NONPROFIT ORG. U.S. POSTAGE
PAID
TWIN CITIES, MN PERMIT NO. 4766
July 1, 2020
WWW.ACCESSPRESS.ORG
Providers on verge of collapse
MNCCD
FILE PHOTO
Activists filled the capitol during the early stages of the 2020 regular legislative session. A second special session is on the way.
Key business isn't done with gridlock, disputes at capitol A July special session of the Minnesota Legislature is coming up, as state lawmakers failed to pass several key measures when they met June 12-20. The week-long special session adjourned without action on critical bills, including the bonding bill. Even years are bonding sessions in Minnesota, when an array of brick-and-mortar projects win approval.
Improvements to state academies, state hospitals and treatment facilities, and state parks accessibility improvements are among the many issues left hanging in June. Also left waiting are Minneapolis and St. Paul neighborhoods seeking assistance to rebuild in the wake of unrest that followed the killing of George Floyd.
Check our Directory of Organizations for the supports and services you need for daily living!
Page 5-8
GRIDLOCK To page 4
Disability advocates frustrated by lack of action Despite a national outcry for change in the wake of George Floyd’s death, efforts toward law enforcement reform continue to hit roadblocks at the state and federal levels. Minnesota’s special legislative session ended June 20 with no movement on law enforcement reform, including crucial measures sought by disability advocacy groups. While people of color make up a disproportionate number of those involved in law enforcement lethal force incidents, statistics on people with disabilities vary by study. A Ruderman Family Foundation study estimates that people with disabilities make up one-third to half of all people killed by law enforcement officers. Other studies also top the 50 percent mark, which parallels the percentage Minnesota disability advocates cited during the regular and special legislative sessions. All studies point out that disability cuts across all racial and ethnic backgrounds. Hopes of passing federal legislation before the July 4 Congressional recess were fading as Access Press went to press. At the federal level, the House passed a series of reform measures June 25. But those measures faced challenges in the Senate, where Democrats earlier blocked debate on a Republican police reform bill. Democratic Senate leaders said the bill didn’t go far enough to address issues of racial inequality. Among the many issues in play included chokeholds and no-knock search warrants.
PAT KINEEY
Providers of work and social activities for Minnesotans with disabilities are in crisis, with many facing massive cutbacks or even closure as a result of the COVID-19 pandemic. Clients with disabilities face the smaller, yet deeply personal losses of job and social skills as they sit at home. That was the message several service providers and parents of their clients had June 25 for a legislative committee. “Our entire disabilities services sector is on the verge of collapse,” said Sen. Jim Abeler (R-Anoka). He chairs the Senate’s Human Services Reform Finance and Policy Committee. During the regular and special sessions, Abeler has been among state lawmakers sounding the alarm about the prospect of losing needed day services statewide. Service providers and their advocacy groups are calling for $30 million in funding to simply keep the doors open until pandemic restrictions are eased. Providers closed in March due to the COVID-19 pandemic. That has meant laying off staff and not providing jobs and activities for people with disabilities. During the June special session, the Senate unanimously passed a funding package. But the House didn’t act. Pressure is also being brought to bear on Gov. Tim Walz to sign an emergency funding package. During the hearing, Abeler waved a copy of the relief bill, pleading with the governor to sign it. It’s a frustration service providers shared with the committee. The toll is also on staff, with more than 3,600 employees furloughed or laid off. The statewide organization MOHR is tracking staff losses. Service providers, including Floodwood Services and Training Inc. in the Duluth area and Big Lake-based Options Inc., told the committee that their revenues have fallen by 80 to 90 percent. Dawn Lamping, executive director of Floodwood Services and Training Inc., said the program could be forced to shut down within six weeks. It serves about 60 adults. She struggled to get through her testimony. “Unless our program receives emergency funding very soon, we will close.” Options Inc. has sustained monthly losses nearing $100,000. Executive Director Brenda Geldert described the situation as being “a constant state of distress.” Southern Minnesota service provider STEP Inc. serves about 100 people. But the nonprofit is already looking at ways to handle a shutdown. Statewide, the centers serve more than 30,000 adults with a wide range of disabilities. The pandemic has also raised red flags that people typically served by the centers are now isolated and losing ground with work and personal skills. In June the Minnesota Department of Human Services modified rules to allow service providers to reopen with measures to reduce client exposure. Some people with disabilities have also been able to keep working in community settings, such as restaurants and on cleaning crews. Other ways to provide services are sought, with some services that could be offered virtually. But the pandemic is a real threat, in day centers where people interact in close quarters and in group homes. Statistics presented June 25 indicate that than 300 Minnesotans who live in group homes have contracted COVID-19. At least 19 have died. Watch the committee session at http://mnsenate.granicus.com/player/ clip/5389?view_id=1
Please raise your voice, hold people in power accountable for their actions, and continue to support one another and all who experience injustice.
DIRECTORY of Organizations
Volume 31, Number 7
A display of headstones honoring people of color who died as a result of law enforcement lethal force was erected in June. The display is near where George Floyd was killed. Minnesota’s June special legislative session, which lasted for a week, ended with no movement on an array of law enforcement reform issues. The lack of action frustrated activists across the state, who were galvanized by issues of racial and social justice. The inaction is despite protests and pressure brought to bear since the death of Floyd on May 25 while in police custody. In a video seen around the world, an
office is shown with his knee on Floyd’s neck, causing fatal injuries. Four officers have been criminally charged. The June special session hit a stalemate June 19 when the House and Senate couldn’t bridge their divide over reshaping policing. The Democratic-controlled Minnesota House passed a massive bill with many reform measures, including several proposals made by the RepublicanREFORMS To page 11
July 1, 2020 Volume 31, Number 7
TIM’S DESK
Tim Benjamin There've been lots of ups and downs this last month, to say the least. In Minnesota we have seen the leveling off of some of the coronavirus statistics and the opening up of some businesses. That would have been a huge deal all on its own, until the state became the center of world attention because of the killing of George Floyd. The violent protests that followed were frightening, and for days we didn’t know what would happen here and throughout the U.S. and the world. But then thousands of peaceful demonstrations started and created a sense of hope for the future. I want to try to touch on some of what we’ve been experiencing, but one thing I think we all realize is that we’re dealing with very deep-rooted challenges that can't be solved without a lot of rethinking by all of us. It is going to take a lot of creative thinking, and changes in how we act and react. My column deadline date for the June issue of Access Press was May 25. I sent it in in the afternoon, and by that night, the world was different. It was Memorial Day, and a few miles away in Minneapo-
In the disability community we know how people look at us, and react to us, with fear. But people of color, and especially Black men, are the objects of that kind of fear, too, and how often do we stand together, united?
lis, Floyd was killed in the street by a policeman, with three of his fellow officers watching and keeping citizens back from helping Floyd. The repercussions were devastating. Within days people all over the world were protesting about racial injustice. Every one of us has to recognize and address our stereotypes. We have to challenge our fears. In the disability community we know a lot about how people look at us, and react to us, with fear. But people of color, and especially Black men, are the objects of that kind of fear, too, and how often do we stand together, united? That’s been one of the great things in many of these recent demonstrations. People of all races, genders and abilities have been marching together. And they’ve been saying that time is up on inequality, on racism, on police violence. As a person with a disability, I understand running out of time. We, too, have been fighting for equal rights and just to be recognized as people who can contribute to society. We, too, should not be locked up in institutions or prisons, or just be put
out of sight and out of mind. I hope as the Black Lives Matter movement goes forward, the disability community will join in the marches for equality and peace. The time is now, not later or when there are more resources or the right political leaders. So while some were demonstrating for justice now, others were demonstrating for business now, and we have been slowly opening businesses. Many people think we should have opened things much sooner because the state has had low rates of COVID-19 cases and deaths. But they don’t seem to recognize that our closures were probably what helped us. Many of the states that opened earlier have had a steep rise in the number of virus infections. Florida, Arizona and California are all seeing their number of cases double from not taking the wearing of masks and social distancing seriously. Personally I think our governor has been very wise in slowly opening close-contact businesses. Most of us with disabilities rely on caregivers who could be exposed and spread the virus to the most vulnerable in our population. We still
HISTORY NOTE
Use of lethal force sparked calls for change years ago The killing of George Floyd by Minneapolis Police on Memorial Day weekend highlights the ongoing crisis of police brutality against people of color. Unfortunately, use of lethal force is not a new issue for people with disabilities. And of course there is sad intersectionality when people of color who also identify as disabled are injured or kills. The calls for law enforcement reform in deadly force cases involving people with disabilities are nothing new. More issues surfaced starting in the early 1980s, in the face of sweeping deinstitutionalization in Minnesota. Too many people lacked safe and supportive housing environments after they left state institutions. Calls for the Minneapolis Police Department to make mental health-related reforms date from the 1980s, when police and mental health community leaders scrutinized incidents involving people with mental illness. Police and mental health care providers in 1986 began meeting in roundtable setting to share concerns and discuss solutions. That focus grew to include other disabilities including brain injuries and autism. Tragedies in 1999-2000 brought a
renewed focus to the need for education and training in the context of suspects with mental illness and other disabilities. In the span of a year, Minneapolis Police shot and killed three suspects who were living with mental illness. Two of the killings not only prompted demands for change, but spurred the formation of nonprofit organizations dedicated to education and activism centered on police brutality, the need for officer training and changes in law enforcement culture. Communities United Against Police Brutality (CUAPB) is an all-volunteer organization that was formed in December 2000 in the aftermath of the December 1999 shooting death of Charles "Abuka" Sanders by Minneapolis police. The organization’s website states, “As we worked to try to achieve justice for Abuka's family, we came to the realization that while many people respond in powerful ways to brutal police killings and other egregious incidents, handling each case separately is not an effective way to deal with police brutality. Reinventing the wheel with each new case is reactive, not proactive, and almost assures there will be more cases.”
