August 2007 Edition - Access Press

www.accesspress.org History Note

Inside

“If thought corrupts language, language can also corrupt thought.”

■ ALS and Service Dogs—p. 3 ■ Crime and Vulnerability—p. 3 & 8 ■ Linguistically Disabled?—p. 11

— George Orwell Page 2 Nonprofit Org. U.S. Postage PAID Mpls. MN Permit No. 4766

Volume 18, Number 8

Minnesota’s Disability

Community Newspaper

August 10, 2007

Family Of Deceased Disabled Veteran Losing Their Home

by Clarence Schadegg abled veterans compensation and social security retirement benefits, on which the family relied. It was weeks before Cher Fields received war widow’s compensation. That compensation was about onethird of their previous income, although her housing costs Although John was a combat- have not changed. disabled veteran who succumbed to combat-related in- “We’ll have to move. We don’t jury, the VA has refused ap- know where we’ll live yet. We proval of his claim for Dis- don’t know where we’ll go,” abled Veterans life insurance, said Cher, whose 21-year-old benefits which would have daughter Sunny and 23-yeareased the family’s transition, old son Jesse also share the allowing his widow time home, where they have lived needed to mourn and find em- for ten years and where John ployment. died. She questions the morality behind the actions of the To make matters worse, when VA and financial institutions Fields died, the government that make life so stressful for immediately cut off his dis- the families of veterans, who ary 15, 2007, Field’s widow has had to contend with the slow moving bureaucracy of the Veterans Administration (VA), high medical bills, burial costs, and monthly mortgage payments on their house, which is now in foreclosure.

The lated John Fields, disabled Vietnam veteran whose sidow and children are now losing their home.

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arely six months after veteran John Fields died of war-related injuries, his house is being foreclosed and his widow and family have to move. “This will be the last gathering at our house,” said Cher Fields, widow of Vietnam War veteran John Fields, as friends came together to honor her

husband’s memory following the “unveiling” of his headstone.

John Fields had lived for many years with war-related mental and physical disabilities, dying of cancer brought on by his exposure to Agent Orange during his tour of duty in Vietnam. Since his death on Janu-

fought to protect us from a system like the one that would turn the Fields out of their own home.

“Is this any way for our government to treat the families of deceased veterans who honorably and proudly served their country?” she asked.

John Fields believed his responsibility to country did not end when he left the military; it was then that a greater responsibility began. He dedicated his life to helping other veterans; some veterans who didn’t even know him have benefited from his work. Together with Cher, John had helped start veteran rap groups and twelve step programs for veterans struggling with PTSD and chemical dependency.

They also started a veterans peace organization and for some years operated a walk-in center for veterans and their families in transition (aka “homeless”). John died before he saw the full blossom of his work.

At the cemetery on the morning of July 15th, exactly six months after the death of John Fields, a diverse group of disabled and non-disabled veterans and civilians came together to unveil the headstone placed at John’s grave as is the Jewish tradition. A psalm was read, after which those gathered placed pebbles, symbols of the endurance of memory, by the Veteran - cont. on p. 15 headstone.

Offense Taken Locals Speaks Out About the Word ‘Retard’

by Sherry Gray and Bret Hesla “What should be done with the “R” word?” That was the question at a public meeting last month, when more than 100 people from Minnesota’s disability community gathered to address the insulting use of the word retarded in today’s popular culture and media. The July 25th meeting, organized

by Advocating Change Together (ACT), was part of a coordinated response to the controversial title of the Minneapolis-based Brave New Workshop’s recent show, “Rise of the Celebretards.”

About half of those attending were people with developmental disabilities who have had direct experiences with the derogatory term. Others present included parents, siblings and representatives of local nonprofit advocacy groups and service providers. BNW declined to participate.

The forum, held at the Interact Center in downtown Minneapolis, opened with a slide show streaming controversial images showing how the word “retard” is and has been widely used as a slur in popular culture. Interact members followed with a brief performance highlighting how such images and language translate into limitations placed on persons with disabilities by the broader society.

fend persons with disabilities, their family members and friends. These portrayals also lead to justification for limiting people’s full participation in the life of the community.

Participants called for a broader campaign to combat negative references in popular culture and ended the forum by proposing some next steps to take in initiating this campaign, including the possible Lauretta Dawolo, news direc- launch of a disability anti-defator of KFAI Radio, moderated mation league. the lively discussion that followed. Most speakers took a Origins of the Controversy strong stand against the slang The public meeting was the use of the “R” word, while some result of several months of acparticipants spoke about the tivity, and one step on a longer backlash that can result when journey. The offensive title heavy-handed attempts to ban struck a chord even before the certain speech alienate the first performance in May. Startlarger society. The general con- ing in April, disability activists sensus of the group was that the and members of the commuthoughtless use of certain terms nity wrote letters, sent e-mails, and images do more than of- and made phone calls to BNW

protesting the title of their upcoming show. Though BNW refused to change the title, the volume of protest was not lost on local organizers, who began to discuss coordinated action.

In May organizers took their protest to the wider community by contacting the local media and posting messages on Web forums around North America.

At the 2007 Minnesota SelfAdvocacy Conference, a group wrote a song of protest. These activities resulted in so many messages of protest that BNW created an online forum to handle discussion (but did not meet with protestors as they had requested). The outrage further inspired local newspapers columnists to criticize the show title.

In June, local activists concerned that the BNW’s show title reflected an alarming trend in popular culture formed an ad

Manny Stienman voiced his concerns at the recent forum on the word “retard.”

20, Peggy Mehen, a member of Interact Theater, and Kelly Lee, an ACT board member, interviewed people attending the “Rise of the Celebretards” show. They asked more than fifteen theater-goers their views about the word “retard.”

Jerry Smith of the Institute on Community Integration (ICI) at the University of Minnesota Ask the Audience Standing outside the doors of filmed the spontaneous interthe Brave New Workshop the- views, with the assistance of ater on Friday evening, July Offense Taken - cont. on p. 11

hoc group of individuals and organizations to develop a coordinated response. Led by ACT, the ad hoc group organized a set of activities in July that included seeking the views of the local community, organizing a public forum, and producing an educational video.

August 10, 2007

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parent reason (that our state government has admitted to), the 35W bridge crossing the Mississippi River fell to its death, carrying with it uncounted people and their vehicles into the river. This is yet another reminder of how quickly our world can change.

It should also remind us of how important it is to live in the moment and to cherish each moment; a disaster could be just over the next bridge. A friend told me that he was only a few cars away from being on the bridge when it collapsed.

He was on his way to have dinner with family and says he now has a whole new appreciation for family and the time t has been a month for that he can spend with them. reflection. From out of We get frequent reminders to the blue, and for no ap- appreciate our family, friends

Tim Benjamin, Editor

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and all those people with whom we share our lives. This was a tragic one. We extend our deepest condolences to all the families and loved ones of those who were torn away in this sudden and shocking way.

Marcelo Cruz, a man who has had paraplegia for the past seven years, was in his van on that bridge and experienced (as reality) the nightmare that many of us have had: of being caught in our vehicle, in a potential catastrophe, without any way to get out. Cruz, thinking quickly, drove his vehicle into a concrete barrier, and it kept him from heading directly into the Mississippi River. With the help of a few other victims of this calamity, Cruz was brought to safety. Our deepest

History Note

Wolf Wolfensberger: Hero Of Deinstitutionalization by the Access Press Staff

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olf Wolfensberger, a German born United States immigrant, received a Ph D. in psychology at (what is now) Vanderbilt University, with a concentration in “mental retardation.” Since 1973, he has been a professor at the School for Education at Syracuse University. Wolfensberger continues to be an advocate of people with developmental disabilities, and his numerous accomplishments include the creation of programs designed to deinstitutionalize this population, as well as being credited with the term “Citizen Advocacy.” His teachings focused around deinstitutionalization are numerous and

comprise such topics as Social Role Valorization, which tries to explain—and, more importantly, counteract—how certain individuals become “socially devalued” (because of conditions such as old age or disability); and Normalization, a theory built around the tenet that individuals will behave “normally” when put into “normal” settings. In addition, Wolfensberger is deeply invested in child assessment, which necessitates working closely with families as they map out their disabled child’s future, especially as it pertains to education. He remains a staunch supporter of people with disabilities having the potential and the right to live

thanks to all the heroes that pulled Cruz and many children and adults to safety while risking their own lives.

A lot of news lately seems to center around debates about language that is hurtful. Often those accused of using such language reply that their use of offensive words is “in jest” and only meant as a joke. But for many, there is nothing funny about the derogatory, hurtful words that our society seems to have begun using much more frequently and that seem to slip off our tongues fairly easily. We recently even had an article submitted to us about the use of particular words, in which the person who was talking about how hard it is to hear certain words

in turn called the people who used these words an offensive name. The less we use offensive or emotionally charged words, the less likely we are to have to hear these words from others. However, read the article in this issue, “Are We Linguistically Disabled?”

What do you think? Do you agree with Mark Aronoff that sensitive language is “disabled” language?

stories! Share your first week of school with us! Send your articles and stories to access@accesspress.org, and we will do our best to print them. Let teachers know about Access Press, and the “Young Writers Corner.”

We want to thank all the volunteer writers and financial contributors to Access Press for their continued help throughout this year. Also, We would like to start a we want to thank UCare “Young Writers Corner.” And Minnesota for sponsoring with the school year starting, this month’s issue. many of you, your children or friends will be heading back Hope you all have a good into the classroom. We want time at the State Fair. Look young people to consider, for Access Press in the Eduwhen doing their writing cation Building in the State homework, to write something Council on Disability’s for Access Press. Share your booth! ■

Letters To The Editor ... ity, visualize your own success and further develop one talent that you possess. Utilize your skills to create your own America was built by self-reli- independence. ant, independent individuals who had the tenacity to over- Activities that yield a measurcome any challenge. We, as able result are most desirable people with disabilities, need and inherently good. Two exto focus on the positive as- amples are washing dishes and pects of our lives. We all have growing a small tomato plant. talents in need of further de- You can experience these acvelopment. With fierce tenac- tivities by seeing clean dishes,

Discover Your Pioneer Spirit

touching the growing plant, tasting your tomatoes— even hearing water washing over the dishes. Get involved, create something, do something!

Your pioneering efforts will create an unparalleled feeling of self-satisfaction and tremendous accomplishment.

