Barts Charity Extra - Summer 2018

BARTS CHARITY

The future is now: robotic surgery is here Page 4

SUMMER 2018 MAGAZINE

things you 5 didn’t know about diabetes Page 16

Team GB Paralympic swimmer runs marathon for her Nan Page 20

Hello! …and a warm welcome.

Our wonderful supporters are making great things happen in the Barts Health hospitals. In this magazine you can read more about some of them – like Amy Marren, the Paralympic bronze medal winning swimmer who took on the London Marathon to say thank you for the care given to her late grandmother for over 30 years (page 20).

Since our last issue we have been very busy making extraordinary ideas a reality in the hospitals: from funding large projects such as robotic surgery to smaller initiatives that can mean a great deal, such as toiletry kits for the families of patients in end-of-life care. You can read more about our funding on pages 4-11.

We hope you enjoy this issue of Barts Charity Extra - please get in touch by email at hello@bartscharity.org.uk or by writing to Barts Charity, 12 Cock Lane, London, EC1A 9BU if you have any questions or feedback!

Thanks for your support,

Rachel and Felicity, Barts Charity Extra editors

A little bit about us…

Last year we gave over £28.5m to fund research, equipment and projects to provide extraordinary healthcare for patients.

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We’re the dedicated charity for the five hospitals of Barts Health NHS Trust: Mile End, Newham, St Bartholomew’s, The Royal London, and Whipps Cross.

We fund projects that are over and above what the NHS can provide, to ensure more patients receive healthcare that’s extraordinary.

News in brief

Only got a second?

Here’s some news in brief

09

We funded a world first ‘Sat Nav’ operation to treat lung cancer.

14

8 marathon runners braved blisters, chafing and 26.2 miles just for us.

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From volunteering to holding an event, there are many great ways for you to get involved!

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Expert Professor Magdi Yaqoob tells us about diabetes.

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Amy raised funds in thanks for the care her grandmother received.

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Where your money goes

The robots are here…

Robotic surgery may sound like something out of a futuristic sci-fi film, but in our hospitals, the future is now.

With one of our largest funding awards in recent years, robots are now in place at St Bartholomew’s and The Royal London Hospitals.

At St Bartholomew’s, the robot is the first in the UK to be dedicated to cardiothoracic cases, whilst at The Royal London, the robot is uniquely used across six different disciplines, including kidney transplants, gynae-oncology and ear, nose and throat surgery.

How does robotic surgery work?

Tiny incisions as small as 5mm are made for the robot’s arms, which have changeable miniature tools and a camera.

The surgeon sits at a console, immersed in live 3D images from the camera, seeing the robot’s surgical arms in magnified detail.

The surgeon operates the robotic arms with their hands and feet. There is a surgical assistant with the patient at the operating table.

This allows extremely precise and delicate surgery to be performed, that was previously only possible during open surgery.

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Where your money goes

Patient’s perspective Julie (right), 62, from Plaistow was the first patient to undergo a robotic hysterectomy at The Royal London Hospital: “I had robotic surgery in November. The surgeon Ms Brockbank (pictured above) said I was the first one but I wasn’t scared, I trusted her. It was great. If all the operations will be like this, patients will be back on their feet the following day.

It’s a small cut and you don’t feel any pain at all. I was home the following day, I walked from my room to the main entrance of the hospital. The healing process was very good, there was no pain. Ms Brockbank is amazing and I can’t thank her enough.”

Robotic surgery brings significant advantages for patients: Reduced blood loss Less pain Fewer complications after operations Shorter stay in hospital More patients can be treated

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Where your money goes

DID YOU KNOW?

Part of the workshop is identifying positive role models – did you know that David Beckham, Paula Radcliffe and Sadiq Khan have asthma?

Helping children breathe more easily UK children experience more hospitalisation from asthma than their peers in the rest of Europe, and shockingly, the asthma-related death rate is also higher here. Your support is enabling a team of researchers at Queen Mary University of London to work on ways to reduce this, by reaching and educating secondary school children about the condition. On average, around three children in every classroom have asthma, although numbers are typically higher in urban areas like London.

