoping to develop further products down the line, but for now, you can pre-order their first three products or keep your eyes peeled for the drop! withgracebeauty.com

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THE RING GRIP Grace Beauty wrote on Instagram: “The Ring Grip was created as a general aid for anyone. When attached you don’t have to hold as hard, nor worry about losing your grip or picking up the mascara from the floor. The rubberband will tightly connect to most mascaras on the market while the ring will be big enough for even the biggest fingers.”

THE SQUARE GRIP “The Square Grip attaches to both sides of your mascara to make it easy to open, hold and control in a discrete package. Simple, minimal and with a rubbery feeling that will ensure a better grip. What do you think of it?”

Images: Grace Beauty


MAKEUP

THE SAFE GRIP Grace Beauty wrote on Instagram: “The Safe Grip is easy to hold, gives a wide angled grip and ensures better control for all kinds of users. Material is rubbery, flexible but hard which will ensure a grip even though the fingers can’t wrap fully around the grip. This product we’re especially interested to hear your opinion on!”

THE COMMENTS SECTION @lovefromkelsey – I just started crying when I saw this. Guess I didn’t realize how important this was to me until I saw it existed. @grace_blasko – I DON’T THINK ANYONE REALLY UNDERSTANDS HOW MUCH I NEED THIS. I HAVE PERMANENT TREMORS AND PUTTING ON MASCARA IS LITERALLY IMPOSSIBLE FOR ME. @darlingimguilty – This is honestly such a game changer. I work in an office, type all day, and hold my phone up - my hand HURTS. Mascara wand with a ring to hold?? I’ll take twenty. @DejaBru_ – This makes my heart warm.

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CANʼT STOP THE

BEAT YOU

Words by Colette Carr

The musicality of dance is important but musicality isn’t just sweeping melodies and beat sequences lingering in the airwaves.

Image: BBC

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ance is movement and a sense of hearing is not necessarily required, proved to no end by a wonderful population of dancers with hearing impairments. While music can help dictate the flow of movement, it’s the beat that is in the driver’s seat. Here are some Deaf dancers that march to their own beat.

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CHRIS FONSECA Smooth as they come, Deaf street dancer Chris Fonseca has created a name for himself, with his exploits on BBC dance show The Greatest Dancer launching him into the spotlight even further. He wowed the live arena audience with his routine to Drake’s God’s Plan and sailed through to the second round, using his hearing aid and the beat to keep in time with the routine. The dancer has also featured on advertising campaigns including one for Smirnoff vodka, and he also works as a choreographer, using the visuals to create masterful dances to the music. His motto is, “Hearing is optional. Moving is not.”

Image: BBC

HOUSE OF KRIP Vogue isn’t just a Madonna classic it’s one of the most influential cultural phenomenons to have given people a form of self-expression and identity. A product of the 1980s, voguing is a highly stylized, modern house dance evolving from the 1960s Harlem ballroom scene incorporating dance and high fashion posing. A safe space for African American and Latino drag queens and members of the LGBTQ+ community to perform, the balls grew in popularity over the years for their outlandish style, visual stimulants and musical soundtracks. The circuit sees Houses compete, and the UK’s first Deaf House, House of Krip are redefining the scene altogether. The troupe adapt rhythm to merge seamlessly with British Sign Language, with the expressive language lending itself well to Voguing and won Best House in their second ever ball.


DANCE

“It’s not that I can’t hear the music playing, I can hear the music playing, but it’s the finer details in the music like the nuances and when to start counting. So, if there’s a beat then I can hear there’s a very nice beat to it, but I wouldn’t exactly know when to start counting five, six, seven, eight.”

Simone Botha Welgemoed, South African professional ballerina and model

Image: Hans Bernhard

ANTOINE HUNTER Deaf dancer and choreographer Antoine Hunter is the founding artistic director of the Urban Jazz Dance Company in San Francisco, which teaches ballet, jazz, hip-hop, and African, as well as including sign language. He also produces the Bay Area International Deaf Dance Festival and is celebrated in the States as a champion of Deaf dancers.

SIMONE BOTHA WELGEMOED South African professional ballerina and model Simone Botha Welgemoed has been dancing since she was only two years old and the Cape Townbased dancer shot to prominence after criticising Virgin Active for editing her cochlear implant out in their ad campaign, prompting a public outcry and apology from Virgin. The setback didn’t stop her career though as she moved from strength to strength. She told Siyaflo: “It’s not that I can’t hear the music playing, I can hear the music playing, but it’s the finer details in the music like the nuances and when to start counting. So, if there’s a beat then I can hear there’s a very nice beat to it, but I wouldn’t exactly know when to start counting five, six, seven, eight.”

ANTOÑITA SINGLA Born in 1948 in Barcelona, Antoñita Singla learned rumba, fandango, bulerías and flamenco, picking up rhythm after watching her mother clap. Her dance career kicked off at the tender age of 12 dancing in Barcelona’s taverns, before taking on huge European cities and venues including the Olympia in Paris. The dancer and actor went by her stage name Antoñita La Singla or La Singla and has a flamenco tablao in Barcelona named La Singla after her, which was opened by her brother and his partner in 2017.

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GOLD RUSH Britain’s Para-cycling team created history as a phenomenal final day double gold rocketed their medal tally to their best ever of 20 at the Para-cycling Track World Championships.

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n the WB sprint final, Sophie Thornhill and Helen Scott won their second gold in the Netherlands bringing the curtain down on the Championships with a win. The Brits brought home a total of 20 medals with ten golds. Decorated Paralympian Sarah Storey held onto her WC5 3km individual pursuit championship and claimed first in the scratch race, while defending champion Neil Fachie alongside pilot Matt Rotherham went out in the second round, but won the men’s B sprint final gold, with Ball and Mitchell taking silver. The duo did however grab gold in the MB 1km time trial. Storey’s victory took her tally of world championships up to a phenomenal 14.

Jody Cundy, Jon-Allan Butterworth and Louis Rolfe finished second to China in the team sprint, having qualified fastest but were pipped to first by an agonising 0.2 seconds. Britain’s William Bjergfelt won silver in the MC5 scratch race and Jon Gildea won the MC5 omnium but left without a medal due to its test event status. The tally of ten golds, nine silver and one bronze in Apeldoorn saw the Brits head home with a

record medal tally, something pleasing those at British Cycling. The BBC reported that Jon Pett, head of Para-cycling for British Cycling, said: “I think the strength of Para-cycling really has been on display here. “There have been a lot of the faces that we’ve come to know over the last few years. But we’ve also seen some new riders and performances that are really taking things beyond where they’ve been.”

“Storey’s victory took her tally of world championships up to a phenomenal 14”

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Images: OnEdition


nhgsales.com

Planning CGI for illustrative purposes only.


ADVANCED TECHNOLOGY TO KEEP YOU ON THE MOVE

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SECTION HEADER COMPETITION

WIN!

A Weekend Family Break at Calvert Trust Exmoor!

Calvert Trust Exmoor have teamed up with PosAbility to offer one lucky family of four the chance to win a fully inclusive weekend break.

ABOUT CALVERT TRUST EXMOOR Calvert Trust Exmoor is a unique, award-winning activity centre where people with disabilities can enjoy exciting, challenging and enjoyable outdoor activity holidays together with their families and friends. Specialist equipment and accessible facilities enable the whole family to enjoy adventure activities together, regardless of ability or age. At Calvert Trust Exmoor, the only five-star activity accommodation in England, it’s what you can do that counts. Calvert Trust Exmoor want families to enjoy a holiday that is fun, hassle-free and filled with shared memories. Their family adventure breaks are a great opportunity to meet new people and share experiences in a safe and supportive environment. They try to match families and guests of similar ability or needs, to make activity groups of up to ten people. A multi-qualified Activities Instructor is allocated to your group for the duration of your stay and will lead you through a range of adventure sports like climbing, archery, horse riding and canoeing.

Set in 40 acres of beautiful countryside on the edge of Exmoor National Park and only fifteen minutes from the North Devon coast, Calvert Trust Exmoor’s idyllic location offers you the best of both worlds. With exclusive access to Wistlandpound Reservoir for water sports, all activities and everything you need is together on one fully-accessible site, giving you more time to enjoy yourselves. The accommodation is National Accessible Scheme accredited, and consists of en-suite single, twin and triple bedrooms. The centre can also supply hoists, shower chairs, electric beds, trembler pads, and other loan equipment to make your stay more comfortable whatever your needs. Your family break will include a full programme of activities, fivestar accommodation, all meals, evening entertainment, and use of all on-site facilities including a swimming pool. It really is inclusive in every sense of the word. For more information call 01598 763 221 or visit calvertexmoor.org.uk.

Terms and conditions The prize consists of a weekend break for a family of 4, fully inclusive of all accommodation, catering, activities and evening entertainment. The prize is for 3 nights to be taken from Friday to Monday. The prize must be taken before 31st November 2019. Booking is subject to availability. Transport costs are the responsibility of the winner. This prize is not transferable nor can any cash alternative be offered. Closing date for entries is 31 May 2019. Only one entry per household.

If you would like to be in with the chance of winning this great prize, simply answer the following question correctly: What park is Calvert Trust Exmoor set next to?

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2

3

Dartmoor National Park Peak District National Park Exmoor National Park

ü PLEASE TICK ONE OF THE ABOVE

Email your selection and contact details to posabilitycompetitions@gmail.com, visit posabilitymagazine.co.uk to enter online or post to the address below: Calvert Trust Exmoor Competition PosAbility Magazine Caledonia House Thornliebank Ind. Est. Glasgow, G46 8JT

Name: Address: Postcode: Tel: Email: ü

Calvert Trust Exmoor would like to send you more information about their holidays. If you would like to receive this please tick the box. By ticking the box you are consenting to us providing your details to Calvert Trust Exmoor.

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Please tick box to accept the Terms & Conditions

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SPARGO AND UNDERSTANDING WITH STYLE Words by Colette Carr

A lot of us don’t like getting our hair cut. Neurotypical people can find the intimate practice a bit too much, but for some disabled people, the sensory overload can be completely distressing. Enter sensory salon Spargoland.