Sean Fogarty Cologne, MN ■

Correction Wolf Wolfensberger lives within, not outside of, society as a whole. ■ [Source: Museum of diABILITY History, www. museumofdisability.org]

Access Press Co-Founder/Publisher (1990-1996) .................................................. Wm. A. Smith, Jr. Co-Founder/Publisher/Editor-in-Chief (1990-2001) ....................... Charles F. Smith Board of Directors .............. Brigid Alseth, JoAnn Cardenas Enos, Mike Chevrette, Kelly Matter, Anita Schermer, Tom Squire, Carol Streasick & Kay Willshire Editor ......................................................................................................... Tim Benjamin Assistant Editor .............................................................................................. Bret Hesla Office Assistant ........................................................................................... Jordan Selbo Cartoonist ..................................................................................................... Scott Adams Sales/Marketing ...................................................................................... Lance Hegland Production ...................................................... Ellen Houghton at Presentation Images Webmaster ...................................................................................................... Alice Oden Distribution ......................................................................................... S. C. Distribution Access Press is a monthly tabloid newspaper published for persons with disabilities by Access Press, Ltd. Circulation is 10,000, distributed the 10th of each month through more than 200 locations statewide. Approximately 650 copies are mailed directly to individuals, including political, business, institutional and civic leaders. Subscriptions are available for $30/yr. Low-income, student and bulk subscriptions are available at discounted rates.

Editorial submissions and news releases on topics of interest to persons with disabilities, or persons serving those with disabilities, are welcomed. We reserve the right to edit all submissions. Editorial material does not necessarily reflect the view of the editor/publisher of Access Press.

Paid advertising is available at rates ranging from $12 to $28 per column inch, depending on size and frequency of run. Classified ads are $13, plus 60 cents per word over 12 words.

Advertising and editorial deadlines are the last day of the month preceding publication, except for employment ads, which are due by the 25th.

Inquiries should be directed to: Access Press • 1821 University Ave. W. • Suite 104S St. Paul, Minnesota 55104 • 651-644-2133 • Fax 651-644-2136 E-mail: access@accesspress.org • Web site: www.accesspress.org

Mark Olson of the National Alliance of Direct Support Professionals wrote in to correct an error in the article, “Court Underestimates Value of Direct Support: Long Island Care at Home vs. Coke: a Bad Decision and a Call to Action” by Kathleen Hagen (July 10, 2007). The article mentioned that NADSP had worked with the Department of Labor to include “Direct Support Professional” as a job title in its

Dictionary of Occupational Titles. The title included was actually “Direct Support Specialist.”

Olson further commented, “The National Alliance along with our allies worked to get the title of ‘Direct Support Professional’ in the DOT. While I wish that we could have used our preferred title, the Department of Labor codification of ‘Direct Support Specialist’ does give us a com-

mon term we can use to describe all who provide direct support. I also encourage Direct Support Professionals to connect with our organization, embrace our code of ethics, explore our credentialing program and join us in changing how the nation views the work we do. When we show our professionalism en masse we can collectively ask the Department of Labor to make a change.” ■

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August 10, 2007

One Joy Scatters A Hundred Griefs

Are We More Vulnerable To Assualt?

by Laurie Eckblad Anderson

The Community Speaks Out

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hen you live with ALS (amyotrophic lateral sclerosis or Lou Gehrig’s Disease), you work through a steady stream of losses—in mobility, independence and privacy.

Each person with ALS (abbreviated PALS) finds a way to cope—with the help of The ALS Association, specialty clinic staff, and family and friends. However, very few can cope the way Kathy Hult does—with a service dog named Joy.

about 75 standard commands.

For two years, she attended a weekly class and had daily homework to complete with her trainers. Joy proved she had the right stuff, both in her temperament and physically, so in mid-2002 she was ready Kathy Hult, with Joy, one of to be paired with the right per- the few service dogs working son. for people with ALS. Months after her application and the subsequent screenings, Hult was introduced to various dogs. Each time, the Help-

Walk to D’Feat ALS

Though service dogs are increasingly used to assist people On Saturday, September 29, with other disabilities, they are the 7th annual Minneapolis a rarity for PALS. One reason Walk to D’Feet ALS will take is that ALS, which is degen- place at Lake Harriet. The erative and fatal, often goal of the Walk is to raise progresses quickly. In just a awareness of Lou Gehrig’s few years or even months, the Disease and raise money for disease can move through the national research and patient body, killing the motor neu- services provided by The rons essential for limb move- ALS Association, MN Chapment, speech, swallowing and ter. For more info, visit ultimately breathing. My fa- www.alsmn.org ther died of ALS about three years after his diagnosis. ing Paws staff was watching carefully for a good match.

Hult’s ALS is progressing There are no forced placemore slowly. She was diag- ments; the match must be right nosed in February of 1999. for the person and the dog.

Three years later, it became Hult, a lifelong dog lover, was clear that she might be a good looking for a dog with spunk. candidate for a service dog. When she first met Joy, she Another factor in her favor found the dog a bit passive and was that ALS was not affect- even “boring,” even though ing her voice. This is critical Joy performed all of her comas her dog is trained to re- mands very well. spond to voice commands. If ALS eventually affects her However, the three observing voice to the point where ver- instructors, with their combal commands are impossible, bined years of experience, Hult feels that her long rela- were sure it was a match. In tionship with Joy will make it their eyes, Joy had instantly possible for them to carry on picked Hult and showed it by together. Joy knows Hult’s performing nearly flawlessly. routine well and is very tuned Hult became a believer in the in to her. three months between their initial meeting and the day she Joy Is Aptly Named brought Joy home for good.

Before Hult even applied for a Joy’s skills were fine-tuned to service dog through Helping Hult’s needs (an ongoing proPaws in Hopkins, a black lab – cess), and they went through a aptly named Joy – was in her three-week class together befoster home. While there, Joy fore graduation. And, as one was being properly socialized who has seen Joy in action, the and doing her job of learning spunk is there.

In the May edition of Access Press, Clarence Schadegg wrote a short letter about his experiences with being assaulted, asking whether others with disabilities feel more vulnerable to assault because of their disability. Below are some of the responses we’ve received. We welcome further The Difference a Dog Makes responses. (Also see related In many homes, the people article, Breaking the Silence, serve the dog. Here it works on page 8.) the other way around. Joy picks up things that Hult needs or Real Courage has dropped. The dog is also a Good for you! I feel that way “walking step stool” who can too! If anyone ever attacks me help Hult get up off the floor again, I won’t make it easy on (after a fall or otherwise). Joy them. To me, any defense, can pull off Hult’s coat or socks and anything that can be used and performs many other tasks. as a weapon, is fair. When my Joy even presses the wall but- sister worked her way up to ton to open the automatic door crutches, I made sure she was in Hult’s building with flair. aware that a crutch makes a damned fine club, as does a When asked what else Joy cane. I have also learned some brings to their life together, very easy but painful (to an Hult has much to say. Though attacker) moves.

Hult is very upbeat and outgoing, she says that Joy is there Admittedly, not everyone can when she needs a push to get fight, but we can all resist. out in the world. Joy also pro- These thugs don’t know what vides the very important feel- real courage is. It’s not ing of safety. If needed, Joy ganging up on someone who can seek assistance for Hult, has trouble walking more than both at home and outside of twenty yards. It’s getting on the home. When the two re- your feet and walking those cently took an Alaskan cruise, twenty yards. It’s being disJoy made going through air- abled and refusing to let it deport security easier, and also stroy you. It’s knowing that charmed everyone on the ship. you’re a target for assault and Joy makes people smile and going out and facing the world helps people approach Hult in anyway. It’s looking at one or public. Hult feels that she and more of these jerks and refusher dog are ambassadors, help- ing to let them intimidate you. ing people learn about ALS It’s courage they’ll never posand service dogs. Most impor- sess themselves. tantly, Hult proclaims that Joy Thomas St. James, is her closest relationship, and Minneapolis that they have a spiritual and emotional connection.

Rather Safe Than Sorry My name is Gloria Stienbring Challenges and I have a few disabilities, With all of the positives that like being a slow learner and Joy provides, Hult does worry arthritis. I used to feel safe about what would happen if going into the community by either she or Joy were to get myself: but no more. Things sick or injured. Being proac- change. I even hear shot guns tive by having an organized in the neighborhood, espesupport network of friends cially at night. I don’t feel safe going out in the daylight or at ALS - cont. on p. 6

IS YOUR PAY IN PREHISTORIC TIMES?

night by myself. I always have someone with me. I like Metro Mobility because I feel safe when they take me places.

I think I would feel the same way whether I had a disability or not, but it’s worse with a disability. I can’t drive, so that makes it hard to get around, too.

Keeping myself safe is my number one priority, even if it means not going everywhere I want to go. I would rather be safe than sorry.

Gloria Steinbring, Minneapolis

showed up on the house. And as the years went by, I got assaulted and attacked, fires were set to the house, and several times some vandals stole “Handicap” city signs and threw them on the front steps of my house. All those years of being called “stupid” or “mentally retarded” or “oddball” or “walk funny.” I become a homeowner and sharks are there. In 2003 some idiot wrote “Die Bitch Scary Mary” on my garage door. And on May 4th, the Minnesota Daily referred to me as

Meeting Planned Everyone is invited—and encouraged—to attend a community meeting at Advocating Change Together to think together about possible collective action to address safety issues of people with disabilities. Wednesday August 22nd at 1 p.m. 1821 University Ave. West, Suite 306S. Call ACT for more information, 651-641-0297.

I Tell My Story I get teased a lot when I’m out in the community. Some kids tease me and say nasty things because I don’t talk plain and I walk funny. I don’t feel comfortable when this happens. I just usually walk away with my head up, but not too high. I try to remember that I’m a good person and not pay attention to what they are saying. Minneapolis’s token crazy lady.

The author claimed when she I go to schools and talk to the was growing up in my neighkids about my life—how I was borhood she heard kids call me brought up in a state institu- “crazy,” “scary,” etc, and out tion and the hard times in my of jest she thought it was OK to life. I tell them about the good include this in the article. times too. After the kids get to know me, they say “Hi” and Are those words on the garage talk to me and don’t tease me door, and the taunts I’ve lived anymore. That makes me feel with all my life, not called hate good. I’m going to another crimes? school to give a talk next week. Mari Newman, Minneapolis It takes guts and courage, but I don’t mind doing it.

Now I’m More Discreet Larry Lubbers, West St. Paul Sometimes my disabilities can be invisible to strangers. For Aren’t These Hate Crimes? example, I received a mild Things got real bad since I was head injury in 1982. On a good in grade school. I had mental day people generally don’t and physical disabilities, and notice my brain injury. Howall through school kids were ever, at times I’m more forgetbrutal. As I grew into adult- ful or confused, so my disabilhood, it was not uncommon to ity is more apparent. Also, get taunts on the way I walked, when it’s windy weather my etc. I stayed with my parents, bangs blow around, so my foreand we were never vandalized. head scar shows.

