Posability Magazine - June / July 2017 by 2A Publishing

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June/July 2017

MAGAZINE

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MEET ‘LOST VOICE GUY’

Stand-up comedian with no voice takes stage and airwaves by storm

RECORD BREAKER Athletics’ Golden Girl Kadeena Cox

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Talent agency’s positive portrayal of disability

ALSO FEATURED...Carers Week/Superhero Hydro Girl/Autism-Friendly Shopping FC_June_July_FINAL_AB.indd 1

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MAKE EVERY TRIP AN ADVENTURE

With our Motability Scheme offers, you can be behind the wheel of a Volvo for less. A unique interior, intelligent design and innovative technology set these two models apart, so with the Motability Scheme you know you’re driving a great deal. DISCOVER THE VOLVO R ANGE SE ARCH VOLVO MOTABILIT Y

V40 D3 CROSS COUNTRY MANUAL WITH AN ADVANCE PAYMENT OF £1,599*.

V40 T3 MOMENTUM MANUAL WITH AN ADVANCE PAYMENT OF £499*.

METALLIC PAINT AND REAR PARK ASSIST INCLUDED.

Fuel consumption and CO2 figures for the Volvo V40 range in MPG (I/100 km): Urban 33.2 (8.5) – 70.6 (4.0), Extra Urban 54.3 (5.2) – 85.6 (3.3), Combined 44.1 (6.4) – 78.5 (3.6). CO2 emissions 149 – 94g/km. MPG figures are obtained from laboratory testing intended for comparisons between vehicles and may not reflect real driving results. *Advance Payment of £1,599 is for the Volvo V40 D3 Cross Country Manual. Metallic Paint and Rear Park Assist included. Advance Payment of £499 is for the Volvo V40 T3 Momentum Manual. Metallic Paint and Rear Park Assist included. Offer available on the Motability Contract Hire Scheme. To be eligible to join the Motability Scheme you must be in receipt of the Higher Rate Mobility Component of the Disability Living Allowance, the Enhanced Rate Mobility Component of Personal Independence Payment, War Pensioners’ Mobility Supplement or the Armed Forces Independence Payment, which will be taken in lieu of the four-weekly rental for 36 months’ duration. 60,000 mileage allowance over 3 years; excess mileage charges may apply. Offer available from 01/04/2017 to 30/06/2017 subject to availability at participating dealers. Offer not available with other promotions and may be subject to change. For full terms and conditions, visit www.motability.co.uk. Motability Scheme vehicles are leased to customers by Motability Operations Limited (Registered Company No. 1373876), City Gate House, 22 Southwark Bridge Road, London SE1 9HB.

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WELCOME June/July 2017

Using the media at all its levels as a positive platform from which to promote diversity and challenge discrimination is a hot topic among the disability community. That is why we have devoted a considerable number of column inches in this, the June/July issue of PosAbility, to the need for greater exposure for people with varying needs and characteristics in the media. In a bold move, dynamic, specialist talent agency Zebedee Management is going all out to challenge exclusion by working with a bank of talented photographers towards a society that is more accepting of people with disabilities. They insist there’s no reason why a person with a disability can’t be part of a high-end fashion campaign. And through their portfolio of artists who have a disability, they aim to persuade the fashion industry to consider using a diverse range of models – ‘real people’ – to promote their products. Find out more on page 34. Read on page 17 columnist Mik Scarlet’s frustrations about being overlooked for television and stage parts that portray a character with a disability, only to find that the roles are awarded to non-disabled actors. Similarly, teacher-turned-actor Sam Renke takes broadcasters, casting agents and advertising companies to task about why they so fear how the public would react to more diversity on their screens. Someone who is touring the country to challenge perceptions in the boldest of fashions is stand-up comedian and actor, Lee Rigby. Dubbed ‘Lost Voice Guy’, Lee

CONTRIBUTORS delivers his wit and observations with assistance from a communication aid which stores his jokes for delivery during his routine. Although his cerebral palsy resulted in the loss of his speech as a toddler, it didn’t hinder his dreams of becoming a comic and recipient of the BBC New Comic Award in 2014 and star of a new BBC Radio 4 sitcom to be broadcast next year. With social care a political hot potato, we celebrate the nation’s unsung heroes in Carers’ Week and meet some carers whose unequivocal love, commitment and patience know no bounds. With the school holidays on the horizon, our Kids’ Cabin pages are packed with news and things to do, like making your own picnic to share in an accessible National Park. There are our usual hot products, news of the birth of a cool, new superhero and an action-packed column from nineyear-old ‘wannabe’ Paralympian, Rio Woolf. PosAbility is your magazine and we want you to shape it. So, please get in touch with your ideas and comments about what you’d like to see on our pages. Until August…

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DISCLAIMER

PosAbility Magazine is published by 2A Publishing Limited. The views expressed in PosAbility Magazine are not necessarily the views of the editor or the publisher. Reproduction in part or in whole is strictly prohibited without the explicit written consent of the publisher. Copyright 2017 ©2A Publishing Limited. All Rights Reserved. ISSN 2049-2251

Contact Details: Caledonia House, Evanton Drive, Thornliebank Ind. Est., Glasgow, G46 8JT Tel: 0141 465 2960 Fax: 0141 258 7783

ability

June/July 2017

MAGAZINE

Nothing is Impossible...

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Acting editor

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03_welcome_AB.indd 3

Jane Hatton David Miller Janet Myers Sam Renke Mik Scarlet Dan White Rio Woolf Andy Wright

enquiries@2apublishing.co.uk www.posabilitymagazine.co.uk

MEET ‘LOST VOICE GUY’

Stand-up comedian with no voice takes stage and airwaves by storm

RECORD BREAKER

#StandTogetherForMCR

Call

Acting Editor: Niki Tennant Staff Writer: Lisa Mitchell Staff Writer: Colette Carr Designers: Abbie Bunton, Stephen Flanagan Marketing: Sophie Scott Sales: Val Speers

Athletics’ Golden Girl Kadeena Cox

To find out more about subscribing to PosAbility Magazine turn to P82

SITTING

Talent agency’s positive portrayal of disability

ALSO FEATURED...Carers Week/Superhero Hydro Girl/Autism Friendly Shopping

26/05/2017 13:02

JUNE/JULY 2017| ISSUE 37

CONTENTS 75

48 ENTER

NOW TO

WIN

Check out

P47

WIN!

AN iPAD

9.6 INCH, 32GB + WI-FI with Accessible Vehicles

03_Contents_SF_AB.indd 4

FEATURES 07 FYI

News, stories and updates from around the world

15 VOLUNTEERING COMBATS INTOLERANCE

How donating time encourages diversity and inclusion

17 ENTER STAGE RIGHT

Mik Scarlet calls for more disabled people to feature in the media

18 STOP LIVING IN FEAR!

Cuts threaten Sam Renke’s independent lifestyle

20 WHO CARES?

Unsung heroes share their stories in celebration of Carers Week

23 AUTISM-FRIENDLY SHOPPING EXPERIENCES

How responsible retailers are making

shopping trips a more relaxed affair for customers with autism

26 LOST A VOICE, FOUND A CALLING

‘Lost Voice Guy’ Lee Ridley on life as a non-verbal stand-up comedian with cerebral palsy

31 WHAT IT FEELS LIKE TO… …foster a disabled child

34 SITTING PRETTY

Progressive talent agency promotes positive portrayal of disability

37 HOT STUFF

A look at the most innovative, must-have products on the market

43 THE SOUND OF SILENCE

The deaf community’s ‘Café Without Words’ pops up in Germany

26/05/2017 14:26

23 68

44 SOME LIKE IT HOT

Disability dating expert’s tips on planning your first holiday together as a couple

47 WIN

An iPad 9.6 inch 32GB WiFi from Accessible Vehicles

48 MY MS WON’T DEFINE ME

Record-breaking Paralympian, Kadeena Cox on why her life doesn’t revolve around MS

51 TRAVELLING OVERSEAS FOR THE FIRST TIME? Accessible travel expert Andy Wright answers readers’ queries

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53 HOLIDAY FOCUS

71 71 KIDS’ PRODUCTS We try before you buy

We take a peek inside Norfolk Disabled Friendly Cottages

75 BE A BETTER ALLY…

54 PORTUGAL’S CAPTIVATING ALGARVE COAST

78 WHAT ARE MY LEGAL RIGHTS?

Janet Myers samples all this year-round destination has to offer

58 SOAP STAR CHERYLEE TURNS DRAMA QUEEN

Coronation Street actor does her bit to encourage entry into drama

… to your colleague with Down’s syndrome

Jane Hatton outlines what every disabled job applicant should know

79 PUZZLES

60 KIDS’ CABIN

Picnics in the park, the amputee with attitude and meet new superhero, Hydro Girl

26/05/2017 14:27

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FYI

News and stories from around the world

FOR YOUR INFORMATION

STYLE IS FOREVER ‘Style is Forever’ is the inspirational, dynamic marketing campaign Invacare is using to launch its new scooters: a series of high quality models unique to the company. The ambitious, highly creative campaign aims to inspire individuals and also to challenge preconceptions around mobility scooters, with bold images and strong messages to celebrate individuals who can embrace style at any age or ability. ‘Style is Forever’ combines very contemporary images with key messages to showcase the attributes and benefits of the new Comet and Orion scooters through the lives of six larger than life characters: Valentin, Betty, Filipe, Eva, Carlo and Ingrid. These characters are proud, independent and mobile to show how Invacare scooters can help people lead rich and full lives, bringing the scooters to life as the campaign unfolds. “We’re very excited to have such a different

campaign and break the mould in our marketing communication for scooters. This campaign offers a rich mixture of materials, and we’ll use both traditional and digital marketing to inform and delight both our dealers and consumers,” commented Melanie Scrivener, marketing communications at Invacare. Using a series of very individual characters, animations, videos, and images, the campaign aims to connect with consumers in a number of different ways but especially through the company’s social media channels and online marketing. ‘Style is Forever’ also cleverly communicates the scooters’ main attributes: style and design; comfort and control; safety and strength. For more information on this campaign and Invacare’s exciting products, visit www.invacarescooter.com

MAKING REFUELLING SIMPLE AND EASY FOR THE UK’S DISABLED DRIVERS Filling-up the car is one of the biggest challenges for the UK’s disabled drivers. That’s why Shell has joined forces with not-for-profit organisation fuelService to help drivers with disabilities receive assistance at the majority of its service stations. “Disabled drivers have always struggled to get their cars refuelled,” said Niall El-Assaad, fuelService’s founder. “In the past, the options were to use an infrared transmitter, but few service stations supported it, and at those that did, it hardly ever worked. The other option is to beep your horn, flash your lights and wave your blue badge about – which is potentially embarrassing and offers no guarantee of service.” fuelService changes this. Through a range of options including a smartphone app, an interactive voice phone number, SMS, and online at www.fuelservice.org/findstation, drivers can contact the service station before they make their journey to arrange for help when they arrive. Payment is secure too, with the Shell Fill-Up & Go mobile payment available at selected service stations. Further information including a walkthrough demo is available at www.fuelservice.org. • There are 2.38 million blue disability badges held in the UK as of March 2016.* • There are over 648,000 people in the UK who use Motability vehicles.** • 1.8 million people in the UK qualify for enhanced mobility payments.** • 1.9% (1.23 million people) of the UK population use a wheelchair.** *Source: UK Government **Motability Operations Ltd Annual Report 2016

www.posabilitymagazine.co.uk 7

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FYI

RELAXED THEATRE PERFORMANCES ARE JUST THE TICKET Following the sold-out success of the previous relaxed performances of Matilda The Musical, the Royal Shakespeare Company (RSC) will present its fourth at the Cambridge Theatre, Earlham Street, London, on Sunday, June 11. Building on the programme of relaxed performances that it has been running in Stratford-upon-Avon since 2013, the RSC is proud to have been among the first to adopt and promote the concept. This will be the eighth relaxed performance that the Royal Shakespeare Company has staged to date, and the National Autistic Society and Mousetrap Theatre Projects will again work closely with the RSC, offering full access to the theatre for people with autism and learning disabilities and their families. The performance provides a relaxed environment, with elements of the production adapted to reduce anxiety or stress. Lighting and sound levels are adjusted to soften their impact and there is a different approach to noise and moving around the auditorium during the performance. Designated ‘chill-out’ areas are provided outside the auditorium with soft seating and activities for people to use if they want to take a break from being in the auditorium. The Royal Shakespeare Company is offering tickets at the reduced rate of £25 and £10 which can be booked through the RSC Ticket Hotline or in person at the Cambridge Theatre box office. All bookers will be sent a visual story to help them familiarise themselves with the plot, characters and the setting before they arrive at the theatre. Detailed event and transport information will also be available from www.matildathemusical.com.

IT’S A RECORD! Blind Veterans UK has announced highest figures for beneficiary recruitment in the charity’s 102-year history. A record number of 940 new ex-Service men and women with sight loss in the UK are set to receive support from national charity Blind Veterans UK. Since 1915, Blind Veterans UK has supported more than 35,000 veterans to overcome the challenges of sight loss. In the 2016/17 financial year, more veterans than ever before accessed Blind Veterans UK’s free services, bringing the total number of beneficiaries up to 4,500. The growth of new beneficiaries is particularly welcome as the charity has recently set the ambitious target of doubling the number of beneficiaries to 8,000 by 2022. The charity recently launched new community support teams to provide increased tailored services closer to home with a view to giving more support to the charity’s older beneficiaries. The team also participates in outreach work by attending external events, with the support of 14 of its vision-impaired veteran volunteers, who travel all over the country speaking about the charity’s support at local events and exhibitions. They attended 170 events in the last financial year. If you or someone you know served in the Armed Forces or did National Service and are now battling severe sight loss, find out how Blind Veterans UK could help by calling 0800 389 7979 or visiting noonealone.org.uk.

Bookings can be made via the RSC Ticket Hotline

01789 403 493

“THE PERFORMANCE PROVIDES A RELAXED ENVIRONMENT, WITH ELEMENTS OF THE PRODUCTION ADAPTED TO REDUCE ANXIETY OR STRESS.”

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[Pic caption 1: left to right] Chris McLeary (ophthalmic technician at Aintree University Hospital), Harry and Peggy Grundy (Blind Veterans UK beneficiaries), Hilary Butter (eye clinic liaison officer at Aintree University Hospital) [Pic caption 2: left to right] Richard Helliwell (CEO, Scottish War Blinded), Alison Oliver (CEO, Visionary) and Lara King (No One Alone campaign group manager)

26/05/2017 12:03

JULIE JOINS CEREBRAL PALSY INTERNATIONAL SPORTS AND RECREATION ASSOCIATION Dr Julie McElroy has been appointed head of recreation of the Cerebral Palsy International Sports and Recreation Association (CPISRA). This latest prestigious appointment adds to Julie’s passion to fulfil and enable many more people like her with cerebral palsy to access recreational opportunities. Julie, whose worldwide adventures were charted in a previous issue of PosAbility Magazine, epitomises drive, motivation and passion for recreational opportunities. She is embarking on her new international role as governing body CPISRA sets out to engage with international organisations that deliver recreational opportunities for people with cerebral palsy. CPISRA sports are open to athletes with cerebral palsy, and athletes with similar disabilities resulting from other neurological disorders such as stroke or traumatic brain injuries. CPISRA’s premier event is the CPISRA World Games which will next year be held in Sant Cugat, Spain. The Games’ ethos is to provide a friendly and supportive environment that encourages and develops athletes. With its emphasis on youth and high dependency athletes, it acts as a catalyst for enhancing opportunity. Commenting on her appointment, Julie said: “I am looking to relish this new challenge. It very much interlinks to my passion and desire to help others access recreational opportunities. I look forward to sharing this journey as I take this role forward for CPISRA.” In recent years, CPISRA has developed and promoted adaptive sports such as boccia and CP football, both now Paralympic sports.

