BARCELONA PID FOUNDATION
ANNUAL REPORT 2015
FUNDACIÓ BARCELONA PER A LES IMMUNODEFICIÈNCIES PRIMÀRIES A PEDIATRIA Registre de Fundacions de Catalunya número 2.859. CIF: G66351933 ADDRESS Av. Diagonal 467, 5è 2ª, 08036 Barcelona Tel: 934.893.140 WEBSITE www.pidfoundationbcn.org E-MAIL ADDRESS pid_barcelona@pidfoundationbcn.org
INDEX
LETTER FROM THE PRESIDENT 1.
ABOUT US • • • • •
WHAT ARE PID? WHO ARE WE? FOUNDATION BOARD MISSION / VISION / GOALS FINANCIAL INFORMATION
2. STRANDS OF WORK • • • • •
RESEARCH TRAINING / EDUCATION AWARENESS PATIENT CARE MANAGEMENT
3. ACTIVITIES 2015 • • • • • • •
INSTITUTIONAL RELATIONSHIPS SOCIAL ACTIVITIES, AWARENESS AND FUNDRAISING TRAINING SOCIAL SUPPORT RESEARCH SUPPORT TO ACTIVE CAMPAIGNS MEDIA / SOCIAL NETWORKS
4.
FRIENDS OF THE BARCELONA PID FOUNDATION
5.
PARTNERS AND ACKNOWLEDGEMENTS
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LETTER FROM THE PRESIDENT Dear all, We address you with full satisfaction for the entire job done and lighting enthusiasm for all that remains to be done. In only a year and a half the Foundation has become a reference in the world of primary immunodeficiencies (PID)
in
Catalonia
and has started
its
internationalization process with the establishment of network relations with foundations and associations all around the world, a fact that makes us feel very proud of the work done during this time.
This report includes the results of all the efforts devoted to the field of research, training and social support that outline our foundational purposes. It is difficult to highlight a single activity among all that have been undertaken, but we want to place special emphasis on the institutional support received from the Parliament of Catalonia ahead of the introduction of neonatal screening in our country for the most serious form of PID, the so called “bubble babies”, the announce of training grants that have improved the training of professionals dedicated to the field of PID and the performance of social events with significant impact such as the benefit concert for PID in the Marimurtra Botanical Garden in Blanes or the charity dinner in the gardens of Maria Reina de Pedralbes in Barcelona. The culmination this first year’s work has been the massive balloon launch during the world PI week in which children, health care professionals and institutions joined their efforts to take off our message around the world. We also want to highlight the establishment of official agreements with the University Hospital and Research Institute Vall d'Hebron that have allowed carrying out the project of global care for patients and families with PID “I have PID. I am not alone” with the indispensable support of the Obra Social La Caixa. 4
And all this work would not have been possible without the selfless
participation of many individuals, organizations and institutions as well as the support of our co-workers and sponsors. Clear examples are all individuals and organizations that have already joined the campaign "You are the missing piece of the puzzle" and who we especially want to thank for their involvement from this letter. Similarly, the relationship with the patient and family associations and campaigns arising from the different social environments is essential to cover all the fields that will allow an excellent global and comprehensive care for patients and families living with PID. As incoming and outgoing presidents we know that we have to continue working hard and much remains to be done to put the knowledge of the PID where it belongs. You can count that we will get on it with as much or more enthusiasm that during this first year. And you? Do you want to be the "missing piece of the puzzle"? We address you all to our website (www.pidfoundationbcn.org) and our
social networks for more information about PID and the work done from our foundation as well as access to the periodic newsletters that will keep you updated.
C. Figueras Nadal
P. Soler PalacĂn
Outgoing President
Incoming President 5
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ABOUT US
ANNUAL REPORT 2015 / ABOUT US
WHAT ARE PID?
Primary immunodeficiencies (PID) are a group of more than 200 congenital diseases caused by quantitative and/or functional defects in the immune response and are mainly found in pediatric patients. They affect 1 in 2000 live births and are considered to be rare diseases. Children affected by PID have a higher susceptibility to severe infections, autoimmune disorders, cancer (leukemia, lymphoma) and allergy. The most severe form of PID is severe combined
immunodeficiency (SCID), the so called "bubble babies".
