May 1999 Edition - Access Press by Access Press

Inside  Supreme Court Hears Olmstead

— p. 8

Volume 10, Number 5

Video Review — Page 3

SOURCES

May 10, 1999

“Nothing about me without me.” — Disability Rights Slogan

RESOURCES

May 10, 1999

POLICY MAKERS C o n f e re n c e C o m m i t t e e C h a i r s I n t e r v i e w e d by Charlie Smith, Editor

very legislative session, the conference committee process dictates the final outcome of many of the bills that have passed the House and Senate. Both the Health and Human Service Omnibus bills contain very expensive and important disability initiatives. We interviewed Representative Kevin Goodno (R), Chair of the House Health and Human Services Committee and Senator Don Samuelson (D), Chair of the Senate Health and Family Security Committee. These men are in very powerful positions; they control the conference committees, which determine what gets funded and what doesn’t. The following is a summary of their responses to questions posed to them by ACCESS PRESS. It may shed some light on what the Chairs are thinking going into the negotiations. Could you talk about why you wanted to serve on the Health and Human Services Committee?

Then, it was health, human services, corrections and economic development.

What is the hardest decision you’ve made this year due to limited resources?

Rep. Kevin Goodno (R), Moorhead

Samuelson: There were a lot of hard ones—we had 150 funding bills in our committee. It’s always hard to put together a bill that’s broad based enough to satisfy members. Once we decided that the COLA would be the most important issue, the rest would just have to fill in the blanks. You have to go in and make some reductions in other areas that you didn’t want to make, in the base — in programs funded in the past— and so those are always tough decisions.

Goodno: I have been involved in welfare reform since elected. Two years ago in 1996 when the federal government made the change in the welfare laws, we had the opportunity to change our welfare system. I asked to be moved onto Human Services at that time to work specifically on welfare reform. After making the shift from the Tax Committee to the Health and Human Services Committee, I gained a greater interest in the other areas, too.

Goodno: Just trying to do the whole list of priorities that we had and one of them is the COLA increase. We wish we could have spent more money in that area, but that was balanced off by looking at the waiver programs, which we would have liked to fund at a higher level. We’re looking at 250 new slots per year; and the senior drug program—we made sure we extended that to the disabled population as well. That took a lot of money.

What do you see as the most important bill you have carried this session?

What do you see as the biggest differences between the House and Senate versions of the omnibus bill?

Samuelson: The COLA [cost of living adjustment] bill to enhance health care workers’ decent wage. It’s a cornerstone of the bill this year, calling for $100 million in additional funding.

Sen. Don Samuelson (DFL), Brainerd

Samuelson: I was actually assigned to chair the appropriations committee by thenSpeaker Sabo. At the time, in 1972, I was the most junior Representative and no one else wanted it; HHS was left.

Goodno: The work incentive bill, HF 670, which is the bill to provide health care benefits for people with disabilities. It was just a bill that the more I found out about it the better the bill was. And it really did fall into the philosophy that the governor’s been pushing; when the bill passed on the House floor there were no ‘no’ votes at all.

Samuelson: The House spent more money; that’s the biggest difference. And also the COLA; we’re about $30 million higher in the COLA than they are. They also funded the DD [developmental disabilities] waiver and have the money to do it. Once we get to conference committee a target will be established. Hopefully we’ll get a little more money and we’ll be able to “conference” these things out. It could be the House target, the Senate target or something in between. It’s all based upon

Dr. Carol Gill, keynote speaker at the Disability Culture Conference, April 30 - May 1. See article p.5

what happens with taxes. The more money we give back in the form of tax returns the less we have to spend. As fas as prescription drugs—they [the House] did the disabled, we didn’t have enough.

ployees and pca’s are having a struggle. People are not getting personal care attendants, the whole health care industry is having a struggle, that’s where I think we need to provide the most assistance this year.

Goodno: We have political differences on the abortion language and the [tobacco] endowment. Those will be worked out somehow, some way. But if you take out those two issues, the political issues, and look at the “meat and potatoes” of the bill, I’d say the big difference is the targeting for people with developmental disabilities—the waiting list, consumer support grants and the SILS program. The biggest dollar amount there is the waivered slots.

Goodno: I don’t want to say that yet because I need to negotiate that. If I gave them a road map of where I’m going that wouldn’t help me. I’ll have to say that our priorities will stay the same. We set out and told the leadership our priorities would be COLA, the waivered slots and senior prescription program. We want to stick with those priorities and each one of them is very expensive. It’s not easy.

What will be your highest priority during conference committee negotiations? Samuelson COLA. It was last year and it is again this year. Nursing homes are losing em-

I’ve known a number of people with disabilities over the years and families with children with disabilities, and what people have to go through in those situations is incredible to me. So the influence isn’t coming from me, it’s coming from the

people out there who are dealing with this day to day and overcoming obstacles and moving forward and I just want to make it easier for them to move forward. The work incentives bill is about people having a future. The testimony on this bill was compelling. A woman who had graduated from Concordia College in the early 90’s and then an accident happened. She wanted to go back and teach and she found out she couldn’t afford to teach. That’s pretty devastating. Most people tie themselves to the occupation they choose. If you deny a person that opportunity, you really inhibit their sense of being and their identity. Goodno was also asked: Could you explain for our readers how the conference committee process works?

Interview - cont. on p. 9

May 10, 1999

programs people with disabilities relay on to stay as independent as possible. I found it interesting, the funding difference between the house and senate HHS committees. The house committee, lead by Republican Goodnu was able to secure 49 million more for his committee. This is a bit of an aberration. Rep. Kevin Goodnu has been a real advocate for people with disabilities this felt it was important for vices (HHS) committees (see session. We owe him debt of you to hear from the chairs page 1). These men have con- gratitude. of the Health and Human Ser- trol over the funding of many

Charlie Smith Editor

As the 1999 legislative session comes to a close I believe the leaderships of the House and Senate, and the Governor should be ashamed of themselves. Our State had over three billion dollars in surpluses, plus the “rainy day fund” Governor Carlson put into place during his administration. This idea they should “give it all back” in either rebates or tax relief has gotten out of hand. There are many programs which have proven to save the state money in the

Susan Hagel Honored by Sayre K. Darling

usan Hagel will receive the Ann Bancroft Award at the third annual gala event at the Marriott City Center Hotel, May 13, 1999. The award recognizes Hagel’s achievements over the past 25 years as a mentor, role model and advocate for the rights of women with disabilities. Arguably the most accomplished woman athlete in the history of disabled sports, Hagel has achieved world-class stature in both archery and basketball.

long run, yet they go under funded again this year. They had the opportunity to expand health care to the thousands of uninsured, provide better home care options, create a really good transit system in both metro and outstate, and basically improve the lives of the people who need help the most. But no, instead, whichever tax bill gets passed in the next two weeks, the rich get richer and the poor (or middle class) poorer. I guess it just proves again that the more you can

make in our society the louder your voice is heard. When will it change? **** The Culture Conference held last month was a great success. The term “culture” is a bit elusive, but I think those who attended the conference came away with a better understanding of what it means. Congratulations to all the organizers, you did a wonderful job.

Americans Support ADA 9 of 10 Familiar With ADA Express Support

barrier-free lives. As a therapeutic recreation specialist for Sister Kenny Institute, and through her involvement in athletic competition, she provides leadership to women with disabilities achieving equal opportunity.

In archery, Hagel won the Gold medal at the 1986 Pan-American Games and the Bronze at the 1987 World Wheelchair Archery Championships. She is the Minnesota State Archery Champion and has been the Since sustaining a spinal cord National Women’s Wheelchair injury at the age of 14, Hagel Archery Champion every year has worked tirelessly as an since 1973. advocate for the rights of people with disabilities to live Hagel was the second woman

MINNESOTA STATE COUNCIL ON DISABILITY  Coming Soon 

DISABILITY CENSUS 2000 MATERIALS and FOCUS GROUPS

For further information: 651-296-6785 V/TTY 1-800-945-8913 V/TTY Fax: 651-296-5935 E-mail: council.disability@state.mn.us th

121 E. 7 Place St. Paul, MN 55101

in 51 years to be inducted into the National Wheelchair Basketball Association (NWBA) Hall of Fame. She received the honor during the 25th National Women’s Wheelchair Basketball Tournament (NWWBT) Awards Banquet in Springfield, Massachusetts in March.

• Clearly nine out of ten (87%) of those adults who are aware of the ADA support and approve of the Americans with Disabilities Act.

85% agree that employers with more than 15 workers should make reasonable accommodations for employees with disabilities.

Hagel’s great strengths are as both a player and leader. In 1974, she participated in the first game between two organized women’s teams and has played in 24 of 25 NWWBTs, the longest stretch of any active woman player. She is the captain of the Minnesota Rolling Timberwolves and has captained four USA Women’s Wheelchair Basketball teams at the world wheelchair basketball championships, which have won the highest honors in wheelchair sports in the world. She has also been a member of numerous international teams and last year was awarded the International Wheelchair Basketball Federation’s Triad Award— the first woman to receive this honor.

• A full two-thirds, or 67% of all adult Americans have read or heard about the Americans with Disabilities Act, which helps, supports and The findings may be especially protects people with disabilitimely in light of this month’s ties. oral arguments before the U.S. Supreme Court in the Olmstead • Three-quarters of all adults case. This lower court deci(75%) think that the benefits sion from Georgia will test key to people with disabilities are provisions of the Americans worth the additional costs to with Disabilities Act and its governments and busiimplications for state and nesses. local governments. (Former U.S. Attorney General Dick On specific areas of discrimiThornburgh has submitted an nation, the support for ADA amicus brief in the Olmstead protection was overwhelming: case on behalf of the National Organization on Disability.) More than eight out of ten adults (83%) feel that creating Alan Reich, President of N.O.D., opportunities for those with said, “This survey knocks on disabilities will decrease welthe head any suggestion that fare rolls and increase employAmerica’s commitment to end- ment opportunities; while only ing discrimination against 1 in 8 (12%) feel it will be very people with disabilities is flag- expensive and not worth the ging. On the contrary, we see cost for employers to hire more new evidence that fundamen- people with disabilities. tal fairness, which is the essence of the ADA, remains a 94% of the total sample believe

91% want to see public transportation made accessible to disabled people.

Hagel has received numerous other awards for athletic excellence. Her vision is of a future free of architectural and attitudinal barriers, in which people with disabilities fully participate. She strives, in both her professional and athletic accomplishments, to provide the kind of leadership that enables others to realize their full potential. 

new Harris poll released on April 15, 1999 reveals strong and sustained public endorsement of national civil rights protections for Americans with disabilities. Louis Harris & Associates surveyed 1,008 U.S. adults about their attitudes and perceptions of the landmark Americans with Disabilities Act (ADA). The Harris survey was conducted for the National Organization on Disability (N.O.D.).

cornerstone American value.” employers should not discriminate against any qualified job candidate with a disability. Highlights include:

95% agree that public places such as hotels, restaurants, theaters, stores and museums, must not discriminate against visitors with disabilities. And finally, 86% state that government must offer home care services that allow more people with disabilities to live at home instead of in nursing homes. The National Organization on Disability, founded in 1982, is the only national network organization concerned with all disabilities, all age groups and all disability issues. For more information, please contact N.O.D. at (202) 293-5960, TDD (202) 293-5968 or visit the World Wide Web at http://  www.nod.org 

Martha Hage’s

RADIO SHOW Disabled & Proud, It’s Not An Oxymoron May 11: Sandy Carlson and Jim Williams, Help Yourself, Inc. and the Kid Talk Program

