September 2005 Edition - Access Press by Access Press

September 10, 2005

Inside

“We must remember that any oppression, any injustice, any hatred, is a wedge designed to attack our civilization.”

■ What Is Sickle Cell Disease— p. 6 ■ Get-a-way to the N. Shore— p. 7 ■ ADA Celebration— p. 12

— Franklin Delano Roosevelt Nonprofit Org. U.S. Postage PAID Mpls. MN Permit No. 4766

Volume 16, Number 9

Minnesota’s Disability

Community Newspaper

September 10, 2005

AGE AND DISABILITY ODYSSEY CONFERENCE by Julia Socha

I Jean Wood (right), of the Minnesota Board on Aging, presenting the Service Award to Linda Morrow, of Elder Circle at the 2005 Age and Disability Odyssey Conference. (More award winners on page 12.)

attended the Building Together: The 2005 Age and Disabilities Odyssey Conference through a scholarship registration from the Department of Human Services and Courage Center. My vacation leave from work was reaching the maximum level for use or lose (again), and with no vacation for the Socha family in sight, I de-

cided to take some time off for professional development. When I saw the The 2005 Age and Disabilities Odyssey Conference program and found out about available scholarships to attend, I knew this was an opportunity right up my alley. The conference was hosted in beautiful Duluth and covered topics that I was already in the process of exploring; it would

PCA Program Changes by Lance H. Hegland

n June 28, 2005 the Minnesota Department of Human Services (DHS) announced two important changes impacting personal care assistant (PCA) services reimbursed under Medicaid/Medical Assistance (MA), MinnesotaCare, the Alternative Care Program, and certain waivered service programs (i.e., any Minnesota Health Care Program). Background Studies First, the new law prohibits a PCA from working unsupervised with any client of a home care or PCA Choice agency until that agency has submitted a background study of that PCA and received a notice from DHS stating the results are “clear.” Previously, PCAs could begin working unsupervised as soon as the agency submitted the request for a background study—the PCA didn’t have to wait until the results were returned. This change closes a loophole used by individuals with prior criminal convictions or documented abusive behavior. For example, John Doe

has been convicted of a felony two years ago, is looking for a temporary job to help ends meet, knows his background study results will not be known for two to three weeks, and begins working as a PCA. Two or three weeks later, his background study results are received indicating he is prohibited from working in the field; he is immediately fired from his PCA position. However, he has already been working unsupervised, consumers have been exposed to risks. Yet, the change may present new challenges. Judy Elling, the Program Administrator for Twin Cities based PCA Choice provider named People Enhancing People (PEP), recently attended the August 12 DHS PCA Provider Focus Group and offers valuable insights and suggestions. She points out that, “Any new PCA or existing PCA [switching to a different provider organization, perhaps as a result of a client’s choice to move to a different agency] cannot have unsupervised direct contact with a client until they have cleared the

background study. Only an individual with a cleared background check can provide the supervision (a parent, family member, or responsible party can not supervise the PCA)…The PCA Choice law allows consumers to be the supervisor/manager of their PCAs, however this new background study law takes that right away when a consumer hires a new PCA [or switches agencies]. It is understood and agreed that the law is important for the protection the most vulnerable people in our communities. However, by not allowing the parent or a consumer to be the supervisor for a PCA without a cleared background study, it is taking away the empowerment provided to the parent and consumer from the PCA Choice law.” Elling indicated that the law provides the DHS Licensing Division access to all Minnesota county court databases and, according to DHS representatives at the Provider Focus Group, this Division will be conducting daily searches of these databases against all new and existing PCAs. This

enables DHS to see if any PCAs have committed an offense which may reverse the original background clearance. When a particular PCA’s clearance is revoked, the Licensing Division will immediately notify organizations employing that PCA and ensure the PCA prevented from providing any further direct care. She goes on to say, “Every organization a PCA is employed with must get a background study clearance for that [particular] PCA. The DHS background study costs each organization $20. This process is costly and time consuming for the DHS Licensing Division and provider organizations. It also produces increased workloads and backlogs in the processing of the background studies.” She proposes allowing a PCA to use the results of a single background study for up to 12 to 18 months with any provider organization; a simple verification process given the second PCA service change announced by DHS: the use of PCA Program - cont. on p. 8

give me the chance to do something very worthwhile with my vacation leave. Professionally, I coordinate the Institute on Community Integration’s Community Advisory Council. The subject matter that would be presented was exactly what I was looking for as I begin to design topics related to aging and disability for our Council. Personally, I have wanted to know what I have to look forward to as a person living with a disability and aging (some days more rapidly than others)! In addition, my family has also become aware of the need for total family involvement in coordinating resources and support for a family member who has a chronic health condition/disability. My uncle was among many folks who were able to move out of a nursing home facility with assistance from the Metropolitan Center for Independent Living. He had a period of time where his health was declining, his muscle spasms were increasing (he has quadriplegia), and changes were taking place with his kidney function. None of us ever imagined that he would spend any time in a nursing home. We always imagined that the PCA services he received would be enough to sustain his recovery after he was discharged from the hospital. We anticipated his needing an increase in service hours only. Unfortunately, he could not secure regular and consistent support in his home. As a family, we tried to reassure him that the nursing home recovery period would only be temporary. It lasted much

longer than anyone anticipated. He lost the apartment he had been living in due to his length of stay in the nursing home. The folks at the nursing home were fabulous, and the care was very good, but it simply was not his “choice” to live there. He made his needs and wants known while in the nursing home. And the staff and others listened, although they didn’t always know what to do to get a process started. He kept talking, they kept listening, and a plan developed. He now lives in an adult home setting with others who are active like he is and who have the same goal—to live the best life possible. He has also just accomplished getting his very first accessible van with a ramp. By attending the Age and Disability Conference, I learned how our process of family support could have been easier and more organized. The Families as Caregivers session on how to recognize key signs of when a “family meeting” is necessary showed me thatwe could have done much more to keep everyone on the “same page” and organized in the division of assignments to ensure follow up could be easily done. Sometimes it became an issue of “who was on first—and who was doing what!” At times our planning process was “mass chaos” and it did not need to be that way. Another excellent presentation at the conference was on Telehealth. The title itself excited me as I enjoy any process that can make managing healthcare easier and more practical for the consumer. In this session I learned some Odyssey - cont. on p. 13

September 10, 2005

affects the lives of so many people. Also, we have a short personal story on the effects of sickle cell anemia. Please read them both and thank you, Sonia M. Alvarez-Robinson, for sharing your personal story.

Tim Benjamin, Editor

his month we’re highlighting sickle cell disease. Far too many of us don’t know what sickle cell disease really is. The article on page 6 will clarify many of the facts about this disease and how it

Alice Oden, the Access Press Webmaster, has written an article called, “A Superior September: North Shore Get-away “ a personal story that might just compel you to take a road trip. Of course, after reading the article you might also want to get Minnesota’s travel guide for people with disabilities or check it out on the Web at http://www.accessminnesota. org. One other place you might want to check before you plan your fall getaway is http:// www.explore minnesota.com. Both web sites are jam-packed with good information for trav-

elers with disabilities. Jane Hampton has offered to be the answer person for a question-and-answer column on accessible design, or as it’s also called, universal design. Ms. Hampton has an extensive background in this field and has some very interesting ideas on making things more convenient and accessible for all kinds of building projects. This month there will be tips on design for persons with low vision. The real key to this column in issues to come will be your questions. Please send your questions, or tips from your home improvement accomplishments, to access@ accesspress.org. The Department of Human Services’ PCA program is making changes! Hopefully, the changes won’t have any

direct negative impact on you. I personally am concerned that they may affect us in a roundabout way, but DHS is trying very hard to work out and implement these new plans. There are two new steps for an individual to take in becoming a PCA: 1) An individual cannot start working as a PCA without a complete background check unless supervised by another person who has a completed background check; and 2) each PCA will be required to have his/her own provider number; this will allow DHS to track each PCA’s hours more closely so no one over bills or bills for two clients at the same time.

closely watched their billing, much of the problem would be solved. One bad apple can spoil the basket! Be sure to read the article by Lance Hegland on page 1 in order to more clearly understand the background check requirements. They went into effect on July 1, 2005. We will keep you posted on the PCA provider-number plan; it is going into effect on January 1, 2006.

sion. Parents know they can’t be forced by the school to give their child medication—you have to get a prescription from a doctor (what school has a doctor on staff), pay for it and actually give it to your child. Schools can’t and don’t do that.

to get a full picture of the child. learning and behavior and to integrate mental health serWhy is it important to identify vices into the school. NAMI mental health concerns early? has always advocated that Because early intervention is parents be the “driver” and more effective. Children who that they not be blamed or have a serious mental illness shamed or excluded from figurare more likely not to be suc- ing out how to help their child. cessful or graduate from school. NAMI has also made it clear Children who drop out of school that families should be inare more likely to end up in the formed about all the treatment juvenile justice system. Inter- options available—many of vening early also means that which do not include medicaless intensive treatment—in- tion. cluding medication—can be Access Press should be printing used. accurate information about menNAMI has worked tirelessly to tal illness. It does a disservice to improve the educational ap- its readers to do otherwise. proaches used for students who have a mental illness, to [Access Press’ response to this educate teachers about the letter appears on the next page impact of mental illness on of this issue.] ■

HealthPartners is opening a new dental clinic in the Midway area of St. Paul, which will serve people with disabilities. If you haven’t seen a dentist recently this may just be the place for you. So, make an appointment and get your teeth If all of us who are recipients checked. of the program were more diligent about ensuring that PCAs Last month we printed two arreport time accurately on their ticles in “News at a Glance” time cards, and if agencies more that dealt with medications for

mental illness. One concerned a recent FDA advisory regarding antidepressant medications and the other discussed recent legislation that prohibits schools from requiring parents to medicate their children. Sue Abderholden, executive director of NAMI Minnesota, has written a letter to the editor that we are printing this month. Along with Abderholden’s letter we have collected and printed more facts on this controversial issue. The mission of Access Press is to disseminate accurate news to disability community and to give voice to everyone in the disability community. So if there is something printed that you do not agree with, we would like to hear from you by phone or in the form of a letter to the editor. ■

Letter To The Editor ... To the Editor, Two articles that were published in the August issue were written by the Citizen’s Commission on Human Rights (CCHR). The Church of Scientology funds CCHR. Neither group believes that mental illnesses are biological. They believe that psychiatry kills and that the pharmaceutical industry has fabricated this illness in order to get rich. Readers might remember that Tom Cruise, a Scientologist, recently went after Brooke Shields for taking medication for her post-partum depression. The first article misrepresented the FDA’s public health advisory for anti-depressants. CCHR used inflammatory language such as “the blood of these deceased is on psychiatry’s hands.” Additionally, they infer that since there is no blood test or x-ray to confirm depression that it does not exist. NAMI finds these

comments outrageous and be- •Adults whose symptoms lieves they have no place in worsen while being treated with antidepressant drugs, Access Press. including an increase in suiFor the record, the FDA re- cidal thinking or behavior, ported that some studies sug- should be evaluated by their gest there may be an increased health care professional. risk for suicidal behavior in adults who are being treated The FDA did not state that with antidepressant medica- people should stop taking the tions. They have started to medication. Many people are collect data to determine if there treated successfully with antiis in a fact a risk for suicide depressants and therapy. connected with these types of Before taking any medicamedications. It will take a year tion people should underor more to complete the review. stand the side effects. But What the FDA is stating is people should also note that that: suicide is often the result of untreated mental illness— •Adults being treated with an- not treated mental illness. tidepressant medications, particularly those being The second article claimed a treated for depression should victory for children and parbe watched closely for wors- ents. This new law prohibits ening of depression and for schools from forcing parents increased suicidal thinking or to give their children medicabehavior. Close watching may tions. It should be noted that be especially important early this was never introduced as a in treatment, or when the dose bill, it was a stealth amendment is changed, either increased done purposely so that there or decreased. would not be public discus-

Access Press Co-Founder/Publisher (1990-1996) .................................................................. Wm. A. Smith, Jr. Co-Founder/Publisher/Editor-in-Chief (1990-2001) ....................................... Charles F. Smith Board of Directors ............................................ JoAnn Cardenas Enos, Mike Chevrette, Mary Kay Kennedy, Kelly Matter, Tom Squire, & Kay Willshire Editor ......................................................................................................................... Tim Benjamin Financial Manager/Editorial Assistant ........................................................................ Terri Ricci Cartoonist ..................................................................................................................... Scott Adams Production ...................................................................... Ellen Houghton at Presentation Images Office Assistant .......................................................................................................... Ekta Prakash Sales/Marketing ........................................................................................................ David Hadlich Access Press is a monthly tabloid newspaper published for persons with disabilities by Access Press, Ltd. Circulation is 11,000, distributed the 10th of each month through more than 200 locations statewide. Approximately 650 copies are mailed directly to political, business, institutional and civic leaders. Subscriptions are available for $25/yr. Editorial submissions and news releases on topics of interest to persons with disabilities, or persons serving those with disabilities, are welcomed. Paid advertising is available at rates ranging from $16 to $20.70/column inch, depending on size and frequency of run. Classified ads are $10, plus 45¢ per word over 12 words. Advertising and editorial deadlines are the last day of the month preceding publication, except for employment ads which are due by the 25th. Access Press is available on disk. Call MN State Services for the Blind, 651-642-0500 or 800-652-9000. Inquiries should be directed to: Access Press • 1821 University Ave. W. • Suite 104S • St. Paul, Minnesota 55104 • (651) 644-2133 Fax (651) 644-2136 • E-mail: access@accesspress.org • Website: www.accesspress.org

Editorial material does not necessarily reflect the view of the editor/publisher of Access Press.

Their bill may actually silence schools from sharing information. Parents and schools need to work together for children to be successful. That means sharing concerns about behavior, social relationships, and educational progress. Children with an emerging mental health concern often exhibit different behaviors at school and at home. That’s why we need everyone talking in order

Minnesota’s Disability Community Newspaper Invites you to the Third Annual ore on m n d Fin atio 1. or mge 1 f n i pa

Charlie Smith Community Award Banquet

November 4, 2005 At the Como Lake Pavilion Black Bear Crossing, St. Paul WATCH FOR REGISTRATION DETAILS 651-644-2133 • www.accesspress.org

September 10, 2005

Access Press Responds

ccess Press has a proud history of printing a great deal of substantive and accurate information about mental illness. The two “News at a Glance” items that Ms. Abderholden refers to in our August 2005 issue, presented news facts with biased and unnecessary commentary. Below you will find two articles from primary sources on the topics of the FDA’s review of anti-depressant use among adults and children.

Adults being treated with antidepressant medicines, particularly those being treated for depression should be watched closely for worsening of depression and for increased suicidal thinking or behavior.

was typical for a child adjusting to a full day of classes, but school officials suspected he had a hyperactivity disorder. They recommended giving him Ritalin, a stimulant used to treat children with that problem. She refused.

“What it does is prevent teachers from becoming physicians,” she said, adding “there’s a lot of overuse and forced use of medications going on.”

Close observation of adults may be especially important when antidepressant medications are started for the first time or when doses for the specific drugs prescribed have been changed.

“I just said I’m not going to do it,” said Nash, 40. “And their response was, ‘You know, it’s against the law for you to deny a child medication.’”

FDA July 1, 2005 Talk Paper http://www.fda.gov/bbs/ topics/ANSWERS/2005/ ANS01362.html FDA Reviews Data for Antidepressant Use in Adults

Adults whose symptoms worsen while being treated with antidepressants, including an increase in suicidal thinking or behavior, should be evaluated by their health care professional.

Schools will have plenty of incentive to comply with the new law: Congress is threatening to block federal aid to schools that try to force medication on students against the wishes of their parents. Congress also is already considering expanding the law. A bill sponsored by Rep. John Kline, R-Minn., a member of the House Education Committee, would extend the Child Medication Safety Act to include psychotropic drugs such as Prozac, Paxil and Zoloft.

That’s no longer the case.

In response to recent scientific publications that report the possibility of increased risk of suicidal behavior in adults treated with antidepressants, the U.S. Food and Drug Administration (FDA) has issued a Public Health Advisory (PHA) to update patients and healthcare providers with the latest information on this subject. Even before the publication of these recent reports, FDA had already begun the process of reviewing available data to determine whether there is an increased risk of suicidal behavior in adults taking antidepressants. The Agency has asked manufacturers to provide information from their trials using an approach similar to that used in the evaluation of the risk of suicidal behavior in the pediatric population taking antidepressants. This effort will involve hundreds of clinical trials and may take more than a year to complete.

As of Friday, schools no longer have the upper hand in deciding whether children should be given Ritalin or other controlled substances. A new federal law [Individuals with Disabilities Act IDEA] tilts that power to parents, barring states and schools from keeping students out of class in cases when parents disagree with a recommendation to medicate a child.

These recommendations are consistent with warnings already present in approved labeling for antidepressants used by adults. FDA will provide updated information as it becomes available. The Public Health Advisory is available on line at http:// The law is provoking an www.fda.gov/cder/drug/advi- emotional debate over the sory/SSRI200507.htm. proper role of teachers and other school employees in Star Tribune article on HR1790: trying to help children they believe are troubled. And it is New Law: Schools Can’t taking effect amid growing Force Meds on Kids concern over the exploding http://www.startribune.com/ use of Ritalin, the brand name stories/484/5488281.html for methylphenidate. Production of that drug has nearly Rob Hotakainen and Melissa doubled in the United States Lee, Star Tribune Washing- since 2000, according to the ton Bureau Correspondents Drug Enforcement AdminisJuly 3, 2005 tration.

WASHINGTON, D.C.—As a first-grader, Garrett Nash blurted out answers before his teacher called on him. He tickled a student sitting next to him and sometimes bolted out of lines. One cold day, he left school without his winter In the meantime, the PHA coat. advises health care providers and patients to be aware of Michelle Nash of Blaine the following: thought her son’s behavior

Medical professionals come down on both sides of the issue.

Incentive to comply

“Except for a contagious disease sort of situation, you shouldn’t be required to provide any medication to your kid as a condition of going to school,” said Kline, who has lined up 20 cosponsors for his bill, including Minnesota Republican Reps. Gil Gutknecht and Mark Kennedy and Ohio Rep. John Boehner, the chairman of the House education committee. Minnesota’s picture: Reaction in MN is divided. In 2001, the Legislature passed its own Ritalin Relief Act, sponsored by state Rep. Barb Sykora, R-Excelsior. The littlenoticed law states that schools cannot require parents to submit their children to special education testing and that Ritalin can be prescribed to children only after doctors, parents and school professionals explore other strategies. Sykora said she introduced the bill because parents were feeling pressured to put their children on Ritalin.

Lance Clawson, a child psychiatrist from Cabin John, Md., said the new law could make teachers fearful of communicating legitimate concerns to parents. Because teachers see so many children every day, they are bestequipped to identify abnor“Drugs can be devastating to mal behavior, he said. kids,” she said. But state Rep. “If you tie the hands of the Mindy Greiling, DFLschools, they lose the right to Roseville, called the state and advocate for the child,” federal laws “unnecessary and redundant” and said they Clawson said. are part of a national antiBut Karen Effrem, a former psychiatry movement that pediatrician who lives in could prove dangerous to Plymouth and who testified children with real problems. before Congress on the issue two years ago, said that Greiling, the leading DFLer on children are often incorrectly the House’s Education Fidiagnosed. Sometimes, she nance Committee, said parsaid, the problem is simply ents “aren’t leaping to get that they are watching too their kids on medication,” much television, eating a poor adding: “There’s already diet or are bored. She said the plenty of roadblocks to kids legislation does nothing to getting help without having keep teachers from speaking the government make it out to be a really bad thing. It’s out. chilling, this legislation.”

According to the most recent federal statistics, Minnesota ranks 22nd among states in Ritalin consumption in 2004, and per-capita consumption has actually declined in the past seven years. But critics say the use of the drug is still far too prevalent. “The schools still can find roundabout ways of getting kids on Ritalin,” Nash said. She doesn’t believe her son has a hyperactivity disorder and said schools are too quick to recommend Ritalin for any child who fidgets or might have trouble finishing a task: “There’s so many stages in a child’s development. How do you determine what’s [a disorder] and what isn’t?”

whether intentional or otherwise,” Helmstetter said, adding that he supports the efforts by Congress. So does Nash, who has decided to teach all three of her children at home. “The school was very intimidating,” she said. “From the beginning, the school made me feel they were more powerful and knowledgeable than me ... This can happen to anyone.” The writers are at rhotakainen @mcclatchydc.com and mlee @mcclatchydc.com.

