SERVING ARIZONA, GREATER CALIFORNIA, HAWAII & NEVADA FALL/WINTER 2013
Join the Quest for a CURE! • Special Issue: Changing Lives through Research • Thanks to Our Generous Donors • Mission Delivered: Delivered! Advocacy and Programs Three of the 53 million Faces of Arthritis.
The mission of the Arthritis Foundation is to improve lives through leadership in the prevention, control and cure of arthritis and related diseases. Call 1.800.954.CURE (2873) or visit arthritis.org.
LEADERSHIP PERSPECTIVES ARTHRITIS FOUNDATION
MESSAGE FROM THE CHAIR
Aspiring baseball player Will Tellez came down with a viral infection at the age of 11. After six weeks in the hospital, he was finally released, only to return to the intensive care unit the next day due to severe chest pains. Will had fluid on his heart, one of the symptoms of systemic onset juvenile idiopathic arthritis. The doctor prescribed a drug which cleared up the inflammation within a few days. After the weeks-long ordeal, his grateful mom Jeri said, “It felt like a miracle.” Will’s dramatic recovery was the result of a research breakthrough funded by the Arthritis Foundation 30 years ago. Research also changed the lives of volunteers Joyce and Tom Murphy. Read on to see how this dedicated couple is taking action to increase research support on behalf of the 53 million adults and 300,000 children with arthritis.
PACIFIC REGION Board of Directors OFFICERS Peter Mainstain, C.P.A. Chair John A. Heydt, M.D. Chair-Elect Stephen A. Schneider, Esq. Treasurer Dennis M.P. Ehling Secretary Manuel Loya Chief Executive Officer E. Robert Harris, M.D. Past Chair BOARD MEMBERS Susan Beat Leroy Bobbitt, Esq. James Campbell Chow M.D., A.B.O.S. Art Gladstone, R.N. Christopher Middleton Wesley Mizutani, M.D., M.B.A. Marcia W. Wasserman LIFE BOARD MEMBERS T. Arthur Kvaas Philip S. Magaram, Esq. Mark E. Meyerson, Esq. Thomas R. Murphy Stanford K. Rubin, Esq. Leonard Unger, Esq.
In this issue of HEADLINES, you will learn about national strategic research initiatives led by research scientists and their teams, policymakers and advocates, doctors and people with arthritis—all made possible through your contributions. One exciting new research study is the ACL (anterior cruciate ligament) initiative, which can potentially change the lives of 27 million people with osteoarthritis, including young sports athletes like Will Tellez. You will also be informed about ways the Arthritis Foundation is fulfilling its mission TODAY through life-enhancing programs and advocacy at all levels of government. Please take a few minutes to read about the many ways you can help end arthritis pain and find a cure. Can you make a difference? Yes, YOU CAN. Peter Mainstain Peter Mainstain Chair, Pacific Region Board of Directors
MESSAGE FROM THE C.E.O.
In my opinion, investing in Arthritis Foundation-funded research offers the greatest opportunity to make a difference in the lives of those with arthritis. Why do I say this? First, the Arthritis Foundation is the largest nonprofit funder of arthritis research in the world, and has funded nearly $500 million in research grants over the past 65 years. Second, the Foundation uses a centralized and vigorous peer-review selection process to award grants to the top research projects in the country. Many outstanding research institutions are located within the Pacific Region, and ten of the nationally-ranked research studies are going on within our region this year.
ADVISORY BOARD CHAIRS Kaleo Ede, M.D. Arizona Maury Hayashida D.P.T., O.S.C., C.S.C.S. Central Coast David Hahn Inland Empire Dale Surowitz Los Angeles/Valley Robin K. Dore, M.D. Orange County Eric Burger Greater Sacramento Valley Susan Beat San Diego Art Gladstone, R.N. Hawaii Timothy Jones, C.S.P., R.E.H.S. Nevada
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Third, our research projects target three primary types of arthritis—osteoarthritis, rheumatoid arthritis and juvenile arthritis. We are squarely focused on funding grants with the greatest potential for breakthroughs. You can help the Foundation make a difference in someone’s life by supporting research that will end the chronic pain and limitations of this debilitating disease. Increased funding is absolutely essential. I urge you to invest in Arthritis Foundation-funded research. Together we can win the fight for a cure.
Manuel Loya C.E.O., Pacific Region This issue of HEADLINES is dedicated to the memory of 12-year-old Kassandra R., who passed away due to complications of overlap arthritis, a rare form of juvenile arthritis. News of this tragic event has triggered an outpouring of support from the members of the national JA community who are shocked and dismayed at the loss of one of their own. The lives of children like Kassandra are precious and highlight the urgent need to find a cure. Our hearts go out to her family.