ACCESS PRESS Co-Founder/Publisher (1990-1996) ................................................................... Wm. A. Smith, Jr. Editor/Publisher/Co-Founder ............................................................................. Charles F. Smith Cartoonist ..................................................................................................................... Scott Adams Production .......................................................................... Presentation Images, Ellen Houghton Editorial Assistant .............................................................................................. Donna McNamara ACCESS PRESS is a monthly tabloid newspaper published for persons with disabilities by Access Press, Ltd. Circulation is 10,000, distributed the 10th of each month through more than 180 locations statewide. Approximately 650 copies are mailed directly to political, business, institutional and civic leaders. Subscriptions are available for $15/yr. Editorial submissions and news releases on topics of interest to persons with disabilities, or persons serving those with disabilities, are welcomed. Paid advertising is available at rates ranging from $14 to $18/column inch, depending on size and frequency. Classified ads are $8.00, plus 35 cents/word over 20 words. Advertising and editorial deadlines are the 30th of the month preceding publication; special scheduling available for camera-ready art. Access Press is available on tape. Call MN State Services for the Blind, 651-642-0500 or 800-652-9000. Inquiries should be directed to: ACCESS PRESS • 1821 University Ave. W. • Suite 185N • St. Paul, Minnesota 55104 • (651) 644-2133 • Fax (651) 644-2136

May 18: The Mental Health System vs the Criminal Justice System: The Family Dilemma May 25: Lolly Lijewski hosts with guests to be announced June 1: Mar and Steve, The Marriage Relationship After a Brain Injury KFAI  Every Tues.  7:30 p.m.  106.7 FM — St. Paul  90.3 FM — Mpls

SPECIALIZED TRANSPORTATION

612-529-5019 • 651-483-9143 MEDICAL ASSISTANCE PROVIDER

May 10, 1999

A Few Simple Words Premiers IN BRIEF . . . . by Donna McNamara

n Thursday, April 22, 1999, at the Minnesota History Center, Remembering With Dignity held the premier showing of the video A Few Simple Words. The video chronicles the struggle of people with disabilities for recognition of those who lived and died in Minnesota’s state institutions. Written and directed by Jerry Smith and narrated by Gloria Steinbring (both of Advocating Change Together), the video is a powerful reminder of the years of neglect and exploitation to which tens of thousands of people with disabilities in Minnesota have been subjected over the past 120 years. A Few Simple Words was produced to document the efforts of Remembering With Dignity, a coalition of disability groups whose goals include increasing public awareness of the historical role of institutions and the present day lives of people with disabilities. Remembering With Dignity grew out of the resolve of people with disabilities who discovered that people who lived and died in state institutions were buried in institution cemeteries marked only by the number they were given upon admission. In Kevin Levos’ words, “They were a number to the social workers who worked with them and... they’re still a number...they should at least be given their birth name.” The coalition has been successful in securing an appropriation from the Minnesota legislature to begin placing grave markers with names and dates of birth and death on all numbered grave sites at the institutions. They have also been collecting oral histories from people who lived in institutions as a way to keep their lives and experiences visible

to the general public and to people with disabilities living in the community. Steinbring explains it this way, “This is important to all of us because these are stories of our brothers and sisters who lived in state institutions. These are our stories.”

Pat Kessler, legislative reporter for WCCO-TV news, introduced the video by sharing a story from his family’s history. His great uncle (who family members now believe was Deaf) was misdiagnosed as mentally retarded and placed in Faribault State Hospital in

Free Support Group Offered Family Service of St. Paul of- group that meets on the 2nd another on issues related to fers a free support group twice a month - the Support Group for Adults with Learning and Attention Challenges is a free

and 4th Wednesdays of every month at Black Bear Crossing Cafe, 831 Como Ave., St. Paul. People meet to support one

living with a learning disability or attention deficit. For more information and to register, call Lory Perryman, 651-222-0311.

Art Submissions Sought Courage Center invites artists Courage Center. Each Cour- 888-413-3323 or 612-520-0211; to submit original works for the Courage Cards and Gifts Art Search. Works will be considered for the 2000 Courage Collection, and are sold to benefit the programs and services of

age Cards artist receives an honorarium in addition to national exposure. The entry deadline is Friday, July 30. For a copy of the Art Search guidelines and an application, call 1-

or write Courage Cards and Gifts, 3915 Golden Valley Road, Golden Valley, MN 55422; or email to artsearch@courage .org; or visit the worldwide web site: www.cour agecards.org

Wilderness Adventure Trips Wilderness Inquiry, a non- day kayaking trips to the arships are available to eligible profit organization that provides adventure travel for people of all ages and abilities, including people with disabilities, is offering several 3 and 5

Apostles Islands from June through September, 1999. Two Lake Nipigon canoe trips (northern Ontario) are also scheduled this summer. Schol-

participants. For more information, call 612-379-3858, 1800-728-0719 (voice or TTY). Or see the web page at www.wildernessinquiry.org

Swimming Championships T he second annual U.S. pionships will be held at the on June 11, 1999. Disabled Swimming Cham- University of Minnesota

Having secured some funds to begin restoring graves, the group’s highest priority at this time is getting the state legislature to issue a formal apology for this history of exploitation. Until now, the legislature has refused such an apology, citing fear of demands for compensation and a rash of requests for apologies from other groups mistreated during the state’s history. Members of Remembering with Dignity, however, are not looking for money. They want reconciliation, which they believe can only come through admission of wrongdoing and a commitment by the state to never again revert to policies like those that kept Minnesota’s institutions open for so long. Michael Eastin, a self-advocate featured in the video explains it this way, “If I say ‘I apologize,’ I take responsibility for what I did...and I’m ready to change. We need to have the state assume that responsibility.”

1918 at the age of 10. Four weeks later, he was dead, likely from a flu epidemic that spread through the institution that year. His is one of the 10,000 unmarked graves. Many families have similar stories that have been kept hidden as a result of advice from professionals to “forget” about family members in institutions; or due to shame, regret and feelings of hopelessness. Remembering With Dignity hopes to change those stories; to bring these lives and deaths into the public consciousness and into Minnesota history. Kessler observed, “This video is a celebration of the collective efforts of all advocates of the self-advocacy movement.”

Free Parent Workshop

The video includes powerful black and white photographs, most of them taken at Cambridge State Hospital by Luther Granquist, from the Minnesota Disability Law Center. The photos helped provide evidence for the class action lawsuit filed in 1973 which formed

Green Themes

Apology - cont. on p. 4

Parents of children with dis- when they don’t agree with a PACER Center for more inabilities can attend “Conflict Resolution Options Available to Parents,” a free workshop offered by PACER Center on Tuesday, May 18, 1999, from 9 a.m.-3 p.m. The workshop will cover what parents can do

school’s proposal for their child. Topics will include: effective communication strategies, the complaint process, mediation, conciliation, and due process hearings. Preregistration is required. Contact

formation or to register: (612) 827-2966 Voice; (612) 827-7770 TTY; (612) 8273065 FAX; 1-800-537-2237 toll-free.

Spring Programs In Minneapolis Parks May is a great time to visit the Tour requests should be made Tours, Mpls. Park and RecreLyndale Park Gardens. The rose garden, peace (rock) garden, and perennial-annual garden are a constantly changing bloom display to enjoy. If you want to add to your enjoyment, you can arrange for a guided tour for your group.

at least 2 weeks in advance, and should include the number in your group, a couple of optional dates and times for the tour, and any accommodations needed. Requests can be made in a variety of ways: by mail to Lyndale Park Garden

ation Board, 3800 Bryant Ave S, Minneapolis, MN 554091029; by phone to (612) 3704900; by fax to (612) 370-4831; or by email to mary.m.lerman@ ci.minneapolis.mn.us

Green Themes is a series of Flowers in the Landscape, tion, it offers a grand display of free garden and environmental talks offered at the downtown Minneapolis Public Library, 300 Nicollet Mall. Offered at 12:15 p.m. on Wednesdays in Room 310, these are the topics for May: May 12 Blooming Bedpartners, May 19 Fragrant

May 26 Container Garden- blooms throughout the season and a wonderful habitat ing. for migrating and nesting birds. The Eloise Butler Wildflower Programs are offered on weekGarden and Bird Sanctuary is ends, for which preregistranow open daily from 7:30 a.m. tions is required. Call (612) until dusk. The oldest public 370-4903 after 10 a.m. for more wildflower garden in the na- information.

May 10, 1999

Religion & Disability

On Mental Illness

Talking The Talk — Walking The Walk

To The Mental Health Professionals Of MN

by John Schatzlein

s we look at how we can serve our community or how we can make an impact on persons with functional limits, many faith communities and neighborhood residents ask the question, Where can I help? If you like to work outdoors with your hands; if you want to make a short time commitment; if you want to see a dramatic change in opportunities for an individual, their family or your community; you may want to Walk the Walk. Catholic Charities Office for Persons with disAbilities has received a grant from The St. Paul United Way to establish a volunteer based Extended Steps and Ramps Program. Our office will assist in the recruitment of volunteers for building ramps or steps and will coordinate with the Metropolitan Center for Independent Living and with Rehabilitation Services. Staff from the 3 agencies will evaluate individual needs, oversee drawing of plans, and coordinate building the ramps or steps. Individuals may also identify volunteers or family members to assist with construction. A paid

supervisor with construction will be turned down due to experience will oversee each color, race, creed or other sogroup of volunteer builders. ciological factors. Individuals are responsible for the cost of materials, although some grant funds to assist with material purchasing are available. Most projects can be completed for between $800$950, with ramps being somewhat more expensive than steps, on average. If there are difficult landscape situations, or other complications, costs could be higher. During the first eighteen months, we expect thirty-five to fifty older Americans or other individuals with mobility limitations will have their homes assessed and ramps or steps built. People may call Catholic Charities directly or be referred by programs serving older Americans, people with disabilities, and people from traditionally unserved or under served communities.

Ramps or steps create better opportunities for timely services in or out of the home. There will be greater ease in getting to clinics and other health programs. Transportation services (e.g. Metro Mobility and others) will be more available, as many of these services will not assist people getting into or out of homes with regular steps. Additionally, family, volunteers or other caregivers will have a safer environment in which to assist the individuals and will be more able to take folks out of their homes to faith communities and social/recreational activities.

by Pete Feigal

o the psychiatrists, psychologists, social workers, nurses, advocates, aids, technicians, all the professionals who serve those who suffer from mental illness/brain disorders: Thank you! The work you do is invaluable. Thank you for your professionalism and care, for your commitment and knowledge. Thank you for your increasing interest in bridging the chasm that exists between consumers, family members and yourselves. Thank you for starting to ask us what works and what doesn’t work in this most baffling of diseases. Thank you.

But as that great 20th century philosopher, “Pee Wee” Herman, once said, “Everybody’s got a big ‘But,’” and here’s mine. There are a few issues/concerns where we still need more cooperation:

If you, your Faith community, or neighborhood are interested in developing a volunteer building team, or if you know someone who could use a ramp or steps installed, please call John Schatzlein at Catholic A committee of individuals Charities at 651-215-2216 voice, We need you to be even more and providers of home ser- 612-664-8635 TTY, for more vocal, even more visible to help break the myths and lies of this vices will develop the criteria information.  disease. The issue of stigma is for grant eligibility. Criteria will still at the heart of why MI is so be based on need and no one terrible, so “politically incorrect,” why, as I wrote a year ago, “the medical profession has allowed mental illness to Cont. from p. 3 lag behind all other illnesses in the beginning of Minnesota’s eral level right now,” she says. botomies; the isolation rooms; research, money, manpower deinstitutionalization efforts. “If we don’t keep fighting for the forced work; the unmarked and especially in attitude and Now, they serve as a chilling personal assistance services, graves; children institutional- perception.” We who have reminder of how so many of TEFRA, and so on, this is ized before age 5; overuse of this illness, whom society sees our friends and relatives spent where people will end up medications; the neglect; and as “crazy,” have no credibility. their entire lives. again.” the loneliness. We need you, as medical professionals, those who are most There is video footage of Throughout the video, people Some legislators discussed a respected for your knowledge people working with legisla- who themselves have lived in willingness to express “re- and wisdom, to lead us, to show tors and in this context Ann institutions, and whose friends gret” for the past, but people us the way, to tell the world Henry, also with the Disability and family members spent time with disabilities want more. A that this is a horrific, epidemic Law Center, reminds us of the there, speak about their experi- Few Simple Words is asking disease that strikes 25% of the need for people to continue to ences. They want us to remem- for just that . . . the state of families in America at any given be vigilant in the face of ever- ber what we may want to for- Minnesota saying “We’re time. That this, like any other changing threats to services get: the thousands of forced sorry.” Given our history, it sickness, has no judgment. and programs. “It’s important sterilizations; the routine use doesn’t seem like too much to Too often in the past, at any that this history is seen in light of physical restraints; the com- ask.  mental health fund or awareof what is going on at the fed- plete lack of privacy; the loness raiser, the people most conspicuous by their absence were the clergy and mental HOUSING AND PERSONAL CARE SERVICES health professionals. If tomorrow, all of the mental health

APOLOGY -

Accessible Space, Inc. (ASI) offers subsidized one and two bedroom apartments for individuals with physical disabilities. We have housing in the Twin Cities metropolitan area, St. Cloud, Brainerd, Grand Rapids, Hibbing, Austin, Marshall, Willmar, and Duluth.