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he salon in Essex caters to all disabilities to ensure clients enjoy a safe, stimulating and empowering experience of getting their hair cut. Managing director Ian Marshall has over a decade of experience in the industry, but while he travelled far and wide, he never came across a salon that facilitated those with specific needs. Inspired by his nephew, he began his campaign to build his vision. We chatted to the team to get a feel of what makes the cut at Spargoland. When was the concept of the sensory salon created and why? When Ian’s nephew Oscar was born with brain damage and cerebral palsy, he entered a world of learning the challenges Oscar faced. Having your hair cut is a huge sensory overload and the need to work quickly is key! Cutting hair can change the way you feel about yourself, and no more so than with our clients who face other challenges. Ian was inspired by Oscar, and his love of the hair industry, so his aspirations developed into creating a hairdressing salon specifically for people with all forms of disabilities; somewhere they can feel safe and with staff they can trust. After years of research, Ian was heartbroken to find out no one in the country offers such a service and so his dreams began.

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SENSORY BARBERS What is on offer for customers of all ages? Spargoland is tailored to meet the needs of both children and adults with different forms of disabilities. We’ve built a sensory area, developed creative lighting and made a safe and secure surrounding that gives customers the flexibility to have their hair cut in a way that is unique to them. We have no age or disability restrictions.

What measures do you take to create the whole experience and make it as comfortable and as enjoyable as possible? At Spargoland, we understand for many of our clients, the process of having a haircut doesn’t begin and end the minute you enter the salon. As such, we have developed a purpose-built private salon to make this everyday event as simple as it can be. We have low sensory lighting, a play area to stimulate clients, and relaxing music tailored to suit each individual’s requirements to ensure our clients receive the Spargoland experience they deserve. We have wheelchair access into the salon, with a drop-off point directly outside the entrance. We’ll endeavour to make the experience a memorable one. Our team can adapt to whatever their client needs - whether it’s a wet cut on the floor, or a chance to play and get to know each other before the haircut. We really work hard to make our clients feel safe and secure. Our Spargoland family is one we are exceptionally proud of. We offer a one to one service and a great cuppa.

“Having your hair cut is a huge sensory overload and the need to work quickly is key! Cutting hair can change the way you feel about yourself, and no more so than with our clients who face other challenges.”

Are there any plans in the pipeline? We continue to make a difference to so many families far and wide. We are always looking for financial support and fundraising events to help us continue our good work. The aim is to keep up the good work and make a difference.

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HOT STUFF We bring you a mix of the most innovative and helpful products on the market today

PRICES FROM

THERA-TRAINER TIGO The THERA-Trainer TIGO active/passive exercise bike brings the latest technology to cycling at home. The TIGO range makes it easy to exercise in your own home at a time to suit you maintaining and improving your mobility and fitness. Call Medicotech to request a brochure or free home demonstration. 01908 564100 medicotech.co.uk

PRICES

AVAILABLE UPON REQUEST

£4.99 KEYWING Use keys with ease. The recently launched, award winning Keywing is an innovative new key turner. It clips onto keys to give extra grip, leverage and control, making holding and turning keys effortless. Not only is the Keywing creative and functional, the beautiful colours put an end to the confusion of which key is which. Get 20% off with “Pos20” until May 31. thekeywing.com

“It’s literally a game changer for me, I can get the door open every time.”

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INNOVATIVE PRODUCTS

CARBON BLACK 2 The second generation Carbon Black wheelchair has arrived and it has a much more attractive price tag. This stylish set of wheels is incredibly light, weighing just 5.5kg and comes with a new, revolutionary, adjustable rear axle. Sporting the signature five-spoke fully carbon fibre wheels, minimal wrap-around backrest and a range of optional extras including LED lights, you will be sure to turn heads.

PRICES FROM

£3,995

0131 589 2475 carbonblacksystem.com

ELECTRIC TURNING BED Laybrook’s electric turning bed is ideal for a person who wants independence at home. One push of the button will do a full rotation from a seated position at the side of the bed to a sleeping position without the need for carers. It helps with getting legs onto the bed with the minimum of fuss and gives complete independence. 0808 274 0789 laybrook.com

PRICES FROM

£11.99

PRICES

AVAILABLE UPON REQUEST

POPSOCKETS These handy little grips adhere to your mobile phone to help you get a more secure grip, helping to avoid accidental smartphone screen smashes. Available in a vast range of colours and styles you will surely find something to suit your personality. If not you can always upload your own personal design. popsockets.co.uk

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SECTION HEADER

HOE GRANGE HOLIDAYS

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oe Grange Holidays offers log cabins nestled in the spectacular Derbyshire Peak District countryside and is the perfect venue for a relaxing holiday. Whether you need specialist equipment and care, or just level thresholds with parking right outside, everyone is catered for. Three of the four specially designed spacious lodges have full wheelchair access complete with wet rooms and a selection of shower chairs.

Accessible log cabins in the heart of the Peak District

NEW FOR 2019 In a never-ending quest for improvement Hipley log cabin has just undergone a major bathroom refit, with the addition of a Closomat shower toilet. The shower room with a full lit mirror and Pressalit Care wash basin with integrated hand rails, is now modern and stylish, whilst maintaining the necessary support features for those who need them. MAKING LIFE EASY A mobile hoist and a wide range of accessible equipment, including profiling height-adjustable beds, rise and recline arm chairs, a monkey pole, toilet frames and much more, can be booked at no extra cost. Hoe Grange doesn’t just cater for those with impaired mobility, but also has features to assist those with visual and hearing impairments, including a portable hearing loop, Deafgard fire alarm, and contrasting doorframes and fittings.

GETTING OUT AND ABOUT Hoe Grange goes the extra mile and also has two off-road wheelchairs for hire so that everyone has the opportunity to explore the wide-open spaces of the Peak District and get to places you would never think possible! EXTRA SUPPORT If you need extra support, then care packages designed to meet you own personal needs can be arranged with local care providers. This can be anything from a helping hand in the morning to full 24-hour care. BOOK WITH CONFIDENCE Hoe Grange Holidays have won numerous national awards for their outstanding accessibility. Find out what others think by reading the many excellent online revues on TripAdvisor and Euan’s Guide. For more information call 01629 540 262, email info@hoegrangeholidays.co.uk or visit hoegrangeholidays.co.uk.

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THE ESSENCE OF Words by Janet Myers

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ecently I decided to take time out to escape the cold grey days of winter. My destination was Seville. Here in the warm sunshine it seemed only fitting that I piled my toast high with a generous serving of bright orange marmalade. After all the city was filled with over 25,000 orange trees adorned with bright ripe fruit. There is so much to do in this beautiful Spanish city, culture, cuisine and dancing. Here are a few things I would highly recommend not to miss on your trip to Seville. TRADITIONAL FLAMENCO Los Gallos is one of Seville’s oldest tablaos (place where flamenco shows take place) and it is a great intimate space in which to enjoy flamenco. The stage reverberates with the sound of stamping feet, castanets clack, hands clap, a traditional singer performs and nimble fingers play guitar. As the dancing reaches a climax the swirling dresses become a blur. To learn more about its history head to the flamenco museum. You will be amazed to find that its origin can be traced back 2,000 years. Here too you can also catch a show.

GASTRONOMY No visit would be complete without tapas. If you are unsure what to choose there are dozens of tapas tours on offer. For those who prefer something else there are alternatives, including those famous cured hams and Spanish paella. Bakeries offer tempting glistening pastries and mountains of assorted flavours of gelato are hard to resist.

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TRAVEL

“Game of Thrones enthusiasts will recognise it instantly. The park was the site of the Expo 29, which had Plaza de España as its centrepiece.”

THE PALACE OF ALCAZAR This incredible fortress is a magnificent building which is considered to be an outstanding example of mudejar art. It has a very Moorish feel and its magical atmosphere is the reason it has been chosen as the backdrop for numerous movies and TV programs. Built for King Peter after the Christian conquest of the city it was built in the Moorish style.

THE SUN-DRENCHED PLAZA DE ESPAÑA It is not often that reality can out do the magic of fiction but this is one place that does just that. Game of Thrones enthusiasts will recognise it instantly. The park was the site of the Expo 29, which had Plaza de España as its centrepiece. Here you can row a boat under tiled bridges in the emerald green water or take a horse and carriage across its vast inner semi-circular interior surrounded by its fairy tale buildings.

THE METROPOL PARASOL This is to be found in the old quarter. Designed by the German architect Jürgen Mayer it stands 26 metres high and was completed in 2011. The modern wooden structure is often described as the walking mushrooms. A lift takes visitors to the walkway on the top. Another unique experience is a visit to the ruins which were discovered during excavations for its fountations. By donning a pair of special glasses it enables visitors to see the Roman ruins as they would have been in their prime. The same experience is possible in a number of other locations.

BASILICA DE LA MACARENA Whether you are a believer or not there is something to be said about the devout Roman Catholics who seem to spurn much of the commercialism at Christmas and Easter to focus on their religion. There are many beautiful churches, but for me the weeping Madonna in the Basilica de la Macarena left a lasting impression. We were lucky enough to see her up close in all her splendour. At Semana Santa she becomes the centre piece in the celebrations, carried aloft through the streets.

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GUADALQUIVIR RIVER CRUISE Near the Puente de San Telmo bridge boats wait to take visitors on a river cruise to take in many of the city’s landmarks. These include The Tower of Gold or Torro del Orro which was a military watch tower built in the 13th century. During the middle ages, the tower also acted as a prison and it is an impressive sight. The trip also passes through the vibrant old quarter in Seville, situated on the left side of the Guadalquivir River and connected to the city by the iconic bridge of Isabel II, otherwise known as Puente de Triana. Formerly known as Seville’s gypsy neighbourhood, Triana has evolved into a lively area filled with narrow streets and many bars and restaurants. SPA TREATMENT Take time to unwind in one of Saville’s many spas. Aire Sevilla is a magnificent Mudéjar-style palace where you can step into an Andaluz-style courtyard and journey through sensations that will take you by candlelight across various bath rooms with water at different temperature ranges, distributed throughout the palace.

