March/April 2013 GYN Cancers Alliance provides education, resources and support to local women and caregivers affected by gynecologic cancers.
13 ry 20 a u n a ps J & Chi s g e ,K Corks
Support Resources & Meetings Page 2 Even If You’ve Had a Hysterectomy or Gone Through Menopause Page 4 Cyndi Sullivan “Tee Up Fore Teal” Memorial Golf Tournament Page 6
2013 Support Group Meetings Page 3 Spring Luncheon Page 5 Thank You! Page 7
March/April 2013
Even If ...you have had a hysterectomy or gone through menopause – You can still get a gynecologic cancer!
Myth #1: “I don’t need to worry about getting ovarian cancer because I had a hysterectomy and all those parts were taken out.� Fact: Even if your ovaries and fallopian tubes have been removed, you can still get a G-Y-N cancer!
Myth #2: “My doctor told me I don’t need an annual pelvic exam since I’ve already been through menopause.� Fact: “Endometrial cancer usually takes years to develop. It most often occurs in women who have already gone through menopause,� according to Women’s Cancer Network (www.wcn.org). As hundreds of women visited the GYNCA booth at a recent trade show, we quickly realized how ill-informed women are about their gynecologic health and cancer risk. Two and three-time uterine and ovarian (primary peritoneal) cancer survivors who were answering questions of our visitors couldn’t believe what they were hearing, so now we find ourselves anxious to separate myth from fact. “The abdominal cavity and the surface of all the organs in it are covered by the peritoneum. This is a cellophane-like, glistening, moist sheet of tissue. It protects the organs in the abdomen. It also supports them and prevents from sticking to each other. That way they can move smoothly
within the abdomen. “The cells of the peritoneal lining develop from the same type of cell that lines the surface of the ovary. Certain cells in the peritoneum can transform into cancerous cells. When this occurs, the result is primary peritoneal cancer. And it can affect the surface of any organ contained there.� (www.wcn.org) GYNCA’s newest emphasis is to ensure all women, their spouses and caregivers know the difference between myth and fact. Too many women die every day from late-stage gynecologic cancer diagnoses because they don’t get regular pelvic exams, ideally annually, after a hysterectomy and post-menopause. A pap smear detects only cervical cancer; pelvic exams are a basic, necessary tool in early detection of other gynecologic cancers, i.e. uterine, ovarian (PPC), vaginal and vulvar. At the very least, make sure you have an informed, in-depth conversation with your gynecologist or primary care physician. (References shared in part from Women’s Cancer Network, www.wcn.org).
Southwestern Three-Bean and Barley Soup - Connie Rizzo MEd, RD, LD 6 servings What you will need: t 5CTQ PMJWF PJM t DMPWFT HBSMJD NJODFE t NFEJVN POJPO EJDFE t MBSHF TUBML DFMFSZ EJDFE t MBSHF DBSSPU EJDFE t DVQT XBUFS t DVQT P[ DBSUPO MPX TPEJVN WFHFUBCMF CSPUI t › DVQ QFBSM CBSMFZ t › DVQ ESJFE CMBDL CFBOT t › DVQ ESJFE HSFBU OPSUIFSO CFBOT t › DVQ ESJFE LJEOFZ CFBOT t UTQ DIJMJ QPXEFS t › UTQ HSPVOE DVNJO t 4BMU UP UBTUF
Soak the three beans in water overnight (or for at least 4 hours) and discard the water. In large stockpot, cook onion, celery, carrot and garlic in oil until onion is softened. Add water, broth, barley, all three beans, chili powder and cumin. Bring to a boil and reduce heat to maintain a simmer and cook, stirring occasionally, until beans are tender (about 1-3/4 to 2-1/2 hours; add more water if necessary). Season with salt after beans are cooked (do not add salt before beans cook or they toughen). Idea! Add leftover chicken or turkey for additional flavor and protein! Per serving: 252 calories, 14 grams protein, 44 grams carbohydrate, 14.2 grams dietary fiber and 2.4 grams of fat.
Adapted by Connie Rizzo from http://www.eatingwell.com
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Support Group Meetings – 2013 (March thru August) Unless otherwise noted, all meetings are held at The Library Center, 4653 S Campbell, Springfield on the 3rd Thursday monthly in Auditorium or other designated meeting room. Social hour at 6:00 pm. Program at 6:30 pm.
March 21 – Ask the Nurses Be sure to bring all of your burning questions to this meeting!. We love our NPs, RNs and LPNs!
April 18 – So You Think You Can’t Sing or Play an Instrument? Music for the Soul, by Leslie Jones, Registered Music Therapist, Drury University. Back by popular demand, Leslie pulls tunes and moves out of people who never thought they had a tune inside them!
May 16 – I Love Lucy! (Or, as Ricky says, “Lucy, you’ve got some ‘splaining to do!) Come laugh with the rest of us … laughter is good for the soul!