For more information call (651) 645-7271 or (800) 466-7722. For services or housing call Leigh, for employment as a personal care attendant call Al or Kellie.

Accessible Space, Inc.

times there is such a focus on our wounds that we forget that we must concentrate also on the positives, on what we love, on where we are not afraid, on simply re-awakening what is wise and true within us. A crucial ingredient to healing often comes from our spirituality, from rebuilding new dreams, to finding new meaning and purpose for our lives. Beyond cognitive therapy and antidepressants, there is a third element to recovery: reaffirming our intrinsic wholeness and value on this earth.

We need you to use the word “Faith,” or “Spirituality.” Only recently in my own 30 year struggle did any professional even say these words, or suggest that a faith provider might be able to offer something in addition to counseling and medications. And I’m not talking about “church,” or any organized religion, but some-

If we are to change the antiquated attitudes about this most terrible of diseases, mental health professionals, grassroots volunteer organizations, consumers and family members must all work together. It can not change but by this. It will not change but by this. 

We need to work as a team. We have the same frustrations with the insurance companies, the courts, the media, the outof-date attitudes about this disease. With the current penny-wise and pound-foolish insurance coverage, that doles out treatment in a misery fashion, recovery is almost impossible. As I reported last year, in the words of one licensed psychologist, “...They come to us in flames, and we treat them for sunburn.” We are a silent army of millions who, if you would give us the sign, would flock to your banners and help change these systems. We can bring mental illness out of the mystery and dread it’s been shrouded in for centuries and into the possible light of the new century. We can take away the additional burden of shame that stops millions of suffering people from seeking the medical treatment they need. We can help people silence their “Inner Tyrants” that block them from realizing their dreams.

Joyce Vincent Earns Block Club Award

The apartments are fully wheelchair accessible and each building has a central laundry room, large community room, secured entry and an on-site caretaker. ASI also offers shared personal care services 24 hours a day, at most locations, for adults with a physical disability and/or traumatic brain injury who qualify for Medical Assistance.

professionals in Minnesota would take out a two-page ad in the Trib., and sign all their names to a message that said “WAKE UP, MINNESOTA! MENTAL ILLNESS IS A REAL DISEASE, AND REAL TREATMENT AND HOPE ARE AVAILABLE!” If tomorrow, the thousands of mental health professionals that have had MI personally touch them or their families would “come out of the closet,” would publicly reveal how this disease can strike anyone, you would set a precedent and hear a shout of hope go up across Minnesota and the entire nation, that would literally change the world almost overnight. We sometimes feel that the medical profession has never forgiven us for having a disease that has baffled, and subsequently shamed them since the Dark Ages. We need to feel that this is no longer the case. We need you to be more compassionate with us and our families. There is terrible fear that comes with MI, fear of what’s to come, fear of the unknown. We know that your time is very limited, we know that you need to keep a certain distance from us, keep healthy boundaries with us. But moments of compassion and concern are what can literally transform hell into heaven. A simple phone number of a support group, ideas for other resources within the community, places that we can arm ourselves with knowledge all can be invaluable in comforting our fears. A simple touch of kindness or understanding is truly unforgettable to us.

oyce Vincent was honored at the recent “Building Blocks” awards ceremony. Vincent is a member of the Boom Island Village Block Club in north Minneapolis, one of five block clubs recognized at the event. “It’s like a mini U.N. here,” says Vincent. “At our annual potluck we have cui-

sine from the many cultures of people living here.” She always hosts the annual “Welcome New Neighbors” event, as her home is wheelchair accessible.

an annual garage sale; neighborhood cleanup days; a variety of unique children’s activities, and two memorial gardens planted by neighbors to remember residents who have died;. They keep in touch with Some of the club’s other activi- a newsletter and neighborties include: regular meetings hood directory.  to discuss mutual concerns;

My friend who lives in the Twin Cities sent me a copy of this Access Press and I am so glad to have your paper. I feel like I am the only person in a wheelchair on the planet! Sincerely, The Odd One Dear Odd One, Being disabled is not odd! Did you know people with disabilities make up the largest minor-

ity group? We are in every country of the world and comprise individuals of all backgrounds, race, religion, ethnicity and status. However, due to our physical limitations and other people’s fear or shame of our different bodies, it is not uncommon that people with disabilities are forced to live more solitary lives than we want. Because of physical or architectural barriers we are kept isolated from each other and separated from the opportunities of the outside world. When this happens of course we feel alone and ostracized. One hundred years ago it was not uncommon to keep a disabled family member hidden in a back room or attic, or locked away in an institution. It was only in the 1970’s that children with disabilities were required by law to be educated. But, we are far from being able to say that people with disabilities are able to live the full lives we want, need or are entitled to. Even in large cities there is constant trouble with accessibility, housing, transportation and finding attendant services (as I’m sure you noticed reading Access Press!). I feel very fortunate that I live in a large city where it is not impossible for a person with a disability to ride the bus, hold a job, get married or live independently. Nevertheless, it feels like a constant struggle sometimes when I can’t find adequate attendant services, a ride where and when I need it, or a job; people with disabilities are tremendously unemployed (or underemployed).

As far as people treating you differently since you started using a wheelchair. I think you need to trust your own perceptions on this, because unless your family members decide they will take a spin around the neighborhood in your chair they really can’t know what it’s like or how people are viewing you. I had a friend once who wanted to see what it was like to be in a wheelchair for a day so I lent her my manual wheelchair — that sure brought her a lot of awakening! I think when you use a wheelchair it connects with others’ connotations of a “tragic situation” where wheelchairs equate with sick people in a hospital who should be pitied, helped or embarrassingly avoided. Another interesting thing I’ve noticed is that some people with disabilities (who can) choose to use a three-wheeler scooter (versus a wheelchair) just because they feel others treat them more normally when they are in the scooter! Figure that one out!? I’m so glad you found the Access Press. It’s really important you know you are not alone in the world even if it is only by reading a small newspaper. Maybe if there are others reading this who feel alone they will write in a note about their experience. — Nicole Question? Complaint? Comment? W r i t e to Nicole: % Access Press, 1821 University Ave. W, #185 N; St. Paul, MN 55104

Law Firm Receives Diversity Award

he Hennepin County Bar Association (HCBA) recently announced the law firm of Gray, Plant, Mooty, Mooty & Bennett as the 1999 recipient of its Diversity Award. Gray, Plant, Mooty, Mooty & Bennett was selected as the recipient of this year’s award because of the firm’s long-term commitment to diversity practices and their overall positive atmosphere regarding workplace diversity. Gray Plant Mooty has the highest percentage of women partners of any major Twin Cities law firm, and the firm has made steady progress in recruitment and hiring of minority lawyers. Seven percent of current employees, including attorneys and support staff, are people with disabilities. The firm has established a number of initiatives, including a First-Year Minority Intern Program, sponsorship of an inhouse elimination of bias

seminar, and a mentoring program. They were one of only 115 firms nationwide selected in the publication “America’s Greatest Places To Work With A Law Degree” in part because of its approach to diversity. Gray Plant Mooty is also one of the first major Twin Cities law firms to allow the formation of an employee networking group for gay, lesbian, bisexual and transgender employees. The firm’s recruitment efforts include advertising all open positions in a wide range of publications, working with 20+ organizations who assist with recruitment, and maintaining an internal recruitment program that encourages referrals from current employees. Individuals with disabilities have access to reasonable accommodations, including subsidized accessible transportation in situations where necessary.

May 10, 1999

Disability Culture

Hello Nicole: Dear Nicole, I live in rural Minnesota and have Becker Muscular Dystrophy. A couple years ago I started needing to use a wheelchair all the time and now I use a motorized chair whenever I go out of the house. I am 35 years old but I still live with my parents because they help me with my needs. My town is not very wheelchair accessible and since I need a motorized chair to get around, I don’t get out often. I have lived here my whole life and aside from the elderly people, I am the only person in a wheelchair I ever see! Before, when I could still walk, I didn’t feel as bad about myself. But since I started using this chair it seems like everyone acts like I’m a different person or a baby in a stroller. I really think they talk to me differently and look at me differently even though people knew I had Becker’s MD before I used a wheelchair because when I would walk I had a pronounced limp. My parents and brothers don’t think anyone is treating me different and that I am just self-conscious when I go out. I guess I’m writing you just because I don’t know any other disabled people to talk to!

ACCESS PRESS joins the Hennepin County Bar Association in recognizing Gray Plant Mooty’s commitment to a diverse workplace that includes people with disabilities in a wide range of job titles. 

Inside, Outside, And Beyond by Lolly Lijewski

his week nearly 100 consumers, professionals, and providers came together in St. Paul to learn about and share “disability culture.” Keynote speaker Dr. Carol Gill described how the concept of disability culture is formed through people with disabilities coming together, developing their own set of values and norms, and strengthening each other through sharing the disability experience. To some conference attendees, disability culture was a new concept, or was unclear, while others have worked and lived with the concept for many years. To some participants the concept may still seem unclear. That may be because the common dictionary definitions don’t quite fit, just like the people who are trying to grasp the concept don’t fit into society. But if one watched and listened carefully, the elements that make up “disability culture,” began to emerge. The room was set up with space for wheel chairs and scooters. The stage had ramps on either side, people carried around materials in braille and on disk and in print, and a sign language interpreter stood beside Dr. Gill as she spoke. Participants spoke of feeling different and being marginalized. They talked about how they tried to fit into a dominant culture that did not welcome them. They remembered how they tried to make themselves appear to be non disabled, “to pass.” They spoke about how many of them shunned others like them because opening up to other people with disabilities might mean they would have to face the reality that they were one of “them.”

The defining of disability culture and disability identity were theme that ran throughout the conference. Disability historian Dr. Paul Longmore spoke via video lecture about how people with disabilities have been defined throughout history. He said that people with disabilities have been defined by politicians, medical professionals, social service agencies and in the early part of this century, they fought to define themselves. He gave the example of the League Of The Physically Handicapped who wanted to work. During the 1930’s when the WPA projects were created they taught they had found their opportunity. However, they were confronted with the reality that the projects defined employability as those who were not disabled. They tried to appeal the decision but failed. Some trends emerged from the conference. First, that the disability community wants to have more opportunities to come together and discuss the things that are important to them. Second, they want to learn more about developing disability culture and a disability identity. Third, there is a clear need to do more work on understanding the place of allies within the disability community and to build a better understanding within people with disabilities about the effect of internalized oppression on people with disabilities. Finally, some disturbing trends became apparent. The back lash against the ADA is getting stronger. Those in

power, the politicians, the courts, the medical professionals and those who make health care a business are once again trying to define what constitutes disability. There are four cases which will legally redefine disability coming before the Supreme Court this session. There are two laws being proposed in California, one on physician assisted suicide and one which will establish a process for “futilitarian,” decision making under the purview of health care providers. That is; a committee will be established to decide when performing further procedures on a patient is futile. There will not be a process for the patient to appeal as the law is currently proposed. There is the ethicist who has been hired to head the ethics department at Princeton who openly says that if a family has the ability to have a “normal” child, and they have a disabled child, that disabled child should be killed and replaced by a “normal,” child. Two suggestions were proposed to further the development of disability culture and identity. First to create a mentorship program and second to bring together a disability studies reading group. If either of these ideas are of interest, please contact Lolly Lijewski at (651) 603-2022.



Lolly Lijewski is the Manager of the Advocacy Department at The Metropolitan Center For Independent Living (MCIL).