“Copyright 2005 Star Tribune. Republished with permission of Star Tribune, One boy’s case Minneapolis-St. Paul. No further republication or reGarrett, now 11, attended first distribution is permitted withgrade at Kenneth Hall El- out the written consent of ementary School in Spring Star Tribune.” Lake Park. His mother said school officials told her that Department of Education’s Garrett was “being impatient” article on it: Learning Matters, in the first few weeks of Vol. 13, #1, August 5, 2005 school, being silly in class http://education.state.mn.us/ and acting as though he mde/static/004555.pdf wanted to be the center of attention. Sometimes he for- New Guidelines for School got his papers or gloves. She Admin. of Medications said she agreed to allow tests May 2005 of her son because she felt pressured. The new Minnesota Guidelines for Medication AdminisAfter the tests, Nash said she tration is a guideline that was told her son was normal provides a uniform framework and that he was performing for safely administering prewell academically. But she scription and nonprescription said school officials insisted medications. Those affected that the boy meet with a include: school boards and specialist in hyperactivity in administrators, principals, an attempt to get him to take school nurses and school Ritalin. She said that even her paraprofessionals, health edupediatrician disagreed with cators, parents and students. the school’s recommenda- The guidelines were develtion. oped collaboratively by the Minnesota Departments of Nash complained to school Education, Health, and Husystem officials, who investi- man Services; the Minnesota gated the case. Spring Lake Board of Nursing; and a Park Superintendent Don statewide multidisciplinary Helmstetter wrote a letter to work group. The guidelines Nash, saying that school can be found at www.health. officials had “taken steps to state.mn.us/divs/fh/mch/ ensure that such a process schoolhealth/medadmin. will not happen to any other parents.” At Nash’s request, [NOTE: The Guidelines were school officials agreed to published before the 2005 law destroy any paperwork and to was enacted regarding high delete any information on school students carrying overcomputer hard drives that the-counter pain medication Nash and her husband deemed (Chapter 126, Sec. 1 (SF 232) “inappropriate and invalid.” adding MS 122.222 to the school medication statute. In an interview, Helmstetter Guidelines 2.5 and 7.7 of the declined to comment on spe- resource address over-thecifics of the case. But he said counter medications. he would never approve of the practice of school officials Further examination of the recommending prescription new requirement is underway. drugs, adding that both Nash http://www.pbs.org/wgbh/ and school personnel felt pages/frontline/shows/medi“very misunderstood.” cating/ Frontline program on ADHD and medication. ■ “Clearly there were breakdowns in communication,

September 10, 2005

Role Of Government Is To A Pediatric Psychiatrist Level The Playing Field Talks About Ritalin Use by Clarence Schadegg

n June, Minneapolis Mayor R. T. Rybak was one of four people who spoke on mental health and homelessness at Wesley United Methodist Church. As Mayor stated, “I worked with our faith communities and they’ve been great partners. But I’ve made it very clear that I think you cannot run a just society on bake sales and passing the plate.” “Almost half of the homeless population,” said Mayor R. T. Rybak, “has a physical or mental disability. Most of my work has been about ‘closing the gap on income’ and ‘on accessibility.’ The Mayor’s office continues to work with Minneapolis residents to increase job opportunities for those who have cultural challenges, be they training or putting resources into training.”

by Terri Ricci It covers up a failure of a society that is not providing jobs and housing to those most in need. He added, “The massive cuts from the state and federal governments, in social services, have placed an additional burden on those most in need. It’s wrong.” According to the Mayor, “We need to try more opportunities for specific populations. And the needs of a homeless person with physical challenges are dramatically more difficult. The simple idea of having a person at a shelter leave in the morning and come back at night is difficult enough for most of the population.”

It is more dangerous for a homeless person with a disability who carries money around from a cashed paycheck; and the danger is from physical assault, robbery, and “Shelter is only a temporary or serious injury. Are people situation,” said the Mayor. who seek housing in a shelter “And having people long term safe from robbery? in shelters is a failure in our ability to get people into jobs I am not homeless, but a perand permanent housing. son who wanted to rob me has We’re launching a ‘chronic followed me to my home. A long-term homelessness initia- young person slapped me in tive,’ that will focus on those the face as I walked down the key issues.” mall while I used my white cane. My wife was mugged at The Mayor talked about two a bus stop and the thief got current programs that are an away with her purse. Fortuimportant step in his vision nately she was not injured. We and are already in place: dealt with problems of forged checks for a year after the inci•Clare Apartments, an afford- dent, and it took us years to able housing program for work through the emotional people who live with AIDS. scars of that attack. It is located at 929 Third Avenue NE., Minneapolis, MN. About a month ago, a friend of mine was robbed at knifepoint; •The Minneapolis Community and the robbers knocked his Technical College (MCTC) white cane from his hand. The nursing program for single thieves stole his wallet, which mothers. Graduates will get a was filled with money, a credit job through the MCTC pro- card, his social security card gram at Hennepin County and state identification card. Medical Center (HCMC), If this can happen to people North Memorial and who are not homeless, it can Children’s hospital. happen to homeless people with a disability. What safety As part of his chronic long- mechanisms are in place to term homelessness initiative educate and protect disabled Mayor Rybak proposed: people from such incidents? •$100,000 be included in his budget to hire a local coordinator to bring together multiple partners to implement a comprehensive plan to end chronic homelessness in Minneapolis.

How are homeless people safe from robbery, especially people with a disability who carry money around from cashed paychecks? In the area of public safety, according to Mayor Rybak, “we’ve trained about a third of our police deThe city will also ask Hennepin partment in working with resiCounty to be an equal partner dents with mental illness. We on this project as it moves for- have some in our department ward to coordinate with our state and federal counterparts. The Mayor stated that some people believe in the “idea that putting people in a shelter is an end.” It is not. It’s a band-aid.

who are specially trained to work with people who have mental illness,” said Mayor Rybak. “Eventually we will have the entire department trained to have that (expertise).” Like many people with a disability, I use the public transportation system on a regular basis. In a previous article, the Governor of Minnesota stated that only poor people and the disabled ride buses. Mayor Rybak was appalled at the Governor’s 2004 proposed Metropolitan Transit cuts because such cuts hurt the people most in need. “I’m pretty disgusted by people who said during the bus strike that they saw no impact. Anyone who saw no impact during the bus strike wasn’t paying attention.”

ccess Press recently asked Dr. Steve Genheimer, a HealthPartners pediatric psychiatrist, some basic questions in response to the articles on psychiatric drugs printed in the August issue. Access Press: Last month we printed an article regarding the new Minnesota law that restricts schools from forcing parents to medicate their children.

The National Alliance for the Mentally Ill in Minnesota had some concerns about the article because it represents the views of the Citizens Commission on Human Rights of Minnesota and the Church of Scientology. According to the Church of Scientology, Ritalin is a drug that is currently being The Mayor is in favor of a sold on the black market and is network of buses that go to all a highly addictive stimulant. parts of this city. “I’ll fight To what degree is this true? tooth and nail to keep that system. The bus is part of it, the Dr. Genheimer: The use of Light Rrail is part of it, and Metro Mobility is obviously a part of it. The role of government is to do everything it can do to level the playing field.” Like many city committees, the Disability Advisory Committee reports to the Mayor about their work in such areas as education, transportation, housing, employment and entertainment. One of the issues the Disability Committee has been recently involved with is the open air cafes on the Nicollet Mall. I like to use the outdoor cafes. However, I am sometimes challenged as I navigate around cafe staff, chairs and tables while workers set them up on the mall. I’m pretty good with the use of a guide dog or white cane. Someone who is blind and homeless may not have the kind of skills I have, and that person will be more vulnerable to injury as he or she travels around the outdoor cafes. There is still a lot of work to do, and I am grateful to the Mayor and the Disability Committee for what they’ve done. To contact the Mayor’s Office, call 612-673-2100. The phone number for the Advisory Committee on People with Disabilities is 612-6733757 and the email is peoplewithdisabilities@ ci.minneapolis.mn.us. ■

stimulants has increased over the past 15 years, but there has not been any medication more studied than Methylphenidate (Ritalin); there have been over 1800 individual studies on this medication. There have been two long-term outcome studies on adults who have been treated with stimulants for Attention Deficit Disorder (ADD) as children and those adults have less indication of substance abuse. Most studies are quite positive in response to the use of the drug for ADD. The use of Adderall has been linked to some risks, especially sudden death, and was taken off the market in Canada for review. However, as of last week the drug was put back on the market in Canada. This medication can also be very effective for treating patients and the studies are inclusive if the sudden death was a direct result of the drug. I personally have not experienced any patient getting euphoria using

stimulants and I believe if ADD is treated correctly in childhood, there is less chance of substance abuse as adults. Access Press: There have been articles debating whether Ritalin is over or under prescribed in children. What is your professional opinion on the use of these types of drugs in children? Dr. Genheimer: Again the long-term studies show that treating children early with medication can be effective for the treatment of children who have been accurately diagnosed with ADD.. About 3 to 7 percent of school age kids have ADD. However, ADD symptoms such as distractiveness and a reduced attention span can be present in most children. Again, however, the children with ADD are very distractable and often can be impulsive and sometimes have hyperactive-ness. Ritalin - cont. on p. 23

Classes On Mental Illness Parents & Kids

he National Alliance for the Mentally 111 (NAMI-MN) will hold KidShops this fall to support children ages 7-18 who have a sibling or parent living with a biological brain disorder (mental illness). At the same time the Visions for Tomorrow program will be offered which is an education course for parents and caregivers of children with brain disorders.

Kidshops. They provide an opportunity for children to interact with children in similar situations and feel supported. “My son was able to compare his experiences to others in the group and feel better about his sister,” said one recent class member.

The Visions classes help educate parents and caregivers about brain biology, coping and self-care, problem manageTrained adult volunteers who ment and advocacy. The teachhave either a siibling or parent ers are parents who have expewith mental illness lead the rience raising children with

brain disorders. The programs will be held at Gloria Dei Lutheran Church, 700 Snelling Avenue S. in St. Paul, on Tuesday evenings from 5:30 (a free dinner is provided for parents and children at 5:30) to 8:00 p.m., from Sept. 20 through Oct. 25, 2005. Both classes are free but registration is required. To sign up or to get more information, call Mary Jean at 651-645-2948, ext. 107. ■

September 10, 2005

Help & Hope For Disabled Speech Difference or Disability; Overlap Or Not? Of Other Cultures by Terri Ricci

by Marlene Schoenberg and Marilyn Fairchild

hen average American listeners find a child or an adult from another country difficult to understand, they often can ‘t figure out if they are hearing the sounds and melody of a different language or the struggles of a speech disability. One employee said that his new acquaintance sounded British, but the new coworker was actually hearing impaired.

his native country. How can a concerned parent or professional tell if these are typical English as a second language (ESL) patterns or not?

though he was a top English student in Tokyo

Contrast this with another child, age four, from Europe, who has learned English as her Now, let’s compare two bilin- fourth language. She says /t/ instead of the /k/ sound Who Are We Looking For? (e.g. /tuti/for “cookie”) in Difference versus Disorder all four languages. Does either of them have a speech therapy issue beyond basic English lanLanguage English guage learning? What do Disordered Language you think? Learners

The Japanese boy was Let’s compare two adults going through a natural born outside the U.S. An The area where the circles intersect represents the population that is both silent period experienced African woman has an unELL and LD. by many international usual cultural voice. The children new to the U.S. question becomes, “Is this typical for her language group gual children. The first is a Within a few months, he was or is there a vocal pathology?” bright second grader, adopted explaining rules for complex An Asian college student has from Japan, who has been in games and telling “The Three many more speech sound dif- the U.S. for just one month . Bears” story. ferences than classmates from He doesn’t talk at all, even The four-year-old girl had a mild sound-sequencing problem that required intense treatment to correct. The average general language stimulation activities were not enough. This is where ESL and speech Linguists have compiled detailed lists of the usual phoneme difficulties overlap. patterns of every language. Here are some of the most common linguistic features that are cross-cultural and based Currently, one third of the people in the United States are on the quirks of English. people of color. Some have been born here, and some have Grammar and Word Choice immigrated from other coun1. Omission of final /s/ for plurals tries. Seven per cent have 2. Omission of final /ed/ for past tense 3. Words in a different order- (“Dress blue” is a direct transla- speech and language disabilities. Those populations intertion from the Spanish “vestida azul”) 4. Omitting “is” (The to be verb is not found in some Asian sect in our schools. languages). 5. Idiomatic expressions that don’t make sense to the American Professors Kohnert and Glaze listener (either direct translations or combined forms-”He hit and their research team at the University of Minnesota pubme at the punch bowl)/ He beat me to the punch. ) 5. Unusual word choices (A speaker may say, “Take off your lished an article in August 2003 on diverse populations being clothes.” instead of “Take off your coat.”) served by speech/language pathologists. They quoted staCommon Sound Differences Across Cultures tistics from the year 2000 cen1. /d/ or /z/ for /th/ dem or zem for them sus data, reporting that 10 per 2. v/w as in “Vey cool!” cent of the U.S. population, or 3. i/I as in “How does it feet (fit)?” 4. a/ae hot/hat (especially from British speaking countries) 28 million people, were born outside the U.S. In Asian languages: According to Celeste Rose/l/r/ Do you have the correction or the collection? Speech- cont. on p. 21

Common Speech/Language Differences That Do Not Indicate a Speech Disorder

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n August 3, 2005, Access Press representatives attended a luncheon hosted by the University of Minnesota’s Institute on Community Integration (ICI). The luncheon was an opportunity for community leaders and organizations to learn more about each other. Three dynamic speakers shared their stories about family members and/or the experiences they have had in the U.S. related to disabilities.

ents that they too, can be advocates for their children and get them the services they need. She helps parents understand that it is okay to ask for help for their disabled child. In America, and especially in Minnesota, there are social service programs to help disabled children of different cultures become independent and to live within society without barriers. Because many of these social service programs can be confusing to many with a language barrier, people like The first speaker, Antoinetta Antoinetta are invaluable in Giovanni, an immigrant from their role as a go-between for East Africa, has a son with autism. She tells others within her culture not to give up when fighting for the services that a child with disabilities needs to be assimilated into life in America. When her son was born, she didn’t know what a disability was or what autism was. She was in denial. As a single mother, where do you start to look for services? The school did not want her son and she was devastated, uncertain what to do. She was fortunate to connect with Arc Hennepin/Carver and they helped her understand that as a parent you have to educate yourself to get what your child needs. Most immigrant communities are very protective of their children. Antoinetta was fortunate enough to hire someone from her cultural background to care for her son. This alleviated her fears of not having someone she trusted be alone with her son. Her son’s condition has improved immensely since receiving services and advocated for her son’s disability. When he was finally able to vocalize the word “Mommy,” she was very proud. Although he was unable to speak or verbalize any words up through the age of 7 or 8, at age 12, he can understand and verbalize some English. He even seems to understand when she and his caregiver speak in their native language. Antoinetta achieved good support for her son, because she was willing to advocate and push for the services he needed. Arc Hennepin/Carver not only trained her to become to be an advocate, they also employed Antoinetta to help educate and inform other par-

the service provider, the parent, and the person with a disability. The second speaker to share her experiences was Grace. Grace has had different experiences in getting services for her two autistic sons, in part because of the ages of her sons—one is 18 the other is 26. When her boys were small, her husband divorced her because he blamed her for their children having autism. She had to educate herself and take courses to understand why her children had this disability. She felt that she was being punished for having children with autism. She had hurdles to overcome being from a different country and trying to advocate for herself and her children. It was difficult, because in her culture, vocalizing your needs is not appropriate. PACER Center taught her that the parents are not responsible for the disability that their children have nor are they com-

pletely responsible for their children’s care. She struggled to get her sons the care and services they needed and often felt that she was being discriminated against. Was it because she did not feel that she deserved these services because of her belief that she should be punished because her children have a disability? Or is there discrimination from the social services programs where the employees feel that a person of color is less deserving? It is really a tough dilemma for many immigrant people with disabilities and these are some of the questions she raised in her speech that immigrants deal with. The last speaker, Del Bahtuoh, came to the United States from Liberia when he was a teenager. Sometime after arriving in the U.S., he was injured and became disabled. When he lived in Liberia he had no exposure to or knowledge of any persons with a disability. After recovering from a bullet wound injury, he went into Courage Center for rehabilitation. Courage Center helped him learn about the resources he needed for his care. They also assisted in creating his IEP to helping complete his high school education and get enrolled into MCTC. After attending MCTC for one year, he transferred into the University of Minnesota. The Disability Services staff and the available resources at both colleges have been a great asset to Del. Even the students helped him in taking notes and the faculty allowed some flexibility with him taking tests. Del came to America with only his father. When he became injured he was able to have his mother come here to help take care of him. Because of a certain CADI waiver, Del’s mother can work for him and get paid for providing the services that Del needs. Access Press plans to continue working with ICI at the U of M and to maintain a dialogue with immigrant families who have members with a disability. If you would like to tell us your story, or if you can help us tap into the immigrant communities to help educate and inform them on how to advocate for the services they deserve and need, contact us at 651-6442133 or by e-mail at access@ accesspress.org. ■

September 10, 2005

What Is Sickle Cell Disease?

ickle cell disease is an inherited blood disorder that affects red blood cells. People with sickle cell disease have red blood cells that contain mostly hemoglobin* S, an abnormal type of hemoglobin. Sometimes these red blood cells become sickleshaped (crescent shaped) and have difficulty passing through small blood vessels. When sickle-shaped cells block small blood vessels, less blood can reach that part of the body. Tissue that does not receive a normal blood flow eventually becomes damaged. This is what causes the complications of sickle cell disease. There is currently no universal cure for sickle cell disease. Hemoglobin is the main substance of the red blood cell. It helps red blood cells carry oxygen from the air in our lungs to all parts of the body. Normal red blood cells contain hemoglobin A. Hemoglobin S and hemoglobin C are abnormal types of hemoglobin. Normal red blood cells are soft and round and can squeeze through tiny blood tubes (vessels). Normally, red blood cells

live for about 120 days before bin genes the person inherits new ones replace them. from his or her parents. Like most genes, hemoglobin genes People with sickle cell condi- are inherited in two setsâ&#x20AC;Śone tions make a different form of from each parent. hemoglobin A called hemoglobin S (S stands for sickle). Red Examples: blood cells containing mostly â&#x20AC;˘ If one parent has Sickle hemoglobin S do not live as Cell Anemia and the other long as normal red blood cells is Normal, all of the chil(normally about 16 days). They dren will have sickle cell also become stiff, distorted in trait. shape and have difficulty passâ&#x20AC;˘ If one parent has Sickle ing through the bodyâ&#x20AC;&#x2122;s small Cell Anemia and the other blood vessels. has Sickle Cell Trait, there is a 50% chance (or 1 out What is Sickle Cell Trait? of 2) of having a baby with either sickle cell disease Sickle Cell trait (AS) is an inheror sickle cell trait with each ited condition in which both pregnancy. hemoglobin A and S are proâ&#x20AC;˘ When both parents have duced in the red blood cells, Sickle Cell Trait, they have always more A than S. Sickle a 25% chance (1 of 4) of cell trait is not a type of sickle having a baby with sickle cell disease. People with sickle cell disease with each pregcell trait are generally healthy. nancy. Inheritance Sickle cell conditions are inherited from parents in much the same way as blood type, hair color and texture, eye color and other physical traits. The types of hemoglobin a person makes in the red blood cells depend upon what hemoglo-

hemoglobin, distinct hemoglobins move different distances, depending on their composition. This technique differentiates between normal hemoglobin (A), Sickle hemoglobin (S), and other different kinds of hemoglobin (such as C, D, E, etc.). Medical Problems Sickle cells are destroyed rapidly in the body of people with the disease causing anemia, jaundice and the formation of gallstones.

