MAKE IT COUNT Barts Charity supporter magazine
Issue 2 – Winter 2016
A look back at
2016 Look at what you’ve helped us achieve! Plus, we look forward to what’s in store for next year ...
Also in this issue... How to Send a Smile this Christmas
New projects to help patients
A life-saving night of music
Hello! ...and welcome to issue 2 of Make it Count! This year our Send a Smile with Santa appeal is helping children and older people in the hospitals we support. Turn to page 4 to see how you can do something extraordinary with your phone to help a patient this Christmas.
Our Fantastic Fundraisers feature on page 16 highlights some of the amazing things you’ve been up to recently. We’d like to say a big thank you not just to these people, but to all of you who have helped us reach more patients in pursuit of extraordinary healthcare.
It’s not often you can say that one night can achieve so much, but on 19th November our Transformation concert did just that. With the help of 1,200 people, four great acts and three inspirational survivors, we lit up Shoreditch’s Village Underground to help more people survive traumatic injury. See what it was all about on page 12.
It’s inspiring for me to write about all of this – and for all of us here at the charity as we work with supporters, hospital staff, researchers and the whole community to achieve more.
And, with 2016 drawing to a close, we reflect on our year and what you’ve helped us achieve for patients not just in the hospitals we support but across London and beyond too. On page 10 our year in numbers tells the story – with a very special message from our Chief Executive Fiona about our plans for 2017 and beyond.
As always, we’d love to hear from you – please get in touch with any feedback, questions, what you’ve enjoyed reading – or just to say hello. Contact us at bartscharitynewsletter@bartshealth.nhs.uk Enjoy, Ben Editor
A little bit about us…
We’re the dedicated charity for the five hospitals of Barts Health NHS Trust (St Bartholomew’s, Mile End, Newham, The Royal London and Whipps Cross). 02
We support patients by funding equipment, research and other services to help staff deliver the best healthcare possible.
You can support wards or services of your choice. Patients in hundreds of different areas in the hospitals are receiving better healthcare thanks to your help.
News in brief
Only got a second? Here’s some news in brief
P4
It’s Christmas! This year, we want to Send a Smile to every child and older patient staying in the hospitals we support.
P6 Did you know 40% of patients with arthritis don’t respond to drug treatment? See how we’re helping.
P11 We’re planning to increase our funding over the next three years, to fund more projects and help more people.
P12
November saw us take over Shoreditch’s Village Underground for Transformation: a night of music in aid of our trauma appeal. See how 1,200 people and four acts helped us to #TransformTrauma.
P14 Sylvia has been supporting us with coffee mornings for the last 12 years, since her husband was diagnosed with cancer. See why this year took on extra meaning for her.
P17 In memory of his friend’s wife Sarah, Dan’s running a whopping six marathons in one year. He’s over halfway there!
03
Christmas
You may be reading this as a patient or a person visiting someone in hospital, or simply as someone who’s been in hospital before and knows what it’s like. It’s not something you’d describe as enjoyable. This is never truer than this time of year. Christmas is a time for fun, festivities, and happiness – three things that don’t tend to be associated with a stay in hospital! And this can be especially true for younger and older patients, for whom it can be a particularly lonely or upsetting time.
With your help, we want to bring a bit of togetherness and celebration to the wards of the hospitals we support. You can help us as we look to Send a Smile to each and every child and older patient this Christmas. With our Send a Smile with Santa appeal, you can help us ensure everyone has a present on Christmas Day – as well as raising vital funds to support the care of children and older patients not just at Christmas time but throughout the year.
Your donations will help in so many ways:
£5
could buy new “beads of courage” for a young patient to help them with treatment (see An hour with The Play Team, to the right)
04
£10
could buy a new jumper for an older patient to help them stay warm and cosy this winter
£25 could help towards the cost of a new sensory toy, which helps young patients when they’re feeling distressed or overwhelmed
Christmas
An hour with The Play Team: A four-year-old patient is coming in for a blood test. Michelle, Play Specialist, explains to her what’s going to happen. Knowing she likes Frozen, she describes the anaesthetic spray as “Elsa Spray”, as it’s cold like Elsa’s powers in the film. Michelle also takes a Frozen sing-along book to the treatment room to distract her. Distraction can be a powerful way to help children cope, taking their attention away from treatment that can be scary or daunting. A three-year-old patient with cancer receives new “beads of courage” for his latest hospital treatment. Children are awarded a bead for each treatment they receive and special beads for milestones and bravery. The beads also help parents and children review the journey they’ve been on. For older children it helps them increase the use of positive coping strategies, find meaning in illness, and restore a sense of self.