WHO ARE WE?
The Barcelona PID Foundation (BCN PID Foundation) is a non-profit organization founded in 2014 by a group of health professionals dedicated to treating patients with PID and associated infectious complications and family members of PID patients.
It is registered in the Registre de Fundacions de la Generalitat de Catalunya with the number 2859. The geographic scope of the BCN PID Foundation is primarily Catalonia. However, its work can spread to the rest of Spain and internationally.
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ANNUAL REPORT 2015 / ABOUT US
FOUNDATION BOARD EXECUTIVE BOARD OF TRUSTEES
The founding board consists of PID experts and relatives of patients. Its task is to accomplish the foundational goal and to guarantee the appropriate management of the foundation’s assets.
1.
2. PRESIDENT *
3.
VICE PRESIDENT *
SECRETARY
1. 2. 3. 4. 5.
5.
4. TREASURER
VOCAL *
CONCEPCIÓ FIGUERAS NADAL, MD, PhD PERE SOLER PALACÍN, MD, PhD ANDREA MARTÍN NALDA, MD MRS. AURORA FERNÁNDEZ POLO MRS. CARLOTA VILLAR AMER
* At the board meeting of October 7th, 2015 the next renewal charges were adopted unanimously: CONCEPCIÓ FIGUERAS resigns as President and will continue as VOCAL; PERE SOLER who held the position of Vice-president becomes PRESIDENT; and CARLOTA VILLAR who held the position of Vocal becomes VICE-PRESIDENT.
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ANNUAL REPORT 2015 / ABOUT US
MISSION
The mission of the BCN PID Foundation is to provide support for PID and to promote their knowledge, research and care of patients with PID and their families.
VISION
The vision pursued by the BCN PID Foundation is that children suffering from PID have a better quality of life during the evolution of the disease and try to encourage social supports to achieve it.
GOALS
1/ To promote research and awareness of the PID that may arise in
pediatric patients
2/ To support comprehensive health care of patients with PID and improve their quality of life through informative, educational, and clinical advice and social assistance campaigns.
3/ To enable and facilitate interdisciplinary links between healthcare professionals, research groups and patient and family associations.
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ANNUAL REPORT 2015 / ABOUT US
FINANCIAL INFORMATION FUNDS RAISED
The BCN PID Foundation is committed to being a responsible entity, efficient and transparent with the funds received.
WHO HAS GIVEN US FINANCIAL SUPPORT? Most of the income is from private donors, charity events and awareness campaigns.
56.626€
Obra social La Caixa 24% Private donations 13% JMF grant 5%
EXPENSES
Awareness and fundraising campaigns 39%
Industry donations 19%
DESTINATION OF THE RESOURCES More than 50% of the budget in 2015 was invested in the promotion of knowledge, study, research and dissemination of PID. Almost 30% was invested in the training in PID of professionals, with the creation of the "Jana Esteve” grants for young researchers. In 2015 we also began to help patients and families with PID to improve their quality of life.
14.515€
During 2015 we rolled out support tasks to help pediatric patients with PID and their relatives who are treated in the Pediatric Infectious Diseases and Immunodeficiencies Unit (UPIIP) of the Hospital Universitari Vall d'Hebron (HUVH) in order to improve their quality of life.
Management 13%
Training / Education 28%
AIMS FOR 2016
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Social support 5%
Awareness campaigns 54%
In 2016 we will continue allocating funds to the dissemination and knowledge of PID. We will continue working in comprehensive health care programs for pediatric patients affected by PID. We will also create new training grants for young researchers. In addition, this coming year we will assign funds to research projects such as GAMMACAT or PIDIVIG.
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STRANDS OF WORK
ANNUAL REPORT 2015 / STRANDS OF WORK
RESEARCH
We work to support research to improve scientific knowledge about PID and fight for prompt diagnosis of the more severe forms of PID (to promote newborn screening programs). Projects: o o o
TRAINING EDUCACTION
Support newborn screening programs. Treatment with gammaglobulin replacement. Next generation genetic studies using massive sequencing (exome).