The sickle cells also block the flow of blood through vessels resulting in lung tissue damage (acute chest syndrome), pain episodes (arms, legs, chest and abdomen), stroke and priapism (painful prolonged erection). It also causes damage to most organs including the How Will I Know spleen, kidneys and liver. DamIf I Have The Trait? age to the spleen makes sickle cell disease patients, especially A simple painless blood test young children, easily overfollowed by a laboratory tech- whelmed by certain bacterial nique called Hemoglobin Elec- infections. trophoresis will determine the type of hemoglobin you have. Treatment When you pass an electric charge through a solution of Health maintenance for pa-

tients with sickle cell disease starts with early diagnosis, preferably in the newborn period and includes penicillin prophylaxis, vaccination against pneumococcus bacteria and folic acid supplementation. Treatment of complications often includes antibiotics, pain management, intravenous fluids, blood transfusion and surgery all backed by psychosocial support. Like all patients with chronic disease patients are best managed in a comprehensive multi-disciplinary program of care. Blood transfusions help benefit sickle cell disease patients by reducing recurrent pain crises, risk of stroke and other complications. Because red blood cells contain iron, and there is no natural way for the body to eliminate it, patients who receive repeated blood transfusions can accumulate iron in the body until it reaches toxic levels. It is important to remove excess iron from the body, because it can gather in the heart, liver, and other organs and may lead to organ damage. Treatments are available to eliminate iron overload.

Promising Treatment Developments In search for a substance that can prevent red blood cells from sickling without causing harm to other parts of the body, Hydroxyurea was found to reduce the frequency of severe pain, acute chest syndrome and the need for blood transfusions in adult patients with sickle cell disease. Droxia, the prescription form of hydroxyurea, was approved by the FDA in 1998 and is now available for adult patients with sickle cell anemia. Studies will now be conducted to determine the proper dosage for children. Other treatment options in clinical development include new, more convenient options than current therapies to eliminate iron overload caused by repeated blood transfusions. Copyright at 2005 Sickle Cell Disease Association of America, Inc. 16 S. Calvert Street, Suite 600, Baltimore, Maryland 21202; 410-5281555 Office; 410.528.1495 Fax; 800-421-8453 Toll Free; E-Mail: scdaa@sicklecell disease.org â&#x2013;

28 Days In Crisis: A Personal Story by Sonia A. Alvarez-Robinson

â&#x20AC;&#x153;Will you excuse us? I donâ&#x20AC;&#x2122;t feel comfortable with that option and I want to talk to my brother here,.â&#x20AC;? I directed the doctor and nurses out of the room. Scottâ&#x20AC;&#x2122;s best friend Jerry had posted camp in his room night and day to keep watch. We began to pray. We prayed loud and we prayed hard until moments later when a short, curly-haired woman in her late 50s came through the door with a cart of pins and needles. â&#x20AC;&#x153;Iâ&#x20AC;&#x2122;m Alice from the IV team. My coworker asked me to come up to see if I can get one started.â&#x20AC;? She began massaging Scottâ&#x20AC;&#x2122;s hand, rubbing steadily on the top of his thumb. â&#x20AC;&#x153;Here we go,â&#x20AC;? she said. I closed my eyes and prayed silently. â&#x20AC;&#x153;Got it!â&#x20AC;? she exclaimed. I looked to see the small needle standing up on top of his thumb, the pointed end firmly in his skin.

â&#x20AC;&#x153;Is this Mr. Robinsonâ&#x20AC;&#x2122;s room?â&#x20AC;? the girl inquired from behind her wire-rimmed glasses. Scott was vaguely coherent, but he recognized the voice. Suddenly he popped up from the bed, the oxygen tubes hanging from his nose. He limped from the bed toward her and broke the first smile Iâ&#x20AC;&#x2122;d seen in weeks.

â&#x20AC;&#x153;Can I hug you?â&#x20AC;? I threw my arms around her tiny neck. My salty tears tasted bittersweet as Jerry and I looked at each other in disbelief. Then at the same time, we looked over at the newborn baby sitting qui- â&#x20AC;&#x153;Haji, what are you doing

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â&#x20AC;&#x153;Who is this guy?â&#x20AC;? I wondered out loud. Scott had seen a different doctor every day and I had never met this one before. The panic ran through my body as I contemplated them jabbing a needle into the side of my handsome manâ&#x20AC;&#x2122;s soft neck. â&#x20AC;&#x153;Isnâ&#x20AC;&#x2122;t there another way we can handle this?â&#x20AC;? I The emergency room was pleaded. slightly crowded, but although the hospital personnel pro- The doctor explained that there cessed Scott quicklyâ&#x20AC;&#x201D;we had were only three ways to get the been there at least an hour medicine into his body. The before he saw Dr. McDonald. first, and least invasive way is She ordered an IV so his sys- to use an IV into the arm or tem could get better hydrated. hand, but the arm had infilâ&#x20AC;&#x153;What do you usually use for trated and the IV technician on pain?â&#x20AC;? she asked. Morphine staff couldnâ&#x20AC;&#x2122;t get another one was what they usually gave going. The second, more invahim for the excruciating invis- sive, is to use a PIC line that ible pain. They gave him doses goes into a larger vein in the appropriate for a man his size, upper arm, but that requires but miniscule compared to his the skill of radiologists who pain. He had received only two were off that day and wouldnâ&#x20AC;&#x2122;t injections before they decided come in until morning. The to put him on a different nar- third, most risky, is to put the cotic drug. Things went down- catheter through the jugular hill fast. vein. This was the option the doctor chose! Even though he was given doses of painkiller that would â&#x20AC;&#x153;You mean to tell me that behave killed the average per- cause your people wonâ&#x20AC;&#x2122;t come son, it was not working. To in on the weekend and the ones

etly in his carrier, oblivious to here?â&#x20AC;? He was so surprised. He leaned over and kissed her what was going on. forehead. By the third week, the room was blossoming with flowers â&#x20AC;&#x153;I just had to come see you Mr. in all sizes and colors, mostly Robinson. To make sure that from Scottâ&#x20AC;&#x2122;s 10th, 11th and 12th youâ&#x20AC;&#x2122;re ok.â&#x20AC;? grade students. Visitors came in droves. They brought food Scott leaned close to her and from every corner of the world. whispered, â&#x20AC;&#x153;Youâ&#x20AC;&#x2122;re keeping up It was such a blessing to have with your studies I hope?â&#x20AC;? so much support, but it was â&#x20AC;&#x153;Oh yes Mr. Robinson,â&#x20AC;? she also interfering with Scottâ&#x20AC;&#x2122;s humbly looked toward the floor. ability to rest and heal. I finally After a five-minute exchange, had to put a stop to it and the girl and her mother went on created a sign for the door that their way. I had gone to the read â&#x20AC;&#x153;No Visitors. Please Check kitchen for a soda and returned in with the Nurseâ&#x20AC;?. Just as I to find Scott and his close friend was about to place it on the Henry both sobbing unconglass window of the heavy 5$03 &2168/7,1* wooden door, a small African woman wearing a head wrap came walking toward the room. She smiled warmly toward me. As I opened the door to ask her to leave, I saw she was with a small girl in braids moving swiftly toward me in a wheelchair.

trollably. Scott, all six-footthree of him and Henry with his seven-foot frame, looked awkwardly gentle. Neither said a word and I was too moved to ask. Though there have been four similar episodes since this experience, the events of those 28 days will forever remain in our hearts. For it was through that experience that we learned to really appreciate the little things: the time we spend together, our healthy children, our challenging jobs, our supportive friends, and every moment of our existence in this life. â&#x2013; 3((5 0(1725,1*

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you have on staff canâ&#x20AC;&#x2122;t do their jobs right, you will risk my husbandâ&#x20AC;&#x2122;s life?â&#x20AC;? Inexperienced with this scenario, my voice was shaking. I looked over to Scottâ&#x20AC;&#x2122;s best friend for comfort.

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make matters worse, one of the nurses discovered that his IV was infiltrating. â&#x20AC;&#x153;We have to place a catheter into the jugular vein in his neck,â&#x20AC;? a tall, distinguished doctor stated matter-of-factly.

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t was a bitterly cold October morning when my husband Scott showed the first signs of a major Sickle Cell crisis. A committed teacher, he went to work despite how his legs, back and ribs ached. I was home with our beloved new child, just two weeks after his birth. We were both still flying high with the elation over the birth of a healthy son. My cheeks ached from smiling so hard. But when Scott called to announce that heâ&#x20AC;&#x2122;d be coming home early, our elation began to dissipate.

September 10, 2005

MN Commission Serving Superior September; Deaf/Hard Of Hearing Has A North Shore Get-a-way Success In Legislature by Alice Oden

by Mary Hartnett

ix out of the seven MN Commission Serving Deaf and Hard of Hearing People (MCDHH) approved legislative initiatives passed in the 2005 legislative session. MCDHH successfully lobbied for $1 million in new funds for deaf, deaf blind and hard of hearing services and programs and policy changes were made that strengthen protections for consumers. The commission also worked, with the MN Association for Deaf Citizens in the lead, to pass a tuition assistance bill for deaf students. MCDHH and the Coalition for Children with Disabilities were unable to restore funding that was cut to special education in 2003 (we’ll try next time!). Thanks to CSD for extra support this session. Details are below. Kudos to all MCDHH appointed commission members and members of the deaf, hard of hearing and deaf-blind communities, their families, supporters and all those who testified and provided technical assistance for helping to make this happen. Captioning Bill Gives $600,000/2 Years For Real-time Captioning MCDHH initiated and advocated for legislation that creates a fund for real-time captioning of live news programming in Alexandria, Duluth, Mankato, Rochester and TPT’s Almanac. The funds will make one hour of real-time captioning of news broadcasts available 365 days a year in 4 cities, plus 110 hours of live news on public television. Federal law requires that only the top 25 news markets provide real-time captioning for live news broadcasts; the Twin Cities is the only MN area required to provide them. Now all deaf, hard of hearing and deaf-blind people (with enough functional vision or adaptive equipment) will be able to enjoy the news daily throughout the state. Thanks to Sen. Metzen and Rep. Knoblach, our chief authors, and to Rep. Gunther, Rep. Westrom and Sen. Ellen Anderson for their help. Thanks to Toni Fairbanks, Marian Lucas and Jamie Taylor for testifying. Thanks to Bill Struzinski at Capitol Hill Associates. Hearing Aid Consumer Protection Bill Passes This law: 1) extends the moneyback guarantee period by 15 days (from 30 to 45 days); 2) helps consumers understand the deadlines they have to file

a complaint and to return a hearing aid; 3) requires that old hearing aids given to a dispenser or audiologist be returned upon request if the new aids are returned; 4) requires that the audiogram administered by the dispenser to select the hearing aid be provided to the consumer upon request; 5) sets the maximum amount that is charged to the consumer for fitting and processing a hearing aid(s), if returned, to $250 (instead of 10% of the cost of the aid). Thanks to Sen. Sams and Rep. Clark, our chief authors, and to Rep.s Wilkin, Bradley and Abeler for their help and thanks to Sen. Becky Lourey. Thanks to Merilee Knoll and Diana van Deusen for testifying. Thanks also to Keith Weigel at AARP, the MN Speech and Hearing Association and the MN Academy of Audiologists. All New Construction Of MN Schools Required To Follow New Classroom Acoustic Standards The new law requires that all school districts have to include in their design for new schools how they complied with the American National Standard Institute’s recommendation of a maximum of 35dB background noise and .6 to .7 seconds reverberation time. Studies show that kids have a six month to two year language acquisition delay because of classroom noise. The cost is estimated at $65,000 and was included in the education budget. Thanks to the Coalition for Children with Disabilities and Capitol Hill Associates for their support. Thanks to Dr. Peggy Nelson, Mike Nixon, Rhonda Sivarajah for testifying. Thanks to our chief authors Sen. Wiger and Rep. Abeler and to Rep. Buesgens, Sykora and Erickson and Sen.s Kelley and Stumpf for their help with special thanks to Rep. Krinkie. MN Employment Center For Deaf And Hard Of Hearing People (MEC) When the funds were cut in 2003 an estimated 44 deaf and hard of hearing people who have multiple disabilities lost their job supports and probably lost their jobs. MEC received an additional $300,000 for the biennium and will be able to rehire staff to provide the supports and increase the number of people who get and keep their jobs. Thanks to chief authors Rep. Bradley and Sen. Dibble and thanks to Rep. Gunther and Sen. Bakk and Sen. Anderson for their help.

Thanks also to Lynne Osterman. Interpreter Shortage Study The Department of Commerce agreed to study interpreter shortages in health care settings and will include deaf, hard of hearing and deaf-blind consumers and sign language interpreters as members of the study group in the study. This was not included in the legislation, but was agreed to by all parties. A report will be made with recommendations to the legislature before or during the 2006 legislative session. Thanks to chief authors Sen. Higgins and Rep. Abeler. Special thanks to John Gross of the Department of Commerce. Thanks to the Children’s Defense Fund, the Council on Asian Pacific Minnesotans, the MN Council on Chicano Latino Affairs and the Council on Black Minnesotansfor their support. Collaboration with the MN Assoc. of Deaf Citizens (MADC):Tuition Assistance For Deaf Students Passes MADC took the lead and got a bill passed that gives tuition assistance to deaf students of any age who qualify for Pell grants. The tuition assistance program provides the remainder of the tuition. Thanks to chief authors Rep. Abeler and Sen. Sandy Pappas. Mike Cashman deserves credit for this one. ■ Mary Hartnett is theExecutive Director MN Commission Serving Deaf and Hard of Hearing People 444 Lafayette Rd N. St. Paul, MN 55155-3814 mary.hartnett@state.mn.us 651-297-7305 (V) (TTY)

s it September already? August is gone. Labor Day’s past. Oh my cheese curds, the State Fair is history, too! And now those winter months loom just ahead. Where did this summer go? All summer I’ve been longing to get-a-way. But … well … but … you know the excuses. No time. No money. And give me a break—those gas prices!!! Let’s face it. For people with mobility-limiting disabilities, it’s not just the ordinary travel challenges that make the idea of traveling daunting. It is suitable accommodations, sufficient personalcare services, and effective transportation. Sometimes it just seems easier to stay home. If you’re like me, an array of excuses has robbed you of many a traveling pleasure. For the ten years after I started using a power wheelchair, I just stayed home. In my “situation,” I couldn’t envision how I could surmount the travel hurdles that my disability posed.

In just over two hours, you can escape the Twin Cities’ urban jungle and enjoy the sights and sounds of Duluth with its bustling harbor, the Lift Bridge, the Skyline Drive, Canal Park, Leif Erickson Park, and more. For me, the anticipation begins with that breathtaking moment on the hilltop just south of Duluth. Every time I start to ascend the hills on I-35 past Cloquet, then Proctor, memories of the summit view of Lake Superior stir within me. Will the sky be clear? Or will the sky be a hazy fog? Just as I reach the hilltop, the view of Lake Superior bursts on the horizon like a spectacular, panoramic scene. It’s so big. It’s so beautiful. It’s so not like anywhere else in Minnesota. Just than I begin to feel like I’ve gotten away.

On the day I was last in Duluth, I was hoping for clear, blue skies. I thought about picking up a sandwich at one of the many drive-through restaurants nestled in along London Road between South 19th Ave. East and North 26th Ave. East. I thought about strolling along the wheelchair-accessible paths in Leif Erickson Park. I Taking a day trip, like the one could imagine the lake breezes I just did a few weeks ago, is gently tousling my hair. I was where you can start to find ready to be there. some workable solutions to the travel challenges that face a Descending the always-advendisabled person. Traveling to turesome I-35 hillsides through Duluth for a day is the perfect Duluth’s West End, I saw industry—shipyards and loadkind of test run. ing docks—all those indusI only spent four hours in trial seafaring enterprises that Duluth, but how good it was to made Duluth a successful seaIt wasn’t until my older son decided to attend college 900 miles from home that I found incentive—or determination— to take on the challenges of being a disabled traveler. That was three years ago. And what a difference three years of traveling has made in my life.

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get away. Once again, I remembered that it isn’t too far from most parts of Minnesota to Duluth—the gateway to the beautiful Northshore of Lake Superior.

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port. I caught a glimpse of the old railway depot, now home of the Lake Superior Railroad Museum. I sped past the Great Lakes Aquarium and Lake Superior Maritime Visitors Center just off I-35. Once again, I spotted the Viking carved reliefs that adorn the I-35 overpass atop the tunnel that skirts downtown Duluth. Oh those Vikings! When I see the carvings of the long boats, I remember that Duluth is just the gateway to a wonderful Northshore get-away. One of my favorite spots up the Shore is Grand Marais. This quaint, coastal fishing village is just two and one-half hours north of Duluth. Last fall I spent three days there enjoying the harbor—a harbor covered with designed-to-be, skipping rocks. Do you know those rocks? The rocks that are flat and smooth. If you fling them just so, they magically skip over the still waters of Grand Marais’ gleaming harbor. No, my hands cannot skip the rocks, but I love to watch someone who can. And no, I cannot traverse the pebbled water’s edge, but I can roam the wheelchair-accessible boardwalks on the harbor’s edge. About forty-five minutes north of Grand Marais on Hwy 61, you’ll discover Grand Portage National Monument. This monument is a replica of the North West Fur Trading Post that served as an inland fur trading headquarters during the 18th century. The post is wheelchair accessible, and is a great place to learn about the fur-trading history. You can explore the great hall and the cookhouse. You can dress up Superior - cont. on p. 13

September 10, 2005

PCA PROGRAM - Cont. from p. 1 PCA Provider Numbers. DHS PCA Registration In the past, home health care agencies, PCA Choice agencies, and other personal care provider organizations (PCPOs) have been required to enroll with DHS to obtain a provider identification number. This identification number is required during the billing process; the agency submits a reimbursement claim for services provided to each client. Under the new system, each PCA must also enroll with DHS to receive their own personal identification number. Beginning no later than January 1, 2006, agencies will be required to use these personal identification numbers to indicate which PCA provided which block of services. If a PCA does not have a provider number, DHS will not give payment for those services until the PCA receives one. Therefore, PCAs have been very strongly encouraged to enroll with DHS as soon as possible. Requiring personal provider numbers for PCAs will help DHS identify and investigate cases where PCAs may bill for more hours than they actually worked. For example, say John

worked for ABC Agency and XYZ Agency. His timesheets at ABC indicate he worked with one of their clients 12 hours a day Monday, Tuesday, and Wednesday. And, his timesheets at XYZ indicate he worked with one of their clients 12 hours a day Monday, Tuesday, and Wednesday. Each agency thinks he only worked 12 hours a day – no problem. But, DHS may catch the fact that he billed 24 hours a day for three consecutive days and investigate further. Next, the numbers will provide useful research data, such as, how many clients does an average PCA provide service to during a typical month? This information will be extremely valuable for decision-makers and advocates when evaluating and adjusting PCA programs.

ground study system? The online system could return background study results in less than three working days. The previous paper system could take as long as three weeks before results were received. Agencies still relying on the paper system could experience staffing shortages while new PCAs sit on the sidelines waiting for their background study results. Second, is DHS able to process individual PCA provider enrollment forms and issue identification numbers fast enough to prevent a backlog? If a PCA is waiting for a provider number, meaning the agency must wait to bill for services provided by that PCA, will the agency delay scheduling that PCA? Third, are the provider enrollment forms appropriate and easy to understand? Typically, doctors, chiropractors, agency owners, or a trained member of their administrative staff completes these forms. At time when recruiting PCAs is already difficult, are we creating more challenges—a bottleneck?

Potential Issues Both changes are definitely a step in the right direction. But, many questions remain regarding if we are ready to take those steps, especially together. First, have the home health care and PCA Choice agencies had enough time to become registered, trained, comfortable, and efficient us- Only time will tell. ■ ing the new DHS online back-

New Background Study Law

as of July 1, 2005 H.F. No. 1, ARTICLE 6 5 Engrossment - 84th Legislative Session (2005-2006) HUMAN SERVICES BACKGROUND STUDIES Section 1. Subd. 2. [DIRECT CONTACT PENDING COMPLETION OF BACKGROUND STUDY.] th

The subject of a background study may not perform any activity requiring a background study under paragraph (b) until the commissioner has issued one of the notices under paragraph (a). (a) Notices from the commissioner required prior to activity under paragraph (b) include: (1) a notice of the study results under section 245C.17 stating that: (i) the individual is not disqualified; or (ii) more time is needed to complete the study but the individual is not required to be removed from direct contact or access to people receiving services prior to completion of the study as provided under section 245A.17, paragraph (c); (2) a notice that a disqualification has been set aside under section 245C.23; or (3) a notice that a variance has been granted related to the individual under section 245C.30. (b) Activities prohibited prior to receipt of notice under paragraph (a) include: (1) being issued a license; (2) living in the household where the licensed program will be provided; (3) providing direct contact services to persons served by a program unless the subject is under continuous direct supervision; or (4) having access to persons receiving services if the background study was completed under section 144.057, subdivision 1, or 245C.03, subdivision 1, paragraph (a), clause (2), (5), or (6), unless the subject is under continuous direct supervision.