RESEARCH IMPACT: PROFILES THE MURPHYS: GIVING THANKS FOR THE PAST AND CREATING HOPE FOR THE FUTURE
Joyce and Tom Murphy have volunteered for the Arthritis Foundation for more than 30 years at local and national levels. They received the prestigious national Charles B. Harding Award for Distinguished Volunteer Service and continue to lead the way in advocating and raising funds for arthritis research.
Forty years ago, Joyce Murphy was bedridden for a year. The 39-year-old mother of six children was stricken with rheumatoid arthritis in her feet and hands. Her treatment? Sixteen aspirin a day to reduce the pain and inflammation of her arthritis.
CALENDAR OF EVENTS DECEMBER December 1 - 14 Jingle Bell Run/Walks® Los Angeles, Orange County, Sacramento and San Diego, CA
2014
Over the years, Joyce used numerous medications and underwent more than seventeen surgeries to repair or replace damaged joints. Her husband, Tom, who has had both knees replaced, credits an experimental drug for getting her back on her feet. Joyce smiled, “I went through so many drugs. I was relieved when the biologics* came out. After more than 30 years of other medications and multiple surgeries, it stopped the progression and symptoms of my arthritis.”
MARCH March 2 “GlitzGlamGive” Benefitting the Arthritis Foundation Phoenix, AZ
“It’s very, very important for us to give back because of what research has done for us,” said Tom. “Advances in medications and surgical procedures have improved the quality of our lives. We’ve gone from 16 aspirin a day forty years ago to one injection and one pill today with far more beneficial effects than before. Due to research advances, we are able to travel all over the world and enjoy our big family of six children, nineteen grandchildren and six great-grandchildren.”
March 24-26 Advocacy Summit Washington, D.C.
The Murphys “walk the talk” for research. Their Murphy’s Angels Arthritis Walk team has raised hundreds of thousands of dollars. They also have made countless trips to Washington, D.C. and Sacramento to speak with legislators on behalf of those with arthritis. When asked how advocacy benefits research, Tom stated, “The largest potential contributor to arthritis research is the United States Federal government. We need to keep beating the drum to get federal and state legislators’ attention about arthritis.” Back home in California, the Murphys continue to reach out to donors and legislators through letter-writing campaigns, phone calls and personal visits. Their passion for research traces from their desire to give back. But it also reflects their vision for the coming years. Tom and Joyce said, “We want to do all we can to prevent arthritis in the future of our family. Treatments available today can be directly attributed to breakthroughs in the past. With continued advancements in research, we have great hope for the future. Please join us today to help find a cure.”
RESEARCH UPDATE FROM ARTHRITIS FOUNDATION GRANT RECIPIENT, DOMINIK HAUDENSCHILD, PH.D., UC DAVIS
Dr. Dominik Haudenschild’s groundbreaking research was profiled in the Spring/Summer 2012 issue of HEADLINES. We are pleased to present his research update.
“Scientifically, there has been a lot of progress since we received the Arthritis Foundation Innovative Research Grant in early 2012. As background, there is a class of genes called primary response genes that are ready for immediate activation by a variety of stresses. Many of these primary response genes are inflammatory mediators that ultimately contribute to cartilage breakdown and arthritis progression. For the Arthritis Foundation grant, we hypothesized that preventing injury-induced activation of this class of primary response genes would be protective in cartilage. We have made substantial progress toward this goal. First, we showed that this class of primary response genes is truly activated by various stresses in the laboratory, and that our intervention strategy to prevent their activation actually works in the lab setting on isolated cartilage and cells. This study will soon be published in a leading journal. Second, we tested whether joint injury in mice also activates this class of primary response genes, and found that it does. Importantly, our intervention strategy also works very effectively in mice to prevent the activation of this class of genes. We are very excited by how effective the intervention is in the short-term, and we are now performing the longer-term studies to ask whether preventing activation of this class of genes will prevent or delay the onset of osteoarthritis in mice with a joint injury. We have been able to leverage the preliminary experiments funded by the Arthritis Foundation to obtain greater funding from the Department of Defense and the NIH. We are incredibly grateful to the Arthritis Foundation for helping us get these lines of research started. Our vision is to provide the sports medicine doctor with a therapeutic intervention option, to be delivered at the time of joint injury, which will prevent or delay the onset of future arthritis.”