Co-Founder/Publisher.................................................................................................................Wm. A. Smith, Jr. (1990-96) Co-Founder/Publisher/ Editor-in-Chief......................................................................... Charles F. Smith (1990-2001) Editor-in-Chief/Executive Director........................................................................................ Tim Benjamin (2001-2020) Board of Directors.....................................Mohamed Alfash, Brigid Alseth, Belo Miguel Cipriani, John Clark, .....................................................................Jane Larson, Shannah Mulvihill, Joel Ulland, Kay Willshire, Mark Zangara Advertising Sales....................................651-644-2133 Managing Editor......................................Jane McClure Columnist/Staff Writer........................ Tim Benjamin
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Cartoonist.................................................... Scott Adams Production...................................................... In-Fin Tuan Distribution............. Independent Delivery Service
EDITORIAL: Editorial submissions and news releases on topics of interest to persons with disabilities, or persons serving those with disabilities, are welcomed. We reserve the right to edit all submissions. Editorial material and advertising do not necessarily reflect the view of the editor/publisher of Access Press. ADVERTISING RATES: Display Ad: $12 to $28 per column inch (size and frequency of run). Classified Ad: $14, plus 65¢ per word over 12 words. DEADLINE: 25th of each month. CIRCULATION/DISTRIBUTION: 11,000 copies are distributed the 10th of each month through more than 200 locations statewide. Approximately 450 copies are mailed to individuals, including political, business, institutional and civic leaders. SUBSCRIPTION: $30 per year. Low-income, student and bulk subscriptions available at discounted rates. ABOUT ACCESS PRESS: A monthly newspaper published for persons with disabilities by Access Press, Ltd. Application to mail at Periodicals Postage Prices is Pending at the St. Paul, MN 55121 facility. POSTMASTER: Send address changes to Access Press at 161 St. Anthony Ave, Suite 901, St. Paul, MN 55103. INQUIRIES AND ADDRESS CHANGES should be directed to: Access Press, The Capitol Ridge Inn Offices 161 St. Anthony Ave; #910, St. Paul, MN 55103; 651-644-2133; Fax: 651-644-2136; email: access@accesspress.org Website: nonprofitcharity.org
According to news reports, Sanders drove a motor vehicle at police before he was shot and killed. That tragedy happened hours after family members unsuccessfully tried to have him hospitalized for a mental health evaluation. He had been diagnosed with a mental illness the year before. The Barbara Schneider Foundation began after the June 2000 police shooting of a woman in her Uptown apartment. Schneider, who held two master’s degrees and was known for work on social justice and community issues, lived with mental illness. She was shot and killed after walking toward officers while holding a knife, when she was in crisis. The foundation over the years has worked with partners in law enforcement, courts, corrections, mental health, social service and health care systems to improve the response to those in mental health crisis and to prevent mental health crises. One focus is the creation of crisis intervention teams. The History Note is a monthly column sponsored by the Minnesota Governor’s Council on Developmental Disabilities, www.mnddc.org and www.partnersinpolicymaking.com
have to be very cautious about this whole pandemic and not let it get out of hand any more than it already has. It certainly has taken a lot of lives among vulnerable adults, especially those living in skilled nursing and other group-care facilities. The special legislative session ended with no resolution to the shortage of caregivers and a higher reimbursement rate for those caregivers. There was no resolution to anything and in fact it was a waste of time and Minnesota taxpayer money. Real leaders could have done the hard work and made sure that police reforms and caregiver reimbursement and a long list of other priorities were addressed. If the past month was an unprecedented time for the state in general, it was business as usual at the Legislature. Have a happy Fourth of July. This month also brings the 30th anniversary of the Americans with Disabilities Act (ADA). We should be thankful for all the independence that the ADA brought us, but we also have to continue pushing for the continued guarantee of our freedom and independence, as Americans and as people with disabilities.
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July 1, 2020 Volume 31, Number 7
FROM OUR COMMUNITY
Pandemic raises need for all of us to prepare by Ruth Hamberg I got sick at the start of the pandemic. It sucked. Here’s what I came away with: If you live alone, prepare now. More than you think you need to. And for a worse illness than you think you need to. Because you could be in for a lot of things all happening at the same time: • An illness that we don’t fully understand, which could last for an amount of time we aren’t sure of • Different experiences of that illness depending on our age, health and other factors • Inner conflict about how and whether to ask for help from people who could be exposed to COVID-19, if you have it • Stay-at-home guidelines that mean even if you get sick with something other than coronavirus (or injured, or need a surgery), you may not be able to get the same medical treatment—or even the same level of support from friends and family. After all, let’s recall the totally unprecedented factor we find ourselves dealing with: a pandemic and the very strong recommendation that we keep to ourselves as much as possible, especially while sick. Huh? So you need to get ready. Fortunately, there’s a lot we can do as people who get sick while solo. And preparing physically is one of the best ways we can reduce and soothe the anxiety of knowing that our situation may bring a couple extra challenges. Consider this preparation a hug you’re giving to yourself. This is self-care, and it’s also community care. (Especially if you ask your friends if they’re ready, and send them a link to this post.) A little bit about my experience The sickness I came down with is called Epstein-Barr Virus (EBV). It includes the possibility of relapse. And, true to form, I’ve already relapsed once. EBV shares some symptoms with COVID-19, especially as we see people’s COVID recovery taking months: there’s fatigue, brain fog, difficulty doing daily tasks. Plus I could still come down with COVID-19, if I haven’t had it already. It isn’t clear what role COVID-19 may have played in my experience, since testing restrictions were still tight when I got sick.
Why I prepare That’s why even though I was already sick, I spend some time each week getting my kit together. I prepare under the assumption I may be debilitated with just a few hours’ notice; unable to walk far; struggling to get to the bathroom; unable to stand or prepare food. I imagine I can hardly move. How will I survive? The preparation needs to answer that question. And, as a Person Usually Very Prepared For Life, let me just say that I wasn’t nearly prepared for this. One of my biggest mistakes at the outset of the pandemic was thinking I’d be fine with the usual assortment of medication and soothing food. I set myself up with some protein shakes, soup mixes, rice and access to flu medication. After getting sick, I realized it had been some time since I really, truly was debilitated from an illness. I assumed I’d be able to get up and get things (false). I assumed I’d be able to cook for myself each day (false). I thought at least I could do online research as usual (false—too fatigued to focus on a screen for more than a few minutes). So, if you’re usually a pretty healthy person, it’s time to push yourself and let the imagination soar. Start by thinking through times you were sick—as a kid, as an adult. I’m not talking the flu. I mean, really, really sick. And try to remember what you needed. If you don’t have a time like that in your memory, try to imagine. For those people who already experience chronic and long-term conditions, it will not be hard to summon up this image. I want to recognize that this article may not carry as much value for these readers, who have already had to make many accommodations and draw on deep strength. This is important. Your quality of life, if not your life itself, actually could depend on it. So don’t let this just be another “interesting, aaaaand next!” browsing moment. Here are some tips to make sure you come out of this ready to take action. • Take notes as you go. Note actions you want to prioritize, questions you have or items that are missing. By the time you’re done reading, you’ll have the start of your own action plan. Notetaking methods: paste into a document and take notes in that document; print and take notes in the margins; write your own notes in a notebook under the headers “info, questions, to do.” • Prioritize. Look over your notes or the sections of the article, and list the numbers one through five by the PREPARE To page 9
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LETTER TO THE EDITOR
Reopening of therapy pools is welcomed after several weeks On March 15 Wasie Pool at Courage Kenny Institute/ Abbott Northwestern Hospital was closed as a precaution during the pandemic. It reopened June 11. State health officials had to allow for the pool and other therapy pools to reopen. In the interim, I called the governor’s office biweekly and also made several calls to the Minnesota Department of Health. The governor was talking about opening elective surgeries (I have had four) but not a word about therapy pools which are far less invasive and which can help disabled people like myself function with far less pain and be able to do more for ourselves. As I stated at the end of each call, it is very bad public policy to cause excessive muscle spasm pain and force people with disabilities to use opioids such as oxycodone. I have gone walking with my husband almost every day. The pool is superior because I have spastic hands and gripping walker handles causes pain. The act of kicking water relaxes the leg muscles. We live in an area with many uneven sidewalks. You automatically tense your foot when you see these elevated pieces of sidewalk. Interpersonal relationships are always more difficult when a partner has a disability. It requires discussion and compromise. I always volunteer to do jobs I can do and ask John to help out with other things. It is very important not to descend into helplessness and become excessively dependent. Partners can begin to think that you are a burden. I have my muscle spasms in the middle of the night, so I have to do things like put on topical medications, getting medication and do extra kicking to relieve spasms without waking John. There was no reason why the pool had to be closed for such a long time. Space is not an issue as we could practice social distancing in the changing areas. There is a walkway all around the pool so we could avoid close contact. The chemicals in the pool, mainly chlorine, should kill coronavirus. We could wear masks while swimming. Joy Rindels Hayden Minneapolis The author lives with disabilities and is a disability rights activist.
