July 1995 Edition - Access Press

Judge our society by how we care for our children and the disadvantaged.

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n Walsh Of MClL ~ i i iThe ~ & uncil Some Su~aestions -

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rt the idea of o 6th . -pyMlc .

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to use the regular route.

bm to work in designing a cam

ika vdid concern, options What krrs the council done tc tive ~irector ofthe ... . .- Metronnl..

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DRAGNET Expands C I: .

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you fwweq p a m n i P to share our views on the

proposed changes to Metro

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%hareau&5i% - fnPorm potential riders that of service have never been in new accessibleliiwm'addcans with Disabilities Act were not in place the fares would increase higher; the service area would be shrink-

News is not enough to entice .I people to try the new routes. ': Maps and route schedules -:I should be distributed at these

ing even more; rides to work, school, or medical a m i n t -

mdgs.

:tg people with disabilities employing people with disa- the work site by appointment.

MpPptpse.b m s s North Ammica, an- bilities directly." Within the Individual donors can either rr...r.rr " l a u . n o w e d recently that it is ex- firstq~@erofthisyearal~ne, r - v y maehinne nff nt b mfel ADA is DRAGnet received over DRAGnet or amnge fm a CounciI neecis ta concentrate anding i ~ new o facilities in hir&oon designing a transit system tying &e.hands olthe pick-up appointment as well. a ,:A, G , .

- -,.+~,4:,1+,L , w h i c h r-re -s ~--d inan s -- admuate politan Council.

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project's success and rapid Cthey also help to e x p s i o n requires additional telnational, h e S C O ~ S ~ ~ Uimportant, V e . The new is: tion, St. Paul Allergy Clinic, provide low-cost access 3 14- Washington Avenue Executran, Corporate Finan- computer technology for soA:, North, Minneapolis, MN cial Services, Graduate Stu- crorrl a, ~,,,,,:,,I,..~ u l r m l l r w rulsr ry 55401. The telephone num- dents Association at the advantaged children and basm e i n fie same forvoice University of Minnesota, adults throughout Minnedota and Carlson School of Manage- n n A nrrrfica XI-.+^ Nl&ll,d,.

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sands of people. You have asked staff to find $2.2 million in savings. This goal can be reached reducing the ... .. . .- - bv .-- - , - - --- ---a fidershi~ ten percent and by using a lnore . efficient .

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The su-ary prepared by Comlaanv. ,, to- name a - few.

-- ..- The RE-PC project generates staff states that the fare inOver 250 COmpUterS have high technology skills train$760,000 due creasewill save been donated by individuals ing and transitional employtn ~ t r nMnhilitv -,.-----,.-..,I-, r-..- _ _ -,_ -- s- M -.----,nemand IIIE;IILUPI]UILUILILI~S ~urpeuple so far in 1995. with disabilities when the do- Reduction. What that really means is that neo~le cannot i arc rsrurr r M~~ peopledon~trealizethat ,r,a~r v+u~ rurrlyurblJ o,,,.,,,, rl , , ,n., disposal of obsolete comput- bished and placed with those afford the increase for 60,000 "The new facility isover three er technology falls under fed- who could not otherwise af- ridestimes larger,"saidBill McCar- eral hazardous waste guide- ford similar equipment. Uswho,ly reused; The Service Area and Hours thy, RE-PC Director. "We'll lines. DRAGnet RE-PC is the able parts Reductions will save $1.066 unusable parts are recycled, only Minnesota, n ~ n ~ r o f i t establish a space for assisting million. That means that people with disabilities and organization fully licensed at and the cash produced from 88,800 fewer rides will be both the state and federal levscrap offsets some of the rehabilitation agencies with I n . , o ~rovided. ., ,,,I , J - , ~ finding appropriate comput- el for handling computer haz- L, ,,,,,,,,,,, ardous waste.

Corporate and DRAGnetcont. on p. 5 3 ' . ers and software; processing ~smissjm.TheDRAGn& ernational Disability Network (DIDnet), a computer on-line disability information resource continues operations h m Andover, Minnesotai

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$12.00 in subsidy. So how

can we reduce costs? Over sixty peteent &the riders do not need @use a lift. We expect a commitment from to the Menopolim change the fleetto sedansand mo&smaller, more efficient vans. We understandthe lease problem. But you also have a public restrooms problem, which will im~rove" ereatlv < when You tinnounce the plan forre~lacingthecurrentvehicles.

fall. How will thezidemhaw ahgtthm? >

Admittedly, there have been

o ~ d i s ~ owith n swhich

bility system and the regular routeunderthesamemanagement. The systems are still viewedas Separate. Where is

a~e

riders oil the regular route system. Council policy is to decrease riders on Metro Mobility.

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Setagoal to reduce the Metro Mobiliw ridership by twenty percent; This will save $2.4 million. Do not do it by Any decrease in hours or area eliminatingservicesto six citmust be accompanied by a h a n d cutting services hours concerted effort to increase to forty-five cities. Reduce the use of the main line sys- the number of rides by offertern. TO do otherwise is to ingreliablealtemativemodes discount the ridership. The of transit. Then tell people Me;troCounciland the MCTO - cant. on o.

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July 10,1995

Access Press

H ;ts

Errors I ~ i n n e s o t aAgain Gives Disability Rights Short Shrift

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by State Senator John Marty programs over the next two years, the State will actually end up spending more tax dollars on institutionalization and Welfare in the future.