The My Asthma In School team

The team, led by renowned paediatric respiratory researcher Professor Jonathan Grigg, have created the My Asthma in School programme. They are using school-based workshops and theatre performances to help those with asthma to understand their condition and medication. The project will also educate their peers, aiming to reduce the stigma and bullying often associated with the condition.

The sessions are fun and use specialist games to engage students, such as Asthma dash!, which allows children a glimpse into a day in the life of a child with asthma using an interactive board game.

“This approach engages with children in a completely different way, on an emotional level. If we see positive results we’ll be able to use the data for a larger scale study to increase knowledge of asthma.”

Professor Grigg, Professor of Paediatric Respiratory and Environmental Medicine at Queen Mary University of London

Visit our website to see more like this! bartscharity.org.uk/news 06

Where your money goes

Marvellous machinery Sickle cell disease is the fastest-growing inherited disorder in the UK, and our local community in North East London has the highest rates in the country.

People living with sickle cell disease produce abnormal red blood cells and need blood transfusions to manage their symptoms, which include chronic lethargy, episodes of pain, and even strokes.

New machinery that we’ve funded at The Royal London Hospital is drastically improving this procedure for patients, halving the time it takes for each transfusion and doubling the time between transfusions.

“The new machines have made a significant impact on the lives of our patients with sickle cell disease. They have reported feeling better for longer, improving their quality of life.”

Aldine Thomas, the Lead Nurse in Haemoglobinopathies

Diagnosing children’s poop problems For children living with serious bowel conditions, constipation and soiling can have a huge impact on their home and school life. The Children’s Anorectal Physiology Service (CAPS) at The Royal Hospital London is now able to make speedier, more accurate diagnoses for these children using specialist ultrasound equipment that was purchased with our funding.

Speaking about the new piece of imaging machinery, Stewart Cleeve, Consultant Paediatric Surgeon said, “It’s transformed what we’re able to offer.”

His CAPS colleague Eleni Athanakos has been busy fundraising in some fun and imaginative ways! Not only did she embrace a vegan diet last December, she also organised a topical poo-themed pub quiz. One of the quiz questions was:

Bami, 22, has had two strokes because of her sickle cell disease

Q: How long is the longest poop ever recorded?

A: 7.92 metres 07

Where your money goes

Small touch, huge difference The cancer day unit at St Bartholomew’s Hospital is a busy one, seeing 70 patients for chemotherapy every day. The staff here work hard to help patients in so many ways.

As well as their wonderful care day-to-day, behind the scenes the team work closely with us, using kind donations from patients and their families to identify projects that will have a big impact on the experience for future patients…

The pre-assessment room

“The little things add up and really do make a difference to patients.

Barts Charity has been excellent, helping us with things we wouldn’t have been able to provide.”

Holly Nuttall, General Manager at St Bartholomew’s Cancer Centre

The snack menu

The pre-assessment room is the first room that people visit when they come for chemotherapy, where they have a serious conversation about the possible effects. This room was clinical and drab, but the team used generous donations made in memory of Carol Wells (see page 13), to create a welcoming and homely space.

The snack menu offers a range of treats for patients having chemotherapy.

Snacks like fruit pots help to keep energy levels up, while ice lollies satisfy the craving for something cold which a lot of patients experience.

Chemotherapy chairs Thanks to funds raised by family and friends of Patricia Blamire (see page 13) and Wanstead Golf Club, the team purchased six chemotherapy chairs. The chairs can fully recline and come with adjustable cushions, helping to keep patients comfortable during chemotherapy, which can last up to six hours each time.

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Where your money goes

‘Sat Nav’ surgery Anna, 65, was the first patient in the world to have her lung tumour destroyed using microwave radiation guided by ‘Sat Nav’ and 3D virtual reality, thanks to navigational bronchoscopy equipment that we funded.

Mr Kelvin Lau, consultant and lead for thoracic surgery at St Bartholomew’s Hospital, carried out the procedure. He says: “Navigational bronchoscopy allows us to safely and painlessly navigate through a patient’s mouth and airways to the tumour. Once at the tumour, we use microwave radiation to create a ‘kill zone’ to surround and destroy the tumour, while neighbouring tissue is protected.