EDEN PROJECT WINS NATIONAL AWARD FOR INCLUSIVITY The Eden Project has been named the country’s best visitor attraction for inclusivity at the VisitEngland Awards for Excellence. Now in their 28th year, the VisitEngland awards attracted a record 600 applicants across 22 categories this year and competition was particularly fierce. Eden was competing for the Inclusive Tourism award with two other finalists – the Victoria & Albert Museum in London and The Deep aquarium in Yorkshire. Gordon Seabright, Eden’s managing director, said: “We are so proud to win this national award for all the work we do on inclusivity to enable everyone to visit Eden. “One of our most exciting recent developments is our fullyaccessible Cloud Bridge in the Rainforest Biome where all our visitors can experience travelling through swirling rainclouds. “We want to pay tribute to our whole team who have worked so hard in making Eden a special place for everyone.” Eden runs a number of accessibility schemes for visitors from providing easy access into what was once an old clay mine, to enabling visitors to view the treetops of the largest rainforest in captivity. There are accessible parking spaces and toilets, free entry for personal assistants, manual and powered wheelchairs available for free and information provided in large print, Braille and audio formats. www.edenproject.com

TIRED OUT

Sleep difficulties are a major concern for a huge number of families raising disabled children. As one exhausted parent put it, “We are tired all the time and some days, we can barely [Pic caption: from left] Eden’s Operations Manager Dave Folland, function”. Managing Director Gordon Seabright and Visitor Experience Manager Research by Family Fund showed 93% of families surveyed Jude Thorn with the VisitEngland Award for Excellence in Inclusive reported being awake during the night with their children, Tourism at the fully-accessible Cloud Bridge in the Rainforest Biome. 49% reported health issues as a result, while almost a third had not sought professional support. Family Fund has responded by working with families and a number of partner organisations, including Sense, Cerebra and The Children’s Sleep Charity, to provide a comprehensive and accessible resource for sleep support, where advice, information, resources and details of local support are available in one place. This sleep support hub, Tired Out, was launched in September last year, and it has received a very positive response from families. Find out more at www.tiredout.org.uk www.posabilitymagazine.co.uk 9

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26/05/2017 12:03

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24/04/2017 10:56 11:38 26/05/2017

FYI

BE A BUDDY TO UNACCOMPANIED DISABLED ADULTS ON SUPPORTED BREAKS Residential outdoor centre The Lake District Calvert Trust is launching a new proposition for visitors with low support needs who want to enjoy a residential stay without the need for a carer or family member to accompany them. The Lake District Calvert Trust is a residential outdoor centre with over 40 years’ experience in delivering challenging outdoor adventure holidays for people with disabilities. With an increasing number of adults visiting the centre on the shores of Lake Bassenthwaite, the new option of an unaccompanied stay helps visitors develop independence, confidence and self-reliance. Justin Farnan, business manager at the Calvert Trust explains: “Many of the disabled visitors that currently come to the centre have quite significant care needs and have to be accompanied. However, there are also many potential visitors who are independent in their day-to-day lives, but may just need some help and prompts through the course of their stay.” To provide this support, the trust is actively recruiting ‘buddies’- adults looking to take a working holiday in the beautiful surrounds of the Lake District. Ideally, they will have

HSBC UK ANNOUNCES NATIONWIDE ROLLOUT OF TALKING ATMS HSBC UK has rolled out more than 1,500 Talking ATMs across the UK, allowing customers who are blind or partially sighted to receive spoken instructions at cash machines. Working in partnership with the Royal National Institute of Blind People (RNIB), the audio

some experience of disabled adults or children in either their work or family life, or students over 18 studying subjects such as occupational therapy, nursing or teaching. Taking place over the summer school and college holidays, ‘buddies’ will be provided with full board and accommodation, as well as reasonable travel expenses from within the UK. They will not be giving care or medical support to guests, but will be helping them with things like getting their kit ready in the mornings, giving prompts for meal times and activity start times, providing physical support for those unsteady on their feet and supervising the swimming pool in the evening. There will be plenty of opportunity to have fun. If you’d like to know more about taking a working holiday in 2018 call 017687 72255 or by emailing on enquiries@lakedistrict.calvert-trust.org.uk

service will make it easier for those living with sight loss to retain their financial independence. Over two million people in the UK live with sight loss and of these, almost half feel cut off from people and things around them. Everyday tasks, such as withdrawing money or checking a bank balance on a cash machine can be difficult when you are blind or partially sighted, with over a quarter of people living with sight loss saying that getting information from banks was not accessible. People with sight loss will be able to use HSBC cash machines independently by simply plugging headphones into the cash machine audio jack and listening to instructions. For locations visit: www.hsbc.co.uk/1/2/ contact-and-support/branch-locator

HELP TACKLE DISABLED BAY ABUSE A common problem for many disabled motorists is not being able to park at their local supermarket because disabled bays are all occupied by cars not displaying a Blue Badge. Happening throughout June, the Disabled Motoring UK Baywatch Campaign researches the level of disabled parking abuse at supermarkets by asking disabled motorists to survey their own local supermarket car park. To take part in the Baywatch Campaign, all you need to do is download or complete the online survey form available between 1 and 30 June. With help from members of the public, Disabled Motoring UK will be able to collect this type of data which is a vital part of the process in understanding the problem at supermarkets. The results of the campaign will be published in the September edition of Disabled Motoring and on the charity’s website. Disabled Motoring UK first launched its Baywatch Campaign in 2002. Specifically, they count how many disabled bays are provided and how many cars are parked in them without displaying a Blue Badge. The other information requested is for details of the type of enforcement (if any) carried out by the parking operator responsible for the car park. Details of the operator and enforcement should be displayed on the signage near disabled bays. When the survey closes, the results are calculated, published and sent to supermarkets to encourage them to work with the charity to improve their parking policies with regard to tackling disabled bay abuse by using effective enforcement. The Baywatch campaign also aims to change public attitudes by bringing to the attention of disabled bay abusers the impact their actions can have. The survey and further infocan be found at www.disabledmotoring.org/baywatch/ baywatch-2017

PosAbility Magazine is a proud supporting organisation of the Disabled Motoring UK Baywatch Campaign 2017 www.posabilitymagazine.co.uk 11

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26/05/2017 12:04

SpeediCath© Flex made me think again about trying a new catheter. My name is evan Baker OBE and I am a T12/L1 complete paraplegic as a result of road traffic accident in 1 . I did my acute and rehabilitation phases of recovery at the orkshire Regional Spinal Injury Centre in Wakefield Pinderfields .

Over the years I have tried various solutions to help manage my bladder ranging from sheaths to indwelling catheters with varying results. In 1 6 I underwent bladder surgery and have been using intermittent catheters ever since, and have been using the same catheter for the last 6 years. In August of this year, I saw a demonstration of Speedicath Flex and immediately felt that it was far more suitable than anything else I had seen or used before, so when I was asked if I would take part in a trial, I didn’t hesitate to say yes. I am a very active paraplegic and therefore need something that is quick, easy and flexible to use, whilst giving me the confidence that I won’t need to touch the catheter during insertion. SpeediCath Flex is just that. The first time I used Flex’ it was far easier than I had imagined. I immediately used my existing catheter just to check that my bladder was completely empty and it was. Having used Flex a few times I realised some of the additional benefits it provided, for example its clever packaging allowed me to discretely dispose of the catheter in a public waste bin, without any mess or fuss. I also loved the ease with which I could store several of them in my bum bag under the wheelchair. I, more than anyone, was aware that trying to influence someone with a spinal injury to change catheters was like asking someone to move their Bank Account’ but this experience has been enough to make me think again. A resounding success. Well done!

The Coloplast logo is a registered trademark of Coloplast A/S.

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VOLUNTEERING

CASE STUDIES JONATHAN LAWRENCE (22)

THE ROLE OF VOLUNTEERING IN

INTOLERANCE

s shocking instances of intolerance, hostility and hate crime against people who have a disability continue to rise, a study has revealed that volunteering combats intolerance and encourages diversity. According to Home Office statistics, hate crimes – including those against disabled people – soared by 19% between 2014-15 and 2015-16. The study, by charity Revitalise, has discovered that student volunteers are leading the way when it comes to making society more tolerant. 95% of student respondents said that volunteering for Revitalise had made them more tolerant towards others and 96% reported that it had made them more aware of diversity issues. Eight out of 10 said that volunteering had inspired them to play a more active role in their home communities. Revitalise is a national charity providing

Words by Niki Tennant

respite care in a holiday setting for disabled people and carers at three accessible centres in Chigwell in Essex, Southampton and Southport, with 24-hour nurse-led care on-call, personal support and a range of accessible excursions, activities and entertainment. The charity runs the largest residential volunteer programme of any UK charity. Volunteers are integral to Revitalise’s mission to enhance the lives of disabled people and carers by providing vital opportunities for social interaction. “We live in challenging times,” said Revitalise chief executive, Chris Simmonds. “Society is becoming increasingly polarised, so we were very heartened to discover that our young volunteers are really flying the flag for tolerance and diversity. “It is also very encouraging to find that not only do our student volunteers become more optimistic about their own futures, they are also inspired to play a key role in improving society too.”

“I got involved with the Goldcrest House volunteering programme because I like gardening. I was matched with The Green Team – a Goolebased gardening charity that helps elderly and disabled people maintain their gardens. “I was given help with signing up and I now work from 9am to 3pm on a Friday. “I knew a little bit about gardening and it keeps me busy and helps me meet new friends.”

DAWN FIELD (52) “I have a part-time catering job and wanted to fill the few days I have spare by working elsewhere. I volunteer for two hours twice a week with Cancer Research. “I was very nervous on my first day, but a support worker from Goldcrest stayed with me and now I can do it on my own. “I help the store manager and other volunteers by sorting donated goods and preparing them for sale in the shop. I like sorting and hanging the clothes and putting the size cubes on the hangers. “I have made new friends – Jackie and Dave - through volunteering. It has definitely given me more independence and I’m better at mixing with others. “If you are thinking of volunteering, I’d say, yeah. Go for it!”

83% of the 608 volunteers who provided feedback were full-time students. www.posabilitymagazine.co.uk 15

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25/05/2017 22:21

VOLUNTEERING

CASE STUDIES PHILIP PRIESTLY (51) “I volunteered through Goldcrest House because I wanted to get out and do some work.

For more information about volunteering for Revitalise, call 0303 303 0145, email volunteer@revitalise.org.uk or visit www.revitalise.org.uk.

PLUGGING THE GAP Just as there is a substantial gap between the employment rates of working age people with disabilities and the general population, disabled people are also under represented in volunteering roles. Only 38% of people with a disability or long-term limiting illness participate in formal volunteering, compared to 46% with no disability. The rights of disabled people in employment are safeguarded by the Equality Act 2010. Not so for volunteers, who have no formal protection under the

DOUG Doug was finding it difficult to cope with daily life before volunteering. He has a stammer and said he found it hard to socialise. He went on to volunteer for up to four days a week at a furniture recycling project, The Loop, and has now been taken on as a core member of staff. Doug said: “I got in touch with Active Volunteering Barnet because I really wanted something to give my life structure and focus, make me feel like I

law – and that may explain why, with so many disabled people out of work, the number of disabled volunteers is not as high as one might expect.

“I worked at Emmaus charity shop – a homeless charity in Goole and I applied for Dove House, another charity shop for people with bad illnesses like cancer. I did two hours a week.

For disabled people, volunteering roles often provide essential opportunities in a more person-centric environment.

“I put clothes on hangers and sorted the good things from the bad things, things that don’t work or are ripped.

It has been repeatedly demonstrated that volunteers can acquire new skills, boost their confidence and enjoy general improvements in health, wellbeing and happiness – all of which can put them in a better position to secure employment. But what can volunteer-engaging organisations bring to the equation?

“What I enjoy most is working hard, getting more experience and making new friends. It has taught me to deal with things that are difficult like pricing and sizing.

By properly appreciating and harnessing diversity, organisations that involve volunteers help to improve understanding of accessibility issues for disabled people and break down false perceptions or stereotypes, thus creating a more welcoming environment for volunteers who have a disability.

was moving forward and using my carpentry skills from the course I did years ago. I didn’t know where to start though, or if I would be good at anything. “My favourite thing about The Loop is the people. People power – it’s certainly empowered me – but also making people happy. When someone has huge piece of furniture taking up space in their house, we take it away for free. That makes people happy. When people come in and get a nice new table for cheap, that makes people happy. We get to make people happy. I love the joy of this place.”

“If someone is considering volunteering for the first time, I would ask them what they wanted to do, what they wanted to get out of it and I’d ask them to talk to me because I have more experience. “It has made me a lot more independent and I feel healthier and happier.” The Goldcrest House centre of excellence in Goole, Yorkshire, is dedicated to addressing the individual needs of adults who are on the autistic spectrum. Service users are given opportunities to volunteer in the community in retailing, horticulture or catering with the aim of improving personal development and understanding of the wider world to increase independence and self-esteem. www.goldcresthouse.org.uk Tel: 01405 763607 www.volunteeringmatters.org .uk

16 www.posabilitymagazine.co.uk

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25/05/2017 22:22

Columnist Mik Scarlet

THE MIRROR CRACKED

began my acting career

in 1990, when I appeared in the Channel 4 soap opera, Brookside. My casting was met with much fanfare by the press, including a double page spread in the now defunct News Of The World and I had a documentary made to mark the event by C4. I went on to play cameo characters in many TV dramas and comedies, but I gave up acting as I found myself auditioning for more and more roles that went to nondisabled actors. Roll forward 27 years and it’s still happening. Only a few years back, after deciding to return to the Thespian life as I felt the grease paint calling darling, I went up for a series of roles only for them to go to nondisabled actors yet again. I’m writing this during Mental Health Awareness month, and I know that living in a world with very few real disabled role models impacts on the mental health of disabled people. It did on me. For most of my adult life, I have lived with body dysmorphia. This is where you do not

Follow Mik on Twitter

@MikScarlet

“I GAVE UP ACTING AS I FOUND MYSELF AUDITIONING FOR MORE AND MORE ROLES THAT WENT TO NON-DISABLED ACTORS.”

see your body the way it truly is and this can be a root of issues like anorexia and bulimia.

because I think it’s vital for the next generation’s confidence and self-worth.

I battled bulimia in my youth. I recovered but have had to battle with the dysmorphia ever since. Having very few disabled role models meant that I judged my body against non-disabled people’s ‘perfect’ bodies. The person I saw in the mirror did not look like the people I saw on TV or the posters on my wall.

Things have improved in recent years. We now have disabled actors in most soaps, the amazing Liz Carr stars in Silent Witness, my fellow PosAbility columnist Sam Renke is rocking it in those saucy Malteaser adverts and Mat Fraser is making history as the first disabled actor to play Shakespeare’s infamous Richard III.

Disabled bodies have distinct shape, a beauty of their own, but if we don’t see that, who will we compare ourselves to? No amount of research can change the shape of an actor’s body. None of the actors who got the parts I went for developed the thinner legs and huge upper torso that I have, thanks to years of being a manual wheelchair user.

Yet, the musical The Braille Legacy has cast a sighted actor to play one of history’s most famous blind people, and it has no disabled actors in the cast, despite the Ramp’s On The Moon’s production of rock opera Tommy, with its integrated cast of disabled and nondisabled actors touring the UK to rave reviews.

Disabled people face many barriers to creating a positive self-image. How our parents and families react to our impairment, what school we attend and whether we make friends all leave a mark. I am passionate that we see more real disabled people in the media and arts

Of all the reasons why it is so important for more disabled people to feature in all areas of the media, our own mental health isn’t mentioned very often. I want the next generation of disabled people to be able to say my heroes are like me, and not people pretending to be like me.

www.posabilitymagazine.co.uk 17

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25/05/2017 21:51

Columnist Sam Renke

STOP LIVING IN FEAR!

Our favourite teacher-turnedactress, Sam Renke, brings you her take on life and the colourful experiences it throws her way. You can follow Sam on Twitter @samrenke

’ve always seen myself as a happy, optimistic person, someone who never lets their disability limit them. I’ve prided myself on this ‘can do’ attitude and although having faced adversity throughout my life, I’ve never let people tell me I can’t or let the fear of uncertainty stop me living my life to the fullest. Having said that, I am no wonder woman and in recent months that optimism and ‘nothing can stop me’ attitude has taken a heck of a knock!

With the introduction of policies such as Personal Independence Payment (PIP) replacing Disability Living Allowance (DLA) along with the Government cutting over 900 mobility vehicles per week - and let’s not forget everyone’s “FOR THE FIRST TIME IN MY LIFE, I FEEL favourite, Brexit- ensuring SCARED, UNSAFE AND UNCERTAIN AS that there will be a TO WHETHER MY FUTURE AND THE shortage of personal/care SUCCESSFUL LIFE I’VE MADE FOR assistants has meant that MYSELF LIVING INDEPENDENTLY IN living independently in an LONDON MAY COME TO AN END.” equal society has come under attack. For the first time in my life, I feel scared, unsafe and uncertain as to whether my future and the successful life I’ve made for myself living independently in London may come to an end. Only last month, I received a gutwrenching letter from my local council informing me of a suspension of a benefit I rely on greatly. This suspension was triggered simply because I was innocently unaware of one of their legislations and hadn’t informed them as quickly as they

had liked. My heart skipped several beats upon reading the letter and its content brought me to tears. That night was a sleepless one and I woke up feeling angry. I wasn’t angry at the council however, or the Government. I was angry at myself. The reality is we live in very scary times, times of uncertainty and financial cuts. What’s happening is appalling beyond words but living in fear won’t change a thing. There are 13 million disabled people within the United Kingdom and the disability community is the fastest growing minority. Collectively, we have a voice and it’s a strong one at that. We each have our own stories to tell and experiences to share. The main problem in my opinion, is that it’s hard to get others to help fight our cause if they are not affected directly by disability. Society can read about the cuts that are being imposed but unless we humanise and put a face to what these policies are doing to individuals, families and communities, very little action will be taken. So, what can I do, I hear you cry? Well, for starters, I’ve made a promise to myself to stop living in fear and I urge you all to do the same. Then remember that one voice, one story, one Tweet, one newspaper article or Facebook post can and will make a difference when that one story is teamed by another and another and another... I’m proud to be part of the disabled community and together we are a force to be reckoned with! Now is the time to be vocal!