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In addition to being fiscally irresponsible, these cuts are one more instance where the State denies people with disabilities the opportunity to To make shortihm- qheiR and contributeto sociterm savingsof ety. $10 million, the Legislature Cuts in TEFRA and P.C

y Leader Dole mated As Calling For

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Ities. The same Arne Carlson ~ont~ngt~emisinfomation he who wanted to eliminate the SUNDAY BOSTON GmBE: persons in the nation. He has our TEFRA program, a move that has received, presenting "Dole, the Senate Majority been ourally and friendduring would likely thmw many chilt**lold&u.PP,weTf Of his 26-year Senate cato cooperae. dren with disabilities out of ence of Mayors (Miami, june IWr. He is one of Us. Yet we their homes-that same Gov),. that he to review a let him bow that he is T A L ~ POMTS: G S ~ A viaietyoffederslmandatesthat ~ i v ~ g m i s i n ~ m a t i o n TOR ~ m DOLE, people with dis- emor enthusiasticallysupporttake up as much as a third of lobbyists who are advocating abilities are p r o ~ o u n ~con~ y ed dumping $15 million into the Winnipeg Jets hockey team many city budgets. Among a retreat to segregation. we cerned. youare one ofus. For those he mentioned were the must counsel with him to re- 26 years you have been our buyout. Carlson attempted to this deal by saying it storethegreat productive part- champion,our hero in the SenClean Water ~ ~Thet Safe , ~ the nership of the last two and a ate. YOUhave participated in was an "invesment", even Drinking Water A C and the creation of every law and though it would mainly beneAmericans with Disabilities half dc~ades. program that is positive for fit only a couple of wealthy Act. Dole, a supporter of the disabilities law, said 'maybe THIS 1s NOT A CALL TO people with disabilities. We businessmen. we've gone too far in some "BASH BACK." This is not a owe YOU a &bt of gratitude -, in implementing i t He call to f l d senator ~ ~ that lwe can~ never, rwy.~ B~~ It'sunfortunatethattheLegislature joined the Governor in said he'd like to retool it, 'not 0 f i ~ with e thousands of C ~ I S now, just as We have gotten mess%- our foot in the door of the making deep cuts in TEFRA to devastate the program, but and cards, with ~~~~i~~ dream, at a time and PCA, programs which rees and demonstrations. to make it work better."' when bur hard-won new citi- ally are sm% humane invest'Ihisyea& $I5 THIS PRESENTS A SERI- IT IS IMPERATIVE THAT zenship isunderassaultby othOUS POTENTIAL PROB- ORGANIZATIONS AND e r s w h o w o u ~ d a m e n d ~ emillion ~ ~ ~ (the same amount that to spend LEM FOR OUR COMMU- INDIVIDUALSWMTEcare- to restore traditional wgrega- CiV1son was NITY. Senator Dole is one of fully considered letters to tion, our most powerful s u p On the Jets) was cut from programs that allow people with the two or three most powerful Majority Leader Dole, con- Dole cont. on 9 disabilities and the parents of children with disabilitiesto be productive, taxpaying memPublisher Wm. A. Smith, Jr. bers of the workforce. By Editor Charles F.Smith Cartoonist Scott Adams choosing to cut $15 million Production Presentation Images, Ellen Oestreicher from the PCA and TEFRA Staff Writer & Editorial Assistant Jeff Nygaard ACCESSPRESS isamonthlytabloidnewspaper ublished for persons withdisabilitiesbyPolychrome, distributedthe 10. of each month through more Ltd., W.A. Smith,Jr., President. Circulation is 1~000, than 120 locations statewide. ~p roximately 650 copies are mailed directly to political, business, institutional and civic leaders. ~ugscri~tions are available for $IUyr.

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ACCESS PRESS ............................................................................................................. ........................... ....................................................................................... ................................................................................................................ ....................................................................... ..........................................................................

Editorial submissions and news releases on topics of interest to persons with disabilities, or persons serving those with disabilities, are welcomed.

Paid advertising is available at rates ranging from $1 1 to SlS/column inch, depending on size and frequency. Classified ads are $7.00, plus 20 centslword over 20 words.

Advertising and editorial deadlines are the 30th of the month preceding publication; special scheduling available for camera-ready art.

Inquiries should be directed to: ACCESS PRESS 3349 University Ave. S.E. Minnesota 55414 (612) 379-0989 Fax (612) 379-2730 1 I

step backwards. If only 5% of the children now served by the TEFRA program were institutionalized, all of the anticipated savings fromthe cutswould be wiped out.

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cuts in the PCA program, but delayed some of the changes until July of 1996,to allow for a study of the issues involved.

Unlessalternativecostsavings are found, the recommendstions of the Governor will be implemented in 1996. Hisrecommendations include cuts in PCAhours,especiallyforthose with the highest nee4 and the Of services for people who cannot direct theirown care. These individuals will have to apply for a waiver slot, which may not be available. Even if a waiver is granted, the cost of care is actuallyhigherunderthewaiverprogramthanunderthePCA Program.

visible examp

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.&rtskhted - choices bcingmade at the Ca~itol.Minnesota has done a poorjob of making sure that we have an adequate amount of accessible housing. Creative ideas, such as requiring a certain percentage of new construction to be built accessibly and avoid the need for much more costly modification, don't even get considered.

