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Inside: ■ HMO report challenged - pg 3 ■ Travel trouble - pg 5 ■ VSA award winners - pg 7
P E O P L E
P L A C E S
“The purpose of the ADA was to provide clear and comprehensive national standards to eliminate discrimination against individuals with disabilities. As a result, individuals with disabilities are now able to live in their homes and have access to new careers.” — Former Congressman Jim Ramstad
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Volume 22, Number 2
Minnesota’s Disability
Community Newspaper
February 10, 2011
Minnesotans rally for services at Disability Day by Mike Gude and Jane McClure Self-advocates with disabilities, their family members, support staff and other disability advocates are hoping that a crowded state capitol rotunda convinces state officials to support disability services. More than 330 people attended the January 25 Disability Matters Day at the Capitol rally. With massive state budget cuts looming, it was an early mobilizing event in what promises to be a very long and difficult legislative session. Several attendees addressed the rally crowd to share how disability services make it possible for people with disabilities to live in and contribute to their communities. Betty Peterson, a self-advocate who lives with a brain injury, said she was “extremely inspired” to see so many people. “We need to put a face to our problems,” she said. The message to legislators should be about people, not “those people.” “We know that independence for people with disabilities costs less than providing services in large institutions,”
said Jeff Nachbar, Public Policy Director of the Brain Injury Association of Minnesota. “We also know that Minnesotans overwhelmingly support those services that create greater independence. This day is a chance to remind our legislators of these facts.” Nachbar fired up the rally crowd with a chant of “Independence — Costs Less! More Fullfilling!” Audience members, some of whom had to watch from the capitol’s second level, waved signs and cheered speakers. “Without staff members who work with us on a daily basis, most of us wouldn’t be able to hold down our jobs and live independently,” said Rick Cardenas, Co-Director of Advocating Change Together and an advocate with physical disabilities. Cardenas brought a device called the “Wheel of Misfortune,” which he used to quiz legislators and advocates at the rally about the struggles people with disabilities faced in the past and the advances made in recent decades.
Pat Mellenthin, Executive Director of The Arc of Minnesota, said self-advocates need to be part of the solution to the state’s budget crisis, not part of the problem. She and others urged state officials to protect essential services that make daily life possible for people with disabilities. “Many families we work with have great stories on how to create better lives for themselves at a better value to Minnesota taxpayers,” she said. State lawmakers also urged the crowd to share their stories when speaking against cuts to services and programs. “It is more important than ever that (legislators) hear from you,” said Rep. Kim Norton, DFLRochester. “Those personal stories mean a lot.” Sen. Al DeKruif, Republican-Madison Lake, has a son with disabilities. He relies on personal care attendant (PCA) and home health care services, and works. DeKruif said that while all must share in cuts to Jeff Nachbar of the Brain Injury Association of Minnesota was one of the speakers at balance the state’s budget, state Disability Matters Day. He is shown by the Wheel of Misfortune, which is used to depict Rally - cont. on p. 8 issues facing the community. Photo by Jane McClure
Click on, comment on the Access Press Unbound blogs by Access Press staff Access Press Unbound, a group of blogs by and for people with disabilities and senior citizens, launches in February with blogs about education and employment, service animals and arts. The blogs will be posted on the website www.accesspress.org The blogs are funded thanks to a grant from the Minneapolis Foundation. More blog offerings will be added in the months ahead, according to Access Press Executive Editor Tim Benjamin. “We foresee a great opportunity for more interactive forums for all of us to speak out and tell our news in a more open environment with variety of communication skills.” Blogs will be updated at least once a week. Some blog content will appear in the monthly
print edition of Access Press as well as online. Readers will be highly encouraged to comment on the blog posts, within the civil and newspaper comment guidelines. Readers will also be encouraged to submit ideas, for the blog writers to consider and begin conversations online with other community members. Online conversations will be monitored by Access Press. The writers selected for the first three blogs bring a wealth of experiences to Access Press. Dave Wright will write A Better Life, a blog about employment and educational opportunities. Wright is a veteran Twin Cities community journalist. He has worked for publications including the Villager newspaper. He is also a longtime Twin Cities sports announcer and a native of Detroit.
Through this blog, Wright will outline the challenges people with disabilities and senior citizens face in seeking employment and educational opportunities. People with disabilities have been grappling with an unemployment rate that is much higher than that for the population as a whole. Senior citizens who have seen their retirement savings and investments dwindle have been forced to return to the workforce. Wright will offer helpful advice and present information that is available on new programs and resources. He can also write first-hand about the challenges older workers face. Roxanne Furlong will write Accessing the Arts, a blog about the many arts and cultural opportunities available in Minnesota. She has a long
resume of journalistic experience including work for Webb Publishing and New Mobility magazine. Furlong is also a crafter with her own blogs, www.roxpaperscissors.blog spot.com and www.your paperpantry.blogspot.com Furlong is a Twin Cities native and has a lifelong love of attending theater and musical performances, as well as visiting art galleries and exhibits throughout the region. She will visit these venues with an eye toward the work of artists with disabilities and senior citizen artists. She will also look carefully at what accommodations are and aren’t provided, to better inform readers about their entertainment and cultural choices. As she noted, “I have learned to expect the unexpected when it comes to ‘accessibility’.”
Clarence Schadegg is a longtime Access Press contributing writer, covering issues ranging from traveling with a service dog to the difficulties facing immigrants with disabilities. He does extensive public speaking and volunteer work in the Twin Cities. Schadegg will write Animals at Your Service, a blog about the many types of service animals that help people with disabilities every day. Schadegg is legally blind, having lost all vision last year. He has had a service dog since 1995. His first dog was Frisco and his current dog is Telly. He and his service dogs have traveled extensively and he is well-versed in the many issues people with service animals and the animals themselves face on a day-to-day basis. More blogs will be added in
the weeks ahead on the topics of health, children and families, and public policy. Those writers will be introduced soon. Benjamin encourages blog readers to comment on and ask questions about the blogs. One goal is for readers to share their own stories and get involved with the topics presented using different methods of communication, written, and audio. Posting of videos will be allowed soon. Although the blogs have startup funding, the intent is for Access Press to find advertisers and foundation sponsors for each blog. Anyone interested in being a blog sponsor can contact Tim Benjamin at 651-644-2133 or tim@access press.org to discuss rates and levels of sponsorships. ■