18 www.posabilitymagazine.co.uk

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26/05/2017 11:48

The Ultimate The Ultimate Driving Machine Driving Machine

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BMWRANGE RANGEFROM FROM£999 £999ADVANCE ADVANCEPAYMENT PAYMENT*. BMW The BMW SeriesActive ActiveTourer Tourerisisnow nowavailable availablefrom from£999 £999 Advance Advance Payment • •The BMW 22 Series Range also includesthe theBMW BMW11Series Series(3-door (3-doorand and5-door), 5-door), BMW BMW X1, X1, seven-seat BMW Touring • •Range also includes BMW 22 Series SeriesGran GranTourer Tourerand andBMW BMW33Series SeriesSaloon Saloonand and Touring Selected models accessibletotodrivers driversunder under25 25years yearsold old • •Selected models accessible Manual automatictransmission transmissionand andhigh highstandard standardspecification specification includes includes metallic metallic paint, • •Manual oror automatic paint, BMW BMWEmergency EmergencyCall Calland andBMW BMWNavigation Navigation A brand-new BMWevery everythree threeyears yearswith withinsurance, insurance,service service and and maintenance maintenance all • •A brand-new BMW all covered covered

help findthe theright rightBMW BMWfor foryou, you,call call0800 0800 325 325 600, 600, visit visit bmw.co.uk/motability bmw.co.uk/motability or ToTo help find or contact contactthe theMotability MotabilityScheme Scheme Specialistatatyour yourlocal localBMW BMWCentre. Centre. Specialist

Official fuel economyfigures figuresfor forthe theBMW BMWrange rangeavailable available on on the the Motability Motability Car Official fuel economy Car Scheme: Scheme: 40.4-68.9mpg 40.4-68.9mpg(7-4.1 (7-4.1l/100km). l/100km). Extra Urban 60.1-85.6mpg(4.7-3.3 (4.7-3.3l/100km). l/100km).Combined Combined51.4-78.5mpg 51.4-78.5mpg (5.5-3.6 (5.5-3.6 l/100km). emissions129-89g/km. 129-89g/km. Extra Urban 60.1-85.6mpg l/100km). CO CO2 emissions 2 Figures are obtained in a standardised test cycle. They are intended for comparisons between vehicles and may not be representative of what a user achieves under usual driving conditions. Figures are obtained in a standardised test cycle. They are intended for comparisons between vehicles and may not be representative of what a user achieves under usual driving conditions.

*The BMW range available on the Motability Scheme starts from £999 Advance Payment for the BMW 216d SE Active Tourer, BMW 118i SE 3-door and 5-door Sports Hatch. Models shown are the BMW 216d Luxury Active Tourer from *The BMWAdvance range available onBMW the Motability Scheme starts from £999from Advance the BMW 216d Active Tourer, BMW 118i SE 3-door and 5-door Sports Hatch. shown are £1,899 the BMW 216d Luxury Active Tourer £1,599 Payment, 118i M Sport 5-door Sports Hatch £1,999Payment Advancefor Payment, BMW X1SE sDrive18d SE from £1,499 Advance Payment and BMW 216d SportModels Gran Tourer from Advance Payment. Prices are from £1,599 Advance BMW M Sport 5-door Hatch from £1,999 Advance Payment, BMW X1 sDrive18d SE from £1,499include Advance Payment and paint BMWat216d Sport Gran Tourer from £1,899 Advance Payment. Prices are correct at timePayment, of going to print118i for orders placed andSports accepted between 1 April and 30 June 2017. All models on the Motability Scheme optional metallic no extra cost. Models featured may include options at an additional correct at time of going to print for orders placed and accepted between 1 April and 30 June 2017. All models on the Motability Scheme include optional metallic paint at no extra cost. Models featured may include options at an additional cost. The facilities offered are for the hire (bailment) of goods. The Motability Scheme is administered by Motability Operations Limited (Registered Company No. 1373876), City Gate House, 22 Southwark Bridge Road, London SE1 9HB. cost. facilities offered for the (bailment) of goods. The Motability Scheme is administered by Motability Operations Limited (Registered Company 1373876), City GatePayment House, 22 Southwark Road,Mobility London SE1 9HB. ToThe qualify you must be inare receipt of hire either the Higher Rate Mobility Component of Disability Living Allowance, the Enhanced Rate of the Mobility Component of No. Personal Independence (PIP), the War Bridge Pensioners’ To qualify you must be inorreceipt of either the Independence Higher Rate Mobility Component of Disability Living Allowance, theweekly Enhanced Rate of the Component Personal Supplement (WPMS) the Armed Forces Payment (AFIP), which will be taken in lieu of the four rental. Terms andMobility conditions apply andof are availableIndependence on request. Payment (PIP), the War Pensioners’ Mobility Supplement (WPMS) or the Armed Forces Independence Payment (AFIP), which will be taken in lieu of the four weekly rental. Terms and conditions apply and are available on request.

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26/05/2017 10:56

Image © Chris Steele Perkins

Doting mother Jacqui and son Joshua

WHO CARES? As the UK prepares to mark Carers Week from 12-18 June, PosAbility dives into another initiative that sets out to support and champion those in a position of care. Words by Colette Carr

arer Friendly Communities are defined as: “... every corner – from the hospital, workplace, primary school, to leisure services and beyond – is geared towards addressing the needs of carers. “This means that if you're caring for someone unpaid, local services and systems will remove obstacles and make sure things are done differently so your life is a little bit easier.” Working with Carers Week and the associated charities and organisations, Carer Friendly Communities listen to and implement the needs of carers in communities working with partner organisations and services to do so. It is well documented that many carers sometimes see their own health suffer as a

result of the associated stress, pressures and sometimes isolation amongst other issues that go hand in hand with being a full-time carer. By working towards supporting those who support others, Carers Week say we can help relieve some of those pressures and offer a better quality of life to all involved. Every area of daily life can be a part of a Carer Friendly Community. Health services may offer flexible appointment times to suit a carer’s schedule, record if a patient is a carer to know when to offer support or impart advice, advertise support for carers in waiting rooms, develop a practice policy for carers informed by carers and the patient participation group, introduce carer’s passports, offer home delivery of prescriptions or introduce carer-friendly policies, such as allowing some carers to spend time with their family member or friend outside of visiting hours or giving them free car parking.

20 www.posabilitymagazine.co.uk

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26/05/2017 11:45

CARERS WEEK

3 5

Employers could offer flexible working practices or hours, offer paid care leave, set up a support network for carers or offer constant and supportive communication. Many young carers can see their education take a hit if caring takes its toll and then in turn stress more about the future leading to further health problems. On top of ensuring safe and trusted support is constantly offered, deadlines may be moved or made flexible, distance learning may be implemented or caring introduced as a subject within the school curriculum. Talk about caring as a normal part of life, whether it is having grandparents who support each other, a brother or sister with a disability who needs care, or being a carer yourself. By making communities carer-friendly, stress may be eased or relieved for the rising numbers of carers in the UK such as Julie, Jacqui and Helen.

THE REALITY

Here are some stories of just how much being a carer can impact on your entire life. Single mum Julie, 56, from Renfrewshire, Scotland, cares for her teenage son Lewis who has complex disabilities and provides increasing support for her ageing parents. Lewis has drug-resistant epilepsy, cerebral palsy and autism and she helps him in all aspects of daily life, giving up her career to care for him from his birth. Julie now lives with chronic pain and an immune disorder, which went undiagnosed and untreated for years. She said, “You put your own health on the back burner. I think my health suffered terribly when Lewis had surgery. For me, it was a terribly traumatic time but there just wasn’t time for me to think about my health.” Jacqui, 56, from Leicestershire, is a fulltime carer for her son Joshua, 25, who has

£5.3

BILLION

THE COST TO THE ECONOMY OF CARERS HAVING TO LEAVE WORK

Down’s syndrome. Her work was supportive but it was hard to carry on and she had to leave. Giving up her home and living on benefits, she does receive some support for Joshua, but not enough to allow her to go back to work. Jacqui spends her spare time volunteering and helping other carers and singing in a carers’ choir after her GP encouraged her to socialise and not become isolated looking after Joshua who is nonverbal full-time. Helen, 53, from Newbury, cares for her 19-year-old son James who has Down’s syndrome. She also cared at a distance for her dad in Swansea until his death and her husband cares for his own mum. Caring has become an increasingly dominant part of Helen and her family’s lives. Her sister also cared for their dad and also cares for her own husband. Helen’s husband had taken on increasing caring responsibilities for his own mum, helping her manage her finances and maintain her home and garden.

“MANY YOUNG CARERS CAN SEE THEIR EDUCATION TAKE A HIT IF CARING TAKES ITS TOLL AND THEN IN TURN STRESS MORE ABOUT THE FUTURE LEADING TO FURTHER HEALTH PROBLEMS. ”

6 10

IN THE NUMBER OF CARERS WHO SAY THEY HAVE REACHED BREAKING POINT

1/4

THE NUMBER OF CARERS WHO HAVE SUBSEQUENTLY REQUIRED MEDICAL TREATMENT

carersweek.org

IN THE NUMBER OF US WHO WILL BE CARERS IN OUR LIFETIME

9 MILLION THE PREDICTED NUMBER OF CARERS IN THE UK BY 2037

3 4

IN CARERS SAY THEY WERE NOT PREPARED

1 5

IN UK ADULT CARERS WHOSE WORK HAS BEEN NEGATIVELY AFFECTED

2.3

MILLION – CARERS HAVE HAD TO QUIT WORK

3 MILLION

CARERS HAVE HAD TO REDUCE THEIR WORKING HOURS

54%

THE NUMBER OF CARERS WHO ARE STRUGGLING TO PAY THEIR BILLS

35%

THE NUMBER OF CARERS WHO HAVE CUT BACK ON ESSENTIALS (FOOD AND HEATING)

40%

THE NUMBER OF CARERS WHO HAVE HAD A BREAKDOWN IN A RELATIONSHIP

60%

THE NUMBER OF CARERS WHO SAY THEY HAVE HAD TROUBLE MAINTAINING FRIENDSHIPS www.posabilitymagazine.co.uk 21

020_Carers_week_SF_AB.indd 21

26/05/2017 11:46

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Free UK-wide home demonstrations call 0800 916 3053 26/05/2017 10:57

SHOPPING

People on the autistic spectrum can find a busy, loud and unpredictable shopping environment overwhelming. Some retailers are taking steps to help make autistic customers feel more at ease.

AUTISMFRIENDLY

SHOPPING Words by Lisa Mitchell

ore than 700,000 people in the UK live with autism; that is one in 100 people. If you include everyone that autism touches, family and friends, that figure rises to a mammoth 2.8 million people. For as many individuals and their loved ones as this affects, there is still a lack of understanding and support in the community.

severe mental health difficulties, such as anxiety and depression, for this reason.

Nearly two-thirds of adults with autism donâ&#x20AC;&#x2122;t feel they have enough support to meet their needs. On top of this, one in three adults with autism experience

Responding to a survey by the National Autistic Society, one in four have been asked to leave a public place because of their autistic behaviour. This makes essential,

Some of the core features of autism, such as not understanding some of the mechanics of conversation and social interaction, can cause anxiety and 90% of people with autism have sensory issues, which has a staggering impact on their quality of life. It can lead to the person feeling very anxious about the environment they find themselves in.

www.posabilitymagazine.co.uk 23

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25/05/2017 17:57

SHOPPING

daily routines almost impossible to overcome, such as shopping. However, some shopping centres and high street retailers have put into practice autism-friendly shopping days in a bid to help their autistic customers feel more relaxed and hopefully have an enjoyable experience whilst carrying out vital food shopping or even just browsing the latest fashions or toys. Some of the main vendors that have started these initiatives are: • Trafford Centre, Manchester • Intu Braehead, Glasgow • Cheshire Oaks, Liverpool • Asda • Sainsbury’s • Tesco • Toys’R’Us •M&S To name but a few. Sainbury’s trialled autism-friendly shopping experiences in a number of their Liverpool stores. The supermarket giant’s spokeswoman said: “Members of staff at the selected stores have received training from community enterprise Autism Adventures on the symptoms of autism and what can make a supermarket visit stressful for children with autism, as well as practical tips to help. They also spent time with a child with autism to learn from them directly. “Sainsbury’s are using the trial to learn from parents of children with autism about what would give them the best possible experience. Each store has activity bags available upon request, designed in partnership with a local autism charity. “Parents are able to request a number of store modifications when they begin their shopping trip, from turning off the tannoy to opening ‘priority’ checkouts should queuing be particularly difficult for their child. Parents can also request music in the café to be turned off and can use the Assisted Shopping service. The service, available to customers in all stores at any time, provides colleague assistance to those who find shopping difficult – from colleagues pushing a customer’s trolley to packing their bags and taking it to the car.” These changes are here to stay. Customers

“IT’S SO ENCOURAGING TO SEE A GROWING NUMBER OF BUSINESSES TRYING TO BECOME MORE ACCESSIBLE BY HOLDING QUIET HOURS OR ADAPTING THEIR EVERYDAY PRACTICES. can now ask for any of these services in an attempt to make their journey to the supermarket easier. Natalie Dunn, Sainsbury’s Head of Customer Experience, said: “We want all of our customers to have a great shopping experience in our stores. There are many aspects of a visit to the supermarket which can be stressful for parents of children with autism, so we are trialling ways in which we can make their lives easier. “We’ve invested in bespoke training for our colleagues in the area, all of whom are keen to put their learnings into practice and make a positive difference to our customers’ lives. We are excited to hear feedback from parents of children with autism and hope that the learnings from this trial will enable us to make a difference to customers across the UK.” The efforts of stores like Sainsbury’s have not gone unnoticed. They have been praised by non-disabled families and the highest echelons of the autistic community in the UK alike.

Daniel Cadey, Autism Access Development Manager at the National Autistic Society, said: "Like anyone, people on the autism spectrum and their families want the opportunity to go shopping. But many find the busy, loud and unpredictable environment overwhelming sometimes avoiding shops altogether. “Through helping organisations achieve our Autism Friendly Award, we know that it’s often the smallest changes that make the biggest difference. For instance, making sure that staff are aware of and understand hidden conditions like autism, or that there are quieter places for autistic shoppers to go if they're feeling overwhelmed. “It’s so encouraging to see a growing number of businesses trying to become more accessible by holding quiet hours or adapting their everyday practices. An example of this is the intu Trafford Centre which achieved its Autism Friendly Award in 2015. Every staff member at the Centre now receives autism training and they have produced autism-friendly guides and developed alert cards to help customers during every stage of their visit." As people become increasingly aware of what autistic behaviour is and how to help, more stores are training their staff to help autistic people and their families. Ask to find out if your favourite stores provide these services.

24 www.posabilitymagazine.co.uk

023_autism_friendly_shopping_SF_AB.indd 24

26/05/2017 11:56

Award Winning Care Homes

Care homes for people with learning and/or physical disabilities, neurological conditions, acquired brain injury and autism:

Sussex Healthcare is an award winning group of care homes providing over 30 years of healthcare in Sussex. The Group operates 20 homes, predominantly in the West Sussex area, providing over 600 placements, incorporating specialist care provision as well as care for older people. Care for older people: Clemsfold House Forest Lodge Horncastle House Kingsmead Care Centre Longfield Manor Rapkyns Care Home Upper Mead

Horsham Nutley Sharpthorne Horsham Billingshurst Horsham Henfield

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01403 327500

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Kingsmead Lodge

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01403 211790

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Horsham

01403 218876

Orchard Lodge and Boldings Lodge

Horsham

01403 242278

Rapkyns Care Centre (The Grange)

Horsham

01403 276756

The Laurels

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01403 220770

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Horsham

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Sycamore Lodge

Horsham

01403 240066

White Lodge

Croydon

02087 632586

Wisteria Lodge and Stable Lodge

Nutley

01825 713082

Woodhurst Lodge

Crawley

01444 401228

STOP PRESS: Brand new purpose built facilities now available to view for anyone wishing to arrange a visit. The service provisions include specialist care facilities for people with acquired brain injury, profound learning and physical disabilities and residential services for people with Autism.

Great care starts with great people â&#x20AC;&#x201C; are you one of them? Due to expansion, Sussex Healthcare has fantastic opportunities to become part of a leading healthcare company that provides exemplary care to the service users in a positive and friendly environment.

If you are thinking of a career in care please visit our website www.sussexhealthcare.co.uk and submit your CV to recruit@sussexhealthcare.co.uk stating the position you are interested in working in.

To find out more about our homes and the services we offer, contact: Corrine Wallace Director of Operations

01403 217 338

enquiries@sussexhealthcare.co.uk | www.sussexhealthcare.co.uk

Ads_Pos_jun-Jul17.indd SHC A4 Generic Ad.indd 25 1

26/05/2017 09/01/2017 10:57 14:39

LOST A VOICE

Images © Caroline Briggs

Words by Lisa Mitchell

FOUND A

CALLING L

ee Ridley has gained his fame as a stand-up comedian with a difference. Going by the pseudonym ‘Lost Voice Guy’, his cerebral palsy affects his speech and he can’t communicate without a communication aid. But, instead of hindering his dreams of becoming a comic, it seems to be propelling him forward, receiving the BBC New Comedy Award in 2014. The 36-year-old Geordie has also opened shows for the likes of Ross Noble, Patrick Kielty, Jason Manford and Jason Cook. Little Britain’s Matt Lucas also labelled him “a wonderful comedian”. So, what is the secret to his success? PosAbility Magazine caught up with the Edinburgh Fringe regular whilst on tour to see what life has been like for the speechless funny man, who proved anything but silent!