“This heralds a new era where more patients will be cured of early lung cancer.

One in five people are unable to undergo the current treatment of radiation or an operation but we can now treat these patients using navigational bronchoscopy.

I am absolutely delighted.”

Anna was discharged the following day. If she had undergone a traditional operation to cut out the tumour, she would have lost a lot of lung and her breathing would have been impaired.

“If I wasn’t in hospital, I wouldn’t have known I’d had an operation. I feel physically and psychologically fantastic,” says Anna 09

Where your money goes AFTER

BEFORE

Stylish salon for oncology patients “The salon was clinical, plain, and always felt cold. It was doom and gloom.” That’s how Vicky Wood, Oncology Appliances Officer, described the room used for fitting oncology patients with wigs, prosthetics and post-surgical underwear at St Bartholomew’s Hospital.

But thanks to St Bartholomew’s Breast Cancer Support Group, the room has been transformed into ‘Vicky’s Place’, an uplifting and vibrant salon. This is one of many projects funded by the group, whose “What we all have provided with the money raised has been our way of saying thank you for the care we received as breast cancer patients.” Founding member Margaret Hazard (pictured centre, with fellow members Brenda Killwick and Valerie Bennett) 10

fundraising efforts have ranged from fashion shows to selling homemade marmalade.

Vicky has worked in the space for the last ten years and understands how important the environment is for patients at an extremely difficult time. She adds: “Patients have enough clinical appointments as it is. It’s made it so much more calming and welcoming.”

Where your money goes

Healing hands Parents and babies at The Royal London Hospital have been taking part in baby massage and yoga which has not only been proven to aid patient recovery, but also allows families some time to focus on something other than illness.

Looking at livers

Instructor Liz works mostly with parents to use their sense of touch, lower their stress levels and increase relaxation, which in turn encourages their babies to do the same.

While death rates from many diseases have steadily declined in recent years, deaths from liver disease have increased by a staggering 500% since 1970.

As well as working with babies up to two years old, Liz also includes children with developmental conditions of all ages in her sessions. Thanks to our supporters, a grant of £5,270 will allow Liz to visit the children’s ward every week for a year.

Thanks to £1.3m of our funding and some of the UK’s most knowledgeable experts on liver health, the Barts Liver Centre has been created to carry out more research into our largest solid organ.

Renowned in their field, Dr Patrick Kennedy, Professor Graham Foster and Dr William Alazawi (pictured) will research the liver diseases that have a big impact on our local East End population and all around the globe.

“It’s hard work with special care babies.

Momentarily I forgot about all the stress because Mikaeel was enjoying himself – the laughter and giggling is priceless.” Ruby, mum of Mikaeel

Their research includes: I mproving treatment for patients with hepatitis B nderstanding what causes fatty U liver disease eeing if an exercise programme can S improve the health of people who are drinking to a hazardous level “The Barts Liver Centre will be a focal point for liver-related research, and provide a springboard for further studies on this growing threat to the health of East Londoners.” Professor of Hepatology Graham Foster

Support projects like these: Text 'EXTR55 £5' to 70070 or see other ways to give on the back cover.

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Thank you

SUPER SUPPORTERS Thank you to our incredible supporters, who make extraordinary care possible in the hospitals. From seasonal bake sales to rainforest runs, we’re blown away by your fundraising efforts! Here are just a few examples…

Ryan Ryan has donated the winnings from a recent tennis tournament to support the cancer services at St Bartholomew’s Hospital, where he was treated for a stomach tumour as a child.

Ryan says “It’s my dream to play Wimbledon — I hope to be handing over a bigger cheque soon!”

Rosel A consultant anaesthetist at The Royal London Hospital, Rosel took on six marathons in six days in the Costa Rican rainforest, battling 35°C heat £2,000 and climbs of 2500m! All this to support our Transform Trauma appeal and improve the quality of life for those who have suffered major injury.