But in 1988 I got my parents’ home on contract for deed. When I choose to tell people Within months, the egg scars Vulnerable - cont. on p. 15

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August 10, 2007

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August 10, 2007

Openly ‘Insane’ Journalist ‘Comes Out’

Never Leave A Man Behind

by Chuck Campbell

by Pete Feigal

I Plead Insantity!

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m I crazy, or is it strange that Anoka County will pay for me to live in Group Residential Housing with a gay male roommate but not with a female? If they’re trying to prevent sexual contact why don’t they prohibit gay men from rooming together? Is this reverse discrimination?

Sasha is an openly gay man with disabilities. That’s cool.

In fact, through Sasha, the hand of providence reached out and slapped me upside the head.

Admitting insanity allows me to ask for reasonable accommodation under ADA. For instance: Now that I’m sober, I can virtually guarantee that if I land an interview for any job I really want, I’ll go manic, which will trigger my insomnia. Therefore, I may not present as well as job candidates who have slept during the preceding week and aren’t having a panic attack right before your eyes. Admitting I’m mentally ill may be better than being perceived as a practicing meth addict.

Homosexuality used to carry more stigma than it does today. I attribute this to people like Sasha who had the courage to step out of the closet and declare “I’m gay!� regardless of the consequences. Sasha isn’t the first gay man to come out of the closet, just the first I’ve had as a roommate.

Being openly insane also liberates me to admit my failure to comprehend many of the thoughts and deeds of the sane.

Before I proceed, I should insert this disclaimer: The following is the demented rambling of an addled mind, and should not be taken to represent the opinion of Access Press, or of anyone else with a This isn’t the first mental ill- shred of lucidity. ness article I’ve published in Access Press either; there was Sane logic often eludes me. I Prisons: Are They the New don’t get why billionaire ownState Hospitals? in October of ers of sports franchises deserve ’05 and Mentally Ill and government assistance more Homeless in March of ’06. This than people with disabilities. A is, however, the article in which stadium is a place of business I come out and admit I’m crazy. for a team owner, and when those guys threaten to move I’ve got a dual diagnosis— they often get taxpayer assisted mentally ill and chemically financing. My friend Tim told dependant. I’ve got Post Trau- me that when he was paralyzed matic Stress Disorder (PTSD), after his accident, the Social which is an anxiety disorder, Security Administration at first Bi-Polar Disorder (f/k/a Manic rejected his disability claim. Do Depression), and a sleep dis- sane people think those who order. I’ve also got a tendency can move deserve help more to drink myself comatose, since than those who can’t? alcohol is the most effective anti-anxiety/insomnia medica- National health insurance has tion of which I know. been called “socialized medicine.� Right now the governFor prompt temporary relief ment insures many poor, old of anxiety and sleeplessness, and sick people (me included) try alcohol! Many patients through Medicare, Medicaid, have reported feeling virtually medical assistance, etc. It’s indestructible and passing out guaranteed to lose money inafter just a few dozen drinks. suring us. I’m just too nuts to Ask your doctor if alcohol is fathom how also insuring those right for you! (Sarcasm, of healthy and wealthy enough to course.) be profitable customers would

cause a tax increase that wouldn’t be offset by the elimination of health insurance premiums. If I was sane enough to earn seven figures as CEO of a non-profit HMO I’m sure I’d understand.

[The following are excerpts from Pete Feigal’s keynote speech from the Mental Health Parity fundraising event June 15th, 2007 in Philadelphia. Rep. Patrick Kennedy and Martin Minnesota’s governor added Sheen were the guests of a “health impact user fee,� to honor, with Sen. Ted Kennedy the price of cigarettes. I don’t participating by videophone.] know anyone sane enough to hank you for the honor understand the difference beof spending this time tween that and a tax. I’ve got with you. I’m not a psyone friend who makes too much money working at a fast- chiatrist or psychologist; all food restaurant to qualify for my degrees are “honorary.� medical assistance. Since the But I am a mental health pronew “fee� is supposed to cover fessional as I’ve personally smokers’ health costs, she battled mental illness for 35 wrote the governor asking years. Technically, with the where to sign up for her free speaking I do around the counsmokers’ health insurance. try, I am a mental health ambassador or spokesperson.

She’s a little nutty too.

Personally, I like to think of Speaking of taxes, I’ve heard myself as a kind of “mental that if you laid all the world’s health male centerfold.â€? But economists end to end they’d in reality, I guess what I’ve never reach a conclusion, but become is a Professional Menone thing they agree on is that tally Ill Person. the U.S. economy is 60-70% consumer driven. Call me A few years ago I had the crazy, but wouldn’t tax cuts chance to speak to the goverfor the most efficient consum- nor of Minnesota, who shall ers be the best way to stimu- remain nameless ‌ Jesse “The Bodyâ€? Ventura. Governor late the economy?

Ventura had just said some I worked for nearly 30 years and “uneducatedâ€? things to the I’ve got nothing to show for it, media about people with menso I’m 100% efficient as a con- tal illness, so I reminded him sumer! Other than the thousand about the NAVY Seals. Govdollars I once spent on a Mexi- ernor Ventura is justifiably can vacation, every penny I ever proud of his connection to the earned was spent in America, Navy SEALS. where it was taxed virtually evThe SEALs’ greatest point of ery time it changed hands. pride is not their combat abiliI need a job to help stimulate ties or toughness but that they America’s economy! It might never leave a wounded or also help me get a place where killed comrade behind. HavI can have female company (if ing the confidence that they I can find one who’s willing) will not be abandoned, that and enjoy a cigarette indoors they will somehow make it next winter now that the Min- home, is one of the keys to nesota legislature has estab- why the SEALs perform with lished a causal relationship such distinction and bravery. between smoking and frost- The SEALs have learned the bite. So remember Crazy greatest, almost paradoxical, Charlie’s Discount Journalism, secret of valor: that you fight where our prices aren’t all hardest for each other, that you must never forget or be unthat’s openly insane! â–

5

worthy of each other, that the bond that truly unites people is not toughness or a common foe, but love.

have depression, a disease of the brain that makes me feel despair, and alone and afraid.

But when I compare the two, it’s not even close. My MS is a I have multiple sclerosis (MS), piece of cake. Going blind is a disease of the central ner- tough, but not unbearable. vous system that is destroying my body—crippling my legs Mental illness is hard. People and blinding my eyes. And I Leave Behind - cont. on p. 10

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August 10, 2007

‘Road To Freedom’ Bus Arrives

Upcoming Events

Traveling Exhibit Highlights Struggle for Disability Rights

To list an event, e-mail access@accesspress.org

by Pam Carlson

M

innesotans will have two chances to see the Road to Freedom Bus Tour this month.

The traveling exhibit, a yearlong, cross-country educational and promotional bus tour to inform and inspire America about the compelling history of disability rights, will stop first in downtown Minneapolis on Friday, August 17, from 10 a.m. to 2 p.m. The bus will be parked between the Mill City Museum and the Guthrie Theater at 704 South Second St., Minneapolis. The next day, the bus will travel to St. Peter, Minnesota (see ad). The exhibit will be on display from 11 a.m. – 1 p.m. at Minnesota Square Park. A Remembering with Dignity dedication of 430 newly named grave markers at the St. Peter State Hospital Cemetery will follow from 2 to 3 p.m. All bus stops are free and open to the public.

“We are delighted to announce that the bus will stop here— one of 80 stops on its nationwide tour,” said Cindy Tarshish, ADA Minnesota.

“The exhibit is an excellent reminder of the significant changes brought about by the passage of the Americans with Disabilities Act (ADA) in 1990, as well as an opportunity to strengthen the call for the most basic freedoms for

people with disabilities: access to public buildings, and opportunities to live independently and work to support themselves and their families.”

The Road to Freedom bus tour features a multi-media display and presentation that guides viewers through the civil rights struggle for people with disabilities. Jim Ward, president of ADA Watch and the National Coalition for Disability Rights, will be on hand to talk about the ADA, the challenges still faced by people with disabilities and the need to keep the promise of the ADA. In Minneapolis, Ward’s presentations are scheduled at 11:30 a.m., 12:30 p.m. and 1:30 p.m.

Minneapolis City Council President Barb Johnson will also read a proclamation declaring Aug. 17 as Americans with Disabilities Road to Freedom Day in Minneapolis. Minnesota State Representative Shelley Madore, DFL, District

37A, known for her leadership covered with numbered on disability issues, will also graves, it makes you think— and sinks in. 1200 of the 1600 speak. people buried in this cemetery “We invite the public to drop now have names, due to the by, especially the thousands work of the Remembering of people who work nearby at With Dignity Project. Yet, downtown businesses,” thousands of state hospital resiTarshish said about the Min- dents in Minnesota, and in neapolis stop. “The Road to cemeteries littered across the Freedom tour is an important America, remain buried reminder of the promises of anonymously, in numbered the Americans with Disabili- and unmarked graves. ties Act. The ADA didn’t solve all problems, as evidenced by I hope people take this opporrising unemployment rates of tunity to visit the cemetery. As people with disabilities able we work to ensure the rights of and willing to work and the and respect for people with disproportionately high rate of disabilities today, we need to poverty among people with return dignity to these people disabilities. There is more who went before us.” work to be done.”

Event hosts for the Road to “The St. Peter stop will pro- Freedom tour include: Access vide the opportunity for people Press; ADA Minnesota; Adto come to the St. Peter State vocating Change Together; Hospital Cemetery,” said Jim Arc Greater Twin Cities; CourFassett-Carmen of Remember- age Center; The Epilepsy ing with Dignity (RWD). Foundation of Minnesota; “When you see the ground Metropolitan Center for Independent Living; Mill City Museum; Minnesota Department of Employee Relations; Minnesota Department of Human Services; Minnesota State Council on Disability; United Cerebral Palsy of Minnesota; University of Minnesota Institute on Community Integration; and VSA arts of Minnesota.

From numbers to names… discrimination to respect

REMEMBERING WITH DIGNITY Honoring state hospital residents who have been forgotten by placing grave markers with names

Saturday, August 18, 2007 ADA Road to Freedom Bus Tour and Exhibit “Keeping the Promise of the Americans with Disabilities Act” 11 am to 1 pm

Minnesota Square Park, St. Peter, Minnesota Join us for a picnic lunch

St. Peter State Hospital Cemetery Dedication Dedication of 430 new named grave markers Performance by United We Stand Players and AKTION Club Theater Group 2 to 3 pm

St. Peter Regional Treatment Center, 100 Freeman Drive, St. Peter Event information call Advocating Change Together 651-641-0297 www.selfadvocacy.org For more information on the ADA Road to Freedom Bus Tour web site www.roadtofreedom.org

The Road to Freedom visit coincides with the Leadership Exchange in Arts and Disability (LEAD) Conference, which will be at the Guthrie August 16-19, 2007. This annual conference is produced by the Accessibility Office of the John F. Kennedy Center for the Performing Arts and is intended for people working in the arts to learn more about access as it relates to people with disabilities. Local sponsors include the Minnesota State Arts Board, VSA arts of Minnesota and the Guthrie Theater. ■

ALS -

‘Changes at Transition’ Information Session August 13 People who are disabled and between the ages of 16 and 21, as well as their parents or legal guardians, may want to attend this free information session that will attempt to explain the changes that occur during this crucial period of development into adulthood. This session will outline decisions that need to be made, including guardianship, graduation, exploring future vocational plans, Social Security and more. Details: 6-8:30 p.m., Maple Grove Library, 8351 Elm Creek Blvd.

