November 2007 Edition - Access Press

Page 1

www.accesspress.org History Note

Inside ■ Campus Activism—p. 3 ■ Charlie Award Winners—p. 8 ■ New Business Solutions—p. 9

“Nowhere is wisdom more necessary than in the guidance of charitable impulses. Meaning well is only half our duty: Thinking right is the other and equally important half.” — Samuel Gridley Howe

Page 2

Nonprofit Org. U.S. Postage PAID Mpls. MN Permit No. 4766

Volume 18, Number 11

Minnesota’s Disability

Community Newspaper

November 10, 2007

Picture Perfect Perspective Polish student wins European Union’s photo competition BRUSSELS—A photography student from Poland has been selected from more than 600 students from across the European Union (EU) as the winner of the EU’s “Breaking Stereotypes” photo competition. Krzysztof Goluch, from the renowned Czech Institute of Creative Photography of the Silesian University in Opava, Czech Republic, impressed judges with his depiction of an ageing man in a wheelchair facing a flight of stairs, a thought-provoking metaphor for the many barriers and forms of discrimination facing people in their daily lives. An exhibition of the best photos is now touring Europe. The European Photo Competition for Diversity was launched in March 2007, under the five-year “For Diver-

sity. Against Discrimination” information campaign, and as part of the 2007 European Year of Equal Opportunities for All. The aim of the contest was to create awareness amongst students about how diversity can enrich society. It was also a chance for the EU to listen to what the students themselves think and to see how discrimination is viewed from their perspective. An international jury of photographers, professors and anti-discrimination experts chose the prize winners. Explaining their selection, the jury commented: “At first glance the winning photograph evokes a sense of deep solitude and helplessness. It is this rawness and emptiness that This photo by Krzysztof Goluch, from the Czech Institute of Creative Photography of the Silesian University in Opava, won first place in the European Union's “Breaking Stereotypes” 2007 photo competition. draws the viewer to the image. Depicting facets of discrimi- ability, gives the photograph a and emotional level. It pro- those who look at it to speak crimination.” [Source: www. nation, such as age and dis- lasting impact on both a visual motes reflection, encouraging out and stand up against dis- stop-discrimination.info]. ■

To Change The Future, Remember The Past DHS photo exhibit of state hospital history leaves key parts of the story untold by Luther Granquist and Anita Schermer

O

n October 15, 2007, the Minnesota Department of Human Services celebrated the history of state hospitals and nursing homes by presenting an exhibit of photographs, videos and documents with the theme “Honor the Past, Embrace the Present, Create the Future.” While many of the historical artifacts on display were interesting, what was not shown to the public may hold greater significance when trying to understand this long and frequently shameful chapter of Minnesota history.

This restraint chair was still in use at Brainerd State Hospital in 1980.

Photographs of the institutions stood out because of the sheer magnitude of the buildings. Aerial images captured the vast size of these buildings, with Fergus Falls State Hospital forming an arc about one-third of a mile long and Moose Lake

State Hospital stretching out almost as big. However, few pictures of the men and women who actually lived in these imposing structures were on display.

In addition, the Department exhibited a 1967 article about the American Psychiatric Association awarding the Medical Services Division of the Minnesota Department of Public Welfare for the Division’s attack on dehumanization. Dr. David Vail, the Medical Director of the Department, and Miriam Karlins, head of volunteer services at DPW for many years, spearheaded this effort. During his tenure as medical director Vail was a staunch advocate for patient’s rights. The Department appropriately honored these actions and the men and women who worked in the institutions. But we should also remember the men and women, boys and girls and even toddlers who grew up and lived in these institutions.

would have included heartrending scenes of children from Faribault State Hospital in the mid-1960s. To Bridge the Gap, a film by Jerry Walsh of the Association for Retarded Children, shows the “saddest scene” he had ever observed in a state institution, a little girl crouched in the corner of a large dayroom. “For the lack of human warmth, she’s huddled up against the cold brick wall, and this is the only comfort she gets so often day in and day out.”

The documents on display included Governor Luther Youngdahl’s statement at a burning of restraints which took place at Anoka State Hospital on October 31, 1949. He said: “As little as eighteen months ago all but one of our mental hospitals used mechanical restraints. Today Both To Bridge the Gap and most are restraint free. The Changes, a film made five bonfire which I am lighting years later by Professor Travis tonight consists of 359 straitThompson from the Univerjackets, 196 cuffs, 91 straps, sity of Minnesota, show what and 25 canvas mittens.” Newslife was like in the Dakota paper clippings of that era told Building at Faribault. Walsh about how Moose Lake State called it “herd care.” ThompHospital received national recson, who was asked by the ognition for ending the use of A complete view of the past Remember - cont. on p. 14 restraints.


November 10, 2007

2

efited directly from Jim’s and Claudia’s efforts, and their actions have motivated others of us to act for our own empowerment. As several speakers said that night, Jim and Claudia exemplify what we can do when we recognize our interdependence. Jim and Claudia embody independence; at the same time, they are interdependent with one other, and with the individuals who they help and who help them through their daily living. The Carlisles in turn have helped many of us in the disability community.

Tim Benjamin, Editor

O

ne again, the Charlie Smith award banquet was a fabulously enjoyable event. The winners of the Charlie Smith award were Jim and Claudia Carlisle, the founders of People Enhancing People (read more about them on page 8). Many of us have ben-

In the 1960s, when Ed Roberts was trying to force the University of California to accept him as student, he said that he and the whole disability community just got stronger and stronger as more people came to see that severely disabled people were going to the Uni-

versity of California, Berkeley. And the university began to see that the future was in serving more people with disabilities. The disability community had now gained political clout; others had to respond in a much more realistic way. Jim and Claudia took that kind of a risk when they started dreaming of People Enhancing People. By their actions, they gained political clout and all kinds of people began to listen to them. As a result, we now have People Enhancing People, a PCA Choice agency. After listening to those who spoke about Jim and Claudia, I realized that the Carlisles were like Ed Roberts in another way. He once said that the word “No” is a very interesting word, and that he’d learned that the word “No” means “Yes” sometimes. Jim and Claudia would not accept “No” as an answer to their

requests for independence— pitality of David Glass, owner and they created strength of Black Bear Crossing, as well through interdependence. as Kathy Anderson, banquet manager, and the fantastic Mary Kay Kennedy and JoAnn staff. Cardenas Enos were also celebrated for their long-term Finally, I want to add to the commitment to the Access thanks I offered at the banquet Press Board of Directors. to all the board members who Mary Kay and JoAnn have have served the paper—and been wonderful mentors to me, helped me—throughout this and have taught me a lot about past year. I am also grateful to the finances and organizing of the paper’s excellent staff and a nonprofit. Access Press to all the hard-working volunwould not be a strong commu- teers who have made this an nity paper today without the exciting year for Access Press. drive and motivation of these And many thanks to the issue two former board members. sponsors that have helped support Access Press this year. I hope everyone enjoyed themselves at the award banquet, Minnesota State Council on and I hope those who couldn’t Disabilities (MSCOD) and come will join us next year. Metropolitan Center for IndeFor five years, we have en- pendent Living (MCIL) also joyed a beautiful celebration had their annual banquets this of communication in the dis- last month. We want to conability community. We are gratulate and thank everyone grateful for the wonderful hos- in those organizations for their

History Note

Sit-in Sparks Government Action Section 504 of the Rehab Act emerged from the 1970s struggle

years of good work for the disability community. Anita Schermer and Luther Granquist are writing a book: a history of people with disabilities in Minnesota. Their interest in the history of disability took them to the recent Department of Human Services’ recognition of the history of state hospitals and nursing homes in Minnesota, with the theme of “Honor the Past, Embrace the Present, Create the Future.” Ending the inhumane treatment that took place in our state hospitals, as described in the article, is definitely worth celebrating. Thank you, Luther and Anita, for all your good work and years of dedication to people with disabilities. We wish you all the luck in the world on your book venture. We’ll be waiting for a signed copy. ■

To The Editor ... Dear Editor,

A

dvances in civil rights rarely if ever happen without public pressure. Section 504 of the 1973 Rehabilitation Act stipulates that any federally funded program must provide equal access to persons with disabilities. The law itself came up against a veto by Nixon that was ultimately overruled by

Congress. In 1977, United States Secretary of Health, Education and Welfare Joseph Califano refused to issue regulations implementing and enforcing the act. A coalition of disability activist groups issued an ultimatum for action with a deadline of April 4, 1977, but the date passed without movement by the government.

A GREA T RESOURCE! GREAT

DirectAbility.com DirectAbility is a comprehensive, ever-expanding, award-winning, Internet directory devoted to disability-related products, services, resources and information throughout the state. Online at www.directability.com.

were over. However, in one city—San Francisco—protesters refused to disband. There, more than 150 people with disabilities took over the federal office building and refused to leave. They stay almost a month, until May 1, not leaving until they had reviewed and approved of the regulations finally issued by Califano California's Sec. of Health, Education and Welfare office on April 28. [Source: www. On April 5, demonstrations by place in ten cities across the rcil.com/DisabilityFAQ/Dis people with disabilities took country. By the end of the day, abilityRights Movement. demonstrations in nine cities html]. ■

I just wanted to send you an extra big thank you for the great article you ran on People Incorporated’s Artability at Apollo art exhibit. Your support means so much to us! Last weekend’s event brought in over 500 viewers and our artists sold over $6,000 worth of art. Thanks for helping us get the word out on our event and for helping us fight against the stigma of mental illness! I look forward to working together again next year. All my best, Rachel Koep, People Incorporated

Protesters refused to disband in San Francisco

Correction

Access Press Co-Founder/Publisher (1990-1996) .................................................. Wm. A. Smith, Jr. Co-Founder/Publisher/Editor-in-Chief (1990-2001) ....................... Charles F. Smith Board of Directors ....................................................... Brigid Alseth, Mike Chevrette, Kelly Matter, Anita Schermer, Tom Squire and Kay Willshire Editor ......................................................................................................... Tim Benjamin Assistant Editor .............................................................................................. Bret Hesla Administrative Assistant ............................................................................ Jordan Selbo Cartoonist ..................................................................................................... Scott Adams Sales/Marketing ...................................................................................... Lance Hegland Production ...................................................... Ellen Houghton at Presentation Images Webmaster ...................................................................................................... Alice Oden Distribution ......................................................................................... S. C. Distribution Access Press is a monthly tabloid newspaper published for persons with disabilities by Access Press, Ltd. Circulation is 10,000, distributed the 10th of each month through more than 200 locations statewide. Approximately 650 copies are mailed directly to individuals, including political, business, institutional and civic leaders. Subscriptions are available for $30/yr. Low-income, student and bulk subscriptions are available at discounted rates. Editorial submissions and news releases on topics of interest to persons with disabilities, or persons serving those with disabilities, are welcomed. We reserve the right to edit all submissions. Editorial material does not necessarily reflect the view of the editor/publisher of Access Press. Paid advertising is available at rates ranging from $12 to $28 per column inch, depending on size and frequency of run. Classified ads are $13, plus 60 cents per word over 12 words. Advertising and editorial deadlines are the last day of the month preceding publication, except for employment ads, which are due by the 25th. Inquiries should be directed to: Access Press • 1821 University Ave. W. • Suite 104S St. Paul, Minnesota 55104 • 651-644-2133 • Fax 651-644-2136 E-mail: access@accesspress.org • Web site: www.accesspress.org

Protesters marching in San Francisco

In the article “Who is Big Al” (October 10, 2007), the caption on the page 1 picture gives the wrong name for Alex Moshenko’s mother. Her first name is Monica.

ACCESS IS FREEDOM! National Housing Institute, Inc.

Affordable/Accessible Housing For Persons With Mobility Impairments Community Enrichment Through Housing Diversity

CALL 651-639-9799


November 10, 2007

3

Students Find Disability Awareness Eye-Opening by Kristine Berg and Wendy Roquette

L

ast month, “No Access” posters could be seen around the campus of Roseville’s Northwestern College, as part of their annual Disability Awareness week. The event, also known as DOSS (Disabilities Office for Social Services) week, provides a chance to organize and educate those both in and outside of the disability community at Northwestern. The focus of the week was hidden disabilities. Besides the poster campaign, students and staff also had the privilege of hearing more about Asperger’s syndrome from highlighted speakers John Ricker and Erika Hammerschmidt, who are a married couple both diagnosed with Asperger’s syndrome. A key focus for organizers was highlighting hidden barriers around campus. In preparation for DOSS Week, we hung up “No Access” posters. These posters were put in different places around campus that students with physical handicaps are not able to use. This vis-

ibility campaign was powerful to many students on campus who had not thought about the access some students do not have. One student commented, “I am really glad you are putting these signs up. It really helps people understand and see the limitations on campus.” The featured speakers brought a different sort of visibility to disability. Not knowing they had Asperger’s syndrome, one

would have a hard time knowing it by looking at them and hearing them speak. Through hearing them speak, students learned that part of Asperger’s syndrome involves not understanding social cues and norms. Rather, people with Asperger’s syndrome have minds that work in extremely logical ways. Presenting it in that way helps to better understand Asperger’s syndrome. However, that is just part of

Erika Hammerschmidt and John Ricker talked about Asperger’s syndrome during an interview over the student-run radio station WVOE

Asperger’s syndrome; there are many more complexities included in the disorder. It was also fascinating to watch John and Ericka’s interactions, and how they balanced each other so well. They both have individual areas they excel in. For example, John is very interested in nanotechnology and understands math very well. Erika is good with English, especially writing, and is a published author.