M.I.L.S. HOME HEALTH CARE SERVICE 24 HOUR ON CALL SERVICE __________________________________

Specializing in Full Home Care Service Personal Care Assistants Home Health Aides Homemakers Live-in Caretakers Skilled Nursing

Rehabilitative Services Physical / Occupational / Speech Therapies PCA Provider Organization Medicare Certified / Medical Assistance Waivered Services / Private

612-933-1126 ST. PAUL 651-641-1917

612-379-4027 2010 East Hennepin Avenue, Bldg. #5 Minneapolis, MN 55413

May 10, 1999

Lodges Offer Supportive Living L

ivingWorks Ventures (LivingWorks) is a new enterprise, founded in July 1998 as a collaboration between two Twin Cities rehabilitation agencies, Vinland Center and Tasks Unlimited. LivingWorks Ventures provides permanent, supported, sober housing and employment for chemically dependent adults with acquired cognitive disabilities such as brain injury, stroke, or learning disabilities. Houses are called “Living Works Lodges” and can accommodate up to eight residents, providing private bedrooms, communal areas for social interaction and meals, group governance, transportation, recreational activities, independent living skills development, and part time or full time supported employment. In its work in the rehabilitation field since 1976, Vinland Center - a provider of chemical dependency treatment, vocational rehabilitation, and community integration services for people with disabilities - has become acutely aware of the housing needs of chemically dependent people with cognitive disabilities. Of the 93 persons with cognitive disabilities who received chemical dependency treatment at Vinland between July 1, 1996 and June 30, 1997, only 18% had stable, intact living situations to return to after treatment, while fully one third met the official HUD definition of “homeless.” Traditional community reintegration efforts are often ineffective for people with cognitive disabilities, whose impairments can prevent problem recognition and behavior change. The result, all too often, is homelessness - exac-

by Jeff Nygaard

erbated by unemployment, taught what is expected, nor social isolation, a return to iven Governor Jesse given the tools to achieve, the chemical abuse and, in many Ventura’s inexperience, logical consequence is that the cases, criminal activity. and his self-declared ignoindividual will fail. rance of the workings of govTo help chemically dependent The Fairweather Lodge phi- ernment at the state level, it people with cognitive disabililosophy, therefore, holds that seems more important than ever ties realize their genuine popeople must have living skills, to be aware of the identity and tential to become productive, a job, and the support of family philosophy of the people surcontributing members of socior friends in order to become rounding this Governor. With ety, LivingWorks provides contributing members of soci- this in mind, ACCESS PRESS sober, community-based housety and to cope with the followed the Governor to an ing with supportive services stresses of everyday life. The April 13th seminar held at the that facilitates: sustained somodel addresses each of these Radisson Hotel in downtown briety (including a network of aspects of community living Minneapolis entitled, Liberty sober friends and access to an by teaching community living in the New Millennium. Goverarray of sober leisure activiskills, providing jobs and of- nor Ventura gave the keynote ties); employment; and the fering membership in a small address to the seminar, which ability to perform the routine cohesive group, not unlike a was hosted by a Washingtontasks of daily living. Day-tobased libertarian think tank family. day decisions are made by resicalled the CATO Institute. dents, with minimal (approxiThe model has been used primately 10 hours per week) asmarily to facilitate community- Readers of ACCESS PRESS sistance from a staff coordinabased living and employment should be aware that the CATO tor. for individuals with serious and Institute has been a vocal oppersistent mental illness. Tasks ponent of the Americans with The philosophy of Living Unlimited is the foremost pro- Disabilities Act (ADA) since Works owes much to the ponent of the Fairweather the beginning, producing com“Fairweather model of interdemodel in the United States. mentaries and articles over the pendent living,” developed LivingWorks is the first orga- years with titles such as “Moby Dr. George Fairweather in nization to apply the rality on the Cheap: The Amerithe 1960’s in a veteran’s hospiFairweather model specifically cans with Disabilities Act” tal in California. Fairweather to chemically dependent (1990), and Handicapping had worked for a number of people with cognitive disabili- Freedom: The Americans with years in veterans hospitals and Disabilities Act. (1996). ties. had observed how quickly and frequently people who were LivingWorks Lodges are an Rather than seeing the ADA discharged into community affordable alternative to effi- as a key civil-rights law, the 180 settings returned to the hospiciency apartments, rooming people who paid $50 a plate to tal. He developed methodolhouses, and halfway houses - attend the CATO seminar apogy which assisted people to and provide the support that parently see it simply as the create an environment in which many chemically dependent best evidence of the Zealotry, they would take mutual repeople with cognitive disabili- fanaticism, and contempt for sponsibility for each other’s ties need to stay sober and live the rights of the individual welfare. The environment and work productively in the [that] permeates the activities would focus on behavior rather of the government in Washcommunity. than illness; people are assisted ington, to use the words of to take increased responsibiliThe first LivingWorks Lodge, CATO President Ed Crane. ty for their own lives, to make a double bungalow which can “Best to get rid of the ADA decisions and to solve probaccommodate eight men, altogether.” lems. He proposed the idea opened in New Hope in Dethat if an individual is taught cember, 1998. Funds are being For CATO, the ADA is the the responsibilities to the sought to open an additional very symbol of unreasonable rights they may enjoy in socilodge in 1999 and others in the regulation on the part of the ety, they then have the knowlgovernment. At one point Jerry future.  edge and opportunity to sucTaylor, CATO’s Director of ceed. If an individual is never Natural Resource Studies, re-

New Positions At Courage Center

ourage Center recently of Disability and Consumer the organization with the fuannounced the creation Advocacy and Public Policy ture direction and leadership of two new positions, Director Research Director, to help align initiatives envisioned by recently-appointed Courage Executive Director Eric Stevens.

M.A.T.

Metropolitan Area Transit, Inc.

SPECIAL TRANSPORTATION PROVIDER “On Time Every Time or we will buy you lunch” call for details

(612) 379-4107 MA, U-CARE, MEDICA, PRIVATE PAY, PRIVATE INSURANCE **Standing Orders

Governor Addresses Anti-ADA Group

** Group Charters

Said Stevens, “Both of these positions will help Courage Center partner with the community to serve in a role far more extensive than that of a rehab agency. Designed to provide strategic leadership in promoting the areas of disability advocacy/public policy, research, consumer advocacy, cultural diversity, and development of disability leadership, awareness, and education, these positions will expand leadership opportunities

in his attacks on this landmark civil rights law. Throughout the day, the audience seemed to accept without question the claims that the ADA has been a major source of lawsuits, imposing excessive costs and administrative burdens on the country. Never were details or substantiation needed, nor called for. Why is the ADA such an important target for the Governor’s friends at the CATO Institute? Among other things, the CATO Institute has as its mission to promote public policy based on . . . limited government. That may not sound too threatening to people with disabilities, until you listen to what they mean by limited government. Individual freedom and liberty are the bedrock of CATO’s libertarian philosophy. According to Ed Crane, CATO’s President, there are two ways to organize a society. One way is to have decisions made voluntarily, by individuals and companies. The other way is to have decisions made coercively, by government. People with disabilities should be under no illusions as to what this means. If a company believes that their clients might be uncomfortable upon seeing a receptionist in a visible disability, then they should be free to not hire people with disabilities. Likewise, companies should not be coerced into making basic services accessible to all; let people fend for themselves. By extension, any majority judgement that discrimination is wrong, if put into law, is an unacceptable limit on individual freedom. Including the ADA.

ferred to the horrible monstros- In the Governor’s brief adity that the government has dress, he laid out his top three priorities, which are: 1. A unibecome under the ADA. cameral (one-house) legislaAnd Mr. Taylor was not alone ture; 2. Strict term limits on and leadership development for people with disabilities, both inside and outside of the organization.” Linda Wolford has been named the Director of Disability and Consumer Advocacy; John Tschida has been selected to serve as the Public Policy Research Director. Prior to joining Courage Center, Wolford was Director of the Diversity Institute for Student Development and Educational Training for the Office of Multicultural Affairs at the University of Minnesota. Tschida, a St. Paul native, returns to Minnesota from ‘ Washington, DC where he has served as Health Policy Re-

search Fellow for the National Rehabilitation Hospital-Research Center. Both Wolford and Tschida are Rose and Jay Phillips Award winners. Wolford has a long history of developing and teaching courses that improve the climate for both disability and diversity — experience that will provide significant contributions to the Courage Executive Council team. Tschida, a Georgetown University Health Policy Research Fellow, has been actively involved in public policy matters of pressing concern to the disability community including barriers to employment, per-

elected officials; and 3. Lower taxes and smaller government. Nothing new there. The question is, why did he decide to address a gathering sponsored by a national right-wing libertarian think tank? The Governor admitted that he knew absolutely nothing about CATO when he decided to make his keynote address, even making a joke about his ignorance. As he put it, Tim Penny told me to come, so here I am. It’s quite likely the Governor still knows nothing about his hosts. Who is Tim Penny? Judging by the comment above, and the fact that Mr. Penny stood at the Governor’s elbow during the question-and-answer period, telling the Governor who to call on and at times appearing to tell the Governor how to respond, he seems to be quite influential. A call to the Governor’s office revealed that Mr. Penny, who is a Senior Fellow of the CATO Institute and has been mentioned as a potential candidate for U.S. Senator from Minnesota, actually has no official position in the Governor’s office, but functions only as an informal advisor, according to a spokesperson in that office. Whatever the Governor’s intentions were in addressing the CATO gathering, his keynote address had the effect of raising money for, and raising the visibility of, this Washington-based libertarian group. Does this mean that the Governor agrees with their desire to weaken or repeal the ADA, and otherwise reduce the government’s role as guardian of the rights of its citizens? Clearly, some people who do think this way have the Governor’s ear. People with disabilities should make their voices heard in the Governor’s office as well. 

sonal assistance services, and Medicaid managed care. Tschida has presented research findings on Medicaid managed care before the American Public Health Association’s national conference in Washington, DC, and has developed and implemented many award-winning public information projects for the Minnesota Legislature including the design and implementation of the Legislature’s Internet service, a national model for public access and information for which he won the John R. Finnegan Freedom of Information Award.  

Consumer Advisory Committee he Hennepin County Demonstration Project for People with Disabilities (HC DPPD) planning group is looking for Medical Assistance (MA) consumers and their representatives to help create a better health care delivery management system. Community interns Julie Weigscheid and Bill Blom have been hosting a series of consumer forums to get the input of people who rely on Medical Assistance every day. So far, HC DPPD has talked to about 40 consumers, each with their own unique story to tell. Over the next month, the team will set up a Consumer Advisory Committee made up of selfadvocates, providers and representatives from disability groups.

at the Seward Square apartments in south Minneapolis. He has worked on a similar project in Olmstead County, and knows about the new managed care model.

The Work Incentives Assistance Center Project recently announced an important change in Social Security guidelines affecting people with disabilities who work. Effective July 1, 1999, Social Security’s Substantial Gainful Activity level will increase from $500 to $700 per month.

der any new system. People with disabilities often are more vulnerable than others, and Graham wants to make sure their needs are always at the top of the list. He is also

The increase in the Substantial Gainful Activity (SGA) level means: • After July 1, 1999, people with disabilities other than blindness who receive SSDI or RSDI can earn up to $700 a month before their SSDI/RSDI benefits are jeopardized. (This change in SGA does not affect

One of the goals of the new committee will be to act as a sounding board for some of the thinking about MA and managed Care in Hennepin County. One person, Bryant Graham, is bound to have some strong opinions. As a consumer, Graham is most worried about making sure Strong Self-advocate health care agencies, like docGraham recently helped to pro- tors and home health care commote the consumer forum held panies, stay accountable un-

concerned about coordination between social and medical aspects of care. “Too often, the social problems such as adequate, affordable housing and access to the community, are overlooked when deciding the care plan of a person who receives MA,” Graham said.