To donate no w with your phone, text BTLC25 £5 to 70070. Thank you.
The Children’s Hospital Play Team The team help more than 50 children every day. Their work goes above and beyond play, for example:
Older People’s Services
• Helping children come to terms with why they’re in hospital.
The staff care for hundreds of older patients across the hospitals we support.
•U sing specialised resources to explain treatments such as chemotherapy (for example, dolls with Hickman lines - a catheter used to administer medication).
Christmas can sometimes be a lonely time for older people, especially for those who may not get visitors. With your help we can make Christmas a little bit brighter.
• Organising themed parties and activities to help children be children, even while in hospital.
How can I help? Donate now with the text number above, visit bartscharity.org.uk/donate and select “Send a Smile with Santa” when prompted, or use the form on the back of this magazine. 05
Impact
Funding extraordinary healthcare With your help we’re achieving amazing things and reaching more patients every day.
£15,302
Helping patients with arthritis get the relief they need Arthritis is an incredibly common problem, but up to 40% of patients don’t respond to drug treatments. As well as this, there’s no way of predicting whether a person will respond. The disease also does its worst in the first two years of being present, meaning early treatment is critical. Eight years ago, we awarded £498,000 to Professor Costantino Pitzalis and his team – investing in the goal of making a positive change to the way people with arthritis are treated. Professor Pitzalis has now pioneered the creation of the Early Arthritis Referral Centre (EARC). The Centre is seeing 2,500 patients per year, and is giving personalised treatment within two weeks of referral. Following treatment for arthritis, 17% of patients in the UK typically go into remission. At the EARC, it’s 24%. This is a demonstration of the power of research to deliver real clinical benefits to “We wanted to help the thousands of people suffering because they weren’t getting the right treatment early enough. Without Barts Charity’s funding, all we have achieved would have been impossible.” – Professor Costantino Pitzalis 06
DI D YO
patients not just in London, but around the world – this work is now leading to clinical training to help people across Europe and the USA.
UK
NOW? Around 1 0 m illion people in arthritis the UK have – and it affects people of includin all ages, g childr en. For mo re m edic see nhs. al info, uk
Not only that, but Professor Pitzalis has shown the strength of his work with 191 research publications and funding from various organisations for his work now totalling over £20m. Next steps for the team will be the development of an app to help patients assess their joint problems themselves, as well as continuing to accelerate the development of new drugs and increasing the capacity of the EARC. This research is helping to give the right drug to the right patient, first time – treating a chronic pain problem that as many of you may know can cause immense discomfort.
Impact
Grand designs: Enlivening hospital walls There’s increasing evidence of the positive effects art can have on recovery and creating calming environments, and the last few months have seen a host of new artwork being introduced to wards across the hospitals we support. The Tayberry and Thistle dementia wards at Newham Hospital have been transformed: Thistle Ward has become “Thistle Street”, with artwork mimicking a residential street. Tayberry Ward is now adorned with iconic London landmarks on its walls and doors. Our thanks go to Vital Arts and the designers who worked on these projects. The Adult Critical Care Unit (pictured above) at The Royal London has become a more welcoming area for relatives thanks to the initiative of Dr Parjam Zolfaghari, and the help of two local designers from RUDE art. Dr Zolfaghari and the ACCU team wanted to add some warmth and colour to the waiting area and relatives’ room – and we think that’s definitely been achieved!
“We wanted this to be an area that is welcoming and comfortable for those who visit the ward in very difficult and distressing situations.” – Dr Parjam Zolfaghari
DID YOU
KN
OW? Donors’ generos it has alw ays supp y orte St Barth olomew d ’s dating b ack centu – ries to the 1 100s.
The history of St Bartholomew’s is celebrated in a hospital timeline (pictured) found in the lower ground floor of the KGV wing. The display features a range of historical facts – such as the hospital menu in the 1300s. Any guesses?... Bread, beans and beef – plus half a gallon of beer a day per person! And new pictures are being put up in cancer ward 5c at St Bartholomew’s, too – we expect completion of this soon.