We train doctors, researchers, and students on PID. We offer clinical advice and health education programs in PID and its infectious complications for nonspecialized professionals nationally and internationally. Projects: o o o
AWARENESS
National and international training grants. Research grants. Scientific and social conferences.
We design advertising strategies to raise awareness of PID and its infectious complications. Projects: o o o
PATIENT CARE
Support for the World PI Week (WPIW). Collaboration with the Jeffrey Modell Foundation (JMF) and other foundations. Awareness, entertainment and fundraising campaigns.
We provide support and expert medical recommendations to PID patients and patient associations. Projects: o Social support: food and transportation grants. o Psychological support to children suffering from PID and their relatives. o Adaptation of outpatient and inpatient clinical areas.
MANAGEMENT
Project coordination of internal functioning to achieve foundational goals. 13
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ACTIVITIES 2015
ANNUAL REPORT 2015 / ACTIVITIES 2015 / INSTITUTIONAL RELATIONSHIPS
INSTITUTIONAL RELATIONSHIPS COOPERATION AGREEMENT BETWEEN THE HUVH AND THE BCN PID FOUNDATION
On December 9th, Dr. Vicente Martínez Ibáñez, Manager of the Hospital Universitari Vall d’Hebron in Barcelona, and Dr. Pere Soler Palacin, President of the BCN PID Foundation signed a cooperation agreement between both entities. This agreement will allow an improvement in the care of pediatric patients suffering from a PID that are treated at the Unit of Pediatric Infectious Diseases and Immunodeficiency (UPIIP), Hospital Universitari Vall d’Hebron in Barcelona.
AUDIENCE AT THE PARLIAMENT OF CATALONIA
On May 19th we were honoured to be received in audience by the Honorable President of the Parliament of Catalonia Mrs. Núria de Gispert. During the meeting, we exposed the task of the BCN PID Foundation and the importance of early diagnosis of the most severe forms of PID to improve the survival of the affected children handing over a letter requesting for newborn screening of SCID to be included in the universal newborn screening in Catalonia.
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ANNUAL REPORT 2015 / ACTIVITIES 2015 / SOCIAL ACTIVITIES, AWARENESS AND FUNDRAISING
SOCIAL ACTIVITIES, AWARENESS AND FUNDRAISING TENNIS TOURNAMENT OPEN BANC SABADELL – 63rd CONDE DE GODO TROPHY
The BCN PID Foundation took part in the GODO
THE BCN PID FOUNDATION IN THE TITAN DESERT 2015
The cycling teams, Doctore Bike and Mis Iberica-Victoria
tournament raising awareness of PID. Among others, Àlex Corretja, former professional tennis player, joined our
campaign "You're the missing piece of the puzzle".
(the Limoncello’s), wore our logo in their equipment helping us raise awareness of PID during the Titan Desert
by Garmin 2015, one of the hardest MBT race through the desert.
ONE DAY WITH THE RCD ESPANYOL
On April 21st, the RCD Espanyol from the Spanish Football League “la Liga” invited a group of children with PID to watch its first team training session. At the end of training, players took photos with children as a demonstration of support for the BCN PID Foundation. It was an unforgettable morning and children enjoyed spending time with these great players and better human beings.
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ANNUAL REPORT 2015 / ACTIVITIES 2015 / SOCIAL ACTIVITIES, AWARENESS AND FUNDRAISING
WORLD PI WEEK
On April 22nd, for the World PI Week 2015, 250 balloons were released, one for each PID known, at the Hospital Universitari Vall
BALLOON LAUNCH FOR PID
d’Hebron (HUVH). The balloons were released by more than 80 children who drew a giant PID with their bodies. Afterwards, children enjoyed a show of giant soap bubbles. This act was done in collaboration with the Jeffrey Modell Foundation (JMF), the school Jesuïtes Sant Gervasi, HUVH, VHIR and the ACADIP association.