ASL Performances 5/13, Thur., 8:00 Summer and Smoke, Guthrie Theater, Minneapolis

* 5/14, Fri., 7:00 pm, Peace Train, SteppingStone Theatre, Weyerhaeuser Auditorium, Landmark Ctr., St. If you are interested in attend- Paul ing one of the upcoming focus groups or joining the Advi- * 5/15, Sat., 8:00 pm, A sory Committee, please call Bright Room Called Day, (612) 596-6758. HC DPPD staff Outward Spiral Theatre Co., will also come out to one of Hennepin Ctr. For the Arts’ your community meetings.  Little Theater Call 612 504-

those receiving only SSI.)

county financial worker and subsidized housing program • If you currently receive ben- staff prior to making a deciefits, you don’t need to take sion. any special action when the new SGA level takes effect July • Individuals who are applying 1st. However, you must con- for either SSI or SSDI must tinue to follow all other Social have earned income of less Security guidelines about earn- than $500 for the months prior ings and reporting income. to July 1, 1999 and less than $700 for months after July 1. • Remember: If you increase your earnings up to the new • People with disabilities who SGA limit, you also need to do not currently receive benconsider how that will affect efits, but who earn between other benefits you receive, $500 and $700 a month may such as Medical Assistance, become eligible for benefits Food Stamps and subsidized after July 1st. People who behousing. You may want to lieve they fall into this catdiscuss the consequences of egory should contact the SS increased earnings with your Admin. at 1-800-772-1213. 

2323 for tickets (Deaf callers * 6/6, Sun., 2:00 pm, Footloose, Orpheum Theatre, please use Relay) Minneapolis (call 612 373* 5/16, Sun., 2:00 pm, Jekyll 5650) & Hyde, Orpheum Theatre, Minneapolis (call 612 373- AD Performances 5650) * 5/21, Fri., 7:30 pm, Ar- 5/14, Fri., 8pm, Summer & senic & Old Lace, Nile Mile Smoke, Guthrie, MinneapoCreek Theater, Bloomington lis Art Center, (612) 948-8746 for tickets (Deaf callers will * 5/14, Fri., 7:00 pm, Peace Train, SteppingStone Theneed to use relay) atre, Weyerhaeuser Audi* 5/22, Sat., 8:00 pm, torium, Landmark Ctr., St. G o o d n i g h t D e s d e m o n a , Paul Park Square Theatre, St. Paul Arts - cont. on p. 12

Complete Mobility Systems

1915 West County Road C • Roseville, MN 55113 • 800-788-7479 • 651-635-0655

Complete Mobility Systems: • Is Committed to ‘Quality Accessibility’ for over 26 Years • Is the Major Mobility Builder in the Upper Midwest • Is Conveniently located in the Rosedale Shopping Center area • Has a Complete Selection of Co Accessible Vans — NEW mi vans arriving daily, as ng well as LATE So MODELUSED on ! VANS in stock Th lin e Sp veh e . F o r t L o V e icle r t h i f t P i e h w i run c l e h i c f i r s c k u p h w t ti nin L me is an g b ift i oar — l l t r u e v e e x c ly r, it d c is om m o “ t a k w h e i n g n ple u n t e t e l c h e w h tin e d g t u n em a a i r u a d d i t se io he de n aut r n e y w h r s c a n t o om a t h e r e n e B r .” a n oti ve t h e T joy un’ sty v e h h e U a n a s p r o lin i c l g o e , VL — c c e s s d u c t f t wit Un i b l e he h c o n m o der ver l d e d sio n.

as a nd h ft is a t ac ir Li mp er s co eelcha w R i v e i m h r nc ro atfo TM II W of C ion si l p t g rtat ter din duc -fol V a n g a a p r o r a n s p o i r t s is he M II' n t rT try. T r, and ive va e t a g n te d a p t Van i d e e Q u i e a The d a r d s a l l e r , e r i n d n m a a e s t er, S a l t Fas s t r i e s , u Ind 7 . 197

Web site: www.completemobility.com

Accessible Arts Performances

Bryant Graham

Graham requires a full-time personal care attendant, so has a keen understanding of how to work within the current feefor-service system. As one of the other participants at the forum said, “You think you all have difficulty jumping through the right hoops, I can’t even find the right hoops to jump through.”

May 10, 1999

SSDI/RSDI Limits Increased

by Mark Wilde

•

E-mail address: cms1@usinternet.com

May 10, 1999

Pushing Forward Or Pulling Back?

Letters To The Editor . . .

Supreme Court Hears L.C. vs Olmstead by Bud Rosenfield

upreme Court heard oral arguments in an Americans with Disabilities Act (ADA) case that addresses the extent to which states must provide services to persons with disabilities in the community rather than in institutions. The specific issue in the case of L.C. v. Olmstead is whether states and local governments are required to provide services in the “most integrated setting” appropriate for individuals with disabilities. Background of the L.C. case The L.C. case was brought by two residents of a Georgia psychiatric hospital who had been diagnosed with both mental illness and developmental disabilities. The residents claimed that the state violated the ADA by segregating them in a psychiatric hospital rather than providing services through an existing, community-based program. The residents won at both the district court level and on appeal. The specific legal basis for the lower courts’ rulings in L.C. is a federal regulation that has come to be known as the “integration mandate.” This regulation was promulgated by the Department of Justice (DOJ) to implement the antidiscrimination provisions of the Americans with Disabilities Act in the provision of public services. Specifically, the DOJ’s regulation states: A public entity shall administer services, programs, and activities in the most integrated setting appropriate to the needs of qualified individuals with disabilities. (The regulation can be found at Title 28, Code of Federal Regulations, section 35.130 (d)). The “integration mandate” thus effectively requires all levels of government to provide services in the most community-oriented setting pos-

sible, consistent with the actual needs of qualified individuals.

The Supreme Court’s involvement: Cause for Concern

The limits of the “integration mandate”

Most courts reviewing the integration mandate have held both that it is valid and that it does require services to be provided in the most integrated setting possible, where appropriate. Nevertheless, the state of Georgia sought a definitive ruling by the United States Supreme Court. The Supreme Court agreed to review the case, raising flags for disability rights organizations that the Court might wish to reverse or otherwise limit the decision in the case. Numerous individuals and organizations, as well as the Justice Department itself, joined in filing legal briefs asking the Court to affirm the lower courts’ decision.

The DOJ’s regulation — like the ADA itself — does not require the provision of any particular service. When states provide public services, they must do so in nondiscriminatory ways, but the obligation to provide the service in the first place must arise under some other local, state, or federal law. Moreover, the requirement that services be provided in the “most integrated setting” is limited to those instances where it can be demonstrated that the integrated setting is “appropriate” to the needs of the qualified individual. Thus, the mandate neither absolutely prohibits placement or treatment in an institutional setting, nor requires deinstitutionalization of all individuals. Importance of the “integration mandate” The potential scope of the DOJ’s regulation is enormous. To date, advocacy efforts have successfully used this regulation in the courts to require that human services be provided through communitybased programs rather than in institutions such as psychiatric hospitals and nursing homes. The Department of Justice itself interprets this regulation to require community placement when the state’s own treating professionals recommend such placement. Future efforts may seek to expand the reach of this regulation to prevent unnecessary institutionalization in the first place and even to require that service plans be developed for people residing at home who are not being integrated into their community as fully as possible.

Home Care Services Available 24 hours per day Specializing in the care of Children • Adults • Elderly We provide Personal Care Assistants • Home Health Aides • Homemakers • Live-in Caregivers • Nursing Our Rehabilitative Services include: Physical/ Occupational/Speech/Respiratory Therapies PCA Provider Organization MA/Waiver/Medicare Certified

612-544-0315 or 1-800-231-0315

The oral argument did little to clarify the direction the Court might take in its decision. The Justices seemed divided by competing concerns that persons needing institutionallevel care might simply be abandoned while others will be unfairly served in overly restrictive settings. Some Justices expressed concern that the case could be read to require community-based services when none otherwise exist and that the expense of such a requirement would be excessive.

Dear Editor:

11% of Social Security recipients are disabled and for them I believe the system is adversarial. In spite of personal doctor’s statements and supporting records, there follows a lengthy period of filling out forms and being required to see independent medical doctors who have never seen them before, will never treat them, and will never see them again. I would like to see independent medical examinations be eliminated.

Each month since January I have reviewed your legislative update. I am always amazed and saddened that while Metro Mobility is always covered, nary a word is said about what is happening to make main line public transit more user friendly for persons with disabilities.

If a disabled person is accepted by the Social Security Administration (SSA), the SSA will determine a date for when they think the disability began, which may differ from what the personal doctor says. For five months following that date, no monthly check is issued to the recipient, nor will there ever be checks issued retroactively for that five-month period. I would like to see monthly checks issued for every month following the date of eligibility.

Disabled people do not qualify for Medicare until 24 months after they start receiving their first check (which is really 29 months later because of the five-month no-payment period). This ruling only serves to impoverish the disabled with medical premiums and medical bills. I would like to see the disabled qualify for Medicare on their date of eligibility rather than having to wait for Looking Ahead: Continuing 29 months. Efforts to Advance CommuOnce the Medicare waiting nity-based Services period is up, the disabled The Supreme Court’s decision qualify automatically for Mediin L.C. should be issued no care Part A, but if Medicare later than June. In the interim, Part B is chosen by the recipiefforts to gain services in the ent, a monthly premium is remost integrated, community- quired. I think the disabled based setting should continue. should get an automatic inAdvocates and self-advocates crease in their monthly check should persist in efforts to to offset this reduction that educate local service provid- comes two years after they have ers and policy makers about been in the program. the benefits of the integration mandate — such as increased In Medicare Part B, 80% of independence and actual cost allowable outpatient medical savings — and the benefits for services are covered for physiall to be gained from an empha- cal illnesses, but only 50% are sis on community-based ser- covered for mental health. I vices. Ultimately, even if the would like to see services for Supreme Court decides to limit mental health covered at 80% the scope of the ADA, there as well. will be opportunities to argue that Minnesota state law re- If you agree that these changes quires community-based ser- are necessary for disabled vices wherever appropriate.  people who become part of the Social Security system, please Bud Rosenfield is a staff at- send a copy of this letter and/ torney at the Minnesota or write to Senator John Breaux, Chairman; National Bipartisan Disability Law Center. Commission on the Future of Medicare; U.S. Congress; 516 Please patronize your Hart Senate Office Building; Washington, D.C. 20515-1803. Access Press

Advertisers. They bring you your paper.

A month or so ago I received a complimentary copy of Mouth, a national magazine by, for, and about persons with disabilities’ It was full of articles about the importance of inclusion of persons with disabilities in our American culture. In Access Press there are many articles about “disability culture” but little or nothing about inclusion of persons with disabilities in the broader community.

consumer board of directors. Last year’s attempt to buy a building in another part of the city was questionable at best and would have unjustifiably diverted and strained MCIL’s resources. MCIL became less responsive to its consumer base, being concerned more with quantities of contacts for its quarterly reports than with actual service to people with disabilities. While I was there, Mr. Hancox did not hide his own condescension toward people with disabilities or his potential conflicts of interest with private contacts. In dealing with both consumers and staff, he often ignored many of the organization’s own internal rules. He maintained an adversary and hostile atmosphere for many employees and consumers in which alreadydifficult jobs became even more difficult to perform. (Even so, some employees made valiant efforts to serve the community despite the internal tension.) Finally, from the viewpoint of people with disabilities, the personal animosity and management methods often undermined the value of MCIL as a community Independent Living Center.

I am concerned and saddened about the apparent need of our local disability leadership to keep themselves separate from the broader community. Most other minority groups know that the “separate but equal” concept does not work. Thank God that the national disability community continues to work for inclusion of persons with disabilities ‘in the broader com- Why am I bringing all this up now? As a person with a dismunity. ability and a worker in the comOtherwise I might still be stuck munity, I want access to a good with only one transportation Independent Living Center. It selection: the undependable, has repeatedly come to my attotally separate Metro Immo- tention that David Hancox has made disparaging remarks bility. about me since he terminated my employment with MCIL in Audrey Benson, Mpls November; and in MCIL’s last  newsletter, he took credit for my related work, even though Dear Editor: it wasn’t continuing, and even though he had dealt with it By law, an Independent Liv- unethically. ing Center is intended to serve the needs of consumers in the Because I strongly support the disability community, who in philosophy of Independent turn are supposed to operate it Living, I had intended not to for that community’s benefit. compound an already bad Since becoming executive di- situation; but apparently Mr. rector of the Metropolitan Hancox has been unable to Center for Independent Liv- restrain himself profesing two years ago (in a move sionally and ethically, and so that was itself questionable), I reluctantly feel that I must David Hancox has applied com- speak up. I want primarily to mercial corporate-management set the record straight and draw techniques, shifting the orga- the community’s attention to nization to more of a bottom- the deplorable operation of line business and less of a its own Independent Living community-services center, Center. and attempted to reduce the management authority of the Ken Moses, Stillwater

Computerized Desktop publishing: Brochures Catalogs Direct Mailings Flyers Newsletters Newspapers Project Mgmt Naomi Lifejoy, Inver Grove Resumes Heights Scanning ... & more! 