July 1, 2020 Volume 31, Number 7
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FROM OUR COMMUNITY
Pandemic puts people with disabilities at end of the line by James Clapper Approximately 30,000 Minnesotans with intellectual and developmental disabilities have had to take a back seat in obtaining services that they are entitled to for many years. The COVID-19 crisis has put them at the end of the line, again. Where is the leadership that should be moving them up in priority? Gov. Tim Walz and the Minnesota Department of Human Services (DHS) need to support emergency COVID-19 funding for disability services providers to survive until they are allowed to provide services again. A new rate system was implemented several years ago that was supposed to level out the large variability in the daily service rates for day, employment and residential programs being provided to this population. The new rate system is very complex, but the first impacts clearly showed that rates would decrease dramatically especially for day and employment programs in the metropolitan area. Numerous bills were put forward over the last several legislative sessions to fix the numerous flaws and to address profound wage disparities for front line workers. Most of these bills failed to get passed for a variety of reasons, so even before COVID-19, the situation for service providers was desperate. DHS released a labor study early this year, which demonstrates just how desperate the situation has become. There are 93,000 front-line worker positions across the state, serving this population with intellectual and developmental disabilities. The pay rates are 17 percent under comparable and competitive positions,
GRIDLOCK From page 1
Another unresolved big issue is the allocation of $2.1 billion in federal COVID-19 relief money that Minnesota received under the CARES Act. The COVID-19 pandemic hung over the regular and special sessions. One point of contention between Republican lawmakers is Gov. Walz’s use of special executive authority to respond to pandemic and community unrest. Walz’s current peacetime emergency ends July 12. House Democrats blocked an attempt by Senate Republicans to remove the governor's emergency authority. One important bill passed extends several waivers that have been put in place by Commissioner of Human Services Jodi Harpstead during the peacetime emergency, with a 60-day ramp-down in place for some of the measures at the end of the peacetime emergency. The Minnesota Consortium for Citizens with Disabilities (MNCCD) and other groups have been conferring weekly with DHS on waivers. ARRM, a statewide group which provides residential supports and community-based services, has outlined some of the key waivers for its service providers. The ability to provide remote supports for certain Home and Community Based Services has been extended to June 30, 2021. The temporary absence extension for housing support is extended to December 30. Disability advocacy groups saw some gains, including the passage of the Health and Human services omnibus and education policy bills. Bills are being reviewed to fully assess gains for special education, people with intellectual and developmental disabilities, mental health, residential facilities and an array of programs. But efforts toward more pay, including pandemic-related compensation, for personal care workers again stalled. The health and human services bill passed
resulting in a vacancy rate of 19 percent and turnover of more than 50 percent per year. Can you imagine how hard it is to find and retain quality workers in this situation? The rate system is clearly failing! What has been the response from DHS to fix this problem? In 2018 DHS implemented a rate CUT of 7.1 percent. They failed to properly implement rate improvements that the legislature approved a few years years previous to 2018, so had to revoke them. In 2019 the legislature approved a rate increase of 4.7 percent to take back some of what was lost in 2018, but will DHS find a way to disqualify this one too? The 2020 legislative session started out with some hope to improve the rate system, but then COVID-19 hit, moving this population to the back of the line again. The legislature quickly responded by drafting some bills to provide some sustaining funds to day and employment service providers, as they were categorically closed down in late March 2020. Then Walz issued Executive Orders 20-11 and 20-12 which reflected many of the points drafted in the bills. These orders contain language that clearly gave the Commissioner of DHS the authority to provide some level of sustaining funds to service providers, so that they might survive. So far DHS has failed to utilize this temporary emergency authority, and day and employment service providers are getting virtually nothing. There are more than 100 providers for these vital services across the state, and they are in significant financial distress. Even before COVID-19, many were receiving revenue at the same level they were 20 years
after state leaders removed language giving the Department of Human Services (DHS) commissioner authority to waive certain rules and regulations during the pandemic. The language raised objections during the regular session. ARRM is touting several regulatory wins for its member service providers. That includes measures affecting resident housing and staff training. One gain is a requirement that staff must be trained on “strategies to minimize the risk of sexual violence, including concepts of healthy relationships, consent and bodily autonomy of people with disabilities.” The Arc Minnesota, STAR Services and other groups will work with ARRM to meet the new requirement. Work is also underway to address three disability policy statements, spelling out that Minnesota is an “Employment First, Independent Living First and Self-Direction First” state. Work is being done with an eye on the 2021 legislative session. National Alliance for the mentally Ill (NAMI) Minnesota is among the groups outlining gains, including changes to the commitment act, changes to treatment of children and youth in mental health crisis, and changes in policy language on psychiatric residential treatment facilities related to prior authorization and waiting lists. Efforts to help students are a win for mental health advocates. One measure passed requires all teachers in Minnesota to have specific training in student mental health and suicide prevention. Another requires other forms of intervention before suspending or expelling students in early childhood, pre-K programs. Managing Editor Jane McClure wrote this issue’s legislative coverage.
ago. Most of this population utilize center-based services and there is no timeline for them to reopen, even though they have been proposing various procedures to DHS in line with the restrictions. We have seen strong support from the legislature, especially from Sen. Jim Abeler, Sen. John Hoffman and the 32 other senators who recently signed a letter to Walz, asking for his support. But the fact is, the legislature could easily authorize the use of previouslyapproved funds to cover the basic fixed costs that disability programs continue to incur while they are unable to operate and generate revenue. But legislative leaders have balked, and nothing has happened. With a second special session on the horizon, we sincerely hope the game is not over. The legislature could still take action. There is also an opportunity for some funds to get to these service providers in the form of federal money from the Provider Relief Fund as part of the Health Care Enhancement Act. The legislature, particularly the Senate Human Services Reform Policy and Finance Committee, are already reviewing how these funds will be distributed. Will these needs be addressed in a special session? Will DHS and Walz step up and quickly support distribution of these federal funds to service providers for Minnesotans with intellectual and developmental disabilities? Minnesota Families and Advocates Coalition, a non-profit advocacy organization for Minnesotans with Intellectual and Developmental Disabilities. James Clapper is one of the group’s leaders.
July 1, 2020 Volume 31, Number 7
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DIRECTORY of Organizations ADVOCACY Advocating Change Together (ACT)
V-651-641-0297
The Arc of Minnesota
V-651-523-0823 x115 F-651-523-0829
www.thearcofminnesota.org
Association of Residential Resources in MN
V-651-291-1086
www.arrm.org
Cow Tipping Press
V-507-521-2278
MCIL
V-651-646-8342
TF-800-641-0059 TTY-800-551-2211
www.selfadvocacy.org
www.cowtippingpress.org F-651-603-2066
www.mcil-mn.org
MN Consortium for Citizens with Disabilities V-952-818-8718
F-952-818-8719
www.mnccd.org
PACER Center, Inc.
V-952-838-9000
TTY-952-838-0190
www.pacer.org
SEIU Healthcare Minnesota
TF-855-282-3769
www.UnitedCareWorkersMN.org
United Cerebral Palsy of Minnesota
V-651-265-7361
www.ucpmn.org
ASSISTED LIVING Accessible Space, Inc. (ASI)
V-651-645-7271
TTY-800-466-7722
www.accessiblespace.org
Opportunity Partners
V-952-938-5511
F-952-930-4279
www.opportunities.org
V-612-789-1236
F-612-706-5555
www.actg.org
Mary T. Inc. Supportive Living Programs
V-763-754-2505
TF-888-255-6400
www.marytinc.com
Opportunity Partners
V-952-938-5511
F-952-930-4279
www.opportunities.org
V-612-224-9101
aburke@cipmn.org
www.cipmn.org
Avivo
V-612-752-8111
F-612-752-8101
www.avivomn.org
Vinland National Center
V/TTY-763-479-3555 F-763-479-2605
www.vinlandcenter.org
DeafBlind Services Minnesota (DBSM)
V-612-362-8454
TTY-612-362-8422
www.dbsmllc.org
Living Well Disability Services
V-651-688-8808
F-651-688-8892
www.livingwell.org
LSS Host Homes
V-651-255-2363
hosthomes@lssmn.org www.lssmn.org/hosthomes
LSS Specialized Community Supports
V-651-504-6974
scs@lssmn.org
www.lssmn.org/scs
Mary T. Inc. Supportive Living Programs
V-763-754-2505
TF-888-255-6400
www.marytinc.com
MCIL
V-651-646-8342
F-651-603-2066
www.mcil-mn.org
Metro Work Center, Inc
V/TTY-612-729-7381
F-612-729-7382
www.metroworkcenter.org
Opportunity Partners
V-952-938-5511
F-952-930-4279
www.opportunities.org
Reach for Resources
V-952-200-3030
F-952-229-4468
www.reachforresources.org
AUTISM SERVICES A Chance to Grow
BRAIN INJURY
Residential and outpatient substance use treatment for adults with TBI, cognitive deficits or multiple disabilities.