APRIL April 26 Central Coast Arthritis Walk San Luis Obispo ccarthritiswalk.org MAY May 3 Arizona Arthritis Walk Phoenix azarthritiswalk.org June 1 Hawaii Arthritis Walk Honolulu hiarthritiswalk.org May 17 Central Coast Arthritis Walk Santa Barbara ccarthritiswalk.org May 17 Inland Empire Arthritis Walk iearthritiswalk.org May 31 Los Angeles Arthritis Walk Los Angeles laarthritiswalk.org JUNE June 1 Orange County Arthritis Walk Anaheim ocarthritiswalk.org June 1 Sacramento Valley Arthritis Walk Sacramento sacarthritiswalk.org June 1 Hawaii Arthritis Walk Honolulu hiarthritiswalk.org June 7 San Diego Arthritis Walk sdarthritiswalk.org
*Biologics: Biologics are medications genetically engineered from a living organism, such as a virus, gene or protein, to simulate the body’s natural response to infection and disease. The body naturally produces small amounts of these agents, but when produced in large amounts in the laboratory and given by injection or infusion, biologics can interfere with different inflammatory substances, cells or pathways responsible for the symptoms and damage of rheumatoid arthritis and some other inflammatory forms of arthritis. –Arthritis Today
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THE ARTHRITIS FOUNDATION’S RESEARCH PROGRAM The Arthritis Foundation is one of the leading worldwide private, nonprofit contributors to arthritis research. Since its inception in 1948, the Foundation has invested nearly $500 million to support the work of 2,653 scientists in 236 research institutions across the country. For a listing of grant recipients and currently-funded research studies, visit: http://goo.gl/rlzJ3g.
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In 2012, the Foundation funded $13.1 million in research and
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training grants at 61 institutions.
ARTHRITIS FOUNDATION RESEARCH FLAGSHIP INITIATIVES DRIVE MAJOR DISCOVERIES
The Arthritis Foundation’s research strategy focuses on three types of arthritis: Osteoarthritis, rheumatoid arthritis and juvenile arthritis. Through a disciplined peer-review process, Innovative Research and Arthritis Foundation Investigator grants are awarded to the highest nationally-rated studies with the greatest potential to create breakthroughs. As part of its research strategy, the Foundation partners with governmental agencies and other nonprofit organizations to effectively advance its research goals: • American College of Rheumatology (ACR) • AOII Foundation • American Orthopaedic Society for Sports Medicine (AOSSM) • Centers for Disease Control and Prevention (CDC) • Childhood Arthritis Rheumatology Research Alliance (CARRA)
• Foundation for National Institutes of Health (FNIH) • National Institutes of Health (NIH) • OA Research Society International (OARSI) • Other organizations
INITIATIVE 1
Osteoarthritis Osteoarthritis is the most common form of arthritis. It affects 27 million Americans and results in one million joint replacements every year. Presently, there are no medications to slow or stop osteoarthritis and no tools to identify early stages of the disease. Two major research initiatives are underway to address the needs of patients with osteoarthritis: 1) The OA Biomarkers Initiative, and 2) The ACL Injury Feasibility Trial. OA BIOMARKERS INITIATIVE This major initiative brings together the Arthritis Foundation, the Foundation for National Institutes of Health (FNIH) Biomarkers Consortium and OARSI (OA Research Society International). Research Goal Identify and classify biological markers of knee OA progression through use of medical imaging and biochemical markers. Impact Learning will be used to monitor the progression of OA and support development of new OA drugs and treatment options to prevent the occurrence and progression of osteoarthritis. ACL INJURY FEASIBILITY TRIAL Anterior cruciate ligament (ACL) injuries are common among young athletes. About 200,000 ACL repairs are required in the United States each year. ACL tears often lead to a diagnosis of OA within 10 to 20 years. With the support of generous donors, the Arthritis Foundation recently awarded a $1 million, multi-institutional grant that could revolutionize future treatment for OA. Research Goal Lay the groundwork to establish a new clinical strategy for OA drug development and to prevent the onset of OA after ACL injuries. Impact There will be treatment for the disease, not just its symptoms, so people can avoid the progressive damage of OA and reverse its course. People will also know whether or not they are at risk of OA so they can take steps to prevent it.