September 10, 2005

Home Access Answers

New Accessable Helping Your Contractor: Senior Living! Ideas For Visually Impaired Homeowners A by Daivd Hadlich

by Jane Hampton, CID

e are currently building a home in a Minneapolis suburb. I have MS that is affecting the use of my legs and arms, as well as my vision. Our builder has some ideas as to what could be done for future wheelchair access, but we are at a loss as to what features we can incorporate for my diminishing eyesight. Safety is a big concern. Although I am using a walker, my balance, strength, and muscle control are just not what they used to be and I am misjudging visual depth and am falling a lot. Any ideas? Vicky, Eden Prairie, MN Dear Vicky, Yes, there are a lot of design features that can be incorporated into a home to help you maintain your independence in a safe and beautiful way to meet your needs now and later. I congratulate your builder for taking the time to listen and go the extra distance to incorporate access solutions and features in your new home. This process takes a lot more time and effort; and the access solutions should be customized to your needs. This requires expert input to achieve a truly customized accessible home. There are many features that can be incorporated into your

home to improve safety, maintain your independence and still offer beauty and function in the overall design.

with fabrics and sound-absorbing treatments to help control sound, making the direction of its source more obvious. Hard floor surfaces, needed for wheelchair access, add challenge to this issue.

â&#x20AC;˘ High contrast makes it easier for persons with limited vision to identify objects. Objects stand out if they contrast with their backgrounds â&#x20AC;˘ Avoid any protrusion into such as sinks, outlets, doorcirculation areas. Sliding and ways, grab bars, etc. accordian doors are preferred over swinging doors, as they â&#x20AC;˘ Identify circulation routes do not obstruct circulation with a different floor materoutes. This applies to doorrial than those used in adjaways and also cabinet doors cent rooms. Straight lines â&#x20AC;&#x201D;especially wall-mounted and right angles are easiest units, which canâ&#x20AC;&#x2122;t be detected for the visually impaired to with a cane. negotiate. â&#x20AC;˘ Stairs should have handrails â&#x20AC;˘ Shadows and reflections can on each side that extend bebe deceiving and often conyond the stairwell; as well as fusing to someone with vitexturizing on the floor area sual impairments. Carefully in front of the stairwell to place items such as hanging warn people of the nearby plants and mirrors as they step up/down. may be misperceived as people or door openings. This list is just a sample of the many features that can be inâ&#x20AC;˘ Flooring transitions can be corporated into a home design tripping hazards. All floor or remodeling project to adsurfaces and transitions dress reduced or no vision. should be level, with no abrupt risesâ&#x20AC;&#x201D;or if necessary, Do you have a question? Weâ&#x20AC;&#x2122;ll rises should be detectable by cover all of your questions in a cane. future issues of Home Access Answers. Please contact Acâ&#x20AC;˘ Areas/rooms that are large cess Press at 651-644-2133 or or have a lot of hard surfaces www.accesspress.org can cause â&#x20AC;&#x153;soundâ&#x20AC;? confusion. Such areas should be treated Accessibility Design was founded in 1992 to enhance lives through design and project management. They provide design, consultation, project management, and product recommendation services specializing in home access for individuals with disabilities at all stages of life. â&#x2013;

A picture is worthâ&#x20AC;Ś

new accessible senior community has opened on the East Side of St. Paul. Parkway Gardens, located just north of 94 at 1145 Hudson Road, opened in July, and had an open house on Saturday, August 28. With a total of 160 one and two bedroom units, all with either walk-in or roll-in showers, Parkway Gardens is also filled with amenities. From the warm and inviting lobby, to the heated, underground parking, the secure building is very nicely finished. Each of the four floors boasts two common rooms for gatherings, a

Dear Disability Advocates & minal illness where death is Their Families and Friends, imminent and due to an identifiable cause such end stage On Friday, September 23, cancer, end stage chronic ob2005 there will be a confer- structive pulmonary disease, ence at the Hyatt Regency in kidney, liver, or heart failure. Minneapolis. This conference This is about discrimination is sponsored by Hennepin and prejudice against a group County Medical Center and is of people with the similar charentitled, â&#x20AC;&#x153;Ronald Cranford, acteristic of disability. MDâ&#x20AC;&#x201D;33 Years of Clinical Ethics In Minnesota: Ron Many groups view this is a Cranfordâ&#x20AC;&#x2122;s Stories of Heroes disability rights situation inAnd Courage.â&#x20AC;? cluding, Not Dead Yet, The Association of people with Michael Schiavo will be hon- Severe Handicaps, The Ameriored at this conference. Ron can Association of People with Cranford, Art Caplan, and Disabilities, Justice For All, many in Bioethics academia National Council on Indepenview him as a hero for his dent Living, and National persistence and ultimate suc- Council on Disability as well cess in having his cognitively as many others disability adand physically disabled wife, vocacy groups. Please view Terri, dehydrated until her the following websites for furdeath. ther information on groups that oppose euthanasia: http:// This conference will celebrate www.notdeadyet.org http:// physician-assisted suicide and www.tash.org and http:// euthanasia. This conference www.ncil.org. is an affront to people with disabilities and their families According to Diane Coleman, and friends who love them. President of Not Dead Yet, This is not about terminal ill- â&#x20AC;&#x153;People with disabilities have ness or proper pain and symp- an opportunity to lead society tom control in people with ter- from the isolation and despair

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on site, as well as a general manager and assistant manager. Coffee is available every morning, and activities are planned often. 17 units have already been rented, and ten more applications are pending. Parkway Gardens is a Section 42 housing complex. Income limits apply, and rent is based on a sliding scale. For a couple having an annual income of $30,800, rent for a one bedroom would come to $510.00/month. For questions, please call Abby at 651-7710267. â&#x2013;

An Ethical Dilemma

Full service remodeling and space modifications for the entire home.

laundry room, and extra storage. There are two elevators to service the building, and the entryways have security cameras. Other extras include a billiard room, an exercise room, a sewing room, a beauty shop, and a large party room in the first level for large gatherings. There is a protected courtyard in the center of the complex, and the nearby neighborhood is a great place for walking. Heat, water and trash are all included in the rent, and each unit also has a dishwasher. As the complex begins to fill up, there will be two caretakers, and full time maintenance

of today into a renewed recognition of belonging and community for all. The idea that people with disabilities are not worthy of societyâ&#x20AC;&#x2122;s acceptance or resources is not new. We see this form of hatred throughout history, often masked as benevolence. But for the first time in history, people with disabilities are organizing our community to fight back, to demand the equal protection of the law.â&#x20AC;? We as a community of people with disabilities and their advocates need to be seen and heard. We need to show that we demand respect and value of our lives and the lives of our friends and family members. Please join us in an organized protest of the clear and present danger of physician assisted suicide and euthanasia of people with disabilities. There are powerful people in positions of authority that hold the view that people are better off dead than disabled. Let us stand in protest together as a visible declaration that Michael Schiavo and his bioEthics - cont. on p. 14

September 10, 2005

Book Review

“You Walk Pretty” written by LeAnne Nelson; Reviewed by Evelyn Anderson

any Access Press readers know LeAnne Nelson Dahl by name, since she has written articles for this publication over several years. I’m one of the lucky people who also knows her in person. I met LeAnne more than 20 years ago, when she and two other women, Polly Edmunds and Rianne Leaf, walked into our little PACER office in south Minneapolis. I was one of the original staff of five at PACER, and the three newcomers were puppeteers in what came to be known as “Count Me In.” LeAnne was the first person with cerebral palsy I had ever known well enough to speak to, and she shattered my stereotypes right away. LeAnne, Rianne, and Polly visited elementary schools to talk with kids about disabilities in a non-threatening manner. They did so by operating lifesize puppets—each representing a disability with which the puppeteer had a personal connection. LeAnne’s puppet character was Sally, a girl with cerebral palsy. LeAnne told us at PACER a story, laughing as

she told it, that still stays with me. When she (as Sally) told the kids she had “CP,” she asked them if they knew what that was. A little boy answered with excitement, “Chicken pox!” I was pleased to see that one of my other favorite LeAnne stories turned into the title of her new book: You Walk Pretty. A neighbor child watched LeAnne walking in front of her home with her usual gait, which some would describe as clumsy or awkward. The little girl said, clearly impressed, “You walk pretty.”

the difficult times she has faced. Those of us who know her aren’t surprised at all. In a poem called “What Would I Do?” from You Walk Pretty, LeAnne writes about her dreams of what she’d be if she didn’t have cerebral palsy: a teacher, a driver for homebound people, a worker in a homeless shelter. Then she concludes:

However, I do have cerebral palsy. I’m thankful for what I can do and give. Perhaps things don’t come easy for me, But I will give all I can as long LeAnne does walk pretty and as I live. has a pretty soul. Her book, a longtime dream, consists of Autographed copies are availpoetry that describes incidents able by contacting the author in her life and particularly hon- at lmd508@aol.com. The ors her parents, now deceased, book also is available through for their belief in her and their the publisher, www.publish commitment to her educational america.com. Type in the title and personal development. In in the ”Online Bookstore” tab. the book, LeAnne tells what it Cost is $1495 with postage. is like to live with cerebral palsy and to struggle toward Evelyn Anderson, who worked independence. Besides help- for Arc Minnesota as well as ing herself, she has long been PACER, currently is with the an advocate and lobbyist for MN Depart of Health as coordinator the new MN Disabilothers with disabilities. ity Health Project. She may be LeAnne’s independent spirit reached at evelyn.anderson and faith show through, par- @health.state.mn.us. ■ ticularly when she writes of

Headwaters Walk For Justice Anniversary— Profile of 10 Year Walkers Advocating Change Together (ACT) is a grassroots disability rights organization run by and for people with developmental and other disabilities. ACT’s mission is to help people across disabilities to see themselves as part of a larger disability rights movement and make connections to other civil and human rights struggles. What Does This Mean, In Human Terms? People with developmental disabilities are treated differently than those with other disabilities, by the greater community –which uses the “behavioral” model: “you need to change… go on a diet, quit acting so weird, make yourself fit into our society.” ACT believes that our society needs to accept all citizens as they are and treat them with dignity. By organizing within the disability community, ACT helps form disability public policy – like the passage of Minnesota Rule 40, prohibiting the use of aversive and deprivation tech-

niques in group homes and institutions. ACT was also a key player in keeping awareness high of how the transit strike impacted all communities that rely on buses for transportation, but especially the disability community. When you have visible public policy players like David Strom (Minnesota Taxpayers League) questioning the need for buses at all, you need an organization like ACT to tell the full story.

Steinbring, who moved from Hibbing to Minneapolis to get more job training and spent 11 years in a sheltered workshop doing assembly work, instead of the work she really loved. Gloria used her personal experience to find issues to organize around. “I found out that I was not the only one being mistreated at work and at home. A lot of other people were having the same problems as me,” says Steinbring. “By working together to change things we have the By organizing within the dis- power to make the world a ability community, ACT helps better place for everyone.” build awareness of disability issues and history – like the Contact information: Remembering With Dignity Advocating Change Together project, one that increases Mary Kay Kennedy, Co-Diawareness and preserves the rector; Rick Cardenas, Cohistory of people who have Director;1821 University lived and died in institutions. Ave., Suite 306-S, St. Paul, The Remembering With Dig- MN 55104 Telephone: 651nity project has restored four 641-0297 www.selfadvocacy. Minnesota state institution org cemeteries by replacing numbered markers with proper ACT has participated in every headstones. Walk for Justice for the past nine years, and has raised over By organizing within the dis- $10,000 during that time. ■ ability community, ACT helps build leaders. Like Gloria

Human Rights: Time for Another Historic Step by Mary Kiffmeyer

his is a summer of his- eling the nation to hold heartoric human rights an- ings about the reauthorization; niversaries in America. given the enthusiasm of Congress to move on this issue, it It was 85 years ago, on August is likely that the Act will be 26, 1920 that the 19th Amend- reauthorized long before the ment to the United States Con- commission’s report is even stitution was ratified, granting published. women the right to vote. As for the rights of voters with It was 40 years ago on August disabilities, progress has been 6, 1965 that President Lyndon made. Progress will continue Johnson signed the into law to be made for voters with the Voting Rights Act, which disabilities and indeed for all in later years was strengthened voters because of the Help with amendments to affirm the America Vote Act of 2002 rights of non-whites to vote (HAVA). Already, HAVA and to be represented fairly in has taken our country a long government. way in ensuring voters’ rights to access, accuracy, and integIt was 15 years ago, on July 26, rity, and privacy-including in1990 that President George H. dependence-in casting their W. Bush signed into law the votes. The challenges are Americans with Disability Act, complex but, in advancing guaranteeing equal opportu- human rights, well worth tacknity for people with disabili- ling. ties in public accommodations, commercial facilities, employ- Technology now exists to alment, transportation, govern- low our society to do what our ment services, and telecom- hearts always hoped to do: munications. meet the challenge of ensuring the dignity of every person, in Today, I think we all can be voting and in life generally. pleased to say, the rights of women and non-whites to vote Federal money recently was and participate in government made available for improving are hardly questioned. polling place accessibility. Also, the state legislature this In a couple of years, parts of year authorized the expendithe Voting Rights Act will be ture of federal funds to purup for reauthorization. Today, chase assistive technologies the Act is accepted as so un- for voters with disabilities. questionably right that U.S. Starting in 2006 voters with Representatives Dennis disabilities will be able to vote Hastert (R-Illinois) and Jim privately and independentlySensenbrenner (R-Wisconsin) something that people without already are stepping up to of- disabilities take for grantedfer reauthorization legislation. by using what might be thought Currently a commission is trav- of as a sophisticated “pen” to

mark their ballots, rather than relying on someone else to do it for them. The voting equipment we will be installing in Minnesota will be a type that can be used by anyone, with or without a disability. Polling place accessibility improvements and assistive voting technologies are just a start. People with disabilities have raised awareness of their desire to be independent. For this they should be applauded. They’re helping to advance human rights that probably will be appreciated by more people than currently know it. None of us can know when we might need accommodations, either temporarily or permanently. Considering our aging population, I think issues of rights for people with disabilities will become increasingly prominent. Upon complete implementation, I believe HAVA will be viewed as a great milestone in the history of voter rights in our country. I think it will help to bring closer the day when the rights of voters with disabilities are as accepted and embraced as the rights of women and minority voters are today. Mary Kiffmeyer (R-Big Lake Township) is Minnesota’s 20th Secretary of State. Downloadable press information is available at http://www.sos. state.mn.us/office/bio.html.

■

SAVE THE DATE!! The Minnesota State Council on Disability ~and~ The Minnesota Department of Employment and Economic Development announces:

2005 AWARDS LUNCHEON for People with Disabilities Thursday, October 27, 11:30 a.m. ~ 1:30 p.m. Four Points Sheraton Hotel 400 Hamline Avenue St. Paul, MN 55104 For more information, please contact: 651-296-6785 V/TTY or 1-800-945-8913 V/TTY or email the Council at: council.disability@state.mn.us

September 10, 2005

In honor of Charlie’s accomplishments, Access Press is presenting “The Charlie Smith Award” We want to honor individuals or groups that demonstrate an exceptional degree of commitment to the disability community.

2005 Nomination Criteria: Networking: Achieving, promoting and increasing networking among groups. Achievement: Enriching the personal, social and economic lives of persons with disabilities in order to overcome barriers and build healthier communities. Bringing it Forward: Changing Perceptions

Third Annual Charlie Smith Award by Rox Tarrant

n Friday, November 4, 2005 come help me celebrate with Access Press at the Third Annual Charlie Smith Award.

very month on the front page in the space that we consider the DOT area, we insert a symbol highlighting an event of importance for that month. This month you will notice that we have a school bus in the DOT area on page 1. We are urging the Access Press readers to help us design the DOT area for the upcoming 2006 editions of Access Press.

Become the artist that is Annual Charlie Smith Awards recognized in one, or all twelve Banquet on November 4, 2005 issues of Access Press. which will be held at the Black Bear Crossing located in Como Prizes for the winners will be Park Pavilion. $25 for each month your design is showcased on the Our challenge to our readers front page in the DOT area. is: To design as many DOT The judges for the contest will areas as you want and submit be the Access Press board of them to Access Press at 1821 Directors and the artwork for University Avenue W., Suite the new DOT areas for the 104S, St. Paul, MN 55104 or 2006 editions of Access Press by email to access@access will be revealed at the Third press.org. ■

Check Access Press out at www.accesspress.org ❖❖❖❖ Please patronize your Access Press advertisers — and tell them where you heard about them. They bring you your paper.

Affordable Homes Leader s Leaders Read

Nomination forms are on the Access Press website at www.accesspress.org or by calling Access Press at 651-644-2133

Nominate them!

ment on November 4, 2005 at the Como Pavilion Black B e a r Crossings, in St. Paul, MN. Or take two Prozac and call me in the morning (oh wait, was that supposed to be aspirin). ■

Access Press Needs A New Face!

• Displays leadership skills and is committed to improving the lives of others.

Charlie Smith made a difference… Do you know others?

Over my ten-year comedy career, I have performed with Louie Anderson, Scott Hansen, and Diane Ford. I have also been a producer of the highly acclaimed all-female ten-year old comedy show, Women Out All Night. As host of my own show, Hot Rox Late Night Laughs, I have had people rolling in the aisles for five years!!

As one of Minnesota’s favorite comedians, I am an observer of life! In my act, I entertain the audience with stories of what it’s like to be a single 50-year old woman who isn’t on Join me for fun and entertainProzac!!!

• Promotes awareness by making current event information accessible through public media. • Makes contributions in eliminating attitudinal, social, economic and/or physical barriers for persons with disabilities and making a lasting impact on communities.

Read er s eader ers Lead 651-644-2133 www.accesspress.org (John Hockenberry pictured above.)

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Magyar BUILDERS

John Ratey – Licensed General Contractor Phone: 651-246-8938 Fax 715-262-3706 Email: magyarbuilders@yahoo.com MN Lic. BC-20382962 WI Lic. 927197

September 10, 2005

The ADA: 15 Years And Counting!