763.479.3555 | VinlandCenter.org Where experiences & adventures are open to individuals of all abilities True Friends provides life-changing experiences to children and adults with disabilities through a variety of programs at five Minnesota locations. Camp
Programs
Travel
Horse Therapy
Team Building
Respite
Retreat Centers
CASE MANAGEMENT Community Involvement Programs (CIP)
CHEMICAL HEALTH
COMMUNITY LIVING
CONSUMER-DIRECTED COMMUNITY SUPPORTS Accra
V-952-935-3515
TF-866-935-3515
www.accracare.org
GT Independence
V-651-247-7107
TF-877-659-4500
www.gtindependence.com
Lifeworks Services, Inc.
TF-866-454-2732
TTY-866-454-2732
www.lifeworks.org
MRCI-Client Directed Services
V-507-386-5704
TF-800-829-7110
www.mrcicds.org
Partners in Community Supports
V-651-967-5060
info@picsmn.org
www.picsmn.org
SMILES Center for Independent Living
V/TTY-507-345-7139 TF-888-676-6498
www.smilescil.org
EDUCATION Avivo Institute of Career & Tech Education V-612-752-8100 Children's Theatre Company
V-612-879-2680
Upstream Arts
V-612-331-4584
F-612-752-8101
www.resource-mn.org www.childrenstheatre.org
F-612-353-6638
www.upstreamarts.org
Locations
Camp Courage Maple Lake, MN
Camp Eden Wood Eden Prairie, MN
Camp Friendship Camp Courage North Annandale, MN
Lake George, MN
Plymouth Office Plymouth, MN
www.truefriends.org | 952.852.0101 | info@truefriends.org
Data from the census impacts many programs and services that our communities receive including access to resources that support advocacy and civil rights protections. The 2020 Census is accessible for everyone, including individuals with a wide range of disabilities. The following options are available to assist individuals in completing the form including: • Telephone devices for people who are deaf and hard of hearing. • Video guides to the questionnaire in American Sign Language • Videos or webcasts with open or closed captioning • Census guides in braille or large print • The option to request census takers who are fluent in American Sign Language
Complete the 2020 Census to ensure that everyone has access to the resources that are required to meet their needs. For more information visit the U.S. Census Bureau website at 2020Census.gov
July 1, 2020 Volume 31, Number 7
Pg 6
DIRECTORY of Organizations EMPLOYMENT/VOCATION Avivo
V-612-752-8100
F-612-752-8101
www.resource-mn.org
Chrestomathy, Inc.
V-952-974-0339
F-952-974-0307
www.chrestomathyinc.org
Community Involvement Programs (CIP)
V-612-353-4595
V-952-854-9411
www.cipmn.org
Courage Kenny Rehabilition Institute
V-612-775-2569
www.allinahealth.org/couragekenny
Fraser Transition Services
V-612-767-5180
Goodwill/Easter Seals Minnesota
V-651-379-5800
Kaposia Inc.
V/TTY-651-224-6974 F-651-224-7249
www.kaposia.com
Lifeworks Services, Inc.
TF-866-454-2732
TTY-651-365-3736
www.lifeworks.org
LSS Employment First Services
V-651-642-5990
pss@lssmn.org
www.lssmn.org/employmentfirst
Merrick, Inc.
V-651-789-6231
F-651-789-9960
www.merrickinc.org
Metro Work Center, Inc.
V/TTY-612-729-7381
F-612-729-7382
www.metroworkcenter.org
MSS, Inc.
V-651-778-1000
F-612-772-4352
www.mwsservices.org
Minnesota Diversified Industries (MDI)
V-651-999-8200
F-651-999-8242
www.mdi.org
MOHR
V-651-489-2595
F-651-489-0410
www.MOHRMN.org
MRCI Worksource
V-612-386-5600
F-507-345-5991
www.mrciworksource.org
Opportunity Partners
V-952-938-5511
F-952-930-4279
www.opportunities.org
Partnership Resources, Inc.
V-952-925-1404
F-952-925-6055
www.partnershipresources.org
Partnership Resources, Inc. - Minneapolis
V-612-331-2075
F-612-331-2887
www.partnershipresources.org
Partnership Resources, Inc. - Older Adults V-952-746-6206
F-952-746-6209
www.partnershipresources.org
ProAct Inc.
V-651-686-0405
F-651-686-0312
www.proactinc.org
Reach for Resources
V-952-200-3030
F-952-229-4468
www.reachforresources.org
Rise, Inc.
V/TTY-763-786-8334 F-763-786-0008
www.rise.org
TSE, Inc.
V-651-489-2595
F-651-489-0410
www.tse-inc.org
WACOSA
V-320-257-5191
F-320-259-4670
www.WACOSA.org
Work Incentives Connection
V-651-632-5113
TF-800-976-6728
www.mnworkincentives.com
www.fraser.org F-651-379-5803
www.goodwilleasterseals.org
EMPLOYMENT/VOCATION GOVERNMENT
We celebrate the ADA every month we publish the Access Press! Board of Directors Access Press
Minnesota Council on Disability
V/TTY-651-361-7800 TTY-800-945-8913
www.disability.state.mn.us
MN Gov. Council on Developmental Disabilities
V-651-296-4018
TF-800-627-3529
www.mncdd.org
V-800-707-1711
TTY-800-688-2534
www.ucare.org
HEALTH CARE PLANS UCare
HEARING IMPAIRMENT Hearing Loss Assn. of America-TC Chapter
V-763-447-1711
www.hlaatc.org
HOME HEALTH CARE SERVICES V-612-789-1236
V-612-706-5555
www.actg.org
Community Involvement Programs (CIP)
V-612-362-4434
V-612-362-4452
www.cipmn.org
In Home Personal Care
V-763-546-1000
F-763-546-1018
www.inhomepersonalcare.com
Mary T. Inc. Home Health Care
V-763-862-5426
TF-888-255-6400
www.marytinc.com
ADA National Network (adata.org)
www.accesspress. org
A Chance to Grow
Celebrating the ADA today, tomorrow, and every day. Happy 30th Anniversary of the Americans with Disabilities Act from the 30th Anniversary Planning Committee.
Visit our website for activities throughout the year at ada30mn.com or our Facebook page at ADA Across the Generations. Former US Senator Dave Durenberger, co-sponsor of the ADA, salutes Justin Smith, disability advocate We celebrate the ADA as we traverse across the country and globe with people of all abilities! Let's keep improving access for all. Thank you and Happy Anniversary! Thanks to the passage of the ADA many forms of art, including performing and visual arts are now available for PWD. Theaters provide ASL Interpreters and Audio Describers. Museums provide tours for various types of disabilities. Martha Hage Thanks to the ADA, I have an accessible home, transportation, stores, restaurants, parks and community bathrooms. United we must do more to make certain ADA continues to provide access for all PWDs. Dorothy A. Balen Wishing everyone who has benefited from the passage of the Americans With Disabilities Act 30 years ago a very Happy Anniversary! Let's keep fighting the good fight! Linda Wolford
Accessible Space, Inc. Accessible Space, Inc. Accessible Space, Housing Inc. Accessible, Affordable
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Call 800-466-7722 Call 800-466-7722 TTY/TDD 800-627-3529 Call 800-466-7722 TTY/TDD 800-627-3529 www.accessiblespace.org TTY/TDD 800-627-3529 www.accessiblespace.org
July 1, 2020 Volume 31, Number 7
Pg 7
DIRECTORY of Organizations HOSPICE CARE Mary T. Inc. Hospice Care Credit: ADA National Network (adata.org)
Congratulations on 30 years of equality for people with disabilities. ADA Minnesota is proud to be a part of this celebration!
V-763-772-9963
TF-888-255-6400
www.marytinc.com/hospice_care.php
HOUSING-CONSTRUCTION/REMODELING Ability Solutions & TwinCity Stairlifts
V-952-808-3646
F-952-808-2647
www.twincitystairlifts.com
AccessAbility Options, Inc.
V-763-571-6789
F-800-632-0798
www.accessoptionsmn.com
Accessibility Design
V-952-925-0301
F-952-926-7712
www.accessibilitydesign.com
Accessible Homes, LLC.
V-612-978-1054
F-651-554-3085
www.accessiblehomesllc.net
Lifeway Mobility
V-651-323-1190
TF-800-561-2333
www.lifewaymobility.com
Custom Railworks Otis Ironworks LLC
V-507-884-1023
www.facebook.com/otisironworks
HOUSING-RENTAL Happy 30th anniversary. The Metropolitan Center for Independent Living is proud to celebrate this milestone in history! Happy 30th Anniversary ADA Minnesota Spina Bifida Association When the Minnesota Twins take the field, we play for everyone. We are proud to join our extended Twins Family in celebrating the 30th Anniversary of the ADA! PVA celebrates the past 30 years of ADA. We look to the future for more equal opportunities/access for persons with disabilities in employment, public accommodations, commercial facilities, and transportation.