Want to get our news direct to your inbox? Sign up at bartscharity.org.uk 07
Impact
Summer at Acorn Ward with all-new garden… In the last issue of Make it Count we told you about the new garden for children staying on Acorn Ward at Whipps Cross Hospital. During the summer, it was officially opened on a gloriously sunny day with two young patients cutting the ribbon. The redeveloped garden features sensory equipment, carefully selected planting and even a bug hotel! Ghislaine Stephenson, the Associate Director of Nursing for Children, said: “The new garden is a fantastic addition for both patients and hospital staff. “It is a great resource for the teachers in the schoolroom and for patients and their families it will mean a much more welcoming, friendly and fun area to explore as a break from the ward. “Our thanks go to Barts Charity and their supporters for their help in funding this project – it will make such a big difference to our patients.” 08
Impact
…and new adolescents’ room Teenagers on Acorn Ward also now have their own space where they can enjoy a break from the ward. The new adolescents’ room has been designed by patients, and features a TV with a games console and DVDs. This particular project is the culmination of the wonderful fundraising of ex-Acorn Ward patient Rob Ross (pictured), whose “Year of Activity” in 2015 raised nearly £6,000 to enable the redevelopment of the room. “I have many memories of my time there… however now as a parent it has struck me how unaware I was of the stresses and pains parents must go through seeing their loved ones admitted to hospital. “I wanted to give something back and do something positive for the ward.”
Thank you to all our supporters for helping us achieve results like these: your help means we can reach patients in so many extraordinary ways.
Rooms with a view Patients and their relatives on Maple Ward at Newham Hospital have a relaxing new outdoor area to enjoy a break from the ward environment. The sunny terrace on the second-floor orthopaedic ward has a range of chairs, tables and specially-selected planting – including a maple tree – as well as views across London. “This area is perfect. I’m really worried about my sister having an operation. It is perfect to take my mind off the situation.” Mark O’Halloran, Ward Manager, said: “This is exactly the impact we were hoping for. It’s important that patients and their relatives feel as comfortable as possible on the ward. Our thanks go to Barts Charity for making this possible.” 09
Barts Charity 2016
Our year As 2016 draws to a close, we’d like to say a big thank you for everything you’ve helped us to achieve during the year.
We’ve given
£7,071,057
towards ground-breaking research, cutting-edge equipment, and extraordinary community projects to help patients in the hospitals we support, our community, and further afield, covering
50 areas of health
135
research projects are in progress - including Dr Mark Wilks’, who, with
£495,000
funding, is examining new ways to identify infection quickly and accurately – already helping to save lives in difficult cases
£30m:
We committed to significantly increasing our funding over the next three years (see Fiona’s message, right), to enable us to fund more projects and help more people.
Your support will help us achieve this goal. 10
Barts Charity 2016 You superstars did more
challenge events for us than ever before, gathering in numbers to take part in the London Marathon, Hackney Half Marathon, Machu Picchu trek, and many more!
62: One fearless
fundraiser, Francis, went the extra mile – or 62 – with a run from London to Brighton to support patients with cancer
Our plans for 2017 and beyond It's been an exciting year for us at Barts Charity, and particularly for me in the months since I joined in May - it's been amazing to see first-hand the results we're achieving for patients every day with your help. Thank you. I'm especially pleased to be able to say that, for each of the next three years, we'll be significantly increasing our annual funding - taking it close to the £30m mark each year. This is up to three times more than our current level. As a charity, we've been lucky to have the support of the people of London for centuries, dating back to the opening of St Bartholomew's Hospital in the 1100s. It's because of the generosity of our community in this time that we have an endowment that ensures we can continue to fund projects with clear patient benefit year on year.
You baked, celebrated, golfed, quizzed, sang, bowled, knitted, collected, cycled and climbed – all for your own meaningful reasons, and all to help more patients receive healthcare that’s extraordinary
We were shortlist ed for a
Charit Times Awy ard
(but sadly did win... ma n’t ybe next yea r!)