DOSS Week. We are greatly appreciative of the opportunity that we had to participate in Disability Awareness week on campus. Our views on disabilities have been changed and we hope others have too.” When asked about their motivation for this inclusion work, another organizer, Alyssa Klein, cited a passage in the Bible, which says, “The eye cannot say to the hand, ‘I don’t need you!’ And the head cannot say to the feet, ‘I don’t need you!’ On the contrary, those parts of the body that seem to be weaker are indispensable, and the parts that we think are less honorable we treat with special honor…so that there should be no division in the body, but that its parts should have equal concern for each other.”

Organizers Anna Boyer and Kendall Young were struck by the power of the week’s activities. “As the five of us were helping put together DOSS Week, we learned more than we could have imagined. We saw the world and specifically our college campus through the eyes of a person with a disability. We were able to learn more about hidden disabilities and Asperger’s syndrome by listening to the speakers and looking at the world through their eyes. Our eyes were opened, and we know “That is our goal,” Klein said, that others were too because of “that each of us, disabled or

“No Access” posters were placed at inaccessible places around Northwestern College campus in Roseville, including Nazareth Hall (above) and Riley Hall (below). not, should be equal and a solid member of every community.” ■

Turning Assumptions Around An interview with Alex Bartolic, Director of Disability Services by Clarence Schadegg and Tim Benjamin

T

his past year, Alex Bartolic took over as the director of Disability Services. Last week, Access Press had the opportunity to speak with Bartolic about how she got to this point, and where we need to be headed.

ended up staying up there for about fourteen years; I started teaching as a special education teacher. And I worked in the Cloquet area because I heard they were going to have open classrooms. It was to be the first time that they would serve students with significant TB: How did you get into this disabilities in that school setfield? ting. AB: I went to school at University of Minnesota Duluth. I was only going to go there for a couple of years and then I was going to come down to the “real U.” Well, I didn’t make it back—and I got a great education. It was very personalized. And it was fun. Actually, I

I wanted that classroom. That was exactly what I had gone to school for; I was very excited. At that time all ages in the public school were in there, four to twenty-one years of age. It was quite an opportunity to really understand that school was a very artificial

setting if you didn’t have a community, a support that could help the family. When I heard about this new thing called “waivers for home and community-based services,” it seemed like a way to really help families with disabilities get the support they needed for life outside of school. From there, I went to work in Carlton County as a case manager for waivered services. It was a very exciting time, and we really made differences in people lives.

AB: Absolutely not! In fact, it was funny that when I was at the county doing case management, I thought, boy, the dream job would be to be an independent case manager. I love working with people and problem solving. Sometimes now it feels like I’ve stepped off a cliff: what am I going to do? But this is a great opportunity to improve our society.

something different than just institutional living. I think about all of the promises of home and community-based services. We’ve made huge strides. Huge strides! In some ways I don’t know if we’ve achieved all of those promises. And I’d really like to see more of those promises become reality. We still have a long way to go to really find out what people have for their CS: It sounds like you’re aspi- own dreams and how to suprations evolved. What do you port them in ways that will make that a reality. So I think aspire to now? it’s time to take it to that next CS: Could you have imagined AB: You know, in some ways level. in ‘82 that you’d be doing what I go back to 1980, 1981, and you’re doing now? 1982 when people were first CS: What’s your exact title talking about wanting to do today?

Alex Bartolic AB: I’m the Director of Disability Services and HIV/ AIDS Division. I’m the director of two divisions. I report to Loren Coleman, who is the Assistant Commissioner for Continuing Care Administration. And the Department Commissioner is Cal Ludeman. [Laughter] I’m lower level. Bartolic - cont. on p. 5

BDC Management Co. is now accepting applications for our waiting lists at the following affordable communities Albright Townhomes Buffalo Court Apartments Elliot Park Apartments Evergreen Apartments Franklin Lane Apartments Hanover Townhomes Lincoln Place Apartments Olson Towne Homes Prairie Meadows Raspberry Ridge Talmage Green Trinity Apartments Unity Place Vadnais Highlands Willow Apartments Woodland Court Apartments

Minneapolis Buffalo Minneapolis Hutchinson Anoka St. Paul Mahtomedi Minneapolis Eden Prairie Hopkins Minneapolis Minneapolis Brooklyn Center Vadnais Heights Little Falls Park Rapids

(612) 824-6665 (763) 684-1907 (612) 338-3106 1-800-661-2501 (763) 427-7650 (651) 292-8497 (651) 653-0640 (612) 377-9015 (952) 941-5544 (952) 933-3260 (612) 623-0247 (612) 721-2252 (763) 560-7563 (651) 653-0640 (320) 632-0980 1-888-332-9312

1 BR 2 BR 2 BR 1 BR 1 & 2 BR 1 BR 2 BR 1 BR 2 & 3 BR 2 BR 2 BR 1 BR (sr) 2 BR 3 BR 1 & 2 BR 1 BR

(Please call each individual site for specific building information. All listings are accessible.)


4

November 10, 2007

This Month’s Issue Sponsor

UCare: UCare complete completes the health care picture

I

ndividuals with physical disabilities have a myriad of health care needs, many of which require specialized and highly skilled care. Unfortunately, fee-forservice health plans can ensnare these individuals in endless red tape while they try to navigate the health care system to get their needs met. That’s why UCare and AXIS Healthcare created UCare Complete. Designed specifically for people with physical disabilities, UCare Complete is offered through the Minnesota Disability Health Options (MnDHO) program, under the auspices of

the Minnesota Department of plan whenever they like. Human Services (DHS). To be eligible for UCare ComUnlike other plans, UCare plete, a person must: Complete combines the ben- • Have a certified primary efits and services of Medical physical disability. Assistance, and Medicare Parts • Be at least 18 years old and A, B, and D (Medicare preunder age 65. scription drug coverage). It of- • Be on Medical Assistance, fers health coordination and with or without Medicare flexible benefits to eligible Parts A and B. adults – with no monthly pre- • Live in Hennepin, Ramsey, Anoka, Dakota, Washington, miums. Coverage is provided Carver, or Scott counties. for a wide range of needed services, including medical equip- • Live in the community or in a skilled nursing facility. ment and supplies, adult day care, foster care, and a wide range of home-based services. UCare Complete’s extensive Because membership is volun- provider network was created tary, enrollees may leave the using input from people with

physical disabilities. The network includes medical specialists, primary care physicians, dentists, and personal care attendants/assistants with leading metro-area clinics and care systems. UCare is an independent, nonprofit health plan offering Minnesota Health Care Programs and Medicare products to more than 130,000 members throughout Minnesota. UCare handles the administrative side of UCare Complete. It established and maintains the provider network, processes enrollments, pays claims, and provides personal customer service and member

AXIS services include organizing acute and preventive care, mental health, transportation services, home health care, home-delivered meals, and chore services, as well as AXIS Healthcare is a joint addressing housing, vocaventure of Courage Center and tional, educational, and soSister Kenny Institute. For cial services needs. UCare Complete, AXIS Healthy Coordinators deter- To learn more about UCare mine eligibility and conduct Complete, contact UCare at the initial assessment. They 612-676-3554, or 1-800-707prepare individual care plans 1711 (toll free), between 8 that promote independent liv- a.m. and 5 p.m., Monday ing with helpful support. Co- through Friday. TTY: 612ordinators are available 24 676-6810 or 1-800-688-2534 hours a day, seven days a week, (toll free). Or, visit www. to secure timely and appropri- ucareorg/visitors/health ate care and services. Other plans/uccomplete.html. ■ communication. UCare also answers member questions about coverage, claims processing, and other administrative and information details.

Personal Care Workers Last Best Friend Pitfalls and rewards of care giving Most Depressed by Chuck Campbell

by Chuck Campbell

P

ersonal care and service workers were more likely to have experienced a major depressive episode (MDE) than people in

any other employment category, according to a National Survey on Drug Use and Health (NSDUH) report released October 11. Among full-time work-

ers aged eighteen to sixty-four, 10.8 percent of personal care and service workers suffered an MDE within the past year. The group with the second highest rate of depression was food preparation and serving workers (10.3 %). An MDE is defined as a period of two weeks or longer during which there is either depressed mood or loss of interest or pleasure and at least four other symptoms that reflect a change in functioning including problems with sleep, eating, energy, concentration and selfimage. Across all employment categories, the annual average was seven percent of full-time workers experiencing an MDE during the years 2004 to 2006, with women experiencing nearly twice as many episodes as men. Employee depression costs U.S. companies an estimated $30 to $44 billion per year, according to NSDUH. ■

A

recent report found that personal care and service workers have the highest rate of major depressive episodes among all professions. While to some this data might back up preconceived notions regarding the stress and occasional heartache associated with care giving, the reality remains too complex for easy answers. Because as anyone who has worked as or with a personal care giver knows, just as there are moments of pain and loss, there can also be many more moments of friendship and fulfillment. The fact that the more negative aspects of these positions are inextricably tied in with the greatest parts perhaps makes the job of care giver that much more enriching. A former housekeeper/companion anonymously discussed perhaps the toughest emotional challenge caregivers face. He recalled an eightynine-year-old client with Alzheimer’s: “He’d forget what he’d just said, but he had a fresh pot of coffee waiting

every morning,” said the caregiver. “The man’s house hadn’t had a good cleaning since his wife died thirteen years before, but he wanted a companion more than a housekeeper.

sense cleaning the man’s house while he died of loneliness, so I had to pull off a balancing act,” said the caregiver. “I told him my supervisor wouldn’t be happy if she found the house dirty, so I had to clean.” They agreed an unhappy supervisor wouldn’t be good. They’d have coffee, then it was cleaning time, then lunch and TV news together, then the caregiver would do the dishes and let Timba out before he left. “That was our winter routine, and the house slowly began shaping up,” he said.

“He just wanted to talk. He’d tell the same stories over and over, but that didn’t matter because he didn’t remember,” said the caregiver. “We’d sit in the living room drinking coffee, with the client’s black and white collie mix named Timba at their feet, and the old man would say: ‘It’s a good life, unless you weaken.’ Then With spring came a big change. he’d smile at me like I was his A friend of the old widower’s best friend.” deceased wife had heard his Alzheimer’s was getting worse, In the living room there was a and thirteen years before she’d portrait-sized photo of the old promised her dying friend she’d guy in uniform. It had been look after him if he ever needed taken sixty years before, when it. She’d been handling his fihe’d been an army cook dur- nances, but now he needed more ing the war. He’d been a big help, and she’d promised. She strong young man. He was still announced that in two weeks over six feet tall, but now he she’d be moving in. walked with two canes. The caregiver panicked. The “My title was housekeeper/ house wasn’t a health hazard companion, but there was no Last Best Friend - cont. on p. 6

Accessible Space, Inc. ASI

HOUSING WITH CARE

Accessible, affordable housing & supportive living options for adults with qualifying disabilities or seniors 62 & older ACCESSIBLE, AFFORDABLE HOUSING

SUPPORTIVE LIVING SERVICES*

• Rent based on 30% of monthly income • A variety of supportive services are • Wheelchair accessible, 1 & 2 BR apts. available for adults with a physical • 1 BR apts. for seniors age 62 and older disability, mobility impairment, • Approved pets welcome! or traumatic brain injury, including • Locations throughout the Metro Area, 24-hour shared personal care Greater MN, and throughout the Nation attendant staff at many locations.

