www.accesspress.org History Note
Inside ■ Travails of travel - pg 3 ■ Able-bodied? - pg 6 ■ Medicaid impacts - pg 8
“The superior man is modest in his speech, but exceeds in his actions.” —Confucius (551 BC - 479 BC)
Page 2 Nonprofit Org. U.S. Postage PAID Mpls. MN Permit No. 4766
Volume 20, Number 3
Minnesota’s Disability
Community Newspaper
March 10, 2009
Pregnancy Journal: The End!
Baby Matthew Nam Loob McIntosh has arrived by Mai Thor
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think I’ve done some pretty cool things in my life as a woman with a disability. I mean, I don’t go around tooting my own horn or anything, but it was pretty cool when I went up to the top of a volcano in Costa Rica. Then there was that time I did a cross-country camping trip to California and got a chance to see our great country. Or the other time a French-Canadian swore at me for driving the wrong way in Montreal (the swearing wasn’t cool, but being in Montreal was). However, the coolest thing I’ve done in my life as a woman with a disability now has to be having my son. Everything else pales in comparison and nothing in the future will ever measure up. You know I don’t consider myself very sentimental or overly emotional, but you really have to be made of stone to look into your own newborn’s face and not get a little verklempt. What a great way to start the year. Matthew
Nam Loob McIntosh was born on January 28. He weighed in at 5 lbs., 8 oz, measuring 18 inches long. He is a healthy baby boy. Obviously, the amniocentesis I mentioned in my last journal went well and we went ahead with the Caesarean section the next day. I’d tell you all about the delivery, but I didn’t see anything. I was completely out under general anesthesia. As I mentioned before, an epidural was out of the question due to the metal in my spine, so the anesthesiologist said that generally would be the best route to take in my case. Initially, I was bummed that I wouldn’t see my baby as soon as he was born. At the same time I felt a sense of relief knowing I would be oblivious to everything while the doctors do their stuff.
happened very quickly, or so the drugs made it seem. One minute there are about 10 different people around you poking and probing you and then the next, you are waking up with what seems to be the most massive hangover in your life; without the headache, that is. It took all the strength of God, Buddha, Allah and all the other guys up there for me to wake up; however I wanted to see my baby. And once we got moved to a hospital room, he was brought in and I was able to meet him. And how did I react? Well...you know, I mentioned I’m not very emotional. I saw him and I thought, wow this tiny little guy came from me? That’s just not possible. This belongs to someone else and when I recover, I’m going to have to leave him behind. There’s no way this In the end, it all worked out beautiful baby boy is mine! I just fine. Since I was com- think I was in denial. pletely asleep, Charles was not able to be in the operating room The whole thing took about with me, but he watched from two hours. We were in the the door window. And it all hospital for four days and no,
I didn’t have to leave him behind. Turns out he is mine and he will be with me forever. Having baby in the hospital with round-the-clock nurse’s care versus having him at home with just my own care is quite a change. Being a month early, he is so tiny that I want to make sure I’m giving him the care he needs. I’m enjoying every minute of it, though. Matthew is an easy baby and I feel overly blessed in so many ways. Not to mention, he is the cutest! He is truly a really good looking baby! I still can’t get over the fact that I produced such a good looking kid! I rock! Come on, even though no one wants to admit it, we’ve all come across some ugly babies in our lifetime. I was just praying that I wasn’t going to be one of the mothers who had one of them. Fortunately, I’m not. We might even enter him into baby modeling—who knows?
Welcome Matthew Nam Loob McIntosh nancy journey. Having Matthew join our lives is just the beginning of a new journey, a journey that will be filled with many wonderful, happy, stressful, infuriating and hilarious memories. He already cracks me up daily.
I want to thank all the readers of Access Press for allowing me to share my journey. I especially want to thank the folks at Access Press for making it possible. Writing these articles So, the journey ends here my have been more than just tellfriends. Or at least the preg- ing a story of a disabled
woman’s inherent right to have a child. It truly was the story of my life during the last eight months. I’ve learned so much already in my short time as a mother, with two lessons that stand out. I will never tell my son he cannot do something. We with disabilities know all too well what that’s like. Also, now that I have him as my responsibility, I will do my best to be an even better person. I think all our kids deserve that. Thanks to all! ■
Economic stimulus and MN fiscal impacts What’s happening with Minnesota’s proposed budgets for education and health and human services?
by Jane McClure
C
hanges to the state’s economic forecast, as well as funding from the American Recovery and Reinvestment Act, more commonly known as President Barak Obama’s economic stimulus package, are resulting in a bureaucratic do-over. The governor’s two planned budgets which originally contained deep cuts affecting the disability community are being rewritten. It may be midMarch when we see revised health and human services and education budgets, the most important documents in the ev-
eryday lives of the disability At a capitol news conference, community. The budgets will Tom Hanson, Minnesota Manstill contain deep cuts. agement and Budget Commissioner, described the forecast The economic stimulus pack- as a good news-bad news sceage contains billions of dol- nario. Although the stimulus lars for a wide variety of funds are a help, the state still projects and programs for faces a deteriorating economy. Minnesota. Of the total amount, $1.8 to $2 billion is Estimates indicate the state will dedicated to Medicaid and collect about $1.2 billion less Medical Assistance. in taxes over the next two years. State Economist Tom Stinson The economic stimulus pack- describes the current recession age was also a factor in the as the longest and deepest since overall state budget shortfall. World War II. The financial forecast released Uncertainty over the economic March 3 was expected to out- forecast and the impacts of the line a deficit of $6.4 billion. economic stimulus package Instead, the federal funds have has encouraged community helped cushion that blow, to members to attend and testify $4.57 billion for the 2010-2011 at recent legislative town hall biennium. meetings on the budget. The meetings wrapped up late last
month. Mike Gude, of The Arc of Minnesota, pointed out in his testimony that it was difficult to speak about a changing budget. But he noted that supports for people with disabilities should be viewed as invested and should be protected. He reminded state officials that there are already about 5,000 Minnesotans waiting for services that would allow them to live in their community and that many more people with disabilities live with aging parents who won’t be able to provide care indefinitely. St. Paul resident Scott Schifsky asked that state officials to be fair as they balance the budget. “I oppose state budget cuts to persons with disabilities that decrease their ability to live
independently, to find work that is satisfying and contribute to their communities,” he said. Schifsky is a caregiver to his wife, who has lupus and recently lost her job. He urged state officials to consider tax credits to caregivers and other assistance that would keep people working and able to stay in their own homes. New Hope resident Hunter Sargent, who has fetal alcohol syndrome, also spoke at a town meeting. He is able to live in an apartment and run his own business, with help from service provider Mains’l Services. “I urge you not to cut services that help people like me live life and contribute to our communities,” Sargent said. “Funding these services
is not just line items on a state budget; they are real investments in real people.” But now everyone must wait and wonder about the budget impacts. “We’re going to have to reprice all of the governor’s proposals,” said State Budget Director Jim Schowalter. He gave a report on the economic stimulus package and what it means to the Legislative Commission on Planning and Fiscal Policy Feb. 19. The commission is overseeing the economic stimulus package. The health and human services budget is about 34 percent of Minnesota’s general fund budget. K-12 education, including special education, is 38 MN Budget - cont. on p. 8
March 10, 2009
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I
’ve had a pretty eventful month. I’ve gone to a couple rallies at the capitol and talked to a few folks about the upcoming proposed state budget cuts. The federal economic stimulus package should be good for the state and may keep many of our programs from becoming ineffective dinosaurs. I’m not so sure that this stimulus package will be good for the federal government in the long run, but that’s another article. I have become less confident over the years about our ability at the federal level to be successful in serving all of America. But it sure seems something has to change because what we’ve been doing certainly hasn’t worked. I don’t want to lay blame on anyone for the economic hole we’ve got ourselves into. One thing I am sure of is that there isn’t one person or one group even to
Tim Benjamin, Editor
blame: not the rich, middleincome or the poor. It’s many of us becoming greedy and wanting more than we can afford, should have, or need. I’m as guilty as the next. Last month, I spoke about the 24-hour Sierra Bravo Overnight Web Challenge. Well, it’s happened and it was a gas. We had 10 young but wellseasoned developers, who called themselves “The Code Cowboys” and spent no time getting started on our wish list. Not one took more than a 15minute break to get up and walk around and chat with other team members. All of them worked in the field of Web development except for one, who was a master’s student in software design. Most sat in front of a two-monitor workstation, and several had a laptop at their side as well. It seemed that each one of them
had their own expertise and each started creating what they knew. One of the guys, Nick, took control as project manager, and each one of the developers assigned himself a task. As the design developed, a new project manager would take over. Ryan stepped in around eight hours in bringing new expertise and keeping everyone moving forward. About 3 a.m., Mark stepped in and called a meeting away from the computers so we could discuss problems that needed to be resolved. Each programmer again assigned himself a problem to resolve and asked for help whenever needed. If there was a quick fix, fix it or get help, Mark stated. I know that by about hour 18, I was having difficulty concentrating, but with plenty of Red Bull and lots of sugar in them, all these guys seemed to
stay pretty focused on the task at hand. There was not a moment of serious tension throughout the 24 hours and at the end, we were all very pleased with what we had. Unfortunately, the “Code Cowboys” didn’t win the overall design prize which went to one of the other 11 projects. But each one of them is a winner in my eyes. Several of us planned to get together March 9 to set up a new hosting site and decide on the best way to finish up the tweaks and fix any bugs. Then we will get the new Web site online. It looks completely different from our old site, and there are plenty of opportunities for input from and interaction with you, our readers. After we get the site up, I only hope that each of you will take the opportunity to test it, and then take the opportunity to
share your voice among our disability community. We have our fingers crossed that the site will be live by about mid-March, so be sure to visit and bookmark www. accesspress.org we are excited about the potential for this site! As we mentioned last month, Mai Thor and Charles McIntosh brought a handsome young man into our world. Matthew was born on Saturday, Jan. 28, weighing in at five pounds, eight ounce and 18 inches long. He is blessed to have two wonderful parents that are devoted to him and to each other. Congratulations, Charles and Mai! I’m sure you’ll make wonderful parents. And Matthew, what can you say? You are a beautiful baby! ■
History Note
Department for Incurables questioned years later by Luther Granquist
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ne hundred years ago this month the Minnesota Legislature passed a law creating a Department for Incurables at what was then called the School for the Feeble Minded at Faribault. This new department was for “any crippled or deformed child who is helpless and who cannot be benefited by treatment at the State Hospital for Crippled and Deformed Children [the name for the predecessor of Gillette Hospital], or any child who is physically helpless from any chronic disease of the nervous system or any child or adult suffering
from such or other incurable chronic invalidism.” The following year the Faribault Superintendent’s Report described the three persons admitted to this new department: “one young woman incapacitated by reason of rheumatic arthritis, another largely helpless from deformity of feet and hands, one man suffering from paralysis which renders him absolutely helpless, unable to even raise a hand or foot.” For the next several years, the reports stated that there were two or three persons in this department. Occasionally, until at least 1934, the superin-
tendent reported that an “incurable” or two were admitted. But those reports provided no details and no explanation why that category existed. The obvious question, yet unanswered, is who or what prompted our Legislature to create this department of “incurables.” In the late 19th century, other states had a “Home for Incurables.” But the Faribault school was already divided into a school department, a custodial department and a “colony” for persons with epilepsy. The Superintendent, Dr. A. C. Rogers, had long contended that there
Access Press Co-Founder/Publisher (1990-1996) .................................................. Wm. A. Smith, Jr. Co-Founder/Publisher/Editor-in-Chief (1990-2001) ....................... Charles F. Smith Board of Directors . Brigid Alseth, Mike Chevrette, Kelly Matter, Christen Munn, Anita Schermer, Carrie Selberg, Tom Squire and Kay Willshire Editor ......................................................................................................... Tim Benjamin Editorial Assistant .................................................................................... Jane McClure Business Manager ................................................................................. Dawn Frederick Cartoonist ..................................................................................................... Scott Adams Production ...................................................... Ellen Houghton at Presentation Images Webmaster ...................................................................................................... Alice Oden Distribution ......................................................................................... S. C. Distribution Advertising Sales Manager ................................................................... Raymond Yates Access Press is a monthly tabloid newspaper published for persons with disabilities by Access Press, Ltd. Circulation is 10,000, distributed the 10th of each month through more than 200 locations statewide. Approximately 650 copies are mailed directly to individuals, including political, business, institutional and civic leaders. Subscriptions are available for $30/yr. Low-income, student and bulk subscriptions are available at discounted rates. Editorial submissions and news releases on topics of interest to persons with disabilities, or persons serving those with disabilities, are welcomed. We reserve the right to edit all submissions. Editorial material does not necessarily reflect the view of the editor/publisher of Access Press. Paid advertising is available at rates ranging from $12 to $28 per column inch, depending on size and frequency of run. Classified ads are $13, plus 60 cents per word over 12 words. Advertising and editorial deadlines are the last day of the month preceding publication, except for employment ads, which are due by the 25th. Inquiries should be directed to: Access Press • 1821 University Ave. W. • Suite 104S St. Paul, Minnesota 55104 • 651-644-2133 • Fax 651-644-2136 Email: access@accesspress.org • Web site: www.accesspress.org
was no cure for “feeblemindedness,” yet he also thought that the children in the custodial department could learn simple tasks. He did not ask for this new department in his reports. A second question is why this law creating the department stayed on the books until 1961, even though it had been renumbered and amended through the years. Perhaps it was because during those years the men and women at Faribault with severe multiple handicaps, those deemed helpless, were treated so poorly. Even in the mid-1950s, a blueribbon committee of doctors who reviewed the state hospital system, while they recommended more staff and more attendants, made no mention
Pictured above is the School for the Feeble Minded located in Faribault. of the need for physicians skilled in physical medicine and rehabilitation or for physical therapists, occupational therapists, and speech therapists. A decade later, Faribault State Hospital still had no consultant in physical medicine and no physical therapists. The “department of incurables” may have ceased to exist, but
the perception that nothing could be done remained. ■ The History Note is a monthly column sponsored by the Minnesota Governor's Council on Developmental Disabilities, www.mnddc.org or www. mncdd.org and www.part nersinpolicymaking.com.