Progress on health care relunrl has shifted into reverse, with Minnesota backing offitsgoal of universal coverage. Heavy lobbyinghompharmaceutical corporations defeated a bill I authored this year that would have made prescription drugs more affordable by allowing consumersto benefit fiom big Another $4.5 million was savings negotiated by an exsqueezed from the TEFRA is@ statemmanageddrug~urp r o w by increasingfeesand chasing pool. changing the criteria for participation so that nearly 40% More short-sightedness was ofthe 3900 children skrved by evident in inadequate transit TEFRA will no longer be eli- funding during the 1995 Sesgible. Thiswasbetterthanthe sion. This underfunding is Governor's proposal to elimi- already resulting in reductions nate TEFRA, but it is still a big M w .cant. on p. 4

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SPECIALIZED TRANSPORTATION

529-501Q

483-9143

C A MEDICAL ~ ASSISTANCE ~ PROVIDER

Access

Let's Understand Medicaid Before We Make Changes

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AMERICANS VIDEO LOAN I n an effort to provide the re- organizationsthroughout MN. in restaurant settings;ar;d "Improving Y our Rural Business: sources for businesses and the to implement the Examples of videos: "Open the ADA" offers suggestions

by U.S. Senater Paul Wellstone

peoseniors, ple with dnabilities.and children Minnesota would lose under this proposal because we have-a high - -

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cry year to faster than general inflation, and increasing numbers of poor elderly who require Medicaid coverage to fill in the gaps oftheir Medicare coverage

Medicaid might save itself some money by eliminating, savices bGt at a significant standard of cost to everyone else. Anyone services and familiar with health care fia growing nancing knows that we cannot

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eos. n e s e filmsare available fora donation of $10.00 (to cover postage and handling) fortwo weeks to businesses and

ADA" gives good examples of universal, flexible and adaptable environments; "A Warm Welcome", produced by the National Restaurant Association, provides information about physical access, hospitality and staff*ing

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of the savings while the fates would have to take on a11 ie risks.

m d h a i d ~ m w d ba-dto~alm* (&bout 4%). N& hdf

cy in St LouisPark,o f f a h e groups. short-term counseling on an

t their i n s m c e

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iibility, reducing benefts,. adlorcuttingpaymentstopma m d l b t i n g w a s . ~b ,poposedreduction in federal fanding is so substantial that regardless d p any flexibility states w i v e , they would not

Specializingia&e care ofchildren aAdubmElderly .

We provide Personal Care Assistants Home Health Aids Hqmm&m Live-in Caregivers Nursing

Walkemlcanes, crutch& l Bathroom safety aids IncontimnYUmlogical supplies

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&dude: Physical/ OecupationaYSpeech/RespiratoryTherapies

4hg Rehabilitative S&t&

~ 8421 Way-

PCB Provider Organization a i v ~ eCertified d i

customers. Free UPS and CtMvbries to Mpls., St Pad % Suburbs. ~

Boulevard, Gold& Valley, MN 55426

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gerbe adjusted for b& numbers ofMinnesotaresidents who are projected to become eligible far Medicaid in hefuture, federal gov-

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groups, social, recreational, cessfilly in the community.

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b one is arguing that the is perfeet &aid ~ ~ ~ m ~ i are ref= bill repolred eut of f i e Labor Committee lmt and my single payer propow1 would have merged Medimid witk dy rest of the E@&ae s m . And it's ridthat no Eneremental changa&ould kmade to the exjstifgj Medicaid program the process, for example, cumbem be me and time qmsuming for the Governor andhisstaff. But a block gmnt wsit.b no strings attached is just poor disguise for limiting

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IACCESSIBILITY FLYERS -

topics and how to use the liCarolvn brarv. .----.,, contact: Emerson, MCIL,ADA CO&' dinator,(612)646-8342Voice, (612) 603-2001 'MY, (6 12) 603-2006 FAX

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July 10,1995

Access Press

Religion & Disability

SUMMER Musings

by Sister Mary Kraemer

express just wouldn9t come to use a wheelchair. I felt self indwelling power out? ?hat3 how I am as I write consciousand deeply afraidof

th disabilities that they may picking up m school, with

fear surrounding dis- tant that you address your children's fears or negativity in an open, respectful is pret- manner. If you scold them

say just doesn't want to come off my pen.

myth to the practical realities Many yearsago, the storygoes, and challengesoftoday. SumPerhaps it is because, I pan- a child was born. His parents mer's heat always raises the demdandprayed oGrthe sub- knew that their Son Was ex- fatigue level in me. Coupled

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y and pos- nothing wrang in having fear,

makes them feel bad, when they'see a person with a disability they conclude people with disabilities must be bad --thisishaw reaiity is lost and

disabilityorganizationssuch as the Muscular Dystrophy Association, United Cerebral Palsy, Multiple Sclerosis Society, a hospital rehabilitation center or even a

I'd like to closethis "smorgason selves that a person I think a lot of the reason negative ideas about disabilities persists is because in

eliefs the truth of life with a dis-

well as to see God reflected more in all with whom I am prid~~d t~ travel this life. This ancient sfory became the core of my spiritual convicMany years ago, 1 anended a ti0IIs. That power within canworkshop where a women not be weakened by outward shared a myth firom India ~t physical limitations. But, oh, the time, I was feeling very OW I need to continue to hear

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grace of living fully each moment of your life.

Sister M i Kraemer &mauthor, spiritual director and sp&.

She can be reached at 731-9528.

cont from p. 2

in both Metro Mobility service and regular route transit.

Several years ago, I authored a bill to respond to ATE'S mismanagement of Metro Mobility by putting it under the control of Metro Mobility riders. fiis would have ended the lnsensitivitvshown bv thetran-

sitbureaucracy. While ATE is gone, the system still needs improvement The most recent cuts in service will only make it more difficult for people with disabilities to get to work, attendschool or visit the doctor.