MARMALADE ON TOAST A long weekend gives only a short time to enjoy just some of Seville’s many sights, sounds and pleasures but it does rejuvenate the senses. Back home, with a jar of Seville orange marmalade at breakfast time, its tantalising taste conquers up memories and a determination to return again. Perhaps when the orange trees are in flower and the air is heavy with their perfume. Then again, I could go any time.

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TOP TIPS The city’s top attractions are the palace and the cathedral. Buying tickets before you visit is a must as queues are long even out of season. Personally, I found the cathedral less impressive than other places of worship. Seek out some of Seville’s less visited attractions, they are well worth a visit and mostly accessible. • Be aware the hop on, hop off bus does not drop off close to places of interest. • A trip on the river is enjoyable, especially when the sun shines. • Churches provide ramps where steps are involved but when services are taking place (a frequent occurrence) only worshippers are welcomed. • Disabled parking spaces are provided and disabled badges can be used.

SPRING TIME IN SEVILLE For most of March the orange trees in Seville will be in full bloom and the air heavy with perfume. During Holy week (this year from April 14-21) the Semana Santa takes place. The streets will be filled with medieval robed and hooded figures, processing slowly behind swaying life-sized religious effigies like the weeping Madonna from the Basilica Macarena. Two weeks later it’s time for the Feria de Abril when Seville dresses up for its flashiest, liveliest, and most explosive fiesta with its local folklore, and colourful costumed parades. On the banks of the Guadalquivir River there will be dozens of decorated tents set up for some serious partying. May sees the flowers in full bloom. The weather is warm and sitting outside on a terrace to enjoy tapas is very appealing. With so much to do it is another great time to visit.



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N&C PHLEXICARE

UNDER LOCK AND KEY Protecting the National Key Scheme that allows disabled people access to disabled toilet facilities throughout the UK.

W

e are all aware of the problems around the misuse of disabled toilets, from vandalism and incorrect use, to reports of them being used by sex workers or being used as a place for people to take drugs. Last year the abuse hit an all-time low when the Sun on Sunday revealed a plaque on the disabled toilet door at Southend Airport in remembrance of two reality TV stars who used the facility in a way it was certainly not intended for. Clearly neither the reality stars nor the newspaper in question saw this as an infringement of the rights of disabled people. Many disabled toilets do have a RADAR lock installed, however now we are experiencing more trouble, this time through the production of fake locks and keys that are affecting the mechanisms and causing situations where users could be locked inside or the door not being able to be locked at all. We spoke to David Forbes, chief executive of Nicholls and Clarke Group, the manufacturers of the RADAR lock and key system, about the issues that have been arising. “There are two issues here; there are a lot of fake keys and there are some fake locks. The issue is that you can order from the Far East and get an inferior product

made at a lower price. However, the mechanism inside our locks have been designed to be deliberately robust, they are not a sophisticated lock and everybody who understands modern locks thinks that’s an issue until you understand that there are locks that were installed in the early 80s at the seaside – with the problem of saltwater etc – which today are still working really well. What goes wrong with the fake product is that they are made of different materials and are not designed to take the punishment that will happen with these locks. David explained that the lock and key are designed as one, from the same metal ensuring they are compatible and reducing the risk of damage. However, the fake locks and keys that are being produced are being produced in different metals that will eventually cause problems. “The key and the lock are designed as one so they use the same grade of metal to work together. When you use a softer or harder metal, they are incompatible, now this doesn’t mean that it won’t open the lock when you use it but what it does is it wears the lock more than it ought to. So it is entirely possible for someone to innocently get a key from somewhere they don’t know or think that can save £10 on an inferior lock, but in reality they are installing a problem going forward. “The nervousness from our point of view is that makes the users nervous of using disabled facilities and the RADAR lock and the whole idea has always been to make sure toilets are 24/7 available to disabled people when they need them.” These problems can be alleviated by facilities managers ensuring a genuine lock is installed and as a user that you have purchased a genuine key. These keys are recognised by a blue heart with N&C Phlexicare written on it and they can be purchased from nichollsandclarke.com or disabilityrightsuk.org.

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REVOL REVOLUTION A TRAVEL

The TriLift is a revolution in mobility transport and it has now been launched in the UK, promising to make traveling with a scooter or powerchair so much easier. In Britain alone, there are more than 350,000 mobility scooter or powerchair owners. You’d think that owning a scooter or powerchair enables people far more freedom to go where they want, and when they want, but it’s not as simple as that. The weight of a scooter or powerchair can be up to 204kg, so it’s no easy feat getting it in and out of the vehicle. Those scooters that can’t be disassembled require a vehicle that can accommodate the height, and then need to be pushed up onto a ramp or hoisted into the vehicle. In both cases, they require the

back seats to be folded down, and can take up all of the boot space. Suddenly, going to the shops or for a day out isn’t so tempting. The product is simplicity in itself. The scooter or powerchair is driven to the rear of the vehicle, the lift attaches to a bracket on the side of the scooter or powerchair, and at the touch of a button, is risen off the ground and secured in place, it’s as simple as that! TriLift UK is the sole distributor to Europe and we have technicians around the country who will come and provide you with a free, no obligation demonstration at your own home. If you decide to proceed with a purchase, we will arrange everything for you. For more information or to arrange a demonstration visit trilift.co.uk.

“TriLift has made a huge difference to both myself and my wife, I used to wait in the car while she went in the supermarket. Now I can get my mobility scooter off the TriLift myself and go in with her. It’s wonderful.” Mr Riley, Manchester

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INTER-SPINAL UNIT GAMES

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heelPower is holding the nationally renowned Inter Spinal Unit Games from 9-11 April 2019 at Stoke Mandeville Stadium. The highest number of spinal units and participants ever recorded are set to attend this year. The Games are set to feature 117 patients who will take part in a wide variety of over 20 disability sports such as wheelchair basketball, wheelchair tennis, wheelchair cricket, shooting, archery, athletics, handcycling and wheelchair fencing. HELPING TRANSFORM LIVES 54-year-old John Bowen was thrilled to attend the 2018 Inter Spinal Unit Games after almost losing his life in a freak accident last year. John was officially declared dead after suffering a heart attack and subsequently falling from a 20-foot ladder. He was resuscitated by a passing midwife and GP before being taken to hospital by paramedics. He is unbelievably grateful that he was well enough to compete in last year’s Inter Spinal Unit Games. “I heard about the event from our team leader, who brought us to Stoke Mandeville for the Games. As soon as I was asked I said yes straight away and that was actually pure loyalty to Salisbury. If Salisbury asked anything of me, because of the gift of life they gave me, I would do it,” John explained.

“So when I was asked to represent team Salisbury at the Games there was no question about it; even if I’m terrible at sports I was going to go! I hoped I could win something for the team though!” John had a fantastic experience at the Inter Spinal Unit Games and discovered new sports he did not think he would necessarily enjoy. “I think the atmosphere at the Games was brilliant. I had a game of rugby and it was something I had a little bit of trepidation about because it looks brutal. It’s actually not a brutal sport although it looks it. There’s plenty of action and plenty of clanking together of the wheelchairs but actually it’s quite a gentle sport, although energetic. “I left the court after half an hour of playing with a real high - it wasn’t just a little buzz, it left me with a lovely swirly feeling, it did me a lot of good!” For more information on wheelchair sports opportunities visit wheelpower.org.uk.

DONATE To fund the Games and WheelPower’s other activities to help disabled people lead healthy active lives or to find out more about how you can get involved with the work WheelPower does please call our community fundraiser Leah on 01296 395995 or email leah.lewis@wheelpower.org.uk. • £10 provides training for more wheelchair sports coaches and leaders • £24 enables us to give a disabled child aged six their first ever experience of sport – at a WheelPower event where they can try six different activities • £49 allows us to buy sports equipment which we use to get recently paralysed people active Visit wheelpower.org.uk/donate to learn about how you can help.■

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AND

POINT CLICK

Infrared Dandelion Steve Barnes

Words by Katie Campbell

Last month saw the Disabled Photographers’ Society exhibit their members’ incredible work, some of which scooped prizes at their 50th anniversary celebration’s awards ceremony.

I

n March, the Disabled Photographers’ Society work went on display in the Library of Birmingham, with an exhibition of around 30 stunning photographs taken by some of the Society’s 500 members. The event marked the 50th anniversary of the Society, which sprang from humble beginnings in October 1968. The Disabled Photographers’ Society was established by five disabled photography enthusiasts from the Star and Garter Home in Richmond, Surrey, who were captivated after visiting a local camera club. From these roots grew the Society, which provides disabled photographers with all the assistance, adaptions, activities and services which they could possibly need. Members of the Society are entitled to enter competitions, attend organised studio days, can be nominated for awards and distinctions, and be featured in exhibitions like the one in Birmingham. Anyone, regardless of level and interest, is welcome to join the Society, which is run by volunteers and raises funds through the donations of equipment like cameras. Chris George, the group editor in chief of Future’s photographic titles and Digital Camera magazine, acted as a judge at the Society’s award ceremony to celebrate their 50th year. He gave tremendous praise to the entrants in the competition, saying: “I have to look at a lot of photographs in my job – and I get to judge a fair few competitions. It is always great to see what people are shooting and to be inspired by the best of these.