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Barts Health head office team The Finance and Central Appointments teams at the Barts Health head office are constantly getting creative in the kitchen for charity. The Finance team raised £470 for our Send a Smile with Santa appeal with a Christmassy cake sale!

Christmas cake sale

£470

Steven Steven Wise is kindly donating profits from his book “Life is a Joke” to us after years of his friends telling him to write down his stories and jokes. The book is available on Amazon, and here’s a taster:

“Scientists have found a gene in the human body that makes us shy. It was hiding behind another gene!”

Thank you

Helen

Carol’s friends and family

Helen’s dad sadly died from mesothelioma, a rare type of cancer. For her recent 40th birthday she asked loved ones to donate to St Bartholomew’s where he was treated, rather than receive any gifts, and donated £1,095 to the hospital. Helen hopes that one day, through vital research, people with mesothelioma can look forward to a happy future.

Carol was treated for breast cancer at St Bartholomew’s for several years, but sadly passed away in 2016. To honour her legacy and help future patients, the family fundraised £3,600 for the hospital, allowing the staff to makeover the chemotherapy pre-assessment room to make it more welcoming for patients (more on page 8).

Patricia’s family

£20,000

Patricia, a former patient at St Bartholomew’s, has had over £20,000 donated to the hospital in her memory. Her son Ian raised the incredible amount by organising a black-tie event and taking part in the Great North Run (more on page 8).

Bake off and raffle

£600

Newham Hospital maternity team

At the end of last year, the maternity team organised the Great Newham Bake Off and raffle. Participants from all over the hospital channelled their inner Mary Berry and baked some festive showstoppers which raised over £600 for us and the hospital’s ANNA Faculty for women’s health.

Jackie Jackie began fundraising for leukaemia research after her sister Ingrid’s diagnosis devastated the family.

With support from her employer Anglo American, Jackie recently donated £19,000 following her latest annual gala ball. This brings her fundraising total to an astonishing £60,000 since 2013!

Inspired to become a supporter?

Please visit bartscharity.org.uk to see how!

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A marathon effort

Meet our #Team Extraordinary London Marathon runners!

The sweat. The blisters. Hours of pounding the pavement. Running the London Marathon is no easy feat! But these amazing supporters did just that in April, for a range of personal reasons…

Alex Alex ran the marathon in April in memory of his father, grandmother and many others who have passed away from mesothelioma – a rare form of cancer that affects the lungs. He previously fundraised with the rest of his family – including their dog – taking on the three peaks challenge.

DUNCAN

Duncan

ALEX

Duncan ran as a way to give back after the care that his late father-in-law, Bill, received at St Bartholomew’s Hospital. Duncan’s family were greatly comforted by the excellent support that was given to the family both at the time of Bill’s passing, and in the following months.

Tyler Tyler ran to raise funds for us, less than one year after being injured in a road traffic accident!

He received emergency treatment at The Royal London Hospital and was determined to run as he believes that without the extraordinary care given by the staff there, he may have lost a leg.

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A marathon effort

Ian Ian ran for a number of reasons: we have funded projects in three areas that have impacted his family and friends (heart problems, cancer and autism), we are the chosen charity of his workplace Aspen UK, and the Barts Health hospitals have helped save the lives of his colleagues who work in the City. Ian also ran in memory of his father-in-law, Paul, who sadly passed away recently after a short battle with cancer.

Daniel

DANIEL

Daniel is a paediatric physiotherapist at Royal London Hospital – a department that specialises in the assessment, treatment and rehabilitation of children. His marathon run has raised funds for vital therapies and equipment such as treadmills, games, iPads and trampolines! All of which will support the brilliant work that Daniel and his team do each day.

Katie

Emily

Katie ran on behalf of Osborne Clarke Solicitors, an organisation who have supported us through their Charity of the Year programme, and brilliantly raised over ÂŁ55,000 over the past few years.

Emily ran the London Marathon as a thank you for the life-saving care her uncle received at St Bartholomew’s Hospital last year, following major complications from heart surgery.

EMILY

Fancy getting your trainers on and fundraising for us?