Accessible Space, Inc. (ASI)
V-651-645-7271
TTY-800-466-7722 www.accessiblespace.org
Ebenezer Park Apartments
V-612-879-2233
TTY-612-879-8889
www.fairviewebenezer.org
LSS Host Homes
V-651-255-2363
hosthomes@ lssmn.org
www.lssmn.org/hosthomes
National Handicap Housing Institute, Inc
V-651-639-9799
F-651-639-9699
www.nhhiaccessiblehousing.com
Rental Housing by Mary T. Inc.
V-763-862-5432
TF-888-255-6400
www.marytinc.com
TF-888-630-9793
www.adaminnesota.org
INFORMATION/REFERRAL RESOURCES ADA Minnesota; a program within MCIL
V-651-603-2015
Minnesota Council on Disability
V/TTY-651-361-7800 TTY-800-945-8913
www.disability.state.mn.us
PACER Center, Inc.
V-952-838-9000
www.pacer.org
United Cerebral Palsy of Minnesota
V-651-265-7361
TTY-952-838-0190
www.ucpmn.org
INSURANCE AssuredPartners of Minnesota, LLC
V-651-294-0710
TF-800-886-7201
F-651-644-9137
V-612-334-5970
TF-800-292-4150
www.mndlc.org
LEGAL Minnesota Disability Law Center
MEDICAL SUPPLIES/EQUIPMENT Handi Medical Supply
V-651-644-9770
F-651-644-0602
www.handimedical.com
Phoenix Medical Services Inc.
V-651-636-0848
F-651-636-5746
www.PhoenixMedical.org
Avivo
V-612-752-8074
F-612-752-8001
www.avivomn.org
Community Involvement Programs (CIP)
V-612-362-4434
V-612-362-4452
www.cipmn.org
Fraser
V-612-861-1688
F-612-861-6050
www.fraser.org
MENTAL HEALTH
National Alliance on Mental Illness of MN V-651-645-2948
TF-888-NAMI-Helps www.namihelps.org
Reach for Resources
V-952-200-3030
F-952-229-4468
Vinland National Center
V/TTY-763-479-3555 F-763-479-2605
www.vinlandcenter.org
Gillette Children's Specialty Healthcare
V-651-290-8707
www.gillettechildrens.org
Wound Healing Center
V-715-268-0175
www.reachforresources.org
PHYSICIANS The Arc Minnesota is dedicated to protecting the human rights of individuals with IDD. We celebrate those who paved the way through ADA and join all who continue to fight for a brighter future.
Minnesota First Community Solutions is grateful for the progress made since the passing of the ADA. Happy 30th Anniversary ADA!
The ADA brought people together by creating spaces where everyone could access and made changes to our lives that benefits everyone and we are proud to continue that work today.
www.AmeryMedicalCenter.org
RECREATION-ADAPTIVE HOBBY/EXERCISE/SPORTS/ARTS Courage Kenny Rehabilition Institute
V-612-775-2277
Drama Interaction, 501(c)3
V-952-220-1676
Celebrating 30 years of the Americans with Disabilities Act improving access and opportunities. We appreciate collaborating with the diverse disability community as we work towards a future without barriers.
Wow, 30 years already and how time flies. Congratulations! Claudia Fuglie Minnesota First Provider Alliance supports Access Press and celebrates the 30th Anniversary of the ADA!
TTY-715-268-0177
Let’s all celebrate the 30th Anniversary of the signing of the Americans with Disabilities Act (ADA). Together we continue to make a change. Stay strong! Margot & Stu Cross “The ADA is only the beginning. It’s not the solution. Rather, it is an essential Foundation on which solutions Will be constructed.” - Justin Dart creator of the ADA Joan Willshire
Happy 30th Anniversary, ADA!
With much gratitude, Stephanie Cunningham
218-726-4762
www.allinahealth.org/ couragekenny www.cokartscenter.com/ dramainteraction501c3.html
I'm grateful for the physical barriers that have been removed and the rights we have gained. We have come a long way, but we have more work to do. Jeff Bangsberg, Public Policy Analyst This may be a day of police brutality. A more subtle cruelty results when Persons With Disabilities are systemically ignored. Thanks to the ADA, they can be ignored no longer! Mark & Susan Lasoff Thanks to all the activists who made the ADA a reality! Now I don't have to crawl up steps to visit my doctor, dentist, restaurant, church, school, voting poll or library. Sharon VanWinkel Live, Work, Read, Succeed! We're celebrating 30 years of progress through the ADA! We're so happy to celebrate 30 years of the ADA and all the civil rights of people with disabilities! Cindy & Jon Tarshish
Thanks to ALL OF YOU for supporting Access Press
BENEFACTOR ($1000 & up) Janice Chevrette Dean Doering & Lisa Scribner Jim Gerlich Kathy & Hazen Graves Jane Larson Ronna Linroth Lynda Milne Paul Mueller John Schatzlein (In Memory of) Kay Willshire Ghita & Bill Worcester The Benevity Fund Central MN Community Foundation GHR Foundation Handi Medical Supply In Home Personal Care MN Governor’s Council on Developmental Disabilities MRCI Client-Directed Services UCare
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July 1, 2020 Volume 31, Number 7
Pg 8
DIRECTORY of Organizations RECREATION-ADAPTIVE HOBBY/EXERCISE/SPORTS/ARTS Highland Friendship Club
V-651-698-4096
Mind Body Solutions
V-952-473-3700
Reach for Resources
V-952-200-3030
F-952-229-4468
www.reachforresources.org
Simply Jane and Artable
V-952-938-5511
F-952-930-4279
www.opportunities.org
Upstream Arts
V-612-354-3961
www.highlandfriendshipclub. org www.mindbodysolutions.org
www.simplyjanestudio.com
RECREATION-DINING/BARS/CLUBS Highland Friendship Club
V-651-698-4096
www.highlandfriendshipclub. org
RECREATION-MOVIES/PERFORMING ARTS/SPECTATOR SPORTS/MUSEUM Children's Theatre Company
V-612-874-0400
www.childrenstheatre.org
Highland Friendship Club
V-651-698-4096
www.highlandfriendshipclub. org
RECREATION-TRAVEL/CAMPING Hammer Travel
V-952-277-2458
TF-877-345-8599
www.hammertravel.com
True Friends
V-952-852-0101
TF-800-450-8376
www.truefriends.org
Ventures Travel
V-952-852-0107
TF-866-692-7400
www.venturestravel.org
Wilderness Inquiry
V-612-676-9400
TF-800-728-0719
www.wildernessinquiry.org
REHABILITATION (PHYSICAL, OCCUPATIONAL, SPEECH, AUDIOLOGY THERAPISTS) A Chance to Grow
V-612-789-1236
V-612-706-5555
www.actg.org
Courage Kenny Rehabilitation Institute
V-763-588-0811
V-612-262-7979
www.allinahealth.org/ couragekenny
DeafBlind Services of Minnesota (DBSM)
V-612-362-8454
TTY-612-362-8422
www.dbsmllc.org
Fraser
V-612-767-5180
F-612-861-6050
www.fraser.org
Gillette Children’s Specialty Healthcare
V-651-291-2848
TF-800-719-4040
www.gillettechildrens.org
In Home Personal Care
V-763-546-1000
F-763-546-1018
www.inhomepersonalcare. com
RESIDENTIAL/GROUP HOME PROGRAMS Community Involvement Programs (CIP)
V-612-362-4403
F-612-362-4417
www.cipmn.org
Fraser
V-612-861-1688
F-612-861-6050
www.fraser.org
Hammer Residences
V-952-473-1261
F-952-473-8629
www.Hammer.org
Living Well Disability Services
V-651-688-8808
F-651-688-8892
www.livingwell.org
LSS Host Homes
V-651-255-2363
hosthomes@lssmn. org
www.lssmn.org/hosthomes
LSS Specialized Community Supports
V-651-504-6974
scs@lssmn.org
www.lssmn.org/scs
LSS Supported Living Services
V-651-642-5990
pss@lssmn.org
www.lssmn.org/sls
Opportunity Partners
V-952-938-5511
F-952-930-4279
www.opportunities.org
Phoenix Residence
V-651-227-7655
F-651-227-6847
www.phoenixresidence.org
REM Minnesota
V-952-945-4952
F-952-922-6885
www.remminnesota.org
Restart, Inc.
V-952-767-3350
F-952-767-3351
www.restartincmn.org
Wingspan Life Resources
V-651-6442665x100
V-651-646-3846
ww.wingspanlife.org
Can Do Canines
V-763-331-3000
F-763-331-3009
www.can-do-canines.org
Helping Paws, Inc.
V-952-988-9359
F-952-988-9296
www.helpingpaws.org
Pawsitive Perspectives Assistance Dogs (PawPADs)
V-612-643-5671
SERVICE ANIMALS www.PawPADS.org
SKILLED NURSING FACILITIES Ebenezer Care Center
V-612-879-2262
TTY-612-879-8889
www.fairviewebenezer.org
V-952-767-3350
F-952-767-3351
www.restartincmn.org
V-651-967-6050
info@picsmn.org
www.picsmn.org
SOCIAL SERVICES Restart, Inc.
SUPPORTS - OTHER TYPES Partners in Community Supports
TECHNOLOGY Gillette Children’s Specialty Healthcare
V-651-290-8707
PACER Center, Inc.