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To be sure, there were some modest victories this Session.

We strengthened protections for vulnerable adults and fought off an attempt to take control of the telephone message relay sekice away from the consumer group that manages it now. But there is still clearly much to be done at the Capitol.

1 inland Hosts Third Annual

I "Break Your Own Barriers" Having fiur while experiencing challenges faced by those with disabilities is the goal of the third annual "Break Your Own Barriers" event at Lake Nokomis Saturday,August 14 from 12 noon to 4 p.m. The event is organized by Vinland, a not-for-profit social service agency which specializes in serving people with multiple, complex problems associated with disabilities, and co-sponsored by the Minneapolis Park and Recreation Board and

This is not a time to give up or back off. We can't stand by and allow the State to put millions of tax dollars into the ~~:ketsofthemillionaires who buy and sell hockey teams.

We have to fight the cuts that will kick kids with disabilities out of their homes. commitment to offering all people the support they need Our investment in disability ,toparticipate fully in our comprograms and services is sim- munity. ply a matter of justice. It is also an acknowledgment of John Marry is a State Senator what we stand to lose if we from Roseville and the 1994 miss out on any person's con- DFL candidatefor Governor. tributions to our families, He has been a strong advoneighborhoods and business- cate* disability rights in the es. We need to renew our Legislature.

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American Express Financial equipment, and Wilderness Advisors, Inc. Inquiry canoe and camping demonstrations,as well as varBreak Your Own Barriers is ious activities which foster designed as an inclusiveevent education and awareness refor families and community garding living with disabilimembers to show able-bodied ties. people what day-to-day living is like forthose with disabili- All events take place near the ties while demonstrating mainswimmingbeachatLake their many capabilities.

Nokamis, just east of Cedar Avenue on Lake Nokomis "It's diversity training of the Parkway. The first 100 in atmost fun kind, meant to be tendance receive a T-shirt enjoyed on a summer Satur- commemorating the day. day afternoon," said event coordinator Courtney Cushing, Founded in 1976, Vinland who promises Break Your S1.4miIlion-a-yearnon-profit Own Barriers will take place organizationdedicatedtoservrain or shine. ing people with a variety of disabilities, chemical health Event highlights include bicy- challenges, and employment cle rides around Lake obstacles, including targeted Nokomis, a wheelchair obsta- programs for high-riskNative cle course, demonstration by Americans and veterans.

Canine Companions for lnde- Vinland is also active in edupendence, 'adaptive sports cating the community at large demonstrations such as hand- about preventing disabilities operated bicycling, specially and heightening awareness designed fishing a archery about {ith disabilities. ,

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Access Press 1 Life Goes On

On Mental lllrkss

THE CHALLENGE OF SCHIZOPHRENIA

by Sandy Gardener In 1992,psychologist Dr. Fred Frese gave a speech to members of the Alliance for the Mentally Ill of Minnesota. I saw a tape of it recently and was so moved, that I want to share some of the introduction with you. The speech is entitled "The Challenge Of Schizophrenia"; the story he tells spea-hfor itself:

position for a day ortwo. After being let out of the seclusion room, the young man wanders about trying to interact with several dozen other seriously mentally ill persons. He's behaving in a very strange manner. ..Sometimeshe starts licking the dirt off of the floor in the day room. Sometimes his body starts moving around the room as though he has no con"I'd like to begin my talk to- trol ... day by tellingyou a littlesome+ Sing about a young man. The After a few weeks, the young man is in his twenties and he's man will be asked ifhe is ready walking down the street in a to leave. Although he is still large Midwestern city. The quite delusional and he knows ;man is stopping for red traffic he is quite delusional, he is lights whenever they turn red, going to respond "yes" and he but d i k e the other people will be released into somecold ....he doesn't wait to get to the streets ... Still confused and comer to stop. delusional and saying and doing very unusual things, he He's proceeding to church.... will make his way across sevIt's Sunday morning. And eral states until relatives come when he arrives there ,. he after him and place him in feels that he must go up and another mental hospital. help the priest celebrate the high mass. This is not custom- In the next few years, the man ary in Catholic churches for will be released andrehospitalpeople to do that, by the way ized again and again. Eventu(audiencelaughter). After par- ally he will be determined to ticiwting in the c -

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very bleak, but 1 have for the most part recovered. After a total of some 10 hospitalizations in 6 different states, I have not been rehospitalized since 1974. I still have symptoms fiom time to time, but I have learned to live with them, only infrequently having to take off for a few days or a few weeks from work.

In the past 25 years I've managed to earn 3 degrees fiom graduate school, includingone in management and a doctoral degree in psychology, and I was also a special pbstdoctoral student in the University of Akron Law School for 3 semesters. For the past 15 years, I have functioned as a licensed psychologist and administrator...in Ohio's k g est state-operated hospital for seriously mestally i ~ In that cotpacify, I work every day interactingwith and caring for individuals with the same disorder...that I have but, obviously, for the most part they are more seriously disabled than I am. For most purider lmyseK re-

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Alternative Exercise i::: ..

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by Leanne Dahl

, W i t h so much emphasis placed on aging and keeping in good condition, I thought it might be fun to explore what this really means for the disabled population. Two years ago when this column was launched under "Aging -It's Not Just "Staying Alive", Eunice McClurg and I had certain preconceived ideas on how we wanted to approach this whole subject. While I can't speak for Eunice, I feel that my idms have shifted somewhat. You seG I looked at the area of aging as pretty SCW. NOW,I'm beginning to relax more and I view aging and disability as somethingthat no one can escape. If you don't have adisabilityto begin with, you will acquire one somewhere along the way.