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LOST A VOICE

INTERIEW: LEE RIDLEY HAVE YOU ALWAYS BEEN INTERESTED IN COMEDY?

Yes, I have actually. I can still remember watching videos of Jack Dee and Lee Evans when I was about 14, so I guess it’s just grown from there. I used to love watching stuff like ‘Have I Got News For You’ on the television, too. Then when I was a bit older, I started going to comedy gigs and going to the Edinburgh Fringe as a punter. I think that’s when I really got into it. Comedy has always been a big part of my life.

WHEN WAS THE DEFINING MOMENT THAT YOU REALISED YOU WANTED TO BE A COMEDIAN?

stage and making people laugh. It’s a very good skill to have and I’m lucky that I get to put it to good use.

WHAT WAS YOUR BEST/MOST MEMORABLE GIG?

I’m a massive fan of Ross Noble, so when he asked me to support him on his warm up tour a few years ago that was a very proud moment for me. I grew up watching Ross do comedy and now here I was getting the chance to support him at a gig. It was a very surreal experience and I still can’t quite believe it happened!

I don’t think I can put a finger on a defining moment. It was more of a gradual realisation. Certainly after my first gig, I knew that I had caught the bug and I knew that it could be something I’d enjoy doing. It was a massive buzz to make people laugh, so I couldn’t wait for my next gig. I never ever expected it to be a career, though. I just thought it was a bit of fun. It was only when I won the BBC New Comedy Award in 2014 that I realised that I probably could make a living out of it and I haven’t looked back since.

CAN YOU TELL ME THE STORY OF HOW YOU CAME TO NEED A COMMUNICATION AID?

I was very ill when I was six months old and I ended up with cerebral palsy as a result. In my case, this meant that I lost my speech, I walk very funny and my right side of my body is weaker than my left.

WHAT WAS IT LIKE STARTING OUT AS A COMEDIAN?

My first ever gig was very scary indeed. Mainly because no one had ever done comedy with a communication device before so I wasn’t sure if it would even work. I had visions of me just standing there telling jokes to myself, while everyone else couldn’t understand me. Once my first gig was out of the way though, I was a bit more confident about it all. Thankfully, the comedy circuit has always been very supportive of me, so that’s been a massive help as well.

WHAT IS IT YOU LIKE ABOUT COMEDY?

I’ve just always enjoyed making people laugh really. I was the kid at school who would make the others laugh and, even then, it was a great feeling. So I guess being a stand-up comedian was my dream job. I just never expected to do it. It isn’t even a job really. It’s just so much fun being up on

flexible as telling jokes with a voice but it’s still pretty flexible. For example, I can chop and change which jokes I tell depending on what I think the audience will like and so on.

HOW IS THE TOUR GOING?

It’s going really well thanks. I never seem to be off the road and it can get tiring at times but, yeah I’m enjoying every minute of it!

WHERE HAVE YOU PLAYED?

I’ve played all over the country really. From Aberdeen to Exeter and everywhere in between. My favourite venue is The Stand Comedy Club in Newcastle. Partly because it’s my home town comedy club, but also because it has such a friendly atmosphere and all the staff are lovely. It’s like a home from home.

WHERE HAVE YOU STILL TO PLAY?

I’d love to be able to play some of the festivals in other countries such as Australia. At the moment, the only big festivals I have done have been Edinburgh, Brighton and Leicester. So I’d love to be able to add to that list.

“I WAS THE KID AT SCHOOL WHO WOULD MAKE THE OTHERS LAUGH AND, EVEN THEN, IT WAS A GREAT FEELING.” HOW DO YOU PLAN A TOUR/GIG?

It’s basically a case of getting yourself known on the comedy circuit and then getting promoters to book you for their gigs. Once you have built a relationship with them, then they will be more likely to book you again. And, of course, the more that you gig, the more chance you have of other people seeing you. So it’s a lot to do with working hard and gigging lots.

WHAT KIND OF REQUIREMENTS ARE INVOLVED?

All I need is to plug my communication aid into the sound desk at the venue so that people can hear it properly.

HOW DOES YOUR COMMUNICATION AID WORK INTO YOUR ROUTINE? I have all my jokes stored ready to go and then I just press whichever joke I want to tell at that moment. Obviously it’s not as

WHAT WOULD BE YOUR DREAM VENUE?

I’d love to do my solo show in front of a sold out crowd in the Stand Comedy Club in Newcastle. That would be such an awesome experience!

WHAT IS YOUR SUPPORT NETWORK LIKE?

My family and friends have always been very supportive of me, and I’m very lucky to have them around me. I realise I wouldn’t be where I am today if it wasn’t for them. And, let’s face it, they have even supported my crazy idea to become a stand-up comedian, so I owe them a lot!

WHAT ADVICE WOULD YOU GIVE SOMEONE WITH A DISABILITY WHO IS WANTING TO START IN COMEDY?

Don’t. There’s too many of us already. I’m joking! I would just say give it a go. You’ve got nothing to lose. I only tried stand up as a bit of a laugh, I never expected it to be as successful as it has been. I knew I’d regret it if I didn’t try though. I like to think I’ve been proved right.

WHAT IS NEXT FOR YOU?

Well, I’m currently writing my show for this year’s Edinburgh Fringe. I’ll be on at the Stand Comedy Club in Edinburgh throughout August. I’ve also recently had a sitcom commissioned by BBC Radio 4, so I’ll be working on that a lot soon as well. Hopefully it’ll be broadcast next year. www.posabilitymagazine.co.uk 27

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CASE STUDY

y choosing stylishly designed products and a wheelchairaccessible layout, Claire and Bert Bolt have created a beautiful new bathroom that will give their 14-year-old daughter the independence she needs. Despite enduring years of tests, Mya’s parents Claire and Bert, are no closer to a complete diagnosis that explains their daughter’s condition. “If asked, we call her ‘a unique’ and she certainly is, in every way. She’s a very happy, giggly girl, who loves music, make-up and wearing pretty clothes,” says Claire. “But she also needs total support with self-care, is non-verbal and has severe learning disabilities and poor mobility.” When she was born, Claire and Bert say they had no inkling that Mya was ‘different.’ However, after eight weeks, they started to notice that she wasn’t as bright or alert as her older brother, Ben, had been at the same age. At 10 months, Mya was referred for pediatric assessment, and her life has been a series of tests ever since. “We’ve accepted we may never have a specific name for her condition, but it does make it hard to plan for her future, as we have no idea what to expect,” explains Claire.

WE’VE FUTUREPROOFED OUR HOME It was with her future in mind that Claire and Bert decided to convert their dining room into a level-access wetroom. “The older and bigger Mya got, the harder it was to get her upstairs to the bathroom,” says Claire. With no ground floor toilet, Mya had no choice but to use a commode in the living room and the couple were keen to

give her the dignity she deserves. “It was clear she needed a way to achieve more independence. So, when our occupational therapist suggested a shower-toilet, I knew it was the perfect solution,” says Claire. In her typically organised way she began researching the options and the Geberit AquaClean 8000plus Care quickly shone out as

the best. “I saw several models but the Geberit toilet was far superior, in build, quality, style and functionality,” recalls Claire. Not knowing how Mya’s condition would develop, the Bolts decided to design the new wet-room with their worstcase scenario in mind - total wheelchair dependence. This required a meticulously calculated layout with enough space to turn a wheelchair and adequate room to draw alongside the toilet using grabs to slide sideways onto the seat. Claire is delighted to report that her dream of giving her daughter dignity and independence has come true. “I was a little worried the Geberit Aquaclean 8000plus Care might alarm her in wash-mode, but she loves it. The cleaning process is gentle, and a little tickly judging by her giggles, and she grins from ear-to-ear when the drier comes on,” enthuses Claire. “The remote control means I can make it all happen ‘magically’, making my life easier and hers more fun. This whole project really has been life changing for Mya, and our whole family.” For more details about Geberit AquaClean call 0800 032 9629 or visit the website at www.geberit-aquaclean.co.uk.

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26/05/2017 10:58

FOSTERING

HAVE YOU THOUGHT ABOUT FOSTERING? Words by Lisa Mitchell

very 20 minutes a child comes into care needing a foster family. Could you open up your home to a disabled child in need of a loving and stable home life? It goes without saying just how integral a foster family or foster parent can be to a child or young adult in care. This can ring even more true for a young individual with a disability. Thousands are in need of a home and the number keeps growing. Kevin Williams, chief executive of The Fostering Network, said: "Many children in care will require additional support, whether it is with social, emotional or mental health difficulties; learning difficulties, communication and

interaction needs; or sensory and/or physical disabilities and needs. Although some foster families may require specific

“IT GOES WITHOUT SAYING JUST HOW INTEGRAL A FOSTER FAMILY OR FOSTER PARENT CAN BE TO A CHILD OR YOUNG ADULT IN CARE.” skills to support complex needs, what is also required is a dedicated, loving family – be this a couple or a single person, with or

without children, married or unmarried, gay or straight. With the right family children with special needs can thrive and the experience can be rewarding for both the child and those caring for them. "The work that 55,000 foster families all across the UK do on a daily basis ensures that these children are given a loving, stable home and a better chance in life, but thousands more foster families are needed every year to meet the growing needs of fostered children. One of the biggest challenges of recruitment is finding suitable carers for children with additional needs, but fostering a child with a disability could transform your life as well as theirs." If you want to know more about fostering then please visit couldyoufoster.org.uk or speak to your local fostering service.

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FOSTERING

FOSTERING CASE STUDY WHAT MADE YOU WANT TO FOSTER A CHILD? We came into fostering through our shared experience of being carers for our son James, who became our son through adoption. It was believed James would have a short life due to his health and additional needs. James exceeded medical opinions and lived until he was 10-years- old. After a period of adjustment and reflection after James' death, we decided that we had the capacity to use our experiences to love and support other children/young people - based on a passion for all children but especially children that have additional needs and/or disabilities. James had taught us so much about life and the impact changed us as individuals, giving us confidence to believe in our own abilities. So James was our catalyst for our journey into fostering.

WHAT WAS THE PROCESS LIKE? The assessment process to become a foster carer is your opportunity to explore why you want to become a foster carer. It also enables the panel and decision makers to have a greater understanding of you, your immediate and extended family. The form that you complete over a period of several months is called the ‘F’ form. The first part of the process is called the skill to foster which

Karen and Darren from East Anglia are full-time foster carers, with detailed and specialist knowledge in fostering children and young adults with an array of disabilities. This is their story:

generally takes place over three days. Prospective carers are then allocated a social worker to complete the F form with them and support them though. When completed the form is presented to the fostering panel for a recommendation to be made. This process has challenges, but is made as easy as possible and at your pace. We actually enjoyed the process, it can be frustrating at times, but it needs to be done.

“THE POSITIVE OUTCOMES THAT COME ABOUT IN TIME CAN BE AMAZING, BUT THEY ALSO BRING CHALLENGES...” Like I said before, it is an opportunity to explore and reflect but also for your own children to understand what the impact may be to them. You need to be informed so that you can make the right decisions for your family.

WHAT ARE THE INITIAL CHALLENGES? The positive aspects of fostering are building relationships and trust with a child, watching that grow and develop. As trust grows and the children start to feel safe, you see subtle and small changes within them. Like any new relationship however long it may be, we try to make a difference which could be as simple as having a bath and clean pair of pyjamas. The positive outcomes that come about in time can be amazing, but they also bring challenges as when children feel safe and happier they may well want to talk. Every child is an individual and has a narrative to tell.

HAVE YOU MADE ANY KIND

OF SIGNIFICANT BREAKTHROUGHS TOGETHER? We have some very positive outcomes from being told a child was non-verbal and would have severe learning disabilities to the child learning to eye point to communicate in the first instance, and over time learning to sit and interact and to now being in mainstream school with support but walking and cognitively spot with his peers. Some children have come to us as a result of a non-accidental injury which has led to them having an acquired brain injury. One child's prognosis was quite bleak but over time with stability of love, resilience and patience, she was able to overcome her setbacks. She was able to move to an adoptive family where she is flourishing and is walking talking and at school. The head injury will all have an impact on her life. But she has a loving family, who love her for who she is as a child, who happens to have some additional needs. Our roles as foster carers are to help achieve the best possible outcomes and help move them onto the right pathway.

WHAT ADVICE WOULD YOU GIVE SOMEONE CONSIDERING FOSTERING A CHILD WITH A DISABILITY? I think more about our own individual capacities to be able to become a foster carer. We all bring a unique and individual range of skill sets at the beginning of the process to become a carer. And these skills will grow and develop as you go on your journey to becoming a foster carer as it is an evolving process. It’s a continuous journey of learning. As every child or young person who enters your life will bring something different and their narrative will be their own also. Being open minded, non- judgmental towards others, adaptable to situations as they unfold, think on your feet! And, of course, you need a sense of humour. You also need the ability to work with a range of different people who support the child, e.g. social workers, phycologists, police, health professionals, education, to name a few.

32 www.posabilitymagazine.co.uk

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TALENT AGENCY PROMOTES POSITIVE PORTRAYAL OF DISABILITY Words by Niki Tennant

dynamic specialist talent agency is seeking to increase awareness and challenge discrimination by fairly and sensitively representing models and actors who all have disabilities. Zebedee Management was established by qualified social worker Laura Johnson and Zoe Proctor, a performing arts teacher who has more than two decadesâ&#x20AC;&#x2122; experience of working with people with disabilities. The launch coincides with a recent call by Penny Mordaunt, Government Minister for Disabilities for the gaming, fashion and television industries to step up their representation of

34 www.posabilitymagazine.co.uk

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25/05/2017 20:11

MODELLING

people with disabilities. Both Laura and Zoe are passionate about seeing people who have a disability in the limelight. Laura, who has been working with vulnerable adults and children for seven years, says setting up the agency sits perfectly with her personal and professional values: challenging discrimination and working towards a society that is more accepting of people with disabilities. Working with a bank of talented photographers, Zebedee have held photoshoots the length and breadth of the country to develop models’ portfolios. Retailers have provided outfit changes to ensure models get a real feel for what it’s like to work as a professional model. “We have so far met some absolutely stunning models who are wonderful in front of the camera,” enthused Zoe. “We have a broad selection of talent, both adult and children, with a selection of needs and abilities including Down’s syndrome, cerebral palsy, global developmental delay, autism, Tourette’s, spina bifida and Sotos syndrome. “That said, we do not want to focus on people’s disabilities and would prefer to consider their abilities and unique characteristics which help promote a positive portrayal of diversity in the media. “Unfortunately, disabled people remain slightly less likely to be in employment than non-disabled people. Therefore, we hope we are giving our models opportunities they would not normally have.” While fashion has become more representative in seeking a broader range of ethnicities and showcasing clothing collections in more plus sizes, Laura maintains models with disabilities are still not fairly represented. She says there is no reason why a person with a disability can’t be part of a high-end fashion campaign, work as an actor or follow in the footsteps of PosAbility colomnist Sam Renke, who appeared on a highprofile television advertising campaign for Maltesers. “We are aiming high,” insists Laura, “and would love to see one of our artists modelling for a client like Burberry or Stella McCartney, as well as the mainstream high street retailers.” Although unsure why the industry has taken so long to begin considering a diverse range of models, Zebedee’s founders say

Jack "WE HAVE SO FAR MET SOME ABSOLUTELY STUNNING MODELS WHO ARE WONDERFUL IN FRONT OF THE CAMERA..."