Age And Disability Odyssey Awards

by David Hadlich

from the MN Dept. of Human Services Continuing Care Administration

he Twin Cities disability community celebrated the 15th anniversary of the passage of the Americans with Disabilities Act on July 26, 2005. Hosted by a passionate and diverse organizing committee and supported by a number of local non-profit organizations and businesses, the event attracted over 600 participants and 70 Left to right: Cindy Tarshish, John Hockenberry vendors to the Earle Brown and Margo Imdieke-Cross Heritage Center in Brooklyn Center. only the disability community, people with and without disbut also all of society should abilities who are working toJohn Hockenberry, three-time celebrate. Fifteen years of gether to create something that Peabody award winner and progress, and many more to benefits all of society. four-time Emmy Award win- go. It was a day of happiness ner, was the keynote speaker and smiles, in recognition of Or how about Kevin Kling? at the event. Hockenberry is a how much things have Locally renowned and nationnationally renowned journal- changed, and how much there ally recognized, his writing and ist with over two decades ex- is to celebrate, as well as the story telling has been enterperience in network, cable, and quiet (and sometimes not so taining and informing for many radio. He is also an author and quiet) resolve of things yet to years in many ways. He has reached audiences from Sweactor. come. den, to Australia to the Czech Hockenberry was welcomed The future of the ADA, and Republic, and has gathered a by an eager audience. He spoke the future of the disability com- shelf-full of awards along the of a recent article in Parade munity as a whole, is tied to way. His unique ability to imthat highlighted his accom- many things, but most certainly part humor and wisdom is truly plishments (and provided him connected to how the commu- a local and national treasure. with a family Christmas nity portrays itself to those Humor is such an integral part photo!), and how the ADA has outside the community, and of our lives, and is an essential evolved by the disability com- how society as a whole steps element in the maturity of a movement. The ability to see munity pushing it forward, up and supports the change. humor in every day life, espeholding the firm belief that all Americans benefit from the Take, for example, Jim and cially one’s own, is a critical inclusion of individuals with Claudia Carlisle, who founded step in growing. disabilities. His Other organizations have message of joined forces for the benprogress, from efit of the movement. The the passage of Minnesota Consortium for ADA to now, Citizens with Disabilities was infused is a group comprised of with humor and leaders in the disability the sense that community and has been a this is just the shining example of putting beginning of aside individual needs for the journey. Left to Right: Cindy Tarshish, the advancement of the Margo Imieke-Cross and Barry Taylor movement as a whole. Their Barry Taylor, Legal Advocacy Director at People Enhancing People, a ability to build positive biparEquip for Equality, provided consumer-directed PCA tisan relationships has helped the morning address on recent choice organization. The secure legislation that will enU.S. Supreme Court decisions, Carlisles’ mission is to nurture able thousands of Minnesoand their affect on the commu- a rewarding personal care ex- tans with disabilities to live nity. Many other presenters perience and fortify the inde- healthier and more indepenwere available to the partici- pendence of persons with dis- dent lives. pants, sharing their personal abilities. People Enhancing insight and experiences dur- People has grown and is a true So smile, celebrate, and laugh. ing breakout sessions through- partnership of people with and The ADA is 15 years old! But out the day. without disabilities. The let’s not forget, it is a journey Carlisles’ story is one of many of years and tears; and we have The 15th Anniversary of the showinga true integration of just begun. ■ ADA gives us all the opportunity to reflect on how far the disability community and society have come, and how far we have yet to travel. The passage of an act or law merely provides the basis for change to occur. As with any other great social movement, the change itself takes place over time, with the sweat and effort and tears and struggle of many, and, sometimes, the resistance of others. But progress is progress, and it is within this context that not

he 2005 Age & Disabilities Odyssey awards have been announced, recognizing individuals and organizations for being leaders and advocates in providing services to older Minnesotans and people with disabilities. The awards were presented at the Odyssey Conference, held at the Duluth Entertainment and Convention Center. Sponsored by the Minnesota Department of Human Services Innovation Award to the Minnesota Region 10 Quality. and the Minnesota Board on Pictured from left are: Mary Alice Mowry, of the DHS Aging, the conference drew Disability Services Division, Karen Larson, Larry Riess more than 1,000 health and of the DHS Regional Office, John Jordan, Cindy human service providers, eduOstrowski, Dan Zimmer, & Jean Wood, of the Minnecators, planners and other sota Board on Aging. professionals in the fields of aging and services for per- tal disabilities. It did so by County, received the Innovasons with disabilities. Con- developing a quality assur- tions Award for her efforts to improve the lives of seniors in Hennepin County through visionary leadership and advocacy of new service delivery models. John Tschida and Joel Ulland received the Policy Award on behalf of the Minnesota Consortium of Citizens with Disabilities for their demonstrated public policy leadership, advocacy and education, all dedicated to improving the lives of persons with disabilities. Service Awards were presented to Linda Morrow, of Elder Circle, for her dedication to keeping elders living at ference attendees learned more ance and licensing process. home by providing quality about promising practices, Odyssey Awards state-of-the-art programs and Alex Bartolic, of Hennepin - cont. on p. 13 policy changes. John Tschida (left), of Courage Center, and Joel Ulland, MS Society, accepting a Policy Award.

Six recipients were recognized in four categories: policy, innovation, service and community. In addition, the first Lifetime Achievement Award was presented. The Minnesota Region 10 Quality Assurance Commission was recognized with an Innovation Award for providing service innovations that enhance the quality of life for people with developmen-

Attendees of the 15 Year Anniversary ADA Celebration

Greta and Terry Zoesch, daughter and husband of the late Sharon Zoesch, ombudsman for Older Minnesotans

Computerized Desktop publishing: Brochures Catalogs Direct Mailings Flyers Newsletters Newspapers Resumes and more! Ellen Houghton • 952-404-9981 presentationimages@mn.rr.com

September 10, 2005

ODYSSEY AWARDS - Cont. from p. 12

SUPERIOR - Cont. from p. 7 in trader’s garb. You may also touch the types of fur pelts that traders sought. With careful wheeling and a physically capable adult (just in case), you might explore the dock that juts into the sparkling waters of Lake Superior.

Jean Wood (left) with Rita Fox, recipient of a Community Award on behalf of the St. Elizabeth's Medical center, Wabasha, Minnesota services to family caregivers and to Mark Hughes for his role as role model, creator and host of the television program, Disability Viewpoints.

for that organization’s role in advocating for health care for seniors and for all citizens.

MaryAlice Mowry (left) of the DHS Disability Services Division, presents a Service Award to Mark Hughes, creator and host of Disability Viewpoints

A special Lifetime Achievement Award was presented The Community Award went posthumously to Sharon sotans for many years until husband, Terry, and daughto Rita Fox, of St. Elizabeth’s Zoesch, who served as the her death in 2005. On hand to ter, Greta. ■ Medical Center, Wabasha, ombudsman for aging Minne- accept the award were her

And finally, another eight and one-half miles north of Grand Portage just south of the Canadian border, is a power-wheelchair-user’s, wilderness utopia. Yes, the entire half-mile hike uphill through the enchanted woods to the 120-foot High Falls on the Pigeon River, Minnesota’s highest waterfall is wheelchair accessible. Be part of a landscape that naturally denies access to wheelchair users. It is a mountaintop experience—and I highly recommend it.

this Northshore road trip to all of you, whether you are mobility disabled or not. These are just a few highlights. There is much more to see and do along the Northshore whether you take a day trip to Duluth or a three to five day adventure between Duluth and the Canadian border. Either way, I’m sure you will enjoy your trip! So start planning and have a great time!!!

Travel resources for Duluth and the Northshore: Duluth: http://www.visit duluth.com Grand Marais: http://www. grandmarais.com Grand Portage National Monument: http://www.nps.gov/ grpo/home1.htm Grand Portage State Park: http:/ /www.dnr.state.mn.us/ state_parks/grand_portage/ In fact, I highly recommend index.html ■

ODYSSEY - Cont. from p. 1 very valuable information on how Telehealth technology saves money. Equipment is installed in a consumer’s home that makes it possible to have many tests done, reviewed, and discussed by phone with a nurse coordinator, who then communicates with the primary care doctors and attending physicians.

of these grants and programs are stated as not being available to them under the eligibility requirements. I have been made very aware of the need to look into these issues further and to really find out how families who are providing fostercare support to individuals with disabilities are being affected—either positively or not-so-positively—and what This has become a very cost- we can all to do enact systems effective way to avoid the nu- change to help these families. merous visits of private duty nurses, who would have to As a result of attending the come almost daily to do moni- conference, I feel I will be much toring that can be easily done better prepared as a consumer by phone. Not only is this an and as a person who will hopeawesome use of technology fully be able to assist others for rural settings where trans- find needed sources of supportation to and from hospi- port when the time comes— tals, clinics, and other health and needs arise. I can look care locations can be costly forward to my life as an “older and difficult, but it is also a adult” and be assured that cost-saving measure overall. people are thinking and planResearch has shown that indi- ning for the support needs for viduals can recover more all of us in the future. quickly in their own home setting. This is one very unique way of speeding up the recovery process and staying under daily observation.

The conference also very quickly made me aware how valuable it could be to align our disability community with the aging population. We can join forces and assist one another in advocating for needs that have yet to be met.

I (as well as many others) look forward to the conference again next year. Julia is a Community Program Associate with the Institute on Community Integration (UCEDD) at the University of Minnesota. ■

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I was also reminded about services and supports that are available as a last resort when other options may not be available. One of these is the Consumer Support Grant. I had forgotten all about this as an option when waiver eligibility is not possible or when spaces for waiver allocations do not exist. This was a very valuable reminder for me. One concern I have (and that I have started to research) is how youth with disabilities in the foster-care systems are faring when oftentimes some

only expo

Grand Marais’ Harbor on Lake Superior

for people

Meet vendors showcasing products and services that can help make life more accessible.

living with

Saturday, Nov. 5

disabilities

Radisson Riverfront (8 a.m. to 1 p.m.) 11 E. Kellogg Blvd., St. Paul

Ability Expo

For information, call 612-335-7900 or visit www.mssociety.org

September 10, 2005

Twins Break Ground On Accessible Ball Field by Corley Goodwin

he Minnesota Twins Community Fund, in partnership with the Carl and Eloise Pohlad Family Foundation, Minnesota Utility Contractors Association (MUCA) and City of Blaine (MN), held a groundbreaking ceremony on August 19, 2005 to kick-off construction of a new synthetic turf baseball field in Blaine serving youth with physical and developmental disabilities. Participants in the ceremony included representatives from a Courage Center youth wheelchair softball team, Twins’ ownership representative Jim Pohlad, Twins manager Ron Gardenhire, Twins pitcher Kyle Lohse, and National Baseball Hall of Fame and Twins great, Harmon Killebrew. The custom-designed field at the Blaine Baseball Complex will accommodate wheelchairs and other walking assistance

by Julie Peters

pportunity Partners, a nonprofit agency that helps people with disabilities and other special needs live and work successfully in the community, has announced its Employer of the Year and Customer of the Year for 2005.

Twin’s great Harmon Killebrew with Mark Braun and Lucas Towle ily Foundation. In-kind support, including heavy equipment and labor costs totaling more than $100,000 will be donated by members of

from the public, private and nonprofit sectors,” said Jeff Hanson, executive director of MUCA, and a member of the Minnesota Twins Community Fund board of directors. “The result will be a one-of-a-kind, state-of-the-art ball field in Minnesota giving special needs youth from around the region a unique opportunity to experience the joys of playing ball.” The field is scheduled for completion this fall and will be available for play starting in the spring of 2006. For more information, visit the Twins Web site at: http://minnesota. twins.mlb.com ■

Twin’s Mascot with Lucas Towle, Mark Braun and Chase Stokes. devices, while helping prevent injuries. The field is being constructed with financial contributions of $20,000 from the Minnesota Twins Community Fund and $130,000 from the Carl and Eloise Pohlad Fam-

Opportunity Partners Names Employer And Customer Of The Year

MUCA. The City of Blaine is donating land and will be responsible for field maintenance. “This project is made possible by a tremendous collaboration

Check us out: www.accesspress.org ❖❖❖❖ Please patronize your Access Press advertisers — and tell them where you heard about them. They bring you your paper.

Bon Appetit Management Company, which is based in California and has a regional office in Minneapolis, was named Opportunity Partners’ Employer of the Year. Bon Appetit is an onsite food service company providing café and catering services to corporations, colleges and specialty venues. Opportunity Partners’ partnership with Bon Appetit began several years ago when the company contracted with Opportunity Partners for a supported employment team to perform cafeteria duties. Today, the relationship has grown to four teams at four sites, resulting in job opportunities for 46 Opportunity Partners clients. Coghlan’s, based in Winnipeg, was named Opportunity Partners’ Customer of the Year. Coghlan’s is the number one “outdoor accessory line” in the United States and Canada. “Opportunity Partners has been packaging its canteens, compasses and other camping equipment for 40 years, making them our oldest

Opportunity Partners Job Developer Val Olson, client Mike Courteau, and Bon Appetit representatives Allison Albritton, Jeff Moeller-Roy and Ann O’Driscoll were all smiles when Bon Appetit earned the Laura Zemlin Employer of the Year Award from Opportunity Partners. mental disabilities, brain injury, autism and other challenges to achieve their dreams for greater independence in the community. More information Every day, Opportunity Part- on Opportunity Partners is ners empowers more than available on the web at www. 1,300 people with develop- opportunitypartners.org. ■ customer by far,” said Al Gargano, Opportunity Partners vice president of industrial operations.

Coghlan’s was recognized as Opportunity Partners’ 2005 Customer of the Year. Coghlan family members (from left) Norm, Rob and Barb learned they were being honored when Al Gargano, Opportunity Partners vice president of industrial operations, visited their headquarters earlier this year.

ETHICS - Cont. from p. 9 ethics right to die promoters should not be glorified or honored, but denounced and disputed. There is value, meaning, and worth in the lives of people with significant cognitive and physical disabilities.

Time: 8:30 AM until 1:00 PM Location: Hyatt Regency 1300 Nicollet Mall Minneapolis, Minnesota. 612-370-1234 Some protesters will be renting and staying in rooms and attending the conference to hand out leaflets and fliers.

Accessible Space, Inc. ASI

http://minneapolis.hyatt. com/property/index.jhtml Katheryn J. Ware RN BSN Kitkat24@comcast.net Jean Swenson, MA jswenson@usfamily.net

HOUSING WITH CARE

Accessible, affordable housing & supportive living options for adults with qualifying disabilities or seniors 62 & older ACCESSIBLE, AFFORDABLE HOUSING

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• Rent based on 30% of monthly income • A variety of supportive services are • Wheelchair accessible, 1 & 2 BR apts. available for adults with a physical • 1 BR apts. for seniors age 62 and older disability, mobility impairment, • Approved pets welcome! or traumatic brain injury, including • Locations throughout the Metro Area, 24-hour shared personal care Greater MN, and throughout the Nation attendant staff at many locations.

GREATER MINNESOTA LOCATIONS Austin • Brainerd • Champlin • Duluth • Grand Rapids • Hibbing Marshall • Rogers • Rochester • St. Cloud • Stillwater • Willmar

The groundbreaking ceremony at the new Blaine softball field included (in the wheelchairs, left to right) Mark Braun and Lucas Towle.

(651) 645-7271 or (800) 466-7722 ~ TTY/TDD (800) 627-3529 Housing Info: ext. 295 ~ Employment Info: ext. 297 (EOE/AA) Apply for housing or employment on-line: www.accessiblespace.org *Eligibility or selection of ASI services is not required to qualify for housing ASI services are not available in all locations

September 10, 2005

Disability Technology

Every 21 Seconds . . . by Jeni Mundl

very 21 seconds a traumatic brain injury occurs according to the Brain Injury Association of America. Today, there are 5.3 million persons living with a traumatic brain injury (TBI) with an additional 4.7 million persons diagnosed with an acquired brain injury. The effects of brain injury are vast and different for each individual depending on the area of the brain damaged. Limitations may include physical, cognitive, auditory and/or visual. The statistics are striking as to the extent of how a brain injury can affect a person. Many times an individual does not return to his/her previous self. For many, achieving independence and returning to the community at large are their two main goals. Assistive technology is fast becoming the compensatory strategy to take when dealing with such brain injury effects as hemiplagia, hemiparesis, aphasia, and memory difficulties. Hemiplegia and Hemiparesis These two terms indicate paralysis or weakness on one side of the body. One-handed tools are useful when dealing with one-handed abilities or change in dominance. Speakerphone or Headset: These items are readily available at OfficeMax, Best Buy, and Target. Look for telephones that have large buttons, speed dial, and a dual mode to allow for a speakerphone and headset. One-handed Gardening Tools: Whether you are looking for a special rake or an one-handed spade, Life Ease offers a wide variety of products to purchase. Check out their web site at —http://

www.lifewith garden.html.

ease.com/ newspapers and magazines. Ask for the Communication Center when you call 800-652Dressing Items: Tying a shoe 9000. or buttoning a shirt is difficult with one hand. A looped wire Memory on a stick will do the trick in pulling a button through a hole. Digital Planner or PDA: PerVelcro is another simple solu- sonal Digital Assistants or tion for dressing. Shoelaces PDAs are excellent organizacan be purchased which do not tional and scheduling aids require tying allowing for stur- when a person demonstrates dier shoes to be worn than the ability to sequence steps. sandals or slip-ons. CompUSA, OfficeMax and Best Buy sell a variety of prodReachers: A reacher can as- ucts. Two products to consist with picking up an object sider are the Jordana and Zire. that is too low or too high. Some strength and dexterity is Programmable Watch: Lookrequired. Dynamic Living has ing for a device to set alarms several models from which to on? Programmable watches choose. are a possibility. They can be programmed to make a sound Receptive and Expressive throughout the day to alert the Aphasia individual of an appointment, daily need, or other activity. Receptive aphasia means difficulty in understanding lan- Medication Reminder: Mediguage whereas; expressive cation is an important aspect aphasia is difficulty commuof one’s regime. There are nicating with others. Although high-tech and low-tech soluthe terms are more complex, tions. Dynamic Living offers an example of receptive apha- one product that will make a sia is difficulties with reading sound at a certain time of day. and writing whereas expres- A more sophisticated solution sive aphasia may be difficul- is one where the medication is ties with word finding. dispersed into a cup and signals the user until the pills have Augmentative and Alterna- been picked up. After a certive Communication (AAC): tain length of time, the device An AAC device is an elec- will call out to indicate the tronic aid that produces medication has not been taken. speech. There are a multitude of options to consider when Motivator: Initiation and stayshopping for a device that ing on track are important job meets your needs. Some fea- skills. The motivator is a protures to consider include programmable device with audigrammability, picture-based tory and text output. It can be versus text-based, sound of programmed to go off on cervoice, ease-of-use, durability, tain integrals to indicate to the and price. individual that they must pay attention. Books on Tape: Anyone with a reading disability can sign Invisible Clock: AbleNet sells up for books on tape through The Invisible Clock. It has the the State Services for the Blind. capability of setting multiple You do not need a visual im- cues, which will vibrate or pairment to apply. There are make a sound when activated. thousands upon thousands of It normally works on into inbooks plus a good variety of tervals of time.

Minnesota Diabetes EXPO

n October 15, 2005, the American Diabetes Association (ADA)-Minnesota will host its second annual Diabetes EXPO, held at the Minneapolis Convention Center, from 10:00 a.m.-4:00 p.m., showcasing the latest products and services for people with diabetes. This highly interactive event includes activities for people of all ages, including a fun Youth Zone with exciting activities, games, face painting, prizes and information for children with diabetes and their families. The Diabetes EXPO provides the public with a In light of the statistics of brain injury occurrence, these technological solutions have the potential to not only help an individual function independently, but can also offer the chance to return to the community at large. And that’s important to the many millions who have already sustained an injury as well as the 14-15 people who just experienced an injury in the five minutes it took for you to read this article! ■

unique opportunity to talk with healthcare experts and obtain important medical and nutrition information.

betic, in 159 days for Diabetes World Flight. He will talk about his flying experiences and adventures during his five-month epic journey around the world More than 60 exhibitors, along where he made 63 flights to 22 with the EXPO sponsors, will countries and raised $26,000. feature the latest products, medications, information and Diabetes is a disease that afservices: fects the body’s ability to produce or respond properly to EXPO Retail Sponsor: Cub insulin, a hormone that allows Pharmacy sugar to enter the cells of the World Sponsor: Prairie Is- body and be used for energy. land Indian Community About 18.2 million Americans Media Sponsors: Pioneer have the disease and in MinPress and WCCO Radio nesota, 281,000 people are estimated to have diabetes with Free health screenings include 15,000 people being newly diA1C, blood pressure, BMI, agnosed each year. bone density, cholesterol, and eye and foot checks. ADA Admission for the Saturday World contains a bookstore, event is $7.00 for adults, $5.00 website demonstrations and in- for seniors, and free to youth formation on advocacy, edu- under age 18. Discount coucational programs, and spe- pons are available on the ADAcial events. Minnesota Web site www.dia betes.org/expo and in the DiaKeynote speakers will be betes EXPO brochure. For Nicole Johnson Baker, Miss more information about diaAmerica 1999 and Pilot Dou- betes and the Diabetes EXPO, glas Cairns. Cairns completed contact 763-593-5333 x6652, the first Round-the-World or 1-800-DIABETES (1-800flight, according to U.S. Safety 342-2383) or visit www. regulations for a Type 1 Dia- diabetes.org ■

September 10, 2005

Medtronic Proud To Host Effective MN Career Development Rehabilitation Therapy: For the 21st Century. Is A Team Approach!

by Mike Cohn, M.Ed

Jennifer Sheehy Keller will be the keynote speaker for the event. Ms. Keller is the President’s appointed Special Assistant for Employment to the Assistant Secretary of the Office of Special Education and Rehabilitation Services (OSERS) and Acting Deputy Commissioner of the Rehabilitation Services Administration Minnesota Career Develop- in the US Department of Edument for the 21st Century will cation. be held on Wednesday, October 26, 2005 from 9:00 a.m. to The Minnesota Business 4:30 p.m at Medtronic World Leadership Network is a proud Headquarters, 710 Medtronic host of Mentoring Day 2005. Parkway in Fridley. The event This national focus began in will focus on a state-wide ef- 1999 and is a partnership of fort to promote career devel- private, non-profit, governopment for students with dis- mental and educational orgaabilities through hands-on ca- nizations. Along with reer exploration. The goal of Medtronic, participating comthis event is to promote dis- panies include 3M, Ameriprise ability as a central component Financial (formerly American of diversity recruitment result- Express), Bon Appetit Catering in a more inclusive ing, Cargill, Deloitte, Fairview Health Services, Microsoft, workforce. The Federal Executive Council edtronic, Inc., is proud to be the lead company for the Minnesota Business Leadership Network, an employerled endeavor that promotes best employment practices and enhances competitive employment opportunities for skilled candidates with disabilities.

of Agencies, Minnesota Department of Employment and Economic Development and the State of Minnesota. This event is open to people with disabilities that are 18years-old and older, and currently planning to enroll in college or a technical program, enrolled in post-secondary training including college, university, or technical school, and to those who have recently graduated from post-secondary programs. Registration is required for this event. Registration information can be found at http://www.mnbln. org. Space is limited and there is no cost for student participation. The registration deadline is October 19, 2005. Lunch will be provided and participants must provide their own transportation.

hroughout my life I have experienced Speech Therapy (ST), Occupational Therapy, (OT), and Physical Therapy (PT) to help make my overall life and my day-to-day living a little less difficult. I have had more speech therapy than OT or PT, yet the way a person looks at their therapy program can make a big difference if the programs are a benefit. This also might depend on if the patient is going through a change (i.e., recovering from an operation or just dealing with the normal life condition of having a disability.)

portant fact. That no matter how long a person has been going through the different kinds of therapy, it is up to the patient to make the program work for them. Many times I have heard patients complain that it’s too hard, I can’t do this, or it hurts! Stop! I always say no pain, no gain. I also say you must push yourself if you want to get better. I also think it is important to have a support team of people to work with you. People have to push themselves if they want to get better. Why do I believe this is true? The answer is simple. Once the patient goes home from the hospital or completes an outpatient therapy program they must continue doing their exercise program if they want to see their improvement continue.

the therapist and the family all working together. Sometimes the patient might not be in the mood to do exercises that he or she needs to do. This is normal for anyone disabled or not. Exercise is not always a priority on a daily basis, but it is important to continue doing even if the individual stops one day and then continues with the exercises at another time during the day or perhaps the next day. It may help for some people to exercise at a health club or gymnasium, not at home. Why is that helpful? I think it makes a difference for someone to exercise in an environment with other people because it motivates them to go exercise, whereas, doing it at home alone can become very boring and monotonous.