GREATER MINNESOTA LOCATIONS Austin • Brainerd • Champlin • Duluth • Grand Rapids • Hibbing Marshall • Rogers • Rochester • St. Cloud • Stillwater • Willmar

(651) 645-7271 or (800) 466-7722 ~ TTY/TDD (800) 627-3529 Housing Info: ext. 295 ~ Employment Info: ext. 297 (EOE/AA) Apply for housing or employment on-line: www.accessiblespace.org *Eligibility or selection of ASI services is not required to qualify for housing ASI services are not available in all locations


November 10, 2007

5

Commentary

PCA Unions Still Not The Best Option by Lance Hegland

I

’m glad to see continued dialogue regarding the PCA unionization topic and would like to explore some additional comments and questions that have surfaced. Some union proponents have offered reassurance that unionization won’t negatively impact PCA service quality or consumer empowerment because existing consumer protection and advocacy will continue. At the same time, last month’s article presented many concerns with the current system: “extreme chance of consumer abuse due not only to lack of supervision by the hiring agency but also to the

consumer’s inability to physically be in charge” plus insufficient training, wages, and benefits for PCAs. Where were the consumer protection and advocacy organizations when the system began to deteriorate? Where are they now? Are we saying, “as a disability community, we didn’t or couldn’t resolve these concerns ourselves, but hopefully the union can do it for us”? What happened to self-advocacy and empowerment? What happened to “nothing about us, without us”? I think we—as a community, and as advocates—have failed to prioritize and address inadequate training, wages, and benefits

BARTOLIC INTERVIEW -

ON TIME MOBILITY NON-EMERGENCY MEDICAL TRANSPORTATION Also Available for Social Events

Wheelchair, Ambulatory, Walkers, Cains, etc. Serving Hospitals, Nursing Homes, Private Homes, Daycares, Dialysis & Schools Accepting Insurance, MA and Private Payments

Burnsville, MN 55337

Next, I doubt unionization would provide “another layer of consumer protection and empowerment;” unions exist to provide the best representation and advocacy possible for members—in this case PCAs, not consumers. Third, regarding the analogies between union PCAs and

Cont. from p. 3

CS: Do you see a connection people need first is personal between aging and disability? care. If we can’t get out of bed, having educational opportuAB: When people get older, nity, having transportation often they have needs that are opportunity, having all of the similar to people with disabili- other wonderful things that are ties. I think what we have to offered doesn’t help any. search for is how to support all people, as a society, address- AB: I agree—making sure ing all people’s needs, whether somebody is there to give a or not they use public services. hand—however much, howChanging our communities ever little. Some people have will benefit everyone—having someone in their lives (family good transportation, having member, neighbor) that helps sidewalks and the ability to be them, but they just need to mobile, having a variety of figure out how to financially services that can be available reimburse that person. I think to help people regardless of the consumer-directed, selftheir age or the label. directed option is a great approach--give someone the flexTB: How important do you ibility to pay what they need to think it is for leaders in the get the services they need. disability community to have When we look at the a disability themselves? workforce, I think we need to consider benefits and livable AB: I hope I could be effec- wages. People need health care tive without having a disabil- benefits that can sustain them. ity. But I don’t think I can do it This work needs to become a on my own; it needs to be an career. I think we have to look exchange—a partnership. I more broadly at how to really truly feel that I am a public support these direct support servant. I am not here to pur- workers. sue my own vision. I am here to work with people and learn CS: As the state’s population what we need to do from people ages, how are we going to help who are living and breathing prepare that group as they belife with a disability. That’s gin to experience some form what we need to be doing. I of disability? hope I can be effective without a disability and that people AB: Well you know, some of would give me chance. that preparation is helping businesses think of the raw TB: When talking about dis- potential of the work force, ability, often the first thing that and what they need done. This comes up is transportation. shift is part of the focus of the Transportation is important. Pathway to Employment grant, Education is important. All a federal Medicaid infrastrucsocial services are important ture grant. [Pathways is] really at their own level. But what trying to change the entire in-

12751 CR 5 #107

for PCAs. If we continue to shirk our ability to advocate and empower ourselves, perhaps we do need a third-party like a union to resolve the issue for us. But, doesn’t that send the message that self-advocacy and empowerment don’t work?

PHONE: 952-895-1111 FAX: 952-895-1188

frastructure, in state, so that employers and businesses appreciate and recognize people with disabilities as a valued workforce that they can work with. It is not a matter of “what do you need to do to help someone work.” It is a matter of “this is a valuable workforce,” and “what do you need to do to make yourself an employer that people can work for.” It’s turning the assumption completely around.

union employees in other industries, like construction: when a union carpenter or bridge worker goes on strike, the house or bridge can wait and doesn’t collapse; the PCA consumer can’t wait and might collapse.

does not accurately reflect the needs of the constituents it claims to represent? If CCD truly is “dedicated to improving the lives of people with disabilities [by addressing] public policy issues that affect people with disabilities by collaborating with others, advocating, educating, influencing change and creating awareness for understanding,” as their mission statement claims, perhaps the system would not have deteriorated from the countyadministration days? Or, maybe they would have intervened prior to the threat of unionization? The next few months will tell. If CCD ignores this potential threat of unionization and fails to address PCA training, wages, and benefits, the message will be clear.

Fourth, I’m sad to hear the Consortium for Citizens with Disabilities (CCD) portrayed as being comprised “of individual representatives of organizations that represent mostly professional advocacy groups, private for-profit and not-for-profit companies with very little input from those that are directly affected—direct support professionals and consumers.” Is that because direct support professionals and consumers are not providing information — they are not selfadvocating? Or, does CCD have an outside agenda that No matter which group or com-

We also need to help people who might be relying on PCA services and medical assistance for healthcare so they can work and still maintain their benefits. There are ways of still being a part of the workforce without having to lose the support that you need. We need to keep looking at all the problems from many angles. ■

munity is working on the topic of PCA unionization, an understanding of the complexities involved with potential cause-and-effect interactions is critical. For example, last month’s commentary indicated that unions were one of the reasons competitive training, wages, and benefits existed during the late-60s through early-80s and suggested the lack of unions now is one of the reasons for significantly diminished levels of supervision, training, wages, and benefits. I think there may be underlying factors that played a larger role than the lack of unions. Under the former county-run system in the 70s, I believe the 87 counties and state had a closer working relationship than the state and PCA agenPCA Unions - cont. on p. 10

Diamond Hill Townhomes We are currently accepting applications for our waiting list at Diamond Hill Townhomes, a great property located near the Minneapolis International Airport. We have two and three bedroom townhomes that are HUD subsidized and rent is 30% of the total household's adjusted gross income. We have a large number of mobility impaired accessible units and we are scheduling appointments for persons in need of a mobility impaired accessible unit immediately. To schedule an appointment please call (612) 726-9341.

Convenient, Comprehensive, Accessible Care at Courage Center Our experienced Physical Medicine and Rehabilitation physicians treat people with: • Spasticity • Spinal cord injury • Acquired brain injury • Stroke • Congenital disabilities • Health concerns that are barriers to health and independence

Appointments available, call 763.520.0453 – Patient evaluations and management of rehab issues – Neuro and musculoskeletal rehabilitation – Comprehensive spasticity evaluation and management including: therapy, oral medication, splinting, injections with Botox and Phenol, and intrathecal Baclofen pump management and refills

courage.org

Jackie Kawiecki, MD • Bonnie Warhol, MD Patricia Stewart, DO

Rehabilitation Medicine Associates 3915 Golden Valley Road Minneapolis, MN 55422 763.520.0453


6

November 10, 2007

Upcoming Events

LAST BEST FRIEND Cont. from p. 4

To list an event, e-mail access@accesspress.org Arc Open House Nov. 13 Arc Greater Twin Cities invites neighbors and friends to an open house celebrating its move to a new office at 2446 University Ave. W., Suite 110, in St. Paul. Arc’s new office is located near the Mpls/St. Paul border at the intersection of University Ave, Franklin Ave and Pelham Blvd. The open house is an opportunity for community members to tour the office and enjoy refreshments and door prizes. Details: 4:00 – 8:00 p.m. FFI: www.arcgreatertwincities.org or call 952-920-0855. Higher Ground Nov. 15 When Hurricane Katrina struck the city of New Orleans, hundreds of people with developmental disabilities were displaced and cut off from help. Yet direct support professionals stayed with those they supported. For months, they worked long hours for low pay, put others before themselves, providing care and support with improvised resources. Please join us on Thursday to view Higher Ground, which chronicles these events, and to check out the newly renovated Education Sciences Building. Details: Mary McEvoy Room, 325 Education Sciences Building, U of M Minneapolis campus. 2:30-4:00 p.m. Fremont Health Services Gala Nov. 15 Fremont Community Health Services will host a gala event featuring jazz artist Alicia Wiley, auctions, and a special performance by Xelia’s circus artists. All proceeds will support FCHS in providing quality affordable primary health care to the under- and unin-

sured. Details: 5-9 p.m. Aveda Institute, 400 Central Ave. SE., Minneapolis. $25 in adv, $30 at door. FFI: 612-287-2425 or www.fremonthealth.org.

locations, 9 a.m.-3 p.m. Our Lady of Grace Church, 5071 Eden Ave., Edina; City Hall Public Safety Training Room, 3400 Plymouth Blvd., Plymouth; Anoka Regional Treat(con)Text Art Exhibit ment Center, 3300 4th Ave. N., Nov. 16-Dec. 21 Anoka. Registration is reFrom graphics to word salads, quired. FFI: NAMI-MN at this exhibition illustrates the 651-645-2948. power of text in the work of Interact artists. Novel and Santa Run to Benefit Legal Aid unique in their approaches, the Dec. 1 artists use text in a wide variety of ways. The exhibit continues the Interact Center’s goal of creating art and challenging society’s view of disability. Friday’s opening reception features refreshments and a studio sale. Details: Inside Out Gal- Run, walk or stroll a mile and lery, 212 3rd Ave. N., #140, a quarter to support free civil Mpls. Hrs: Mon-Fri, 12-4 p.m. legal services for poor and disFree. FFI: 612-339-5145 or advantaged Minnesotans. On www.interactcenter.com. run day you’ll get your red Santa suit and white beard. MS Annual Convention Kids under 12 get a Santa hat. Exhibit Hall There’s music and hot chocoNov. 16 and 17 late and more fun than anyone More than 80 exhibitors show- has ever had in a Santa suit! casing products and services You can pick up your Santa for people with disabilities will suit beginning at 2 p.m., and be featured at the National MS don’t forget to bring a toy for Society, MN Chapter’s Exhibit the Toys for Tots collection. Hall Friday, Nov. 16, from 7 to Details: 4 p.m., run begins and 9 a.m. and 5 to 6 p.m., and ends at downtown YWCA, Saturday, Nov. 17, from 8 a.m. 1130 Nicollet Mall. FFI: www. to 3:30 p.m. and 4:30 to 6 p.m., active.com/event_detail.cfm at the Hyatt Regency Mpls. To ?event_id=1487207. learn more, visit www.MS society.org or call 612-335- Spaghetti Dinner Benefit 7900, or see NAG- p.6. Dec. 6 Michael (Jason) Weese was Mental Illness Family Wkshp on the 35W bridge when it Dec. 1 collapsed. He suffered mulNAMI-MN will hold a free, tiple injuries including a broone-day education workshop ken back. Jason and his wife, titled “Hope for Recovery” for Kimberly, have two young families who have a relative boys (5 yrs and 5 mths). Jason with mental illness. Family is on short term disability but members will find out infor- it is not sufficient to meet their mation about mental illness, needs during this difficult time. treatment options and how to Join us for a dinner, bake sale provide support. Details: three and silent auction to raise

Public Comment Session Minnesota State Council on Disability The Minnesota State Council on Disability will hold a public comment session as follows: WHEN: 1 p.m. Thursday, December 13th WHERE: MN State Council on Disability

Metro Square Building 121 East 7th Place, Suite 160 Saint Paul, Minnesota 55101

If you have comments or concerns to publicly address about expanding opportunities, improving the quality of life, or empowering persons with disabilities, you are strongly encouraged to participate in this public comment session. Minnesota State Council on Disability 651-361-7800 V/TTY or 800-945-8913 V/TTY council.disability@state.mn.us or visit www.disability.state.mn.us

money for those costs. Details: 4:30-8 p.m. Shoreview Community Ctr, 4600 Victoria St. N., Shoreview. FFI: 651-6332921 Anxiety Support Group Ongoing The National Alliance on Mental Illness of Minnesota (NAMI-MN) sponsors free support groups for persons with anxiety disorders. The groups help individuals develop better coping skills and find strength through sharing their experiences. An Open Door Anxiety and Panic support group meets twice monthly. Details: two groups; 6:30 p.m., 2nd and 4th Monday each mth at Lenox Community Center, 6715 Mtka Blvd, Fire Place Rm 2 (lower level), St. Louis Park; and 6:30 p.m., first and third Thursday each month, Gloria Del Church, 700 Snelling Ave. S., St Paul. FFI: Judy at 612-377-2467 or www. namimn.org. Art & Healing: Mind Fields Exhibit Ongoing Explore the many dimensions of the invisible and make psychological realities tangible. Art & Healing: Mind Fields is a unique opportunity to see the mind from the inside out. This new exhibit from Intermedia Arts takes a frank and creative look at neurological and mental health—inviting local artists and health care practitioners to address the ways in which artistic expression can be used as a tool for healing. Details: Mon-Sat, 12-5 p.m. 2822 Lyndale Ave. S., Mpls. FFI: www.intermediaarts.org or 612-871-4444. ■

anymore—the guys could talk, drink coffee, and watch TV. A little dust and dog hair never hurt anyone. But now he had two weeks to turn this guys’ hangout into grandma’s house! He got authorization for extra hours making the house grandma-friendly while still being a companion. He didn’t want the woman to think he hadn’t been working. “I know, dear,” she said with an approving smile. She understood perfectly. “She was fussy, like old ladies should be—hadn’t lowered her standards,” said the caregiver. The sidewalks were swept after the lawn was mowed. She used a walker inside, and directed flower gardening through window screens. She understood the old man too. “He was never close to any woman except his wife,” she said. “When us girls came over he’d be in the yard or garage.” She’d known him for forty years; he needed a guy friend. The woman caused some major disruptions; she thought carpets needed shampooing every couple of decades, for instance. The old man would grumble, “Why can’t you leave things be?” and the caregiver played peacemaker, “Oh, just let her—you know how women are.” “Yeah—a pain in the butt!” the old man bellowed, then smiled as if to say, guess I told her! The caregiver caught a radiant smile from the old woman who understood everything. She also thought the old man needed a check-up, and that seeing a doctor required a shave and a button-down shirt.