Mohammed

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MODELLING

"ZEBEDEE HAVE REAL GUTS, WHICH IS POWERED BY PASSION – SOMETHING YOU DON’T OFTEN SEE, ESPECIALLY WHEN IT COMES TO CHILDREN AND ADULTS WITH DISABILITIES"

William

the general public tells them they’d be more likely to buy from a company that uses ‘real people’ to model its clothing and products. In addition, they believe that the greater exposure people with varying needs and characteristics receive in the media, the more likely people are to accept and understand. The Zebedee ideology has received a ringing endorsement from parents of the agency’s child models, including Jen, mum of Sara. “Zebedee have real guts, which is powered by passion – something you don’t often see, especially when it comes to children and adults with disabilities,” said Jen, who said the agency’s photographers make the models feel quickly at ease and talk to her daughter as they would any other child. “They didn’t show any hesitation, just kindness, which resulted in Sara feeling confident and comfortable straight away and enjoying her time being centre of attention.” Jen continued: “We 100% back their vision to represent people with disabilities in the media. I want Sara to grow up being able to relate to photos, commercials,

adverts etc. and not feel like she and other people with disabilities are not worthy, not good enough. It isn’t shown enough in toys or reading materials. They have every right to live their lives like anyone else, so why exclude them from the media?” As a family, Jen says, the opportunity presented by Zebedee has given them hope for Sara’s future. “When I saw Sara having her photos taken, I saw her getting into character with every clothes change and I loved seeing her simply enjoying herself and for the first time it make me think; ‘Could this be a career for her?’” pondered Jen. “We are so proud of her and she has a lot of support from family and friends.” Zoe and Laura thank photographers Shelley Richmond, Sarah Folega, Danielle Richardson and Aaron Cheeseman. To book a model, email: zebedeemanagement@gmail.com www.zebedeemanagement.co.uk

Celice

THE WAY I SEE IT… BY POSABILITY COLUMNIST, SAM RENKE As a former school teacher I had a duty of care to educate and mould young people's minds, expose them to the real world and get them to challenge their own perceptions. It was a position of great power and even greater responsibility as my teachings would stay with my pupils for the rest of their lives. I would argue that the media and broadcasters have the same duty of care. They have the ability to shape how society sees and reacts to diversity. Is the woman in the wheelchair a Bond villain or is she a powerful lawyer or glamorous model? I have learned in recent months that in fact it is the broadcasters, the casting agents and the advertising companies who are so fearful of how the public will react if they see more diversity on their screens. But they are missing the point entirely. Diversity is already all around us. We are exposed to diversity every day! Thirteen million disabled people are living in the United Kingdom as we speak. That’s one in five. You’d have to live under a rock not to have been exposed to someone with a disability. It's now up to them to take that next step and create positive diverse role models on our televisions, in our magazines and advertisements. I personally have seen how important positive, authentic portrayals of disability within the media is. I am no longer just the young woman in the wheelchair, now I am that lady from the television, the one who signs autographs, has selfies taken and receives emails and tweets from aspiring young disabled actors who see their dream becoming a reality when they watch me on their screens.

Zebedee Management has been nominated in the community organistaion award - disability category of the National Diversity Awards 2017. Nominations close on June 9.

36 www.posabilitymagazine.co.uk

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ONTEX ID FOR MEN Keeping up with market trends and consumer needs, OnTex has developed a new, thoroughly researched range to help males manage incontinence. Using innovative Power Dry technology, the iD range for men who experience urine leaks locks away odour for maximum freshness. Its cotton-feel soft back sheet ensures complete comfort and is engineered for freedom of comfort and perfect fit. Because it is thin and light, it is super discreet and its fast and maxi absorption ensures ultra protection and peace of mind. Available in levels 1+, 2 and 3. www.ontexglobal.com

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38 www.posabilitymagazine.co.uk

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qualifications to suit specific needs to offer quality assurance and peace of mind for customers. Canary supports HomeTouch carers with data from the sensors that can be used to identify potential hazards and changes to health conditions. The product is easy to use, affordable and unintrusive, providing critical information about the physical and emotional state of an elderly person. For prices and to purchase, visit www.myhometouch.com.

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Version22’s multi-award-winning one finger safety cutter Nimble has had a face lift. It’s now even easier to use, more functional, and looks better than ever. Now more durable, Nimble is even better equipped to withstand tough day-to-day use around the home and on the go. They have added ‘braille bumps’ inside Nimble’s sleeve to increase grip so it stays on your finger securely. These bumps also indicate to people with visual impairments which way around they should have it on their finger-tip. Finally, the new version of Nimble has been streamlined, making it look even more like an extension of your finger. The new blade profile increases its reach and means Nimble can now cut open an even wider range of packaging, including awkwardly taped parcels. Version22 Tel: 01509 387030 Version22.com

The large flat key head makes it easy to grip, a feature that is particularly beneficial for disabled and elderly people with joint pain or limited finger dexterity. Master Lock has also devised a groove system on the bottom of the padlock that acts as a key guide, aiding users with sight challenges to easily insert the key. The Master Lock 2650EURD PushKey Padlock security solution is available on www.masterlock.eu and from Homebase and Toolbank.

40 www.posabilitymagazine.co.uk

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25/05/2017 21:27

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TP-LINK’S MULTI-COLOUR OPTION SMART BULB Control home lighting to fit your mood with TP-Link’s range of smart WiFi LED light bulbs. With studies showing that the quality of light in the home, workplace or school can affect mood and wellbeing, homeowners can inject summer into their homes with a choice of colour for every occasion. The Smart Wi-Fi LED Bulb with Colour-Changeable Light (LB130) has a wide array of light variations to match every mood. It installs like a standard light bulb and can be activated from anywhere with a smartphone via the free TP-Link Kasa app. Both practical and fun, Smart Bulbs have endless applications; replicate natural day light to help revision in the run up to exams, simulate an occupied home while you’re on holiday or make use of the Circadian mode to replicate natural sleeping patterns. The free Kasa app also lets you check the status of individual lights, even when you’re away from home and control them with the swipe of a finger. TP-LINK All TP-Link partner retailers can be found at: www.uk.tp-link.com/ where-to-buy#Retail

www.posabilitymagazine.co.uk 41

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26/05/2017 12:14

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GET ON THE LONDON PROPERTY LADDER WITH A WHEELCHAIR ACCESSIBLE SHARED OWNERSHIP HOME Find out more at www.lqpricedin.co.uk

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Ads_Pos_jun-Jul17.indd 42

26/05/2017 10:58

POP-UP CAFE

THE SOUND OF

Silence

Deaf Community’s ‘Café Without Words’ pops up in Germany Words by Niki Tennant

Want a coffee? Then draw the letter ‘C’ in the air with the index finger of your right hand, and then twist it towards your mouth twice to the waiter. How about pizza? Hold one palm facing upwards and draw a circle above it with your other hand. This is how diners order at a new German pop-up café initiative that is run by deaf waiters and waitresses. Cologne’s Café Ohne Worte, which means ‘Café Without Words’ offers those who are deaf or hard of hearing a start in the catering industry, an opportunity to connect with the deaf community and somewhere to eat where they can easily be understood. It is also an opportunity for those without hearing difficulties to more fully appreciate what living in a world of silence can be like. The initiative is supported by café owners who make their premises available for the pop-up events and is the brainchild of students from the University of Cologne. They were inspired after witnessing first-

hand the difficulties faced by deaf people trying to order lunch in a regular café. “Being deaf can effectively cut you from the rest of society, even when it comes to something as apparently simple as ordering a coffee or working as a waiter or waitress,” explained Frederike Höfermann, a 19-yearold business student and project manager at Café Ohne Worte. “The pop-up café has proved so popular that we are now looking to extend to further locations in Germany, and then roll out the concept in Europe.” Café Ohne Worte is among winners of the 2017 Ford College Community Challenge (Ford C3), an education programme from Ford Motor Company Fund that provides grants to student-led programmes focused on building sustainable communities. Since launching last year, around 1,000 guests have dined at seven pop-up events held in four different cafes and supported by up to five waiting staff each time. Guests are first introduced to their deaf server, with whom they then communicate via sign language. Photographs of sign language guidelines are printed on the menu. Pointing is allowed, if absolutely necessary.

“This is such an inspiring project to be involved in, both to see the difference that is made to those who are deaf or hard of hearing and the enthusiasm and hard work of the students who support this amazing work,” said Debbie Chennells, manager, Ford Fund, Ford of Europe.

There are more than 11 million people in the UK with some form of hearing loss, or one in six of the population By 2035, it is estimated that there will be 15.6 million people with hearing loss in the UK - that’s one in five More than 900,000 people in the UK are severely or profoundly deaf There are more than 45,000 deaf children in the UK, plus many more who experience temporary hearing loss More than 70% of over 70 years-old and 40% of over 50 years-old have some kind of hearing loss 24,000 people across the UK use sign language as their main language - although this is likely to be an underestimate Around one in every 10 UK adults has tinnitus. This increases to 25-30% of over 70 year-olds. www.actiononhearingloss.org.uk

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26/05/2017 12:49

HOLIDAY TIPS

Tips to Enjoy

YOUR FIRST HOLIDAY TOGETHER Words by David Miller

ou have been dating

for a few months. Perhaps you met at Christmas or in early Spring and now the summer holiday period looms enticingly ahead. You both feel that it is time to take your budding relationship to a new level of intimacy and go on holiday together. In this article, I will guide you through this exciting decision and help you avoid any pitfalls along the way. First, let this be a joint project; each of you should be involved in choosing the destination and the type of holiday you both want. Do you want a beach or city break? How important is mobility for either of you? Both of you should be clear what you each want from your holiday. Make sure the only baggage you bring is of the physical kind. So, don’t revisit places

that have been important in previous relationships. Your first holiday should be about making new memories with a new partner. Ideally, it should be a new destination for both of you. Check carefully on accessibility at your destination before finalising your booking. Sites like Euan’s Guide and Accomable are a goldmine of helpful information and reputable travel specialists like disabledholidays.com have expert advice on hand. Knowing that you won’t run into unforeseen difficulties will take away a lot of the stress. Certainly, things can go wrong on any holiday, accept that, and be prepared to laugh about them rather than make it an issue. Start your holiday early by indulging yourselves at the airport and on the flight itself. For around £15 you can pre-book entrance to an exclusive airport lounge which gives you a luxurious start to your trip whatever airline or ticket class you have booked. This can be a blessing if you need a relaxed place to sit especially if you have mobility issues. Other small treats can be had by buying an upmarket takeaway snack from The Caviar House outlet at the airport. A plate of smoked salmon sandwiches will bring a moment of glamour to your first trip together and demonstrate how much you value your partner. Try to add interesting ‘Facebook moments’ to your

trip by stretching your experiences. Why not add some exciting activities such as canoeing or skydiving? If you have a disability you might feel daunted by such challenges. You can get inspiration to try out new adventures by reading Martyn Sibley’s blog which details his many accessible trips. www.martynsibley.com Even if you do sign up for some wonderful ‘couple’ activities, leave yourselves some private ‘me’ time so that you are not continually in each other’s pocket. Maybe one of you might go to the beach leaving the other to go shopping or reading quietly on a terrace. That way you can take away some pressure from a 24-hour holiday relationship. But do take time together to choose a souvenir that will symbolise this first holiday together. Maybe an apron with a picture of a Spanish bull that can bring holiday memories into your kitchen or a local craft item that can be a talking piece when you have friends come visiting.

David Miller is a disability dating expert at www.disabilitymatch.co.uk Disabilitymatch.co.uk is a leading UK dating site for disabled men and women to find friendship and romance in a secure and welcoming environment. Follow on twitter @disabilitymatch

“MAKE SURE THE ONLY BAGGAGE YOU BRING IS OF THE PHYSICAL KIND. SO, DON’T REVISIT PLACES THAT HAVE BEEN IMPORTANT IN PREVIOUS RELATIONSHIPS.”

44 www.posabilitymagazine.co.uk

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26/05/2017 13:53

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26/05/2017 10:59

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9.6 INCH, 32GB + WIFI Accessible Vehicles are proud to be celebrating their fifth year of trading and, to mark the occasion, they are giving away to one lucky PosAbility Magazine reader a fantastic iPad 9.7 inch 32GB with Wi-Fi worth £339. Part of a much larger company, Lateral Design Ltd, Accessible Vehicles cover the whole of the UK, offering a range of wheelchair accessible solutions for both Motability and private customers. They offer a free, no obligation home demonstration service and can offer advice on all aspects of wheelchair accessible transport and the Motability scheme. For 2017, Accessible Vehicles have launched the Vauxhall Combo Colorado - an extremely versatile wheelchair accessible vehicle offering seating for six people including the wheelchair passenger. This new model offers extremely good value for money and comes with a range of standard features, including Bluetooth, parking sensors and a super economical turbo-diesel engine.

This amazing vehicle offers upfront travel in your manual or electric wheelchair plus seating for four other passengers. Due to the unique entry system, there is no loss of seating capacity and no wasted space. The Infront retains the original cavernous boot, allowing you to take all the luggage you need and is available with a range of petrol or diesel engines.

If you would like to be in with a chance of winning this fantastic prize, simply answer the following question: Which vehicle have Accessible Vehicles recently launched?

If you’re on a smaller budget and would like a pre-owned wheelchair accessible vehicle, Accessible Vehicles also often have good quality used vehicles available. Adapted vehicles on the Motability scheme are available from just £995 advance payment.

A. Vauxhall Zafira B. Vauxhall Combo Colorado C. Vauxhall Insignia Email your answer and your contact details to posabilitycompetitions@gmail.com or visit www.posabilitymagazine.co.uk to enter online.

To request a no obligation home demonstration, please call the Accessible Vehicles team on

Accessible Vehicles Competition PosAbility Magazine Caledonia House Evanton Drive Thornliebank Ind. Est. Glasgow, G46 8JT

01704 512437

or visit www.accessiblevehicles.co.uk Terms & Conditions The prize is an iPAD 9.7 inch 32GB Wi-Fi. The prize is not transferable and there is no cash alternative. The competition closes on Friday, July 14, 2017. The prize will be sent to the winner via Royal Mail.

Name:

Accessible Vehicles are also the sole agent for the unique Infront Doblo WAV.

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Accessible Vehicles would like to send you more information about their services. If you prefer not to receive this, please tick the box.

www.posabilitymagazine.co.uk 47

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26/05/2017 12:29

The recent World MS Day brought together the global multiple sclerosis community to share stories, raise awareness and campaign for everyone affected by MS.

I WON’T BE DEFINED

BY MY MS Words by Niki Tennant

o mark the global event, PosAbility Magazine catches up with record-breaking golden girl of para athletics and cycling, whose achievements have been an inspiration for millions of people around the world who, like her, are living with MS. Here, she shares her thoughts as she prepares for the World Para Athletics Championships London 2017. The first in a long line of medal wins for Leeds-born Kadeena Cox came in 2007 when she clinched bronze at both the Manchester Open and the England Athletics World Championships in the 60metres sprint. She followed this in 2012 with a bronze in the 200metres at the British Universities and Colleges and Sport (BUCS) Championships – part of the London 2012 Olympic test event. A year later, she smashed the 12-second barrier in the 100m at the Northern Athletics Championships and, as one of the fastest ablebodied junior runners hoping to make it to Rio,

was tipped as a serious medal contender. Then, in 2014, the talented young athlete experienced a stroke. Four months later, she received the shattering news that she had multiple sclerosis – a neurological condition which depletes energy levels and is often aggravated by exercise and exertion. The day of diagnosis is etched on the memory of Cox, whose peculiar tingling sensation in her leg alerted her to the fact that something was wrong. Her condition rapidly declined, robbing her of the ability to carry out everyday tasks such as brushing her teeth or holding a pen. She admits that the possible prospect of abandoning running, needing constant care and becoming a wheelchair user horrified her. Rather than spell the end of her sporting career, the life-changing moment and months in a hospital bed that followed were to radically reshape its direction and lead her on a path to glory. When she realised there was a prospect she could still run, it was her defining, eureka moment which led to her channelling her energy and aspirations into a new dream – to

compete in the Paralympics at Rio. During her four-month convalescence, Kadeena discovered quite by accident that cycling sat comfortably with her MS and seemed to calm her body down. Predicting that she would go to Rio but returning home empty handed, elite paraathlete Cox exceeded her own expectations and went on to excel, becoming the first Briton to top the podium in two different sports, sprinting and cycling, in 32 years. She was among five 2016 Paralympian gold medallists – including world record breaking archer Jessica Stretton and boccia champion David Smith - who use DM Orthotics’ dynamic products to help manage symptoms of neurological and musculoskeletal conditions. Kadeena’s arm-length DM Orthotics glove, which has become her trademark, helps control spasms in her right arm and is part of her essential kit which also includes a vest, shorts and socks from the Cornish pioneer in fabric orthoses. Cox explained: “In cycling, they (the reinforced glove and vest) mean I can lock onto the handlebars more easily and have

48 www.posabilitymagazine.co.uk

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25/05/2017 21:39

Image ©OnEdition 2016

INTERVIEW

WHAT IS MULTIPLE SCLEROSIS?

• Multiple sclerosis (MS) is one of the most common neurological disorders and causes of disability in young adults. • There are 2.3 million people with MS worldwide. It is likely that hundreds of thousands more remain undiagnosed and many lives are affected indirectly, through caring for someone with MS. Most people with MS are diagnosed between the ages of 25 and 31, with around twice as many women diagnosed than men. • The cause of MS is not yet known and as yet there is no cure, though there are treatments available that can help some forms of MS and many things you can do to improve the symptoms. • Symptoms vary and can include blurred vision, weak limbs, tingling sensations, unsteadiness, memory problems and fatigue. • For some people, MS is characterised by periods of relapse and remission, while for others it gets steadily worse with time. Some people may feel and seem healthy for many years following diagnosis, while others may be severely debilitated very quickly.

Image ©OnEdition 2016

"KADEENA WAS AWARDED AN MBE IN THE 2017 NEW YEAR’S HONOURS LIST FOR SERVICES TO ATHLETICS..." more control when I cross the finish line. I wear the socks to help keep my feet straight and the shorts to prevent my hips rotating inwards.” It’s an area she’s passionate about and hopes to specialise in orthoses for children with cerebral palsy as part of her physiotherapy career. The 26-year old experiences many symptoms due to her MS, including fatigue, spasms, heat intolerance, tingling and numbness. By the unpredictable nature of MS, there are days when her “legs don’t work” and she must use her wheelchair. There are days when spasms in her arm are so severe

www.mssociety.org.uk

she can’t push her wheelchair and her sleep is disrupted. Kadeena was awarded an MBE in the 2017 New Year’s Honours List for services to athletics and was named Inspiration of the Year in the MS Society Awards 2017. Accepting the MS Society award, Kadeena said: “It has been a whirlwind since Rio, but now I am trying to get back to reality because I have my World Championships coming up and I have to be fit enough to hopefully win another gold. “It has been tough because I am currently doing a full-time degree. I am on physio placements which is tricky to balance with full-time training, but I am hoping it will come together when it matters.” The ‘Inspiration of the Year’ title holder certainly has the winning formula when it comes to inspiring other people with the condition. “I hope that being in the public eye will help raise awareness of the condition in general, as a lot of people don’t understand what it is, especially as it’s so different from one person to the next.