Ellen Houghton

•

612-404-9981

Legislative Report H

ere we are, winding down another legislative session. As we go to press, there are only two weeks left in the 1999 session. Many bills affecting people with disabilities are waiting to be “conferenced”, that is, discussed by a joint committee of members of both houses to work out language and budgetary differences between bills. Our June issue will carry a legislative review, summarizing what passed and what didn’t. The following summaries were provided by disability groups working on these bills.

Common Vision This bill would provide funds to continue the leadership program developed by Advocating Change Together (ACT) that uses training, systems change organizing, technical assistance and resource materials to build leadership among people with disabilities and strengthen the self-advocacy movement across the state. Both the House and Senate have this bill in conference committee. The senate has yet to attach funding to it. Special Education

Waiting List Bill Funding has been requested to address the waiting list for services that children and adults with developmental disabilities are facing. The Waiting List bills have been incorporated into the House and Senate Health & Human Service Omnibus bills, S.F. 2225. The House bill would make available $16 million for Waivered Services, which would fund 250 new slots per year during the biennium. The House bill also includes $5 million for the Family Support Program and $4 million for Semi-Independent Living Services (SILS). The Senate bill only contains $3 million for the Family Support Program, which was the amount recommended in the Governor’s budget. The House bill more closely matches the request by Arc Minnesota for $30 million in new spending for the biennium to address the waiting list. Home Counseling Services The proposed legislation would fund pre- and post-purchase counseling services for persons with disabilities who wish to become homeowners. The bills are now part of the Jobs and Economic Development Omnibus bills in both the House and Senate, H.F. 2390. The House bill makes available $50,000 in funding each year of the biennium, while the Senate bill would allow $70,000 in funding during each year of the biennium. The Senate bill matches the original request of the HomeChoice Coalition.

On April 22, 1999, the MN Senate and House passed the special education “compromise” bill. This bill (SF 296) restored many of the provisions of state law and rule that exceeded federal requirements. We are pleased it passed so soon since all of those provisions would have sunset on July 1. It is important to note that this bill was passed separately and not included in the omnibus education bill — so it is not left open to change in conference committee.

The Senate passed its Omnibus Education Bill out of Committee on April 28, 1999. It contains less money for special education than the Governor’s budget, but does include more money for the per pupil funding formula. However, a part of the general education formula increase must be reserved at the local level for one of 3 purposes: class size reduction; all day kindergarten; or special education caseload reduction. Each school board would be required to pass a resolution picking one of the 3 options. It did not include the Senate version of HF 16. The bill will now move to the floor for a vote.

May 10, 1999 n INTERVIEW - Cont. from p. 1 It’s a matter of negotiation between the Senate and the House, and in the end you’re probably going to have some influence from the governor as well. There’ll be some elements of the bill that won’t be decided til the last days of the session; and there’ll be some things that are pretty common. For example, we agree on the COLA increase; we disagree on specifically how it should be targeted. We’ll have to see what kind of budget targets we get to work with. That will dictate a lot of what we’ll be able to fund. What we do is go through and look at [legislative] language that has no fiscal impact and agree [on that]. Then look at areas we

agree on as far as finances go, but I’m not sure it’s that simple. then we get to the things we How were you able to get the disagree on. large amount of money in your We in the disability commu- target budget? We explained nity have often felt in the past our priorities to the leaderthat we needed to convince ship— COLA, waivered slots the Republicans that our is- and senior prescription drugs sues should be funded. Now were the top three. They gave that you’re in control of this us part of it and said we’d have committee, you have a much to find the rest of it. So we higher budget than either the looked at the governor’s recSenate or the Governor. How ommendations and the base. We did do some cutting from did this happen? the base and from the I know Representative Brad- governor’s recommendations. ley [fellow Republican com- We cut some of the base of the mittee member] shares these bureaucracy, some of the emsame concerns, and working ployees in St. Paul, so money together we’ve set this up as could go directly to programs priorities for seniors and people for disabled and seniors.  with disabilities. I like to think I had something to do with it,

Metro Mobility

The Met Council has proposed $40.1 million to fund Metro Mobility for the next two years. The Governor has requested that amount to be trimmed to $38.6 million. The Senate has budgeted $38.6 million while the House only budgeted for $38.1 million. Metro Mobility needs $38 million just to keep service at a status quo level for the next two years. Budget differences will have to be worked out in conference comThe Senate has retreated from mittee. its idea to change the funding system for special education Prescription Drug Coverage and instead called for a study. The Minnesota Senior PreOn April 21, 1999, the MN scription Drug Program may House passed HF 16 with a be expanded to people with vote of 127-5. According to the disabilities under age 65 if the House summary of the bill, it House position was to pass would give school officials out of the Health and Human greater flexibility in managing Services Conference Commitclassroom disruption that in- tee. This would help people terferes with students’ ability who are on Medicare and canto learn by amending the not afford a supplementary grounds for dismissal or re- policy. The bills also eliminate moval under the Pupil Fair Dis- the $120 premium and instead missal Act. Advocates see replace it with a $35 monthly this as detrimental, as it gives deductible. This is more afmore discretion to individuals fordable for people with disand principals, instead of re- abilities living on fixed inquiring more consistent treat- comes. The Senate version ment of all students. (More does not include any funding detailed information will be of prescription drugs for people provided in the June issue.) with disabilities. A final bill will have to be worked out in On Monday, April 26, the conference committee. House passed the Omnibus Education Bill. The good news Medical Assistance Income about this bill is that it contains Standard an increase for special education. However, on the floor of This bill would increase by $27 the House, HF 16 was adopted per month (as allowed by fedinto it. The special education eral law) the amount of money provisions will be summarized a person could receive in SSDI in the June issue. and still be eligible for Medical Assistance (MA). Both House

File 669 (Goodno), and Senate File 542 (Berglin) are included in the respective omnibus bills. The differences between the bills will now be discussed in conference committee. Cost of Living Increases for Direct Care Workers This bill would increase the reimbursement rate to providers of direct care services, with the stipulation that providers give wage increases to nonadministrative (direct care) employees. HF 499 (Seifert), and

SF 112 (Samuelson) are in- ence committee. cluded in the respective omnibus bills. The differences beMinnesotaCare tween the bills will now be discussed in conference commit- These bills expand eligibility tee. for MinnesotaCare to single adults and households withMedical assistance out children. They also create reimbursement rates an exemption to the “no other inflation adjustment health coverage” requirement under the program for children Both SF 674 (Berglin) and in certain families. In the SenHF 789 (Goodno) have been ate, this bill is SF 511 (Lourey), included in the respective and in the House it’s HF920 omnibus bills. The differ- (Koskinen). ences between the bills will now be discussed in confer- Legislative - cont. on p.12 Handi Medical Supply 2505 University Avenue West St. Paul, Minnesota 55114 At Hwy. 280 & University Avenue

HANDI MEDICAL SUPPLY

(651) 644-9770

Visit Our Large, Fully-stocked showroom open to the public.

YOUR COMPLETE MEDICAL SUPPLYVENDOR • Wheelchairs/with complete • repair service • • Walkers/canes, crutches • • Bathroom safety aids • • Incontinent/Urological supplies

Commode & shower chairs Ostomy/and wound care Blood pressure equipment Diabetic supplies

GREAT SERVICE & PRICES We offer 24 hr. Emergency Service exclusively to our regular customers. Free UPS and deliveries to Mpls., St. Paul & Suburbs.

We bill M.A., Medicare, Blue Cross/Blue Shield, Medica and many other insurances

May 10, 1999

Sports Beat

State Titles In Floor Hockey Up For Grabs by Craig McClellan and Luke Pedersen

aple Grove and Humboldt-St. Paul were crowned state champions for victories at the 1999 State Adapted Floor Hockey Tournament, March 12-13 at Stillwater Area High School. Maple Grove beat White Bear Lake in the POHI (physical and other health impairments) Division, while Humboldt-St. Paul got the win against South Suburban in the MH (cognitive impairments or mental handicaps) Division. POHI Division Championship Round Quarterfinals opened with White Bear Lake’s 7-6 overtime victory against Rochester. Other opening round winners were Dakota United 4-1 over Mounds View/Irondale/Roseville; defending champion Brainerd 51 against Humboldt-St. Paul; and Maple Grove 11-2 over Hopkins/Robbinsdale/ Wayzata.

Irondale/Roseville 12-6, while Humboldt-St. Paul held off Hopkins/Robbinsdale/ Wayzata 5-3. Rochester battled Humboldt-St. Paul in the Consolation Final. Rochester won 4-3 on Paul Watson’s goal with 2:43 remaining to play. Teammate Ben Pehling led all scorers with three goals and an assist, while goaltender Scott Smith made 21 saves. Humboldt-St. Paul was led by Kou Thao’s two goals and Tou Vue’s goal and assist. Philip Thorman made 27 saves. Brainerd and Dakota United squared-off for Third Place. Brainerd’s Praska scored two goals and two assists to lead his team to a 6-1 victory. Goaltender Solseth grabbed 13 saves. Matt Schmidt scored Dakota United’s only goal. Haffner had nine saves. Maple Grove proved to be too much for White Bear Lake, winning the State Championship 8-2. Three players scored two goals each for Maple Grove. Andy Fornasiere had two goals and four assists, while Dehmer and Sakry each had two goals and three assists. Goaltender Wimmergren made eight saves. White Bear Lake’s two goals were scored by David Baldwin, while goaltender Loipersbeck had 14 saves.

White Bear Lake faced Dakota United in one of the Championship Semifinal games. White Bear Lake won 6-2 on the strength of John Loipersbeck’s goaltending. Loipersbeck made ten saves, while teammate Mike Lawrence led all scorers with four goals. Dakota United got two goals from Shaun Olson. Cory Marklevits had five saves and Ben Haffner had one save in goal for D.U. POHI All Tournament Team Erik Sjolander, Mounds View/ In the second game, Maple Irondale/Roseville; Kevin Grove’s Chris Dehmer scored DeKeuster, Mounds View/ four goals and an assist to lead Irondale/Roseville; Scott his team to a 6-2 victory over Smith, Rochester; Ben Pehling, defending champion Brainerd. Rochester; Shaun Olson, DaKyle Sakry added two goals kota United; Tina Young, and goalie Matt Wimmergren Brainerd; Ben Solseth, grabbed nine saves. Brainerd Brainerd; Andy Fornasiere, got one goal apiece from Nick Maple Grove; Angie Diebel, Praska and Doug Ream. Ben White Bear Lake; David Solseth made two saves and Baldwin, White Bear Lake. Sarah Kohl stopped ten shots in goal for Brainerd. MH Division Championship Round QuarterIn the Consolation Semifinals, finals opened with HumboldtRochester beat Mounds View/ St. Paul’s 17-1 victory against