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An ACL tear immediately triggers the OA disease process at a molecular and cellular level and it continues
for one or more years. If we can detect and measure these early changes, we could likely discover treatments
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to prevent or slow down the disease in the general population. – Dr. John Hardin, Arthritis Foundation Director of Osteoarthritis Research
LEADING THE WAY TO A CURE INITIATIVE 2
Rheumatoid Arthritis Rheumatoid arthritis (RA) affects 1.5 million people in the U.S. – most of them women.The disease can be highly unpredictable, ranging from extreme inflammation, rapid progression and joint degradation in one patient to limited inflammation and a small degree of joint deterioration in another. Research advances can lead to development of personalized patient therapies and needed treatments. Research Goals • Identify genetic, molecular and immunologic factors that predict RA risk • Increase knowledge about genetic or environmental factors that affect the initial development or progression of RA • Better understand patient response to RA therapies which will slow progression and inhibit long-term effects of the disease
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Using his Arthritis Foundation
research grant in the early 1980s,
Dr. Bill Arend studied the role of IL-1 in rheumatoid arthritis. His work led to the development of Kineret, one of the biologics used to treat rheumatoid
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arthritis and juvenile arthritis today.
Key Initiative The Arthritis Internet Registry is a large clinical database that allows researchers to examine similarities and differences between patients and their responses to treatments. The data can help to determine how genetic factors relate to treatment responses and lead to development of the safest and most effective treatments for RA patients. The Arthritis Internet Registry (AIR) has more than 3,700 online registered patients and urgently needs more people to provide information that will lead to desired research breakthroughs. If you qualify, please visit http://goo.gl/810hvm to register. Impact Improved treatments that are safe and effective over the long-term will be developed so that patients can regain good health and enhanced quality of life.
INITIATIVE 3
Juvenile Arthritis Nearly 300,000 children endure the debilitating pain and disabling effects of the many forms of juvenile arthritis (JA). Until a cure is found, JA robs them of the joys of childhood and continues to affect their lives as they transition to adulthood. Research Goals • Identify who is at risk for juvenile arthritis based on genetics or environment • Develop therapies to rapidly reduce or prevent the effects of JA • Develop new drugs that are safer and better for children with arthritis Key Initiatives During its 10-year partnership with CARRA (Childhood Arthritis and Rheumatology Research Alliance), the Arthritis Foundation has contributed more than $2.3 million to fund JA research and support the national CARRA registry (www.carranetwork.org) of more than 8,000 patients. The CARRA registry provides the long-term information that can lead to development of the safest and most effective treatments for children with JA. Impact Safe and effective treatments will be available at the onset of the disease so children with JA can rapidly regain good health and long-term quality of life.
BE PART OF THE QUEST FOR A CURE!
Here’s how you can support Arthritis Foundation research initiatives: • Join the Arthritis Foundation. Become a member and start enjoying Arthritis Today magazine and other benefits. http://goo.gl/0m0Sfc • Become a Research Advocate Benefits include the quarterly Research Update newsletter and more! http://goo.gl/t0z99O • Be Informed: Visit arthritis.org/research/ and find out more about the Arthritis Foundation’s exciting research program. • Advocate for More Research Funding: Make your voice heard! Register to become an e-advocate. arthritis.org/advocacy/ • Leave a Living Legacy with a planned gift. See page 7 for more information. • Support Arthritis Foundation Fund Raising Activities: Participate in your local Arthritis Walk, Jingle Bell Run/Walk, California Coast Classic Bicycle Tour or social event. Learn more on pages 8-9. • Enroll in Patient Registries: Join the Arthritis Internet Registry (OA/RA) or register your child in the CARRA patient registry (JA). Visit arthritis.org/research/participate-in-research/. • Contact Your Local or Region Office: Find out how you can make a difference for those with arthritis. page 5
MISSION DELIVERED: PROGRAMS AND ADVOCACY 2013 NATIONAL JUVENILE ARTHRITIS CONFERENCE CHANGES LIVES
Dreams came true for families of children with juvenile arthritis at the National Juvenile Arthritis Conference on July 18-21 in Anaheim, Calif. More than 1,250 participants from 42 states joined 350 expert speakers, children’s program staff and volunteers for an educational, fun and life-changing experience. Parents enjoyed sessions on issues ranging from nutrition to research, while children engaged in creative activities with their peers. Hundreds of conference attendees donned blue “Faces of Arthritis” T-shirts for a fun evening out at the Disneyland Resort. Imagine a sea of blue T-shirts at Disneyland! Throughout the conference, family members discovered that they were members of a broader JA community who understood the challenges of living with juvenile arthritis. The Foundation thanks the wonderful volunteers, staff and generous sponsors who made this year’s conference an unforgettable one for all. Next year’s JA Conference will be held in beautiful Keystone, Colorado on July 3-6.