N, Maple Grove. FFI: 612-5966631 or search “adsinfo”at www.hennepin.us.

2007 Age and Disabilities Odyssey Conference August 20-22 Issues facing aging Minnesotans, people with disabilities and caregivers and services that support them will be key topics at the conference, whose theme this year is “A Sea of Choice: Navigating the Journey.” This is designed especially for professionals who administer and operate programs to help seniors and people with disabilities. Major themes include using technology to make evidencebased decisions and increase efficiency, and expanding resources to create a set of services without barriers. Over 130 workshops offered. Details: Duluth Entertainment Conv. Center. FFI: www.mna ging.org/odyssey/index.htm.

Residential/Vocational Information Session August 14 Adults who are disabled and their parents or legal guardians are invited to learn about various residential and vocational service options that are available in a free session entitiled, “Adult Residential and Vocational Services.” This session will outline options such as day training and habilitation, adult day care, intermediate care facilities for persons with developmental disabilities, foster care, semiindependent living services and more. Details: 5-7 p.m.

Central Library, 300 Nicollet Mall, Mpls. FFI: 612-5966631 or type “adsinfo” in the search box at www.hennepin. us, or call 612-630-6000.

Block Party to Celebrate Disability Awareness August 21 This 3rd annual community-wide block party seeks to create an event that recognizes, reflects and celebrates diversity and potential abilities for everyone.

Entertainment includes a variety of live music and theater performances, as well as food, vendors and art activities for the whole family. Volunteers and financial or in-kind support still wanted. Free and open to the public. Details: Bethlehem Lutheran Church parking lot, 720 S. 2nd St, Mankato. FFI: Dez Goettlicher at 507-3457139, 888-676-6498 or dgoettlicher@smile scil.org.

Emergency-Preparedness August 16 This conference, which will be held via ITV at eight Minnesota locations (Bemidji, Duluth, Fergus Falls, Mankato, Marshall, Metro Area, Rochester and St. Cloud), will focus on an inclusive all-persons approach to faith communities and emergency preparation. Topics will cover preparing, responding and recovering from emergencies and disasters. Featured speakers include June Isaacson Kailes and Dr. Koening of the Duke University Medical Center. Those encouraged to attend include faith and community organizations, persons with disabilities, persons concerned with aging, minority communities and more. Free, but registration required. FFI: www.tog events.com/cc, 320-224-0154 or pam@togevents. com.

GetSet! for Transition/ Guardianship Overview August 21 Students and their parents can prepare for adult life at Arc’s combined workshop. GetSet! is a “starter kit” for transition planning. It addresses key issues such as employment, housing, post-secondary education and involvement in community life. Guardianship: An Overview introduces families to substitute decision-making for loved ones with a disability. It outlines assessing the need for guardianship, substitute decision-making processes and the rights of individuals under guardianship.

Details: Registration required.

Arc members free, $20 for nonmembers. 6:00-8:30 p.m. at Arc Greater Twin Cities, 2446 University Ave. W, #110, St. Paul. FFI: 952-920-0855 or wwwarcgreatertwin cities.org.

Still, the pluses far outweigh the minuses. When attending Hult’s ALS support group, attendees enjoy watching Joy as she monitors everything, right down to the pizza that is brought in for lunch. And on that Alaskan cruise, Joy was so popular on the ship that

sometimes Hult had take her and “hide” in their cabin to get a break. Joy truly does scatter a hundred griefs. ■

from p. 3

ready to assist addresses these issues. This network also helps exercise Joy, especially during the winter. Finally, Hult is conscientious about cleaning up after Joy outside, even when it requires some fancy wheelchair maneuvers.

Helping Paws recently placed its second dog with a PALS. For more information, visit www.helpingpaws.org/

August 10, 2007

7

News At A Glance . . .

Aquarium Exhibit for Blind/Low Vision Under Development

Does the Word ‘Insane’ Describe Your Disability?

A new tactile exhibit, now in the testing phase, will make aquarium exhibits accessible to those who are blind or have low vision. Once completed, the exhibits—touch-activated, tactile models of fish with an audio component where applicable— will become part of a permanent exhibit at North Carolina Aquarium at Pine Knoll Shores in Atlantic Beach, North Carolina.

According to the Minnesota State Constitution, it’s OK to call people with disabilities insane. In fact, the state constitution says that people who are insane do not have the right to vote.

Neither do people under guardianship. If you don’t think this is right, and want the state constitution to be changed, then contact the Minnesota Disability Law Center for more information as to how you can help at 612-746-3799 or mthor@midmn legal.org. People with disabilities have the right and want to The goal is to design a user-initiated touching or exploring vote! [Source: Minnesota Disability Law Center] system that eliminates the need for buttons, switches or complex computer programs. “Blind and low vision visitors to No-Cost Medical Eye Care to Qualified Seniors museums, zoos, aquariums and historic sites have been signifi- This summer EyeCare America is urging seniors, “Don’t Lose cantly underserved to date,” said Georgia Minnich, Exhibits Sight of Your Independence.” The national health campaign is Curator at the North Carolina Aquarium at Pine Knoll Shores. intended to remind the senior community about the value of “This system will significantly enhance their experience.” eyesight. “By age 65, one in three Americans has some form of vision-limiting disease. Unfortunately, many aren’t aware they Supported by a grant from the Department of Education’s have a disease, or believe poor vision is a natural part of the National Institute for Disability Rehabilitation Research, RAF aging process,” said Richard P. Mills, MD. “We need to reach Models will be gathering data over three years that will support seniors with the message that proper eye care is a significant the development of national guidelines for the design of tactile component of their overall health care.” exhibits give the blind and low vision audience access to the exhibit information.

EyeCare America, a public service program of the Foundation of the American Academy of Ophthalmology, operates one of A working prototype exhibit, developed by RAF Models, Inc., the largest programs of its kind in American medicine. The is being developed specifically for aquariums, considered by Seniors Program is designed for US citizens age 65 and older, many to be the most difficult type of exhibit to make accessible who have not seen an ophthalmologist in three or more years to the blind or low vision audience. The process benefits and don’t belong to an HMO or the VA. sighted individuals as well. Commented Rebecca Fuller, founder and owner of RAF Models, “When thinking about how to The three-month long promotional campaign runs until Sepprovide information for the blind, we end up also providing tember 19. This program offers eye exams and up to one year more information for the sighted audience.” [Source: Scott of medical care at no out-of-pocket cost for seniors who are Carpenter at scott@capturevalue.com] without an ophthalmologist. To see if you, a loved one or a friend are eligible to receive a referral for an eye exam and care, call 1-800-222-EYES (3937), 24 hours-a-day, seven days-aweek. [Source: www.eyecareamerica.org]

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Communication Aid Introduced with Windows XP Compatibility The company PRC recently released a product named ECO-14, an augmentative and alternative communications (AAC) device that features Windows XP compatibility as well as better communication capabilities. ECO-14 comes pre-programmed with an array of proprietary and proven language and vocabulary software programs designed to support language learning and independent communication, including all versions of such popular word prediction software as Unity, WordCore and WordQ. In addition, the program allows greater access to the internet and other software programs. [Source: PRC]

Minnesota State Fair Offers Accessibility for All Guests The annual Minnesota State Fair, which runs August 23rd to September 3rd, has a number of accommodations planned for guests with disabilities. In addition to recurring services such as daily wheelchair rental and ASL interpretation of a number of exhibits and events, this year’s fair will also feature other services for people with disabilities. There is ample parking for vehicles with a valid disabled persons parking placard. In addition, the State Fair publishes an “Attraction Access Guide” to assist guests in making choices about appropriate rides.

Another feature of this year’s fair will be a number of events designed to honor and entertain Minnesota’s senior population.

The 2007 Outstanding Senior Citizen Awards Ceremony will be held Thursday, August 30th at 11 am and will honor recipients from counties all over the state.

All entertainment venues, both indoor and outdoor, will have access for entry, exit and viewing, as well as limited seating areas for guests with disabilities. Other features, such as ASL interpreters available to assist guests for free and TTY pay phones at several locations, go even farther to welcome and assist all guests to the 12 day event. [Source: Minnesota State Fair] ■

Assistive Technology @ Your Library FREE Internet and word processing services are available to persons with vision, mobility, and special learning needs at three Saint Paul Public Library locations: Hayden Heights Library, Highland Park Library and Rondo Outreach Library.

For additional details, or to make an appointment, call a library listed below: Hayden Heights (651) 793-3934 1456 White Bear Ave. Highland Park (651) 695-3700 1974 Ford Pkwy.

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BDC Management Co. is now accepting applications for our waiting lists at the following affordable communities Albright Townhomes Buffalo Court Apartments Elliot Park Apartments Evergreen Apartments Franklin Lane Apartments Hanover Townhomes Lincoln Place Apartments Olson Towne Homes Prairie Meadows Raspberry Ridge Talmage Green Trinity Apartments Unity Place Vadnais Highlands Willow Apartments Woodland Court Apartments

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8

August 10, 2007

Breaking The Silence Webcast Panelists Address Issues of Crime Toward Persons with Disabilities

by Clarence Schadegg On May 30, 2007, an online panel discussion, Breaking the Silence About Crime Victims with Disabilities, took place. This webcast featured panelists Ollie Cantos from the U. S. Dept of Justice, John Vaughn from the National Council on Disability, Mary Lou Leary from Crime Victims Association, and Beverly Frantz from the Association of University Centers on Disabilities (AUCD). After the event, three of the panelists made themselves available for questions.

Has there been an increase in the number and frequency of crimes against people with disabilities?