“After that ordeal we drove around the neighborhood where he’d lived all his life,” said the caregiver. “He showed me the park where he’d played ball as a kid.” Then one night he fell and broke his shoulder. “The hospital says he’s not eating,” said the woman. I’ll fix that, the caregiver thought. After taking care of the woman, Timba and the house, he made the old man’s favorite, chicken corn chowder, that always got an “Oh, boy!” “But when I got to the hospital he didn’t even recognize me,” said the caregiver. “The nurse said he was too old and frail for the shoulder to heal. They’d given him painkillers and sedatives.” “I stayed on for a while working for the woman who’d come to help take care of him,” said the former caregiver. “She didn’t let me get depressed. She eventually moved in with her son and his wife,” he said. “The last time I saw her she just glowed—that’s how I remember her.” He hasn’t taken on another client, but wouldn’t rule it out. “I couldn’t work in a hospital or nursing home though,” he said, “You’d have to be a strong person.” Then he had a question: “Does this study mention job satisfaction?” he asked. “Caring for people isn’t assembly work. Spend fifteen or twenty hours a week with someone for months—even years; you become part of each other’s lives,” he said. ”On your worst day you lose a friend, but on good days their face lights up just because you came to work. I was that old man’s last best friend,” he said, “and I’m glad I was.” ■

Experience products and services that help make life easier for people with disabilities Exhibitors include:

MS Annual Convention Exhibit Hall Hyatt Regency Minneapolis Friday, Nov. 16 7–9 a.m., 5–6 p.m. Saturday, Nov. 17 8 a.m. –3 p.m., 4:30–6 p.m. The Exhibit Hall, held in conjunction with the National Multiple Sclerosis Society, Minnesota Chapter’s MS Annual Convention, is free and open to the public.

Independent living products and services

Home modification and remodeling

Vehicle modification

Legal and financial assistance

Travel planning

Adaptive technology

Service dogs

And much more

To learn more, visit www.MSsociety.org or call 612-335-7968.


November 10, 2007

7

News At A Glance . . . CAN DO initiative continues through November modification, adaptive technology, chore services and more. Rehabilitation psychologists, counselors and chaplains should The Collaborative Action Network Developing Opportunities (CAN DO) Initiative is bringing Minnesotans together from a variety of perspectives to formulate and take action to improve the lives of people with disabilities. Minnesota has a strong history of supporting people with disabilities but there is more that can be done. The intent of the CAN DO effort is not to design a great, overarching plan but to connect the many talented individuals and committed groups around the state into a collaborative network of action. The initiative is focused on creating and maintaining a network of people and organizations with a CAN DO attitude who effectively work together to design, implement and evaluate innovative support approaches that make a difference in the lives of people with disabilities. Here are some of CAN DO’s goals: develop a summary of recommendations from multiple reports and sources on disability services; focus on areas that people with disabilities have identified as vitally important, such as community membership and employment; host eight regional conferences to develop local plans of action; and establish and maintain a network of information and collaborative action. All are welcome to join the initiative, but registration is recommended. Remaining conferences include Owatonna (11/14), Marshall (11/19), St. Paul (11/26) and Duluth (11/29). FFI: Lois Bossert, 651-431-2430 or Lois.Bossert@state.mn.us. [Source: Minnesota Department of Human Services]

MS exhibit to feature range of products for people with disabilities More than 80 exhibitors showcasing products and services for people with disabilities will be featured at the National Multiple Sclerosis Society, Minnesota Chapter’s Exhibit Hall on November 16 and 17 (see Events for details). The Exhibit Hall, held in conjunction with the Minnesota Chapter’s MS Annual Convention, will highlight companies offering a wide range of products and services including assistive devices, home modification and remodeling, vehicle

The event offers people with MS and other disabilities an opportunity to learn more about products and services available to help improve quality of life and promote independent living, speak with company representatives and interact with various products firsthand.

work together to initiate forgiveness interventions. Patients who were injured as the result of others actions may find easier recovery if they can use their religious beliefs to work through emotions surrounding the cause of the disability. [Source: News Bureau, U. of Missouri-Columbia]

Bacterial infections on the rise For more information visit www.MSsociety.org or call 612335-7900. [Source: MN MS Society] According to the November Consumer Reports on Health, a dramatic rise in bacterial infections has recently occurred Religion and disability should mix, study says because of both consumer and medical negligence. Although most antibacterial infections can be treated with at least one Research shows that spirituality is linked to positive physical antibiotic, emerging problems exist. These include the fact that and mental health; however, most studies have focused on nearly one in three pneumococci—the bacteria responsible for people with life threatening diseases. A new study from the many pneumonia—has become resistant to penicillin, and one University of Missouri-Columbia shows that religion helps in ten is resistant to most antibiotics. Also, few if any antibiotics many individuals with disabilities adjust to their impairments work against a bacterium called Acinetobacter baumannii, and gives new meaning to their lives. which has infected the wounds of many soldiers returning home from Afghanistan, in some cases forcing doctors to amputate According to the study, persons facing impending death may infected limbs. Consumers have contributed to the growing use religion to help them accept their condition and prepare for crisis by not taking antibiotics properly, or in some cases death. However, the study suggests that religion may be an insisting that their doctor prescribe antibiotics for viral infecequally, if not more important, coping mechanism for persons tions, such as the flu, even though antibiotics only work against with chronic disabilities such as traumatic brain injury, spinal bacterial infections. cord injury, stroke and arthritis. In addition, a new CDC study estimates that nearly 19,000 “Although many individuals with disabilities turn to religion to Americans died in 2005 from the Methicillin-resistant Staphyhelp them deal with their situations, to date, religion is infre- lococcus aureus (MRSA), acquired mostly in hospitals. Requently discussed in rehabilitation settings and is rarely inves- porting that almost 95,000 people developed MRSA infections tigated in rehabilitation research. To better meet the needs of that year, the findings underscore the need for hospitals to persons with disabilities, this needs to change,” said Brick improve patient care, most notably by improving their Johnstone, professor of health psychology in the MU School of handwashing compliance rates, which in separate studies have been revealed to be typically below 50 percent—far too low for Health Professions. patient safety. In addition to self-accountability, Congress is The study notes that few practical suggestions exist for how to urged to require hospitals to begin public reporting of patient address religion in health care. Heath care providers should infection rates. The CDC stated that hospital acquired infecencourage religious practices important to individuals, such as tions result in up to $27.5 billion in additional hospital-related yoga, reading of religious texts, or meditation. Students should expenses annually. [Source: Consumer Reports Health News] be taught about various religious beliefs and how they might be ■ used to the patients’ advantage in a rehabilitation setting.


November 10, 2007

8

Carlisles Honored With 2007 Charlie Award Another year’s worth of advocacy celebrated at annual banquet by Jordan Selbo, Staff Writer; Photos by Nancy Sopkowiak

T

his year’s Charlie Smith Community Awards Banquet found friends old and new gathering for a warm night of celebration and connection. From the opening reception’s jovial chatter to the last moonlit goodbyes, those in attendance at Black Bear Crossings in Como Park once again enjoyed this annual event, as the intimate atmosphere of a capacity crowd allowed the chance to both solidify and reminisce on old friendships while also making new ones.

2007 Charlie Smith Community Award recipients Jim and Claudia Carlisle, founders of People Enhancing People

After opening remarks by Access Press Board Chair Mike Chevrette and Executive Director Tim Benjamin, guests enjoyed a turkey dinner and the continued jazzy stylings of pianist Larry McDonough. Two departing board members, JoAnn Cardenas Enos and Mary Kay Kennedy, were then recognized for their outstanding service over the years, both using their exits to elicit smiles rather than tears with jokes and sincere thanks. The evening’s apex came with the awarding of the Charlie Smith Community Award to Jim and Claudia Carlisle, two

Tim Benjamin, Jim and Claudia Carlisle, Ronna Linroth and Mike Chevrette.

Mary Kay Kennedy, John Kerrigan and Kenny Sinn longtime members and advocates of the disability community. Through the speakers who chose to introduce them, their

legacy was clearly on display. While being admired for their shared tenacity and lifelong activism, it was evident from

Becky Cashin, Ron Franke and Patty Woodey the frequent laughter that this couple also values humor as a tool in overcoming adversity. With an ultimate legacy of spreading inspiration and

Jazz pianist Larry McDonough, playing a song written by his daughter.

JoAnn Cardenas Enos, Bruce Sinn-Brown, Kenny Sinn, Brigid Alseth and Rick Cardenas

The Village Condominiums at Silver Lake Village The Complete Lifestyle

LIVE

PLAY

EAT

awareness to anyone they’ve how we continue the struggle, come into contact with, the and if we’re lucky, continue it award winning couple re- with a smile. ■ minded us all exactly why and

JoAnn Cardenas Enos and Mary Kay Kennedy with their awards.

by Design SHOP

WORK

Customized homes to meet your needs. Luxury & comfort in your home. Entertainment and convenience right outside your door. NEW furnished models available for viewing. Immediate Possession. From $190K’s to $500K+ More than 16 customized home plans.

Roseville St. Anthony

Call today:

612.781.0224

w w w. s i l ve r- l a k e - v i l l a g e . c o m

Rosedale

36

Lance Hegland, Mike Harrison, Black Bear server, Kent Fordyce, Jordan Selbo, Jenny Diaz and Scott Adams.


November 10, 2007

9

MCIL Celebrates Annual Midway Training Services Dinner With Rep. Madore Opens New Branch by Julie Wegscheid

by Bret Hesla, Staff Writer

I

M

innesota House of Representatives Member Shelley Madore of Legislative District 37A was the keynote speaker at the Annual Celebration Dinner for the Metropolitan Center for Independent Living on October 24th. The title of her address was “What’s Happening with Disability and the Legislature?� Rep. Madore was elected to the Minnesota House in 2006 and is the mother of two children with disabilities. During her speech, she shared many of her family’s trying experiences. These clearly provide her with an invaluable perspective in shaping an active political and legislative agenda to assist those with disabilities. Madore reminded the audience that nearly twenty percent of the people in Minnesota currently have a disability, and that at some point in our lives most will have a disability, calling herself only “temporarily able-bodied.� She urged the listeners to not be afraid to talk with their legislators. The legislators need to know that people with disabilities have a fundamental right to personal dignity.