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Red arrows at Southport Ian Ward-Pugh

Pirouette Ballet Rais Hasan


PHOTOGRAPHY “There are some breath-taking shots in this year’s competition, and choosing the winners was not easy. Hopefully DPS members’ photography will give them the challenges and pleasure it still gives me after 30 years.” Famed landscape photographer Charlie Waite, who is also a patron of the Society, agreed, saying: “Every image I saw on the gallery walls testified to the absolute commitment of all the photographers to strive for excellence. In this digital age, it is a privilege to see all the images so wonderfully printed and displayed. “Each award-winning photographer had clearly and wholeheartedly devoted themselves to their craft and their art and the delivered images are to be relished by all those present.” Many of the award’s entrants saw their images displayed in the exhibition in the Library of Birmingham, which showcased the wide range of talent and expertise displayed by the members of the Society. Included in the prints on display is the winner of the Overall Best Print award, Infrared Dandelion, shot by Steve Barnes. Photographic equipment manufacturer Vanguard

generously organised and provided prizes for a competition for Society members, the winners of which were also on display during the exhibition. The competiton’s overall winner was Rais Hasan’s print Gamekeeper. Patron Charlie Waite was so captivated by the competition’s second place winner, a print by Richard Adams titled Harvest Mouse Caught in Bad Weather, that he insisted on buying it, saying: “I was delighted to have bought a photograph myself that I could not possibly live without!” Speaking on his win, photographer and society member Rais said: “I am incredibly proud to win this particular competition, especially as it was judged by my fellow DPS members as well as Ian Bywater, Managing Director of Vanguard, war veteran and well-known disabled photographer of Peak Photography, Chris Nowell.” Chris Nowell added: “Thursday was fantastic for me for a number of reasons. Meeting Charlie Waite was an absolute honour. Listening to him talk about his passion for photography was inspiring but even more so were his comments about printing. It reminded me of myself and why I like printing images so much.”

People in the park Mark Pickup

Honour Guard at Arlington Memorial Paul Adams

Shock Waves Pauline Pentony

To learn more about the Disabled Photographers’ Society, visit their website: the-dps.co.uk


S P E C I A L O LY M P I C S WORLD GAMES: Special Olympics GB celebrated another successful Special Olympics World Games, coming home with an incredible medal haul of 169 medals across the squad of 128 athletes.

T

he Games held in Abu Dhabi were the first of their kind to be held in the Middle East and has been hailed as the most unified games in the Special Olympics’ 50-year history. Celebrating its golden anniversary, it showcased it’s most inclusive outing to date, with people with intellectual disabilities involved in every aspect of the event and more women than ever before competing.

GB’s 7-aside defended their gold

THE

Special Olympics GB praised the performance of their athletes after capturing 63 golds and 169 medals overall in all 17 Olympic-style sports on the programme in Abu Dhabi. The men’s 7-aside football team successfully defended their championship, while cyclist Kiera Byland added to her three 2015 Los Angeles golds with another two, and on the track, 200m sprinter Hetty Bartlett took gold back to Ispwich.

GAMES

CYCLISTS SPED TO VICTORY

SOGB were also dominant on the judo mats, with the seven-strong team all taking home medals. This included golds for 17-year-old Skye Images: Special Olympics GB

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SPECIAL OLYMPICS TENNIS WAS ONE OF THE SPORTS ON OFFER

“I’M REALLY PROUD TO BE TAKING HOME TWO GOLD MEDALS FOR GB AT MY FIRST EVER WORLD GAMES!”

Westwood, Daniel Henaghan, whose sister Denise won bronze, and Harrison Lovett. Islington tennis star Lily Mills won double golds in the mixed doubles and singles, and after her victory she said: “I’m really proud to be taking home two gold medals for GB at my first ever World Games! “I love tennis and have worked very hard to be able to compete with these amazing Special Olympics athletes in Abu Dhabi. When I first wanted to get into tennis, a lot of coaches thought that I wouldn’t be able to perform or even pick up a racket. Now here I am with two World Games gold medals and can’t wait to show them off to my friends and family when I get home!” The World Games’ importance

GREAT BRITAIN TO HOST?

extends far beyond the medal count though. The ‘inclusion revolution’ is the mantra for the Special Olympics movement, and the importance of being unified and breaking down the barriers between those with and without intellectual disability was highlighted throughout the experience in the Middle East, and one not lost on the competitors and their families. Jacqui Byland, gold-winning cyclist Kiera Byland’s mother, said: “The Special Olympics has broadened Kiera’s horizons and given her so much confidence.

The BBC recently reported that Special Olympics GB are looking to host the event in the near future following the success of their outing in Abu Dhabi. Michelle Carney believes Britain could hold the “best ever” Special Olympics event if the UK government supported their plans and insists its repercussions would change the country forever. Carney told the BBC: “We’ve hosted the Olympics and the Paralympics, World Championships, Commonwealth Games - why are we not looking at the Special Olympics? “We have the facilities to host it,” she said. She added: “It would fundamentally change the lives of the athletes and change the perceptions of intellectual disability within Great Britain.” She also explained to the broadcaster that the estimated cost of hosting the event in when they hope would be 2031, would be around £10-15m – a snip considering the expense of other major sporting events. “I just don’t know why we wouldn’t do it,” she said. “Considering what we pay for other big sporting events, why could we not host the best world games there’s ever been for Special Olympics? We are so good at it, let’s just prove it, let’s make it happen”

128 BRITISH ATHLETES COMPETED WWW.POSABILITYMAGAZINE.CO.UK

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Looking back, my daughter was so unhappy. She was being bullied and would leave school crying, and she started to self-harm as a mum it was unbearable. I was in bits, I just didn’t know what to do or how to stop it. We moved schools, but it was only when we got her into sport that things started to truly change. “To us, the World Games is more than just an athletic event that our daughter competes in every four years. Without the Special Olympics, Kiera would be a different person and would never have done many of the things she’s done. “It is an inspiring movement and has changed our family’s lives but to be able to make the same impact for other families, more people need to know about the Special Olympics and the initiatives it offers to aspiring athletes with intellectual disabilities in the UK,” she concluded. Celebrations continued beyond the closing ceremony

SPECIAL OLYMPICS IN NUMBERS

SUCCESS FOR GB IN THE MIXED DOUBLES

169

SOGB Medals

63 128 SOGB GOLDS

SOGB ATHLETES

200 NATIONS IN ATTENDANCE

50 1 17

YEARS OF SPECIAL OLYMPICS

The inclusion revolution

The first SO event in the Middle East

OLYMPICSTYLE SPORTS


SPECIAL OLYMPICS SCENES FROM THE OPENING CEREMONY

ABU DHABI WAS THE FIRST GAMES OF ITS KIND IN THE MIDDLE EAST

GB topped the podium 63 times

Michelle Carney, CEO of Special Olympics Great Britain said: “Words cannot describe the feelings I have for the 128 athletes that make up the Special Olympic Great Britain team. “They’ve not only performed amazingly well, but they have entered into the spirit of these games 110 per cent and been amazing ambassadors for Great Britain.

“THEY’VE NOT ONLY PERFORMED AMAZINGLY WELL, BUT THEY HAVE ENTERED INTO THE SPIRIT OF THESE GAMES 110 PER CENT AND BEEN AMAZING AMBASSADORS FOR GREAT BRITAIN.

“Hearing some of the heart-breaking stories that most of these athletes have experienced in their lives and then witnessing what they have achieved in Abu Dhabi and through our weekly Special Olympics GB sport programme, makes me so proud. Special Olympics GB is a life-changing charity for people with intellectual disabilities and these World Games prove that beyond doubt.”

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ROSEMARYʼS LEGACY Words by Katie Campbell

While her family tried to supress her existence, Rosemary Kennedy’s legacy lives on in the existence of the Special Olympics.

T

he Kennedy family are known worldwide for their incredible reach in the world of politics: of Joseph Kennedy Sr and Rose Fitzgerald Kennedy’s nine children, John F Kennedy would go on to be the President of the United States, Robert and Ted would become senators. Of their sons and daughters, one would have a most dramatic influence on the world of disability, although she would have the least control over her life and legacy, being forced into the shadows by her father. Rose Maire “Rosemary” Kennedy was born in the Kennedy’s family home in Brookline, Massachusetts on 13 September 1918. Her birth was a problematic one for her mother Rose, having come in the height of one of Boston’s worst epidemics of Spanish flu, making medical help not readily available for the Kennedys. Rose said that during the birth, in an attempt to prevent Rosemary being born before the doctor could get to them, the nurse forced her to keep her legs closed, resulting in Rosemary being starved of oxygen in the birth canal. Growing up, Rosemary’s parents noticed that she was slower to learn how to crawl and talk than her brothers, and it was determined that she had learning difficulties. Although Eunice, one of Rosemary’s younger sisters, noted that various different doctors gave differing diagnoses, from “mentally ill”

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13.09.1918 Rosemary is born in Brookline, Massachusetts

1938 Rosemary is presented to King George VI and Queen Elizabeth

to epileptic. A modern retrospective on Rosemary’s disabilities leans more towards her living with dyslexia and depression: she tended to write right to left, struggled with spelling and forming her handwriting, and struggled with dextral activities. Growing up, Rosemary struggled with both schooling, and the great expectations of her family. The Kennedys were competitive and intellectual, but Rosemary found it difficult to keep up with children her age in school, and was made to repeat kindergarten and first grade. She would move around several schools – including boarding schools – as she grew up, mostly prompted by her struggling in her studies as her family fought to keep Rosemary’s disability a secret. Rosemary would write to her family to let them know how she was doing. She loved socialising, and would write fondly of beautiful dresses and pretty things. She spoke often of her best friend Mary O’Keefe. Her brothers Jack and Joe Jr kept in touch with her, and her father would often write back to her encouraging her to try harder and reach her educational goals. In diaries she kept, she would write lovingly about the events she would attend with family and friends. In 1938, when in London while her father served as United States Ambassador to the United Kingdom, she was presented to King George VI and Queen Elizabeth.