Bev Franz: The prevalence of crimes committed against people with disabilities is difficult to calculate because there is no uniform system for collecting this information. From

Ollie Cantos: In terms of victimization of the population as a whole, each year, for children, senior citizens and dependent adults ages 18-64, the [crime] numbers are 1 million, 2 million, and 5 million respectively. This essentially means that there are more dependent adults (i.e., persons with disabilities) who are abused or neglected than the number of children and senior citizens combined. Especially in cases in which disabilities are severe, perpetrators are most typically known by the victim. In addition, when disabilities are visible, crimes of opportunity are perpetrated, although I am not aware of specific studies that have yet quantified the extent of such crimes to know present rates versus past rates.

the small studies that have been conducted, the figures are consistently higher than for people without disabilities. This is supported by anecdotal information. There are several issues when collecting crime victim statistics and disabilities, such as the term disability is too general, and law enforcement is not required to collect data on whether the victim or alleged offender has a disability. A larger question is, do we want them to? Unless the disability is “visible,� how would the police officer know (e.g., mental health issues, chronic illness)? In fact, police departments are not mandated by law to provide their crime stats to the Uniform Crime Reporting (UCR) Program. However, the UCR reported that in 2005 there were a total of 53 hate/bias-motivation crimes committed against persons with a disability.

2007 CHARLIE SMITH AWARD NOMINATION DEADLINE IS AUGUST 20, 2007 In honor of founding editor Charlie Smith’s accomplishments, Access Press presents this annual award to recognize individuals or groups that demonstrate an exceptional degree of commitment to the disability community.

2007 Nomination Criteria Networking: Achieving, promoting and increasing communication among groups.

Achievement: Enriching the personal, social and economic lives of persons with disabilities in order to overcome barriers and build healthier communities.

Leadership: Improving the lives of others by helping lead the effort to eliminate attitudinal, social, economic and/or physical barriers for persons with disabilities.

Nomination forms are on the Access Press Web site at www.accesspress.org, or call Access Press at 651-644-2133.

Charlie Smith made a difference.

Others do too. Nominate them!

Silence - cont. on p. 10

Beware of Pitfalls Around Trees in Sidewalks

by Donna Jacobson off the corner of 50th & Bryant Avenue South in Minneapolis. On Sunday, May 27, a blind woman from Richfield fell into one of these pits where the dirt was four to five inches below the sidewalk. She skinned her ere is a heads up, and elbows, but thankfully, was not sticks down, for seriously injured! people trying to get around with canes and dog She remarked, “Adding trees guides. In some locations to our urban forest has many around town, trees have been benefits. However, creating planted in the middle of the traps in sidewalks seems to go beyond common sense, not to sidewalk. mention potential for personal Sections of pavement have injury liability claims, and it been removed to accommo- also crosses a line with redate some of these trees. In gards to trust in public safety.� some cases, this creates a predicament where there are open As a result of this incident, a report was e-mailed to the appits around the trees. propriate City Council MemAs a result, the dirt levels are not always level with the sidewalk.

Editor’s note: A few years day dinner, heading down the a pit where at tree had been back, I was coming out of a street to start the second half planted in the sidewalk, my restaurant after a nice birth- of my celebration. As I passed rear wheel fell into the hole. I fell into the tree, breaking my shoulder. The following story ³+RZ FDQ , JR WR ´,V WKHUH D OLPLW WR KRZ has a better ending.(TB) ZRUN DQG NHHS P\ PXFK , FDQ HDUQ RQ 66',"¾ KHDOWK LQVXUDQFH"´ ´+RZ GR , UHDOO\ NQRZ ZKLFK EHQHILW ,¡P RQ"¾

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This St. Paul sidewalk has the proper grating around its trees. ber, along with a request to have these pits covered with grates that would be even with the sidewalk. This request was then forwarded to the “sidewalk people� for the City who have taken measures towards resolving this issue.

plaint, dirt was filled in around these trees to a height apparently even with the sidewalk.

Now, the pit that Colleen fell into appears to be level with the sidewalk, but the surface of the dirt is bumpy and uneven, and there is still potenThe response was quick. Within tial for injury. two days of receiving the com- Pitfalls - cont. on p. 15

August 10, 2007

Golf Update!

Golf Scramble Recap

P

erfect weather, great spend a summer afternoon and the United Cerebral Palsy Min- raise money to support “the company and golf— support a good cause? On nesota 11th Annual golf tour- independence, productivity what better way to Monday, July 16th, golfers at nament drove and putted to and full citizenship of people with cerebral palsy.” The only ingredient missing might have been a batch of umbrellas to protect golfers from the dazzling sun. ■

Below: “Look at our nice shiny golf cart; it’s not helping our swing one bit!”— golfers Michael Stephenson and John Kihslinger

Above: Golfers Bryan Guse, Debby Gustfson, Bob Gregory, Jim Collins, Tyler Champ, Dennis Kudak take a break between holes.

Young Writers Corner

If I Were A Chameleon

by Jenny Sanders

If I were a chameleon, I would play on the jungle gym.

Jenny Sanders I would hang on the monkey bars And swing back and forth.

I would wait for my friend Tony And I would hide from him so he couldn’t find me.

I would change colors so he could see me Then change again so he could not see me.

It would be like hide and seek.

Then I would go to Dairy Queen and be invisible And eat lots of ice cream.

Then I would go to the YMCA and be invisible And I would go swimming.

I would be blue like the water.

Then I would turn pink, yellow and red And I would scare people.

Then I would be tired so I would go home.

I would kiss my mom goodnight and go to bed.

The End. Editor’s Note: We welcome contributions from all young writers. Poetry, stories, essays, opinions are all fine.

Above: Carolyn Zvorak, Curtis lee, Lee Grams, and Lois Grams

More Golf, Anyone?

F

or anyone with a hankering to play more golf this summer – Sister Kenny Rehabilitation Institute sponsors a summer golf league and annual tournament for golfers with physical disabili-

ties. Assistive equipment is golfers each Monday. Hagle provided. says the most funshe gets “is seeing the enjoyment that When Susan Hagel started the people have. Seeing them deSK Golf Program in 1979, velop with their self-confithere were six golfers. Now dence.” the league boasts about 70

The 2007 league runs on Mondays, 3-9 p.m., through August 27th, at Braemar Golf Course in Edina. The tournament is Friday, August 24th.

For more information, contact Susan.Hagel@allina.com or paige.safranski@allina.com at 612-863-5712. ■

Below: Scott Robeson

Above: Harry Bader

Above: Jerry Nadeau

Above: Pete Stigman

At left: Kurt Greniger

Computerized Desktop Publishing: Advertisements Brochures Catalogs Flyers Logos Newsletters Newspapers and More!

Ellen Houghton • 952-404-9981 presentationimages@mn.rr.com

9

10

August 10, 2007

SILENCE -

Cont. from p. 8

What are government agencies doing to inform people with disabilities of these crimes and our vulnerability?

John Vaughn: The National Council on Disability (NCD) has partnered with AUCD and National Center for Victims of Crime (NCVC), along with support from the Department of Justice and Department of Health and Human Services, to foster greater public awareness about crime victims with disabilities and to forge a national commitment to better serve this population. For example, on June 19, 2007, NCVC hosted a plenary session entitled “Meeting the Needs of Crime Vic-

tims with Disabilities across the edented, because never has this Life Span” at its national con- [data collection] been done at ference in Washington, D.C. such a wide scale. The Crime Victims with Disabilities We are also fostering public Awareness Act requires colawareness by informing and lection of data by the federal educating service organiza- government in order better to tions, holding public forums track crimes committed against (such as webcasts), and dis- members of the disability compersing literature and resources munity. to the public and government agencies, to name a few.

How can we better protect ourselves from an attack or Cantos: The Bureau of Jusrobbery? tice Statistics is presently com- Cantos: As is the case with piling data to better track crime people without disabilities, victimization, and these initial the same approaches should results are expected to be re- be used. It is important in all leased in early 2008. This [da- cases for victims with disabilitabase] is historic and unprec- ties to know that abuse, neglect, and other crimes are A partner with the community, NEVER the victim’s fault. As obvious as this is to say, there Regions Hospital celebrates are often situations in which National Physically Challenged month. perpetrators have literally said to their victims, “You made Regions Hospital has me hit you. If you didn’t make served the Twin Cities and me so mad, everything would surrounding region for more than 125 years. We have been fine.” Society must are genuinely dedicated to empower both children and fostering an environment adults with disabilities to that provides our patients, and staff, with the Best Care, know the nature of different Best Experience. crimes and how to reach out Linda Davis Archer, for help if in trouble. Then, Director, Human Resources Tom Geskermann, Vice President, Human Resources

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Vaughn: Prepare before the crime happens, such as learning personal safety techniques, knowing your rights, and knowing what is a crime.

People with disabilities should also be aware of service organizations that are available to help them if a crime occurs. The Department of Justice Office for Victims of Crime sponsors a Web site containing a searchable query of local organizations to serve almost any need. (http:// ovc.ncjrs.org/findvictim services.)

What are some other online resources?

Cantos: The best central location is a clearinghouse that has been put together by the University of Wyoming (www.wind.uwyo.edu/Re sourceGuide). Also visit www.disability-abuse.com.

These collectively will provide you with hundreds of re-

LEAVE BEHIND -

ask how going blind can be easier than depression. I tell them that my MS is a “politically correct” disease that is As a Level I Trauma Center and one of the area’s most respected healthcare providers, only destroying my central nerRegions Hospital celebrates diverse talents and backgrounds. Through acceptance and diversity, we can succeed in our mission to be a healing presence in the lives of the vous system. But mental illness patients and families we serve.

(MI), that’s something that goes Our passion for excellence is evident throughout our organization. As our partner, after your soul. Even with the you’ll be rewarded for your talents with a wealth of opportunity and one of the area’s most attractive compensation and benefits packages. At Regions Hospital, you’ll medical breakthroughs about discover a respectful, value-driven environment that can energize your career and MI, it still comes with a stigma, personal growth. a myth, a prejudice, a lie. BeFor a list of current openings and to apply, please visit us online at: yond the unbelievable sufferwww.regionshospital.com EOE ing the disease brings, there is the additional burden that somehow it’s not a real disease, that Part of the HealthPartners family of care. the fault lies with the person r e g i o n s h o s p i t a l . c o m himself, that it’s his or her own At Regions Hospital, we are committed to providing state-of-the-art care in a comfortable, healing environment. Part of that care includes fostering a respectful environment that embraces the many different people that make up our community.

when people do reach out, victim/witness service programs should be accessible to these folks with disabilities.

sources, which include materials for crime victims with disabilities and victim/witness service providers alike. Critical information about the civil rights of people with disabilities may be found at a site hosted by the Civil Rights Division of the U.S. Department of Justice (www.ada.gov).

Franz: Other good resources are the National Center for Victims of Crime (www.ncvc. org); the Institute on Disabilities at Temple University, Criminal Justice Initiative (http://disabilities.temple. edu); and the National Criminal Justice Resource Center (www.ncjrs.gov).

Why did you all come together to address the problems of crime against people with disabilities?