SYNCHRONIZED SWIMMING FOR THE BCN PID FOUNDATION
The center of synchronized swimming “CN Kallipolis” celebrated their summer festival for the benefit of the BCN PID Foundation. The festival began with an emotional choreography, composed especially for us, where more than 150 swimmers "danced" with our puzzle piece as a demonstration of support for all children suffering from PID. We explained to all attendees what PID are and made a charity raffle to raise funds for research, education and comprehensive health care
of children with PID.
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ANNUAL REPORT 2015 / ACTIVITIES 2015 / SOCIAL ACTIVITIES, AWARENESS AND FUNDRAISING
1ST INTERNATIONAL FESTIVAL OF PEDIATRIC PATIENTS' PAINTINGS 2015
Four children with PID followed at the Hospital Universitari Vall d’Hebron in Barcelona took part in the 1st International Festival of Pediatric Patients’ Paintings which was held in Tehran, Iran from October 6th to 9th, 2015. More than 200 kids from around the world participated. Alba Begara was one of the patients selected to attend
the festival and eventually was the winner of this first edition! At the Hospital Universitari Vall d’Hebron a selection of the best pictures of the festival were exposed and were available to be visited for several weeks.
CHARITY DINNER FOR PID
On July 9th, in the wonderful gardens of "Maria Reina de Pedralbes" in Barcelona, a charity dinner took place in favor of the BCN PID Foundation. The event was held by Events@Help. During the dinner, enlivened by the journalist Pilar Calvo, the prizes "In Positive" were awarded for the first time. Dr. Andrea Martin from UPIIP and Secretary of the BCN PID Foundation gave one of the awards and explained to all attendees what PID are and the most relevant tasks of our foundation.
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ANNUAL REPORT 2015 / ACTIVITIES 2015 / SOCIAL ACTIVITIES, AWARENESS AND FUNDRAISING
CHARITY CONCERT FOR PID MARIMURTRA GARDENS
On Saturday 1st of August the live music festival at Marimurtra Gardens, in Blanes, was inaugurated with a charity concert for the BCN PID Foundation. More than 180 people enjoyed the songs of two great groups "Boxets" and "Enric Verdaguer Band" in the wonderful Marimurtra Botanical Garden. The evening was even more special than expected: Boxets had prepared a wonderful surprise to all of us,
the song "Colour Bubbles" written and composed especially for us and dedicated to each of the children suffering from PID.
SOLIDARITY CHRISTMAS SALE TO RAISE FUNDS FOR PIDs
From December 1st to 4th, 2015 our Solidarity Christmas Sale in Barcelona to raise funds took place to improve research and training in PID. This 2nd edition was a great success and many firms participated by donating their products for our sale.
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ANNUAL REPORT 2015 / ACTIVITIES 2015 / TRAINING
TRAINING
"JANA ESTEVE" TRAINING GRANTS
As a part of our Training and Educational track, we have created the “Jana Esteve” grants for young researchers. These are scholarships for pre- and postdoctoral graduates and technicians with previous training in immunology, preferably in the field of immunodeficiencies. Our aim is to train professionals dedicated to the research in the field of PID that will allow achieving excellence in the diagnosis and treatment of patients.
During 2015, two “Jana Esteve”
training
grants
were
announced to attend courses abroad:
Meeting
on
Immunology and Autoimmunity / Immunodeficiency, November 13th to 14th, 2015 in Frankfurt and IPIC (International Primary Immunodeficiency November
5th
to
congress) 6th,
2015 in
Budapes with an amount of Marina García and Clara Franco, a biologist at VHIR and a last year immunology resident at HUVH, respectively, received these fellowship grants.
PID COURSE FOR RESIDENTS AND NURSING
250€ and 500€, respectively.
The BCN PID Foundation was one of the co-sponsors of the 5th edition of the training course on PID for resident physicians and 2nd edition for nurses that took place in April 2015 at the ACMCB in Barcelona. The courses were coordinated by the PID group of SCP and SCI and with more than 40 attendees. The purpose of these courses is to train health professionals to ensure an early diagnosis and better treatment of patients with PID. In this way, the foundation accomplishes one of its foundational objectives by promoting training of health professionals in the field of PID.