And if y ~ already u have a dbability, you em l e m Plb tkd w*@mlaf&&g-b,t determining ~ how best . to take care of yourself.

F O quite ~ some time now I've been looking for a well balanced exercise program, becawe I'm well 6of the

interested. 1 met with Sue Lemon,theownerandmanager ofthe program. The minute I met her I liked Sue and was impressed by her explanation ofthis unique exercisingtechnique.

also allows me the opportunity to meet with other women andgives me both the physical and mental conditioning that any body requires. It even provides me with better bladder control."

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Althougn tnls wrlrer nas only gone for a short time, it's given me anew surge ofenergy as well as a better sense of balance and mobility. While I know that exercise programs may not be for everyone, I can attest tothe factthat this o m is pmvingto beeffective forme. in my opinion, I feel that this alternative exercise is worth looking into for people with disabilities. However, you Unlike the average fitness fa- need to go at your own speed cilit',thisfitness alternative is and in your ww$ tim? m e .

Sbffed by older, QMMX &% %%-:~R'nh'ometer.

TODAY'S CONCEPT has been in existence since Octoher, 1987. According to Ms hmon, "There are seven different machines that combine bdth physical therapy and isometric exercise along with the traditional extras like bikes, treadmills, rolling machines, stair-steppers and step boxes to get your cardiovascular workout."

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who have disabilities. The exercises for the person with a disability are pretty similar to other participants "except for str'aps that can be used to keep limbs in place and p i l l ~ wrolls usedtoprotectthelowerback.

Ifyou think you night be interested in this type of exercise, give Sue a call at 483-27 19.

TODAY'S CONCEPT is k cated at 1075 County Road E at Lexington in Shoreview The building is accessible an withhthelbletroM&m Fees are demm&& by fie

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nia, and that hfs conditioi will no extremely obvious sympprobably only become worse toms. as he becomes older. He has . . , , ; .:-- d machines since '85. Now ing the message in my fortune abdt;4yeazs+*& had no paying job for some "Tided that the topic? should time... he's never been.-*I'm very happy that J found cookie the other night, it said: ried. Those who know him not be as t a b as it is. I have what Irefer toasUSue'sPlace". "You are going to have a very have little hope that he'll ever cometo believe that persons n e s e machines allow me to comfortable old age." I cerlive a dignified and meaning- with the disorder should be use and exercise my muscles tainly will look forward to that more open about ...what it is ful life .... without tiringouvttoomuch.

It as LIFE JUST GOES ON. I like to live with a brain that fmm p I The man I have be& speaking f i r o m ~ q ~ ~ - w ~ l ~ , about is in E M rtrsrl, and '& tio m I * - ~ m ~ o ~ . ' * d m & e t ~ e Z m e i '. .

He is screaming for someone many of you probably know, Who knows better than you ther disabled or directly sup. to give him water and waits a the man I have been speaking Videotapes of the complete porting someone who is. the PCA services you need'? speech are available through long time ... He is strapped about is myself. the Alliance for the Mentally down with his armsand legs to The two other primary servicAt Allied Health Alternatives, we work with a table and remains in that 20years ago, my futureseemed Ill of Minnesota. es of DRAGnet will continue you to create a health services partnership.

I cument operations: Computer We'll provide competent nursing Precision provides system desupervision that supports your goals and sign, management, training, and consulting to assist tap- objectives, plus knowledgeable assistance and coordination when you need it. ping into the ''Information superhighwayw.DIDnet is an Call 544-1655 onlineinformation servicecarr ~ i n ga comprehensive array for our .- - . FREE .

- brochure titled of disability information includingAmericanswith Dis- I"choosing a Personal Care Assistant." abilities~ctand other dimbil. July 11 Eric Peterson, Elin Ohlsson, Jan Doud: ADA Celebration ity-rel*dlegalissues;~=lth Allied Health Atternatives, Inc. and Disability Policy; Job Nursing Support Services Nursing Enterprises July 18 Darcy Pohland: Life as a newsreporter with a disability Opportunity and Employment 5401 Gamble Drive; Suite 235 referrals; Visual, Hearing, and Minneapolis, MN 55416 Arlene Innman: Visual and written arts July 25 Mobility Impairments;Learning ~ y k b n k i o n s ;DevelopC-Q.qpagram . for parents with disabilities by the Courage Center mental Disabilities; Mental Health and Emotional Disor* a,<Branch Offices: I. I . , Angust 8 Advocating Change Together ders; Traumatic Head Injury; ~ e m e m b e r with h ~ ~ i g n iProject: t~ preserveand tell the history of people who have Rare Diseases; Substance 102 NW 4th Street 412 IFAve. SW; #I02 lived in institutions through oral history and the restoration of the institution's Abuse; ATDSMIV; and many Wtllmar, MN 56201 Faribault, MN 55021 others. It can be reached 24 507-332-7471 612-235-5684 hours a day with a computer and modem at 6121753-1943 2 N.E. Third Street Minneapolis (ANSI emulation; eight data Grand Rapids, MN 55744 bits, no parity and one stop bit 218-326-4202 [8-N- I 1. a snake. He"$ loaded into an ambulanceand taken to a public psychiatric facility. When he wakes up, the man does not know where h~ is or how he got there. At first he thinks he may be dead and in a storage area waiting for some k i d of judgment. Later, he realizes that he's alive and that he's very, very thirsty.