See all our running challenges at bartscharity.org.uk/get-involved 15

Diabetes

The low down on diabetes Diabetes has hit the headlines recently, as it’s been reported that diagnoses of the disease have more than doubled in the UK in the last 20 years.

Here are 5 things you might not know about the disease:

90%

of people with diabetes have type 2, and 10% have type 1. Both are linked to having abnormally high blood sugar levels.

Some mums develop diabetes during pregnancy. This is called gestational diabetes and usually disappears after giving birth but can cause problems for both mums and their babies.

Type 2 diabetes isn’t caused by eating too much sugar, although it is linked to being overweight – the disease is largely preventable through lifestyle changes like staying active and maintaining a healthy weight.

Around 1/3 of all people with diabetes do not know that they have the disease.

Type 2 diabetes is much more common in people of South Asian, African and African-Caribbean descent.

For further advice on diabetes please see: www.england.nhs.uk/diabetes 16

Diabetes

Meet the expert…

Professor Magdi Yaqoob, Professor of Nephrology at Queen Mary University London on diabetic kidney disease…

What is diabetic kidney disease?

Diabetic kidney disease is one of the most serious and life-threatening complications of diabetes which eventually leads to end stage kidney disease, requiring dialysis and/or transplantation to stay alive.

What are the main symptoms of diabetic kidney disease?

Unfortunately, diabetic kidney disease remains hidden, with no obvious symptoms until kidney failure has reached an advanced and irreversible phase. However, a simple urine test done annually can detect diabetic kidney disease in its very early, reversible stages. If detected late as is usually the case, then long-term outcomes are very bleak indeed. It is now the commonest cause of end stage kidney disease. It is the leading cause of blindness, cardiovascular problems like strokes, and amputations. Moreover, the 5 year patient survival rate is worse than many common cancers.

How can people prevent diabetic kidney disease?

Ideally, by preventing diabetes which in many cases is due to obesity and unhealthy lifestyle choices. Once diabetes is diagnosed then looking after the condition with optimal blood sugar control can prevent or at least significantly delay the development of diabetic kidney disease.

What is the key advice that you would like to share with readers?

The key to a healthy heart and kidneys (and particularly in diabetes) is in one’s legs and mouth. Use your legs to exercise more (at least a brisk walk for 30 minutes a day) and use your mouth sensibly by eating healthy food, drinking less alcohol and avoiding cigarettes.

Our grant of £3.4 million is helping Professor Yaqoob and colleagues to better understand diabetic kidney disease and improve outcomes for patients, by studying our diverse local community.

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Get involved!

DO SOMETHING AMAZING SIGN UP FOR AN ORGANISED CHALLENGE: Three Peaks Challenge 1-3rd September

British 10k Run 15th July London to Brighton Cycle 16th September

Santa Run 2nd December

HOLD YOUR OWN FUN-TO-DO FUNDRAISER! With summer fast approaching there are lots of ways to have fun whilst fundraising. Here are a few ideas… lastonbury might be having G a quiet year but that doesn’t mean you have to! Why not transform your garden into a mini music festival? rganise a summer adventure O scavenger hunt with a tasty picnic finish

et busy in the kitchen and treat G your loved ones to something extraordinary P ut your lycra on and get active with a sports day in the park ave your friends round for a ‘knit H and natter’ and sell your creations

See more ways to support us at: bartscharity.org.uk/get-involved 18

Get involved!

! s u h t i w r e e t n Volu We need volunteers in all of the Barts Health hospitals to help us reach more people.

Volunteers play a crucial role and are our most cherished ambassadors. There are many activities you can help us with: from staffing the charity hub, to distributing our leaflets, to cheering on our supporters during their fundraising challenges.

Help a great cause Meet people Learn new skills Improve your CV Have fun!