After going to the rehabilitation clinics and seeing and talking to other patients, I have come to the conclusion that many places are not putting in place what I call the team apDress for Success and Bring proach to rehabilitation therapy. Before I explain my Thus the team approach beYour Resume! ■ definition of the team approach Now, my definition of the team comes useless if you don’t do to rehabilitation therapy, I first approach to rehabilitation your exercises. ■ need to explain one very im- therapy is to have the patient,

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Medtronic is an equal opportunity/affirmative action employer.

September 10, 2005

Accessible Performances The following performances will be Audio Described (AD) for people who are blind or have low vision, or Interpreted in American Sign Language (ASL) for people who are deaf or hard of hearing. Compiled by VSA arts of MN, 612-332-3888 or http://mn.vsarts.org. SASE ASL Poetry Reading ASL: Wednesday, September 14, 6:00 PM Tix: Free, 612-822-2500 Location: College of St. Catherine, 2004 Randolph Avenue, St. Paul Website: www.saseonline.org Best Whorehouse in Texas AD: Saturday, September 17, 2:00 PM Tix: $31; 952-563-8575 Location: Bloomington Center for the Arts, 1800 W. Old Shakopee Rd. Website: www.bloomington civictheatre.org Run: September 1-25, 2005 Benefit concert by Tony DeBlois & Lucy Sirianni AD & ASL: Saturday, September 17, 7:00 PM Tix: $25, $15 student/senior in advance ($10 of each ticket istax-deductible); $35 at the door; payable to either VSA arts of Minnesota,612-3323888 or 800-801-3883 v/tty; or Young Audiences of Minnesota; creditcard payments can be accepted by Young Audiences of Minnesota 651292-3399, or www.young audiencesofmn.org Location: Hopkins High School Auditorium, 2400 Lindberg Drive, Minnetonka Website: http://mn.vsarts.org Run: September 17, 2005

vance: 612-373-5639 or 5609; hotline 612-373-5650; TTY 612-373-5655; email acces sible@orpheum.com Location: Historic State Theatre, 910 Hennepin Ave. S., Minneapolis Website: www.hennepin theatredistrict.com/servicesd. asp Joseph and the Amazing Technicolor Dreamcoat ASL: Sunday, September 18, 2:00 PM Tix: $18-68; ASL or AD offered if requested in advance: 612-373-5639 or 5609; hotline 612-373-5650; TTY 612-373-5655; email acces sible@orpheum.com Location: Historic Orpheum Theatre, 910 Hennepin Ave. S., Minneapolis Website: www.hennepin theatredistrict.com/servicesd. asp Run: Sept. 13-18, 2005 Triple Espressoâ&#x20AC;&#x201D;A Highly Caffeinated Comedy ASL: Thursday, September 22, 7:30 PM Tix: Reduced to $25 (reg. $31.50) 612-874-9000 or tickets@tripleespresso.com Location: Music Box Theatre, 1407 Nicollet Ave. S., Minneapolis. Website: www.tripleespresso. com

The Sunshine Boys Performed by: Rochester Civic Theatre ASL: Saturday, September 17, 8:00 PM Tix: $15, $12 senior/student, 507-282-8481 Location: Rochester Civic Theatre, 220 E. Center St., Rochester Website: www.rochester civictheatre.org Run: September 9-25, 2005

Sean Curran Dance ASL: Friday, Sept. 23, 10:00 AM; Saturday, Sept. 24, 7:30 PM Tix: $18-22; 320-363-5777; subsidy available for companion seating Location: Petters Auditorium, Benedicta Arts Center, College of Saint Benedict, St. Joseph Website: www.csbsju.edu/ finearts

Indigo Girls ASL: Saturday, September 17, 8:00 PM, Tix: $40-42; ASL or AD offered if requested in ad-

Happy Valley Performed by: Theater Mu AD & ASL: Saturday, September 24, 8:00 PM Tix: Reduced to $9 (Reg. $16,

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$2 off for students/seniors), 612-871-4444 Location: Intermedia Arts, 2822 Lyndale Ave. S., Minneapolis Website: www.muperforming arts.org Run: September 16 â&#x20AC;&#x201C; October 2, 2005

Jack Sprat Low-Fat ASL: Wednesday, October 12, 11:15 AM Tix: 320-363-5777; subsidy available for companion seating Location: Stephen B. Humphrey Theater, Saint Johnâ&#x20AC;&#x2122;s University, Collegeville 4-ISH Website: www.csbsju.edu/ AD & ASL: Friday, Septem- finearts ber 30, 10:30 AM & 7:30 PM * Tix: Reduced; 612-874-0400 Intimate Apparel Location: Childrenâ&#x20AC;&#x2122;s Theatre ASL: Friday, October 14, Co., 2400 3rd Ave. S., 7:30 PM AD: Saturday, Minneapolis October 15, 1:00 PM (free Website: www.childrens tactile tour 11:00, reservation theatre.org needed); Friday, October 21, Run: August 31 â&#x20AC;&#x201C; October 8, 7:30 PM 2005 Tix: Reduced to $16; 612377-2224, TTY 612-377Macbeth 6626 Guthrie WORLDStage Series Location: Guthrie Theater, A â&#x20AC;&#x153;semi-promenadeâ&#x20AC;? produc- 725 Vineland, Minneapolis tion performed by Out of Joint Website: www.guthrietheater ASL & AD: Saturday, October .org 1, 1:00 PM (free tactile tour Run: September 24 - October 11:00, reservation needed); 23, 2005 post-play discussion Tix: Reduced to $16; 612Mad Dancers 377-2224, TTY 612-377-6626 AD & ASL & Captioning: Location: Guthrie Lab, 700 Friday, October 14, 8:00 PM N. First St., Minneapolis * Tix: Season ticket Reduced Website: www.guthrietheater from $90 to $81; single .org Access tickets $18; Run: September 23 - October 612-338-6131 or boxoffice@ 2, 2005 mixedblood.com Location: Mixed Blood TheImpressionism: Breaking atre, 1501 S. 4th St., Minnethe Rules apolis ASL: Sunday, October 2, Website: www.mixedblood. 2:00 PM com Tix: Admission may be Run: October 7-30, 2005 charged to museum or exhibition; interpreted tour is An Evening of Classic free; Visitor and Member Lily Tomlin Services, 612-870-3131 or AD & ASL: Saturday, OctoTTY 612-870-3132, or email ber 15, 8:00 PM dhegstro@artsmia.org Tix: $41 â&#x20AC;&#x201C; 78.50; ASL or AD Location: Minneapolis Insti- offered if requested in adtute of Art, 2400 Third Ave. vance: 612-373-5639 or S., Minneapolis 5609; hotline 612-373-5650; Website: www.artsmia.org TTY 612-373-5655; email accessible@orpheum.com Bone Dry, aka The Copy Location: Historic State TheEditor Murders atre, 805 Hennepin Ave. S., AD: Thursday, October 6, Minneapolis 7:30 PM Website: www.hennepin Tix: Reduced to $8, 612-822- theatredistrict.com/servicesd. 7063 asp Location: Jungle Theater, 2951 Lyndale Ave. S., MinThe Whoâ&#x20AC;&#x2122;s Tommy neapolis AD & ASL: Sunday, October Website: www.jungletheater. 16, 7:30 PM com * Tix: Reduced to $17 from Run: September 9 â&#x20AC;&#x201C; October $24; 612-673-0404 16, 2005

Location: Hennepin Stages, The Legend of 824 Hennepin Avenue, MinSleepy Hollow neapolis ASL: Sunday, October 23, Website: www.aboutmmt.org 2:00 PM, sponsored by Run: October 7-30, 2005 Bloomington Night Lions Club The Catâ&#x20AC;&#x2122;s Journey Tix: $15, $12 senior/student; AD & ASL: Wednesday, 952-563-8587 October 19, 11 AM; Satur- Location: Bloomington Cenday, October 22, 11 AM ter for the Arts Schneider * Tix: Reduced; 612-874- Theater, 1800 W. Old 0400 Shakopee Rd. Location: Cargill Stage at Website: www.bloomington Childrenâ&#x20AC;&#x2122;s Theatre Co., 2400 artcenter.com 3rd Ave. S., Minneapolis Run: October 6-23, 2005 Website: www.childrens theatre.org Sleeping Beauty Run: October 4-30, 2005 AD & ASL: Wednesday, October 26, 10:30 AM; FriLearning to Look: day, October 28, 7:30 PM A Family Tour (Visual * Tix: Reduced; 612-874Thinking Strategies) 0400 ASL: Thursday, October 20, Location: Childrenâ&#x20AC;&#x2122;s Theatre 3:00 PM Co., 2400 3rd Ave. S., Tix: Admission may be Minneapolis charged to museum or exhibi- Website: www.childrens tion; interpreted tour is free; theatre.org Visitor and Member Services, Run: August 23 â&#x20AC;&#x201C; October 29, 612-870-3131 or TTY 612- 2005 870-3132, or email dhegstro@arts mia.org From the Horseâ&#x20AC;&#x2122;s Mouth, Location: Minneapolis InstiMagical Tales of tute of Art, 2400 Third Ave. Real Dancers S., Minneapolis ASL: Friday, October 28, Website: www.artsmia.org 10:30 AM Tix: $17; 612-340-1725 Bus Stop Location: Southern Theatre, ASL: Saturday, October 22, 1420 Washington Ave. S., 8:00 PM Minneapolis Tix: $15, $12 senior/student, Website: www.southern 507-282-8481 theater.org Location: Rochester Civic Run: October 27-30, 2005 Theatre, 220 E. Center St., Rochester Freezing Paradise: an Website: www.rochestercivic evening with Kevin Kling theatre.org ASL & AD: Friday, October Run: October 21 â&#x20AC;&#x201C; November 28, 7:30 PM 6, 2005 Tix: Reduced to $16; 612377-2224, TTY 612-377The Madwoman of 6626 Chaillot Location: Guthrie Lab, 700 ASL: Saturday, October 22, N. First St., Minneapolis 8:00 PM Website: www.guthrie Tix: $8-14 at 612-624-2345 theater.org or utheatre@umn.edu Run: October 19-30, 2005 Location: Whiting Proscenium Theatre at Rarig Center, Shadow of the Valley University of Minnesotaâ&#x20AC;&#x2122;s AD: Sunday, October 30, West Bank Arts Quarter, 330 2:00PM 21st Ave. S., Minneapolis * Tix: Reduced to $13 (reg. Website: http://theatre.umn. $20), 651-647-4315 edu Location: Hillcrest Center Run Time: October 14-23, Theater, 1978 Ford Parkway, 2005 St. Paul Website: www.mnjewish theatre.org Run: October 22 â&#x20AC;&#x201C; November 13, 2005 â&#x2013;

September 10, 2005

Upcoming Events September 16, 2005 “When I Wish” Sponsor: Opportunity Patners Time/Location: 5:30 pm, Int'l Market Square, Mpls, MN Cost: Tickets begin at $60 KARE-11 evening anchor Julie Nelson, WCCO-TV chief meteorologist Paul Douglas, WCCO-TV anchor Dennis Douda, Chief Andrew Zimmern and MN Timberwolves mascot Crunch will be among the many local celebraties who will be dealing card for the celebrity casino. For more information on tickets, sponsorships and donating auction items, please contact Tami Larson at 952943-2542 or tlarson@mn.rr. com. Info is also available at www.opportunitypartners.org or www.wheniwish.org

contribution to support the event.

September 19, 2005 Continuity and Change Sponsor: The Multicultural Development Center (MCDC) & Carlson Hotels Worldwide Time/Location: 5:30 pm, Boca Chica Restaurante, 11 Cesar Chavez, St. Paul, MN Cost: MCDC members - $35, non-members - $45. Keynote Speaker: Edwina Garcia, a Mexican American born in New Mexico, has extensive local political experience. After two terms on Richfield’s City Council she served for four terms on the MN State Legislature for districts 40A and 63B. Garcia currently works as the Richfield Community Resources Coordinator for FamiSeptember 16, 2005 link in Richfield, a nonprofit “Disability and Jazz!” that helps people connect with Sponsor: Metropolitan Cen- resources for service and ter on Independent Living support. Time/Location: 1pm-3pm, To register contact MCDC at MCIL office, 1600 University 952-881-6090 or via Email at Ave W., St. Paul, MN info@mcdc.org Dr. Alex Lubet will be September 26, 2005 presenting and share the film titled: “Horace Parlan on Music for the Mind Benefit Horace Parlan.” Dr. Lubet is a Sponsors: HealthPartners, Distinguished Professor of Great River Energy, and the Music and American and Parley Planning Group Jewish Studies at the Univer- Time/Location: 6:00 p.m. MN sity of MN. He writes, History Center, St. Paul, MN teaches, lectures, composes Cost: Tickets are $100. and performs music. Come Music for the Mind, a benefit learn and experience new for NAMI-MN will feature things! Please RSVP to Laura some of the area’s finest at: (651)603-2028/ laurab@ musicians and vocalists. This is mcil-mn.org. If you have any the only opportunity for people other questions please con- to hear the best classical, jazz tact: Alex Lubet lubet001@ and folk artists all on one stage. umn.edu. Prudence Johnson, Heather McLaughlin, Dan Chouinard, September 17, 2005 Janet Horvath, Bob Potter, Heel and Wheel Dale Connelly, Peter Sponsor: Spring Lake Park Ostroushko, Richard Dworsky Lions for the Hearing and and Dennis Spears will present Service Dogs of MN an eclectic program of classiLocation: DelaSalle H.S., cal, folk, ethnic and jazz music Nicollet Island, Mpls, MN as a benefit for NAMIs For more information call programs of education and 612-729-5986/TTY 612-729- support for children and adults 5914 or visit www.hsdm.org with mental illness and their families. September 18, 2005 To reserve your tickets for an 10th annual Headwaters’ evening of great entertainment Walk for Justice for a great cause, please call Sponsor: Headwaters Foun- NAMI at 651-645-2948. dation for Justice Time/Location: 11:30 AM to September 28 - 30, 2005 3:30 pm, Boom Island, Annual Community MenMississippi River, Mpls tal Health Conference This is the largest representa- “Achieving the Promise” tion of progressive grassroots Sponsor: MN Association of organizations in MN. The Community Mental Health group will meet at Boom Programs, Inc. Island Park in Mpls and walk Location: Duluth Entertaintogether to the Stone Arch ment Conv. Ctr in Duluth, Bridge, and back along the MN Mississippi. The conference is organized You may participate in the into several tracks, which walk by going to www.walkfor provide valuable information justice.org and register as a for staff from community Walker to support a particular mental health centers, hospiorganization (go to “View tals, social services agencies, Organization” on the home schools and counties as well page to see the list of partici- as private practitioners, advopating organizations) or you cates, and consumers and may simply come to Boom their families. For more info, Island on September 18 to visit www.macmhp.org or join the Walk and make a call 651-642-1903.

September 30, 2005 Peer Mentor Fun Day Sponsor: Metropolitan Center for Independent Living Time/Location: 1pm-4pm in the large conference room at MCIL, 1600 University Ave *This is an opportunity for all mentees and mentors involved in the Peer Mentoring program to come and meet and make connections with other potential mentees/mentors! RSVP no later than September 16th. Please contact: Laura Borton at: 651603-2028 or laurab@mcilmn.org. October 4, 2005 Tables for Tasks Sponsor: Tasks Unlimited Time/Location: 10:00 am, Golden Valley Country Club, Golden Valley, MN Cost: $60 One-of-a-kind luncheon and Silent Auction. For more info contact 612-767-2070. October 3, 2005 Extreme Personal Makeover Event for Persons with Developmental Disabilities and Their Support Network Sponsored by: Merrick, Inc., PACER Center, Arc-Great Rivers, and White Bear Lake Area Schools Time/Location: 4 – 8PM. Merrick, Inc., 3210 Labore Rd, Vadnais Heights, MN Cost: Free Participants will be able to do “one stop shopping” on information related to health/ wellness, relationships, jobs and job training, leisure/recreational options, guardianship, community inclusion, school transition, home and daily living ideas, residential provider options, etc. There will be exhibits, breakout sessions, and round table discussions. For more information, contact Colleen Timbers at (651) 7896230 or email her at colleent @merrickinc.org

Time/Location: 8:45 am to 3:00 pm, Terrace Mall, 3500 France Ave, Robbinsdale Cost: $25.00 Registration Deadline is Sept 19, 2005 Session topics will include bowel and bladder management, spinal cord research, integrative medicine and hydro therapy. For more info or a brochure contact Twyla Misselhorn at 763-520-1449 or twyla.missel horn@northmemorial.com October 18, 2005 Peer Mentor Training Sponsor: Metropolitan Center for Independent Living Time/Location: *New Mentor’s Training: 9am12pm. *Current Mentor’s Training: 1pm-3:30pm. MCIL, 1600 Uni-versity Ave W., #16, St. Paul Guest speakers, Taylor Kearns and Cindy Tarshish will give an overview of his and her profession at MCIL regarding the Veteran’s Affairs program and the program Americans with Disabilities Act.