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With A Love Story

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OPENDOOR THEATRE will present DANNY AND THE DEEP BLUE SEA, an explosive, deeply affecting study of alienation and the

people who find redemption through the power oflove. The production is d a t e d by Kim McCallum and features Twin Cities actors Shelli M m l i n i

to emerge. A probing exploration of exorcism and forgiveness that questions how we disable ourselves.

, day from June 22 - July 16.

Roberta, meet in a Bronx bar.

He is a self-loathing man, incapable of tender emotion.

He resorts to violence rather than reason. She is adivorced, guilt-ridden young woman haunted by the memory of an incident for which she does not forgive herself. Both are paralyzed by fear and guilt.

And yet, the possibility of a meaningful relationshipbegins

to provide artistic opportunities to artists with disabilities.

OPEN DOOR THEATRE is devoted to celebrating LIFE! through the Theatre. We feel the Arts must be open to all people as celebrants, critics, andcreators. TheJuly l6show will be ASL interpreted and audio described.

'DANNY AND THE DEEP BLUE SEA is the equivalent of sitting ringside for a fight.

A wrenching love story. A h y , frightening,hypnotically fascinating evening of thea*. The play, by the Academy Award-winning MOONSTRUCK screenwriter John Patrick Shanley, is about two

apolis Theatre Garage 7 11 W. Franklin Ave. Thursday Saturday performances at 8 P.M. Sunday at 7 P.M. Ticket prices are S 10.00 with discounts for OPEN DOORTHEATREwas students, seniors and low in-

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please call 924-0508. Adult themes, language,violenceand brief nudity.

OPEN DOORTHEATRE will hold auditions in July forJIMMY'S TAIL and in August for TALK LOUDER, SHE'S BLIND.

The play will run at the Minne-

Bell To Host Butterfly And Moth Exhibition Beauty and Biology: Butter- artists have created a wide ar- The James Ford Bell Museum For additional information on Keren Or. August20at2:OOpm

Day. Stick your kids into

Renaissance

Festlwal.

countless artistic metaphors

ment, medieval games and

artistic perspectivex.

.Labor Day, 9 am to 7 pm in a1 entertainment at the.

Shakopee, 945-7361. stand, plus the Fair has new m c t i m s , mcludi

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nual Twin CiMs Latin .km Royal Lipizzaner

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tim thnmgh. a live butterfly garden. Inside the exhibition, photopphs; specimens, and interactive displays of butter-

loured by a performcnce with groundsin St Paul. C h I k n ' jazz harpist R&rto Ray, Senior's Day, and Elvi 'Perera(venue TBA) on Satur- Day! 642-2200 *dsly,Latin jazz flutist Nestor

,

'

'L d h

Cafe, Minneapol~s.

Dances of the Middle East. kdcoTlaborative ~ancertof Pkwsc putronjzrr yuur Arabic and Israeli folk dances GcMw Pms withtheJawaahiu Dance Com- Advertiwm - and tell pany; and two ls&lj dance 1 them where you heard troupes, Keren Or and Gva- abaut,thern. They bring n h : 'Ihe concert cullninates .inanew d m c e k ~ ~ m e m - - you ysqr Impr.

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communities. Nothing less standard of fairness.

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Sucms.Awards Entertainment

Access Press

The Power Of To

by Gordon Gillesby interesting results so long as the little gray cells prefer something to do other than the Days of Our Eternal Hospital Worldly Turnings. Particularly if you happen to be pathologiere's

budgets.

Rather than explain this idiocy, perhaps it's time we learned to take care of ourselves better. I know, it's easier said than done. I'm not suggesting that this is the answer for everyone. It's just that almost anyone has

absence of my usual morning caf- ity or retirement. feine, I began to wonder if this assumption was correct.

Now, this may come as a shock to you: I'm an investor. Try not to boo Granted, not everyonehas the ability and hiss too loudly. You see, I'm to save money. People with disabil- largely self-taught and have been ities are facing the same economic activelyinvestingsince1986. Idon't and political realities as everydne put away a lot, but I do invest s m e else-except lately its been more of thing each and every month. I bea nightmare. We've all read about lieve in being self-taught, even if how tight the federal budget is and you're going to use professionalhelp we've heard Uncle Arnie whine in managing yo* money. Otherabout how bad it's g o i ~ gto be for wise, you have no idea when somethe state. Every one - es- one is sugge!sthg somethingterribly peciallythoseleast qualifiedto under- unwise for your situation. It is, after stand what social services we actual- all, your money. ly really need - is starting with us in the race to cut the most My intention isn't to turn this col-

I'm not qualified to manage anyone's money other than my own. I dosupport the principles expounded tythe~ationdAssociation oflnvestor Corporation (NAIC) based in Royal Oak, Michigan. They are a non-profit organization focused on teaching people sound fiancial anal-

with disabilities is what I find most interesting. It is a long-term action that frees us from what one of my friends calls"economic subjugation" (a.k.a. government control). It also is a very visible way to demonstrate we are capable people with the same abilities as everyone else. Besides,

eventhoughtheorganizationdoesn't a club is the problem of mobility. endorse commercial services.

Getting people together for a monthly meeting would be nice bat diffiI learned most of what I know about cult. It'sthe principle reason 1didn't investing fiom NAIC and other eas- join one of the Twin Cities chapters ily accessible financial information ofNAIC . !t's also one ofthe reasons resources. Back then, they weren't I founded DRAGnet - so people onlinebutnow many,manyfinancial wouldn't necessarily have to leave resources are available through a their homes to do something worthcomputerandmodem. Thatmakes it while. Why wouldn't we be able even easier. Many sources such as to have quarterly meetings in person NAIC have a lot of free information (at a nice restaurant, of come) and available directly. Many financial otherwise meet on-line through magazines now publish online edi- DRAGne? For that matter, it's tionsavailablefiommanyofthecm- possible to have a much larger group mercial online services. If all else participatewithoutnecessarily limitfails, there's always the library. ing it to specific geography and not have any in-person meetings at all

practical).