March 10, 2009
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The travails of His tour guide is a dog guide European travel by Clarence Schadegg
by Rick Cardenas
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y dog guide ate a smaller portion of his dry dog food the night before we left for San Francisco. He would eat less and relieve more prior to our flight so there’d be no accidents on board the plane. No breakfast for him on trip day. He’d eat when we got to our hotel.
Planning ahead can take much of the worry out of travel if you have a disability.
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oing to Europe is very interesting and exciting but you must contact friends who have made the trip and do research to minimize many of the obstacles to getting around. Last fall I was able to take that trip, but before going I had to make sure I could get from one city to another. In the process of getting to my final destination I first flew by Northwest Airlines to Amsterdam. I was then supposed to fly to Strasbourg, France but Air France would not offer assistance to transfer me from my motorized wheelchair to the airplane seat. Airline officials also indicated they would not transport my wheelchair on the airplane. I had to get to Strasbourg from Amsterdam somehow. I contacted Eurorail and learned there is a high-speed train from Amsterdam to Paris. I was told that getting from the airport in Amsterdam to the train station is just a short distance and that the stations are usually accessible. Having used a motorized wheelchair for more than 40 years, when I someone tells me it’s just a “short distance” or that something is “usually” accessible, my experience tells me I need more information. So I Googled the Amsterdam Schiphol Airport and Amsterdam train station and discoverd that they are very close to each other. Indeed, Schiphol airport and the train station are in the same location and both are accessible!
Elaine, and me on the plane. The Amsterdam Airport disability assistance staff was ready to help me off the plane, but my wheelchair was missing. The ground crew had taken my wheelchair to the terminal and we were waiting for the ground crew to bring it back to the airplane. That caused quite a commotion. The captain wanted everyone off the plane and insisted that the disability assistance team put me into an aisle wheelchair to get me off the plane. He was tired and wanted me to wait for my wheelchair somewhere else. The leader of the assistance team refused to comply with the captain knowing that sitting in an aisle chair for longer than a few minutes is extremely uncomfortable. So, we were in a standoff: the captain angry and raising his voice to get me off the plane and the disability access team saying “no!” Members of the team talked to each other ignoring the captain. Everyone knew it was a power struggle; The rest of the flight crew would try to explain the situation turned power struggle and apologize for the length of long time it was taking to get me off the plane. I felt they were embarrassed and were being apologetic for their captain.
Once off of the plane a member of the disability assistance team accompanied us all the way to the luggage claim, and then directed us to the train station on the other side of the But getting from the airport to airport terminal. What a conthe train station proved to be cept! another matter. I soon realized that the service I needed to get In Europe the disability assison and off the airplane is one tance teams are full-time proof the high priority items of the fessionals employed by the trip. Landing in Amsterdam airport. In contrast, U.S. assisprecipitated one of the more tance team members do not interesting aspects of the en- necessarily know each other, tire trip. In regards to accessi- nor have any experience workbility and assistance there was ing together. They work for a definite clash between the the airline company or are conU.S. system and European/ tracted in many different caNetherlands system. After pacities, and with no specific landing all passengers de- training in assisting persons barked leaving only my per- with disabilities. With the Eusonal care attendant (PCA), Travel - cont. on p. 15
Our cab came promptly at 7 a.m. We locked up the house, switched on the security alarm system and bade farewell to our home for the next 14 days. Good-bye Minnesota and hello California. The three of us filled the back seat of the cab, my wife Nancy on one side and me with my dog guide on the other. There was no comment from the cab driver about my dog guide. “That’s a good sign,” I thought. After pulling up in front of Northwest Airlines Terminal, our cabbie helped us bring our luggage inside. My dog found a nice spot to relieve before we entered the building. No place to relieve himself at 35,000 feet in the air.
right. I thought my use of a dog guide was a clue that I was blind. Did the ticket agent get the clue my wife may be extremely nearsighted as she held print material a couple inches from her face. I am totally blind and Nancy is legally blind.
Nancy was already seated and waiting for us even before we went through the scanner. The security check for me and my dog began as Nancy made herself comfortable. She always gets through the security gate without much problem.
Since neither of us could see where the ticket agent pointed, we asked for more specific and clear verbal directions. It was a mere 100 feet, at most. She said an attendant would be with us soon to walk us to our gate. It seemed like a lot longer then a half hour had passed and I got a little nervous. Would we miss our flight? I went back to the ticket agent’s window and I asked her if she forgot about us. She told me to go back to the lounge and the attendant would soon come and escort us. He came about ten minutes later.
The security agent asked me to hand my dog’s leash over to him. I requested to keep my dog at my side and both of us passed through the electronic scanner together. My dog’s metal collar set off the alarm. So we were asked to step to one side for a more careful screening. A different security agent came over to me and asked to pat me down. He ran the wand around my body. “Stretch your arms straight out from your shoulders and hold them in that position while I check you over.” “Spread your legs apart.” I was patted from top to bottom, front to back.
Next, he asked me if it was okay to touch my dog guide. The wand was floated over the surface of my dog’s fur. His hands searched along my dog’s body. I asked Nancy how it went for her to have gone through security. “No problem.” She couldn’t resist joking, “Both of you must look like some kind of derelicts.” When we were done I picked up my things and we were on our way again. Our escort took us to the plane. My dog usually stops where there’s a gap in the connection between the sections of the passageway. I encourage him and he carefully steps over the gap as if it’s much larger then an inch. After boarding we found we weren’t given the seats we requested and needed. Dog guide - cont. on p. 15
The four of us walked what seemed like a long ways to the gate. We stood behind other people in line as we waited to move forward through the security check.
“Take off your backpack and put it on the conveyer belt or in the plastic bin. Remove your belt. Take off your shoes. Take off your fanny pack. Empty your pockets in the plastic bin. And take off that thing hanging from your neck; what is that?” “My Braille Note Book, it’s like a compact computer, but without the screen,” I said. I pulled the strap from around the left side of my neck and placed it with the rest of my belongings inside of the plasThe agent told us to wait in the tic bin. lounge and signaled to her We walked up to the ticket agent, she asked for our picture identifications and boarding passes. “Nice dog,” she said. “Do you need to see my dog guide’s identification?” I joked. “Not necessary.” She tagged our luggage. Mine may have been slightly over the weight limit, but she didn’t charge me for extra pounds. The 22 small bags of dog food really added to the weight.
Full lives for people with disabilities Vinland provides specialized chemical dependency treatment for adults living with brain injuries and other cognitive disabilities, vocational services and supportive housing.