October 20-21, 2005 St. Louis County Health & Human Service Conference Location: Edmund Fitzgerald Hall at the Duluth Entertainment Convention Ctr (DECC). Cost: $125, which includes name of your organization in the conference folder, two free parking permits. The reservation for exhibitor booths are first-come, firstserve basis. The conference draws about 1000 health and human service practitioners. It includes a wide variety of target audiences. The presentation will cover some of the topics on how to enhance knowledge, skills in health and human services, innovative ideas, new strategies and best practices. Conference material available at: http://www.co.stlouis.mn. us/social_Services/ Social Services.html For info call Mary Lawson at October 15, 2005 218-726-2140 or e-mail: Celebration of Arts & Heal- Lawsonm@co.st-louis.mn.us ing Sponsor: Family Institute for October 22, 2005 Creative Well-Being 4th Annual Hmong Resource Fair Save the Date! More inforSponsor: Hmong Cultural Ctr mation to follow Time/Location: 10am to 2pm, Arlington Sr. H.S., St. Paul October 15, 2005 Rehabilitation Workshop Hmong Resource Fair fofor Persons with Spinal cuses on providing resources Cord Injuries and Their and assistance to the new Hmong refugees, their sponFamilies Sponsor: North Memorial sor or host (anchor) families and other providers along Rehabilitation Services

with the general Hmong community in MN. Bilingual staff from a wide range of organizations was available to provide assistance to members of the Hmong community and to those who work with them. Information resources related to health and nutrition, mental health, education, employment, legal and government services, as well as many other services, were available to participants. For further info please contact 651-215-1278 or kazoua. kong-thao@state.mn or Mark Pfeifer at 651-917-9937 or resources@hmongcenter.org October 26, 2005 National Mentoring Day Career Development for the 21st Century Sponsor: The MN Business Leadership Network (MNBLN) Time/Location: 9am to 5pm, Medtronic Headquarters, 710 Medtronic Prwy, Fridley, MN Cost: FREE Guest speaker is Jennifer Sheehy Keller. Ms. Keller is the President’s appointed Special Assistant for Employment to the Assistant Secretary of the Office of Special Education and Rehabilitation Services and Acting Deputy Commissioner of the Rehabilitation Services Administration in the US Dept of Ed. Career Exploration will include the following career paths: Actuarial, Administration, Chemistry, Creative Services, Customer Service, Economics, Engineering, Facilities, Finance, General Science, Health Care, Human Resources, Information Technology, Legal, Manufacturing, Marketing, Media, Operations, Public Administration, Public Policy, and Security Services. In addition, participants will be invited to sign up for future mentoring opportunities. This event is open to people with disabilities currently enrolled in post-secondary training including college, university, or technical school, and to those who have recently graduated from post-secondary programs. Registration information can be found at www.mnbln.org

October 27, 2005 Annual Awards and Recognition Program Sponsor: MN State Council on Disability See page 10 ad for info. November 3-4, 2005 “FRAMING: Crafting Messages that Build Support” Sponsor: MN Council of Nonprofits. Location: Saint Paul RiverCentre. This year’s Conference theme, reflects the fact that nonprofits must continually communicate compelling messages that engage their diverse stakeholders—including volunteers, board and staff members, donors, advocates, and voters—to be successful and effective. Featured speaker Joseph Grady, co-founder of Cultural Logic and research collaborator with FrameWorks Institute, will discuss framing versus spin and one of the critical distinctions between the two: good framing is about helping people see things they couldn’t see before. Drawing on recent experiences with issues in MN, Joseph Grady will discuss how nonprofits can make their communications more persuasive by making them more enlightening. To register for the MN Council of Nonprofits 19th Annual Conference, please go to www.mncn.org/conference to register online. If you have any questions, please contact Stephanie Haddad at 651642-1904 ext. 227, or stephanie@mncn.org. November 4, 2005 Third Annual Access Press - Charlie Award Banquet Sponsor: Access Press Board Time/Location: 6:00 pm to?, Black Bear Crossing at Como Pavillion in St. Paul, MN For nomination information and criteria contact Access Press at 651-644-2133 November 5, 2005 Ability Expo Sponsors: National MS Society, MN Chapter’s MS Annual Convention Time/Location: 8a.m. to 1pm, Radisson Riverfront Hotel, St. Paul, MN For more information contact Jenna Washnieski at 612335-7981, 1-800-582-5296, or jwashnieski@mssociety. org.

Easy Access Adventures Life is a Journey . . .Take it! Karen Kolodziejczyk Travel Agent 2776 Helen St. N. N. St. Paul, MN 55109 651.770.1956 info@easyaccessadventures.com www.easyaccessadventures.com

September 10, 2005

News At A Glance . . . Northwestern College Annual DOSS Week

tarting October 3, 2005, Northwestern College, located at 3003 Snelling Ave., North, St. Paul, MN 55113, will have a host of events, including Ms. Melissa Green as the chapel speaker on Monday, October 3, 2005 at 10:30 a.m., in Maranatha Hall. On Tuesday, October, 4, 2005 Britta Nicholson and husband Steve Richter (both are alumni) will speak in chapel, also at 10:30 a.m.

New HealthPartners Dental Clinic Focuses on Culturally Competent Care

he HealthPartners Dental Group began operation of a new dental clinic in the Midway area of St. Paul in midFebruary. The clinic’s mission is to provide same-day access to urgently needed dental care. Also, the clinic will serve as a first point of contact for all new HealthPartners Care members who will be enrolled in the HealthPartners Dental Group clinics. The clinic will serve as the dental home for those Since 1999 Northwestern College has hosted week long events enrollees that choose, or are not able, to receive care in a more during the month of October. The activities are designed to traditional dental practice structure. increase awareness about ADA related topics and the college experience. During the week there is a focus on campus, state The HealthPartners Midway Dental Clinic is designed to and local services that enable students with special needs to accomplish several objectives. One objective is to demonexperience college at a more inclusive level. strate a model of care that HealthPartners has developed and that has been adopted by the Minnesota Legislature’s “Dental The goal is to highlight resources and services that benefit Access Advisory Committee.” The model emphasizes students directly. DOSS (Disabilities Office for Support responding to the episodic user of dental services and making Services) brings individuals on campus as speakers or panel better use of scarce resources. members who will provide insight into the everyday celebrations that come from perseverance and a focus on Nearly a public assistance program covers one in five success. This year’s theme is “Faith: Interfacing the Love of HealthPartners Dental Group patients. But even at these Christ.” levels, the volume of patients seeking episodic and urgent care at any one clinic is not high enough to make it feasible to For further information contact Dr. Yvonne RB-Banks at reserve time in providers’ schedules.This clinic also focuses yrbanks@nwc.edu or call 651-631-5221. greater resources and develop greater expertise in overcoming barriers to receiving care.

Volunteers Needed - Capital City Education Initiative/ Hmong Mentorship Program

halen Lake Elementary is looking for volunteers to mentor and tutor new refugee students from Wat Tham Krabok in grades K-3. The Hmong Mentorship Program is working side by side with the Mayor of St. Paul’s Capital City Education Initiative in trying to reduce poverty through literacy. This is a great opportunity to network with people from all different places, also to have great foundation on a resume, and to have a wonderful reference into future opportunities that may come your way. The program will begin in Fall 2005. For more information contact: Edward Vang, Volunteer Coordinator, Capital City Education Initiative, Phalen Lake Elementary, 651-293-8935 ext. 1052 edward.vang@ci.stpaul.mn.us

Thanks!

he Volunteer Services Unit of the Ramsey County Community Human Services Department wishes to thank the citizens and employees of Ramsey County for the tremendous support and response to the 5th Annual School Supply Drive.This year’s drive collected 13,000 supplies for distribution to needy students. Thank you for your generosity and caring.

ong thought to be a disorder that affects only autistic children, and a disorder that is often mistaken for ADHD, Sensory Integration (SI) dysfunction is finally being recognized as a separate condition. For parents of children with sensory integration issues, Lindsey Biel, M.A., OTR/L and Nancy Peske have written a ground breaking book, “Raising A Sensory Smart Child: The Definitive Handbook for Helping Your Child with Sensory Integration Issues” (Penguin Original), that will be an invaluable resource for parents and teachers. In just about any classroom, there’s at least one child who is struggling with sensory issues. These are the kids that teachers and parents describe as “oversensitive,” “picky,” “clumsy,” “spacey,” “impulsive,” “difficult” or even just “quirky.” Children with SI dysfunction are those who have difficulty processing everyday sensations that most of us take for granted. Often, they’re highly distractible and they tune out or act out when they’re over-stimulated. Their need for sensory input such as movement and touch can be so overpowering that they truly can’t control their need to seek it out. Because each child has a unique experience of this confusing and sometimes exasperating condition, “Raising A Sensory Smart Child” helps parents to understand what their child is going through such as how the seven (yes, seven!) senses work, and how to It is located in the Midway area, just east of the Target store find an occupational therapist (OT) who is trained and that is near University and Snelling, on the third floor of the experienced in helping kids with SI dysfunction who can Bigelow Building.Street address is 450 Syndicate Street N., actually help retrain the child’s nervous system to work more adaptively. Suite 300, St. Paul, 55104.

Triumph Technology

riumph Technology provides assistive technology solutions for people who are blind or have low vision. There are technology solutions available for yourself, a family member, friend, co-worker or employee. Training for Individuals Triumph technology is in the business of working with our customers to identify the assistive technology solutions that best fit their lives and then teaching them how to use that technology. All Triumph Technology trainers must pass Minnesota State Services for the Blind’s stringent proficiency exams and complete an adult education course before they are permitted to work with clients. We believe that this standardization of service not only maximizes the quality of training for our clients, but also raises the bar with regard to what is expected of training professionals in the assistive technology industry.

Training Workshops and Seminars Triumph Technology hosts a series of workshops and seminars on a variety of topics such as trends in the assistive technology Provide a Ride Volunteers Sought industry, providing access to electronic and information technology, Web accessibility and disability awareness as it ive a lift and get one too! Volunteer drivers are sought to relates to assistive technology. provide a ride on an occasional, regular or special event basis. This can range from taking a person to an appointment, Section 508 and ADA compliance consultations regular trips to the grocery store or a one-time activity. The The unfortunate fact is, we are all just a traumatic injury, ride may be one-way or round-trip. A pair of volunteers can hereditary predisposition or age related condition away from serve as a driver-team and work together, which is perfect for acquiring a disability. When it happens to you, what spouses, friends, neighbors, relatives or co-workers. protections do you have against disability discrimination? Volunteer drivers are reimbursed for mileage. Under the law, what accommodations are you as an employer

Guild Incorporated is a not-for-profit organization that provides an array of supportive services to individuals coping with mental illness, which includes severe depression, anxiety or schizophrenia. Poverty, loneliness and isolation often accompany mental illness. Volunteer drivers are needed to help individuals access necessary places in the community where public transportation is not available. Most of the clients live independently in Dakota and Ramsey Counties. As you may know, one in four families has a member with mental illness.

New Book Released: “Raising A Sensory Smart Child, The Definitive Handbook For Helping Your Child With Sensory Integration Issues”

required to extend qualified employees with visual impairments and why? What recourse do people with a disability have in situations where reasonable accommodations aren’t considered? Triumph Technology works with companies and organizations to find technological solutions for qualified job candidates with visual impairments as well as long time dedicated employees who acquire a disability.

The book also addresses everyday behaviors from dealing with clothing sensitivities, to getting children the deep pressure against their skin and in their joints that will calm them down, to helping their auditory-sensitive child handle background noise, whether at home, at school, or in the neighborhood. After reading “Raising A Sensory Smart Child,” parents and professionals will be able to spot and address common developmental delays. Biel and Peske provide guidance on how to work together as a team to help kids with sensory issues cope with the confusing sensations coming from within and outside of their bodies. Some of the key topics covered in the book are: • Where to find an occupational therapist and how to get the best professional help • The importance of the “just right” challenge • “Sensory diet” activities that can be done every day to help • Practical solutions for everyday problems, from brushing hair to getting dressed or being in public • Why “sensory smarts” can be a huge help for children with learning and attention problems • Ways to advocate for your child at school, and ways to make schools more “sensory smart” • How to empower your child and teen in the world • Complementary therapies, recommended resources, and helpful Web sites For more information, please contact Ann M. Day, Publicist, at 212-366-2078 or fax 212-366-2952 or email: ann.day @us.penguin group.com or visit the authors Web site at www.sensory smarts.com

MCIL Recruiting Board Members

he Metropolitan Center for Independent Living is actively recruiting Board Members. We need professional, knowledgeable individuals who are interested in the issues faced by people with disabilities. Board members, as a group, share their knowledge and expertise regarding the duties, and responsibilities relative to the management and operation of the Center. Members are elected at our Annual meeting on Wednesday, October 26, 2005 to be held at the St. Paul Travelers (Jackson Room, 375 Washington Street, St. Paul, MN). This is a three-year term and board members attend meetings on the fourth Wednesday of November, December, January, March, May, June, August, September and Annual Meeting in October. Those interested please call 651-646-8342 for an application. The deadline is September 15, 2005.

Assistive Technology Product Distribution Triumph Technology is always adding to our inventory of assistive technology products. Current offerings include speech and Braille note takers, talking bar code scanners, People interested in volunteering may contact Jeanne Tramel talking cell phones, scan and read systems, Braille embossers, Rasmussen, Volunteer Coordinator, at (651) 457-2248 ext. 36 talking computers and screen magnification systems. or e-mail at volunteer@guildincorporated.org. Additional information about Guild Incorporated and its volunteer View the full array of technology solutions at: www. program can be found at: www.guildincorporated.org. The triumphonic.com or call:651-636-5184 to discuss your Guild of Catholic Women formed the organization in 1990. specific needs or concerns. At A Glance - cont. on p. 20

September 10, 2005

News At A Glance . . . Senior Housing Guide

ow available, “The Senior Housing Guide,” is a comprehensive reference book providing information on housing options for older adults. You can pick one up for free at libraries and senior centers. There is no charge for information. Speakers are also available on a variety of topics; reverse mortgages, making your home accessible, community based services, downsizing, how to have a great move, and housing options. Counties included in the Guide are Anoka, Carver, Chisago, Dakota, Hennepin, Isanti, Ramsey, Scott, Washington, and Wright. The Guide covers “Resources,” “Staying In Your Home,” “Moving,” and “Comprehensive Housing Listings.” The Resource section includes information on resources and subsidies to help pay for services, whether you are in a house or an apartment. The section “Staying Put” has information on reverse mortgages and making your home accessible, as well as a checklist of community based services. The section, “Moving On,” helps people think about moving; where to start, and how to de-clutter and downsize. Lastly, the “Housing Listings” are a comprehensive list of condominiums and cooperatives, market rate and subsidized rental apartments, housing with assisted living services and memory care residences. Costs, pet policy, parking information, are given as well as information on services: meal programs, housekeeping, laundry services, personal care, respite care, and transportation. Phone numbers, addresses and Web sites of housing providers are listed to make investigation of housing options easy. To have one sent directly to you send $5 to cover postage and handling. Send to: Housing GUIDE, 1474 Sargent Ave., St. Paul, MN 55105. If you would like more info or further explanation about housing options call 651-690-3141.

Courageous Mother Inspires Independent Living Resource

ith the Twin Cities senior citizen population expected to increase more than 115 percent in the next 25 years, Housecalls Network is now one of the most innovative resources available to elderly and disabled people and their care givers. The website features a directory of informational resources, shopping and home services, and charities to assist this growing population. Many of the shopping and home services offered, such as errand running and chore services, also can help busy, working families, many of whom are called upon to take care of an aging parent. Schmidkte focused mainly on the Minneapolis/St. Paul area to ensure that the resources listed on the Web site were convenient and personalized. Housecalls Network recently added a secure, user-friendly e-commerce site full of aids for daily living and adaptive clothing that enables people with all levels of disabilities to live safely and conveniently. Housecalls Network provides a directory of informational resources, shopping and home services and charities through its Web site, www.housecalls-network.com. Housecalls Network also buys and sells new and used aids for daily living and adaptive clothing through its Web site, catalog phone orders and home presentations. For more information visit www.housecalls-network.com or contact Housecalls Network Lisa Schmidtke, President, email: lisa@housecallsnetwork.com, phone: 952-221-0722

Fall 2005: Family Institute For Creative Well Being Finding Visions Of Possibilities In Creativity And Spontaneity You Can’t Pour from an Empty Vessel (parents, grandparents, adult caregivers) “Taking care of oneself” can seem selfish. Yet to take care of self, to fill one’s vessel, is as essential as the air we breathe. There are many ways to fill a vessel each affecting that which pours forth. Learning to live with this realization can take time. This class is for parents/caregivers to give form and words to their experiences, often outside common understanding, for which daily language can seem inadequate. We will use forms of written expression for reflection and will create a vessel (gourd art). When: The 2nd and 4th Mondays of the month: Sept 12 to Dec. 5, 7:00–9:00 pm Where: 2131 Fairview Ave. N., Roseville—the Family Institute in the former school attached to Corpus Christi Cost* $96 + $12 for supplies *scholarships and/or work study are available Creative Growth & Healing Conveying experience and creating connections. During these arts activity classes we will engage in creative activities that build closer connections. We will explore a variety of forms of expression that allow family members to enjoy and learn from one another

as we discuss some of the challenges that accompany living with a disability or chronic health condition. These fun activities allow opportunities for insight in a supportive environment. This is an adult/ child activity (for parents, grandparents, caregivers and their children). Children should be six years or older (this includes adult children who still receive daily support from their families). Class size limited to 20 participants. When: 1st & 3rd Mondays: Oct. 3, 17, Nov. 7, 21 and Dec. 5 from 6:15 to 8:15 Where: 2131 Fairview Ave. N., Roseville - the Family Institute in the former school attached to Corpus Christi Cost* $25 per class or $100 for the series *scholarships and/or work study are available Themes & Goals: Oct 3: The art of storytelling. Validate experience and increase self-understanding Oct 17: The Masks We Wear. Self identity—dealing with difference Nov 7: The Games We Play. Building connections— managing unending challenges Nov 21: Gifts of Self and Joy. Personal value to self and others Dec 5: Reaching for the Stars. Dreams & achieving goals

Caring For Caregivers: Reflective Practice For Professionals Professionals who work with people who have ongoing health conditions can have experiences that are profound and moving. These experiences can contribute to personal development and emotional intelligence. However, this does not happen unless one takes the time to reflect on the experience and examine its implications for personal and professional growth. Compassion and empathy in the work of caregiving requires a mindfulness of what we bring to our work and an understanding of how our work transforms us. In order to remain open and responsive as professionals while doing emotionally and physically demanding work, it is necessary that we remain in constant touch with our own experience. As simple as this may sound, when we are overloaded it becomes all too easy to fall into routine, depersonalized patterns of care and to trivialize the need for self-reflection. Creative expression as a form of reflective practice makes it possible to re-vision our lives thus increasing our effectiveness in our jobs and in our personal lives. When: Tuesdays Oct. 11 to Nov. 15, 4:30–6:30 pm Where: 2131 Fairview Ave. N., Roseville - the Family Institute in the former school attached to Corpus Christi Cost: $192

Cont. from p. 19

HealthPartners Hires Karen Dobbins as Senior Director of Diversity and Inclusion

aren Dobbins has joined HealthPartners as senior director of diversity and inclusion. In her new role, she continues to support HealthPartners’ commitment to effectively serve people from all walks of life and helps foster a diverse and well-rounded working environment. Before joining HealthPartners, Dobbins worked in both mid and large-size organizations including US Bank Corporation and Fortis Financial Group where she has served in a variety of senior level positions. She has vast experience in organizational design and development, coaching, consulting and management. Dobbins holds a degree in organizational development and communication from Concordia College. She is a member of several professional organizations including the International Coaching Federation, Society for Human Resource Management and the Minnesota Coaches Association. ■

A GREA T RESOURCE! GREAT

Dir ectAbility.com DirectAbility is a comprehensive, ever-expanding, award-winning, Internet directory devoted to disability-related products, services, resources and information throughout the state. Online at www.directability.com.

Hennepin County News Program Helps People With Disabilities Gain Control, Flexibility If you are eligible for Medical Assistance Home Care and want more control, flexibility and responsibility for your care, there are free information sessions that explain the Consumer Support Grant. Sponsored by Hennepin County’s Human Services and Public Health Department, the information sessions, “Consumer Support Grant,” will answer questions such as “How do I receive funding through this grant?” “What types of services may I buy?” “How do I receive this grant,” and “What is my responsibility?” To attend, you must register. Call 612-596-6631 or go to www.hennepin.us type “adsinfo” in the search box, click on the link and follow directions. When and where? • Tuesday, Sept 6, 12:30 p.m. - 2:30 p.m., ARC HennepinCarver, 4301 Highway 7, Suite 140, Minneapolis. Call 952-920-0855 for directions. • Thursday, Oct. 6, 12:30 p.m. to 2:30 p.m., Brooklyn Park Library, 8600 Zane Ave. N., Brooklyn Park. Call 952847-5325 for directions. • Wednesday, Nov. 16, 10 a.m. - noon, Ridgedale Library, 12601 Ridgedale

Drive, Minnetonka. Call 952847-8800 for directions.