Returning from England, the Kennedys noticed a marked change in Rosemary’s behaviour. Having been placid and easy-going, she began experiencing mood swings. Her father, worried that Rosemary’s behaviour would shame and embarrass the family, decided without consulting Rose or Rosemary that his daughter should be lobotomised. In an interview given by the doctor who performed the procedure, James W Watts, describes what was done to Rosemary in 1941. She was given a mild tranquiliser and an incision was made in the skull. He made a small cut on the brain, and then used an instrument resembling a butter knife to slash around inside Rosemary’s brain. They only stopped when she became incoherent. The procedure was not successful. It had reduced Rosemary’s mental age to that of a two year old, and she could not speak or eat without assistantce and was incontinent. Rosemary’s mother was only told after the procedure had been carried out, and was livid with her husband. She told biographer Doris Kearns Goodwin that she never forgave her husband, saying: “It is the only thing I have ever felt bitter towards him about.” Rosemary, now unable to care for herself, was immediately institutionalised. She spent a short period in George Washington Hospital, where the procedure had been carried out, before being moved to Craig House, where she lived for seven years. She would then be moved again in the summer of 1949 to Wisconsin, to Saint Coletta. Rosemary’s family would not visit her in any of these homes; during his presidential campaign, John would excuse her non-presence by claiming she was a recluse. Eunice was the only member of her family to make an effort to see Rosemary and

1941

SPECIAL OLYMPICS

Rosemary is lobotomised. The operation is unsuccessful

spend time with her for many years, and Rosemary’s lobotomy had a terrifically negative impact on Eunice. Joseph Kennedy Sr would die in 1969, having never seen his daughter since her lobotomy. After his death, Rose and a few of her children would visit Rosemary once a year. Rosemary herself would live to the grand age of 86, having regained her ability to walk and speak, and died on 7 January 2005 in Fort Atkinson, Wisconsin with her surviving siblings – Jean, Eunice, Patricia and Ted – by her side. Incredibly, she was the first of Joseph and Rose’s children to die of natural causes. Eunice held an incredible, deep love for her sister, and was inspired to work in social care by her, moving to France in 1969 to work with families whose children had learning disabilities there while her husband Sargent Shriver served as the United States Ambassador to France. She wrote an incredibly touching article about her sister in the Saturday Evening Post, which revealed the true story of Rosemary’s disability. It was seen as a pivotal moment in the change of perception towards people with learning disabilities in the United States. Most importantly, in 1962, Eunice started her own day camp, called Camp Shriver, for disabled children. From there grew the Special Olympics, the first of which was held in July 1968 in Soldier Field, Chicago, with 1,000 athletes from the United States and Canada, all of whom had a disability, taking part. This year saw 170 nations taking part in the Abu Dhabi games, with 7,000 disabled athletes competing over 24 events in the 15th summer games. While Eunice has said that the legacy of the games can be attributed to no one person, without Rosemary Kennedy, where would the Special Olympics be?

1949 Rosemary is moved between institutions to Saint Coletta

1962 Rosemary’s sister Eunice opens Camp Shriver for disabled kids

1968 The first Special Olympics are held, succeeding Camp Shriver

1969 Rosemary’s father dies having never visited her post lobotomy


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TECHNOLOGY

A FRIEND

INDEED

Cleo is already available to users in Germany, France, Italy, Canada, Japan and the US, and the arm of Biogen who created the app, Biogen Healthcare Solutions, have said that they expect the app to evolve over time and incorporate new content and features which will be based on the feedback of the app’s users and input from the MS community. “The MS journey is a complex one,” said Matt Norcross, affiliate head of multichannel excellence at Biogen, “and knowing where to go to find trusted information on health and wellbeing can be a key challenge for patients in the UK. Cleo was designed as a simple, personalised mobile solution to support the MS community in keeping track of their health, supporting their wellbeing and learning about the MS topics that matter most to them.”

Words by Katie Campbell

Meet Cleo, the new app for people living with multiple sclerosis that can provide support to them, their families and their carers.

Cleo is available to download now on both the App Store and on Google Play

P

harmaceutical giant Biogen launched a new app for people living with multiple sclerosis last month that’s set to become a great companion, providing help and support for not only them, but their loved ones and carers. The app doesn’t offer the user medical advice, but rather supports them through information and allows them to track their own journey with MS. The every-day digital companion has links to information, articles and stories which are relevant to people living with MS, health and

well-being programmes, and access to the Cleo Chat feature, which allows the user to speak directly to a Cleo Advisor who can help them make the most of the app. Best of all, it has a journal, which allows the user to keep track of their health and set appointment reminders in a simple but detailed way. “Biogen believes that, regardless of treatment choices, patients should always be informed, supported and inspired to aim for better tomorrows. Cleo reinforces our ongoing commitment to MS and is an example of our ambition to provide digital solutions that benefit people living with neurological conditions,” said Terry O’Regan, vice president and managing director at Biogen UK and Ireland.

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TALKING IN PICTURES Words by Katie Campbell

Talk Emoji to Me

B

y the end of the year, emoji lovers will be able to express their disabilities in pictorial form thanks to some new additions to everyone’s favourite picture keyboard. The brand new emoji, revealed in early February on Emojipedia as the final approved list includes not only gender non-specific emoji people, a period emoji and a sari, but a whole host of icons designed to improve the representation of disabled people in technology, language and communication. The Unicode – the special line of code read by a computer that makes up an emoji – has already been released, but the emoji which are connected to the code could hit our phones and computers between August and October, based on Apple and Google’s previous emoji update releases. This means by the end of the year, you’ll be able to use a whole range of emoji to convey disability with ease. There’s a prosthetic arm and leg, an ear with a hearing aid, a person signing the ASL for “Deaf,” people using canes, manual and electric wheelchairs (and the objects themselves as standalone emoji), and service and guide dogs. Each emoji featuring people will be available in male, female and gender non-specific, and in a variety of skin tones.

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“There’s a prosthetic arm and leg, an ear with a hearing aid, a person signing the ASL for “Deaf,” people using canes, manual and electric wheelchairs (and the objects themselves as standalone emoji), and service and guide dogs” Apple’s proposal for these emoji shows their working thoroughly; the emoji for a person signing “Deaf” was chosen because, according to Apple, while there’s no universal way to say “Deaf” in sign language, the use of the index finger gesture is used in 18 of the 31 global sign languages, making it instantly recognisable for a majority of people. The emoji have seen some backlash, however. Wheelchair users questioned Apple’s design for the manual wheelchair, which closer resembles the type of wheelchairs used at hospitals and airports to transport people around, and are therefore not designed to be self-propelled. Artist Beth Wilson tweeted a redesign of the manual wheelchair emoji, it was brought to the attention of Bryce Johnson, the inclusive lead at Microsoft’s Devices division, who noted that each platform (who design their own emoji based on the Unicode) take feedback on the designs, and he’d be passing it on to the team at Microsoft Design to ensure their emoji looked more 2019 than 1979. There’s no set timeline for when the emoji get here, and we don’t even really know what they’re going to look like on the different platforms, but by the end of 2019 we should be well on our way to making digital language look a little more inclusive.


EMOJI

A BRIEF HISTORY OF PICTURE CHARACTERS Like all cool new things in technology, emoji were born in Japan. The word emoji, written in Japanese as 絵文 字, means “picture character,” and despite how it sounds, it doesn’t originate from the English word “emotion.” Its predecessor is the emoticon, like the :-) and :-( faces you may recall from the distant past, the creation of which is attributed to American computer scientist Scott Fahlman in 1982. With the huge number of additional text glyphs available to Japanese speakers, combining Latin alphabet characters with Katakana, one of the Japanese writing systems, they created kaomoji. These didn’t have to be read by tilting the reader’s head to the left like emoticons. In kaomoji, ( ^ . ^ ) might represent a happy face, while (◕‿◕✿) might represent cuteness or sweetness. Developed from kaomoji, a mobile phone released by company J-Phone would include a set of 90 emoji in 1997, marking the first time emoji ever appeared on a mobile

phone. Unfortunately, as the phone was so expensive, it didn’t catch on. Two years later, in 1999, Shigetaka Kurita would create the very first widely-used set of emoji for a Japanese messaging service called i-mode. While he defined the characters, every Japanese mobile operator would make their own variants on them. Kurita’s original set of 176 emoji are currently available to view in the Museum of Modern Art, proving how important they are to modern internet culture and language. In 2010, the emoji were incorporated into the Unicode Standard. Unicode is a system which logs and standardises characters – whether they be text or symbols – and its inclusion into the system meant that, for the first time, the world could access emoji. Apple first introduced an emoji keyboard in Japan in 2008, then in 2011 it became available in the West. Google would follow suit two years later, creating their own emoji keyboard. As emoji grew in popularity, it expanded to take in more worldwide culture. Sitting alongside traditional Japanese foods like sushi, onigiri, and dango came tacos, burritos and bagels New York style, complete with the obligatory schmear of cream cheese. The symbols with humble beginnings have now transcended its original insular use and become a global language which everyone speaks without barriers. The only restriction is inclusion, and for disabled people, the language of emoji is about to get a whole lot easier to speak.

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he warmer weather is finally creeping in and thankfully with this, a whole new host of opportunities to keep the kids entertained and amused

crop up. There are plenty of things to plan to keep your little ones busy during the upcoming holidays, with exciting outdoor adventures and backups for rainy days all available. Some are on your doorstep and some are further afield, check out our rundown on page 66.

We also take the time to speak to the phenomenal Tom Williams, who is leading a campaign to encourage young people to donate their outgrown prosthetic legs in order to give people in The Gambia their independence. Read all about Legs4Africa on page 60. We also catch up with our regular columnists Rio Woolf and Dan White and bring you some handy products for your little ones. As always, please feel free to get in touch – email ros@2apublishing.co.uk.

PRODUCTS PAGE

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THE ULTIMATE

LEG UP

“Euan Murray, is leading a campaign to encourage young people to donate their outgrown legs”

Words by Rosalind Tulloch

Have you ever thought about what to do with old prosthetic legs that either you and your child have grown out of? They are probably stored safely in the attic gathering dust or are stashed under a bed taking up valuable storage space. Wouldn’t it be great if there was somewhere you could recycle these valuable limbs that offer so much independence to amputees? Well, we have discovered a wonderful charity where you can do just that.

L

egs4Africa is a charity that has been set up to collect outgrown and unwanted prosthetic legs from donors in the UK and send them to Africa for amputees who are in need of a prosthetic leg. One young ambassador, Euan Murray, is leading a campaign to encourage young people to donate their outgrown legs to this incredibly worthy cause. As we all know children grow like weeds and new prosthetic legs are required regularly to keep up with their growth spurts. When Euan and his mum Amy discovered the charity a few years ago they were delighted to get involved to donate Euan’s outgrown prosthetic legs and they are one of the lucky few who have been able to track down where those legs have ended up.