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ANNUAL REPORT 2015 / ACTIVITIES 2015 / TRAINING
SCIENTIFIC AND SOCIAL CONFERENCES
We believe in the importance of disseminating PID, their warning
signs, and the importance of their diagnosis and treatment among health professionals and the society as a whole. For this purpose, we organize and participate in informative and educational talks about PID and the job done by our foundation.
Conference on PID, warning signs and diagnosis. Pere Soler-Palacín, MD, PhD, Pediatrician at the UPIIP in Hospital Universitari Vall d'Hebron and President of the BCN PID Foundation. April 11th, 2015, Sala de Pedra, Argentona.
III State Conference of Biomedicine Students – Conference about the latest news in research and other initiatives to improve care for people with PID. Pere Soler-Palacin, MD, PhD, Pediatrician at the UPIIP in Hospital Universitari Vall d'Hebron and President of the BCN PID Foundation. December 4th, 2015, Barcelona.
Conference on PID, warning signs and diagnosis in an ACADIP activity. Andrea Martin, MD, Pediatrician at the UPIIP in Hospital Universitari Vall d'Hebron andSecretary of the BCN PID Foundation. Casino, Vic.
8th Conference for the administration staff of the Catalan Institute of Health "Listening to improve." Presentation of our foundation and the importance of citizen involvement. Mrs Carlota Villar, Vice President of the BCN PID Foundation. November 11th, 2015, Barcelona.
Volunteer Acknowledgement Day at Hospital Universitari Vall d'Hebron: "Our volunteers, the heartbeat of the hospital." Event led to the recognition of the tasks performed by volunteer of the organizations and associations that work with HUVH. We introduced our foundation and the work we do with children suffering from PID. Pere Soler-Palacin, MD PhD, appreciated the role of patients and families in fundraising campaigns and being active actors in research projects. Mrs. Carlota Villar, spoke from the patient’s perspective to establish a multidisciplinary team that is currently needed to achieve excellence in the management of PID. November 18th, 2015, Barcelona.
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ANNUAL REPORT 2015 / ACTIVITIES 2015 / SOCIAL SUPPORT
SOCIAL SUPPORT The BCN PID Foundation works to give support to pediatric patients with PID and their relatives attended at the Pediatric Infectious Diseases and Immunodeficiencies Unit (UPIIP) in Hospital Universitari Vall d'Hebron, Barcelona to improve their quality of life.
TRANSPORTATION AND FOOD GRANTS
Due to the socio-economic difficulties suffered in the last years, many patients cannot cope with the expense of regular transportation to the hospital for outpatient visits, day-care hospital treatment (many of them do not live in the same city) or their own meals in case of prolonged admission. In addition, depending on the family
socioeconomic status, we provide school supplies to children allowing normal schooling during their hospital stay.
Part of this aid is carried out together with ACADIP with the help of La Caixa..
COUNSELING PROJECT
Children with PID are diagnosed with a chronic disease at any age and independently of their gender and social status. It means that they
suffer a stressful situation that interferes with their normal
"I HAVE A PID. I'M NOT ALONE"
development. Children are subject to multiple hospitalizations and recurrent diagnostic tests and treatments that significantly alter their quality of life and their family environment. The "I have a PID. I'm not alone" project promotes psychological and emotional well-being of children and their families, understood as an essential element of a comprehensive health concept. It provides psychological support tailored to the needs and demands of each patient and family. To offer a high-quality psychosocial support, we work in an appropriate environment that facilitates communication between patients and professionals with material resources for
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specific work sessions and appropriate to each age.
ANNUAL REPORT 2015 / ACTIVITIES 2015 / RESEARCH
RESEARCH
SUPPORT TO NEWBORN SCREENING PROGRAMS
Newborn screening of the most severe group of PID is a need to ensure a lower mortality and morbidity of patients born with severe combined immunodeficiency (SCID). That is why we are currently fighting for the inclusion of TREC testing among the universal newborn screening in Catalonia. A letter to support SCID newborn screening was delivered to the President of the Parliament of Catalonia. The letter received full support of the Catalan Society of Pediatrics (SCP), the Catalan Society for
Immunology
(SCI),
the
Catalan
Group
of
Primary
Immunodeficiencies and the Catalan Association of Primary Immune Defects (ACADIP).