So why haven't I done all this? I haven'tthe timeto run DRAGnetand give starting this kind of project the attention it deserves. Somebody else is going to have to step up tothe plate and take a swing at this one. I'm sure

583-4880 ( b i m i l e )

----GordonGillesby is theChair/CEOa& DRAGnet-the D i s a b i l i f y l a ~ es, Affiliates and Groups W o r k (612.338.2535/voice). The Power ofTo: isabout computen,cybempace. and communication for all people.

Pleaseshareyourthmgk, comments and ideas about this column with Access hess or log on to DRAGnet Information Service with your computer and modem (6 12.753.1943; 8- . n-1; ANSI emulation).

Professional Directory Call 379-0989 . .

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ARC RECOGNIZES IN BRIEF. . . .

VOLUNTEERS AT ANNUAL CELEBRATION JOHN HOCKENBERRY - FREE LECTURE Minneapolis Mayor Sharon Sayles Belton presented the 1994 volunteer awards at Arc ofHennepin County's Annual Celebration held May 3 1.

Mayor Sharon Sayles Belton also spoke at the event, encouragingvolunteers and community members to continue their work in support of Arc of Hemepin County and individuals with developmental disabilities.

vehicle of television to spread the word about self-advocacy and People First -Central on the Judy Corrao Show on Channel 6. In addition to all of these activities, John has volunteered at Arc of Hennepin County for over 70 hours in the past eight months.

far beyond her personal situation or needs. These qualities have impacted key policy decisions and activities which Arc of Hemepin County has pursued as an organization.

Arc of Hennepin County is a non-profit organization that provides advocacy and supDarlys Westlund is a strong port to people with develop-

The 1994 Dick Rothmund Memorial Award honoring a self-advocate who has participated fully in their community in an outstanding manner through leadership in self-ad- . vocacy or community service was awarded to John 4 Rischmiller. Arc of Hemepin County's 1994 Founders Award was presented to Darlys Westlund for her efforts in helping to improvethe lives of Jo.... ,.,....,. and Mayor Sayles-Belton people with developmental disabilities and their families. leaderwhohasdedicatedyears mental disabilities and their The Founders Award honors ofservice to strengtheningArc families. Arc of Hemepin an individual who exemplifies of Hennepin County to ensure County was founded in 1946 the vision ofthe founderswho the mission of securing for all by a small group of parents dreamed of a community in people with developmental and volunteers. This group which all people with devel- disabilities the opportunity to served as the nucleus to a ~pqggtal~disabilities would choose and realize their goals grassroots movement that ~ gi se fully included and pfoy,g@&&e and how they learn, bread acrossthe U.S. and es-

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Public Radio station KNOWFM in the Twin Cities welcomesformerNationalPublic Radio (NPR) correspondent JohnHockenbenytotheTwin Cities on Thursday, July 13 for a free public lecture at the Macalester College Chapel in St. Paul. The lecture will be recorded and broadcast on KNOW'S Midday program at noon on Friday, July 14 (rebroadcast at 9 p.m.).

Hockenbeny will discuss his new memoir, Moving Violations; War Zones, Wheelchairs, and Declarations of Independence. A political analyst, journalist, and advocate for the rights of people with disabilities, Hockenbeny

is currently a correspondent plegic since the age of nin for ABC-TV, most recently teen, when a car in which he with thenewsmagazine show wasridingwithatiiendcrashed Day One. BeforejoiningABC- on a rural road in PennsylvaTV, he spent 12 years as a nia. Moving Violations is a general assignment reporter, vivid account of Middle East correspondent, Hockenbeny's extraordinary and host of a number of NPR life and award-winning work programs, most recently Talk as a journalist -and it is also oftheNation. DuringthePer- . a meditation on the consesian Gulf crisis in 1990-199 1, quences of being different he was assigned to the Middle which resonates farbeyondthe East, where he was one of the individualexperienceofa man first Western broadcast jour- in a wheelchair. nalists to file from the Kurdish refugee camps. He spent two Moving Violatr*ons will be years (1988- 1990) based in available forpurchase at a book Jerusalem during the recent signing to follow Hocken-berintensive conflict ofthe Pales- ry's lecture. This event is cotinian uprising. sponsored by Minnesota Public Radioandthe Hungry Mind Hockenbeny has been a para- Bookstore.

I COMMUNITY INCLUSION AFTER BRAIN 1 AINJURY CONFERENCE OFFERED conference on community inclusion afterbrain injury will be held on Friday, August 18 at the Holiday Inn Minneapolis West in St. Louis Park, Minnesota for social workers, public health nurses, teachers, qualified rehabilitation counselors,case managers, and others who work with clientswith traumatic brain injury in the-- -

viduals find value and meaning in a confusing new world, The all-day conference, spon- and how to help people with sored by Courage Center, ad- brain injury and the communidresses a paradigm shift to in- ty come together. terdependence and moves beyond the theory to the realities For more information, contact of how integration can hap- Ann Roscoe, Courage Center, pen, how to better understand (6 12)520-02 10. ~egistrations the world ofthe person with a are needed by July 28. brain injury, how to help indicommunity.

