October 2018 Edition - Access Press

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VOTE! Page 3

Volume 29, Number 10

October 10, 2018

WWW.ACCESSPRESS.ORG

NONPROFIT ORG. U.S. POSTAGE

Incontinence products issue back to court

PAID

TWIN CITIES, MN PERMIT NO. 4766

by Access Press staff

"The truth does not change according to our ability to stomach it." Flannery O'Connor

NEWS DIGEST THE ARC U.S.

Work has value for everyone, but pay levels are up for debate.

Disability impacts are eyed in miniumum wage debate by Jane McClure Workers with disabilities and the people who provide direct support for people with disabilities are two different sides of the coin in St. Paul’s minimum wage debate. As St. Paul City Council members and Mayor Melvin Carter III push for a $15 minimum wage, the voices of the city’s disability community are being heard. Larger public listening sessions wrapped up in September, including a public hearing

before the City Council. While most attention has focused on bar and restaurant workers and whether or not there should be a tip credit, disability issues have also risen to the surface. The council heard from direct support staff members who need more pay, people with disabilities who want more pay, and disability employers who worry that a higher wage could mean that workers with disabilities could be the first ones laid off. IMPACT To page 5

Thompson Hall needs help Page 6 Lawmakers are remembered Page 2 Work requirement concerns Page 4 Use our Directory of Organizations to find resources and support Pages 7-10

House of Memories' app, program provide valued help Every 65 seconds someone in the United States develops Alzheimer’s disease. As the U.S. population ages, the rate of diagnosis will grow. African-Americans are two times more likely to be diagnosed with Alzheimer’s and other types of dementia than non-Hispanic whites. Anyone wishing to learn more about Alzheimer’s and dementia should check out a new exhibit and program at the Minnesota Historical Society (MNHS), with the launch of the U.S. version of the award-winning “House of Memories” dementia awareness program. The program was originally developed in the U.K. by National Museums Liverpool to provide person-centered care for people to live well with dementia. The program offers training workshops, resources and activities, including the “My House of Memories” app, the first of its kind in the world. The app features more than 100 interactive pages of MNHS collection items which can help those living with dementia draw on memories to create personal connections with family, friends and caregivers. The collection items include objects, photographs, music and video that were curated by people living with dementia and their caregivers, including African-Americans who selected items that connect to the black community. “In working to develop the U.S. version of the app and training workshops, we were able to tap into our extensive collections in exciting new ways,” said Kent Whitworth, director and CEO of MNHS. “The app includes items like a Vikings fan helmet, toys and dolls, and civil rights images and audio. Seeing how these museum resources can create meaningful, person-centered engagement for American audiences, and African-Americans in particular, has been

MINNESOTA HISTORICAL SOCIETY

Debate over a proposed state medical supply program continues in Ramsey County District Court. Opponents of the Preferred Incontinence Products Program (PIPP) are fighting a motion to dismiss their legal challenge to the program. The motion was to be heard October 11, just after Access Press went to press. The legal move dismays the members of the Midwest Association for Medical Equipment Services and Supplies (MAMES), and many people who rely on incontinence products. While bulk purchasing is touted as a potential cost savings, limits are opposed by those who rely on incontinence products. Potential health effects of lower-quality products are just one red flag raised. Another is that such a purchasing program, and limits to products, goes against the movement toward personcentered care, and for not supporting access to choice. MAMES filed suit against the Minnesota Department of Human Services (DHS) and Human Services Commissioner Emily Johnson Piper to block the purchasing program. On August 24 Ramsey County District Court Judge Leonardo Castro filed a temporary restraining order against the program. That same day DHS withdrew the request for supplier proposals, which PIPP foes see as a maneuver to restart the purchasing program in the future. Now the state wishes to dismiss the MAMES lawsuit with prejudice, meaning that it could be more difficult to act in the future. The state also wishes to dismiss the temporary restraining order. “Current law directs DHS to institute this program,” state officials said in a statement. “The court’s order has impacted this without regard to legislators’ wishes.” PIPP was supposed to start September 1. No new bid process has been announced, or new start date set. If a state program is implemented, it could affect about 14,000 people. Rose Schafhauser, executive director of MAMES, said the association is “absolutely concerned” that DHS would like to reissue a similar or comparable request for proposals this year, before state lawmakers have the opportunity to repeal the PIPP statute during the 2019 legislative session. “As Senator (Jim) Abeler said in an August hearing on the program, it’s time that DHS let it go,” said Schafhauser. MAMES is cautiously optimistic that the court will deny the state’s motion, Schafhauser said. “As a requirement of granting MAMES its temporary restraining order, the court already found that MAMES demonstrated a substantial likelihood of success on the merits,” she said. “That finding means that DHS faces an uphill battle to convince the court to dismiss our action. If the court were to dismiss our action with prejudice, however, MAMES is prepared to continue the fight before the judiciary and the legislature until DHS INCONTINENCE To page 4

Familiar objects help people focus on memories. very rewarding.” “We are proud to be working in partnership with the Minnesota Historical Society, to launch ‘House of Memories’ in the U.S., to help Americans to live well with dementia,” said Carol Rogers, executive director for education and visitors at National Museums Liverpool. “Person-centered care is at the heart of our training and acknowledges that an individual’s personal history and memory are of huge importance. Museums can be fantastic resources at helping unlock memories, improve communication and understanding, and enrich the lives of those living with dementia. We’re excited to see how the U.S. version of the ‘My House of

Memories’ app will help Americans living with dementia and their caregivers to connect and share memories together.” The “My House of Memories” app is free and can be downloaded to tablets and smartphones from iTunes and Google Play. Search for “My House of Memories” and look for the pink house. MNHS will also hold training workshops across the state for professional and family caregivers, aimed at helping participants develop new skills and understanding in caring for those living with dementia. Participants will receive a toolkit and view training videos based on the real-life stories of people living with dementia. PROGRAM To page 4


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