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ANNUAL REPORT 2015 / ACTIVITIES 2015 / RESEARCH
GAMMACAT AND PIDIVIG PROJECTS
The GAMMACAT project studies the main features of patients with PID who are being treated with immunoglobulin. The group of Primary Immunodeficiencies of the Catalan Societies of Pediatrics (SCP) and Immunology (SCI) has promoted this project to describe the epidemiological and clinical characteristics of the population (children and adults) with PID currently receiving IVIG / SCIG therapy in Catalonia.
The definition and characterization of a cohort of patients treated with IVIG / SCIG will allow carrying out several projects to optimize therapy, offer clinical support to prescribers and obtain a potential source for future studies on immunoglobulin replacement therapy with national coverage.
The PIDIVIG project consists of the design and development of an online application for monitoring and evaluating immunoglobulin replacement therapy in patients with PID. The objectives of the study are to enable the management of information related to immunoglobulin replacement therapy and to have monitoring indicators (KPIs) that enable standardizing clinical practice by detecting potential ways of improvement.
These two projects are carried out in collaboration with CSL Behring速 and allowed the hiring by the VHIR of a research coordinator.
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ANNUAL REPORT 2015 / ACTIVITIES 2015 / SUPPORT TO ACTIVE CAMPAIGNS
SUPPORT TO ACTIVE CAMPAIGNS SMS CAMPAIGN FOR PID – VHIR
A new SMS campaign has been released from the Vall d'Hebron Research Institute (VHIR) to get funds to benefit PID research. From our Foundation, we encourage you to collaborate in this initiative. Send a SMS with the word “DIDAC” to 28014 (only from Spain).
TEAMING GROUP HELP CHILDREN LIKE JANA
A crowdfunding campaign by "Teaming Group”. For
BIOBANK OF PEDIATRIC PID
The company Nicequest has launched a fundraising campaign through
only 1€/month you can help and support PID research at Vall d’Hebron Research Institute (VHIR).
Worldcoo to raise funds for the Biobank of pediatric PIDs of the VHIR. This will allow progress in the study of this group of rare diseases.
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ANNUAL REPORT 2015 / ACTIVITIES 2015 / MEDIA - SOCIAL NETWORKS
MEDIA / SOCIAL NETWORKS
RADIO, PRESS AND TV COVERAGE
Having as a main goal to spread the awareness of PID, communication
actions have been done in press, TV and radio.
BTV “Barcelona TV”: Pere Soler-Palacín, MD, PhD, an investigator at the “Infection in Immunocompromised Pediatric Patients” group of VHIR spoke about PID, all their different groups and the warning signs. He pointed out the importance of
newborn screening and the possibility to establish it in our country in the following years. Finally, he explained the SMS campaign “All with Dídac” and how it helps to support the first Biobank at VHIR that collects samples of patients with PID, opening a wide range of possibilities in the research field.
WEBSITE
Thanks to the WIN Grant announced by the Jeffrey Modell Foundation (JMF), we are renewing our website which will also be available in English. This new website will enable our followers to keep updated of our activities, have access to the newsletters or make donations to help us fight against PID
SOCIAL NETWORKS
In less than a year we have positioned ourselves as a reference foundation on PID in social networks in our country and
internationally. We maintain a regular update of our activities on Facebook and offer updated information on PID and its progress in
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Barcelona PID Foundation @FundacioIDP_Bcn
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diagnosis and treatment on Twitter. The increase in followers on social networks in these few months has been remarkable.
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FRIENDS OF THE BCN PID FOUNDATION
ANNUAL REPORT 2015 / FRIENDS OF THE BCN PID FOUNDATION
“YOU ARE THE MISSING PIECE OF THE PUZZLE” CAMPAIGN With the aim to raise awareness of PID we have launched the campaign "Become a PID friend. You're the missing piece of the puzzle" in which well-known people in the world of entertainment, sport, culture, journalism ... take a picture with our puzzle piece as a demonstration of support for our foundation and for children who suffer from PID.