Fridgen, Maple Grove; Lupe Courage Center in Golden Val- to the finish line in 4:17:44. Avila, Maple Grove; Geoff ley. For info, call 612-535-4736. Bowens, Anoka-Hennepin. Send your comments and **** sports related stories to Luke **** Pedersen and Craig McClelLindsay Nielsen, a Minne- lan. Phone: (612) 362-8406, The 3rd season of the MN Div. apolis resident, reclaimed Mail: 215 Broadway St. NE, of the U.S. Electric Wheelchair the world amputee record at Suite 103, Minneapolis, MN Hockey Association is under- the Las Vegas Marathon by 55413, or Email: cm17@skyway. The season runs from smashing the world record point.com May-Aug, with games being for amputee runners by more Humboldt-St. Paul faced held Sat.s from 2-5 pm at the than 14 minutes. She cruised Mounds View/Irondale/Roseville in one of the Championship Semifinal games. Humboldt-St. Paul won 13-1 More listings on pg 11 on the strength of its overEmployment ads are $14 per col. inch; May 31 is the deadline for the June 10 issue. Mail to: whelming offense. HumboldtSt. Paul peppered Mounds ACCESS PRESS • 1821 University Ave. • #185N • St. Paul, MN 55104 FAX 651-644-2136 View/Irondale/Roseville CASEWORKER/ RIDGEWATER COLLEGE goaltender Dan Gockowski OUTREACH Willmar & Hutchinson with 45 shots on goal. James LIAISONNEEDED A COMMUNITY AND TECHNICAL COLLEGE Thompson scored five goals and had four assists, while The Office of Senator Paul teammate Randy Swartsbauer Vacancy Notice Wellstone in looking for a Conscored three goals and two assists. Goaltender James Graf Ridgewater College has an opening for a full time Director of stituent Advocate/Liaison to made nine saves. Mounds Special Populations. Minimum of a Bachelor’s Degree Asian Pacific Community. View/Irondale/Roseville’s (Master’s preferred) and three years experience in vocational Responsibilities include: workGockowski had 32 saves, while education, preferably with experience in teaching special ing with Minnesotans to reteammate David Spangenberg populations students or teaching within vocational educa- solve their problems with the federal government; and acts got the team’s lone goal. tion. Carl Perkins Grant experience preferred. Contact HR as a liaison and works on local Office, Ridgewater College, 2 Century Ave. SE, issues relating to the Asian In the second game, South Hutchinson, MN 55350, PH: 320-234-0228, FAX: 320-587Suburban battled Hopkins/ Pacific community. 9019 for more information and application. Deadline: May 21, Robbinsdale/Wayzata for a 1999 wild 8-7 victory. South SuburThe successful candidate will MnSCU is an AA/EEO Employer ban’s Important Layeni scored have strong academic credenthree goals and had four astials, including a college deATTORNEY URBAN PLANNER sists, while Mark Smith added gree. An appreciation of Asian three goals. Goaltender So. MN Reg. Legal Services Consulting company is look- Pacific culture is desirable. A Meagan Hetland stopped 40 seeks 1 FT Atty. approx. 9 mo. ing for an urban planner with 2- thorough knowledge of the shots. Hopkins/Robbinsdale/ legislative process is imporWayzata’s Ross Strohkirch contract to represent home- 5 years of experience in com- tant. and Dayna Severson each had less. Start ASAP; MN lic. munity development, redevelthree goals and two assists. Resumes to: Martha Eaves; opment/development planth Salary: Lower 20s. Goaltender Jason Studeman SMRLS-Suite 300; 46 E. 4 ning, market analysis, develSt.; St. Paul, MN 55101. opment financing and site plan made 31 saves. AA/EOE approval process. Thorough Please send by May 19 a cover understanding of development letter and resume to: MH All Tournament Team ATTORNEY process required. AICP deDan Gockowski, Mounds Carol Bender sired. Salary negotiable deView/Irondale/Roseville; c/o Sen. Paul Wellstone Rocky Olson, North Suburban; So. MN Reg. Legal Services pendent upon experience. Send 2550 University Av. W., Jason Studeman, Hopkins/ seeks 1 Housing Atty. Prefer resume to: SRF Consulting Suite 100N Robbinsdale/Wayzata; Impor- MN lic. Salary DOE. Resumes Group, Inc., Ste. 150, 1 Carlson St. Paul, MN 55114 tant Layeni, South Suburban; to: Paul Onkka; SMRLS; Pkwy. N., Mpls., MN 55447 or Patrick Cronin, South Subur- 16174 Main St.; Prior Lake, to web site www.srfconsultban; James Graf, Humboldt-St. MN 55372. AA/EOE ing.com Paul; Randy Swartsbauer, EOE Humboldt-St. Paul; Nick Roosevelt-Minneapolis. Other opening round winners were Mounds View/Irondale/ Roseville 6-4 over last year’s tournament runner-up North Suburban; Hopkins/Robbinsdale/Wayzata 13-4 against Maple Grove; and South Suburban over Anoka-Hennepin District 11 in overtime 9-8.

Access To Employment

Professional Directory M.A.T. METROPOLITAN AREA TRANSIT, INC.

Meeting Your Transportation Needs

SPECIAL TRANSPORTATION PROVIDER

Northland Transportation, Inc.

Mn D.O.T. Certified Transportation Specialist 612-379-4107 MA, U-CARE Minnesota, Private Insurance - Pay

PNL SERVICES Conversion Raised Tops Raised Doors 300 2nd St. S.E. Mpls., MN 55414 (near St. Anthony Main)

Lift Installation Lift Repair Drop Floor

612-672-9342

Ambulatory and Wheelchair Service Group Charters Available M.A. provider plus other insurances (612) 922-6876/885-0580

May 10, 1999

Access To Employment EMPLOYMENT ADS ARE $14 PER COL. INCH; MAY 30 IS THE DEADLINE FOR THE JUNE 10 ISSUE. Mail to: ACCESS PRESS • 1821 University Ave. • #185N • St. Paul, MN 55104 • FAX 651-644-2136

S E AD10 R O M AGE ON P

PROPOSAL COORDINATOR/WRITER

LOAN TRANSACTION SPECIALIST

DESKTOP PUBLISHER/ WORD PROCESSOR We are a rapidly growing Transportation Engineering/ Land Use Planning/Landscape Architecture Firm in the western suburbs (free parking!) looking for a creative team player with 3+ years experience for our proposal & report production. Must know QuarkXpress & Word & be able to work with deadlines. Salary dependent upon qualifications, excellent benefits. Send resume to: SRF Consulting Group, Inc., Ste 150, 1 Carlson Pkwy. N., Mpls, MN 55447 or to web site www.srfconsulting.com EOE

RECEPTIONIST Do you like talking to people on the phone? Do you like helping people? Neighborhood Health Care Network is looking for you! We need someone to answer phones for people looking for a doctor, do general clerical duties and greet guests. This is a full time position with GREAT benefits. Bilingual English/Spanish or English/Hmong a plus. If you have typing skills of 35 wpm and are a team player send us your resume today. Neighborhood Health Care Network, 2550 University Ave, Suite 416 S., St. Paul MN 55114, attention Kathy. Resumes accepted through May 26, 1999. AAA/EOE

HOUSING PROGRAM/POLICY SPECIALIST $41,363 - $60,970

Progressive multidisciplinary consulting firm has an immediate opportunity for an experienced writer to coordinate the preparation & production of proposals & other documents. Team environment working with graphic artists & other professionals. 5+ years experience in editing, writing & production coordination. Degree in journalism or related communications field desired. Strong organizational, writing, & interpersonal skills required. Exp. in architectural, engineering or consulting firm is desirable. Salary commensurate with exp., excellent benefits. Send resume to: SRF Consulting Group, Inc., Ste. 150, 1 Carlson Pkwy. N., Mpls., MN 55447 or to web site www.srfcon sulting.com EOE

The Minnesota Housing Finance Agency (MHFA) seeks a professional employee to work on housing policy matters and government relations. Primary area of responsibility is fair housing, with back-up responsibility for homelessness policy and affordable housing issues at the state legislature and with administrative agencies. The qualified candidate will be responsible for the State of Minnesota’s Analysis of Impediments to Fair Housing Choice and will work with organizations, units of government, and other MHFA government affairs and program staff to implement the Plan. The candidate must be able to conduct community meetings, lead work groups, and identify and analyze significant developments and issues related to fair housing and affordable housing policies and practices. The ability to create successful networks and partnerships with communities statewide will be critical to the success of this job. The candidate must be able to work effectively with a wide range of public officials, policy makers, and interest groups. The candidate may be required to work a flexible schedule during the state legislative session.

University of Minnesota Extension Service

Education desired; A law degree or a Master’s degree in Public Affairs, Public Policy, Public Administration, Housing, or Regional and/or Community Planning, or related, substitutes for one year of qualifying work experience. Bachelor’s degree as above substitutes for six months of qualifying work experience. Experience required: Three years related professional experience. Work experience can be in the areas of housing, human rights, planning, policy analysis, legislative or administrative advocacy, and/or economic development. Must have good written and verbal communication skills, including strong public speaking skills. For a copy of the position criteria and a State Application for Employment, please contact the MHFA Human Resources office at 651/296-8177 or FAX 651/296-8032, or the TDD (hearing impaired individuals, only, please) 651/297-2361.

SENIOR PRODUCER

KTCA-TV, one of PBS’s leading Public Television stations, is seeking an associate producer to serve as a creative assistant in all aspects of show production of a personal finance series. Responsibilities will include researching show topics and helping locate families to be profiled on the program. Organization skills are very important. Internet experience helpful. A creative aptitude and a grasp of the major aspects of program production and program content are also important. This is a fulltime position that provides a competitive wage and benefit package. Minimum requirements include a BA, and oneto-two years of related experience. Submit letter, resume and salary requirements by 05/ 31/99 to: Box 315-9; KTCA; 172 E. 4th St.; St. Paul, MN 55101. EEO/AAP.

KTCA-TV, one of PBS’s leading Public Television stations, is seeking a producer to develop and produce a national, field-based, personal finance series. Major functions include field and post production, and creating the format. This is a full-time position that provides a competitive salary and benefit package. Minimum requirements include a BA, and fiveto-seven years of related experience. Personal finance or how-to television experience preferred. Submit letter, resume and salary requirements by 05/ 31/99 to: Box 314-9; KTCA; 172 E. 4th St.; St. Paul, MN 55101. EEO/AAP.

EXTENSION EDUCATOR, NUTRITION, FOOD, & HEALTH, IVANHOE, MN.

WORK INCENTIVE SPECIALIST (unclassified position)

Required: A bachelor’s degree; at least one degree in food science and nutrition, dietetics, human ecology, public health, or a related field; superior verbal and written communication; networking; cultural competency as evidenced via programming skills with culturally, economically, and/or age diverse audiences; computer use; and leadership.

The MN Dept. of Economic Security—Work Incentive Project is seeking four Work Incentive Specialists. Responsible for providing training and individual consultation to professionals and individuals with disabilities relating to Social Security and Medicaid work incentives and the effect of earned income on Individual’s public benefits.

Preferred: A master’s degree; knowledge and course work in food selection and culture, food safety, food security, food preservation, health promotion, and nutrition education methods; post-degree professional experience in a related area; agricultural background and/or experience; skills in educational programming needs assessment, organization, development, delivery, and evaluation, supervision, grant writing, and volunteer management.

Knowledge of Social Security and Medicaid work incentives; Social Security and other public benefit programs; and vocational rehabilitation programs essential. Good communication skills; persistence and patience; and strong team skills also necessary. Two years experience working directly with individuals with a variety of severe disabilities and a Bachelor’s degree or equivalent is required. Salary, approximately $32,468.

Deadline for materials: May 18, 1999.