Phone/TDD 763.479.3555 www.vinlandcenter.org
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March 10, 2009
Regional news in review . . . Alzheimer’s cited in death; no charges yet to intake, a candidate may participate in classes to learn consent advisory and an offer of help to contact an attorney. The death of a 97-year-old man thrown to the floor last month by Minnesota pro wrestling legend Verne Gagne is now considered a homicide, according to Bloomington Police. But it’s still not clear if criminal charges will be filed. The family of the man who was fatally injured has indicated it opposes charging Gagne. After he and Gagne had a dispute Jan 26, Helmut Gutmann died Feb. 14 of complications from a broken right hip. Both lived in the memory-loss unit of Friendship Village in Bloomington. Both men suffered from Alzheimer’s disease and did not remember what had happened after the fight, officials and family members have said. Gutmann’s family opposes the idea of charging Gagne, who has since been moved out of the Bloomington facility. In ruling Gutmann’s death a homicide, the Hennepin County medical examiner’s office said he “died from complications from a right hip fracture due to a fall” after being “pushed by another.” The report also said Gutmann suffered from dementia and chronic obstructive pulmonary disease. The scuffle between Gagne and Gutmann remains under investigation by the Bloomington Police Department. Police said a full report will be forwarded to the Hennepin County attorney’s office for possible charges. Gutmann, a widely respected scientist and musician, fled to the United States from Nazi Germany in 1936. Gagne is a former University of Minnesota athlete who became well-known as a professional wrestler and leader of the American Wrestling Association. [Source: Star Tribune, Pioneer Press]
application, resume, interview and job retention skills. “We are extremely pleased to learn we have been awarded a wonderful opportunity to increase work options for people with disabilities,” said Jon Thompson, Opportunity Partners President and CEO. “The grant fits well with our strategic direction of enhancing vocational training and employment opportunities for people facing barriers to employment.” As a first step in the project, Opportunity Partners has formed a Business Advisory Council, a group of business leaders who will lend their expertise to the project. Advisory council members include: Dave Matychuk, LifeLine Incorporated; Jim Strempke, Easy Braid Company; Tom Reese, Minnesota Department of Employment and Economic Development; Kent Buell, Bon Appetit; Bruce Mulder, Independent School District 287; Michelle Alm, Embassy Suites Hotel Bloomington; Steve Wise, Cass Screw Machine Products and TwinWest Chamber of Commerce; Mark Beaubien, Acrylic Design; Diane Duguay, Kraus-Anderson; Jeffrey Cookson, Employer’s Association; Chuck Ryan, Cosecha Design - The Bead Store; Anne Paulson, Minnesota Department of Employment and Economic Development; Shawn Taher, Taher Inc; and Sam Harrington, Opportunity Partners participant. For information on the application process or to request an appointment, contact Mary Jo Nohava at 952-351-5404 or pwi@ opportunities.org [Source: Opportunity Partners]
The appeals court upheld the state’s appeal and sent the case back to Ramsey County District Court for further proceedings. [Source: Star Tribune]
Former camp director charged The former director of a Wisconsin camp for persons with disabilities has been charged in the July 2008 death of a camper. Marjorie Ann Hjelseth, 67, of Roseville, was in court Feb. 10 to face two felony charges. She has pleaded not guilty to second-degree reckless homicide and recklessly subjecting an individual at risk to abuse that caused death. St. Paul Park resident Shirley Meade died last year while at the Trade Lake Camp, which Hjelseth owned. She was given clozapine, an antipsychotic drug, by mistake. The drug was intended for another camper. Meade, who was developmentally disabled, fell and injured her head. Despite sustaining injuries and despite Hjelseth’s knowledge that Meade had been given medication in error, no attempt was made to seek medical assistance. The camp, which is located at Grantsburg, drew national media attention last year when another camper, Shoreview resident Keith Kennedy, wandered away and was lost for a week. Kennedy is autistic and was only found after a wide-ranging search. The camp was voluntarily closed last year after the two incidents. [Source: Pioneer Press]
Deaf man’s legal fight sent back to district court Study moves to University of Minnesota
Grant to aid job seekers Job seekers with a disability, medical condition or certain other conditions that present a barrier to employment may qualify for free job placement services from Opportunity Partners, thanks to a three-year grant of $346,285 from the U.S. Department of Education’s Projects With Industry program. Opportunity Partners is a Twin Cities nonprofit organization serving people with disabilities. The project’s goals are to place people into jobs in fields such as food service, janitorial, hospitality, retail and document conversion/clerical services and to provide customized training to enhance career advancement opportunities. Prior
A St. Paul man who can’t hear or speak has seen his legal battle with the City of St. Anthony sent back to Ramsey County District Court. The Minnesota Court of Appeals ruled last month that Kendall Lee Kail, who is unable to hear or speak, was not a “person disabled in communication.” The court indicated that Kail wasn’t entitled to a sign language interpreter after he was pulled over by police in summer 2007 and charged with drunken driving. Kail was stopped June 1, 2007 after his vehicle was observed following another vehicle too closely and weaving within its own lane. The officer communicated with him initially through gestures but later through handwritten notes. Kail asked Ramsey County District Court officials to suppress evidence related to his arrest and his consent to take a breath test. He argued that the police officer’s failure to provide him with an interpreter violated his statutory and constitutional rights. District Judge Michael Fetsch granted the motion. The charges against Kail were then dismissed but the state appealed, contending that Kail and the officer were able to communicate by passing written notes at the traffic stop and at the police station. The notes included instructions on how to follow field sobriety tests and a blood alcohol test, the implied
A famous study of Alzheimer’s disease involving 678 nuns has moved from the University of Kentucky to the University of Minnesota. The Lexington Herald-Leader reported that the study of elderly nuns recently moved back to where it began in 1986 because of the retirement of its originator, University of Kentucky researcher David Snowdon. The study has tested nuns repeatedly for 20 years to analyze their mental and physical abilities. That information is then correlated with evidence of brain tissue loss when the nuns die. The nuns, all School Sisters of Notre Dame, made a perfect test group because of their homogenous lifestyle. At first, researchers used data from the older School Sisters of Notre Dame living in Mankato. In 1990, the study was expanded to include older Notre Dames living elsewhere in the United States. Sixty of the original group of 678 nuns is still alive. Their ages range between 75 and 106 years old. [Source: Associated Press]
Meals of Wheels still rolling Meals on Wheels providers statewide are working to correct misinformation or misunderstandings about their programs. Some news reports have suggested that programs may be discontinued, prompting providers and the Minnesota Board on Aging to speak out. “Minnesota seniors continue to receive the home-delivered meals they need and expect. The Minnesota Board on Aging in Minnesota is unaware of any Meals on Wheels providers that plan to stop serving meals in the coming months,” said Jean Wood, executive director, Minnesota Board Regional news in review - cont. on p. 5
March 10, 2009
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Regional news in review . . . Continued from p. 4 on Aging. “Current providers have contracts that run through December 2009 and we expect them to continue. However, we will make the necessary arrangements for any senior that is not receiving their scheduled meals.” While two programs that provided home-delivered meals went out of business in 2008, other programs were able to provide service to the affected seniors. Anyone with questions on Meals on Wheels or wishing to arrange for the service can call the Senior LinkAge Line at 1-800-333-2433 [Source: Minnesota Board on Aging]
for the professionals who work with and assist the increasing number of people with visual impairments. It also will publish information presented at the AER International Conference. The initial issue of AER Journal, published in summer 2008, explored topics relating to access to information in the digital age, with articles examining equipment that assists people with impaired vision and guidelines on print clarity for electronic displays. The mission of AER is to support professionals who provide education and rehabilitation services to people with visual impairments, offering professional development opporRule amendments eyed tunities, publications, and public advocacy. The AER Journal The Vocational Rehabilitation program staff in the Minnesota will be available in print and online at www.aerbvi.org/ Department of Employment and Economic Development modules.php?name=News&file=article&sid=1550 [Source: (DEED) is considering amendments to the program rules. This AER Journal] state and federally funded program provides services to eligible people with disabilities to prepare for, enter, retain and Deaf and Hard of Hearing regain employment. Comments on the rules are being sought Regional Office to move from the public. The deadline to submit comments is May 8. The Deaf and Hard of Hearing Services Metro Regional Office Rule amendments are being considered to: and the Commission of Deaf, Deafblind and Hard of Hearing • Assure the rules conform with federal requirements, Minnesotans are moving from one downtown St. Paul space to • Clarify and revise some of the definitions, another. The agency is leaving Metro Square Annex. The • Modify when and how some services are provided. regional office serves residents of Anoka, Washington, Hennepin, Scott, Carver, Ramsey and Dakota counties. The The major changes being considered are in these areas: Metro Regional Office and commission will be located in Suite • Qualifications of providers of job-related services. 105 of the Golden Rule Building, 85 East Seventh St., in • Changes in the definition of the term job-related services. downtown St. Paul. The Metro Regional Office’s new main • Help with becoming employed through a small business local phone number will be (651) 431-5840. The toll-free TTY enterprise. number, (888) 206-6513, will remain the same. The • When a search for other sources of services and benefits is commission’s new phone number will be (651) 431-5961. required. TTY users can use the Minnesota Relay at (800) 627-3529 to • Help with child care so an eligible individual can start an contact the commission. Office hours are 8 a.m. to 4:30 p.m., approved employment plan. Monday through Friday. The move is aimed at providing a • Requiring a driver’s license and driver’s training before more efficient, cost-effective location for the department, the vehicle modifications are made. Metro Regional Office and its customers, said Bruce Hodek, • Using only schools that are accredited or eligible for Title IV Deaf and Hard of Hearing Services Division Director. The state funding. departments of Health and Commerce also are located in the • Repayment efforts for vocational rehabilitation consumers Golden Rule Building. The metro office is one of eight regional who are in default on PELL grants. offices that help Minnesotans who are deaf, deafblind or hard • Qualifications of providers of orthotics and prosthetics. of hearing and their parents, family members and other in• Agency assistance with transportation expenses. terested individuals. The of• Defining tools and equipment. fice also serves private service A copy of the full request for comments is available at http:// providers — including schools, employers, businesses deed.state.mn.us/agency/rule.htm and others in the community [Source: State of Minnesota] — with information about New journal covers hearing loss and available servisual impairment research, issues vices. The office administers The newly launched AER Journal: Research and Practice in the Telephone Equipment DisVisual Impairment and Blindness will serve professionals as a tribution Program, which proresource that can be used in a practical setting, with articles and vides communications and other information about experiments, research, education, and adaptive equipment such as technology. The AER Journal, published by the Association amplified telephones, TTYs, for Education and Rehabilitation of the Blind and Visually signaling devices and other Impaired, will include articles on a range of lifestyle topics – telephone equipment to elifrom infant care to the use of technology and the Internet in gible Minnesotans at no cost. teaching – plus features such as the Professional Corner, where More information is online at: practitioners can share and exchange ideas. According to the www.dhs.state.mn.us or 2000 U.S. Census, blindness or significant vision loss affects www.dhhsd.org The Commisone of every 28 Americans older than 40, and that number is sion of Deaf, Deafblind and expected to grow. The AER Journal will serve as a key resource Hard of Hearing Minnesotans
serves as the principal state agency to advocate on behalf of Minnesotans who are deaf, deafblind, and hard of hearing by working to ensure they have equal access to the services, programs and opportunities available to others. More information about the commission is available on its Web site: www.mncdhh.com [Source: State of Minnesota]
Digital TV switch affects community The National Association of the Deaf (NAD) is pleased to announce that it is working with CSD as an outreach resource partner to steer consumers with digital TV (DTV) transition questions to CSD’s Help Center. CSD was awarded a contract from the Federal Communications Commission (FCC) to implement an awareness campaign targeted to deaf, hard of hearing and deafblind consumers in regard to the DTV transition. The NAD will place a banner on its home page with a direct link to the CSD Help Center and will inform its membership and supporters about this service. “The NAD has been working closely with the FCC to ensure that the needs of deaf, hard of hearing and deafblind consumers are seriously taken under consideration during this transition,” said Nancy J. Bloch, NAD Chief Executive Officer. “So, we are very pleased to work with CSD on this important project to make sure our community has all of the information it needs.” Recently, Congress passed a bill to delay the DTV transition deadline from February 17 to June 12, 2009. President Obama is expected to sign the bill into law. This delay will give Americans more time to apply for and receive government coupons to help purchase DTV converter boxes. Currently, there is a waiting list (currently 3.2 million) for converter box coupons. In addition, people will have more time to connect and test their DTV converter boxes and receive the technical assistance they need to make a smooth transition to DTV. CSD has launched both a help center (call center) and a new Web site — with “how to” videos in American Sign Language (ASL), captioning, voice and in Spanish (captioned and voiced). Please go to http:/ /dtv.c-s-d.org for more information. [Source: National Association of the Deaf] ■
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March 10, 2009
Able-bodied? A look at denial and how it affects us by Marjorie Huebner
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remember many years ago when Access Press founder and editor Charlie Smith said to me, “Oh, you able-bodied people! If you get old enough, you’ll likely have a disability.” Years later current editor Tim Benjamin asked me to write about my experience of living with disability that arose from having breast cancer. “Who, me?” I said to myself “Am I a person with a disability? Am I a member of that group? Am I one of them?” Then I realized that I still had an able-bodied view of myself, even though a double mastectomy and lymph node removal from my right armpit has changed my life in many ways. As a result of my surgery I now face risk of lymphedema, the collection of lymph fluid in the tissues of the hand, arm and/or chest wall on the side of the breast surgery. This condition occurs when normal lymphatic drainage in the chest and arm is injured during surgery and/or radiation therapy, causing swelling of the hand, arm and/or chest. For the rest of my life I must
avoid any constriction or pressure on my right shoulder and arm. That means no more carrying backpacks or canoes, part of my previous life. No more heavy massage, despite being a body worker myself. No falls or blows, no repetitive work like raking, gardening, or painting, no injections in my right arm. I am very careful to avoid infections in that arm and hand from cuts or scratches. Broken bones are dangerous. I’m not supposed to heat up the core of the body in a sauna or hot tub. Any of these could trigger lymphedema at any time.
Tim called my attention to it. Denial is something I don’t like to think I have, yet there it was.
