POLICYMAKING Page 13
Volume 29, Number 4
April 10, 2018
WWW.ACCESSPRESS.ORG
Donors vital to our success
NONPROFIT ORG. U.S. POSTAGE
PAID
TWIN CITIES, MN PERMIT NO. 4766
Donors play an important role in helping bring Access Press to readers every month. As the newspaper staff and board cope with a fiscal crisis, some of our longtime readers and contributors are weighing in. A donation form appears on page 9 of this issue. Or go to www.accesspress. org to find donation information. Won’t you join our supporters? Here are a few of their stories.
ADDRESS SERVICE REQUESTED
DONORS To page 10
ARRM CEO Sue Schettle urged advocates to share with their legislators the harmful impacts of a seven percent cut to rates.
Community groups rally to halt devastating cuts Self-advocates and disability-related organizations are rallying to fight a pending seven percent cut to disability services in Minnesota. The cut will start taking effect July 1, unless the Minnesota Legislature takes action. What worries many service providers is that the funds for some services have already been spent. The July 1 cut is expected to affect
about 27 percent of those who receive services, with more cuts phased in over the next 18 months. Stopping the cut was a focus of the March 13 rally during ARRM/MOHR Day at the Capitol March 13. More than 1,000 people were on hand to meet with lawmakers and fill the capitol rotunda, chanting “Stop the cuts! Stop the cuts!” CUT To page 14
Curiano.com NEWS DIGEST Behavior was changed Page 2 April is Autism Awareness Month Page 5 Our Directory of Organizations can provide needed help Page 7-10 State champions are crowned Page 13
Josiah's Fire shares family's autism journey by Jan Willms A diagnosis of severe autism disorder for son Josiah rocked the lives of parents Tahni and Joe Cullen. At 22 months Josiah became nonverbal. Family life became an emotional, financial and spiritual rollercoaster ride. Life changed abruptly when Josiah began writing on his iPad. Words of great wisdom, spirituality and understanding were written daily by a seven-year-old. Read the writing and the Cullen family’s experience in Josiah’s Fire: Autism Stole His Words, God Gave Him a Voice, a book Tahni Cullen co-authored with Cheryl Ricker. Ricker is a writer of supernatural true-life stories that reflect God’s presence. Ricker and Cullen met by chance at a Christian women’s media conference in the Twin Cities. Ricker questioned attending due to a cold. Cullen was a fill-in guest speaker. They were seated together and a connection was made Cullen, who considered self-publishing Josiah’s story for family and friends, was encouraged by Ricker to co-author a book. Ricker and Cullen shared similar experiences as parents. Ricker also has worked with people with disabilities. “I really like to help people, and writing is my thing,” Ricker said. She befriended Josiah, and he would write to her.
SUBMITTED PHOTO
Charlie Smith was right about a lot of things. He was right when he said in the first sentence of his first editorial for Access Press that it was going to be “one of the most important papers to become available to the people of Minnesota.” He hoped Access Press would help lawmakers understand “the day-to-day effect” their actions have had and would have on people with disabilities. To his readers, Charlie said “My greatest hope is that Access Press will be of value to you as a source of information. I also hope it will stimulate readers to stand up for their rights and those of others.” For 28 years Access Press has done just that, but a substantial and ongoing increase in private support is essential if that effort is to continue. I spent an afternoon looking through issues of Access Press I have saved--some from the 1990s, most of them from the past decade. The paper does indeed provide a great deal of information--a summary of legislative issues before and after each session, lengthy articles on voting rights, regular updates on the state’s Olmsted plan, stories about getting to the Green Line, and the status of skyway access--solid information, well presented. Both Charlie’s and Tim Benjamin’s editorials documented the need for and urged legislative action to increase wages for PCAs and other direct service staff. Access Press told about people--self-advocates who spoke to their legislators or testified before committees, persons honored by organizations, and the winners of the annual Charlie Smith award. Their stories challenged readers to emulate these men and women. Likewise, the In Memoriam pages described the rich lives of persons with disabilities and told of others who were advocates, teachers, or caregivers. Access Press has been what Charlie hoped it would be--a valuable source of information and stimulation. The financial pressures facing Access Press are real, but Charlie was right-this excellent newspaper is important for persons with disabilities, for their families, and for the state itself. Please, become a regular supporter of Access Press and urge your family, friends, and employers to do so too. Access Press is far too important to lose. Luther Granquist, longtime newspaper contributor and Minnesota Disability Law Center (retired)
AARM
A lasting effect
One of the toughest experiences to go through is to be someone's strength while you're at your weakest.
Tahni Cullen and Cheryl Ricker co-authored a book about a remarkable autism journey. The women enjoyed collaborating and enjoyed a unique partnership. Ricker helped Cullen winnow down details of life with Josiah. For much of the book, they used Josiah’s words, stored on his iPad. The book also drew from Cullen’s blog. “In going back and recounting things for this book, I had to relive all that,” she said.
“To go back and look at baby pictures and just feel those emotions again was a very raw process.” Yet it was also healing. “It’s more difficult writing a book with someone, but I enjoyed it,” Ricker said. “There is something powerful about writing with somebody,” Cullen said. JOURNEY To page 5
YOUR AD HERE CONTACT MICHELLE TODAY!
612-807-1078 or michelle@accesspress.org