David Hancox, Ann Roscoe and Rep Shelley Madore

MCIL Annual Awards David Hancox, Executive Director of MCIL, presented the following awards: Five Years of Employment: Brenda Hicks, PCA Program Specialist; Tanya Swedo, Fiscal Manager and Human Resources; and Julie Wegscheid, Independent Living Specialist. Fours Years on the Board of Directors: Julia Washenberger Outstanding Independent Living Consumer: Mary Kubei Outstanding Peer Mentoring Team: Jon Lounberg (mentor) and Larry Tegtmeier (mentee) Outstanding Personal Care Attendant Awards: Aubert Annicette, Emily Godfrey, Arianna Konkel, Tracey Dixon and Ann Sadek. Community Service Award: Kim Peck, Director, Branch of Rehabilitation Services, Department of Employment and Economic Development, State of Minnesota Volunteer Award: Lee Perish

The audience gave Represen- Special Community Service Award: Bob Zimmerman, Rehabilitation Counselor, Department of Employment and tative Madore an enthusiastic Economic Development, State of Minnesota response, and was clearly excited by what she embodies— the opportunity for positive the last year. In one instance, phone – a very important role.â€? political action. Hall pointed out Administra- This was the twenty-sixth anThe enthusiasm continued tive Coordinator Betty Culver niversary celebration for serthroughout the evening as to be honored for her work, vices to the disability commuGeorge Hall, MCIL Chairman describing her as “the voice of nity provided by MCIL. [For a of the Board, asked MCIL staff MCIL, the first person people full list of the night’s honorto stand and be acknowledged see when they walk in the door ees, see the shaded box above.] for high quality service during and first to talk to them on the â–

f you bring a big pile of documents to St. Paul’s new Business Solutions to get them scanned and put on disc, you’ll get more than a solution to your shortage of storage space. You’ll also be promoting community integration. Midway Training Services (MTS) recently announced the opening of a new Business Solutions branch at 1953 University Ave. The new MTS has a dual mission. First, it provides the community with a unique service: document archiving. The University Avenue storefront prepares documents, scans them and saves them electronically for customers wanting to save money on cold storage costs. Digital imaging also makes document retrieval easier and more efficient. Second, the new MTS branch provides employment and life skills training to persons with disabilities. MTS was started in 1965 by parents who were concerned about the lack of services for their adult children who had what are today known as developmental disabilities. Volunteers started serving a handful of people from the St. Paul Midway area. Since then MTS has expanded to serve 225 persons who have cognitive, physical or mental health disabilities. MTS has five branches located throughout Ramsey County.

Computerized Desktop Publishing: Advertisements Brochures Catalogs Flyers Logos Newsletters Newspapers and More! Ellen Houghton • 952-404-9981 presentationimages@mn.rr.com

David’s Print Shop &CXKF Ä‚&WXKFNă JCU DGGP FQKPI Ä&#x;PG RTKPVKPI UKPEG CPF JCU QYPGF JKU QYP RTKPV UJQR CV VJG EQTPGT QH 7PKXGTUKV[ 2TKQT UKPEG 0QTVJ 2TKQT #XG ć 5CKPV 2CWN /0 2JQPG ć (CZ YYY FCXKFURTKPVUJQR EQO

employees to hire. “MTS has a pool of motivated, trained and supported individuals who can be an asset to any business seeking a reliable workforce,â€? stated Bob Brick, President/ CEO. “Our business partners include retailers, manufacturing firms, non-profit organizations, post secondary schools, restaurants, law firms and others interested in saving money and accessing dependable workers. At MTS, participants can take advantage of the rare combination of skills training and work experience to build their resume and become more employable. And the public can take advantage of the services they provide along the way. â–

Not only can customers make use of the digital imaging ser- For more info, contact John vices, they can also look to Hoffman, 651-288-8935, MTS for new, high quality jhoffman@midwaytraining.com. Joel O.

Sandy A.

Bryan F.

“We are proud of our history in the midway area and look Adam S. forward to providing high quality services to people with dis- Faces of staff and workers at Midway Training’s new Business abilities in our new branches Solutions branch on University Avenue in St. Paul and being a valuable resource for area businesses,� said Bob Brick, President/CEO. The new Business Solutions

A large crowd was on hand to help MCIL celebrate its 26th year

branch currently provides training and employment to 20 people. The focus of the Business Solutions branch is to assist participants in becoming employed. “Participants get the best of both worlds,� says John Hoffman, Director of Marketing and Sales. “We provide job skills training, practicing things like, ‘How do I remember to make eye contact with the customer.’ And we also can employ people in real work on site, not supported employment. They can work anywhere from 2-4 hours a day in paid work, putting their new skills into practice and doing real, needed digital imaging and related work for customers.�

• Newsletters • Brochures • Letterheads, envelopes, business cards • Bar/Bat Mitzvah invitations • We do printing in -0)'9: -7(, English and Hebrew


10

November 10, 2007

FAQ@DLL

Medicare Prescription Drug Coverage— Prepare For 2008 by Disability Linkage Line Staff

I

t’s time to review your Medicare prescription drug coverage for 2008 to make sure you are in the plan that best meets your needs, and to see if you will continue to receive the Extra Help with prescription costs.

For 2008, there will be sixteen benchmark plans. Keep in mind, there are four plans that were benchmark plans in 2007 that will not be benchmark plans in 2008. You should research all plan options and find the best plan to cover your drug needs. To compare plans Q: I already have a Medicare you can go online at www. prescription drug plan. Do I medicare.gov, or call the Disneed to do anything before ability Linkage Line (DLL). 2008 arrives? Q: Will I receive the same A: YES! Everyone enrolled in Extra Help with prescription a plan will soon receive an drug costs next year? Annual Notice of Change from their current plan. Read this A: In 2007, people who autoinformation carefully. Look matically qualified for Extra for changes in costs, benefits Help were Medicare enrollees and drugs that are covered. who were on at least one of the Just because your plan was the following programs: Medical best plan for you in 2007 does Assistance (MA), Medicare not necessarily mean it is still Savings Programs (QMB, the best plan for you in 2008. SLMB, QI-1) and SupplemenIf nothing changed and you’re tal Security Income (SSI). If satisfied with your current you are still on one of these plan, you do not need to do programs you will continue to anything to stay in the plan. If automatically qualify for the you want to change your plan, help. However, if your income open enrollment begins No- changed, you might receive a vember 15, 2007, and ends letter on orange paper letting December 31, 2007. People you know your copays will who are on both Medicare and change for ’08. Medical Assistance can enroll and change plans anytime If you are no longer in one of throughout the year. these three programs as of July 1, 2007, you will receive a People who are getting Extra letter from Social Security on Help for the Medicare pre- gray paper letting you know scription drug costs—and do that you will need to apply not want to pay any plan pre- with Social Security for the mium—need to choose a plan Extra Help and qualify based that is a “benchmark plan.â€? on your income and resources. Âł+RZ FDQ , JR WR ZRUN DQG NHHS P\ KHDOWK LQVXUDQFH"´ ´+RZ GR , UHDOO\ NQRZ ZKLFK EHQHILW ,¡P RQ"Âľ

´,V WKHUH D OLPLW WR KRZ PXFK , FDQ HDUQ RQ 66',"¾

³66, 66', :KDWœV WKH GLIIHUHQFH"´

´,5:( " " " :KDW GRHV WKDW PHDQ"´

³:KDW LV D 7ULDO :RUN 3HULRG"´

*(7 $16:(56

You can fill out the application mailed to you or you can expedite the process by filling it out online at www.ssa.gov. DLL can also help you fill out this application. If you currently receive Extra Help, you might receive a reverification letter (Form 1026) from Social Security. You must fill out this form to qualify for Extra Help in 2008, even if your income did not change, and return it within 30 days. Key tips to help you manage your benefit: • Keep all of the notices and letters you receive. Take the time to read them. • Ask questions. • If you want or need to make plan changes or apply for the Extra Help with prescription drugs costs, act now to assure a smooth transition to 2008. • If you need help, call the DLL. ■The Disability Linkage Line (DLL), 1-866-333-2466, provides free, disability-related information and assistance for Minnesotans (Monday through Friday from 8:30 a.m. – 5:00 p.m.). DLL does not endorse any particular Web site or provider. They assume no responsibility for transactions between the readers of this article and listed organizations.

PCA UNIONS cies today. It was a partnership in service delivery, where the state had a much better idea than it has today of what it cost to provide those services; they trusted the data provided by counties. If counties said service costs increased, the state would adjust funding accordingly. If adequate resources weren’t allocated to provide training or competitive compensation and service quality suffered, the county may have been legally liable, which would eventually cost the state. Both county and state had incentives to adequately fund services. Today, the state has insulated itself from those incentives. There are hundreds of providers which can be difficult to organize into a unified voice. The relationship with the state is much more adversarial. When providers inform the state that service costs have increased, the state indicates there aren’t funds for matching reimbursements. The state simply suggests that the industry trim profit margins, cut costs, and increase efficiency; trying to squeeze blood from a turnip. The state has granted insignificant annual PCA reimbursement increases that barely keep pace with cost-ofliving. When service quality suffers, even systemwide, the state simply blames providers; it would be very difficult to make the case that insufficient reimbursements have created an environment of poor service. In fact, the longer the state can keep agencies, PCAs, and consumers blaming and fighting with each other, the longer it can avoid addressing the issue. How will unions help

+HOSLQJ SHRSOH ZLWK GLVDELOLWLHV JHW EDFN WR ZRUN ZLWK FOHDU DFFXUDWH LQIRUPDWLRQ DERXW HIIHFWV RI ZRUN RQ EHQHILWV

by pressuring agencies, who’ve already been begging the state for increased reimbursements? Such pressure would be as effective as threatening to invade Mexico if Iran doesn’t submit to nuclear audits! The state will only increase reimbursements — which providers can then use to increase supervision, training, wages, benefits, and recruitment incentives for competent and quality PCAs;

plicable.â€? Agencies are generally doing the best they can with limited resources and difficulty recruiting. As far as legal remedies, those investigation and enforcement systems are currently flooded and ineffective—vulnerable adult investigation units are swamped with cases. Most cases are closed without investigation unless a busy county attorney feels a case is so outrageous as to almost guarantee a win. Who would “Who would be held ac- be held accountable if a PCA skipped their shift, the countable if a PCA homecare agency couldn’t afskipped their shift, the ford to maintain a reliable homecare agency [could backup system, and the connot] afford to maintain a sumer ended up in the hospital reliable backup system, dehydrated, malnourished, and with post-traumatic anxiety? and the consumer ended The PCA may be fired, but s/ up in the hospital ‌?â€? he could simply go to the next homecare agency desperate for which in turn will increase workers and be back to work quality for consumers—if and as a PCA the next week. only if consumers, PCAs, families, friends, and advocates I firmly believe action initiwork together to form a uni- ated in partnership with PCAs, fied front from which to push consumers, families, friends, for budgeting and reimburse- and providers would be the ment increases. most healthy solution; not unions. â– Finally, I didn’t “incorrectly assume that a company that Lance Hegland is a PCA conhires a PCA is no longer in- sumer; supporter of PCAs’ volved and has given up its rights to livable wages, benresponsibility to the consumer efits, and working environand that somehow federal ments; consultant; and MBA HIPA [sic] and state vulner- student studying health-care ability laws are no longer ap- policy and systems.

Get BARRIER-FREE ENVIRONMENTS using PRACTICAL SOLUTIONS. Stairway Lifts Ę• Wheelchair Lifts Ę• Residential Elevators Ę• Ramps Power Door Operators Ę• Trained Service Technicians Ę• And More

Voice: 800-626-6017 Ƈ 507-455-3553 E-Mail: moreinfo@tri-state-lift.com Website: http://www.tri-state-lift.com/ Serving Minnesota, Wisconsin and Iowa

Offering Organizations Working throughout Minnesota's Aging and Disability Community a Variety of TOOLS AND ASSISTANCE with STRATEGIC PLANNING AND MARKETING That ENHANCE COMPETITIVE ADVANTAGES.

Join

0DLQ 77< 7ROO )UHH ZZZ PQZRUNLQFHQWLYHV FRP

Cont. from p. 5

our

NETWORKED TEAM that BUILDS PARTNERSHIPS to gain and retain ACCESS TO RESOURCES, including the KNOWLEDGE AND SKILL to efficiently use those resources, in order to EMPOWER each toward SUCCESSFUL PURSUIT OF GOALS.

PRECISA, Inc.

701 Main Street Southeast, #517 Minneapolis, Minnesota 55414-2958 Voice: 612.378.7028 E-mail: info@precisainc.com Website: http://www.precisainc.com/


November 10, 2007

CMS# H2409, H2410, H2450, H2458, H7526_1410(09-2007) © 2007 Medica

TAILORING MEDICARE INFORMATION FOR YOU After enrolling in her plan, Muriel had some questions about her Medicare coverage. That’s when she called Medica. Medica service representatives know that Medicare information is only good if it’s useful. Medica made Medicare easy by cutting through the clutter and tailoring the information that allowed her to make a confident decision. “I would have expected nothing less,” Muriel said. Raise your Medicare expectations. Call 1.800.906.5432 today or contact your broker.

