July 2009 Edition - Access Press

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www.accesspress.org

Inside ■ Directory of Organizations - pp 5-8 ■ Seating affects health - pg 11 ■ Family may lose home - pg 4

H i s t o r y

N o t e

“ America is more than just a country, it's an idea. An idea that's supposed to be contagious. ”

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— Bono (1960 - )

Nonprofit Org. U.S. Postage PAID Mpls. MN Permit No. 4766

Volume 20, Number 7

Minnesota’s Disability

Community Newspaper

July 10, 2009

Fore! Don’t let disabilities keep you off of the links by Clarence Schadegg Golf is a sport many people with disabilities can enjoy, thanks to adaptive equipment and people dedicated to sharing their love of the game. This year marks the 30th anniversary of the Sister Kenny Institute’s golf league and the 26th year of its annual golf tournament. The Sister Kenny golf league started in 1979 with about half a dozen participants; now there are 150. This year’s tournament for people with disabilities is at the Braemar Golf Course, Edina Aug. 21. Golfers may play nine or 18 holes. Teams are put together based on handicap, golf scores averaged throughout the season. Golfers play at Braemar and as of June, at a new league at Island Lake Golf Course in

Shoreview. “We provide lessons and adaptive equipment to participants. For people new to the game of golf, we discuss the rules of the game, etiquette and pace of play,” said Paige Safranski, coordinator of the Sister Kenny leagues and tournament. Play is at Braemar Mondays and Island Lake Thursdays. “The nice thing about our league is that if you go on the course, you do not need to play all nine holes. Golf is not played solely on the driving range. We encourage players to go on the course even if it is for just a few holes,” Safranski said. At the annual tournament, golfers have the option of playing nine or 18 holes. John Valliere, general man-

ager of Braemar, understands disabilities as his father had polio. “If Sister Kenny was alive today, she would look down upon us all and probably say, “This is what I envisioned. My life’s labor, conquering polio and moving on,” Valliere said. “Personally, I remember all the wonderful people I have met with disabilities who demonstrated such fortitude, such determination when others would have given up,” said Valliere. “I remember the hours upon hours the volunteers and staff have helped these folks recreate and doing it all with a smile When the ball became airborne—it was a precious moment. You can never take that away from my heart.” Greg Schulze, Island Lake

Golf Course manager, said, “We were ecstatic to be involved with such a great league. This league means a lot to me. As a PGA professional and member of the Minnesota Growth of the Game Committee, it is our mission to bring the great game of golf to as many groups of people as possible. Our dream is not simply to increase the participation, but most importantly to increase the number of smiles and laughs of the league members. I hope they will continue with us as long as we are here.” The Sister Kenny Golf Program was founded by Suzann Hagel. “We have a variety of adaptive equipment for people” said Hagel. “Whether it’s a mobility impairment, or sight impairment, we help

A Sister Kenny golfer enjoyed a day on the links. people to learn what the techniques are to be able to enjoy playing golf”. Safranski took over the program four years ago and Hagel became her assistant. Safranski and Hagel staff both league nights. Volunteers assist with lessons, driving golf carts and tracking golf balls for individuals with visual impairments.

Observing as the golfers play, it’s easy to understand their love of the game. Wally Hinz, who golfed prior to becoming blind, has participated in the Sister Kenny league and tournaments for about 12 years. “You don’t have to see the ball to play golf. It helps, but is not necessary,” he said. Fore! - cont. on p. 3

Unallotment completed, disability community hit again by John Tschida More cuts are coming that will adversely affect Minnesotans with disabilities. After a bruising and divisive regular session of the 2009 Minnesota Legislature, recent ‘unallotment’ decisions made by Gov. Tim Pawlenty to balance the state budget will take millions more from disability services. “Families and businesses are battling their way through this prolonged economic downturn by reexamining their budgets, cutting expenses, and tightening their belts. State government must do the same,” Pawlenty said at a June 16 press conference. While the Legislature passed a balanced budget in the waning hours of the 2009 session, Pawlenty vetoed a tax proposal to balance the state books. As a result, the $2.7 billion gap remaining needs plugging. The governor decided that rather than calling a special session of the Legislature, he would use his unallotment powers to do so. Unallotment is a process that authorizes the governor to trim state appropriations without the approval of the Legislature. Just how expansive that