“People get really confused by me because I can be walking around fine one day and the next day I’ll need my wheelchair. There’s a lot of research around it and some medications have been brought in recently. But to continue that research, we need funding.” Ahead of the London 2017 World Championships, Cox has been powering through the preparation trail appearing at meets in Dubai and Barcelona. As the clock ticks closer to the all-important team announcement on 7 June for the Worlds, Cox has recorded solid times to help cement her place in the team. Cox began the season by laying strong foundations in the Miting Internacional in Spain, picking up double silver in the 100metre and 200metres in L'Hospitalet de Llobregat. As the World Para Athletics Grand Prix rolled into Dubai for the 9th Fazaa Para Athletics Championships, Cox came third in both the T37/38 100metres and T38/44 200metres, putting the athlete in poll position to qualify for Team GB this summer. Team news can be found on britishathletics.org.uk on 7 June. www.posabilitymagazine.co.uk 49

048_Kadeena_Cox_SF_AB.indd 49

26/05/2017 12:18

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26/05/2017 11:01

TRAVEL

TRAVEL ADVICE Andy Wright, managing director of Accessible Travel and Leisure, has been asked recently by a number of PosAbility readers contemplating their first holiday overseas since injury or medical diagnosis, “How do I book my holiday now that I am using a wheelchair?” Or, “What should I be asking my travel agent?” Andy’s column in this issue aims to answer some of your concerns, and direct you to some ideal holiday options that have recently been assessed for their suitability.

TRAVELLING OVERSEAS FOR THE FIRST TIME? Many first-time travellers often make assumptions about the level of adaptions that will be available to them when booking their first overseas holiday. They may well have their home environment adapted to meet their daily living needs, and therefore assume that if a hotel advertises itself as ‘accessible’ they are likely to find a similar bathroom arrangement to the one they are used to - with a toilet at the same height, grab rails in the same place etc. First-time travellers are often reluctant to detail the level of assistance they would require. Therefore, it is imperative that you carefully consider your day-to-day routine, as well as your needs and requirements in your home environment and then ask whether these same facilities are available in your preferred holiday destination. This would include access into the restaurant, swimming pool, airport transfers, excursions etc. Failure to do so could easily result in disappointment or even the possibility that you would not be able to manage unaided. Be prepared for the fact that many travel agents will not have this type of information on hand. In order to ensure your first holiday abroad goes as smoothly as possible, book with a specialist tour operator who will have checked out the destination in advance before selling holidays there. That way, you are communicating with somebody who has a full understanding of your requirements and will be empathetic to your needs. Ensure that you are booking with a legitimate travel company which is fully bonded and financially protected. Unless your travel provider is either a member of ABTA (the Association of British Travel Agents), ATOL (Air Travel Organiser’s Licence) or the TTA (Travel Trust

To view Andy’s Top Tips for air travel visit www.posabilitymagazine.co.uk.

NEW PROPERTIES

Following a recent inspection trip to Majorca, several new properties have been added to our portfolio:

Sol Alcudia Centre Aparthotel An excellent family hotel only 150m from the beach, and is located on one of the main streets in Puerto D ‘Alcudia, with studios that have bathrooms with wet rooms.

Protur Palmeras Playa, Sa Coma A lovely 4-star all-inclusive hotel, located just 100m from the beach and 500m from the fishing port of S’Illot. It also has bathrooms with roll-in shower, grabs and shower seat, as well as a pool hoist.

Association), your deposit and balance payments for your forthcoming holiday may be at risk if your travel provider ceases to trade. Accessible Travel and Leisure, whilst being fully bonded, also ensures that all the properties that we offer have been fully inspected and audited by our own staff, all of whom have extensive travel experience and a full understanding of our customers’ needs.

Flights are available to Majorca from a variety of UK airports and accessible transfers, excursions, as well as medical and mobility equipment are also available.

For more information about these two properties as well as numerous others, please visit www.accessibletravel.co.uk or call

01452 729739

www.posabilitymagazine.co.uk 51

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26/05/2017 09:08

Actreen® Hi Lite Set is the latest generation of all-in-one intermittent catheter and collection bag for managing urinary incontinence. Lightweight, discreet and easy to use. Convenience is all about making the everyday tasks a little easier. So whenever and wherever you need to catheterise, what could be better than Actreen Hi-Lite Set? Just open, use and collect urine in one easy step. It‘s as simple as that. To find out more please call the Emerald Team on 0800 163 007 or fill out and return the slip below.

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26/05/2017 14:56

HOLIDAY FOCUS

HOLIDAYS

NORFOLK DISABLED FRIENDLY COTTAGES Words by Niki Tennant

Situated on a converted farmyard on the outskirts of the tranquil village of Bircham, Norfolk Disabled Friendly Cottages is a familyrun business providing eight self-catering cottages designed to accommodate disabled and non-disabled people, their families, friends and dogs to ensure an enjoyable holiday for all. We pride ourselves on the personal touch we provide. My mother, Emma, had Parkinson’s disease herself and during her time as a Trustee of the Parkinson’s Disease Society she learnt, first hand, the very special needs of those in a wheelchair along with the needs of their families and carers. All of our cottages are wheelchair accessible, having level access and an open plan room layout including en-suite ‘roll-in’ wet rooms and purpose built low-level kitchens, especially designed for wheelchair users, their families and carers. Each has its own personal garden. She unfortunately passed away in December 2012 aged 62. We will forever miss her but carry on the business in her memory.

The cottages are ideally located about five miles from the Royal Estate at Sandringham and seven miles from the North Norfolk Coast in an area of outstanding natural beauty. The cottages, each with a garden, can sleep two to 10 people and can accommodate 47 guests at full capacity, making it the perfect holiday destination for groups. Managed by qualified nurse Lavinia King, her late mother, Emma Bennion - who had Parkinson’s disease for most of her adult life – was inspired to set up the business after finding it impossible to find accessible, family and pet-friendly holidays when her children were growing up.

We welcome all members of the family, including dogs. We provide wireless access to the internet and have a selection of equipment such as hoists, wheelchairs etc. available to hire.

DESCRIBE THE ACCOMMODATION Truly a home from home, the two to fivebedroom level-access properties are warm and welcoming and beds are made up with crisp, fresh linen. At least one bathroom in each property comes complete with a commode chair and grab rails. For rainy days or cosy nights in front of the TV, each cottage has a DVD player and a selection of board games and free WiFi.

WHAT EQUIPMENT IS AVAILABLE? Norfolk Disabled Friendly Cottages don’t want you lugging equipment from home, so they offer some home essentials for rent during your stay, from a high chair

and cot, to a wheelchair, recliner chair, mobile hoist, gantry hoist, profiling bed and air mattress which will be in your accommodation on arrival if pre-booked.

WHAT IS THERE TO DO NEARBY? There are many attractions, pubs and family activities including the Dinosaur Adventure Park, Oasis Indoor Pool and Leisure Centre, Bure Valley Steam Railway, Langham Glass Visitor Centre and the 100-year-old Bircham Windmill. The properties are all renovated farm buildings which have been converted to a high standard and have between two and five bedrooms.

NEED TO KNOW

With so much to see and do nearby, you really need a car. All cottages are non-smoking and guests are requested to bring their own towels. Start day is a Friday. Norfolk Disabled Friendly Cottages, The Old Farmyard, Bircham Newton, King’s Lynn, Norfolk PE31 6QR Tel: 01485 578354 Email: lavinia@nd-fc.co.uk. @NDFCnorfolk www.facebook.com/NDFCnorfolk www.posabilitymagazine.co.uk 53

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26/05/2017 12:46

Portugal's T Algarve coast

By Janet Myers

he Algarve is a coastal strip only 95 miles long but its beautiful coastline, picturesque villages and towns with remnants of their former walled cities are alluring. It also has another important ingredient - a warm climate with plenty of sunshine, so whether you choose to visit in January or July you will not be disappointed. Its close proximity to the UK and cheap air fares are another bonus.

FARO

Faro is the capital of southern Portugalâ&#x20AC;&#x2122;s Algarve region. The place we enjoyed the most was the Old Town accessed through one of three gates. The cityâ&#x20AC;&#x2122;s neoclassical Arco da Vila is on the site of a gate that was part of the original Moorish wall. When we visited, the storks were nesting in the monumental archway which leads to the old town with its cobbled streets. The trees in the main square were covered with oranges which were hard to resist picking! They looked so ripe and juicy. Filming was taking place in the medieval Se Cathedral and its grand pipe organ played as we admired its interior including the glorious ornate golden altar. We took a tour by a tourist 'train' and on its return to the waterfront we ate at the restaurant which overlooks the boat-filled harbour. Although most visitors arrive at Faro, it is often overlooked as a place to visit but it is well worth the effort.

54 www.posabilitymagazine.co.uk

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25/05/2017 22:09

TRAVEL

BENAGIL CAVE

Standing on the beach of Benagil cave was certainly awesome. It was the highlight of our short trip to Portugal. The water lapped onto the sandy beach and echoed as it crashed and whooshed up its walls. Wet shells glistened around us and our bare feet left new foot prints in the damp deep sand. Rock formations rose from the floor but even more electrifying were the predominantly orange strata in the rocks which formed the cave around us. They were illuminated by the sunlight which streamed in through giant holes in the roof, the blue sky intensifying their colour. No wonder it is considered one of the world's great natural wonders. It is a phenomenon that can only be reached by boat and it needs a skilled boatman in a small craft to bring you here. Even so, the boat had to retreat away from the beach until it was time to leave. The cave stretched way back and sloped upwards. Its size was immense. We roamed and photographed for about half an hour before the boat returned. Then, as the swell was sucked towards the entrance as it ebbed and flowed, we ran towards the boat and clambered on board. Being disabled, my husband was unable to come ashore so he stayed on board but he said it was an

experience he would not have missed. On this calm day and at low tide, it is difficult to imagine that the cave has been carved out by the action of the sea. At times the powerful waves fill the entire space and its crashing swell has carved out the openings which we saw from below. Further excursions took us to explore more sea caves. Some were large, some small and some deep. Some were iridescent blue, some green and some inky navy blue. As we entered one, we felt like Pinocchio must have felt when he was swallowed by a giant whale. Looking back, the entrance resembled an open mouth with an endless narrowing gullet stretching ahead. Overhead, the roof resembled the creature’s ribs. We also marvelled at the stacks which rose out of the water and enjoyed passing beneath rock arches. There were many beautiful sandy coves, many of them only accessible by boat. On one high cliff, a solitary man was fishing, the length of his line being so long that it seemed impossible that he would be able to cast it successfully. He would certainly need super human strength if he caught anything bigger than a fish which would fit onto a small plate. Any attempt at a fight for anything bigger would have sent him tumbling into the water below.

WHEN TO GO

The Algarve is truly a year-round destination. Spring and summer are long and winter is short but mild. Prices in the low season offer great bargains and are less crowded.

WHERE TO STAY

More and more hotels have rooms adapted for disabled people and many operators list self-catering with disabled facilities.

GETTING ABOUT

Lifts and ramps are an increasingly common feature in buildings throughout Portugal.

BEACH ACCESS

In Albuferia, our spa hotel overlooked the beach and there was a lift down to the sand. Several seaside towns are accessible but for ease of getting around, Villamoura is probably the flattest with good boardwalks and disabled access on to beach etc.

FESTIVALS

These occur throughout the year, often featuring traditional dance and music. The larger towns have festivals which have become famous across the country, like the Loulé Carnival in February or the Portimão Sardine Festival in August. It's a good idea to check with your tour operator as there are too many to list!

TRANSPORT OPTIONS

• Faro Airport caters well for disabled people, with good elevators and toilet facilities • Hiring a car is an excellent option and is not expensive • Some rent-a-car companies have automatic and specially adapted vehicles available for hire • Mobility scooters are available for hire and can be delivered direct to your accommodation • All public transport used on urban routes has four seats reserved for people with walking difficulties, but there is no access for the users of wheelchairs • Visually impaired and blind people may travel with their dogs if they are on a leash and wear a muzzle • The old towns with their cobbled streets are not suitable for wheelchairs but it is often possible to take your car or a taxi into these areas • Many boat trips are wheelchair friendly

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TRAVEL

INTO THE MOUNTAINS

Our first stop on this trip was to Silves. It is very much a tourist stop but it has an interesting story to tell. It is said that the Moorish King of Silves took a Scandinavian princess as his wife but as soon as she settled in Silves she became ill and listless. The doctors could do nothing for her, but the king's wisest counsellor advised him to plant almond trees all over the plain. The king did as he was told without knowing why, and come the spring the land was carpeted with white almond blossom. When the queen saw them she immediately began to recover. "I have been so homesick," she said, "but this reminds me of the snows in

my father's kingdom." Like many places in the region, the fresh shellfish and piri-piri chicken are delicious. We continued our climb uphill and atop each telegraph pole were large unkempt nests with storks flying in and out of them, no doubt feeding their chicks. Eventually we reached Monique. It was quaint and picturesque. The region is famous for its medronho - a liqueur made from the fruits of the arbutus (strawberry) tree which grows in the surrounding hills. We stopped in a great thick stone-walled drinking hole to try it. It is then just a short distance to the highest point at Foia. The view here is magnificent. En route, the road meanders through trees whose bark has been stripped to provide the corks for the finest champagnes.

THE RIA FORMOSA NATURAL PARK

So many visitors also miss this amazing place, but recently it has been elected as another of the seven natural wonders of Portugal and it is well worth a visit. It is a unique coastal lagoon which can easily be accessed by boat from the capital. It is a paradise for bird watchers with dozens of aquatic species. It provides a resting place for migratory birds and is home to the purple swamphen and colourful flamingos. Here you can also find one of the largest populations of sea horses in the world and Portugal's chameleon. It is also home to the Ria Formosa Portuguese Water Dog, a breed which a few decades ago almost became extinct. These canines have webbed feet and their profile was increased when one of them named Bo was adopted by the Obama family.

ALBUFEIRA

It was just a two hour flight from Bristol to our touch-down at Faro International Airport and just half an hour to our cliff-top hotel overlooking Albufeiraâ&#x20AC;&#x2122;s sandy beach. A short while later, we were sitting outside in the warm sunshine enjoying a refreshing cold drink, eating piri-piri chicken and tucking into those glorious Portuguese custard tarts that everyone adores. The Romans built a fine castle here but in 1755 an earthquake destroyed much of it, together with most of the town. The Torre do RelĂłgio (clock tower) was built later on one of the old castle towers and cannot be missed. Nearby, we found a tiny but fascinating museum which records much of the town's history. In the 1960s, substantial developments turned it into a major holiday resort but the old fishing village still retains much of its charm. In the old town, the narrow cobbled streets wind up the hillsides with typical single storey houses lining the roadside. Places to eat abound and the choice is endless. There is a marina and harbour on the western outskirts of the town. I walked to it along the coastal path which narrowed into a track lined by white washed cottages with washing hanging outside and friendly dogs eager for attention.

THE BEACHES It must be said that for many, southern Portugal's appeal is a coastline of some of Europe's finest beaches. The sand is spectacular and coupled with a Mediterranean climate it provides a great place to recharge your batteries. With so much to offer all year round it is no wonder that its popularity endures.

