March 2009 Edition - Access Press

Page 1

www.accesspress.org History Note

Inside ■ Travails of travel - pg 3 ■ Able-bodied? - pg 6 ■ Medicaid impacts - pg 8

“The superior man is modest in his speech, but exceeds in his actions.” —Confucius (551 BC - 479 BC)

Page 2 Nonprofit Org. U.S. Postage PAID Mpls. MN Permit No. 4766

Volume 20, Number 3

Minnesota’s Disability

Community Newspaper

March 10, 2009

Pregnancy Journal: The End!

Baby Matthew Nam Loob McIntosh has arrived by Mai Thor

I

think I’ve done some pretty cool things in my life as a woman with a disability. I mean, I don’t go around tooting my own horn or anything, but it was pretty cool when I went up to the top of a volcano in Costa Rica. Then there was that time I did a cross-country camping trip to California and got a chance to see our great country. Or the other time a French-Canadian swore at me for driving the wrong way in Montreal (the swearing wasn’t cool, but being in Montreal was). However, the coolest thing I’ve done in my life as a woman with a disability now has to be having my son. Everything else pales in comparison and nothing in the future will ever measure up. You know I don’t consider myself very sentimental or overly emotional, but you really have to be made of stone to look into your own newborn’s face and not get a little verklempt. What a great way to start the year. Matthew

Nam Loob McIntosh was born on January 28. He weighed in at 5 lbs., 8 oz, measuring 18 inches long. He is a healthy baby boy. Obviously, the amniocentesis I mentioned in my last journal went well and we went ahead with the Caesarean section the next day. I’d tell you all about the delivery, but I didn’t see anything. I was completely out under general anesthesia. As I mentioned before, an epidural was out of the question due to the metal in my spine, so the anesthesiologist said that generally would be the best route to take in my case. Initially, I was bummed that I wouldn’t see my baby as soon as he was born. At the same time I felt a sense of relief knowing I would be oblivious to everything while the doctors do their stuff.

happened very quickly, or so the drugs made it seem. One minute there are about 10 different people around you poking and probing you and then the next, you are waking up with what seems to be the most massive hangover in your life; without the headache, that is. It took all the strength of God, Buddha, Allah and all the other guys up there for me to wake up; however I wanted to see my baby. And once we got moved to a hospital room, he was brought in and I was able to meet him. And how did I react? Well...you know, I mentioned I’m not very emotional. I saw him and I thought, wow this tiny little guy came from me? That’s just not possible. This belongs to someone else and when I recover, I’m going to have to leave him behind. There’s no way this In the end, it all worked out beautiful baby boy is mine! I just fine. Since I was com- think I was in denial. pletely asleep, Charles was not able to be in the operating room The whole thing took about with me, but he watched from two hours. We were in the the door window. And it all hospital for four days and no,

I didn’t have to leave him behind. Turns out he is mine and he will be with me forever. Having baby in the hospital with round-the-clock nurse’s care versus having him at home with just my own care is quite a change. Being a month early, he is so tiny that I want to make sure I’m giving him the care he needs. I’m enjoying every minute of it, though. Matthew is an easy baby and I feel overly blessed in so many ways. Not to mention, he is the cutest! He is truly a really good looking baby! I still can’t get over the fact that I produced such a good looking kid! I rock! Come on, even though no one wants to admit it, we’ve all come across some ugly babies in our lifetime. I was just praying that I wasn’t going to be one of the mothers who had one of them. Fortunately, I’m not. We might even enter him into baby modeling—who knows?

Welcome Matthew Nam Loob McIntosh nancy journey. Having Matthew join our lives is just the beginning of a new journey, a journey that will be filled with many wonderful, happy, stressful, infuriating and hilarious memories. He already cracks me up daily.

I want to thank all the readers of Access Press for allowing me to share my journey. I especially want to thank the folks at Access Press for making it possible. Writing these articles So, the journey ends here my have been more than just tellfriends. Or at least the preg- ing a story of a disabled

woman’s inherent right to have a child. It truly was the story of my life during the last eight months. I’ve learned so much already in my short time as a mother, with two lessons that stand out. I will never tell my son he cannot do something. We with disabilities know all too well what that’s like. Also, now that I have him as my responsibility, I will do my best to be an even better person. I think all our kids deserve that. Thanks to all! ■

Economic stimulus and MN fiscal impacts What’s happening with Minnesota’s proposed budgets for education and health and human services?

by Jane McClure

C

hanges to the state’s economic forecast, as well as funding from the American Recovery and Reinvestment Act, more commonly known as President Barak Obama’s economic stimulus package, are resulting in a bureaucratic do-over. The governor’s two planned budgets which originally contained deep cuts affecting the disability community are being rewritten. It may be midMarch when we see revised health and human services and education budgets, the most important documents in the ev-

eryday lives of the disability At a capitol news conference, community. The budgets will Tom Hanson, Minnesota Manstill contain deep cuts. agement and Budget Commissioner, described the forecast The economic stimulus pack- as a good news-bad news sceage contains billions of dol- nario. Although the stimulus lars for a wide variety of funds are a help, the state still projects and programs for faces a deteriorating economy. Minnesota. Of the total amount, $1.8 to $2 billion is Estimates indicate the state will dedicated to Medicaid and collect about $1.2 billion less Medical Assistance. in taxes over the next two years. State Economist Tom Stinson The economic stimulus pack- describes the current recession age was also a factor in the as the longest and deepest since overall state budget shortfall. World War II. The financial forecast released Uncertainty over the economic March 3 was expected to out- forecast and the impacts of the line a deficit of $6.4 billion. economic stimulus package Instead, the federal funds have has encouraged community helped cushion that blow, to members to attend and testify $4.57 billion for the 2010-2011 at recent legislative town hall biennium. meetings on the budget. The meetings wrapped up late last

month. Mike Gude, of The Arc of Minnesota, pointed out in his testimony that it was difficult to speak about a changing budget. But he noted that supports for people with disabilities should be viewed as invested and should be protected. He reminded state officials that there are already about 5,000 Minnesotans waiting for services that would allow them to live in their community and that many more people with disabilities live with aging parents who won’t be able to provide care indefinitely. St. Paul resident Scott Schifsky asked that state officials to be fair as they balance the budget. “I oppose state budget cuts to persons with disabilities that decrease their ability to live

independently, to find work that is satisfying and contribute to their communities,” he said. Schifsky is a caregiver to his wife, who has lupus and recently lost her job. He urged state officials to consider tax credits to caregivers and other assistance that would keep people working and able to stay in their own homes. New Hope resident Hunter Sargent, who has fetal alcohol syndrome, also spoke at a town meeting. He is able to live in an apartment and run his own business, with help from service provider Mains’l Services. “I urge you not to cut services that help people like me live life and contribute to our communities,” Sargent said. “Funding these services

is not just line items on a state budget; they are real investments in real people.” But now everyone must wait and wonder about the budget impacts. “We’re going to have to reprice all of the governor’s proposals,” said State Budget Director Jim Schowalter. He gave a report on the economic stimulus package and what it means to the Legislative Commission on Planning and Fiscal Policy Feb. 19. The commission is overseeing the economic stimulus package. The health and human services budget is about 34 percent of Minnesota’s general fund budget. K-12 education, including special education, is 38 MN Budget - cont. on p. 8


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