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It was so empowering to walk around and see all of our new JA family members! Thank you for embracing our family and reminding us that we are not alone.
PROGRAMS
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– Barbara J.
Youth Programs The Pacific Region hosted medically-supervised summer youth camps for more than 200 children and teens with juvenile arthritis and related conditions. Campers from Arizona, California, Hawaii and Nevada enjoyed the great outdoors while making friendships for a lifetime. For more information or to donate to Pacific Region youth programs, please contact Jennifer Ziegler (jziegler@arthritis.org).
Camp Mana’olana, Hawaii
Camp Sol, Nevada
Joint Adventure Camp, California
Camp Cruz, Arizona
Camp Esperanza, California
Camp Esperanza Teen Leadership Session, California
ADVOCACY
News from Capitol Hill Thanks to the hard work of arthritis advocates, the Senate Appropriations Committee approved a $5 million spending bill to fund a student loan forgiveness program for pediatric rheumatologists who will provide care in underserved areas. To achieve this goal, arthritis advocates sent over 2,000 messages to their Senators while Arthritis Ambassadors worked directly with key Senators to take a stand for children with juvenile arthritis. Looking forward to next year, the 2014 National Advocacy Summit will be held on March 24-26 in Washington, D.C. Volunteers from across the United States will meet with legislators and staff on Capitol Hill to educate them about the unacceptable pain, disability and economic impact of arthritis. For more information about the Advocacy Summit, please visit http://goo.gl/vxdteO or contact Director of Advocacy, Krystin Herr at kherr@arthritis.org. To learn about advocacy priorities and to make your voice heard on behalf of those with arthritis, visit arthritis.org/advocacy/. page 6
Pacific Region volunteers gather at the 2013 Advocacy Summit.
THANK YOU TO OUR GENEROUS DONORS 2012 PACIFIC REGION MAJOR DONORS ADVANCEMENT SOCIETY ($300,000-$499,999) Jane Wyman Charitable Trust CENTURY SOCIETY ($100,000-$299,999) AbbVie Amgen U.S.A., Inc. Genentech JUBILEE SOCIETY ($50,000-$99,999) Desert Healthcare District The Hoag Foundation Pfizer Jimmy Rollins Family Foundation Stryker Orthopaedics Wasserman Foundation ENRICHMENT SOCIETY ($25,000-$49,999) Crescendo Bioscience, Inc. BMW Santa Barbara Creative Artists Agency French Hospital Medical Center Glendale Adventist Medical Center Legendary Pictures, Inc. Richard V. Mahony The Queens Medical Center Takeda Pharmaceuticals, USA, Inc. Vons Foundation Warner Bros. Entertainment, Inc.
INVESTMENT SOCIETY ($10,000-$24,999) Alere Health Systems Inc. Arizona Community Foundation Arthritis Foundation Orange County Auxiliary Believe Media, Inc. Kristin Burke Tina C. Foundation, Inc. California Rheumatology Alliance Comerica Community Bank Cruel & Unusual Films Disney Worldwide Services, Inc. First Foundation Bank Mr. & Mrs. Doug Garn
INVESTMENT SOCIETY (cont.) Gila River Gaming Enterprises, Inc. Dorothy Mulholland Gillespie Trust Mr. David S. Goyer The Green Foundation Leo S. Guthman Fund Haggett Trust Hawaii Pacific Health Dr. & Mrs. Anthony K. Hedley Ms. Barbara B. Herman Hoag Memorial Hospital Presbyterian LAgraphico, Inc. Harry and Yvonne Lenart Charitable Foundation Kelly Liebhart Loeb & Loeb, LLP Marborg Industries Mr. & Mrs. Elliot Megdal Mob Scene, LLC mOcean, LLC Moffatt Revocable Trust Price Family Charitable Fund Quest Software, Inc. Ms. Shelley Resnik Roberts Hawaii Mr. Jeffrey Robinov Rabobank Michael Alan Rosen Foundation Mr. & Mrs. Stanford K. Rubin, Esq. STAR Orthopaedics Inc. The T & T Trust Union Bank of California, N.A. The Harry & Jeanette Weinberg Foundation Wood-Claeyssens Foundation Works Advertising Paul & Eleanore Ziegelmaier Endowment BEQUEST GIFTS Selma E. Andrews Franciszka Clark Elizabeth Hofert-Dailey James Grassick Lucille Koch Annie Morris Jane Wyman Charitable Trust
PLANNED GIVING: RETIREES APPRECIATE CHARITABLE GIFT ANNUITIES
Retired people, and those who plan to retire in the near future, are finding charitable gift annuities to be an ideal way to support the Arthritis Foundation while locking in stable annuity payments for the rest of their lives–no matter how long they may live. Indeed, charitable gift annuities are truly called “the income you cannot outlive.” Why? Because they are backed by all of the resources of the Arthritis Foundation. For more information, please contact Matthew Duggan, gift planning professional for the Pacific Region. His toll-free number is 1.877.577.0087, and his email address is mduggan@arthritis.org.