Thousands of patients across five hospitals with a catchment area of
2.5 million
received better care, with the help of your support
We've taken this step to increase our funding in recognition of the great need in our communities - the hospitals we support serve one of the UK's most diverse communities, with millions relying on them every year. With this commitment, we can fund even more extraordinary projects that will make a real difference to patients in our hospitals, across London, and beyond - driving real improvements in health. I look forward to what the future holds and to meeting many more of you in the months and years to come. Thank you so much to all of you for your support.
Fiona Miller Smith Chief Executive 11
Events Becky Hill
A MUSIC EVENT TO
CHANGE LIVES
On 19th November, four artists, three inspirational survivors, and one incredible 1,200-strong crowd gathered together at Shoreditch’s Village Underground to raise awareness for our trauma appeal and help us #TransformTrauma.
12
Trauma survivors spoke to the crowd, along with a surgeon from The Royal London Hospital
Rukhsana Merrise
Beach Baby
Our host Sophie Morgan
Events
The artists Chart-topper Becky Hill, double MOBOnominated Kojey Radical, indie four-piece Beach Baby, and singer-songwriter Rukhsana Merrise joined our host Sophie Morgan. Sophie, who co-hosted Channel 4’s Paralympic coverage earlier this year, shared her story of how she ended up paralysed from the waist down after being involved in a car accident aged 18. She spoke movingly of the impact trauma can have, and how it can happen to anyone. And the real stars of the night were the three trauma survivors - Chris, Sabrina and Ben - who shared their stories with the crowd.
The issue Trauma is the biggest killer of under 40s in the UK – that’s more than heart disease, more than even cancer, and it’s something that can happen to anyone at any time. Trauma is what happens when the body sustains a severe physical injury from an external force, such as a fall or a traffic accident. These events demand a quick response so it’s vital that NHS staff are equipped with the best tools and techniques to combat their effects.
Funding research makes this possible. Ben Crabbe discovered this when he was involved in a motorcycle accident three years ago. At the age of 26, Ben’s accident caused a broken femur, a broken forearm, a deflated lung, three broken ribs, and a severed spinal cord. Ben is now paralysed from the waist down but he is alive thanks to the treatment he received at The Royal London Trauma Centre.
“The Royal London was what got me through,” said Ben, who is now an accomplished wheelchair tennis player, hoping to one day compete in the Paralympics.
What are we doing about it? Research saves lives. Our trauma appeal funds research at the Centre for Trauma Sciences to help staff at The Royal London – as well as across London and internationally – learn more about the body’s response to critical injury. Nearly 50% of the Centre’s work has been funded by us in the last three years, and now we’re calling on you to help us continue that. To help us save more lives.
DI D YO U KNO W? Our fun ding ha s h elped to incre surviva ase rates of l from t raumat injury b ic y last five 50% over the years – an estim sa ated 60 ving 0 lives across London .
With Transformation, we shone a light on trauma, and the extraordinary survival stories of people treated at The Royal London. Our aim to #TransformTrauma doesn’t end there, though. Get in touch if you want to find out more, or to get involved.
You can join the fight by donating with your phone – to help more people like Ben: text TRMA15 £5 to 70070.
Ben: survivor Ben tells his story in our YouTube feature: scan the QR code to view, or visit
bit.ly/seeben
Ben Crabbe
13
Supporter story
Why I support Barts Charity: Sylvia What a difference cake and coffee can make: Sylvia’s shown her amazing dedication with an annual garden bake sale for the last 12 years. Raising over £3,600 to date, the reason she’s been doing it all is her husband, Ian. Ian was diagnosed with lymphoma, a type of cancer, 12 years ago, and receives treatment at St Bartholomew’s Hospital. Now, Sylvia herself has been diagnosed with cancer – mesothelioma – an aggressive type of cancer commonly affecting the lungs, associated with asbestos exposure in earlier life. Here, she tells her story: “I have cancer. So does my husband, Ian. His is lymphoma and mine is mesothelioma. “St Bartholomew’s Hospital in London is a centre of excellence for both these cancers, and we have received the very best of treatment. “It attracts the best surgeons, oncologists and researchers, and much valuable work is being done there to improve outcomes for patients. “Ian and I have been raising money for Barts Charity by holding our famous annual Coffee Mornings in our house and garden, with homemade cakes and plants for sale, since Ian was diagnosed 12 years ago. 14
“Ian and I have been raising money for Barts Charity by holding our famous annual Coffee Mornings in our house and garden, with homemade cakes and plants for sale, since Ian was diagnosed 12 years ago.”
