July 2000 Issue

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Inside ADA Celebration — p. 3

Volume 11, Number 7

Call For Actors — Page 6

SOURCES

July 10, 2000

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“We should never get too tired or too sophisticated to march.” — Martin Luther King, Sr

RESOURCES

July 10, 2000

IDEA & ADA ANNIVERSARY Individuals With Disabilities Education Act (IDEA), 25 Years; Americans With Disabilities (ADA), 10 Years T his month, we are celebrating two historic legislative actions concerning people with disabilities. IDEA changed the way people with disabilities were treated in the school system. This Act made it possible for children to have equal access to education. The ADA has had a dramatic effect on American society. It has changed the way people view disability and it has improved the lives of people with disabilities.

For this article, we asked people in the community to provide us with their personal stories of how ADA and IDEA have impacted their lives.

New Lupus Web Site by Julie Swenson

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ou wouldn’t know it looking at her, but Cary Zwolski is fighting Lupus every day of her life. Some days are good and some are bad and there’s no way to know what kind of day tomorrow will be. It’s an unpredictable and hidden disease which makes it especially challenging for patients like her and their families to deal with. On a sunny afternoon a couple weeks ago, Zwolski was the picture of energy and enthusiasm as we talked over lunch and lemonade. It was shocking to hear her talk about the fact that she had any disease, let alone one so debilitating. One of the kickers with Lupus is the insomnia that has become a regular part of Zwolski’s life. When she’s up at 3 a.m. she can be productive and go to work without leaving home. Zwolski answers questions that come in from the Lupus Foundation of Minnesota Web site. “I’ve calmed newly diagnosed Lupus patients from

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many places, The West Indies, South Africa and New Zealand. They are up when I’m up in the middle of the night. It’s great to work from home.” She goes on to say that the site brings in questions from all over the world because “we have one of the best Lupus Web sites out there right now.” At www.lupusmn.org, an average of 300 users a day get accurate, up-to-the-minute information on the fight against their disease. With the help of Computer Sciences Corporation’s (CSC), The Lupus Foundation of Minnesota is reaching out to Lupus patients and their families all over the world. Not only is the Web site helping patients but it makes a big difference in the day-to-day life of a small non-profit like the Lupus Foundation. According to Judi Deming, Foundation President, “The Web site is an essential part of our communications plan

as we distribute the most current research and information to patients and their families while saving postage, printing and staff costs.” For its work to develop the Web site, as well as their donation of staff to provide an in-depth technology analysis, CSC’s Minnesota Office was awarded the Corporation of the Year Award by the Lupus Foundation. Computer Sciences Corporation helps clients in industry and government use information technology to achieve strategic and operational objectives. The Foundation also appointed Randy Spiess, CSC Senior Partner and Manager of CSC’s Midwest Public Sector and Service Industries Practice, to the Lupus Foundation’s board of directors. Spiess says, “Creating a Web site for the Lupus Foundation was a wonderful way for us to live our corporate values. Everyone on the team Lupus - cont. on p. 3

My social life has expanded because I can attend more activities with my friends who use wheelchairs. Their greater access has also enriched my enjoyment. I can communicate with deaf friends or colleagues through the relay service. And so my life has opened to another culture and to new experiences. I can listen to the newspaper over the phone and use a talking computer to gain access to information and greater productivity at my job. I can’t wait for the next ten years. Rachel Parker is an advocate and works at PACER Center.

A Sense of Being Ordinary By Rachel Parker How would you feel if you got onto an elevator and none of the buttons were labeled? That sense of astonished disbelief is what I feel now when I get into the occassional elevator that has no braille numbering. Ten years ago, I would have been surprised to find elevators which did have such markings. I would have to visit each floor on a personal quest or wait for someone to come and assist me. It’s the wonderful sense of being ordinary that ADA access is bringing to me now.

Improved Access Makes Life Easier By Margot Imdieke-Cross Think back - say maybe 10, 15, 20 years. For those of us who do remember, life in a wheelchair was damn hard. I have countless memories of no curb cuts, entrances with steps, barriers everywhere and, of course, no accessible public restrooms anywhere! Oh, you think I exaggerate! I do not! I seriously mean there were no accessible public restrooms, not in small town America where I grew up nor in South Minneapolis where I spent my summers.

Another way that the ADA has changed my life is in increasing access to the arts. I have helped develop programs for audio description in local theaters and guided tactile tours in area museums. When my vision loss began to develop into legal blindness, I stopped going to theaters, art galleries, and museums. This had been such an important part of my life that I felt as if part of me were missing. Now my problem is to decide which audio-described performances I can afford to attend. What a wonderful dilemma!

Even marginally accessible restroom stalls, the old 3 footers, weren’t required by building code until the early 70’s and then only in new construction or structural renovations. So those of us who lived in the pre-ADA days know that many of our activities were cut short, cancelled, or never planned because the thought of not being able to use a restroom was unacceptable. One incident of long ago that stands out in my memory turned a very simple act into a frightful experience . It was a

hot, humid summer evening and I decided to go with two of my friends, to a Mexican Restaurant on Lake Street. We walked over, had a delightful dinner and cut the evening short, because as usual the restrooms weren’t even a little accessible and it felt like my bladder was about to burst. On the way home I decided I couldn’t wait and the three of us strolled over to an area that had several very large bushes. I pulled up between two of the bushes with two friends standing guard. Suddenly the friend closest to me started to scream. She grabbed my wheelchair and started pushing me away from the bushes. Mind you, I’m still zipping up my jeans, and I have no idea what’s going on. As my friends are running, screaming and pushing me away from the bushes, I gather through incoherent sentences that there was an older rather disheveled man watching me from under the bush closest to me. In my opinion, the biggest impact the Americans with Disabilities Act has had on my personal life is access. By requiring curb cuts, access to entrances, access to businesses, and opened doors (in particular restroom doors), the ADA has made my life a whole lot easier. I haven’t had to look for a big bush in a long time! Margot Imdieke-Cross is an activist and works at the State Council on Disability. ADA Ten Years Later By Lee Perish There has actually been progress made in the past ten years in the areas of physical and sensory/communication accessibility. Ten years ago, when I wanted to go toa legislative session and testify about any laws that I thought

ADA/IDEA- cont. on p. 7

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