Matthew will be pleased to answer questions relating to charitable gift annuities or other charitable estate planning matters such as wills, trusts, retirement plans, life insurance and other planning matters. There is no cost or obligation, and your inquiry will be treated in complete confidence.
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SPECIAL EVENTS SUPPORT OUR CAUSE PHOENIX GLITZGLAMGIVE™, THE VIEWING PARTY
Experience Hollywood‘s red carpet glamour at GlitzGlamGive™ Gala benefitting the Arthritis Foundation on Sunday, March 2, 2014 at the Ritz-Carlton hotel. Enjoy gourmet food, festive activities and sophisticated swag bags while watching the telecast of the 86th Academy Awards™. Many thanks to Pfizer, ABC15 and Rolfs for supporting this 20th anniversary event benefitting the 1.2 million Arizonans living with arthritis. Visit glitzglamgive.org or contact Laura Rolfe at lrolfe@arthritis.org for registration, sponsorship and event information.
SANTA BARBARA TASTE OF THE TOWN
The 32nd annual Taste of the Town, Santa Barbara’s signature culinary event, attracted almost 1,000 gourmets in early September. Two hundred Connoisseurs’ Circle Pavilion guests savored an extraordinary seven-course meal designed by Patrice Martineau, Executive Chef of the El Encanto Hotel on Friday, September 6. The memorable evening also included a cooking demonstration by Chef Martineau and a live auction. On Sunday, September 8, the culinary event continued at the Riviera Park Gardens with food and wine tastings from forty of Santa Barbara’s finest restaurants and forty Central Coast vineyards. Congratulations and thanks to the sponsors, volunteers and staff who helped raise over $140,000 to support Arthritis Foundation programs and services for Central Coast residents with arthritis.
Executive Chef Patrice Martineau demonstrates his culinary skills. Automotive Sponsor
HONOLULU HAWAII’S 50TH ANNIVERSARY CELEBRATION: COMMITMENT TO A CURE
More than 300 Arthritis Foundation supporters gathered at the landmark Hawaii State Art Museum in Honolulu on September 21 to celebrate the Arthritis Foundation’s 50 years of service in Hawaii. Festivities at “Commitment to a Cure” included entertainment by Hawaii’s renowned duo, HAPA, a silent auction and a delectable food and wine event hosted by Honolulu’s local chefs and restaurants. Keynote speaker Jeffrey Gottfurcht (the only person with rheumatoid arthritis to summit Mount Everest) mesmerized and inspired participants with his riveting story and words of encouragement.
The elegant anniversary event raised more than $100,000 for programs serving the 236,000 adults and children with arthritis in Hawaii.
LAS VEGAS VOICES FOR A CURE FEATURING TERRY FATOR
Superstar Las Vegas Strip headliner and longtime Arthritis Foundation volunteer, Terry Fator, delighted Arthritis Foundation supporters with his singing, comedy and unparalleled celebrity vocal impressions at the 4th annual “Voices for a Cure” performance in October. Thank you to Terry for raising more than $50,000 for research and local patient education programs.
RUNNING FOR A CURE: JINGLE BELL RUN/WALK® FOR ARTHRITIS
Ring in the holidays this December by donning your festive attire and running shoes for the Jingle Bell Run/Walk® for Arthritis! Whether you’re a veteran runner or a committed walker, you will enjoy the holiday-themed activities along the 5K course as you race towards the finish line for a cure. Form a team and register today for one or more of the four Jingle Bell Run/Walks to be held in the Pacific Region this year:
ORANGE COUNTY Sunday, December 1
Laguna Niguel, CA Contact: Laura Ouimet 949.585.0201
ocjinglebellrun.org
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LOS ANGELES
SACRAMENTO
SAN DIEGO
Sunday, December 8
Saturday, December 14
Saturday, December 14
lajbr.org
916.368.5599 jbrsacramento.org
sdjbr.org
Glendale, CA Contact: Debbie Martin 323.954.5760 Ext. 262
Sacramento, CA Contact: Eric Dahler
San Diego, CA Contact: Jim Rider 858.492.1090
MOVING TOGETHER FOR A CURE WALKING FOR A CURE: ARTHRITIS WALKS
More than 10,000 dedicated walkers and their teams honored friends and family members with arthritis at Arthritis Walks held in Arizona, California and Hawaii. Together, they raised almost $1.7 million for a cure! After walking the one- or three-mile course, participants enjoyed Walk festival activities including entertainment, a kid’s zone, educational resources and delicious food and beverages.