V-952-838-9000
TTY-952-838-0190
www.pacer.org
SMILES Center for Independent Living
V/TTY-507-3457139
TF-888-676-6498
www.smilescil.org
www.gillettechildrens.org
TRANSPORTATION RENTAL/SALES/MODIFICATION IMED Mobility
V-651-635-0655
TF-800-788-7479
www.imedmobility.com
Vision Loss Resources
V-612-843-3400
F-612-872-0189
www.visionlossresources.org
Volunteer Braille Services
V-763-544-2880
F-763-544-3612
www.vbsmn.org
VISION IMPAIRMENT
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WAIVER CASE MANAGEMENT
ADDRESS ___________________________________________
Fraser
V-612-861-1688
F-612-861-6050
www.fraser.org
CITY/STATE/ZIP ___________________________
Reach for Resources
V-952-200-3030
F-952-229-4468
www.reachforresources.org
PHONE ________________________
EMAIL ________________________
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Pg 9
July 1, 2020 Volume 31, Number 7
PEOPLE & PLACES Udenberg is fellowship recipient
Jenna Udenberg
In Memoriam f∏∏
SUBMITTED PHOTO
∏∏f
SUBMITTED PHOTO
The Bush Foundation announced the selection of its 2020 Bush Fellows, a group of 24 leaders who are thinking big about how to solve problems and shape a better future for their communities. The 24 Fellows are from Minnesota, North Dakota, South Dakota and the 23 Native nations in the Upper Midwest. Fellows receive up to $100,000 over 12 to 24 months to pursue formal and informal learning experiences that help them develop skills, attributes and relationships they need to become more effective, equitable leaders who can drive change in their communities and region as a whole. Funding can be used for a variety of purposes. One fellowship recipient is Jenna Udenberg of Two Harbors. Udenberg is on a mission to make the world a more inclusive place for people with disabilities, especially her home community on the north shore of Lake Superior. A wheelchair user from an early age, she understands the physical and intangible societal barriers facing those with disabilities. Udenberg wants to change attitudes, approaches and accessibility so that the North Shore of Minnesota becomes a destination for people with disabilities and a model of welcome other areas can emulate. To become both an expert and advocate for change, she needs to learn how to better tell her story to remove the chasm between the non-disabled and disabled worlds. She will also pursue advanced training in Universal Design and visit other locations known for cutting-edge accessibility. “The Bush Foundation believes that strong and equitable leaders are necessary for our communities to be places where every person can thrive,” said Bush Foundation Leadership Programs Director Anita Patel. “These 24 Fellows have demonstrated tremendous capacity to lead change, and we believe in their potential to make an even greater difference.” A total of 746 people applied for the 2020 Bush Fellowship.
died in June. She was 92 and lived in Manhattan. In disability community circles, Kennedy Smith is best remembered for her founding of Very Special Arts in 1974. The organization is now known as VSA. An affiliate of the John F. Kennedy Center for the Performing Arts, VSA has a mission “to provide people of all ages living with disabilities the opportunity to learn through, participate in and enjoy the arts.” Kennedy Smith’s sister, Eunice Kennedy Shriver, was the founder of Special Olympics. Their sister rosemary had developmental disabilities. VSA was seen as the arts counterpart to Special Olympics. VSA has had chapters all over the world. Minnesota’s VSA organization closed last year in the wake of declining operating support. Smith and writer George Plimpton worked with VSA to co-author the book Chronicles of Courage: Very Special Artists in 1993. In 2011, President Barack Obama presented Smith with the Presidential Medal of Freedom for her advocacy work. Smith was the eighth of nine children born to Joseph and Rose Kennedy.
Mary Pat Gleason
Gleason challenged mental health stereotypes
Minnesota native Mary Pat Gleason was a prolific film and television actress, who worked to challenge mental health stereotypes. Gleason died in June after a battle with cancer. She was 70 and lived in California. “Stopping Traffic” was Gleason’s one-woman stage show about her personal experiences living with bipolar disorder. It was seen as a change agent in how the
PREPARE From page 3
items that are most important to you. • Adapt. Make changes so the plan is customized to you. You may need to add elements depending on your specific health needs, nutrition, networks, housing, risk factors and goals.
entertainment industry deals with mental health issues. The film based on the show is used as a teaching aid for the Mayo Clinic’s mental health programs. Gleason’s advocacy also led to changes in mental health policies endorsed by various entertainment unions. She was born in Lake City and grew up in St. Paul. She attended Catholic schools, St. Mark’s grade school and the all-girls’ high school St. Joseph’s. She had more than 170 roles to her credit, including the CBS series “Mom” and a 1986 writing Emmy Award for “Guiding Light,” the daytime drama in which she also starred. Other TV roles included “Friends,” “Will & Grace,” “How to Get Away With Murder,” “Sex in the City,” “The Blacklist,” “Gilmore Girls: A Year in the Life,” “NCIS: Los Angeles” and “The Middleman.” Many people remember Gleason as the kindly waitress Eleanor in the 2004 cult classic movie “A Cinderella Story.” Gleason was in remission from cancer, but became ill again several months ago.
Kennedy Smith funded Very Special Arts
Jean Kennedy Smith, the last surviving sibling of President John F. Kennedy and who as a U.S. ambassador played a key role in the peace process in Northern Ireland,
• Share. Tell other people you have read this article. Normalize the topic. Start a conversation about how you can support each other or others you know. If you feel hesitant, or if it’s a bummer to think about all of this, just remember: the sooner you get ready, the sooner you can stop thinking about having to get ready. And I believe you will also gain a level of internal peace knowing that you have done all you can to care for your
McEnroe was investigative reporter
Investigative journalist Paul McEnroe was a dedicated reporter and was relentless when a story needed to be told. McEnroe died in June after a long fight with cancer. He was 69 and lived in Stillwater. Some of McEnroe’s work for the Star Tribune focused on disabilities, including his series "Voiceless and Vulnerable." That series focused on mistreatment of people with disabilities. His work revealed how the state’s public mental health system failed psychiatric patients and how Minnesota failed to protect people with developmental disabilities. Anyone who has seen the 2013 Access Press documentary, The Real Story, has seen McEnroe speak about his work. The documentary focused on disability and media perceptions. He had a personal interest in disability. The son of a CIA officer, McEnroe grew up seven miles from the Washington Monument in northern Virginia. A Star Tribune article described how his family was involved in the care of his siblings, David and Peter. He wrote an essay in 1987 about the chromosome abnormality that left his brothers with intellectual disabilities. He became his brothers’ legal guardian, a role now taken on by his wife, Louisa D’Altilia. McEnroe was a staunch advocate for social justice and received the Robert F. Kennedy Journalism Grand Prize for Reporting on the Disadvantaged, among many other awards. He worked at the Star Tribune for 35 years and ended his career as the investigative executive producer at KSTP-TV. McEnroe is survived by his wife, his brothers, a son and a daughter, and a stepson. Memorials are preferred to Memorial Sloan Kettering Development Office at 646-227-3549, to donate in memory of Paul McEnroe for the research of Dr. T. Jonathan Yang in leptomeningeal cancer.
future self. Read the rest of Ruth’s story, including tips of how to set up a healing space and plan for recovery, at www. ruth-z.com/you-might-get-sick-alone Ruth Hamberg is a Minneapolis resident and owner of the Squaretree marketing, communications and events firm.