Applications will be accepted through Friday, May 21, 1999. You must be available for occasional overnight travel. Check To obtain complete position announcement & application “Travel” on your application. materials, call U of MN Human Submit applications directly to: Minnesota Housing Finance Resources at 612/624-3717, Agency, Human Resources, Room 300, 400 Sibley Street, St. or download from Web page: Paul, MN 55101-1998. The Housing Finance Agency, located www.extension.umn.edu/extension/jobs.html The U of MN downtown St. Paul, is an Equal Opportunity Employer. is an equal opportunity educator and employer. SUMMER WORK

Recruiter ------------------------------------- 651-266-6476 24-hour Jobline ------------------------------ 651-266-6502 TDD/TTY ------------------------------------ 651-266-6501 Personnel Fax -------------------------------- 651-292-7656

ASSOCIATE PRODUCER

$12.30 per hr. appt. Full or Part Time w/Flex. Sched. No Exp. Nec. Work w/Customers in Sales/ Service Dept. Scholarships & Internships Avail. cond. Exist No Telemarketing or Door to Door Call now! 651-268-0562

Send resume with cover letter to Barb Smith, Rehab Services/Work Incentive Project, 390 N. Robert St., St. Paul, MN 55101-1812. Application deadline: 6-4-99. Phone (651) 215-9024. EOE/AA ADVERTISING SALES REPRESENTATIVE ACCESS PRESS is seeking a part-time advertising sales representative. Experience selling print ads preferred. Salary plus commission. Send resume, with cover letter, to: ACCESS PRESS, Suite 185N, 1821 University Ave. W., St. Paul, MN 55104

BRIDGE/STRUCTURAL TECHNICIAN 2-4 years recent experience on bridge and structure projects. AUTOCAD experience required. Send resume to: SRF Consulting Group, Inc., Suite 150, One Carlson Parkway North, Minneapolis, MN 55447 or to web site: www.srf consulting.com EOE ELEMENTARYTEACHERS ($12.40/hr—MN Certified) andTEACHER’SAIDE ($9.25)

Faegre & Benson LLP, Minnesota’s second largest law firm, is seeking applicants for a Loan Transaction specialist to assist banking/commercial transaction lawyers in connection with commercial loan and leasing transactions. Responsibilities include; preparing and amending loan or leasing documents; reviewing and analyzing UCC, tax lien and judgment searches; assisting lawyers in preparing for and conducting closings; and more. Candidates must have a 4-year college degree with a strong academic record; and strong skills in: computer software applications; verbal and written communication; attention to detail; and organizational abilities. This position would be an excellent experience for anyone considering a legal, banking or financial career. We offer a rewarding and professional working environment, and a competitive salary and benefits package. For additional information about Faegre & Benson, visit our web site at www.faegre.com. Please submit resume and salary requirements to Human Resources: FAEGRE & BENSON LLP 2200 Norwest Center 90 South Seventh Street Minneapolis, MN 55402 Fax: (612) 336-3846 Internet: HR@Faegre.com

Be a member of a teaching team responsible for planning and leading educational enrichment curriculum and activities for a summer elementary youth development program. Experience working with people of Equal Opportunity Employer diverse cultural, ethnic and Please patronize economic backgrounds. Must your Access Press have strong interpersonal skills Advertisers — and and be able to handle multiple tell them where you priorities. Apply in person. LNB, 1925 Nicollet, Mpls, Mheard about them. Th 9 a.m.-4 p.m. Agency appliThey bring cation required. EOE.

you your paper.

Ramsey Cty adv

May 10, 1999

CLASSIFIEDS

Reach 10,000 Active, Interested Readers with ACCESS PRESS Classifieds. $8 up to 20 words, 35¢/word thereafter. Mail with check to: ACCESS PRESS, 1821 University Ave W, #185N, St. Paul, MN 55104; (651) 644-2133 FOR SALE 3 and 4 Wheel Mobility Scooters, Scooter lifts and ramps. New scooters from $1,975.00. Free in-home demonstration. Sales and services. FastServ Medical. (320) 654-0434 (St. Cloud) or toll free 1-888-5650434.

FOR RENT New CONVAQUIP shower chair. 650 lbs. capacity, still in carton. $200 new - $100 or B.O. Sullivan Series CPAP with case. Used two weeks. Includes heated humidifier, tubing, mask. Cost $1,700 new $1,000 or B.O. (612) 872-9939. Gently used INVACARE TriRolls scooter, available due to recovery. Excellent condition, includes charger. $1,000. 612694-0001.

3 and 4 Wheel Scooter Repair. We repair Amigo, Bruno, Electric Mobility, most brands. New and used scooters for sale. Buy, sell & trade. FastServ Medical. (320) 654-0434 (St. WORK FROM HOME Cloud) or toll free 1-888-5650434. Fun, Flexible Hours. PT $500$1500/month, FT $2,000$7,000/month. Call 651-6596318.

Lewis Park Apartments: Barrier free housing with wheelchair user in mind. Section 8 subsidized. One and two bedroom units. For more information on availability call 4889923. St. Paul, MN Equal Opportunity Housing. Holmes-Greenway Housing One and two bedroom apartments designed for physically handicapped persons. Convenient SE Minneapolis location. Call 378-0331 for availability information. Equal Opportunity Housing.

LEGISLATIVE - Cont. from p. 9 Work Incentives

o f R e p r e s e n t a t i v e s on March 18. The bills are If these bills pass, Medi- substantially the same in cal Assistance eligibility both houses. will be expanded to include employed persons Consumer Support with disabilities. SF 675 Grants (Berglin) is included in the Senate Health and Family These grants make it posSecurity omnibus bill. HF sible for people to purchase 6 7 0 ( G o o d n o ) u n a n i - home care, personal care mously passed the House attendant services, or other

services directly, rather than through an agency. This often expands people’s options of who to hire, and the expense categories are broad enough to allow flexibility in the types of services purchased. SF 73 (Murphy), HF 356 (Dempsey) Act signed into law; Chapter 10, 1999 Laws of MN. 

ARTS - Cont. from p. 7 * 5/15, Sat., 8:00 pm, A Bright Room Called Day, Outward Spiral Theatre Co., Hennepin Ctr. For the Arts’ Little Theater Call 612 504-2323 for tickets (Deaf callers please use Relay) * 5/16, Sun., 2:00 pm, Jekyll & Hyde, Orpheum Theatre, Minneapolis (call 612 373-5650) * 5/22, Sat., 8:00 pm, Goodnight Desdemona, Park Square Theatre, St. Paul

Since the sudden death of the publisher of ACCESS PRESS in 1996, ACCESS PRESS has been having financial problems. Over the past two years, The Friends of ACCESS PRESS has kept us alive. Yet, we need your continued support to keep the paper to 12 pages. Advertising and subscriptions have not kept pace with the cost of producing the paper. Here are the sponsorship levels: Basic (low income) ... $5.00 Silver ..... .$150.00 & up Benefactor ..... $1,000.00 & up Friend ............ .$25.00 & up Gold ....... .$350.00 & up Bronze ........... $75.00 & up Diamond . $500.00 & up Contributions made at the “Friend” level ($25) or above, will entitle the contributor to a one year complimentary subscription to ACCESS PRESS. ACCESS PRESS is a 501(c)(3) non-profit. Checks should be made out to ACCESS PRESS. Your contribution is tax deductible. Please mail your sponsorship to ACCESS PRESS, 1821 University Avenue West, Suite 185N, St. Paul, MN 55104. Your help is crucial if ACCESS PRESS is to continue being the voice for people with disabilities! SPONSORS OF ACCESS PRESS Thanks to the following sponsors for supporting ACCESS PRESS, the voice for people with disabilities. Margaret Beier Steven McKeever Kelli N-E Wysocki

BASIC Beth Jensen Cindy Moore A.C.E. Independent Living Consultants

Ericka Johnson Paul W. Taylor

FRIEND OF ACCESS PRESS Sue Abderholden Lynda Adams Cheryl A. Anderson Mary Andresen Susan Asplund David Baldwin Kathy Ball Don & Maggie Bania Janet Berndt Patrick Bilbery Mike & Karen Bjorgan Susan Blaylock Bill Blom Anita Boucher Wendy Brower Susan Bulger Deah Cain Cathy Carlson Baya Clare Lynne Corneli Jim Cotton Margot Imdieke Cross H. LeRoy deBoom Lynn & Tim Dennis Neil Doughty Christine N. Drew Martha Egersdorf Joe & Peg Figliuzzi Tom & Mimi Fogarty Candace/David Gislason Robert Gregory Patricia Guerrero Patricia Guerrero Jimmie Hanson Anne Henry Linnea Johnson Hoff Roger A. Hoffman Ellen & Skip Houghton Judy Hunt Beth Jensen Cindy Johnson Daria Jmill Barb Kane Mary Kay Kennedy Beth Knutson-Kolodzne Ann Kranz Dianna Krogstad Brett Kruempel Sue Lasoff David Larson Jeff Larson Linda Larson Linda Lattin LoRene Leikind Dorothy McCoy Senator John Marty Christopher Meyer Cliff Miller William O’Dowd Annette Pantel Dorothy Peters Julee Quarvee Peterson Barbara Proehl Virginia Puzak Mary Rapson Kim Rezek Fern Rogstad Ginger Rudberg Patricia Rydeen Art Sauter Elizabeth Smith John Smith Adele Spavin Diane Sprague Paul Taylor Helen Thompson Gerry and Barb Tollakson Donna Warren Caryl Wattman Teri Welcher Curt Wiehle David Wood Beth Wright Joe & JoAnn Zwack Accord Health Care Services All Temporaries, Inc Alliance for the Mentally Ill of MN Arc of Anoka/Ramsey Cty ARC Suburban Arc Minnesota Best Care, Inc Brain Injury Assn. of MN Consumer Council of The Alliance for the Mentally Ill E. Suburban Resources, Inc. Duluth Consumer & Family Regional Resource Ctr Equity Services-St. Paul, Inc Forensic Alliance of Mentally Ill Fraser Community Services Home Health Care Kaposia, Inc. Mankato Consumer & Family Reg. Resource Ctr MBW Company Mental Health Assoc. of MN Mental Health Consumer Survivor Network of MN Metro Mobility Service Center Staff MN Bio Brain Association MN Developmental Achievement Center Assoc. (MnDACA) New Dimensions New Ways PACER Center, Inc. Rise, Inc. Park Rapids Consumer & Family Reg. Resource Ctr Resource, Inc. S.M.I.L.E.S. St. Cloud Consumer/Family Reg. Resource Ctr United Cerebral Palsy of MN BRONZE SPONSOR Jeff Bangsberg Scott Beers Tom Brick Rick Cardenas Stephanie Cunningham LeAnne & Larry Dahl Dawn Doering M. Therese Gockenbach Lori Guzman Judy Haaversen Martha Hage David and Susan Houghton James R. House Lolly Lijewski Ronna Linroth Joline Gitis & Steven Miles Manley & Ann Olson Louise Pattridge Mary & Henry Pattridge Rick & Debbie Ryan Dean Doering/Lisa Scribner H. Michael Sheehan Peter & Pamela Stanfiel Mary Jane Steinhagen Helen Thompson Julie Wegscheid Kathy & Paul West Jerrold Wood AC Transportation Bridgeton Healthways Company Dept. of Occupat’l Therapy-U of M Div. MN Rehab. Assoc Job Placement & Dvlpmt Merrick Companies Pat Siebert, MN Dis. Law Ctr.

* 5/23, Sun., 2:00 pm, Sylvia, Theater in the Round, Seven Corners, Minneapolis * 6/6, Sun., 2:00 pm, Footloose, Orpheum Theatre, Minneapolis (call 612 373-5650) * Asterisked performances are eligible for reduced admission prices thru the Access to Theatre project. Contact the theater or VSA MN (612-332-3888) for info.

Don't Miss An Issue! Subscribe Today! $15 Buys A Full Year (12 Issues) Of ACCESS PRESS Name ______________________________________________________________ Street __________________________________ City ________________________ State _______ Zip __________________ Telephone _____________________ Limited income subscription: $5 s tion p I have an idea for editorial coverage. Please call me. i r t sc I’ve enclosed my check for $15. Start my subscription. Sub e grea k Send your advertising rates. (651) 644-2133 ma s!

gift

MAIL TO: ACCESS PRESS • 1821 University Ave. W. • #185N • St. Paul, MN 55104

SILVER SPONSOR Becky J. Bugbee-Tong Catherine Eilers David Grosvenor Courage Center Fairview Foundations Handicabs, Inc Help Yourself, Inc. Job Placement and Development Division, MN Rehab Assn Mpls. Advisory Committee Multiple Sclerosis Society Michael Graf Memorial Opportunity Partners Dave & Marilyn Phillips Sister Kenny Institute Twin City Transportation, Inc. Vinland National Center GOLD SPONSOR Shirley Larson Margaret Perryman DIAMOND SPONSOR MATRIX Advocare Network

Chris Berndt Deluxe Corporation

North Memorial Health Care

BENEFACTOR SPONSOR Handicabs

FOUNDATION SUPPORT Headwaters Fund The Medtronic Foundation

M.I.L.S.