Thousands walk for a cure at the Orange County Arthritis Walk.
We are very proud that the Pacific Region was the #1 walk fundraising region in the nation, with the top two walks in the country! The Los Angeles Arthritis Walk was #1, and the Orange County Arthritis Walk took the #2 spot! Additionally, we had seven of the top ten teams in the entire country. Many thanks to Walk team captains, participants, sponsors, volunteers and donors who contributed to the huge success of this year’s walks. Get ready for the 2014 Arthritis Walk season, which promises to be even bigger and better than ever.
® ® Arthritis Walk National Sponsors ® ®Sponsors Arthritis Walk National Sponsors Arthritis Walk National THANK YOU TO OUR WALK SPONSORS! Arthritis Walk National Sponsors
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National Sponsors
Local Sponsors
RIDING DOWN HIGHWAY ONE FOR A CURE: CALIFORNIA COAST CLASSIC BICYCLE TOUR PRESENTED BY AMGEN More than 200 cyclists rode 525 miles along the scenic California coastline to raise nearly $1.1 million for a cure during the 13th annual California Coast Classic Bicycle Tour. The Bicycle Tour is the Arthritis Foundation’s largest single fundraising event in the nation. We are extremely proud of the riders and everyone involved!
Riders began in San Francisco on September 28, pedaled down the beautiful coast of California (primarily on Highway One), and crossed the finish line eight days later in Los Angeles. Along the way, children and young adults with juvenile arthritis educated and inspired the cyclists with their stories. A very special thank you to our presenting sponsor, Amgen, official food and beverage sponsor, Safeway, and the many other sponsors and volunteers who made this event possible. For more information on the 2014 Bicycle Tour or to support this life-changing event, visit AFCABikeClassic.org.
Riders celebrate another great day along the California coast.
The breathtaking view of the Bixby Bridge in Big Sur.
Riders enjoy a thrilling moment on the coastline.
Cyclists head into beautiful Monterey Bay.
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TURN TO US FOR ARTHRITIS INFORMATION AND RESOURCES FACES OF ARTHRITIS CAMPAIGN DISPELS ARTHRITIS MYTHS
The “Faces of Arthritis” national awareness campaign debuted during Arthritis Awareness Month in May. The campaign creates awareness of the serious impact of arthritis, the nation’s leading cause of disability. It also communicates that arthritis affects people of all ages, genders and backgrounds.
Dr. Grayson DuRaine, the face of arthritis research.
2012 Annual Report
Facing Arthritis
The multi-year communications campaign includes print, billboard and online advertising, websites, social media, public relations and onsite promotion at Arthritis Foundation events. Visit facesofarthritis.org to meet the many faces of arthritis and find out how the Arthritis Foundation is making a difference in their lives. Read more in the 2012 Arthritis Foundation annual report, “Facing Arthritis” at arthritis.org/about-us/AF-annual-report/.
Working together to end pain and disability.
NEW “KIDS GET ARTHRITIS TOO” WEBSITE FOR THE JA COMMUNITY
The new “Kids Get Arthritis Too” website debuted at the Juvenile Arthritis Conference in July. The website is “the online home” for the entire JA community. It provides needed information about juvenile arthritis, highlights the extensive JA resources offered by the Arthritis Foundation, and connects parents with an understanding and supportive network of JA families. Visit kidsgetarthritistoo.org.
Arthritis Foundation a r t hr it is fo und at io n
MAKING LIFE BETTER FOR HISPANIC CONSUMERS WITH ARTHRITIS
Le ayudamos a controlar la artritis
PROGRAMAS para vivir mejor
Two new brochures are now available to educate Spanish-speaking consumers about the Arthritis Foundation and its programs. For comprehensive information in Spanish on arthritis and Arthritis Foundation resources, visit arthritis.org/espanol/. www.arthritis.org/espanol
arthritis.org/espanol
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VALUABLE ARTHRITIS FOUNDATION INFORMATION DELIVERED TO YOUR INBOX
Did you know that the Arthritis Foundation offers free e-newsletters tailored to your interests? Register today for practical information to live better with arthritis–delivered straight to your inbox! Visit at.arthritistoday.org/0313newsletter/landing.cfm.
