May 2018 Edition - Access Press

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CUT IS EYED Page 4

May 10, 2018

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Service cut, work rules in limbo as session end nears

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TWIN CITIES, MN PERMIT NO. 4766 ADDRESS SERVICE REQUESTED

by Access Press staff

LIMBO To page 13

However difficult life may seem, there is always something you can do and succeed at it.

MINNESOTA DNR

The clock is ticking as the 2018 Minnesota Legislature nears its May 21 adjournment date. Many disability-related issues hung in the balance as Access Press went to press. People with disabilities and their advocacy groups are tracking a wide array of bills as the session draws to a close. Omnibus bills, including finance bills, were making their way through the process as April ended and May began. House and Senate floor passage of various financing and policy bills then sends the measures to conference committees to hammer out differences. Gov. Mark Dayton has made it clear he doesn’t want state lawmakers to be back for a special session, so the pressure is on to get things done. The controversial Medical Assistance/Medicaid work and volunteer time requirements, which met objections from many disability service groups and the This is Medicaid Coalition, are still a focus of concern. As of newspaper deadline the requirements hadn’t been voted on. Opponents of the measure are still wary of floor votes, and the measure coming up. Dayton has threatened to veto the measure, but could be placed in a tough spot if the requirements are slipped into a larger bill. If the requirement provision happens, more than 20,000 Minnesotans could be affected. Opponents of the measure said it would create onerous reporting requirements and could have consequence of causing people to lose health care coverage and supports needed to survive. The work requirements are also seen as creating very costly and staffintensive demands on county and state human services staff. It could also force people who are working to go on permanent disability, rather than deal with ongoing, complex reporting requirements. One issue many people are watching closely is the looming seven percent cut to home and community-based services. The House and Senate have each placed a priority on stopping the cut, which would create upheaval in the lives of many Minnesotans with disabilities. The Senate’s proposal would delay the cut but not stop it entirely. Another issue that has been the focus of intense lobbying this session was complex care, or enhanced rate for high needs personal care attendant services. For the past few years, self-advocates and disability

Stephen Hawking

A family enjoyed a vacation at Jay Cooke State Park. Improvements to four other state parks are in play in the 2018 bonding bill.

Bonding needs for state parks, DHS facilities are still in play Accessibility improvements to four Minnesota state parks, as well as improvements to state academies and Department of Human Services (DHS) treatment facilities remain on the table as the 2018 Minnesota Legislature approaches its May 21 adjournment date. The Minnesota Council on Disability is leading the charge on the state parks funding, which would provide $20

NEWS DIGEST Art, history displays open Page 8

million to the Minnesota Department of Natural Resources to design, develop and complete comprehensive packages of accessibility improvements and upgrades at Fort Snelling, Minneopa Nerstrand Big Woods, and William O'Brien state parks. The improvements are anticipated for day facilities, campground areas, trails, parking facilities, interpretive buildings and exhibits, BONDING NEEDS To page 5

New advocacy group forms Page 5 Live Well grants approved Page 7 MOHR announces awards Page 9

Health care survey reveals cost increase worries by Access Press staff How do Minnesotans feel about health care costs, especially against the backdrop of possible changes to Medicare and Medicaid? A survey of more than 1,000 state residents shows that while the vast majority have health insurance, respondents are worried about the rising costs of health care. Drug prices are a concern, as are looming changes at the federal level. Recently the Minnesota Governor's Council on Developmental Disabilities (MNCDD) replicated a 2004 health care costs survey. Minnesota Healthcare Attitudes 2018 shows that while the health care landscape has changed since the launch of the Affordable Care Act, some familiar worries remain. The original survey was launched when then-Gov. Tim Pawlenty appointed former U.S. Senator David Durenberger to head the Minnesota Citizens Forum on Health Care Costs. The forum was asked to address a crisis in affordable health care. Its 18 members traveled the state for three months, conducting town hall meetings and listening sessions. Members gathered ideas from fellow citizens on what the state's health care system should look like. At the time Pawlenty said the forum would likely find much common ground

HEALTHCARE OUTLOOK One-out-of-four Minnesota adults (27%) believe they will be worse off in 3 years regarding access to good quality, affordable healthcare. With regards to your access to good quality and affordable healthcare, I believe in 3 years we will be… (Q13) (n=1,009) Worse off

Better off

About the same

Do you know someone with a developmental disability? Yes Immediate Family/Self

Yes Acquaintance

(n=433)

38%

27%

23%

22%

23%

26%

40%

50%

51%

(n=143)

27%

24%

49%

(n=433)

No

Indicates statistically significantly higher or lower than other figures in the row, at 95% confidence level

Households with a person with a developmental disability are more likely to have a pessimistic near future outlook regarding healthcare quality and affordability, as compared to all other households. 26

on health care reform, and would find solutions to help cut health care costs for Minnesotans. The forum worked with the Minnesota Board on Aging and MNCDD to develop and conduct a 20-minute telephone survey of a representative sample of 800 Minnesotans. “When this study was first commissioned 14 years ago, a pressing issue was running buses to Canada to buy prescription drugs. In this study,

2395 MN Attitudinal Study: Healthcare Services & Costs

a pressing issue is the high cost of prescription drugs and the need for government oversight,” said Sen. John Hoffman (DFL- Champlain). One-fourth of the current respondents stated that they will be worse off in three years, when considering access to good quality, affordable healthcare. In households with a family member with a developmental disability, this pessimism

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MNCDD

Volume 29, Number 5


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