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social and ~hysicaliarriers. committees, includha; --strate- tiod's largest volunteer orgagic planning, policy and pro- nization devoted to improving gram advisory task forces of the livesofchildren and adults President of People First - the National Convention, and with developmental disabiliCentral, which is an organin- has recently signed onto Arc ties and their families tion of and for people with of ~ e n n e p i n developmental disabilities to County's 50th learn self-advocacy and em- Anniversary powerment skills. As Presi- efforts. 'dent, John has had the opportunity to become involved in a Darlys has variety of activities including brought an implanningthe People First Mid- portant balance western Conference in of compassion Lacrosse, Wisconsin and the and insight as a 1995 Metro Self-Advocacy parent of a - Conferencecomingup this fall. daughter with developmental John has also expressed him- disabilitiesand selfthrough performingin skits a strong sense focusing on self-advocacy to of ethical busit Hennepin County Social ness savvy.

Workers and atheatrical event She is able to D. about AIDS called Sa&Choic- debate hard is- Darlys Westlund and Mrryor Sayles-Belton es. John has also used the sues and think -

I Letters . . .. .

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Dear Charlie,

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In May when I learned of the passing of Michael Erhlichmann I was disappointed to find out that the local disability community lost another warrior. When no mention was made of this in the June issue of Access Press, I wassyen more disappointed.

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was Michael. I realize that Ed's contributions were on a grander scale than Michael's; however, the contributions made by Michael were very important. Many times Michael had to endure criticism for one reason or another. His contributions, all of which a lack of knowledge prohibits me from listing, had a great impact on our lives. The one example I can think of is his insistence of trip assurance before it was a legal requirement.

I

parts of his career. That is no reasontonotrememberagreat man for what he did for all of us. In a recent issue you credit Mike for his efforts. Couldn't you find room amongthe hoopla ofthe fifth anniversary issue to remember the accomplishments of a great man? Billy Golfus referred the passing of Ed Roberts as the loss of a warrior. Wasn't Michael Erhlichmann an important local warrior?

A t!ouple of months ago you published an article that Billy Golfus wrote about Ed Rob. ertswhen hepassedaway. Yes, Sincerely, Ed Roberts was a man Lisa ~ a r o n who did many great things for I realize he was the center of the disability community. So many negative rumors during

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THE TRUTH IS THAT NO CITY has been forced, no city could be forced, to spend anything near one-third of its budget on the ADA. How many S E N A ~ DOLE, R THE ADA cities have actually spent as IS A WELL-CONCEIVED much as two percent of their LAW. You helped to write it. budgets on the ADA? It has not caused any of the problems that opponents pre- THE TRUTH IS THAT FOR dicted. It has made a good 22 YEARS cities have been start toward the achievement required by the Rehabilitation of its long term goal: full par- Act of 1973 to effect most of ticipation in free enterprise the accessibility mandated by democracy by 49 million the ADA. It is the cities that Americans with disabilities. have not complied with the There is one major problem. 1973 law that are complaining The original opponents of the about "abrupt" expenses.

ADA have launched a massive, vicious campaign ofmis- BUT YES, SENATOR, information, fear and fallacy. THERE IS AN ECONOMIC AND MORAL HORROR FALLACY: ADA COSTS STORY. Obsolete discrimiTOO MUCH. Businesses, cit- natory attitudes and environies, countieswill be bankrupt- ments condemn 69% of worked. ADA is one of the man- ing-age Americans with disdates that will take "up to one abilities to unemployment. third of city budgets."

Millions are forced to depend on public or private welfare, THE TRUTH: THE ADA incarceratedin institutionsand HAS CAUSED NO BANK- the back rooms of ghettos.

RUPTCIES, no serious President Bush estimated that economic problems. Not one. this costs our nation almost It never will. Because the Act $200 billion cash every year. specifically states that no pub- Who pays? Whosuffers? Who lic entity or business can be else? Every American busiforced to do anything that will ness, city, county, tax payer result in an undue financial and family, present and future. burden. It states that, when necessary, alternative servic- THE REAL QUESTION is es can be delivered to citizens not "How much will ADA with disabilities in ways that cost?". It is "How much will are equitable and cost-effec- ADA save?". The real questive. Those are good, common tion for today's Americans sense, free enterprise provi- with and without disabilities is, will we as a nation have the sions. character to overcome preju;

porter in government is quoted as saying "maybe we've gonetoo far," maybe we ought to "retool" the ADA.

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dice,paternalism,and economic self-indulgence and to invest in free enterprise for all?

SENATOR DOLE, it is diffi- cult for us to believe that you would intentionally do anythingthat wouldgive the slightest support to limitations on our ADA rights, our citizenship and our humanity. But surely your statement to the Mayor's Conference could be understood and quoted by the opponents ofthe ADA as supportingallegationsand actions which we know you do not support. We hope and trust that future statements by you will clarify any doubts that might have been raised. The coming fifth anniversary celebration of the signing of the ADA will give ample opportunity for such statements. -.

SENATOR DOLE, we who have disabilities thank you for youi support over the years.

Weneed your leadershipmore than ever. We will cooperate 100% to achieve harmonious cost-effective implementation ofthe ADA. But we will fight with all of our strength any change that weakens our rights as American citizens. *.

Senator Bob Dole , Hart Senate Office Building, Room 141 Washington, D.C. 205 10 2021224-652 1 Voice 2021224-8952 FAX 9 131295-2745Topeka 9131371-6108 Kansas City 3 16/263-4956 Wichita L

Trainiq Programs @