NOTE BOOK
BENEFIT ASSESSORS TRAINED SESSIONS AIM TO HELP PEOPLE WITH IBD RECEIVE SUPPORT
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Crohn’s and Colitis UK is moving from St Albans to Hatfield, six miles east. From 6 August our new address will be: First Floor, Helios Court, 1 Bishop Square, Hatfield Business Park, Hatfield AL10 9NE
HOURS EXTENDED FOR LIVECHAT Crohn’s and Colitis UK’s Information Service has extended its hours. The LiveChat service now matches those of the Helpline: 9am to 5pm on Monday, Tuesday, Wednesday and Friday (except English bank holidays) and 9am to 1pm on Thursday. Call 0300 222 5700 or visit crohnsandcolitis. org.uk/livechat for information on: l Medication l Symptoms l Tests and diagnosis l Dietary questions l Employment issues lW elfare benefits
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Find out how best to manage living with IBD
LEARN FROM THE EXPERTS IBD SPECIALISTS WILL SHARE KNOWLEDGE AT MANCHESTER AND LONDON SESSIONS
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Training for health assessors is vital
“We know that our members struggle to go through these assessments due to the fluctuating nature of IBD.” Four training sessions took place over the last couple of months in Bristol, Manchester, Edinburgh and London, with 250 to 300 participants at each session.
LIVING OUR VALUES NEW VIDEO LAUNCHED
rohn’s and Colitis UK’s Patient Education Programme offers patients the chance to learn more about IBD and to hear from specialists about living with and managing their condition. Each free event features expert speakers and a Q&A session.
Crohn’s and Colitis UK commissioned Disability Rights UK to research the barriers in the system for those applying for ESA and Personal Independence Payment. This knowledge has informed how the charity supports members, including through its Information Service Helpline and for training the benefit assessors.
An inspiring new film featuring animated illustrations is putting the spotlight on Crohn’s and Colitis UK’s values. The video highlights the values through people involved with the charity, from 10-year-old fundraiser Gabby and GP Kevin Barrett to chief executive David Barker and other members of the Crohn’s and Colitis UK team. Watch it, and read more about the people in it, at crohnsandcolitis.org.uk/ values
should I expect from diagnosis and investigations?’ Lisa Fell, specialist gastroenterology dietitian, addresses the role of diet in IBD.
Sunday 3 February 2019 Consultant gastroenterologist Dr Simon Campbell speaks on drug treatments in IBD; Dr Paul Collins, consultant gastroenterologist at The Royal Liverpool and UPCOMING SESSIONS MANCHESTER Broadgreen University Cath Stansfield Novotel Manchester West Hospital NHS Trust, looks at Sunday 24 June 2018 new treatments; and Lynn Veronica Hall, nurse consultant Gray, IBD Nurse Consultant, in gastroenterology, and Khashia Wirral University Teaching Mulbagal, consultant obstetrician and Hospital NHS Foundation gynaecologist at Royal Bolton Hospital, Trust, looks at alternative talk about pregnancy and fertility. treatments for IBD.
SHUTTERSTOCK
WE’RE ON THE MOVE
rohn’s and Colitis UK has played a key role in delivering training for health assessors who are responsible for completing Employment and Support Allowance (ESA) assessments. The aim is to improve health assessors’ awareness of the challenges of living with IBD, which will help people with Crohn’s and Colitis access the benefits they need. “By improving the knowledge of these health assessors about what it’s like to live with IBD, we hope that people will have better outcomes when applying for benefits,” says Lauren PhillipsBrighouse, helplines manager at Crohn’s and Colitis UK.
(speaker TBC), and Dr Shuvra Ray, consultant gastroenterologist, Guy’s and St Thomas’ NHS Foundation Trust, discusses new treatments in IBD. Saturday 15 September 2018 Alex Hall, IBD clinical nurse specialist at Homerton University Hospital, discusses ‘What is IBD and what should I expect from diagnosis and investigations?’. Megan Houghton, IBD dietitian, King’s College Hospital, will look at the role of diet in IBD.
Saturday 13 October 2018 Dr Nora Thoua, consultant gastroenterologist at Homerton University Sunday 14 October 2018 Sunday 21 April 2019 Hospital, talks about Alex Hall Cath Stansfield, nurse consultant in Dr Jonathan Epstein, consultant pregnancy and fertility. Plus gastroenterology at the Salford Royal general and colorectal surgeon at ‘Living with IBD’ (speaker from Crohn’s NHS Foundation Trust, looks at Salford Royal NHS Foundation Trust, and Colitis UK TBC). practical tips on living with looks at surgery and IBD, while Sunday 18 November 2018 IBD, and Dr Claire Rehan, George Lipscomb, consultant Mr Janindra Warusavitarne, colorectal consultant clinical gastroenterologist and surgeon at St Mark’s Hospital, speaks psychologist at Royal physician at the Royal on surgery and IBD. Kay Greveson, Bolton Hospital, speaks Bolton Hospital, will about coping with IBD. IBD clinical nurse specialist at Royal address cancer and IBD. Free London NHS Foundation Trust, Dr Jonathan Sunday 2 December 2018 LONDON will look at ‘Travel and IBD’. Epstein Dr Salil Singh, consultant The Wesley Euston Hotel and Conference Venue physician and gastroenterologist at BOOK ONLINE AT Royal Bolton Hospital, will answer the Sunday 1 July 2018 crohnsandcolitis.org.uk/PEP The sessions are: ‘Coping with IBD’ Places are limited. question: ‘What is IBD and what CONNECT • SUMMER 2018 • 13