©2007 Medica. “Medica®” refers to the family of health plan businesses that include but are not limited to Medica Health Plans and Medica Insurance Company, which contract with the Federal Government. TTY 1.800.234.8819. Our hours are 8 AM to 8 PM, CT, seven days a week. Please note that access to a representative is limited on the weekends/holidays during certain times of the year.

11


12

November 10, 2007

Home Access Answers

Power Planning Electrical considerations for new home construction by Jane Hampton Dear Jane, I am an electrician and am working on a new construction project for a family where the mother uses a wheelchair. What should I be aware of as I am installing electrical outlets and switches in their home? Hank, Stillwater, MN Dear Hank, The beauty of new construction is “customization.” Prior to rough-in you need to walk through each room of the house with this family to identify all code required electrical features as well as additional electrical requests specific to this family. Be sure to keep asking if there will be any special equipment or unique activity within each room which may dictate electrical features above and beyond the “norm.” I would recommend identifying the range of highest reach and lowest reach for this woman. Those measurements will provide you with the boundaries within which you can install switches and outlets. You should also identify whether it is easier for her to use her right hand or left hand;

this information helps you decide the horizontal position for switches and outlets, which is especially important in the bathroom and kitchen. When roughing in electrical components, all final mounting heights should be measured above the “finished” floor, not the subfloor. Therefore you will need to take into consideration the height of the floor material when roughing in the electrical components. All wall outlets should be installed higher than standard, approximately 24” to 30” above the finished floor. All light switches should be mounted between 36” and 42” above the floor. Rocker-style switches are easier to operate, if any of the family members have limited dexterity. In some rooms, ask if motion-activated switching would be helpful.

top. If that is not an option, we position the outlets above the counter backsplash, no higher than 42” above the finished floor with the longest dimension mounted horizontally. If the family is considering installing appliance lifts in base cabinets to make it easier to retrieve a mixer or food processor, consider installing outlets inside the cabinet for each appliance or ensure an easyto-reach outlet is located adjacent to the appliance lift. For venting hoods over a range or cooktop, be sure to wire the switches that operate the light and fan to a wall switch or a switch located on the front trim of an adjacent base cabinet.

In the bathroom, position an electrical outlet for a hair dryer on the side of the sink that is easier for this woman to reach. Many individuals with reach Position the outlet within an limitations have difficulty arm’s length on a side wall or reaching electrical outlets and on the front face of the vanity. switches over kitchen counters. As a result, we often position Vapor-proof lighting should important outlets and switches be provided over bathtubs and on the front face of base cabi- in showers. Many individuals nets, just below the counter with disabilities appreciate

having a heat lamp installed near bathing areas, as it takes them longer to undress, bathe and re-dress, and they often have a tendency to be chilled. In the bedrooms, especially the daughter’s bedroom, provide at least one four-plex outlet at the head of the bed, if not two four-plex outlets. For safety, additional outlets are often needed to accommodate multiple items such as a clock, radio, lamp, cordless phone, fan, intercom and electric bedframe. Task lighting is important in all areas of the home: under wall cabinets, over work areas, in closets, at mirrors, in stairways. In the laundry room, identify a location for ironing and ensure the position of the electrical outlet dedicated for the iron is located so the iron’s cord is not in the way. Ensure that the main electrical panel is in a location that is reachable by this woman…on an accessible floor level and mounted within her accessible

reach range. Coordinate with the mechanical contractor to ensure all environmental controls, such as the thermostat, are at a height that is easily reachable.

ensure that no ceiling mounted fixtures, lights, fans or smoke detectors are positioned where a future ceiling track would be installed. This planning will eliminate costly electrical expenses down the road if a ceilIf this woman uses an electric ing track is installed. wheelchair, the battery will need to be recharged every With careful attention to denight. It is helpful if there is a tail and thorough planning with dedicated outlet mounted ap- this family prior to rough-in, proximately 36” above the fin- you should be able to meet and ished floor in a location where exceed their expectations. ■ the wheelchair is parked out of any pathway. Do you have a question for Jane? We’ll cover all of your Review needs for power door questions in future issues of openers, elevator, lifting Home Access Answers. Please equipment, automated win- contact us at 952-925-0301, dows or window coverings. www.accessibilitydesign.com, You may need to consult with or info@accessibilitydesign. a manufacturer’s representa- com. Jane Hampton, CID, tive or installer directly for Access Specialist and presiany specific instructions re- dent of Accessibility Design, garding location and voltage. founded the company in 1992 And don’t forget garage and to enhance lives through deexterior issues for electrical sign and project management. and additional lighting. They provide design, consultation, project management, Finally ask the family if they and product recommendation would ever consider installa- services specializing in home tion of a ceiling track lifting access for individuals with disdevice for transfers within the abilities at all stages of life. bedroom or bathroom. If this is even a remote possibility,


November 10, 2007

13

Accessible Performances The following performances will be Audio Described (AD) for people who are blind or have low vision, or Interpreted in American Sign Language (ASL) for people who are deaf or hard of hearing. Selected performances offer reduced admission prices for the patron and one companion. When calling a box office, confirm the service (ASL or AD), date, time, ticket price and anything else needed, e.g. length of performance, etc. If you attend a show, please share your feedback with the performing organization, interpreter, and VSA arts of Minnesota. Accessible performance information is compiled by VSA arts of Minnesota, 612-332-3888 or www.vsaartsmn.org. Abababa Alife Nov. 17 Jeanne D’Arc Auditorium, Whitby Hall, 2004 Randolph Ave., St. Paul. ASL: Sat., Nov. 17, 7:00 p.m., Tix: $10, $5 student/senior, E-mail: aamundsen@charter.net Web: www.abababatour.com Anton in Show Business Nov. 9 - Dec. 2 Starting Gate Productions at Mounds Theatre, 1029 Hudson Rd, St. Paul. AD: Sun., Nov. 25, 2:00 p.m., Tix: Disc to $10 (reg. $18, $16 student/ sr), Phone: 651-645-3503, Web: www.startinggate.org Avenue Q Jan. 1 - 13 State Theatre, 805 Hennepin Ave. S., Mpls. ASL: Sun., Jan. 6, 1:00 p.m. Tix: $27-67, AD: if req in adv, Phone: 612-3735639 or 5609, Hotline: 612373-5650, TTY: 612-3735655, E-mail: accessible@ orpheum.com Web: www. hennepintheatredistrict.org/ guestservices/aslad/ The Best Christmas Pageant Ever Nov. 30 - Dec. 16 Bloomington Art Center Gallery Theater Co. at Bloomington Civic Plaza Black Box Theater, 1800 W Old Shakopee Rd., AD and ASL: Sun., Dec. 2, 2:00 p.m., Tix: $17, $14 senior/student, Phone: 952-563-8575, Web: www.bloomingtonartcenter.com The Best Christmas Pageant Ever Dec. 1 - 22 SteppingStone Theatre, 55 Victoria St. N., St. Paul. AD: Fri., Dec. 7, 7:00 p.m. (evening AD on request), ASL: Sun., Dec. 9, 2:00 p.m., Tix: $11, student/senior $9, Phone: 651225-9265, Web: www. steppingstonetheatre.org Between the Worlds Nov. 24 - Dec. 21 Interact Center for Visual and Performing Arts at Mixed Blood Theatre, 1501 S. 4th St., Mpls. AD, ASL, Captioning: Sat., Nov. 24 upon request by Nov. 16, also Dec. 15, 3:00, Tix: Nov. 24 Opening night Un-Gala $50 (food 6:00, Kevin Kling 7:00, show 7:30, dessert 8:45); show only $30, other performances $16 (Disc to $10 for AD/ASL patrons), Phone: 612-338-6131, FFI: 612-3395145, Web: www.interact center.com or www.mixed blood.com Babes in Toyland Nov. 30 - Dec. 18 Youth Performance Co. at Howard Conn Fine Arts Center, 1900 Nicollet Ave., Mpls. AD and ASL: Fri., Dec. 14, 7:30 p.m., Tix: Disc to ½ price; reg. $10, student 14/under or

sr $8; adv reserv. req for AD, Tix/Phone: 651-224-4222, Phone: 612-623-9080, Web: TTY: 651-282-3100, Web: www.youthperformanceco.com www.ordway.org/services/ access.asp or www.theater Black Nativity: Twenty latteda.org Years of Holiday Cheer The Deception Nov. 29 - Dec. 30 Oct. 13 - Nov. 25 Penumbra Theatre, Martin Luther King Ctr, 270 N. Kent Theatre de la Jeune Lune, 105 St., St. Paul. ASL: Sat., Dec. 8, N. First St., Mpls. ASL: Fri., 7:00 p.m., AD: Sun., Dec. 23, Nov. 16, 8:00 p.m., Tix: Re2:00 p.m., Tix: Disc to $8-$28 duced to $15 (code ADASL); (reg. $15 student - $35), Phone: reg. $20-28, Phone: Ticket651-224-3180 (specify ASL or Works 612-333-6200, FFI: AD), E-mail: box office@ 612-332-3968 x100, Web: penumbratheatre.org Web: www.jeunelune.org www.penumbratheatre.org Dousing the Mirage: An exploration of human negoA Christmas Carol tiation over the water of life Nov. 20 - Dec. 29 Nov. 9 - 18 Guthrie Theater, Whitney Proscenium, 818 - 2nd St. S., Aniccha Arts at Center for InMpls. ASL: Tues., Dec. 4, dependent Artists, 4137 10:30 am; Sat., Dec. 8, 1:00 Bloomington Ave. S., Mpls. p.m.; Tues., Dec. 11, 7:30 p.m., ASL and AD: Sat., Nov. 17, AD: Sat., Dec. 8, 1:00 p.m.; 7:30 p.m.; request AD or ASL Tues., Dec. 11, 7:30 p.m., Tix: in advance, Tix: $12-14, Reduced to $18; reg. $27-$57, Phone: 612-724-8392, Web: Phone: 612-377-2224, TTY: www.c4ia.org/events 612-377-6626, Web: www. Frog and Toad guthrietheater.org/visit/the_ Nov. 13 - Jan. 5 building/access_services Children’s Theatre Co., Cargill A Christmas Carole Petersen Stage, 2400 - 3rd Ave. S., Mpls. AD and ASL: Fri., Dec. Dec. 7 - 29 Theater Latte Da at Ordway 14, 7:30 p.m.; student matiCenter for the Performing Arts nees available upon request, McKnight Theatre, 345 Wash- Tix: Mention VSA Offer for ington, St. Paul. AD and ASL: $13 tix, Phone: 612-874-0400, Thurs., Dec. 13, 8:00 p.m., www.childrenstheatre.org

Nov. Sampling of Radio Talking Book •4:00 a.m. Chautauqua–Adult education and culture for the whole community •9:00 a.m. Past is Prologue–Readings of historical nonfiction •11:00 a.m. Bookworm–Novels and nonfiction books for daytime reading. This month: The Secret of Lost Things, Fiction by Sheridan Hay, 2007. A young Australian woman comes to New York and gets a job in a huge used and rare bookstore. When the manager’s eyes begin to fail, she becomes his reader, so she is the first to read the letter about a lost manuscript by Herman Melville. L-Read by Carol Lewis. 11 broadcasts. Begins November 28. •2:00 p.m. Potpourri–A wide variety of books, both fiction and nonfiction, for afternoon reading •4:00 p.m. Choice Reading–Critically acclaimed books on a wide variety of subjects •5:00 p.m. Commentary–The latest issues of national news magazines •6:00 p.m. Evening Newspapers–Live broadcast of the New York Times •7:55 p.m. Radio Talking Book schedule for the rest of the broadcast day •8:00 p.m. PM Report–Books discussing critical, contemporary and controversial issues •9:00 p.m. Night Journey–Books of intrigue and suspense •10:00 p.m. Off the Shelf– Mostly best sellers. This month: The Last Empress, Fiction by Anchee Min, 2007. At the end of the nineteenth century in China, the one constant was the woman known as Empress Orchid, who realized only she could hold the nation’s rival factions together and reduce the violence. L- Read by Licia Swanson. 13 broadcasts. Begins November 28. •12:00 a.m. Good Night Owl–A wide-ranging assortment of books •1:00 a.m. After Midnight–Adventures of the heart and body *Abbreviations: L- Language

RTB Books Available Through Faribault All books broadcast on the Minnesota Radio Talking Book Network are available through the Minnesota Braille and Talking Book Library in Faribault. Their phone is 800-7220550 and hours are 7:30 a.m. to 5:00 p.m. Monday through Friday. Their catalog is also online, and you can access it at www.klas.com/mnbph.