It’s important for me to examine what goes on inside my own mind about who I think I am and who I think I am not. What do I do with those whom I believe to be “other?” These are important questions for all of us, not only around disability, but cultural differences, religious beliefs, race, addiction, the homeless —whatever group we judge to be “different,” or somehow not connected to us, or whom we judge to be not worthy of compasBecause I don’t have breasts, sion. buying clothes that fit can be a challenge. Undressing in front Navigating through the world of other is something I am not I can generally “pass” for a used to thinking about. Will person without a disability. others be uncomfortable be- Even though I grieve the loss cause I don’t have breasts? Or of my breasts, I wasn’t a curious? Should I say some- woman who dressed to emthing? What should I say? phasize them or felt they defined me as a woman. I’m used to my body as it is now and am fortunate to have I am a Rosen Method body a partner who loves me for work practitioner, with a fowho I am. And Tim was right— cus on assisting people to I am a person with a disability. deepen their connection to My cancer treatment was in themselves. Sometimes, for a 2001, but I was in denial until Denial - cont. on p. 15
What I learned while I was disabled by Monte Blair
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n Thursday, October 30, I was riding my bicycle in Sacramento. As I crossed light rail tracks at a corner, my bike’s front wheel slipped and I fell to the ground. Immediately, a number of unknown persons approached and offered assistance, carrying my bike and me out of the rain and dialing 911. My bike and I were transported to a nearby hospital, where I learned my left femur was fractured. I had surgery on Halloween to install a titanium rod that runs from hip to knee. When I first came home I was not able to perform most activities of daily living. My flexibility, mobility and strength have improved over time. Over the past few months, I have developed a sense of what life is like for those who live with these limits for years or a lifetime. Some things I have learned: • How important others are to my well-being. My wife has been a wonderful companion during this challenging time.
She has arranged to go in to work later every day so that she can help me. My wife has also accompanied me on so many of my appointments and firsts, such as first walk with walker out of the house. My stepdaughter has given me rides to appointments and bought accessories for the walker so I may carry beverages and other things. Friends have brought meals or have taken me out for meals. Coworkers have stopped by or called to chat. The service providers from agency to which I was connected for the first weeks were helpful: the home health aides, the physical therapists, the occupational therapists, the registered nurses and the case manager. It does seem strange that I only had contact with the case manager on the telephone. It’s interesting to note that different people with the same role do things in a different way and provide different instructions even though they come from the same agency. When I am able-bodied, I am more likely to take others for granted.
• Facilities for disabled persons may work for certain disabilities but not for others. For example, the angle of ramps may work for wheelchairs but may be too steep for a person using crutches or walkers. • Uneven surfaces on which I walked with the walker were often a challenge. The surfaces were designed to be uneven or had cracks or the spaces between the concrete had grown over time. Walking over those same surfaces, I never thought about the fact that persons who have different needs might have difficulties with these surfaces. · How the pain medication affected my cognitive abilities and emotions was something unexpected. I was not aware of how I was communicating or how vulnerable I felt. I reduced the dosage and frequency so that I begin to notice the difference. I have been using a walker to get around. At first, I noticed I could not carry anything. My stepdaughter bought a basket Learned - cont. on p. 15
March 10, 2009
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March 10, 2009
People and places
Edina senior confronts challenges and strives to help elderly by Harvey Meyer
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hen Patricia Duffy enrolled in a college course a few years ago as a senior citizen, she triggered a startling comment from a young male classmate. “What’s an old lady like you doing in class?” Her classmates and the professor were appalled. But instead of criticizing him, Duffy responded evenly. “Maybe I didn’t have the same opportunities you did. My parents couldn’t pay for my education. I’m from a family where there was a lot of illness and we kids had to work as soon as we were able to. This is the first opportunity I’ve had to attend college full-time. I hope you and I can grow together.” She later invited the young man to chat over coffee. They became friends and he later apologized to Duffy in front of the class for his comments. Now age 64, Duffy has many friends from her college classes. She also has succeeded academically; Duffy was selected fall semester 2008 outstanding student in Metropolitan State University’s First College, graduating with a 3.96 GPA.
her college course work to help make a difference in the lives of others, particularly the elderly. Many of her classmates aren’t likely to forget a tiny, energetic woman who has battled disabilities that would have thwarted most people from completing college. Because of vision difficulties, Duffy requires special equipment that enlarges print on written materials. A volunteer from each class would take notes for her on a specially designed laptop computer. With no hearing in her left ear and minimal hearing in her right, she uses a receiver that boosts the volume from microphone-wearing instructors. Compounding matters, Duffy’s car was rear-ended this past spring, causing painful neck and spine hernias that require therapy seven days a week. “But don’t call her disabled. ‘Disabled’ is something society labels you with,” said Duffy. “I can do everything it takes to be a successful student; I just need the right equipment.”
Duffy acts on a favorite adage of her grandmother’s at the More importantly, she’s count- end of several Metropolitan ing on what she learned from State classes. “She used to say,
MN BUDGET percent. Gov. Pawlenty had proposed deep cuts to health and human services programs, which would have affected a number of programs for people with disabilities. But in order to get the federal funds, Minnesota and other states must continue spending as they have
‘When you cross someone’s path and you’re not sure you’ll meet them again, make certain you leave them with a little bit of wisdom, a whole lot of love and something sweet for the journey.’”
an institutional setting,” said Duffy. “Too many facilities give the elderly three meals and a bed and are then pushed into a corner for the rest of the day much like a prison and that has to change. We must give the elderly the respect Duffy offers each classmate a they deserve.” handmade bookmark inscribed with this quote from Gandhi: Duffy’s many careers began in “Be the change you want to her native Delaware, where she see in the world.” Then before was the state’s first female students exit, she offers them a newspaper carrier. She worked warm hug and presents a silver for about 40 years in New York “LOVE” box with two choco- City as a senior executive seclates inside. retary, administrator and a selftaught computer technician “It’s surprising how much im- and instructor. pact that has had on my classmates and instructors,” she After arriving in the Twin Citsaid, recalling their touching ies several years ago, she atcomments and notes. “They tended Normandale Commudon’t forget you.” nity College, from which she graduated with academic honDuffy, whose individualized ors in 2005. She was local and major focused on leadership regional officer for the Phi service, health and spiritual- Theta Kappa International ity, intends to assist the elderly Honor Society and attended a as her latest career. She is cur- Summer Honors Institute at rently participating in a lead- UCLA for the academically ership program through the gifted. Vital Aging Network. The program helps those 55 and older Even with a crammed scheddevelop community initiatives, ule, Duffy volunteers 70 or including those that aid the more hours monthly for orgaelderly. “I would like to even- nizations benefiting the eldtually direct a special center erly, including Little Brothers for the elderly, where they are Friends of the Elderly, Luthcared for in a holistic, family- eran Social Services and who type environment rather than has also volunteered for
Patricia Duffy happily accepts her diploma from Metropolitan State University President Sue K. Hammersmith.
Loaves and Fishes and Habitat for Humanity. She recently completed a Metropolitan State internship for the Minnesota Network for Abuse in Later Life.
place of inner peace and acceptance.” Metropolitan State University, a member of the Minnesota State Colleges and Universities system, provides highquality, affordable education programs for adults seeking baccalaureate, masters and doctoral degrees. It is the only state university in the Twin Cities metropolitan area.
“One of my passions is journeying with people in the end stages of life,” said Duffy, “There is a great need to be with those who have no one to be with them in their last days. The most important thing you can do is help them come to a People/Places - cont. on p. 9
Cont. from p. 1 on the programs, to meet the federal “maintenance of effort” requirements. Hanson told the legislative commission the state doesn’t intend to violate the maintenance of effort requirements.
told the commission that they need to be mindful of the shortterm nature of the federal funding. When that money is gone, it could result in further structural imbalances to the state budget and even more cuts. That could make a bad budget But he and Schowalter also situation even worse in a few years.
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The economic stimulus package provides $1.1 billion to Minnesota schools. This money could be used to cover a wide range of expenses, including expenses tied to special education. Special education, itself would receive the second-largest allocation of the Minnesota education dollars, at $199 million. The largest sum, which could top $821 million, would be for schools to maintain their budgets. Special education funding at the federal level is a hot- button issue nationally, as local and state education leaders have long argued that the federal government doesn’t provide enough money to meet its mandates. But like the other federal dollars, this, too, is onetime funding. ■
Cartoon by Scott Adams
March 10, 2009
Huge turnout for budget PEOPLE AND PLACES rally; many air concerns Show adds a
Cont. from p. 8
“Cornerstone Solutions,” a product of MHP. She will begin her duties as co-host for the show starting in May 2009. Sheri will be bringing in a new heri Melander-Smith is perspective and will cover topthe new co-host for ics relating to lifestyles, caCTV’s television show reers and tips for healthy livcalled Disability Viewpoints. Disability Viewpoints is an award-winning cable television program promoting disability services and programs throughout Minnesota. Mark Hughes has hosted “Disability Viewpoints” for 11 years and has covered topics on augmentative communication, special education, recreation for people with disabilities, Metro Mobility, voting machines to accommodate people with disabilities and much more.
new co-host
S
Sen. John Marty was well received when he spoke at the rally.
An overflow crowd of self-advocates filled the capitol rotunda to hear the speakers.
Melander-Smith is consumer engagement specialist for
ing in order to the best life possible with or without a disability. Disability Viewpoints can be seen on Community Television (CTV) 15 at 7:30 p.m. Monday nights. For additional viewing times visit www.ctv15.org. ■
Pictured from left to right: Mark Hughes,Host; Eileen Manning, Guest; and Sheri Melander-Smith, Host
Steve Larson of The Arc of Minnesota addresses the crowd. His comments drew much applause.
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March 10, 2009
Economic stimulus:
Other legislative news
How are Medicaid services affected?
by Jane McClure, assistant editor of Access Press
by Steve Gold Vulnerable adults Therefore, how your state • With regards to the “eligiget more protection spends its new Medicaid bility” of persons and “meth- Vulnerable adults would refunds depends on political odologies or procedures” ceive more protection from fidecisions at your state under a state’s Medicaid nancial exploitation, abuse and level—not because of the plan, any person who was neglect, under bills introduced stimulus package. If your eligible on, as well as Med- last month by State Sen. Mee state tells you that it must icaid programs’ methods Moua, DFL- St. Paul, and Rep. spend its Medicaid funds on and procedures in effect on, Debra Hillstrom, DFL-Brookcertain programs or cannot July1, 2008, must be main- lyn Center. Here are some possible ando other programs, they’re tained in order for your state swers: selling you a lemon! to be eligible for the in- The bills (SF 758 and HF 8181) You’ve read about the recently creased FMAP. are meant to protect Minnesoenacted American Recovery Advocates must ensure that tans, as well as adults with and Reinvestment Act, also stimulus funds increase inte- This is a very important handle. disabilities. The bills would known as the Economic Stimu- gration of people with disabili- if your state has imposed re- streamline the state’s ability to lus Act. It has an entire section ties in the community and do strictive eligibility criteria identify and investigate such regarding “federal medical as- not increase the institutional since July 1, 2008, or changed cases. The two state lawmaksistance percentage” (FMAP). biases. This is a great opportu- its Medicaid programs’ meth- ers want their bills to update This explains the federal nity to “End the Waiting Lists” ods and procedures since July the Vulnerable Adults Act, money used to match your and to move people from insti- 1, 2008, and IF your state wants which was passed back in state’s funds for Medicaid pro- tutions to the community. You to receive the increased FMAP, 1980. grams in your state. must know how your Medic- then eligibility, methodoloaid office, governor and legis- gies, and procedures must be If adopted into law, financial The FMAP has been signifi- lature want to allocate these reinstated to what they were institutions would face more cantly increased. States’ Med- funds. IF there is a potential on July 1, 2008. Therefore, if requirements to report susicaid programs will have a Americans with Disabilities your state has, since July 1, pected cases of financial exlarge increase in federal funds Act (ADA) violation, it should 2008, restricted eligibility of ploitation. There would be without having to increase their be stopped, either by direct programs or changed Medic- expansion in the ability to bring state funds whatsoever. actions and court orders. aid programs’ procedures, criminal charges for exploitahold them accountable. tion of a vulnerable adult, and • The stimulus package pro- • A state is NOT eligible for to coordinate efforts between vides states with enormous increased FMAP if any of • States can increase eligibil- law enforcement, prosecutors FLEXIBILITY. Each state the increased federal funds ity to persons whose incomes and social services agencies. can decide how to allocate will go “directly or indi- are higher than the income the new Medicaid funds. The rectly” to “any reserve or standards [sometimes known The bill also would create a federal statute imposed virrainy day fund of the state.” as “medically needy”] and re- statewide hotline for reporting tually no requirements. ceive increased FMAP for such cases. One complaint these people. “Power concedes about the current reporting nothing without a struggle.” system is that it is confusing. Not only does the bill target Steve Gold, The Disability abuse, neglect and financial Odyssey continues. ■ exploitation, it also would improve and coordinate the reSteve Gold is an attorney who sponse should a vulnerable DirectAbility is a comprehensive, writes extensively about dis- adult go missing. ever-expanding, award-winning, Internet direc- ability issues. Back issues of his other information bulle- The bill had not had any heartory devoted to disability-related products, services, resources and information throughout tins are available online at ings when Access Press went www.stevegoldada.com to press. Last year Minnesota the state. Online at www.directability.com. had more than 20,000 cases of
I
s your state crying lack of Medicaid funds? Threat ening to reduce Medicaid waivers? Already reduced Medicaid programs? Telling the press that Medicaid funds must be reduced because of a state budget crisis?