A little girl in Africa called Wudeh is just a few years younger than Euan and lost her leg when a car ploughed into a restaurant she was in, sadly several of her family members were killed and Wudeh was incredibly lucky to survive. Thanks to one of Euan’s donated prosthetic legs Wudeh is now back at school, back playing with her friends and enjoying life the way a seven-year-old should be able to. Euan commented: “I feel proud because I was once wearing these and now I’m giving them to people that really need them.”

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“he cried, I cried, there were quite a lot of tears but there was a lot of excitement as well and we probably had one of the best parties of my life” We spoke to Tom Williams, founder of Legs4Africa, to find out more about the amazing work this charity is doing. “In 2013 I took a trip to The Gambia, it was just a normal holiday for a week just to grab some sun. I didn’t really think much of it but I suppose I got more than I bargained for when I got out there because I met a really nice family who took me under their wing and really showed me what it’s like to be a Gambian. “Having got quite close to the family during the course of the week, the father of the family was actually an amputee, he had lost one of his legs 12 months earlier to diabetes. I got to know him quite well and I could see that he was relying on everyone else in the family to support him and he had kind of lost hope, there was no chance for him to get a prosthetic leg in The Gambia and I suppose it kind of opened the window for me. This guy was in quite a desperate situation, he had lost quite a lot of his dignity, he had lost his independence. I had quite a lot of sympathy for the guy and when I left I said I would do my best to find him a prosthetic leg. “He had already managed to get some measurements of his stump from the local hospital where they do have a prosthetic mobility centre but they are very limited in what they can provide because they are simply left with components to build prosthetic legs. I brought the basic notes back to the UK and spoke to some people. Although my background is not in healthcare or prosthetics, I actually got talking to a prosthetist from down in Portsmouth called Karl Ives and he is an amputee himself and when he heard that I was looking to help this guy in Africa he jumped on the opportunity and he built the leg at no cost to myself or anyone, he just did it off his own back. And within a couple of months I was back on a plane, without the family knowing that I was coming,

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I just remembered my way to their compound hut and just walked up one day holding this prosthetic leg. “It was very emotional, he cried, I cried, there were quite a lot of tears but there was a lot of excitement as well and we probably had one of the best parties of my life that evening and it’s something that I will never forget.” This first connection left its mark on Tom and when he journeyed back to the UK, his random act of kindness was picked up by the press and before he knew it amputees from across the country were sending him their unwanted prosthetic legs to take to Africa. He discovered there was no other way for people to recycle their outgrown or unwanted prosthetic legs, and it was clear that individuals were delighted to finally have some way of repurposing them.

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LEGS4AFRICA “I was inundated with prosthetic legs being sent to me from across the country, just amputees or loved ones had been storing them in the attic or under the bed and then suddenly when there was this opportunity. Within a couple of weeks I had been able to collect about 500 of them – which were all stacked up in my parent’s bedroom and when the legs started touching the ceiling they said to me “what on earth is going on here Tom, we need to do something about these legs!” So with a little help from his friends, they embarked on creating Legs4Africa and a journey to transform the lives of amputees in Africa who do not have access to prosthetic legs.

“The charity has an incredibly simple model which results in it only costing around £12 to send a prosthetic leg to Africa” They now work with over 20 hospitals in the UK who donate their returned prosthetic legs as well as many individuals throughout the UK who want to give their old prosthetics to a good cause. Tom explains that the charity has an incredibly simple model which results in it only costing around £12 to send a prosthetic leg to Africa – that’s only a £1 per month to ensure an amputee in Africa can regain their independence. They have volunteers who dismantle the legs to prepare them for shipping as Tom explains: “The fact that we are able to collect a resource that is totally free – there is some labour involved, particularly with dismantling the legs and to achieve that we have enlisted a group of retired men whose group is called the Men’s Club. They are just outside of Bristol and they meet once a week and they do their own community projects and build and fix things, but they also dismantle all the legs that we bring to them as well – that cost of £12 per leg going to Africa is really for the logistics, the legs need to be collected and moved around and then we pop them in a container. It’s nice to know that anyone can donate a relatively small amount and it makes a big difference.”

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Each of the volunteers involved in the charity know how personal prosthetic legs are to an individual and because they have managed to keep the charity small they actually get to know the donors quite well, something they feel is an important part of the donation process. “Because we have kept things small each of us are able to feel the benefits of what we do. We keep things really quite intimate so we get to know a lot of the donors who get in touch – we don’t want to treat them as a number, we are not just counting legs – these limbs are extremely personal items and in some cases they have come from people who have passed away and their loved ones get in touch with us.” HOW TO DONATE If you have a cupboard full of outgrown prosthetic legs just gathering dust, why not speak to your little ones and see how they would feel about donating them to a cause that will help someone just like them in Africa? Be sure to keep their first one though as we all have a sentimental side – Euan kept his first prosthetic leg and now uses it as a pencil holder on his desk at home, another great example of repurposing a prosthetic limb! To get involved simply visit legs4africa.org to find out more.

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Challenging Disability through Outdoor Adventure The Calvert Trust has been delivering outdoor adventure breaks for adults and children with disabilities in the beautiful surroundings of the Lake District National Park since 1976. Whether you are looking for new experiences and to meet new people, or just active holiday fun with friends and family, we have something amazing to offer you. To find out more, including dates and availability, call us on 017687 72255

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Kidz to Adultz South

Thursday 16th May 2019 9.30am - 4.30pm Farnborough International Exhibition & Conference Centre, Etps Road, Farnborough, GU14 6FD (access via Gate F)

One of the largest FREE UK events supporting children & young adults up to 25 years with disabilities and additional needs, their families, carers and the professionals who support them. FREE Entry FREE Parking Equipment

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Register online for your visitors free entry ticket and your chance to win a ÂŁ200 voucher and many more prizes! Tickets are not compulsory as you can register on arrival. For more information contact Disabled Living Email: info@disabledliving.co.uk or Tel: 0161 607 8200 www.kidzexhibitions.co.uk


NHS

COLUMNIST Dan White

You can follow Dan on @DeptOfAbility

OPERATION TIME Dan White, creator of the amazing Department of Ability superheroes and dad to Emily, who is 12 years old and has spina bifida, is a regular face in PosAbility as he shares his experiences of life as a family with a disabled child.

“The hardest part for us, indeed for thousands of us across the country, is the pretense of keeping calm for your child when all they want to do is bury themselves weeping into your chest and dream of home.”

S

ome events in life are so emotionally powerful that they become branded upon you. It’s like an unwanted tattoo, it’s there when you stumble across it, marked for all eternity. For years now, the succession of operations for Emily had seen us draw up a plan for each such traumatic event. Emily and the hospital play leader got together to map out how the pre and post op would go. Emily has severe anxiety and the thought of surgery rightly fills her with horror. The plan was thus: Emily would be accompanied to the theatre, the room would be empty, bar the anaesthetist and a nurse, Emily would hold the mask and, in her own time, fall asleep. Post-op, as much Costa cake and rewards as humanly possible to want. All was going, not smoothly, but better with this plan. Our little girl was still away from us, under the glare of spotlights and the steel of operating tools. The thought of her wellbeing in other hands eating away at us inside like a belly full of termites. The hardest part for us, indeed for thousands of us across the country, is the pretense of keeping calm for your child when all they want to do is bury themselves weeping into your chest and dream of home. A home laden with familiar teddies, a favourite book, anything else but being here, an innocent caught in the eye of a clinical storm. Tuesday 26 February was operation day. This particular operation not urgent or indeed pivotal. Emily awoke, for days insisting she would go through with it, but as the dawn broke she decided she would rather not go. The last time Emily had an operation her shunt failed, it was replaced, it

failed, it was repaired. Tubing was leaking from the wound in her tummy, it was repaired. It was a time when we felt we would never see home again, it was a time of midnight x-rays, cannula after cannula, cuddles in neuro that would last all night, a child, unsleeping, clinging onto your wide awake body like a climber on a cliff face. The rollercoaster of doctors, nurses, needles, all the mental trauma being absorbed by an innocent while you act the part of strong parent. All this emotional carnage, unending, making you feel like the worst parent in existence to put your child through this, not having the power to make them better, for all this to just go away. We arrived, Emily’s mind conflicting with the benefits and terror of past operations. The team arrived, humane and understanding. The surgeon arrived, providing the catalyst for her tears to erupt and anxiety to go into overdrive. To watch this, as we all know, is unbearable. The team softly encouraging her, trying to talk her round. We sat useless, dumb, as she wept and wept until we just had to stop this, take her home, to run and run and run. We all adore our children. It’s so cruel that the benefits of surgery are fraught with such emotional distress. In every other scenario we would all leap in front of a flying bullet, anything to spare them pain and tears, but when faced with them being out of our hands, with strangers in a scenario where you know, sadly pain is inevitable and fear obvious, we are conflicted, we become disassociated from ourselves. We want them well but want them safe. The rollercoaster of surgery rolls on, the fronts we put on continuous. We stay branded.

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SUMMER FUN Words by Katie Campbell

Trying to keep kids occupied during the summer holidays can be a bit of a nightmare. Fortunately, we’ve got some great ideas to keep them ticking over. LIKE A DUCK TO WATER The summer holidays are a fantastic time to start teaching your children to swim if they’re able. Swimming is a great, fun activity that the whole family can engage in regardless of skill level. Learning to swim is a life skill, and just like riding a bike, you never really forget how to swim. Giving your child the confidence to act safely in the water – be it a swimming pool or the open ocean while on holiday – is a tremendous gift. Swimming as an activity is also a low-impact one which also provides resistance training. If your child is hesitant to exercise, swimming is a great way to safely engage in sport that they don’t even really realise is sport – it’ll strengthen their lungs exerts very little pressure on their lower body, so it’s great for children who have asthma or issues with their joints. Swimming is also just fun. Kids have a whale of a time playing with inflatables and pool floats, bombing into the water and learning to dive or swim underwater. Teaching them to swim is also a great bonding exercise between parent and child if mum or dad is confident in the water.