Hidden Yearning Dec. 7 - 8 Intermedia Arts, 2822 Lyndale Ave. S., Mpls. Leili Pritschet and Collaborators perform a cross-cultural tapestry of Persian classical dance, multi-cultural music, video and Sufi poetry, with Deaf dancer Canae Weiss, AD and Captioning: Fri. and Sat., Dec. 7-8, 8:00 p.m., Tix: $15, Phone: 612-871-4444, Web: www.intermediaarts.org Holiday Traditions Nov. 23 - Jan. 13 Mpls Institute of Arts offers free ASL-interpreted public tours, 1st Sun. of mth, 2400 3rd Ave. S. ASL: Sun., Dec. 2: Period Rms tour begins at 1:00 p.m. in the Bell Decorative Arts Court, 3rd flr; 2:30 p.m. at the Purcell-Cutts House (shuttle bus avail); Thurs., Dec. 6, 7:00 p.m. in Period Rms, Tix/Phone: 612-870-3131 or TTY: 612-870-3132, E-mail: dhegstrom@artsmia.org Web: www.artsmia.org Homespun Holidays Dec. 7 - 9 Twin Cities Gay Men’s Chorus at Ted Mann Concert Hall, U of M, 2128 - 4th St. S., Mpls.

ASL: Fri., Dec. 7, 8:00 p.m., La Natividad Dec. 14 - 22 Tix: $19-39, child ½ price, Phone: 612-624-2345, Web: In the Heart of the Beast Pupwww.tcgmc.org or www.nor pet and Mask Theatre at Avalon Theater, 1500 E. Lake throp.umn.edu St., Mpls. AD: Sun., Dec. 16, 6:30 p.m., ASL: Call theater, Hormel Girls Tix: $16-21 Phone: 612-721Nov. 23 - Dec. 23 History Theatre, 30 E.10th St., 2535, E-mail: info@hobt.org St. Paul. AD and ASL: Sun., Web: www.hobt.org Dec. 2, 2:00 p.m., Tix: Disc to Les Miserables $15, Phone: 651-292-4323, Opens June 15, 2007 www.historytheatre.com Chanhassen Dinner Theatres, 501 W 78th St, Chanhassen. Inspecting Carol Nov. 16 - Dec. 16 AD/ASL: Sat., July 21, curtain U of M Centennial Showboat 1:00 p.m., lunch seating begins Players at Harriet Island Reg. at 11:00 a.m. Specify accomPark, St. Paul. ASL: Sat., Dec. modation needed at time of tix 1, 8:00 p.m., Tix: $20, Phone: purchase, Tix: Vision Loss RePadelford Packet Boat Co., sources grp $37 includes lunch: 651-227-1100, FFI: U of M contact Stacy Shamblott, VLR, Theatre 612-625-4001, E-mail: 612-871-2222; other tix (reg. showboat@umn.edu Web: $40-52), Phone: 952-934www.ShowboatTheater.com 1525 or 800-362-3515, Email: information@chanhas Inspecting Carol sendt.com Web: www.chan Nov. 17 - Dec. 23 hassetheatres.com Commonweal Theatre, 208 Parkway Ave. N., Lanesboro. Madeline’s Christmas ASL: Sun., Dec. 16, 2:00 p.m., Nov. 16 - Dec. 30 Tix: ½ price (reg. $25. student Stages Theatre Co. at Hopkins $12), Phone: 507-467-2525, Ctr for Arts, 1111 Mainstreet, Toll Free: 800-657-7025, E- Hopkins. ASL: Sun., Dec. 16, mail: tickets@commonweal 2:00 p.m., Wed., Dec. 19, 10 theatre.org Web: www. a.m., Tix: $15, $11 age 2-17 & commonwealtheatre.org 60+ plus $150 fee per phone/ Performances- cont. on p. 14


14

November 10, 2007

REMEMBER-

Cont. from p. 1

Faribault administration to work with the men in Dakota Building, recounted the first time he entered that building: “I encountered an odor that was familiar from my childhood. It was a mixture of the smell of urine, feces and antiseptic. It was similar to the smell in my grandfather’s cattle barn north of Milaca, Minnesota… Men were milling aimlessly around the room, none wore shoes, many had no shirts and some were naked. The nurse told me the 67 men all had severe or profound mental retardation and were non-verbal. Some sat motionless in the lawn chairs, others rocked, flapped their hands, others screamed or shouted but their vocalizations contained no words, only loud uninterpretable sounds. I was struck by how many had what appeared to be cuts, scars, abrasions and scrapes or wounds in various degrees of healing.” These films and Thompson’s comments are on the Minnesota DD Council Web site at www. mncdd.org/parallels2/videoindex.html. Comparable scenes from Cottage 7 at Cambridge State Hospital will be on the Web site later this year. These scenes, an important and shameful part of this history, ought to have been part of the exhibit, together with an account of Thompson’s success teaching the men in Dakota

Building and the successful cannot learn and grow as he work done by Project Teach in should.” Worse than “survival Cottage 7. care” was “presurvival care,” when only another patient was Dakota Building and Cottage 7 in charge of a ward. In March were truly back wards of the 1965 Robb wrote that 704 of worst sort. But cleaner and less the residents at Brainerd, alcrowded buildings were none- most 60% of them, received theless still barren and sterile only a survival level of care. places, with a resident’s life often spent sitting for hours on The state hospitals of that era a staircase or lying on a bare could not operate without paterrazzo floor. This reality, seen tient labor. In 1968, Dr. Roger in pictures from Cambridge Johnson from Faribault wrote from March 1973, should have that ten years earlier, higher level been displayed as well. patients were doing 80% to 90% of the labor in state institutions. The exhibit could have in- Most of these persons had been cluded Dr. Vail’s February discharged. “We need,” he 1965 Legislative Bulletin in wrote, “many more employees which he acknowledged that to take care of the 2,000 resi“the mental retardation insti- dents we have today than we tutions are operating at a stark needed to take care of the 3,200 survival level that is a wrench we had eight years ago.” In 1968, to the heart.” Vail’s comments Johnson said that Faribault resimay have been prompted by dents were paid a maximum of an earlier analysis of levels of $2.00 a month for work that patient care done by Dr. H.P. benefited the institution. ThereRobb from Brainerd State fore, the full picture of the hisHospital. “Survival care” pro- tory of our institutions would vided the physical care and have to include reliance upon supervision necessary to pre- and exploitation of state hospiserve life, but did not “reason- tal residents. ably assure residents will not suffer serious injury or physi- A full account of the history of cal neglect.” Better than “sur- our institutions would have vival care” was “custodial shown the restraint chair, piccare,” which could attempt to tured on p. 1, in use at Brainerd maintain a resident as he is and State Hospital in 1980. Deto prevent serious injury or spite the awards given Moose physical neglect, but “fosters Lake State Hospital in 1949 ‘institutionalization’ and de- for being restraint free, staff at pendency so that the resident that hospital placed residents with mental retardation in comparable restraint chairs from INDEPENDENT LIVING SKILLS TRANSITION SERVICES the 1970s until the institution HOUSING NEEDS was closed in the 1990s. PaPEER MENTORING poose boards, cuffs on beds, RAMP PROJECT and restraint chairs were used NURSING HOME RELOCATION on residents with mental retarDISABILITY LINKAGE LINE www.mcil-mn.org ADVOCACY dation in other institutions as Phone: 651.646.8342 ACCESSIBILITY Fax: 651.603.2006 well. A thoughtful presentaADA INFORMATION TTY: 651.603.2001 tion of the state hospital hisTECHNOLOGY tory might have considered PERSONAL ASSISTANCE

Not part of the exhibit were photos such as these depicting a sadly common part of many residents’ lives: spending hours in barren surroundings, sitting on a staircase or lying on a bare terrazzo floor.

how Vail’s attack on dehumanization squared with this widespread use of restraint. The Department did not display photographs of rows of numbered graves in state hospital cemeteries, or the overgrown knoll north of the Fergus Falls State Hospital without any markers at all. Nor did they include the ongoing efforts of Remembering with Dignity to correct this dehumanizing practice. A complete and honest history of the institutions would recognize how the people who lived in them were numbered even after death. The institutions for persons with mental retardation have closed. Other state institutions have closed or changed. While it is appropriate to respect and to honor the efforts made by people who administered and worked in those institutions, we should not “Honor the Past.” Rather, we should “Remember the Past” to create a better future for the persons the state serves. ■

PERFORMANCES - Cont. from p. 13 Web tix order, Phone: 952-9791111, www.stagestheatre.org

Of Mice and Men Nov. 29 - Dec. 16 Park Sqe Theatre, 408 St Peter Mail Order Bride St. (20 W. 7th Place), St. Paul. Nov. 2 - 18 AD/ASL: Sat., Dec. 15, 7:30 Nimbus Theatre Co. at Mpls. p.m., Tix: Disc to ½price, Theatre Garage, 711 W. Franklin Phone: 651-291-7005, www. Ave. AD: Sat., Nov. 10, 8:00 parksquaretheatre.org p.m., Tix: Disc to $8 (reg. $15), Phone: 651-229-3122, www. Richard III nimbustheatre.com Oct. 18 - Nov. 18 Ten Thousand Things Theater Mr. Marmalade at Open Book, 1011 WashingNov. 23 - Dec. 8 ton Ave. S., Mpls. AD: Sun., Walking Shadow Theatre Co. Nov. 11, 8:00 p.m., Tix: Reat Red Eye Theater, 15 W. 14th duced to $13 (reg. $20), St., Mpls. ASL/AD: Fri., Nov. Phone: 612-203-9502, Web: 30, 7:30 p.m., Tix: Disc to $7 www.tenthousandthings.org (reg. $16, $14 student/sr), Phone: 612-375-0300, www. Shipside walkingshadowcompany.org/ Nov. 16 - 24 Exposed Brick Theatre at the My Three Angels Playwrights’ Center, 2301 E. Nov. 16 - Dec. 16 Franklin Ave., Mpls. ASL: Theatre in the Round, 245 Ce- Sun., Nov. 18, 2:00 p.m., AD: dar Ave., Mpls. AD: Sun., Dec. Sat., Nov. 24, 7:30 p.m., Tix: 16, 2:00 p.m. Tix: $20, sr/stud Donation, Phone: 612-720disc, Phone: 612-333-3010, 4852, exposedbricktheatre@ www.theatreintheround.org yahoo.com

CONSUMER-DIRECTED SUPPORTS AND SERVICES MissionStatement:

“To work with people with disabilities in fulfilling their desire to lead productive, self-determined lives.” MCIL provides Nursing Home Relocation, Personal Assistant Services (PCA), Transitional & Independent Living Services to individuals through Medical Assistance, Vocational Rehabilitation, County Waivers (CADI, CDCS, EW, TBI) and private pay. Individuals and their support networks can also utilize the Disability Linkage Line, Individual Advocates, the ADA, and our computer resource lab at no additional cost.

1600 University Ave. West Suite 16, Saint Paul, MN 55104 Located on the first floor in the Spruce Tree Building

The Nutcracker According to Mother Goose; Dec. 15, 22 Zenon Dance Co. at Southern Theater, 1420 Washington Ave. S., Mpls. AD/ASL: Sat., Dec. 22, 10:00 a.m. Tix: $15 adults, child $10, pay-as-able, Phone: 612-340-1725, www. southerntheater.org/ or www.zenondance.org

Sleeping Beauty Dec. 5 - 21 Lyric Arts Co. of Anoka, Main St Stage, 420 E. Main St., Anoka. ASL: Sat., Dec. 8, 11:00 am; (req at least 1wk in adv), Tix: $10, $12 box seats; separate school performances, Phone: 763-422-1838, Web: www.lyricarts.org

In Memory of our Mother… care beyond measure

Barbara Bjerkesett

who quietly supported people with disabilities for 40 years. &%0 Home Health Services

Marlene, Karen & Mike


November 10, 2007

15

Access To Employment Employment ads are $20-$22 per col. inch. Nov. 30 is the deadline for the Dec 10 issue. Mail to: Access Press, 1821 University Ave. #104S, St. Paul, MN 55104 • FAX 651-644-2136 • E-mail: access@accesspress.org PUBLIC HEALTH GRANTS SPECIALIST INTERMEDIATE $35,517 - $51,594 Annually (Starting salary up to $45,000) The STD & HIV Section of the Minnesota Department of Health (MDH) is seeking candidates for the position of Grants Specialist Intermediate. The position exists to develop and monitor an overall financial information management plan for the Section, assuring that statewide HIV and STD program funds are appropriately and effectively allocated and expended in accordance with federal, state, and program priorities. Position location: St. Paul.