A GREA T RESOURCE! GREAT
DirectAbility.com
abuse of vulnerable adults reported. Some of the abuse and financial exploitation cases have involved family members stealing from older or disabled relatives. Early voting could be easier Early voting could become easier for Minnesotans under proposals being considered by the 2009 Minnesota Legislature.
its share of cuts in the state budget over the next two years. The agency, which provides a number of services including the popular Radio Talking Book, recently announced proposal budget cuts. “Over the next two years, the governor’s budget cuts $139,000 out of SSB each year. There are three areas of SSB where the proposed cut would likely fall: services to children, services to seniors, and the funding of a legal advocate service SSB has long partnered with the United Blind of Minnesota to provide,” the agency stated in a press release.
A number of election officials from around the state and voter advocacy groups have lobbied for changes to state law to make early voting easier. Currently Minnesota allows absentee voting if a voter is going to be “The amount of the budget absent from his or her precinct shortfall is very large, and the fears were that the proposed “Last year some disabil- cut would include a much ity groups promoted ab- larger cut from SSB. In fact, sentee voting for persons the last time that SSB’s fundwith disabilities, as a way ing was at stake, in 2002, state agencies were asked to take a to avoid long lines an- 10% cut across the board. A ticipated for the presi- number of SSB employees were laid off at that time. It dential election.” does not seem like that request or if health issues make it dif- is going to be repeated this ficult to vote on Election Day. time.” Last year some disability groups promoted absentee One bright spot is that at this voting for persons with dis- time none of the cuts would abilities, as a way to avoid affect the Radio Talking Book long lines anticipated for the Network. The service, which presidential election. has its calendar featured in Access Press each month, is Common Cause Minnesota is celebrating its 40th anniversary one of the groups promoting this year. expanded early voting, as well Medical marijuana as changes to the voter regisadvances tration process and improved election judge training. Sug- Supporters of legalization of gestions on improving voter medical marijuana have seen training included suggestions their efforts move ahead durthat election judges be better ing the 2009 Minnesota Legistrained to assist elderly and lature. Last month the bill disabled voters. Last month passed its first committee, the the group released a 14-page Minnesota House’s Health report outlining proposed Care and Human Services changes. The report recom- Policy and Oversight Commitmended that the state adopt a tee. When Access Press went “No Excuse Mail-in Voting,” to press, the bill had also cleared to allow any individual to vote one Senate committee. by mail without the need for an excuse. Under current law, Supporters hailed the votes but voters requesting an absentee admit they continue to face ballot must choose one of four staunch opposition from the reasons for voting early. The law enforcement community, new provision would increase the Minnesota Family Counparticipation and make it easier cil and Gov. Tim Pawlenty. for absentee voters, the report Thirteen states already allow marijuana to be used legally said. for medical purposes. Those Another suggestion made by state laws are in conflict with Common Cause was that Min- federal law outlawing marinesota follow the lead of 32 juana. But President Barak other states and allow early Obama’s administration has voting. That would shorten indicated that federal resources lines at the polls on Election should not be used to circumDay by allowing voters to cast vent state laws related to mediballots when it’s convenient cal marijuana. Advocates hope for them. Election officials the new president’s views will from around the state have also help make medical marijuana testified in favor of expanded legal. early voting. Minnesota advocates are focusing on stories of those who State Services used marijuana to relieve the for the Blind faces cuts Minnesota State Services for pain of terminal illnesses inthe Blind (SSB) will be taking Other news - cont. on p. 15
March 10, 2009
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A career as a Direct Support Professional may be for you by Bridget Siljander
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irect Support Professionals (DSPs) assistpeople who have disabilities and senior citizens with a number of activities to live more independently and reach their goals. DSPs have the power to make a big difference in the lives of others because they provide a majority of the hands-on care and support to those they work with. What DSPs do is gaining more and more respect and professional recognition. If you or someone you know is interested in this important line of work, here are some useful tips. While there are a great many job titles that fall under the category “Direct Support Professional”, this article will focus on job search strategies for Personal Care Attendants (PCAs). Because of the large number of different types of DSPs, it is necessary to simplify this topic to one type. But
some of the strategies here will ing as a PCA, then you will apply to other direct support know your interests and preferences. Think about what you roles. have appreciated most as a Approach the job search pro- PCA when deciding what difessionally, by researching rection to go in your job search. your options and evaluating Perhaps you especially enjoy what interests you. Then, working with children or gather information on the em- maybe you like working with ployers which appeal to you adults who have speech or dethe most. Create or update your velopmental disabilities or resume and write a cover letter mobility impairments. If you specific to each employer. This have no previous experience is an important step, do not as a PCA, you should begin overlook it. Completing these working with consumers that steps will emphasize your pro- you have been trained to work fessionalism and your new with. In time, you will disemployer will respond with cover what you are happiest professionalism. The next doing and what situation is the steps will be applying for a best match for your personalposition, interviewing and ity, abilities, skills, interests waiting for responses. The last and preferences. step will be choosing which job offer to accept based on Researching your options: criteria that will maximize the When researching options for potential for a good fit be- employment, it is recomtween you and the employer. mended to start very broadly. Learn about any employers you Evaluating one’s interests: may have heard about or any If you have experience work- that have been recommended
to you. Make a list of any and all possible PCA employers you would like to work with. Start gathering information on those that are most attractive to you, based on word-ofmouth knowledge, first impressions, their advertisements and what you may have noticed about them during your initial broad sweep of PCA employers. Find out how long the PCA employer has been in business, how many staff and office staff are employed, what is their employee turnover rate, how many consumers they serve, what the needs of the consumers are, how many hours you can expect to work and whether you will be reimbursed for mileage between consumers. Determine the location where you would like to work. Also, consider that since you will most likely work in a community- or home-based setting, such as a home, school, or workplace, you may not need to commute regularly to
your employer’s office. Ask about their orientation and training programs. This is a major indicator of the professionalism of the PCA employer. You want to stay away from those who do not offer orientation and training because this means that they are not operating up to adequate standards. PCAs must receive orientation and training in order to be successful working with consumers. Once you have gathered enough information to feel like you have a fairly clear picture of each employer you would like to apply to, you are ready to preparing the application and for the interview process.
Most likely, you will make an appointment to visit the employer, receive an application packet, and if you have all necessary information, you may complete the application in their office. When your application is complete, submit it with your resume and cover letter.
When you are called for an interview, prepare for some of the questions you may be asked. You may be asked questions during the interview that you have not thought about before. When this happens, it is OK to let the interview know that you need a moment to think about how to answer the question. This shows thoughtfulness and careful judgment. When you apply for a PCA Be self-confident and profesposition, you should first call Health - cont. on p. 13 the employer, state that you are interested in applying for a PCA position, and inquire about there process. Then, follow the steps outlined for you.
Guest commentary
PCA program needs innovation, key changes by Scott D. Dehn, MBA, CPA
O
ver the past few weeks, the personal care attendant (PCA) program has had a lot of attention. There has been a lot of scrutiny as a result of the Minnesota Legislative Auditor’s report and our state and national current budget crisis.
limits. Audits cannot detect every instance of fraud. To suggest otherwise would be foolhardy. Nevertheless, did it really tell us anything we didn’t already suspect? The sad fact is that there are people out there that would take advantage of the most vulnerable in society. Perhaps what we did find out is that we don’t have the right systems in place to flag, and investigate potential problem billings in the program.
As a conservative, I do believe in limiting the size of government. My positions are often not popular in the disability community. However, the proposals and the audit report leave me with many questions. It is important to note that investigation is the key. Where First, I have serious concerns there is blatant fraud, then about the legislative audit rec- those guilty should be charged ommendations. As a CPA, I and prosecuted. In the same understand the nature of au- way, where there is a misundits. I also understand their derstanding or lack of care
following the rules, corrective action should be taken. However, I am deeply troubled by the recommendation that care be supervised by a qualified health care professional. For those of us who believe in the independent living (IL) model, this is a step backwards. Are we to surrender control over to some third party? Are we to put ourselves at risk of more patronization, having decisions being made for us, and forced services that we do not want or need? Equally troubling are comments by certain legislators questioning whether PCA services actually keep people out of institutions. On the surface such a comment is so ridiculous, it’s not even worthy of rebuttal.
Yet in some ways it shows ignorance of the abilities and contributions people with disabilities make each and every day. Unfortunately, the past attitude of “be realistic” keeps rearing its head. As I work with younger people with disabilities, it concerns me that, this generation, with real hopes and dreams, could have those dreams shattered by what someone else thinks is best for them.
across-the-board reduction in government in tough economic times, such as we face today. I realize everyone is out there saying, “Don’t cut my program.” The sad reality is, we are allowing the most vulnerable to bear most of the burden. Why? Because they cost too much? Because we think they might be a drain on resources, as I have heard on the bus a couple times on my way to work? It has been said that a society is measured by how it cares for the weakest in that society. Based on all proposals I have seen, we do not measure up.
In addition, I note that the bulk of the budget cuts fall disproportionably on the disabled. Have people with disabilities been reduced to dollar signs? In the first place, I submit that now is the time to true conservatism demands an PCA Program - cont. on p. 13
Diamond Hill Townhomes We are currently accepting applications for our waiting list at Diamond Hill Townhomes, a great property located near the Minneapolis International Airport. We have two and three bedroom townhomes that are HUD subsidized and rent is 30% of the total household's adjusted gross income. We have a large number of mobility impaired accessible units and we are scheduling appointments for persons in need of a mobility impaired accessible unit immediately. To schedule an appointment please call (612) 726-9341.