June 20 - Pinic In The Park SPECIAL LOCATION – Springfield Lake Boathouse & Marina 5324 South Kissick Avenue, Springfield (417) 891-1550. Fun and games for our survivors, kids, grandkids, families and caregivers! Buffet dinner begins at 6:00 pm. Let us know how many are coming by calling 869-2220 or email jan@gynca.org for reservations and ages of kids!
July 18 - Hospice and Palliative Care The ever-evolving world of Hospice and Palliative Care, and to help us better understand a subject we’re often afraid to address, we look forward to welcoming Pat A. Price, Director-Mercy Hospice. This might also be a good meeting to bring caregivers and family members along … sometimes their questions are different than the patient’s.
August 15 - Evening of Pampering! This is your evening, ladies! We already have massage therapists lined up and will be bringing in others to do nails, hand massage, aroma therapy, etc. to help you look and feel better. One of our favorite meetings, so don’t miss it!
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March/April 2013
Even If ...you had a hysterectomy or gone through menopause – You can still get a gynecologic cancer!
Myth #1: “I don’t need to worry about getting ovarian cancer because I had a hysterectomy and all those parts were taken out.� Fact: Even if your ovaries and fallopian tubes have been removed, you can still get a G-Y-N cancer!
Myth #2: “My doctor told me I don’t need an annual pelvic exam since I’ve already been through menopause.� Fact: “Endometrial cancer usually takes years to develop. It most often occurs in women who have already gone through menopause,� according to Women’s Cancer Network (www.wcn.org). As hundreds of women visited the GYNCA booth at a recent trade show, we quickly realized how ill-informed women are about their gynecologic health and cancer risk. Two and three-time uterine and ovarian (primary peritoneal) cancer survivors who were answering questions of our visitors couldn’t believe what they were hearing, so now we find ourselves anxious to separate myth from fact. “The abdominal cavity and the surface of all the organs in it are covered by the peritoneum. This is a cellophane-like, glistening, moist sheet of tissue. It protects the organs in the abdomen. It also supports them and prevents from sticking to each other. That way they can move smoothly
within the abdomen. “The cells of the peritoneal lining develop from the same type of cell that lines the surface of the ovary. Certain cells in the peritoneum can transform into cancerous cells. When this occurs, the result is primary peritoneal cancer. And it can affect the surface of any organ contained there.� (www.wcn.org) GYNCA’s newest emphasis is to ensure all women, their spouses and caregivers know the difference between myth and fact. Too many women die every day from late-stage gynecologic cancer diagnoses because they don’t get regular pelvic exams, ideally annually, after a hysterectomy and post-menoppause. A pap smear detects only cervical cancer; pelvic exams are a basic, necessary tool in early detection of other gynecologic cancers, i.e. uterine, ovarian (PPC), vaginal and vulvar. At the very least, make sure you have an informed, in-depth conversation with your gynecologist or primary care physician. (References shared in part from Women’s Cancer Network, www.wcn.org).
Southwestern Three-Bean and Barley Soup - Connie Rizzo MEd, RD, LD 6 servings What you will need: t 5CTQ PMJWF PJM t DMPWFT HBSMJD NJODFE t NFEJVN POJPO EJDFE t MBSHF TUBML DFMFSZ EJDFE t MBSHF DBSSPU EJDFE t DVQT XBUFS t DVQT P[ DBSUPO MPX TPEJVN WFHFUBCMF CSPUI t › DVQ QFBSM CBSMFZ t › DVQ ESJFE CMBDL CFBOT t › DVQ ESJFE HSFBU OPSUIFSO CFBOT t › DVQ ESJFE LJEOFZ CFBOT t UTQ DIJMJ QPXEFS t › UTQ HSPVOE DVNJO t 4BMU UP UBTUF
Soak the three beans in water overnight (or for at least 4 hours) and discard the water. In large stockpot, cook onion, celery, carrot and garlic in oil until onion is softened. Add water, broth, barley, all three beans, chili powder and cumin. Bring to a boil and reduce heat to maintain a simmer and cook, stirring occasionally, until beans are tender (about 1-3/4 to 2-1/2 hours; add more water if necessary). Season with salt after beans are cooked (do not add salt before beans cook or they toughen). Idea! Add leftover chicken or turkey for additional flavor and protein! Per serving: 252 calories, 14 grams protein, 44 grams carbohydrate, 14.2 grams dietary fiber and 2.4 grams of fat.
Adapted by Connie Rizzo from http://www.eatingwell.com
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March/April 2013 RON & JANICE PENNEY present 12th Annual GYN Cancers Alliance
Spring Luncheon Silent Auction & Fashion Show gynecologic cancers.
Ticket Order Form Name Attendees
Business Address City
State
Zip
Phone email Method of Payment Check Discover
Fashion Show by
Monday, April 22, 2013
Credit Card # Exp. Date Signature
Visa
Mastercard
American Express
/Sec. Code
Ramada Oasis Convention Center
Total number of tickets Price Per Ticket - $30 Total
Robert & Becky Bach
I cannot attend but would like to make a donation.