authority is has been the subject of a few recent public hearings of the Legislative Advisory Commission (LAC), a panel comprised of senior members from both the House and Senate. Lawmakers have repeatedly questioned the reach of the governor in cutting certain programs, such as General Assistance Medical Care (GAMC). Tom Hanson, commissioner of the Department of Management and Budget, who serves as secretary of the LAC, has repeatedly said the administration is well within the bounds of the current statute to make the decisions that will cut another $2.7 billion from the state budget. Democratic lawmakers vehemently disagree, saying the governor has overstepped the boundaries of his statutory authority. After a few testy exchanges June 30 between Hanson and Speaker of the House Margaret Anderson Kelliher, the speaker said she would be introducing legislation in 2010 to clarify that the unallotment statute was never intended for such expansive cuts, and to “bring it in line with that of most other states.”

Most cuts affecting the disability community will hit the human services part of the budget, not unlike what happened during the 2009 session. Forced to make difficult decisions while trimming the most rapidly expanding portion of the state budget, lawmakers passed a mix of service and provider payment cuts, in some cases eliminating programs altogether. (Please see June issue of Access Press for details.) The governor used the same strategy in unallotting additional funds, in some cases compounding the cuts to the exact same programs and providers. PCA program hit, again Many changes were made to the personal care attendant (PCA) program that will limit the number of individuals served by the program as well as the hours direct care workers may work in a given month. Lawmakers capped the latter at 310, and with the unallotment changes, the hours were further reduced to 275. The state expects to save an additional $2.1 million as a result of the change, which will

be the “direct result of individuals not getting access to their authorized PCA hours,” said Anne Henry, staff attorney at the Disability Law Center, at a June 29 DHS Managed Care Advisory Committee meeting where changes to the PCA program were discussed. Those with complex conditions requiring high daily PCA care (up to 14.5 hours) are expected to bear most of the cost savings, because multiple PCAs will be needed to serve a single individual, and hard to staff 2-4 hour night and weekend shifts likely will need to be filled to meet their remaining needs. Provider cuts revisited Legislators slashed payments for most Medical Assistance (MA) and GAMC funded medical services by 3 percent, waivered services by 2.58 percent, and medical specialists by 5 percent. The governor will cut another 1.5 percent from medical services (which includes most rehabilitation therapies) and another 1.5 percent from specialists. Certain exceptions will be

made, including rates for primary care and mental health services. Together these will save $9.1 million over the next two years. Additionally, MA supplementary payments for critical access dental services were also eliminated for fiscal year 2011, which will save $6.2 million. While cuts to provider reimbursement rates may not seem to have a direct impact on the lives of individuals with disabilities, it can have a profound effect on access to services. The dental service payments being trimmed were implemented a few years ago for the express purpose of increasing access to these often hard-to-find providers. MA, GAMC, and Minnesota Care payments have historically lagged well behind those of private insurers. The combination of cuts made by both the Legislature and governor will cause some disability service providers to either limit the number of clients they are willing to see who rely on publicly funded health insurance, or they may choose to stop accepting them entirely.

MnDHO spared, for now Over the last eight years, the Minnesota Disability Health Options (MnDHO) program has been the state’s only integrated managed care program for people with physical disabilities with the financial flexibility to coordinate both medical and long-term social services. It sustained a $4.7 million cut for the next biennium during the 2009 session. The initial unallotment recommendations made by the governor proposed an additional $2 million cut, which threatened to close the program. Now serving 1,200 people in the metro area, about 55 percent of whom are eligible for both Medicare and Medicaid, the program has a high consumer satisfaction rate and very low rates of disenrollment. Financing of the program has changed over the years, and a recent move toward risk adjustment for both medical and long-term care services (with a goal of better aligning costs of and payment for care) has been challenging. But all program partners (DHS, Cuts - cont. on p. 3


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