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March 10, 2009
Accessible performances The following performances will be Audio Described (AD) for people who are blind or have low vision, or interpreted in American Sign Language (ASL) for people who are deaf or hard of hearing. Selected performances offer reduced admission prices for the patron and one companion. When calling a box office, confirm the service (ASL or AD), date, time, ticket price and anything else needed, e.g. length of performance, etc. If you attend a show, please share your feedback with the performing organization, interpreter, and VSA arts of Minnesota. Accessible performance information is compiled by VSA arts of Minnesota, 612-332-3888 or www.vsaartsmn.org
See www.accesspress.org for complete listing and for Accessible Movie Theaters Seven Brides for Seven Brothers Through June 20 Chanhassen Dinner Theatres, 501 W. 78th St., Chanhassen. ASL: Wed., March 11, Dinner 6 p.m.; Show 8 p.m. AD: Thurs., March 12, Dinner 6 p.m., Show 8 p.m. Tix: Reduced to $50 for AD/ASL patron + one guest ($15 off reg. dinner+ show: $65); Phone: 952-934-1525; 800-3623515; E-mail: information@ chanhassendt.com Web: www.Chanhassendt.com
scriber, reg. $26); Phone: 612377-2224, TTY 612-377-6626 Web: www.franktheatre.org or www.guthrietheater.org
Ruddigore, or The Witch’s Curse March 12 – April 5 Gilbert & Sullivan Very Light Opera Co. at Howard Conn Fine Arts Center, 1900 Nicollet Ave. S., Mpls. AD: Sat., March 28, 3 p.m.; 2:15 tactile tour Tix: $17, children under 12 $9; mail: GSVLOC Tickets, 1412 W. 47th St., Mpls. 55419; Phone: 651-255-6947 A Look in the Mirror - The Web: www.gsvloc.org/ Memoir of a Deaf Performer Through March 15 A Raisin in the Sun Nic Zapko performs in ASL at March 12 – April 11 Dreamland Arts, 677 N. Ham- Penumbra Theatre at the line Ave., St. Paul. Thur.-Sat. Guthrie Theater, 818 2nd St. 7:30 p.m., Sun. 3 p.m. ASL, S., Mpls. AD, ASL: Sat., April Voicing: Each show. Tix: $13 4, 1 p.m.; Sensory Tour 10:30 ($10 students); Phone: 651- a.m. Tix: Reduced to $20 (reg. 645-5506; Web: www.dream $24-70); Phone: 612-377landarts.com 2224, TTY 612-377-6626 Web: www.guthrietheater. By the Bog of Cats org/accessibility or www. March 12 – April 5 penumbratheatre.org Frank Theatre, at the Guthrie Theater, Dowling Studio, 818 Grey Gardens March 17 – May 17 2nd St. S., Mpls. AD, ASL: Sun., March 29, 1 p.m. Tix: Park Square Theatre in a coReduced to $20 ($15 sub- production at the Ordway Cen-
ter for Performing Arts McKnight Theatre, 345 Washington, St. Paul. ASL, AD: Sat., April 25, 2 p.m. Tix/Phone: 651-224-4222, TTY 651-2823099 Web: www.ord way.org/ services/access.asp or www. parksquaretheatre.org Local Film Stop the Re-Route: Taking a Stand on Sacred Land March 21 Ann Follett Video at Walker Art Center Cinema, 1750 Hennepin Ave., Mpls. AD: Sat., March 21, 2 p.m. Tix: $8 ($6 Walker members). For audio description service, contact Melissa Schedler, Phone: 612-253-3555; E-mail: Mel issa.schedler@walkerart.org. Web: http://calendar.walker art.org/event.wac?id=4915 No Child… Through March 22 Pillsbury House Theatre, 3501 Chicago Ave. S., Mpls. ASL: Sat., March 14, 7:30 p.m. Tix: AD performance: Pay what you want. ASL performance reduced to $15 (reg. $20); Phone: 612-825-0459 Web: www. pillsburyhousetheatre.org
“Living Creatively” Exhibit Through March 28 Lake Elmo Regional Art Center, 3585 Laverne Ave. N., Lake Elmo. ASL: for Opening Reception Sun., March 8, 1 to 3 p.m. Tix: free, donations welcome; Phone: 651-351-3108; E-mail: ArtStCroix@gmail. comWeb:www.lakeelmoart.org Iqbal Through March 29 Children’s Theatre Company, United Health Group Stage, 2400 3rd Ave. S., Mpls. AD, ASL: Fri., March 27, 7:30 p.m.; student matinee Wed., March 25, 10:30 a.m. Tix: Mention VSA Offer for $14 tickets (reg. $14-27); Phone: 612-874-0400 Web: www. childrenstheatre.org The Two Gentlemen of Verona Through March 29 Guthrie Theater, Wurtele Thrust Stage, 818 2nd St. S., Mpls. Captioning: Fri., March 13, 7:30 p.m. Tix: Reduced to $20 for AD/ASL, $25 for captioning (reg. $24-70); Phone: 612-377-2224, TTY 612-377-6626; Web: www.guth rietheater.org/accessibility The Secret Garden March 13-29 Mpls. Musical Theatre at Illusion Theatre, 528 Hennepin, Mpls. AD, ASL: Sun., March 22, 7:30 p.m. Tix: Reduced to $18 (reg. $25); Phone: 612339-4944 Web: www.about mmt.org The Color Purple March 17-29 Touring company at Ordway Center for the Performing Arts, 345 Washington, St. Paul. ASL, AD: Sat., March 28, 2 p.m. Tix/Phone: 651-2244222, TTY 651-282-3099 Web: www.ordway.org/services/access.asp Passage of Dreams March 19 – April 5 Theater Latte Da at Southern Theater, 1420 Washington Ave. S., Mpls. AD, ASL: Thurs., March 26, 7:30 p.m. Tix: $12-34, Phone: 612-3401725 Web: www.theaterlatte da.org or www.southern theater.org Brighton Beach Memoirs March 19 - April 5 Sabes Jewish Community Center Performing Arts Season at Sabes JCC, 4330 Cedar Lake Road S., St. Louis Park. ASL: Sat., March 28, 7:30 p.m. Tix: Reduced to $12 (reg. $16-20); Phone: 952-381-3499; Email: jaldridge@sabesjcc.org or Web: www.sabesjcc.org
The Devil’s Disciple March 20 - April 12 Theatre in the Round, 245 Cedar Ave., Mpls. AD: Sun., April 12, 2 p.m., tactile tour at 1 p.m. Tix: $20, sr/student discount; Phone: 612-3333010 Web: www.theatreinthe round.org
St. Paul. AD & ASL: Sun., April 12, 2 p.m. Tix: Reduced to $15; Phone: 651-292-4323 Web: www.historytheatre. com
Circoluna (Circus Moon) March 31 - April 26 Children’s Theatre Co., 2400 3rd Ave. S., Mpls. AD & ASL: Hello, Dolly! Sat., April 25, 1 p.m. Tix: March 20 - April 19 Mention VSA Offer for $14 Rochester Civic Theatre, 20 tickets (reg. $14-27); Phone: Civic Center Drive SE. ASL: 612-874-0400 Web: www. Sat., April 18, 8 p.m. Tix: $22, childrenstheatre.org senior $19, student $12; Phone: 507-282-8481 Web: Magic Tree House – www.rochestercivictheatre.org/ The Musical April 4 Rent Touring Company at Historic March 25-29 State Theatre, 805 Hennepin Touring company at Orpheum Ave. S., Mpls. ASL: Sat., April Theatre, 910 Hennepin Ave. S., 4, 3 p.m. Tix: $27-37; AD Mpls. AD: Sat., March 28, 8 p.m. offered if in advance; Phone: ASL: Sun., March 29, 1 p.m. 612-373-5639 or 5609; hotline Tix: $18-70; Phone: 612-373- 612-373-5650; TTY 612-3735639 or 5609; hotline 612- 5655; E-mail: accessible@ 373-5650; TTY 612-373- orpheum.com Web: www.hen 5655; E-mail: accessible@ nepintheatredistrict.org/ orpheum.com Web: www.hen guestservices/aslad/ or www. nepintheatredistrict.org/ mthmusical.com guestservices/aslad/ Noble Dreams/Simple PleaFood, Glorious Food! sures: American MasterMarch 27-28 works from MN Collections Twin Cities Gay Men’s ChoApril 5 rus at Ted Mann Concert Hall, Mpls. Institute of Arts, 2400 2128 4th St. S., Mpls. ASL: Third Ave. S. ASL: Sun., April Fri., March 27, 8 p.m. Tix: 5, 1 p.m. public tour begins by Reduced to half-price: $16.50, the information desk in the $12 & $9 mention code TERP museum lobby. Tix: special (reg. $23-38, children half- exhibition admission; Phone: price); Phone: 612-624-2345 612-870-3131 or TTY 612Web: www.tcgmc.org or 870-3132; E-mail: dhegstrom www.northrop.umn.edu @artsmia.org Web: www.arts mia.org Leading Ladies March 27 – April 5 The Barber of Seville Fargo-Moorhead Community April 11-19 Theatre, 333 4th St. S., Fargo. Minnesota Opera at Ordway AD: Sun., March 29, 2 p.m.; Center for Performing Arts, pre-show at 1:30 p.m. ASL: 345 Washington St., St. Paul. on request in advance. Tix: Sung in Italian with English Half-price (reg. $15, senior captions projected above 65+ $12, student $9); Phone: stage. AD: Sun., April 19, 2 701-235-6778, 877-687-7469 p.m.; pre-opera discussion at 1 Web: www.fmct.org p.m. Tix: Reduced to half-price for AD patrons; Phone: 612Crime and Punishment 333-6669; TTY 651-282-3099 March 27 – May 3 Web: www.mnopera.org Jungle Theater, 2951 Lyndale Ave. S., Mpls. AD: Thurs., Sister Kenny 46th InternaApril 16, 7:30 p.m. Tix: Re- tional Art Show by Artists duced to $10 (reg. $24-36); with Disabilities Phone: 612-822-7063 Web: April 16 – May 22 www.jungletheater.com/ The opening reception of this art show and sale on April 16 Church Basement Ladies will have an audio describer 2: A Second Helping! available, and the 6 p.m. through October 2009 awards program will be interPlymouth Playhouse, 2705 preted. Regular exhibit hours Annapolis Lane N., Plymouth are Mon.-Fri. 9a.m.-5p.m., (Best Western Kelly Inn) ASL: weekends 10 a.m.-4 p.m. SisSat., March 28, 3 p.m. Tix: Disc. ter Kenny Rehabilitation Into $26; Phone: 763-553-1600; stitute, second floor of Abbott E-mail: bompp@plymouth Northwestern Hospital, 800 E. playhouse.com Web: www. 28 th St., Mpls. AD, ASL: plymouthplayhouse.com Thurs., April 16, 5 -8 p.m. Tix: Free. Phone: 612-863-4463. Blue Collar Diaries Web: www.allina.com/ahs/ March 28- April 19 ski.nsf/ History Theatre, 30 E. 10th St., Performances - cont. on p. 13
March 10, 2009
HEALTH -
PCA PROGAM -
Cont. from p. 11
sional throughout the interview. This will make a good impression and build trust for the employer. How you present yourself in the interview will indicate how the employer may expect you to perform your job duties. Be at your best and let your strongest qualities show through. Choosing an offer to accept: After interviewing, it will usually take some time before you can expect to hear back from the employer you interviewed with. Try to be patient (hiring you too quickly could be a warning sign) and try not to take it personally if you do not hear back from an employer at all. There can be many factors that enter into their decision and you will not likely have access to all of the information or the reason for a rejection. During this waiting period, send thank you notes to each employer for the opportunity to interview. When all goes well, you will receive a job offer, or perhaps more than
one. When deciding which offer to accept, use criteria that will enable you to accept the PCA position that is the best fit for you. Some criteria have already been discussed in this article, such as considering the orientation and training program of the PCA employer, location, and how many PCAs and office staff are employed. Think about the workplace culture that you picked up on when you interviewed. Compare wages and benefits offered by each employer. Create your own criteria and map out what is most important to you. After you have chosen an employer, you will need to choose the consumers you would like to work with. In short, you should also interview with a consumer and get to know him or her before starting your working relationship. Compatibility between the PCA and consumer is essential after all you’ll be having personal contact with them in their home
PERFORMANCES Oliver! April 17 – May 2 Morris Park Players at Folwell Middle School, 3611 20th Ave S., Mpls. AD: Sun., April 26, 2 p.m. Tix: Reduced to $10 (AD patrons, student, sr; reg. $15); Phone: 612-724-8373 Web: www.morrisparkplay ers.org The Trip to Bountiful April 17 – May 3 Lyric Arts Main Street Stage, 420 E. Main St., Anoka. ASL: Sat., April 18, 7:30 p.m. (If requested min. week before opening) Tix: Reduced to $13 (reg. $16, $14 student/senior), $18 box seats; Phone: 763-4221838 Web: www.lyricarts.org 2.5 Minute Ride April 18 – May 10 Minnesota Jewish Theatre Co. at Hillcrest Center Theater, 1978 Ford Pkwy, St. Paul. AD: Sun., April 26, 2 p.m. Tix: Reduced to $15 (reg. Sun. mati-
for extended periods of time. Your abilities, skills, and training should also be a good fit between you and the consumer. Now, you have learned about the process of seeking a PCA employer to work for. Remember, PCAs are highly valuable service providers. Be sure that you are treated as a professional and that you conduct yourself as a professional. Also, remember you’re in their personal space, treat it respectfully. This will promote the personal care assistance field as the true profession that it is. Good luck with your job search! ■ Bridget Siljander is president of the Direct Support Professional Association of Minnesota (DSPAM). She may be contacted at bridgetsiljander @yahoo.com or 612-2720281
Cont. from p. 12
Rapunzel Uncut nee $22); Phone: 651-647-4315 April 25 – May 8 Web: www.mnjewishtheatre. Lyric Arts Main Street Stage, org 420 E. Main St., Anoka. ASL: A Bright Room Called Day Sat., April 25, 11 a.m. (If requested at least week before April 19-25 U of M Theatre & Dance at opening) Tix: $10, $12 box Rarig Center, 330 21st Ave. S, seats; Phone: 763-422-1838 Mpls. ASL, AD: Sun., April Web: www.lyricarts.org 19, 2 p.m. Tix: Reduced to $10 Art in Bloom (use code ASLAD; reg. $15 April 30 – May 3 advance/$17 door; $2 discount for srs or UMAA members); Mpls. Institute of Arts, 2400 Phone: 612-625-4001 Web: Third Ave. S. ASL: Thurs., http://theatre.umn.edu/u April 30, 7 p.m. & Sun., May theatredance/mainstage 3, 1 p.m. Free ASL-interpreted public tour begins by informashows/BrightRoom.php tion desk in museum lobby. Tix/Phone: 612-870-3131 or Romeo and Juliet TTY 612-870-3132; E-mail: April 22-25 Normandale Community Col- dhegstrom@artsmia.org lege Theatre, Fine Arts Build- Web: www.artsmia.org ing, 9700 France Ave. S., Bloomington. ASL: Thurs., April 23, 7:30 p.m. Tix: $5-8; Phone: 952-487-7462 Web: http://faculty.norman dale.edu/~theatre/ Season.htm
look to innovation to deal with the PCA program. Perhaps it is time to revisit the independent living model. Under this model, the user of the service is in control of every aspect of the supportive services needed to maintain independence. PCA choice is a step in the right direction. However, certain improvements can be made. One example is the assessment and monitoring of services. It would be my preference that this would be eliminated. But I can see where it is needed to safeguard the taxpayer. Therefore, instead of going through some third-party which adds costs as well as decreases independence, recipient choice of professional should be built in. As far as assessment, who would know the person better than his or her own family doctor? The process can take place at an annual physical, saving extra costs for sending someone out to do an assessment. There will be those who will argue that not everyone has the ability to handle this responsibility. Granted, for those people a more traditional approach may be necessary.