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26/05/2017 12:31

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26/05/2017 11:02

COMBATTING CARE CUTS: CORRIE'S IZZY GETS BUSY Words by Colette Carr

ans of Britain’s most loved street may know Cherylee Houston better as Coronation Street’s headstrong machinist, Izzy Armstrong. Cherylee, who arrived in Weatherfield back in 2010, made history becoming the soap’s first disabled regular character. But away from the cobbles she’s making even more waves across Greater Manchester through the TripleC programme, which intends to use drama as a prop in improving the confidence of disabled people and is a driving force in combatting the increasing

care cuts blighting Manchester’s disabled community all whilst making the arts more accessible. The Creative Confidence Collective describe themselves as “a collective of both disabled and non-disabled creative individuals who want to make a change in the access of the arts for the next generation”, and Cherylee opens their world up to PosAbility Magazine as she lets us know what they are all about. “I used to do a youth theatre school years ago and then a young woman Stacey was told that she might not have long to live,” she began. “She wanted to phone up after 12 years to talk about the impact that drama had had on her life and how much it changed how she approached life and her confidence and it got me thinking. “She’s fine now and is part of our collective but it made me think we could do it for the next generation, who can then impart knowledge onto the next and the next, and as more disabled artists join, it grows.” Bounded with a new desire to help more people access the arts, TripleC was soon born. Cherylee said: “Young people is where you’ll make the most impact but ideally we’d like to have a disabled group in every Greater Manchester theatre, so they can get used to a group of 20 disabled people present to

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CULTURE

electric wheelchair users and we’ve had people tell us “thank you, that’s inspired me to join” and that’s lovely because it has a ripple effect. “We’ve got about seven or eight electric wheelchair users signed up now.” But even after all that, the opportunities are still limitless for TripleC. “We could do a group for people with learning disabilities, high support needs, mental health or people who want to be an actor who have missed out on that chance, so it’s growing.”

affect how they market, accommodate the audience, how their café works and overall accessibility. “When our young people have been with us and their confidence has grown, we hope to find which youth theatre is suitable for them near their home and invite their leaders in so they can learn how to make their work accessible. “It’s about sharing knowledge and increasing that safe space where everybody can learn to put the label of accessibility onto their work.” Cherylee and TripleC also want to use their efforts to help tackle the issues facing those affected by care cuts, explaining that Manchester is one of the most affected areas and by providing the theatre programme, they are then offering a full day of care. “We’re also fundraising for

www.triplec.website

THE BIG EVENT

people with high-support needs who are having their care cut, so they can have one day a week drama classes where they’re having their care provided for them. “They’ll probably only have about three hours’ care, so we want to provide a full day which will enable them to get up, travel, dress as they want, if they want to put their makeup on they’ve got time and then come and do a whole day’s work. “As they grow more confident, they can make videos to demonstrate how their lives are and what needs to be changed. “We’ve got a lot more plans, we just have to get our funding going! There’s about fifteen of us now, mostly disabled artists being part of our own community whilst trying to make an impact on the mainstream world so you’ve got confidence to fall back on and a network where we can share our skills.”

The Collective recently took their inspirational practice into its first school, setting a great precedent for the future, according to Cherylee. “We did our first workshop in a disabled school last week and the impact we made in that room in two hours was phenomenal. “Before starting, the teacher listed some young people who probably wouldn’t join in and she could not believe the difference in people who normally don’t speak in class expressing themselves and said that’ll impact across the curriculum. We hope that from the 10K we’ll raise enough money for the foreseeable to take the programme into a Lancashire school at least once a week. “There are several disabled schools in Manchester who would like this for their school as well!” And that 10K is the Great Manchester Run, which just so happens to be another thing TripleC have impacted upon. “Electric wheelchairs are allowed in for the first time after discussions with ourselves, and it’s so exciting because myself and Mo ran it last year on segway wheelchairs and it was brilliant. “I never would’ve experienced how the whole community comes out in support and other wheelchair users are missing out so the 10K were really up for the idea of welcoming

Despite a hectic schedule between Coronation Street and Triple C, Cherylee managed to find time to partner with the Motability Scheme’s Big Event in Manchester’s Event City on 5-6 May. The event marked the 10th anniversary of the Scheme’s One Big Day Events and showcased the UK’s biggest display of cars, scooters and powered wheelchairs available to disabled people, kicks off a summer programme of regional One Big Day events across the UK. Opening the event, Motability customer Cherylee spoke about how important these events and the scheme are. "I had the pleasure of opening it and being around the biggest disability event of its kind. "I’m a Motability client and it made such a difference when I first got a wheelchair accessible vehicle. “I could then put my wheelchair in and drive myself when public transport often isn't accessible and it can be very difficult to get your powered wheelchair into other people's cars, so it made a huge difference."

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Kids’ CABIN

KIDS

Words by Niki Tennant

PRODUCTS

PAGE

Hip, hip hooray! The school holidays are on the horizon, which means freedom to explore the great outdoors. That’s why, with help from Euan’s Guide, we’ve compiled a list of the UK’s accessible National Parks where you can be at one with nature and experience the wonder of wildlife and woodlands. A summer’s day in the park wouldn’t be complete without a picnic, so on page 66, we share some easy-to-make mouthwatering recipes to fill your hamper and your tummies! Amputee with attitude, Rio Woolf, who has just celebrated his 9th birthday, returns to tell you all about his actionpacked couple of months of sporting achievements. Artist Dan White’s colourist is under the weather, which means we can’t bring you Team Strongbones in this issue – but the popular comic strip will return with a vengeance in the August/September edition. On the subject of Team Strongbones, congratulations go to eight-year-old Robert Matthews, of Guildford, who entered PosAbility Magazine’s competition to draw a superhero. Robert designed ‘SuperDad’ – a fireman blinded and paralysed. Robert told us: “SuperDad has X-Ray glasses to help him see and flies his hoverboard to save kids. He has an

ice blaster helmet to blow out flames and cool it. He is my hero. SuperDad wants to join the Department of Ability, but is too shy.” Well done, Robert, who wins a Department of Ability colouring book and thanks to all the other talented young artists who entered. Staying with the superheroes theme, turn to page 65 to meet Sarah Renehan, who created Hydro Girl to banish stigma and promote empowerment for people like her who have serious neurological condition, hydrocephalus – a build-up of fluid on the brain. On page 71, you and your family will find the latest colourful, fun and helpful products to stimulate you and help you live life to the full. We love to hear from our young readers, so if there’s a topic you’d like us to cover in the Kids’ Cabin pages, please contact us: niki@2apubishing.co.uk. Have a sensational summer. See you in August!

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KIDS

BLADE BOY RIO: HUNGRY LIKE THE WOOLF Words by Rio Woolf

Image © Lloyd Jones, LAJ Photography

Performance Athletics Centre at Loughborough University with para-athletics coach Lincoln Asquith that I was sharing the track with two of my all-time Paralympics GB heroes, Richard Whitehead and Jonnie Peacock. No way!

ou know me. Anything to do with sport – and anything that takes me a step closer to making my dream of becoming a Paralympian come true – gets me excited! A few weeks ago, I got the best news ever. I have been selected to represent my country at the European Amputee Football Federation (EAFF) Junior Camp in Warsaw from July 6-9. I had so much fun at the EAFF Junior Camp in Dublin last year and I’d been desperately hoping to make it into the England Amputee Football Association squad for Warsaw, so I am over the moon! It was a wow! moment when I realised during my last training session at the High

Back in September, I was at the track in Rio to see super-sprinter Richard (pictured), a Paralympic, World and European champion and a marathon world record holder, take gold on his two blades in the 200m on the day Britain won an amazing 21 medals – more medals than any day in the last three Paralympics. And then there’s double Paralympic World and European champion Jonnie, who re-set the record books in the 100m final at Rio. If there are two athletes whose awesome achievements I’m aiming for, it has to be these guys. I went to the WheelPower Primary Sports Camp last month. I’ve been going three times a year for the last four years and, as always, I had a blast trying out all kinds of sports on a fun-packed day. After I went for a trial with Harrow Athletics Club, the 8-11s coach Gary Collins worked out a new session plan for me to train with some other young athletes with drills that were great for helping me with my physio exercises and improving my athletics ability.

It means I’m now more confident running on my Ottobock UK 1E93 Runner Junior with 3S80 Sports Knee and learning to move my arms correctly. I was really pleased that the other children didn’t stare at my blade or treat me differently. I was very honoured to be invited by my brilliant surgeon Miss Deborah Eastwood and head of the Royal National Orthopaedic Hospital Research and Innovation Centre, Iva Hauptmannova, as a special guest at an open day at Stanmore. There, television and radio presenter Maggie Philbin OBE invited me on stage in front of an audience of 120 guests to talk about how advances and innovation in prosthetic technology can make life easier. I talked about how I’d like all amputee children to be able to get a knee joint like mine – the Ottobock UK 3S80. My wish has come true now that all lower limb-different children in England under 18 can get a running blade like mine on the NHS. I was excited to show off my blade and Union Jack socket – and to present Maggie with a copy of PosAbility magazine! I’m proud to be a junior sports ambassador for Arctic One and can’t wait to take part in the fantastic annual Junior Para-Duathlon event. All this comes on top of my 9th birthday – a birthday I share with sprinter Jonnie Peacock, no less. I’ll be celebrating with my friends at the bowling alley. Phew!

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Columnist Dan White

FLIGHT OF FANCY ust recently, for the first time, we took Emily and her

Dan White, creator of the amazing Department of Ability superheroes and dad to Emily, who is 10-years-old and has spina bifida, has become a regular face in PosAbility over the last few months as he shares his experiences of life as a family with a disabled child. You can follow Dan on Twitter @DeptOfAbility

wheelchair to the USA and we were lucky enough to do it via Virgin Atlantic to JFK. I say lucky, because as soon as we landed in NY and disembarked from service and care so exceptionally, wonderfully inclusive, we appeared to cross the dimension plane into a universe where disability didnâ&#x20AC;&#x2122;t exist. What we encountered was an airport populated by staff looking like they were walking around a haunted art gallery. Not only that but we had obviously become spirit-like beings who were invisible to the human eye. Looking for a disabled toilet for Emily was as easy as finding an accessible hammock. Staff ignored our questions and walked away, charm school rejects populated the walkways and were obviously well prepped by the DWP staff on disability care. Toilets are very much part of all our lives and when your child needs to go you would think there would be a plethora of accessible places in this city-sized plane shed. The biggest irony so far was that aside from the usual ladies and gents, there were pet relief stations! No signposted disabled loos but plenty of places to shave your armadillo. This was the dawning moment when we realised where our child came on the scale of hygiene, somewhere near the bottom of the chart, near Honey G. My wife eventually found an unmarked door and

applied her shoulder to it, revealing a disabled loo, lost in Narnia. When we reached our connecting flight, we trudged to the desk and gave our details to a lady who seemed to think I was standing two inches to the right as she could not give me eye contact. British as I am, I was incredibly polite and cheery, but all these emotions bounced right of her. I explained the toilet situation, that our details had been phoned ahead by our NY contact and that we were ready to board. This was to be the final stage in our journey, but unfortunately the lady at the gate was giving off all the false charm and sincerity of a mannequin with personality issues. No aisle chair for Emily and no idea about a wheelchair user being on the flight. Eventually, in the words of Buck Rogers (500 years later) we were on board our flight and away to Syracuse where we were met with the same friendliness and care that started on Virgin Atlantic, but got lost somehow at low budget horror movie JFK airport. One day I will write a jolly article for this incredible publication. Itâ&#x20AC;&#x2122;s just that I could easily give you another 500 words on our return to JFK days later, which involved more disability disdain, an asthma attack, lost luggage, no sign of any beached whales being pushed into pet relief and a very tired daughter who, like so many in our wonderful disabled community, rallied and refused to let ignorance and bad manners ruin her holiday.

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KIDS

SUPERHERO HYDRO GIRL

IS MAKING BRAINS MATTER Words by Niki Tennant

Picture: Nicole Cheung

young woman who has a lifethreatening neurological condition is combating stigma, increasing empowerment and advancing social change through her brainchild – a superhero inspired by her disability. Sarah Renehan was born with hydrocephalus – a build-up of excess fluid which puts pressure on the brain. Sarah was only four weeks old when she had her first brain surgery. She has had a further seven operations on her brain – including four within 12 weeks in 2011. Complications on the operating table resulted in a stroke and she lost movement on the left side of her body – particularly distressing for the young musician, whose part-paralysis meant she couldn’t play guitar or sing. During that long spell in hospital at the age of 24, she felt a need to connect with other people who have hydrocephalus, which is why she founded The Brain Drain Project* – a website that provides support and raises funds for people with the condition, which can cause brain

damage. “It put my whole experience with hydro into perspective as I listened to people tell me their stories, not only about their physical struggles, but their mental ones as well as they struggled with being bullied throughout their lives,” explained Sarah, of Melbourne, Australia, who recovered movement and coordination through stroke rehabilitation. Only when she’s tired does the permanent damage show through stuttering and reduced movement in her left leg. “Listening to people’s stories lit a fire in me about the unfairness and unkindness that we can experience as people and as someone with a disability.” Light-heartedly describing herself as having a serious case of ‘big sister syndrome’, she wanted to help and inspire those people, while educating the world about hydrocephalus in a fun and creative way. That is when comic superhero Hydro Girl was born. In collaboration with her brother, John, Sarah created Hydro Girl – a symbol of hope and inspiration and a statement that being different is not something to be ashamed of. Rather, it’s a source of pride. Hydro Girl has super strength. She can fly and has hydro-powered gloves – all powers attributed to her hydrocephalus. It is up to her to fight the villainous Mad Migraine before he destroys Blue Lake City. Hydro Girl is strong-willed, protective and willing to fight for what she believes. And like her creator, she is a family girl who loves music.

“The biggest challenge for me has been looking normal, even when I am quite literally on my death bed. I’ve found the more operations I have, the more I lose that little bit of physical stamina – quite frustrating for someone who doesn’t like to sit still,” explained singer songwriter Sarah, who wrote the theme song for Hydro Girl and for PosAbility columnist Dan White’s Department of Ability and Strongbones. “My best bit of advice to children is to be yourself. Don’t be scared to share your stories about your condition. People are always scared of things they don’t understand, so knowledge of yourself and your condition is power.” Emphasising that the comic would not have been possible without the talent of her brother and the support of her family, Sarah added: “Most importantly, don’t let your condition hold you back. I’ve been fortunate enough to meet so many inspiring people with varying disabilities and it just makes you realise even more that we all have the power to make ourselves successful. Just don’t hold back.” www.sarahrenehan.wixsite.com/ hydrogirlofficial/store *The Brain Drain Project website is currently under reconstruction

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26/05/2017 15:08

EXPLORE BRITAIN’S ACCESSIBLE NATIONAL PARKS

OUTDOORS

Words by Niki Tennant

PosAbility has teamed up with our wonderful friends at Euan’s Guide to reveal two National Parks whose nuggets you can explore with good disabled access. Here, we share valuable insight from the Guide’s enthusiastic reviewers:

➔ CAIRNGORM MOUNTAIN Make sure your camera’s ready for this one! If you’re looking for the finest views of the National Park, a trip on the UK’s highest mountain railway is a must. The carriage is accessible to wheelchair users, and one visitor gave the experience five stars saying:

➔ THE YORKSHIRE DALES Named National Park of the Year 2017, the Yorkshire Dales is one of several protected parks sweeping the north of England. Its dramatic valleys, patchwork farmland, purple moorland and charming villages make it one of the country’s top destinations for rural adventure. Here are just a couple of places you can explore with good disabled access:

dazzling formations – but don’t worry, the access isn’t as perilous as you might think! Two of the most impressive rock features to look out for are Malham Cove and Gordale Scar.

“Special carriage at the bottom for wheelchairs, so absolutely fabulous views down the mountain. Easy access to viewing terrace and café, which had lovely home baking and reasonably priced.”

➔ HIGHLAND WILDLIFE PARK

Gordale Scar is a rugged route to a massive gorge which was carved out of rock during the Ice Ages. Intrepid Euan’s Guide reviewer Sue told us about her trek to the gorge:

➔ BOLTON ABBEY Imagine the grandeur of an estate with over 80 miles of footpaths to explore. On the landscape of Bolton Abbey, you can investigate mysterious ruins, enjoy moorland trails, visit quaint tearooms or indulge in a picnic by the River Wharfe. The walking routes that surround the ruins are not only accessible to all, they are also filled with culture and quintessential English countryside.

➔ MALHAM Limestone country at its greatest, Malham is full of potholes, dissolving rock and

“This is not for everyone, but if you can make it, Gordale Scar is an amazing landscape and an enjoyable path. Help may be needed on a few bumpy, uneven sections.

Home to more than 200 animals, the Highland Wildlife Park in Kincraig looks after many rare or endangered species from mountainous and tundra regions around the world.

“The first part of the path is through the campsite. Although the National Park classes this as a ‘route for all,’ you will need sturdy wheels capable of off-road work and possibly some assistance on rocky sections.”

This visitor attraction has been very well set up to be accessible for wheelchair and scooter users with almost all areas having broad boardwalks. The restaurant and shop are also very accessible and there are disabled toilets.

➔ CAIRNGORMS NATIONAL PARK

Euan’s Guide is the disabled access review website that aims to ‘remove the fear of the unknown’ and inspire people to try new places. The website was founded in 2013 by brother and sister, Euan and Kiki MacDonald, after Euan became a powerchair user. www.euansguide.com

It’s the UK’s biggest national park, and it’s yours to explore! Discover native Scottish wildlife, mountains, ancient pine forests and more as you visit these attractions with great access reviews and listings on Euan’s Guide:

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RECIPES

SOMETHING YUMMY FOR YOUR TUMMY Parkland pickings: Easy-to-make picnic recipes for the slickest spread in sight! Words by Niki Tennant

SPANISH SAUSAGE ROLLS 375g puff pastry Flour for dusting 2 large Maris Piper potatoes cubed 225g chorizo ring Small bunch of parsley Poppy seeds Sesame seeds 1 egg, beaten

• Roll pastry into a rectangle roughly 32 X 20cm and cut in half. • Place on baking parchment on baking sheet and place in the fridge to chill. • Boil potatoes, drain and leave to cool. • Remove the skins from the chorizo and pulse in a food processor along with the potato and parsley and a teaspoon of poppy seeds. • Roll into two sausage shapes and place on the pastry. • Wash the edges with beaten egg, fold over and seal with a fork. • Preheat oven to 200C/180Cfan/Gas 6. • Brush tops with egg and scatter over sesame seeds. • Place in the oven for 25 to 30 mins until gold and cooked through. • Leave to cool before packing into picnic basket. A Spanish twist on the sausage roll picnic staple.