4301 Highway 7, Suite 140, Minneapolis. Call 952-9200855 for directions.

• Tuesday, Dec. 6, 10 a.m. to noon, Brain Injury Associa- • Thursday, Oct. 6,10 a.m. to tion of Minnesota, 34 13th noon, Brooklyn Park LiAve. N.E. Suite B001, Min- brary, 8600 Zane Ave. N., neapolis. Call 612-378-2741 Brooklyn Park. Call 952for directions. 847-5325 for directions. People with Disabilities May Hire Staff under CDCS Waiver

• Wednesday, Nov. 9, 10 a.m. to noon, Eden Prairie Library, 565 Prairie Center Drive, Eden Prairie. Call 952-847-5375 for directions,

People who are disabled, their families and service providers • Monday, Dec. 5,1 p.m. to 3 may want to attend free p.m., Keewaydi Rec Center, information sessions that ex- 3030 E. 53rd St., Minneapoplain Consumer Directed lis. Call 612-370-4956 for Community Supports directions. (CDCS). CDCS allows clients to hire, train and supervise their own staff and write Parents of their own plan. Disabled Children, Spouses of Disabled Adults May Sponsored by Hennepin Benefit from New Service County’s Human Service and Public Health Department, If you are the parent of a the information sessions, disabled child or the spouse of “Consumer Directed Com- a disabled person, you may munity Supports Overview,” want to attend free informawill answer questions such as tion sessions that explain “How do I obtain a service?” Consumer Directed Commu“How is the CDCS waiver nity Supports (CDCS). Since different from traditional Oct. 1, 2004, CDCS allows waivers?” and “How can I use parents of disabled children CDCS?” and spouses of disabled adults to be paid to provide care. To register, call 612-5966631 or go to www. hennepin.us type “adsinfo” Sponsored by Hennepin in the search box, click on the County’s Human Services link and follow directions. and Public Health Department, the information sessions, “Paying Parents of When and where? Minors and Spouses,” will • Tuesday, Sept 6, 10 a.m. to answer questions such as noon, Arc Henuepin-Carvier, County News - cont. on p. 23

September 10, 2005

SPEECH - Cont. from p. 5 berry-McKibbin, a professor at California State University in Fresno, California, 87 million people throughout the U.S.. considered themselves to be of diverse backgrounds, indicating a 43 per cent increase from 1990. Across the United States in the school year 200001, there were 4,584,946 students with Limited English Proficiency enrolled in U.S. public schools. Kohnert and Glaze continue to provide statistics a little closer to home. They note that international immigration in the year 2000 accounted for over one third of Minnesota’s population growth. Between 1990 and 2000, Minnesota’s Latino population grew by 166 per cent. Minneapolis now has the largest population of Somalis outside of Somalia. In the year 2000, 60 per cent of the children in the Minneapolis schools were Latino, African- American, African or Asian; 19 percent of the Minneapolis public school population and 32 per cent of the St. Paul K-12 population were English Language Learners. According to Elizabeth Watkins, State of Minnesota Director of ELL (English Language Learners) and Minority Issues, Division of Special Education, in 1999-2000 there were 4,866 students in Minnesota with Limited English Proficiency (LEP) entering public kindergartens.

some children learning English faster than others? According to Brown (1980), the amount of time that the child spends speaking English with English-speaking peers is the key factor. If children have a poor language foundation in their native language, due to lack of stimulation, English will also be more difficult to learn. The quality of caregiver interactions and socioeconomic status can contribute to children’s ease of English language acquisition. Literacy is easier to acquire in a second language if you are already a reader in your native language. The multicultural speech language pathologist must become a detective and ask questions about how and where the child uses the languages s/he speaks. Speech pathologists will often observe children in their natural environments to see how they are communicating in both languages. We interview adults who know the children well to get a complete view of their communication skills. There may be periods of code switching, or using a combination of languages. Interpreters play a valuable role, too.

Standardized tests are only valid if they are culturally sensitive. Elizabeth Pena discusses the degree of modifiability as another factor in determining language difference or disability. She looks at how easily children can respond to sample language models as a Educational speech/language distinguishing feature. pathologists carefully screen pre-school children for speech A Combination of ESL and language disorders. These Speech /Language Disorders knowledgeable and dedicated professionals confer and co- If there is a language disability ordinate with other team mem- in the first language, it also bers to make sure they do not shows up in the second lanunder identify or over identify guage. Severe disabilities are children who may have speech generally obvious but minor problems beyond ESL. Some disabilities, which may have situations can be very ambigu- major effects on learning and ous. behavior, are more difficult to pinpoint and diagnose in a difWhat factors may account for ferent cultural context.

Hearing impairment interferes with learning English by preventing phonetic acquisition of certain sounds and limiting the ease of vocabulary development. Sound sequencing problems (oral or verbal apraxia) also limit vocabulary development. Often the student doesn’t know how to say a word and misses out on the meaning. Sometimes there are sounds that students avoid because they seem too difficult to learn. There may be cognitive delays or memory problems.

speaking can bring a relapse of speech issues that they thought they had previously resolved. Perhaps with an encouraging referal by a sympathetic supervisor or colleague, they can become ready to tackle their speech challenges. Reframing the assistance in a positive light makes a difference.

Any individual who has speech and language difficulties beyond the usual ESL patterns, whether an adult or a child, would benefit from an evaluation by a bilingual speech lanCarryover of Childhood guage pathologist or a Speech Disabilities in Na- multicultural speech/language tive Language to Later consultant. Having testing Life -Work in English done in both languages, often with an interpreter, and comDue to lack of infra-structure paring the results gives a in war-torn countries, some clearer picture of therapeutic children never received the or training needs. speech therapy they needed. Therapy might not have been Some cultures may interpret available if they lived in a re- speech disabilities as a burden mote village. It’s also possible to bear silently or a stigma that speech improvement of shame. Others associate wasn’t culturally relevant. these differences with evil spirSometimes different cultural its. With the right evaluation views about what constitutes a and therapy or training, people disorder may have prevented with speech disabilities from parents from seeking treatment different cultures don’t have for their children while they to suffer from traditional limiwere growing up. A severe tations. They can have a betstutterer may never have ter quality of life and maintain sought out help because he their cultural integrity. With didn’t want to be perceived as support, they can take control having “mental problems.” and break though their selfimposed limitations. They can Some adults have kept their get the help they need and be verbal communication prob- recognized as valuable conlems in check by carefully con- tributors to their communities. trolling their environments. ■ Hidden speech problems may come out in unusual ways such as avoiding or being overly sensitive about certain situainally, there’s HUGO! tions or listeners. Sometimes The new, state-ofadult workers may not want to the-art, stylish and ertake a promotion for fear it will put them in their worst- gonomically designed rolling walker with a seat gives you case scenario. the freedom, mobility and They painstakingly construct confidence to stay active and their world by avoiding situa- to go anywhere, anytime. tions that contribute to the problem. Social stress, fear of HUGO is ideal for anyone authority figures or public who needs a little help with

Speech/Language Problems Beyond ESL Issues Some of these red flags may be ambiguous and require the careful attention of an experienced professional to sort out. 1. Sounds other than the expected language specific phoneme patterns are misarticulated. 2. Hesitations are natural, but volleys of syllable repetitions or revisions that interfere with the message are not. This may show up at varying levels of the second language proficiency. 3. The silent period lasts much longer than expected. It’s natural for children who first come here not to speak for a while and concentrate on comprehension. Linguist Robert Ellis notes that this averages three months. However, it may last up to a year for a child who is afraid to take even small risks. 4. The usual ESL teaching techniques do not seem to be working. 5. Students are not picking up much on their own, but only learning what is taught in their best modality. 6. Students need many more repetitions and models than their same language peers before they “get it.” 7. Students may show unusual posturing or quivering of the lips or the tongue when trying too hard. This is an indication of apraxia, which is an oral motor sequencing problem. 8. Students may have excess nasality or snorting sounds, (Not just assimilation nasality based on their own language’s system as in Hmong). Snorting sounds might indicate palatal problems.

Got Your HUGO? balance or endurance, or who ver. Additional information might be rehabilitating from about HUGO can be obtained an injury. by telephoning toll free (866) 321-HUGO (1-866-321HUGO is available online at 4846) www.HUGOanywhere.com. HUGO retails for $155.00, half the price of many rolling walkers and is available in bright and bold colors including Pacific Blue and Titanium Sil-

BDC Management Co. is now accepting applications for our waiting lists at the following affordable communities

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Minneapolis Buffalo Minneapolis Hutchinson St. Paul Mahtomedi Minneapolis Eden Prairie Hopkins Minneapolis Minneapolis Brooklyn Center Vadnais Heights Park Rapids

(612) 824-6665 (763) 684-1907 (612) 338-3106 1-800-661-2501 (651) 292-8497 (651) 653-0640 (612) 377-9015 (952) 941-5544 (952) 933-3260 (612) 623-0247 (612) 721-2252 (763) 560-7563 (651) 653-0640 1-888-332-9312

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(Please call each individual site for specific building information. All listings are accessible.)

September 10, 2005

Access To Employment Employment ads are $16-$17 per col. inch. Sept 30 is the deadline for the Oct 10 issue. Mail to: ACCESS PRESS, 1821 University Ave. #104S, St. Paul, MN 55104 FAX 651-644-2136 • E-mail: access@accesspress.org EMPLOYMENT

PCL CONSTRUCTION SERVICES, INC.

AmeriCorps* State programs recruiting now. Learn about service opportunities in your community at www.ameri corps.org, search under “Join AmeriCorps.” Compensation includes stipend, health insurance, and college scholarship.

Humphrey Terminal Expansion Bid Package #1 – Structure/Enclosure MAC Contract No. 120-6-012 • KA Job No. 10036 Bid Date: September 20, 2005, 2:00 PM Local Time Owner – Metropolitan Airport Commission Arch of Record – Miller Dunwiddie, Inc. CM – Kraus-Anderson Construction Co.

Classifieds

Reach 11,000 Active, Interested Readers with ACCESS PRESS Classifieds. $10 up to 12 words, 45¢/word thereafter. Must be prepaid. Mail with check to: ACCESS PRESS, 1821 University Ave W, #104S, St. Paul, MN 55104 • (651) 644-2133

FOR SALE Power Wheelchair for sale: Invacare Pronto M51- never used. Only $3,200. Call Denn at 612-220-6788.

FOR RENT Lewis Park Apartments: Barrier-free housing with wheelchair users in mind. Section 8 subsidized. One- and twobedroom units. For more 1981 Ford motor home with information on availability wheelchair lift sleeps 6, 68,000 call (651) 488-9923. St. Paul, miles and runs great. $5,375 MN. Equal Opportunity Call at 651-731-3610. Housing.

96 WindStar with CrowRiver PCL encourages all Targeted Group Business (TGB’s) Enterprises and W/MBE certified lift, great starter, $3500. Call We are committed to engag- subcontractors and suppliers to submit bids for this project. We also expect that all Majority Kelly or Deborah at 763ing individuals w/o regard to bidding subcontractors expend every good faith effort to achieve maximum TGB participation. 263-1812 disability, gender, race, religion, or sexual orientation. PCL is seeking subcontractor quotes, including but not limited to the following scopes of work: Minnesota Mobility: We earthwork and grading; site utilities; concrete structure; masonry and curtain wall exterior; specialize in affordable wheelsteel & metal penthouse; roofing; sliding entry doors; fluid applied flooring; window washing chair vans. Contact us at 952equipment; boiler and chillers with related piping and electrical rough-in. Please inquire at the 746-1800. Tell number below for information about specific business opportunities. Potential Wheelchair Van: 1994 Chevy, Employees about Bid Documents are available for inspection at the offices of the Metropolitan Airports newer wheelchair lift, 98,000 your company! Commission, Miller Dunwid-die Inc., Construction Market Data, Minneapolis Builders miles, $5000 negotiable. Call Exchange, St. Paul Builders Exchange, FW Dodge, the N.A.M.C., and PCL’s Burnsville Bill at 651-633-1780 Office. Put Your Ad

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PCL Construction Services, Inc. 12200 Nicollet Ave South, Burnsville, MN 55337 Phone: 952-882-9600 • Fax: 952-882-9900

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he Vocational Rehabili tation program in the Rehabilitation Services section of the Department of Employment and Economic Development is considering amendments to the State Rule on vocational rehabilitation services. A copy of the Dual Notice of Intent To Adopt Rules, the Statement of Need and Reasonableness and a copy of the amendments under consideration are available at www.deed.state.mn.us/rehab/rehab.htm or www.access press.org

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Holmes-Greenway Housing: One- and two-bedroom apartments designed for physically handicapped persons. Convenient SE Minneapolis location. Call (612) 378-0331 for availability information. Equal Opportunity Housing.

Seward Square Apartments: We are currently accepting applications for our waiting list for barrier-free housing, in Minneapolis, that is federally subsidized. For an applicaPROPERTY FOR SALE tion, please call (612) 338Wheelchair accessable Ranch 2680. Equal Opportunity stylehome in Lino Lakes. Open Housing. floor plan, roll-in shower, large MISCELLANEOUS deck, wheelchair lift to finSend Out Greeting Cards ished walkout basement. from home using your com$359,900. MLS # 3071400. Conputer. Make someone tact: Pat Trow The MLS Direct smile…Send a card today! Real Estate Group: 952-935www.jansfree card4u.com 7103

Access for Success Lexington Outreach Library, at 1080 University Avenue, offers these assistive technologies to persons with vision and mobility challenges:

JAWS ® screen reader Kurzweil ®1000 scan and read

MAGic Pro® screen magnification

Trackball mouse Camera mouse Hydraulic table Dragon NaturallySpeaking® speech recognition

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September 10, 2005

make-up. Even people who juggle are being sought! Employee groups are welcome as volunteers for this major fund-raising event. Orientation and costume try-on sessions begin in September, so now is time to inquire! For details and registration materials call the Como volunteer Services office at 651-487-8247 or go on line at comozooconservatory.org. ■

COUNTY NEWS - Cont. from p. 20 “What are the pros and cons of using this service?” “Will I need to provide most of the hands-on assistance?” To register, call 612-5966631 or go to www. hennepin.us type “adsinfo” in the search box, click on the link and follow directions. When and where? •Wednesday, Sept 21,6:30 p.m. to 8:30 p.m. Eden Prairie Library, 565 Prairie Center Drive, Eden Prairie. Call 952-847-5375 for directions. •Wednesday, Oct 19,12:30 p.m. to 2:30 p.m., Eden Prairie Library, 565 Prairie Center Drive, Eden Prairie. Call 952-847-5375 for directions. •Friday, Nov. 18,6:30 p.m. to 8:30 p.m, Coyle Community Center, 420 15th Ave. S., Minneapolis. Call 612-3385282 for directions. •Thursday, Dec. 15,12:30 p.m. to 2:30 p.m., Brookdale Library, 6125 Shingle Creek Parkway, Brooklyn Center, Call 952-847-5600 for directions.

•Monday, Sept 12,12:30 p.m. 2:30 p.m., Ridgedale Library, 12601 Ridgedale Drive, Minnetonka. Call 952-847People who are developmen- 8800 for directions. tally disabled, their families and sjervice providers may •Thursday, Sept 29,12:30 want to attend firee informa- p.m. - 2:30 p.m.. Maple tion sessions that explain Grove Library, 8351 Elm services and program for Creek Blvd. N,, Maple people enrolled in the Mental Grove. Call 952-847-5550 Retardation/Related Condi- for directions. tions (MR/RC) waiver. •Tuesday, Oct 4,10 a.m. Sponsored by Hennepin noon. Brain Injury AssociaCounty’s Human Services tion of Minnesota, 34 13th and Public Health Depart- Ave. N.E., Suite B001, ment, the information ses- Minneapolis, Call 612-378sions, “Traditional MR/RC 274) for directions. Waiver Services Overview,” will answer questions such as •Wednesday, Oct 12, 6:30 “What services are provided p.m. - 8:30 p.m., Ridgedale by licensed or traditional Library, 12601 Ridgedale service providers?” and “What Drive, Minnetonka. Call 952is the MR/RC waiver and will 847-3800 for directions. it help me?” •Tuesday, Oct 25,12:30 p.m. To register, call 612-596- - 2:30 p.m., Brookdale 6631 or go to www.hennepin. Library, 6125 Shingle Creek us and type “adsinfo” in the Parkway, Brooklyn Center. Call 952-847-5600 for disearch box. rections. When and where? •Tuesday, Nov. 1,6:30 p.m, •Thursday, Sept 1,6:30 p.m. - 8:30 p.m., Sonthdale Li8:30 p.m., Southdale Li- brary, 7001 York Ave. S., brary, 7001 York Ave, S., Edina Call 952-847-5900 Edina. Call 952-847-5900 for directions. for directions. •Tuesday, Nov. 29,12:30 p.m. - 2:30 p.m., Maple Grove Waiver for Mental Retardation/Related Conditions Explained

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Not all of the children with ADD need to be medicated, though; some of these children are helped with medication. In general, all children need to learn organizational skills and need a place that does not over-stimulate them. Children with ADD need to do important things in a non-distracting environment, and sometimes, having the parent, teacher and student working together on getting the child a buddy to study with, a quiet place to take a test, so they will be less distracted, and a regular routine often helps many of these children. Access Press: If there is a discrepancy on administering the prescription of this drug, to what degree does the responsibility of screening and evaluating the child/patient to determine if they need it belong to: 1. the patient (the child) 2. the parent 3. the school 4. the physician Dr. Genheimer: Most teachers are pretty savvy on picking out a student with ADD. The parent of a child with ADD

takes on a lot of responsibility. I often have the teacher and parent had set up an e-mail chat room to discuss the student’s progress and the things needed from the student. This helps the teacher and the parent understand the expectations of the student, which thereby helps keep the student on task.

early childhood and was not diagnosed. In my experience, if an adult self-refers, he or she is often displaying depression symptoms not related to ADD.

Access Press: Understanding that medication is only one aspect of recovery, what other support efforts can the parents, teachers, and physician do to help patients become Physicians need to evaluate successful in school? the patient with ADD and talk to the parents about the out- Dr. Genheimer: Medication, comes and possible progress if prescribed correctly, can be in the treatment of their child. useful in the treatment of ADD. The hyperactive component First the individual needs a tends to improve first in chil- thorough evaluation, espedren with ADD, but half or cially to rule out other medical more who continue to have conditions that may resemble ADD at age 10 will have symp- ADD. Sometimes medication toms in early adulthood. Some failure is due to lack of commuof these will continue to have nication between patient and results with medication in doctor (and sometimes school) adulthood. The doctor, patient and family should be clear about exactly Access Press: Are ADD which symptoms they expect symptoms different in kids the medication to treat. Patients versus adults? should inform the doctor if there are side effects or if the medicaDr. Genheimer: Physicians tion does not seem to be workare often hesitant to adminis- ing. The patient’s attitude ter these drugs to adults be- therapy, community support, cause of the risk of abuse. ADD and coaching are all important however, does not start in parts of treatment. ■ adults. It most likely started in

Library, 8351 Elm Creek Blvd. N., Maple Grove, Call 952847-5550 for directions. Call 952-847-5550 for directions. • Thursday, Dec. 1,6:30 p.m. 8:30 p.m., Soutbdale Library, 7001 York Ave. S., Edina. Call 952-847-5900 for directions. • Monday, Dec. 12,12:30 p.m. 2:30 p.m., Ridgedale Library, 12601 Ridgedale Drive, Minnetonka, Call 952-8478800 for directions. • Monday, Dec. 19,12:30 p.m. 2:30 p.m, Maple Grove Library, 8351 Elm Creek Blvd. N., Maple Grove. Call 952847-5550 for directions, Call 952-847-5550 for directions. ■

Read er s Lead eader ers

omo Park is seeking 750 volunteers to help with the annual non scary Zoo Boo Halloween event. Volunteers who can work from 3:30 - 8:30pm Oct 22, 23, 28, 29 or 30 are sought to don costumes, greet and entertain small children, and pass out treats. Help is also needed with behind the scenes tasks including distributing supplies, helping in the shuttle stop areas, setting up props, or applying simple

RITALIN - Cont. from p. 4

Leader s R ead Leaders

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Don't Miss An Issue! Subscribe Today! $25 Buys A Full Year (12 Issues) Of ACCESS PRESS Name ____________________________________________ Street _______________________ City ________________ State ____ Zip _________ Telephone _______________ Limited income subscription: $10 I have an idea for editorial coverage. Please call me. I’ve enclosed my check for $25. Start my subscription. Send your advertising rates. ACCESS PRESS • 1821 University Ave. W. • #104S St. Paul, MN 55104 • Phone: (651) 644-2133 • Fax: (651) 644-2136 e-mail: access@accesspress.org

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