Challenges
why not... The mesothelioma research we are funding aims to understand the biology of malignant mesothelioma, in order to find better treatments. St Bartholomew’s is home to one of the largest outpatient clinics in the UK for patients with mesothelioma.
“Now that I’m fighting mesothelioma – which has involved two operations, one of which was six hours long – we can’t make the Coffee Morning this year.” Instead, Sylvia raised funds earlier this year with a “non-Coffee Morning”, asking people to donate online. “Please imagine you’re in our garden on a lovely summer’s day, eating flapjacks and chatting with friends, and make a donation to Barts Charity’s mesothelioma research fund. “The research is crucial, as the chemotherapy currently adds only two or three months to life expectancy. “St Bartholomew’s is one of the few hospitals that offers the surgery that I needed. Currently, researchers there are working on a trial combining immunotherapy and chemotherapy. “Please help them continue with their ground-breaking work, and hopefully we’ll be able to make our Coffee Morning again next year.” Have you been affected by this story? Or would you like to share a story of your own? Please get in touch: bartscharitynewsletter@bartshealth.nhs.uk.
challenge yourself! London Marathon Do you have a ballot place in the 2017 race and would like to find out more about joining #TeamBarts? Or would you like to register interest for the 2018 race? Get in touch with Ellie (details below).
Hackney Half Marathon It’s the race that takes you through the Olympic Park and Hackney’s green spaces. Taking place in May, registrations will open soon.
The British 10k A summer 10k through the heart of London. Get in touch with Ellie for more details.
Feeling adventurous? You can take your challenge further afield with a Great Wall of China or Machu Picchu trek, like Stuart did (see p17).
Get in touch: Email Ellie at eleanor.francis@bartshealth.nhs.uk or call 020 7618 1721 to find out more about any of these events or to get started! Head to bartscharity.org.uk/getinvolved for more info on all our challenges. 15
Thank you!
MEET SOME OF OUR...
FANTASTIC FUNDRAISERS!
extraordinary things to make Some of the inspiring people doing support a difference to the lives of those we
Katie and her children Katie and her children Henry and Meredith: £149 for St Bartholomew’s Hospital, following Katie’s treatment for follicular lymphoma
Play Team
Career Moves
The Play Team: £1,059 from their Play Week bake sale to help more children have the benefit of play in hospital
Staff at Career Moves: £145 from their office bake-off, as part of their ongoing charity of the year support
Rainbow Ward
Carys
Newham Hospital’s Rainbow Ward: over £500 to provide a boost to their service
Carys and the Radiotherapy Team (with the help of Carys’ mum!): £946 for their department
Are you a budding Paul Hollywood or Mary Berry? Why not try your hand at a bake sale or coffee morning to help us reach more patients. Get in touch:
bartscharitynewsletter@bartshealth.nhs.uk 16
Thank you!
Andrew Garden party
£6,000
Fred
Fred and his wife Maureen raised £6,000 for the Bodley Scott cancer wards with a garden party. Fred took part in a trial at St Bartholomew’s after he was diagnosed with cancer. The trial has been amazingly successful so far and Fred’s cancer has subsequently gone into remission.
Family fun day
£800
Michelle
Michelle, together with friends and family, commemorated her cousin Susan with a family fun day, raising over £800 for the Cystic Fibrosis Unit.
Pub quizzes
£1,300
Louise Louise has been running a pub quiz each month for over a year, raising over £1,300 to date for the Breast Assessment Centre after a friend of hers was treated there.
Royal Andrew ran the parks half Royal Parks Half one year on from having a live donor kidney transplant. Both he and his son Tristan have an inherited kidney disorder, and they tackled the 13.1 miles together – raising over £1,000 for our Renal Disease and Transplant Research.
£1,000
Stuart
Machu Picchu trek
£4,600
Stuart’s raised £4,600 with a trek to Machu Picchu. He was inspired when he saw one of our posters while undergoing treatment in hospital after lifesaving open heart surgery.
Dan In memory of his friend’s wife Sarah, Dan is running a whopping six marathons in one year – each of the World Marathon Majors, taking him around the world. His target is £4,000, to be split with our Breast Cancer Research fund and Walk the Walk charity. Four down and two to go for Dan!