Franz: The ultimate goal of the partnership between the three agencies (AUCD, NCVC, and NCD) is to foster greater public awareness about crime victims with disabilities and to forge a national commitment to better serve this

particularly vulnerable population.

Cantos: To send a strong and clear message to the community that the crime victimization field is at least spotlighting these issues at a national level—far beyond what people have realized in the past—and to rally all stakeholders to come together collectively to address the many issues faced by crime victims with disabilities. We as a society must continue to bring the needs of crime victims with disabilities and their loved ones out of the shadows and into the light of awareness and action so that we may each do our part to help make things better.

Will there be another webcast like the one that took place on May 30?

Cantos: Yes. Future webcasts will be dedicated to discussing specific aspects of the criminal justice system within a victims’ rights context, so as to give practical solutions to real situations. In other words, this is all just the beginning. ■

Cont. from p. 5

fault, that it is his inherent weak- couldn’t hold a job, make a ness, laziness and flaws of char- friend or date a girl. I couldn’t see color, hear music or tell acter that are responsible. day from night. As Jim With my MS, even on the worst Morrison of The Doors sang: day when I can’t get out of bed “I’ve been down so long, it (and I was an athlete), or rec- looks like up to me.” I cried ognize my own mother’s face what millions of people with (and I was a professional art- brain disorders have cried: ist), I still feel connected with “My God, my God, why have family and friends. I’m still you forsaken me?” That is the “Pete.” With the depression, I essence of mental illness. felt totally alone, deserted not only by man but by God. I Millions of wounded Ameribelieved that everything I said cans—family members, neighwas stupid and trivial, that I bors and friends—are being was deformed and ugly. I “left behind.” They are wounded by physical brain disorders like depression, bipolar, schizophrenia, OCD and anxiety disorders. Many who suffer do so in silence, afraid or unable to seek care because of the uneducated judgment connected to this disease, or because of inequities within the health care system. As one mental health professional once tearfully put it, “They come to us in flames and we treat them for sunburn.”

As someone who battles two chronic illnesses, I’m someone who knows the importance of health insurance. Know it even more intimately because of its absence; over the last two years, I’ve become one of the 50 million Americans without health insurance. And I want to thank the insurance companies for giving me what I so desperately needed, another character builder! I’ve learned that to get effective help for my depression, I have to be either wealthy or destitute.

I was proud to have Senator Paul Wellstone as a friend.

Paul Wellstone, from the suffering within his own family, understood the chronic nature of these illnesses. He knew that there had to be something besides the “revolving door” treatments where no real healing can take place. These illnesses need long care, advanced medicine and much love and patience. People need to understand that the most terrible side-effect of these diseases is how our SPIRITS are broken, and how we feel damaged and toxic, with nothing to offer the world.

The Parity bill that Paul and Senator Dominici first put together addresses the cruel inequities and additional financial crises that come when insurance does not share the cost of care. These illnesses of the brain, because of their complexity, have been the hardest to treat and the slowest to be understood. They have been shrouded in mystery and dread since the Dark Ages.

We with these illnesses and our families know that we judge political success not by what we’ve been given, but by what we haven’t had taken away. The way people with mental illness have been treated in this country for almost 300 years is still one of the last, evil bastions of unaddressed discrimination in America. We rarely get a fair word or a fair fight, but the Parity Bill offers the chance for both. It’s an exciting time, not unlike the Civil Rights struggles of the ’50s and’60s.

■ Next month, we’ll print more excerpts from Feigal’s speech in Philadelphia.

August 10, 2007

OFFENSE -

Are We Linguistically Disabled?

Cont. from p. 1

Nicholas Wilkie of the Metropolitan Center for Independent Living (MCIL).

People interviewed gave a variety of responses, some of them contradictory. As Smith recounted, “One couple commented that they do not believe one should use ‘retarded’ to make fun of people with disabilities. But in their home, they said they and their children use this term all the time.” In conRep. Shelley Madore urges forum participants to contact trast, two teenagers interviewed elected officials and demand changes, as moderator Lauretta said they found any use of the Dawolo of KFAI listens. term “horribly insulting.”

More surprising, not all those interviewed were aware that others might find the term “retard” insulting. Wilkie noted that some people changed their minds during the interviews.

“I found it really intriguing that some people initially were excited about commenting, but then when they heard our plans to make a video, they either were not sure or they retracted their comments entirely.”

11

video, produced by ACT, will be to document the local response to BNW title, using it as a way to highlight the debate over the use of words, like “retard,” that many in the disability community find demeaning.

“The role of language in perpetuating oppression of people with disabilities is both widespread and often subtle. We want this video to be a way to “These interviews suggest that bring the conversation about we remain divided or confused dignity and language to a wide as a society about how and audience. where it is appropriate to use terms such as the ‘R’ word,” Participants also endorsed the noted Smith. idea of a Minnesota-based disability anti-defamation league, What Can Be Done? modeled along the lines of the With so much energy in the renowned Anti-Defamation room to do something more, League, whose mission is to the July 25th public discussion concluded with a brainstorm “More surprising, not all on “What now?” Some next those interviewed were steps proposed included a greater effort by all within the aware that others might disability community to speak find the term “retard” out more often against offen- insulting.” sive terms and images. State Representative Shelley stop the defamation of the JewMadore (District 37-A) urged ish people. The Disability ADL self-advocates to bring their would coordinate local and naconcerns to the state legisla- tional campaigns designed to ture, politely demanding (not educate the public and the mejust meekly asking or begging) dia and combat negative stethat the state live up to its reotypes of and degrading lanobligations to persons with guage about persons with disdisabilities. abilities. There was even talk of a funeral to bury the “R” One next step already under- word. way is the production of an educational video about the “Nothing about this is new,” “R” word controversy in Min- said Mary Kay Kennedy, conesota. The purpose of the director of ACT. “As we look

by Mark Aronoff

I

n June the Today show personality Al Roker was discussing an animated version of a logo. “Remember that controversial Olympic logo for the 2012 Olympics in London?” he asked. “Some folks have complained that the campaign actually sent them into epileptic seizures. Well, we asked you to weigh in on our Web site in an informal poll; those of you who could around to see how other groups get up off the floor after shakclaim power, we find many ing around were able to actuterrific examples to model af- ally log in.” ter. The NAACP recently had a ceremony to bury the “N” Roker apologized the next day: word and were very creative in “I started joking about it. I staging this to create aware- want to make this clear—I was ness. It’s all been done before not joking about epilepsy or and we can learn a lot from anyone who suffers from epiother social change move- lepsy. ... We understand and ments.” know that this is a serious affliction and would never joke The video project has received about that. ... We were joking support and major financial about the logo—not about epibacking from ACT and from lepsy. If anybody was ofthe new network, Self-Advo- fended, I heartily and really cates Minnesota (SAM), with humbly apologize.” significant in-kind contributions from ICI. Other contribu- Never mind Roker’s unpertors include MCIL, CCP Foun- suasive apology. His remarks dation, Courage Center, Min- were clearly offensive and benesota State Council on Dis- trayed a profound insensitivabilities and Access Press. Or- ity to the millions of people ganizations who have also en- who suffer from the debilitatdorsed the goals of the project ing effects of epilepsy. But include Arc Greater Twin Cit- why did one bad joke engenies, The Arc of Minnesota and der the ensuing furor? There Midway Training Services. are two reasons. The first, much discussed, is Roker’s Filmed and directed by Smith, hypocrisy. Roker was one of the video, titled “Offense the most insistent critics of Don Taken,” is expected to be ready Imus’s infamous “nappyfor distribution before the end headed ho’s” comment, which of 2007. Organizers plan to eventually led to Imus’s disdistribute the video to a wide missal. Why, some ask, should array of community groups, Roker not be held to the same including churches and standard? The second reason, schools. less discussed but worthier of comment, is the taboo status So, “What should be done with of disability in American culthe R word?” Clearly these ture and especially public lanlocal organizers are answer- guage. ing their own question: “Throw it out, band together and find Over the last two decades, diseffective ways to increase pub- ability has become the most lic awareness of this important taboo subject in American soissue of dignity for all.” ■ ciety. We seem unable to reconcile the fundamental tenet

that all men are created equal with the equally powerful new admiration for physical and emotional perfection that drives so many of us to plastic surgery and Prozac. To a linguist, though, regardless of the cause, the evidence is in our language.

sound a bit peculiar, allowing us to create a distance between ourselves and the subject, as if we are saying the word in shudder quotes or picking it up with tongs. The best euphemisms are clinical, conjuring up objectivity in their use, though it is not obvious what is inherently objective about a word like “stool.” Trying to explain why a euphemism is acceptable while the “real” words are forbidden can itself be dangerous. Think of Lenny Bruce, whose obsession with a common word for copulation—a word that, to this day, cannot be printed in newspapers and most mainstream magazines, or uttered on network television or radio—had tragic consequences.

What is taboo changes, for reasons that we do not always understand. For example, in the middle of the last century, we witnessed the end of a long period in which religious swear words were taboo. The decline of that taboo was famously signaled by Rhett Butler’s line to Scarlett, “Frankly, my dear, I don’t give a damn.” Nowadays, religious curse words are commonplace, and terms related to sex, excretion, and death seem to be following Sex and bodily functions are suit. still taboo in American culture, but much less so than The most taboo subjects are they were 50 years ago. The literally unspeakable; we avoid expression “piss off,” which saying anything at all about could never have been uttered them. The next-best solution in mixed company in my youth, is a euphemism: People may is now frequent. And the word talk about the topic, but they that led Lenny Bruce to an must use words that polite so- early death was more common ciety deems appropriate, like on The Sopranos than the pre“copulation,” “urine,” “onan- viously taboo bare breasts of ism,” or “sodomy.” A good the exotic dancers at the Bada euphemism should always Linguistics - cont. on p. 14 INDEPENDENT LIVING SKILLS TRANSITION SERVICES HOUSING NEEDS PEER MENTORING RAMP PROJECT NURSING HOME RELOCATION DISABILITY LINKAGE LINE ADVOCACY ACCESSIBILITY ADA INFORMATION TECHNOLOGY PERSONAL ASSISTANCE Web: www.mcil-mn.org Phone: 651.646.8342 Fax: 651.603.2006 TTY: 651.603.2001 1600 University Ave West, Suite 16 Saint Paul, MN. 55104

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August 10, 2007

Looking For Adventure?

Put your idealism to work through AmeriCorps. Make a community safer.

Help a kid learn to read. Protect the environment. Whatever your interest, there’s an AmeriCorps program that needs your talent, your skills, and your dedication.

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Benefits: Members receive a modest living allowance and may be eligible for health insurance.