13
Cont. from p. 11
However, I would also note that everyone is entitled to have someone act as a supportive person, whether it is a friend, family member, minister or advocate. It has been said, “Nothing about me, without me.” These words have for too long, been just a slogan. The time is now to make them part of policy. I believe that if we do this, we can build a cost-effective program that truly meets the needs of the people it intends to serve. ■
Scott Dehn was born with Cerebral Palsy and is a passionate advocate for the Independent Living Model. He served on the State Rehabilitation Council from 1999-2005. He currently serves as a director for Community Involvement programs and the Metropolitan Center for Independent Living. He also serves as an adapted sports official for the MN State High School League.
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March 10, 2009
Upcoming events To list an event, email access@accesspress.org Rise, Inc. Art Show Support Art Speaks, a program of Rise, Inc. by buying a poster or attending an art show. The latest art show is at Dunn Brothers Coffee, Loring Park, 329 W. 15th St., Mpls. through March 30. Works of 14 artists are featured. View art and support the work of artists with disabilities. Or why not buy a poster through Rise, Inc.? Works by Lue Wills or Nathaniel James are featured on the posters. The suggested donation for each is $25. Get posters at Rise Inc. headquarters at 8406 Sunset Road, Spring Lake Park, or through www.rise.org/Support Rise/ Donations, Mary Kriz at 763792-2448 Transitions workshop Arc Greater Twin Cities hosts a workshop, GetSet! For Transition, 6:30-8:30 p.m. Tuesday, March 10 at Family Service Center, 400 10th St. NW, New Brighton. It is for parents of students in middle school and high school and focuses on the process of developing a transition Individualized Education Plan (IEP) with their child’s school. Cost is $10 per person for Arc members and $25 per person for non-members. FFI: 952 9200855, www.arcgreatertwin cities.org
PACER hosts speakers PACER has two sessions for parents this month. Sessions are 7-9:30 p.m. Monday, March 16 and March 30 at PACER Center, 8161 Normandale Blvd., Mpls. Learn to help children manage anxiety and depression, and how to deal with attention deficient and behavioral disorders. Please pre-register for one or both sessions. FFI: 952-8389000, 952-838-0190 (TTY), It’s a night on wheels on Saturday, April 11 in St. Paul. The www.PACER.org/workshops Minnesota Roller Girls women’s roller derby hosts the Minnesota North Stars quad rugby team—our own state version Interact hosts artists of murderball. Events are held at Roy Wilkins Auditorium in Interact Center’s Inside Out downtown St. Paul. Quad rugby starts at 6:30 p.m., with two rd Gallery, 212 3 Av. N., Mpls., championship Roller Girls bouts getting underway at 7:30 hosts 6 x 6, a show by artists p.m. It’s the last set of bouts for the season! Tickets are $10 Ben Collis, Jill Griffin, Di in advance and $12 at the door. Ticket locations are on the Posch, Andy Seymour, Lucy Roller Girls Web site. After the events there’s a chance to Johnson and Deanne Sullivan. meet the quad rugby players and the Roller Girls. FFI: The show runs through April www.MNRollergirls.com 3. FFI: 612-339-5145, www. interactcenter.com ents and grandkids can enjoy attend. To register, call Arc at ‘Spring Out!’ at Arc Make making together. This event (952) 920-0855. & Take Event is free thanks to a grant from Grandparents and their grand- the Metropolitan Area Agency Adaptive technology classes children who have intellectual on Aging. Grandparents may Free adaptive technology and developmental disabilities bring more than one child. classes are offered by Hencan celebrate spring at a Make Aunts, uncles and other family nepin County Library, at the and Take Family Fun Event caregivers for a child with a downtown Minneapolis lifor “grand” relatives from Arc disability are also welcome to brary, 300 Nicollet Mall. Greater Twin Cities. The event is 10 a.m.-noon Saturday, March 21, at Oak Grove Elementary School, 1301 W. Radio Talking Book (RTB) is a closed-circuit reading network 104th St., Bloomington. En- broadcasting 24 hours daily to more than 7,500 visually joy games, snacks and two impaired persons (with a potential of 35,000) in Minnesota and craft projects that grandpar- South Dakota. Through satellite distribution, thousands of
Accessible movie theaters
T
he movie complexes listed below offer MoPix-equipped captioning or description services. For show times, call the theatre; sign up to receive their email list; contact Minnesota Open Captioned Films, Web: www.mnocfilms.org/ movies.html or Rear Window Captioned Film Web: http:// ncam.wgbh.org/mopix/nowshowing.html#mn venture; Rear view and AD DVS) until June 11 2009; Rear view captioning and DVS for most films in the Omnitheater or the 3D Cinema. Show times vary but are approximately hourly during regular museum hours: Monday-Wednesday 9:30 am-5 pm, Thursday-Sat. 9:30 am - 9 pm, Sun. 12 noon - 5 pm, to request accommodations for exhibits call at least 72 hours in advance, Phone: 651-221-9406, TTY: 651-221-4585, Email: info@smm. org Hours/Showtimes: www. smm.org/hours Web: www. smm.org/ visitorinfo/hours/ AMC Eden Prairie Mall 18 showtimes_dynamic.php or Theatres, 4000 Flying Cloud www.smm.org/info/accessi Drive at Eden Prairie Shop- bility.php. ping Center, Hwy 212 and 494, 952-656-0010. Park in upper Lakes 10 Theatre, 4351 level lot between Sears and Stebner Rd., Hermantown. 12 Kohl’s. Accessible films in Handicapped Parking spaces Auditorium 4. near theater. Movie Line: 218729-0335, Emergency Line: Science Museum of Minne- 218-729-0334, Fax: 218-729sota Omnitheater, 120 Kel- 0334, Email: Sfennessey logg Blvd. W., St. Paul. Now @cectheatres.com ■ Showing: Grand Canyon AdKerasotes Block E Stadium 15, 600 Hennepin Ave., third floor, Mpls. 612-338-1466, bloc@kerasotes.com Accessible films in Auditoriums 2 and 12. (Note: DVS patrons: If your show is in Theatre 2, request headset with Letter C. If your show is in Theatre 12, request headset with Letter G.) Enter parking ramp on 7th Street next to the Hard Rock Café. www.kerasotes. com/ (Scroll down the lower righthand column every Friday morning to see what two films will have rear view captioning or DVS that week at Block E.)
Classes are free but you must pre-register. Upcoming classes include job searches, Internet use, use of JAWS and the Magic magnifying program. In addition to classes there are often volunteers available to introduce patrons to the equipment and software available. Volunteer hours vary, so it’s best to call ahead. The Blind and Low Vision Computer User group meets in Room N402 1-3 p.m. the second Saturday of each month. Attend a meeting and network with others. FFI: 612-630-6469, www .hclib.org
ics. FFI: 952-838-9000; www. PACER.org
PACER benefit Save the date of Saturday, May 2 and attend the 27th Annual Benefit for PACER Center. This year’s event, which will be held at the Minneapolis Convention Center, features Frankie Valli and the Four Seasons. A dinner, silent and live auctions and other events are part of this fundraiser. Tickets start at $55. PACER Center helps parents of children and young adults with disabilities and offers many free workshops on a wide range of top-
Be a literacy volunteer Last year, Minnesota Literacy Council volunteers helped more than 24,000 adults achieve their learning goals. Tutor immigrants, refugees and lifelong Minnesotans in reading, writing and English. Tutor oneto-one, in a small group or as a classroom assistant. Training, ongoing support provided. Opportunities are available throughout Minnesota. FFI: Allison at volunteer@theMLC .org or 651-645-2277, Ext 219. ■
Help others manage finances RSVP/Volunteers of America of Minnesota and AARP Foundation need volunteers with good budgeting and organizational skills to help manage finances of older or disabled low-income individuals. Have a few hours a month to volunteer? Money Management Program staff will train and match you with someone in the community. FFI: Money Management Program Coordinator, 612-617-7821.