Bonnie Atteberry
In Memory of: In Honor of:
Dr. John & Susan Mihalevich
Donation Amount $ Total Enclosed
Rosalie Wooten Gary & Suzanne Dukewits
Please mail or fax this completed form, along with payment, to: Doors open at 11 a.m. for Silent Auction, Vendor Booths and Tote Bag Extravaganza!
$30 per Person / $300 for Table of Ten
Sponsorships Available Register by calling GYNCA at 417.869.2220 or online at www.gynca.org/events by April 18th. www.GYNCA.or
417.869.2220
GYN Cancers Alliance 3023 S Fort, Suite B Springfield, MO 65807 Phone: 417.869.2220 Or fax to 417.869.2221 Tickets may be purchased online at www.gynca.org
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March/April 2013
Monday May 20 2013 www.gynca.org At Highland Springs Country Club
Four Person Scramble, Men's and Women's Divisions New Vehicle from Youngblood for a Hole-In-One! | Flighted Prizes | Great Raffle Prizes Tournament limited to 25 teams each flight, REGISTER ONLINE TODAY! Sunday Night Kick-Off Party
May 19- 6:00pm at Highland Springs Country Club- Banquet Room
Morning Flight- Men's Flight
Starting at 7:00am
Afternoon Flight- Women's Flight Starting at 11:00am
Still Available!
$50 ea
& Rick’s Automotive
SPONSORS
Sponsorships still available-please contact 417.869.2220 for more info.
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March/April 2013 Thank You to Our Generous Grantors, Donors,Sponsors & Underwriters In Memory of Betty Lane Andy & Charlotte McMillen Pat Wright Patty Dukes Charles A. Clark Viola Dukes David Glaese Spouses & Children of Springfield Fire & Police Retirees John & Judith Parker Jon & Nancy Stafford Pat, Kyle & Kevin Jones Dwight & Bunny Nyberg Keith & MJ Reeves Bobbi Marsh George & Mary Seubert Mike & Jeri Cameron Charles & Anne Harris CW & Janet Haws John & Kathy Davis Leslie & Rosalee Taylor Carroll M. Wuench Ruby Gray Nixa Early Learning Center
In Memory of Kathy Hartgraves Wilbur & Lorene Brill In Memory of Kay Walton Mary & Mark Burmeister In Memory of Dick Boynton Dr. Steve and Ann Grace In Honor of Jan Garton Barry & Beverly Aton
Towe Construction Co., Inc. Dick Luke Insurance Barry & Beverly Aton Jeffery C. Hutchens Dean & Marti Towe Neil & Beverly Stenger Dr. John & Jeris Ferguson Ken & Marilyn Keltner Barbara J. Mitchell Inez H. Tillman Vaughn & Sue George Received as of 2-25-13
Annual Giving Friends John & Penny Coleman In Memory of Cathy Lindstrom Diana Barnes Jay & Suzanne Scott Janice L. Crosby Jan Robbins Seth Leonard, RLI Surety Mr. & Mrs. Ted Von Willer, Jr. Ron & Karen Ollis
Undesignated Donations Macadoodles - Springfield Barbara Collins Mark & Sylvia Terbrock Anonymous Susan P. Mihalevich Ron & Janice Penney Reba A. Parker Kristi A. Van Doren Jeff & Beki Rhein Thomas D. Wells
To make a donation to GYNCA please mail checks to 3023 S Fort, Suite B, Springfield, MO 65807 or go online to www.gynca.org All donations are 100% tax deductible as allowed by law.
Cancer Patients Receiving Pelvic Radiation Needed for Cancer Research for the Ozarks Clinical Trial! The Goal of the study is to determine if the drug Sulfasalazine is effective in reducing treatment related diarrhea in patients receiving pelvic radiation therapy.
Drug Is FREE To Participants!
Participants will receive a drug called, Sulfasalazine by mouth twice daily during radiation therapy and for 4 weeks afterwards OR A placebo by mouth twice daily during radiation therapy and for 4 weeks afterwards. Who is Eligible? Anyone with a diagnosis of cancer that requires the use of radiotherapy to the pelvic Must not have current or prior metastasis beyond the pelvic regional lymph nodes
To learn more contact us at 417-269-4520 or 1-800-821-7532 or visit our website at Ozarkscancerresearch.org Refer to Trail # GOG-0225 “Can Diet and Physical Activity Modulate Ovarian, Fallopian Tube and Primary Peritoneal Cancer Progression – Free Survival?”
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GYN Cancers Alliance 3023 S Fort, Suite B Springfield, MO 65807
NONPROFIT ORG. US POSTAGE PAID SPRINGFIELD, MO PERMIT #230
March/Aptil 2013
Spring Wine Tasting benefiting GYN CancerS Alliance
Gynca provides resources and support to local women and families affected by gynecologic cancers
Sunday, April 7, 2013 2:00 to 5:00pm $20 donation, includes Etched Riedel wine glass, sample over 120 exclusive wines and enjoy delicious foods courtesy of Florentina’s Ristorante Italiano! Unique silent auction is always a big hit! GYNCA receives 10% of all regular-priced wine sales during event!
1455 East Independence Springfield, MO 65804
For more information, call 869-2220 or email jan@gynca.org