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Arthritis Today (bi-weekly) Practical news you can use immediately to live better with arthritis
Arthritis Today Fitness + Nutrition (bi-weekly) Improve your health and arthritis by exercising and eating right
DON’T MISS: • Breaking news about arthritis treatments • Drug side effects • How to stop arthritis pain • New arthritis supplements
YOU’LL RECEIVE: • Weight-loss tips and tricks • Tips to make exercise a habit • Healthy recipes • Stretches and exercises for every fitness type
Mind, Body, Spirit (monthly) Improve your mind, body and spirit
RA Insider (monthly) Beyond the basics of rheumatoid arthritis
EACH E-NEWSLETTER PROVIDES: • News about arthritis care • Tips to reduce arthritis symptoms • Information about medications and supplements • Inspirational stories
DISCOVER: • The latest studies and research • RA news • New treatment options
OA Insider (monthly) Beyond the basics of osteoarthritis
Research Update (quarterly) Arthritis research could change your life
LEARN ABOUT: • The latest studies and research • OA news • New treatment options
KEEP AN EYE ON: • The latest arthritis research advances • Arthritis Foundation-funded researchers • Arthritis Foundation research grant program
YOU CAN MAKE A DIFFERENCE CHANGE A LIFE TODAY
Your donation can help fight the chronic pain and disability of arthritis. Every dollar helps us carry out important work in the vital areas of research, advocacy, programs and services.
$25
Can provide 5 people with educational materials on various forms of arthritis, exercise, nutrition and other topics that will improve their quality of life.
$45
Can enroll 1 new person in the Arthritis Internet Registry, which advances scientific discovery by connecting people with arthritis to clinical investigators.
$50
Can ensure that a newly-diagnosed child with arthritis receives a SAK (Supporting Arthritis Kids) backpack filled with resources and fun items.
$100
Can provide 1 training scholarship for an individual to be certified in the Arthritis Foundation’s Aquatic or Exercise Leader Training Workshops.
$200
Can fund face-to-face training to prepare 1 Arthritis Foundation advocate to meet with members of Congress.
$500
Can register 1 family to attend our annual Juvenile Arthritis (JA) Conference to connect with other families living with the daily challenges of JA.
$1,000 $5,000 $50-100
thousand
Can send 1 child to JA Camp for 1 week to learn valuable skills to take charge of their disease and develop lifelong friendships with other children living with arthritis. Could make the difference in funding of a promising research grant. Can fund a research grant for a talented scientist for 1-2 years. Your support can lead to better treatments and a cure for arthritis.
CHANGE A LIFE TODAY! Please contact your local Arthritis Foundation office to make a difference in the lives of the millions of adults and children with arthritis. page 11
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HAWAII SAN DIEGO INLAND EMPIRE 8555 Aero Drive, Office Suite 200 9140 Haven Avenue, Suite 109A Orange County Office Hawaii San Diego, CA 92123 Rancho9Cucamonga, TechnologyCA 91730 615 Piikoi Street, Ste. 1109 Irvine, CA 92618 858.492.1090 951.320.1540 Honolulu, HI 96814 Ph. 949.585.0201 Ph. 808.596.2900 Mailing Address HAWAII P.O. Box 130Diego Office San 760 Halekauwila Street, Suite 201 Clairemont Mesa Blvd., Suite 104 Rancho9089 Cucamonga, CA 91729 NEVADA Honolulu, HI 96813 San Diego, CA 92123-1288 808.596.2900 ORANGE Ph.COUNTY 858.492.1090 Nevada Office Toll-free: 800.462.0743 P.O. Box 53490 800.422.8885 1368 Paseo Verde Pkwy., Ste. 200B Henderson, NV 89012 Irvine, CA 92619 NEVADA Santa Barbara Office Ph. 702.367.1626 949.585.0201 2253 Las Positas Rd., Ste. A P.O. Box 778213 Santa Barbara, CA VALLEY 93105 Henderson, NV 89077 GREATER SACRAMENTO Ph. 805.563.4685 702.367.1626 1851 Heritage Lane, #183 Sacramento, CA 95815 Valley Office 916.368.5599 800 W. Sixth Street, Ste. 1250 Los Angeles, CA 90017 Ph. 323.954.5750
For more information, visit us online at arthritis.org!
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