Disability Linkage Line Specialist The Southeastern Minnesota Center for Independent Living, Inc. (SEMCIL) is seeking a full-time Disability Linkage Line (DLL) Specialist for its Brainerd Call Center. This position will directly provide information, assistance and referral to callers and update/ maintain the resource database. Preferred candidates will have a Bachelor’s degree, strong computer and customer service skills and enjoy working independently. Some travel required. Individuals with disabilities are encouraged to apply. Position will remain open until filled. Please submit resume and salary requirements to:

For a complete vacancy description and list of required qualifications, and online application instructions, go to Resume Builder at: http:// SEMCIL, Inc. www.doer.state.mn.us/ Attn: Hiring Manager employment.htm Click on 2720 N. Broadway “My state job search.” Please Rochester, MN 55906 apply directly to vacancy # semcil@semcil.org 07HEAL000394. Resumes Fax: 507.288.8070 will be accepted thru 11/23/ 07. MDH is an EO/AA employer with a strong commit- EOE ment to workforce diversity.

Minnesota Public Utilities Commission Help Desk IT2 Position

Minnesota Public Utilities Commission Senior Energy Facility Planner

Minnesota Public Utilities Commission Energy Facility Planner

The Minnesota Public Utilities Commission seeks IT2 (Information Technology Specialist 2) candidates to provide desktop expertise and connectivity to networked resources. Successful candidates will have a bachelor’s degree in Information Systems or related field or equivalent work experience. Experience in a “help desk” setting supporting WindowsXP Pro, MS Office Suite, WordPerfect Office, FileNet, FileMaker Pro, and/ or Access would be a plus. MCP and/or A+ certification preferred.

The Minnesota Public Utilities Commission seeks Energy Facility Planner candidates with advanced professional project management experience in environmental protection planning related to energy facilities or a related area. Senior Facility Planners direct all aspects of permitting for assigned transmission lines, large electric power generation plants, large wind energy conversion systems, and pipelines in order to ensure compliance with state statutes and rules and participate in the state’s long-range energy planning and policy development processes. In addition to project management experience, candidates should hold bachelor’s degree in environmental science, resource economics, resource management, environmental policy and planning, or a related field. Engineering and/or construction field experience would be of particular merit.

The Minnesota Public Utilities Commission seeks Energy Facility Planner candidates with education and experience in planning, permitting, and/ or development of large energy facilities or other infrastructure. Facility Planners support both long-range energy planning and energy project reviews for facilities requiring Commission permit approvals. Facility Planners have significant interaction with the general public, public interest groups, the energy industry, and local, state, and federal agencies.In addition to work experience, candidates should hold Bachelor’s Degree in environmental science, resource economics, resource management, environmental or energy policy and planning, or related field. Engineering and/or construction field experience would be of particular merit.

Candidates must apply online at www.doer.state.mn.us (click on Employment Information;” “Search for a job” (left margin); under “Dept” choose Public Utilities Comm”). Please submit information by November 30, 2007.

The Minnesota Public Utilities Commission is an Affirmative Action/Equal Opportunity Employer and complies Candidates must apply online with the ADA. at www.doer.state.mn.us (click on Employment Information;” “Search for a job” (left margin); under “Dept” choose Public Utilities Comm”). Please submit information by November 30, 2007.

Fairview Health Services

The Minnesota Public Utilities Commission is an AffirThe Minnesota Public Utili- mative Action/Equal Opporties Commission is an Affir- tunity Employer and complies mative Action/Equal Oppor- with the ADA. tunity Employer and complies with the ADA.

I am the care I give.

I am Fairview.

Classifieds

Reach 11,000 Active, Interested Readers with Access Press Classifieds. $13 up to 12 words, 60¢/word thereafter. Must be prepaid. Mail with check to: Access Press, 1821 University Ave W, #104S, St. Paul, MN 55104 • 651-644-2133

Mary, Clinical Laboratory Scientist 23 years

YO U R P L AC E F O R A R E WA R D I N G C A R E E R I N H E A LT H C A R E

Join my team at fairview.org/divjobs. Build your career where breakthrough medical care and a progressive work environment are parts of everyday life. At Fairview, we believe the only way to deliver our promise of exceptional care to our patients is by supporting the health and well-being of our employees. Join us, and you join a close-knit network of professionals whose shared values of dignity, integrity, service and compassion guide everything we do to improve the health of our communities.

Learn more about opportunities in: • Nursing • Imaging • Lab

• Respiratory • Pharmacy • Physical Therapy

• Operations • Administration

If unable to apply online, call toll-free 1-866-871-JOBS (5627). fairview.org/divjobs TTY 612-672-7300 EEO/AA Employer

Candidates must apply online at www.doer.state.mn.us (click on Employment Information;” “Search for a job” (left margin); under “Dept” choose Public Utilities Comm”). Please submit information by November 30, 2007.

FOR RENT Holmes-Greenway Housing: One- and two-bedroom wheelchair-accessible apartments. Section 8 subsidized. Convenient SE Minneapolis location. Call 612-378-0331 for availability information. Equal Opportunity Housing. Lewis Park Apartments: Barrier-free housing with wheelchair users in mind. Section 8 subsidized. One- and two-bedroom units. For more information on availability call 651-488-9923. St. Paul, MN. Equal Opportunity Housing.

ATTORNEY Legal Aid Society seeks atty for tenant rep. Sal up to $45,536 DOE. Good benefits, incl family hlth ins. Cov let, resume, ref & writing sample by 11/15/07. Chris Lord, LASM, 2929 4th Ave S, #201, Mpls, MN 55408 EOE

Director Special Projects AXIS Healthcare, a partnership of Courage Center and Sister Kenny Institute at Abbott Northwestern, is seeking a Director of Special Projects to direct the development, implementation and management of two new programs. This unique opportunity involves programs using community-based innovations in providing comprehensive, coordinated health care for adults with disabilities. The ideal candidate for this leadership position is a dynamic, creative nurse with a desire to improve health care for adults with disabilities. Qualifications required are: • Licensed RN; a BS or BA Degree, Master’s Degree preferred. • Experience with adults with disabilities and/or multiple chronic conditions. • Project management experience. • Experience in care coordination, across the continuum of primary, acute and longterm care. Prefer experience in home care or public health. • The ability to demonstrate effective leadership and supervisory skills.

Oak Park Village: One-bedContact Diana at room wheelchair-accessible 651-556-9320 apartments. Section 8 subsior dized. Convenient St. Louis dmaclennan@axishealth.com. Park location. Call 952-935Visit us at 9125 for availability informawww.axishealth.com tion. Equal Opportunity Housing. EOE Seward Square Apartments: We are currently accepting applications for our waiting list for barrier-free housing, in Minneapolis, that is federally subsidized. For an application, please call 612338-2680. Equal Opportunity Housing.

• Medical Records, and more…

Don't Worry, Be Happy Computer Crashes? Software headaches? Computer Virus? No worries.

Call Celia Wirth & Associates. Prompt, reliable computer support and repair brought to your door.

612-408-9437 celia.wirth@cwirth.com www.cwirth.com


16

November 10, 2007

August Issue Sponsor:

HANDICAPPED RAMPS FOR RENT OR PURCHASE We deliver and install in days. For wheelchairs, scooters, power chairs, or anyone who has trouble climbing stairs. • Installed in days • Patented non-skid system • Rent by day, week or month

UCare Minnesota will improve the health of our members through innovative services and partnerships across communities.

Call for a free estimate 651-399-3075 800-649-5215 www.americanramp.com

To fulfill this mission, we provide comprehensive health care coverage to selected populations through a community-based, holistic approach. We support family practice education and research so that this philosophy of care can be carried into the future.

We would like to acknowledge the GENEROUS donations of these 2007 Issue Sponsors:

See profile on page 4

Established in 1991 Nurses z Live-ins z Home Health Aides z Personal Care Assistants z Serving Adults & Children with Long-Term Needs z PCA CHOICE Option z

Please consider joining as an Issue Sponsor Call: 651-644-2133

Also a Provider for: UCare & Axis

IN HOME

PERSONAL CARE

763-546-1000

THE FRIENDS OF ACCESS PRESS Thanks to the following sponsors for supporting Access Press this year. ------------------------------- FRIEND SPONSOR ($50 and above) --------------------------Lisa Adami Dave & Lynda Adams Brigid Alseth Hans Anderson Vicki & Fred Benjamin Patrick Bilbrey Sandi Lane & Monte Blair Anne and Bob Brick Anita Boucher Rick Cardenas Teresa Dock Dawn Doering Neil Doughty Mary & Will Englund Jo Ann & Steven Erbes Lee Ann Erickson Sean and Jeanne Fogarty Nadine Groven Judith Haaversen Michael Hicks Anne Henry John Hoffman Elizabeth Johnson Karen Jothen Laura Joyce Barb Kane Mary Kay Kennedy Barbara Kleist Dorothy McCoy Corbin Sherwood Kidder Donna McNamara & Paul Monroe Connie & John Marty Lynne Megan Kristi Michaelson Jackie Mlynarczyk James & Cynthia Musselman Clif Ollila Lee Ohnesorge William & Joen Overby Mark & Mary Payette Linda Paulson Robert J. Geldert & Roberta Pinkosh Julee Quarve-Peterson Kelly Rathcke Jon Skaalen Diane Sprague Cathleen Urbain Teresa Vickery Michael Wilson Blue Sky Designs, Inc. Equity Services Guild Incorporated Rise, Inc. Nemer, Fieger & Associates, Inc. United Cerebral Palsy of MN, Inc. ---------------------------------- BRONZE SPONSOR ($75 and above) ---------------------Susan Abderholden Jeff Bangsberg Paul and Mary Choiniere Nancy Eustis David & Candace Gislason Luther Granquist & Anita Schermer Kathleen Hagen Craig Dunn & Candace Hart David & Cindy Hadlich Skip & Ellen Houghton Linda & Douglas Leicht Richard J & Kelly J Matter Paul Mueller William O’Dowd & George Zilligen Mark Sherman Patricia Siebert Eric & Caroline Stevens Peter Vaill Joani Werner Opportunity Partners

--------------------------------- SILVER SPONSOR ($150 and above) ----------------------Michael Bjerkesett Robert & Gail Buuck Mike & Jan Chevrette Robert Gregory Doris & John Groven Dianna Krogstad Ronna Linroth Chris Meyer John & Shelia Maier Manley and Ann Olson Patricia Rogers, Ph.D. Erica Stern Kevin & Kathy Sullivan Kathy & Paul West Focus Beyond Programs MNDACA MN Rehab Association MN Work Incentives Connection NAMI-MN Rehabilitation Services SWCIL ------------------------------- GOLD SPONSOR ($500 and above) ------------------------------Phyllis A. Benjamin (in memoriam) Advocating Change Together, Inc. Amerimed Home Care, Inc. Mary Lou Burdick Duff-Westman Family Fund of The Minneapolis Foundation Freedom Health Care, Inc. Wilber Frink Mary T, Inc. Cheri McClellon of CBM Home Health Services Inc. Rapit Print ------------------------- BENEFACTOR SPONSOR ($1000 and above) --------------------Barbara Bjerkesett (in memoriam) Bremer Foundation Catharine C. Reid Fund of Headwaters Foundation for Justice Headwaters Fund Lynda Milne The Medtronic Foundation Thomas & Lassiter Family Fund of The Minneapolis Foundation

---------------------------- IN KIND (time & services for this issue)-------------------------Kristine Berg • Luther Granquist • Jane Hampton • Lance Hegland • Wendy Roquette Anita Schermer • Nancy Sopkowiak • Julie Wegscheid • Disability Linkage Line

I would like to…

Subscribe & Support Access Press

Subscriber $30 Friend $50+ Silver $150+ Gold $500+ Benefactor $1000+

Date:_______________ Amt. Enclosed $____________ Name___________________________________________ SUBSCRIBE Address_______________________________________________________________________________________ Phone______________________________________

In addition to receiving your one-year subscription, all support over $25 per year is taxdeductible. Reduced subscription rates available upon request for individuals with fixed incomes.

FOR $30 $30*

e-mail____________________________________________

Thank You! Your support is critical for Access Press to continue being the voice for people with disabilities. Please mail your sponsorship/subscription to: Access Press, 1821 University Ave. W, Suite 104-S, St. Paul, MN 55104. Thank you.

*Receive 12 issues per yr in the mail


Turn static files into dynamic content formats.

Create a flipbook
Issuu converts static files into: digital portfolios, online yearbooks, online catalogs, digital photo albums and more. Sign up and create your flipbook.