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July 1, 2020 Volume 31, Number 7
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OPPORTUNITIES INFO & ASSISTANCE
Minnesota STAR loans resume The Minnesota STAR has resumed its device loan program in the St. Paul office with some restrictions due to COVID-19. No-contact loans are offered. All devices will be shipped directly to the borrower and all returns are to be shipped via US Mail or another shipping provider. Ask about accommodations for device demonstrations. Check the Facebook page @MNSTARProgram for more program updates, technology news and information. FFI: 651-201-2640, 1-888-234-1267, star.program@state.mn.us Mental health peer groups offered NAMI Minnesota (National Alliance on Mental Illness) sponsors a variety of free online peer support groups for adults and young adults living with a mental illness, their families, friends, spouses/partners, as well as parents of children and teens. Led by trained peer facilitators the support groups help individuals and families learn coping skills and find strength through sharing their experiences. When joining an online group, please add only a first name. Also, the groups are specifically for those individuals suggested by the group’s title. For example, Family Support Group is only for family members and NAMI Connection is only for those who live with a mental illness and are more than 18 years old, etc. Find a complete listing of group meetings and how to join in by going to namimn.org and clicking on “Support Groups” or go straight to https:// namimn.org/support/nami-minnesota-support-groups/. National Alliance for the Mentally ill (NAMI) Minnesota staff are very concerned about the mental health of the people served and the greater community. Call the warm line at 651-288-0400 or text “Support” to 85511 or call 844-739-6369 Call the local crisis team at **CRISIS or check the NAMI website for the county numbers. Call the National Suicide Prevention Lifeline at 1-800-273-TALK (8255). Use the Crisis Lifeline by texting MN to 741741. Call the SAMHSA Disaster Distress Helpline at 1-800-985-5990 AuSM launches new website Autism Society of Minnesota (AuSM) is pleased to announce the launch of a new, more user-friendly website. AuSM spent more than a year reviewing
website needs, accessibility best practices, and listening to feedback from individuals and families to create a site that will better serve its mission of providing information and resources to the Minnesota autism community. It is at www.ausm.org The new website will feature a site-wide footer that will serve as guidance for the site layout and easy navigation to specific areas of the site. Contact information and photos of AuSM team members on the staff are featured. Though content throughout the site will be similar to AuSM's current site, pages in the new site will look different. Each section is color-coded to serve as a visual reference, and together with top menus and sidebar navigation options, along with the site map footer, site guidance will be significantly easier. The events section of the website will offer a new visual format by month. The calendar is searchable by keyword and location, and offerings within the calendar will have quick links to more information. A highly visited section of our website, the AuSM Resource Directory has been retooled and will be searchable by content type, age group, and category of information. More general searches of the guide are available by key word, city, etc. with the new search feature. FFI: 651-647-1083, info@ausm.org PACER Center offers workshops PACER Center offers many useful free or low-cost workshops and other resources for families of children with any disabilities. Workshops are available online. Advance registration is required for all workshops. At least 48 hours’ notice is needed for interpretation.. Check out PACER’s website and link to the newsletter of statewide workshops that allows participants to pick and choose sessions designed for their needs. Workshops are free but advance registration required. FFI: PACER, 952838-9000, 800-537-2237, www.pacer.org Appy Hour : Apps to Help Young Adults with Disabilities Learn About and Manage Their Money is 2-3 p.m. Wed, July 8. The “Appy Hour’ will showcase apps that help to develop money skills to support independent living. Apps will address the essential skills of counting money, planning a budget, and tracking money spent. Tech for Teens Club: Coding Video Games is 10 a.m.-noon Sat, July 11. In Livestream Tech for Teens, participants will create their own custom video
games using Scratch online software. Learn the basic concepts of coding and share games with friends and family. No coding experience is required. Math Tech: Tools to Support Secondary Students is 6-7:30 p.m. Wed, July 15. Avoid the “summer slide.” Learn about an array of apps and websites that help secondary student (grades 7th – 12th) develop their math skills. We will include information on tools for students with learning challenges. This livestream is designed for families and professionals. Tech for Girls Club: Coding Music is 10-11 a.m. Sat, July 18. Attend a virtual musical coding session. Middle school girls of all abilities will use Scratch, an online coding program, to code a variety of instruments to make their own music. No coding experience is necessary. This event will be presented via Zoom. An email will be sent to registrants a few days before to access the event. Self-advocacy work launched The Arc Minnesota has launched a Self-Advocacy Page. Learn to advocate and connect while staying at home. Tips for communicating with support staff during COVID-19, how to use Zoom to talk to friends or participate in a meeting, videos with meditations and inspirational activities and much more are offered, with resources added weekly. FFI: 1-833-450-1494, info@arcminnesota.org Attend autism workshop Join Autism Friendly Austin, the Autism Society of Minnesota, and the Hormel Historic Home Wed, July 29 for an informative, full-day workshop lead by Judy Endow, LCSW, author and international speaker on a variety of autism-related topics. During Autistically Thriving: Living a Self-Determined Life, Endow will enlighten participants about the shift in how autistic support is thought about and implemented. Understand who autistic people are and how they comfortably function, as well as key elements of taking in, processing, storing, and retrieving information along with autistic thinking style. FFI: www.ausm.org Most of the groups that have listings in the Opportunities page have suspended activities, have gone to online services only or are offering limited services. Many offices are operating remotely, or with limited staff and hours. Please check with disability service provider websites to see what is offered, as offerings are continuing to change.
RADIO TALKING BOOK COVID-19 Update Once again, the July Radio News is much more” slim and trim” than usual thanks to the COVID-19 pandemic. Radio Talking Book (RTB) staff is working with State of Minnesota and State Services for the Blind officials on plans to safely resume operations in the Communication Center. After the Communication Center reopens, regular programming begins again as soon as possible with the help of many dedicated and talented volunteers. Broadcasts of more news from Minnesota newspapers will also resume. Here’s what has happened up until now: *On March 27, RTB began broadcasting the signal from the University of Kansas Audio-Reader Network. To find out more about Audio-Reader, visit www.reader.ku.edu. *RTB resumed newspaper broadcasts April 16. State and local news is presented by Michael LaFleur 9-11 a.m. weekdays, with Edy Elliott presenting the same Saturdays and Sundays. Brad Bronk and Joe Papke present the New York Times 5-6 p.m. weekdays. Following a book broadcast that was shelved? All books that were suspended when the pandemic began will be restarted from the first page, giving listeners a way to get caught up or jump in at the beginning. Regular broadcasting will return as soon as possible. Contact State Services for the Blind at 651-539-2300 or 1-800-652-9000 or email, ssb. info@state.mn.us. for more information.
New listening options A new RTB app is now available for both iOS and Android devices. The app can be found in the Apple app store for iOS, and the Google Play store for Android. Both apps will enable listener to listen to our live stream, or archived programming from the past week. When searching in either store make sure to select MN RTB, as other radio reading services have made apps available. In the Apple store use the terms Radio Talking Book or RTB without the quotes; in the Google Play store, search for Radio Talking Book. An RTB “skill” is also now available on Amazon smart speakers. To begin say, Alexa, enable Radio Talking Book. Alexa will ask if the user wants to play RTB, hear the schedule, or find out what is now playing. Respond by saying, Alexa, play Radio Talking Book. Next, Alexa will ask if the user if he/she/they are blind or print-impaired. This is so those eligible for the service can be sure to gain access. Those eligible need to say, yes, so that Alexa will play the RTB live stream. Current schedule information cannot be accessed because regular programming isn’t being aired at this time. Listen to RTB’s live or archived programs online at www.mnssb.org/rtb. Call or email to get a password for the site. The password requirement will be removed in the near future. The NFB-NEWSLINE service will continue. The service provides access to more than 500 magazines and newspapers, plus information on COVID-19 in the Breaking News section. To learn more about NFBNEWSLINE visit www.nfb.org/programs-services/nfb-newsline.
ENJOY! Less to Enjoy! Many of the groups that typically have listings in the Access Press Enjoy! pages have suspended activities, have gone to online services or are offering limited services. Please check with a venue or organization before heading out. Contact theaters to see when shows will be rescheduled and if tickets will be honored. With museums, check to see when or if interpreted and sensory activities will continue. Some sensory activities are only offered during the school year. Many theater companies and arts organizations are offering virtual activities only. Check to see what is available through the Minnesota Access Alliance calendar, at https://mnaccess.org/ Drama Interaction Drama Interaction offers free virtual camps and classes for children, teens and adults this summer. Offerings include Super Hero Theater, Pete the Cat Camp, Adult Theater and Dance, and more. Participants with special needs may find having a parent, sibling or para attend with them to be helpful. Apps used for virtual learning will be SEESAW and ZOOM (both free). FFI: www.cokartscenter.com/summercamps2020.html ProAct cancels tournament Due to the COVID-19 pandemic, ProAct’s 2020 Golf Classic Event, set for Mon, Aug. 31, is canceled. It is ProAct’s only fundraiser. Those who have already contributed to the 2020 event should watch for outreach as to how to proceed with refunds. AuSM golf tournament Autism Society of Minnesota (AuSM) presents the AuSM Golf Classic Thu, Aug. 3 at the Royal Club in Lake Elmo. The event be adjusted to
accommodate Minnesota’s COVID-19 pandemic regulations. Golfing foursomes will participate in a double-tee start, where groups will be assigned tee times and will begin on either the 1st or 10th holes and play a full round of 18. Tee times will run from 12:30-2:30 p.m. Event is limited to 25 foursomes. Cost is $640 per foursome. FFI: www.ausm.org
Please return audio cartridges Anyone who has been receiving the Radio News on audio cartridges, and still has some from previous months, is asked to mail those back to SSB. SSB Services During COVID-19 Here’s a quick overview of what to expect from SSB during the stay-athome period: Staff will continue to assist customers by phone, email and through other virtual channels. Custom transcription of print materials into audio and e-text is temporarily suspended. Braille production is continuing, though there may be delays in getting materials to customers. SSB’s general email will be checked regularly, at ssb.info@state.mn.us. SSB’s main number, 651-539-2300, is checked daily. Staff will respond within two days.
Thank you for your support; we are here for you!