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IN THE BACK PAGES Just like at Easter, your local council knows that keeping the kids occupied at summer can be somewhere on a scale of “we’ve been to the same park every day for three months” to “please let me escape this nightmare realm in which I am trapped.” To try and both give parents a little time to themselves and keep kids occupied, local councils often create a list of activities available to parents over the holidays which children of all abilities can take part in. These activities can range from learning archery to ceramics classes and everything in between. All of these activities are supervised and taught by people who are in the know, so for a usually quite reasonable amount of money, your child can learn in a safe and empowering environment how to do something as fun as abseiling. What’s great about these classes is that they’re a fantastic opportunity to make friends and socialise as everyone there has something in common – they are all there to enjoy the activity. Keep an eye out for a printed booklet which your little one might bring home from school, or check your local council’s website and social media to see what’s happening around you over summer.


SCHOOL HOLIDAYS COME FLY WITH ME There’s nothing quite like a summer holiday, and if you can manage to get away this year, there’s a whole host of places you could go across the world that are more accessible than you might imagine. If you’re fancying a jolly jaunt to the continent, there are loads of accessible destinations that are loads of fun for the whole family. La Pointe St Gilles in Brittany is a Eurocamp holiday park which is extremely well equipped for wheelchair users, providing all accessible mod-cons for those staying, a stunning local beach and – even better – direct flights from the UK. Teach the kids a bit of culture and take them to Venice, where you’ll be surprised by the level of accessibility. There’s even wheelchair accessible gondolas! There’s nothing stopping you from venturing as far as the Caribbean too, if you can get the flights and feel comfortable and assured taking them. Dolphin Suites is an absolutely stunning resort in Curacao, which has won multiple awards, and offers additional services to guests with disabilities. They’re happy to work with you to customise your stay to your needs, and the fleet of happy staff are always there to help.

CAMP RULES OK For many in the UK, their experience of a summer camp will come from American movies, where sleepaway camps are a summer tradition for thousands of American children, who spend weeks in log cabins and eating s’mores. Or, depending on the movies you watch, run into Jason Voorhees. It’s all relative. For us, camp is more of a day thing, ideal for keeping children occupied and socialising while their parents are at work. There is a whole host of summer camps especially for children with disabilities. The London Children’s Practice runs a camp throughout the summer holidays which supports children through interactive activities which allow them to develop their speech, language, play and social skills, and is supported by input from occupational therapists. There’s also Camp Beaumont, which children can be booked into for up to a week, and functions in a similar way. If your little ones are feeling bold and you’re feeling particularly flush, kids can partake in an actual, real life camp experience in the United States. There are hundreds of camps across the USA, with loads on the continental USA and even more in Hawaii. They offer loads of support for parents, too.

KING OF THE CASTLE A recent report by Euan’s Guide noted that disabled people find it easier to access historical locations like castles than they do pubs, and while that’s not all good news, it does speak proudly to the brilliantly accessible historical locations the UK has to offer. Just because it’s the summer holidays, it doesn’t mean your little one has to stop learning – and neither do you! Even the most cursory search of the accessible guide website shows that there are loads of historic locations up and down the country which have excellent accessibility, meaning there’s no excuse to not go out and take in a little history while the weather’s good this year. Castle Semple, located in Lochwinnoch – just 40 miles outside of Glasgow – has rave reviews on the website, with visitors praising the accessible parking, access to the centre and café, and the activities available to disabled visitors, which includes kayaking, rowing and hand cycling. York Castle Museum also sports a hugely impressive review on Euan’s Guide, with a hugely detailed guide on its accessibility. The Museum’s signs are all in serif fonts for ease of reading, has subtitled video displays and once every three months, holds a relaxed opening for guests with sensory processing issues.

“For us, camp is more of a day thing, ideal for keeping children occupied and socialising while their parents are at work.”

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WALKING WITH DINOSAURS Glasgow museums offer a great experience for kids of all ages through their collections and displays. At Kelvingrove, they have dinosaurs, an Egyptian mummy and Sir Roger the Elephant and friends in the Life Gallery. The mini-museum for the youngest ones also provides lots of do with all sorts of fun things to try out or try on! At Riverside, there’s the locomotives, the trams, the Subway and Main Street, plus much more to explore. The displays have lots of interactive features to inspire young minds. Other museum venues also have lots of fun activities on offer where you can get creative, make things, handle museum objects and share stories. You can get up-to-date information on what’s on at any of the museums from the website – glasgowmuseums.com – where you can download the current What’s On brochure or check the searchable events database. All venues are fully accessible, more details available at accessable.co.uk.

TREADING THE BOARDS Following a recent £16m refurbishment Hull New Theatre has re-opened with improved accessibility for all. An important part of this is their programme of accessible performances, which includes captioned performances and BSL interpreted performances for Deaf and hearing-impaired patrons, audio described performance and touch tours for blind and visually impaired patrons, and relaxed performances. Captioned performances give Deaf, deafened and hard of hearing people access to live theatre shows by providing captions similar to television subtitles. The performers words appear on screen as they are spoken or sung. BSL interpreted performances are aimed at people who are Deaf or hearing impaired. Trained describers usually stand to one side of the stage, to interpret the script and language used by the performers at the same time it is being performed. Audio described performances are also available through the use of a discreet stethoset receiver. Relaxed performances are specifically designed to welcome people with a learning disability, Down’s syndrome, autism or sensory and communication disorders and their families. There is a relaxed attitude to noise and movement and small changes to the lighting and sound effects. For full up-to-date listings and access performances please visit hulltheatres.co.uk or contact the box office on 01482 300306.

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Visit Dippy at Kelvingrove until 6 May!

FESTIVAL VIBES The Mersea Island Festival is nine days of activities and entertainment which bring together over 300 children, young people and adults with or without a physical or learning disability – either on their own with support, as a family or in a group, all with a smile on their face, no matter their difficulties or differences. Activities for people to participate in range from African drumming to a zipwire, with a team of instructors and volunteers on hand to make sure people get the most from their visit. The fun doesn’t stop in the evening when there’s live music, themed discos with amazing costumes and a camp concert. Everyone feels comfortable expressing themselves to the fullest. The Festival is one of the only family holidays which are inclusive to the needs of all and for some it’s their favourite holiday each year. They are often told ‘I’d never get to do this if I didn’t come to Mersea Island Festival.’ No matter what your challenges are in life, it will never fail to make you happy. head along to Mersea Island Festival and join the big family. For further information on the Festival visit merseafestival.org.uk.


The Festival brings together children, young people and adults with or without a physical or learning disability providing an opportunity to try out new activities, make new friends and have loads of fun on the coast of Essex! Ideal for families with a member with a disability, clubs and organisations. Over 300 people come from all over the UK to the weeklong camp, the weekend camp or just for a day visit. The wide variety of exciting activities include archery, zipwire, climbing, dancing and music workshops, adventure course, swimming, discos, art activities, live music and more! Activities that are fun but also challenge and stimulate, helping to build self-confidence and develop self-esteem in participants.

“I am just continually amazed at so many people’s attitudes for having ‘a go’ at absolutely everything! And given the encouragement - to succeed!” For further information or to book

Charity No. 1097455

Telephone: 01206 383226 Email: info@merseafestival.org.uk Website: www.merseafestival.org.uk

Mersea Island Festival @MIFCamp

Hull New Theatre has recently reopened after an exciting £16m refurbishment with improved accessibility for all. We are pleased to offer a number of assisted performances throughout the season. Look out for our season brochures!

www.hulltheatres.co.uk Box office: 01482 300 306 *Tickets are subject to a £1.50 per ticket booking fee

Working in partnership


KIDS’

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SOFT-TOUCH SITTER The Special Tomato Soft-Touch Sitter is an adaptive seating system that offers disabled children a comfortable and functional seat that can support them from the age of one. Five sizes are available as your child grows, the seat features contoured head and lateral supports and a five-point positioning harness to keep your child secure. Compatible with various bases and strollers from the range. 0800 031 6571 mooringsmediquip.com

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EWAN THE DREAM SHEEP If you have a child that struggles to sleep at night, consider the cuddly cuteness of Ewan the dream sheep. He exudes a warm pink, calming glow and has four soothing sounds that offer comfort and reassurance to newborns and toddlers, helping them to drift off to a peaceful night’s sleep. Sounds include rainfall, a harp melody, a vacuum cleaner and a recording of the womb. 02392 262 332 sweetdreamers.co.uk

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SENSORY FLOOR TILES Available in four different colours these funky floor tiles are filled with coloured liquid that squishes around when you stand on them or press them with your hands. The unique patterns encourage visual stimulation as well as movement and touch. A great addition to your child’s room to brighten it up with their favourite colour or a mix of them all.