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Eligibility Requirements: You must be at least 17 years old, a US Citizen, National, or legal permanent resident alien of the US. AmeriCorps is committed to the inclusion of individuals with disabilities.

Reasonable accommodations provided upon request. EEO/AA.

Many Minnesota programs are still actively recruiting full and part-time members to start this fall.

For more information go to www.serveminnesota.org or contact the following programs directly: AmeriCorps READS Initiative (Southern MN) Contact: Barbara Gunderson; barbarag@smifoundation.org Focus: Increasing literacy and learning readiness for young children.

City of Lakes AmeriCorps (Minneapolis) Contact: Jennifer Valley; jennifer.valley@mpls.k12.mn.us Focus: Tutor and mentor K-12 students in Minneapolis Public Schools.

Community Technology Empowerment Project (Minneapolis/St. Paul) Contact: Joel Krogstad; joel@technologypower.org Focus: Bridging the digital divide.

Minnesota Reading Corps (Multiple locations statewide) Contact: Sadie O’Connor; soconnor@theMLC.org Focus: Increase literacy of at-risk children age 3 to grade 3.

MN Promise Fellows (Statewide) Contact: Melissa Burwell; melissa_burwell@faribault.k12.mn.us Focus: Youth and community development.

Multicultural Communities in Action (St. Paul) Contact: Jolene Anderson; andersonjo@commonbond.org Focus: Education support through teaching/tutoring in schools and after school program.

People Active in Revitalizing Communities (Twin Cities Metro) Contact: Norm Champ; normc@treetrust.org Focus: Mentor low-income youth involved in job training programs True North AmeriCorps (Northeastern MN) Contact: Blair Gagne; bgagne@duluthymca.org Focus: Increasing the number of positive adults in the lives of at-risk children.

Work in Progress (Minneapolis/St. Paul/St. Cloud/Chisago County) Contact: Sonja Nyberg; snyberg@rise.org Focus: Job mentoring support and community integration for immigrants, refugees and people with disabilities.

August 10, 2007

13

Accessible Performances The following performances will be Audio Described (AD) for people who are blind or have low vision, or Interpreted in American Sign Language (ASL) for people who are deaf or hard of hearing. Selected performances offer reduced admission prices for the patron and one companion. When calling a box office, confirm the service (ASL or AD), date, time, ticket price and anything else needed, e.g. length of performance, etc. If you attend a show, please share your feedback with the performing organization, interpreter, and VSA arts of Minnesota.

Accessible performance information is compiled by VSA arts of Minnesota, 612-332-3888 or www.vsaartsmn.org.

1776 June 23 - Aug. 26 Guthrie Theater, 818 - 2nd St. S., Mpls. AD: Sat., July 14, 1:00 p.m. (sensory tour 10:30); also at 7:30p.m.: Fri., July 20; Thurs., Aug. 16; ASL: Fri., July 27; Thurs., Aug. 16. Captioned: Thurs., Aug. 16. Tix: $17 (reg. $27-$57) Phone: 612-377-2224, TTY 612-3776626, www.guthrietheater.org Cherchez la Femme: Women in Art Sept. 9 Mpls Institute of Arts, 2400 Third Ave. S. Free ASL-interpreted tour, Sun., Sept. 9, 1:00 p.m. (no tour Sept. 2) begins by the Information Desk in the lobby. Phone: 612-870-3131, TTY: 612-870-3132, E-mail: dhegstrom@artsmia.org Web: www.artsmia.org

ing begins at 11:00 a.m.

Specify the accommodation needed at time of ticket purchase to assure proper seating.

Tix: Vision Loss Resources group $37 includes lunch: contact Stacy Shamblott, VLR, 612-871-2222; other tix (reg. $40-52) Phone: 952-9341525 or 800-362-3515, EHot N Throbbing mail: information@chan Aug. 17 - 25 20% Theatre Co. at Mpls. The- hassendt.com Web: www. atre Garage, 711 W. Franklin chanhassentheatres.com Ave., Mpls. ASL: Sun., Aug. 19, 2:00 p.m., & Fri., Aug. 24 A Little Night Music 8:00 p.m. Tix/E-mail: info@ Aug. 17 - Sept. 9 tctwentypercent.org, $10-$16, Bloomington Civic Theatre at www.tctwentypercent.org Bloomington Center for the Arts Schneider Theater, 1800 Jevetta Steele’s ‘Two W. Old Shakopee Rd. AD: Queens One Castle’ Fri., Aug. 24, 7:30 p.m. ASL: Sat., Sept. 1, 7:30 p.m. Tix: Sept. 21 - Oct. 7 Mixed Blood Theatre at Mu- $18 (reg. $25, sr $22, student sic Box Theatre, 1407 Nicollet $19) Phone: 952-563-8575, Ave. S., Mpls. AD, ASL and www.bloomingtoncivictheatre.org Captioning: Fri., Oct. 5, 7:30 A Masked Ball p.m. Tix: Disc. by $5, Phone: 612-338-6131, E-mail: box Sept. 22, 25, 27, 29 and 30 office@mixedblood.com Minnesota Opera Co. at Web: www.mixedblood.com Ordway Center for Performing Arts, 345 Washington St., Les Miserables St. Paul. AD: Sun., Sept. 30, Opens June 15 2:00 p.m.; pre-opera discusChanhassen Dinner Theatres, sion at 1:00 p.m. Sung in Ital501 W 78th Street, Chanhassen. ian with English translations AD and ASL: Sat., July 21, projected above the stage. Tix: curtain 1:00 p.m., lunch seat- Reduced to half-price for AD

N O W P L AY I N G

Fading to Grey Aug. 3 - 19 Diversity Productions, Inc. at Mounds Theatre, 1029 Hudson Road, St. Paul. AD/ ASL: Fri., Aug. 17, 8:00 p.m.

Tix: $25, Phone: Uptown Ticket Office 651-209-6799 or 888-279-0089, Web: www. moundstheatre.com or www.uptowntix.com

Fools July 13 - Aug. 12 Theatre in the Round, 245 Cedar Ave., Mpls. AD: Sun., Aug. 12, 2:00 p.m. Tix: $20, senior/student discount, Phone: 612-333-3010, www. theatreintheround.org

PERFORMANCE INTERPRETED IN

N O W P L AY I N G

AMERICAN SIGN LANGUAGE: Friday, August 24 at 7:30 p.m.

N O W P L AY I N G

Thursday, August 30 at 7:30 p.m.

PERFORMANCES

AUDIO DESCRIBED:

N O W P L AY I N G

N O W P L AY I N G

Saturday, August 11 at 1:00 p.m. (sensory tour at 10:30 a.m.)

Friday, August 17 at 7:30 p.m.

NOW  SEPTEMBER 2 McGuire Proscenium Stage

Tickets are $17 for patrons who use the ASL or AD service and for one companion.

612.377.2224 | TTY 612.377.6626 | WWW.GUTHRIETHEATER.ORG

Sherlock’s Last Case patrons, Phone: 612-333VSA arts of MN Autumn 6669, TTY: 612-729-6023, June 15 - Aug. 25 Auction, Cabaret & Awards Web: www.mnopera.org U of M Centennial Showboat Sept. 23 Players, Harriet Island Prk, St. Sky Room, Macy’s 12th floor, Minnesota Fringe Festival Paul. ASL: Fri., Aug. 17, 8:00 700 Nicollet Mall, Mpls. EnAug. 2 - 12 p.m. Tix: $19, Phone: 651-227- tertainment by performer AD, ASL-interpreted, Cap- 1100, E-mail: showboat@ Stephanie Dawn. AD and tioned performances by over umn.edu; Web: www.show ASL: Sun., Sept. 23, 2:00-5:00 100 companies at many ven- boattheater.com p.m. Tix: $30, after Sept. 18 ues in Mpls. To be announced $35, Phone: 612-332-3888 v/ in July. Tix by Phone: 651Speed-the-Plow tty, www.vsaartsmn.org 209-6799, Phone: 612-872Sept. 7 - Oct. 14 1212, www.fringefestival.org Jungle Theater, 2951 Lyndale Wait Until Dark or www.uptowntix.com Ave. S., Mpls. AD: Thurs., July 7 - Oct. 28 Sept. 27, 7:30 p.m. Tix: $8 Commonweal Theatre, 208 Minnesota State Fair (reg. $24-36) Phone: 612-822- Pkwy Ave. N., Lanesboro. ASL: August 23 - September 3 7063, www.jungletheater.com Sun., Sept. 16, 2:00 p.m. Tix: ½ MN State Fair, 1265 Snelling price (reg. $25. student $12) Ave. N., St. Paul. Req ASL Triple Espresso Phone: 507-467-2525, 800Grandstand Show interpreters/ Ongoing 657-7025, E-mail: tickets@ Audio Describers 2+ wk in Music Box Theatre, 1407 commonwealtheatre.org adv. (avail. from 10 a.m. to 8 Nicollet Ave, Mpls. AD: Web: www.commonweal p.m. daily, for many daily Thurs., July 5, 7:30 p.m.; pre- theatre.org events). Tix: Gen. admn $11 show at 7:00. Tix: $17 (reg. (ages 13-64), $9 (over 64), $8 $32.50) Phone: 612-874The Wedding Singer (5-12), free (under 5). Pre-fair 9000, E-mail: tickets@triple Sept. 25 - 30 disc tixs avail. until Aug. 22 at espresso.com; Web: www. Historic Orpheum Theatre, Cub. Buy online, at Fair box tripleespresso.com 910 Hennepin Ave. S., Mpls. office, Phone: 651-288-4427, ASL: Sun., Sept. 30, 1:00 p.m.

TTY: 651-642-2442 Ticket Trying Tix: $22-72; AD if requested master: (add'l charge) 651Sept. 14 - Oct. 7 in adv, Phone: 612-373-5639 989-5151, E-mail: tickets@ Park Square Theatre, 408 Saint or 5609, Hotline: 612-373mnstatefair.org or guest Peter St. (20 W. 7th Place), St. 5650, TTY: 612-373-5655, Eservices@mnstatefair.org Paul AD and ASL: Sat., Sept. mail: tickets@commonweal Web: www.mnstatefair.org or 29, 7:30 p.m. Tix: ½ price, theatre.org Web: www.henne Phone: 651-291-7005, www. p i n t h e a t r e d i s t r i c t . o r g / www.ticketmaster.com parksquaretheatre.org guestservices/aslad/ Monty Python's Spamalot What’s on the Radio Talking Book?

July 24 - Aug 12 Ordway Center for the Wednesday, August 15 (a sample day): Performing Arts Main Hall, 345 Washington, St. Paul.

6:15 a.m. Tech Wire–The world of computers for the visually ASL: Fri., Aug. 3, 8:00 p.m. impaired AD: Sat., Aug. 4, 2:00 p.m.