“I like volunteering at Barts Charity, it’s allowed me to promote the Charity to the staff and patients at The Royal London. I have been able to befriend the staff at Barts Charity and learn more about what I can do to help. It’s also rewarding to see the changes that are taking place – the café in the dementia ward, for instance, was a particular highlight!” Zarreena is a Biochemistry student at Queen Mary University of London

Do something amazing for patients across East London and get in touch today! Call Simon on 0207 618 1730 or email hello@bartscharity.org.uk 19

Supporter story

Why I support Barts Charity: Amy Marren Team GB Paralympic champion swimmer Amy Marren made the leap from water to dry land to take on this year’s London Marathon. Her Grandmother Irene was treated for cancer at St Bartholomew’s Hospital over the course of 30 years, and Amy wanted to fundraise to say thank you to the staff there, and give hope to other families in her position.

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Supporter story Back in 1997 when my Mum found out she was pregnant with me, she was actually visiting my Nan who was an inpatient on the cancer ward at St Bartholomew’s Hospital. Finding out my mum was pregnant really perked my Nan up, and gave her reason to get better and get home.

Nan was diagnosed with her first cancer 30 years ago, she went through copious amounts of surgery, and still came through.

However, three years ago Nan wasn’t too well and back at St Bartholomew’s they discovered the cancer was back and had spread to the lymph nodes and liver, and she was to undergo chemotherapy. It was all designed as a palliative plan, the cancer wasn’t curable or operable, but it was controllable.

Having never been on an oncology ward I wasn’t sure what to expect, but what I did see was care, compassion, and above all, treatment that was excellent.

Now I know why so many people come to St Bartholomew’s for their treatment.

The staff really are unsung heroes, they made my Nan’s time in their care enjoyable and it gave her a sense of comfort knowing that she was surrounded by such a huge team of dedicated professionals. They became like family in my Nan’s last few months and I know that she was always so grateful to see a team of smiling nurses, doctors and cleaning staff willing to help her.

The marathon was an incredible experience, without a doubt that hardest thing that I have done. To keep myself going, I reminded myself who I was doing it for... my Nanny and all of the other amazing patients at Barts.

It’s important to remember that for those fighting illness, every day is a marathon, and I hope that this is only the beginning of my fundraising journey for Barts.

My beautiful Nanny closed her eyes and was reunited with my grandad on 19th January 2018. After a long battle, my Nanny decided to gain her angel wings.

Amy raised over £5,000 by running the 2018 London Marathon: “As a swimmer it was totally different for me to take this challenge. Having swam in 2012 and 2016 Paralympic games I thought these were my greatest achievements to date. This is my greatest achievement, running for Barts Charity.”

It was in here that I found out about Barts Charity and the work they do, not only for the patients, but also for the families concerned. I made a decision that If Amy has inspired you to take on a challenge, given the chance I would run the or if you would like to share a story of your own, London Marathon to help raise please get in touch: hello@bartscharity.org.uk funds for the hospital.

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WHAT YOU’RE SAYING

Every day our lab @QMBCI works tirelessly to find new treatments for cancer. On #WorldCancerDay I’ll be thinking of the admirable people and patients I’ve known who have battled. Thank you @CR_UK @Barts_ Charity @The_MRC for ongoing vital support to help us beat cancer sooner @DrMusical

Five more miles done to get me ready for the #HackneyHalf for @Barts_Charity. Dodgy shins held up OK @clairedavis45

I have enclosed a cheque for £1 ,000 to Barts Charit y as a thank yo u for the except ional care I re ceived within Barts Tru st during my in itial diagnosis at Whip ps Cross Hospita l and successful surgic al tre atment at St Bartholomew’s H ospital - Cathy

ovided tly pr da Vinci n e c e r e the harity was The c to purchas mum be y y e M n o m ts to em. n t ie s t y a s p ot. robot the first e rob h t f o g y in one charit he on us e d h e t t a r to h t ope teful y mum wit ent a r g of m I’m emory treatm have m viding g w o e in r v n p lo not s for for ation in eeks at Bart would n o tunity e r d h o s p is p h o ing th ven w ck the s whic Haider am mak who spent se a heart atta 6A. My option erwise. – I th her ard ered had o my fat he re in w g suff

Follow us on social media:

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@Barts_Charity

/BartsCharity

@barts.charity

/bartscharity

for t l havin ich we Hospita eeks of wh ely grateful t his stay w ou rem last 3 d I are ext eived through an rec family are he a c g in d - Krin outstan

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