Jordi Évole - Journalist
The Roca brothers– Chefs of the restaurant El Celler de Can Roca
Nani Roma - Pilot Rally Winner of the 2004 and 2014 Rally Dakar
Tarragona Rugby Club Vicki & Fred Modell Jeffrey Modell Foundation
Martí Gironell - Writer and journalist
Boxets – Musical group Enric Verdaguer & Band – Musical group
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ANNUAL REPORT 2015 / FRIENDS OF THE BCN PID FOUNDATION
Armand Monleón - Spain TT Rally Champion and runner-up world champion in Cross Country Rally of Sardenya Rally Race 2015
Mónica Green and Lucrecia- Singers
José and David Muñoz, ESTOPA – Musical group
Salvador Vieta and crew of the boat TRAMENDU
Xavi Pasqual and Víctor Tomàs Coach and captain of the Barça Handball team.
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Pep Sánchez - Athlete
Anna Tarrés - Former Olympic swimmer synchronized swimming
Pep Bou– Artist
Els Amics de les Arts – Musical group
Antonio Díaz- El Mago Pop Magician and illusionist
ANNUAL REPORT 2015 / FRIENDS OF THE BCN PID FOUNDATION
Football players of the RCD Espanyol – Spanish football league
Helena García Melero, Empar Moliner, Gemma Puig, Els Matins de TV3 - Journalists
Honorable President of the Parliament of Catalonia Mrs. Núria de Gispert. Joan Lluís Bozzo - Director of the theater company Dagoll Dagom
Members of the town council and the Mayor, the illustrious Mr. Lluís Guinó
Àlex Corretja - Former professional tennis player
Dani Ramírez- Meteorologist Marta Tomasa and Jordi Coll Actress and ballarina- Actor
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PARTNERS
ANNUAL REPORT 2015 / PARTNERS
PARTNERS OF THE BCN PID FOUNDATION HOSPITALS AND RESEARCH INSTITUTES
FOUNDATIONS AND PATIENT ASSOCIATIONS
PRIVATE COMPANIES AND OTHER ENTITIES
PHARMACEUTICAL INDUSTRY
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ANNUAL REPORT 2015 / ACKNOWLEDGEMENTS
ACKNOWLEDGEMENTS We do not want to forget to thank all those who have given us their support and have joined our fight against PID. To all, thank you!!
Elena Cobos · Júlia Fuenllana · Ivan Gauxax · Marta Cols · Albert Esteve · Roger Colobran · Núria Murtra · Mónica Espadaler · Elena Sensat · Clara Franco · Anna Fàbregas · Marina Garcia · Àlex Pinós · Marta Tomasa · Jordi Coll · Jordi Évole · Joan, Jordi i Josep Roca (El Celler de Can Roca) · Nani Roma · Club de Rugby tarragona · Vicki & Fred Modell · Boxets · Enric Verdaguer · Martí Gironell · Xavier Pascual · Victor Tomás · Tripulació embarcació Tremendu · José i David Muñoz (Estopa) · Armand Monleón · Pep Sànchez · Pep Bou · Els amics de les arts · Antonio Díaz (El mago Pop) · Anna Tarrés · Dani Ramírez · Mónica Green · Lucrecia Pérez · Àlex Corretja · Núria de Gispert · Helena G. Melero · Empar Moliner · Gemma Puig · Jugadors del RCD Espanyol · Joan Lluís Bozzo · Lluís Guinó · Pere Soler Montoliu · Mª Jesús Amer · Ester Miralles · Consuelo Duran · Mª José Amer · Blanca Brun · Montse Recasens · Inés Bultó · Elena Azcárate · Yvonne Mestre · Meritxell Serra · Begoña Lera · María Colomar...
“Tots amb Dídac” campaign to raise funds for research in PID
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And You? You are the missing piece!
Collaborate! www.pidfoundationbcn.org ACCOUNT NUMBER FOR DONATIONS: ES16 2100 0764 3902 0019 4562
Av. Diagonal 467, 5è 2ª, 08036. Barcelona │ Tel: 934.893.140 │ pid_barcelona@pidfoundationbcn.org │ www.pidfoundationbcn.org