Radio Talking Book • March 2009
listeners nationwide receive RTB broadcasts via their local radio reading services. Receivers are available on loan without charge to those who are eligible and who want to keep up-todate with the latest word in newspapers, magazines and bestsellers. FFI: www.mnssb.org/allages/commcenter/rtb The Bookline is the 24-hour dedicated telephone answering machine that has the listings of the books for the month. The number is 651-649-5902. All; programs are Monday-Friday, except for Chautauqua, which is Tuesday-Saturday. • 4 a.m. Chautauqua–Adult education and culture for the whole community. The Prodigal Tongue, Nonfiction by Mark Abley, 2008. Abley traveled around the world to ask what the future holds for how we communicate. He balances traditional concern for honesty and accuracy with a delight in creative energy of new words. L–Read by Judy Woodward. 12 broadcasts. Begins March 16. • 9 a.m. Monday-Friday Past is Prologue–A wide range of nonfiction. Inventing Niagara, Nonfiction by Ginger Strand, 2008. We call Niagara a natural wonder, but the falls are not very natural. They are a monument to how America falsifies nature, reshapes its contours, and redirects its force. Read by John Hagman. 13 broadcasts. Begins March 11. • 11 a.m. Bookworm–Novels and nonfiction books for daytime reading. Promise of the Wolves, Fiction by Dorothy Hearst, 2008. Kaala, a mixed-blood wolf, dares to break rules, saving a human from drowning. When war threatens, she is forced to choose: safety, or the survival of her pack. Read by Jenny O’Brien. Nine broadcasts. Begins March 19. • 2 p.m. Potpourri–A wide variety of books, both fiction and nonfiction, for afternoon reading. Into Thick Air, Nonfiction by Jim Malusa, 2008. With sunscreen and a beer, Malusa took his bicycle to the lowest point on each continent. He discovered what happens when a friendly American puts himself at the mercy of strange landscapes and denizens. L - Read by John Mandeville. 15 broadcasts. Begins March 23.
•4 p.m. Choice Reading–Critically acclaimed books on a wide variety of subjects. Shelter Half Fiction, by Carol Bly, 2008. In this northern Minnesota town, people look out for each other. When cutthroat corporate interests move in and events of the nation look grisly, these people still do what they can for love and justice. Read by Malcolm McLean. 10 broadcasts. Began March 9. •5 p.m. Commentary–The latest issues of national news magazines •6 p.m. Evening Newspapers–Live broadcast of the NY Times •7:55 p.m. Radio Talking Book schedule for the rest of the broadcast day •8 p.m. PM Report–Books exploring critical, contemporary and controversial issues. The Post-American World, Nonfiction by Fareed Zakaria, 2008. Economic growth is happening in many countries that used to be insignificant. This growth produces good things, but also problems the world is not equipped to tackle. Read by Charlie Boone. 10 broadcasts. Begins March 30. •9 p.m. Night Journey–Books of intrigue and suspense. Red Knife, Fiction by William Kent Krueger, 2008. Gangs seem to be moving into northern Minnesota. Threats from all sides assail Cork O*Connor, who is part Ojibwa, as he tries to mediate a feud between Indians and whites. L - Read by Ray Christensen. 10 broadcasts. Began March 2. •10 p.m. Off the Shelf–Mostly best sellers. •11 p.m. Evening Odyssey–Contemporary fiction. My Name Is Will, Fiction by Jess Winfield, 2008. Though living in different times and places, Willie Greenberg*s and William Shakespeare’s lives intersect. L-Read by Richard Klein. 11 broadcasts. Begins March 17. •12 a.m. Good Night Owl–A wide-ranging assortment of books. •1 a.m. After Midnight–Adventures of the heart and body. Alive in Necropolis, Fiction by Doug Dorst, 2008. Rookie cop Michael Mercer works in Colma, California, a “cemetery city” serving San Francisco. When Mercer looks at how his predecessor died, he finds he was policing the dead as well as the living. L - Read by Wally Peters. 17 broadcasts. Began March 9. *Abbreviations: L- offensive language, V- violence, S- sexual situations
RTB Books Available Through Faribault All books broadcast on the Minnesota Radio Talking Book Network are available through the Minnesota Braille and Talking Book Library in Faribault. Library phone is 800-722-0550 and hours are 7:30 a.m. to 5 p.m. Monday through Friday. Their catalog is also online and can be accessed at www.klas.com/mnbph ■
March 10, 2009
TRAVEL -
Cont. from p. 3
ropean model it was quite evident that each person on this team had worked with one other and with persons with disabilities prior to my arrival. In the U.S. often it can be the first time an assistant has helped in any kind of transfer or even pushed a wheelchair/ aisle chair. As for the train trips, the first thing I noticed was that all of the train floors were about two feet higher than the platform. I became concerned and checked with the train information person. who assured me that they knew I had a reserved seat and needed their assistance to get on the train? I waited, somewhat nervously. Ten minutes before the train was scheduled to arrive and depart for Paris, a person pushing a big lift came down the platform. I was relieved.
notified the stewardess and the ticket taker that I needed a lift when we got to the Nord train station in Paris—it wasn’t there! I got off the train late and we had to rush to get to the Est station. There was a cab driver in uniform waiting with a sign saying “Mr. Rick Cardenas,” how cool is that? We hurried outside where his Mercedes van was waiting for us, with just minutes get to the other train station. But when I saw that the Mercedes had no dropped floor, I questioned for a minute on how to get up the ramp and into a short headroom van. We figured out to get up the ramp and into the Mercedes and headed for the other train station. All of that work and we missed the train. Luckily we caught another train and away we went to Strasbourg. ■
DOG GUIDE I always ask for the bulkhead so my dog can lie at my feet. The seats we were given were too close together and there wasn’t room enough for my dog to lay for the more then three-hour flight. The flight attendant moved us to a bulkhead seat. The three of us had a much more comfortable seating arrangement because of that change. The plane started down the runway a half hour late. My dog guide didn’t move from his curled up position on the floor as the plane gained speed and altitude. Once we leveled off, the warning systems shut off and we could move around the cabin.
Classifieds
Cont. from p. 3 on the island between traffic and in the wrong location. We searched for the correct place to catch our van. Since neither of us could see the signs, we’d go from shuttle stop to shuttle stop in search of the one we needed. “Hey there! — Are you going to the Radisson at Pier 39 in San Francisco?” It was hard to pull our heavy, seemingly heavier wheeled suitcases from stop to stop, a hundred feet one way and a couple hundred feet the other. My dog guide was as bewildered as we were. Another attendant came to our rescue. She took us to the correct spot, more than several hundred feet from where we were initially left stranded. The van came within ten minutes. We loaded our luggage and hopped in. Ten minutes later, we’d be at our hotel. What a relief. We made it.
15
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The flight attendant seemed nervous around me. When I asked to use the bathroom, just five steps from where we were Rick Cardenas is co-director seated, my dog wanted to be Before we arrived in Paris I of ACT. right there to guide me. The hotel staff checked us in, gave us our room keycards After landing, we needed to and told us how to get to our Cont. from p. 6 get to the luggage claim. I room. One of the staff walked variety of reasons, we are un- Accepting my limitations is asked a flight attendant to get with us to our room I asked her able to make useful and life- important for my health and an escort for us. After we about outdoor relieving places Employment ads are $20-$22 per col. inch. March 31 is the deadline for the April 10 issue. Mail to: Access enhancing connections. It was well-being on many levels— retrieved our luggage, the es- for dogs. She told us about Press, 1821 University Ave. #104S, St. Paul, MN 55104 • the case with me around my physically, emotionally and cort loaded the two heavy suit- some good areas around the FAX 651-644-2136 • Email: access@accesspress.org denial about having a disabil- spiritually. Facing limitations cases onto a cart and we headed corner of the hotel. Both relief ity. What gets in the way of helps me be realistic about for the shuttle service to our areas would be visited a lot ADMINISTRATIVE ASSISTANT integrating a dramatic and trau- what I can do. I now pace hotel. We had to cross one over the short time we’d be at PCL Construction Services, Inc. is seeking an Administrative matic change into our lives? myself better, and try not to do lane of traffic to get to the the hotel. Assistant to work in our Recruiting & Professional DevelopPerhaps we don’t allow an as much physical work at one island that was between traffic ment department located in the Burnsville, MN district office. experience to connect as new, time. I try not to fix or “save” lanes and the terminal side- Before we went off for lunch, Successful candidate will have 3+ years of admin experience & my dog guide would get his proficiency in MS Office. Experience in the areas of recruiting, and instead it gets glommed people in my work, reminding walk to catch our shuttle. late breakfast of dry dog food training and career development with related post-secondary onto a past experience which myself that it is enough to be we didn’t fully understand at loving and present and that I The worker gave us hand sig- with warm water that made a education is preferred. the time it happened. Perhaps don’t need to give myself away nals about where to wait and nice gravy mix. He was very we stop the experience from or merge with them in order to call for the shuttle. He told us delighted to finally eat; it had Further details & application can be found online at being fully felt. Maybe the “help” them. I trust their inner we needed to use the phone to been a long trip for this partner http://services.pcl.com/locations/minneapolis/careers.aspx enormity of the experience was knowing to come forth when call for the shuttle and he as well. walked away in silence. The simply too much to be pro- support is available. Job ID # 1322. phone number for the shuttle The next notebook segment of No phone calls or walk–ins please. cessed all at once. Sometimes, as in my case, the new reality Since my cancer treatment was on the voucher, but the my journal will be about our may be something we don’t ended, it is important to keep print was far too small, even first two days on board ship. want to admit about ourselves. current with myself, to keep with magnification, to read. ■ NETWORK TECHNICIAN processing the reverberations We were left stranded, alone, Provide user support & cust serv. Learn fundamental operaProtective mechanisms can be from my experience. This is tions of commonly used software, hardware, & other equip. helpful when we can’t inte- what I need to do in order to Friendly presence, helpful attitude, ability to work well with grate a new experience. If we keep myself alive to my life in others. Ability to provide tech support over phone. Good prob Cont. from p. 10 fail to eventually process a dif- the moment. I have found that solving skills; handle constantly changing flow of traffic; ficult experience, it can mani- it’s important to keep death cluding cancer, HIV-AIDS, life have been among those remain productive during slow times, multitask effectively fest in a variety of painful ways: close to me. Not being afraid spinal cord injuries and other testifying at the capitol. One during busy times, exer patience & profess during stressful as chronic tension in the body; of my vulnerability helps me debilitating conditions. Per- speaker showed a committee a situations. Casual work environ. Exempt position. Sal as an inability to access our be more compassionate for the sons whose pain is relieved by large trash bag, filled with pain- $40,800+, DOE & benefits. Cover ltr & resume by 3/13: emotions; as dissociation from difficult things, the things I marijuana and family mem- killers that he said didn’t work. body sensation; or as an in- don’t understand in the lives bers of those who used mari- ■ Pam Cunningham, Ad #326, MMLA, 430 - 1st Ave N, #300, juana during the end stage of ability to take in new experi- of others. It helps me to keep Mpls, MN 55401-1780. EOE No calls. ences fully. The process I en- questioning my judgment of gage people in with bodywork others, to stay connected to Custom Built Fully Accessible Home is aimed at helping us know my heart and to keep my conour own needs and feelings in nection with myself, which relation to what happens to us makes it possible to connect Roll in shower, roll under counters and roll out to large with others. This is the gift of in the world. truth over denial. ■ patio and secluded privacy fenced yard. All one level,
Access To Employment
DENIAL -
OTHER NEWS -
LEARNED -
Cont. from p. 6
and a beverage carrier. They sure made a difference. Service providers never suggested accessories. I remember being at the physical therapist’s office and another patient who used a walker asked where I had found the accessories. Others with similar needs may be great resources.
called Road ID. Road ID could play an important role in getting assistance when the wearer is unable to request it. I now have a bright red ID that I can wear on my ankle when I am out. It provides an 800 number or a Web site and my ID numbers so that others may get information about me in addition to contacts, doctor, insurRealizing that I might have ance, medical details, etc. been unresponsive as a result Check it out at www.roadid. of my accident, I recently or- com ■ dered a great product. It’s
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March 10, 2009
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