Six marathons in a year
£4,000
Thank you to everyone doing something to help us reach more patients. You can get involved at bartscharity.org.uk/getinvolved. 17
Fundraisers in focus
Fundraisers Quick-fire questions with Lynda, Dementia Lead Nurse, from the Dementia and Delirium team. Lynda and her team work across Newham, St Bartholomew’s, The Royal London and Whipps Cross Hospitals. Can you tell us more about your work and the patients you care for? Our work is very varied. We see people living with dementia who are admitted to hospital and experiencing distress. We also offer carer support and clinical advice. The advice we give is often about providing holistic care and getting to know the person. Can you tell us a bit about your team? The team consists of 11 clinical staff: nurses, an occupational therapist and healthcare assistants. We’re lucky to have an enthusiastic, motivated and imaginative team who are more than willing to go above and beyond… You’ve done some incredible activities to raise funds to help patients with your service this year. Can you tell us more and explain some of the motivations? I ran the Hackney Half Marathon in May to start off our fundraising in 27 degrees! We’ve also done numerous cake sales,
in focus sponsored walks and raffles. We started to raise funds for small things for our patients, and to have money to support the development of staff in our team too – such as Namaste training for all the team, which helps us provide care at the end of life or to ease distress in patients. One of the initiatives we’ve taken forward is getting the community and staff from all the hospitals to knit “Twiddle Cuffs” for us – sensory cuffs to keep patients living with dementia warm and entertained, reducing stress when admitted to hospital. What’s next for you and your team? Our biggest project is at Whipps Cross Hospital where Barts Charity gave a large grant for us to develop five dementiafriendly areas in the older people’s wards; this is being led by Lucy Cosgrove, Clinical Nurse Specialist at Whipps Cross. The aim is to provide environments for patients living with dementia that are bright, calming and feel less sterile than the traditional ward environment. There’ll be space for patients to eat together and socialise and areas created for relatives and patients that are calm and comfortable. We’re holding a photography competition for pictures to display on the wards – some of which will be made into dementiafriendly jigsaws! The funds we’ve raised will help with this too. Have you got any more fundraising planned? We’re committed to improving the lives of our patients living with dementia and Emma Krzyz, Dementia Clinical Nurse Specialist is running the London Marathon in April. We’ll be there to cheer her along! I’m doing the 10K Santa Run in December with a friend from Scotland who is also raising funds for us. And we’ve planned a few cake sales and raffles to help Emma reach her target of £2,500!
18
Your say
WHAT YOU’RE SAYING Lynda McNab @lynda_mcnab @Barts_Charity one happy DaD Team at the Barts Health Hero lunch...3 nominations – February will see the Barts Health hero awards take place. The Dementia and Delirium team are nominated for the Barts Charity Ambassador Award and Best Charity Fundraiser Award. They’re also nominated for a Barts Health award. Career Moves Support @CMGsupport #ThrowbackThursday to our fab bake off last month for @Barts_Charity! Can’t wait to take part in the upcoming #fundraisers for Christmas! HBV Research QMUL @HBVResearchQMUL Big thanks to @Barts_Charity for your help with our research programme into hepatitis B infection #HBV.
Scar Trek @scartrek2016 @triff and @MathildeTaylor smashing Machu Picchu for @Barts_Charity and @amnesty - 50km, 5 days, 2,500-4,500m above sea level.
TARN @TARNaudit Join @AfterTrauma & @Barts_Charity in Nov @ ‘Transformation’ a concert to raise awareness of the impact of traumatic injury #TransformTrauma – The national Trauma and Audit Research Network got behind our Transformation event (see p12).
Join the conversation! @Barts_Charity /BartsCharity bartscharitynewsletter@bartshealth.nhs.uk Or write to us: Barts Charity, 12 Cock Lane, London EC1A 9BU
Dan Carter @DanRC78 4/6 @WMMajors completed, and £3.5k raised for @Barts_Charity and @WalktheWalk! Smashing breast cancer one km at a time! Michael Harrison @micularison @Barts_ Charity @NHSBartsHealth Thanks Barts Charity for supporting our “Treats menu” for chemotherapy daycare patients #makingadifference
Sign up online to receive monthly e-news about how your support is making the difference, every day: bartscharity.org.uk (e-news sign-up can be found at the bottom of the homepage). 19
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