These clever cubes come as a set of six and feature 36 different questions that help encourage children to speak out and engage in conversation in a fun and interesting way. They also encourage listening skills, help to build language and spark imagination among your little ones. A great game for the whole family to get involved in. amazon.co.uk

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The essential learning event for moving and handling

Moving & Handling People brings its CPD-certified mix of practical workshops, best-practice seminars and peer-to-peer problem-solving to new audiences

Separate exhibition halls Open Forum All-new workshops and seminars for 2019 Tickets from £295 (+VAT) for groups of 3+

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Early registration option and new products workshops on Tuesday 6th August

Moving & Handling People Wednesday 7th August & Thursday 8th August 2019 De Vere Beaumont Estate, Burfield Road, Windsor SL4 2JJ

Book now at training.dlf.org.uk/moving-and-handling-people-south-2019 Disabled Living Foundation Tel: 020 7289 6111 Email: training@dlf.org.uk DLF is part of Shaw Trust, a registered charity (England & Wales number 287785), (Scotland number SC039856)


Rio's

COLUMN Words by Rio Woolf

I

t’s been great seeing my Ouch Patient films on CBBC’s Operation Ouch – the first three films have shown how my prosthetic legs are made, my physiotherapy and my athletics training at Harrow Athletics Club. You can catch up on iPlayer – the final film will show last year’s LimbPower Junior Games. February was a busy month with lots of fun football camps, starting with the England Amputee Football Association Junior Camp at Reaseheath College in Cheshire. It was great training with my friends, seeing some new faces and learning new skills – luckily the camp wasn’t cancelled because of the snow, but it was very cold! In half-term I went to Dorset Orthopaedic to get my prosthetic day leg and running blade checked as I’ve been growing a lot lately – my prosthetist Matt said I’ll need to go back in the Easter holidays to be cast for new sockets (so I’ll need to choose new Funkifabrics designs!) and I’ll probably need both legs lengthened then too. I had an awesome time at the TetraBrazil Soccer Camp and I met Watford FC legend Lloyd Doyley again – I first met him when I was six back in November 2014 when I won Watford’s Local Hero and I switched on the Intu Watford Christmas lights with him and Watford FC Captain Troy Deeney. I went to the players’ signing at the Hornets Shop where I met my Watford idols Abdoulaye Doucouré and Will Hughes who both took selfies with me! I finished the week off at the Excel Football Camp and my team won the tournament! After a term and a half of training hard with my school football team, we finally played our first matches

AT THE LIMB POWER GAMES WITH HIS FRIEND OLLIE

RIO WITH MATT FROM DORSET ORTHOPEDIC

MEETING LLOYD DOYLEY AT TETRABRAZIL

MORE FOOTBALL TRAINING

of the season – I was so excited to be selected and we had brand new kits to wear! In the first game it was very close but they won 2–1 and we won the second match 2–0! I’ve been to a few Premier League matches this Spring. I went to Watford v Burnley which finished 0–0 in a close and tense match, and then Watford v Everton which finished 1–0 - a very feisty match but the Hornets won thanks to Andre Gray. We then went to Arsenal v Southampton which was a very exciting match with the Gunners winning 2-0 thanks to Lacazette and Mkhitaryan! I was really lucky to go on a private tour at Watford FC’s stadium Vicarage Road. It was interesting to see behind the scenes and a bit strange to see the pitch and the stands completely empty as I’m used to going there on busy matchdays! I just found out which secondary school I’m going to and I’m really excited to start in September – I know from my cousins who go there that it’s a brilliant school!

WWW.POSABILITYMAGAZINE.CO.UK

73


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We provide a ‘home from home’ experience for those with limited mobility to enjoy a holiday with their friends and family. Eight individually designed holiday cottages sleeping 3-10 people Roll-in wet rooms in each property Wheelchair accessible with level access throughout Family and pet friendly Profiling beds, hoists and specialist equipment available All cottages have access to free WiFi

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DRIVING

ON YOUR MARKS, GET SET, RALLY Spinal Track launches UK’s first dedicated Rally Experience for disabled drivers Words by Colette Carr

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pinal Track is set to open its doors to the UK’s first Rally Experience designed specifically for disabled drivers. Founded by racing drivers Nathalie McGloin and Andrew Bayliss in 2016, charity Spinal Track gives people with disabilities the chance to take part in track driving experiences in specially adapted cars, and will open its latest outing on 10 April.

“Nathalie also made history on 3 March 2019 by becoming the first woman with a spinal injury to compete as a driver in a rally”

The world’s only female tetraplegic racing driver Nathalie McGloin last month became the first female with a spinal cord injury to pass the British Association of Rally Schools rally driving exam. With her newlyacquired rally licence, Nathalie also made history on 3 March 2019 by becoming the first woman with a spinal injury to compete as a driver in a rally, at the Donnington round of the MSN Circuit Rally Championship. Nathalie competed in her Porsche Cayman S and was the first competitor to be confirmed in the new GT class. The newly-formed class within the UK allows larger engined cars to take part in rallying.

There is no charge for drivers with disabilities to take part in the Rally Experience, where there are two automatic Toyota GT86 cars, which feature hand controls. Each of the two cars has a different hand control fitted and one also has a left foot throttle installed in order to suit as many drivers as possible. Both cars have bucket seats, harnesses, long travel suspension and a cage fitted. Nathalie McGloin commented, “We are extremely grateful to the Richard Burns Foundation for their continuous support of our charity, and this incredibly generous donation to our fleet, which is making it possible for us to extend our portfolio in this way. Until now, Spinal Track has focused its support for disabled drivers around track days and circuit activities. Thanks also to STANLEY, the new Rally Experience will allow us to diversify our offering, giving drivers the opportunity to freely experience a competition car not just on the track, but on the rally stage, too. Thanks to the kindness and generosity of all our sponsors and donors, we really do have the power to change lives, and make motorsport for everyone.” ■

www.posabilitymagazine.co.uk

75


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EMPLOYMENT

GETTING THAT

Words by Jane Hatton

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eonard Cheshire published some research recently, which found that 24% of UK employers said they would be less likely to hire someone with a disability. Of those, 60% were concerned that a disabled person wouldn’t be able to do the job. This just demonstrates how unenlightened some employers are. In better news, the research found the proportion of employers in the UK who say they would be more likely to employ a disabled person has almost doubled, from 11% in 2017 to 20% in 2018 (it’s still nowhere near enough though). Greater numbers of employers in the UK are also reporting that in the last 18 months they have hired a disabled person, with a rise from 69% in 2017 to 79% in 2018. This highlights two things that we should be doing as disabled people. No, we didn’t create the barriers that disable us, but we can help to knock them down.

“No, we didn’t create the barriers that disable us, but we can help to knock them down.” The first is to recognise that in reality, we are premium candidates. Far from being the ‘problem’ that some employers view us as, we are more often the solution to their problems. We bring with us different ways of thinking, different experiences, a new way of looking at things. Most of us are great problem-solvers. We have to be, to get around all the obstacles that society puts in our way! Our talents are just as important as anyone else’s, and usually we also bring additional empathy, determination, creative thinking and resilience. As well as recognising that we are premium candidates, we need to make sure employers realise that too. We can promote ourselves to them as bringing additional advantages with us. By showing them that with the right support we will really add value to their organisations. There is much evidence to show that more diverse teams make better decisions, and that more diverse organisations are more successful. Sometimes we

forget the value we bring, and it’s important that we remember, and keep reminding employers that we offer talent, rather than problems. The second thing is that we can find those employers who are more enlightened, and focus our efforts on them when we are looking for work. Employers who advertise on specialist job boards (like Evenbreak), or in disability magazines (like PosAbility), wouldn’t advertise in those places if they weren’t keen to employ us. When we find them, we can make it easier for them to hire us, by asking for any adjustments we might need, and letting them know about the support Access to Work can provide. And making sure they know about all the advantages of hiring a disabled person, and the additional skills we bring. The 24% of employers who said they were less likely to hire a disabled person are the ones who really deserve our pity. They are missing out on so much talent. With increasing skills shortages, and a growing understanding by employers of the value of a diverse workforce, soon they will realise we are premium candidates too. For further tips, and jobs from inclusive employers who are looking to attract more disabled candidates, have a look on the Evenbreak job board, evenbreak.co.uk.

www.posabilitymagazine.co.uk

77


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BRAIN TEASERS

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EMPLOYMENT AND EDUCATION

Regular columns and features on getting your dream job. Providing advice on CVs, interview tips and much more.

PERSONAL STORIES

Inspiring tales from our readers.

COMPETITIONS

Exclusive competitions that give you the chance to win dream holidays, amazing products and once in a lifetime experiences.

HEALTH AND FITNESS

We look at sports and activities available for you to get involved in to help you lead a healthy lifestyle.

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DAYS OUT

Great ideas for the whole family to enjoy.

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Fully accessible hotel with the facilities you need at prices you will love

Specialising in holidays where your mobility, learning disability or mental health will never stop you having a good time!

FULLY ACCESSIBLE

SPRING

TRIBUTE BREAKS FROM ONLY £180PP

The Bond Hotel, Blackpool is a family-run hotel that has been providing holidays for guests with disabilities and limited mobility for over 30 years. We provide all the everyday practicalities you need allowing you to relax, unwind, let your hair down and create memories to cherish.

including Dinner, Bed & Breakfast

NEW TRIBUTE LINE-UP

QUOTE & SAVE “PosAbility”

Care Support Packages

£20

available on all our breaks

Offering a unique solution to your respite needs by combining person focussed support coupled with a fully accessible break. Enabling you to have the freedom to enjoy a cabaret packed, seaside holiday.

PER PERSON

ON ANY 2019 BREAK

FULLY

AUSUPTPOIRSTIVME

L MENTA

COMPLETE

ASORLUITIONNG C H T L A HENCLUSIVE I

Call: 01253 341218

To request a brochure or visit www.bondhotel.co.uk

The Bond Hotel | 120 Bond Street | Blackpool | FY4 1HG /BondHotel

@BondHolidays

/TheBondHotel


Hyundai Tucson & Kona

Both available on Motability.

Hyundai Motability offers give people with disabilities a worry free and affordable way to lease a car in exchange for their mobility allowance. Book a test drive at hyundai.co.uk today.

Fuel consumption in MPG (l/100km) for the Hyundai Tucson: Combined 34.9 (8.1) – 49.6 (5.7). CO2 Emissions 173 - 125 g/km. Hyundai Kona: Combined 33.6 (8.4) – 56.5 (5.0). CO2 Emissions 158 – 111 g/km Models shown:

Tucson SE Nav 1.6 GDi 132PS in white and Kona S 1.0 T-GDi 120PS. To qualify for the Motability Scheme you must be in receipt of the Higher Rate Mobility Component of the Disability Living Allowance, the Enhanced Rate of the Mobility Component of Personal Independence Payment, the War Pensioners’ Mobility Supplement or the Armed Forces Independence Payment. Subject to acceptance of Motability application. The Motability Contract Hire Scheme is administered by Motability Operations Limited (Registered Company No. 1373876), City Gate House, 22 Southwark Bridge Road, London, SE1 9HB. Full written details, including terms and conditions, of the Motability Scheme are available on request from Motability. Please note 60,000 miles over 3 years are allowed on the Motability Contract Hire Scheme.


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