HOUMOUS WITH VEG STICKS

400g can of rinsed and drained chickpeas 1tbspn tahini paste Juice of one lemon 2 garlic cloves 4tbspn of olive oil 1tbspn just-boiled water 1tspn Marmite

HOMEMADE PINK LEMONADE

Kick-start your picnic with this refreshing still, cloudy, pink lemonade made from zingy lemons and flavour-bursting rasps. 8 lemons plus extra slices to serve 200g caster sugar and extra to taste 140g raspberries plus extra to serve Ice to serve • Prepare the zest from the lemons with a peeler and cut away any pith. • Juice the lemons and mix the juice, zest, sugar and raspberries with 1.2litres of boiling water. • Allow to cool, then sieve, pressing through the juice with the back of a spoon. • Add sugar to taste and chill in jugs. • Decorate with extra plump raspberries and lemon slices.

• Place the chickpeas, tahini and garlic in a food processor and whizz until smooth. • Add the lemon juice, oil, water and Marmite and whizz again until really smooth. • Serve with sticks of carrot, cucumber, red, green and yellow pepper and flat breads. Delicious – and healthy too!

STRAWBERRIES AND CREAM CHEESECAKE JARS

Make this delightful dessert portable by transporting it in eight jam jars with lids. 200g buttery biscuits (such as Fox’s Butter Crinkles) 200g cream cheese 6tbspn icing sugar 2tspn vanilla extract 500g strawberries, halved or quartered

the remaining strawberries. • Secure the lids and chill until ready to transport in a cooler bag. A star in a jar!

• In a food processor, blitz biscuits to crumbs and divide between jars. • Whisk cream cheese, cream, 5tbspn icing sugar and vanilla extract until softly whipped. • Tip half the strawberries and remaining sugar into another large bowl and crush with a fork to a puree and ripple through the cream. • Divide between jars and top each with

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The colourful Chi-Chi stander with a panda design is an entry-level vertical stander designed for children around 6yrs to 12yrs and for children who require low to moderate levels of support whilst weight bearing. Chi-Chi is slimline, easy to use and manoeuvre and will fit well in many environments allowing your child to perform activities without feeling isolated. Chi-Chi has numerous adjustability in the soft and comfortable knee supports, chest and pelvic bands. The sandals can also be adjusted to be either closer together or further apart depending on your child’s needs. Another feature of the Chi-Chi is the tray, which can be tilted and also removed allowing for easy cleaning, or for activities such as sensory wall play. Smirthwaite Ltd www.smirthwaite.co.uk 01626 835552

FLORES COT BED The Flores Cot Bed is a high sided wooden cot with an electrically operated bed frame (as an optional extra you can choose to have a turning or profiling bed frame). This specialist piece of equipment has been created to give a child a safe sleeping environment. It can be fitted with bumpers all around or in specific places to minimise the risk of injury or harm. The Flores will also allow the child visual reassurance as Macrolon™ windows have been incorporated replacing traditional doors. The Flores allows access for a mobile hoist if required. With a weight limit of 25 stone and a choice of doors both sides, the Flores can be customised to cater for even the most complex of needs. For bespoke options, to book a demonstration/ presentation or for prices and any further information please contact the Centrobed sales team on 01233 635353. sales@centrobed.com www.centrobed.com

71 www.posabilitymagazine.co.uk

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26/05/2017 12:21

KIDS

HEIGHT ADJUSTABLE HI-LO DESK

T-ROLLS AND LOG-ROLLS C&S Seating’s range of 24-hour postural management and control products are assembled and supplied in nine different sizes of T-Rolls and Log Rolls, ranging from paediatric to adult.

This beautiful range of functional desks has been designed to fit into the school environment with larger sized desktops for dynamic learning. Each of the desks has a sleek and modern height adjustment design with adjustments made with a simple turn handle. Change to the desired height so easily and simply, ideal when there are multiple users of the table. Each deluxe tilting desk features a pen stop to secure pens and prevents papers from sliding off the desk. They also come with beautiful soft close hinges as standard. Smirthwaite’s new hi-lo range is also available with a fixed top, where there is no requirement to have the tilting feature. The hi-lo desks can be used with a variety of chairs and can be made to match the colour of your child’s Juni chair. Smirthwaite Ltd 01626 835552 www.smirthwaite.co.uk

With 25 years’ experience, their range of colourful, soft knit covers have been designed to fit snugly over their standard waterproof T-Rolls and Log-Rolls. These removable and machine-washable covers are very popular with children and you can choose from pink, purple, orange or lime green. C&S Seating 01424 853331 or www.cands-seating.co.uk To request a brochure and pricelist, to speak to an advisor or place an order.

“THESE REMOVABLE AND MACHINE-WASHABLE COVERS ARE VERY POPULAR WITH CHILDREN AND YOU CAN CHOOSE FROM PINK, PURPLE, ORANGE OR LIME GREEN.” 72 www.posabilitymagazine.co.uk

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26/05/2017 15:23

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26/05/2017 11:03

EMPLOYMENT

BE A BETTER WORKPLACE ALLY TO YOUR COLLEAGUE WITH

DOWN’S SYNDROME Words by Niki Tennant

ncreasingly, young people and adults with Down’s syndrome are flying the parental nest, living independent lives, developing a network of friends and securing employment.

Encouragingly, an increasing number of employers are recognising the enormous value people who have Down’s syndrome can bring to their businesses and organisations, with some introducing adaptations to make the workplace more accessible.

“Today, many companies’ perception of Down’s syndrome has advanced significantly and savvy employers realise the numerous advantages of employing individuals with Down’s syndrome and the huge contribution they can make to the business,” explained Veronica. “Like many people with learning disabilities who are striving to achieve their fullest potential in the workplace, people living with Down’s syndrome need support from co-workers. Having a work mentor will offer the person with Down’s syndrome a first port of call for any queries or concerns.”

In the past decade, societal and workplace attitudes towards individuals with Down’s syndrome have made positive strides in the right direction, but Down’s Syndrome Association employment manager, Veronica Mulgena, says there’s still room for improvement.

She continued: “It’s fundamental. In fact, it’s the cornerstone to integration. As is the case with any new starter, it will also help them to form an effective working relationship, encouraging integration and inclusion as one of the team.”

She insists that for employers and their workforce, being equipped with the knowledge and understanding of how to better support a colleague with Down’s syndrome is key to achieving an inclusive work environment.

Down’s Syndrome Association wants to move away from the concept of ‘giving people something to do’ to an approach which progresses employees towards new outcomes through training, confidence building and skills development.

WHAT IS DOWN’S SYNDROME? Down’s syndrome is caused by the presence of an extra copy of chromosome 21 in a baby’s cells.

In the vast majority of cases, this isn’t inherited and is simply the result of a one-off genetic change in the sperm or egg. There is a small chance of having a child with Down’s syndrome with every pregnancy, but the likelihood increases with the age of the mother. For example, a woman who is 20 has about a one in 1,500 chance of having a baby with the condition, while a woman who is 40 has a one in 100 chance. People with Down’s syndrome often have certain physical characteristics. All children with Down’s syndrome have some degree of learning disability and delayed development, although this varies widely from child to child. www.downs-syndrome.org.uk www.mencap.org.uk www.dsworkfit.org.uk www.foxesacademy.ac.uk www.totaljobs.com

www.posabilitymagazine.co.uk 75

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26/05/2017 13:11

EMPLOYMENT

Mencap HR director, Angela Buxton, is also keen to stress how employing people with a learning disability has an overwhelming amount of benefits for employers, including raising employee morale and overall job satisfaction. “It’s the job of a HR team to work within their organisations to highlight these positives,” insists Angela.

BY MAKING YOUR COLLEAGUE FEEL INCLUDED, YOU WILL ALSO ENSURE THEY FEEL LIKE A VALUED MEMBER OF THE TEAM “Modern HR is all about breaking down attitudes and working with people as individuals and that’s really the key to integrating new employees who have a learning disability into a new team. Mencap’s advice would be to be flexible with job design, and ensure that staff are learning disability awareness trained. It’s small adjustments that make a big difference.” Help with adjustments can be sought through WorkFit – a service which turns the ‘supported employment’ concept on its head. WorkFit recognises paid work is not right for everyone, suggesting that the employment solution may otherwise include supported apprenticeships/

FIVE STEP EMPLOYEE GUIDE: Working in partnership with Down’s Syndrome Association, Mencap, WorkFit and specialist catering college and training hotel for adults with learning disabilities Foxes Academy, totaljobs has created a guide that explains how workers can be a better workplace ally to a colleague who has Down’s syndrome.

• Educate: Learn more about the condition By understanding the genetic condition, you’ll be in a better position to support your

internships, work experience or voluntary work. Whichever the solution, the service maintains Down’s syndrome-specific support is essential. And, it insists, general training misses too many factors. As specialists in Down’s syndrome, WorkFit provides informative, bespoke guidance and training to employers hiring someone with Down’s syndrome. The service works with employers to review the workplace, identify any disability issues, consult on possible roles that would be suitable and make recommendations on reasonable adjustments and adaptations to meet statutory requirements under disability and employment legislation. Training covers awareness sessions on Down’s syndrome and the specific learning profile, management strategies and advice on how to manage an employee with Down’s syndrome. For a person with Down’s syndrome, becoming a paid employee encourages independence, introduces new skills related to adult social life, opens a wider circle of friends and boosts confidence. Co-workers also have a massive part to play in becoming a good work buddy to a colleague who has Down’s syndrome. By making your colleague feel included, you will also ensure they feel like a valued member of the team. This could be as simple as asking the employee with Down’s syndrome to join you for lunch or letting them know about a workplace event in which they can participate with colleagues.

CASE STUDIES: Ben Small, 28, faced constant rejections from companies in his search for a job in 2015,, despite having an NVQ1 in catering. Ben has Down’s syndrome and as a result, many companies underestimated his working potential. Ben, Newlands Hey School, explained: “Before, I was only offered unpaid work. But I’ve always wanted a job where I can get paid for my work, to help me understand money and budgeting better and to be more independent.” In a bid to help her stepson have the chance to work, Fiona Hodge asked for help on Twitter, creating the hashtag #GetBenAJob. Not only did the hashtag go viral, but as a result Ben was inundated with job offers, eventually opting to choose a job in Wilson’s Kitchen. Luke, Wiltshire Police Headquarters: “The team are really supportive, kind, helpful and positive. It makes me feel like they helped me out a lot.” Alex, Hilton, Bournemouth: “When Cedric the pastry chef made me a birthday cake not long after I had started at the hotel, I felt so happy as it was presented to me as a valued member of the team.”

colleague. Ask your employer to supply learning material or training.

the incident immediately and speak up for them

• Include: Make your colleague feel welcome Be their support system and offer to mentor them in tasks to ensure they have all the help they need. Making your colleague feel included will create a positive atmosphere.

• Explain: The unwritten rules It’s the little things that matter, for example which mug to use and where to make a cup of tea. Act as a mentor and help your new colleague to settle in.

• Speak up: Empower your colleague

Make it your business to ensure that there’s zero tolerance to discrimination. If you see any mistreatment of your colleague, report

• Don’t underestimate: Respect your colleague Remember that your colleague is there to do a job to the best of their ability and has much to offer.

76 www.posabilitymagazine.co.uk

075_colleagues_down_syndrome_SF_AB.indd 76

26/05/2017 13:11

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26/05/2017 11:03

CAREERS

GET THAT DREAM JOB

hilst we hope that everything goes well during the recruitment process, it is a good idea to be aware of your legal rights.

It is unlawful for an employer to treat a disabled job applicant or employee less favourably because they are disabled. This includes: Direct discrimination - when someone is treated differently and not as well as other people because of disability. This could be because of: • their own disability (ordinary direct discrimination) • a perceived disability (direct discrimination by perception) • their association with someone who is disabled (direct discrimination by association with, for example, a family member). Indirect discrimination - when a workplace rule, practice or procedure (which cannot be justified) is applied to everyone, but disadvantages those who are disabled more than those who are non-disabled. Harassment - when unwanted conduct (physical, verbal or mental) related to a person’s disability causes a distressing, humiliating or offensive environment for that person. Victimisation - treating someone unfairly because they have made or supported a complaint about disability discrimination. Discrimination arising from disability - where someone is treated ‘unfavourably’ because of something linked to their disability, but not because of the disability itself. Failure to make ‘reasonable adjustments’ - an employer failing to

Jane Hatton of Evenbreak talks disabled job applicants through their legal rights when applying for a job. make ‘reasonable adjustments’ for a disabled job applicant or employee is one of the most common types of disability discrimination. If adjustments are ‘reasonable’, an employer must make them to ensure its workplace or practices do not disadvantage a disabled job applicant or employee already with the organisation. Employers have a duty to make reasonable adjustments for disabled candidates. This duty aims, as far as reasonable, to ensure disabled candidates have the same access to gaining a job as a non-disabled candidate. These reasonable adjustments apply to any aspect of the recruitment process. Employers also have a duty to provide you with additional aids where this would reduce or remove a substantial disadvantage. This includes providing information in accessible formats, such as easy-to-read or large print. Most adjustments can be made at low or no cost. There is help for employers to assess what adjustments may be necessary for you to access the recruitment process at Access to Work. It’s important to note that your employer only has a duty to provide reasonable adjustments if they are aware of or should reasonably be expected to be aware of your impairment. If your employer does not provide you with reasonable adjustments and you can show that they could have removed barriers, then you may be able to bring a claim against them. Much better to avoid this by making clear what reasonable adjustments you require and why. If you think you have been discriminated against because you are disabled, you can contact the Advisory, Conciliation and Arbitration Service (ACAS). Their helpline is on 08457 47 47 47 for free and confidential advice. For further tips and jobs from inclusive employers who are looking to attract more disabled candidates, have a look on the Evenbreak website (www.evenbreak.co.uk).

WHAT ARE MY

RIGHTS 78 www.posabilitymagazine.co.uk

078_Jane_hatton_SF.indd 78

25/05/2017 21:35

ACCESSIBLE TRAVEL PUZZLES

Brain Teasers

Puzzles are a great way to pass the time and keep your mind sharp. Why not take a break, make a cup of tea and give these puzzles a go? If you correctly complete the crossword and post it to us with your details, you could be in with the chance of winning ÂŁ25. Good luck!

CROSSWORD

WORD SEARCH

Test your eyes and find the words below from this issue of PosAbility Magazine

M P

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7 Possibly (7) 8 Cousin of your daughter (5) 9 Pertaining to the nose (5) 10 Satisfied (7) 11 Form of precipitation (8) 13 Cease (4) 15 Excess of expenditure over income (4) 16 Magician (8) 19 African river powering the Kariba Dam (7) 20 Highly favoured (5) 22 Prevail (5) 23 Performer of gymnastic feats (7)

ÂŁ25 PRIZE! Complete the crossword correctly and send to PosAbility Magazine, Caledonia House, Evanton Drive, Thornliebank Ind Est, Glasgow, G46 8JT to be in with a chance of winning ÂŁ25. Closing date for entries is 30 July 2017.

DOWN

1 Food tin essential (6) 2 Minerals (4) 3 Sentimental songs (7) 4 Mental (13) 5 Runaway (8) 6 Broken-down (4-2) 8 Number of feline lives (4) 12 Inability to sleep (8) 14 Nemesis of â&#x20AC;&#x153;Titanicâ&#x20AC;? (7) 15 Reptile (6) 17 Revolve (6) 18 Noggin (4) 21 Recedes (4)

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www.posabilitymagazine.co.uk 79

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We are a family run business providing 8 self catering cottages designed to suit both disabled and able-bodied guests. Situated on a converted farmyard on the outskirts of the quiet village of Bircham, about 5 miles from the Royal Estate at Sandringham and 7 miles from the North Norfolk Coast. There are many nearby attractions, pubs and family activities to ensure there is something for everyone. For more information or to book call 01485 578 354 or email lavinia@nd-fc.co.uk.

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26/05/2017 11:03

ability MAGAZINE

Nothing is Impossible... TRAVEL REVIEWS

Expert travel reviews to help you make the best choice when booking your holiday.

PRODUCTS

An innovative mix of products to support you in everyday living.

EMPLOYMENT AND EDUCATION

Regular columns and features on getting your dream job. Providing advice on CVs, interview tips and much more.

PERSONAL STORIES

Inspiring tales from our readers.

COMPETITIONS

Exclusive competitions that give you the chance to win dream holidays, amazing products and once in a lifetime experiences.

SUBSCRIBE TODAY! Every issue is packed with information designed to help you live life to the full, from products and sports to holiday ideas and employment advice, so make sure you don’t miss out on any future issues and subscribe today! Like us on Facebook Search for ‘PosAbility Magazine’

HEALTH AND FITNESS

We look at sports and activities available for you to get involved in to help you lead a healthy lifestyle.

DAYS OUT

Great ideas for the whole family to enjoy.

MAGAZINE

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