Art camps offered Upstream Arts and its partners offer a series of camps July 6-17. The Summer Arts Collective offers week-long art camps for children, teens and adults with disabilities. Upstream Arts offers classes along with other organizations. Create visual art with MSS, enjoy poetry and song with Unrestricted Interest, dance with Young Dance, write with Cow Tipping Press, and lift up spirits in music and song with Rhiannon Fiskradatz. Take one class or sign up for all. Each one-hour
session is $10. Scholarships available. FFI: www.upstreamarts.org
Order your supplies online www.handimedical.com
July 1, 2020 Volume 31, Number 7
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Reflections on George Floyd, race and disability from the community Editor’s note: People with disabilities were already living in challenging times with the COVID-19 pandemic, due to our underlying health conditions. And then the world changed again. The recent unrest and wave of peaceful demonstrations in the wake of the killing of George Floyd at the hands of Minneapolis Police has led to worldwide reflection and scrutiny of law enforcement and criminal justice practices. It also brings a renewed and much-needed focus on people with disabilities and our ties with the civil and human rights community. Because one in five of us will develop a disability within our lifetimes, there’s great intersectionality between communities of color and the disability community. Racism and discrimination hurt all of us. Many of our organizations have spoken out in the wake of Floyd’s death. Here are some thoughts, with links to longer commentary.
between races. We acknowledge the systemic problems for persons of color navigating disability services, including higher disparities in access to diagnosis, appropriate education and daily living supports that are culturally and socially appropriate. It is important that the disability community acknowledge this intersectionality. The Minnesota Consortium for Citizens with Disabilities is committed to working toward justice for all and to using an intersectional lens to fight for the rights of people with disabilities, especially people of color with disabilities … Please raise your voice, hold people in power accountable for their actions, and continue to support one another and all who experience injustice. Black lives matter. www.mnccd.org
Minnesota Consortium for Citizens with Disabilities George Floyd mattered. His death reminds us, once again, about the harsh and unjust reality of living as a Black person in the United States, and the extensive work to be done to end systemic racism and discrimination throughout our state and country. We stand with the Black community and are ready to join in the fight to rebuild our community to be just, fair and accessible for all. In the United States approximately half of all lethal police encounters involve a person with a disability. The disability community understands the significance of showing up to fight for basic human rights, and we acknowledge that disability rights have historically been centered in the White experience, although disability does not discriminate
The Arc Minnesota The death of George Floyd is, quite simply, a tragedy. It is a tragedy that is affecting our community and cannot be ignored. My heart goes out to everyone affected by this injustice, and in particular those who live in this reality every day … There are so many threads to this, including unjust death, and the destruction we witnessed across our cities. These horrific events are the result of othering, and its ensuing fear, that our organization is dedicated to dismantling. We cannot let the cycle end in complacency as it usually does. Enough is enough. The Arc Minnesota is dedicated to promoting and protecting human rights, because we want to see the wellbeing of all people, from the individual, to the
REFORM
of training funds are used for crisis intervention, including what specific training they used and whether it was evidence-based. Money was sought for pilot projects for law enforcement agency to connect quickly with mobile crisis teams through tablets and telehealth services.911 operator training on mental health issues was also sought, along with many programs for mental health needs to be met when people are jailed. Another measure that stalled is very important to Minnesota’s autism community. The bill would have mandated specific training and set aside funding for law enforcement officers, to ensure safer interactions between people on the spectrum and officers. One of the bill’s champions is Rep. Mike Freiberg ( DFL-Golden Valley). Freiberg has a child on the autism spectrum and spoke out in interviews during the regular session about the bill’s importance. Autism Society of Minnesota (AuSM) has worked to get the legislation passed, so seeing it stall in both the regular and special sessions was a disappointment. AuSM already has provided training for officers in some Minnesota police departments, including St. Paul, Eagan, Brooklyn Park and Woodbury. Jillian Nelson, AuSM’s policy advocate and community resource staffer, said the bill had momentum during the regular session. Then the COVID-19 pandemic hit “and everything just fell flat.” AuSM is pushing for comprehensive training on
From page 1 controlled Senate. As lawmakers met in private, about 400 people held a Juneteenth demonstration outside the capitol. Gov Tim Walz called for legislators to bring him a law enforcement reform bill to sign on Juneteenth. The holiday typically commemorates Black emancipation but in 2020 turned into a day to call for law enforcement reforms and to honor Floyd’s memory. “We have to do something on police accountability and reform,” House Speaker Melissa Hortman (DFL-Brooklyn Park). “The tragic murder of George Floyd on May 25 changed the entire legislative agenda. There is no way for us to look away from this injustice, and to not do the work that thousands of Minnesotans and millions of people around the world are demanding that governments take up.” Mental health advocacy groups sought an array of law enforcement and juvenile justice reforms, which were unveiled earlier this year at Mental Health Day on the Hill. People with a mental illness are much more likely to have encounters with the criminal justice system that can result in a dangerous encounter with the police, time in jail, or incarceration. Minnesota mental health advocacy groups worked during the regular and special sessions on issues including law enforcement departments’ documentation
PAT KINNEY
Association of University Centers on Disabilities The Association of University Centers on Disabilities (AUCD) is a diverse, interdisciplinary leadership, research, training, and service network focused on people with disabilities with a foundational commitment to inclusion, diversity, and cultural competence. Our work, our experience and our shared humanity unequivocally opposes the ongoing, fatal police killings and other violence against Black individuals across our country. What happened to George Floyd May 25 was not a beginning, it was a continuation. But it was a catalyst for change. “These attacks must end. As a person of color, I know too well how these incidents can and do happen,” said AUCD Board President Sachin Pavithran. The disability community's connections to and intersection with all parts of the civil and human rights community are essential to who we are and lead us to stand together and speak out against injustice and inequality in all its forms …AUCD stands committed to assist, and will continue our internal and network-wide efforts to embed principles of equity in everything we do. www.aucd.org
Resources for people who experience police brutality Many disability advocacy, social justice and community groups offer resources for people who experience police brutality. Larger cities and some counties offer human rights commissions or boards. Some communities also have civilian review boards where complaints can be taken. Not sure if a community has those kind of resources. Check with the Minnesota Department of Human Rights, at https://mn.gov/mdhr/ Here are two Twin Cities-based resources, both with roots in lethal force used against people with disabilities. Communities United Against Police Brutality is a Twin-Cities based organization that was created to deal with police brutality on an ongoing basis.
familial, to the community, and societal level. As we are dedicated to protecting the human rights of one population, we must be dedicated to extending that to all populations of people who have experienced oppression. We all have a responsibility to ask ourselves how we can contribute to encouraging a world where all people are seen, understood, are able to have equitable access to education, jobs, homes, well-being and love … As we are adamantly promoting the capacity, wisdom, resiliency, strength and power of people with intellectual and developmental disabilities, we must do the same for our brothers and sisters of color. If we focus on what we want to see in our future – instead of what we don’t want to see – we will draw the necessary energy towards equity, abundance, justice, peace, and love. We choose to set our intention on bringing that vision forth. I encourage you to each think of how you can make changes in your corner of the world, and how we can make changes as a strong, vibrant community of fierce advocates of human rights. Lean on each other, talk to your neighbors, your friends, your family. If we are in this together, we can make great progress. It’s our vision and it’s our responsibility. www.arcmn.org
Volunteers work on the day-to-day abuses as well as taking on the more extreme cases. the overriding goal is to create a climate of resistance to abuse of authority by police organizations and to empower people with a structure that can take on police brutality and actually bring it to an end. Support is provided for survivors of police brutality and families of victims so they can reclaim their dignity and join the struggle to end police brutality. Go to www.cuapb.org The Barbara Schneider Foundation works with its partners in law enforcement, courts, corrections, mental health, social service and health care systems to improve the response to those in mental health crisis and to prevent mental health crises. Go to www.thebarbaraschneiderfoundation.org
Autism Society of Minnesota (AuSM) To our community of autistic adults, teens, children and families: Whether or not you have experienced first-hand the intersection of race and disability, you are powerful allies and agents of change. As a community, you, too, have experienced the frustrations of systems that were not created for your success. You know fundamentally that behavior can communicate what words cannot. You know how important it is to make space for the oppressed to contribute and to lead – nothing about us, without us. You know that awareness is only the beginning, and that acceptance, equity, and true appreciation are the most righteous goals we can pursue together. You are important and are an integral part of our evolution into a Minnesota that feels pride for and values all people. www.ausm.org ________________________________________ And a final note: A great resource to pass along is from the Autistic Self-Advocacy Network, American Association of People With Disabilities and Green Mountain SelfAdvocates. It is a booklet and resource guide for talking about racism, disability and discrimination, at https:// autisticadvocacy.org/wp-content/uploads/2020/06/PL-PoliceViolence-Toolkit.pdf autism spectrum issues for law enforcement, so that officers can effectively engage with and support people with autism. The statewide mandatory training would have included stakeholder involvement. It would include training on how to respond to people with autism and de-escalate situations. “I’m hopeful the Senate and House will be able to come together to reach agreement on our legislation and other police reform measures,’ Nelson said. She is among many waiting for word on another special session this summer. Some police and sheriff’s departments have started providing stickers to be placed on homes, to indicate if a resident has a medical condition or a disability such as autism. But advocates contend that is a small step and many more changes are needed.
CLASSIFIEDS For Rent
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Classified rates: $15 (first 18 words) and 65¢ per word thereafter. Classified ads prepaid. Mail to: Access Press, Capitol Ridge Inn Offices; 161 St. Anthony Ave; #910; St. Paul, MN 55103; Phone: 651-644-2133; Fax 651644-2136; Email: access@accesspress.org
July 1, 2020 Volume 31, Number 7
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...BECAUSE
Connect with us for these statewide services: Self-Directed Services
everyone has limitless potential.
• Consumer Directed Community Supports (CDCS) • Consumer Support Grant (CSG) • PCA Choice • Personal Support and Respite (245D) • Veterans Directed - VD-HCBS
Resources for Individuals, Families and Employers.
800.829.7110 MyMRCI.org
We’re for the people living in group homes. Nursing homes. Single family homes. Section 8 homes.
People and service dogs lined up during for public testimony.
Any homes. UCare has health plans for everyone. Get started at ucare.org Call 1-866-457-7144 | TTY 1-800-688-2534 No English 1-800-688-2534