Tix/Phone: 651-224-4222, 7 a.m. to 9 a.m. Morning Newspapers–Live broadcast of the TTY: 651-282-3100, www.

Star Tribune and St. Paul Pioneer Press ordway.org/services/access. asp 9 a.m. The Demon under the Microscope, NF by Thomas Hager, 2006. The discovery of sulfa ushered in the era of The Mystery of Irma Vep modern medicine.

May 19 - Sept. 2 Commonweal Theatre, 208 10 a.m. 24 for Fitness. Exercise program for people with Parkway Ave. N., Lanesboro. limited mobility. (Airs Monday through Saturday) ASL: Sun., July 29, 2:00 p.m.

Tix: ½ price (reg. $25. student 11 a.m. Whitethorn Woods, F by Maeve Binchy, 2007. Read $12) Phone: 507-467-2525,

by Eleanor Berg. St. Ann’s Well is slated for destruction, 800-657-7025, E-mail: tick which is a problem for Father Flynn. etscommonwealtheatre.org Web: www.commonweal 2 p.m. Teach like Your Hair’s on Fire, NF by Rafe Esquith, theatre.org 2007. Read by James Keane. Rafe Esquith has made his fifth-grade Los Angeles classroom exceptional.

Nunsense: The Second Coming Sept. 7 - 23 Lyric Arts Co. at Main Street Stage, 420 E. Main St., Anoka.

ASL: Sat., Sept. 8, 7:30 p.m.

Tix: $15, $13 student/sr, $17 box seats, Phone: 763-4221838, www.lyricarts.org Private Lives July 21 - Sept. 2 Guthrie Theater, 818 - 2nd St. S., Mpls. AD, ASL, Captioned: Fri., Aug. 17, 7:30 p.m.

Tix: Reduced to $17 (reg. $27$57) Phone: 612-377-2224, TTY: 612-377-6626, Web: www.guthrietheater.org/visit/ the_building/access_services

4 p.m. Him Her Him Again the End of Him, F by Patricia Marx, 2007. Read by Isla Hejny. It took a major event to change her obsession with a philosopher she had met in graduate school.

6 p.m. to 8 p.m. Reading of the day’s New York Times 10 p.m. The Echo Maker, F by Richard Powers, 2006. Read

by Laura Rohlik. Mark believes his sister is an imposter, but the neurologist sees his denial as a rare syndrome.

1 a.m. You Suck, F by Christopher Moore, 2007. Read by Del Adamson. Thomas C. Flood wakes after a fantastic night and discovers that his girlfriend, Jody, is a vampire.

Abbreviations: F–Fiction, NF–Nonfiction Radio Talking Book broadcasts programs 24 hours per day, 7 days –a-week, 365 days per year. More information and a detailed schedule is available from the Minnesota Radio Talking Book Network’s Web page: www.mnssb/org/ allages/commcenter/rtb

August 10, 2007

14

LINGUISTICS -

Cont. from p. 11

Bing Club. Dirty words just when a sign caught my eye. ain’t what they used to be.

“Nearest accessible restrooms on the third floor,” it anBut every generation has new nounced. “Wait a minute,” I taboos, and what made people thought, “aren’t these restsit up and take notice of Al rooms right here in front of me Roker’s little joke was the fact accessible? After all, I am that he broke not one but two walking into one. Why the odd of them. The first is stereotyp- sign?” Then I realized that the ing, usually by ethnicity, gen- sign was indicating disabledder, or race, but sometimes by accessible restrooms, but the profession, regional origin, or word “disabled” had become some other characteristic. so charged that it must not be While it was common a gen- uttered or even written, only eration ago to tell Polish jokes inferred. (and Norwegian jokes the generation before that), the only One good indicator that a topic groups Americans are permit- is highly taboo is the instabilted to make fun of on the air ity of the terms used in disnowadays are blondes and cussing it. In the postwar pemobsters. So Roker’s first mis- riod, when race relations in take was to tell a joke that this country were at their most stereotyped an identifiable volatile, nomenclature shifted group of people besides those very quickly from the two older two. What really got him into terms, colored and Negro, to hot water, though, was that he black and, finally, Africanstereotyped, and joked about, American. There was also a category of disabled people. much discussion along the way of which term was best.

Remember that the most taboo of topics, like the love that In terminology, disability is once dared not speak its name, now at the point that race was are those about which we can- 50 years ago. When I was a not talk at all, for which we child, the term “crippled” was have no words. Disability is perfectly acceptable, espenow entering that realm. More cially in the names of the many and more, we find ways not to hospitals and other organizautter or write the word. A care- tions dedicated to the care of ful observer can watch this crippled children. Today cultural shift as it happens. A “crippled” has become taboo, few months ago, I was enter- and most of those organizaing a men’s room in California tions have changed their names

to avoid it. A quick Internet search easily unearths dozens of examples. What was once the Crippled Children’s Association of South Australia is now Novita Children’s Services (novità is the Italian word for novelty, innovation, or news). The Crippled Children’s Society of Southern California, founded in 1926, became AbilityFirst in 1999.

The disability taboo is part of a larger societal trend to taboo all perceived human defects, all departures from physical and mental perfection. That larger taboo has led to one of the strangest and most notable euphemisms in the history of any language or culture: the “people (living) with X” construction. What is most interesting about that euphemism is that it is not a single expression but a frame that allows speakers to construct an entire family of euphemisms, since X can be any tabooed condition, and the word “living” is optional.

“Crippled” and “cripple” still have a few proponents, motivated by an in-your-face spirit similar to the one that led to the revival of the taboo word “queer” some years ago. The best example of this usage that I know of is in Nancy Mairs’s The construction appears to wonderful essay “On Being a have started with chronic disCripple,” in which she writes: eases, in such expressions as people (living) with cancer/ “‘Cripple’ seems to me a clean AIDS/ADHD/etc. One ratioword, straightforward and pre- nale for this way of putting cise. It has an honorable his- things was that by literally plactory, having made its first ap- ing the person first, not the pearance in the Lindisfarne condition, we are de-emphaGospel in the 10th century. As sizing the condition. Another a lover of words, I like the was that it allowed us to avoid accuracy with which it de- the degrading term “victim,” scribes my condition: I have as in “cancer victim.” The lost the full use of my limbs. “people (living) with X” con‘Disabled,’ by contrast, sug- struction quickly moved begests any incapacity, physical yond chronic diseases to stigor mental. And I certainly don’t matized human conditions that like ‘handicapped,’ which im- had always been described plies that I have deliberately with adjectives, like (mentally) been put at a disadvantage, by retarded. Now they are people (living) with mental retardawhom I can’t imagine.” tion. More broadly, where we

with the physical and emotional perfection that few of us can aspire to. We will either get over it and accept ourselves, as the Dove soap campaign for real beauty exhorts us to, or, in a future more reminiscent of another Woody Allen movie, Sleeper, we will have plastic surgery and Prozac for all, greeting moreserious disabilities with an exceedingly awkward silence.

In the 1994 Woody Allen ■ movie Bullets Over Broadway, whenever the young play- Mark Aronoff is a professor of wright who has been smitten linguistics and associate proby the older female lead in his vost at the State University of play tries to declare his love New York at Stony Brook. His for her, she whispers dramati- books include the co-authored cally, “Don’t speak.” Al Roker What Is Morphology? (Blackmight well have heeded her well Publishers, 2005) and the advice when it came to that co-edited The Handbook of most unspeakable of subjects. Linguistics (Blackwell Publishers, 2001).

Taboos reflect the preoccupations of the societies in which Reprinted from Chronicle of they are embedded. Disability Higher Education, 27 July will be verbally charged as 2007 long as we are preoccupied formerly spoke of disabled people, we now say people with disabilities or, following the California examples, people with nothing but abilities, which, by deleting the negative prefix dis-, allows us to remove ourselves even further from the unspeakable. Finally, we have a simple way to talk about disability without mentioning it at all!

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August 10, 2007

VULNERABLE about my disabilities, I become more vulnerable. I lost a couple of jobs years ago by being too honest up front. I would usually get hired, but the bosses would watch me closely. I was allowed fewer mistakes than my fellow employees. Being fired for my disabilities attacked my self-confidence and financial security.

I have felt the most vulnerable in my intimate relationships: family, friends, and lovers.

Some have been empathetic and understanding of my special needs. Others have run away in horror as though they might catch my conditions.

Also, abusive personalities seemed to gravitate towards me, in the same way wolves will go after a wounded deer.

Cont. from p. 3

ficulty hearing someone, I generally tell them I have a deaf ear. Then we can accommodate more easily. However, I don’t just bring up my disabilities in conversation for no reason.

Regarding home safety, I have had home care workers in the past that I didn’t trust. Sometimes I would tell the agency not to send a person to my house again. Having strangers in our homes is a serious concern for our community. I know folks who refuse help in their homes, because they are afraid of being robbed or assaulted.

Consequently, I now use more discernment in revealing my conditions than in my youth.

For example, when I have dif-

I recently moved from Minneapolis to Maple Lake with my new hubbie. So far I am enjoying our peaceful farm community. Luckily we have two big dogs, a St. Bernard and a Lab mix, so I feel quite safe out here.

Nancy Sopkowiak, Maple Lake ■

PITFALLS -

VETERAN -

Cont. from p. 8

Cher Fields can’t help but look down the road to what today’s returning vets have waiting for them. “Today thousands of young people are returning from Iraq and Afghanistan with traumatic brain injuries (TBI), amputated limbs, blindness, deafness and post traumatic stress disorder (PTSD),” she said. “How will husbands,

According to a City representative, property owners along that section of sidewalk are responsible for those pits. The City will be notifying them that metal grates need to be purchased and installed in order to be compliant with City Code.

The up side to this issue is that the initial response from the City to this report was very quick. A half-dozen people gathered forces to take care of providing safety measures within a day of hearing of the incident.

Minneapolis is known to have a government that takes pride in keeping the City a nice place to live, and public safety is at the top of their list of priorities.

Going forward, keep in mind that this was one instance of trees planted along the curb in a sidewalk where pitfalls were discovered and remedied.

There may be others like it out there as well. So, please do not hesitate to report safety issues.

Beware—and take good care!

■

Classifieds

15

Access To Employment

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from p. 1 wives, children, parents, loved ones and friends be supportive to a disabled veteran when the very institutions these brave veterans fought to protect turn around and deny them and their families the basic rights for decent shelter, economic stability and health care treatment? “

There are no more gatherings planned at the small cemetery in Richfield where John Fields is buried. For Cher Fields, however, the tragedy of her husband’s death and the government’s response to it remain very present, a nightmare playing out in the very same country John gave his life to protect. ■

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August 10, 2007

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